Bill Clark - Community Manager

Bill Clark - Community Manager

The COPD Foundation is working with a partner to create education on COPD treatment. In order to best create these materials, we would like to hear more about your perceptions of different types of COPD treatment. If you have COPD and are interested, the following link will take you to a survey about your experiences with different COPD treatments and conversations you may have with your healthcare providers. The survey should take approximately 10 minutes to complete and you will receive a $10 Amazon gift card if you are found eligible and complete the survey. We thank you for your interest and your time! https://www.surveymonkey.com/r/VLQ6TC8

23 hours ago

JeanO53

JeanO53answered the question Problem with website

netmouser - I'm so sorry that you're struggling with this. Fortunately, I've not experienced any problems with my log-in here; I know how crazy making that can be. These days, with conducting so much business online, I have so many different …

13 minutes ago

Vinny M

Vinny Manswered the question Problem with website

netmouser - Sorry, there's no way for us to know your specific browser configuration, so can only provide general suggestions. It's very difficult, if not impossible to come up with a 'one size fits all' solution for every issue that one may …

1 hour ago

Camila50

Camila50asked the question: COPD Symptoms

For the ones who have been officially diagnosed with COPD. What were your symptoms

1 hour ago

DanK

DanK answered the question Has anyone on this forum had the Zephyr valves installed?

I had 5 installed in upper left lobe last February 20th. Had a pneumothorax in lower left lobe and spent a total eight days in hospital and three more days of bed rest at home. Iโ€™ve written pretty extensively on other threads about the whole process …

1 hour ago

netmouser

netmouseranswered the question Problem with website

Vinnie, the problem is not "out there". This is not clearing my browser cache. And yes I check to remember me password. Other websites don't have this problem here, and I use many.

2 hours ago

Docslave

Docslaveasked the question: What is am acceptable co2 lvl to be released from hospital?

My mom suffers from final stage copd. Admitted to hosp with co2 of 92 thru art. Bld gas. She has been in for 2 days and they looking to release her She was halucimating, confused, anxious. The staff thought she was ae to answer questions. Frankly I …

2 hours ago

netmouser

netmouseranswered the question Another website problem

Since you know me, can you please turn on edit for me. Can you determine and recover my prior account. I don't know what you can do as it is something you have not offered to do. I don't know other websites with this tight a control Even Yahoo, and my …

2 hours ago

Vinny M

Vinny Manswered the question Problem with website

Unfortunately, in todayโ€™s day and age certain security procedures need to be in place. Perhaps you are clearing out your cookies and browser history? Did you check the Remember Me check box on the login form when you logged in? As I mentioned earlier, …

2 hours ago

Vinny M

Vinny Manswered the question Another website problem

Thanks for your comments and sorry about your frustration. However, the lack of ability for a new user to edit their comments is in place to protect the community against a popular tactic used by spammers.

2 hours ago

Sassycat

Sassycatanswered the question Problem with website

I am confused. You lost your login and password - both? It is the norm for any site that after a time of in activity you will be logged out and have to log in again. Almost every site I use does this.

2 hours ago

Sassycat

Sassycatanswered the question Another website problem

Why did you make a new profile?

2 hours ago

netmouser

netmouserasked the question: Another website problem

I posted further comments on the prior topic about this website problems logging on. Now with a new log on I CANNOT EDIT MY OWN POSTS ANYMORE. Please give me back that ability. A new user should not lack ability to edit their own comments. It should not …

5 hours ago

netmouser

netmouseranswered the question Problem with website

And now, I just have to laugh. After I just posted the above comment with problems yesterday, I now got the HELP with password pop-up. Why today? A little delayed? Things need to change.

5 hours ago

netmouser

netmouseranswered the question Problem with website

Vinnie, you repeat what was said before. It does not help. Others have the problem too. It is a problem that needs correction. Other websites do not do this, and I use many. Removing login ability is not needed for security. Or push it out to a month. …

5 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question COPD-Im feeling confused

Iโ€™m sure a good pulmonologist can make sure you have a proper Pulmonary Function Test and imaging tests to confirm or rule out the correct diagnosisโ€”asthma, COPD or something else. Good luck and Iโ€™m very glad youโ€™re going for a 2nd opinion and a more …

9 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Non-Smoker-Has anyone been diagnosed with COPD and has never smoked?

