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Community Announcements

If you are approached by any company through COPD360social in a private message or a post on the activity feed asking you to participate in either a survey, research study, product testing, or wanting you to purchase a product please do NOT respond and notify Bill Clark at wclark@copdfoundation immediately and provide the name of the individual, the company and what they were requesting. We do NOT allow companies to approach our membership in any capacity!

6 days ago

Kenny A.

Kenny A.answered the question My dog, Lucky, is afraid of my O2 tubing. Any suggestions?

Hey edpe 77 Is there anyway you can use command hooks made by 3M and route the hose above door ways , corners of the room just an idea Its so funny how dogs are effected by the strangest thing , my dog slept with me every night unit I got a CPAP …

26 minutes ago

Kenny A.

Kenny A.

PFT Test


Today was my 5th PFT Test in the last 2 years. Different doctor different tech each time
The machine is always different and of course each tech has there own bed side manner
My point is does anyone feel like they push you to hard even though you are doing your best
Today I felt like the numbers were not what she wanted so we keep redoing it time after time , which led to me being so winded it actual hurt from all the coughing.
I pushed so hard I passed out and feel forward caught my balance as well as the young ladie helping me
I wonder do you all feel like one / The numbers are accurate due to being winded
Two/ Do you feel worn our after the test
One thing I found odd today was why use Albuterol when it does not work for me due to dynamic Hyperinflation 
I am curious let me know your experience ๐Ÿ˜Š
โœŒ๐Ÿ’›๐ŸŽธ

33 minutes ago

  • edpe77
    PFT's are tough! My last one was really difficult, and I know I didn't do very well. But the RT didn't push me excessively. I excited about doing my next one this year, having finally quit smoking! I should be able to make an 8am appt w/o doing an inhaler ahead of time, which is recommended for test accuracy. As I understand it, Albuterol is the standard med to establish the base line improvement.
    ed
    2 minutes ago
RClevengerRRT

RClevengerRRTanswered the question My dog, Lucky, is afraid of my O2 tubing. Any suggestions?

As a dog lover and an RT, I might be able to help on this issue. I believe your dog might have several different things going on at once. 1st:As a dog's senses are quite heightened, it might be possible that the smell of the wipes or cleaning products …

46 minutes ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain #PCORI2019 They will be steaming live, some recorded and archived for viewing later. This link as more info. 

https://www.fvpcast.com/pcori?utm_source=email

1 hour ago

Jtreyo

Jtreyo

Hi everyone .. so now Iโ€™m really freaking out every single time I breath out forcefully I hear weezing but If I inhale and exhale normally I donโ€™t hear anything but when I exhale hard I hear weezing and Iโ€™m constantly having to clear my throat all day long can anyone tell me what this is ??? Does this mean I have copd ?? Iโ€™m freaking out cuz even when I laugh with friends you can hear the weezing thatโ€™s been going on for weeks now but when I normally breath in and out I donโ€™t hear weezing at all just when I forcefully breath out.. Someone please help me ..

1 hour ago

Sherry9

Sherry9answered the question What to use for chapped lips and dry nose with oxygen

I've been on O2 24/7 for many years. I have used Roezit all that time and love it. It is made just for this purpose.

2 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain

3 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question My dog, Lucky, is afraid of my O2 tubing. Any suggestions?

Did I read somewhere that your tubing is smaller in diameter now than it was before? It may be making a little noise that the other cannula didn't make.I would almost bet money that it is making a sound that he hears but people wouldn't notice. If you …

3 hours ago

Jane Martin

Jane Martincommented onWhat is the Difference Between Emphysema and Lung Cancer?

 Hello Emphysema mike,I totally agree with Jean and Debbie that you should talk about pulmonary rehab with your doctor. In addition to physical conditioning, you can learn a lot at pulmonary rehab. A few of these things are how to: avoid lung...

