COPD360social welcomes new member MarianneC who joins 65,640 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

โ˜• Happy Sunday, everyone!

As if Sunday coffee wasn't enough to wake us up... today also happens to be Tau Day (6.28)!

Now, if you're scratching your head wondering, "What's Tau?" don't worryโ€”you are definitely not alone. ๐Ÿ˜„

Tau (ฯ„) is a math constant that's twice the value of pi, so naturally it got us thinking...

If today is all about twice as much, let's have a little fun.

Things we'd LOVE twice as much of...
๐Ÿ˜Š Energy.
๐Ÿ˜‚ Laughter.
๐ŸŒค๏ธ Good breathing days.
๐Ÿค— Encouragement.
โค Time with family and friends.
โ˜• (Maybe) one more cup of coffee.

Things we'll happily leave at just one...
๐Ÿ˜ฎโ€๐Ÿ’จ Shortness of breath.
๐Ÿฅต Humidity.
๐ŸŒฌ๏ธ Pollen.
๐Ÿ›’ Carrying groceries in one trip.
๐Ÿฉบ Doctor appointments.
๐Ÿซข Oxygen tubing getting wrapped around every chair in the house!

And here's one thing we'd gladly take twice as much of...

๐Ÿ’™ The kindness, wisdom, and support that fill this community every single day.

Whether you're newly diagnosed or you've been living with COPD for years, it's amazing what happens when people encourage one another, celebrate the little victories, and remind each other that no one has to do this alone.

So here's our Sunday question...

If Tau Day could magically give you twice as much of ONE thing today, what would you choose?

More energy?
More patience?
More laughs?
More time with the grandkids?
More sunshine?
More naps? (No judgment! ๐Ÿ˜„)

We're looking forward to reading your answers. Wishing each of you a wonderful Sundayโ€”and thank you for making COPD360social such a special place to spend it? ๐Ÿ’™

14 hours ago

KAIF

KAIF

๐Ÿ˜ŠI am patient of COPD emphysema 3rd stage with big air. For the First Time I felt like now only few breaths when doctors reported Showed severe paraseptal and centrilobular pulmonary emphysema Fvc 76 FEV146FEV1/VC 47.54, But I am feeling OK with regular walking 6KM to 8KM daily in 2 sessions. 

2 hours ago

JeanO53

JeanO53More energy!  Yes, please!
Yesterday I spent the afternoon walking/hiking around Wehr Nature Center, a part of our largest county park - 640 acres.  I've wanted to spend some time there but worried that I wouldn't have enough energy to really enjoy it.
.. It was a beautiful day in an amazingly beautiful place.  One of the trails is 1.5 miles around a small lake with water lilies around the shoreline.  Mid-way is a small waterfall.  I was determined to make it to the waterfall.  I made it there and sat in the shade for awhile before heading back. 
.. Tired and hungry, I felt this great sense of accomplishment.  What a great feeling!

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends!


Keep a smile on your face
You'll always be in the right place
Plenty of sunshine headed your way
That positive outlook is here to stay
Lots of hope and wonderful things 
Are what our awesome website brings
๐Ÿงก๐Ÿ’™๐Ÿงก๐Ÿ’™

10 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Check-in: How Summer Heat and Humidity Can Affect COPD

For those who are members, Costco is currently having coconut water on coupon, so you can save some that way. We always have high humidity but are generally spared the sky high 100+ temperatures.
AurielWildebeestKaren Deitemeyer - Florida State Captainand 3 others also answered the question Aurieland 5 others also answered the question

18 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Saturday is Helen Keller Day. ๐Ÿ’™

Helen Keller once said, "Although the world is full of suffering, it is also full of the overcoming of it."

Her life reminds us that our circumstances don't have to define our future.

Living with COPD, bronchiectasis, NTM lung disease, or caring for someone who does often means learning to adapt. You may have had to change routines, discover new ways to do everyday things, or find strength you never realized you had. That isn't giving upโ€”it's growing.

Progress doesn't always come in giant leaps. Sometimes it's remembering to celebrate the small victories: completing your airway clearance, taking a walk, making it to pulmonary rehab, asking for help, trying something new, or simply getting through a difficult day with hope for tomorrow.

One of the beautiful things about this community is seeing how often those small victories are shared. Every tip, every word of encouragement, and every story of perseverance reminds someone else that they aren't alone. Together, we learn from one another, lift each other up, and find new ways to keep living full and meaningful lives.

