Bill Clark - Community Manager

Bill Clark - Community ManagerFrom Kristin Willard:


Hi everybody! Did you register for our DECEMBER HOLIDAY HARMONICA PLAY ALONG? I will be there and am excited to improve my skills! This is not a Facebook Live event so you need to register here - it's quick and painless! Please join us for a Holiday Harmonica Play-Along, Dec. 8 at 3 p.m., EST. Get ready for an afternoon of fun!

https://www.research.net/r/harmonicaholiday1

Hope to see you there!

1 day ago

george hill

george hillanswered the question Has anyone here used AllDayChemist in India to purchase their inhalers?

Buy Best quality & quantity of medicine like pills, injection, drops, inhaler, cream etc. from our store genericvilla at best price. We ensure that you can get your product on with complete safety.

2 hours ago

Ken Benson-Ca. state captain

Ken Benson-Ca. state captainA little Tuneful Tuesday tune for ya'll.https://www.youtube.com/watch?v=UoKvUYbGu7A

4 hours ago

Grandmab

Grandmabanswered the question Looking for a less expensive option for Trelegy.

canadapharmacy.com has it on their website. Still not cheap but better than the amount we have to pay in the coverage gap (donut hole). Just keep in mind your dr. needs to send them an rx and the international mail shipping and handling takes time. Good …

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

๐Ÿ™Now I lay me down to sleep. 
May this rest be long and deep.
Tomorrow will be sunny and bright.
I'll surely find smiles and delight. 
My breathing will be easy and clear.
Only the good things I'll want to hear.
May God Bless You every day of your life.
May your world be free of strife.
Amen.๐Ÿ™๐Ÿป




6 hours ago

Jean IA State Captain

Jean IA State Captain

Just wanted to let you know that All Day Chemist now has a med available for Daliresp.  I only saw the 500 mg one, but if you're using Daliresp, you might want to check it out.

7 hours ago

Kristen Willard

Kristen WillardI may be inside today but I am wearing my orange and thinking of all of you! Happy COPD Awareness Month!

12 hours ago

Jimmy S

Jimmy S

13 hours ago

Jimmy S

Jimmy SThe way you start the morning can affect your whole day. The difference between ordinary and extraordinary is that little extra.Definition of strength:The quality or state of being physically strong.Definition of courage The ability to do something that frightens one.As COPD patients we find that we need every ounce of strength to get through the rough days. Our courage to keep moving forward even when we are scare and unsure of ourselves. Always be a first-rate version of yourself, instead of a second-rate version of somebody else. And remember we are in control of how our breaths are going to be during our journey not someone else. If you cannot do great things, do small things in a great way. Pace yourself, stop and pursed lip breathe yourself back to your baseline if you find yourself struggling to breathe. Tough times never last, but tough people do. You Got This!!Dear Stress, Letโ€™s Break up.Wake Up With Determination. Go To Bed With Satisfaction. Never Apologize For Being Sensitive Or Emotional. Let This Be A Sign That Youโ€™ve Got A Big Heart And Arenโ€™t Afraid To Let Others See It. Showing Your Emotions Is A Sign Of Strength. Youโ€™re Allowed To Scream, Youโ€™re Allowed To Cry, But Do Not Give Up. . I Am Strong Because Iโ€™ve Been Weak. I Am Fearless Because Iโ€™ve Been Afraid. I can and will go forward one breath at a time.Go Ahead Tell Me That Iโ€™m Not strong Enough Tell Me I Can't Do It Because I Will Show You Over & Over That I Can! Smile And Let Everyone Know That Today, Youโ€™re A Lot Stronger Than You Were. Do Not Pray For An Easy Life, Pray For The Strength To Endure A Difficult One. So just remember: The Struggle of Youโ€™re In Today Is Developing the Strength You Need For Tomorrow. Alone we are one voice, but together, we are the COPD community and champions on a mission to raise awareness.Despite the high number of deaths, COPD is ranked 176th in research funding in the U.S. This needs to change.

16 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTI have been working on getting the music ready for our Holiday Harmonica Play-Along next week. It is going to be such fun!! I hope you will make plans to come and play along with us, or just come and listen. Make sure to sign up using the link in the pinned post at the top of the newsfeed. Oh, and if you need a harmonica, you can order one here: https://www.orders-online.biz/~traypml/Custom/012556/login/
Looking forward to seeing you all there!

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŽ„PEANUT BUTTER COOKIES ๐ŸŽ„1 1/4 cups flour3/4 tsp. baking soda1/4 tsp. salt1/2 cup butter, softened 1/2 cup creamy peanut butter1/2 cup sugar1/2 cup packed light brown sugar 1 egg1/2 tsp. vanilla extract Red and green decorating sugarPreheat oven to...

18 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota

18 hours ago

PDeNardo, COPD Coach

PDeNardo, COPD Coachanswered the question Looking for a less expensive option for Trelegy.

