COPD360social welcomes new member Jcrudup* who joins 64,607 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Monday check-in
Letโ€™s start the week together. Living with COPD can mean good days, tough days, and everything in between โ€” and however today feels for you is completely okay.

If you feel up to it, drop one word that describes how youโ€™re feeling, or share a quick thought about whatโ€™s on your mind. No pressure at all โ€” weโ€™re just glad youโ€™re here!

34 minutes ago

Davidgh

Davidgh

Good morning everyone.  For several years now I've worn an Apple watch (version 6).  What I like about it is that it records my oxygen saturation while I sleep.  The next morning I can look at my phone which shows my saturation throughout the previous night.  About every 30 minutes or so it takes a reading during the night, which ranges from the mid to high 90's.  I sleep with 3l of oxygen.  But what I don't understand is that as soon as I wake up, even before getting out of bed, I notice a pronounced shortness of breath.  I normally have to sit on the side of the bed for 5 minutes or so just to get my breathing under control.  Since I sleep well with high oxygen saturation levels, could it be something psychological that could be causing this?  Any opinion is appreciated. 

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”†"AMPED UP" TUNA SALAD๐Ÿ”†2 hard boiled eggs, roughly chopped One 6- ounce can tuna, drained1 small avocado, roughly chopped 1/2 cup Kalamata olives, halved1/4 cup chopped fresh dill3 tbsp. olive oil Salt and freshly ground black pepper to...

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, and Happy Groundhog Day! Let's see what the groundhog says this year! Will we see an early Spring?! Hmmmm...
Enjoy your day, everyone! ๐Ÿ˜Š

6 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Recurrent pneumonia, recent pneumonia and PFT results, hiatal hernia

das23 has given you great advice. I wanted to say welcome, but I am not qualified to give you an answer except to say that my encounter with double pneumonia that led to sepsis did cause permanent damage. The correct term for what I just told you about …
das23 also answered the question das23 also answered the question

11 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Confused

You heard it from one of the very best, if not the very best.
David Mannino, MD (Chief Medical Officer, COPD Foundation )Karen Deitemeyer - Florida State Captain also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

16 hours ago

Holla

Hollaasked the question: Recurrent pneumonia, recent pneumonia and PFT results, hiatal hernia

Hi folks! I've been a marathon runner for years but have been hammered by 3 pneumonias in past 3 years. I also had 2 pneumonias over 25 years ago but fully recovered. Most recently CT scan on Jan 9 showed bilateral multifocal, with glass opacities …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, my little chickadees! ๐Ÿ˜„ Wishing you all a pleasant, easy breathing day! ๐Ÿ˜€

1 day ago

DebbieS

DebbieS

My pulmonologist recently changed my meds to Trilegy. Does anyone else use it? What has been your experience? For me, besides the horrible taste,it seems to work fairly well.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday from the DebbieB. household and this adorable capybara! No worries here on 360Social! Lots of friendly people, and plenty of helpful information for everyone to enjoy! It's fun to learn here on our website! Smiles all around! Enjoy this mighty fine day, friends! ๐Ÿ˜€

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I made a huge mistake today: I bundled up and put my POC under my warm winter coat.  I pulled the hood up and tightened the chin strap nice and snug, grabbed my leather gloves, and headed out to fill the bird feeders.  Once I was halfway there, I became so short of breath, and then it dawned on me that I had forgotten my mask.  That cold air surely does restrict our airways.

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI just ran across this fascinating article:

https://arstechnica.com/health/2026/01/custom-machine-kept-man-alive-without-lungs-for-48-hours/?utm_source=join1440&utm_medium=email&utm_placement=newsletter&user_id=66c4caf15d78644b3ad1a50f

Custom machine kept man alive without lungs for 48 hours

Infections had turned his lungs to soup and had to be cleared before transplant.

