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Coach Brandon - Community Manager

Coach Brandon - Community ManagerWe would love to get your feedback on a topic that we have for the week, please join in and offer your answers!


https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Are-you-part-of-Medicares-Extra-Help-or-Low-Income-Subsidy-LIS-program.aspx

Are you part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program?

If you are part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?

1 hour ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I like DebbieB.-Connecticut State Captainโ€‹ idea of having COPD business cards made to help educate the public about the COPD Foundation and their mission.


Is this something that we could sponsor as a group?  Coach Brandon, what do you think?

34 minutes ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Analysis to find a safe inhaler - Artificial Intelligence

I also take Singular nightly and as Stefdawn has mentioned, missing a dose will tell you that it is working for you.
Stefidawnnetmouse also answered the question Stefidawnand 1 other also answered the question

40 minutes ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question After 6 months, pneumonia flares up again

I have had several episodes of pneumonia, but have not had one since I pay more attention to my coughing and mucus production. As soon as I experience a change, I begin taking Mucinex and keep a close watch for worsening conditions. If they worsen I go …
WildebeestGAnneDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Wildebeestand 2 others also answered the question

54 minutes ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerasked the question: Are you part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program?

If you are part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?

1 hour ago

BrandyLynn

BrandyLynn

I just ordered "The COPD Solution", by Dawn Fielding. Does anyone have any book recommendations on COPD that have helped them? Thanks, everyone! And Happy Monday! 

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ WARM SWEET POTATO SALAD๐Ÿ 3 large sweet potatoes, peeled and cubed 1 small red onion, thinly sliced into half moons2 tbsp. plus 1/4 cup olive oil, divided Salt and freshly ground black pepper to taste 2 tbsp. cider vinegar 1 tbsp. Dijon mustard...

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good morning, folks!
Winter Storm Hernando= Bomb Cyclone = Tons Of Snow = Strong Winds= Don't worry, we'll get through this! ๐Ÿ˜ƒ
I ventured outdoors earlier this morning to feed the birds and squirrels. 
Please do not go out there unless you need to. Prepare before you go! 
We've already got over 12 inches of snow, with more on the way. 

6 hours ago

Stefidawn

Stefidawn

My nose wonโ€™t stop dropping every where and I need to order more cannulas. Iโ€™m up too late, 1:25 am because my cat and dog decided to not get along yet again. But Iโ€™m happy to be alive and breathing well today. Now to bed I go! 

10 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, everyone! Staying positive is what we should strive for. We CAN get through anything, and we WILL do just fine! We use our common sense and think through before we do! 
Have a positively awesome day, friends! ๐Ÿคฉ

11 hours ago

GAnne

GAnneasked the question: After 6 months, pneumonia flares up again

Was admitted yesterday for pneumonia, I guess it comes from anywhere, I hope it wasnโ€™t a side effect of DUPIXENT.

22 hours ago

Dinna25

Dinna25answered the question Not sure if should post this on here

Hi ya Wildebeest yeah its been a while, i look in but cannot help with any input to questions so i look again another day. Iv been good my copd remains stable on last check, and lungs sounded clear. Any fear stress i had have now gone, i do the …
WildebeestDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Caroline West Virginia State Captain also answered the question Wildebeestand 2 others also answered the question

1 day ago

das23

das23answered the question Describing what happens that causes inhaler side-effects

Thanks for posting all this netmouse. Interesting information
netmouseTom.ECoach Brandon - Community Manager also answered the question netmouseand 2 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Does anybody else have issues with stuffiness just in one of your nasal passages?

Netmouse, it worked for me, and I was told it was okay to do that. You can very easily buy gallon jugs of distilled water.
netmouseGAnnePhyliss DiLorenzo NJ State Captain also answered the question netmouseand 2 others also answered the question

1 day ago

netmouse

netmouseasked the question: How long does inhaler drug stay in body with side effects?

I asked Google Gemini how long it takes Spiriva to leave my body, as I have improvement but still feel "residue". Question: How long does it take to get Spiriva Respimat out of your system? It made me very dizzy and disoriented after 1 month, so I …

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒฟ Good Morning & Happy Sunday

Good morning, 360social ๐Ÿ’™
For many areas, today may bring snowโ€”or even blizzard conditions. If thatโ€™s you, this is a gentle reminder that itโ€™s okay to slow things down and stay safe.

Changing plans to protect your breathing, your energy, and your well-being is not something to feel guilty aboutโ€”itโ€™s taking care of yourself.

Whether today means staying warm inside, adjusting plans, or simply taking things one breath at a time, that choice matters.

โœจ Whatโ€™s one small thing youโ€™re doing today to take care of yourself?

