Bill Clark - Community Manager

Bill Clark - Community Manager

For those looking for the blogs, we have added a shortcut in the blue COPD360 Social menu button on the top left

16 hours ago

dpeter

dpeteranswered the question Does anyone really have trouble when you get a chest cold?

yes, same here

6 minutes ago

dpeter

dpeteranswered the question Spiriva Respimat making me feel bad

I take spiriva respimat and haven’t had any side effects

13 minutes ago

jeaniusgram

jeaniusgramanswered the question End stages of COPD

donkeys8 every human being is different and every organism deals differently with illnesses .. my mother also wanted to live But besides all her other health issues, she decided to go in peace and relax. its good when this men want „ fight“ and …

4 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Myths about COPD

yes, even some doctors think if you have COPD you must be a current or former smoker—wrong! The National Institutes of Heslth estimates 1/4 to 1/6 of COPD patients never smoked, and many do not have Alpha-1, the genetic firm of emphysema either. I am one …

5 hours ago

Orlan = State Captain - Indiana

Orlan = State Captain - Indianaanswered the question Myths about COPD

the biggest one is all COPD people were smokers. This is not necessarily try as we know now that a for of COPD called Alpha-1 (antitiprsin) disease is a genetic disease and is totally hereditary. I can't exercise because I have COPD. False, the more …

9 hours ago

Well-Wishers  State Captain for PA

Well-Wishers State Captain for PAanswered the question How do you impact a non-compliant patient?

I just want to "thank all of you" for the great food for thought...I hope this helps others, as much as, it will the well-wishers here in PA. I find great minds can defiantly learn and encourage each other.

9 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Myths about COPD

Please please correct me where I am wrong. It would be great if Stephanie or Jane could monitor this thread for accuracy. Stage 4 is End-Stage. I just saw an article with a 2018 date that still equates all of stage 4 with end stage. Wrong, it’s not that …

12 hours ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question Anyone heard of "C2C Solutions, INC.?

They are a company that is approved by Medicare to help patients appeal coverage issues by filing appeals for them.

13 hours ago

Whylene McCray

Whylene McCrayasked the question: Anyone heard of "C2C Solutions, INC.?

This is involving my oxygen equipment.. who are these contractors? I have defective equipment and this contractor is in violation? Medicare has always reimbursed patients, when patients submitted claim forms, (medicare mails them to clients,) Who is in …

13 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question Can oil painting be harmful to my breathing?

Here is a link that I meant to attach to my earlier post. https://www.craftsy.com/art/article/water-soluble-...

15 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTJust kidding about the previous post :)


Here is my orange selfie.  This is me and my oldest daughter :)
I have loved seeing everyone’s Orange Posts!!

15 hours ago

gms

gmsanswered the question Myths about COPD

Here's a big myth.....The numbers on a shoulder carried Portable Oxygen Concentrator, typically 1 thru 4 or 5 indicate the number of liters of oxygen per min you will receive. FALSE. While they do represent the amount of oxygen available, typically in a …

15 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTHey Tracie,
Does this picture work? 😃 

15 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Can oil painting be harmful to my breathing?

If they don't bother you now, then probably they aren't going to trigger anything at the moment. You might talk with your doc to see what she has to say, but if the odor or scent doesn't bother you now, I don't think it will trigger anything. You'd know: …

16 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question COPD Inhalers that need help

If you're doing the Combivent, then when you nebulize albuterol or duoneb, you're getting the same medicine all over again. I'd suggest that you talk with your doc about a long acting beta agonist (LABA) maybe combined with an inhaled steroid (ICS), like …

16 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Myths about COPD

Just rest; movement just makes you short of breath and that's not good for you. Don't turn your O2 up above 2 LPM; you'll lose the will to breathe. There's nothing you can do to help yourself. Don't ever make yourself short of breath on purpose. No …

16 hours ago

Wheezer242

Wheezer242asked the question: COPD Inhalers that need help

I'm back on Combivent Respimat. Trouble is I don't get much relief from it alone. Figured a nebulizer would be the ticket but both the Albuterol Nebulizer or the DuoNeb seem to be too much and I wind up with major breathing difficulties. Any suggestions?

16 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI'm a State Captain from Florida, and here's a picture of me at the beach, wearing my orange :-)  I love being at the beach - it's so relaxing.

18 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainMoving ahead on our 12th annual COPD Education Day on 9/14/2018. Worked with the webmaster to publish this link and article on our website:

https://hawaiicopd.org/12th-annual-copd-education-day-friday-september-14-2018-free/



Anyone interested is welcome to attend, pre-registration recommended!

