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DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Questions on my PFT

I have to say that I have no support from my family when it comes to chronic illness. No one checks in with me. Although, I help my mother all the time. She's never been supportive. My sister is not supportive of my illness, either. That's just the way …
Roxiedog1963Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captainand 1 other also answered the question Roxiedog1963and 3 others also answered the question

5 minutes ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captaincommented onA New COPD Treatment is FDA Approved

From a prior article they posted and the company website, it appears the Rx will be shipped directly to consumers, not filled by local pharmacies. ...

23 minutes ago

Mary1949

Mary1949

Is there any paint you can use for walls that is better?

45 minutes ago

Sazzles

Sazzles

Doing well today thank you 

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie B’s Kitchen to Yours

🤩REFRESHING FRUIT PUNCH🤩3 cups orange juice3 cups cranberry juice1 cup lemon juice2 cups pineapple juice3 cups ginger ale IceLemon and orange wedges, to garnish To a large pitcher or punch bowl, add the orange, cranberry, lemon, and pineapple...

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday! 
Today is a Flashback Friday! 💫
This picture was taken many years ago, when my dearly departed Nina Lily was young. She was so excited to go for a ride! 
Have a wonderful day, friends! 😊

9 hours ago

BarbraI

BarbraI

It's very humid here in Iowa today and even with my medicine it's hard to breathe I'm in my first 2 and a 1/2 weeks since I found out about COPD and I'm anxious

16 hours ago

JeanO53

JeanO53answered the question Job suggestions plz

Many organizations are using online sites to find their employees. You might try setting up a profile on LinkedIn.com or Indeed. I retired in 2019, but kept my profile on LinkedIn as a way of staying in touch. In 2022, a former coworker reached out to …
DebbieB.-Connecticut State CaptainAmanda Atkinson, MSN, RNCaroline West Virginia State Captain also answered the question DebbieB.-Connecticut State Captainand 2 others also answered the question

16 hours ago

JeanO53

JeanO53This was shared on Facebook this morning.  May we all take time to do this... 

22 hours ago

CSFactor

CSFactorcommented onA New COPD Treatment is FDA Approved

They always seem to find a new drug for maintenance, to bad they can't find a cure. I guess the money is in keeping us alive so they bleed us dry on the prescriptions. You gotta love our Healthcare system it sucks...

23 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captaincommented onA New COPD Treatment is FDA Approved

The initial price tag is high. May not be covered by all insurance yet....

1 day ago

WheezyBeezy

WheezyBeezyasked the question: Job suggestions plz

Suggestions for either stay at home jobs or jobs where there’s limited contact with sick people. Right now I work with kids and would love to find something else but only went to school for the current job I have. Anyone know of anything? Thanks

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onA New COPD Treatment is FDA Approved

My pharmacy manager has not heard of this new medication. I am planning on speaking with him when I see him. When the pharmacy gets the new medication, I will be curious to see how many people are using it. ...

1 day ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)commented onA New COPD Treatment is FDA Approved

Hi JRC31! According to the information available, Verona plans to release the medication this month and it will cost $2,950 to wholesalers (the cost before insurance). As always, individual insurance plans will have different coverage. I recommend...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie B’s Kitchen to Yours

🔶️CHICKPEA AVOCADO SALAD🔶️What could be easier to prepare? A healthy lunch or light supper!One 15.5-ounce can chickpeas, rinsed and drained 1/2 cup diced red bell pepper 2 tbsp. sliced scallions 1/3 cup chopped fresh cilantro Juice of 1 lime1...

1 day ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)commented onA New COPD Treatment is FDA Approved

Absolutely, Pat! It is so promising to see some advancement in new types, not just new brands, of medications. ...

1 day ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Doctors performing Zephyr Valve replacement

Hi Dave4sue, I do not know geographically where you are, but in Southeast Pennsylvania, St. Luke's Health Network has an endobronchial valve program.

1 day ago

Dave4sue

Dave4sueasked the question: Doctors performing Zephyr Valve replacement

I am looking for a current list of experienced Doctors in the Northeast who perform the Zephyr Valve replacement.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainOh, how lucky we are to be able to enjoy this Thursday! We wake up with a positive outlook, knowing that there will be so much to enjoy on this day.
Today is a good day to call a dear friend to say hello. Spread your cheer to everyone! A positive outlook is very contagious!
Keep a smile on your face, and you'll always be in a good place! 😃

1 day ago

Roxiedog1963

Roxiedog1963answered the question Help!!!

