RoeRoe

RoeRoeanswered the question Anyone using Trelegy and have a side effect related to hearing?

I’m on Trelegy now for 2months. It is the greatest and don’t get short of breath now. I was on ADVAIR and Spiriva Trelegy is way way better.

1 minute ago

Stephanie Williams, RRT

Stephanie Williams, RRT

Checking in on @Caroline and Bill66 - Bill Wornstaff NJ State Captain ​this morning.


How are you guys?  

3 minutes ago

kb66

kb66

Hi,
I'm new here and am wanting to learn as much as I can about COPD and Emphysema because the unknown is scaring me. My 76 year young husband was diagnosed with a mild case of the disease in 2012. However, it has progressed since then. Yesterday, he had a PFT, CT scan, and a chest x-ray. Today, we see his doctor and will hopefully find out more about his diseases. I'm happy that I found this website. 

1 hour ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question need some advice and help

COPD is an umbrella term for all chronic obstructive pulmonary diseases; emphysema, chronic bronchitis, bronchiectasis , and a type of asthma is also included. Not included under the COPD umbrella are all the restrictive lung diseases. Just FYI a …

1 hour ago

hvybreatherhack

hvybreatherhack

COPD SONG ALERT !
Hi I'm Erik, a musician/guitarist/songwriter in the Sacramento area diagnosed with COPD about 6 years ago.
I thought since we were all more than likely somewhat a little sad or bummed out, that I'd write a parody song about this awful disease to try and cheer everybody up. (at least some of you, I hope)
I'm in no means making fun of the seriousness of the disease, and I know sometimes just walking into the next room can be a b----, or getting dressed, and some that are unfortunately beyond that, and I genuinely feel for you, and all of us.
So one recent morning I was having a hard time getting up and getting dressed, and said screw it, "If I can't get dressed, at least I can lay here still play geeetar and write songs ........ naked even.
(and that's not a very pleasing visual, trust me)
Thanks and hope you like it. Take care -Erik
(comin' up)



6 hours ago

  • NewestOldest
  • hvybreatherhack
    Y'all remember the song "Y.M.C.A." by The Village People. don't ya ? Of course you do.
    A bunch of macho types (construction worker, fireman, Indian etc.) dancing around, singing, makin' total fools of themselves, well now you can, too ! Just sing along …. (careful now)……. Hit it !

    ================================
    "C.O.P.D." (lyrics)
    (to the theme of Y.M.C.A. by The Village People) lyrics by Erik Darzell © 2018

    (12 sec.intro)

    VERSE

    1. SMOKIN' …..SMOKIN' PACK AFTER PACK,
    CHOKIN' ….NOW MY LUNGS HAVE TURNED BLACK,
    BREATHIN' ..THAT'S JUST A THING IN THE PAST,

    I DON'T KNOW HOW LONG I'LL LAST !
    --------------------

    2. COUGHIN' … COUGHED UP PART OF MY LUNG,
    WHEEZIN' …I'M ALWAYS FEELIN' LIKE DUNG,
    MUCOUS …THAT'S KINDA LOOKIN' LIKE TAR,

    HAR-DY, HAR ! HAR ! HAR ! HAR !
    ---------------------
    CHORUS

    IT'S HARD TO BREATHE WITH THAT C.-O.-P.-D. ,
    IT'S HARD TO BREATHE WITH THAT C.-O.-P.-D. - EE

    IT RUINS EVER-Y-THING, THAT YOU'RE TRYING TO DO,
    THINGS LIKE TAKING A WALK, OR EVEN TRYIN' TO POO !

    THAT C.-O.-P.-D. , IT'S HARD TO BREATHE WITH THAT C.-O.-P.-D. - EE

    ALBUTEROL'S WORKIN' ONLY PART OF THE TIME,
    AND IF YOU NEED A TRANSPLANT, YOU'RE GONNA WAIT IN A LINE !

    (take a huge breath, and repeat ! ......if possible)
    ===========================

    note : To sing along to the instrumental version of this song, go to -
    https://www.youtube.com/watch?v=iwMmwzpcaXs have fun !
    stinkymusic@earthlink.net
    +++++++++++++++++++++++++++++++++++6 hours ago
  • DebbieB.-Connecticut State CaptainHoly smokes...I mean chokes!!! WoooooHoooooo!!! I laughed my butt off! I take no offense to this. It is really funny! You have to have a sense of humor when you are ill. 😳5 hours ago
  • Stephanie Williams, RRThvybreatherhack​ - this is so clever! 
    Thanks so much for sharing!!
    I'll be humming that all day!
    😂8 minutes ago
245

245

😏I'm so glad I found this site. I was recently diagnosed with COPD and am scared for what the future holds. Reading answers has calmed my thoughts. 