18 hours ago

edpe77

edpe77

CarolineI, a 5 van Dyke quote just for you...
"I'm one of those people who get up on the right side of the bed in the morning. I get up, have a cup of coffee and go th the gym before I can talk myself out of it."


He is pushing 100, and still very active.
ed

18 hours ago

edpe77

edpe77answered the question Myths about COPD

Probably the most prevalent myth is that there is a magical "stem cell" treatment that will cure COPD. No established scientific study has demonstrated its efficacy. Hence don't waste your money with these charlatons! ed

18 hours ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF StaffLocal governments are really important, and do a lot of work that could be affecting your day to day activities!


What do mayors do? What type of local government structure does your city, county, town, or municipality have? It can be confusing to figure out because every state determines how their local government will run either through their constitution and/or new laws. Making states vary greatly in how they run and work!

Check out this nice article here about mayors- what they can do? how they can be elected? https://people.howstuffworks.com/government/local-politics/mayor1.htm

19 hours ago

Annieg06

Annieg06commented onWhy Should I Wear My Oxygen?

 Paul, thank you for responding. I am fairly new to this (2 years) and have learned that my DR is not really forthcoming with information, either on my specific health, ways to help live with this and options for me.I have the large o2 machine that I...

19 hours ago

DebbieB.

DebbieB.

I am not feeling very well. The weather is causing me to feel short of breath, a bit dizzy and I am a bit hoarse.

19 hours ago

  • NewestOldest
  • PDeNardoSymptoms of a possible flare up on the way are:
    Breathlessness or shortness of breath. Either feeling like you can’t breathe deeply or gasping for air.Increase in coughing attacks. Coughing helps to rid your lungs and airways of blockages and irritants.Wheezing. Hearing a wheeze or whistling noise when you breathe means that air is being forced through a narrower passageway.Increase of mucus. You may begin to cough up more mucus, and it may be a different color than usual.Fatigue or sleep problems. Sleep disturbances or exhaustion can indicate less oxygen is getting to your lungs and through your body.Cognitive impairment. Confusion, slowed down thought processing, depression, or memory lapses can mean the brain isn’t receiving enough oxygen.  If you are experiencing any of the above you should probably call your doctor.   If you only talk to the doctor's assistant it may clear you of any fears.


    Hope this helps and if the weather is truly the culprit stay indoors.19 hours ago
  • DebbieB.Thank you. I have been going through alot with COPD for over 5 years. I also have severe asthma.19 hours ago
Bill Clark - Community Manager

Bill Clark - Community ManagerFinally a corn maze I can handle

20 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Were you in denial about your COPD diagnosis?

just a note that ozone has been known to worse lung conditions for many of us, so please check with your healthcare providers before considering knowingly increasing exposure to ozone.

20 hours ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF Staffasked the question: Myths about COPD

As I have been connecting with some patients, I have heard that many of them experienced inaccurate information about COPD through a google search or in person. This led me to think about compiling a list of all the inaccurate information people hear or …

22 hours ago

LisaMJones

LisaMJonesanswered the question Effect of Hypothyroid Disease on COPD

Hi Caroline, I do see an Endo (who wants to keep me on Levo because my numbers “look better”, but has also started me on Atorvastatin and Metformin...) and a Pulmonologist who is very good when it comes to my lung health, but would rather treat me for …

23 hours ago

PDeNardo

PDeNardoanswered the question Were you in denial about your COPD diagnosis?

In my case and I dare say many others, I was diagnosed with exercise induced asthma 5 years before I was told I had COPD. Any denial was a sneaking suspicion it was something more as I was getting more and more short of breath. When diagnosed with the …

23 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question Can oil painting be harmful to my breathing?

Hi Charles, I don't know for sure, but I think even if they are odorless they may still cause problems for those who are sensitive to respiratory triggers. I believe there actually are water soluble oil paints that would clean up with water so it might …

23 hours ago

ewalker

ewalker

Is there anyone in Jacksonville, FL doing exercise that I could join? It is hard for me to go at it alone. I am a member of Silver Sneakers.

1 day ago

Sara Latham

Sara LathamGood morning all! I am excited to let you know that PBS South Florida (WPBT/WXEL) will be airing a segment about COPD this morning at 11 am and also again at 11 pm tonight. In addition to information about COPD they will be featuring our own Jan Cotton in one of the videos she participated in with the COPD Foundation. For more information and to see if you can access the program, please visit: https://www.allhealthtv.com/television or https://www.facebook.com/allhealthtv. 

