Jean IA State Captain

Jean IA State Captain

I had a needle biopsy for a small growth on one of my kidneys this morning.  The biopsy showed some malignant signs, so they froze it and it will just become a little scar tissue, but basically it's gone.  Now they'll follow with CT scans at regular intervals.  Because of the time the procedure took, I was intubated, but aside from a slight irritated throat and some coughing right after i came to, no problems.

The funny part was with my liquid O2 dispenser.  We put it in one of the plastic bags they use for personal property, and I didn't think about it, but there was no ventilation, so all the LOX froze up in the unit, the bag began to fill up and make funny noises and all the LOX escaped! Scared the nurses in recover half to death!  Fortunately, Lincare came to the rescue by sending in of the guys to the hospital with a tank and cannula so I could go home.  Fortunately my delivery is tomorrow and they will bring me another portable unit, along with the reservoir.  Makes me think I perhaps should have used my POC for this adventure.  Note to self.............

1 hour ago

ddhort

ddhort

Recently purchased the Innospire Go, a small portable nebulizer.  So far an incredible machine.  Medication time went from about 18 mins. with the AC powered nebulizer provided by the healthcare company to 5 and a half mins.  The Innospire beeps and auto shuts off when medication is gone.  Anyone else tried this machine.  It's a bit pricey but at what cost if you're breathing improves!  

3 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRT

I just wanted to share here that my 14-year-old just got his first dose of the COVID vaccine on Friday. Other than being a little tired, he has had no issues. I thought some of you might have children or grandchildren who are thinking of getting it and wanted to share our positive experience. 

4 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTREMINDER!!! This Thursday we will have a COPD support group meeting. We call them COPD360 Social Hours๐Ÿ˜Š The meeting will begin at 5:00 pm Eastern! Register here: https://www.surveymonkey.com/r/KMW5MFD


I would love for you to join us and meet others who are living with COPD,  too! 


This is a free event and all are welcome!

5 hours ago

JeanO53

JeanO53

I'm scheduled for cataract surgery tomorrow morning - 6:30 a.m. Much too early, but I've been waiting more than a year to get this done, so I couldn't turn down the appointment. I'm feeling a bit anxious, but excited at the idea of being able to see more clearly. And when the other one is done in July, I'm looking forward to being able to drive at night again. ** deep breath **

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Well- Friday is the big day here! I get to say adios to this event monitor! ๐Ÿ‘‹ It will be 30 days of wearing it. I won't miss it one bit. ๐Ÿฅณ The treadmill stress test with ecco/doppler is scheduled for the 22nd. But first. Sunday at 11 am. I must go get a Covid test. 
Freckles is going to her vet this Thursday afternoon.  
Hope all is well, and everyone has a reason to smile  ๐Ÿฅฐ

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

edpe77โ€‹
Hey Ed! I hope everything is going well for you. I know first hand what it's like to have a high pulse rate.  It's very uncomfortable. Please keep us posted on your condition. We all love you, my friend! ๐Ÿ’™

5 hours ago

JeanO53

JeanO53It was a beautiful day on my piece of the planet today; sunshine, blue skies, high 60's, a light breeze and very little humidity.  An easy breathing morning; what a joy.
.. I was up and out early, and headed to to the Mill Pond.  Everything in the area is lush and green.  There were several different groups of Mallard ducklings, who are so much fun to watch.  There was also one Great Blue Heron, though at first she stood still so long that from a distance I wondered if I'd mistaken it for a piece of driftwood.  It turned out that she was standing so still because she was out fishing for breakfast. 
.. A morning well spent... 

5 hours ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Hi Everbody 
Hope ya'ens are all well . Ima still movin. My free spirit has left me . I do think the Lord for each day that I wake , even though I no it's goin ta be a challenge just ta get up.  I have been speakin ta my old GP bout palliative care and it bothers me cause it feels as if I am givin up . And of all thins in the middle of everthin else ima havin a Respiratory infection.  Ima on breathin treatment's multiple each day and have been since December when my life as i knew it ended . I can't talk bout alk of this again it brings me ta tears , thinkin how involved I was here when I first found 360 . Now I have no advice.  Love ya'ens all. 
Lorrie 

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

Hi Caroline! ๐Ÿ‘‹ Please do let us know how your meatloaf turns out! Secretly, I know it will be magnificent! ๐ŸŒŸ ...

6 hours ago

Caroline

Carolineasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

I love sausage, but it does not like me. Ground beef would probably also be good. I am making crockpot meatloaf. I will let you know how it turns out. It smells very good....

6 hours ago

Jean IA State Captain

Jean IA State Captainasked the question: Diagnostic decisions: what is spirometry and why is it important?

Usually you get a percentage number for your FEV1. If your FEV1 is 50%, that means that half the people who are your same weight, height, age, sex and ethnicity have better lung function than you do and half are worse. You're right in the middle. ...

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWhat's for supper tonight at DebbieB.'s house? Check my Eating Well cooking blog for the recipe! ๐Ÿฝ

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

SAUSAGE AND PEPPER BOATS You can use red, orange, yellow and green bell peppers,in any combination. Remove the stem and seeds from the peppers. Cut each pepper in half, lengthwise. Place pepper halves in a large pot, and fill most of the way with...