11 hours ago

lch2018

lch2018answered the question need some advice and help

I have taken several PFT tests only my DLCO is low...

13 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question need some advice and help

As long as you are seeing a pulmonologist and going through the test process you should get your answers but it might take time. Assuming you had spirometry, that would of confirmed some type of obstructive disease (COPD). Maybe the pulmonary exercise …

13 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question need some advice and help

I am not a doctor but that does not really sound like COPD symptoms. O2 saturation of 99% with exertion is perfect, anything above 95% is normal. Typically it will show up in a CT scan. A diagnosis of COPD is based on spirometry. Have you been to a …

14 hours ago

lch2018

lch2018asked the question: need some advice and help

Hi, I have 9/11 exposure with significant exposure to second hand smoke. I have had these symptoms for the last 17 years and they've gotten worse. When it is humid or an extreme pressure change, my symptoms flare. If I am around people who are sick (If …

15 hours ago

Caroline

Caroline

Not long after I posted last evening it became clear that I was having a reaction to the Augmentin.  Years ago I had a reaction to it.  I have had it a few times since, but never again.  I had severe stomach cramps and diarrhea.  I was so weak this morning that I could barely take my medicine.  I called my doctor and he said stop the Augmentin and come in.  I told him that they only was that I could come in was by ambulance.  He told me not to do that but if I did not get better call him and go to the emergency room.

15 hours ago

ScottyRoss

ScottyRoss

Hello lwalshVCC, how are you doing? Glad to know you and hope to learn from you also please have a great day 😎

19 hours ago

Jimmy S

Jimmy SWhile some people may think that’s a little over the top, you have to
keep in mind for someone with COPD a chest infection can be catastrophic
for their short- and long-term health. We also encourage our family and
friends to have their vaccinations up to date, not only for my
protection but for their own.

20 hours ago

grany

grany

I was wondering how many members use Trelrgy ?     I just started and it is working for me thus far.

21 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain Sat and Sun are two big (long) days for me at the gym. When I get home I make myself a quick blueberry protein shake using an immersion blender. I use whey protein because the whey has amino acids that you don't get from plant protein. I toss in lots of frozen blueberries which are high in antioxidants,  a bit of raw unfiltered honey also high in antioxidants and of course it tastes great, and finally I add a bit of almond butter for more protein. Next time I will have to remember not to leave it sitting on the coffee table unattended. This cat has no manners. 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question SOB

Hello. Sometimes it can be scary to start a new medication. What is more scary is not breathing well because you are not using that medication! Once you start a maintenance program, your breathing should improve. Anxiety will not help your breathing. It …

1 day ago

Taterpot

Taterpot

I hear that there may be a new injectable drug for copd. Has anyone heard what it might be?

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question SOB

Assuming your doctors approve the recommendation is usually 30 mins of aerobic like walking or cycling every day or as close to every day as you can. Also strength training at least twice a week, and of course stretching. Something else that is very …

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question SOB

It’s best to talk to your doctor about an appropriate exercise plan but yes walking if your doctor approves is a good first step, no pun intended. :

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question SOB

It could definitely be anxiety. You might find you get a bit short of breath here and there but anxiety can escalate it and it can become terrifying. It is very common with COPD. I would definitely see a pulmonologist and explain the anxiety, they should …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good eveming friends! I would like to recognize Stephanie Williams RRT. She is always positive, always has something nice to say, and is ever so helpful. I always enjoy reading her posts. We really appreciate everything you do for us!!! Here's a round of applause for you! 🙌 Keep up the good work! ⭐

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question SOB

That is great news, EKG is good, X-ray good, bloodwork good. A minor change in your PFT is nothing to worry about. Your numbers are not bad. All good news :

1 day ago

lavender01

lavender01answered the question SOB

I went to the ER this morning - bloodwork, chest xray, EKG - said everything looked good - could see a little change in my lungs - so ER doc told me to use the Albuturol. I also have a copy of my pulmonary test from 2017 - This was from 2017.....