3 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain I practice QiGong / Tai Chi but it is just one component of an exercise plan that includes aerobic, balance, and lots of strength training. 

https://journal.chestnet.org/article/S0012-3692(18)31062-6/fulltext

Tai Chi Is Not Equivalent to Pulmonary Rehabilitation

I read with interest the study by Polkey etย al1 in a recent issue of CHEST (May 2018). The suggestion that Tai Chi is an all-in-one substitute for a conventional exercise-based comprehensive pulmonary rehabilitation (PR) program is not supported by the data presented, unless to say that neither …

3 hours ago

edpe77

edpe77asked the question: My dog, Lucky, is afraid of my O2 tubing. Any suggestions?

I changed the long hose a week or so ago, and now Lucky is afraid to step over it. The way my room is arranged, he almost always has to step over it. He will stand there and wimper, or go over it then back up several times. Suggestions. ed

4 hours ago

elizabethgro

elizabethgro

I am very worried about a friend of mine with COPD.  She is feeling very anxious and i am wondering if spiritual healing would help her.  Does anyone have any resources about spiritual healing as a way you alleviate anxiety,  relieve pain,  and augment healing??  I know that,  in mice, the thymus can be regenerated through gene therapy.  I wonder if spiritual healing can do the same thing.  Some one blessed my skin to tighten back up after I had saggy skin.  It would be amazing. if we could reset organs to youthful states of being.  i eat a vegan raw food diet.  and have detoxified my body for years.   So I was ready for the blessing.  Does anyone know of any spiritual healers that can help cure COPD?

4 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain Who are you calling fat, I just fluffy....

4 hours ago

JeanO53

JeanO53answered the question Time for Medicare annual enrollment

Thanks netmouse! Stephanie - I agree, she'd make a great State Captain. To add to what you've shared netmouse... Here's the 2020 Medicare and You Handbook https://www.medicare.gov/pubs/pdf/10050-medicare-and-you.pdf

4 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain commented onWhat is the Difference Between Emphysema and Lung Cancer?

 I agree with Jean that exercise is something you have to discuss with your doctors. You need to be approved for exercise. Many of us start with pulmonary rehab where we are closely monitored. It is a safe way to learn how to safely exercise and to...

4 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRT

Mobalโ€‹, I see that you sent me a message through this platform, I just can't open it.  Feel free to send it to swilliams@copdfoundation.org

4 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question Time for Medicare annual enrollment

netmouse, you are so engaged in these issues and topics! I love it! You are a State Captain, you just haven't enrolled yet! Thanks for posting this!

4 hours ago

JeanO53

JeanO53answered the question Does anyone have any tips on purchasing my own portable O2 machine?

Hi Gordon The Pulmonary Paper is an excellent source of information. The site includes a POC comparison chart at the link below. Hope this helps answer some of your questions. https://www.pulmonarypaper.org/portable-oxygen-concentrators-comparison …

4 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTTuesday Tunesday!
Today's tune is brought to you by LFAOMGAโ€‹โ€‹ - As described in an earlier post it is "hauntingly beautiful"!๐ŸŽต๐ŸŽถ๐ŸŽต
https://youtu.be/sJxreWm7p1w


Drop me some more ideas for future Tuesday Tunesdays below!

"Yellowstone Theme" LIVE by Brian Tyler

Brian Tyler conducing the London Philharmonia at Royal Festival Hall. #Yellowstone soundtrack available on Sony Classical Music available here: https://Sound...

4 hours ago

Jimmy S

Jimmy SGood Morning and Happy Tuesday. It can sometimes be difficult to find courage when we need it the most.
Did you know that our thoughts have a significant impact on how we feel
and what we do? If we think about our failures and our weaknesses, we
may begin to feel weak or insecure about ourselves. Controlling how we think isn't always an actionable and realistic plan.
Instead, we have to learn to pay attention to our thoughts and our
dreams and find the courage and bravery we have within. Think about all
the regrets you will have if you don't muster up enough courage to do
something or say something. โ€œStrength does not come from winning. Your struggles develop your
strengths. When you go through hardships and decide not to surrender,
that is strength.โ€ โ€œMy strength did not come from lifting weights. My strength came from lifting myself up when I was knocked down.โ€ You can't let this disease knock you down; and we all know that is real easy to do when dealing day after day after day with it. โ€œThe struggle of youโ€™re in today is developing the strength you need for tomorrow.โ€ Life is full of peaks and valleys. Strength will help you reach the
peaks, and courage will give you the resilience to start climbing again
when you hit the next valley. Strength and courage are two essential habits of success, that will help you succeed at just about anything you do in your life.  Hope your having a great day so far.๐Ÿ˜Ž

5 hours ago

JeanO53

JeanO53commented onWhat is the Difference Between Emphysema and Lung Cancer?

