COPD360social

For a decade, the COPD Foundation has provided a growing COPD community with resources and education. Now we want to take our work to the next level. We want to hear from YOU daily.

Welcome to our interactive, collaborative community: COPD360social. You can join us and other friends, learn about events in your area, participate in research, chat with the experts, and learn how to take action -- all on your time, at your pace. COPD360social is the COPD Foundation's way of saying 'Thank you' to a community that can make the world take notice of a silent epidemic.

Join COPD360social, because we are stronger when we work together.

Create your COPD360social profile today!

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DonnaK9

DonnaK9received the badge Getting started

Earned the Getting started badge!
Rosefordwan92Derek Tand 23076 others also received the badge Rosefordand 23078 others also received the badge

5 minutes ago

edpe77

edpe77

Great!
Just watched the HBO Documentary ... Becoming Warren Buffet
Excellent story. He repeatedly praised others, as in they were more important than him. Also he felt his key to success: FOCUS. Finally, an important quote directly applicable to all of us:
I'll leave you with a quote of his ..."
Chains of habit are too light to be felt until they are too heavy to be broken." Warren Edward Buffet
ed

4 hours ago

    Bill Clark - Community Manager

    Bill Clark - Community Manageranswered the question Who are the volunteers?

    ;)....No just kidding. You can see who the staff is by clicking on the "about us" tab at the top. We are in the process of listing the state advocacy captains. We have people who help us in a volunteer capacity from time to time but are too numerous to …

    6 hours ago

    eves

    evesasked the question: Who are the volunteers?

    Just curious. I looked under "staff and volunteers", but cannot figure out who is a volunteer. Is it a secret? In which case, just answer with a wink. ;)

    7 hours ago

    HIcopd

    HIcopdanswered the question Salt Inhalers for COPD

    I use 7% saline with the nebulizer and Aerobika most days and it really helps reduce my coughing. My MD prescribed the hypertonic saline and it is covered by my insurance. Also, the nebulizer and mouthpiece were also covered by my insurance. Aerobika is …
    Juliana727Bill Clark - Community ManagerJenpieand 6 others also answered the question Juliana727and 8 others also answered the question

    9 hours ago

    Ken Benson

    Ken Bensonhttp://khn.org/news/new-medicare-rules-should-help-high-need-patients-get-better-treatment/?utm_campaign=KHN%3A+Topic-based&utm_source=hs_email&utm_medium=email&utm_content=42796518&_hsenc=p2ANqtz-_BC30mYEx7b5Lbrd5oHeiSVEcSTiY5UOQOFNmx-vGmMTuDxYShiCfbfiBQ6lB2iF2LYxzg0BAdls-l0aub1F3Zx-Z0mg&_hsmi=42796518

    9 hours ago

    RPlant

    RPlantvoted on Harmonicas for Health: Making Breathing Fun in Tennessee

    Gave a thumbs up for a COPD Digest Magazine article!

    10 hours ago

    RPlant

    RPlantvoted on Motivating your Patients to Change Behavior

    Gave a thumbs up for a PRAXIS blog post!

    10 hours ago

    HIcopd

    HIcopdanswered the question How often should you change your oxygen cannula if your are on it 24/7?

    According to Medicare guidelines, we are supposed to be furnished with sufficient cannulas to replace every 2 weeks and tubing to replace every 3 months. Of course also replace after recovering from infections as well. https://www.cms …
    John BowlsbeyKandyhackand 2 others also answered the question John Bowlsbeyand 4 others also answered the question

    10 hours ago

    HIcopd

    HIcopdanswered the question Standard Letter for 02 & Airlines

    Oh yea, I have been able to get forms signed by whichever doctor is modt convenient--lung doc or internist. The airlines really don't care. To make it was easy as possible, I fill out everything I can and just leave blank the part where the doctor signs …

    10 hours ago

    HIcopd

    HIcopdanswered the question Severe dizziness

    Postural Orthostatic Hypotension (POTS) is a condition where the blood pressure drops rather dramatically due to changes in position. It is more common as we get older and especially when more dehydrated. Taking our time when changing positions is very …
    KandyJane MartinViper65and 4 others also answered the question Kandyand 6 others also answered the question

    11 hours ago

    Kandy

    Kandyhttp://www.hayekmedical.com/about-bcv/

    Has anyone had any experience with this? I think maybe new not sure but wondering if this would be a good thing if you can't use the trilogy cause of blebs!!

