Are you or a loved one using oxygen? If so, we want to hear what challenges you are facing so that we can help advocate to improve your quality of life. For the first time in years, the Centers for Medicare and Medicaid Services (CMS) is proposing …

Hi everyone. Does anyone know why I would feel I am getting more O2 when I am using my portable liquid than when I am at home on my Exchanger? I am at a level 6L, but feel better when on the liquid. I do know that the hose is larger on the liquid O2 one. …

HTTPS://WWW.YOUTUBE.COM/WATCH?V=WYHOJR8BTCS Here is a link that explains PFT and results.

This afternoon, in a plseant 72F/65%, enjoying a cup of coffee with a friend. Feeling slightly SOB, I checked my O2, on my thumb as I usually do. 84%! I turned on the O2, and watched it bounce around 84%-87%. I then increased the O2 to #3, still below …

Im new here and I’m scared, I’m really scared. Yesterday I went to urgent care with shallow breathing so they took a chest X-ray and the radiologist said it look like emphysema. Then the doc had me do a PFT which I did well on and it did not appear there …

Hello all- I thought I would post a few frequently asked questions I get asked about the State Captains Volunteer Program! What is the State Captains Program? The State Captains program is a group of 100+ volunteers who want to help spread awareness …

Are there any recognized treatments for patients with both COPD and Sarcoidosis

hi all, my pulmonologist now wants to put me back on 10mg prednisone to be tapered off when the cellcept becomes useful. Still ideopathic so guess he is treating symptoms in case it’s IPF. It’s hard for me to talk to him about these issues maybe because …

Hello I'm new on this site today trying to find alternative ways my dad can have emergency oxygen. He uses 6 lpm on constant flow with his Invacare Platinum 10 home system. I just read a post about Liquid O2 therapy. Can anyone please tell me if he would …

I met w/the clinic this morning for the first of 5 visits. Today, signing the consent formssss. Next visit, some preliminary med tests, and confirming if I will be part of the study. For the next month I'll be on Symbicort. Followed by a 24 hour session. …

We all ahve things we do to get thru this. I take Symbicort twice a day. To insure I do the evening dose, in the morning the inhaler is facing out, then I rotate it so that the spacer is facing out. That way I know I haven't taken my evenig dose. ed

walking, my 02 starts out at 95 then goes up and down like the small inclines I am walking. It will go down to 89, then back up to low 90's. Had it go as low as 86 and then came right back up to 91. I am on 02 at night. I walk a little over 2 miles if …

My mother is in hospital the past week because of an exacerbation and pneumonia. My family wants her to try pt rehab. Most of the pt nursing places have bad reviews by patients and family. Should she go to a place that is below or average, or just do …

Three statements, Two truths and 1 lie. . . 1. I once saw the future in a dream. 2. I went to night school for 9 years to earn 3 degrees. 3. I wrote in my own name for President in 2016

Alabama Dr. Mark Dransfield, Dr. Surya Bhatt, Dr. Joseph Thachuthara-George, Dr. Mike Wells, UAB Medical Ctr Pulmonary Clinic at The Kirklin Clinic of UAB Hospital 526 20th Street South, Birmingham, AL 35294 CONTACT: Jessica Nichols jknichols@uabmc.edu …

My mother has an Inogen One g3 for a few months and all of a sudden tonight it turned itself on and then the display would flash "shutting down", then it would restart. It keeps doing this repeatedly. The only way to stop was to remove the battery. I …

I'm back on Combivent Respimat. Trouble is I don't get much relief from it alone. Figured a nebulizer would be the ticket but both the Albuterol Nebulizer or the DuoNeb seem to be too much and I wind up with major breathing difficulties. Any suggestions?

SOB vs O2

I was diagnosed with sever COPD in January 2011, my doctors told me I was not going to be able to do a physical job of any kind ever again. They recommended I apply for SSDI, I did and filled out the online application but also contacted a place called …

copd and high blood pressure

copd and asthma are overlapping.  I have asthma and emphysema. http://www.ncbi.nlm.nih.gov/pubmed/23473596

Hi Evie, speak with the Physician who diagnosed you in terms of further exploring 'allergy tests' there's no harm to having it done. In most cases to my knowledge, it's airborne pollutants that's the cause. Keeping the furnace and AC filters on a …

Any opinions on portable oxygenators? Are they worth the expense? Do they work?

If you have a cat that likes to chew, and puncture, your tubing, go to your local auto supply store or farm and home supply store and ask for some wire loom. It comes in different diameters and colors. It is split lengthwise and slips right over your …

Bill66 made this as a comment a few days ago. I think it is a topic worthy of further discussion. Clearly as COPD'ers we experience SOB with little or no provocation. I know I can walk from the bedroom to the bath in the morning with O2 in the low 90's …