Search for an Article


Faces of COPD: Carol Rubin

Like 11 Likes

Carol Rubin is one of the newest members of the COPD Foundation’s State Advocacy Program. Learn more about life with COPD below.

Having grown up in the Bronx, New York, I was exposed to all the wonderful cultural entities that New York City has to offer. I’ve always loved the theater, museums, the NY Yankees. After I began my career with the NYC Department of Education as an educator, I moved to New Jersey, but very close to Manhattan to continue enjoying the life of a “Native New Yorker.”

Villages learn about COPD Throughout the years, I became involved in volunteer work, fundraising, and traveling. After retiring as a principal, I began a second career, part-time as an adjunct professor at a local college, going to different schools to supervise student teachers and doing consulting work. During my visits to student teachers, I went to some old school buildings that had 5 to 6 floors with no elevators. It was during these visits that I experienced shortness of breath going up the stairs. Then, I suffered shortness of breath from walking uphill and doing activities that required lifting, bending, reaching (changing bedding). At first, I justified that I was out of shape, should lose weight (as so many others with COPD rationalize).

As the shortness of breath became more frequent, I went to a cardiologist who had me take a stress test and echocardiogram. The results were good; my heart was fine. This went on for another year. Once again I went through a stress test and echocardiogram and once again, the results were good. I never connected my symptoms with respiratory problems or my history of smoking because although I was a smoker for many years, I had stopped smoking 20 years ago.

Read More

Tags: Carol Rubin International Women's Day
Categories: Personal Stories

Faces of COPD: Jimmy Slover

Like 7 Likes

Jimmy Slover is one of the newest members of the COPD Foundation's State Advocacy Program. He has shared his experience and insights into living with COPD. Follow his story below.

On February 25, 2010 I my life turned upside down and it would never be the same again.

It was 3:00 in the morning I wanted a cigarette. I can still remember lighting it up and trying to smoke it as I coughed my head off. At that particular moment I did not care about the coughing nor the fact that I couldn’t breathe worth a darn – I just wanted that cigarette. Because I wasn’t able to be strong and tell my brain NO, the following took place and changed my life forever.

I lived in an apartment complex at my brother’s house which had a unit upstairs and two single bedroom units downstairs. Thank god I lived in one of the bottom units. I can remember smoking that last cigarette and coughing and coughing and then it happened: I began hyperventilating. I remember calling my neighbor and screaming for him to come down and help me. I then dialed 911 and that was the last thing I remembered.

The following day, I contacted my family and told them they had better come say their “goodbyes” because I didn’t I was going to make it another day. Coincidentally, the day before this major event in my life happened: I saw my first pulmonologist. He looked me straight in the face and told me that it was going to take something drastic for me to quit smoking. I still can’t get over the fact this lung doctor just knew I was headed for disaster after just one office visit.

Read More

Tags: COPD State Advocacy Captain Jimmy Slover
Categories: Personal Stories

A Trip to the Villages

Like 5 Likes

This blog post was written by Tracie Sullivan, Grassroots Advocacy Manager at the COPD Foundation

Villages learn about COPD Last weekend I had the wonderful opportunity of traveling to The Villages in Florida with my COPD Foundation colleague, Jamie Sullivan, and a group of enthusiastic and passionate researchers, physicians, and nurses from the University of Illinois Chicago and the University of Washington.

Right when we arrived we got to work, with meetings with the Villages Regional Health Center, the local hospital, and were able to meet with staff at Buffalo Crossing, a local assisted living facility. We were joined by doctors Jerry Krishnan and David Au. We learned from staff more about the wonderful support group, Airheads, the educational programming for COPD, and some of the challenges COPD patients are facing. In the evening, we were able to meet with Airheads Support Leader, Stephen Rule for a homestyle barbeque dinner, to learn from Stephen more about the local work he is doing in the community.

Read More

Tags: COPD education The Villages
Categories: Advocacy

Generic Drugs: What You Should Know

Like 10 Likes

Generic drugs for COPD Eighty-nine percent of prescriptions distributed in the United States are for generic drugs as they cost 80-85 percent less than the originator brand-name products. You may ask: why does such a difference in price exist if generic drugs contain the same active ingredient to their brand-name counterparts? New drugs are protected by patents and can only be sold for a period of time by the company that made them. When these patents expire, other companies are then allowed to seek approval from the U.S. Food and Drug Administration (FDA) to develop and sell a generic version. The competitors do not have to perform the initial clinical trials, making generic drugs cheaper to produce.

The COPD Foundation has teamed up with the CHEST Foundation to dispel common myths around generic drugs.

Read More

Tags: COPD Generic drugs
Categories: Tips for Healthy Living

Honeymoon Walk for Charity – A Million Steps with Love

Like 10 Likes

Has a movie ever motivated you to take a bold move in your own personal life? Nan O’Brien and David Webb are inspired to make a difference in the lives of others just as they are beginning to start their lives together. Nan and David are set to wed in the Canary Islands on Sunday, February 25, 2018 and will spend their honeymoon walking to raise funds for five worthy charities. The couple is preparing to walk 515 miles along the northern coast of Spain for their Honeymoon Walk for Charity.

