Bill Clark - Community Manager

Bill Clark - Community ManagerInsurance coverage can
significantly impact the quality and affordability of the care and treatments
you need to stay healthy. Most people are required to make a series of choices
every year that can have a big impact on your out of pocket
costs, the types of treatments that are covered, and the network of
physicians available to you.


Despite the importance of
insurance choices, there is little insight into why COPD patients make choices
to enroll in different types of insurance options, if they are satisfied with
their choices and what resources might be useful to help ensure people can make
informed choices in the future.



The COPD Foundation is conducting the Medicare Insights
Project to generate this important information that can be used to plan future
education, community outreach, and research projects related to insurance
coverage and COPD. We ask that you please take this short and very
important survey to help find answers we need for our community!

https://bit.ly/34hNGUc



4 hours ago

Bill Clark - Community Manager

Bill Clark - Community ManagerA Medicare Enrollment Webinar for You!
Medicare enrollment season is here! Are you newly eligible for
Medicare or unsure about your current benefits? Join the COPD Foundation and
the Medicare Rights Center for a *free* informative webinar on
Thursday, October 22, 2020 from 4:00 – 5:00 pm EDT. Topics covered will include
the basics of Medicare, navigating through the choices available, helpful
resources, and opportunities for financial support. Register today!
https://register.gotowebinar.com/register/7415369610940045327



5 days ago

Bill Clark - Community Manager

Bill Clark - Community Manager

New Opportunity to guide future COPD Research


Today we are pleased to launch the second Help GUIDE COPD & COVID Research event on COPD360social! In the first event, hundreds of you provided valuable insight as to what COPD research you would find valuable. Based on your responses this second event will look to refine the topics you selected, now especially in light of the continuing COVID crisis.


The voting system remains the same as the first event with each participant being given 35 votes to be distributed between 25 topics. You may provide up to 5 votes for each individual topic based on how important you feel the topic is to you.


To participate and to read more about the Help Guide COPD Research Event and participate in the voting click on the research tab at the top of the page and select Help Guide COPD Research. Here you will find information on the event and a short video on how voting works. Scroll further down, answer a few simple questions and then begin voting.


You can quickly enter the voting pages with the following link: https://www.copdfoundation.org/Research/BRIDGE-Project/Help-Guide-COPD-Research.aspx


Please participate and make your voice heard!

3 weeks ago

 Ian Venamore

Ian Venamorecommented onIs COPD the Third or Fourth Leading Cause of Death?

 I'm Ian Venamore I was diagnosed with chronic obstructive pulmonary disease (COPD) in my mid-fifties. Today I'm an active volunteer member of Lung Foundation Australia and chair of the associated COPD Patient Advocacy Group (CPAG).I also participates...

11 minutes ago

Norso

Norsoanswered the question Mold Related COPD

Which herb or treatment did you use?

1 hour ago

BonBon

BonBon

Hi all, it's been awhile sense I have been on the 360social.  Not much has changed for me, I'm still hanging in their and I hope the same for you all.  ☺ 

1 hour ago

 Ian Venamore

Ian Venamoreanswered the question Mold Related COPD

I'm Ian Venamore I was diagnosed with chronic obstructive pulmonary disease (COPD) in my mid-fifties. Today I'm an active volunteer member of Lung Foundation Australia and chair of the associated COPD Patient Advocacy Group (CPAG).I also participates in …

1 hour ago

Bclangley

Bclangleyanswered the question Check in - Would keeping a journal help me with stress?

Keeping a journal is helpful to look back on when the doctor asked if you experience this or that or this symptom or that symptom. I noticed I would forgot about things that a journal pointed out I was doing consistently that I had not given much thought …

3 hours ago

Bclangley

Bclangleyanswered the question Check in – Are Anxiety and Panic Common in People with COPD?

I feel I have a good outlook on life also. I do what I can do and ask for help with I can't. I try not to burden others with my disability so I gracefully bow out of things that I know I can't do. Lately, it has come to the fact, I just don't want to …

3 hours ago

edpe77

edpe77answered the question Check in – Are Anxiety and Panic Common in People with COPD?

Fortunately I have a positive out look on life, which gets me thru most of your examples above. However, when I encounter situations beyond my control - I can panic, A case in point, last month I had to get a CT scan, at the hospital. The appt was for …

3 hours ago

Norso

Norsoanswered the question Peripheral neuropathy... Help!!! Please!

Thanks lanes.... a lot of these drugs I have not heard of.. Maybe as im I'm based. It started a month ago. Foot went numb after walking for 20 mins or so... Now it goes numb just being on it. Resting it makes it go. Just left foot affected so far.. …

3 hours ago

Jane Martin

Jane Martinasked the question: Check in – Are Anxiety and Panic Common in People with COPD?

Are anxiety and panic common in people with COPD, or am I the only one? Yes, anxiety and panic are common in people with COPD, and no, you’re definitely not the only one! In fact, having some degree of anxiety means that you’re human and react like a …

3 hours ago

Norso

NorsoA lot of rain dear in Rotherham

4 hours ago

Norso

Norsorescued this caterpillar. Was making its way across a drive could have got squashed. Lovely green

4 hours ago

Norso

NorsoFew more wildlife Wednesday feathers and fish

4 hours ago

Jaques34

Jaques34

Is there any promising news on copd lately? Anything new coming down the pipeline? Jw 

4 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Hope everyone is good. Short handed at the store, trying to get people hired without all these hurdles. Very frustrating 

4 hours ago

clipper (Debbie)

clipper (Debbie)

Slightly related to COPD. Does anyone here have first hand experience with immunotherapy PD-L1 inhibitors (a cancer therapy)? I have read mixed things when COPD is involved. 

