0 Votes
8 Answers
Looking for a less expensive option for Trelegy.

Does anyone know where to purchase Trelegy for less? I looked at alldaychemist and complete online pharmacy and they do not seem to carry it. There does not seem to be a generic for this medication. At about the 6 month point in a year, my cost …

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Low RV indication of early disease?

I had a work up with my pulmonologist today. All of my values looked “terrific” except for my RV. It’s 62%. He said not to worry and that it’s a common anomaly. I’ve also read that it’s an indication potentially of early lung disease. Should I just let …

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0 Votes
4 Answers
Smoking cessassation or concern?

DSprang1 Congratulations on being off tobacco for over a month!!! That is a WHOPPING BIG DEAL and the single MOST IMPORTANT THING you can do for yourself and your health regardless of what your upcoming PFT translates.

Author: Dsprang1
0 Votes
2 Answers
Transgender PFT?

Ok, here is my situation. I am 47 and transgender male to female, I transitioned 30 years ago and have been on hormones for 30 years along with several surgeries. There for I produce no testosterone and it’s been replaced with estrogen. There seems to be …

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Check-In: When Disaster Strikes, Will YOU Be Ready?

There’s an old saying, “Failing to plan is planning to fail.” This is true in just about every aspect of life, but it is especially important for people living with chronic health issues like COPD. There have been several events over the past few years …

0 Votes
8 Answers
Is smoke from a camp fire really bad if you have emphysema

My 58 year old husband was just diagnosed with emphysema. During his family gatherings they will often start a fire. We had a family gathering at my sisters house and this is exactly what happened. While we were about 20 feet from the fire I could still …

Author: SarahS
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0 Votes
6 Answers
Does emphysema always progress?

I signed up for this forum under another name but couldn't get back in. Anyways, my question is does emphysema always get worse? Most (if not all) googling say it does, but the two pulmonary docs I've seen say it may never get any worse than it is now …

Author: Pthorne
0 Votes
2 Answers
Recommended medical alert system

Seeking user reviews on medical alert systems. Recommeded list.

Author: ulm
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0 Votes
4 Answers
Gabapentin for sleeping 💤

Is gabapentin 300 mg safe to take at night for people with copd? Or does it slow breathing too much and make it unsafe?

0 Votes
1 Answers
Spirometry test and follow up questions?

HelpHello, This is my first post on this site, but I've been reading it a lot over the last few weeks. It's been a great comfort. I was hoping someone might be able to comment on the results of my recent spirometry test, and suggest any questions or …

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0 Votes
1 Answers
Emphysema means “late stage”?

Hello again. I apologize for all the questions; I’m still trying to understand more about this shock finding I received a few months ago. This morning I was reading a medical website that stated the following: “Which has worse symptoms: COPD or …

Author: Carolyn*R
0 Votes
5 Answers
Has anyone had the valves put in? If so has it helped your breathing?

did it help? How was the process

Author: Perky
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0 Votes
4 Answers
What my primary care doctor said

My primary care wrote to me today. I doubt he viewed the images. Is what he is saying true? It will progress and get worse, right? ‐------- I'm sorry to have left you with excess stress over this finding on the CT scan, but am very glad to let you know …

0 Votes
10 Answers
Check-in: Let’s get moving! Common misconceptions about exercising with COPD.

Great reminder! Thank you! I just started going back to the gym a couple of months ago, got back into the 'habit', and it's been great. I do feel better. I go to the gym because it's just good for me to be around others who are also exercising. Just a …

0 Votes
3 Answers
Check-In: World No Tobacco Day 2023!

Today, countries around the world are recognizing World No Tobacco Day. 2023 marks the 36 th anniversary of this global event. It was first started to encourage smokers to try and go an entire 24 hours without smoking in the hope that would put them one …

0 Votes
4 Answers
Inhaler choices. Trial and error.

I suddenly feel I may be wearing out my welcome with my questions concerning my recent diagnosis and the initial prescription of Spiriva but what the heck hopefully I can play it forward later. Initially Spiriva made me feel a whole lot better until it …

Author: Brent A
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0 Votes
2 Answers
Ethan is back

Hi guys, After being diagnosed High-output Heart Failure, I went to the Mayo Clinic as David Mannino, MD (Chief Medical Officer, COPD Foundation ) suggested. We did a ton of tests including a right heart cath with exercise, where the PCWP showed normal both at rest and during exercise, and cardiac …

0 Votes
2 Answers
Has anyone had other lung infections?

Hello. A radiologist just stated that on my ct scan she found Paraseptal emphysematous change left upper lobe posteriorly. I was just following up on a lung nodule which did dissapear. I am 60 and stopped smoking when I was 34. Going to Penn University …

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3 Answers
Is it the pulmonologist and not the radiologist who has the final say about an emphysema diagnosis?

Yes...I get my yearly CT scan in a few weeks. Then right after scan I see my pulmonologist

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11 Answers
​Check In – Have You Gotten All Your Shots?

I am normally good with vaccines. I am at exactly 48 hours after my first noticeabley painful shingrix shingles vaccine.(5/25/2023 3'30pm). Woke up at 3;30 am on 5/26 (12hrs) with pronounced flu like symptoms that required Tylenol. Intense body aches, …

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2 Answers
Do I give my medication longer to work

Hi all, newbie here. I’ve noticed over the last few months my symptoms have been more problematic than usual. I have been put on a preventative inhaler called Anora Elllipta( umeclidinium/ vilanterol) to take in conjunction with salamol. My question is …

Author: Peardrop22
0 Votes
9 Answers
Does anyone have pain middle back shoulder high , like a knife stabbing you?

No, I don't have anything like that. Have you mentioned it to your doctor?

Author: Anonymous
0 Votes
3 Answers
“Minimal Emphysema” on CT

I keep reading that when emphysema is seen only on CT but not on a pulmonary function test, that it is a foreboding sign and signifies a worse prognosis. My CT scan showed “minimal “emphysema, but my PFT tests were normal. My pulmonologist says that the …

Author: Carolyn*R
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0 Votes
7 Answers
Exacerbation

Congratulations on your beautiful granddaughter! You are going to be the best grandad ever!

Author: TonicDk
0 Votes
6 Answers
Insurance Denial Spiriva

Hello All. On 5-17/2023 I was prescribed Spriva by my pulmonary specialist and given a two week sample that I started on 5-18-2023. Today was my sixth day using Spiriva and as of today I could actually feel a difference in a positive way and I knew it …

Author: Brent A
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.