COPD360social welcomes new member Lakshminarayanan who joins 61,508 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Dear COPD360social Community,

It is with a heavy heart that I step into the role of Community Manager, following the passing of our beloved Bill Clark. Bill was not just a leader but a cornerstone of the COPD Foundation and our online community. He dedicated his heart and soul to building this safe, welcoming space where we could share, connect, and support one another through the challenges of living with COPD.

Bill's unwavering passion for uplifting others and his commitment to education and advocacy have left an indelible mark on all of us. His vision of fostering a community where no one feels alone in their journey has brought countless individuals together, creating bonds that transcend distance and circumstance.

As I take on this role, I am deeply humbled by the responsibility of continuing Bill's legacy. My goal is to honor his memory by ensuring that this community remains a source of strength, encouragement, and knowledge for everyone. Together, we can uphold the values Bill instilled in us: compassion, resilience, and the power of shared experiences.

I invite you all to join me in carrying forward Bill's mission. Let us continue to support one another, share our stories, and build connections that lift us all up. Together, we can honor Bill's incredible work and ensure that his spirit lives on in everything we do.

Thank you for allowing me the privilege of serving as your Community Manager. I look forward to working with each of you to make this community even stronger and more vibrantโ€”just as Bill would have wanted.

With heartfelt gratitude and determination,

Coach Brandon - Community Manager

1 week ago

Vinny M

Vinny M

Dear 360social Community,

It is with a heavy heart that I must share the news of the passing of Bill Clark, a cherished member of our community and a cornerstone of the COPD Foundationโ€™s work since its early days. Bill passed away last night, leaving behind a legacy of improving the lives of those impacted by COPD.

Many of you knew Bill as the Community Manager of COPD360Social, and in many ways he was the heart of our COPD community. His passion for sharing knowledge and support was evident in every interaction. Before joining the COPD Foundation, Bill dedicated 28 years to teaching special education in Ohio. That teaching spirit never left himโ€”it was reflected in his approach to everything he did.

In 2019, Bill was honored with the John W. Walsh Dedication to Excellence Award, a recognition of his contributions to our mission. It was a moment of immense pride for him and his wife, Alice, who joined him in celebrating the achievement. His acceptance speech perfectly captures his spirit and dedication to our community.

Billโ€™s journey with COPD drove his mission to make a difference in the world. He didnโ€™t just work for the COPD Foundationโ€”it was his calling, his passion, and his purpose. We will carry the torch to grow and strengthen 360Social in his honor. He inspired us all to strive for better outcomes and to never lose sight of our shared goal: a cure.

On a personal note, Bill was more than just my colleague. He was my friend and a trusted confidant. No matter the time of day, I knew that I could count on Bill. I will miss him dearly. I know many of you also considered Bill a friend and he will be missed by all of us.

We encourage those who feel comfortable to share your thoughts, memories, and tributes to Bill on 360social.

Details about plans to honor Billโ€™s memory will be shared as soon as we receive them.

As John Walsh always said...Keep the Faith. I am and I know that we can make Bill proud.

1 week ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWelcome to another magnificent Monday, folks! ๐Ÿ˜ƒ
How your day goes is up to you. It is all in your mindset. A positive outlook will guide your way. 
YES, I CAN accomplish many things today. You'd be surprised at you well you'll do! 
Wishing everyone a pleasant, productive day! ๐Ÿ˜€

32 minutes ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Looking for relief for dry lips

I used Blistex and chap stick, taking care to keep it on my lips and not in my nose. Perhaps Mike Hess could weigh in. The main problem Iโ€™ve been told is getting petroleum-based substances in your nose, which COULD potentially cause limpoid pneumonia. …

9 hours ago

Roxie17

Roxie17asked the question: Looking for relief for dry lips

Does anyone know of a lip balm safe to use while on oxygen using a cannula? I know it should be water based but so much comes up when I Google that my head is spinning! Brand names would be appreciated so that I can zero in on one.

9 hours ago

JeanO53

JeanO53answered the question Lotions for oxygen users?

