Peapicker16

Peapicker16

Any programs help with daliresp medications while on Medicare the website for daliresp says part d canโ€™t apply. 

8 hours ago

JTD

JTD

Pretty good today, even though it is very hot.

9 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Has anyone tried Breztri vs Spiriva

If your move to Breztri works to improve your breathing and saves you money, great. If it doesn't, you may want to rethink the whole idea. If you want to reduce the cost, you can get all three classes of meds in nebulized form so they'd be covered by …

11 hours ago

Caroline

CarolineThe day before yesterday I slept most of the day because I was exhausted.  Maybe that was not the reason at all.  Maybe my body had some more healing to do because last evening and this morning my oxygen saturation has hovered around 97 on room air and my heart rate is at 88.


I thank God for this wonderful development.  Send me your good thoughts and prayers that this is not just a fluke.

13 hours ago

Cartman

Cartman

Where can I find the conversations I've had with other people?

19 hours ago

Caroline

Caroline

Yesterday Was The Day That I Ran Out of Spoons.I hope that you are familiar with the spoon theory, but if you are not here is a quick summary of the theory. Each day we have X number of spoons these spoons represent energy. The healthy individual has an almost unlimited number of spoons, and they also have a reserve number of spoons that they can call upon. The idea is that the healthy person almost never becomes exhausted.Then there are those of us who have a limited number of spoons. Those of us with COPD fall into this category. I have another disease called Grave's Disease which limits the number of spoons that I have. Yesterday I ran out of spoons so that even my reserve number of spoons was used up. When that happens, it does not matter how hard that I try I cannot force myself to complete the items on my list and my only alternative is to sleep.Yesterday according to my Fitbit, I slept 18 of a possible 24 hours. I missed a meeting that I was looking forward to attending and did not care if the phone was ringing, the dog was barking, or the cat was trying to get me awake. I just wanted to sleep. I am hoping that I find this posting cathartic because the fatigue issue is one that I have not been able to totally come to grips with. I also hope that the post gives some comfort to others who find themselves in this same predicament.My friend Jimmy Slover speaks about pacing ourselves. I wish that I had Jimmy sitting on my shoulder directing me how to pace myself because I have not learned how.#energy #copdawareness #COPDFoundation #Grave;sDisease

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question Has anyone tried Breztri vs Spiriva

You were getting a LAMA with the Spiriva and a LABA and an ICS with the Symbicort. Now you're getting a LAMA, a LABA and an ICS in one dose instead of two with Breztri. The difference is that each each LAMA, LABA and ICS are different chemical compounds, …

1 day ago

luckymilt488

luckymilt488

Hello everyone I would like for you to visit my blog please: www.luckymiily488simplesite.com

1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question How Much Do You Know About Bronchiectasis?

All people with COPD should be aware of this information.

1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question Iโ€™m curedโ€ฆ.No- But Moving in right direction.

Glad to hear you are doing so well!

1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question Has anyone tried Breztri vs Spiriva

All COPD medications work differently on each patient as to effectiveness and side effects. My advice would be to try it and see how it works for you.

1 day ago

breathe for today

breathe for todayanswered the question Newly diagnosed with emphysema at 24

So glad you quit!

1 day ago

JeanO53

JeanO53

das23โ€‹ - Hey Dave... are we rooting for Tsitsipas??  ๐Ÿ˜ฅ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

Good afternoon, Stephanie! Sure! I grill peach halves! Very tasty, indeed! Thank you. I hope your day is just peachy-keen! โ˜บ๐Ÿ˜‰...

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRTasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

Sounds delicious!! I have never heard of a UFO peach! That is interesting!Just throwing this out there since you bought up peaches... Have you ever grilled them? I had them grilled and they are delicious. I just recently bought a cast iron grill for...

1 day ago

edpe77

edpe77Lucky ... enjoying the shade outback.  //ed


1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question Inexpensive reliable spirometer?

Phyllis, the EFFORTS website is www.emphysema.net and it is NOT for sale! It's definitely up and running........

1 day ago

Caroline

Carolineanswered the question Newly diagnosed with emphysema at 24

I just wanted to chime in and wish you well. Please do see a pulmonologist.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainasked the question: Eating Well: From Debbie Bโ€™s Kitchen to Yours

Hello! I have a nice, fresh idea to add a Summery twist to your meat! Peaches are starting to show up in stores now. They even have white-flesh peaches! I have also seen UFO peaches! ๐Ÿ›ธ ๐Ÿ‘ You can use boneless,skinless chicken bresst, ham steak or...

1 day ago

Phyliss DiLorenzo NY State Captain

Phyliss DiLorenzo NY State Captainanswered the question Inexpensive reliable spirometer?

I went to EFFORTS.org to take a lo0k, but it says the website is for sale. I will take a look on Amazon, but hesitant to recommend it until I know what it is actually like.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Cricket Rossi, who seems to be saying "nah nah- I've got first dibs on the couch!" to her brother Jerry.  ๐Ÿ˜‹

1 day ago

Ruth T

Ruth Tanswered the question Newly diagnosed with emphysema at 24

whateverman, you did the absolute right thing by quitting smoking! And you also exercise which will help your health. I agree that you should definitely get your lung function test (spirometry). You said that you were coughing up brown stuff in the …

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Newly diagnosed with emphysema at 24

A CT scan is not a definitive test for emphysema or COPD, a spirometry or Pulmonary Function Test is. So you haven't had a good diagnostic test and yet someone has diagnosed you, or at least you perceived it that way. Who is the "they" that told you it …

2 days ago

Jody Sue

Jody Sue

Hi Everybody!
Thank you all for sharing. I like your spoon theory Stephanie. Yes Caroline I agree with the strength training for osteoporosis,
I need to build it into my day and not let life interfere with that schedule. Covid sure did mess up the schedule. I'm just starting to get back on track. New osteoporosis spots are my upper back and shoulder, I will talk to my doctors regarding those areas. Hi Gretchen, yes time management is the thing. My stamina comes and goes.

2 days ago

das23

das23answered the question Newly diagnosed with emphysema at 24

whateverman......Don't Smoke--Did you see a Pulmonologist??-If not -see one. Again-Don't Smoke-nothing good will come from smoking!!! You're young-that's good--Keep boxing---and stuff!!

2 days ago

Angad singh

Angad singh answered the question Does anyone experience a "hollow" feeling near the adam's apple?

OMG! I have this hollow feeling in my neck every morning and its been worrying me. I smoke HOOKAH and i feel like that might be causing it. Dont know if i should see a doctor or if it is serious or not. But it seems like none of you have been diagnosed …

2 days ago

whateverman

whatevermanasked the question: Newly diagnosed with emphysema at 24

Hello I am 24 years old soon to be 25 and yesterday i did a CT since i had this brown stuff coming with my cought every morning for last 2-3 months,so i ended up doing a CT and it turned out i have panlobular empysema they said its mild and it wont …

2 days ago


COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.