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question One good thing?

Here is one of my things I am doing to improve my health: Drinking more water. Let me be really honest. I hate water. I don't crave it like some people do. I LOVE Diet Coke. If you drew a sample of my blood - likely it would actually be Diet Coke. But …

1 day ago

Teresa101

Teresa101

😟

1 day ago

edpe77

edpe77answered the question One good thing?

As a full blooded German, happiness is enjoying a Springerle cookie, along about now... because it has to be dunked in coffee! After a few weeks, they get hard and need to be softened. Springerle 's compliments of my sister, who follows our mother's …

1 day ago

Caroline

Caroline

I was only able to finish about 10 minutes of my cardio today.  My legs ached so badly that I just gave up after about 10 minutes.  For those of you who are familiar with me you know that giving up is not one of my qualities.  


I am on my second round of antibiotics and I think that the congestion in my head is getting better.  I no longer have an ear ache and I can now hear out of both ears.


I have been taking the exercise a little bit easier than usual since I got sick, but this is not acceptable.  If this continues I will call my doctor tomorrow.

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question Coughing

Hi Perky, I hope that you will be feeling much better now that they know what is going on with you and can have a treatment plan in place. Thanks so much for keeping us posted! We will be looking for the happy update soon telling us that you are …

1 day ago

muddleaged

muddleagedanswered the question I had gallbladder surgery now my chest burns all the time , it’s not Gerd I was wondering

One problem solved in my world. My daughter had her gall bladder removed. For a year afterward she found she was frequently in every bit as much pain as before the surgery. They ruled out GERD and ulcers, and they were about to do exploratory surgery to …

1 day ago

Jimmy S

Jimmy SResearch supports that, in order to maintain autonomy,
the decision to stop smoking has to come from within. Despite awareness
of the consequences of tobacco consumption, all the nagging in the
world by well-intentioned loved ones won't help someone quit if they
lack the internal motivation to do so. Although some studies suggest
that motivation to quit smoking is elicited by worrying about future
health problems, other studies show that unpleasant respiratory symptoms
are simply not enough to convince a person to jump aboard the
quit-smoking bandwagon. I smoked for over 40 years and i am here to tell you it's NOT WORTH IT.

1 day ago

Jimmy S

Jimmy SAlthough the majority of smokers with COPD realize that continuing to
smoke contributes to worsening lung function and a decline in overall
health, studies suggest that many people falsely believe that because
they've already been diagnosed with the disease, there's no reason to quit. Nothing could be further from the truth. There is always a health benefit to quitting smoking, no matter what stage disease you're in.

1 day ago

Dee Annacone

Dee Annaconeanswered the question End stage COPD and nighttime confusion?

Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …

1 day ago

MayBee

MayBee

I woke up and deleted my posts about going home because I was embarrassed. Then I read your supportive and caring posts and wish I hadn't. Thankyou so much for your condolences. And your words of encouragement. Have a good day today. 😃

1 day ago

SleepApneaBook

SleepApneaBookCPAP Therapy for COPD and Obstructive Sleep ApneaThe COPD Foundation and American Sleep Apnea Association are working together to help patients with COPD and obstructive sleep apnea make better use of their therapies.


You OR your friends and family might be eligible to participate. Learn more here:https://www.o2verlap.org/portal?REFER=Misc30

2 days ago

SleepApneaBook

SleepApneaBookDo you or a friend or family member have Chronic Obstructive Pulmonary Disorder (COPD) and Obstructive Sleep Apnea (OSA)? 
If you answered ‘yes’ to the question above, we need your help! The COPD Foundation and American Sleep Apnea Association are working together to help patients make better use of their therapies, overcome barriers and achieve their health and quality of life goals. The study will provide free education and peer coaching to individuals living with both COPD and OSA, who require the use of CPAP therapy at night. Individuals who also use oxygen with their CPAP therapy at night are also encouraged to sign up. If you have ever been diagnosed with COPD and OSA, join the O2VERLAP Study and reserve your seat in our virtual classroom today. If you have a friend or family member that has both COPD and OSA, please forward this email to them to sign up using the link below.


Learn more and get all your questions answered here: https://www.o2verlap.org/portal?REFER=Misc31 Study participation in the O2VERLAP Study is mostly online and is completely voluntary. 


There is no cost to registering and compensation up to $75 may be provided. 


