COPD360social welcomes new member Dave Blanco who joins 65,267 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒท Happy Motherโ€™s Day to all the moms, bonus moms, caregivers, daughters, grandmas, neighbors, and those amazing people who somehow always know where the tissues, snacks, medications, chargers, and โ€œmissingโ€ reading glasses are. ๐Ÿ˜„

In the COPD community, โ€œmotheringโ€ often looks a little different. Sometimes itโ€™s helping someone with oxygen tubing that decided to tie itself into a sailorโ€™s knot. Sometimes itโ€™s reminding a loved one to slow down and rest. Sometimes itโ€™s sitting quietly beside someone during a hard breathing day and simply being there.

Today we celebrate the people who show up with love, patience, humor, strength, and the occasional โ€œDid you remember your inhaler?โ€ from across the house. ๐Ÿ’™

And for those missing their moms today, or carrying a mix of emotions, weโ€™re holding space for you too.

Thank you to every person who steps into that caring role and helps make life feel a little lighter, safer, and more hopeful.

๐ŸŒผ Happy Motherโ€™s Day from all of us at COPD360social
โ€” and may your weekend include good company, warm memories, plenty of laughter, and oxygen tubing that behaves itself for at least one full day. ๐Ÿ˜„

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Posted on here 3 months ago, update with new improved spirometry, still have symptoms.

Your lung function is pretty good. Dupilumab ( and other biologics) tend to be reserved for people who are still highly symptomatic or impaired. You could always ask- but insurers who pay for this usually have pretty stringent criteria.
HIcopd - Hawaii State CaptainKaren Deitemeyer - Florida State CaptainCaroline West Virginia State Captain also answered the question HIcopd - Hawaii State Captainand 2 others also answered the question

4 hours ago

Dinna25

Dinna25answered the question Not a question just a Hello

Hi Wildebeest Pleased to hear your now getting the help, I was given Trimbow from day one have never had to ask for a change, hope it works as well for you. And you get those exercises bk on track.
WildebeestCaroline West Virginia State Captaindas23and 2 others also answered the question Wildebeestand 4 others also answered the question

5 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question What can I do now, to help future me?

As noted- Learn as much as you can and control what you can (exposures like smoking and vaping, exercise, diet, vaccinations). It would be helpful to learn a bit more about your, your history, your lung function tests, symptoms, etc. Everyone is …
DebbieB.-Connecticut State CaptainKaren Deitemeyer - Florida State Captaindas23 also answered the question DebbieB.-Connecticut State Captainand 2 others also answered the question

5 hours ago

BlueSky

BlueSkyasked the question: What can I do now, to help future me?

Newly diagnosed Stage One but symptomatic. I know everybody is different, but I have no idea what to prepare for health wise and how my abilities might change, or not. Is there any stand out thing(s) that others are pleased they accounted for earlier, …

10 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

Happy Mother's Day! (click on the link to see the card)
https://bmacards.com/3n18xp

12 hours ago

BlueSky

BlueSky

Hello All. I am just navigating my first few weeks with a COPD diagnosis. Stage One spirometry. Emphysema and scarring on CT. Lung nodule under observation.  My breathlessness has been considered 'mild asthma' for my whole adult life and a dust allergy as a child. As a non smoker I didn't even consider COPD ever being 'a thing'. Its a bit of a lonely one. I work in a pharmacy health care setting so very difficult to avoid respiratory infection which apparently is my main way of slowing progression, along with exercise and my new Anoro inhaler.  Anyway, thanks for reading, Im hoping to feel less adrift with this diagnosis. 

19 hours ago

Danforth55

Danforth55

I had by twice a year visit with my pulmonologist this week. We di a lung ct scan and breathing test in the fall and a breathing test in the spring. Three years ago a scan indicated mild centrolobular emphysema though we couldnt see anything on the scan. My recent breathing test put my fev1/ fvc % at 64. It was 67% three years ago. I am 67. He said it should be higher than 70% at my age. So I have a diagnosis of stage 1 mild copd according to gold standard, and interstitial lung disease since the scan does shiw some scarring. But no medication. I feel normal, have no symptoms. I do another scan in November. 

23 hours ago

das23

das23

Happy Mother's Day to all the 360 Moms

23 hours ago

Lucy k

Lucy k

Oh wow I am so happy I have found you all.  I feel less alone. I live in Wellington New Zealand.  I have severe COPD  but try to stay positive. 

1 day ago

mebeal321

mebeal321asked the question: Posted on here 3 months ago, update with new improved spirometry, still have symptoms.

