lizimandu57

lizimandu57answered the question Just started NAC supplement

Thanks all! I might try again. This time with or after a meal may help. I am not having mucus issues now though so not sure I even need it except for the overall gebenefits Iโ€™ve heard about.

17 hours ago

BlairT

BlairTanswered the question Just started NAC supplement

I've tried going off NAC and back on again. For me this supplement takes awhile to have effect, but after a few weeks I find that it helps me keep my chest clearer (easier to expel mucus). I do not experience other issues with this supplement (like upset …

1 day ago

muddleaged

muddleagedanswered the question Mystery Throat Question (Fun)

I find it worse in the winter when the air is dry. I keep a beverage on the bed table.

1 day ago

Ms.Whylene

Ms.Whyleneanswered the question Mystery Throat Question (Fun)

Hello,I have that same problem at times,I use salt and warm water.,rinse and gargle with Biotene. Put my mask on and sleep like a baby..or gargle with warm water and salt eat a hard peppermint!.doing this is before Covid19.

1 day ago

Caroline

Carolineanswered the question Covid pneumonia question - information about the covid pneumonia and recovery time

I am not sure that I have fully recovered as yet, but it was a good 4 months before I could count that I was definitely on my way to my old self.

1 day ago

Jlor

Jloranswered the question Just started NAC supplement

try it again but go slower maybe once a day then build up

1 day ago

nanjoy

nanjoy

Hello, Lorrie,

You asked me some questions about what I am doing for osteoporosis.  My PCP referred me to a rheumatologist for a prescription for a bone-building med.  The Rheumatologist told me that because I had cancer in the past, I could not take any bone-builder except Evenity.  The possible side effects of Evenity include heart attack and stroke; therefore I refused that.  I was on Fosamax, which is not a bone-builder, but is supposed to stabilize the condition.  However, I found out that Fosamax has several class action lawsuits against its manufacturer (in several states).  The company settled one suit for $27,7 billion dollars.  I told my PCP I discontinued taking it, and he said:  "I don't blame you!"
Now I am taking no meds for this condition; but am taking vitamins and minerals that are supposed to strengthen the bones.  I do simple exercises for my arms, neck, and legs that were taught to me by a very good physical therapist, who also treated me with myofascial release, which is what relieved the excruciating pain incurred by four spinal vertebrae fractures.  One vertebra is completely compressed.  I am quite active with little tasks, and I walk a lot around my home; cannot walk briskly except when I use my walker.  When the vertebrae were fractured, I had not fallen at all.  My physical therapist said the cause might have been that I hade "plopped down" when I sat down.  He said to always ease gently onto a chair. Good advise for anyone with our condition.


I have had COPD for so many years, I cannot remember when the initial diagnosis was made.  The COPD has limited my activities, about which I try not to feel depressed, and just do the things I can do.  I have a great son, who helps with tasks that are beyond my abilities. Have been praying for you for several months.
Nancy   

1 day ago

  • NewestOldest
  • edpe77Great post nanjoy, I think Lorie will appreciate you experience, along with many others here. You spoke highly of my favorite medical practitioner - the Physical Therapist. they are our unsung heroes.  //ed1 day ago
  • Lorrie State Captain of South Mississippi Thank ya'ens nanjoy
    Mine has been cause by high blood calcium for years . But my GP had told me some people just have high calcium levels,  welp I have learned oh so the hard way along with Steroid induced osteoporosis.  Ima 57 and have bones of a 90 year old , and at this point with my Lungs bein impacted the way they have from 3 messed up procedures, and no Pulmonary rehab,  I don't know if they will ever be the same as before those procedures,  3 procedures in less than 14 days is alot aling with them causin the fractures . Ima only 57 and have bones of someone 90 he said . Gonna go Monday ta get a Jewett brace.  
    I need rehab of all types my heart has also been impacted since December.  They did sumpin horribly wrong , hubby doesn't remember them havin me on Oxygen when they came in the room.  
    I thank ya'ens so very much and God Bless ya'ens for ya'ens help.  
    Love ya'ens 
    Lorrie 1 day ago
Norso

Norso

Not sure if I'm good or bad! Had my NHS lung function which was 3 tests blowing into tube linked to a screen. The first was for asthma where you had to keep a needle in a green section, very hard! 


Consultant rang next day and gave me results which were




80.3
85.00
73.72


Only thing is I didn't catch what they relate to and he spoke quickly.


Any ideas?




Thanks in advance




1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question COPD and covid vaccine

This might help: https://www.copdfoundation.org/COPD360social/Commu...