    11 hours ago

      Kandy

      Kandyvoted on Motivating your Patients to Change Behavior

      Gave a thumbs up for a PRAXIS blog post!

      11 hours ago

      HIcopd

      HIcopdanswered the question Looking for Patients in the UK or Surrounding Countries to participate in an Interview for GSK

      I just participated and had a very enjoyable 45 minute chat yesterday. I'd encourage others to contact Bill if they're interested.

      12 hours ago

      edpe77

      edpe77

      Jane, Your book {Live Your Life With COPD- 52 Weeks of Health, Happiness and Hope} got me into this community. I knew I had a severe disease, but just moved along. The book was featured in COPD Digest, got it from the library and read it a couple summers ago. It's a good read for anyone stuck with the ups & downs of this insidious disease. Your co-author was an absolute trooper, much like many here. Again, thanks for a very helpful insight.
      ed

      13 hours ago

      Bill Clark - Community Manager

      Bill Clark - Community Managerasked the question: Looking for Patients in the UK or Surrounding Countries to participate in an Interview for GSK

      We are working on behalf of GSK to provide a variety of different patients in Great Britain or surrounding countries willing to be interviewed about their experiences and symptoms with COPD. Below is the letter from GSK with their criteria: We are …

      13 hours ago

      Elizabeth Benkert

      Elizabeth Benkertvoted on Motivating your Patients to Change Behavior

      Gave a thumbs up for a PRAXIS blog post!

      14 hours ago

      clipper

      clipper

      Tai Chi tied to reduced risk of falling. Important for all of us.
      http://www.rtmagazine.com/2017/02/tai-chi-tied-reduced-fall-risk-older-adults/

      For a year and a half I have been doing QiGong; Tai Chi is a form of QiGong. I swear by it for my breathing. It was also the first exercise I did in my exercising oddesy. Initially my breathing was so bad I could only do seated QiGong and seated Tai Chi. It was the thing that eventually got me up and moving again.

      15 hours ago

      eves

      eves

      Quotes by Maya Angelou

      "I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel."

      "If you don't like something, change it. If you can't change it, change your attitude."

      "There is no greater agony than bearing an untold story inside you."

      16 hours ago

      Kristen Willard

      Kristen Willard

      Did anyone happen to catch the American Masters on PBS last night about Maya Angelou? She spoke about having COPD -- I have never seen a "celebrity" talk about their experience on national television before.

      16 hours ago

      Vinny M

      Vinny Mvoted on Motivating your Patients to Change Behavior

      Gave a thumbs up for a PRAXIS blog post!

      17 hours ago

      eves

      evescommented onMotivating your Patients to Change Behavior

       I think some folks have a much more difficult time digging into themselves for some motivation. For whatever reason, some of us do not have that 'positive' demeanor and often fall between the cracks. Those folks often do not invoke or evoke the...

      17 hours ago

      Delia Prieto

      Delia Prietocommented onMotivating your Patients to Change Behavior

       Thanks for sharing! The characteristics of SMART goals are truly essential for success. This approach to setting goals can be applied to anything (even personal goals we have for ourselves that may not be health-related). Its nice to have a reminder...

      18 hours ago

      Delia Prieto

      Delia Prietovoted on Motivating your Patients to Change Behavior

      Gave a thumbs up for a PRAXIS blog post!

      18 hours ago

      Viper65

      Viper65answered the question why do some people who have quit smoking look down their noses at others who have not yet quit?

      Hi Bellabits, They probably forgot how hard it was to quit. Sometimes they say things hoping it might get them to quit, although this seems to have the opposite effect.
      BellabitsevesBill66 also answered the question Bellabitsand 2 others also answered the question

      22 hours ago

      Viper65

      Viper65answered the question Are you doing better yet? And other questions that might bug us.

      Hi eves, I am asked that question a lot. My pat answer is one of three one is "I'm still vertical" another is "I did not see my name in the paper today" and the other is "I'm still stepping on the daisies" then I add to these "so that's a good thing"
      Uncle JimevesBill66and 1 other also answered the question Uncle Jimand 3 others also answered the question

      22 hours ago

      Bill66

      Bill66answered the question How do you interpret your world with copd?