Whatever challenge you're facing today, don't underestimate the power of one small step forward. Those small steps have a way of becoming remarkable journeys.

๐Ÿ’™ We'd love to hear from you: What's one obstacle you've overcomeโ€”or one new way you've learned to keep enjoying life despite the challenges? Your story could be exactly what someone else needs to read today.

1 day ago

  • DebbieB.-Connecticut State CaptainWell, I have learned to overcome going out in public with my chronic illness. I cannot open the windows in my home because of the triggers and toxins where I live. My pulmonologist has told me there very well may come a day when I cannot leave my home. 
    I have COPD, very severe asthma, and very severe scent intolerance. My immune system is way down there on the scale. 
    I have learned to wear a filtered RZ mask, disposable gloves, long sleeves, and my feet are covered with shoes and socks. 
    I am still living the good life. I take precautions. I "think through before I do."
    Life was meant to enjoy. Yes, there is a bright spot in every day! ๐Ÿ˜€
    Managing my condition properly is extremely important to me. I stick to my routine, and that works for me.
    Most importantly, never give up hope, and keep those positive vibes flowing! ๐Ÿ˜Š20 hours ago
Pattypat

Pattypat

Was just diagnosed with moderate COPD. Could not get an appointment with a Pulmologist until September. So I have to go to my Internal Medicind Doctor. Who after a week of me emailing called me in an inhaler. I had a flare-up 2 weeks before I was diagnosed and it was terrible. So according to the American Lung association I should be prepared for a flare-up with Prednisone and a rescue inhaler. My Doctor refuses to prescribe them. She said I would have to come into the office during my flare-up. and that's impossible. Not sure where to turn.

1 day ago

  • NewestOldest
  • WildebeestI am in the UK. I have moderate COPD diagnosed since 2011. I was hospitalised with pneumonia a couple of years ago but even then I was not given steroids, just ABX. Our doctors here often don't prescribe rescue packs, especially not in the earlier period after diagnosis as the patient has not got used to living with their symptoms. It can be difficult to judge when to start a rescue pack. In the UK a rescue pack would typically contain antibiotics and steroids. Not an extra inhaler - but we are given rescue inhalers (salbutamol or the like) unless the daily inhaler can be used extra in case of breathing difficulty. That depends on the brand you take daily. Over here they will at least give you a priority appointment if you have COPD and maybe a doctor would be prepared to prescribe by telephone if you are really feeling bad? With a bit of luck you will be OK until September and maybe the pulmonologist will be happy to give you a rescue pack. 1 day ago
  • DebbieB.-Connecticut State CaptainMay I ask why it is impossible for you to go into your doctorโ€™s office during a flare-up, or exacerbation? 
    Could you do a zoom meeting for your appointment?
    Having a rescue inhaler is extremely important.  
    Where I live, I have the option to visit an Urgent Care Center if I cannot see my pulmonologist at that time. 
    Wishing you the best! I hope you'll have easy breathing days! 20 hours ago
  • HIcopd - Hawaii State CaptainI agree that many doctors and other providers want to see the patient to determine the best course of treatment. Here we can try to be seen by our provider or go to urgent care or ER.  Having the ability to do telehealth visits can help when transportation is a problem as well (even though the provider canโ€™t examine you in person).18 hours ago
Bob puff dragon

Bob puff dragon

Hope everyone is enjoying their weekend and is going to make the most of it.House is still and empty at night,lots of reflection time with wife gone. Daughter had to cancel for now will fly out later this week,,just me and my dog talking life.Wife had surgery yesterday,not only broken hip but leg fracture above knee and also hand,so she really did a number when she fell. Going to get up for a visit sometime today someway.


I wanted to take a minute and share my you tube music Channel with the group in the hopes some of you can find a song or songs that can help give inspiration hope or just be a back drop through your day.Music has been such a large force in my life since ten when l discovered my first guitar. Had at least ten thousand jam sessions with friends and family and old band members from the front porch 
 to music room,kitchen patio.
You tube music my streaming service is always on in the background in our house and a friend over visiting a couple of weeks ago was commenting on many songs he had not heard before, l had it set up for private use for many years but at that time changed it over to public domain, able to be used by all.
Lots of easy listening, accoustic in a few different jaundras that should offer something to a broad range of listening tastes.


Anyhow its there to try if you would like to,they always offer a free month tryout,, to many commercials otherwise.


