COPD360social welcomes new member azedine who joins 64,091 current members of our community. Weโ€™re glad you're here!

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Where do we tune in to watch the โ€œGreat Baton Passโ€ for today, World COPD Dayโ€?

2 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒ Visit My Corner of the World Wednesday!

Itโ€™s Wednesday โ€” time to share a view from your corner of the world! ๐Ÿ“ธ
Show us one of your favorite spots โ€” a place that makes you smile, brings you peace, or just reminds you of home.

Whether itโ€™s a sunrise, a cozy corner, or a moment that brightened your day, weโ€™d love to see it! Letโ€™s fill 360social with the beautiful views and good energy that make our community so special. ๐Ÿ’™โœจ

Whoโ€™s ready to share their corner of the world today? ๐ŸŒŽ

6 hours ago

Annmarie25

Annmarie25

Im okay. Trying to stop smoking. I had a half a cigarette and i threw it away

2 minutes ago

Tg10

Tg10

It's been awhile,  ct in April was good.  But i got sick and had an ear infection and after antibiotics is gone but the fluid is still there.  Now i have both ears hurting. The right one looked normal they said, the left looks cloudy.  Ct of my head shows effusion left mastoid and middle ear with possible cholesteatoma. Now waiting on an mri. But that doesn't explain the right ear also in pain.  See the ent in 2 weeks.  I've had a history with the left but no issues with the right before.  No issues eating or swallowing.  No lumps or bumps in my neck.  Had an ent scope me 2 years ago, all was ok then. Never had both ears hurt like this before.  I'm worried about this.

3 minutes ago

Shazam

Shazam answered the question Best Air Purifier for Pets 2025 | Choose the Best

Iv had a winix air purifier for 3 yrs and wouldnโ€™t be without it I never turn it off itโ€™s on 24/7 and I can feel the difference in air quality Not the cheapest but I keep mine on auto itโ€™s very quite and I donโ€™t even know itโ€™s in in the room

12 minutes ago

Keir123

Keir123answered the question PFT findings -air trapping, any comments?

Thankyou Wildebeest! Your comments are always welcome and somewhat reassuring. Yes, the hyperinflation figures don't look really really bad...I think I've always had a big rib cage. Not sure what to expect of the appointment, but 'something actionable' …
WildebeestDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Phyliss DiLorenzo NJ State Captain also answered the question Wildebeestand 2 others also answered the question

42 minutes ago

Splash4175

Splash4175

Not so great  ! In and out of ER and hospital frequently with exacerbations, my pulmonary Dr at Mayo said couldnโ€™t cure me but could make me comfortable , itโ€™s been 9 months and seems to be getting worse . Missed my appointment last week as was at local hospital. Keep up the faith , lots of trials and new meds as so many people with copd . The hardest part not being able to do things for my self. Always been so independent , hard to make myself ask for help ! Make sure you take advantage of all resources out there . I now have a bath lady , she helps to prevent falls , gets everything ready , etc. I was supposed to have a person 3 1/2 hours week to do laundry , change bedding, run errands or clean , have not had for 8 months now as no one available in my rural area . They just informed me they now have someone and she will be starting Dec 3 . Iโ€™m so excited ! 

50 minutes ago

Community Announcements

Community Announcementsadded a new article Katarzyna Chmiel

Welcome our newest COPD Foundation Captain!

1 hour ago

brydy

brydyanswered the question Walking

amazing Dinna! you are doing so well & an inspiration for others. exercise really does help. so glad you are feeling a lot better.
Dinna25GAnneWildebeest also answered the question Dinna25and 2 others also answered the question

2 hours ago

Pat from Gort

Pat from Gort

My partner has just been diagnosed with COPD has anyone found supplements useful? If so which ones please?

4 hours ago

Community Announcements

Community Announcementsadded a new article Early detection, increased awareness key to improving health for people with COPD

Annual World COPD Day is November 19

Miami (November 19, 2025) - The COPD Foundation joins lung health champions around the world in recognition of World COPD Day today, November 19 to raise awareness, share knowledge, and take action to reduce the burden of chronic obstructive pulmonary disease worldwide.

COPD comprises several conditions, including chronic bronchitis and emphysema, and can be caused by genetics and irritants like smoke or pollution. The disease affects more than 30 million Americans and is the fourth leading cause of death worldwide, yet awareness of the disease's symptoms, methods to reduce risk, and disease management remains poor. Symptoms include breathlessness, fatigue, and chronic cough.

