0 Votes
5 Answers
Flying with POC-Any advice/experience will be greatly appreciated

I am flying in a few weeks and my doctor had to fill out a form for United Airlines. I will be using it for taxiing, takeoff and landing at 2L. I'm a little nervous about it, but I have batteries that will last a total of 18 hours (My flight is 3 hours …

0 Votes
7 Answers
Flare-ups -When should I contact my doctor to discuss this?

Hi everyone, This is my first time on this sight. I was diagnosed with COPD back in 2021. In November of last year I had my first flare-up. Pretty scary to say the least. I have had 5 more flare-ups since then. My question is, is this a lot? When …

Author: Lakegirl
0 Votes
3 Answers
Spirometer readings-Can someone please explain these readings

Can someone please explain these readings: PEF: 60% FVC: 1.4 liters 45% F2575: 0.43 22% FEV6: 1.40 49% FEV1: 0.84 35% FEV/FVC: 60% Thankyou.

Author: Auriel
0 Votes
8 Answers
COPD AND EXTREME NAUSEA

I am nauseated every morning. Tried OTC meds. but no relief. The Doctor isn't worried about it but I'm tired of a sick stomach every morning. I'm in stage 4 and 68 years old. If anyone has found some relief please let me know.

Author: Preacher
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0 Votes
1 Answers
Continuous flow

hey everyone, I have been really bad shape in the hospital for 15 days, but sick 20 days before being in the hospital in progressive care unit. So today I’m going home or I was using 2 m of oxygen. I’m going home with five and I’m OK with that. But what …

Author: GAnne
0 Votes
3 Answers
Brinsupri - a game changer?

I’ve just read that recently FDA approved a new drug called Brinsupri for managing flare ups due to bronchiectasis. Could this be a game changer for someone like me who has frequent flare ups, almost every month, and is quite desperate. I know this is …

Author: Ilzija
0 Votes
3 Answers
Cold Dry Air

Hi, I'm new to this community. I'm having a problem: My inhome DeVilbiss O2 Concentrator makes a lot of noise (45 dB) so I operate it in my living room at night and in my bedroom closet during the day. The tubing runs along the floor which is hardwood …

Author: DivineMrM
0 Votes
6 Answers
Trelegy and Roflumolast

Does any one take these together. My dr prescribed the roflumilast as an add on. I have to have some test done, blood work for eosinophils cell, in lung. Then an electric cardiogram to see if heart is doing work of lungs. I have bullous emphysema like …

Author: GAnne
0 Votes
21 Answers
Emphysematous Changes On CT Incidental Find

Hi Everyone, for completeness I thought I'd add these in especially if anyone ends up in a similar situation to myself in the future. These were the PFT results that I had recently prior to my appointment with my consultant, FVC 5.58 (93% predicted) …

Author: JD85
0 Votes
8 Answers
Does anyone have a lack of appetite, or problems with weight loss since your diagnosis?

Hi Caroline, Thank you so much for your response. I do most of the things you suggested, except I don't drink milk or dairy of any kind. When my appetite is on track, I usually eat yogurt and oatmeal for breakfast, and occasionally, sausage. I also eat 2 …

Author: Cas
0 Votes
2 Answers
Clarification

Hello, I've been reading the forums for a while now and have also read the some of the educational articles. I'm looking for clarification on a few items. A bit of background. Smoked many years. Quit 7.5 years ago. Was approximately 100 lbs overweight …

Author: jxk
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2 Answers
Breast MRI

Since I have to be lying on my stomach for an upcoming MRI, should I have oxygen since my O2 number goes down when I lie down on my stomach. I do not require oxygen and I use a CPAP at night.

0 Votes
5 Answers
Background mild emphysematous changes CT scan really anxious

As noted above, you should have pulmonary function testing (spirometry, lung volumes, DLCO) and blood testing for Alpha-1 (genetic emphysema). I suspect you will be normal or near normal ( which has been true for most of the people who have found us with …

Author: Dougal52
0 Votes
6 Answers
Bronchial atresia - should I be looking for treatment?

hello there Im a 51 year old woman in good general health. I was diagnosed with bronchial atresia about 20 years ago after recurrent chest infections ands pleurisy prompted a CT scan. At the time I was told that there was no problem with CBA ands that …

Author: SDouglas
0 Votes
4 Answers
Anyone having luck using Ohtuvayre?

I’ve been using it for almost 6 weeks now and can’t say I’ve noticed any improvement. In fact I’m noticing phlegm in my throat which I never had before and I’m constantly clearing my throat now. Also, I think my o2 stats are actually lower. I called the …

Author: Kat Vee
0 Votes
19 Answers
Quite worried about disease progression

Hi, firstly I'm not a clinician but the graph below indicates those who give up smoking on average loose FEV1 at half the rate of those who continue to smoke (perhaps somewhere near normal) although nothing is guaranteed... So you've already bought …

Author: ricdanko
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0 Votes
8 Answers
Terminology on CT Report

To me- that means there is some evidence of emphysema ( thinned areas of lung or holes in the lung) on imaging. Most people with this alone have fairly normal lung function- but at increased risk for developing COPD in the future ( particularly if they …

Author: JD85
0 Votes
17 Answers
I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT??

This is rather long, but it is designed for those folks who have recently been diagnosed with COPD. It has some valuable information for everyone... I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT?? I am not a physician. Not even close. What I am is a …

Author: Uncle Jim
0 Votes
6 Answers
Its probably COPD - please help me to understand

Does a lack of reversibility strongly point towards COPD diagnosis? It just means that it is probably not asthma but it does not mean COPD - If it is COPD, can I still work in a lab with chemicals (i.e. is the risk worth it, should I quit/switch …

Author: David29
0 Votes
3 Answers
Financial Assistance

My 71 year old sister-in-law is now oxygen dependent. She lost her job as a result. Her husband suffers with his own health issues and recently lost his job too. We are helping them get governmental assistance with food and Medicaid. They cannot survive …

Author: JeanL
0 Votes
27 Answers
Retractable Oxygen Tubing: Do you use this?

I have had COPD for nearly 20 years and have fought that coiled medical tubing on the floor each and every day of those 20 years. My mother tripped over hers numerous times finally breaking both of her hips in two separate incidents. I have stumbled over …

Author: Janina K
0 Votes
3 Answers
Stage four bull cancer emphysema

so I have read my doctors notes from Monday this morning remembering I have to go have blood work done on Monday for the sales and ELECTRIC cardiogram on Tuesday so it said in his nerves that I had stage four bullies emphysema. So what does this mean for …

Author: GAnne
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0 Votes
17 Answers
End stage COPD and nighttime confusion?

Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …

Author: cheather
0 Votes
26 Answers
How Long Can your Oxygen Tubing Safely Be?

There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …

0 Votes
3 Answers
OnCOPD

I agree with the pulmnary Rehabilitation suggestion. Have you had pulmonary function testing or CT imaging post operatively?

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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.