Piwo

Piwoanswered the question 2nd opinion

Visit was pushed off to Febuary but will post how the visit went. Ended up going to my local doctor and was put on medication for the copd,so rather wait to be off the medication when i see the Mayo doctor. Thanks for asking though

3 hours ago

Ben A

Ben A

And now the STAGNANT AIR ADVISORY for PDX has been extended to Tuesday.


This is not good.  I've got stuff outside the house I need to get done....



7 hours ago

bobboberson

bobbobersonanswered the question How to deal with anxiety when you have to do a certain test?

When it comes to anxiety Valium is my best friend.

8 hours ago

Missy B

Missy B

Hello,  I am Missy B.  It is a nickname my husband calls me.  I have severe COPD.  I am very good at rescue breathing and check with my Pulse Oximeter whenever I am feeling short of breath.  I also log on with my phone to Temple Hospital COPD Co-Pilot program every morning answer about 5 questions, rate the severity I am feeling and then do 3 big breaths through my Peak Flow Meter the highest # I enter is recorded.  I send in the results and they occasionally give me recommendations like to use my Ventolin inhaler.  They have called in antibiotics to my local pharmacy several times.  I feel like they see an issue coming before I do!
        I can't find the post but someone asked about where they could get less expensive Symbicort.  My regular doctor gives me a card every year.  The pharmacy scans the card and my Symbicort is free for the year!  I am on my second card.   He also gives me free samples of Spiriva Respimat.  Ask your doctor he may have free samples or the Symbicort card. 

9 hours ago

Piwo

Piwo

Just curios, got my third appointment with Mayo clinic coming up in early Feb. for a different opinion. Has anybody else gone this route and what was your opinion? Was really impressed with them but they are about 350 miles away which makes things a little difficult

9 hours ago

muddleaged

muddleagedanswered the question How to deal with anxiety when you have to do a certain test?

I don't have anxiety with this test partly because I have done it before and I survived. Also, I remind myself that I am in a medical facility, and they probably have experience with what could happen, and there are lots of people in shouting distance …

9 hours ago

Bill Clark - Community Manager

Bill Clark - Community ManagerI thought a little humor might brighten up a cold wet day!

11 hours ago

DarJC

DarJC

Doing pretty good. I am using Nedi bottle to keep nose clear. Staying active doing chores. Some exercise like stairs and hopefully some bending putting up my allergy free Christmas tree. Notice I blew my diet during Thanksgiving and my blood sugar is off. I am a non insulin dependent Diabetic. but I hit a 252 and in that range for about 3 days....working on it. I am feeling disappointed...considering I had drop double digets on my  cholesterol and blood sugar.

11 hours ago

Kristen Willard

Kristen Willardanswered the question How to deal with anxiety when you have to do a certain test?

Darla has given you great suggestions. I would tell my doc and the people doing my testing just how much anxiety this caused me. I have to remind myself sometimes that others must experience what I do, so this is not the first time the healthcare …

13 hours ago

Kristen Willard

Kristen WillardHappy fluffy Friday from Gimlet! Gim had surgery this week to reduce the size of a cancerous tumor in his mouth. They are unable to cure it so we are going to do what we can to keep him happy and doing all the things Gim loves to do (e.g., sleeping, eating hamburgers and cat food, taking long walks around DC, sleeping some more.) Here he is looking extra cute before his anesthesia finally wore off. 

13 hours ago

Piwo

Piwo

Still new at this but received 5 nucala shots with seems like no better breathing results, gonna try to exercise more but right now is just tough to do cause of the SOB. Like I said, new at this and I dont know if im in the right forum 

14 hours ago

Ken Benson-Ca. state captain

Ken Benson-Ca. state captainDr. Barry Make provides an overview of how these new COPDGeneยฎ 2019 criteria differ from current criteria and how it will be important to both clinical care and research. https://journal.copdfoundation.org/jcopdf/id/1260/COPD-A-New-Diagnostic-Paradigm?utm_source=PRAXIS+Buzz+12%2F3%2F2019&utm_campaign=+e-Newsletter&utm_medium=email

14 hours ago

Ken Benson-Ca. state captain

Ken Benson-Ca. state captainhttps://www.cnn.com/2019/12/03/entertainment/willie-nelson-no-smoking-trnd/index.html

Willie Nelson says he has stopped smoking because it almost killed him

Willie Nelson announced that he is no longer smoking due to ongoing health and breathing issues.

17 hours ago

H3lp8nghand

H3lp8nghand

๐Ÿ˜Š Hi everyone. I'm sure I'll be happy here. Hope all have a good day. Looking forward to making new
Friends. Have interest in COPD. 

19 hours ago

timothy78

timothy78answered the question Tell me the effective Drugs name for my Anxiety disease?

Hello milton22, If you looking at the Anxiety medications, so I think you have to try to click on this given medication link for Anxiety. But you have tried to ask your doctor so it is good for you. A nxiety drugs (Like- Prozac , Lexapro , …

19 hours ago

joshep

joshepanswered the question Tell me the effective Drugs name for my Anxiety disease?

you have to go on this link: https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Depression-and-Anxiety-medications-in-someone-with-COPD.aspx Because other members already talking about Anxiety medication. You have to go with …

19 hours ago

joshep

joshepanswered the question Depression and Anxiety medications in someone with COPD?

