Bill Clark - Community Manager

Bill Clark - Community ManagerThis is an important survey that will help both patients and professionals as to how to address how severe COPD symptoms are. Please take a moment and take this very short survey. It is important that we have representation from the US COPD community!!!!


The European Lung Foundation and COPD Foundation have launched a survey to understand how people with chronic obstructive pulmonary disease (COPD) feel about the words used to describe their condition by doctors and nurses. People who have been diagnosed with COPD and caregivers of people with COPD are invited to take part. You can take the survey here:


https://www.surveymonkey.co.uk/r/Lancet_COPD

1 week ago

JeanO53

JeanO53answered the question How about a post TG puzzle?

A2 - Feeling Down in the Dumps... C1 - Tea for Two and Two for Tea... D1 - Helen Reddy

moments ago

edpe77

edpe77asked the question: How about a post TG puzzle?

Ready for a new challenge? //ed

2 hours ago

Becky55

Becky55

I was just told on Dec. 2 I have copd. I also have sarcoidosis. I am scared confused with tons of questions

3 hours ago

Richard DJ

Richard DJanswered the question Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)

You can buy NR on the internet. I am not yet convinced it is what to do. It is not cheap. I would like to see more research or good reports. I think you need to read about it. I would hope those with the COPD Foundation are reviewing it as possible help …

7 hours ago

Richard DJ

Richard DJanswered the question Is there any relief for the constant phlegm and post nasal drip every morning? I have Barretts esoph

I don't have much time today to expand on this, but it is my major problem. I flair up about 30 minutes after eating. I have been greatly helped with Fisetin which you can get over the internet. I have written about it elsewhere in these notes. I hope …

7 hours ago

Caroline

Carolineanswered the question Reviews on Inogen products?

I have products from Inogen and from Phillips. They are both good companies to deal with. I made my choice of product both times from the website that Jean has linked.

8 hours ago

Ms DV

Ms DVanswered the question Smoking cessation

A few things I did to help quit was ask my Dr. for some calming medicine or as i called it -itch medicine!!. That was 18 yrs ago, I still take it!! The most helpful was giving up what I related to when I wanted/needed a smoke. No coffee..switched to …

12 hours ago

BlairT

BlairTanswered the question Wednesday Check in - A Different Kind of Holiday

I have a few favorite parts of Christmas, and I'm happy to say I will be able to enjoy most of them this year. Christmas decorations (our house has been done for a week already), tasty food and bevy's, gift giving (most of the shopping is done already, …

13 hours ago

BlairT

BlairTanswered the question Smoking cessation

I quit many times over the decades I was smoking, but always ended up going back to it. Normally I would just quit by filling up my time with other healthy activities that I enjoyed. I did try a product called Champix one time that worked well for …

13 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Smoking cessation

I'd look for a health professional who is trained in smoking cessation techniques. These folks usually have a whole arsenal of stuff they can make available, including help lines, mentors and support groups, along with all the prescription and OTC meds …

13 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Reviews on Inogen products?

Sure; here's a website that will help you sort out the various machines: https://www.pulmonarypaper.org/portable-oxygen-con...

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Wednesday Check in - A Different Kind of Holiday

My favorite part of the Christmas season is giving! I love to give gifts and I love to bake and make candy to give... This year, I will be calling my parents and my sister. I will have stuff loaded in the car. Curbside delivery...on the front porch. …

14 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Good Morning Everyone, hope everyone has a great day today! Hanukkah and Christmas are right around the corner, and shortly a New Year, we can make some positive changes even if its with our own lives. Love you guys Bill66 

17 hours ago

Charlie1957

Charlie1957answered the question Reviews on Inogen products?

Are there any other good choice on oxygen concentrator except Inogen๏ผŸ

18 hours ago

edpe77

edpe77

Good news/Bad news. First, the bad news,  I confirmed I have nasty tooth ache coming on because of "inoperable" tooth decay. But the good news is this will be the first time, as an adult, I wont have to worry about the dreaded dry socket because of smoking. I DON'T SMOKE ANYMORE!   //ed

22 hours ago

edpe77

edpe77answered the question Wednesday Check in - A Different Kind of Holiday

Because of my COPD, traveling to someones house is stressful. That leads to anxiety, which leads to SOB, or feeling SOB. For the past nearly 70 years I've always had TG dinner with my sister. Either our mother cooked it or in later years we did potluck …

22 hours ago

MM4

MM4answered the question Wednesday Check in - A Different Kind of Holiday

We live quite aways from all our extended family. The closest is my sister in CO a 12 hr drive away. So we rarely get together over major holidays and it's just been our immediate family (and I still have kids at home.) . I like that we're able to have a …

23 hours ago

Katherine58

Katherine58answered the question Smoking cessation

thanks, Iโ€™ll look into tha

1 day ago

bobboberson

bobbobersonanswered the question Smoking cessation

Thrive nicotine mints saved me they taste good. Good luck . https://www.thrive2quit.ca/products

1 day ago

Caroline

Carolineanswered the question Smoking cessation

Have you tried the patch? That is how I quit. Others have used hypnosis, lozenges, and other methods. It is just a thought, but maybe the things you are using are too strong.

