0 Votes
8 Answers
Worried about my dad

hi my dad is 58 years old. Diagnosed with end stage copd in 2015. My dad always tried to make the best of things even tho his condition. Things have been fine for so many years until this month. My dad has been in medical induced coma since Feb 6th. They …

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0 Votes
13 Answers
What to expect

A little late to this forum. My Dad's COPD leads me here. My younger sister, myself and my wife are caring for him. We think he is in the final stage of this horrible disease. He is 85 years old. My younger sister lives there at home with him, she has …

Author: Glen.Blair
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0 Votes
1 Answers
O2 Sats drastically lowered

Hi everyone. My mom has been on 5 liters of oxygen for about a year now. Except for her lungs she's actually pretty healthy. 77 years old blood pressure, blood sugar, cholesterol ....all good numbers but with COPD her lungs are shot. My question is has …

Author: Carolmcg
0 Votes
5 Answers
When you have thick discolored mucus and decreased lung function, how are you generally treated?

I’ve been aving some discussions and disagreements on how thick, discolored mucus and reduced lung function should be treated. My former pulmonologist would have be take antibiotics until I had no mucus or it was clear/white. My current pulmo and his PA …

0 Votes
36 Answers
Getting to Know the Community: Two Truths & One Lie

2 truths and a lie: 1. I obtained both my bachelor's and master's degrees in four years 2. I have had braces twice 3. I've never been to a professional sporting event

0 Votes
1 Answers
Valve procedure

Has anyone had valve placement in their lungs ?

Author: Chippie
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0 Votes
21 Answers
Were you in denial about your COPD diagnosis?

OK, I think the word isn't "denial" so much as shocked to be diagnosed with COPD and severe emphysema, since I really didn't have any risk factors: have never been around lung irritants, never exposed much to tobacco or other smoke, not exposed to …

0 Votes
13 Answers
No help for me...

Have been tested and during the test I was given an inhaler (test worse after inhaler). Doc told me I DO have COPD and to put salt in my wounds, there is NO help I can get to make my breathing easier. Was told I "could" have 5 more years if I quit …

0 Votes
17 Answers
Questions regarding the Pulmonx Zephyr valves

Selection criteria for the Zephyr valve therapy includes patients who: Are symptomatic despite optimal medication (e.g., mMRC ≥2) Have higher obstruction (FEV 1 , <50% predicted)="" have="" suspected="" emphysema/hyperinflation="" (e.g.,="" rv="">175% predicted) https://www.pulmonx.com/ous/professionals/patient-... https://www.pulmonx.com/ous/professionals/patient-... https://www.pulmonx …

0 Votes
2 Answers
Bronchiectasis and pulmonary hygiene

what works for you? I frequently get pneumonia from the colonized pseudomonas in my lungs. Soon I will be getting "the vest," and I do postural drainage everyday. I have a nebulizer that I dont use, although I have the meds to use when needed. Is this …

Author: Glady
0 Votes
14 Answers
Puzzels - per Stephanie's request

The Polish people polish their silverware

Author: edpe77
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0 Votes
3 Answers
Bad breathing and heavy chest while on Prednisone?

Does anyone experience a bit more labored breathing and chest tightness while on Pred.? It seems like every time I'm on it my breathing becomes labored at times and my chest feels heavy. I though this was supposed to open you up. I've been on this many …

Author: T23Cherry
0 Votes
2 Answers
Breath Training Explanation Please!

I hear about breath training and techniques such as pursed lip and abdominal. Can this be explained both as a How-To as well as what the benefits are?

0 Votes
4 Answers
Making Doctors' Appointments Easier

Sometimes talking with a family member or friend a few days before an appointment will help formulate more questions or help with wording. I am a big fan of writing questions and concerns down and having a pad of paper to write down answers. I also agree …

1 Votes
5 Answers
Stem Cell Treatments

Here in Florida we get TV commercials for stem cell treatments for COPD. These are always from some small clinic, never from a hospital or known entity. Watching their U-tube posts they simply interview patients who say they feel better or are breathing …

Author: Ken W
0 Votes
2 Answers
Feel like the youngest :(

so last week i just found out that at 36 years old i have copd! i have 4 small boy's 2, 4, 6 and a 8 year old. I want to live to watch tbem gro and become amazing fathers that i know they can be! It kinda shocked me that i jave it but yet again were all …

Author: TrishaP
0 Votes
8 Answers
National Institute for health and care Excellence new guidelines regarding bronchoscopic valves

Here is a link to the new NICE guidelines on endobronchial valves. https://www.eurekalert.org/pub_releases/2018-12/p-...

Author: DanK
0 Votes
11 Answers
Do you ever regain 'proper' breathing after quitting smoking; and have COPD?

I'm so discouraged, frustrated and guess just mad that my breathing has seemed to get worse the longer I'm not smoking! I had such a COPD 'flair-up' on January 4th - I haven't had a cigarette since. Put on oxygen January 5th, which with the help of …

0 Votes
0 This question has no answers.
85 yo woman with COPD and CHF wants end of life care without children’s knowlI am a friend and advoc

I am a friend and advocate for an 85 year old woman with stage 4 COPD and congestive heart failure. She has a trach and is on a vent. She has been on a vent for 8 weeks, occasionally going onto CPAP and BiPAP. He initial goal was to get better, go to …

0 Votes
0 This question has no answers.
Caregiver for 8yo woman with coped and cut has question but end of life decision to her life, but sh

I am a friend and advocate for an 85 year old woman with stage 4 COPD and congestive heart failure. She has a trach and is on a vent. She has been on a vent for 8 weeks, occasionally going onto CPAP and BiPAP. He initial goal was to get better, go to …

1 Votes
10 Answers
Pulse oximeters

how many people own and use. Pulse oximeters? How do you feel it benefits your overall health? Do you use it to help spot exacerbations?

0 Votes
2 Answers
Second hand smoke effect COPD? Even if its not done around the person?

We have someone in the house hold that smokes but they go outside to do so. I still say it effects my father with COPD but they wont listen. They also use vape pin in the house.

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0 Votes
1 Answers
I have copd and also a NTM

I have copd and also MAI a NTM. I am going through the treatment process which is long and looking for others doing the same

Author: Befg2000
0 Votes
2 Answers
Can my mom's oxygen supplier take her Portable Oxygen Concentrator away from her?

My mom has COPD, Emphysema, and Lung Cancer. In June of 2018 her POC broke down and her oxygen supplier told her that it could not be repaired, had her sign a paper stating she understood that it was her fault that it broke, told her she could not have …

Author: BJ Newton
0 Votes
13 Answers
New at the oxygen thing...and scared to death!

I went to a Pulmonologist a few weeks ago and was set up on oxygen last Friday, as my oxygen level when I went to him was 88l. I'm a 66 year old female and over many years have gained weight due to doctors refusing to do surgery on my knees so I could …

Author: treefrog
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.