      Great Topic!
      DavinaTjim1945anon0502and 4 others also answered the question DavinaTand 6 others also answered the question

      1 day ago

      Mariejk

      Mariejk

      New out here I am. I, like all of us I guess, deal with this frustrating disease - have been for a long time. Finally in need of reaching out and communicating with others who share what I go through to get through a day. Yes, some days are sososo much easier and some days, well they are just bad dogmeat! Today was kind of one of those. Working on the positive. Drinking red wine! LOL
      I do have a question that I wonder about: I take Spiriva and Symbicort. I do use breathing treatments when needed, once daily for certain. Is there a time frame between the meds? Is there an order that anyone has found to work bast for them? I was told to do the breathing treatment first...am finding the opposite information suggested. Been researching this today especially I guess because I am so over the struggle! TY for thoughts! <3

      1 day ago

      • Click to View All Comments7 comment(s) -
      • Mike RRTThe phrase "breathing treatment" usually implies a nebulized medication treatment. In respiratory therapy circles, it generally means either a nebulizer or an inhaler, but I've found that most people IN GENERAL use it strictly to mean their nebulizer.

        I think using PLB before your inhaler is a great idea! The breath hold is also very important. As far as the order of Combivent vs. Symbicort, I would suggest the next few times you get up late, try switching the order. If you feel there's a clear difference between the two techniques, use the one that works best for you. If you don't see a big difference, it probably doesn't matter all that much. Every person's case and physiology is different, so sometimes it takes a little trial and error to figure out the right regimen and the right routine!15 hours ago

      • Jane MartinMike,

        One train of thought on inhaler use order is that if you take the short-acting beta agonist first, it takes up the receptors that could be put to better use with long-acting meds. 11 hours ago

      • CarolineMike, or Jane
        Should I move the nebulizer treatment to the evening, or is waiting 30 min. long enough to not cause less of the Incruse to be absorbed. I do move a lot of mucous out of my lungs and sinuses with the nebulizer.

        It seems to me that I need the breathing treatment to clear out my lungs as I do not expel it unless I use the treatment.10 hours ago

      Made Pramana

      Made Pramana

      Hello everyone. I just arrived home after doing yoga in the field. I met a mom and we had some conversation. She reminds me not to think too much. I really like how calm she talked to me. Yes I need to be relaxed in this moment. Think some happy things. Think about how these nutritious food that I eat will give energy to my body. Think about the exercise that I do will make my body stronger.
      I feel good after doing yoga. The bonus is I coughed some mucus which is great! :)
      Have a nice day.

      1 day ago

      • evesSounds like a good day.
        It is difficult not to think too much. Sometimes when I try not to think too much, I just end up thinking about not thinking too much. :) I think that sounded confusing.
        It helps to be around things or people that please you.
        It sounds to me that you are doing all the right things. You have a nice day too.1 day ago

      • Delia PrietoGreat to hear from you, Made. I think we can all be reminded not to think too much. Our thoughts can become overwhelming pretty quickly sometimes. Thanks for sharing and wishing you a nice day!18 hours ago

      • Made PramanaHi eves and Delia. Haha I get that ;) yes I also end up with thinking about not thinking too much. Accept the thought that come into our mind.2 hours ago

      Karen Deitemeyer

      Karen Deitemeyervoted on Motivating your Patients to Change Behavior

      Gave a thumbs up for a PRAXIS blog post!

      1 day ago

      DavinaT

      DavinaTvoted on Motivating your Patients to Change Behavior

      Gave a thumbs up for a PRAXIS blog post!

      1 day ago

      DiannaG

      DiannaGvoted on Motivating your Patients to Change Behavior

      Gave a thumbs up for a PRAXIS blog post!

      1 day ago

      Kristen Willard

      Kristen Willardadded a new article Motivating your Patients to Change Behavior

       Garwick presentation

      This article is based upon the recent Pulmonary Empowerment Program webinar, “Motivating the Pulmonary Rehabilitation Patient to Lifestyle Modification: Achieving positive results by incorporating coaching techniques” given by Tammy Garwick, MA, RCEP, FAACVPR.

      Health coaching is a patient-centered process that involves supporting patients...

      1 day ago

      CJ Maine

      CJ Maine

      home from Hosp. 11 day stay-Influenza on top of COPD-wow

      1 day ago

      Frankie2015

      Frankie2015answered the question What would you like to see in a COPD App??????

      Sounds like a great idea! I read the answers and pardon my question if I overlooked! Anyway, I'd love to see a list of all the medications and dosages used or normally used for COPD.
      DonnaA (SSP)Viper65clipperand 5 others also answered the question DonnaA (SSP)and 7 others also answered the question

      1 day ago

      eves

      eves

      Beginning to feel as if I work here, my fingers get sore from clicking.

