0 Votes
10 Answers
Check-in -- Where Did You Grow Up?

I was raised in a small town about 20 miles north of Pittsburgh PA. named Springdale. Much of my childhood was spent in the country on my paternal grandparent’s land (140 acres) or at my maternal grandparent’s camp in the Allegheny Mountains of North …

0 Votes
1 Answers
End-stage?

Hi all, I was just browsing my medical records online (patient portal) and saw "End stage COPD". I googled what is meant by "end-stage" and it said that I should look for exacerbations. I had one last December and it put me in the hospital for 2 days. …

Author: PlainDave
0 Votes
6 Answers
Face Mask & Nasal Cannula Together

Being that this Coronavirus is going on, I thought I may ask; if any one has looked into or knows, how we would go about wearing a face mask and nasal cannula together at the same time.

Author: Brew
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0 Votes
18 Answers
Newly diagnosed, scared, and don't understand results/numbers?

https://www.youtube.com/watch?v=WyhOJR8btCsLooks like my link went else where, so once again

Author: dustbunny
0 Votes
17 Answers
Tubing control

I'm not sure if this specific band would work for canula tubing but it is called an Ear Saver. Most of them are headbands for women with buttons but the one in this link could work for men as well if the button were sized correctly - or perhaps a shank …

Author: Jastro
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1 Votes
5 Answers
Have you heard NHLBI's Dr. James P. Kiley and COPDF president John Walsh's radio interview?

Listen here -  https://www.youtube.com/watch?v=6GOs1BKOjes !

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Swollen foot

my right foot was twisted in a fall 4 months ago and swelled up. I iced it and eventually the swelling went down. It is swelling again now by evening. Does it have anything to do with copd

Author: bayroad22
0 Votes
5 Answers
How to encourage productive coughing to clear mucus

I am a family member of someone with stage 3 COPD. I worry she is nearing stage 4 very soon. My question and concern is around her very high mucus production and her constant small unproductive coughs which sound like she is drowning in mucus, but I have …

Author: Maebur
0 Votes
10 Answers
My deep breaths feel restricted and I cannot understand why? Does anyone else feel like this?

Okay I previously posted a similar question a while ago but would like to possibly see if anyone else is in a similar situation as myself but before I get into the details I would like to explain a little about myself. I am currently a 22 year old white …

0 Votes
1 Answers
stem cell therapy?

Does stem cell therapy work or is it a scam?

Author: karinjean
0 Votes
2 Answers
What is best mask with copd for covid

https://www.news5cleveland.com/news/continuing-cov... This is about a new study on mask usage and mask type effectiveness. There are issues with gaps around the mask. "If you have a mask on, it's not a perfect shield," Cameron said. "You still have …

Author: Evie
0 Votes
2 Answers
PFT Report

Hi, I just had my second PFT test yesterday. I asked for a copy. I do not understand the results. Can someone please explain this to me

Author: PamK
0 Votes
7 Answers
What happens after you start oxygen with copd is there a time limit for how long I have left

My mother in law has copd an has recently started oxygen use an is wondering what is next an if it means she has a limited amount of time left to live she isn't sure of the stage she is in or has entered

Author: AngelaT.
0 Votes
1 Answers
What is a plethysmograph?

Below is an abridged Wikipedia description. We've all used one during our Pulmo function test. Very interesting discussion for those that are just a little curious. I got curious about this because of my new oximeter {described elsewhere} has one for …

Author: edpe77
0 Votes
16 Answers
Can you over due O2?

Hack, You mentioned earlier that you exerted yourself and got into trouble with your breathing, feeling like you had to really dial up your oxygen flow. Something that helps a lot when you're exerting is to do pursed-lips breathing. It really helps so …

Author: hack
0 Votes
12 Answers
Good Days - Bad Days

Hello Friends, How are you doing today? Today’s Wednesday check-in comes from me, Jane Martin. I’ll be filling in for Stephanie for a couple weeks and maybe stopping in after that, too. Are you having a good breathing day – a “good air” day, or a “bad …

0 Votes
5 Answers
Is it really necessary to have a machine if you have been diagnosed with mild sleep apnea?

I have been diagnosed with mild sleep apnea and copd. I tried that cpap machine and cannot handle it.

Author: Cailey
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0 Votes
19 Answers
Interest in Support Group Call

I hope it's not too late. I would be very interested. I would be open to either web, or telephone, or both. I'm new here as we just moved at the end of March. I was at Better Breathers, and had friends and counsel at our previous home.

Author: PDeNardo
0 Votes
23 Answers
CO2 Retention

What is being referenced here is called the Hypoxic Drive. It is a very old idea with deep roots and no evidence to support it. Many people believe in the Hypoxic Drive and just as many don't. Hypoxic Drive theory, believes that a high flow of oxygen …

Author: PamR
0 Votes
6 Answers
Should I be getting regular scans

I am looking for some advice to see if my GP is following correct action I am 36 and had a CT scan in 2018 on a broken shoulder. On this CT it was picked up I have mild emphysema which was unusual due to my age. I did smoke but not long term. since this …

Author: Df2400
0 Votes
4 Answers
What Steps Are Folks Taking to Prepare For Emergencies, Evacuations and Power Outages?

Here and now is a good place to write steps you have/will take to prepare for emergencies, evacuations and power outages, as prevention seems a lot better than having to be in crisis mode.

0 Votes
5 Answers
COPD and Air Travel—What Should Be Considered?

So many of us with COPD have loved ones spread across this wonderful world and/or places we want to see, events we want/need to attend. Often flying is one of the fastest ways (sometimes the only way) of getting between distances. What should be kept in …

1 Votes
12 Answers
Holiday Travel and COPD

Hi Everyone, The holiday season is upon us which means more travel to see loved ones. Are you going anywhere this year? Do you have any advice or tips on traveling with oxygen? Do you have any general tips for traveling with COPD? On a side note: The …

Author: Janina K
0 Votes
4 Answers
How do you find the bright side.

Hi Obiron - I think Dave and Jean IA have given you great suggestions. Reaching out for help is the first important step. Then you will have to follow through. There is no one who can do this for you, but there are those who are trained to do this with …

Author: Obiron
0 Votes
11 Answers
How does wearing a mask affect your COPD?

How does wearing a mask affect your COPD? Many of my patients are refusing to wear masks because they claim they cannot breath with a mask.

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.