Alain

Alainreceived the badge Getting started

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ESRSchweckaloeErikajoanand 31116 others also received the badge ESRand 31118 others also received the badge

1 hour ago

Grover

Grover

Another pretty good day. Physically good but mentally still have times every day that are really black. Sometimes just a minute or two and other times an hour or so.. About 85 percent that I will ask my new VA primary to send recommendation thru for psych evaluation.  Had some really dark times several years ago regarding other issues and psych doctor and therapist really helped.  I sincerely hope all you father's had a great day. MAKE EVERY BREATH AND EVERY MINUTE COUNT

2 hours ago

Grover

Groveranswered the question How much time do you spend with your Pulmonologist

First visit was about 30-45 minutes but was not extremely happy with "absolute" diagnosis of severe emphysema based simply on CT. YeAh I know he has practiced a long time and the CTindeed looks bad in upper lobes. Due to severe sinus infection did not do …
DanK loukatJean IA State Captainand 14 others also answered the question DanK and 16 others also answered the question

3 hours ago

Ben A

Ben A

We're into the first hot spell of the summer here in Portland.  Predictions are for near 90 all week.  And of course this is the week that the movers arrive with all of my stuff from PA.


The AC at the new house is going to be getting a major workout.

15 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRT

Happy Fatherโ€™s Day to all you dads! Hope your day is great! 

19 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

I filled out a Form so I can represent my elder in getting coverage for his nebulized medications, plus have drafted forms for him, me and his lung specialist to sign. It all takes time and is pretty tiring. I'm glad our computer connection is pretty fast. I think the lung specialist will appreciate that I have done the groundwork for him and hope it makes things easier for everyone.


It amazes me that you have to complete one form for EACH medication as well as a separate form for the nebulizer and compressor and each has a code plus the diagnosis code.  No wonder there's so much overhead for medical officers with all these infernal codes and so much paperwork!

22 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain

I have had a pretty physical day today and I am done, very done. I was at the fitness center from 11:00 till 1:45. A couple of quick errands then back home. Had something to eat then out back to tackle the weed jungle. With so many rainy weekends, it got a bit out of control. I put a plastic lawn chair out there so I can stop and rest which I do a lot of. Itโ€™s slow going but I got a fair amount done. Even did a little pruning (very little) of the dogwood. If I wasnโ€™t exercising, no way would I of been able to do it. Still more to do but tomorrow is another day. 

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question When will I need medication

I really don't know how to answer your question about medication. Exacerbations aside, the medications are used to help manage symptoms, basically make breathing easier. If your symptoms are not bad which seems to be the case at this point, than it might …
Gina Bradshaw-Arkansas State Captain Angie67VicEck-State Captainand 3 others also answered the question Gina Bradshaw-Arkansas State Captain and 5 others also answered the question

1 day ago

Empathwarrior

Empathwarrior

๐Ÿ˜Š I went to Doctor am currently on prednisone & antibiotics exerbations have gotten a lot better all tho being very short of breath is taking it's toll. I have absolutely no energy. 

1 day ago

ALAMOkid

ALAMOkid

Had my three month appointment with my ACNP Friday. She didn't like some of the readings . O2 = 89 and flow meter was 410. She sent me home with a peak flow meter. I must take readings twice per day for the next three weeks and bring them in then. It's always something.

1 day ago

BonBon

BonBon

I tried to send you a picture of my buddy (dog) Thor, but for some reason my computer would not allow it.  I'll try again later next week, my son will be home then & he has a degree in IT, thank goodness for my sake (we all know a computer person I'm NOT)...he spends more time cleaning up my computer mishaps...lol 

1 day ago

Made Pramana

Made Pramana

I use an application called Samsung Health. It tracks my walking steps. I need to walk 5500 steps everyday in order to get to the finish line and swim in the sea with the dolphin! ๐Ÿ˜† 

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Well, I have been having phone calls to Medicare and two of the 4 companies that they claim provide nebulized medications  in our state.  Only ONE has an office in our state--the others are in other states.  Lincare promised to get back to me but never called back.


I finally called Brovana helpline and together we called many of the pharmacy chains in my state and she finally called back the prescribing physician's office and was able to get the office manager to fax in an Rx for Brovana where the quantity was an amount that the pharmacy actually had (30 day supply).


I was surprised at how much I've been paying out of pocket for the elder's Rx nebulized medications, especially since he has great insurance and it's because both Medicare B and the prescription drug plan require the MD to fill out a prior authorization form that the MD neglected to do (he doesn't generally prescribe nebulized medications, even tho his patients are often frail elderly, like my elder).


Another call to the drug coverage for my dad and spoke with the pharmacy folks.  They said the problem is that they need the MD to complete the prior authorization form and then my claim can be re-processed.  They said I'm being charged much more than I would under either Medicare B and also more than if it was under the Medicare D. 