1 day ago

Renee1

Renee1

I'm scared. COPD, oxygen dependent, living with a plethora of other health issues and living in my car that I am still paying for. Is there any help for me other than HUD, already applied and waiting. 

1 day ago

  • NewestOldest
  • CarolineWelcome to the group Renee1.  The available resources are somewhat dependent upon where you live.  Have you contacted the local Social Services or Health Department to inquire about what help they might be able to provide?  1 day ago
  • JeanO53Hi Renee1โ€‹ - Applying for HUD housing is a great first step, yet as youโ€™ve discovered waiting is part of the process. Since you are living in your car, you are considered homeless which may also make you eligible for housing programs specifically for individuals who are experiencing homelessness.  
    ...As Caroline noted, resources can be dependent on where you are living.   Many cities have a โ€œ211โ€  phone line which can help you access other resources.  Some places, it is THE way to access services for those in need of housing services.
    ...Salvation Army can be an excellent resource for shelter,  especially for those with medical issues. Itโ€™s worth giving them a call.
    ...On waiting lists... one suggestion I have is to check in with them regularly; donโ€™t wait for them to call you or send something in the mail, especially now that you donโ€™t have a permanent address.  Also, make sure they know that you are currently homeless. That may move you up higher on the list1 day ago
ReRe70

ReRe70

Hi everyone! Am new to this app. Does anyone know of a appratus to use while walking so I donโ€™t have to stop and breathe every block? 

1 day ago

Katherine58

Katherine58asked the question: Smoking cessation

I was diagnosed in June 2019 with Copd/emphysema and Iโ€™ve been trying to quit the smoking thing.since they diagnosed me I cut down because I would take a few puffs and get a type of drunk / stoned effect. I did try the Nicorette gum, inhaler, and spray …

1 day ago

Carol Rubin

Carol RubinI am so excited that New Jersey Governor Phil Murphy and Lt. Governor Sheila Oliver issued a Proclamation that November is COPD Awareness month!


Carol Rubin
NJ State Captain

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Does anyone else find it hard to breath through their nose and not their mouth?

And you should think of yourself, doing all you can to stay as healthy as you can!

1 day ago

JeanO53

JeanO53answered the question Does anyone else find it hard to breath through their nose and not their mouth?

I too have been a mouth breather. I've also had on-going problems with my sinuses and a "stuffed up" feeling when breathing through my nose. Over the years, I've found that doing nasal irrigation really helps to clear things out; using a neti pot and …

1 day ago

Norso

NorsoWildlife Wednesday! Not sure if there are any old goats on here but here some rams  

1 day ago

Norso

Norsoanswered the question Does anyone else find it hard to breath through their nose and not their mouth?

Glad it's not just me. My nose seems always blocked. Used to get nose bleeds blowing it hard. Learnt not to

1 day ago

Jane M. Martin

Jane M. Martinasked the question: Wednesday Check in - A Different Kind of Holiday

Holidays and celebrations are a time to get together with friends and loved ones to share special meals, exchange gifts, and be inspired by the meaning of the season. But right now itโ€™s different. Much different. Weโ€™re in the middle of the Covid-19 …

1 day ago

JeanO53

JeanO53answered the question Where Can I buy my COPD inhallers online?

Hi heidiweber - Through my insurance, I order my medications at OptumRx.

1 day ago

Dave Mannino

Dave Manninoanswered the question Do you use a fan when you feel breathless?

