0 Votes
2 Answers
Roflumilast

Does anyone take Roflumilast, if so is it better than trelegy.I understand it has terrible side effects? G-Ann

Author: GAnne
0 Votes
2 Answers
Advair and hoarse voice

Hi netmouse - I'm sorry you're having this side effect. Are you using a spacer? If not, ask your doctor to prescribe one for you - it may help. It gets the medication farther down past your throat. Here's a video: Well, I don't know why it won't …

Author: netmouse
0 Votes
1 Answers
Tubing kiniking

Hi! My mom is on oxygen therapy and uses the 50 foot tubing- but sometimes it seems to kink up super fast- any tips or tricks to reduce this? I have seen some people say on line put it in the dryer or warm water- is that safe to do? Has anyone tried it? …

Author: KAKaRoo
0 Votes
9 Answers
I'm new to Trelegy - What results have you had?

Welcome Dave.....I'm also a Dave.....I've been using Trelegy for 7+ years and it works well for me. I remember it taking several weeks for it kick in completely. I'm not on oxygen and my O2 levels are always -96-97-98. A few years ago I switched to Anoro …

Author: DaveNTx
0 Votes
2 Answers
Anyone else diagnosed young?

I’m struggling with this so much

Author: Deegrace
0 Votes
8 Answers
Check-in: Have you experienced COPD symptoms from wildfires?

Taken out my front door during the Oregon 2020 fires. Fires were 20-30 miles away. Air quality was in the 300-400 scale here and much worse in other areas. I just try to stay inside and mask up if I do have to go anywhere. I have mini splits that don't …

0 Votes
1 Answers
My CT scan reported the below and now I am very afraid.

Advanced COPD with incipient fibrosis and emphysema in chronic bronchitis with numerous pulmonary and pleural granulomas requiring monitoring, particularly in the right middle floor.

Author: shaky
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0 Votes
3 Answers
Can anyone provide input on my Emphysema findings?

Hi all I am melvin588 and this is my story. I had COVID-19 in March 2021 and was in hopital for 2 weeks. A CT scan was done and I was told I had COPD. I was released from the hospital and had serve Shortness of Breath (SOB) for about 3-4 months after …

Author: shaky
0 Votes
4 Answers
Is it possible for a lung Dr to miss diagnosed some one with COPD and it just be long COVID?

Hello everyone, I was diagnosed 5 years ago with COVID and COPD on the same day, I believe I was misdiagnosed, and no doctors that I've had in the last 5 years that's taken my concerns searsely have I been allowed to keep as a dr past 2 weeks, and I've …

Author: SaraAnn
0 Votes
14 Answers
Ohtuvayre ??? Any feedback would be helpful!

My doc ordered a new vile for my nebulizer called Ohtuvayre. New drug so not too much info on it. My doc told me to take it WITH all my other viles!. I already take Yupelri & Albuterol & Budesonide &Formoterol in one day in my nebulizer called Ohtuvayre. …

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0 Votes
3 Answers
Hypercapnia excludes supplemental oxygen. Has anyone heard of thi

Hypercapnea describes high levels of carbon dioxide in your blood. This is a result of hypoventilation ( carbon dioxide that your body generates is typically removed from the lungs in the process called "ventilation" ). In "normal" people, elevated …

Author: MelPat
0 Votes
1 Answers
Emphysemia

Is Emphysemia STAGE 4 of COPD, Or are they very different illnesses?

Author: MelPat
0 Votes
5 Answers
Do you have Helpful Books about living with COPD

One of our board members, Dr. MeiLan Han from the University of Michigan, has written a book "Breathing Lessons: A doctors Guide to Lung Health " which we reviewed in our book club several months ago. She also recorded the audio for the audio version of …

Author: Who Me ?
0 Votes
9 Answers
Sunrise or Sunset?

Do you have a preference?

Author: JeanO53
0 Votes
2 Answers
Test results

Hi i have recently been diagnosed with moderate emphysema i have since stopped smoking but do not understand results could anyone help Acrobat Document: 4080959710_20250507_1625- SDMARESULT.pdf - Spirometry Test Coded entry - Forced expired volume …

Author: Cazzy999
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0 Votes
3 Answers
Has anyone used Wixela for COPD and if so, was it useful in relieving any symptoms?

Has anyone used Wixela for COPD and if so, was it useful in relieving any symptoms?

Author: Gary R.
0 Votes
6 Answers
Spirometry interpretation

Looked this up on ChatGPT. Apparently the graphs indicate moderate to severe obstructive lung disease but the numbers don't bear that out. Quite confused, so was the nurse to be honest.Bit scared of ending up on supplemental O2 now. Especially with the …

0 Votes
3 Answers
How safe is Famotidine 40 mg ?

Hi Ben - Welcome to 360Social. I'm not a clinician, but I think you should let your doctor know that when you stopped taking the prescribed PPI, your acid stomach came back and let them know what you are doing to get rid of it, and ask their advice about …

0 Votes
2 Answers
New pft

this is my newest pft from this past Weds .....hoping someone can help read it . Thank you

Author: Dawn000
0 Votes
5 Answers
Pft

This means that your values were low ( less than 80% of normal), but your FEV1/FVC was more than 70% ( no obstruction). This is a sign of "small lungs" and can be seen in a number of abnormalities ( obesity, diabetes, heart failure), but also can be seen …

Author: Dawn000
0 Votes
23 Answers
Ohtuvayre from Verona Pharm

Has anyone been prescribed the new nebulized therapy that is supposed to reduce exacerbations and is steroid free, I think, Ohtuvayre from Verona pharmacy? It has had great test results but my doctors here aren’t familiar with it apparently it’s some …

Author: Sedona7
0 Votes
2 Answers
Zephyr valves

Has anyone had a zephyr valve put in? If so how do you feel? How long was recovery from the surgery?

Author: LittleBird
0 Votes
2 Answers
Lung Volume Reduction Valves - not the removal surgery.

Looking for another person that has had the valves implanted and would like to share their experience. I am in the process of tests for the valves and just curious as to others experiences that have done this procedure.

Author: Colorowdy
0 Votes
5 Answers
Has anyone had the spiration valves put in? Which one is better zephyr or spiration?

Be sure you go to a specialist who has successfully done many of the valve placements. Some have a lot more experience than others. My lung doc who does a lot of them says that choosing the correct patients is the most important thing. You should be …

0 Votes
6 Answers
Leg pain

I'm getting a lot of cramping lately. Mostly in my thighs and calves. I'm also on beta blockers so that may have some impact. How do folk deal with this pain? It's almost crippling me. I'm struggling to walk at times.

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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.