COPD360social welcomes new member JenJen81 who joins 64,075 current members of our community. Weโ€™re glad you're here!

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Not a question, just need to talk

Hello Anne1971 - I'm glad you found us. Welcome! I was diagnosed officially in 2001 with severe to very severe COPD. I had it for at least 10 years prior, but didn't know it. If it turns out that you do have a mild form, if you follow the advice …
Caroline West Virginia State Captaindas23DebbieB.-Connecticut State Captain also answered the question Caroline West Virginia State Captainand 2 others also answered the question

16 minutes ago

JenJen81

JenJen81

Have been diagnosed with copd hyperinflation of lungs - am also a psychiatric patient - have been taking seroquil & lithium (priadel) for 11 years - have been reading that I can no longer take my psychiatric medications with a copd diagnoses - am feeling very stressed as the thought of stopping my meds is scaring me more than the copd. Nhs drs cant seem to advise me on what I should or shouldnโ€™t take/do - any ideas would be appreciated. Much love to you all

1 hour ago

  • Karen Deitemeyer - Florida State CaptainHi JenJen81โ€‹  Welcome to 360Social.  First, how were you diagnosed?  It sounds as if this is a reading from perhaps a CT scan?  Have you seen a pulmonologist for a pulmonary function test?  Until you have done that, you do not have a diagnosis of COPD.  I'm not a clinician, so I don't know whether you can continue to take the psychiatric meds that you're on if it turns out that you do have COPD - I hope that one of our clinicians will see your post and will be able to clarify that for you.  In the meantime, please try not to be frightened - I know that's easier said than done.  32 minutes ago
Caroline West Virginia State Captain

Caroline West Virginia State Captain

Please tell me that I am not the only one who signed up for the harmonicas for health tomorrow.

1 hour ago

Dinna25

Dinna25answered the question Walking

Hi G-Anne yer I tried walking around and round my home but it's only a small cottage, so I'm forever turning around, so i went on uTube and do the Indoor Walking Workouts, so far I'm at 1 mile in 15 minutes but ready to increase it. May I ask what a …
GAnneWildebeestbrydy also answered the question GAnneand 2 others also answered the question

2 hours ago

Anne1971

Anne1971asked the question: Not a question, just need to talk

Hi all, I am feeling dreadful, i had to go back home at mid day because i could not cope with work. Canโ€™t stop crying although I am the one responsible for this. I am Anne, 54 and French. I have been having low dose ct scans for the last 2 years to …

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐ŸŠORANGE VINAIGRETTE๐ŸŠ๐ŸŠ 1/4 cup freshly squeezed orange juice 2 tbsp. balsamic vinegar 1 tbsp. Dijon mustard 2 tsp. honey1/8 tsp. freshly ground black pepper Combine all ingredients in a small jar with a lid. Close jar. Shake vigorously,...

12 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, friends! 
We've got ORANGE on our minds this month. Do you know why? It's because November is COPD Awareness Month!!!
Wishing you all a marvelous Monday, filled with reasons to smile! My best to everyone! ๐Ÿ˜ƒโœด

17 hours ago

JeanO53

JeanO53

Happy Sunday Everyone!  Happy to say I'm reporting in at nearly 100%.  ๐ŸŽ‰
Woke up feeling good this morning.  I know not too push it and set myself back, so I'm planning for a relaxing Sunday - maybe watching a little football and doing some small chores around the house.  And enjoying this feeling!
Thanks for all of the support over the past week!  You are the best!  ๐Ÿ†

1 day ago

GEmmitt

GEmmitt

Any one here have had a lung wash if so does it help

1 day ago

GEmmitt

GEmmitt

So i have had copd about 10 years now on. Oxygen  starting to have weird  dreams

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question PFT findings -air trapping, any comments?

All of these number can vary from day to day. Air trapping values are very much related to technique in measurement- and can also vary a bit. The DLCO is a good value and encouraging that your lung issue is more airways than lung tissue (i.e.- more …
Keir123WildebeestPhyliss DiLorenzo NJ State Captain also answered the question Keir123and 2 others also answered the question

1 day ago

GAnne

GAnneanswered the question Dilemma if I should use Trelegy or Ohtuvayre

I am suppose to be getting the Ohtuvayre in mail. I take trelegy also, the pharmacy nurse told me to take the Ohtuvayre first, wait 15 minutes do the trelegy. I canโ€™t wait to see if it makes a difference. Having bullious emphysema and the 50% of the …
Phyliss DiLorenzo NJ State CaptainlizjbWho Me ?and 2 others also answered the question Phyliss DiLorenzo NJ State Captainand 4 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Sunday! Yay! ๐Ÿ˜€ A great day to enjoy yourself, and a great day to talk about COPD Awareness. 
Please spread the word, wherever you may go. Becoming educated is the key to proper management of your COPD symptoms. ๐Ÿ”ถ๏ธ

1 day ago

UK Lynn

UK Lynn

Hi folks. I am using Trimbow high strength for COPD/asthma overlap and I have noticed nightly painful foot cramps after starting on it. Anybody else experiencing this? I am keeping hydrated but still get these painful cramps. 

