COPD360social welcomes new member MMH Library who joins 64,936 current members of our community. Weโ€™re glad you're here!

Shadwanda Rainey COPDF Research

Shadwanda Rainey COPDF Research

Opportunity for Colorado COPD Participants to Join a Treatment Therapy Study

The COPD Foundation is currently seeking individuals who live in Colorado and have been diagnosed with severe COPD [Have a lung function (FEV1) of 49% or less]. We invite individuals with Stage 3 and 4 COPD to participate in our study.

Your travel expenses will be paid (within the state of Colorado) and you will be compensated for your time.
 
By Joining, youโ€™ll not only benefit financially but also contribute to enhancing COPD care. 


Contact us today to learn more and to get signed up!
Email us at: COPDPPRN@copdfoundation.org.

Thank you for considering contributing to COPD research.

3 days ago

Wildebeest

Wildebeestasked the question: Adding LAMA to my ICS/LABA inhaler regime - physical fitness issues

I am seeing my GP in a couple of weeks to discuss my inhaler. I would welcome any thoughts from the community to consider before I go. There are 2 issues. The first is recurrent thrush and hoarseness from my current inhaler, which is dry powder. I will …

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

QUICK AS A WINK ๐Ÿ˜‰ SPRING SALAD4 large radishes1 cup fresh sugar snap peas2 tbsp. olive oil 1 tbsp. lemon juice 1 tsp. Dijon mustard Salt and freshly ground black pepper to taste One 7-ounce package butter lettuce blend Trim and thinly slice the...

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainToday I would like to wish a very special friend of ours a very HAPPY BIRTHDAY! 
Hope your day is as special as you are! We love you, Caroline West Virginia State Captainโ€‹!!

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday! Wake up with a positive outlook! What a great way to begin the day! Spread that positivity around everywhere you go, and to everyone you speak with! 
Enjoy this awesome day! ๐Ÿ˜ƒ

8 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Any recent reviews of the Zen-O portable continuous flow concentrator

Here's a website from the manufacturer with info about the Liberty 2. It is MUCH smaller & lighter than the Eclipse. https://www.o2-concepts.com/news/introducing-the-new-oxlife-liberty-2-poc I used it at a museum and didnโ€™t disturb any other …
Caroline West Virginia State Captain also answered the question Caroline West Virginia State Captain also answered the question

13 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™m grateful and very relieved. My HI lung doc is doing me a big favor and going to fit my H in to see him tomorrow before we are scheduled to fly to SF on Tuesday.  Itโ€™s really a relief since the ER didnโ€™t find anything they could treat but encouraged us to follow up with pulmonology or cardiology and internist. I feel extremely fortunate and hopeful!

16 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone here on 360Social a peaceful Sunday! ๐Ÿ˜Š

1 day ago

BrandyLynn

BrandyLynnAn unusual 'Fluffy Friday", pic. Not from this year, but a past spring. How beautiful is this moth who came to visit me?! I have a soft spot for all creatures. Happy Spring, and Happy Breathing, everyone! 

1 day ago

GAnne

GAnneasked the question: How long after a endoscopic can you do flutter valve

After having a endoscopic with 2 biopsies do you have to wait to do your flutter valve. GAnn

1 day ago

GAnne

GAnneanswered the question Had a endoscopic moved up to today, why do they have to dilate it 2 times?

thanks, Caroline and Karen I appreciate your input. Karen, I do believe youโ€™re right about doing it in two separate times because he did say in his notes that he tore a little bit of it, but it did not perforate. Praying that the biopsy he did is not …
Karen Deitemeyer - Florida State CaptainCaroline West Virginia State Captain also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

1 day ago

Ler111

Ler111

Hi Kier123,
Iโ€™m curious as to how youโ€™ve been doing over the past few months. Iโ€™ve had similar symptoms that you wrote about 4 months ago with SOB when talking, walking and talking etc, but can go for a run without any problems. Iโ€™ve had a bunch of tests done as well (still waiting for the full report) and Iโ€™ve got damage to my lungs from years of smoking, which I have now stopped, but doctor put a positive spin on it, but the SOB is still giving me anxiety and I too want to be around to see my young children grow up. Hopefully you have been feeling better and the SOB isnโ€™t the new normal! Thanks

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a very happy Saturday! Enjoy your day, friends! ๐Ÿ˜€

2 days ago

GAnne

GAnneasked the question: Had a endoscopic moved up to today, why do they have to dilate it 2 times?

I was so thankful when they moved up my endoscopic from July 8 to today. Everything went well as far as the procedure he did have to dilate my esophagus. He said that I had some twisting in there and he dilated it from a 24 to 54. But then I have to go …

2 days ago

BigCNV

BigCNVasked the question: Any recent reviews of the Zen-O portable continuous flow concentrator

I have been told there are only two machines that provide 2 liter continuous flow oxygen. The Eclipse - Sequel and the Zen-O . The Zen-O is much lighter which is preferable for travel, but the two reviews I found from a year ago indicate issues with …

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question What can cause big fluctuations in oxygen levels over different nights?

