Molly Butz

Molly Butz created the event COPD Foundation Town Hall

COPD Foundation Town Hall Wednesday, June 15, 2 p.m. EDT Register : bit.ly/copdtownhall You are invited to join us for a special COPD Foundation Town Hall! COPD Foundation President & CEO Ruth Tal-Singer, PhD, will share what’s new in patient …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

5 hours ago

Jezz

Jezzasked the question: Sixties male w disability outside health care intubated in Thailand

Hi. I’m new here, first post . I have a friend here in Australia and her uncle is in hospital in Thailand (he is Thai) he’s intubated, aged in his sixties. With no photo ID there he is outside whatever form of Medicare they have there . So far the family …

9 hours ago

Snowylion8

Snowylion8

hi joney. snowylion8  here. I just wondered what it was that made you think of a fib. Anything to do with bloody nose?
i also have been many years on this road, what do we have in common? if i might ask....
have a great evening!
peace

15 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Trelegy has been a miracle!

I have been on Trelegy for over 3 years and it works well for me.

18 hours ago

das23

das23answered the question Trelegy has been a miracle!

I've been using Trelegy for 4 years after trying Anoro Spiriva and Advair. Trelegy has worked really well for me--( makes me hoarse sometimes )-- A year ago I went back to Anoro for a month and found it wasn't enough. I guess I need the 3 meds in Trelegy …

19 hours ago

Snowylion8

Snowylion8

hi all. I just joined this loop but am not a newcomer to COPD. I have been battling it for many years. I am 60ish haha and am on oxygen 3L constant 
I recently have noticed changes in my condition so have come here for input. my oximeter reading have gone a bit wacky although my o2 itself is staying above 90. Some chest pains, but not a dark sputum. I am wheezing and bringing up much more than before. My heart is racing when I exert any energy yet my bp remains good. Any suggestions comments or just a hello so I know someone is listening will be greatly appreciated. Peace
snowylion8

20 hours ago

Jane M. Martin

Jane M. Martinanswered the question Trelegy has been a miracle!

It's great to hear that something is working so well for you, lizimandu57 and Jean IA State Captain! Sometimes it takes a while to find the best combination of inhalers - and in this case, one inhaler with a combination of meds.

22 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Trelegy has been a miracle!

I started Trelegy a month and a half ago, and I've experienced a good change as well, at least so far. This is the first time I've been able to include a LAMA in my med mix, as spiriva and Tudorza both caused my breathing to get worse instead of better. …

23 hours ago

lizimandu57

lizimandu57asked the question: Trelegy has been a miracle!

I started on Trelegy around the 1st of the year and it has been amazing! I feel 100% normal ever since starting on this drug and have had zero issues with it. I just thought I would give this perspective to anybody who may be thinking of trying it. I get …

23 hours ago

JeanO53

JeanO53Happy Fuzzy & Feathery Friday!  Peek-a-Boo!  
Wish I could take credit, but I can't.  This photo was posted on the "Friends of Grant Park" FB page by one of the other regular photographers who also roam the area.

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHere's a blast from the past! Taken a few years ago, the day Bruce bought this car for me. NO....I can't drive it! It is a 1923 Model T center door. I named the car Wrigley because of the colors it was painted. Yes...the car is a boy! 😂

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Memorial Day Weekend.  Stay safe what ever you do.  

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie B’s Kitchen to Yours

Need an easy red, white and blue dessert for Memorial Day weekend? Here's an idea...You will need custard cups or mini trifle bowls.Take shortcake shells or mini graham cracker tart shells, and fill them three quarters of the way with either vanilla,...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWhat day is this? Already? Yep....it's Fluffy Friday! Here's Luke Rossi, wishing you all a great day! 

1 day ago

Ken Benson-Ca. state captain

Ken Benson-Ca. state captainJust completed the annual COPD PPRN survey.
Helping COPD research by joining the study is so easy I'm surprised everyone hasn't joined. 


https://www.copdfoundation.org/Research/COPDF-Research-Registries/COPD-Patient-Powered-Research-Network-COPD-PPRN.aspx

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question Can mild centrilobular emphysema be misdiagnosed VIA CT scan?

A CT scan isn't a definitive diagnostic test for any sort of emphysema. A CT scan may show signs of emphysema, but that just means there are signs; doesn't mean that you are having any difficulty from the signs the scan shows. For that, you need the …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWhat are your plans for Memorial Day weekend? 🇺🇸🔴⚪🔵🇺🇸

1 day ago

das23

das23answered the question Can mild centrilobular emphysema be misdiagnosed VIA CT scan?

Welcome Happinesses....We have some numbers experts here ( not me ). When they see your post they'll have some answers for you. You're in the right place--Lots of help here. Good for you quitting smoking and exercising. Vaping probably isn't a good idea …

1 day ago

Alwaystomorrow

Alwaystomorrow

Good evening all.  Hope everyone had a good day

1 day ago

SG JR

SG JR

 Blessed Thursday everone 😇!!! We all have another day, so lets grateful and fined something to do that makes us feel good. 

1 day ago

Otter

Otteranswered the question Under-diagnosed COPD?

Do you think anxiety could be in play? I ask because before I got a reliable diagnosis, I often had the same sensation (no oxygen in the air I breathed). I even bought a pulse-ox monitor and checked my oxygen levels waaaaay too often (readings were …

1 day ago

Happinesses

Happinesses asked the question: Can mild centrilobular emphysema be misdiagnosed VIA CT scan?

I don’t know if this is denial, wishful thinking or logic but I went to the ER last month as I was spitting up blood, having trouble breathing, extremely tight chest, elevated heart rate and my whole lung felt it was numb or something. Oxygen level was …

1 day ago

chris j

chris janswered the question Under-diagnosed COPD?

Thanks for including your spirometry numbers, Ethan. It's none of my business, but are you a big guy? FVC at 118% ?? I had similar experience beginning with shortness of breath in my 50's (I'm now 70). I wouldn't call it "heart racing" but rather …

1 day ago

Miky_Sp

Miky_Spanswered the question New Mild Epoc Diagnosis

I showed the first spirometry to the second pulmonologist and from his point of view it was not well done or the technique failed.

1 day ago

Miky_Sp

Miky_Spanswered the question New Mild Epoc Diagnosis

Hi Dave. I went to visit another pulmonologist and he repeated the spirometry with very good equipment, and it differs a lot from the previous one. I don't know if it will be because of the different devices or because of differences in myself (these …

1 day ago

chris j

chris janswered the question theophylline: has anyone ever use

I'm 70 years old, and I've taken Theophylline for about 7 years. Maintaining the correct dose is a juggling act, hence the need for blood tests since an individual's serum levels can change even without changing the dose. I have tapered off and stopped …

1 day ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.


COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.