2 days ago

Banath

Banath

Hello ๐Ÿ‘‹๐Ÿพ everyone I hope everyone have a wonderful day. I have a question.  Since I've started taking Trelegy I have had terrible pain in my feet and legs. I've been on the medicine foe 2 months. Is anyone else experiencing this. Trying to figure out if it's the medicine or something else ๐Ÿค”. 

2 days ago

UK Lynn

UK Lynn

Hi folks, just a general query. I am managing 100% expected fev1 (360 which is correct for my age and height). However I can only achieve this after taking my two puffs of Trimbow without meds it's quite low.

2 days ago

Pnally

Pnallyanswered the question What more can I do to slow progression and/or improve quality of life?

Thank you all for the kind and encouraging words. This group has been a blessing for me.
brydyKaren Deitemeyer - Florida State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question brydyand 3 others also answered the question

2 days ago

Keir123

Keir123asked the question: PFT findings -air trapping, any comments?

Hi, Just came back from full PFT (they didn't do a walk test). DLCO was over 100%, however TLC and RV/TLC was high (2.8/6.9, or 40.5%, apparently 1.6 was predicted). My spirometry was a little worse than 1 week ago - FEV1 66 rather than 68. I don't …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, everyone! Be loud! Be proud! Be orange! Spread the word! November is COPD Awareness Month! Wishing you all a wonderful, productive, easy breathing day! Keep on smiling! ๐Ÿ”†๐Ÿ˜€๐Ÿ”†

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I remember enjoying rainbow sherbet and pineapple sherbet when I was young. Yes, they did have sherbet back in the dinosaur days. ME: โžก๏ธ๐Ÿฆ•โฌ…๏ธ ๐Ÿ˜‚...

2 days ago

GAnne

GAnneanswered the question Change in colors

Jean, my pulmonary told me to take Mucinex , my mucus isnโ€™t dark green, he has me taking azithromycin, and 10 mg prednisone as an add on to my trelegy, I will do that for the weekend, I had an appointment with him on. Thanks
JeanO53DebbieB.-Connecticut State CaptainCaroline West Virginia State Captain also answered the question JeanO53and 2 others also answered the question

2 days ago

das23

das23commented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Orange Sherbet was my favorite as a kid!!!!.......These days it's Cookies and Cream!!!!!!!...

3 days ago

brydy

brydyanswered the question Dumbells advice please sorry maybe silly.

Amazing Dinna!!! your HR will likely improve as you continue your cardio workouts too! the heart like any muscle needs to be trained to be its best self! one way to show yourself improvement is to monitor your HR right after your cardio & then see …
Dinna25WildebeestCaroline West Virginia State Captain also answered the question Dinna25and 2 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFluffy Friday Bonus!!! ๐Ÿ”†๐Ÿ”…๐Ÿ”†
Here's Miyagi modeling her post-surgical suit. Instead of using an Elizabethan collar, she's got this...in case she messes with the surgical area. ๐Ÿฅ‘๐Ÿฅ‘๐Ÿฅ‘

3 days ago

JeanO53

JeanO53

Quick update - I am on the mend; a bit frustrated Iโ€™m not fully well yet.   And kind of surprised.  Then again, I think this is the first โ€œcoldโ€ Iโ€™ve had since just before the pandemic - 5 years later and older.  It is a good lesson on how bad things could have become had I not contacted my doctor as soon as I did.
I am so grateful to have access to good healthcare and for having a safe space & time to take days โ€œoffโ€ and just rest. ๐Ÿ™

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Jean, orange sherbet IS magical!!! โœจ๏ธ If you look up how to churn the mixture without an ice cream maker, I'm sure you'll find something useful!After a big holiday meal, sherbet is a refreshing dessert!The Edy's you mentioned reminds me of a...

3 days ago

JeanO53

JeanO53commented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Orange sherbet is one of the things at the top of my list of favorite things. I swear it has magical qualities when Iโ€™m not feeling well. Edyโ€™s used to make an Orange Sherbet &Cream โ€œice creamโ€, but doesnโ€™t anymore.โ˜น๏ธAnd I donโ€™t have an ice cream...

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.