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Teaching with a Twist – Thoughts on E-cigarettes and Vaping

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“Just the facts, ma’am.” Who remembers that line from the good old days of the Jack Webb TV series, Dragnet? I must confess that I am not old enough to have watched it when it aired originally, but because it was a favorite of my dad’s, I have watched my fair share of reruns on late-night cable TV. Those characters are so easy to see in my mind’s eye – dark suits, crisp white shirts, thin black ties, and cigarettes.

One night a few months ago, I was reading an article about the harmful effects of e-cigarettes and vaping. That article was a little frightening. It stated that some of the components of the e-liquid degrade into chemicals like formaldehyde and acetaldehyde – both of which are cancer- causing agents. It also included instances of the lithium batteries that power the devices unexpectedly exploding into the face and eyes of the smoker. This article also linked to another, which pointed to more startling findings, such as some of the flavored e-liquids having been linked to a serious and permanent lung disease called bronchiolitis obliterans (BO) or “popcorn lung.” (Here is more information about bronchiolitis obliterans if you are interested.) Those articles got me thinking about my Teaching with a Twist series and how we might have an open discussion about a touchy subject.

I started reading articles about the impact of popular culture and influential people on the rates of smoking in the U.S. and it took me down some interesting paths. Back in the 1920s through the mid-1950s, advertising for cigarettes was front and center in magazines. Tobacco companies even used phrases that characterized smoking as a wholesome activity. Many advertisements showed pictures of doctors smoking and declaring that they preferred a certain brand over others. Can you imagine going to see your pulmonologist nowand having him encourage you to switch to his favorite brand of cigarettes? No way! But at one time this kind of promotion happened – a lot.

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Categories: Education, Resources and Studies Related COPD News Tips for Healthy Living

COPD360social: 40,000 Strong and Counting

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The COPD Foundation is thrilled to announce that we have recently reached our 40,000-member milestone for COPD360social, our online community, and that number continues to grow every day! This is a huge testament to all COPD360social community members and an immense sense of pride for members of the Foundation. We sincerely thank you for your ongoing participation and support – we need you to help us realize our mission to prevent and cure COPD and help everyone affected by this disease.

When COPD360social launched in November 2014, little did we know where we’d be today. As Bill Clark, Senior Director of Community Engagement and COPD360social community manager since January 2014, explains, “When we launched COPD360social, we weren’t really sure what would happen. We never envisioned that the community would become what it is today – the voice of the COPD community. It’s a place for everyone and anyone affected by COPD to ask and answer questions, share personal stories, give and receive support and express their joys as well as frustrations. It’s truly been a lifeline for our members and we couldn’t ask for more.”

So, what’s been the secret to the community’s success and its phenomenal growth over the years? “We’ve never had to advertise, it’s all been word-of-mouth,” says Bill. “And what’s interesting to see after all these years, community members not only make sure false or misleading information is quickly corrected and/or removed but many have also taken on several of my ‘official’ duties – whether it’s welcoming new members, reaching out to people who have been newly diagnosed, providing encouragement and advice and, perhaps most rewardingly, forming genuine friendships.”

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Categories: Community Announcements

Teaching with a Twist – Inhalers

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Teaching with a Twist – Inhalers

As a respiratory therapist I have a love/hate relationship with inhalers. The thought of having a month’s supply of respiratory medication in a portable delivery system is great and they can be incredibly helpful to people with a variety of health conditions Notice I didn’t say that they are easy to use? The idea is a great one, but research shows that approximately 94% of people don’t use their inhalers correctly. Part of the problem is that there are different methods for each different type of inhaler on the market.

There are 13 inhalers commonly prescribed for COPD. You may have had a variety of them prescribed to you at different times as your doctor was trying to find the right treatment plan for you. With so many different medicines available, there is a lot of potential for people to use them incorrectly. Think back to a time when you were prescribed a new inhaler. Were you educated about what the medicine was being prescribed for? Did someone instruct you on when you should take the medication? Were you shown, and then encouraged to demonstrate, the proper steps to activate the inhaler with maximum effectiveness?

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Categories: Education, Resources and Studies Tips for Healthy Living

Teaching with a Twist: Anxiety and COPD

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I love riddles. I love to figure them out, I love to create them. But there is one riddle that I encounter often as a respiratory therapist that I wish we could solve for everyone with COPD: which came first, trouble breathing or anxiety?

Teaching with a Twist: Anxiety and COPD - 1We see people asking about anxiety on COPD360social a lot. People ask if anxiety is ‘normal’ or if anxiety can make breathing worse. Some people ask if anxiety can cause breathing problems or if breathing problems cause anxiety. I think those are really good questions. You may be wondering these same things yourself. For any number of reasons, you may not have talked with your doctor about these questions, but I would encourage you to mention them to your healthcare team. Anxiety and breathing problems are so common, it would be more surprising to find someone with COPD who doesn’t experience some anxiety.

