Posted on June 12, 2018 |
For individuals with COPD, there is a lot of medical information to take in. Once they have that information, there is also lots to keep track of – medications, specific nutritional needs, safe exercise methods, level of activity, oxygen use if needed and more. As if this were not overwhelming enough, they must then sort through this information, process it and ask the right questions – vital questions in order to know what they need to manage their COPD and stay well.
You may have heard the old saying “Two heads are better than one.” This really does hold true, especially when it comes to optimizing health. And this is why it can help to have a “health buddy.”
Posted on May 29, 2018 |
Patients and patient-led organizations are becoming more active participants in discussions about how to address health challenges on a global level. By Bret Denning, COPD Foundation Grant Writer
On Tuesday, May 22, 2018, Pfizer hosted a luncheon briefing, Global Trends in Health Care, with an emphasis on the role patients and patient-led organizations can play in influencing policy. Moderated by Angela Wasussa, Vice President of Global Policy at Pfizer, the panel featured renowned experts from around the world.
Posted on April 19, 2018 |
By Bret Denning, COPD Foundation Staff
Several COPD Foundation staff members recently attended a workshop on how the COPD National Action Plan can be used to advocate for better treatment options in rural America. Here is one analysis of the workshop and the common themes that emerged from the day.
On Monday, March 19, 2018, I attended a workshop at the National Heart, Blood and Lung Institute (NHLBI), COPD & Rural Health: A Dialogue on the National Action Plan. It was a fascinating conversation on how the different components of the COPD National Action Plan can be transformed from theory into actual practice in rural America.
Posted on March 13, 2018 |
Read our latest PRAXIS Nexus case study! Today, we will learn more about Meg S., age 62.
Meg S. was referred to pulmonary rehabilitation following a visit with her primary care provider. Here is some of the information shared in the pulmonary rehab intake interview.
Past utilization: Meg has been seen in the ER x 3 over the last three months for extreme shortness of breath, rib pain and intractable cough, feeling as if she’s “choking on my phlegm.” On the second visit, she refused an overnight admission to acute care due to obligations at home. One week later, on her third visit, in addition to nebulizer treatments, low flow O2, and smoking cessation counseling, she was provided with an Acapella device for secretion mobilization.
Posted on February 09, 2018 |
Do you have a great research idea for Chronic Obstructive Pulmonary Disease (COPD)? The National Institutes of Health (NIH) wants to hear from you! COPD remains the country’s third leading chronic disease cause of death. Although COPD is a significant public health problem in the United States, awareness of COPD remains low at all levels and significant gaps in clinical care, research, and treatments still exist. To increase the Country’s investment in COPD research, we have to ensure that the patient, clinical and scientific communities come together to articulate the areas where research is most needed, what research holds the most immediate promise and the long-term vision for COPD research.
The All of Us Research Program is a part of the National Institutes of Health’s Precision Medicine Initiative, a large, multi-year effort that will lead to advances in how we determine what treatments are right for each individual and how their unique genetic and environmental factors play a role in disease development and treatment. All of Us has a goal of gathering data from at least a million volunteers nationwide and now they are seeking ideas for important data elements and research questions the program might address using this data.
Posted on January 09, 2018 |
Last November, the COPD Foundation's Jane Martin had the honor of attending the first Rude2Respect Summit in Evanston, Illinois. The summit was a gathering of individuals representing more than 40 chronic health conditions or disabilities – disorders often confronted with the burden of health-related stigma. Read about her experience attending and reflecting on this important event.
Posted on December 05, 2017 |
Meet Susan M! Share your impressions in our latest COPD case study.
Summary of in-patient admission: Susan M. is being discharged today following a 6-day ICU and step-down admission for acute exacerbation of COPD with bacterial pneumonia requiring intubation and mechanical ventilation for a period of 32 hours. Subsequent to her extubation and transfer to the step down unit she was treated with oral antibiotics and Albuterol and Ipratropium nebulizer q 4 hrs. and prn at noc.
Posted on December 01, 2017 |
At the recent annual conference of the American Association for Cardiovascular and Pulmonary Rehabilitation (AACVPR) in Charleston, South Carolina, the COPD Foundation's Jane Martin met Robyn West, a representative of the Breathe at Ease program. She was impressed not only with the Breathe at Ease program outcomes but with Robyn’s enthusiasm. Over the following weeks Robyn and her colleagues talked with members of the COPD Foundation's Care Delivery Team about this exciting new COPD management program. Here is a summary of that conversation.
Posted on September 21, 2017 |
We're interested in your thoughts on our latest COPD case study: Jim B., a 68-year-old man here for his Phase II Pulmonary Rehabilitation intake interview.
A bit more about Jim:
Medical history: COPD, FEV1 six weeks ago was 38% of normal predicted, recent CXR shows flattened diaphragm with increased AP diameter, appendectomy age 34, broken nose and broken right arm as a child.
Posted on September 12, 2017 |
Samuel Louie, MD directs the UC Davis Asthma Network (UCAN) and the ROAD Center. ROAD (Reversible Obstructive Airway Diseases) includes COPD and the Asthma-COPD Overlap Syndrome. He currently serves as Director, Department of Respiratory Care at UC Davis Medical Center and is Medical Director for the California Society for Respiratory Care. His research interests include asthma, COPD, pulmonary rehabilitation and clinical outcomes in chronic disease management. From his personal philosophy of care: “Empathy is not an occupational hazard for me. The treatment of my patients’ diseases may be impersonal, but the education and care of every patient I have is completely personal. When you can’t breathe, nothing else matters.” Read our conversation with him here!
Posted on July 05, 2017 |
Pneumonia is a critical health concern for people with COPD. The incidence of pneumonia has been shown to be six to eight times higher in older adults with COPD as compared to their cohorts without pulmonary disease. People with COPD who develop these lung infections are also more likely to bear significant negative health outcomes related to their pneumonia. The following new research – the COPD and Pneumonia Study (CAP study) – aims to document the burden of pneumonia in the COPD community.
Posted on June 20, 2017 |
We recently sat down with COPD10usa’s top planners, the COPD Foundation’s Jason Moury and Stephanie Williams, both respiratory therapists with the Foundation. They are part of the team working to ensure attendees have the best possible experience. Here’s what they had to say about the Foundation's biennial national conference!
Posted on June 08, 2017 |
This PRAXIS Nexus post contains the highlights from the webinar "Developing an Effective ITP and Plan of Care During Pulmonary Rehabilitation." This event's main speaker was Gerilynn Connors, RRT, BS, MFAACVPR, FAARC, who works as Clinical Manager Pulmonary Rehabilitation at Virginia's INOVA Health System. In this post, she outlines the essential components of the Individualized Treatment Plan (ITP) and her approach to the assessment that is the foundation of the plan.
At the COPD Foundation's March 2017 Readmissions Institute for Connecticut healthcare providers held in New Haven, participants teamed up to discuss several distinct pulmonary case studies. The following is one of these, along with the questions and recommendations of the group who discussed the case. After you take a few minutes to read about this patient and the thoughts of the group, let us know: do you agree with their assessment and approach?
In this post from the COPD Foundation's Jane Martin, BA, LRT, CRT, learn more about "atypical and typical" COPD patients and testing for Alpha-1 antitrypsin deficiency, a genetic condition that can lead to serious lung and liver disease.