8 hours ago

Lilypat

Lilypat

Not well today. Been feeling scared about where this COPD is headed. 

8 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question How Much Do You Know About Bronchiectasis?

Having asthma, emphysema, chronic bronchitis, I was diagnosed with bronchiectasis in 2014 with a new pulmo. I was subscribed zpak after having a hearing test as one of the side affects of zpak is hearing loss. Well I have lost complete hearing in my …

12 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Whacked out

I also seem to nap after my dinner I get in my chair and trying to watch my favorite soap opera but most times I have fallen asleep and missed most of it. I never ever used to nap.

12 hours ago

TXBlue

TXBlueasked the question: Diagnostic decisions: what is spirometry and why is it important?

Thanks for this explanation; I have access to my test results in my patient portal, but have never really understood the doctor's explanation -- One ? I still have after this article: If, say, your FEV1 ...

13 hours ago

Eddie 7

Eddie 7answered the question Whacked out

Thank you so much for your time Jean, Blair and edpe.. Very useful indeed and with plenty for me to work on. I need to change things. Fatigue and all it's pointless manifestations are a particular nightmare to me and the absolute antithesis of who I am, …

14 hours ago

Cartman

Cartman

Dealing with the disease is very difficult and we all know that,and we are all fighting back as best as we can. But where I'm losing ground is mentally. It's weighing on me heavily and I just don't know what to do. Sometimes I feel like just giving up. How do we cope? What are some things I can do that will help me improve my  outlook? The quiting smoking is a struggle all its own. I gain a couple of days only to give them back and then start over again. It's a revolving door that I can't seem to get out of. What has to happen for me to be hospitalized to get the help I need? Can I just ask to be hospitalized or do I have to wait until I'm brought in by ambulance to be hospitalized?. How bad do things have to get before a doctor has me admitted? I'm afraid if ask the doctor to admit me that he will say I'm not ready for a hospital yet, or if I walk into the ER that I will be turned back. If they don't keep me for at least 48 hours insurance won't cover it and and I can't afford it any other way. They won't let me talk to my doctor without making an appointment even when all I want to do is ask a question about when I should be hospitalized. I need help.

15 hours ago

whateverman

whatevermananswered the question Newly diagnosed with emphysema at 24

Hello and thanks everyone,i just visited a pulmolnologist and she said there are 5-6 "small emphysemas" on upper part of my lungs and i need no treatment or anything,just stay off cigarettes and eventually do another scan in 2-3 years just to see if they …

18 hours ago

edpe77

edpe77answered the question Whacked out

Ive been a fan of afternoon naps, to the point I cant wait until my lunch is over so I can take my nap. Now it's more a habit than a need. My close friends work their contacts arounf my afternoon naps. As I don't have a phone near. If they call, it goes …

21 hours ago

BlairT

BlairTanswered the question How Much Do You Know About Bronchiectasis?

With my conditions (Chronic Bronchitis) I have wondered at times if I might have bronchiectasis. I have had a "CT scan" twice and my pulmonologist has not mentioned this. Do you think that the 'HRCT scan' you mention above is the same thing? Would it …

22 hours ago

BlairT

BlairTanswered the question Check in โ€“ Have you seen the COPD patient-track mobile appโ€ฆ?

I haven't tried the app yet but there is a boatload of good recommendations in this post. Thank you Jane. I have bookmarked this note for further followup when I have some time. One inhaler tip that I have concentrated on this last few days is, " Expel …

22 hours ago

BlairT

BlairTanswered the question Whacked out

Having an almost overwhelming desire to sleep at various times in the day is something that happens to me periodically, once or even twice a day when my conditions are bad is not uncommon. I am in the fortunate situation now where I can do that if …

22 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Whacked out

A couple of things occur to me: one is to really think about what you're doing and how you approach things. Are you a "give it everything you've got" sort of person and do you approach pretty much everything in your life that way, or at least some …

1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question Iโ€™m curedโ€ฆ.No- But Moving in right direction.

beclomethasone (Qvar) budesonide (Pulmicort) budesonide/formoterol (Symbicort) โ€“ a combination of a steroid plus a long-acting bronchodilator drug ciclesonide (Alvesco) fluticasone (Flovent HFA) fluticasone propionate (Flovent Diskus) …

1 day ago

JAH5001

JAH5001answered the question Iโ€™m curedโ€ฆ.No- But Moving in right direction.

What are the names of the inhaler with a steroid? I have SOB real bad. John

1 day ago

Eddie 7

Eddie 7asked the question: Whacked out

Hi Everyone, So pleased to talk to youthis evening. I've been having rather a rough time of it lately and would loveto understand what is happening physiologically.Several times a day, usually after exercise, whether that be shopping or cycling,I become …

1 day ago

Peapicker16

Peapicker16

Any programs help with daliresp medications while on Medicare the website for daliresp says part d canโ€™t apply. 

2 days ago

COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.