0 Votes
10 Answers
Long Post -- Smoking / COPD / Many Questions

Hey GroovyLit..You have arrived at a great place here. A lot of people here are very knowledge and helpful. The others have given you good advice. I have COPD--I've had it for a long time and managed to ignore it until 10 months ago when I ended up in …

Author: GroovyLit
0 Votes
15 Answers
New Oxygen Survey

survey completed but it is only a survey for concentrators not the real oxygen LOX which is pure?? >>> some COPD sufferers cannot use concentrators due to CO2 retention allergy >>> UK Mike the QUESTION ON CANNULA refers ONLY to concentrators so therefore it is impossible to …

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0 Votes
20 Answers
Oxygen levels and lung function

copd and asthma are overlapping.  I have asthma and emphysema. http://www.ncbi.nlm.nih.gov/pubmed/23473596

Author: DJ Sligar
0 Votes
14 Answers
Does high levels of CO2 cause SOB, even when our O2 levels are good?

Bill66 made this as a comment a few days ago. I think it is a topic worthy of further discussion. Clearly as COPD'ers we experience SOB with little or no provocation. I know I can walk from the bedroom to the bath in the morning with O2 in the low 90's …

Author: edpe77
0 Votes
17 Answers
CO2 Retention

What is being referenced here is called the Hypoxic Drive. It is a very old idea with deep roots and no evidence to support it. Many people believe in the Hypoxic Drive and just as many don't. Hypoxic Drive theory, believes that a high flow of oxygen …

Author: PamR
0 Votes
14 Answers
Oxygen Tips and Tricks - What works for you?

Green! Who knew? I needed more hose, and they sent green hoses! Perhaps it's because I joked that I needed lots of hoses because I keep standing on them. These are supposed to be sturdier. Salter's page says: " Salter's 50-FOOT GREEN Oxygen Supply …

Author: muddleaged
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0 Votes
3 Answers
Any Tricks for Transitioning from BiPAP to O2 Canula?

I've been living with severe COPD for years & am on BiPAP (w. O2 bleed) & HiFlow O2 concentrator. I'm educated on IPAPA, EPAP, and Vt so BiPAP therapy goes well, but when I transition to my 02 canula for daily activities, I can't breath but in …

Author: James P
0 Votes
12 Answers
What boosts your mood?

I paint or draw to lift my spirit. I also move to hear my music

0 Votes
2 Answers
Need Some Guidance

Good Morning I am a caregiver for my 74yr old mother. She has COPD and stage 3A lung cancer. The COPD is the bigger monster right now. She was receiving chemo and developed a bad cough. It was rather glazed over at the oncologists and they simply gave …

Author: Annie119
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0 Votes
3 Answers
Spiration valve system produced by Olympus has now received FDA approval

This is great news for anyone interested in pursuing valves! A new player in the game! In addition to this news, Aetna announced they are now covering the procedure.

Author: DanK
0 Votes
6 Answers
Trelegy- has anyone tried this.......insurance does not cover it.

I use Trelegy also. I'm in my 4th month and it works well for me. I previously used Anoro, Spiriva and Advair. With Trelegy my breathing has stabilized-NO serious SOB- I'm able to exercise and do pretty much anything I want to. Might make me a little …

Author: Perky
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0 Votes
2 Answers
COPD OR ANXIETY

I am awoken every morning with tightness in my stomach that feels like anxiety. I use CPAP. I take medications for COPD, Spiriva, and am treated for anxiety. Increased anxiety medication has no effect. I also have the same issue when I doze off in my …

Author: King12345
0 Votes
6 Answers
abg test

Hello lazy t >>> your pulmo and Debbie are correct >>> I am speaking from 10 years caregiving only and believe a regular ABG test is essential ONLY IF you are COPD Stage4 and have been diagnosed as a CO2 RETAINER >>> ABG is not normally necessary unless your levels are …

Author: lazy t
0 Votes
13 Answers
Home Hospice - Your Experience

With her situation, would her pulmonologist be interested in getting her approved for an NIV device - it has the same mask as a BiPap but provides more support for their person. One of the pros of this machine is that your mom wouldn’t have to have a …

Author: HelpingMom
0 Votes
6 Answers
Chest tightness and painful breathing when laying down

Hello. I'm super new to this group and I'm wondering if anyone shares my experience or has any insight. About a year and a half ago, I started to feel tightness across my upper back and deep inside my chest when I would wake up in the morning. It has …

Author: Snooze
0 Votes
1 Answers
Stuffy and Runny nose

Of course i have COPD and i woke up yesterday with a runny stuffy nose. The mucus is clear........Do i worry about this or just take some medicine? Thanks

Author: perkyH
0 Votes
3 Answers
Suffering from anxiety over possible emphysema diagnosis.

Im new here and I’m scared, I’m really scared. Yesterday I went to urgent care with shallow breathing so they took a chest X-ray and the radiologist said it look like emphysema. Then the doc had me do a PFT which I did well on and it did not appear there …

Author: Stentor
0 Votes
3 Answers
Insomnia related to steroid use

Any tips for taking on insomnia related to steroid use? Thanks!

0 Votes
1 Answers
Should peak flow meter result correlate well to FEV1 result?

The action of exhaling hard into a hand held peak flow meter seems identical to the action of exhaling when measuring FEV1.

Author: Dratsab
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0 Votes
5 Answers
Curious

Remember the anthrax scare? The government stockpiled lots of cipro to be able to respond quickly. Alas, it had an expiration date. Replacing the meds every few years would be costly. And would it be necessary? They commissioned a study. A layman's …

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Cellcept side effects

Hi all, anyone else on Cellcept having a side effect of being extra tired?

Author: Evie
0 Votes
1 Answers
Anyone using Trelegy and have a side effect related to hearing?

Just started Trelegy this month, and have used it about 4 sittings, I started experiencing a whooshing like sound in my ears. As well as a feeling of being able to hear my blood pumping through my head, when not on the machine. It is very difficult to …

Author: klr
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0 Votes
3 Answers
PFT Test for COPD

What does a PFT Test for COPD consist of? I know it is a Pulmonary Function Test. What exactly is a PFT Test do? Also what do you have to do to while you take a PFT Test?

0 Votes
2 Answers
Alp

Hi I was recently diagnosed with stage 4 emphysema fev1 is 26 percent, I am 32 years old and yes I was a smoker but I also have Alpha-1 diffencency genotype pizz. So I guess my question is even with quitting smoking will my disease continue to get worse …

Author: Nic33Mich
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0 Votes
1 Answers
Does anyone know a doctor in the north georgia area that would write a prescription for Canada?

I can no longer get the help Ive had for the past 4 yrs. My income is a few hundred too much and not enough for me to buy the Advair 250/50 and Spiriva blisters here. can I buy them from India or anywhere w/o a prescription? i'm desperate, please help.

Author: ckcgwm
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.