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ET With COPD
Does anyone out there have essential Thrombocytosis along with COPD
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2
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steroids short course
Hello I just came off a 5 day 40 mg steroid for a flareup I get anxious because I don't know how long it will last This is the first time it has happened to me I am at stage 3 Thank you
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5
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Spirometry 0.68
This is just below the normal FEV1 of 70% but i feel breathless more at rest and yawning all the time. Ive had bloods and chest xray all normal. Peak flow test was low 280 due to virus. Im sure ive got copd as tried sn inhaler for asthma with minimal …
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Lung nodules - so worried!?
Hello, I have COPD and have lung CT scans from time to time. In my recent one, a pulmonologist noticed two lung nodules. She compared it with another scan done 3 months earlier and they were also there. In the beginning she got worried, but then she …
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8
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Forgiving yourself
Second question folks. I keep beating myself up for smoking and doing this to myself and my family (particularly my kids who have to watch me wrangling this beast). COPD has incredible physical challenges but the mental ones are equally confronting. The …
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Emphysematous Changes On CT Incidental Find
Hey everyone, I'm 39, ex smoker with a 10 year pack history, quit 6 years ago, current military, so I had a viral infection (highly likely COVID) went to hospital as I couldn't breathe, this had been going on 6 weeks by this point. Ended up having a CT …
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Anyone diagnosed with COPD at a younger age?
I'm I guess not really that young, but found out I had some emphysema scattered in both my upper and lower lobes of my lungs. I tested negative for the AAT Deficiency. I am a preemie survivor, who was on a vent for three months after birth. But I had …
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Controlling hoarseness from inhaler
Follow-up. I'm on Advair HFA 1 puff twice a day. This is the second week where I am coughing up a tablespoon or so of clear phlegm about 6 times a day. I have developed hoarseness from drug, so increasing to 2 puffs would seem a problem. It is like a …
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Cell phone usage near oxygen
Hello to all. Newbie here. Still adapting to live on oxygen while sleeeping/napping. Safety question. I've read all kinds of do's and don't's lists while oxygen is in use. Not seeing any direct answers, when searching "Can I talk, text & surf on my …
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Best Adjustable Bed 2025 | Expert Advise
I researched about the best adjustable bed for the past few days because I’m planning to upgrade my current setup for better comfort and support. I read reviews on the New York Times, Consumer Reports, and Popular Mechanics, and they are marking these …
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Re: Trelegy Ellipta 100mcg/62.5mcg/25mcg
I had to stop TRELEGY for about a month or so while I figured out how to get it for free (d/t cost) from the Pharmaceutical company GSK. I took Advair hfa inhaler Rx from my PCP to get me through that short period. Once back on TRELEGY, I find it no …
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Struggling
I reviewed your spirometry from a couple of weeks ago- which was nearly normal. If you are having disabling symptoms you need another evaluation / second opinion. This does not look like COPD- but could be blood clots, heart disease, pulmonary …
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Doctors refusing me med/makes little sense to me
Hi Brittishere, I’m also based in the UK… Have you considered seeing a pulmonologist privately??? It’s around £150, at my initial appointment the pulmonologist spent over an hour talking me through my numbers / diagnosis / prognosis he now looks after …
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Check In: Are you the strong, silent type? It’s OK to speak up about men’s health!
Are you the strong, silent type? It’s OK to speak up about men’s health! By Kristen Szymonik, BS, RRT, AE-C When was the last time you saw your health care provider ? Do you remember? Some men avoid seeing their health care providers . This can …
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7
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Ashwagandha benefits for COPD
I have been reading about a herb called ashwaganda,seems it can bring benefits to COPD patients.I have ordered online for a try of this herb to see if it will bring some benefits to me.I just wonder if any member has any experience of using this herb and …
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Early COPD?
I’m 25 and recently had PFTs showing mild obstruction (FEV1/FVC ratio around 76%), low peak flow, no bronchodilator response, and a normal DLCO. I have no history of smoking. About five months ago, I started experiencing breathlessness nearly out of …
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Tapering off Trelegy Ellipta
After experiencing numerous side effects from Trelegy Ellipta and my new doctor agreeing that I was over medicated, she put me on Anora Ellipta. I've been concerned about going off the Trelegy abruptly as a result of doing research and have been …
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28
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Anyone here living a long time with emphysema?
Hi, The graph shows life expectancy (for males) beyond 65, dependent on smoking status and COPD stage at 65... I think if you can get to 65 in stage 1 or 2 and quit smoking the outlook is fairly bright (on average / all things being equal)... One thing …
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5
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COPD or just reversible bronchitis caused by heavy smoking?
Hi. I'm 29. For the past few months i've been smoking a lot of rollies with heavy tobacco, even 20 a day maybe. I've been feeling breathless while doing some effort but for the past days I noticed i feel a little without air even at rest, especially at …
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25
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How Long Can your Oxygen Tubing Safely Be?
There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …
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Anyone's sp 02 abruptly change from say 81 to 95?
Pulse oximeters are not always accurate and are affected by multiple things ( cold hands, circulation, etc. ) The ones that give you a pulse waveform ( like in the picture below) can inform as to whether the problem is a poor pulse detection. It would …
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What does emphysema feel like to you? Does it feel like this?
Hello everyone and thank you for your time. I’m on a new account because I can’t recover my last one. My old name is happinesses. I made 2 posts last year and received some great information so I’m back again for some more. last year, I had an acute …
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7
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HAS ANYONDE HAD ZEPHYR VALVE SURGERY.
Has anyone had zephyr valve surgery
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4
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Have to be in humidity- how to deal?
Asking any doctors or anyone who has ideas…what do I do when I NEED to be outside in the humidity for prolonged periods of time for my kids sports, school stuff or parks etc? Is there a med I can take to help combat the humidity’s impact on my lungs? I …
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10
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COPD-Dupixent for their COPD
Dang--the internet ate my response. I just bought a new Frio duo pack to keep my Dupixent pen at or above 77 degrees when I am traveling. It is an evaporative technology that cools slightly as it evaporates and doesn't make the medication COLD but keeps …
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