1 day ago

CharlesH

CharlesHasked the question: Can oil painting be harmful to my breathing?

I used to paint a bit and have tried to start painting again. I am aware that there are fumes involved to a certain extent. It has me wondering if this hobby can be harmful to my breathing. besides the oil paint itself, there are other products involved …

1 day ago

Sokcap48

Sokcap48commented onWhy Should I Wear My Oxygen?

 I know this may not be possible for some folks but this is what I did. I was on 02 before Medicare. My wife carried the insurance but I found it cheaper with copays and all to Buy my own equipment. I was at 17-19%. I bought a Simply Go and two...

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

I was talking with one of my neighbors and we were talking about health in general, and she lives alone and said to me, you know what scares me? No one here to take care of me if something happens and I replied even though I'm married I'm in the same situation. Just wanted to share. Love you guys Bill66  

1 day ago

Annieg06

Annieg06commented onWhy Should I Wear My Oxygen?

 Also wanted to add that it is very noisy and loud, there’s no way I could take it in to a movie theater...

1 day ago

Annieg06

Annieg06commented onWhy Should I Wear My Oxygen?

 I find it very difficult to carry the portable o2 that I am renting. It is heavy and the batteries run out very fast. It tends to get tangled also. Very difficult to carry that heavy object and at least your purseIs there a better, lighter portable...

1 day ago

loukat

loukatanswered the question Do you know your GOLD stage?

Hi DaniTRC, in response to your question upon receiving my GOLD score it helped me in ways to understand what I am going through. It doesn't make me feel 'predisposed to a certain diagnosis' as I own the fact of what it is I have. It also clarified to me …

1 day ago

chericaa

chericaaanswered the question Do you know your GOLD stage?

mine did and it almost cost me my life. According to the gold stage I was in the last one so I just sat back and quit. Saw another VA doc for another problem at the same time and was told you are in end stage so we will just keep you comfortable. I was …

1 day ago

Puzzle

Puzzlecommented onFaces of COPD: Carol Rubin

 Thank you or sharing...

1 day ago

Caroline

CarolineI have several places labeled in my walk along the lake at Little Beaver State Park.  This is on the lakefront trail which is 1.3 miles (I think).  I call this the woodpecker tree.  I am anxious to see if I can find some babies there next spring.


I said that Grandview National Park was 5 miles from my house, this is not correct.  Little Beaver State Park is 5 miles and Grandview is 10 miles from my house.  Grandview is another 5 miles up the road from Little Beaver.  Sometimes I pick a trail in Little Beaver and then drive 5 miles and walk another trail in Grandview.


I have met delightful people and had a great time with this walking routine.

1 day ago

Banjobill7

Banjobill7

What would be the best pro biotic for COPD (chronic bronchitis)

1 day ago

Tina M Moyer

Tina M MoyerHi I am Tina Moyer. I am a Face of COPD as well as a State Advocacy Captain of PA. Here is my photo for the COPD Awareness the August COPD photo contest. I love this shirt because of the Tiger and I always say it gives me Hope and Courage to stay strong .

1 day ago

JNR3

JNR3answered the question Were you in denial about your COPD diagnosis?

Hi, In my case I had an exacerbation and did not know the extent or even that I had COPD. I had surgery about 10 months before and thought it was just sequels from it. Another blinder was the fact that betwen the ages of 10 and 15 I had bronchitis which …

1 day ago

Bad Logik

Bad Logikanswered the question I have a question about raising your arms above your head in your sleep?

I have severe sleep apnea too but I don't think it has anything to do with it. I have chronic pain in my back, with a slew of diagnoses. I was actually searching for what way I might set my adjustable bed to stop this. Hope that helps. On a similar …

1 day ago

Ken Benson

Ken BensonOrange shirt; orangish pups.

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Emphysema and weight???

Also give Icelandic style yogurt a try. It has about 15 grams of high quality protein. I can’t eat too much dairy in one day and since you haven’t been eating dairy you might want to go slow at first. Your stomach might complain about too much lactose. …

2 days ago

Caroline

CarolineI am loving my walking in the parks.  I walked trails in Grandview National Park today.  This is a photo of what gave the park its name.  I walked a total of 2 miles on the trails and as you can surmise from the picture much of it was uphill.

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.