0 Votes
9 Answers
My best friend died from COPD. Need help with a question

This is a tough question for our community to answer as we are all pretty much trying to keep living. I can tell you this: In my capacity with the foundation for the past 12 years and a patient I have answered many letters posing the thoughts you …

Author: AmTa
0 Votes
6 Answers
Muscle & Body Ache

I would first call the Dr. and discuss this to see if one of the meds is doing it - maybe there is a change tht can be made. Also, even if you had the flu shot, it's not 100% so you may just have a touch of it. The doctor would want to know for sure! …

Author: di545
0 Votes
16 Answers
unmet needs in advanced COPD

What is your major unmet medical need if you have advanced COPD? What do you feel is missing in your treatment? What would have made you be more positive about future if you or a loved one have advanced COPD? Thank you.

Author: Dr. Baysal
0 Votes
10 Answers
Emergency Tanks and POC

Before I call Lincare, I would like to be prepared with information. A recent storm left us without power for 3 days. Was supposed to be longer, but thankfully, it was not. I use my compressor plugged into the wall, and i have a POC. I have about half a …

Author: Jastro
0 Votes
2 Answers
Is My Pulmonologist doing a good job

That is great news that your lungs are clear and your O2 is good. Yes, what your pulmonologist said sounds right and you should definitely follow his advice. A different doctor might give you another inhaler but that won't solve your problem, it would …

Author: Angie67
0 Votes
4 Answers
Community resources

hi, my boyfriend has COPD. He hadn't been keeping up with it like he should due to no health insurance. Anyways he just spend 6 days in the hospital, now he's on 02 24/7. Hes a truck driver, so now he can't work either. Hes over whelmed and dont know …

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0 Votes
6 Answers
Could COPD and Dementia be related

I have read there are something like 3 million people undiagnosed with COPD. Senior care facilities are adding Memory Care wings or buildings to handle the amount of seniors that now have some form of Dementia. I have learned that having low oxygen …

Author: Clarice
0 Votes
4 Answers
Incruse Ellipta

I was recently diagnosed with emphysema and COPD. I was surprised...I had bronchitis in October and pneumonia in December. but was also going through a stressful time as I was taking care of my elderly father who was on Hospice and dying. I actually read …

Author: Grannyto7
0 Votes
3 Answers
Does CPAP help with COPD?

I have to use my cpap with O2 added any time that I lay down or recline. I also have O2 the rest of the time as well. I take my meds before I go to sleep to help make sure I do not have any problems. My rescue inhaler is also within reach. It has take …

Author: Turtlrunr
0 Votes
3 Answers
Trilogy Machine

Hey everyone! My mom will be sent home with a trilogy machine this week and I have a couple questions. Is there a respiratory therapist that can come in the home and show me how to use it? I live 2 1/2 hours away and I have severe neuropathy and I have …

Author: Anjie
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0 Votes
3 Answers
Alpha 1 Test for free.,Anyone participated.?

There are quite a few research groups,out here. This is the first one I signed up with in2014.. Today I received an email offering the Alpha test for free. Along with the free test they also want to know your next Dr.s appointment. I do not want to be …

0 Votes
2 Answers
Why should you see a pulmonologist?

Are there specific things that a pulmonologist can do that say a respiratory specialist cannot do?  In coal country we have several different specialists who deal with asthma, allergies, black lung, and sinus conditions.

Author: Caroline
0 Votes
2 Answers
Fingertip blood pressure and oxygen monitor

I need to get my mum a oxygen and blood pressure monitor, can anyone advise of best one from experience? I'm in the UK. TIA

Author: HB
0 Votes
10 Answers
Does anyone hav a endobronchia one way valve?

I am looking into one way valves to reduce my SOB. Any thoughts?

Author: Chippie
0 Votes
11 Answers
I cannot afford my COPD medications…what can I do? Are there any affordable treatment alternatives?

Many COPD medications are not exactly cheap, and many COPD patients are on a fixed income.  What to do when the necessary meds simply cannot be afforded.

Author: Aunt Mary
0 Votes
9 Answers
Does an exacerbation mean I am getting worse? First one

COPD Exacerbation

Author: Angie67
0 Votes
4 Answers
Anyone else using silicone instead of vinyl cannulas?

First Ive heard of Silicone for this -- where do u buy them?

Author: PennyH
0 Votes
19 Answers
How healthy is one's constant focus on their severe COPD

What a fascinating topic! Ken, thank you so much for bringing this up. It's worth thinking about, and discussing. As Hack said, pretty heavy stuff. Although I don't have COPD (but I do have asthma that seems to be progressing), in working with people …

Author: Ken W
0 Votes
4 Answers
What inhalers are generally used for COPD together?

My doctor wants to use Breo and Stiolto they both have LABA drug in them and the flyers say not to , I need some insight on this. I have coughed for a year and half, been undiagnosed by m d . Went to e r 4 times having trouble catching breath and severe …

Author: 4me2breath
0 Votes
8 Answers
If you have COPD, have you been tested for Alpha-1 antitrypsin deficiency?

Here is the Alpha 1 guidelines to read. They do say test one or more. This is PDF format. http://www.alpha1.org/Portals/0/Documents/Alpha-1-.. .

Author: Nora
0 Votes
9 Answers
COPD + stomach issues. Anyone else experience both?

When you get short of breath, the brain goes into "survival mode" and sends blood (hence oxygen) to the most vital organs. Unfortunately, the bladder and sphincter muscle are not considered essential making you have to "go". In the course of my illness, …

Author: Jax
0 Votes
4 Answers
Hello, I am a Never-Smoker with COPD and several questions

About me, I am 41 female, Italian and Mexican. I live in MN so I live in VERY cold winters and VERY hot summers. As a child I had severe asthma, had pneumonia first time by age 4, again at 6. I was tested for the " bubble boy immune deficiency disease" …

Author: Kayfabe
2 Votes
1 Answers
How are COPD and Asthma different?

How different are COPD and Asthma? Is Asthma just a part of COPD in some people or is it a condition entirely itself?

0 Votes
5 Answers
asthma component with their COPD?

Does anyone experience asthma like symptoms, where you suddenly are short of breath and you are not exerting?

0 Votes
2 Answers
What is Reflux Induced Asthma?

I have read articles about Reflux Induced Asthma, but I have not understood the longevity of the disease.  It is this asthma that only shows up after one has spent the night with reflux issues, or is this asthma which is a permanent condition?

Author: Caroline
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.