HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Masksโ€”who should wear them and how to get them?

Just learned about this guy who made it his mission to evaluate and share info about obtaining good and protective, comfortable masks. https://news.yahoo.com/amphtml/one-man-is-on-a-mission-to-figure-out-the-best-covidprotection-mask-here-is-what-he …

30 minutes ago

J.News

J.Newsanswered the question 24, depressed and recently diagnosed with copd

Yep been there young too, I was 32 and was susceptible to the effect of smoking. I'm going to give you some quick advice as to what helped me. I have CB too so know how you feel. 1. Exercise every day 2. Lose weight (if you need to) 3. I found the …

1 hour ago

J.News

J.Newsanswered the question Quick question for you re change in numbers?

That latest result should read; FEV1 4.0 (93% of predicted) FVC 5.78 FEV / FVC 69 (minuscule change post Albuterol)

1 hour ago

J.News

J.Newsasked the question: Quick question for you re change in numbers?

Hi All, As an intro, Iโ€™m a 51 yo male & Iโ€™ve been on this road now since 2004, a familiar story of bad asthma as a child, binge drinking & smoking until 34 yo, inhalers and a medical history to be proud of! I do have chronic bronchitis with an …

1 hour ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question What do you use to track your activity?

Yes I to have used my smart phone for the steps. Not sure how accurate it is.

4 hours ago

Sharo

Sharo

What are the best foods to eat with COPD and what should we avoid? or what titles do i look under to tell me.

7 hours ago

Kristen Szymonik, RRT, AE-C

Kristen Szymonik, RRT, AE-Canswered the question How do ou squeeze your MDI?

Hi Ed! I'm glad the two handed technique is working out well! I've also had patients who had trouble squeezing their inhalers, and they used a very interesting technique- they turned their metered dose inhaler upside down and pushed up with their thumbs …

8 hours ago

Kristen Szymonik, RRT, AE-C

Kristen Szymonik, RRT, AE-Casked the question: What do you use to track your activity?

Hello everyone! I hope you're all enjoying your summers and finding ways to be active even in the summer heat. The heat and humidity always slows me down and makes my breathing a little harder, and I'll bet the same is true for many of you. Sometimes I …

8 hours ago

2Hw_COPD

2Hw_COPDanswered the question What is a safe range for O2 saturation when exercising?

Thanks @ddhortnfor the reply! I have 2, 25 ft hoses connected together so I can keep the noisy Perfecto in another room so my wife and I can sleep but unfortunaly won't reach where I have the Echelon. Which brings up another question. I have read that …

8 hours ago

Jean IA State Captain

Jean IA State Captain

Many thanks to the members of the Medical and Scientific Advisory Committee who put together the press release on Phillip Morris's proposed acquisition of the Vectura Group PLC and noted that it's not right for a tobacco company to sell us cigarettes to help us get COPD and then turn around and have us pay them for the meds to help us breathe.  Please see the press release in the middle of the page; it's important!  

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Saying special prayers for my longtime friend Nellie. She is my age. She has blood cancer, and the chemo is not helping her. I am praying for a miracle. She has a husband, a son and daughter, and 3 beautiful grandchildren. ๐Ÿ™๐Ÿ™๐Ÿ™๐ŸŒ 

9 hours ago

2Hw_COPD

2Hw_COPDanswered the question What is a safe range for O2 saturation when exercising?

I am new to the board and fairly new to confirmation I have "moderate" COPD and certainly no expert. Everything I read says below 89 is the danger zone. Due to results from an overnight So2 test I was prescribe supplemental O2. I have been walking and …

9 hours ago

joney

joney

I am doing good breathing is not to easy todayI am going in tomorrow for a scan of my lungs and next friday for echo gram. I know I am slow I had this order way back in march and I am just now doing it..Shame on me for being so slow. Finally set up appointment for my husband to get transportation to see doctor for approval of palliative care๐Ÿ˜”

13 hours ago

Community Announcements

Community Announcementsadded a new article COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company

A company that profits from the sale of tobacco products that cause COPD should not profit from the sale of products that treat COPD

Washington, D.C., July 29, 2021 โ€“ Philip Morris International, which markets cigarettes internationally, is purchasing the pharmaceutical company Vectura Group PLC, which develops and manufactures inhalers widely used by patients with Chronic Obstructive Pulmonary Disease (COPD). The COPD Foundation condemns this acquisition. A company that profits from the sale of products that cause COPD should not benefit from the sale of products that treat COPD. It stretches the boundaries of corporate morality.

