johnbrad

johnbrad

ok

5 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question COPD Awareness

I like that idea VicEck!!!

15 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

I have a follow up Dr appointment and unfortunately I haven't taken my Zoloft as the Dr prescribed. I'm not a pill guy and dont like the high cholesterol associated with taking SSRI's I work very hard keeping my cholesterol levels low, however sometimes the anxiety is overwhelming as you all know. I wish I could just take something, eat something or do something without feeling guilty, something I really need to work on.

18 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Just seems like the high pollen and humidity is getting to everyone, seems neverending!

18 hours ago

Grover

Groveranswered the question BODE index

Still spending time going thru the question and answer section and this question is another that I just feel deserves my "opinion". To me this falls to these same category of words and definitions I have really come to dislike since my diagnosis. Some of …

21 hours ago

VicEck-State Captain

VicEck-State Captainasked the question: COPD Awareness

Sometime ago an idea was posted to offer a cap instead of a T-Shirt for COPD awareness. I would like to know if anything has come of that idea. I would like to have a ball cap that I could wear all year long and have people see it where a T-Shirt will …

1 day ago

BonBon

BonBon

Hi all,  my son just told me it was time to stat our search for a new fur baby.  He had to put his 12 year old black Lab to sleep about 3 months ago, which broke our hearts.  All you animal lovers out their will understand what I'm saying.  I have a German Shepherd (Thor) who miss him ( the Lab) too & would love to have a new four legged  playmate.  This is a good time of the year to house break a puppy, & thank goodness we have a privacy fence all around our bid backyard, one a puppy can't sneak out of when your not looking...of coarse we would never leave a puppy unattended.   I thought it might brighten someones day hearing something positive & after all you all are my COPDF family .......๐Ÿ˜‰

1 day ago

JeanO53

JeanO53

I'm having a tough day today.  No particular reason.  Some days are just harder than others.  ๐Ÿ˜•

1 day ago

Davec

Davec

Hello all. My name is Dave. I recently completed a sleep study and as part of that study I had a breathing test.  After the study the Dr. told I had COPD and sleep apnea. I am 66 years old and "I thought in good health". I exercise 3-4 times a week.  I live an active life style.  I visit this Dr. again soon to get the full results of the study. So at this point I don't know what stage my COPD is at. I assume stage 1 due to my lack of symptoms. 
So my question is, how long can I put off the need to use oxygen if I continue to exercise and do the breathing exercises? Months, years, forever?

1 day ago

Clamdigger1957

Clamdigger1957commented onShort of Breath After Eating

 Good information.. ...

1 day ago

DixieG

DixieGanswered the question How Long Can your Oxygen Tubing Safely Be?

I know this is well past the original post but I wanted to give others a heads up. Be sure to check your tubing regularly for tiny cuts or holes. Mine was damaged I believe for nearly 6 weeks last fall which resulted in a week long hospitalization this …

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Doing a happy dance, today!  Finally got ALL my elderโ€™s neb Rx straightened out so we are being correctly billed. 


Also just got back note from my insurer that they are overturning their denial of my liquid oxygen, YAY!


It really is inefficient and takes a LOT of Clinic staff and insurer staff time to create all this chaos and then have to sort it all out afterwards. 


Iโ€™m glad itโ€™s resolved but sad it was since the denial in MARCH!

1 day ago

loukat

loukatanswered the question Has anyone ever had thrush and how did you treat it?

Hi, I had it once and was put on NYSTATIN. That stuff is nasty and I could barely tolerate it.

1 day ago

carolcole

carolcoleanswered the question Has anyone ever had thrush and how did you treat it?

My dr. told me to use cranberry juice to rinse my mouth out each time I use my breo inhaler. I really does help. Cranberry juice sort of coats the mouth. I rinse before, I use the breo and after I use the breo with the juice. So, far so, good. Before, I …

1 day ago

carolcole

carolcoleanswered the question Hoarseness

I am so, glad to hear other's experience this too. I will be talking normal and all of a sudden no sound comes out. This was before, I was on inhalers. Right before, I was told I had copd. I guess it must of been one of the symptoms I just didn't know it …

1 day ago

2cents

2centsanswered the question Portable Oxygen and Teppan Restaurant

One of my favorite winter restaurants has an open fireplace. As long as I'm not the one throwing another log on the fire, it's all good.

1 day ago

LGH

LGHanswered the question New at the oxygen thing...and scared to death!

At age 66, Treefrog, you have an excellent ability to confront and hopefully, avoid the 24/7 02 tank! You did not clarify if you have any other underlying health issues. One thing is for sure "IF you don't use it, you will loose it." Physical activity is …

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Portable Oxygen and Teppan Restaurant

What's the problem? Is she going to have her oxygen going over any open flame? Other than that, she should be fine. I don't foresee any problems at all. Bon apetit!

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain For anyone in the Chicago area, American Lung Association is having a Lung Force Walk AUGUST 12, 2018 10:00 AMSoldier Field | Chicago, IL Click on the link below for more details

http://action.lung.org/site/TR?fr_id=17334&pg=entry

2 days ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain commented onFaces of COPD: Justin Daniels is Running for COPD

 Justin, Thank You. Love the Foundation Shirt! God Bless Bill66...

2 days ago

Liz Berger - Maryland State Captain

Liz Berger - Maryland State Captain commented onFaces of COPD: Justin Daniels is Running for COPD

 This is great! Thank you for all the hard work you are doing :) ...

2 days ago

Adrienne R

Adrienne Rasked the question: Portable Oxygen and Teppan Restaurant

My grandmother utilize a small portable O2 tank. We are planning to go to a Teppan Restaurant for dinner. The restaurant said it was fine. But weโ€™re not sure they actually know what theyโ€™re taking about. Any advice appreciated.

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain

A little motivation here.... Who exercised today?


I did I did. I was at the gym at 6:30am getting my exercise on :) 

2 days ago

Reading4

Reading4

I was diagnosed with COPD earlier this week. I am trying to get information about what this means. Can someone explain how to open and read, if not download materials? I am particularly interested in "Slim Skinny Reference Guideยฎ (SSRG)" and "The 1s, 2s and 3s of COPD".  When I go to the downloads library I cannot open any of the booklets.

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain I noticed Ryan Diesem was mentioned in another thread. A while back he did a webinar with Noah Greenspan on supplemental O2.  https://youtu.be/KZkDURzqK-E

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Does anyone know if Pulse might not work for everyone?

Like Val, I suspect that your unit simply doesn't produce enough O2 to keep you properly saturated. The Pulmonary Paper article and chart by Ryan Diesem is excellent, and if you read it, will give you a lot of information about POCs. The major message is …

2 days ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain @ my store

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.