COPD360social welcomes new member Angus Robert who joins 64,222 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Hello December, 360social! โ„

Here we are, stepping right into the colder part of the year. This is a great time to take a quick look at the things that help keep you feeling your best -- making sure medications are filled, keeping your usual supplies handy, and staying mindful of those early signs that an exacerbation might be trying to sneak in. A little preparation now can make these chilly days a lot smoother.

December also has a way of making us pause and look back on the year. Weโ€™ve had moments of change, moments of strength, and moments that reminded us just how important this community is. Weโ€™ve had to say goodbye to friends far too soon, and they remain close to our hearts. Weโ€™ve also welcomed new faces and leaned on the steady support of those whoโ€™ve been with us for years.

Iโ€™m really grateful for all of you. Letโ€™s head into this month staying warm, staying prepared, and staying connected. Hereโ€™s to December and to being here for each other! ๐Ÿ’™๐Ÿงก

5 days ago

Wildebeest

Wildebeestanswered the question What causes short sharp pains in the right lung?

I get this in my left lung. It has happened for years. The pain makes it hard to take a full breath in. It usually lasts for a maximum of 5 or 10 minutes and then vanishes as suddenly as it arrived. Sometimes I can tolerate the pain enough to force a …
brydy also answered the question brydy also answered the question

48 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! I hope you all have a wonderful day, filled with sunshine and joy! ๐Ÿ˜€โค๐Ÿ’š

8 hours ago

Faithlynn

Faithlynn

Hello everyone new to this all and trying to understand this copd 

11 hours ago

Dinna25

Dinna25answered the question Can COPD be cured/reversed?โ€‹

Shar_bear0608 Welcome, A month / 5 weeks ago I was afraid just like you have said, but try not to be. I personally have found that the exercises reduce the sob, I am fully aware we are all different and copd effects us all different. I am no expert …
Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captain also answered the question Caroline West Virginia State Captainand 1 other also answered the question

16 hours ago

ZaydeBob

ZaydeBobasked the question: What causes short sharp pains in the right lung?

I'm in the midst of a long exacerbation (23 days and counting). This afternoon, I started having short duration, sharp pains in my right lung. I'm still waiting for my pulmonologist to get back to me. Besides the acute bronchitis, I still have a sinus …

17 hours ago

john87

john87answered the question Has anyone here used OnlineGenericMedicine in India to purchase their inhalers?

WARNING: THIS COMPANY IS A SCAM FROM INDIA!!! They stole my money. They scam everyone, just look them up on Google. Nobody receive their order. All the reviews are fake.
Sundowner37Jean IA State CaptainSDMand 1 other also answered the question Sundowner37and 3 others also answered the question

19 hours ago

EbonySuede

EbonySuede

Karen Deitemeyer, it was a pleasure to have met you the other day and thanks for all the hardwork and advocacy you do

21 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerMy Hearts & Pawprints Fluffy Friday โ€” this is my sweet Maks.

He joined our family during a difficult time, a therapy dog gifted to my mom when she moved back to Arkansas after her husband passed. And somehow, he ended up bringing comfort to all of us.

Heโ€™d wait for me when he knew I was on my way โ€” watching, dancing when he saw my car, howling with joy, guiding me into the driveway, and wrapping me up in his version of a hug.

We were blessed to have those years with him. A truly special soul. Lucky to share his memory.

1 day ago

Dr SK Chhabra

Dr SK Chhabra

Thank you. Pleasure to be here. I am a Chest specialist from New Delhi

1 day ago

ZaydeBob

ZaydeBob

Hi Folks,  I was diagnosed with COPD 3 years ago.  I started using Breztri 2 years ago and it really helped reduce the frequency and duration of my exacerbations. However, I'm now on Day 23 of one despite having been on Doxy for 12 days and prednisone for 22 days. I'm still coughing constantly. I'm very short of breath and weak. These are also new symptom manifestations. I think my COPD has progressed. My pulmonologist is not ordering a new lung function test, as it has only been 9 months since the last one. 
Delsym and Mucinex are helping somewhat.

My weakness is partly caused by Thrombocytopenia. My platelet count has slowly dropped since February and is now at 92,000. The docs still don't know the cause of it. I have to wait a week after finishing the prednisone before they can do more lab work and give me a diagnosis and treatment plan.

Are there others here with Thrombocytopenia?

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธFESTIVE RICEโœด๏ธ1 1/4 cups water1 cup Basmati rice 2 1/2 tbsp. olive oil, divided 1 lime zest strip, 1 inch wide3/4 tsp. salt, divided 1 cup whole raw almonds 1/4 cup dried apricots, chopped1/4 cup dried cranberries 2 cups fresh...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainJump for joy!!! It's Fluffy Friday! ๐Ÿ˜ƒ
Freckles Joy and Hazel Madeline are so happy to see their Mommy coming in to clean up their toys. Time to clean out all the mangled toys to make room for the new ones Santa is sure to bring! ๐ŸŽ… ๐Ÿ˜‰

1 day ago

Shar_Bear0608

Shar_Bear0608asked the question: Can COPD be cured/reversed?โ€‹

Does COPD have a cure? Can it be reversed? Can I do everything I used to do before my diagnosis (exercise/running/yoga)? I think ever since my diagnosis Iโ€™ve become very scared to do physical activities thinking I will get out of breath.

