0 Votes
7 Answers
Worried about my dad

hi my dad is 58 years old. Diagnosed with end stage copd in 2015. My dad always tried to make the best of things even tho his condition. Things have been fine for so many years until this month. My dad has been in medical induced coma since Feb 6th. They …

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0 Votes
17 Answers
Questions regarding the Pulmonx Zephyr valves

Selection criteria for the Zephyr valve therapy includes patients who: Are symptomatic despite optimal medication (e.g., mMRC ≥2) Have higher obstruction (FEV 1 , <50% predicted)="" have="" suspected="" emphysema/hyperinflation="" (e.g.,="" rv="">175% predicted) https://www.pulmonx.com/ous/professionals/patient-... https://www.pulmonx.com/ous/professionals/patient-... https://www.pulmonx …

0 Votes
2 Answers
Bronchiectasis and pulmonary hygiene

what works for you? I frequently get pneumonia from the colonized pseudomonas in my lungs. Soon I will be getting "the vest," and I do postural drainage everyday. I have a nebulizer that I dont use, although I have the meds to use when needed. Is this …

Author: Glady
0 Votes
14 Answers
Puzzels - per Stephanie's request

The Polish people polish their silverware

Author: edpe77
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0 Votes
3 Answers
Bad breathing and heavy chest while on Prednisone?

Does anyone experience a bit more labored breathing and chest tightness while on Pred.? It seems like every time I'm on it my breathing becomes labored at times and my chest feels heavy. I though this was supposed to open you up. I've been on this many …

Author: T23Cherry
0 Votes
13 Answers
No help for me...

Have been tested and during the test I was given an inhaler (test worse after inhaler). Doc told me I DO have COPD and to put salt in my wounds, there is NO help I can get to make my breathing easier. Was told I "could" have 5 more years if I quit …

0 Votes
2 Answers
Breath Training Explanation Please!

I hear about breath training and techniques such as pursed lip and abdominal. Can this be explained both as a How-To as well as what the benefits are?

0 Votes
4 Answers
Making Doctors' Appointments Easier

Sometimes talking with a family member or friend a few days before an appointment will help formulate more questions or help with wording. I am a big fan of writing questions and concerns down and having a pad of paper to write down answers. I also agree …

1 Votes
5 Answers
Stem Cell Treatments

Here in Florida we get TV commercials for stem cell treatments for COPD. These are always from some small clinic, never from a hospital or known entity. Watching their U-tube posts they simply interview patients who say they feel better or are breathing …

Author: Ken W
0 Votes
2 Answers
Feel like the youngest :(

so last week i just found out that at 36 years old i have copd! i have 4 small boy's 2, 4, 6 and a 8 year old. I want to live to watch tbem gro and become amazing fathers that i know they can be! It kinda shocked me that i jave it but yet again were all …

Author: TrishaP
0 Votes
8 Answers
National Institute for health and care Excellence new guidelines regarding bronchoscopic valves

Here is a link to the new NICE guidelines on endobronchial valves. https://www.eurekalert.org/pub_releases/2018-12/p-...

Author: DanK
0 Votes
11 Answers
Do you ever regain 'proper' breathing after quitting smoking; and have COPD?

I'm so discouraged, frustrated and guess just mad that my breathing has seemed to get worse the longer I'm not smoking! I had such a COPD 'flair-up' on January 4th - I haven't had a cigarette since. Put on oxygen January 5th, which with the help of …

0 Votes
0 This question has no answers.
85 yo woman with COPD and CHF wants end of life care without children’s knowlI am a friend and advoc

I am a friend and advocate for an 85 year old woman with stage 4 COPD and congestive heart failure. She has a trach and is on a vent. She has been on a vent for 8 weeks, occasionally going onto CPAP and BiPAP. He initial goal was to get better, go to …

0 Votes
0 This question has no answers.
Caregiver for 8yo woman with coped and cut has question but end of life decision to her life, but sh

I am a friend and advocate for an 85 year old woman with stage 4 COPD and congestive heart failure. She has a trach and is on a vent. She has been on a vent for 8 weeks, occasionally going onto CPAP and BiPAP. He initial goal was to get better, go to …

1 Votes
10 Answers
Pulse oximeters

how many people own and use. Pulse oximeters? How do you feel it benefits your overall health? Do you use it to help spot exacerbations?

0 Votes
1 Answers
Valve procedure

Has anyone had valve placement in their lungs ?

Author: Chippie
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0 Votes
2 Answers
Second hand smoke effect COPD? Even if its not done around the person?

We have someone in the house hold that smokes but they go outside to do so. I still say it effects my father with COPD but they wont listen. They also use vape pin in the house.

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0 Votes
1 Answers
I have copd and also a NTM

I have copd and also MAI a NTM. I am going through the treatment process which is long and looking for others doing the same

Author: Befg2000
0 Votes
2 Answers
Can my mom's oxygen supplier take her Portable Oxygen Concentrator away from her?

My mom has COPD, Emphysema, and Lung Cancer. In June of 2018 her POC broke down and her oxygen supplier told her that it could not be repaired, had her sign a paper stating she understood that it was her fault that it broke, told her she could not have …

Author: BJ Newton
0 Votes
13 Answers
New at the oxygen thing...and scared to death!

I went to a Pulmonologist a few weeks ago and was set up on oxygen last Friday, as my oxygen level when I went to him was 88l. I'm a 66 year old female and over many years have gained weight due to doctors refusing to do surgery on my knees so I could …

Author: treefrog
0 Votes
14 Answers
Does high levels of CO2 cause SOB, even when our O2 levels are good?

Bill66 made this as a comment a few days ago. I think it is a topic worthy of further discussion. Clearly as COPD'ers we experience SOB with little or no provocation. I know I can walk from the bedroom to the bath in the morning with O2 in the low 90's …

Author: edpe77
0 Votes
2 Answers
New diagnosis, not getting clear answers on treatment

Hi, I’m a 64 year old woman with multiple chronic health issues. Just got a diagnosis of emphysema a couple of weeks ago. Never a smoker, but have been an artist with chemical and dust exposures. I have been reading up on COPD, as it has never been on my …

0 Votes
6 Answers
Would a person with COPD and on oxygen wake up if they pulled their oxygen hose off during sleep?

I'd have to say, "it depends." For folks who are using lower amounts of oxygen, they may not wake up when the oxygen cannula slips out of place/out of their nose. For folks using higher flow rates, they may notice the difference sooner and it may wake …

Author: Randikw31
0 Votes
6 Answers
Am I getting COPD?

If, as Caroline says the batteries are in good shape and your readings are still that low, do not wait - get to your nearest ER. Clipper and Caroline are absolutely correct - those readings are extremely low. Also, please let us know that you are ok. …

Author: di1144
0 Votes
16 Answers
E-Cigarettes: Did you quit smoking using these?

Here is another interesting study that emerged from the American Thoracic Society Conference in Denver this week: http://www.dailymail.co.uk/health/article-3087507/E-cigarettes-DON-T-help-smokers-quit-long-term.html The study found that e-cigarettes help …

Author: Janina K
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.