This year's World COPD Day focuses on "Short of Breath, Think COPD" and highlights the importance of early diagnosis of COPD. While COPD is common, many people are undiagnosed or misdiagnosed, leading to them not receiving appropriate treatment and care. Earlier diagnosis can result in improved outcomes, including reduced impact of symptoms and improved lung function and quality of life.

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐Ÿฅ„ORANGE TEA๐Ÿซ–๐Ÿฅ„2 cups water1 cinnamon stick1 star anise2 tsp. tea leaves1/2 cup freshly squeezed orange juice Sugar, as desired2 orange slices Heat the orange juice with your desired amount of sugar, in a small saucepan over medium...

6 hours ago

Tina M Moyer

Tina M Moyer

๐Ÿงก  Happy World Copd Day! ๐Ÿงก


Every one at my workplace will be wearing orange!


Cant wait to see what the day brings...


We are the Warriors 

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy wonderful Wednesday! Since November is COPD Awareness Month,  here we have an explanation of the 2 types of COPD. 
You can learn alot about COPD by clicking on the LEARN MORE tab at the top of the page. 
Have a pleasant, easy breathing day, friends! ๐Ÿ˜€๐Ÿงก

11 hours ago

LadyG

LadyG

Hello Everyone, Once again I am coming here begging for your counsel. I was diagnosed with mild COPD in July, (a diagnosis that I am fairly certain is either incorrect or that is not all that is wrong with me.). As I have been navigating through all of this I am becoming more and more depressed, (yes I see a therapist), as time goes by but I refuse to give up the fight!! You see, I am struggling desperately to find the right medicine(s). We initially tried Anoro but it made me feel like I was constantly having a heart attack. The we tried Bevespi, it worked a tiny bit but not much. The we tried Symbicort, Spiriva and albuterol. I was in the Emergency Room repeatedly with rapid heart rate and heart palpitations! Then we went back to Bevespi, Levalbuterol and prednisone but the steroid made my heart go crazy so they tapered it til I was off. Now I am on Bevespi and Levalbuterol and I feel pretty bad nearly all the time.  I'm really short and small, and because I am so tiny, a little bit of medicine tends to go a long way for me. These meds are not working and I'm so tired of living like this! Does anyone have any suggestions about a Steroid free way? Maybe a medication that I haven't tried that may work? Something that won't cause me to have heart issues? Please ๐Ÿ™

19 hours ago

LadyG

LadyG

Hello Everyone,Once again I am coming here begging for your counsel. I was diagnosed with mild COPD in July, (a diagnosis that I am fairly certain is either incorrect or that is not all that is wrong with me.). As I have been navigating through all of this I am becoming more and more depressed, (yes I see a therapist), as time goes by but I refuse to give up the fight!! You see, I am struggling desperately to find the right medicine(s). We initially tried Anoro but it made me feel like I was constantly having a heart attack. The we tried Bevespi, it worked a tiny bit but not much. The we tried Symbicort, Spiriva and albuterol. I was in the Emergency Room repeatedly with rapid heart rate and heart palpitations! Then we went back to Bevespi, Levalbuterol and prednisone but the steroid made my heart go crazy so they tapered it til I was off. Now I am on Bevespi and Levalbuterol and I feel pretty bad nearly all the time. So m so tiny that a little medicine goes a long way for me. These meds are working and I'm so tired of living like this! Does anyone have any suggestions about a Steroid free way? Maybe a medication that I haven't tried that may work?  Something that won't cause me to have heart issues? Please ๐Ÿ™๐Ÿป

19 hours ago

  • NewestOldest
  • brydyHi LadyG, only your doctor who has your full medical history can really recommend what medications would help/work for you. my pulmonologist has trialed me on quite a few to figure out what works best for me but wouldnt necessarily for someone else. im glad that you saw a cardiologist & ruled out any problems there. I dont think bevespi contains corticosteroids but some bronchodilators can raise heart rate a little. I really hope you are able to find some answers & sorry you are continuing to struggle. please give your doc a call & let them know how you are feeling. 14 hours ago
  • JazzybeanHI LadyG
    I don't have any answers but would offer this. I was diagnosed with COPD emphysema in 2013. AT the time, I was told that many of the medications for COPD work really well for people who have mostly airway disease as the main component of their COPD, since the medications work to reduce the inflammation in the airways. They may not be as effective for someone with mostly emphysema which is my form of COPD. I am only offering this as another way to think about the effectiveness of the various inhalers that are designed to treat COPD. The next time you talk to your doctor you may ask him about this, specifically, how YOUR form of COPD could impact the effectiveness of the various medications available. COPD is such a systemic disease as well as such individual disease that your COPD even though it has the same name as mine, is not the same disease. And, as such the other symptoms you are experiencing, may or may not be a result of your COPD diagnosis. This disease is scary, frustrating and yes, can make you fee very lonely. As you walk the path, you will find answers, but, unfortunately, this may take time. I wish I had a better answer for you, but, keep searching and let us know as you learn along the way. None of us on here can give you a definite answer, but, we can all learn from little bits and pieces we learn and then pass it on.   5 hours ago
brydy