4 hours ago

Caroline

Caroline

Infusion and PET completed.  The staff was so nice and thoughtful.  They called my concentrator my jet pack because I have the fanny pack for it.  I should know the results within 3 days.

6 hours ago

lanesf

lanesfanswered the question Peripheral neuropathy... Help!!! Please!

I've I've had COPD for 5 years now I've never been given a stage for it. I've had peripheral neuropathy for almost 2 years now I take gabapentin three times a day and it really does help maybe that could be an option for you I'll keep you in my prayers

7 hours ago

Norso

Norso

anyone logging on and seeing animals... You haven't gone to wrong forum. I've done a few wildlife posts! Saving cats for fluffy Friday though... Yes I have more cat pics....bet you're glad to hear it

9 hours ago

Mobal

Mobalanswered the question Ready for this week's puzzle?

8. He's on the right track 12. back to square one 13. We've got them cornered

11 hours ago

Norso

Norsodifficult to see but this is a baby pigeon (squib or squab correct term from memory). I rescued it when I was walking. I put clean glove on and lifted it out of road it tried to bite me!!!


A passing lady said she knew of a bird sanctuary and tang them. She collects bird later from me s d took it there... Hope it survived. We did our best

11 hours ago

Norso

Norsothink this is a baby squirrel with parent... Enlarge to see it!!!

12 hours ago

Norso

NorsoGood morning from rain soaked, tier 3 covid restricted Britain... Actually it's not good as my levels are down again today. They seem to be down on a day to day basis. Terrified of a rapid progression so to take mind of it here is Wildlife Wednesday... I'll save my cats for Friday though! 

12 hours ago

das23

das23answered the question Ready for this week's puzzle?

11...BIG TIME 6...Safety in numbers. ??

21 hours ago

edpe77

edpe77While I enjoy your posts on Tuneful Tuesday, perhaps some would enjoy humor too. Click below to listen once again to the famous Abbot & Costello classic  "Who's on First."
https://www.youtube.com/watch?v=kTcRRaXV-fg&list=RDkTcRRaXV-fg&start_radio=1&t=0

22 hours ago

Ken Benson-Ca. state captain

Ken Benson-Ca. state captainA little more Tuneful Tuesday vocalizing.

https://www.youtube.com/watch?v=nP0VBB7BO64

22 hours ago

edpe77

edpe77answered the question Ready for this week's puzzle?

#5 cross purposes //ed

23 hours ago

Kristen Willard

Kristen WillardNHLBI -- which is the National Heart, Lung, and Blood Institute, a part of NIH -- has created new videos about COVID-19. 

Here is one that explains the impact of COVID-19 on the lungs: https://www.youtube.com/watch?v=ZL1z3Uju-I0&list=PL_ntiNjc6GvlsZ9ow8z-BCOZdN4jZyi3M&index=1 Their page also has videos on COVID-19's effects on the heart as well as your blood. 

1 day ago

JanChilton

JanChiltonanswered the question Salt therapy... Anyone tried it?

Norso Thanks for the compliment. I don't know about all that. I've just had this condition for a long time now. I read voraciously and try everything. :-) The drug store I go to couldn't get the regular kind last time and I bought two big bottles …

1 day ago

Norso

Norsoanswered the question Ready for this week's puzzle?

1) caught with pants down 4) best around the bush 7) thumbs up 9) one step forward two steps back Done the hard ones... Leave easy ones to others

1 day ago

Caroline

CarolineKeep me in mind tomorrow at 8:30 when I start the infusion and then the PET scan.  Maybe this time it will actually be "out, out damned spot"  Love you guys

1 day ago

JeanO53

JeanO53To follow up on Jimmy S​​'s comment under Stephanie Williams, RRT​'s Tuneful Tuesday post.
Pentatonix doing "Hallelujah" by Leonard Cohen.  An all time favorite:
https://www.youtube.com/watch?v=LRP8d7hhpoQ


1 day ago

Norso

Norsoanswered the question Salt therapy... Anyone tried it?

Thanks Jan...you know your stuff...

1 day ago

JanChilton

JanChiltonanswered the question Salt therapy... Anyone tried it?

Norso Detromethorphan. It's hard to find any of the cough syrup in the stores that doesn't have that too. That's a cough suppressant, which is the last thing we need. I have a compounding pharmacy that orders it in big bottles they use to …

1 day ago

Norso

NorsoTune Tuesday.... Very mellow track from one of my favourite (at the moment) bands... Big Audio Dynamite ... Hard to believe this is Mick Jones of the Clash!


Been wanting to ask any 60s music buffs what is the intro at 20 seconds in... Sure it's from a 60s song!!!


This time you know it's BAD
Hope you realise youre playing with Dynamite



https://youtu.be/N8A1V3tbmhw

1 day ago

Norso

Norso

Can we have a quiz soon EDP please???!!!!!

1 day ago

Norso

Norsoanswered the question Salt therapy... Anyone tried it?

Whats DM mean Jan? Not sure we can get that cough medicine in UK... We don't have much going for us here!!! Must be lovely living near the coast. I like walking along beaches and in the countryside. Therapeutic!

1 day ago

JanChilton

JanChiltonanswered the question Salt therapy... Anyone tried it?

Norso It looks like a yellow rock. Has a tiny lightbulb at the bottom that supposedly heats the rock. For the record, I live at the beach. Sometimes going out on the pier or beach helps clear your sinuses, but I haven't noticed that it makes my …

1 day ago


COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.