Bronchiectasis and NTM Research Registry
The COPD Foundation established the U.S. Bronchiectasis Research Registry in 2007. The registry was developed to ensure that researchers would have ready access to a pool of people willing to participate in studies designed to enhance understanding of the types of bronchiectasis not caused by cystic fibrosis (non-CF bronchiectasis). Non-CF bronchiectasis can be difficult to diagnose and treat, hence the need to study this select group of patients. Just a few years after the Registry’s development, the Foundation partnered with NTM Info and Research to expand the Registry’s mission to include nontuberculous mycobacterial (NTM) lung disease given its overlap with bronchiectasis.
The Bronchiectasis and NTM Research Registry is a consolidated database of non-Cystic Fibrosis (non-CF) Bronchiectasis and/or NTM patients from multiple clinical institutions across the United States. Participants are enrolled by visiting a participating site. The goal of the Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of non-CF Bronchiectasis and/or NTM lung disease. The Registry is also to be used to provide better insight into the diagnosis, pathophysiology etiologies, and management approaches of the different types of bronchiectasis.
Patients must be entered into the Registry by their physician from registered consortium sites. If you are interested in enrolling in the Registry, contact the study team nearest you to discuss study eligibility and potential participation.