Hi Renee5044: Here are the ingredients in the regular CereVe moisturizing cream: AQUA / WATER / EAU, GLYCERIN, CAPRYLIC/CAPRIC TRIGLYCERIDE, CETEARYL ALCOHOL, CETYL ALCOHOL, POTASSIUM PHOSPHATE, CERAMIDE NP, CERAMIDE AP, CERAMIDE EOP, CARBOMER, …
Renee5044Kandy State Captain of South Dakota NancyNMand 1 other also answered the question Renee5044and 3 others also answered the question

10 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿƒโ€โžก๏ธHIGH PROTEIN TRAIL MIX๐Ÿƒ๐Ÿผโ€โ™€๏ธ1/2 cup dried cranberries 1/3 cup dry roasted soy nuts1/4 cup raw almonds1/4 cup roasted cashews1/4 roasted peanuts1/4 cup roasted sunflower kernels 1/4 cup semisweet chocolate morselsIn a large bowl, combine...

11 hours ago

Ang62

Ang62

Thank you for welcoming me to your group,still trying to work out this with other health conditions I can get confused .Thank you once again ๐Ÿ˜€

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday to a great group of people! ๐Ÿ˜€๐Ÿ’œ I wish you an awesome day, filled with reasons to smile! ๐Ÿ˜Š
Today's image is dedicated to my friend Kandy State Captain of South Dakota โ€‹. Kandy...thanks for always thinking of others! ๐Ÿ’œ

1 day ago

Julie Landry

Julie Landry

Just began noticing a new milky
mucus in my chest . Itโ€™s mostly clear, with the exception of coughing it up,  every morning and seeing a light beige color. This mostly occurs in the morning.
Unfortunately, I am STILL SMOKING ! I SINCERELY WANT TO QUIT .
Iโ€™m down to 3 a day . I have 2 packs left & when theyโ€™re GONE , Iโ€™m DETERMINED to QUIT โ€ผ
This is the reason, I want to be ACTIVE  DAILY on this sight โ€ผ
Iโ€™m STRUGGLING & FRIGHTENED.
Looking & Asking for ANY & ALL  
HELP & I KNOW , this is the Beginning of COPD . Asking people to be direct , but with kindness as well.
Thank You.
     JULIE 


























1 day ago

Chelly

Chelly Can anyone explain this .. 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday! Shine on like the star that you are! ๐ŸŒŸ Today is going to be a bright day! Keep on smiling and enjoy each moment! ๐Ÿ˜ƒ

2 days ago

Trudence

Trudence

Thank you for the add to this around.  Iโ€™ve skimmed through a bit while recovering tonight from esophagus surgery. Not a problem BUT my daughter is in the same hospital today having surgery for stage four ovarian cancer.  Husband has severe COPD and Prostrate cancer.  A lot to take in right.  My big question for tonight is regarding prednisone as he is on it for both conditions.  Has to has 15 mg for the cancer shots and has been on 20 mg for copd and up to 60 daily for five weeks and decreases to 50, 40,30, back to 20.   Always being a sight build hard working guy he is now ballooning up the barrel stomach and moon face.  That must be so hard on the heart heโ€™s 77.  Anyone with experience with prednisone.   Plus so many puffers but itโ€™s the prednisone thatโ€™s scary.  Sorry thatโ€™s all I can do tonight.  Thank you

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainA very late Fluffy Friday shot of Ebony - she's just SO worn out from her busy day of cat naps, playing a little bit, and more cat naps, ๐Ÿ˜‚

2 days ago

Charolette24

Charolette24

My COPD continues getting worse but my smoking addiction trumped the shortness of breath and flare ups. I can't explain what happened inside when I was watching a video on tyou tube about the inner self and I felt something change. On Saturday the 11th was the day I was finished with smoking. I haven't smoked Saturday the 11th on. My breathing is better and I am feeling good. Quitting smoking is one of the best things you can do. After trying at least a hundred times and failing I am successful and seeing the improvments in my COPD already. 

2 days ago

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)answered the question When do you need oxygen support?