1 day ago

netmouse

netmouseasked the question: Describing what happens that causes inhaler side-effects

Google's Artificial Intelligence analysis describes what is happening that causes inhaler side-effects. And has questions to ask about other options and next steps. Gemini's Response: That is a very challenging list of side effects, and it's …

1 day ago

netmouse

netmouseasked the question: Analysis to find a safe inhaler - Artificial Intelligence

I asked Google's AI Gemini to help me find a drug, noting the inhalers tried and stopped due to serious side effects. Question: Create a "Medication Sensitivity Summary" that lists these specific failures and why they happened. Include other options to …

1 day ago

netmouse

netmouseanswered the question PFT results analyzed by artificial intelligence

I then asked about the TLC and RV/TLC%. Below is the Q&A: Question: The total lung capacity TLC is 123%. The RV/TLC% is 140. What does this mean? Gemini Response: These new numbers provide the "final pieces" of the puzzle. They confirm that your …

1 day ago

netmouse

netmouseasked the question: PFT results analyzed by artificial intelligence

Using the numbers from my recent PFT test, I asked a question of Google's Artificial Intelligence platform, Gemini. I got the below analysis. What do you think? Question: What does RV 181% in PFT test mean? FEV1/FEC is 61%. DLCO is 65%. An expiratory …

1 day ago

netmouse

netmouseanswered the question Problem with Spiriva mist inhaler

David, on starting this drug I voiced that I could try 1 puff if any issue, hopefully a way forward. Feeling the symptoms progress over several nights, and then the strong feeling of disorientation the last morning I woke up, holding on to door jams to …
KingDeath83David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question KingDeath83and 1 other also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! I wish all of you a very pleasant day, filled with reasons to smile! You deserve the very best! ๐Ÿ˜ƒ

1 day ago

KingDeath83

KingDeath83answered the question Studies on weather impacting progression of lung disease

Welcome fellow iowan gotta love our wonderful weather. I have the same question as you breathing here is terrible with copd or even just asthma. Between the hot the cold the humidity and all the alergens and lets not forget the farm land thats lovely …
Alaskan boonyratJean IA State CaptainKandy State Captain of South Dakota also answered the question Alaskan boonyratand 2 others also answered the question

1 day ago

KingDeath83

KingDeath83answered the question PFT results-I have the pdf I just want a straight answer what stage?

Thank you I needed the truth for the motivation to quit. Im glad you all are here. Youve all been so helpful and thanks again
David Mannino, MD (Chief Medical Officer, COPD Foundation )das23 also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

1 day ago

Dinna25

Dinna25asked the question: Not sure if should post this on here

Hi all Its been awhile, I'm still jogging along, took the advice from here and i am "having a life" still doing my walks and cardio but not letting my lungs rule take over. But have a question it may not be for this group and I'll take down if wrong. …

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Oxygen dropping at rest

Kmcnamara68 - have you contacted your doctor?
Kmcnamara68 also answered the question Kmcnamara68 also answered the question

2 days ago

Rain653

Rain653answered the question 32 mild emphysema diagnosis in ER. How bad is this? Will quitting cigs help me be normal again?

Hello Wfly, I understand how scary it may be, I am in the same boat, unfortunately. Besides that I was diagnosed a year ago with very mild emphysema and very mild copd I have an extremely bad panic attacks since I was in my twenties, which put me in ER a …
appowellDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question appowelland 1 other also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Happy Saturday, 360social!
Letโ€™s make today a little lighter together ๐Ÿ’™

Hereโ€™s your fun question of the day:
Whatโ€™s something that always makes you laughโ€”no matter how many times you see, hear, or think about it?

It could be:

A pet doing something ridiculous ๐Ÿพ

A favorite show or movie moment

A joke that still gets you every time

A memory that pops up and makes you smile

No pressure to be fancy - sometimes a quick laugh or smile is exactly what the day needs.
Drop it in the comments and letโ€™s give each other a few reasons to grin today ๐Ÿ˜Š

2 days ago

UK Lynn

UK Lynn

Hi I'm getting nowhere with UK doctors who have prescribed Trimbow. 7 years ago an angiogram showed hyperinflation..Last month a CT scan showed no smoking damage which was great news! But they keep describing heavy drugs like Trimbow. I do suffer from mild asthma as there may be an overlap. Can asthma inflate lungs? Thanks in advance if anybody can please advice. Stopped smoking 20 years ago and normal fev1. 

2 days ago

netmouse

netmouseasked the question: Problem with Spiriva mist inhaler

I began my second month of using Spiriva Respirnat mist inhaler (tiotropium). Very expensive drug. I negotiated with the drug plan insurer to move it from their Medicare tier 4 to tier 3 to get the cost down. With my deductible, the 2 months have totaled …

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.