Honeymoon Walk for Charity COPD

They were inspired to start their philanthropic journey after watching the movie ‘The Way’. The film, starring Martin Sheen and written and directed by his son Emilio Estevez, tells the story of a man who decides to walk The Camino de Santiago, also known as The Way of Saint James, in honor of his late son who was not able to complete the journey. The couple chose five charities that hold personal meaning and connection to them. They both have loved ones who live with chronic obstructive pulmonary disease, and are therefore aware of the issues and challenges patients and caregivers undertake. With this realization in the forefront of their minds, they approached the COPD Foundation with the idea of being one of their five charities and we very graciously accepted.

Read More

Tags: COPD Honeymoon Walk for Charity Nan O'Brien
Categories: Personal Stories

Hugh Traulsen on Manifesting Your Future

Like 13 Likes

Hugh Traulsen and COPD “Every day is a new life to a wise man.” Hugh Traulsen of Virginia uses these words as a guiding principle. Nearly a decade ago, Hugh experienced a lung attack was told by a pulmonologist he only had six months to live. The shocking news made him re-evaluate his purpose and mission in life.

“When I was diagnosed I saw it as a blessing because I was forced to leave the workforce and I had to decide what I was going to do with my life,” says Hugh. From that moment on, Hugh committed himself to sharing his message of positivity and, “…changing the world from my dining room table.” So how does he achieve his goal? Hugh’s says he does so by encouraging individuals to find and share their own personal gifts.

“I am a senior citizen, I’m disabled, I’m in the veteran’s healthcare system, I’m pretty much homebound, but that does not limit me as long as I have a telephone. I don’t even own a computer. It’s again, not about me, but about me empowering you, to help you to find your own strengths and to bring them forth and in a way that will bless others.”

When asked about the personal tools he has used to manage COPD, Hugh told us that the first step was dropping fear. “People are afraid of stepping into the unknown, but that is where the breakthroughs happen. That’s where, when you let go and let God, the miracles happen.” He went on to explain that what one fears, one will attract, so it is important for everyone to focus on what they want to manifest in their lives.

Read More

Tags: COPD Hugh Traulsen Law of Attraction
Categories: Personal Stories

How Are CT Scans Used in Detecting COPD?

Like 8 Likes

CT scans detect COPD To diagnose an individual with COPD, a potential patient must undergo a simple breathing test called spirometry. However, in some cases, one’s healthcare provider will perform medical imaging, a form of testing that result in a visual depiction of the patient’s lungs. In such cases, an imaging test, such as chest x-ray, CT scan, or an ECG may be used to identify other potential causes of COPD symptoms and confirm one’s diagnosis.

Computerized tomography scan, or CT scan, is a form of imaging that takes detailed pictures of the lungs. Though similar in function to an X-ray, a CT scan can take a number of smaller pictures whereas an X-ray can only take larger photos. Consequently, the CT scan is the most sensitive and accurate option in detecting and measuring emphysema. A CT scan can pick up characteristics that a normal X-ray can miss like specific damage to the lungs directly caused by emphysema, small lung nodules, or even small lung cancers. Additionally, a high resolution CT scan is also excellent at detecting and determining the severity of bronchiectasis. another lung disease that falls under the scope of COPD. In bronchiectasis, the lung’s bronchial tubes are damaged and expanded. Thickening of the bronchial walls can also be seen with the CT scan. This helps determine how much chronic bronchitis is present in the lungs.

Read More

Tags: CT scans Identifying COPD
Categories: Education, Resources and Studies

Generic Drugs: Separating Fact from Fiction

Like 5 Likes

Generic COPD drugs What is the difference between generic and brand-name drugs? Does the lower cost of a generic drug mean quality is compromised? There are many misconceptions about generics.

The COPD Foundation and the CHEST Foundation have teamed up to separate fact from fiction.

Fast Facts:

  • Eighty-nine percent of prescriptions dispensed in the United States are for generic drugs
  • Generic drugs cost 80-85 percent less than their originator brand-name products
  • Generic products are required to have the same active ingredient as their brand-name counterparts
  • Generic drugs are the same as a brand-name drug in terms of active ingredient, dosage, strength, safety, quality, the way it works and the time for it to work

Read More

Tags: COPD and generic drugs
Categories: Education, Resources and Studies

Medically Qualifying for Disability with COPD

Like 16 Likes

Medically qualifying for social security with COPD

Severe COPD can qualify for disability benefits. Achieving a disability approval though requires you have not just a diagnosis, but appropriate medical evidence to back up your claim. Financial hardship can sometimes prevent people from seeking treatment and building a medical history in the process. If this is true for you, the Social Security Administration (SSA) will still consider your application and even send you for evaluations with a contracted physician to get the records they need on your condition. If your COPD is severe and significantly disrupts or prevents employment entirely, then you can be approved for benefits.