I think I will wait until we go in for his visit in two weeks and try to get the lung doc to fill out the paperwork that he should be able to complete.  I can't imagine how patients who are breathless can do all of this.  I suspect they just throw up their hands and pay heavily out of their pocketbooks, without getting reimbursed, which is VERY wrong!


I sure miss my regular pharmacist--he was able to help with these wrinkles, but he's on paternity leave due to his new baby!

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Side effects Brovana vs budesonide

Hi di545 I have been on both these drugs for so long and I have not had any of those problems at all. I do not have symbicort but do brovana and budesonide twice a day. Again we are all different. I had omeprazole but changed to a diff one as been on …

2 days ago

Whylene McCray

Whylene McCrayanswered the question Sporadic sudden coughing & sweating...

Occasionally I get those coughing spells.. I keep on hand,Water,Starlighys peppermint hard candy.. or Ricola cough drops... works for me.. When I feel like a cold I'd coming on.. Vitamin C,Mucinex,and Energine.. Green Tea and Ginger or Dandelion Root. …
Ms DVGina Bradshaw-Arkansas State Captain also answered the question Ms DVand 1 other also answered the question

2 days ago

Shirley

Shirleycommented onFaces of COPD: Justin Daniels is Running for COPD

 Thank you Justin for all you do and say. Your words are uplifting to us. God bless you and prayers for your safe journey always ...

2 days ago

Ken Benson

Ken Benson

Please join us on Monday, June 25th from 3:00 โ€“ 4:00 pm Eastern for the U.S. COPD Coalitionโ€™s Virtual Member Meeting and webinar, where home oxygen will be the focus.

http://www.uscopdcoalition.org/ResourcesNews/NewsAndEvents/tabid/95/ID/184/Join-Us-for-the-USCC-Virtual-Member-Meeting-Webinar.aspx


2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Wowโ€”8 Days and counting to try to get my elder relative his nebulized medications. This is really unreasonable and I canโ€™t imagine how breathless people are supposed to navigate this labyrinth!

2 days ago

Gina Bradshaw-Arkansas State Captain

Gina Bradshaw-Arkansas State Captain received the badge Answer Guru

Earned the Answer Guru badge!
DanK Whylene McCrayJastroand 33 others also received the badge DanK and 35 others also received the badge

2 days ago

Angie67

Angie67asked the question: When will I need medication

The pulmonologist I'm seeing said that although I'm graded moderate COPD all I need is an emergency inhaler (which I've never needed to use) and I'm wondering how I'll know when I need to take meds on a regular basis. I'll be getting a new pulmonologist …

2 days ago

ALAMOkid

ALAMOkid

I just joined the foundation today. I was diagnosed with COPD in 2006. Smoked cigarettes for over 45 years. Stopped smoking in 2010 but the damage was done. Thanks for letting me into your group. 

2 days ago

Pieit

Pieit

Does anyone else suffer with heartburn,almost like anything you eat is stuck. I am on Spriva and Breo,I dont know if it is one of tgese or not. Also started having headaches. Thank you

2 days ago

Pieit

Pieit

Having a great day,but must stay in,100 degree heat index.

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain Time for a quick stretching/relaxation break. I'll do the first 4 forms although on the 3rd one, my stance is not that wide, my knees don't like it. 

https://youtu.be/3K-0JpiJu-o

2 days ago

Ken Benson

Ken Bensoncommented onWhat is the Congressional COPD Caucus?

 15th Congress COPD Caucus Members:http://www.uscopdcoalition.org/CaucusAdvocacy.aspx...

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain Real good piece, better than the title might imply. https://www.sciencedirect.com/science/article/pii/S2531043718300412 



2 days ago

di545

di545asked the question: Side effects Brovana vs budesonide

I am taking both these medications and having bad heartburn, backache, weight gain & fatigue. I take omeprazole for acid reflux. Trying to figure out which one might be causing symtons. I was on Symbicort & Sprivia and no side effects but quit …

2 days ago

Stephanie Williams, RRT

Stephanie Williams, RRT

Good morning, y'all!
I don't know about where you live, but here in Nashville it has been hot and humid.  I should have probably put that in all caps.  I mean it has been r-e-a-l-l-y hot.  I know it has affected the breathing of some of my favorite COPDers in my life.  I have been encouraging them to make sure they get their COPD Action Plan out and do a check up on themselves every morning - in case the weather starts sending them toward an exacerbation.  Have you done your self check up today?  What zone are you in?  Green=๐Ÿ˜€  Yellow=๐Ÿ˜• Red = ๐Ÿ˜Ÿ  
Check your situation and let us know how you are doing below!

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.