Questions and Answers

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3 Answers
Should i use oxygen 24/7 as prescribed by my PCP?

I have severe copd with hypoxia and doctors have told me that my emphysema is getting worse. When I don't any activity that involves spending much of my energy, my oxygen levels are at 98%. But when I start spending energy like long walks the oxygen …

Author: MASiddiqui
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7 Answers
Have You Supported the Charter for Lung Health Yet?

I was number118.I also posted to my COPD page.

Author: Mike RRT
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7 Answers
life expectancy? just found out my father has COPD?

I know I need to just educate myself properly on the subject, and I will. But I'm hoping someone can just answer this vague question in the meantime. I just found out my father has COPD. I don't know the stage, but maybe it's not so advanced--he seems …

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9 Answers
Gadgets that have improved your quality of life

In a recent post, a community member shared that her electric toothbrush makes a large impact on conserving her energy. What gadget or item (non-medical device/medication) do you use frequently that makes an enormous impact on your daily routine and …

Author: Janina K
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3 Answers
What's going to happen to my mom?

https://www.copdfoundation.org/About-Us/What-We-Do... Dara - I'm glad that you reached out to us. Did you know that we have an Information Line that's staffed by trained patients and caregivers? The suggestions that you've already received are great, …

Author: Dara284
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7 Answers
I WANT TO BUY A SPIROMETER

Check online but be careful about  company location and pricing - large variety.   The company I used gave very poor service.   I got a PiKo-1 in 2011 when I was started on the nebulizer med Brovana (arformoterol …

Author: urbansrs
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12 Answers
Does anyone with COPD have really good breathing days and then the next day feel breathless again?

Yesterday, I did not do much physical activity. However, I did not need to use my emergency inhaler once! I cannot recall when I went a whole day without the emergency inhalers. Today, while lightly cleaning my bathroom with Natural Eco-friendly products …

Author: Rhonda G.
0 Votes
10 Answers
when to go to seee a Dr.

I have been used to taking care of myself, I was wondering when do you go back to see a Dr.. I have just seen my pulmonary Dr. and he put me on some allergy MEDs. Since then I have developed a cough that has become productive. My breathing rattles, and I …

Author: CharlesH
0 Votes
6 Answers
COPD with Asbestosis

First time I had Exacerbation landed in hospital for a week. My stamina is very low how do I start to get my strength back. I have a double whammy with asbestosis which limits my inhaling and copd limits exhaling.

Author: markl21
0 Votes
3 Answers
Headaches

I have these somewhat mild headaches daily, and a slight pain over my eye/eye's , I sort of thought it was my Atrovent, I skipped my Atrovent most of the day yesterday, yet still had the mild headache throughout the day. Just curious if it's me or the …

Author: Bill66
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10 Answers
Do you ever regain 'proper' breathing after quitting smoking; and have COPD?

I'm so discouraged, frustrated and guess just mad that my breathing has seemed to get worse the longer I'm not smoking! I had such a COPD 'flair-up' on January 4th - I haven't had a cigarette since. Put on oxygen January 5th, which with the help of …

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6 Answers
Is this for sure COPD?

My CT scan says interstitial opacities lungs thought to favor early interstitial edema. Clinically correlate. Atelectasis in lower bases. Mild paraseptal emphysema. There is actually an interstitial lung disease. Is these results still considered COPD.?

Author: Misti 1970
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3 Answers
Edit Posts

I noticed the pencil is gone to edit past posts? Is there a different way to delete or edit posts?

Author: Bill66
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39 Answers
COPD & Age: Is there a "typical" age?

I am 59 and live in the mile high state of Colorado at 5200 feet. I have had severe spring fall allergies with crazy lung inflammation all my life. I have taken steroids every spring and fall and generally multiple rounds for decades. I did not smoke and …

Author: Janina K
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2 Answers
Roanoke, Va

Hi everyone, I recently joined the group and was wondering if anyone is near Roanoke, Va.? donnabus

Author: donnabus
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5 Answers
The Medical use of Hydrogen Peroxide

I have seen that being done. People have reported using it in there nebulizer.

0 Votes
5 Answers
Breathing Days

I have also determined over time that the Dew Point is a better indicator of tough exercise days for me as opposed to humidity even though they are somewhat related. Dew Point is a function of the water saturation of the air relative to the temperature …

Author: Bill66
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0 This question has no answers.
Non-Smoker

I'm doing a cardiovascular risk calculator on weather to take a statin or Not, and I tried to Google the answer to this Question? Do I input in as a smoker or non-smoker, it says as an ex smoker your cardiovascular risk goes down after a few years. I'm …

Author: Bill66
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1 Answers
Inhalers

I just found an unorthodox way to get the most out of my inhaler, I was lounging on the sofa and my wife gave me the inhaler and instead of sitting up, I stayed lounging and the puff went right into my lungs, didn't hit the roof of my mouth. Hope this is …

Author: Bill66
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DO YOU NEED HELP GETTING IT TOGETHER ? 

I want to elaborate on ourdiscussion about the depression that is so common among those of us withchronic diseases and our caregivers.Irecently posted an article called “DEPRESSION IS A TOUGH ROAD TO WALK…FOREVERYONE!”In that writing, I discussedthe …

Author: Uncle Jim
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3 Answers
No doctor can give me answers and I am honestly lost and not sure what to do anymore.

Hi Mattc2146 - first, welcome to 360Social. I'm sorry that you are experiencing so many problems, especially since you are so young. I'm not a health care practitioner, so cannot give you any idea of what might be going on, but wondered if you live …

Author: Mattc2146
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6 Answers
Why do Ideas & Suggestions presented to the foundation die without a proper reply?

Hi Denwolf I have noticed you haven’t been on for a while and wondered about you. I read your message l and to be honest was somewhat taken back. In regards to the offices, in Miami we share offices with our sister organization Alpha-1 in a fairly …

Author: Denwolf
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3 Answers
What does it mean to you to receive quality care for your COPD?

How would you define quality care?

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0 Votes
2 Answers
Cause of strong mid back pain? Cpap?

Starting at about 6 am the pain is halfway up my back on either side of the spine and it lasts til I get up around 9. Then its gone within 10 min or so. Thought it was a PMR flare so went up to 10 mg again which knocked it back some bu its still there. …

Author: Evie
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26 Answers
Are you considering a Stem Cell Therapy Clinic for treatment of your COPD?

I understand your frustration and you need. I have been researching these clinics since they first started in South America. I have several concerns, and the more I read, the more concerned I get. First off, most of these "clinics" have gone away from …

Author: Uncle Jim
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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.