COPD Foundation Global Mission
It is estimated that over 320 million people around the world have COPD. COPD is the third major cause of death in the world, and 90% of deaths are in low and middle-income countries.
The COPD Foundation COPD360social online community includes members from over 150 countries. We partner with international experts, researchers, members of industry and patient advocacy organizations around the world to advance our common mission of preventing COPD, improving the lives of those affected and stopping the progression of COPD, bronchiectasis and nontuberculous mycobacteria (NTM) lung disease
In 2021 we will:
- Expand our State Advocacy Captain Program in the US to include National Captains
- Provide content in other languages including initially Spanish
- Expand our partnerships with global advocacy organizations
Global Partners and Collaborators
EMBARC is a pan-European network committed to promoting clinical research and education in bronchiectasis, through sharing of protocols, research idea and expertise. Central to this project is the creation of the European Bronchiectasis Registry, a collaboration open to all investigators around Europe caring for patients with bronchiectasis. Publications resulting from EMBARC projects can be found here.
The United Kingdom Bronchiectasis Registry (BRONCH-UK) is a national research database and biobank of adults with bronchiectasis. The aim is to facilitate clinical trials and academic research studies in order to improve our understanding of what causes bronchiectasis and to find better, more effective treatment for people with this condition. Publications resulting from BronchUK can be found here.
Australian Bronchiectasis Registry
The Australian Bronchiectasis Registry (ABR) was established in 2015 by Lung Foundation Australia and the Australasian Bronchiectasis Consortium, an independent steering committee composed of leading respiratory physicians with expertise in clinical management and research in bronchiectasis. Click here to read highlights from the Australian Bronchiectasis Registry.
European Lung Foundation
The EU provides opportunities and funding to promote patient involvement in public health and medical research across Europe. Learn more about EU Projects here. European Lung Foundation and COPD Foundation have launched a survey to understand how people with chronic obstructive pulmonary disease (COPD) feel about the words used to describe their condition by doctors and nurses. Watch the Rethinking COPD exacerbations video.
Contact: Courtney Coleman firstname.lastname@example.org
The DisEntangling Chronic Obstructive pulmonary Disease Exacerbations clinical trials NETwork
Contact: Alexander G. Mathioudakis MD, MRCP(UK)
University Hospital of South Manchester, The University of Manchester
GAAPP (Global Allergy & Airways Patient Platform) collaborator on global summits:
Contact: Tonya A. Winders, President
Primary Care Respiratory Group (PCRG-US)
The Primary Care Respiratory Group (PCRG-US) is the US affiliate of the International Primary Care Respiratory Group (IPCGR), a not-for-profit organization representing fifteen different countries, is a national educational initiative providing comprehensive respiratory disease education. PCRG's mission is to provide education for primary care clinicians involved in respiratory disease management and raise standards of patient care through the dissemination of best practices, education programs, and communication among its members. PCRG-US has over 3000 members.
Therapeutic areas covered by PCRG include:
- Infectious Respiratory Disease
- Pleural and bronchial disorders
Survey results of education priorities in COPD