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Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒฟ Good Morning & Happy Sunday

Good morning, 360social ๐Ÿ’™
For many areas, today may bring snowโ€”or even blizzard conditions. If thatโ€™s you, this is a gentle reminder that itโ€™s okay to slow things down and stay safe.

Changing plans to protect your breathing, your energy, and your well-being is not something to feel guilty aboutโ€”itโ€™s taking care of yourself.

Whether today means staying warm inside, adjusting plans, or simply taking things one breath at a time, that choice matters.

โœจ Whatโ€™s one small thing youโ€™re doing today to take care of yourself?

4 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ’™ Remembering Jean Rommes ๐Ÿ’™

Today, we want to pause together and remember someone who meant so much to this community -- Jean Rommes.

Jean was a longtime advocate, a steady voice, and a true champion for people living with COPD. Drawing from her own journey with COPD, she showed up again and again to help educate, support, and push for change so others might have an easier path. She also served on the Board of Directors for the COPD Foundation, offering her insight, leadership, and deep commitment to this work at the highest level.

Over the years, Jean wore many hats with the Foundation -- helping plan conferences, serving as a State Captain, participating in IMPACT and other legislative efforts, contributing to research and advisory groups, and mentoring others along the way. No matter the role, her focus was always the same: making sure people felt heard, respected, and supported.

Beyond her advocacy, Jean was a mom, a grandmother, and a great-grandmother. She loved reading, music, good conversation, a glass of wine, and staying connected with friends, often virtually - because community always mattered to her.

If you ever worked alongside Jean, you likely remember her thoughtfulness, her wisdom, and the calm, caring way she brought people together. Our community is stronger because of her, and her impact will continue to be felt for a long time.

We hold Jeanโ€™s family and loved ones close, and we invite you to share a memory, a note of gratitude, or simply a ๐Ÿ’™ below if youโ€™d like.

Thank you, Jean, for all you gave and for the many lives you touched. You will always be part of this community.

5 days ago

Dinna25

Dinna25answered the question Not sure if should post this on here

Hi ya Wildebeest yeah its been a while, i look in but cannot help with any input to questions so i look again another day. Iv been good my copd remains stable on last check, and lungs sounded clear. Any fear stress i had have now gone, i do the …
WildebeestDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Caroline West Virginia State Captain also answered the question Wildebeestand 2 others also answered the question

1 hour ago

das23

das23answered the question Describing what happens that causes inhaler side-effects

Thanks for posting all this netmouse. Interesting information
netmouseTom.ECoach Brandon - Community Manager also answered the question netmouseand 2 others also answered the question

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Does anybody else have issues with stuffiness just in one of your nasal passages?

Netmouse, it worked for me, and I was told it was okay to do that. You can very easily buy gallon jugs of distilled water.
netmouseGAnnePhyliss DiLorenzo NJ State Captain also answered the question netmouseand 2 others also answered the question

1 hour ago

netmouse

netmouseasked the question: How long does inhaler drug stay in body with side effects?

I asked Google Gemini how long it takes Spiriva to leave my body, as I have improvement but still feel "residue". Question: How long does it take to get Spiriva Respimat out of your system? It made me very dizzy and disoriented after 1 month, so I …

4 hours ago

netmouse

netmouseasked the question: Describing what happens that causes inhaler side-effects

Google's Artificial Intelligence analysis describes what is happening that causes inhaler side-effects. And has questions to ask about other options and next steps. Gemini's Response: That is a very challenging list of side effects, and it's …

4 hours ago

netmouse

netmouseanswered the question Analysis to find a safe inhaler - Artificial Intelligence

Gemini provided more detail on Singular, as well as other options to try: Singulair is a different "animal" than the inhalers you tried. It isnโ€™t a bronchodilator or a steroid; itโ€™s a Leukotriene Receptor Antagonist . Why Singulair (Montelukast) …

5 hours ago

netmouse

netmouseasked the question: Analysis to find a safe inhaler - Artificial Intelligence

I asked Google's AI Gemini to help me find a drug, noting the inhalers tried and stopped due to serious side effects. Question: Create a "Medication Sensitivity Summary" that lists these specific failures and why they happened. Include other options to …

5 hours ago

netmouse

netmouseanswered the question PFT results analyzed by artificial intelligence

I then asked about the TLC and RV/TLC%. Below is the Q&A: Question: The total lung capacity TLC is 123%. The RV/TLC% is 140. What does this mean? Gemini Response: These new numbers provide the "final pieces" of the puzzle. They confirm that your …

6 hours ago

netmouse

netmouseasked the question: PFT results analyzed by artificial intelligence

Using the numbers from my recent PFT test, I asked a question of Google's Artificial Intelligence platform, Gemini. I got the below analysis. What do you think? Question: What does RV 181% in PFT test mean? FEV1/FEC is 61%. DLCO is 65%. An expiratory …

6 hours ago

netmouse

netmouseanswered the question Problem with Spiriva mist inhaler

David, on starting this drug I voiced that I could try 1 puff if any issue, hopefully a way forward. Feeling the symptoms progress over several nights, and then the strong feeling of disorientation the last morning I woke up, holding on to door jams to …
KingDeath83David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question KingDeath83and 1 other also answered the question

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! I wish all of you a very pleasant day, filled with reasons to smile! You deserve the very best! ๐Ÿ˜ƒ

11 hours ago

KingDeath83

KingDeath83answered the question Studies on weather impacting progression of lung disease

Welcome fellow iowan gotta love our wonderful weather. I have the same question as you breathing here is terrible with copd or even just asthma. Between the hot the cold the humidity and all the alergens and lets not forget the farm land thats lovely …
Alaskan boonyratJean IA State CaptainKandy State Captain of South Dakota also answered the question Alaskan boonyratand 2 others also answered the question

16 hours ago

KingDeath83

KingDeath83answered the question PFT results-I have the pdf I just want a straight answer what stage?