"We are concerned that this alliance may lead to unintended consequences that harm patients. Patients, Providers, Payers, and Pharmacies will likely face the ethical dilemma as to whether it is appropriate to use treatments that profit Big Tobacco," stated Dr. Byron Thomashow, COPD Foundationโ€™s Chief Medical Officer. In addition, research with links to the tobacco industry is generally not funded by public organizations. Life-saving research may not be possible if it includes inhaled devices manufactured by Vectura.

The position of Phillip Morris that those who oppose the alliance of Big Tobacco and Pharma are promoting the continuing sale of tobacco products is preposterous. Phillip Morris can cease the distribution of tobacco products without the incentive to profit from the diseases that it causes.

14 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question What to do when the provider may be wrong about COPD stage in a significant way?

wambach20 I am so sorry that you are feeling this way about the communication with the provider. That is a terrible situation to be in. As Dr. Mannino mentioned, the treatment plan should be generated by the Grade, but if I understand what you are …

15 hours ago

JeanO53

JeanO53answered the question wheelchair use.

Hi ICOM For some upper body exercises, check out the upper body exercise video here: https://www.copdfoundation.org/Learn-More/I-am-a-P... I started doing the upper body exercises a few months ago; started with 2 lb weights and have graduated …

15 hours ago

ICOM

ICOManswered the question wheelchair use.

Bill, I am talking about a regular wheelchair, not powered. Knowing this was coming I have been looking for upper body exercises to help me.

16 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question What to do when the provider may be wrong about COPD stage in a significant way?

With regard to surgery, I'm in the severe stage and just had a needle biopsy that required full anesthesia and about two hours to complete. They didn't even want me to see my PCP; they wanted a PFT to clear me for surgery. Fortunately, I'm stable and …

16 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question wheelchair use.

Most of us try to avoid using mobility aides just because we have COPD. We know that exercise is critical to our well-being and we avoid that as long as possible for getting around in our living situations. I use a scooter when I attend in-person …

17 hours ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question wheelchair use.

When you say wheelchair are you talking about a powered chair or maybe a mobility scooter?

17 hours ago

ICOM

ICOMasked the question: wheelchair use.

What are the comments from patients with COPD using wheelchairs. They are to fit me for one tomorrow. What questions do I need to ask.

18 hours ago

Phyliss DiLorenzo NY State Captain

Phyliss DiLorenzo NY State Captainanswered the question What to do when the provider may be wrong about COPD stage in a significant way?

Wambach20, I agree 100% with what Dave said above. While her FEV/FVC AT 67% puts her in the Stage 2, her GOLD may put her in the moderate category given her symptoms and exacerbation history, which IMO, is a better classification than the staging by …

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good morning! Wishing everyone a good day! If you are not feeling well, I hope you start perking up soon. If you are up to it, try to get some exercise in, and don't forget to plan healthy meals. Maybe you have time to work on your favorite hobby, such as gardening, birding, reading, cooking, going for a walk, or checking in with a friend. Remember, each day is special. Each day is a Blessing! Sending all of you my very best! ๐Ÿฅฐ
Freckles Joy is going to the Vet this afternoon for her 2nd Lymes booster. I will be doing paperwork, gardening, cooking, laundry, plus more...
DebbieB. ๐Ÿ™‚

20 hours ago

Dave Mannino

Dave Manninoanswered the question What to do when the provider may be wrong about COPD stage in a significant way?

Given the FEV1% and FVC % > 80% she classifies as Mild ( Stage 1) - although her grade ( A, B,C,D) is based on symptoms and exacerbation history. Therapy recommendations are driven by the Grade ( ABCD) rather than the stage.

22 hours ago

das23

das23answered the question Do you know your songs?

D4...Hot Hot Hot--Carlos Santana

1 day ago

MagpieNM

MagpieNManswered the question What to do when the provider may be wrong about COPD stage in a significant way?

are you going to unm, lovelace or presbyterian? do you have a choice? does your wife have a good primary care dr.? if so, i would get the pdr involved and see what they say. for the past 2 1/2 years, i have relied on my pdr to translate all the medical …

1 day ago

NettieBoy

NettieBoy

I read that smoking cannabis helps open airways.  Anyone have any knowledge of this?

1 day ago

Mobal

Mobalanswered the question Do you know your songs?

Via Google search.... B4 - Beep Beep (The Playmates) I listened to it and will never get those few minutes back.... :)

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question Do you know your songs?

Is B3 Patsy Cline's Back in Baby's Arms?

1 day ago

edpe77

edpe77answered the question Do you know your songs?

You guys are leaving the easy one on the table - B 3 & 4; D-4. Gotta use your math skils on some! //ed

1 day ago


COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.