Address is old dogs listening,look for the hillbilly meme scroll through,play and hopefully enjoy.


Big breaths,happy thoughts and smiles for all.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Remember, the little things in life are the big things! 
Things such as seeing your favorite backyard bird at the feeder, seeing a flower in full bloom, your first sip of coffee in the morning, and hearing your cat purr while being pet!
Enjoy your favorite little things! They count for a whole lot! 
Have a wonderful day! 

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

On Caroline West Virginia State Captainโ€‹โ€™s excellent recommendation, I bought a WAIST PACK for my Inogen Rove6.  I was pretty skeptical because I sometimes have challenges with my waist packs because my hips & waist are similar dimensions but it was on sale on Amazon and  there are free returns for 30 days, so I figured Iโ€™d give it a try.  Lo & behold, it seems to work perfectly and itโ€™s great that you can more easily swivel the POC from the back to the front so you can turn the POC off or on or adjust the setting.  Iโ€™m VERY pleased and indebted to Caroline!  Thanks for another tool for making toting O2 around a little easier!

1 day ago

DeeDee3

DeeDee3

Hi Iโ€™m new to this group. Came here to see how otherโ€™s cope. Iโ€™m labeled as having COPD undifined, Asthma, and two other rare lung diseases that go in remission. Iโ€™m on supplemental oxygen and use two inhalers. I still get out of breath on exertion. Donโ€™t understand why. Does anyone else have a dry cough that makes it hard to breathe? 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Quick little spread-the-word story...
Yesterday I was speaking to the manager of my local garden shop. She's a friend that I see each week. We were talking about me wearing long sleeves, gloves, and a mask on a hot day. Turns out that her Mom is in stage 4 COPD. So, I told her about our website, and suggested that she pay us a visit. I also gave her one of my Captain's Cards. I told her that her Mom is welcome to contact me anytime. 
Keep spreading the word! It does help alot! ๐Ÿงก๐Ÿ’™

1 day ago

Nova

Nova

Hi my name is Nova I'm taking this new medication and I am not doing very well with it first of all I was reading and I guess vertigo or dizziness is something common with this medicine I was having vertigo and dizziness before taking this medication and I am in the middle of menopause so those two things is hard to know however I feel like that it is not helping my breathing at all it is making it worse and I wanted to find out if anybody else was having this type of reaction with this medication

1 day ago

Tralisa Willis MEd, CHWI

Tralisa Willis MEd, CHWIasked the question: Check-in: How Summer Heat and Humidity Can Affect COPD

Weather can affect everyoneโ€™s health, especially those living with COPD. Heat and humidity can make it hard to breathe and increase the risk of flare-ups and emergency room visits. [1] Are you prepared for the heat and humidity of summer? Heat and COPD …

1 day ago

Bob puff dragon

Bob puff dragonHappy Friday to all,another one in the book of life.Better days ahead for all having a rough patch.

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿพ Happy Fluffy Friday... and Happy Take Your Dog to Work Day! ๐Ÿ’™

For many of us, taking our dog to work doesn't require much planning... they're already there! ๐Ÿถ

Whether they're reminding us it's time to get up and stretch, joining us for a walk, supervising breathing treatments, or curling up beside us after a long day, our furry companions have a special way of helping us through life's ups and downs.

Living with COPD isn't always easy, but those happy tails, gentle nudges, and unconditional love can bring comfort, laughter, and a reason to smile when we need it most.

๐Ÿ“ธ Let's celebrate our four-legged coworkers!

Share a photo and tell us:
๐Ÿพ What's their name?
๐Ÿพ What's their funniest "work habit?"
๐Ÿพ How do they brighten your day?

Whether they're your walking buddy, your nap supervisor, or the self-appointed Director of Treat Quality Control, we'd love to meet the companions who make life a little brighter.