COPD patients often like the sensation of more air movement from fans or air conditioners. I remember rounding on patients in the hospital ( back when we had 4 patient rooms in the VA) and it was always easy to find my COPD patients as they were the ones …

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Morning Everyone, we are in full swing of the Holiday Season at CVS, added with flu and covid testing there isnt much room to breathe. God Bless, love always Bill66 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Going to my lung specialist this afternoon for a follow up. I may be wheezing and hoarse due to this weather. 
My husband's work hours are getting shorter. Many people in CT are begging our governor to disallow dining in restaurants. When this happens, there will be even less work for my husband. I am concerned about our ability to pay for my health insurance, and my medications. I am doing my best to stay calm. I do find a bright spot in each day. This Covid sure has created one big mess!
Wishing you all a wonderful Wednesday! 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good morning! 
I was reading a post about bad wind in PA. I had read that tornadoes had touched down in PA and MD. 
We have had horribly strong wind here for three days straight. Sunday, we moved some things in the yard. We've got a big mess, buy luckily, nothing really bad...yet! Honestly, I am tired of this terrible weather. It is always very windy. It is always dark and so cloudy. The wind scares me, and it makes my breathing difficult. Monday was a really windy day. Monday night it got even windier. 60 to 70 mph winds. I took my dog out at 3:15 this morning. It was so windy, I couldn't believe it. I certainly hope this weather system goes away. Bring back the sun!!!

1 day ago

Federy8

Federy8answered the question Where Can I buy my COPD inhallers online?

I have not buy online inhalers and medication. But you Should to try OPSPharmacy to buy inhalers online. My friend david also fill refills from that pharmacy. You may try this pharmacy to buy your inhalers and other medication.

1 day ago

heidiweber

heidiweberasked the question: Where Can I buy my COPD inhallers online?

Hi, In this situation i can't going to offline store to buy my COPD inhallers like- Advair, Spiriva etc. So i think, should buy these from the online store. So suggest me some online pharmacy in the USA.

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Does anyone else find it hard to breath through their nose and not their mouth?

I have always been a mouth breather most my life. Yes my nose always seems stuff up. I have had nose surgery but I don't think it helped any.

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Does anyone else find it hard to breath through their nose and not their mouth?

Many people are mouth breathers, especially when exercising or exerting themselves. I suggest you learn to to both pursed lip and diaphragmatic breathing. Those will both help your breathing and you'll at least be sure you're using proper breathing …

2 days ago

Lucylling

Lucyllingasked the question: Does anyone else find it hard to breath through their nose and not their mouth?

Lately when im short of breath ive been noticing im breathing through my mouth and not my nose. It seem like when i breath through my nose i dont get as much air as i do breathing through my mouth

2 days ago

Ken Benson-Ca. state captain

Ken Benson-Ca. state captainGetting down mellow on a Tuneful Tuesday.

https://www.youtube.com/watch?v=2BoUzzFXuVU

2 days ago

Jimmy S

Jimmy SHappy Birthday to You

Happy Birthday to You

Happy Birthday Dear (Stephanie Williams)

Happy Birthday to You.

From good friends and true,

From old friends and new,

May good luck go with you,

And happiness too.

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Did anyone's copd happen suddenly?

I think this experience is quite typical and is probably a combination of what Dave described and denial, at least in some folks. When I've had an opportunity to talk with people who've had this experience, most will agree that they did know there was …

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Did anyone's copd happen suddenly?

I was asthmatic most my young life to adult with many attacks pneumonia and bronchitis over time which then lapped over to copd. In 07 went on oxygen.

2 days ago

ESWilliams

ESWilliams

Hi, I'm new to the community and I'm so excited to be here. I'm the new communications and development director at the COPD Foundation.  


I look forward to learning from and listening to all of you. 

3 days ago

Community Announcements

Community Announcementsadded a new article COPD Foundation and Blue Marble Health enter a Strategic Partnership to Promote Virtual Pulmonary Rehabilitation to healthcare systems challenged to deliver services during COVID

COPD Foundation and Blue Marble Health Announce a Strategic Partnership to Facilitate
Virtual Pulmonary Rehabilitation



Miami, FL and Los Angeles, CA November 2020: The COPD Foundation and Blue Marble Health announced a strategic Partnership to increase availability and adherence to pulmonary rehabilitation (PR) through a unique peer supported Virtual PR Program.

Approximately 320 million people live with chronic obstructive pulmonary disease (COPD) and they are at 5 times greater risk for severe COVID-19 infections. PR is an exercise and education program that improves quality of life for people with COPD, while reducing hospitalization and mortality. Despite its proven effectiveness, PR is underutilized; and now with the temporary closure of 75% of PR clinics in the US due to COVID-19, even fewer people with lung disease have access to PR.

3 days ago

Stephanie Williams, RRT

Stephanie Williams, RRTToo good to keep to myself. ๐Ÿ˜‚๐Ÿ˜‚

3 days ago

MM4

MM4answered the question Recent results

xStaceyx, yep sounds like you have what we call combivent. You are in better shape than i am, the thought of having a baby at this point makes me tired just thinking about it! 😂 My youngest is now almost 13. My FEV1 is typically in the mid 30s and …

3 days ago


COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.