 Whether or not you should be exercising is a discussion you should have with your pulmonologist. When I was first diagnosed with COPD, I was exhausted all of the time. I was given supplemental oxygen to use 24/7 and that helped some, but not a...

5 hours ago

Lorrie

Lorrie

Good mornin Sunshine hope y'all are havin a Great start to your day.  Stay cool and calm today.  Well here I go again , checkin somethin else off my list of tada's the second part of the Sleep study tonight. This is goin to be the hardest part of it , wearin the CPAP or Bipap and also havin to fall asleep,  so today im goin to wear my ole butt out. I don't wanta fail and not sleep cause ya know what? That means I would have to try again and would be missin out on 3 blessed nights with all my Loven Sleep buddies by my side,  2 nights without them is enough and I don't ever to it again.  Y'all have a Great day.  And please pray that this goes as planned. 
Your friend 
Lorrie ๐Ÿ˜‰

6 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Can anyone tell me about the name of drugs Used to treat for COPD?

There isnโ€™t one type of medication to treat COPD and you should never take anything that a pulmonologist hasnโ€™t prescribed for you. This link breaks it down by type of COPD medications. The question is, which one or which combination will work for you. …

7 hours ago

netmouse

netmouseasked the question: NO to vaping CBD oil

There is a post here about people vaping CBD oil. DO NOT DO THIS. YOU SEE IN THE NEWS THIS SEEMS BEHIND THE DEATHS THAT ARE HAPPENING.

8 hours ago

netmouse

netmouseasked the question: Time for Medicare annual enrollment

October 15 to December 7 is the window to enroll in and change a Medicare Advantage health plan or Part D drug plan. These have no underwriting and anyone can be enrolled. To find the low cost Drug plan for you, click this Medicare website link. You can …

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

@LandB55 
The feeling is mutual! You lift our spirits every single day. Thank you for being here! ๐Ÿ˜

9 hours ago

timothy78

timothy78answered the question Can anyone tell me about the name of drugs Used to treat for COPD?

You have to search on the internet about COPD medication than You will get it your query.

9 hours ago

milton2203

milton2203answered the question What are some good resources for Medicare, to get best plan for ME?

On the internet, much more online health organization are doing business with a good strategy. You may take help with this organization. it is good for you.

9 hours ago

Maureen61

Maureen61

Had my flu pnumonia jab today my nurse still insisting not everyone progresses??? I am confused 

9 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Carolineโ€‹~~~ I was out and about early Sunday morning. Saw this, and thought of you! ๐Ÿ˜Š

9 hours ago

williamdam

williamdamanswered the question Medications from All Day Chemist in India

I have not bought my prescription from here.

9 hours ago

williamdam

williamdamanswered the question Can anyone tell me about the name of drugs Used to treat for COPD?

hello milton2203 ... If you looking for the medication to treat for COPD. So here the list of some medication which reduces all the symptoms of COPD. But first of all, you taking this medicine firstlly ask your doctor then take it safely. Without …

10 hours ago

williamdam

williamdamanswered the question Does anyone have any tips on purchasing my own portable O2 machine?

You may go on the internet and buy the best portable O2 compressor for your use.

10 hours ago

williamdam

williamdamanswered the question Can COPD be diagnosed by only CT Scan?

No, it depends on your COPD stage. and your medical advisor suggests you can what you do.

10 hours ago

milton2203

milton2203asked the question: Can anyone tell me about the name of drugs Used to treat for COPD?

Can anyone tell me about the name of drugs Used to treat for COPD?. Because I want to know which medication help to treat COPD.

