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Not typical - Heartbroken - Lack of answers
Welcome T Town.......Sooooo......If you've been following for a few months then I'll guess you've already read the info in the tabs at the top of the page--if not then read--It's helpful. I'm just a patient like yourself so I can't answer your questions …
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23
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How Long Can your Oxygen Tubing Safely Be?
There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …
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3
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My Brother Has Constant mucus in throat
I know this isn’t about me and I don’t have any test results so my apologies right off the bat. But I just want to get some advice. My brother is 36M and he smoked weed for 12 years. He quit about 2 1/2 years ago but he told me he has mucus in his throat …
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2
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What can I do about chronic sinusitis
I saw your list of meds on social. Is the ipratropium a nasal spray or for your lungs? Are you using Benadryl, Ipratropium, Flonase, Affrin, Mucinex everyday? I assume the antibiotic was prescribed by your physician. I'm not a doctor but I don't think …
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Can I have an opinion?
Hello, My name is Mat (42). Writing for a first time at this forum. I would like to get an opinion, especially from Dr. David, if there is any chance? Sorry for my english, I am from Europe (Poland). There is my case. I have been smoking for about 25 …
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1
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Stem Cell Therapy
Has anyone here tried stem cell therapy? I tried PRP about 3 years ago. It didn't help. I'm considering getting it done in Tijuana, MX. They use MSC with exosomes. However, I've read such mixed reviews and just wondered if anyone with COPD has had any …
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Check-in: Looking Back at 2024
That's the summary of a good year Kristen. Thanks to you and everybody at the COPD Foundation for all you folks do to help us COPD patients ---Dave S (alias das23 )
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5
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can you improve your lung function?
Yes, if you quit smoking and stay away from pollution. If you are asking about emphysema, unfortunately alveoli cannot repair themselves. According to Check 4 Cancer a UK site "When you quit smoking, dormant cells in the lungs will start to replace the …
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Any recommendations for dryness and bleeding in nose
Fortunately I'm not on oxygen. I didn't realize anyone used dry oxygen except for portable. You can get a humidifier for portable also. Try a saline solution for your nose and also get a nasal gel for dryness. Netti Pot is good too but you must use …
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9
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Stress, exacerbation and high CO2
Hi all, My 84 year old father has COPD and CHF. He ended up in the ER this morning because he was extremely short of breath. They were able to get his breathing under control, and also found his CO2 levels were elevated, which they also took care of. …
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Stiolto Respimat
Has anyone else had problems using Stiolto Respimat. Problems start about 3 days after starting this inhaler. Around 5pm i start feeling better.
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Any other alternative medicine people signed up here?
Alternative Medicine is not just Homeopathy and Herbs. What about Breath Work , Massage, Reflexology, Acupressure, Yoga. Meditation and the like? We are hearing more and more about the mind body connection? Research shows memories are not just stored in …
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3
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Check-In: Understanding Medicare Options During Annual Enrollment
Choose carefully. Please Know --- You normally only have one chance to choose a supplement w/o answering health questions after you enroll in Medicare. If you want to change, and you have a preexisting condition such as COPD, an insurance company does …
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Cheapest place to buy trelegy?
Trelegy is an approved drug for Medicare and nearly all drug plans cover it. WTS, I assume your father is not eligible for Medicare. I think if you go to the site David Mannino MD linked, I think you will find help. You could also go to the …
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Chest pain when I breathe or cough
Hope you guys are doing good!! I had a cold few days ago which ultimately lead to a minor flare up. I feel a weird discomfort in my chest and it hurts when I breathe or cough or even laugh. I have been taking my inhaler but still a slight pain is there. …
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Cooking/living while on oxygen
Rahly, there's no reason people with COPD can't cook. I've had COPD for over 25 years, and have been using 02 since 2000 and cooked regular meals for my family all the time. You do have to be careful with the hose and I run it down my back to keep it out …
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7
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Does the winter cool wind effect your breathing more that summer? Any suggestions
What seems to effect you more so breathing, the cool windy air, or summer. Any suggestion? Feel like probably stay in out of gold but I want to be active
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18
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Quite worried about disease progression
Hi, firstly I'm not a clinician but the graph below indicates those who give up smoking on average loose FEV1 at half the rate of those who continue to smoke (perhaps somewhere near normal) although nothing is guaranteed... So you've already bought …
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6
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Worried about my disease diagnosis:
I am just 22 years old and have Asthma from childhood. For the past 6 years my asthma has been in control. But in May 2024, I had a very severe attack that almost had me hospitalized. I was diagnosed with ABPA. My condition got worse - frequent and long …
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9
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Developing a retractable oxygen reel
I am working on a hand crank retractable oxygen reel. Are there any features people look for when they look or a device like this?
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6
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Swallowing and breathlessness
My breathlessness typically does not present as severe panting or gasping (unless I am exercising to within an inch of my life!). I typically feel that however deeply I breathe in I cannot get enough air. That's what drove me to the doctor years ago. I …
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5
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Frozen lung feeling - new symptom
Hi all (Back story -I have Bronchieastatis and Emphesema.) Since having COVID four months ago I keep developing a freezing cold lung on one side...like a menthol feeling. It comes and goes and when it comes I go GP he gives me antibiotics - this has …
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6
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Reducing exacerbations: does daily azythromicyn help? Side effects?
hello, does anyone have experience with daily use of azythromicyn to help reduce exacerbations? Does it help? What about side effects? I’ve read something about hearing loss. I’ve had 3 exacerbations in the last 3 months, each lasting two-three weeks, …
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1
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will the the Inogen poc work at 30 degree temps?
will the Inogen poc work at 30 degree temps?
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4
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Does air pollution exacerbate COPD ?
We consulted several pulmonologists for my husband's mild asthma over the last one year. No one mentioned COPD. We're currently overseas in an area of heavy air pollution now. His reaction of worsening asthma/wheezing here is leading diagnosis of COPD …
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