Bill Clark - Community Manager

Bill Clark - Community Manager

The RELIANCE Study welcomes you to our very first quarterly Roundtable discussion in Pulmonary clinical medicine. Listen to Drs. Richard Albert and Stephen Rennard discuss why clinicians should use azithromycin and roflumilast in their practice. This session is MC'ed by Dr. Jerry Krishnan, with a Q&A facilitated by Dr. Bob Wise.

To listen to the discussion click the following link:
https://www.youtube.com/watch?v=xmn4bGk4pI8&ab_channel=RELIANCE_test

For more information on the RELIANCE study for patients, caregivers
and clinicians click here:  https://www.reliance-study.org/


1 day ago

  • NewestOldestClick to View All Comments8 comment(s)
  • Jean IA State CaptainWe're still not quite there.  You're making the assumption that mucus is caused by infection.  In many cases, you'd be right, but with chronic bronchitis, the lungs just produce more mucus, no infection involved.  Lungs with chronic bronchitis just produce mucus all on their own, so no infection. 


    This is really simplified, and I expect that Dave Mannino and other health professionals will cringe, but my simplified version is that the mucus just hangs around in the lungs.  Much of the time, it's simply coughed up and out, but sometimes it hangs around so long that it attracts a virus or a bacteria, and, boom, you do have an infection and that very often becomes an exacerbation.  


    So the point of the dasiresp or the azithromycin is to reduce the mucus production,  making it easier to get rid of because there's less to start with and creating fewer opportunities for the stuff to hang out long enough to attract a bug and start an exacerbation.  By reducing the mucus production, you reduce the opportunities for infections which then become chronic bronchitis exacerbations.


    If you read the posts of people who have chronic bronchitis and bronchiectasis, which in my layman's terms is probably a first cousin to chronic bronchitis (as opposed to emphysema, which is probably a second or third cousin), they talk a lot about how to get rid of mucus:  using Mucinex, NAC, nebulized saline solution and albuterol, tools like aerobika and acapella, huff cough, percussion vests and postural drainage.  The reason they want to get rid of it is to avoid letting it just sit there an keep getting infected; that's how they avoid infections.


    I hope this makes sense..........6 hours ago
  • JeanO53Yesโ€ฆ got it.  It then makes sense that the meds would be used on an ongoing basis.6 hours ago
  • Kandy State Captain of South Dakota I have a lot of inflammation been a long time since I had infection.  I do take zpak 3 times a week.  Couldn't tolerate Daliresp.  I do wonder if the zpak is wearing off its been a few years on this.9 minutes ago
Bill Clark - Community Manager

Bill Clark - Community ManagerPulmonary Rehabilitation - Share Your Story

Share Your Pulmonary Rehab Experience with Others

Have you benefited from pulmonary rehabilitation, and would you be interested in sharing your experience with others? If interested, you may be eligible to participate in an NIH-funded study to help motivate others with COPD to attend pulmonary rehab.

Learn more here: Has Pulmonary Rehabilitation helped you live a better life?

Has Pulmonary Rehabilitation helped you live a better life?

Motivate others with your story! If you have COPD and have benefited from Pulmonary Rehabilitation (PR), the COPD Foundation and Baystate Health invite you to share your experiences in this NIH-funded study to help motivate others to attend PR. Share your story in a recorded 10-minute video …

5 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota

I don't know what was going on but I tried 3 times to get through  to 360 Sunday night.  










13 minutes ago

das23

das23answered the question Sunday Puzzle

5A...Tripod 8B...Odds are overwhelming

39 minutes ago

mcat43

mcat43answered the question โ€‹Why don't people want to quit smoking?

I quit because I learned about COPD and think I have it. It took me one day and never looked back. Once I learned that at 43yrs age you could have this garbage of a disease I never smoked again. I really never heard of COPD my mother smokes still to this …

4 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question Real meaning/function of FEV1/FVC

Such a good point, Ruth. I was taught, and have observed, that the numbers that we get when testing are a snapshot. The communication between the individual and their health care team is what helps give the doctor what he/she needs to help get a …

9 hours ago

JeanO53

JeanO53answered the question Sunday Puzzle

6a - Behind the 8 ball.. 6c - Many are Called, Few are Chosen

9 hours ago

das23

das23answered the question Sunday Puzzle

1B...Search high and low 7B...Top of the morning

11 hours ago

JeanO53

JeanO53asked the question: Sunday Puzzle

New source for puzzles. Let's see how this goes...