I'm not a pediatrician- PDAs in adults can result in low saturations. It sounds like you may need a second opinion or be evaluated at an academic center for a more complete evaluation.
Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captain also answered the question Caroline West Virginia State Captainand 1 other also answered the question

3 days ago

Jonnie Korinko (COPDF Director of Education)

Jonnie Korinko (COPDF Director of Education)answered the question Pulse oximeter accuracy when walking

Hi Kmcnamara68. First - it's excellent that you're staying active! That is one of the best things that you can do for your health! Second - check with your lung doctor, or even better, a respiratory therapist if you have one at your practice, to see …
HIcopd - Hawaii State CaptainCaroline West Virginia State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŒžMORNING GLORY MUFFINS๐ŸŒž2 cups flour1 cup packed dark brown sugar 2 tsp. baking soda1 tsp. nutmeg1 tsp. cinnamon1 tsp. salt3 eggs2/3 cup vegetable oil 2 tsp. vanilla extract 1/2 cup raisins, soaked in hot water and drained well2 cups grated...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Jason Rossi, who seems to have brought out his stash of treats. Looks as though he hid treats  throughout the week, and decided to bring them out of hiding! ๐Ÿ˜†
Jason and I are wishing all of you a wonderful day! ๐Ÿ˜€

3 days ago

baileymccrary

baileymccraryHello all! On March 18, we had 54 COPD and bronchiectasis patients, caregivers, loved ones, healthcare providers, and COPD Foundation and Bronchiectasis and NTM Association team members join us for IMPACT Lung Health 2026 in Washington, D.C. to advocate for support of our policy priorities from our lawmakers. Together, we held 101 meetings with legislative offices representing 28 states, 56 Senate districts, and 45 House districts. We spoke with our lawmakers about three critical priorities:
- Increase Funding for Lung Health Research and Promote Innovative Treatments through FY27 Appropriations Provisions
- Co-sponsor the Supplemental Oxygen Access Reform (SOAR) Act (H.R.2902 or S.1406) to Ensure Medicare Patients have Access to Essential Oxygen Therapy
- Co-sponsor H.R.783 or S.248 to Enact Permanent Medicare Coverage for Virtual Pulmonary Rehabilitation

We are incredibly proud of our team of advocates and the progress we made together for lung health in Washington, D.C.! If you'd like to virtually support IMPACT 2026, you can urge your lawmakers to support our policy priorities by visiting our Advocacy Action Center: https://www.votervoice.net/COPD/Campaigns/135958/Respond

We want to extend a special thank-you to our sponsors who made IMPACT 2026 possible! Thank you Boehringer Ingelheim, Chiesi USA, Inc., Insmed Incorporated, Sanofi/Regeneron, Theravance Biopharma US, Inc., and Viatris. Your support is greatly appreciated!

3 days ago

ADunneThing

ADunneThingasked the question: What can cause big fluctuations in oxygen levels over different nights?

My 16 month old son has low oxygen levels, especially when sleeping. He has had lots of investigation by the hospital and is on a trial of a penicillin for 4 weeks for lung infection - he is 14 days in. We have oxygen at home and a monitor. It is …

3 days ago

COPD Foundation Website Notifications

COPD Foundation Website Notificationsadded a new article Lains Albert

Welcome our newest COPD Foundation Captain!

4 days ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF Communicationsasked the question: Have You Heard About the IMPACT Lung Health Event?

Last week, members and friends of the COPD Foundation and Bronchiectasis and NTM Association patient, caregiver, and health care communities convened in Washington, D.C. for a day of lung health advocacy on Capitol Hill. Together, 54 advocates from 28 …

4 days ago

Liz Berger - California State Captain

Liz Berger - California State Captaincommented onProgress for Oxygen Access: SOAR Act Updates

Great post!! love the infographic that visually shows where we are in terms of the SOAR act becoming law. ...

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ’CHERRY HAM GLAZE๐Ÿ’One 12-ounce jar cherry preserves1/4 cup liquid honey1/4 cup red wine vinegar 1/4 tsp. cinnamon 1/4 tsp. nutmeg1/4 tsp. ground cloves1/8 tsp. saltPlace all ingredients in a medium saucepan. Bring to a light simmer over...

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, everyone! May your day blossom and grow into your best day ever! 

4 days ago

Dr Jean

Dr Jean

Great seeing so many of you at IMPACT last week.  You are such powerful advocates.  Love being with you

4 days ago

Kmcnamara68

Kmcnamara68asked the question: Pulse oximeter accuracy when walking

So long story short had battery of tests and heart is fine. I purchased a very expensive medical grade oximeter- Nonin 3250 OTC. My o2 drops rapidly when I start walking with it on and it is supposed to be accurate enough to do this. I mean down to the …

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.