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Check in—The My COPD Action Plan—An interview with Caroline
As part of the Patients as Partners Webinar, Caroline Gainer and I talked about her experience with the My COPD Action Plan. COPD Foundation Educational Materials Caroline has COPD, she is a COPD Foundation State Captain, and lives in West Virginia. …
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Asthma From a Patient’s Perspective: The Cough That Wouldn’t Quit.
Hi Kristen... Thanks for your post. My story is different. I had no problems breathing as a kid. Unfortunately I started smoking at around 13-14 years old and didn't quit until 4 years ago when I was 66. I was diagnosed with a "little" COPD in my early …
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Anyone diagnosed with CPFE (Combined Pulmonary Fibrosis with Emphysema)?
My dad was diagnosed with severe copd for the last 10years then he had bad exacerbation last March, at first the doctor's diagnosis was pnuemonia and he gave IV antibiotics but refused to give steriods, thinking this might aggravate his pnuemonia, …
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How many liters of Oxygen when exercising?
What is the maximum liters of Oxygen allowed when exercising? I know when at rest the max is 6lpm, I stand corrected though, but how about when the patient is exercising, how much oxygen can I give? thanks in advance for any inputs!!!
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Have you thought about the COPD triggers in your home?
Not sure if its, correlated but its all I can think of as nothing else has changed. They recently decided to renovate my apt complex to remove all carpeting and install hardwood flooring, plus new W&Ds etc. I was temporarily relocated to another apt …
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Reviews on Inogen products?
My aunt is having respiratory issues nowadays, and I have been told to buy her an Inogen concentrators, just wanted to know if its worth the price and if its providing quality devices or not? Is there any option to get a discount off the purchase form …
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I've had severe side effects from COPD inhalers. What has been your experience, good or bad?
Ive tried quite a few. Currently cut back on spireva because cramping. Dont notice it does anything after years of using , so I dont miss it. Symbicort works, but I'm afraid it has drawbacks too. Adrenal suppression and myopathy are my biggest concerns. …
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Check in— The Allergy Asthma Connection
Last week we talked about asthma-COPD overlap syndrome (ACOS), and how some individuals with COPD may also have asthma. Today we’re going to look at how asthma sometimes has another connection—to allergies. Let’s start by looking at what allergies are. …
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Is my diagnosis accurate to my results?
I think your pulmo isn't sure. The thing I saw in your test result that argues against asthma is that you have very little response to albuterol or whatever treatment you got between tests in the spirometry test you had; that says more COPD than asthma. …
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How did your symptoms improve after medications?
To those primarily with copd, chronic bronchitis what symptoms did you have pre diagnosis and how did your symptoms improve after diagnosis and medications? Im newly diagnosed with asthma and chronic bronchitis and I havent yet started on my inhalers …
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PFT interpretation help. Confused and scared
Hi there, 32 yr old male, gave up smoking 18 months ago after 15 a day for ~10 years. Am really struggling with health anxiety and after coughing up white/clear mucus for the last year since giving up I decided to seek a PFT. Do get some SOB after …
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Has anyone here used AllDayChemist in India to purchase their inhalers?
Has anyone used AllDayChemist in India to purchase their inhalers?
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Do I really have COPD-I was diagnosed with moderate COPD in 2016 with spirometry test.
I was diagnosed with moderate COPD in 2016 with spirometry test. Had cold in 2017 with some shortness of breath but took meds and was fine. Have had NO colds, etc or breathing problems since then and have never had to use inhaler or other meds. My last …
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Update/hope
i went to the doctor today and he reviewed my pft with me and say over all my results are good and I kept describing my symptoms screaming it’s emphysema, for the doctor to tell me I may have a hiatal hernia due to my 8 year history of bulimia, and the h …
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Article about COPD Research
Have you seen this article about research that relates to future COPD treatment at this website? https://www.pennmedicine.org/news/news-releases/20...
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Bronchiectasis and COPD – What is the connection??
You may be tempted to check which website you are on, but trust us, you are in the right place! It is important that we share information about bronchiectasis with this group because up to 30% of people living with COPD have bronchiectasis, too. For some …
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Check in— What is Asthma-COPD Overlap Syndrome?
If you have COPD, you know that managing it effectively can be possible, yet it can be a challenge. We know, also, that its common for individuals with COPD to have other chronic conditions that overlap with COPD—comorbidities such as right-sided heart …
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Check in—Are you more than your disease?
It was a day pretty much like most other days working in pulmonary rehab. We were expecting a new patient to come in for his initial assessment before starting the program. He walked in right on time. His name was Gus, he was 78 years old, average height …
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Up for a little fun and education? Try The Basics of COPD Crossword Scavenger Hunt
Up for a little fun and education? Head to the link below and download The Basics of COPD. Try your hand at our crossword scavenger hunt through the pages of the guide. ( If you want a little challenge, don't look at the page numbers located next to the …
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How long can you live with copd?
Personally, I didn't have the fear when diagnosed that I do now. The more I learn and understand what is going on the worse the fear gets. Edit: Woke up this morning thinking about this while having my morning coffee and came to the conclusion that …
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Interested in a different Word Game?
TILT DOLT COLT DITTY
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Weekend Puzzle... It's been awhile
2e My cup runneth over 4d By and large 5e 3 strikes and you're out 7e Capital gains tax How fun!!!
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FEV1 is getting better, DLCO is getting worse...
So, in January I had spirometry and DLCO and a 3 month follow up today. after tests in January switched from Spiriva to Trelegy. FEV1 got better---38 (Jan) to 47 (Today), but DLCO declined from 27 to 21.6. Shouldnt the twon numbers be going in the same …
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The Cure for COPD...
At this point, the best hope for a "cure" appears to be the work that is going on at real research facilities that are working with stem cells. The hope is to develop a method of altering stem cells so that they will actually work to regenerate lung …
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Are you within driving distance of San Francisco and want to learn more about lung health?
I'm not familiar with this year's program, but these sessions have generally been very informative and worthwhile. They usually have a good program in the morning and then a sponsored box lunch for all attendees and a chance to meet some of the leading …
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