Hi all, posted on here 3 months ago with my pfts, both of them from last year, one in June 2025, one from November 2025. My new pft (April 2026) is looking much better, though i still remain symptomatic. I am being treated by an allergist, taking …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Hope your day is filled with reasons to smile! ๐Ÿ˜€

1 day ago

NgR

NgRanswered the question Tiova vs. Spiriva Inhalerโ€™s

Tiova is in powder form and require a strong pull to draw the powder from the inhaler to reach the lungs, which is not possible by a copd patient. So all of the 9mcg will not be possible to inhale. Even a normal person cannot inhale 9mcg, this is due …
AnonymousBill Clark - Community Manager also answered the question Anonymousand 1 other also answered the question

2 days ago

perkyH

perkyH

i have the valvaes also

2 days ago

lazy t

lazy tanswered the question Long time copd patient with cronic hiccups! How to fix it.

Thank you so much for the advice! My pulmonologist prescribed medication, and my annoying hiccups are gone! I no longer need safety glasses to put on my hearing aid! lol (just try putting on your hearing aid in the middle of a hiccup event!) Good things …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โžก๏ธEASY COLD SESAME NOODLESโฌ…๏ธ12 ounces whole grain spaghetti 1/2 cup creamy peanut butter 2 tbsp. lower sodium soy sauce1 tbsp. seasoned rice vinegar 1 tbsp. toasted sesame oil 1/2 tsp. garlic powder 1/2 tsp. ground ginger 2 tbsp. warm water, plus...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday, friends! Today, we have one of my bestest outdoor buddies-Chippy! ๐Ÿฟ  This little guy loves nothing more than collecting peanuts and filling his pouches! ๐Ÿฅœ 
We wish you a pleasant, easy breathing day! ๐Ÿ˜Š

2 days ago

Carola.An

Carola.An

My seasonal allergies are a bad influence on my COPD. 

3 days ago

perkyH

perkyH

TERRRIFIC since i had lung reduction surgery.....

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I'm feeling very happy today.  I finally have found an outfit to wear when I am a presenter at the ATS (American Thoracic Society International Conference) in Orlando, FL in just a little over a week.  Living here in Florida, and being retired, I don't have many "business casual" clothes in my closet, since I doubt that capri's and sandals count, LOL.  And I didn't want to wear my black suit that I wear when I go to DC, since it's too hot to wear in our weather here.  And not only did I find an outfit, it was on sale ๐Ÿ˜

3 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Why o2 fluctuating never still for long

Probably not related to dupixent. Pulse ox levels can vary for many reasons. This could be related to circulation, quality of the oximeter in addition to what is happening in your lungs. I like my patients to use pulse oximeter that measures pulse wave …

3 days ago

Oral walker

Oral walkerasked the question: Why o2 fluctuating never still for long

Good afternoon...my question is my o2 sat at rest is usually at 94-95 at 4 liters,but for the past few day its been fluctuating up and down from 86-95 never staying still,can someone tell me anything about it,i was put on dupixen monday can that be the …

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I had a wonderful visit with my pulmonologist yesterday. I think that it took me until this evening for the full force of what he said hit me. He wants me to see if I can wean myself off oxygen. He said he can tell I do the things you are supposed to do, like exercise, stay active, eat well, and keep a positive attitude.


My FEV1 has improved by a lot.  More than ever, I want to let everyone know to just "keep on keepin on."

3 days ago

Dinna25

Dinna25asked the question: Not a question just a Hello

Hi all I not been on for a while but thought I'd just say Hello. No changes with me more good news thought I had Apnea which is common with COPD but no all normal my sinuses mimicking symptoms. Now the weather getting better getting out more back on my …

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธโœณ๏ธVEGGIE RELISHโœณ๏ธโœด๏ธ1 cup chopped dill pickles1/2 cup chopped red onion1/2 cup chopped yellow bell pepper 1/2 cup chopped orange bell pepper 1 medium cucumber, chopped 1/2 cup frozen corn kernels, thawed 1/2 cup cider vinegar 1/2 tsp. dry...

3 days ago

Crazybird

Crazybird

Ok so i was diagnosed with COPD 2021, have had medication for it for the last 5 years. Had to have a lung function test yesterday, then see a new dr at the hospital. He said i havent got copd or asthma, it could be an allergy of something like grass, cats, pollen, etc. If thats the case why have i been taking medication for it, and to be told yesterday to carry on taking it??

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday! Nothing but smiles here! ๐Ÿ˜ƒ
Start your day in a happy way! So much to look forward to! Enjoy every minute, friends! ๐Ÿ˜€

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.