11 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Itโ€™s been a year and still? IDK - confused.

Sounds like your biggest concern is how can you either maintain your current level of function or improve it. Many of us have found that a daily exercise routine that combines aerobic and strengthening exercise can help enormously. You talk about being …

11 hours ago

Ruth T

Ruth Tanswered the question Real meaning/function of FEV1/FVC

BrittanyKathleen7 I think that it is important to consider how you feel and what your symptoms are (also what makes you feel better and what makes you feel worse). As Dr Mannino wrote, itโ€™s not a simple answer and sometimes we try too hard to put a disease …

13 hours ago

Ruth T

Ruth Tanswered the question Is anyone else using Fisetin to reduce phlegm, and is it doing as great for you as it is for me?

Fisetin is a flavonoid present in many plant foods. For example, 1 g of strawberries has 160 micrograms of fisetin. It is also in apples, kiwi, and other plants. Several publications have shown its anti-inflammatory properties but similar effects are …

13 hours ago

Nicknell

Nicknellanswered the question Is anyone else using Fisetin to reduce phlegm, and is it doing as great for you as it is for me?

Had earthquake violent coughing fits multiple times per day producing rivers of mucus, left me exhausted, all I did was lay down. Been on Fisetin 3 weeks, after first week I noticed my coughing fits and muscus were almost zero. Cough was slight and I …

14 hours ago

David Mannino, MD (Medical Director, COPD Foundation )

David Mannino, MD (Medical Director, COPD Foundation )answered the question Itโ€™s been a year and still? IDK - confused.

Your story and PFT's are most consistent with asthma. I did not understand your comment on Breo- but you may try something like symbicort once a day ( or if this is purely exercise induced, a couple of puffs of albuterol might be all you need). Your …

16 hours ago

Thane

Thane

Another good day, each day stronger, breathing improving also, finish prednisone 3 days, Iโ€™m amazed 

18 hours ago

Thane

Thane

Today was a great day, the past few days have been good, each day gets better, sometimes I have to be reminded to slow down.

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainToday is Sunday. A day for relaxation! I hope everyone has a very nice, easy breathing day! 

19 hours ago

Pam Plasch - State Captain, Wisconsin

Pam Plasch - State Captain, Wisconsincommented onMonoclonal Antibody Therapy for COVID-19: What the COPD Community Needs to Know

Mike, thank you for the detailed explanation. My husband was vaccinated, but came down with a breakthrough case of COVID. He had the monoclonal antibodies last week. He felt better within two days. I am happy to say that he had a very mild case...

1 day ago

David Mannino, MD (Medical Director, COPD Foundation )

David Mannino, MD (Medical Director, COPD Foundation )answered the question Real meaning/function of FEV1/FVC

This is a bit complicated... In the "GOLD" definition an FEV1/FVC less than 0.70 ( 70%) counts as obstructed ( whether it is 0.69 or 0.30 ). The FEV1 as a % predicted is then used to define severity ( in your case- more than 80% is mild). In general- a …

1 day ago

Alph

Alphanswered the question CBD Gummies

Tried once. Irritated my trachea. I wont do it again.

1 day ago

Caroline

Carolineanswered the question Real meaning/function of FEV1/FVC

Actually, it does matter that you used your inhaler, or at least that is what I understand. The reason that matters is that you did not get an accurate diagnosis of the amount of obstruction. Even if you had not used it, your numbers would probably have …

1 day ago

Caroline

Caroline

I hope that the tsunami did not endanger our friend Valerie Chan.

1 day ago

vanessa Lingerfelt

vanessa Lingerfelt

Tired and having trouble breathing 

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question Real meaning/function of FEV1/FVC

If you divide your FEV1 (what you can blow out in the first second of exhalation) by the Forced Vital Capacity (the maximum amount of air you can inhale) that tells you what percentage of the total you can exhale in the first second. Anything less than …

1 day ago

Otter

Otteranswered the question Real meaning/function of FEV1/FVC

All I know is that an FEV1/FVC ratio less that 70 indicates obstruction. You are 66 (which seems quite mild).