I remember a personal situation from a few years ago, when I was at work as an RT in a hospital. I was having a medical issue that made it hard for me to get my breath. My boss instructed me to go to the ER where I was treated for the issue, but I will never forget how my anxiety was dismissed and minimized. The nurses told me that I should “calm down” because I was making the situation worse. I was irritated because they obviously didn’t understand how it felt to struggle for air. I told them that they would be anxious, too, if they couldn’t get their breath. I will never forget that incident. It changed the way I interacted with anxious patients after that.

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Categories: Education, Resources and Studies Tips for Healthy Living

New Study Examines Preferences and Treatment Options in Patients with Severe Emphysema

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Sometimes making a decision is easy and sometimes it’s not. Often, the more major a decision, the more we may find ourselves weighing the pros and cons, the risks and benefits, before committing to a way forward.

This is often the case when faced with making a medical decision about treatment. In some cases, the options are very clear and the decision easy. In other cases, however, more risk may be associated with a particular treatment, especially if the treatment option is new, which can make the decision all that more difficult.

For individuals with severe emphysema, making decisions about treatment options is challenging because there aren’t that many treatment options available. Lung volume reduction surgery is one such option but not all patients are appropriate candidates and the surgery carries a high morbidity rate. Medical management, pulmonary rehabilitation and long-term oxygen therapy are also standard treatments, but patients often remain symptomatic.

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Categories: Education, Resources and Studies Medications, Treatments and Therapies

Important Alert for Medicare Patients Who Use Supplemental Oxygen

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Beginning January 1, 2019 changes will occur to how the Centers for Medicare and Medicaid Services (CMS) will pay oxygen suppliers for delivering supplemental oxygen and oxygen equipment to patients. During this time, CMS will suspend its current payment system, known as competitive bidding.

The COPD Foundation is concerned that this change may have an impact on people who use supplemental oxygen and we are standing by to hear from you about your concerns, so that we can reach out to CMS. We are coordinating with fellow patient and healthcare professional organizations on this important access issue.

Please email or call 1-866-316-COPD (2673) Monday-Friday between 9am-6pm if you are experiencing any problems as a result of this change or if you have been contacted by your patients or suppliers about required changes to their prescriptions. We want to understand the issues and make sure that we are communicating these problems to decision makers in an expedient way.

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Categories: Advocacy Education, Resources and Studies

COPD and Veterans: What is the Connection?

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John Linnell

The COPD Foundation would like to celebrate and honor veterans for their service and sacrifices! Veterans are an integral part of our community and 360social network. Did you know that veterans also have a higher risk of being diagnosed with COPD?

Deployed soldiers are often exposed to dust, chemicals, fumes, and sand for long periods of time. Soldiers are also commonly breathing in air pollution and smoke from burn pits used for waste disposal. On top of these hazards, there is a higher prevalence of tobacco use in the military.

Chronic and daily exposure to these conditions can lead to airway irritation, cough, lung damage, shortness of breath, and respiratory tract infections but an NHLBI survey showed that veterans who experience breathing issues are less likely to talk to their doctors about the symptoms.

COPD is a leading cause of morbidity and mortality within Veterans Health Administration. One study revealed that sixty nine percent of deployed military personnel experienced respiratory illnesses and symptoms while in the field. In 2011, respiratory diseases (including COPD) were responsible for over 250,000 medical encounters among active duty U.S. military personnel and COPD was the fourth most common reason for hospitalization among veterans.

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Categories: Advocacy Education, Resources and Studies Health Policy and COPD

COPD and Exercise: How to Get Started

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Caroline Gainer

Caroline Gainer is a COPD patient and State Captain from West Virginia. As an advocate she has participated in research initiatives, advocacy efforts with her local, state, and federal officials, and regularly spreads awareness about COPD through local health fairs. To learn more about the COPD Foundation State Captain program, click here!

What is your connection with COPD? What is your COPD story?

In 2013, I went to my annual physical and was diagnosed with COPD. I had no symptoms at the time, so it came as a surprise to me. In September of 2014, my lung collapsed, and I was hospitalized. After my hospitalization, I was referred to a pulmonologist who formally diagnosed me with severe asthma and emphysema. At that time, I was put on medication to help with my constant coughing, and gaging. I remember having to set my alarm clock an extra 30 minutes earlier to get ready for work because I could not stop coughing and felt that I couldn’t catch my breath. Little activities like getting dressed and walking to the car felt challenging.