Have you tried GlaxoSmithKline at 866-728-4368? They have a patient assistant program

19 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHere's Freckles Joy helping Mommy sort through bags of gifts. Looks like she was getting sleepy....๐Ÿ’ค๐Ÿ’ค๐Ÿ’ค

19 hours ago

JeanetteSue

JeanetteSueasked the question: Looking for a less expensive option for Trelegy.

Does anyone know where to purchase Trelegy for less? I looked at alldaychemist and complete online pharmacy and they do not seem to carry it. There does not seem to be a generic for this medication. At about the 6 month point in a year, my cost …

20 hours ago

muddleaged

muddleagedanswered the question How to feed toothless 92-year-old

Regarding choices of foods. At pulmonary rehab, they tried so hard to give me advice of things to avoid - carbs, sugars, alcohol. I listened carefully, and I recognized I needed to increase the protein. But some of the other advice. . . Well, I'm an …

20 hours ago

muddleaged

muddleagedanswered the question How to feed toothless 92-year-old

When my mother-in-law was in a nursing home, I was surprised to see that what she was having for dinner was also served to patients who had trouble eating for whatever reason. The flavorful ordinary food was ground in a food processor. It was a bit …

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Tina M Moyerโ€‹
Hi Tina! Thinking of you, and wishing you well! ๐Ÿ™‚

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Check in โ€“ Are You a Thankful Thinker in 2021?

Thank you, Jane! Today I am grateful to be in a warm house with a nice, warm sweater on!! 🥰

1 day ago

das23

das23answered the question What exercises are best for someone with COPD

Hi WomaninNH.....I'm just south of you in MA. My gym closed for Covid and never opened back up. I miss it. I hke in the hills near my home (Blue Hills) almost everyday. I also train at home-though not enough lately!!--I do a routine that includes-- …

1 day ago

Jimmy S

Jimmy Sanswered the question What exercises are best for someone with COPD

Hey WomaninNH, I do the following weekly and have been for about 12 years now.I have a schedule that fits my needs and will gladly share it with you. I get on my stair stepper bike on Mondays, Wednesdays, and Fridays.Tuesdays and Thursdays I do light …

1 day ago

Jane M. Martin

Jane M. Martinanswered the question Check in โ€“ Are You a Thankful Thinker in 2021?

Thank you, Phyliss, Blair, Debbie, Lauri, Kandy, and Caroline, for sharing your lists of what you are thankful for. As I read them, my heart overflowed with love and appreciation for all you do, and for all you are. In addition to being thankful for …

1 day ago

Caroline

Carolineanswered the question What exercises are best for someone with COPD

I have an upright bike that I use when I cannot get out and walk, or just do not want to go out to walk. I also have some stretching and strengthening exercises that I got from my doctor and from Jean053. I I also have some exercises that I can follow …

1 day ago

jctraveler

jctraveler

Are there any new treatments for chemical sensitivity other than avoidance/medication? Would love to hear about any studies for possible desentization to environmental irritants! โค
I've gotten pretty good at finding household & personal care items that don't set me off. I've even found new vinyl flooring options that claim Green status, low-no VOC's. It would be nice to have an option to calm down my immune system so I'm not constantly worrying something I'm exposed to will send me into a tailspin. Thanks for this forum and all the positive comments and feedback. The pet pics are super ๐Ÿ˜ 

1 day ago

Jimmy S

Jimmy SHappy Monday! Start your work week on a positive note:Just Breathe! Thatโ€™s it! Easier said than done for some of us, but we have the correct tools and the best knowledge of how to reach that positive note. So Just Breathe!Look forward to Mondays with enthusiasm and motivation! The start of a week should be a good motivator to live each day to the fullest. Start Mondays with the thought that something great is going to happen today!And if you need a smile this Monday, I have many to share with you.Motivation is going to get you through this Monday and here's the kicker, it can be found in every aspect of your life. Raining outside? Great, time to start singing. Sun is shining and you want to be down the park or beach? You'll find that implementing small changes can have a significant impact on your life. Remember - little hinges swing on big doors.Every day is different, and some days are better than others, but no matter how challenging the day, I get up and live it.

1 day ago

jctraveler

jctraveler

Much better! Thanks for all the good wishes last week. ๐Ÿ˜‡

1 day ago

JeanO53

JeanO53answered the question What exercises are best for someone with COPD

I too stopped going to the gym during the pandemic. During this time I've been using the exercises shown in the videos that BlairT mentioned, plus stretches/exercises I learned in physical therapy to strengthen the core muscle groups that …

1 day ago

BlairT

BlairTanswered the question What exercises are best for someone with COPD

There are lots of options for exercise at home. Your bike can be used for a good cardiovascular workout. I love our upright bike, I use that with a heart rate monitor to keep my workout challenging but not too hard. I also keep my oximeter close so I can …

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question What exercises are best for someone with COPD

Before you start any program, check with your doc to be sure that you know if you have limitations or things you should watch out for. People with COPD need to do exercises that help them increase their endurance and stamina. For most of us that's …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

It's Motivational Monday!!! ๐ŸŽŠ
Since Christmas will be here before we know it, it's a good time to write out our card lists, gift lists,  and figure out what we'd like to bake. 
I hope you have a happy, productive, easy breathing day, friends! ๐Ÿฅฐโค๐Ÿ’™๐Ÿงก

1 day ago

WomaninNH

WomaninNHasked the question: What exercises are best for someone with COPD

I am asking anyone on this site for help understanding what the exercises are that someone with copd can do to keep from deconditioning. I have a recumbent bike that I have been using, I quit going to the gym due to covid still being ouit there so I just …

1 day ago

Donald F.

