COPD360social

For a decade, the COPD Foundation has provided a growing COPD community with resources and education. Now we want to take our work to the next level. We want to hear from YOU daily.

Welcome to our interactive, collaborative community: COPD360social. You can join us and other friends, learn about events in your area, participate in research, chat with the experts, and learn how to take action -- all on your time, at your pace. COPD360social is the COPD Foundation's way of saying 'Thank you' to a community that can make the world take notice of a silent epidemic.

Join COPD360social, because we are stronger when we work together.

Create your COPD360social profile today!

-

Danny74

Danny74received the badge Getting started

Earned the Getting started badge!
Rachel_BergLoretta88marelindand 25218 others also received the badge Rachel_Bergand 25220 others also received the badge

24 minutes ago

Rachel_Berg

Rachel_Bergasked the question: life expectancy? just found out my father has COPD?

I know I need to just educate myself properly on the subject, and I will. But I'm hoping someone can just answer this vague question in the meantime. I just found out my father has COPD. I don't know the stage, but maybe it's not so advanced--he seems …

37 minutes ago

Ken Benson

Ken Benson

The 5 goals of the COPD National Action plan are:
   Goal 1: Empower patients, their families, and caregivers to recognize and reduce the burden of COPD
   Goal 2: Equip health care professionals to provide comprehensive care to people with COPD
   Goal 3: Collect, analyze, report, and disseminate COPD data
   Goal 4: Increase and sustain COPD research
   Goal 5: Turn COPD recommendations into research and public health care actions

2 hours ago

Kristen Willard

Kristen WillardDoes anyone know anything about this program or have you used it? https://familywize.org/prescription-savings-card/how-it-works I see that they partner with the United Way and that there are no enrollment restrictions. There are also FAQs here: https://familywize.org/resources/help-faqs

2 hours ago

clipper

clipperI spotted this and wanted to share.


http://www.rtmagazine.com/2017/05/nearly-500-join-ats-rally-washington-dc/

3 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTWell,  we got child #4 graduated this past weekend. 4 down 1 to go ๐Ÿ˜Š๐Ÿ˜Š.  We still have a while before the last one, though. My youngest one is keeping me sane right now since my nest is getting pretty empty...

3 hours ago

Karen Deitemeyer

Karen DeitemeyerWoo Hoo!! We're over 30,000 members now!!   Welcome to COPD360Social!!


If you're new, you may not know about the COPD PPRN (Patient Powered Research Network), which is a secure research registry that's operated and governed by groups of patients and our partners. The information will be kept in a secure database to be used for research โ€“ ultimately leading to a deeper understanding of the disease, and hopefully, a cure.


Here's a link with more information - I hope you'll join us:


https://www.copdpprn.org






3 hours ago

Karen Deitemeyer

Karen Deitemeyervoted on Lung Transplant Tips: "Be Realistic, do your research, stay positive"

Gave a thumbs up for a COPD Digest Magazine article!

4 hours ago

ken

ken

Great Day warm weather and I am lucky enough to be part of the Vietnam mobile wall escort.

7 hours ago

Fabiana Talbot

Fabiana TalbotWeโ€™re joining the national effort to reduce the burden of #COPD. Learn how you can help at http://COPD.nih.gov . #COPDActionPlan

8 hours ago

Prieto74

Prieto74

Hello everyone. I came by to send a hug to all of you. ๐Ÿ˜Ž

8 hours ago

Made Pramana

Made PramanaI went to a mangrove forest this afternoon. I walked a lot and I released a lot of mucus too. Always feel good after releasing mucus. I've been feeling abdominal discomforts. Lots of bloating. 

9 hours ago

Bill66

Bill66

I've been reading reports on Statin's and COPD, most of the studies are abandoned or not completed, Statin's have some type of anti-inflammatory effect on the lungs? Let me know if there are any claims to this from personal use. Thanks Bill66

11 hours ago

hack

hackanswered the question Does anyone with COPD have really good breathing days and then the next day feel breathless again?

