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das23

das23answered the question alternate forms of treatment

I would check with my doctor before I tried anything--better to be safe---there is a lot of faulty information out there!!

52 minutes ago

don eck

don eckasked the question: alternate forms of treatment

I have read that herbal remedies are of great help with inflamation/scarring. Also that low level red light therapy is of great help. Is anyone using either of these? Which? How satisfied are you with it? thankyou for your help

4 hours ago

Holla

Hollaanswered the question Recurrent pneumonia, recent pneumonia and PFT results, hiatal hernia

Test scores
Caroline West Virginia State Captaindas23 also answered the question Caroline West Virginia State Captainand 1 other also answered the question

4 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question treatment drugs

I was diagnosed with idiopathic emphysema in 2000 and would give the biologics 8 out of 10โ€“either do prevent exacerbations but have side effects.

10 hours ago

don eck

don eckasked the question: treatment drugs

Is there anyone using dupixet as a treatment. On scale of 1-10 (10 is helping alot) how have you responded. How long have you had copd? Approx. age? I am 83

10 hours ago

don eck

don eckasked the question: gvhd

is there anyone whose copd has been caused by graft vs host disease (gvhd)

10 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainA very interesting and important message from my eye physician's office. This certainly does apply to me! ๐Ÿ˜Ž

11 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Monday check-in
Letโ€™s start the week together. Living with COPD can mean good days, tough days, and everything in between โ€” and however today feels for you is completely okay.

If you feel up to it, drop one word that describes how youโ€™re feeling, or share a quick thought about whatโ€™s on your mind. No pressure at all โ€” weโ€™re just glad youโ€™re here!

14 hours ago

Davidgh

Davidgh

Good morning everyone.  For several years now I've worn an Apple watch (version 6).  What I like about it is that it records my oxygen saturation while I sleep.  The next morning I can look at my phone which shows my saturation throughout the previous night.  About every 30 minutes or so it takes a reading during the night, which ranges from the mid to high 90's.  I sleep with 3l of oxygen.  But what I don't understand is that as soon as I wake up, even before getting out of bed, I notice a pronounced shortness of breath.  I normally have to sit on the side of the bed for 5 minutes or so just to get my breathing under control.  Since I sleep well with high oxygen saturation levels, could it be something psychological that could be causing this?  Any opinion is appreciated. 

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”†"AMPED UP" TUNA SALAD๐Ÿ”†2 hard boiled eggs, roughly chopped One 6- ounce can tuna, drained1 small avocado, roughly chopped 1/2 cup Kalamata olives, halved1/4 cup chopped fresh dill3 tbsp. olive oil Salt and freshly ground black pepper to...

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, and Happy Groundhog Day! Let's see what the groundhog says this year! Will we see an early Spring?! Hmmmm...
Enjoy your day, everyone! ๐Ÿ˜Š

20 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Confused

You heard it from one of the very best, if not the very best.
David Mannino, MD (Chief Medical Officer, COPD Foundation )Karen Deitemeyer - Florida State Captain also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

1 day ago

Holla

Hollaasked the question: Recurrent pneumonia, recent pneumonia and PFT results, hiatal hernia

Hi folks! I've been a marathon runner for years but have been hammered by 3 pneumonias in past 3 years. I also had 2 pneumonias over 25 years ago but fully recovered. Most recently CT scan on Jan 9 showed bilateral multifocal, with glass opacities …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, my little chickadees! ๐Ÿ˜„ Wishing you all a pleasant, easy breathing day! ๐Ÿ˜€

1 day ago

DebbieS

DebbieS

My pulmonologist recently changed my meds to Trilegy. Does anyone else use it? What has been your experience? For me, besides the horrible taste,it seems to work fairly well.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday from the DebbieB. household and this adorable capybara! No worries here on 360Social! Lots of friendly people, and plenty of helpful information for everyone to enjoy! It's fun to learn here on our website! Smiles all around! Enjoy this mighty fine day, friends! ๐Ÿ˜€

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I made a huge mistake today: I bundled up and put my POC under my warm winter coat.  I pulled the hood up and tightened the chin strap nice and snug, grabbed my leather gloves, and headed out to fill the bird feeders.  Once I was halfway there, I became so short of breath, and then it dawned on me that I had forgotten my mask.  That cold air surely does restrict our airways.

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI just ran across this fascinating article:

https://arstechnica.com/health/2026/01/custom-machine-kept-man-alive-without-lungs-for-48-hours/?utm_source=join1440&utm_medium=email&utm_placement=newsletter&user_id=66c4caf15d78644b3ad1a50f

Custom machine kept man alive without lungs for 48 hours

Infections had turned his lungs to soup and had to be cleared before transplant.