Thanks for all the advise! It's so expensive to eat right! Ugg but my cardiologist says chicken and fish im not a big fish eater but I like tuna and shrimp also as I said fresh tomatoes with fresh mushrooms with a little ranch mixed together not a fresh …
Jonnie Korinko (COPDF Manager of Public and Professional Education)Bill Clark - Community ManagerKaren Deitemeyer - Florida State Captain also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education)and 2 others also answered the question

1 day ago

Roxiedog1963

Roxiedog1963

Please be in prayers for me! My spirometry said moderately severe from my Dr office I'm still waiting on referral to go thru to see a pulmonologist I'm still really scared! I'm working on getting my anxiety and worry under control I've other health problems I could really use the support and prayers please! I read all the post how you all say your living long time even with severe emphysema! I'm 61 just diagnosed I hope the pulmonologist has better news then the tech that came to my Dr office that day! I talk to my therapist other day and my nurse they both said I need to retrain my brain from worrying! Which is easier said then done! I'm gonna start doing my coloring again I'm trying to keep my mind off my test results! Plus getting my mental health to find new medications for me I've prolly been on every medication they make over years and not really helped me much over years just need some encouragement! Thanks 

1 day ago

  • NewestOldest
  • Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)Hi Roxiedog1963, I think you are doing all the right things. The first step in dealing with anxiety is knowing it's happening and taking steps to cope with it- you've done both! It sounds like your therapist has given you good advice and you already have some activities that can help distract your worrying thoughts (like your coloring). What coloring page are you working on now? We'd love to see a picture! 


    In the meantime, I hope that our community will share their stories with you. We have many, many members who are living well with moderate to severe COPD. You are not alone! You may also find out Coping with COPD guide helpful. You can find it in our downloads library at: https://COPDF.co/education-materials1 day ago
  • brydyHi Roxiedog I think its pretty normal to feel anxious & scared when first diagnosed, I know I felt pretty numb for a bit. the trick is to take control of the situation. do everything in your power to fight! take your meds, exercise (maybe in my experience the thing that makes a huge difference), avoid stress, eat well, hydration & sleep.
    exercise helps with anxiety too so its a win win! 😉 


    still...there will be times when naughty brain runs circles of worried thoughts. I use a few different strategies if I get overwhelmed, one of those is music. I have a playlist that is one my brain/soul deeply engages with. I close my eyes & take 10-15 minutes to lose myself in the music. heres one from my playlist, I do have a rather ecclectic taste in music so ymmv! 😄 try creating one that works for you xx

    https://youtu.be/w3a_iTwQIi4?si=r4nBHinbdOB5nWYP27 minutes ago
Roxiedog1963

Roxiedog1963answered the question Masks—who should wear them and how to get them?

I see this is a old post! But I'm curious my friend gave me the N95 mask i just have a question about them since I haven't got my referral to the pulmonologist yet! I like going to casino my Dr told me to go in no smoking section but the casinos near me …
HIcopd - Hawaii State Captainedpe77Anonymousand 7 others also answered the question HIcopd - Hawaii State Captainand 9 others also answered the question

1 day ago

JRC31

JRC31commented onA New COPD Treatment is FDA Approved

When will this medication be available AND what will it cost? Will it be covered by Medicare?...

1 day ago

Evie

Evieanswered the question Exascerbations

so home for 2 days and yes, it’s gonna take a bit to move forward. Thanks to all for kind
Jonnie Korinko (COPDF Manager of Public and Professional Education)Jean IA State CaptainKaren Deitemeyer - Florida State Captainand 3 others also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education)and 5 others also answered the question

1 day ago

klhenderson

klhendersonanswered the question Advocacy in America: Reflecting on IMPACT 2024

It was a really exciting and wonderful opportunity, and I enjoyed meeting everyone! I was a little 'slow' getting around, but worth every moment. Since then, I've contacted my Senators and Representatives a couple of times, and feel empowered to share my …
Karen Deitemeyer - Florida State CaptainPhyliss DiLorenzo NJ State CaptainJonnie Korinko (COPDF Manager of Public and Professional Education)and 1 other also answered the question Karen Deitemeyer - Florida State Captainand 3 others also answered the question

2 days ago

PatO   State Captain Arizona

PatO State Captain Arizonacommented onA New COPD Treatment is FDA Approved

Thank you Jonnie, this is great news. We can use all the new meds that can be delivered to help get this dreaded Dease under control and hopefully a cure some day. ...

2 days ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF CommunicationsWe want your thoughts! Have you used a portable oxygen concentrator? The COPD Foundation would like to hear from our community about their experience with use of portable oxygen concentrators (POC) for supplemental oxygen therapy. Take our 5-minute survey and share your opinions on this important topic. 


Click or copy and paste the following link into your browser to take the survey: https://copdf.co/O2-survey

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie B’s Kitchen to Yours

🍑PEACH PIE OVERNIGHT OATS🍑3 cups peeled and chopped fresh peaches1/4 cup water1 tbsp. light brown sugar1 tsp. cinnamon, divided 1/2 tsp. salt, divided 2 cups old fashioned rolled oats1 3/4 cups reduced fat milk1 cup non-fat peach Greek yogurt2...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWow! It's Wonderful Wednesday! What a great day to accomplish many things! We would love to hear from you! Please let us know how you are spending your day!
Keep your day going strong--power it with a big smile! 😃

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.