COPD360social welcomes new member Sue C who joins 61,218 current members of our community. Weโ€™re glad you're here!

Bill Clark - Community Manager

Bill Clark - Community Manager

DO NOT POST ANY TEST RESULTS until you have completed all your tests AND spoken to your own doctor or medical team and gotten a diagnosis! This is for your protection and ours.  Your doctor has access to all your medical records and we do not.  Interpeting partial results can often lead to a incomplete, or inaccurate diagnosis. This can cause you emotional harm and present liability concerns for us.  

Once you have completed your testing and spoken to your doctor we will be happy to help you understand the implications of your diagnosis and help you move forward, If you post any results without going through the proper steps your post will be deleted  and possibly your membership.

5 months ago

Nebulizer Distress

Nebulizer Distressanswered the question worse after nebulizer treatments

My experience is the same, however, it is not the meds. It is the kit itself. I've used the same meds for several years but was sent a different breathing kit that forces you to breathe differently in order to get the correct dose. However, it is NOT the …
PerkyAnonymousOzyand 7 others also answered the question Perkyand 9 others also answered the question

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainI have a message from this little Gecko I saw at my local pet store today. He wants us all to hang in there. He is, and he's doing quite a good job! ๐Ÿ˜Š

3 hours ago

Lita C.

Lita C.

Is anyone having problems with prednisone and prednisone withdrawal? I have no side effects while on it, just almost impossible to reduce the dosage without severely increasing fatigue and breathlessness. Thank you!

3 hours ago

Natalie Nelson

Natalie Nelson

Thanks Karen!  I was trying to ask nickel how they were doing. Itโ€™s confusing to see how to reply and navigate. PFT is normal but I have double lung scarring and emphysematous changes so I am considered pre COPD - itโ€™s right around the corner for me as my lung function decreases so I am worried. Thanks for your post and appreciate the info on the files to find info.   

11 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Saturday 360! I hope this finds everyone well and into the spirit of the season.  

11 hours ago

T Town

T Townanswered the question Not typical - Heartbroken - Lack of answers

Thank you for the feedback. I really appreciate it. I only use my watch to get a general sense of my sleeping levels. The levels were confirmed with my preliminary pulse ox sleep test a month ago. I have my official diagnostic sleep study next week. I …
David Mannino, MD (Chief Medical Officer, COPD Foundation )Wildebeestdas23 also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 2 others also answered the question

13 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question My Brother Has Constant mucus in throat

As noted by others- many things can cause this symptom- COPD being one of them. This is typically more of an upper airway/sinus symptom, but anything is possible. Certainly worthwhile being evaluated by a health care provider.
brydydas23Otter also answered the question brydyand 2 others also answered the question

14 hours ago

Cath45

Cath45

Im still trying to figure out how to respond to messages. Be patient with me lol

16 hours ago

Jasnee

Jasnee

Happy Saturday everyone!!
Thought of the Day: "One breath, one moment, one day at a time - you are stronger than you know"
The more I read about the journeys of people within this community, the more amazed I am by the incredible strength you all carry. Living with lung problems isnโ€™t just about managing symptomsโ€”itโ€™s about enduring the unseen battles, pushing through the hard days, and finding the courage to keep going even when the weight feels too heavy. Itโ€™s in the smallest victories - the deep breath you didnโ€™t think you could take, the steps you managed to climb, or the day you simply made it through. Be proud of yourself every single day.โค

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends!
Have a jingle jangle, very merry, comfy cozy day! โค๐Ÿ’š

19 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™m relieved. I went to pick up my refill for Trelegy at my home pharmacy (neighborhood CVS) and was pleased to see it was for a 90 day supply and I got the 3 Ellipta dispensers as each one is a 30 day supply. Didnโ€™t have to have any discussions with the pharmacy about the 60 blisters that comprise a 30 day supply. 


When I spoke to the pharmacist about having to explain to the pharmacy in SF, he was surprised as this medication has been around for at least 6 years. 


Oh well, always knew our local pharmacist is very sharp!  I really like him and have switched pharmacies several times to stay at whichever pharmacy heโ€™s working at and now managing. 

