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0 Votes
2 Answers
A mass measuring 3.5 showed up on CT wasn't measurable 6 months ago . I am having PET scan tomorrow

Yes, it could easily be scar tissue. I know it is difficult but try not to worry. Even a PET scan often has false positives, remember it is used to rule out cancer not confirm it. 3.5mm is very small, 3.5cm is more concerning...your question was not …

Author: txmeme
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1 Answers
Will anybody be in southern California in late October?

RIGHT2BREATHE It is estimated that there are at least 15 million Americans who are living with COPD (Chronic Obstructive Pulmonary Disease) but who have not as yet been diagnosed.COPD normally develops very slowly, so slowly that those 12 million tend to …

Author: Uncle Jim
0 Votes
16 Answers
Anyone using Symbicort and Spiriva?

Hello to all, I am new here and diagnosed with mild to moderate COPD 10months ago, age 52, and quit smoking 15 months ago (former smoker of 30 years). I was wondering if anyone has used and changed from using acombination of Qvar and Spiriva over to …

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2 Answers
Why am I aspirations at night?

I have COPD at night I sleep sitting up in bed I am afraid to lie down because I aspirate. Why am I suffocating on my own mucous at night, why does it build up so much in my lungs and pool basically choking me? Is there anything I can do to reduce the …

Author: GIANNA
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5 Answers
COPD Team For Lung Transplant Evaluation

I would be delighted to offer any knowledge and/or experience that I have gained before, during, and after my double lung transplant in December of 2011. I have several things written that I would be glad to share. If you have any particular questions, …

Author: Louanne
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9 Answers
Hi i am new to this site

Hi,I am now to this site.i have a problem with a hoarse voice,a very sore dry tongue and a dry throat,this has only happened twice in 6 weeks,it seems to coincide with walking about in the extreme heat we have had in London recently,could.it be the heat …

Author: Bubba54
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8 Answers
Is wearing oxygen all the time keeping me from not be able to function at 93

I have similar symptoms when I hit 92. I was told by one of the "expert" docs at an ATS patient roundtable that we can't feel when our oxygen drops that "high". He suggested that I may be retaining CO2 with exertion and might be feeling that. I am not …

Author: AlinPerry
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6 Answers
How do you get over depression and loneliness?

https://themighty.com/2016/09/what-doctors-should-... This article was written about chronic disease in general but is very applicable to COPD Reaching acceptance of a new normal is often the most difficult hurdle to clear when coping with chronic …

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11 Answers
If you have participated in a Harmonica Class to help with COPD symptoms, what results have you had?

I would love for everyone to share their experience with playing harmonica and encourage others to participate or start a group if they are interested!

0 Votes
7 Answers
I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT??

This is rather long, but it is designed for those folks who have recently been diagnosed with COPD. It has some valuable information for everyone... I HAVE JUST BEEN DIAGNOSED WITH COPD…NOW WHAT?? I am not a physician. Not even close. What I am is a …

Author: Uncle Jim
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6 Answers
COPD qustions?

New to this, I have just been told on Monday that I have COPD. All started by having a restless night difficulty breathing and tightness in chest and did not get better as the day moved on, finally decided at 5 PM to go to the ER. I'm 60 and have …

Author: Wolf351
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0 Votes
8 Answers
Death Sentence?

Today my pulmonologist told me that my emphysema is now severe. I would very much like to hear from others who have the same stage. How are they managing? When were they diagnosed, etc. Any input will be appreciated.

Author: Goldilocks
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7 Answers
Calling All Supplemental Oxygen Users

Thanks to all of you who responded to the oxygen survey conducted by Rush University earlier this summer. While we await the results, the work continues and we need your help again. We have teamed up with organizations who serve all those who use oxygen …

0 Votes
19 Answers
Nutrition advice for COPD patients when first diagnosed?

Hi Russell, I was diagnosed in 2001, and do not remember getting any nutritional information at all at that time. I vaguely remember the RT's in pulmonary rehab talking a little bit about nutrition but that was probably in 2006. Hope all is going well …

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3 Answers
Diet

I have heard that eating a gluten free diet it helps breathing easier. Has anyone else heard this?

Author: Viper65
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3 Answers
Do Simply Go Batteries Require Special Handling?

I am getting ready to travel with 3 extra batteries for my Simply Go. Are there special requirements, or can I just put them in the pouch in the case?

Author: Caroline
0 Votes
8 Answers
Fear of flying oxygen

I am nervous about flying with oxygen and wondering if I will be able to breathe. Can you share your experience flying with 02. Did you feel anything different regarding your breathing or need higher dose 02? My doctor said, I should be fine but I am …

Author: di545
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9 Answers
Getting Out of an Exacerbation - How do I help??

I'll throw this out there; Asthma and/or exercise induced asthma with his COPD.The only thing you can do to help is to be as supportive as possible. If you are a part of his support system please hang in there. There are times when care-givers go thru as …

Author: Mousegal
0 Votes
1 Answers
Standard Letter for 02 & Airlines

is there a standard letter form to get from Doctor for flying I have to pay $60 for form to get filled out and wondering if there is a universal one I could use for future flights. Thanks Diane

Author: di545
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Low blood pressure with increased oxygen levels

my blood pressure dropped down to 80/50 in the past week , but my oxygen level increased to high 96 or higher. Can someone tell me why. I am on hospice now with possibility lung cancer

Author: Gsreed
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0 Votes
2 Answers
ER necessary at altitude what next

At 6100 ft in Lake Tahoe I went to 79 on my sats so my husband took me to the ER. They kept me overnight because I failed the walking test plus had a D DIMER level of 823. After a CT found no clots they gave me lovenox injection the next day and sent me …

Author: Evie
0 Votes
17 Answers
Mom has COPD, will an O2 concentrator help?

radgirl, If your mom isn't seeing a pulmonologist, she need to get a referral to one. That's first. Your Mom needs to talk with the pulmo about an exercise program, whether it's a pulmonary rehab program or an exercise program that she can do at home. …

Author: radgirl
0 Votes
3 Answers
COPD and Kidneys

Is there any relationship between COPD and kidney function?

Author: Redhead
0 Votes
6 Answers
Alpha1/COPD

I was diagnosed with COPD about 1 year ago and shortly after that I tested positive for Alpha1. I have been doing a lot of reading about these diseases and this is my question....as Alpha1 is a hereditary disease is it safe to assume that the Alpha 1 is …

Author: tlane
0 Votes
4 Answers
portable concentrator

I need oxygen 24/7 and wonder if there is any organization that could help with a portable "overtheshoulder" concentrator. Medicare says I won't qualify until Sept. 2017 because I have met my max? Harry Wilson klwilson57@comcast.net

Author: Whitey
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.