11 hours ago

tomtom

tomtom answered the question 90-95 saturation without O2

Thank you all. It makes more sense now. I wasnโ€™t trying to say Iโ€™m cured and I can sell my Inogen. I was looking for some simple explanation and I got it thank

14 hours ago

tomtom

tomtom

Thanks Bill thatโ€™s encouraging 

14 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

1:30 am at the store waiting for our truck, long day today, I am off tomorrow and counting down to my PFT @ 7:30am Wednesday. I definitely think its going to go well! I know in my heart and soul that quitting smoking a month prior to my first PFT 3 years ago along with diet and exercise everyday has paid off. We are losing 3 managers this week 1 full time and 2 part timers with no replacements in the near future. 

14 hours ago

Emphysema mike

Emphysema mikecommented onWhat is the Difference Between Emphysema and Lung Cancer?

 I hate to hear that your husband has severe emphysema,,I have it too I've had it since 2016 ,it messes with other parts of your body the right side of your heart I get out of breath when I bend over. I liked the article I think emphysema is worse...

15 hours ago

Emphysema mike

Emphysema mikecommented onWhat is the Difference Between Emphysema and Lung Cancer?

 My lung doctor has not told me what stage I'm in, I don't think she has, or I either forgot or I've never asked her I don't think I have. WHAT STAGE OF COPD IS WHEN YOU HAVE LUNG INFECTIONS AND PNEUMONIA AND ARE OUT OF BREATH WHEN YOU TAKE A SHOWER...

16 hours ago

Emphysema mike

Emphysema mikecommented onWhat is the Difference Between Emphysema and Lung Cancer?

 I applied for disability in June of 2018 because of my severe emphysema and chronic bronchitis and copd I had a breathing test in February of 2017 I don't know what the results are I have copies of my medical records and will have to look at the time...

16 hours ago

Emphysema mike

Emphysema mikecommented onWhat is the Difference Between Emphysema and Lung Cancer?

 Thanks for the advice. I have a Question for everyone, I, will be 58 years old September 22,I have smoked for 42 years, I have had severe emphysema for 3 years I've been hospitalized 5,times with lung infections and I was hospitalized for 6 days in...

17 hours ago

Schallen

SchallenPUTTING THE BRAKES ON LUNG DISEASE


Researchers have uncovered a molecular pathway that can be blocked to potentially prevent the destructive inflammation of chronic obstructive pulmonary disease, a major worldwide killer.
 
https://pursuit.unimelb.edu.au/articles/putting-the-brakes-on-lung-disease

Putting the brakes on lung disease

Monash University and University of Melbourne researchers discover a molecular "brake" for lung disease that may be a way to prevent the disease progressing

17 hours ago

Rachel_A17

Rachel_A17answered the question Hemp oil, CBD tincture

Have you ever felt sick to your stomach after takingCBD oil?

17 hours ago

Kenny A.

Kenny A.answered the question Mild upper lobe scarring and paraseptal emphysematous changes

Good Evening Mandih Please don't panic , you need to be at your best with your appointment is with your pulmonologist tomorrow ( You Rock I waited 4 months ) So see you already have plan , but get all the information before you waste time worrying. …

17 hours ago

Gordon Brigham

Gordon Brigham asked the question: Does anyone have any tips on purchasing my own portable O2 machine?

Just looking for any tips on purchasing portable O2 compressor for daily travel and also vacations. I have this big home one with a compressor for filling tanks, but those tun out pretty quickly. It's adversely affecting my social life, lol.

18 hours ago

JeanO53

JeanO53answered the question Mild upper lobe scarring and paraseptal emphysematous changes

Hi Mandih I'm not sure if I can ease your mind. I can tell you that you are in good company here. Many of us, when first diagnosed, experienced anxiety about what it all means. It's good that you are going to see a pulmonologist, and very lucky to see …

18 hours ago

Mandih

Mandihanswered the question Can COPD be diagnosed by only CT Scan?

Thank you so much Kenny A. I pray you are feeling well these days.

18 hours ago

Mandih

Mandihasked the question: Mild upper lobe scarring and paraseptal emphysematous changes

hey new friends - I am really in a state of panic. I was in a car accident and coincidentally my CT scan showed Mild upper lobe scarring and paraseptal emphysematous. My PCP then sent me for an xray as well. She said the scarring is very mild (i think i …

19 hours ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.