22 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I love the new look of the home page.

23 hours ago

T Town

T Townasked the question: Not typical - Heartbroken - Lack of answers

Hello Friends- (Sorry its long I hope you will still take a look) I have been following for a few months now and it has been about my only sense of hope.I've wanted to share my story but haven't as of yet.1, because my story is not normal (in a disease …

1 day ago

Oxygen tank Man

Oxygen tank Man Hi,Hope you are all ok.
raised over 1,000 pounds for asthma and lung foundation UK

At York marathon in October.

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota FDA to review mepolizumab for COPD with eosinophilic phenotype


https://www.healio.com/news/pulmonology/20241211/fda-to-review-mepolizumab-for-copd-with-eosinophilic-phenotype

FDA to review mepolizumab for COPD with eosinophilic phenotype

The FDA has accepted to review a supplemental new drug application for mepolizumab, an anti-IL-5 biologic, for treating patients with COPD plus an eosinophilic phenotype, according to a GSK press release.Notably, mepolizumab (Nucala, GSK) would be an add-on maintenance treatment in this patient …

1 day ago

Who Me ?

Who Me ?answered the question What can I do about chronic sinusitis

I suffered for years with sinus infections, got my deviated septum repaired that helped. But most importantly I started using a saline sinus rinse daily. Thats the key! I was warned about the over-the-counter nasal sprays. So dropped them. I use a …
cellar also answered the question cellar also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Hi Jasnee! You certainly can substitute chicken for pork!...

1 day ago

Wildebeest

Wildebeestanswered the question Can I have an opinion?

I am no medic and cannot answer your questions but I do have some observations from my own research into lung issues. Your spirometry looks completely fine to me. In the UK they would not even have bothered to do a post BD test if the first one had those …
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

1 day ago

Jasnee

Jasneecommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Hey Debbie!! Can I follow the same recipe with chicken instead of pork?...

1 day ago

Jasnee

JasneeHey guys!! Grateful for all the amazing friends I have made in this communityโค. Feeling a lot better today emotionally. Also I am obsessed with the few Christmas decorations I bought yesterday and had a fun time placing them on my shelf.  Just wanted to share it with you guys! Have a great Friday everyone! โค

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday ๐Ÿ’ซFlashback๐Ÿ’ซ!
Here is a picture of a happy Beagle at the vet's office. 
Freckles Joy wishes everyone a wonderful day! ๐Ÿ˜Š

1 day ago

MTSpecial

MTSpecialasked the question: My Brother Has Constant mucus in throat

I know this isnโ€™t about me and I donโ€™t have any test results so my apologies right off the bat. But I just want to get some advice. My brother is 36M and he smoked weed for 12 years. He quit about 2 1/2 years ago but he told me he has mucus in his throat …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฝEASY BRAISED PORK CHOPS๐Ÿฝ4 pork loin chops, 1/2-inch thick2 tbsp. olive oil 1/2 cup water1 tbsp. Worcestershire sauce 2 tsp. dried parsley flakes1/2 tsp. onion powder 1/4 tsp. garlic salt1/4 tsp. dried thyme In a large skillet, over...

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI just read an article describing a clinical study of a urine test that might predict an exacerbation as much as a week in advance:

https://copdnewstoday.com/news/urine-test-predicts-copd-exacerbations-week-advance-study/?utm_source=COPD&utm_campaign=004085a87f-Email_ENL_US_COPD&utm_medium=email&utm_term=0_23d08524e9-004085a87f-74415186

Urine test may predict COPD exacerbations days in advance: Study

A dipstick urine test and a mobile app may help predict disease exacerbations in COPD patients as much as a week in advance, a study found.

2 days ago

Natalie Nelson

Natalie Nelson

How are you doing now? 5 years later. Do you mind sharing with me.. Just diagnosed with emphysema on a CT Scan.. I am wondering if you are on meds now or experienced any SOB?  

2 days ago

Aks0048

Aks0048

Hi,
Could please help me with some advices concerning copd?

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.