I am agrre with heidiweber these medication is best for Anxiety.

19 hours ago

joshep

joshepanswered the question I am a victim... I am hunted in fraud.

Oh, PF1... Please, you have to buy your prescription medication via PharmacyChecker accredited online pharmacies. It is safe in the USA for your prescription.

19 hours ago

joshep

joshepanswered the question I am thinking about, how to save on my prescription in the USA?. anyone help

If you want to buy low price prescription medication in the USA so you may check all the Accredited online pharmacy from the given link: https://www.pharmacychecker.com/online-pharmacy-ratings/ And you can also buy safely prescription medication.

19 hours ago

joshep

joshepanswered the question I am looking for an affordable Online Pharmacy USA for my Spiriva.

You have to go with this Link: https://www.medsengage.com/products/spiriva-rotacaps.html In this link, you may know about the Spiriva and buy safely from an Accredited online pharmacy.

19 hours ago

joshep

joshepanswered the question Anyone help to buy Generic Cialis from an online pharmacy in the USA?

I agree with Msrtinchris78 because I have also bought my Advair Rotacaps. This is the best Canadian based online pharmacy. You have to go with MedsEngage. it is safe and reputable.

19 hours ago

milton2203

milton2203asked the question: Tell me the effective Drugs name for my Anxiety disease?

Anyone can tell me about the best medication for my anxiety and where can I buy at the Lowest Price in the USA?. Because in the USA medication cost is very expensive.

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Happy Fluffy Friday!!! Today we have Jerry, kitten brother to my little Punkie. Jerry is my sister's little boy. Jerry is showing us how to recycle paper bags the right way...๐Ÿ˜น

20 hours ago

MM4

MM4answered the question How to you monitor your COPD

I have an oximeter to monitor o2 sats frequently through the day since mine like to drop when im active, which is most of the day. Lol In the last few months especially with what seems to be changes in my "normal" im tracking it even more to see if i …

1 day ago

edpe77

edpe77

Yes I'm feeling better. Went to PCP yesterday. We talked about my concerns, he decided to do a number of blood tests. I'm perfectly healthy??? I guess better safe than sorry. Perhaps I went at the end of whatever was bothering me the past month!
ed

1 day ago

DarlaBee

DarlaBeeanswered the question How to deal with anxiety when you have to do a certain test?

margarita colon, I would definitely tell my doctor about this! I hate that test, too, and I agree it's hard. I get confused and huff when I should burst, etc. so it takes me twice as long as it should. The concern I have is whether a medication would …

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question Which is better, a POC or B size tanks?

When you to go your pulmo next, ask for this RT. Show her this comparison chart: https://www.pulmonarypaper.org/portable-oxygen-concentrators-comparison-chart-2019/#pulse If she can read, this ought to let her know that she's dead wrong. Ryan Diesem is …

1 day ago

margarita colon

margarita colonasked the question: How to deal with anxiety when you have to do a certain test?

Hi I have really bad anxiety knowing that I need to schedule my spiro lung test . I did one a year ago, and it was hard and I felt like I was going to pass out and like it was hard to breathe. So becouse if that I am scared to do it again . So just …

1 day ago

ksuzn

ksuznanswered the question Willie Nelson has COPD ?

I saw him and thought wow, he is really having a problem and looks much more aged since I last saw him. Something was floating around on the internet that he is quitting the weed. Well, that's a start!

1 day ago

margarita colon

margarita colon

Hi 


I have really bad anxiety knowing that I need to schedule my spiro lung test . I did one a year ago, and it was hard and I felt like I was going to pass out and like it was hard to breathe. So becouse if that I am scared to do it again . So just thinking about having to do it makes me have anxiety like hard to breathe . How can I help this from happening. I think I might ask my regular doctor if you can prescribe mean anxiety medication and see if that will help me.

1 day ago

ksuzn

ksuznanswered the question Hyper inflated lungs-anyone else was diagnosed with COPD

Hyper inflated lungs comes up a lot in my x-rays so I looked it up and found other conditions that can cause them. Hypersensitivity pneumonia being an example, or allergic asthma. Some of these things are reversible if it's not straight forward Copd. …

1 day ago

ksuzn

ksuznanswered the question How to you monitor your COPD

Doc's for some odd reason never suggested an action plan after my dx. I have one downloaded to fill out a specific plan on my own. I do monitor my symptoms if there is a dramatic change, as in chest tightness, pain, and breathlessness. That usually means …

1 day ago

ksuzn

ksuzn

Hi everyone, been a while as usually is the case with me. Feeling better breathing wise today. Still having recurrent infections and trying to get over a new one. Have a little more info from scans and tests.  Ct scan revealed mild bronchiectasis, emphysemetatious (sp) changes, mild fibrosis, lung nodule and some pneumonia areas. That was early spring. PFT results gave me dx of moderate stage 2 copd with some reversibility. Not surprising about the reversibility since had allergy testing and my chief complaint was asthma attacks. I do have some high blood eosinophils from time to time.  I'm on Dulera, albuterol neb and rescue inhaler. I've been maintaining, but no great improvement other than being more educated and I know what i'm dealing with to make lifestyle changes and avoid triggers.


