0 Votes
1 Answers
COPD Awareness

Sometime ago an idea was posted to offer a cap instead of a T-Shirt for COPD awareness. I would like to know if anything has come of that idea. I would like to have a ball cap that I could wear all year long and have people see it where a T-Shirt will …

0 Votes
19 Answers
How Long Can your Oxygen Tubing Safely Be?

There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, …

0 Votes
7 Answers
BODE index

Hey Folks, The BODE Index is a very common tool used by HCPs in pulmonary rehab and pulmonary practice. Like others have mentioned it is a 4 year survivability scale. It is based on a well published study that followed individuals with COPD over the …

Author: tlane
0 Votes
4 Answers
Taking Breo, still coughing.

There are several common reasons for chronic cough: 1. An infection (generally goes away eventually after infection is gone) 2. Asthma or other lung condition that is poorly controlled (can improve once well-controlled—adjust your meds with your …

Author: Arika
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0 Votes
5 Answers
Has anyone ever had thrush and how did you treat it?

Could not tolerate nystatin. Got just 2 small spots but can't get rid of them. From inhalers, of course even tho' I rinse and gargle.

Author: dustybill
0 Votes
20 Answers
Hoarseness

I apologize if I misspelled the word above.... Anyway, does anyone experience hoarseness or loose their breath while talking?

Author: Burma
0 Votes
11 Answers
New at the oxygen thing...and scared to death!

I went to a Pulmonologist a few weeks ago and was set up on oxygen last Friday, as my oxygen level when I went to him was 88l. I'm a 66 year old female and over many years have gained weight due to doctors refusing to do surgery on my knees so I could …

Author: treefrog
0 Votes
2 Answers
Portable Oxygen and Teppan Restaurant

My grandmother utilize a small portable O2 tank. We are planning to go to a Teppan Restaurant for dinner. The restaurant said it was fine. But we’re not sure they actually know what they’re taking about. Any advice appreciated.

Author: Adrienne R
0 Votes
4 Answers
Does anyone know if Pulse might not work for everyone?

The May/June 2018 issue of PulmonaryPaper will have a listing of the various POCs with their outputs. The two most robust units available are SeQual Eclipse and SeQual Equinox. Both deliver up to 3 LPM continuous and various pulse settings. The max …

Author: MargP
0 Votes
13 Answers
IT;S HAPPENING AGAIN!! PLEASE HELP!

I feel as Jim does, I'm certainly not going to try and be negative about this topic Jim posted about COPD, Unfortunately, I've had mixed emotions directed at me or at COPD in general. I had an ER Physician say to me about my COPD, "Well, you can only …

Author: Uncle Jim
0 Votes
14 Answers
Does high levels of CO2 cause SOB, even when our O2 levels are good?

Bill66 made this as a comment a few days ago. I think it is a topic worthy of further discussion. Clearly as COPD'ers we experience SOB with little or no provocation. I know I can walk from the bedroom to the bath in the morning with O2 in the low 90's …

Author: edpe77
0 Votes
8 Answers
Advice Needed

Hi everyone. I’m a newbie to this site. My mom is 68 and has stage 3-4 COPD and she lives with me. She’s to the point to where she can’t even walk to the bathroom, or take a shower without wheezing or gasping for air. Anyway my husband is getting real …

0 Votes
20 Answers
Spirometry: What was your experience?

What is a Spirometry test like? Spirometry (spy-ROM-uh-tree) is a common office test used to assess how well your lungs work by measuring how much air you inhale, how much you exhale and how quickly you exhale. What was your first spirometry test like? …

Author: Janina K
0 Votes
7 Answers
Can you rapidly go through copd stages?

I was diagnosed in June of this year. I actually just turned 46 yesterday. Both of my parents have already passed from Copd. I don't have insurance, so the only medical help I receive is through a free clinic. They give me Symbicort, but no other help. I …

Author: jenjen1971
0 Votes
1 Answers
My morning cough s ms worse as it takes an hour or so to get mythroat and sinus clear.

when im able to cough up sputum its light green. Im using a CPAP. with o2 bleed in at night and i use the water chamber with heated tubing. Could that be making a difference in cough levels

Author: Evie
0 Votes
3 Answers
A vet without a pulmonoligist

I am a 75 year old vet with COPD. My primary provider is the Spokane VA which as been without a pulmonoligist for over two years now. Unfortunately, I know more about my condition than my primary care doc. I've been told it's a budget drive problem and …

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0 Votes
4 Answers
Anxiety for Mom Venturing Out

I joined the Foundation tonight and looking forward to hearing the collective wisdom of the group. My 85 year old Mom uses oxygen at home at level 4-4.5 mostly 24/7 and while she does get to her doctor, rehab, and chiropractor appointments, she feels …

Author: SPG
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0 Votes
2 Answers
Are you a veteran or spouse of a veteran

Reading through some post regarding high percentage of vets with COPD. it was posted three years ago. Ha v e you signed up to participate in the Million veteran program? This program is a national voluntary research program designed to help researchers …

Author: Grover
0 Votes
21 Answers
How much time do you spend with your Pulmonologist

I am curious how much time people get with their Pulmonologist. I have two set appointments per year, one for spirometry test and discussion of results and one six months later for a "wellness" check. No matter what I want to discuss I am allotted …

Author: DanK
0 Votes
4 Answers
Sporadic sudden coughing and sweating...

At different times/places I will suddenly start coughing non-stop with little if any mucus, except in my nose. I also sweat like I've been running - it drips off my hair into my face/neck and my eyes tear and run. I can find no common denominator - I may …

Author: DDWa
0 Votes
7 Answers
No symptoms or signs

Hi All - I'm new to this!! I was just diagnosed with COPD but I have absolutely no signs - I breathe easy, no cough, etc. I stopped smoking almost a year ago but the damage has been done - what suggestions do you have to slow down the progression- I'm …

Author: Catrianna
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0 Votes
8 Answers
Taking Emergency 02

I recently got a POC - it's great, and I plug it into my cigarette lighter (how ironic) and it charges. 2 hour battery, or more on lower settings. Recently, my car stalled, and I wondered, well, ok, what would I do if my battery ran out and my car was …

Author: Jastro
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0 Votes
9 Answers
Humidity sensitivity

Can anyone tell when the humidity starts to climb over 60%? It seems I can tell with slightly more trouble catching my breath?

0 Votes
18 Answers
unmet needs in advanced COPD

What is your major unmet medical need if you have advanced COPD? What do you feel is missing in your treatment? What would have made you be more positive about future if you or a loved one have advanced COPD? Thank you.

Author: Dr. Baysal
0 Votes
1 Answers
Side effects Brovana vs budesonide

I am taking both these medications and having bad heartburn, backache, weight gain & fatigue. I take omeprazole for acid reflux. Trying to figure out which one might be causing symtons. I was on Symbicort & Sprivia and no side effects but …

Author: di545
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.