      1 day ago

        Grumpy71

        Grumpy71

        My Mom passed away January 22, 2017. She had COPD and small cell lung cancer. She fought right up to the end. We have an Inogen g3 that she got last July 2016. We are looking to donate the machine, but not sure how to go about this. If anyone can help, we would truly appreciate it.

        1 day ago

        Ken Benson

        Ken BensonGood, bad, or otherwise?

        http://www.hmenews.com/article/providers-cheer-bid-delay

        1 day ago

          Cindylu

          Cindylu

          I have been sick for about 3 weeks long course of antibiotics, prednisone struggling with my breathing. First real sickness since being diagnosed. Afraid of the outcome. Worried I won't get back to where I was before. Only 51 percent capacity between both lungs. Working closely with pulmonolgy dr. Scared.

          1 day ago

          • CarolineHello Cindylu, I think that all of us here understand being scared of the outcome from an exacerbation. The most we can do is catch them as early as we can and pray for the best. Wishing the best outcome for you.1 day ago

          • evesHi Cindylu.
            As Caroline said, we completely understand. Struggling to breathe makes anyone scared. Do not worry about the number though, it is just a reference number.
            And you are doing all the right things, especially working closely with your pulmo doctor.
            hugs to you1 day ago

          • JeanActually, there are some things that work in our favor if we do get sick. The better shape you're in the better able you are to shake off whatever bug bit you, so this is a good example of why people with COPD should exercise daily. Knowing your triggers and understanding the signs of an exacerbation so you catch it early, having a supply of antibiotics and prednisone on hand and getting started on something very quickly can help. Getting flu and pneumonia shots can't hurt, and staying away from people with bugs is a no-brainer, including grandchildren, no matter how cute or how much they want to see you, don't let them!!! If they're buggy, you don't want to see them.

            You are doing all the right things, and you will find that it will take a long time to get back to where you were, but it is possible. I remember one exacerbation that I thought I'd never recover from, but I kept working and exercising every day, and I finally got there....it probably took four months. Sometimes it takes longer, but it's something you just need to keep on with.1 day ago

          Bill66

          Bill66answered the question Points...

          I click the thumb more to remind me I read it, than it is for the points.

          1 day ago

          edpe77

          edpe77answered the question Points...

          As I said earlier, I'm not here for the points/badges. But they are here, so the how do we accumulate them discussion has been interesting, and gives Vinny something to do! thanx Vinny ed

          1 day ago

          Evie

          Evieanswered the question apnea and cpap

          Hooray, got the oxygen after my doc went to bat for me. now just have to get used to the mask. thanks for the caring.

          1 day ago

          hack

          hackanswered the question Points...

          Vinny M: thanks brother, you steered me right to it. I have 4 badges but if all is correct I should have 5. It says in 360 under how do I earn badges that answering 50 questions gets you the last one. Then back in your profile under dashboard, scroll …

          1 day ago

          eves

          evesanswered the question Points...

          Whoever designed this website was pretty clever. A great system to see engagement, participation which is what keeps a forum going. And what keeps it going is this team effort by all the involved folks on the other side of my screen. Honestly I could …

          1 day ago

          eves

          evesasked the question: Are you doing better yet? And other questions that might bug us.

          I hate to answer the phone and be asked that question. It puts pressure on me. I don't want to say I'm fine and neither do I want to say, life is sucking pretty much. And I also don't even want to talk about it often. Sometimes I want to be in a state of …

          1 day ago

          Vinny M

          Vinny Manswered the question Points...

          @hack - You've racked up a few badges! When you look at your own profile or the profile of any other member you can see the badges earned by clicking on Dashboard and the scroll down the page a little.

          1 day ago

          hack

          hackanswered the question Points...

          There' also badges that can earn you points. Which brings up, I have asked over 50 questions and haven't received my question deceive badge. I would like to pin it on and walk around like a big shot or CEO or something. lol

          2 days ago

          hack

          hackanswered the question Points...

          Mendo: sorry, I ment find a friend.

          2 days ago

          Bill66

          Bill66answered the question Points...

          Thanks Vinny

          2 days ago

          hack

          hackanswered the question Points...

          Mend: click on 360 social then community then find people.

          2 days ago

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          Medical Advice

          It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.