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Categories: Personal Stories Tips for Healthy Living

My Journey with COPD & Exercise

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Debbie Daro

Debbie Daro is a COPD patient and State Captain from New Jersey. As an advocate she has participated in research initiatives, advocacy efforts with her local, state, and federal officials, and regularly spreads awareness about COPD through local health fairs. To learn more about the COPD Foundation State Captain program, click here!

What is your connection with COPD? What is your COPD story?

I was diagnosed by my primary care provider with COPD in 2013. I had been feeling sick for several years leading up the diagnosis but like many smokers I kept living in denial until one day I had no choice but to see a doctor. A primary care provider diagnosed me with a chest x-ray but didn’t talk to me about COPD or provide me with any educational materials. I was prescribed a couple of inhalers, told to quit smoking, and the appointment was over.

I continued to smoke for two more years until one day when I was rushed in to see a cardiologist. I knew at that point that I had run out of time and I had to start making lifestyle changes immediately. I quit smoking the day before my first nuclear stress test. A few weeks later I found a tobacco cessation support group. The counselor there expressed concerned that I had yet to see a pulmonologist or have a pulmonary function test. On the second visit she handed me a list of pulmonologists. I had to wait a bit for an appointment but when I finally saw a pulmonologist and had my first pulmonary function test I was diagnosed with early stage 4 COPD.

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Categories: Personal Stories Tips for Healthy Living

Making the Case for Pulmonary Rehabilitation

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Cristin Trecroce

Cristin Trecroce is a healthcare professional and COPD Foundation State Captain from North Carolina. As a COPD advocate, she hopes to spread awareness about the importance of pulmonary rehabilitation for COPD patients. Read her blog posting below, to learn more about pulmonary rehabilitation and its benefits.

Water amazes and scares the daylights out of me. If I think about swimming while in the water, I panic. What if my lungs run out of air while I am swimming? What if I inhale the water and can’t breathe? I can sink, if I sink, I can die. Hello, I can die! What if you had to worry about your breathing all the time, not just when you were in water? Millions of people with COPD have to do this. They have to focus on their breathing as if they were underwater negotiating between the energy needed to breathe and the energy needed to swim or function. About 30 million people in the United States have COPD with half of these 30 million not even realizing they have the disease. The half that is undiagnosed, go throughout their days, compensating for their symptoms without recognizing that their lungs are changing. COPD can cause changes to the lungs that can be subtle at first but then progress to outright lung failure.

Exacerbations of the disease can happen over time or abruptly, when the body’s lung limitations become overwhelmed. Overwhelming stressors can be from illnesses (like a cold or flu) or another health condition. If this happens repeatedly, the lungs get weaker. The weaker the lungs get, then the more likely COPD exacerbations can happen. The process can continue, like a chain reaction, resulting in disability.

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Categories: Education, Resources and Studies Tips for Healthy Living

Hope and Inspiration Through Goal Setting

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Jane Martin

Jane Martin, BA, LRT, CRT is the Assistant Director of Education for the COPD Foundation. She leads the development and creation of the Foundation’s extensive library of patient educational materials and oversees the online catalogue. As a member of the COPD Foundation’s Care Delivery Team, she assists in implementing special projects and shares her years of expertise as a respiratory therapist through writing for both patients and healthcare providers.

November is COPD Awareness month – a great time to remind yourself that it is possible to have control over your breathing – and your life – with COPD! The theme this year is Hope and Inspiration. And what better way to celebrate this than to set one or more goals, things you want to accomplish in spite of COPD.

What matters most to you?

It’s not always easy to set a goal when you have a chronic disease, but that doesn’t mean you can’t try! It’s important that these goals are personal. In other words, they are all about what you want to do to either keep, or improve, your quality of life. For example, it might mean a lot to you to be able to get out to the coffee shop and meet with your friends. For another person, that may have no special meaning at all. Ask yourself, “What matters most to me? What is it that I want to do?” Doing this will help you get started on thinking about your goals.

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Categories: Education, Resources and Studies Tips for Healthy Living

Questions about Medicaid Part D Open Enrollment

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It is that time of year again, where open enrollment for health insurance coverage is available. Trying to decide what health insurance plan is right for you can be a difficult choice to make. You may be asking how to do I sign up? Do I qualify for specific programs? What should I expect once I enroll? This article will help to break down the open enrollment process for the Medicare Part D program and provide you with tips on finding the right plan for you!

What is Medicare Part D?

Medicare Part D is a prescription drug benefit program, which is an optional United States federal government program to help Medicare beneficiaries pay for self- administered prescription drugs through prescription drug insurance premiums. Simply put, it is a government program that helps consumers pay for their prescriptions.

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Categories: Education, Resources and Studies Health Policy and COPD

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