Yes, there are those of us who have never smoked, mostly breathed clean air without chemicals and lung irritants, no environmental exposures but still have COPD. Iโ€™m one such person and have lived pretty well with it for 20 years now. To this day, no …

10 hours ago

Nelly2019

Nelly2019answered the question COPD-Im feeling confused

Thank you. The whole reason i signed up on here was to ask that. I was confused on how i got the diagnosis, ya know?

12 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question Non-Smoker-Has anyone been diagnosed with COPD and has never smoked?

There are so many factors that I've read about non smoking COPD, as das23 mentioned on the hazmat calls he went on. I worked with a carpenter when I was around 12 or 13 sweeping and breathing in asbestos slate shingles, being cut broken and torn off …

14 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Non-Smoker-Has anyone been diagnosed with COPD and has never smoked?

You're not alone; about 25% of the people diagnosed with COPD never smoked. There's also the issue of I smoked for 30 years and quit in 1992. I have COPD. There are probably thousands of people who also smoked for 30 years and quit in 1992, but I have …

14 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question COPD-Im feeling confused

The definitive disgnostic tool for COPD is a spirometry or Pulmonary Function Test. CT scans can give indications and are often used to determine where the damage demonstrated by a spirometry test is actually located. Until you have that sort of …

14 hours ago

Steve47

Steve47commented onHow Are CT Scans Used in Detecting COPD?

 99 bucks!Wow just paid NZ$975 for one as the alternative is a never ending waiting list through the health service....

15 hours ago

Nelly2019

Nelly2019answered the question COPD-Im feeling confused

Although i dont agree with the 20 year smoking history or workplace polluted air, thank you everyone

16 hours ago

Mar62472

Mar62472

โ˜บ

17 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question Problem with website

I would suggest making one "1" password with an @ or hashtag # or dollar sign $ one capital letter and at least one number. You shouldn't really write down passwords in a notebook. "Copd$360" for instance

17 hours ago

Kayaagain

Kayaagainanswered the question Problem with website

Thanks Muddleaged! I keep on Forgetting where I put my notes. A small notebook would help With that. Trying to remember Is a big challenge. Kaya (:

17 hours ago

Kayaagain

Kayaagainanswered the question Non-Smoker-Has anyone been diagnosed with COPD and has never smoked?

I never smoked but friends and Family members did. Mixed chemicals for a photo lab without using a mask. Before Laws changed smokers in my House would smoke in dining room. Now only ones who hide In bathroom smoke inside. Kaya

17 hours ago

muddleaged

muddleagedanswered the question Problem with website

Thank goodness for my password book! I got a little notebook, put A on the first page (for companies like Amazon and Alibris) and B on the next, etc., for the company/website. Whenever I get a new login name and password I record it faithfully, …

17 hours ago

Kayaagain

Kayaagain

๐Ÿ˜‹ Supper was spaghetti & butter
Toast with tea & water. Very good
But not going to lose weight this
Way. Kaya ๐Ÿ’ƒ

18 hours ago

Kayaagain

Kayaagainanswered the question Problem with website

That must have been what happened to me too. Not Having enough time to login Every day I was locked out. And getting older has made it Hard for me to remember what I just texted. Kaya

18 hours ago

JeanO53

JeanO53

Hi all -- Thought I'd check in.  I'm up and about for the first time in about a week.  This cold really hit me hard ๐Ÿ˜ท, but today it feels like I've turned the corner. ๐Ÿ™‚    Went to see my pulmonologist today for my regular 6 month check-in and was happy to hear that my lungs are clear; feeling very grateful for that.  I was a bit worried about it turning into bronchitis or something more serious.  
     I did a little shopping afterwards to pick up a few items (fresh fruit!!!) and am totally wiped out.  Looking forward to having an orange and then a nap.      Later....๐Ÿ‘‹

20 hours ago

Ben A

Ben A

The Stagnant Air Advisory in Portland has FINALLY been lifted and just in the nick of time because this dirty air has been seriously kicking my butt.  Any activity outside the house (even as minor as wheeling my garbage can twenty feet from the garage to the curb) has been leaving me panting and SOB.  Hopefully, we can now return to "normally dirty" city air....

