Questions and Answers

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1 Answers
apnea and cpap

I just got diagnosed with OSA and the doctor also added supplemental oxygen at night only as my sats were 84/86 during the sleep study. However, medicare denied coverage for the oxygen and I then asked the supplier to contact her and review that decision …

Author: Evie
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7 Answers
How do you interpret your world with copd?

I have always been on the philosophical side, a bit of a curious mind, a fighter and advocate for the 'underdog' and won't be intimidated if my view is not popular with mainstream ideas. I am sometimes misunderstand because of my traits. I love the …

Author: eves
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4 Answers
Are you doing better yet? And other questions that might bug us.

I hate to answer the phone and be asked that question. It puts pressure on me. I don't want to say I'm fine and neither do I want to say, life is sucking pretty much. And I also don't even want to talk about it often. Sometimes I want to be in a state of …

Author: eves
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9 Answers
What would you like to see in a COPD App??????

An electronic form of the Action Plan document, that can help with symptom recognition and triggers! Perhaps links to the inhaler-use videos? I would submit that API links to popular fitness apps (Fitbit, MyFitnessPal, etc.) might work better than …

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3 Answers
Severe dizziness

I'm so sorry this will be wordy but I've tried to get help from my doctors for over a year now with no luck. I have severe COPD, moderately high blood pressure, AFIB with RVR, high cholesterol, diabetes and a subclavian artery blockage. According to a …

Author: JoanneB
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17 Answers
Points...

Hi hack, Karen, Good eye hack! And great question. Internally there are two types of point classifications in the gamification system. Experience Points and Reputation Points. Experience points represent a lifetime score and are not reflected in the …

Author: hack
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6 Answers
Copd with shoulder pain

l have shoulder pain is this normal.The pain comes and goes l read that it is due to drinking alcohol which irritates COPD. Is this true

Author: Jetty
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1 Answers
Muscular skeletal

I weaned off of prednisone 2 months ago after being on it for 7 months. Since then I have had 3 episodes of really bad body pain. One in my left arm which started around the elbow and radiated up and down from shoulder to wrist. Then my upper body …

Author: Dianne R
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3 Answers
Do some of you have problems with severe spasms in their rib cage, underneath the breast?

I can often feel the spasms coming on and I can actually watch them move from one side of my abdomen to another. I guess I should say abdomen and rib cage. These are not bad. The ones that bring me to attention are the ones that start next to my spine. …

Author: DavinaT
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9 Answers
Sleep disturbance

I go in spirts I may sleep good for a while then not sleeping well. If I stay up late then I usually can go right to sleep.

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3 Answers
why do some people who have quit smoking look down their noses at others who have not yet quit?

why is it that some people who have quit smoking look down their noses at others who have not yet quit? Do they forget that smoking is an ADDICTION? An addiction that is very hard to overcome? I have seen some comments that are kind of rude and heartless …

Author: Bellabits
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5 Answers
What can you do to help COPD360 Social

Dear Friends. COPD360 Social has become a very important part of the COPD community. Now with over 25,000 members our community is the largest of any in the world. While we will NEVER charge members to use the site, it represents a large expenditure for …

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12 Answers
Is there Difference in SOB & not getting Air​?

Today while walking I felt like I couldn't get air in even with my 02. I have been SOB but this felt different, like I couldn't get a deep breath. Just curious if any of you had this happen and is it SOB? I will ask my dr about it. Was kind of scary. …

Author: di545
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3 Answers
Questions about Oxygen?

OK, any more questions about the Long Term Oxygen Treatment Trial? I've received some from several people--Bonnie, Bob S. Mike H., Bruce M, and Jean R. Anyone else? I'd like to have as complete a list as possible so that the authors and NIH can …

Author: HIcopd
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10 Answers
Vitamins for COPD ?

I take NAC, Vit d 6,000, 1,200 calcium, Vit c 2,000 and a probiotic supplements oh ya vit e. Yes and zinc.

Author: Victor
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3 Answers
Has anyone heard about the beneficial effect of anise on lungs?

I was talking to a friend today, and smoking came up. She said she ate "ghoodnpleanty" for a month prior to quitting cold turkey, and had no withdrawal symptoms. She claimed anise {licroice} aids in removal of bad stuff from the lungs.

Author: edpe77
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5 Answers
How much has COPD changed the way you look?

Within 18 months of hearing I was going to be on oxygen most likely for the rest of my life, my face began to droop like a lot candle melts. I went from looking younger than my age (57) to looking literally older than my 85 year old mother, especially …

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2 Answers
Where can I move to breathe better? I am dying in SE Tennessee.

I am not joking. I am dying here. The Dr.'s don't have me on anything but 2 inhalers, albuterol and Flovent, and Singulair for allergies. I don't have a Pulmonary Function Dr. I am wheezing 27/7 and allergic to every tree and weed in TN. I am on SSD and …

Author: Juliana727
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1 Answers
Dr. OZ: The Red Flags of Unproven Stem Cell Treatments

Have you seen the latest from the Dr. Oz show on experimental stem cell treatments? Investigative reporter Elisabeth Leamy goes undercover to expose the truth about the clinics that prey on vulnerable patients. Watch clips from the show here: …

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27 Answers
Top US cities to live in with COPD

Well not to far from Sioux Falls SD. The weather has been brutal last week already not looking like a nice winter here in the Dakotas.

Author: Janina K
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7 Answers
Enphyzema & Eating Bloat?

Does anyone with enphyzema feel bloated and hard breathe when eating? I am concerned cause my belly is huge and uncomfortable. I have a hard time eating or after of feeling extremely full and hard breathe even with small portion. Does your lungs get …

Author: di545
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25 Answers
How were you diagnosed with COPD?

I'm going to add my story and you guys need to know that I really want to participate because I'm using probably the crappiest keyboard I've had in my life (!) Oh, how I hate this keyboard! In 2006 I was being fitted for a SCBA respirator by an …

Author: Mark S.
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11 Answers
Symptoms before Diagnosis: How Long?

I was complaining of breathing problems for almost 10 years before being diagnosed with Adult Asthma, severe emphysema and Alpha-1 Antitrypsin deficiency.  That was 18 years ago.

Author: Janina K
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13 Answers
Salt Inhalers for COPD

I was given a saline solution via nebulizer to loosen phlegm for a sputum culture. It did help me to cough up the mucus in my lungs but it irritated my airways and I was very short of breath for over four hours. It did not seem to be improving so I took …

Author: Gloria
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0 Votes
14 Answers
Political talk on COPD360 Social

This might be a little long, but I would appreciate everyone taking the time to read it! Recently, a new member published a post stating their belief that pulmonary rehabilitation and medical treatment should be free. I received a couple communications …

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It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.