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGreetings from arctic southern Connecticut! Wishing all of you a happy and healthy day! ๐Ÿ™‚

1 day ago

Michelle McConnaughay

Michelle McConnaughayadded a new article Bob Herlong

Welcome our newest COPD Foundation Captain!

Mr. Herlong received his BA degree from Presbyterian College and a law degree from the University of South Carolina. A veteran of the US Army, he was a registered lobbyist for the property and casualty insurance industry for more than 30 years. He...

2 days ago

BrittanyKathleen7

BrittanyKathleen7answered the question Real meaning/function of FEV1/FVC

Not that it matters too much but these numbers are after i gave in before my test and used my rescue

2 days ago

BrittanyKathleen7

BrittanyKathleen7asked the question: Real meaning/function of FEV1/FVC

Im still not understanding what is the need/meaning/function for FEV1/FVC ratio measurement? What does that truly show? A Deeper obstruction? Do people with COPD only have the lower levels of FEV1/FVC? If thereโ€™s FEV1 then why do we need this ratio? For …

2 days ago

EvanofEarth

EvanofEarthcommented onExploring Bronchiectasis and NTM 360

I'm also on the bronch/NTM site since my diagnoses include COPD and bronchiectasis, and I had an NTM infection in 2019 that might've resurfaced, though I will know more in a couple weeks. I'm grateful for the education and support. ...

2 days ago

Michelle McConnaughay

Michelle McConnaughaycommented onExploring Bronchiectasis and NTM 360

Great article on Bronchiectasis and NTM 360! Thanks, @Christina H RRT!...

2 days ago

JeanO53

JeanO53answered the question CBD Gummies

Hi PatO State Captain Arizona - My primary care doc and I discussed CBD about 2 years ago. Her read on it was that it may help with neurological disorders like parkinson's and epilepsy. Beyond that, she didn't advise using it.

2 days ago

DavinaT

DavinaT

Hello, I hope that everyone is doing well today.  Its been a long time since i last posted. I still here.  Just been busy with life. 

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Enjoy the day stay well and safe. 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday! Wishing you a happy, easy breathing day! 
Cheech and Luke Rossi are here to put a smile on your face! ๐Ÿ˜

2 days ago

Sallybean

Sallybeancommented onMonoclonal Antibody Therapy for COVID-19: What the COPD Community Needs to Know

I have been following Dr John Campbell from the UK for several months and he keeps stressing the importance of Vitamin D3 and zinc to protect and reduce symptoms. I take both daily now. I am new to this site so forgive me if I have missed discussions...

2 days ago

das23

das23answered the question CBD Gummies

Hi PatO....I'm not aware of any legitimate research that has found that CBD gummies can help COPD. I've tried CBD oil for other reasons and I didn't find it helped---didn't hurt either.

2 days ago

PatO State Captain Arizona

PatO State Captain Arizonacommented onMonoclonal Antibody Therapy for COVID-19: What the COPD Community Needs to Know

Mike, thank you so much, I have learned so much from this article. I was wondering if this is like the Gamagoblin injection the Dr.s' used to give people with low immunities? ...

3 days ago

Stephanie Williams, RRT

Stephanie Williams, RRTcommented onExploring Bronchiectasis and NTM 360

Thank you, @Christina for sharing this with the community. We are so glad you are here to help build the resources for the Bronch/NTM page. There is a lot of education that is needed, and this information is a great start!...

3 days ago

PatO State Captain Arizona

PatO State Captain Arizonaasked the question: CBD Gummies

Have anyone used the CBD Gummies for COPD, I see them advertised on TV and other places.

3 days ago

Caroline

Caroline

Hello everyone, I am alive and well it is just internet issues.  I have found that boxing is a wonderful activity to build stamania.  I have had a daily boxing match with the cable company and today I think that I scored my first win.

3 days ago

judith poe

judith poe

Looking to talk to anyone that has had the Zephyr valve implanted .

3 days ago

Pickens

Pickens

Am going great. 

3 days ago

COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.