1 day ago

Abeba

AbebaA Glimpse into COPD in Ethiopia
As I joined COPD360social, I thought of Desta (name changed), an elderly woman from my clinic. Years of smoke from her firewood kitchen, the same one that fed her family, have carved illness into her lungs. Now she stays in the hospital on oxygen she cannot afford at home.
This morning she whispered:
โ€œDr., pleaseโ€ฆ let me go home. My family, my grandchildren, the cattle, the kitchen โ€” they all need me.โ€Her words hung heavy and heartbreaking.
She was not asking for comfort or medicine โ€” she was asking for her life back.
For her home.
For her dignity. 
The kitchen she longs to return to โ€” the very place whose smoke helped steal her breath โ€” is still the center of her world. 
Yet even her deepest wish may remain beyond reach. Home oxygen is a distant miracle for women like her. Desta represents thousands of mothers in rural Ethiopia, trapped between poverty and breathlessness, longing to return to the lives they built with their own hands. 
I share her story to honor her, and to open a small window into the reality I work in โ€” where COPD is not just a diagnosis but a daily struggle between illness, poverty, tradition, and the unbreakable will to keep going. This is why I joined this community โ€”to listen, to learn, and to fight for mothers like her. To make breath a right, not a privilege.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Just a quick reminder that tomorrow weโ€™ll be having our very first Hearts & Pawprints Fluffy Friday. ๐Ÿพ๐Ÿ’–

Itโ€™s a day to celebrate the furry or feathery little ones who brighten our lives now, and to lovingly remember those who stay close in our hearts from days past. ๐ŸŒˆ

This will be a special moment we can come back to twice a year, giving us a chance to honor the love they gave us and to let the pets we have with us today shine just as brightly.

Iโ€™m looking forward to seeing everyoneโ€™s memories and smiles tomorrow. ๐Ÿ’•

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Anyone hopeful about possible regenerative therapies in near future?

These are interesting data but the info above is from the corporate site and the results have not yet reported officially ( either to a clinical trials sit or published in a medical journal). So stay tuned!
JD85brydyKeir123and 5 others also answered the question JD85and 7 others also answered the question

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question How often I have to see my pulmonologist?

I agree with Karen, and I do take a med that requires that I abstain from eating grapefruit. This is somewhat odd, as I had just recently acquired a taste for it.
Karen Deitemeyer - Florida State CaptainDebbieB.-Connecticut State Captaindas23 also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŒฟCRANBERRY PECAN CHEESE LOG๐ŸŒฟ9 ounces cream cheese 5.3 ounces dried cranberries, diced4.4 ounces pecans, chopped3.5 ounces grated sharp Cheddar cheese1/4 cup finely diced fresh chivesIn a small bowl, combine pecans, cranberries, and chives.In a...

2 days ago

Bare

Bare

Whatโ€™s the best and quietest oxygen concentrator? I currently have a Inogen. It is noisy

2 days ago

Bare

Bare

Anyone on NAC inhalation therapy? Has it helped to reduce the thickness of mucus?

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHo Ho Ho !!! Happy Thursday! Let's get into the holiday spirit! Listening to your favorite Christmas songs is a good way to begin! Enjoy your day, friends! โค๐Ÿ’š

2 days ago

benj

benj

first of all i feel it very motivating to hear everyone being positive about this, im 38 and got diagnosed 2 months ago. i quit smoking straight away im at the start of my journey and still going through my 1st flare up! its scary as i am having dyspnea most of the day i just hope it goes away soon. i have hope that i can keep going but the fear has not gone away. i dont have much exept my mothers help, this page has given more hope i thank you all for that โค 

2 days ago

Shar_Bear0608

Shar_Bear0608asked the question: How often I have to see my pulmonologist?

I got my COPD diagnosis in November 2023. Still trying to understand it. Do I have to consult my doc for using any new food/drink ? That sounds a lot of work.

2 days ago

Cherigee

Cherigee

I am newly diagnosed with emphysema which was found from a lung CT.  I wasn't having many symptoms just occasional breathlessness when walking up stairs and some wheezing at night.  Met with a pulmonologist once and she gave me a sample of trelogy which helped immediately.  I only had a 2 week sample and it was going to run out on Thanksgiving so the office called in a 1 month prescription. They also gave me an albuterol inhaler which was never mentioned.  I have no idea when/how to use it.  I have a breathing test scheduled for 12/12 but no follow up appointment scheduled.  I feel kind of lost here and am having some anxiety about doing some things like watching my grandchildren or going to a Christmas village with my kids and grandkids (alot of walking).    I know excercise is good but I now have this fear of not being able to breath.  I also haven't shared this diagnosis with my family.  I don't want them to worry or treat me differently.  

2 days ago

EbonySuede

EbonySuede

Just finished attending a Zoom meeting (harmonica group), where I got to meet some very nice and informative people. In this format I use the name Ebony Suede, however my real name is Ken Walton. Very glad I participated in this meeting. Thanks for making me feel welcome!

2 days ago

brydy

brydyanswered the question Dentist, tooth pulled

Hi GAnne. I dont use oxygen but I did have some oral surgery this morning & I do inform of my breathing issues & my anxiety re dental work. I can barrel race on a horse but put me in a dentist chair & I turn into a big baby. what I have found …
GAnneCaroline West Virginia State CaptainJeanO53 also answered the question GAnneand 2 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒ Itโ€™s Visit My Corner of the World Day!

I hope everyone is having a great start to December, and that after the holiday youโ€™re settling into the season and feeling a little of its joy.

Share a view from your corner of the world โ€” something that brings you a smile, a moment of calm, or a touch of that December spirit. Canโ€™t wait to see what you share today! ๐Ÿ’™โœจ

3 days ago

Jazzybean

Jazzybeananswered the question PFT TESTS DONE 7 MONTHS APART

Good Morning, I am not a doctor so I Can't give you any answers or reasons why your test may show the differences between the two times you took the test. Here is what I think may be helpful. I also have had some questions about the differences between …

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.