1 day ago

Jlor

Jloranswered the question Just started NAC supplement

hi I have been taking NAC twice a day at first it messed with my stomach I stopped taking it for about a week I had also started talking daliresp I gave it a week and have been taking it ever since I also take Symbicort Spiriva Mucinex as well as a …

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question Covid pneumonia question - information about the covid pneumonia and recovery time

I'm not Carolyn, but I do have some suggestions about how you and your doc might approach this. I think you have to agree on some measurable things that will help you see both what's effective in your recovery and what doesn't work. Just "I feel better" …

1 day ago

BlairT

BlairTanswered the question Post nasal drip, phlegm and throat

For me these issues are caused mostly by COPD. I have Chronic Bronchitis and phlegm plugging up my airways is one of the key symptoms. Exercise and lots of water help me keep things clear. I do experience some random changes in my voice at times due to …

1 day ago

BlairT

BlairTanswered the question COPD and covid vaccine

I've had one Pfizer shot, and did not experience any increase in SOB or have other issues. Just a minor sore arm for a couple days. Will see how #2 goes whenever we can access that.

1 day ago

Jane M. Martin

Jane M. Martinasked the question: How Can I Learn about NTM Lung Disease?

We usually think about breathing hazards in our environment in the form of smoke and fumes. But did you know that for people who are at risk, nontuberculous mycobacterial (NTM) lung disease is caused by exposure to mycobacteria found in soil and water? …

1 day ago

JeanO53

JeanO53answered the question COPD and covid vaccine

Boneman - I've not experienced any ongoing side effects after both Moderna shots. I suggest you check in with your pulmonologist to discuss your shortness of breath, especially if you are seeing an increase.

1 day ago

luckymilt488

luckymilt488

1 day ago

Boneman

Bonemananswered the question COPD and covid vaccine

Since receiving both Pfizer shots i have been experiencing shortness of breath more often and with limited activity. Anyone else noticing this?

1 day ago

Bret99

Bret99answered the question How Much Do You Know About Healthy Lungs?

Thanks to everyone who participated! Here is the answer key, how did you do?

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThis year I chose a unique card for my Mom for Mother's Day. Mrs. Doubtfire?!!

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my youngest....Pottie Pie! ๐Ÿ˜ป 

1 day ago

lizimandu57

lizimandu57answered the question Just started NAC supplement

Just to follow up on this original question...I had to stop taking NAC after a week or so because it was tearing up my stomach pretty bad.

1 day ago

WomaninNH

WomaninNHanswered the question Covid pneumonia question - information about the covid pneumonia and recovery time

Caroline how long did it take for you to recover? I am seeing a new pulmonologist in June and my hope is that he is good at communication. The last one barely said anything to me and the last one also wanted to see me in six months with a telehealth …

1 day ago

Mary E O

Mary E Oasked the question: Vaccine problems?

I had the Johnson & Johnson vaccine. I felt fine afterwards for a month now. How did you feel with yours

1 day ago

mcat43

mcat43asked the question: Post nasal drip, phlegm and throat

Hi all, Whatโ€™s your take on Mild COPD and Post Nasal, Throat and phlegm? Allergies or COPD?! I have been looking at my messages to GP because everything is on email and portal and noticed I have been complaining since 2018 about excessive clearing of …

2 days ago

joney

joney

pain has subsided so I am well๐Ÿ˜

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

Thank you, Michelle! ๐Ÿ˜€We had these tonight, along with rice pilaf, and a garden salad. ...

2 days ago

Michelle McConnaughay

Michelle McConnaughayasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

We are trying this one! Thank you, Debbie!...

2 days ago

Kristen Willard

Kristen WillardCan you believe it is already May? Spring is upon us. and I, for one, am ready for the blossoms and sunshine. Not to mention that a new month brings us a new educational topic here at the COPD Foundation.  


This month's educational offerings will center on ... HEALTHY LUNGS. Learn more about what we will cover in this brief video! 


https://www.youtube.com/watch?v=UdhL_LFA68U&feature=youtu.be

May 2021: Healthy Lungs

What kinds of topics will we learn about during the month of May? Join Kristen Willard to find out what you can look forward to. We hope you will join us www...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

My sister and brother in law, and my mom and step-dad are getting puppies! My sis and her husband are driving from Connecticut to Pennsylvania at the end of the month to pick them up. Oh, so cute! Boston Terriers. My sis is taking a blue, and my mom is taking a black. No reds in this bunch. 

2 days ago

Alph

Alphanswered the question Astronomical travel anyone?

Andromeda (galaxy) a couple million+ light years. Alpha centauri 4+ light years. It would take closer to 70k years to get there with modern tech. By then another method will have left you in the dust.

2 days ago

COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.