COPD360social welcomes new member Sirjohn who joins 64,617 current members of our community. Weโ€™re glad you're here!

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question alternate forms of treatment

I agree that working closely with our medical team can save us from missteps that are costly financially and also in terms of our health. Thereโ€™s a lot of good and bad info. Our providers help us by letting us know which info is best for OUR …
Caroline West Virginia State Captaindas23 also answered the question Caroline West Virginia State Captainand 1 other also answered the question

13 minutes ago

Sirjohn

Sirjohn

Doing Ok today.. 

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โšซ๏ธ๐ŸŒฝBEAN AND CORN SALSAโšซ๏ธ๐ŸŒฝHere's another healthy Superbowl Sunday snack! Choose a bag of healthy tortilla chips to use as dippers, and you're good to go! ๐Ÿ˜‹One 15-ounce can black beans, rinsed and drainedOne 11-ounce can corn, rinsed and...

6 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŽต If today had a theme song, what would it be?

Some days feel peppy and upbeat, and other days are a little more acoustic and mellowโ€”it often depends on where your energy lands and how your breathing feels. Whether today is about getting after the day or simply taking steady breaths, any pace counts.

Is there a song that energizes youโ€”or one that fits your mood today? ๐ŸŽถ

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŸฅZESTY BEET DIP๐ŸŸฅA unique and healthy dip that would be perfect to serve on Superbowl Sunday! ๐Ÿˆ 5 small beets, cooked and cooled1/3 cup walnuts, toasted1/4 cup white horseradish, drained well1/4 cup plain Greek yogurt 1 tbsp. lemon...

17 hours ago

Laurak

Laurak

I am doing well!

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday! The word of the day is "SMILE" ! Your happiness will reflect and spread to everyone! 
Keep a smile on your face and you'll always be in the right place! 
Here's a BIG smile for you, friends! ๐Ÿ˜ƒ

21 hours ago

don eck

don eckasked the question: alternate forms of treatment

I have read that herbal remedies are of great help with inflamation/scarring. Also that low level red light therapy is of great help. Is anyone using either of these? Which? How satisfied are you with it? thankyou for your help

1 day ago

Holla

Hollaanswered the question Recurrent pneumonia, recent pneumonia and PFT results, hiatal hernia

Test scores
Caroline West Virginia State Captaindas23 also answered the question Caroline West Virginia State Captainand 1 other also answered the question

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question treatment drugs

I was diagnosed with idiopathic emphysema in 2000 and would give the biologics 8 out of 10โ€“either do prevent exacerbations but have side effects.

1 day ago

don eck

don eckasked the question: treatment drugs

Is there anyone using dupixet as a treatment. On scale of 1-10 (10 is helping alot) how have you responded. How long have you had copd? Approx. age? I am 83

1 day ago

don eck

don eckasked the question: gvhd

is there anyone whose copd has been caused by graft vs host disease (gvhd)

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainA very interesting and important message from my eye physician's office. This certainly does apply to me! ๐Ÿ˜Ž

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Monday check-in
Letโ€™s start the week together. Living with COPD can mean good days, tough days, and everything in between โ€” and however today feels for you is completely okay.

If you feel up to it, drop one word that describes how youโ€™re feeling, or share a quick thought about whatโ€™s on your mind. No pressure at all โ€” weโ€™re just glad youโ€™re here!

1 day ago

Davidgh

Davidgh

Good morning everyone.  For several years now I've worn an Apple watch (version 6).  What I like about it is that it records my oxygen saturation while I sleep.  The next morning I can look at my phone which shows my saturation throughout the previous night.  About every 30 minutes or so it takes a reading during the night, which ranges from the mid to high 90's.  I sleep with 3l of oxygen.  But what I don't understand is that as soon as I wake up, even before getting out of bed, I notice a pronounced shortness of breath.  I normally have to sit on the side of the bed for 5 minutes or so just to get my breathing under control.  Since I sleep well with high oxygen saturation levels, could it be something psychological that could be causing this?  Any opinion is appreciated. 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”†"AMPED UP" TUNA SALAD๐Ÿ”†2 hard boiled eggs, roughly chopped One 6- ounce can tuna, drained1 small avocado, roughly chopped 1/2 cup Kalamata olives, halved1/4 cup chopped fresh dill3 tbsp. olive oil Salt and freshly ground black pepper to...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, and Happy Groundhog Day! Let's see what the groundhog says this year! Will we see an early Spring?! Hmmmm...
Enjoy your day, everyone! ๐Ÿ˜Š

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Confused

You heard it from one of the very best, if not the very best.
David Mannino, MD (Chief Medical Officer, COPD Foundation )Karen Deitemeyer - Florida State Captain also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

2 days ago

Holla

Hollaasked the question: Recurrent pneumonia, recent pneumonia and PFT results, hiatal hernia

Hi folks! I've been a marathon runner for years but have been hammered by 3 pneumonias in past 3 years. I also had 2 pneumonias over 25 years ago but fully recovered. Most recently CT scan on Jan 9 showed bilateral multifocal, with glass opacities …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, my little chickadees! ๐Ÿ˜„ Wishing you all a pleasant, easy breathing day! ๐Ÿ˜€

2 days ago

DebbieS

DebbieS

My pulmonologist recently changed my meds to Trilegy. Does anyone else use it? What has been your experience? For me, besides the horrible taste,it seems to work fairly well.

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday from the DebbieB. household and this adorable capybara! No worries here on 360Social! Lots of friendly people, and plenty of helpful information for everyone to enjoy! It's fun to learn here on our website! Smiles all around! Enjoy this mighty fine day, friends! ๐Ÿ˜€

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I made a huge mistake today: I bundled up and put my POC under my warm winter coat.  I pulled the hood up and tightened the chin strap nice and snug, grabbed my leather gloves, and headed out to fill the bird feeders.  Once I was halfway there, I became so short of breath, and then it dawned on me that I had forgotten my mask.  That cold air surely does restrict our airways.

4 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI just ran across this fascinating article:

https://arstechnica.com/health/2026/01/custom-machine-kept-man-alive-without-lungs-for-48-hours/?utm_source=join1440&utm_medium=email&utm_placement=newsletter&user_id=66c4caf15d78644b3ad1a50f

Custom machine kept man alive without lungs for 48 hours

Infections had turned his lungs to soup and had to be cleared before transplant.

4 days ago

ToGodBeTheGlory

ToGodBeTheGloryasked the question: Confused

I am a 50-year-old white woman, 166 cm tall. Post-bronchodilator spirometry shows: FEVโ‚: 90% predicted FVC: 103% predicted FEVโ‚/FVC: 69.03%, with a GLI LLN of 0.693 (using my physicianโ€™s GLI reference values, not GOLD) I FEF 25โ€“75: 64% predicted …

4 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Letโ€™s share a small win โ€” whatโ€™s one thing that made today a little easier? ๐ŸŒŸ๐Ÿ’ฌ

4 days ago

Jamie Jarrard

Jamie Jarrard created the event BronchandNTM360social Coffee Break - Wednesday, Feb. 11, 2:30pm Eastern

BronchandNTM360social Coffee Break - Wednesday, Feb. 11, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

4 days ago

Jamie Jarrard

Jamie Jarrard created the event COPD360Social Hour and Harmonica Play-Along- Wednesday, Feb. 4, 4pm Eastern

COPD360Social Hour & Harmonica Play-Along- Wednesday, Feb. 4, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.