I just read all the answers and I seem to have a lot of them as well. The clasturophobic one gets me in elevators and on cold nights I used to go completly under the covers to warm up. I still can sometimes but more so just thinking about it scares me. …
judg69LouanneCindy lueand 5 others also answered the question judg69and 7 others also answered the question

17 hours ago

Kandy

Kandyanswered the question Headaches

Another thought have you had a sleep study done? Maybe ask your dr if you keep having these headaches and elevated Co2.
MASiddiquiHIcopd also answered the question MASiddiquiand 1 other also answered the question

19 hours ago

Kandy

Kandyanswered the question What's going to happen to my mom?

There are quit a few of us end stage and live and do daily activities . Can she go to a Pulmonary Rehab center and try to improve her lungs? Rehab will help the anxiety and all over help body and mind. If you don't use it you will loose it as the saying …

19 hours ago

Kandy

Kandyvoted on Maximizing Lung Capacity

Gave a thumbs up for a blog post!

19 hours ago

Kandy

Kandyvoted on Two Years Later... Julie Nimoy Remembers Her Dad

Gave a thumbs up for a blog post!

19 hours ago

Dara284

Dara284asked the question: What's going to happen to my mom?

My mom has end-stage COPD. She is 69 years old. She was diagnosed 5 years ago and it is progressively getting worse. She is on 4 LPM and on 02 24/7. I see the changes; breathlessness, memory loss, trouble sleeping, depression, anxiety, unable to …

21 hours ago

SillyBoo

SillyBoo

Hello I am new here. 58 year old female diagnosed 11 months ago

21 hours ago

SillyBoo

SillyBoovoted on Newly Diagnosed with COPD: How Will I Cope?

Gave a thumbs up for a blog post!

21 hours ago

SillyBoo

SillyBoovoted on Two Years Later... Julie Nimoy Remembers Her Dad

Gave a thumbs up for a blog post!

21 hours ago

HIcopd

HIcopdcommented onQuestion about Scooters

 Jean makes an excellent point as to how dangerous it is to be reliant on aids and allow our bodies and muscles to become deconditioned. We all know that conditioned bodies function and use O2 more efficiently than deconditioned bodies. Once you have...

21 hours ago

Jean

Jeancommented onQuestion about Scooters

 This is Jean, and the scooter has really helped me at both the conference in San Francisco last year and especially at the conference in Washington. This year my hotel was about .75 miles from the conference center, and while I could have walked...

1 day ago

Kristen Willard

Kristen Willard

Just home from the Lab Coat for Lungs Rally by the US Capitol Building. Participants gathered to rally for health care rights for their pulmonary patients and funding for science to cure lung diseases and improve the lives of all impacted. I left my phone at home, but hope you will take a look at the pictures on Twitter. Here is a great one -- so many braved the rain to have their voices heard! https://twitter.com/mischord/status/867137036708392961

1 day ago

tom  goeman

tom goeman

will  a   pet  scan  determine   if   I  have   ling   cancer?

1 day ago

tom  goeman

tom goeman

my  doctor   has  told   me  to  take   a  pet  scan    what  is  it?

1 day ago

George S

George Scommented onNewly Diagnosed with COPD: How Will I Cope?

 Advice to a newly diagnosed patient: Find a Pulmonolgy Rehabilitation Program, join it, and stay with it!!!!!!!!!...

1 day ago

George S

George Scommented onNewly Diagnosed with COPD: How Will I Cope?

 I found out I had COPD very gradually. . . . an allergy specialist said I was in a "condition" that would mean my capacity to breathe would decline more rapidly than for other people, but he didn't tell me any more than that. My regular physician,...

1 day ago

Bellabits

Bellabitsvoted on Maximizing Lung Capacity

Gave a thumbs up for a blog post!

1 day ago

Join Us on COPD360social

Sign In to Participate
Or register to become a member
3rd Leading Cause of Death

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.