Thank you I needed the truth for the motivation to quit. Im glad you all are here. Youve all been so helpful and thanks again
David Mannino, MD (Chief Medical Officer, COPD Foundation )das23 also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

17 hours ago

Dinna25

Dinna25asked the question: Not sure if should post this on here

Hi all Its been awhile, I'm still jogging along, took the advice from here and i am "having a life" still doing my walks and cardio but not letting my lungs rule take over. But have a question it may not be for this group and I'll take down if wrong. …

22 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Oxygen dropping at rest

Kmcnamara68 - have you contacted your doctor?
Kmcnamara68 also answered the question Kmcnamara68 also answered the question

1 day ago

Rain653

Rain653answered the question 32 mild emphysema diagnosis in ER. How bad is this? Will quitting cigs help me be normal again?

Hello Wfly, I understand how scary it may be, I am in the same boat, unfortunately. Besides that I was diagnosed a year ago with very mild emphysema and very mild copd I have an extremely bad panic attacks since I was in my twenties, which put me in ER a …
appowellDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question appowelland 1 other also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Happy Saturday, 360social!
Letโ€™s make today a little lighter together ๐Ÿ’™

Hereโ€™s your fun question of the day:
Whatโ€™s something that always makes you laughโ€”no matter how many times you see, hear, or think about it?

It could be:

A pet doing something ridiculous ๐Ÿพ

A favorite show or movie moment

A joke that still gets you every time

A memory that pops up and makes you smile

No pressure to be fancy - sometimes a quick laugh or smile is exactly what the day needs.
Drop it in the comments and letโ€™s give each other a few reasons to grin today ๐Ÿ˜Š

1 day ago

UK Lynn

UK Lynn

Hi I'm getting nowhere with UK doctors who have prescribed Trimbow. 7 years ago an angiogram showed hyperinflation..Last month a CT scan showed no smoking damage which was great news! But they keep describing heavy drugs like Trimbow. I do suffer from mild asthma as there may be an overlap. Can asthma inflate lungs? Thanks in advance if anybody can please advice. Stopped smoking 20 years ago and normal fev1. 

1 day ago

netmouse

netmouseasked the question: Problem with Spiriva mist inhaler

I began my second month of using Spiriva Respirnat mist inhaler (tiotropium). Very expensive drug. I negotiated with the drug plan insurer to move it from their Medicare tier 4 to tier 3 to get the cost down. With my deductible, the 2 months have totaled …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! 
This beautiful capybara would like to share a bouquet of flowers with everyone! 
Keep on smiling, and enjoy a pleasant, easy breathing day! ๐Ÿ˜ƒ

1 day ago

Jakewhite0101

Jakewhite0101answered the question Unusual spirometry resultsโ€”looking for experiences or insights

Thank you so much for your reply David Mannino, MD (Chief Medical Officer, COPD Foundation )! At the start of all of this, I went for an ECG, and it was abnormal. They then did an ECHO and a CT Angio, and everything came back normal. My ECG also returned to normal, and they sent me home, saying I was …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

1 day ago

Bernardene

Bernardene

Karen
Thanks for the your feedback regarding Jean.  If you get any more info I would appreciate it and I will do same.
Bernie Lindquist Minneapolis Mn

1 day ago

GAnne

GAnneasked the question: Does anybody else have issues with stuffiness just in one of your nasal passages?

I seem to always get stuffiness in the left side of my nasal passage I use aye gel, and the spray. Does anyone use? Xylitol sprays or Nettie pot

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainFluffy Friday afternoon ๐Ÿ˜ Ebony claimed my daughter's sandals as hers this morning ๐Ÿ˜‚

1 day ago

BomBy

BomBy

Hi everyone. I am 47 years old and have recently had an x ray that showed the lungs hyperinflated due to air trapping with increased retrosternal air lucency and flattening diaphragm. Welllll, I googled that and it does not sound good at all. I am a single Mom and absolutely panicking based on how I feel and reading that I basically have no time left and that itโ€™s moderate or severe! I made a pulmonology appointment for next week, but I am so scared I am going to leave my girls and have no one to turn to. I feel like I am way too young for it to be this bad and have much of a life yet. Iโ€™m so scared.  

1 day ago

Jakewhite0101

Jakewhite0101asked the question: Unusual spirometry resultsโ€”looking for experiences or insights

Hi everyone, I am a 27-year-old male. About nine months ago, I started noticing changes in my breathing. The change was quite drasticโ€”one moment I felt normal, the next I was strugglingโ€”and it hasnโ€™t gone away. It took a few months and visits to …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainA very fine, wise, and caring person sent this to me this morning. 
Keep on focusing on the good stuff in life, folks! There's a happy lil' tidbit around every corner! ๐Ÿ˜Š

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ๐ŸŽWINTER PEAR~APPLE SALAD๐Ÿ๐Ÿ1 large pear, cored and sliced1 large sweet apple, cored and sliced5 ounces spring mix salad blend1/4 cup crumbled feta cheese 2 tbsp. sweetened dried cranberries 1/4 cup your favorite vinaigrette dressingPlace all...

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.