Hello! I apologize for the delay...still catching up from being a little under the weather last week! If your saturation doesn't drop below 88%, you probably won't qualify for oxygen during sleep (at least, here in the US). That said, it would probably …
Caroline West Virginia State CaptainJazzybeanKristen Szymonik, BS, RRT, AE-C (Assistant Director of Education) also answered the question Caroline West Virginia State Captainand 2 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerHappy Fluffy Friday, everyone! ๐Ÿพ

Jasmine wants to wish you all a safe and fun weekend! May your days be filled with laughter, relaxation, and of course, lots of furry snuggles. ๐Ÿ˜ธ

And remember, our pets are experts in living their best livesโ€”whether it's napping in sunbeams or chasing after the elusive "mystery squirrel" in the yard. Keep the weekend fun and furry! ๐Ÿถ๐Ÿฑ

Enjoy, and give your pets an extra belly rub from us! ๐Ÿ’–

2 days ago

minnemom

minnemomanswered the question Chronic Dry Cough Developed During Pregnancies and Remains After Pregnancies

Hello -- I realize this was a long time ago for you, but I wonder if you ever figured anything out. I had a "pregnant cough" that went away after each of my first three pregnancies. With my fourth, it stayed. That baby just turned 19. I've told my story …
AnonymousKnbnetmouse also answered the question Anonymousand 2 others also answered the question

2 days ago

Ang62

Ang62

Hi,Im new here .Found out this week I have this .Had test months ago and was told results were ok ,Went to see nurse at surgery has I was struggling to breath and coughing and not sleeping.Nurse said I was not going anywhere till she got to the bottom of problem, went and checked with Doctor  .Then she came and told me ,Very caring nurse and she is going to check on me Monday and she had set up appointment that I should have had .She gave me all meds that I need.I am going to make a complaint .I also have other health issues .I am so scared๐Ÿ˜’

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Can emotions cause a temporary flare up or asthma attack?

I'd like to add that a pulmonologist is a good choice for asthmatics. So is an immunologist/allergist.
Mary22Jasnee also answered the question Mary22and 1 other also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Here is an update on my husband's condition. Many of you will remember his battle with cancer. 
He had a CT scan with dye. Fortunately, no spots lit up.
What was found: spinal degeneration, mild emphysema, several nodules and a benign tumor on the bad lung. 
He has a scheduled telephone call this afternoon, with an oncologist he doesn't know. His oncologist decided to move on to other things, so we need to find a new one. 
Keeping the faith!!! Taking care of my husband. Keeping those positive thoughts flowing.
Medical bills forever piling up. Just keep paying them. You can't do better than your best! 
Enjoy your day! Life is for living!!! ๐Ÿ˜Š

2 days ago

Jasnee

Jasnee

Happy Friday everyone!! Keep shining your light and spreading positivityโ€”youโ€™ve got this!
Iโ€™m sorry for asking so many questions, but thereโ€™s something thatโ€™s been on my mind. Do we ever go back to how we felt before? Even after a flare-up subsides, do we feel normal again, doing things effortlessly like we used to? Even when Iโ€™m not having a flare-up, I get tired so easily. For example, I used to be able to roam around a lot without any issues, but now even a little exertion leaves me feeling drained. Is this how itโ€™s going to be from now on, or does it get better?
Even after three months of treatmentโ€”when my breathing improved a lot back in Octoberโ€”I still didnโ€™t have the same energy I had before. I struggled with activities that once I could do effortlessly. Iโ€™m having a hard time wrapping my head around this and really want to know if things ever go back to normal.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Yoda, aka Jason Rossi! ๐Ÿ˜„

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainSnowball said she hopes that everyone has a wonderful Fluffy Friday.

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Has anyone had the spiration valves put in? Which one is better zephyr or spiration?

I just read a review in CHEST that said that the numbers show little difference in the success rate of the two types of valves.
HIcopd - Hawaii State CaptainKen Benson-California Lung Health Advocate and State CaptainGAnne also answered the question HIcopd - Hawaii State Captainand 2 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ณTUSCAN WHITE BEAN SOUP๐Ÿ”ณ1/4 cup olive oil 1 small onion, finely diced 2 medium shallots, finely chopped 4 cloves garlic, smashed 2 carrots, sliced into coins2 stalks celery, dicedThree 15-ounce cans cannellini beans, rinsed and drained 2 bay...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thankful Thursday!
I am so very thankful for all the good friends that I have here on 360Social. Thanks for putting a smile on my face every day, friends! ๐Ÿ˜€

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.