2 days ago

ToGodBeTheGlory

ToGodBeTheGloryasked the question: Confused

I am a 50-year-old white woman, 166 cm tall. Post-bronchodilator spirometry shows: FEVโ‚: 90% predicted FVC: 103% predicted FEVโ‚/FVC: 69.03%, with a GLI LLN of 0.693 (using my physicianโ€™s GLI reference values, not GOLD) I FEF 25โ€“75: 64% predicted …

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Letโ€™s share a small win โ€” whatโ€™s one thing that made today a little easier? ๐ŸŒŸ๐Ÿ’ฌ

2 days ago

Jamie Jarrard

Jamie Jarrard created the event BronchandNTM360social Coffee Break - Wednesday, Feb. 11, 2:30pm Eastern

BronchandNTM360social Coffee Break - Wednesday, Feb. 11, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

2 days ago

Jamie Jarrard

Jamie Jarrard created the event COPD360Social Hour and Harmonica Play-Along- Wednesday, Feb. 4, 4pm Eastern

COPD360Social Hour & Harmonica Play-Along- Wednesday, Feb. 4, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

2 days ago

DebbieS

DebbieS

Just an update from the last time I posted. I was hospitalized July 3,2025 for 3 weeks. I had a blood clot in my lung and a pleural and pericadial effusions.  I also was diagnpsed with stage 4b lung cancer
 Since then it has been a whirlwind of appointments and treatment. Luckily, I was eligible for targeted treatment. I was also diagnosed with chronic Afib and heart failure.
Since I have started treatment there has been some improvement but also some setbacks.
I have a positive attitude toward all of this and am just going with the flow.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„EASY LENTIL SOUP๐Ÿฅ„1 tsp. olive oil Half of a small onion, finely chopped 1 carrot, finely chopped 1 celery stalk, finely chopped 1 garlic clove, mincedSalt and freshly ground black pepper to taste One 14.5-ounce can vegetable broth3/4...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Miyagi! For those of you who don't know her, Miyagi is my sister's kitten. 
Beauty comes in all sizes, shapes, and colors. Miyagi is a true beauty. All of our members and their pets are also true beauties! ๐Ÿ˜๐Ÿคฉ
Have an awesome day, friends! ๐Ÿ˜€

3 days ago

Sobearity

Sobearity

Sad and scared.  My father passed from copd and my mother today was told sheโ€™s moderate to severe. 
Besides what I read, I donโ€™t know what to expect except the worse as my father. 

3 days ago

Andre1138

Andre1138

I found someone who offered me a brand new Inogen G-5 oxygen concentrator and it is compatible with my 02 saturation levels (2 continuous) during exercise and 4 pulse. I'm totally aware of the situation warnings of purchasing a non prescription item. I'm wondering if it's possible because the prices are through the roof being on a fixed income. Any thoughts or suggestions? 

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Whatโ€™s something about COPD you wish others understood?

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿซ›๐Ÿง…VERY EASY PEAS & ONIONS๐Ÿซ›๐Ÿง…A good recipe to have on hand for times when you are stuck indoors, and can't get to the store. It's important to keep basics on hand during the winter. ๐Ÿ“One 16-ounce package frozen peasHalf of a medium onion, finely...

4 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Can someone please explain to me about the FEF25 75 category

The FEF 25 75 is a measure of small airways. It is highly variable, though, and is affected by factors such as expiration time. Your other values look pretty normal. Given your smoking history you are at risk for developing COPD in the future- but …

4 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Is anyone using Trimbow for COPD

Trimbow is not currently available in the US - but is a triple therapy similar to Trelegy or Breztri. It can increase heart rate ( which is true for any bronchodilator) - so one has to be aware of the potential for cardiovascular side effects.
Caroline West Virginia State CaptainDinna25UK Lynn also answered the question Caroline West Virginia State Captainand 2 others also answered the question

4 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Do liters matter? Help with oxygen and cpap from a fairly new user

I would like to second what HIcopd has told you. The bipap machine should help with the carbon dioxide retention. It sounds to me as though you should be on oxygen 24/7. If you spend any length of time with your oxygen in the 70's, you are probably …
HIcopd - Hawaii State CaptainKaren Deitemeyer - Florida State CaptainJeanO53 also answered the question HIcopd - Hawaii State Captainand 2 others also answered the question

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, everyone! Keep those positive vibes flowing, and remember that there is ALWAYS a bright spot in each day! Shine on, friends! โœจ๏ธ 

4 days ago

jackie 82

jackie 82asked the question: Is anyone using Trimbow for COPD

Due to the Heart meds I take I am having difficulty time with my breathing. I believe the lung meds and the heart meds don't get along . I have tried some changes but still suffer. So, wondering how effective Trimbow is for COPD Treatment? I had not …

4 days ago

DMBonita

DMBonita

Watching the Eagles gives me warm happiness..helps take me away from problems for a while 

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.