0 Votes
1 Answers
OXYGEN TUBING - RETRACTABLE DEVICE

I had a hard time finding something like this and wanted to share with any of you who are looking for a product to help with your oxygen tubing issues. This is a link for a company (Oxygen Management Systems) who is selling a retractable oxygen tubing …

Author: ShirleyJ
0 Votes
3 Answers
Ready for an update to my tubing control method?

My O2 supplier delivered supplies this morning. He was impressed with my split loom setup to reduce trip hazards. and how I loop the tube thru the concentrator handle to prevent pulling the tube off of the concentrator. I printed out my instruction sheet …

Author: edpe77
0 Votes
19 Answers
Tubing control

I'm not sure if this specific band would work for canula tubing but it is called an Ear Saver. Most of them are headbands for women with buttons but the one in this link could work for men as well if the button were sized correctly - or perhaps a shank …

Author: Jastro
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0 Votes
6 Answers
Looking for ideas for setting up oxygen tubbing I am currently living in a tri level

setting up oxygen line

0 Votes
18 Answers
Oxygen Tips and Tricks - What works for you?

Green! Who knew? I needed more hose, and they sent green hoses! Perhaps it's because I joked that I needed lots of hoses because I keep standing on them. These are supposed to be sturdier. Salter's page says: " Salter's 50-FOOT GREEN Oxygen Supply …

Author: muddleaged
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0 Votes
6 Answers
Storing oxygen tube when temporarily not in use.

What do you do with your oxygen tubing when you change from the home system to the portable system? Throwing the tubing on the floor is unsightly. I've been coiling it into a plastic bin until I change back when I get home, but that's definitely not an …

Author: muddleaged
0 Votes
22 Answers
Ohtuvayre from Verona Pharm

Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …

Author: Sedona7
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0 This question has no answers.
Check-in: We're Celebrating Pulmonary Rehab!

Have you ever heard of pulmonary rehab and wondered what it was all about? You're in luck! The COPD Foundation is celebrating Pulmonary Rehab Week by bringing you helpful information all month long! If you want to get a sneak peek on what's to come, …

0 Votes
8 Answers
Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)

I have seen this study, and other articles reporting on this study. This does look promising, but more research is surely needed. Wondering why this isn't happening? This is an easy, supplement to get - not some expensive pharmaceutical needing a …

Author: Richard DJ
0 Votes
7 Answers
Possible Emphysema....Scared

A little background on August 19th I went to the ER with shortness of breath, weezing, and a cough. Blood work showed a high d-dimer so ER DR ordered a CT with contrast to look for PE.No PE, but they did see mild pneumonia in the left lower lobe, and …

Author: Lulubee
0 Votes
3 Answers
Can’t exercise

Exercise is a challege for anyone with a COPD diagnosis which means most everyone on this list. We all do the best we can without causing ourselves additional damage. I've heard there are a few who run marathons but many of us find a walk around the …

Author: greenie1
0 Votes
14 Answers
Not typical - Heartbroken - Lack of answers

Welcome T Town.......Sooooo......If you've been following for a few months then I'll guess you've already read the info in the tabs at the top of the page--if not then read--It's helpful. I'm just a patient like yourself so I can't answer your questions …

Author: T Town
0 Votes
6 Answers
Check-In: A Big Month for COPD Conferences!

Obviously, the hottest topic of November is COPD Awareness Month and all the news and events that go along with it. This time of year also brings a lot of respiratory conferences! Since our first World Oxygen Day event on October 2, I’ve been traveling …

0 Votes
5 Answers
Virtual Pulmonary Rehab - Have you tried it?

Hello Friends! I hope you are all doing well today! We talk a lot about pulmonary rehab and the benefits of the exercise and education that come along with it, but like so many things affected by social distancing, those programs might look a little …

0 Votes
9 Answers
Sleep-Does anyone have sleep decreased on an inhaler?

I just switched from Trelegy to Adavir Diskus (250/50mcg) primarily due to the cost of the two. Trelegy was $47 a month and up to $250 when I hit the gap in August vs $8 a month for the Advair and I won't hit the gap next year unless something drastic …

Author: netmouse
0 Votes
3 Answers
Prednisone-I have been reading that taking Prednisone long term can cause cancer.

I have been reading that taking Prednisone long term can cause cancer. I have been on it for 6 years. My doctor never told me this. Have you heard of this? Worrie

Author: PamK
0 Votes
2 Answers
Stiolto Respimat-Has anyone else had problems using Stiolto Respimat

Has anyone else had problems using Stiolto Respimat. Problems start about 3 days after starting this inhaler. Around 5pm i start feeling better.

Author: AmandaRob
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0 Votes
7 Answers
Trelegy-Anyone notice a change in their voice on this medication.

Anyone notice a change in their voice on this medication. It works well for me. But, i voice is getting worse. I guess it's time to go to ENT doctor.

Author: perkyH
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0 Votes
3 Answers
Pulmonologist questions next visit thoughts

I visited the pulmonologist for a consultation. A little surprised at the lack of masking. Says seems more like asthma and my lungs sounded good. I don't think he had my medical records but I am not sure and am scheduled for pulmonary testing next month. …

Author: omgForReal
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0 Votes
11 Answers
Any one on dupixenr yet? What are your thoughts. Thank you.

If anyone is like me and unable to do a good job of injecting himself/herself, try to find someone else to inject you. So far, every time H has injected me, I’ve gotten a full dose with NO drips, no leaking of any medication and no bruising. When I …

0 Votes
10 Answers
Trelegy problem

Hello, I tried posting this before, but it disappeared, so I apologise for any duplication. Trelegy makes me gag, retch, and worse. It takes some time to recover. Has anyone else had this problem? I would appreciate any advice. Thanks!

Author: Ghiaccia
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0 Votes
10 Answers
Who works full time?

I work full-time. I sit about half the time, and half the time I am rushing around. I walk about 5-8 miles a day at work. I work with people directly. Sometimes I work 7 days in a row. I am moderate/severe with an FEV of 47%. I am not on oxygen. My SP02 …

0 Votes
2 Answers
How Can I Reduce or Eliminate My Chect Cavity Pain

Hello. New user here. I have have stage 1 COPD that was stable and very mild (pretty much no symptoms the vast majority of the time) for 18 years. I had an exposure that finally reduced my function somewhat. It's still being called stage 1, but now I …

Author: vandykd3
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0 Votes
9 Answers
Questions to ask Pulmonologist

I have emphysematous changes as per my last CT so I was keen to see if there was in any impact on my lung function. As Dr Mannino suggested previously the results have turned out to be normal. I know it will progress and I am doing everything in my …

Author: RedPower
0 Votes
4 Answers
Need some hope.

Hi Greenie, I'm not a clinician, and only clinicians can crunch your numbers... However, you do seem to have many of the lifestyle factors that are regularly discussed as negatively impacting COPD... Current smoker / obese / sedentary... The clinicians …

Author: greenie1
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.