0 Votes
4 Answers
COPD Coping tips

I am 47yrs old and newly diagnosed with COPD. The hardest part is coming to terms with not being able to do anything strenuous without first having to think about it. How does one remain positive with such major changes to your 'quality of life".

0 Votes
3 Answers
Question of the Week: Portable Oxygen

As I have been seeing a lot of conversations about oxygen, I thought I would ask a question out to the community! For those of you that use portable oxygen, what tips, advice, recommendations, do you have for someone who just got prescribed oxygen, and …

0 Votes
9 Answers
When can you accept the pulse/ox reading?

This afternoon, in a plseant 72F/65%, enjoying a cup of coffee with a friend. Feeling slightly SOB, I checked my O2, on my thumb as I usually do. 84%! I turned on the O2, and watched it bounce around 84%-87%. I then increased the O2 to #3, still below …

Author: edpe77
0 Votes
3 Answers
COPD Education Gaps

I would have been greatly helped if when initially diagnosedthe symptoms and potential severity of an exacerbation were explained better.I ended up being resuscitated in the ER parking lot and then ICU on aventilator for 6 days because I left what I …

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What is the highest CO2 level that human body can maintain?

My uncle (74 yrs) has been diagnosed with chronicle COPD since last several years(>20 yrs). Last week, he was admitted to ICU after having difficulties breathing. It was noticed during treatment that CO2 level was very high (>70 mmhg) and also sign …

Author: Sanjay27
0 Votes
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Portable Oxygen

I am new to portable oxygen. I previously only used oxygen at night, using continuous flow from a home concentrator. "Pulse" flow does not appear to work for me. Am I doing something wrong? Or are some users not compatible with pulse? This is first post. …

Author: Avelina
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0 Votes
4 Answers
Kind of confused on saturation levels

walking, my 02 starts out at 95 then goes up and down like the small inclines I am walking. It will go down to 89, then back up to low 90's. Had it go as low as 86 and then came right back up to 91. I am on 02 at night. I walk a little over 2 miles if …

Author: BabyB54
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0 Votes
2 Answers
Liquid O2 vs Exchanger

Hi everyone. Does anyone know why I would feel I am getting more O2 when I am using my portable liquid than when I am at home on my Exchanger? I am at a level 6L, but feel better when on the liquid. I do know that the hose is larger on the liquid O2 one. …

Author: 6Thor6
0 Votes
13 Answers
I am recenly diagnosed with mild COPD/Emphysema

HTTPS://WWW.YOUTUBE.COM/WATCH?V=WYHOJR8BTCS Here is a link that explains PFT and results.

Author: GBStock007
0 Votes
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I feel my breathing more elaborate and I am sweating a lot

I am 43 years old and diagnosed about two years with COPD, with a FEV1 of 71%. I had already quit smoking a few months before the diagnosis and I have been exercising with long walks daily, as I followed the medication to the letter. However, I feel that …

Author: Prieto74
0 Votes
34 Answers
Getting to Know the Community: Two Truths & One Lie

2 truths and a lie: 1. I obtained both my bachelor's and master's degrees in four years 2. I have had braces twice 3. I've never been to a professional sporting event

0 Votes
7 Answers
What are your COPDCOPE'ing tips?

As some of you have already mentioned I lay my clothes out the night before. I have the medications that I take by mouth in containers that have the 7 days of the week on them. I have a clear one for morning and a blue one for evening. When it is time to …

Author: edpe77
0 Votes
4 Answers
Cannula Widths

I found that on my 4ft. cannula, I have two different widths of tubing. I would like to know the smallest width, and the large width, and what company carries the small width?

Author: Brian C.
0 Votes
1 Answers
COPD Inhalers that need help

I'm back on Combivent Respimat. Trouble is I don't get much relief from it alone. Figured a nebulizer would be the ticket but both the Albuterol Nebulizer or the DuoNeb seem to be too much and I wind up with major breathing difficulties. Any suggestions?

Author: Wheezer242
0 Votes
9 Answers
Are you a Patient with Home Oxygen? We need your help!

Are you or a loved one using oxygen? If so, we want to hear what challenges you are facing so that we can help advocate to improve your quality of life. For the first time in years, the Centers for Medicare and Medicaid Services (CMS) is proposing …

0 Votes
2 Answers
Suffering from anxiety over possible emphysema diagnosis.

Im new here and I’m scared, I’m really scared. Yesterday I went to urgent care with shallow breathing so they took a chest X-ray and the radiologist said it look like emphysema. Then the doc had me do a PFT which I did well on and it did not appear there …

Author: Stentor
0 Votes
1 Answers
Questions about COPD Foundation State Captain Program

Hello all- I thought I would post a few frequently asked questions I get asked about the State Captains Volunteer Program! What is the State Captains Program? The State Captains program is a group of 100+ volunteers who want to help spread awareness …

0 Votes
1 Answers
Are there any recognized treatments for patients with both COPD and Sarcoidosis

Are there any recognized treatments for patients with both COPD and Sarcoidosis

Author: Rob62
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0 Votes
1 Answers
Celcept and prednisone

hi all, my pulmonologist now wants to put me back on 10mg prednisone to be tapered off when the cellcept becomes useful. Still ideopathic so guess he is treating symptoms in case it’s IPF. It’s hard for me to talk to him about these issues maybe because …

Author: Evie
0 Votes
7 Answers
Liquid Oxygen Therapy advice

Hello I'm new on this site today trying to find alternative ways my dad can have emergency oxygen. He uses 6 lpm on constant flow with his Invacare Platinum 10 home system. I just read a post about Liquid O2 therapy. Can anyone please tell me if he would …

Author: GigiJ
0 Votes
1 Answers
Any one in the Symbicort/Trelogy Clinical trial?

I met w/the clinic this morning for the first of 5 visits. Today, signing the consent formssss. Next visit, some preliminary med tests, and confirming if I will be part of the study. For the next month I'll be on Symbicort. Followed by a 24 hour session. …

Author: edpe77
0 Votes
1 Answers
Nursing pt rehab centers vs at home nursing palliative/ hospice care?

My mother is in hospital the past week because of an exacerbation and pneumonia. My family wants her to try pt rehab. Most of the pt nursing places have bad reviews by patients and family. Should she go to a place that is below or average, or just do …

0 Votes
1 Answers
Here is the latest list of Hospitals offering the endobronchial valve

Alabama Dr. Mark Dransfield, Dr. Surya Bhatt, Dr. Joseph Thachuthara-George, Dr. Mike Wells, UAB Medical Ctr Pulmonary Clinic at The Kirklin Clinic of UAB Hospital 526 20th Street South, Birmingham, AL 35294 CONTACT: Jessica Nichols jknichols@uabmc.edu …

Author: DanK
0 Votes
4 Answers
Inogen One g3 repeatedly turning on and off

My mother has an Inogen One g3 for a few months and all of a sudden tonight it turned itself on and then the display would flash "shutting down", then it would restart. It keeps doing this repeatedly. The only way to stop was to remove the battery. I …

Author: mnt568
0 Votes
9 Answers
How to easily explain SOB vs. O2 to others?

SOB vs O2

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.