Donald F.answered the question How to feed toothless 92-year-old

HI Carol S. Sorry to hear about you Mom. I am 77 and underweight. Thanks to this group suggestions I am holding what wight I have. Make smoothies. I use 3/4 cup milk, ice cream and Carnation instant breakfast mixed in a blender. Creamy peanut butter, …

2 days ago

Basslaker

Basslaker

In desperate search for battery for Claire Freestyle poc! Have gone back to work and my battery konks put after 2.5 hours. I donโ€™t have anywhere to charge it during work and the.
 D m g provider claims they are none without buying a new machine.  NO way I can do that. Can anyone help me? I have spent hours online searching. 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question How to feed toothless 92-year-old

Hello! I think if she likes yogurt, it would be beneficial because of the acidophilus. If she eats it a while before she lies down, this should be okay. How about pastina, and cream of wheat? If she can tolerate beans, they can be mashed with a fork. …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question How normal is this?

Thank you, Dave and LFAOMGA!!! I couldn't find friends any nicer than you! 💙โคโค💙

2 days ago

Jimmy S

Jimmy Sanswered the question How to feed toothless 92-year-old

https://www.mskcc.org/cancer-care/patient-educatio...

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question How to feed toothless 92-year-old

I'm so sorry about your mom and her situation. How about Jello, mashed potatoes, puddings,ice cream or sorbet, ripe bananas, - basically anything soft.

2 days ago

Jimmy S

Jimmy SGood Morning Everyone.Letโ€™s face it: feeling inspired every day can be tough with our modern, hectic lives. Fortunately, a little inspirational pick-me-up is all it takes to realign yourself with love and joyful purpose. โ€œOn this Sunday, let us take a few moments to stop and thank God for all of the beauty that is in this world.โ€ โ€This is your Sunday morning reminder that you can handle whatever this week throws at you.โ€โ€Itโ€™s a beautiful Sunday morning and a great opportunity to thank the Lord for reminding us how blessed we are.โ€โ€œItโ€™s time for everybody on the planet to heal. So, stop talking negative about politics, youโ€™re giving yourself cancer. Stop being mean to each other because youโ€™re giving cancer to the worldโ€ฆ because your body is not meant to take it on.โ€ Rev. Norm

2 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question How normal is this?

Hi BrittanyKathleen, So sorry to hear you are having a hard time with breathing and wheezing daily. Could it be something in your environment? I am always affected by sudden rises or drops in the barometer. My apartment is also pretty dry normally, …

2 days ago

Carol S

Carol Sasked the question: How to feed toothless 92-year-old

My 92-year-old mother was just told she has COPD. Apparently when she had TAVR two years ago it was discovered but never dealt with. She has had a chronic cough for about 6 years - but her mother also had a chronic cough for the last 10 years of her life …

2 days ago

luckymilt488

luckymilt488

Have a very wonderful great blessed day everyone.

2 days ago

PatsyK9

PatsyK9

Have been using Dulera (morning 2 puffs) and evening Spiriva (Handihaler) for more than 10 years with no changes.  Cannot use Advair or Spiriva due to them causing severe laryngitis.  Thankfully I have Wisconsin state insurance that covers Dulera at $15 but always concerned that program could end or my $850 annual deductible could go higher that Dulera might become unaffordable.   Is there any word on a generic or a competitor to this inhaler that could cause a lower cost.  Retail here is just over $300 per inhaler.  Thanks for any info and HELLO, I'm new to this group.

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question How normal is this?

Hi, Britanny, One thing that no one has mentioned is that all of our meds only reduce the symptoms we have daily. None of them or any of them in combination will relieve them completely. There are lots of other things that also interfere with breathing: …

2 days ago

BlairT

BlairTanswered the question How normal is this?

Hi Brittany. Looks like you are getting lots of good advice above😊 What a great group eh? A couple more points to add from my experience. My PFT results bounce around, but typically I'm in the moderate range. Its not unusual to have some issues even …

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Sunday everyone!! 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question How normal is this?

Thank you so much, Brit and Val! Although we sometimes struggle, we do pull through and find all the amazingly wonderful things that life has to offer! You know what I always say...Keep on going! 💪 Have a great Sunday! 🙂 🌞

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question How normal is this?

BrittanyKathleen7, I agree that Debbie B has a fantastic attitude and is doing amazingly well with the circumstances sheโ€™s juggling. For me, Iโ€™ve been diagnosed with moderate to severe COPD (emphysema and chronic asthma) for over 20 years. Some days …

3 days ago


COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.