0 Votes
1 Answers
ET With COPD

Does anyone out there have essential Thrombocytosis along with COPD

Author: Jlor
0 Votes
2 Answers
steroids short course

Hello I just came off a 5 day 40 mg steroid for a flareup I get anxious because I don't know how long it will last This is the first time it has happened to me I am at stage 3 Thank you

Author: jweb
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0 Votes
5 Answers
Spirometry 0.68

This is just below the normal FEV1 of 70% but i feel breathless more at rest and yawning all the time. Ive had bloods and chest xray all normal. Peak flow test was low 280 due to virus. Im sure ive got copd as tried sn inhaler for asthma with minimal …

Author: Jules1970
0 Votes
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Lung nodules - so worried!?

Hello, I have COPD and have lung CT scans from time to time. In my recent one, a pulmonologist noticed two lung nodules. She compared it with another scan done 3 months earlier and they were also there. In the beginning she got worried, but then she …

Author: Ilzija
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0 Votes
8 Answers
Forgiving yourself

Second question folks. I keep beating myself up for smoking and doing this to myself and my family (particularly my kids who have to watch me wrangling this beast). COPD has incredible physical challenges but the mental ones are equally confronting. The …

Author: RedPower
0 Votes
8 Answers
Emphysematous Changes On CT Incidental Find

Hey everyone, I'm 39, ex smoker with a 10 year pack history, quit 6 years ago, current military, so I had a viral infection (highly likely COVID) went to hospital as I couldn't breathe, this had been going on 6 weeks by this point. Ended up having a CT …

Author: JD85
0 Votes
3 Answers
Anyone diagnosed with COPD at a younger age?

I'm I guess not really that young, but found out I had some emphysema scattered in both my upper and lower lobes of my lungs. I tested negative for the AAT Deficiency. I am a preemie survivor, who was on a vent for three months after birth. But I had …

0 Votes
2 Answers
Controlling hoarseness from inhaler

Follow-up. I'm on Advair HFA 1 puff twice a day. This is the second week where I am coughing up a tablespoon or so of clear phlegm about 6 times a day. I have developed hoarseness from drug, so increasing to 2 puffs would seem a problem. It is like a …

Author: netmouse
0 Votes
10 Answers
Cell phone usage near oxygen

Hello to all. Newbie here. Still adapting to live on oxygen while sleeeping/napping. Safety question. I've read all kinds of do's and don't's lists while oxygen is in use. Not seeing any direct answers, when searching "Can I talk, text & surf on my …

Author: Dabladel
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Best Adjustable Bed 2025 | Expert Advise

I researched about the best adjustable bed for the past few days because I’m planning to upgrade my current setup for better comfort and support. I read reviews on the New York Times, Consumer Reports, and Popular Mechanics, and they are marking these …

Author: allen12
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Re: Trelegy Ellipta 100mcg/62.5mcg/25mcg

I had to stop TRELEGY for about a month or so while I figured out how to get it for free (d/t cost) from the Pharmaceutical company GSK. I took Advair hfa inhaler Rx from my PCP to get me through that short period. Once back on TRELEGY, I find it no …

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0 Votes
4 Answers
Struggling

I reviewed your spirometry from a couple of weeks ago- which was nearly normal. If you are having disabling symptoms you need another evaluation / second opinion. This does not look like COPD- but could be blood clots, heart disease, pulmonary …

Author: Grace2024
0 Votes
4 Answers
Doctors refusing me med/makes little sense to me

Hi Brittishere, I’m also based in the UK… Have you considered seeing a pulmonologist privately??? It’s around £150, at my initial appointment the pulmonologist spent over an hour talking me through my numbers / diagnosis / prognosis he now looks after …

0 Votes
1 Answers
Check In: ​Are you the strong, silent type? It’s OK to speak up about men’s health!

Are you the strong, silent type? It’s OK to speak up about men’s health! By Kristen Szymonik, BS, RRT, AE-C When was the last time you saw your health care provider ? Do you remember? Some men avoid seeing their health care providers . This can …

0 Votes
7 Answers
Ashwagandha benefits for COPD

I have been reading about a herb called ashwaganda,seems it can bring benefits to COPD patients.I have ordered online for a try of this herb to see if it will bring some benefits to me.I just wonder if any member has any experience of using this herb and …

0 Votes
1 Answers
Early COPD?

I’m 25 and recently had PFTs showing mild obstruction (FEV1/FVC ratio around 76%), low peak flow, no bronchodilator response, and a normal DLCO. I have no history of smoking. About five months ago, I started experiencing breathlessness nearly out of …

0 Votes
2 Answers
Tapering off Trelegy Ellipta

After experiencing numerous side effects from Trelegy Ellipta and my new doctor agreeing that I was over medicated, she put me on Anora Ellipta. I've been concerned about going off the Trelegy abruptly as a result of doing research and have been …

Author: SheriP
0 Votes
28 Answers
Anyone here living a long time with emphysema?

Hi, The graph shows life expectancy (for males) beyond 65, dependent on smoking status and COPD stage at 65... I think if you can get to 65 in stage 1 or 2 and quit smoking the outlook is fairly bright (on average / all things being equal)... One thing …

Author: Hopeful
0 Votes
5 Answers
COPD or just reversible bronchitis caused by heavy smoking?

Hi. I'm 29. For the past few months i've been smoking a lot of rollies with heavy tobacco, even 20 a day maybe. I've been feeling breathless while doing some effort but for the past days I noticed i feel a little without air even at rest, especially at …

Author: Cezar
0 Votes
25 Answers
How Long Can your Oxygen Tubing Safely Be?

There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …

0 Votes
5 Answers
Anyone's sp 02 abruptly change from say 81 to 95?

Pulse oximeters are not always accurate and are affected by multiple things ( cold hands, circulation, etc. ) The ones that give you a pulse waveform ( like in the picture below) can inform as to whether the problem is a poor pulse detection. It would …

Author: RAES
0 Votes
5 Answers
What does emphysema feel like to you? Does it feel like this?

Hello everyone and thank you for your time. I’m on a new account because I can’t recover my last one. My old name is happinesses. I made 2 posts last year and received some great information so I’m back again for some more. last year, I had an acute …

Author: Happydays
0 Votes
7 Answers
HAS ANYONDE HAD ZEPHYR VALVE SURGERY.

Has anyone had zephyr valve surgery

Author: Kath0415*
0 Votes
4 Answers
Have to be in humidity- how to deal?

Asking any doctors or anyone who has ideas…what do I do when I NEED to be outside in the humidity for prolonged periods of time for my kids sports, school stuff or parks etc? Is there a med I can take to help combat the humidity’s impact on my lungs? I …

0 Votes
10 Answers
COPD-Dupixent for their COPD

Dang--the internet ate my response. I just bought a new Frio duo pack to keep my Dupixent pen at or above 77 degrees when I am traveling. It is an evaporative technology that cools slightly as it evaporates and doesn't make the medication COLD but keeps …

Author: Kda
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.