COPD360social welcomes new member Zozo who joins 64,096 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒ Visit My Corner of the World Wednesday!

Itโ€™s Wednesday โ€” time to share a view from your corner of the world! ๐Ÿ“ธ
Show us one of your favorite spots โ€” a place that makes you smile, brings you peace, or just reminds you of home.

Whether itโ€™s a sunrise, a cozy corner, or a moment that brightened your day, weโ€™d love to see it! Letโ€™s fill 360social with the beautiful views and good energy that make our community so special. ๐Ÿ’™โœจ

Whoโ€™s ready to share their corner of the world today? ๐ŸŒŽ

1 day ago

KarinaDK

KarinaDKanswered the question PFT findings -air trapping, any comments?

Iโ€™m 44 and had my first pft back in March with rv at 171 and tlc 131 I was terrified and everything I read suggested it was probably emphysema. Except for the fact that my dlco was 99. About 2 months ago I startet Trimbow ( Triple therapy) and my …
Keir123WildebeestDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question Keir123and 3 others also answered the question

1 hour ago

GAnne

GAnneanswered the question Ohtuvayre from Verona Pharm

My pulumnary Dr got this for me through a speciality pharmacy and itโ€™s didnโ€™t cost me anything. Took awhile to get it. But he also gave me a shot on Monday of Nucala IM waiting to see how the shot works and start the other to make sure if there are side …
Faith0263GemomRichMand 12 others also answered the question Faith0263and 14 others also answered the question

2 hours ago

GAnne

GAnneanswered the question New COPD Med

My pulumnary gave me a shot Monday that you take once a month called Nucala. Has something to do with your white blood cells in the lungs that cause inflammation in the lungs. Quite expensive, he sent it through a speciality pharmacy. He also wants me to …
RambolizjbAspenand 5 others also answered the question Ramboand 7 others also answered the question

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธ๐ŸŠ๐Ÿฅ„ORANGE PUDDING๐Ÿฅ„๐ŸŠโœด๏ธ1/2 cup sugar2 tbsp. cornstarch 1/8 tsp. saltZest of 1 orange1 1/2 cups freshly squeezed orange juice 2 tbsp. butter2 large eggsIn a medium saucepan, whisk together the sugar, cornstarch, salt, and orange zest.Whisk in...

4 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State CaptainWas very busy yesterday, and neglected to post a photo from my corner of the world.  Hope itโ€™s OK to post now.๐Ÿค”
This one is from my neighboring city, Hoboken,  just a 10 minute ride from Home. Do you know who that guy is? 

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday! Orange is the color of COPD Awareness! So, go ahead and wear that orange! November is COPD Awareness Month! ๐Ÿ”ถ๏ธ๐ŸŸ ๐Ÿ”ถ๏ธ

9 hours ago

Dinna25

Dinna25answered the question Walking

Thank you for your kind comments, My only let down will be my diet although i weight 8stone at my Spirometry test its not through a healthy diet (i admit it). Due to a health issue my diet is very restrictive and there is loads i am not allowed to have …
brydyGAnneWildebeest also answered the question brydyand 2 others also answered the question

21 hours ago

Tg10

Tg10

It's been awhile,  ct in April was good.  But i got sick and had an ear infection and after antibiotics is gone but the fluid is still there.  Now i have both ears hurting. The right one looked normal they said, the left looks cloudy.  Ct of my head shows effusion left mastoid and middle ear with possible cholesteatoma. Now waiting on an mri. But that doesn't explain the right ear also in pain.  See the ent in 2 weeks.  I've had a history with the left but no issues with the right before.  No issues eating or swallowing.  No lumps or bumps in my neck.  Had an ent scope me 2 years ago, all was ok then. Never had both ears hurt like this before.  I'm worried about this.

22 hours ago

Splash4175

Splash4175

Not so great  ! In and out of ER and hospital frequently with exacerbations, my pulmonary Dr at Mayo said couldnโ€™t cure me but could make me comfortable , itโ€™s been 9 months and seems to be getting worse . Missed my appointment last week as was at local hospital. Keep up the faith , lots of trials and new meds as so many people with copd . The hardest part not being able to do things for my self. Always been so independent , hard to make myself ask for help ! Make sure you take advantage of all resources out there . I now have a bath lady , she helps to prevent falls , gets everything ready , etc. I was supposed to have a person 3 1/2 hours week to do laundry , change bedding, run errands or clean , have not had for 8 months now as no one available in my rural area . They just informed me they now have someone and she will be starting Dec 3 . Iโ€™m so excited ! 

23 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Where do we tune in to watch the โ€œGreat Baton Passโ€ for today, World COPD Dayโ€?

1 day ago

Pat from Gort

Pat from Gort

My partner has just been diagnosed with COPD has anyone found supplements useful? If so which ones please?

1 day ago

Community Announcements

Community Announcementsadded a new article Early detection, increased awareness key to improving health for people with COPD

Annual World COPD Day is November 19

Miami (November 19, 2025) - The COPD Foundation joins lung health champions around the world in recognition of World COPD Day today, November 19 to raise awareness, share knowledge, and take action to reduce the burden of chronic obstructive pulmonary disease worldwide.

COPD comprises several conditions, including chronic bronchitis and emphysema, and can be caused by genetics and irritants like smoke or pollution. The disease affects more than 30 million Americans and is the fourth leading cause of death worldwide, yet awareness of the disease's symptoms, methods to reduce risk, and disease management remains poor. Symptoms include breathlessness, fatigue, and chronic cough.