20 hours ago

Kayaagain

Kayaagain

๐Ÿ˜ŠHaving trouble breathing as Smokers are home. Some wear Cologne which makes it worse.

Kaya๐Ÿ’ƒ

20 hours ago

Lungguy

Lungguyanswered the question COPD

COPD should not be diagnosed without a couple of spirometry tests showing airway obstruction after Albuterol AND a twenty plus year history of smoking or workplace exposures to polluted air.

20 hours ago

Nelly2019

Nelly2019answered the question COPD

Yes, he was the same Dr. He did both. I quit him and started with a new Cardiologist today. I will do a sleep study and then see a pulmonologist. Just shocked to see a diagnosis of COPD Unspecified and not be told anything. Also wasnt sure how they can …

20 hours ago

Caroline

Carolineanswered the question COPD

Do you have a pulmonologist, or it sounded like you have one doctor for your heart and lungs. You need to see a pulmonologist and get a complete work up done so that you and your pulmonologist can determine what is the best treatment for you.

20 hours ago

Jimmy S

Jimmy S

20 hours ago

Nelly2019

Nelly2019asked the question: COPD-Im feeling confused

Hi there, I registered for this site because im feeling confused. I have been experiencing PVC's. Holter monitor showed but EKG, and ECHO are normal. My heart and lung Dr gave me a diagnosis of COPD, but I didnt have any testing except an overnight …

21 hours ago

Kayaagain

Kayaagain

โ˜บ Hi Lorrie! Hope you are better.
I'm still sick. New doctor said I have
COPD.  Gave me an anti-biotic.

22 hours ago

Kayaagain

Kayaagain

๐Ÿ˜ Trying again! Spent morning
Waiting for someone. Coughing
Worse than yesterday. Hi Bill66! 
Glad you have time to chat again.
Missed you and everyone here.
Kayaโ˜บ

22 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain http://www.pulmonologyadvisor.com/home/topics/copd/chronic-obstructive-pulmonary-disease-exacerbations-and-omega-3-and-6-fatty-acids/

23 hours ago

PamM.

PamM.answered the question Hi, My Father is living with COPD satge 4. In recent test his FEV1% value was 26%. His age is 68 yea

Is he overweight? My doctor has told me with my numbers as good as they even though I am stage 3 I am totally out of breath walking 10 feet from the bedroom to the bath room or the living room to the kitchen. I have put on a lot of weight in the last two …

23 hours ago

Caroline

Carolineanswered the question Exacerbations

For the answer to your first question. You need to consult with your father's pulmonologist. There is a reason that is oxygen is falling that low. He may have an infection which is causing the increase in mucous. At any rate he needs the attention of a …

23 hours ago

edpe77

edpe77

Charity ads...just some thoughts.

Shriner's Hospital is great. Those kids just know how to get their point across. In direct contrast to ASPCA; I have to mute it when it comes on.

The Cancer survivor ads are great, the survivor talks about their story, and how the organization helped.

Then there is Subaru, which has the audacity to tell me they will charge me an additional $250 for a car, so they can write off their charitable donation!

Again, the sock and winter cap companies advertising they will donate an equal amount to a charity, if we buy theirs. Again, charging us double for their product, which they can then claim a large tax deduction.

Most companies support charity, they just don't attempt to expect us to purchase their product, based on their support for a specific charity. And, yes they do rightfully claim the tax deduction.
Just had to get this off of my chest.
That leaves me thing about a suitable theme for COPD Foundation Campaign... thoughts?

ed

23 hours ago

Caroline

Carolineanswered the question Non-Smoker

I would have to second what clipper has told you.

1 day ago

Caroline

Carolineanswered the question newbie and his test results

I am not a doctor, but what I see in your report is that you have emphysema and a nodule in your lung. Nodules are not uncommon and require watching, but usually they shrink and disappear on their own. If they instead grow then a biopsy and surgery are …

1 day ago

joney

joney

Not to well today I just don't have any pep I wanted to do a little shopping but my energy level is to low maybe tomorrow will be a better day for me๐Ÿ˜”

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Non-Smoker

I don't recall the exact number but very roughly 25% of the COPD population has never smoked. A variety of things can cause COPD; air pollution has been tied to it, chemical exposure, fumes from cleaning products, people with asthma can develop COPD, it …

1 day ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.