3 days ago

ToGodBeTheGlory

ToGodBeTheGloryasked the question: Confused

I am a 50-year-old white woman, 166 cm tall. Post-bronchodilator spirometry shows: FEVโ‚: 90% predicted FVC: 103% predicted FEVโ‚/FVC: 69.03%, with a GLI LLN of 0.693 (using my physicianโ€™s GLI reference values, not GOLD) I FEF 25โ€“75: 64% predicted …

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Letโ€™s share a small win โ€” whatโ€™s one thing that made today a little easier? ๐ŸŒŸ๐Ÿ’ฌ

3 days ago

Jamie Jarrard

Jamie Jarrard created the event BronchandNTM360social Coffee Break - Wednesday, Feb. 11, 2:30pm Eastern

BronchandNTM360social Coffee Break - Wednesday, Feb. 11, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

3 days ago

Jamie Jarrard

Jamie Jarrard created the event COPD360Social Hour and Harmonica Play-Along- Wednesday, Feb. 4, 4pm Eastern

COPD360Social Hour & Harmonica Play-Along- Wednesday, Feb. 4, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

3 days ago

DebbieS

DebbieS

Just an update from the last time I posted. I was hospitalized July 3,2025 for 3 weeks. I had a blood clot in my lung and a pleural and pericadial effusions.  I also was diagnpsed with stage 4b lung cancer
 Since then it has been a whirlwind of appointments and treatment. Luckily, I was eligible for targeted treatment. I was also diagnosed with chronic Afib and heart failure.
Since I have started treatment there has been some improvement but also some setbacks.
I have a positive attitude toward all of this and am just going with the flow.

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„EASY LENTIL SOUP๐Ÿฅ„1 tsp. olive oil Half of a small onion, finely chopped 1 carrot, finely chopped 1 celery stalk, finely chopped 1 garlic clove, mincedSalt and freshly ground black pepper to taste One 14.5-ounce can vegetable broth3/4...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Miyagi! For those of you who don't know her, Miyagi is my sister's kitten. 
Beauty comes in all sizes, shapes, and colors. Miyagi is a true beauty. All of our members and their pets are also true beauties! ๐Ÿ˜๐Ÿคฉ
Have an awesome day, friends! ๐Ÿ˜€

3 days ago

Sobearity

Sobearity

Sad and scared.  My father passed from copd and my mother today was told sheโ€™s moderate to severe. 
Besides what I read, I donโ€™t know what to expect except the worse as my father. 

4 days ago

  • NewestOldestClick to View All Comments4 comment(s)
  • WildebeestI'm sorry you have this worry. However, there is no certainty that your mother's disease will progress fast or in the same way as your father's did. I have been towards the worse end of moderate since 2011 and disease progression has been minimal. Basically my lung function has declined only as much as a healthy person's would be expected to, since we all lose some lung function as we age.3 days ago
  • Coach Brandon - Community ManagerWe're really glad you're here, welcome to our community!3 days ago
  • Karen Deitemeyer - Florida State CaptainDear Sobearity โ€‹  I'm so very sorry for the loss of your father and for the worry that you now have about your mother.  But, as the others have said, many of us have lived well for many years with severe COPD.  I was diagnosed in 2001 as severe and am still here, able to travel, spend time with friends and family, go out to events, etc.  I hope that your mother is seeing a pulmonologist, as they are the experts on the best treatments.  Please let us know how we can support you and her.3 days ago
Andre1138

Andre1138

I found someone who offered me a brand new Inogen G-5 oxygen concentrator and it is compatible with my 02 saturation levels (2 continuous) during exercise and 4 pulse. I'm totally aware of the situation warnings of purchasing a non prescription item. I'm wondering if it's possible because the prices are through the roof being on a fixed income. Any thoughts or suggestions? 

4 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Whatโ€™s something about COPD you wish others understood?

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿซ›๐Ÿง…VERY EASY PEAS & ONIONS๐Ÿซ›๐Ÿง…A good recipe to have on hand for times when you are stuck indoors, and can't get to the store. It's important to keep basics on hand during the winter. ๐Ÿ“One 16-ounce package frozen peasHalf of a medium onion, finely...

4 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Can someone please explain to me about the FEF25 75 category

The FEF 25 75 is a measure of small airways. It is highly variable, though, and is affected by factors such as expiration time. Your other values look pretty normal. Given your smoking history you are at risk for developing COPD in the future- but …

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.