The COPD Disability Listing
The SSA has disability listings for hundreds of medical conditions that it shares in its online Blue Book manual. This book is used by disability determinations staff when they decide eligibility for benefits. If you meet or closely match a disability listing, then you’re medically eligible. The COPD listing appears in Section 3.02, which covers various chronic respiratory disorders.

Read More

Tags: COPD social security disability listing qualifying for social security Social Security resources
Categories: Health Policy and COPD

Faces of COPD: Jamie Sullivan believes that, "Together we will succeed in making COPD a national priority."

Like 22 Likes

Jamie Sullivan, the COPD Foundation’s Vice President of Public Policy and Outcomes, shares with us how she became involved with the organization, the two accomplishments she’s especially proud of, and how you can help make COPD the national health priority it deserves to be.

Jamie Sullivan COPD advocacy and public policy When Jamie began pursuing her Master’s in Public Health degree, the COPD Foundation (COPDF) had only been in existence for about four years. There was a field experience requirement as part of his program and Jamie was “lucky to have been able to move to Washington, D.C., to complete my field experience at a time when COPDF received its first advocacy grants.”

In January 2010, Jamie joined the Foundation full-time. Her role was to “grow Operation 435, the grassroots advocacy program, and work with states to develop COPD action plans.”

Thinking she didn’t really have a personal connection to this disease, “working for John Walsh and working with the COPD community made it seem personal.”

As it turned out, Jamie learned she did indeed have a personal connection. “I found out during prenatal testing that I was an Alpha-1 carrier and therefore have a slightly increased risk of developing lung disease down the road.” During and after college, incidentally, Jamie worked for the Alpha-1 Foundation.

Before joining COPDF, Jamie says she was “like most of the public and had not really heard of COPD or for that matter Alpha-1. As I got more involved, more and more friends and family chimed in with the now common ‘my Grandma had COPD’ or ‘my Dad had Alpha-1’.”

Read More

Tags: COPD grassroots COPD National Action Plan Faces of COPD
Categories: Personal Stories

Edna Shattuck Memorial

Like 6 Likes

The vision that the COPD community could come together as one voice and eradicate COPD was always a hope and for many a dream. For one very special lady, that dream became her goal. The COPD Foundation is sad to report that Edna Shattuck passed away on November 27, 2017 in Washington D.C.

Edna was a Registered Nurse Anesthetist at Beth Israel Hospital in Boston MA, and soon became a Registered Respiratory Therapist while at Children’s Hospital in Boston early in her career. She later became Chief Respiratory Therapist at Boston University Medical. Relocating to San Francisco, she managed the Pulmonary Function Laboratory at Mt. Zion Hospital and later held positions as Chief Respiratory Therapist at St. Mary’s Hospital and the Ralph K. Davis Medical Center where she helped to found their pulmonary rehabilitation program. In the 1980s, Edna began a new career in environmental health and safety by marketing software programs to the medical directors of major corporations, including a successful smoking cessation program to federal, state and local governments, unions and healthcare systems.

As an asthmatic child whose mother smoked, Edna believed she was destined to be involved in respiratory care. Prior to her own diagnosis of COPD in 2007, Edna noticed problems with her own breathing while walking up stairs and in many of her daily activities. Once diagnosed, she realized she would have to undergo the treatment she had extended to so many during her career in respiratory health. No longer able to continue with her rigorous professional schedule, Edna retired in 2012.

Read More

Categories: Remembering Our COPD Heroes

Faces of COPD: Elisha Malanga says, “Let’s all work together to make a real impact on COPD.”

Like 16 Likes

Elisha talks about her role at the Foundation and why research is essential to finding a cure. She also shares with us who inspired her early on, what motivates her now and how together we can have a real impact on this devastating disease.


Elisha feels “privileged” to be the Chief Research Officer for the COPD Foundation (COPDF), which she joined more than 10 years ago. In her current role, Elisha oversees COPDF’s research programs, working closely with “an amazing staff, patients, partners, researchers and clinicians.”

As Elisha explains, “research is essential to finding better therapies and ultimately a cure for COPD. Working closely with patients to determine their research priorities has been enlightening and encouraging.”

One way that Elisha leads the charge for more research and ultimately a cure is through the COPD Patient Powered Research Network (COPD PPRN). “We have been using the COPD PPRN to recruit for studies and the response from patients has been overwhelming.” To learn more about the COPD PPRN, click here.

Read More

Tags: awareness COPD Patient-Powered Research Network COPD Research
Categories: Personal Stories

1 2 3 4 5 6 7 8 9 10 ... 15

Join Us on COPD360social

Sign In to Participate
Or register to become a member