Happy Fluffy Friday, everyone! We hope your weekend is filled with easy breathing, wagging tails, and plenty of smiles. ๐Ÿงก๐Ÿถ

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‰๐Ÿ“WATERMELON SMOOTHIE๐Ÿ‰๐Ÿ“1/2 cup almond milk2 cups cubed watermelon 1 cup frozen strawberries Half of a large banana, broken into chunks and frozen1 tbsp. honey Combine all ingredients in a blender. Blend until smooth and creamy. Add a tad more...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my Boxer girl, Hazel Madeline! 
This past Sunday she enjoyed watching the kiddies having fun at the Splash Pad at Eisenhower Park. 
We wish everyone a pleasant, easy breathing day! ๐Ÿ˜Š

2 days ago

Community Announcements

Community Announcementsadded a new article Inhaled vitamin D has potential to improve lung function

New perspective pushes for research into benefits of vitamin D delivered directly to the lungs

Miami (June 25, 2026) - Inhaled vitamin D supplementation rather than oral delivery could potentially improve lung function and reduce exacerbation in people with chronic lung diseases and should be explored in human-centered clinical trials, according to a new perspective in the May 2026 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open access journal.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood afternoon, friends!
Went out with my little sister this morning. I had bought her a big container and a big bag of potting soil. So, today we went to our local garden center to choose some plants.
This is Lori's first container garden. I believe that the gift of plants is a nice gift! So, I'm very happy that she's happy! ๐Ÿ˜
This is her yard and her first container garden...that she created. ๐Ÿ˜

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‘จ๐Ÿ‘ฉ๐Ÿ‘ง๐Ÿ‘ฆ Today is "Please Take My Children to Work Day!" ๐Ÿ˜„

For many of us, "going to work" might mean walking down the hallway to the home office... with a supervisor who's 8 years old, four-legged, or insists on helping with every Zoom call. ๐Ÿถ๐Ÿ‘ถ๐Ÿ’ป

Working from home definitely has its perks:
โ˜• Coffee breaks whenever you need them.
๐Ÿพ Surprise visits from furry coworkers.
๐Ÿ˜‚ The occasional tiny assistant asking, "Are you done working yet?"

Living with COPD can also mean learning to work differentlyโ€”taking breaks when you need them, pacing yourself, and remembering that every little accomplishment counts. Some days, simply getting through your routine is a full day's work, and that's something to be proud of.

So tell us...

๐Ÿ“ธ If your kids, grandkids, pets, or even your spouse "came to work" with you today, what would happen? Would they be the CEO... or just the office distraction? ๐Ÿ˜„

We can't wait to hear your stories!

๐Ÿ’™ Happy "Please Take My Children to Work Day" from your COPD360social family!

3 days ago

Suna

Suna

And I quit smoking 5 years ago. 

3 days ago

Suna

Suna

Hi everyone. Hope you are having a great day. I was diagnosed with mild copd yesterday. By accident almost. I was doing a routine check -I smoked for 40 years and even though I had no symptoms both my parents had been heavy smokers their whole love and one died of cancer and the other of copd. They smoked to the end. So I thought I would get the cat scan done.  I was shocked. I have zero symptoms. Iโ€™m heathy and exercise and do weight training. I found out only yesterday and havenโ€™t had the lung function test yet but already in am comparing myself to mother who was so bad. It was traumatising to watch her. Now I feel thatโ€™s what going to happen to me. Mild. 64. Healthy and fit. I eat right. Train at the gym. Iโ€™m scared. Can anyone give me some advice please 

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday to everyone here on 360Social! Wishing all of you an extraordinary, beautiful day! ๐Ÿ˜Š ๐Ÿ’œ

3 days ago

Richard DJ

Richard DJasked the question: Have you heard of anythng new to help prevent the gut to lung action from causing too much phlegm

Have you heard of anythng new to help prevent the gut to lung action from causing too much phlegm

3 days ago

Bob puff dragon

Bob puff dragon

Hello all hope everyone is doing the best they can. I apologize for this post but l gotta vent....
This past two weeks has been the toughest l have ever gone through.My ra interstitial lung disease has now become absolutely a living nightmare every breath feels like a battle and the pain is not even touched by tramadol. If that was not enough to handle,my wife,coming in the door this morning tripped and fell on the cement and broke her other hip,she broke her right one four years ago and now did the left one today.Honest to God l always try to compartmentize issues,put them inside and deal with them old school as dad always taught ,but this last two months has become one crisis after another that is really becoming too damn much.
Not looking for sympathy here just had to vent to a group that knows what setbacks are.thanks..

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‡๐Ÿ‡๐Ÿ‹โ€๐ŸŸฉGRAPE SALSA๐Ÿ‡๐Ÿ‡๐Ÿ‹โ€๐ŸŸฉ3 cups red seedless grapes, stemmed and quartered Half of a small red onion, finely minced Half of a small red bell pepper, finely minced Half bunch cilantro, trimmed and coarsely chopped Zest and juice of 2...

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.