COPD360social Questions and Answers


0 Votes
4 Answers
Does anyone use Essential Oils?

Does anyone use Essential Oils to assist with COPD? I use RC to ward off the germs. Just tried today and I actually felt better.

0 Votes
2 Answers
New and Looking for Support

Hello everyone, I am new here and am having a really hard time recently. Although I had never formerly been diagnosed, I have known that I have COPD for a number of years as a 40+ year heavy smoker. I also have other health issues as well. I had been …

Author: bonnieb
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5 Answers
trimming cannula prongs

Bill - the cannula tubing is 2 separate lines and each line enters the pendant by itself. The tubing is large bore. What kind of hose adapter were you thinking about? I just got a high flow regular cannula but it has a 7 ft. crush resistant attached …

Author: MuMarie
0 Votes
4 Answers
Age 40 with stage 2 COPD

Hi. I was diagnosed a few years ago when I was 36 or 37. My Doctor at first never told me how important it was to take my medicine and looking back I wish I would have. I have a different Doctor now. I'm taking 2 inhalers and daily breathing treatments. …

0 Votes
5 Answers
Newly Diagnosed with Emphysema and I am 31 years old

I was just diagnosed with Emphysema and I am 31 years old. I am having a lot of trouble dealing with this because I am a little lost with all the info online and by what my Doctor said. My Fev1 is 109% and my fvc is 118 I believe. After a CT scan she …

Author: aarone
0 Votes
7 Answers
Pulmonary Function Test

How many people are getting pulmonary function tests on a regular basis vs only after an exacerbation or hospitalization, or even not at all?

Author: Earl d
0 Votes
9 Answers
End stages of COPD

I'm brand new to this group. I've been searching the web for information on COPD. My Mom's doctor told us she is at the end stages of COPD. I'm so devastated, but trying to stay strong for my Mom. One question I had for the Dr. but didn't ask was..how …

Author: Lane07
0 Votes
3 Answers
Timeline of exasperations

How long do exasperations last? I got sick a month ago and am still feeling more out of breath and very fatigued. Just wondering how long they last or has my COPD progressed and now worder. I called the Doctor but he had no opening till March 9th. What …

0 Votes
1 Answers
​Mild COPD – here is my plan and my history. what do you think?

Warning: long post ahead I just got out of the lung clininc, and have now ruled out Asthma. This means the doctor will be telling me that I have mild COPD, probably Emphysema with some Chronic Brochitis. I write this post to visualize my plan for my …

Author: Dane47
0 Votes
6 Answers
Is it normal to feel ill most of the time with moderate COPD?

I was diagnosed with COPD about 8 months ago after a hospitalization due to what I thought was bronchitis. I am stage 2 moderate and I’m really struggling to hold down a full time job. I’m exhausted all the time. I sleep with a CPAP, take vitamins, take …

Author: Jean Gray
0 Votes
3 Answers
Does Everyone feel so Miserable?

I only saw my Primary doctor, I called for an appt with Pulmonalist and they promised they would contact me by end of business day. Well, they didn't. I guess I will call my primary back tomorrow and tell him what is going on, cause God, knows, when I …

0 Votes
2 Answers
Inhalers - double dosed maintenance inhalers?

Just curious if anyone here ever double dosed their maintenance inhalers?

Author: Bill66
0 Votes
1 Answers
Inhalers - unorthodox way to get the most out of my inhaler

I just found an unorthodox way to get the most out of my inhaler, I was lounging on the sofa and my wife gave me the inhaler and instead of sitting up, I stayed lounging and the puff went right into my lungs, didn't hit the roof of my mouth. Hope this is …

Author: Bill66
0 Votes
3 Answers
Inhalers - only inhaler covered will be Incruse ellipta?

I was just informed that the only inhaler covered will be Incruse ellipta, can anyone tell me about this. I've looked at the adverse reactions and long term effects on the pharmacy computer, I would rather hear it from my friends. Thanks Bill66

Author: Bill66
0 Votes
6 Answers
Exercise yourself off of oxygen?

I am wondering if it is possible to exercise yourself off of oxygen?

Author: tlane
0 Votes
6 Answers
Exercise - most enjoyable and beneficial?

Hi all, what type of exercise do you enjoy doing most? What do you find to be most beneficial?

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8 Answers
Exercise - resume exercise after an exacerbation?

How long, generally, should one wait before resuming an exercise program after an exacerbation? Thanks.

Author: tlane
0 Votes
8 Answers
Medication - running out of the inhaler?

This is the first month I actually did my medication as prescribed on a daily basis. I also added another worry on my shoulders. My actuation's are 2 puffs 4 times a day. The worry now is running out of the inhaler. I'm sure everyone has been there and …

Author: Bill66
0 Votes
3 Answers
Coughing - otc meds to help with the cough

is there any recommendations for otc meds to help with the cough

Author: Jax1949
0 Votes
1 Answers
Transplant stats

Hi all. I am curious about the stats of how many who have had lung transplants have contracted some form of cancer. Thanks as always.

Author: tlane
0 Votes
5 Answers
Oxygen - liquid O2

Anybody using liquid O2?

Author: Chippie
0 Votes
4 Answers
Handicap Tags for Car

i live in Florida and it states you pulmonary disfunction you need to be 60% and I'm at 66% but walking is not an easy task with COPD and Spinal Arthritis from neck to tailbone. Should I talk to Pulmonalist or my Pain Management Doctor to sign off?

0 Votes
11 Answers
severe cramping from the knee and below

I know there has been some posts about this, but, surely someone has found a remedy by now. I am having severe cramping below the knees...(front and back) almost every night. These cramps come in 20 to 30 second cycles...and sessions last up to 20 …

Author: lazy t
0 Votes
13 Answers
Symptoms before Diagnosis: How Long?

A 2014 COPD Survey found that the average amount of time patients experienced symptoms prior to diagnosis is 2 years and 9 months. How long did you experience symptoms before diagnosis? Does this time sound realistic? Here is a recap of the survey …

Author: Janina K
0 Votes
3 Answers
Prednisone and swollen leg

I had several doses of prednisone over 3 months to deal with a sinus infection It did its job, but 2 weeks later I have on and off swollen leg, foot and a worsening of knee bursitis How long does it take for it to all go away, or other than lasix, what …

Author: Jastro
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It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.