Our Research Framework
The COPD Foundation Research Framework (COPD360) strategically aligns the goals of all COPD Foundation stakeholders including patients, health care professionals, caregivers, academic, government, advocacy groups and industry partners. Our mission is to ensure a central role for the patient/caregiver in all stages of research including project feasibility, study design, implementation, and dissemination of results.
Enables Clinical Trials, Surveys and Focus Groups
Exploring the Research Question
Assess the relevance and importance of the research question to patients and caregivers through online surveys and focus groups or data mining of the COPD Foundation databases.
Study Design and Feasibility
Integrate patient and caregiver insights to study design, identify potential patient advisors and trial investigators that will review and comment on draft protocols. Query COPDF research databases to define feasibility of eligibility criteria.
Facilitate recruitment in a primed community of potential participants by approaching individuals who meet eligibility criteria and disseminating information about the study throughout the COPD Foundation Global Community.
Provide operational Support as needed: eConsent, data collection (surveys, integration of external data), focus groups, efficient communication to participants.
Access to robust analytical tools for surveys and focus groups.
Support results dissemination to a broad audience using COPD360Social, Awareness campaigns, PRAXIS Buzz, JCOPDF, Patient Partners (State Captains and COPD PPRN), and Faces of COPD.
COPD360 Research Framework
The COPD360 research framework provides a powerful, flexible, HIPAA compliant infrastructure for managing longitudinal research studies and clinical trials.
The COPD360 research framework:
- Includes a care management solution, COPD360coach, a unique care management solution that enables peer-to-peer health coaches to efficiently manage and communicate with participants in a health coaching program
- Offers the opportunity for sophisticated data integration projects utilizing the Corepoint integration engine. The integration engine is a middleware component within our research infrastructure that enables us to manage the communication between disconnected systems and external data sources
If you wish to discuss a COPD360 research study, consulting services, or COPD360Social surveys and focus groups, please contact COPD360Net@COPDFoundation.org.