Questions? E-mail the study directly at O2VERLAP@copdfoundation.org


Thank you for helping to spread the word about the O2VERLAP research study! 


Carl Stepnowsky, PhD, Principal Investigator, O2VERLAP Study
Elisha Malanga, Administrative Principal Investigator, O2VERLAP Study

2 days ago

Kristen Willard

Kristen Willardanswered the question New To This Site

Diney, it may help for you to reach out to the Foundation’s Information Line, which is staffed by patients and caregivers. They may be able to help you think through options for yourself and your caregiving role. The service is free M-F 9-6 ET at 1-866 …

2 days ago

Markk1962

Markk1962

Hi everyone, new to the site.


I have stage 4 copd and have had it for 4 years  now. I also have stage 3 congestive heart failure. Anyone else on here have the same combination? 5 years ago this April i went in to full cardiac arrest a day after bypass surgery. They were hand massaging my heart for 45 minutes.  Ever since then have had extreme difficulty breathing.  In December of 2017 had another heart attack and stent placement. The hard thing for me a lot is that often it can't be distinguished between my chf and copd as to the culprit of breathing bad.  Just curious if anyone else out there has the same symptoms. 


Mark

2 days ago

MayBee

MayBee

Well, I just wrote this long post and it suddenly disappeared when I was finishing it up.  
So, I have had bronchitis and now pneumonia for a month. Today I was actually able to take a shower AND wash my hair, so I am happy and the neighbors are thankful.😁
It is scary to take a shower when you have COPD and a lung infection. I was diagnosed with stage 2 COPD about 6 mos ago. I take Singulair for asthma. Albuterol, just got switched from Flovent to Symbicort and I can't stand it. I also have a nebulizer. I sent the oxygen tanks back. With a deviated septum and 2 torn rotator cuffs, It didn't increase my blood O2 levels because it was barely going into one nostril. Plus, I kept thinking it would explode. The tank, not my nostril.
I have been very very sad this weekend. It is finally sinking in the my beautiful mother really did pass away on 11/16. 5 weeks after being diagnosed with pancreatic cancer.  She was all I had. I just want to go back home now. TN is killing me.

2 days ago

das23

das23answered the question I had gallbladder surgery now my chest burns all the time , it’s not Gerd I was wondering

I have GERD. I've had it for 8-9 years. I've had several endoscopies and It is under control. I got it under control since I quit smoking...WHO KNEW !!!

2 days ago

Ms DV

Ms DVanswered the question 3% lung capacity, what next?

I totally agree with Jean. Your family member needs to be where they can be taken care of. Please keep us posted. 3% scares me!

2 days ago

Ms DV

Ms DVanswered the question When you have been the caretaker and you get sick?

How about Palliative care for your husband? They will do what you need done.

2 days ago

Ms DV

Ms DVanswered the question One good thing?

Went out to lunch with a friend and shopping. Watched 5" of snow fall, which was beautiful. Now Spring can come. Always have a positive attitude. I don't let things get me down.

2 days ago

Ms DV

Ms DVanswered the question I had gallbladder surgery now my chest burns all the time , it’s not Gerd I was wondering

Gerd is very common with COPD people. You even neeed to watch out for Barrettt's Esophagus. This is from a gastrointologist.

2 days ago

Caroline

Carolineanswered the question I had gallbladder surgery now my chest burns all the time , it’s not Gerd I was wondering

How do you know that it is not GERD? This is a symptom that I have not heard of with COPD.

2 days ago

Caroline

Carolineanswered the question Coughing

Take care Perky I am hoping that you can get something that will help you.

2 days ago

Jimmy S

Jimmy SWell I did it!!  I made a very cool design.  Shirt speaks for it's self.

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Do you know your GOLD stage?

Diney, “Chronic Obstructive Pulmonary Disease (COPD) is an umbrella term used to describe progressive lung diseases including emphysema, chronic bronchitis, and refractory (non-reversible) asthma.” https://www.copdfoundation.org/What-is …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Coughing

Perky, I am hoping the best for you. 🙏

2 days ago

Perky

Perkyanswered the question Coughing

Had congestive Hear failure

2 days ago

Nana1962

Nana1962asked the question: I had gallbladder surgery now my chest burns all the time , it’s not Gerd I was wondering

I have severe copd and had gallbladder surgery. Now my chest burns really bad nearly all the time. Is this from copd ?

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.