This year's World COPD Day focuses on "Short of Breath, Think COPD" and highlights the importance of early diagnosis of COPD. While COPD is common, many people are undiagnosed or misdiagnosed, leading to them not receiving appropriate treatment and care. Earlier diagnosis can result in improved outcomes, including reduced impact of symptoms and improved lung function and quality of life.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐Ÿฅ„ORANGE TEA๐Ÿซ–๐Ÿฅ„2 cups water1 cinnamon stick1 star anise2 tsp. tea leaves1/2 cup freshly squeezed orange juice Sugar, as desired2 orange slices Heat the orange juice with your desired amount of sugar, in a small saucepan over medium...

1 day ago

Tina M Moyer

Tina M Moyer

๐Ÿงก  Happy World Copd Day! ๐Ÿงก


Every one at my workplace will be wearing orange!


Cant wait to see what the day brings...


We are the Warriors 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy wonderful Wednesday! Since November is COPD Awareness Month,  here we have an explanation of the 2 types of COPD. 
You can learn alot about COPD by clicking on the LEARN MORE tab at the top of the page. 
Have a pleasant, easy breathing day, friends! ๐Ÿ˜€๐Ÿงก

1 day ago

LadyG

LadyG

Hello Everyone, Once again I am coming here begging for your counsel. I was diagnosed with mild COPD in July, (a diagnosis that I am fairly certain is either incorrect or that is not all that is wrong with me.). As I have been navigating through all of this I am becoming more and more depressed, (yes I see a therapist), as time goes by but I refuse to give up the fight!! You see, I am struggling desperately to find the right medicine(s). We initially tried Anoro but it made me feel like I was constantly having a heart attack. The we tried Bevespi, it worked a tiny bit but not much. The we tried Symbicort, Spiriva and albuterol. I was in the Emergency Room repeatedly with rapid heart rate and heart palpitations! Then we went back to Bevespi, Levalbuterol and prednisone but the steroid made my heart go crazy so they tapered it til I was off. Now I am on Bevespi and Levalbuterol and I feel pretty bad nearly all the time.  I'm really short and small, and because I am so tiny, a little bit of medicine tends to go a long way for me. These meds are not working and I'm so tired of living like this! Does anyone have any suggestions about a Steroid free way? Maybe a medication that I haven't tried that may work? Something that won't cause me to have heart issues? Please ๐Ÿ™

1 day ago

LadyG

LadyG

Hello Everyone,Once again I am coming here begging for your counsel. I was diagnosed with mild COPD in July, (a diagnosis that I am fairly certain is either incorrect or that is not all that is wrong with me.). As I have been navigating through all of this I am becoming more and more depressed, (yes I see a therapist), as time goes by but I refuse to give up the fight!! You see, I am struggling desperately to find the right medicine(s). We initially tried Anoro but it made me feel like I was constantly having a heart attack. The we tried Bevespi, it worked a tiny bit but not much. The we tried Symbicort, Spiriva and albuterol. I was in the Emergency Room repeatedly with rapid heart rate and heart palpitations! Then we went back to Bevespi, Levalbuterol and prednisone but the steroid made my heart go crazy so they tapered it til I was off. Now I am on Bevespi and Levalbuterol and I feel pretty bad nearly all the time. So m so tiny that a little medicine goes a long way for me. These meds are working and I'm so tired of living like this! Does anyone have any suggestions about a Steroid free way? Maybe a medication that I haven't tried that may work?  Something that won't cause me to have heart issues? Please ๐Ÿ™๐Ÿป

1 day ago

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  • brydyHi LadyG, only your doctor who has your full medical history can really recommend what medications would help/work for you. my pulmonologist has trialed me on quite a few to figure out what works best for me but wouldnt necessarily for someone else. im glad that you saw a cardiologist & ruled out any problems there. I dont think bevespi contains corticosteroids but some bronchodilators can raise heart rate a little. I really hope you are able to find some answers & sorry you are continuing to struggle. please give your doc a call & let them know how you are feeling. 1 day ago
  • JazzybeanHI LadyG
    I don't have any answers but would offer this. I was diagnosed with COPD emphysema in 2013. AT the time, I was told that many of the medications for COPD work really well for people who have mostly airway disease as the main component of their COPD, since the medications work to reduce the inflammation in the airways. They may not be as effective for someone with mostly emphysema which is my form of COPD. I am only offering this as another way to think about the effectiveness of the various inhalers that are designed to treat COPD. The next time you talk to your doctor you may ask him about this, specifically, how YOUR form of COPD could impact the effectiveness of the various medications available. COPD is such a systemic disease as well as such individual disease that your COPD even though it has the same name as mine, is not the same disease. And, as such the other symptoms you are experiencing, may or may not be a result of your COPD diagnosis. This disease is scary, frustrating and yes, can make you fee very lonely. As you walk the path, you will find answers, but, unfortunately, this may take time. I wish I had a better answer for you, but, keep searching and let us know as you learn along the way. None of us on here can give you a definite answer, but, we can all learn from little bits and pieces we learn and then pass it on.   1 day ago
brydy

brydyanswered the question Pulmonary function test results

Hi Jazzybean, Im not a doctor just a patient but my PFT results vary somewhat & I think thats pretty normal that they arent the same everytime. maybe one of the clinicians here can explain how much variation is expected but i know mine are never …

1 day ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.