brydyanswered the question Pulmonary function test results

Hi Jazzybean, Im not a doctor just a patient but my PFT results vary somewhat & I think thats pretty normal that they arent the same everytime. maybe one of the clinicians here can explain how much variation is expected but i know mine are never …

22 hours ago

Jazzybean

Jazzybeanasked the question: Pulmonary function test results

Hi, so I just got the results of my pulmonary function test. I was surprised to see that the results were actually better than two years ago, not much, but better. That surprised me because I have been feeling worse and more limited. Now that I have had …

22 hours ago

JD85

JD85answered the question Not a question, just need to talk

Anne, to be honest I understand your reluctance about therapy, I'm definitely not a good candidate either, but it does allow you to talk to someone who can see your situation without emotion and listen, it's really key, especially with worry etc, I …
JeanO53Karen Deitemeyer - Florida State CaptainCaroline West Virginia State Captainand 2 others also answered the question JeanO53and 4 others also answered the question

23 hours ago

Community Announcements

Community Announcementsadded a new article Steven Dylan Hubbard

Welcome our newest COPD Foundation Captain!

23 hours ago

Jamie Jarrard

Jamie Jarrard created the event OxyTalk Social Hour - Wednesday, Dec. 10, 4pm Eastern

Wednesday, Dec. 10, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

23 hours ago

Jamie Jarrard

Jamie Jarrard created the event BronchandNTM360social Coffee Break - Wednesday, Dec 10, 2:30pm Eastern

Wednesday, Dec. 10, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

23 hours ago

Jamie Jarrard

Jamie Jarrard created the event COPD360Social Hour; Harmonica Play-Along: HOLIDAY PARTY- Wednesday, Dec. 3, 4pm Eastern

Join us for a special HOLIDAY themed social hour! We will be sharing favorite holiday recipes, and playing along to a holiday song! A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your …

23 hours ago

Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)

Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)Hello, all! We're still looking for a few more people who might be interested in a short Harmonicas for Health session tomorrow (Wednesday, 11/19) at 11:00am Eastern. We're presenting H4H as part of the World COPD Day Big Baton Pass, an international event meant to show the importance of staying active with COPD and the many ways people can add on to therapies like pulmonary rehab to keep up their activity levels.

If you are interested, please register for our Zoom meeting at https://us06web.zoom.us/meeting/register/pkiI4TkjRvCJlGCGV3qIMQ . We'll be doing a brief education piece to start off, so you don't even know how to play! 

Learn more about the Big Baton Pass and watch the other "legs" on their website at https://www.copdbatonpass.org.

Welcome! You are invited to join a meeting: Big Baton Pass Harmonicas for Health. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: Big Baton Pass Harmonicas for Health. After registering, you will receive a confirmation email about joining the meeting.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐ŸŠCANDIED ORANGE PEEL๐ŸŠ๐ŸŠ"Quite an a-peel-ing recipe!" You can use this in fruitcake and cookie recipes. You can place some in fancy jars and give as a holiday gift! 3 large navel oranges2 1/2 cups sugar, divided 2 cups water, plus more for...

1 day ago

JD85

JD85answered the question Emphysematous Changes On CT Incidental Find

Update, it's been 3 months since my last one. So I've continued with my Cognitive Behavioral Therapy and my mental health specialist has stated it's not typical health anxiety as I have an autoimmune condition and it's never bothered me, I've had good …
brydymony072Karen Deitemeyer - Florida State Captainand 2 others also answered the question brydyand 4 others also answered the question

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainNature is so amazing. We are supposed to be getting snow in about an hour, but there is no precip hitting the ground.  But behind my house was a whole rainbow.  7 am

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy terrific Tuesday, friends! Did I hear someone say that orange is their favorite color overall? Well, I can surely understand why it would be! Orange is the color of COPD Awareness! November is COPD Awareness Month, in case you haven't heard! Wishing everyone a mighty fine day! ๐Ÿงก๐Ÿ˜€

1 day ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.