Jean IA State Captain

Jean IA State Captainanswered the question Quiet, Portable night oxygen

I used to travel a lot before Covid and had concentrators delivered to my destination regularly. I had everything from big, heavy clunky concentrators that weighed a ton to brand new ones that were much smaller, lighter and not nearly so noisy. So there …
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6 hours ago

MonicaAt70

MonicaAt70asked the question: Quiet, Portable night oxygen

I sleep with 2 liters of oxygen at night. The machine is big, heavy and noisy. My caregiver says there is no other option for when I travel except to take it with me or order one to use on the other end. The thing puts out 70 decibels of noise. Is there …

8 hours ago

Kristen Willard

Kristen WillardHello everyone. Did you know the COPD Foundation has a video on breathing techniques, showing you how to do these step by step? You can find it on our Breathing Techniques page here: https://www.copdfoundation.org/Learn-More/I-am-New-to-COPD/Breathing-Techniques.aspx

9 hours ago

Dick S

Dick S

Not doing well, mentally, today.  At my wife's family's belated Thanksgiving get together yesterday, my wife's grandson made a joke about my "black lungs".  The other grand kids thought that was very funny.  I left early.  My advice to recently diagnosed COPD patients is don't tell anyone but your partner about your illness.  That way you won't become the butt of jokes or a horrible example.

11 hours ago

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  • das23Welcome PF5 S.......I think young grandson should be spoken to!!!......That being said-----Take Debbie's advice. When I was first diagnosed I didn't tell anyone except my partner and one sister.  Of course others knew as I had to spend a couple of days in the hospital with shortness of breath. As time passed I was able to talk about my "lung condition".  I was sensitive and ashamed because I felt like I did this to myself by smoking. These days I can make a few jokes about it myself--I've learned to live with and treat my COPD. I can still out exercise most people my age that I know-even the people who can breathe!!!!!  All you can do is the best you can from here on!!!  Eat right--take the meds--and---Exercise as best you can!!!!  You'll get much support here PF5 S--Glad you found us---Feel better my friend!! โœŒ10 hours ago
  • das23I don't know why your name posts as PF5 S๐Ÿคท๐Ÿปโ€โ™‚๏ธ10 hours ago
  • Jean IA State CaptainI'm sorry that your grandson made a joke at your expense.  I'm even sorrier that you weren't able to use it as a chance to do a little teaching about COPD and how people feel.  You can't change the fact that you smoked. but you can get over the guilt.  Do you know that of the people who smoke, only something like 20-25% of them develop COPD......my question is how'd we get so lucky?  There has to be a lot more involved than just smoking: environment maybe and I'm sure about genetics!  We just don't know enough yet to be able to put our fingers on the right genes.   And I refuse to be guilty about my genetic code..........6 hours ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Today's Musical Challenge - 1900 to 1959... Music of our Parents & Grandparents

Ray Noble Orchestra...Harlem Nocturne Duke Ellington...Take the "A" Train
JeanO53Tom RWelby MBand 4 others also answered the question JeanO53and 6 others also answered the question

13 hours ago

Bill Clark - Community Manager

Bill Clark - Community Manager

Welcome Michel Soucy !!!

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainJust for the fun of it! Does anyone know what this is? Nope, it's not a McDonald's booth on wheels! ๐Ÿ˜› Also, which popular TV show for kids was it featured on? 
Yes....we have it right here. ๐Ÿ˜„

16 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Very late post! I have not been feeling very well. Bruce and I did our Saturday errands, came home, and did our outdoor chores. I decided to hang my Christmas decorations on the front door while it was nice outside. Big mistake. As you know, our neighbors are not nice people. The guy has a leaf blower that uses gas and oil. He knows I am chronically ill. So, he stood on his property and revved that blower and I was trying to cover my face. He wasn't even blowing the leaves. The foul odor and toxic fumes made me so sick! I finished my chores and went back in the house. By 5 pm, I was dizzy and weak. My stomach was burning, my throat was swollen. I went into the bedroom and laid down. Bruce said it was like I was unconscious. He said I wasn't responding when he tried to wake me up. So, I slept for hours and I'm up now. 
Hopefully,  I will feel better, and hope to have a nice Sunday. 

1 day ago

Bill66 New Jersey State Captain

Bill66 New Jersey State Captain

JeanO53 your music challenge has honestly filled my life. I deeply miss my parents and the great music we played growing up. The Musical Challenge gets shared everywhere. ๐Ÿ™

1 day ago

Bill66 New Jersey State Captain

Bill66 New Jersey State Captain

I took care of Rick today, he is on hospice. I haven't seen him for a year. What a wonderful guy. Dementia/Parkinsons disease. Oddly, his daughter was one of my customers at the pharmacy and she was unhappy with the Home Health Care Agency. Most aids wont take care of incontinence, number 2 to be a little more graphic. I advocated for change in home health care. It basically fell on deaf ears... On a positive note, Rick designed the breadsticks that you eat at Olive Garden, I kid you not! He has awards for his bread sticks. 

1 day ago

Ethan-038422

Ethan-038422answered the question CPET result is back

David Mannino, MD (Medical Director, COPD Foundation ), with these new findings plus all the tests I did previously, do you think I should go for the right heart cath?

1 day ago

Bill66 New Jersey State Captain

Bill66 New Jersey State Captain

Welcome Larose

1 day ago

Larose

Laroseanswered the question Heavy sweating

Yes. It is not so much at night for me, but when I exert myself a bit,(and I am not really out of shape other than copd related), like doing stairs, lifting, doing light housekeeping, the sweat pours off my face and chest areas. I am way past menopause, …
JeanO53John in OregonAlasdairand 2 others also answered the question JeanO53and 4 others also answered the question

1 day ago

Ethan-038422

Ethan-038422asked the question: CPET result is back

Pulmonary function testing: FEV1 of 4.25 L 03% predicted FVC of 5.99 L or 119% predicted FEV1/FVC ratio of 71 compared to 82 predicted. Maximum voluntary ventilation was 179 L per minute or 105% predicted Cardiopulmonary exercise test: Exercise …

1 day ago

Bill66 New Jersey State Captain

Bill66 New Jersey State Captain

Welcome pinke

1 day ago

joney

joney

Doing good getting over Thanksgiving.We had a great time hope u all did also

1 day ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.