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2
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Most recent PFT results from today
PFT from today
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10
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Any updates on Nucala Experience?
I have a new lung doctor and he is recommending I go on Nucala. I have Chronic Bronchitis/ Asthma symptoms and no Emphysema symptoms. My Symbicort can’t keep my symptoms under control all the time an I have gone on oral Prednisone 3 times per year for …
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3
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Check-in: Are you prepared for the unexpected?
September is Disaster Preparedness Month! How many of us cringe when we see a tornado watch or a severe weather alert? Do you worry about how you’ll power your medical equipment if the power goes out for a few days? While we can’t control wild weather or …
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4
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Check-in: Are you protecting your lungs at work?
Your job can have a big impact on your lung health. Many people think of COPD as a smoker’s disease, but a lot of factors can contribute to chronic lung conditions. Aside from smoking, one of the biggest risk factors can come from your job. At work, some …
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9
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Trelegy has been a miracle!
I started on Trelegy around the 1st of the year and it has been amazing! I feel 100% normal ever since starting on this drug and have had zero issues with it. I just thought I would give this perspective to anybody who may be thinking of trying it. I get …
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1
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PFT with allergy/primary doctor
So I had posted my pft results from November (done by pulmonologist) where basically fev1 was 85%, fvc was 100% and fev1/fvc was 65%. Well had test done yesterday at allergy doctor on portable unit and those results were much lower. Fev1 was only 66%, …
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co2 issues
The test to see if you are retaining co2 is and ABG (arterial blood gas test), that is usually taken from your wrist and can be painful. Lack of appetite is not a symptom I am aware of, but shortness of breath OR agitation and/or confusion are. A BIPAP …
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6
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Allergies to copd meds
I went to a pulmonologist had the lung breathing tests but could not check for my stage because I'm allergic to Ventolin and albuterol. He sort of through his hands in the air and more or less said I can't help you. I tried to see another …
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5
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Aspiration Recovery-Any one know?
My husband had is first aspiration and hospital stay.I hear some say it takes up to 3 months to fully recover. Some are saying you do fully recover and others say you don't. Any one know?
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25
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My Zephyr Valve journey
Today I had 4 Zephyr valves inserted into my left lung. Since finding info on patients who have gone through it has been difficult for me, I decided to share what I can in hopes it might help someone else looking for info or trying to make a decision. …
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34
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Anyone hopeful about possible regenerative therapies in near future?
Its really interesting to get Dr David Mannino's Professional opinion on these trials. David Mannino, MD (Chief Medical Officer, COPD Foundation ) Firstly I agree, avoid "clinics" that offer stem cell based treatments that are unproven, there are many out there who are happy to take your money but …
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4
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Lung Volume Reduction Surgery
I am wondering if any of you have had LVRS and what you cam tell me about it. Thanks in advance for your input.
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7
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Oxygen needs
I have moderate COPD and secondary mild Pulmonary Hypertension. My pulmonary function tests this past October showed some improvement. tResults from a 6 minute walk showed that my oxygen levels were above 88 during exercise and supplemental o2 for …
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RV/TLC nomral but elevated RV, FRCpl... is this concerning?
I did use a good amount of effort on the test. After visit report says no evidence of obstruction or restriction. I asked follow up about some of the numbers but didnt get much further clarification from the pulmonologist. SPIROMETRY : FVC 115% ; FEV1 …
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How many people were told about portable mesh nebulizers by their Doctor?
In a search for a nebulizer machine that worked on both plug in and or batteries ( which I could not find) I came across a "mesh nebulizer" on Amazon for 49 dollars US and purchased it. Used it and I am so mad I had to go threw so many gut wrenching …
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13
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A different kind of quit smoking question...
Not too long after I quit I joined a quit smoking site that maintains stats as a motivator. This is from my profile page with my current stats. Based on averages: 25,925 unsmoked, better yet $10,629 dollars saved and best of all I am breathing again
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Why don't people want to quit smoking?
Hi DannyB - I really wish it was that simple. I'm speaking as a former smoker, the addiction to smoking cigarettes is not mostly psychological. There is also a physical addiction to the substances in cigarettes. I finally quit smoking 18 years ago …
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4
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When to up oxygen level?
I'm curious. When do people get on oxygen? Is it only when a pulse oximeter shows low oxygen levels? I sometimes have shortness of breath, especially while healing after relapsing. (Which I'm going through now. Not smoking tho!), but my at-home pulse …
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2
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Is it true I just lost 10 years off my life?
I was diagnosed with afib and coronary artery disease when I was 34 years old and I now have 5 stents since then.. Now just last week I was brought to the emergency room where I was diagnosed with COPD (emphysema) ..
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Are you part of Medicare’s Extra Help or Low-Income Subsidy (LIS) program?
If you are part of Medicare’s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?
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2
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Ohtuvayre residue in Neb cup.
I use two different Nebulizer cups for Ohtuvayre. One, the Aeroeclipse XL and the other, the Parí LC Sprint. I don’t notice anything unusual with the Aero, but the Sprint ends up with a gelatinous residue on the inside and outside of the insert. Is this …
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3
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Check-In: Commonly Asked Questions About Pulmonary Rehab
Pulmonary rehabilitation (PR) is a program designed to help people living with COPD or other chronic lung conditions feel better and breathe easier. Today, we are answering some questions to help you decide if PR is right for you. What happens in a …
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Mesh Neb condensation
Is there a mesh Nebulizer that produces a good aerosol that doesn’t condense half the volume in he mouthpiece (and not slow.)
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11
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How do you stay healthy and active while living with COPD?
People with COPD are asking: how do you stay healthy and active while living with COPD? We asked members from our COPD community to share your own personal tips. Check out what they came up with! Join us in the conversation by sharing your own tips for …
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1
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How many of us remember these horrible ads?
Many of us got to where we are today from smoking cigarettes, cigars, and pipes. Young people today (especially medical professionals) simply don't understand how, given the potential for tobacco-related illnesses, we started smoking to begin with. What …
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