I want to thank everyone here in being so helpful on this site to provide such great information and support while dealing with your own health issues.  Breathe easy folks.

1 day ago

dongwcox

dongwcox

Hi, I was just diagnosed by a simple x-ray with moderate or stage 2 COPD with Emphysema. Other than this cold I have, I feel fine right now.  I am only 56 and smoke e-cigs occasionally but I do smoke cannabis daily. I'll be switching to edibles today and from now on, no more e-cigs. I am scared at the survival rates and can't believe this is only going to get worse and that I could very well die within 5-8 years! I can't even begin to comprehend this. I thought of going back to school and start a second career! Who am I kidding!

1 day ago

judg69

judg69answered the question Which is better, a POC or B size tanks?

Ed, the maximum you are getting out of your pulse dose portable poc is likely in the range of 1.0 lpm , period.This is true whether or not it has 3 settings, 5 settings or infinite settings. You are dealing with a closed minded idiot RT at your provider. …

1 day ago

Ben A

Ben A

Another STAGNANT AIR ADVISORY in Portland, OR through Friday night.


Weird weather in PDX this year.....

1 day ago

edpe77

edpe77asked the question: Which is better, a POC or B size tanks?

I'm now using more O2 than I did a year ago, typically 3lpm. When I crank up the POC to a setting of 3 or 4, the battery lasts less than 2 hours, while the tank set to 4 would last over 3 hours @20 breaths/min. So I called my provider, asking for more …

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Hyper inflated lungs-anyone else was diagnosed with COPD

That is what lead to my COPD diagnosis but the spirometry test is what gave me my conclusive diagnosis. That was done as part of a full pulmonary function test (PFT). Regardless of your diagnosis, just know going in that if you adopt a healthy …

1 day ago

K STEELE

K STEELE

โ˜บ Thanks for your responses. Trying a different pulmonologist
May be best option. I only know
One sleep therapist and she is not a
Medical doctor but a psychologist. 
My insurance limits my options and
Transportation is an issue. I'll run it
By staff and see if I get any help.
Kaya ๐Ÿ˜‰

1 day ago

JeanO53

JeanO53

I got back home from my trip to Maryland on Tuesday.  It was wonderful spending time with family; something I plan to do more often.  It's always bittersweet leaving, especially the grandkids (who seem to grow and change in the blink of an eye), and yet it's good to be back home.  
     Unfortunately, I picked up a cold along the way,  No one was sick where I was staying, so I'm fairly certain I caught it on the train trip.  I've been miserable ever since I got home; sneezing, coughing, runny nose, headache. Talked with my pulmo doctor; since my symptoms sound viral, she advised plenty of liquids, chicken soup, green tea, vitamin C and rest, plenty of rest. Happy to say no fever and it's not affected my breathing, but am keeping a very close eye on both.
     I'll share information about traveling via Amtrak when I'm feeling better.  It definitely had it's pros and cons.

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question How to you monitor your COPD

This disease impacts people so differently for a lot of different reasons. Some people have frequent acute exacerbations (AECOPD), others do not. Some people have poor O2 diffusion, others donโ€™t. Some have multiple health issues but not everyone. Some …

1 day ago

Kristen Willard

Kristen Willardanswered the question Hyper inflated lungs

I am not a physician but chest x-ray can show hyperinflated lungs which are one manifestation of COPD. You will be given pulmonary testing at the pulmonologist (at a minimum spirometry) which is the definitive way to diagnose COPD. Glad you found this …

1 day ago

Community Announcements

Community Announcementsadded a new article How much do you know about NTM lung disease and itโ€™s connection to COPD?

How much do you know about nontuberculous mycobacteria (NTM) lung disease and how people living with COPD can be more susceptible to the disease? These informative new videos will help you learn more about NTM lung disease and what steps you can do to limit exposure. Our expert speaker, Dr. Pamela McShane, provides valuable insights on the causes and signs of NTM lung disease as well as information about how those with the disease can participate in a research registry designed to increase knowledge of NTM lung disease

...

1 day ago

Cami44

Cami44asked the question: Hyper inflated lungs-anyone else was diagnosed with COPD

Via a chest X-ray I was diagnosed with both lungs being โ€œhyper-inflatedโ€. I see a pulmonologist in the next two weeks, but was curious as to if anyone else was diagnosed with COPD with hyper-inflated lungs? My only problem is going up and down steps and …

1 day ago

hydekmvc

hydekmvc

Good morning everyone! I have been diagnosed with mild emphysema and am currently on a daily steroid inhaler.  My symptoms are very well under control.  My employer just told us yesterday that we are changing to a HSA insurance.  When I looked up the price of my medicine it is over $500 a month, $347 with "coupon" from Good Rx.  I simply can't do it as a single earner and helping out my mother financially as well.
Does anyone have an advice on other types of medications that are worth talking to my doctor about?
Thanks in advance!

1 day ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.