This is a tough question for our community to answer as we are all pretty much trying to keep living. I can tell you this: In my capacity with the foundation for the past 12 years and a patient I have answered many letters posing the thoughts you …

I would first call the Dr. and discuss this to see if one of the meds is doing it - maybe there is a change tht can be made. Also, even if you had the flu shot, it's not 100% so you may just have a touch of it. The doctor would want to know for sure! …

What is your major unmet medical need if you have advanced COPD? What do you feel is missing in your treatment? What would have made you be more positive about future if you or a loved one have advanced COPD? Thank you.

Before I call Lincare, I would like to be prepared with information. A recent storm left us without power for 3 days. Was supposed to be longer, but thankfully, it was not. I use my compressor plugged into the wall, and i have a POC. I have about half a …

That is great news that your lungs are clear and your O2 is good. Yes, what your pulmonologist said sounds right and you should definitely follow his advice. A different doctor might give you another inhaler but that won't solve your problem, it would …

hi, my boyfriend has COPD. He hadn't been keeping up with it like he should due to no health insurance. Anyways he just spend 6 days in the hospital, now he's on 02 24/7. Hes a truck driver, so now he can't work either. Hes over whelmed and dont know …

I have read there are something like 3 million people undiagnosed with COPD. Senior care facilities are adding Memory Care wings or buildings to handle the amount of seniors that now have some form of Dementia. I have learned that having low oxygen …

I was recently diagnosed with emphysema and COPD. I was surprised...I had bronchitis in October and pneumonia in December. but was also going through a stressful time as I was taking care of my elderly father who was on Hospice and dying. I actually read …

I have to use my cpap with O2 added any time that I lay down or recline. I also have O2 the rest of the time as well. I take my meds before I go to sleep to help make sure I do not have any problems. My rescue inhaler is also within reach. It has take …

Hey everyone! My mom will be sent home with a trilogy machine this week and I have a couple questions. Is there a respiratory therapist that can come in the home and show me how to use it? I live 2 1/2 hours away and I have severe neuropathy and I have …

There are quite a few research groups,out here. This is the first one I signed up with in2014.. Today I received an email offering the Alpha test for free. Along with the free test they also want to know your next Dr.s appointment. I do not want to be …

Are there specific things that a pulmonologist can do that say a respiratory specialist cannot do?  In coal country we have several different specialists who deal with asthma, allergies, black lung, and sinus conditions.

I need to get my mum a oxygen and blood pressure monitor, can anyone advise of best one from experience? I'm in the UK. TIA

I am looking into one way valves to reduce my SOB. Any thoughts?

Many COPD medications are not exactly cheap, and many COPD patients are on a fixed income.  What to do when the necessary meds simply cannot be afforded.

COPD Exacerbation

First Ive heard of Silicone for this -- where do u buy them?

What a fascinating topic! Ken, thank you so much for bringing this up. It's worth thinking about, and discussing. As Hack said, pretty heavy stuff. Although I don't have COPD (but I do have asthma that seems to be progressing), in working with people …

My doctor wants to use Breo and Stiolto they both have LABA drug in them and the flyers say not to , I need some insight on this. I have coughed for a year and half, been undiagnosed by m d . Went to e r 4 times having trouble catching breath and severe …

Here is the Alpha 1 guidelines to read. They do say test one or more. This is PDF format. http://www.alpha1.org/Portals/0/Documents/Alpha-1-.. .

When you get short of breath, the brain goes into "survival mode" and sends blood (hence oxygen) to the most vital organs. Unfortunately, the bladder and sphincter muscle are not considered essential making you have to "go". In the course of my illness, …

About me, I am 41 female, Italian and Mexican. I live in MN so I live in VERY cold winters and VERY hot summers. As a child I had severe asthma, had pneumonia first time by age 4, again at 6. I was tested for the " bubble boy immune deficiency disease" …

How different are COPD and Asthma? Is Asthma just a part of COPD in some people or is it a condition entirely itself?

Does anyone experience asthma like symptoms, where you suddenly are short of breath and you are not exerting?

I have read articles about Reflux Induced Asthma, but I have not understood the longevity of the disease.  It is this asthma that only shows up after one has spent the night with reflux issues, or is this asthma which is a permanent condition?