Bill Clark - Community Manager

Bill Clark - Community Manager

New Opportunity to guide future COPD Research


Today we are pleased to launch the second Help GUIDE COPD & COVID Research event on COPD360social! In the first event, hundreds of you provided valuable insight as to what COPD research you would find valuable. Based on your responses this second event will look to refine the topics you selected, now especially in light of the continuing COVID crisis.


The voting system remains the same as the first event with each participant being given 35 votes to be distributed between 25 topics. You may provide up to 5 votes for each individual topic based on how important you feel the topic is to you.


To participate and to read more about the Help Guide COPD Research Event and participate in the voting click on the research tab at the top of the page and select Help Guide COPD Research. Here you will find information on the event and a short video on how voting works. Scroll further down, answer a few simple questions and then begin voting.


You can quickly enter the voting pages with the following link: https://www.copdfoundation.org/Research/BRIDGE-Project/Help-Guide-COPD-Research.aspx


Please participate and make your voice heard!

3 weeks ago

GlennD

GlennDanswered the question Weekend Puzzle Anyone?

B3 Count Dracula

2 hours ago

GlennD

GlennDanswered the question Weekend Puzzle Anyone?

C3 - empty the bar A3 - once over easy

3 hours ago

Minuteman3

Minuteman3answered the question Unable to feel Oxygen in nasal cannula

I now run on continuous flow so I just stick the end of the cannula to my ear. At 5 or 6 lpm it sounds like a mini-tornado. I also find my nose to be really sensitive to cold and sneezing.

4 hours ago

Hilary07

Hilary07answered the question Symbicort and Muscle Cramps

I was just put on Symbicort for asthma that came back. However within a night I have had the muscle cramping, and feeling of agitation /irritability. Supposedly the inhaler is supposed to only be used for this week. But itโ€™s a long term steroid, and I …

11 hours ago

edpe77

edpe77cartoons can say it better than words!   //ed

20 hours ago

Norso

Norsoanswered the question Weekend Puzzle Anyone?

B2... Frankinstein

21 hours ago

Norso

Norsoanswered the question Weekend Puzzle Anyone?

A4 relative humidity

21 hours ago

Norso

Norsoanswered the question Weekend Puzzle Anyone?

D1) rolling in the aisles

21 hours ago

Norso

Norsoanswered the question Weekend Puzzle Anyone?

C4 more power to you

21 hours ago

breathe for today

breathe for today

I was  reading in the latest AARP magazine about a valve that can be implanted in the lungs to help improve breathing.  Anyone ever heard of this procedure?

22 hours ago

edpe77

edpe77answered the question Weekend Puzzle Anyone?

A1 - all kidding aside B2 - Frankenstein A2 Deer in the headlights C1 - wake up D3 Grace period D4 born to be wild B4 trick or treat {as kids we always had to say "help the poor"}n //ed

1 day ago

JeanO53

JeanO53asked the question: Weekend Puzzle Anyone?

This one looks interesting...

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRTHappy Fluffy Friday!
I worked a little later than usual and came downstairs to find Hayden asleep on the couch with his faithful friend curled up around him. 
Nothing gets between a dog and her boy โคโค

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRT**COVID -19 Update in the News Today**

FDA Approves Veklury (remdesivir) as a Treatment for COVID-19


The FDA has approved
the first treatment for COVID-19. You may have heard of this medicine, Veklury
(remdesivir), on the news. Remdesivir has been used to treat patients age 12
and over who have been hospitalized with COVID-19. This medication is a
powerful antiviral drug and must be administered to patients who are in a
hospital setting for appropriate monitoring. This first approved drug for
treating severe COVID has been shown to shorten hospitalizations but
unfortunately does not appear to alter the risk of dying from COVID The news of this approval comes at a time when much of the country is seeing an
increase number of cases and hospitalizations. Click here for more information:

Link - https://rtmagazine.com/products-treatment/pharmaceuticals/us-pharmaceuticals/remdesivir-first-therapeutic-approved-by-fda-for-covid-19/?campaign_type=newsletter&_hsmi=98095012&_hsenc=p2ANqtz-9NSlYBvYG-n_k4H2Gm3elOkjbsirngzCURXhhJFgMurSLXHHv-iriopkeMKQ1E5fg0Fw_vCU2EI-p3yHQbQ0aHbBnzeQ

1 day ago

Jimmy S

Jimmy STina Baxter has given me an update on Kathy Middleton.

"There are no ICU beds available at Piedmont Columbus Regional hospital, which is where she is at. She is still being treated by the ER.

The case worker called Tina and told her that it would be in the best interest of the patient to be moved to a hospital with a ICU bed available for her. She said the closet hospital with one is Emory in Atlanta. So Tina is just waiting on a call sometime today to see if they have availability and then she will be transported by ambulance.

Dear Heavenly Father, thank you for all you have done to this point for Kathy Middleton in her time of weakness and pain; sustain her by your grace, that her strength and courage may not fail; heal her according to your will; and help her always to believe that what happens to her here is of little account if you hold her in eternal life, my Lord, in Jesus name, Amen.๐Ÿ’–๐Ÿ™๐Ÿ’–

1 day ago

Caroline

CarolineThis the view off my back deck on Wednesday morning.  The photo lost a little when I tried to correct the light, but you get the idea.

1 day ago

edpe77

edpe77

I voted a few days ago, and thru an app, confirmed my ballot was received at the clerk's office.   //ed

1 day ago

Jimmy S

Jimmy SLord,
look upon us with eyes of mercy. May Your healing hand rest upon us,
may Your life-giving powers flow into every cell of our body and into
the depths of our souls, cleansing, purifying, restoring us to wholeness
and strength for service in Your Kingdom. Amen.

Dear God, I know that the first step in all spiritual healing is to believe. I believe! I believe that Kathy Cardell Middleton
has an open mind and heart believing in your infinite power and
possibility. I believe that healing is a dynamic and reachable
experience, a reality that can be experienced right now. May she have a
patient and loving attitude, for I believe that your healing activity is
now at work in her mind and body. I look forward, with joyful
expectation, to the perfect wholeness that you are now bringing into
manifestation through her. I believe in your constant expression of
perfect good in and through her. I rest in the certainty of your healing
power. I know that with you all things are possible. In Jesus Christ's
name, Amen.

1 day ago

Kristen Willard

Kristen WillardHappy Friday, Foundation Friends! We are excited to let you know that our Medicare Essentials for the COPD Community webinar recording is LIVE. 


You can watch it here: https://attendee.gotowebinar.com/recording/2946706966072053776

1 day ago

edpe77

edpe77

DONE! got my high dose flu, Shringrix AND pneumonia 23 today. Been putting it off {probably out of fear}, so this morning I popped a Xanax, put my mask on and drove over to Kroger {first time I was in public since March!}. I first checked to confirm they had them. Then as she's taking my info - says the insurance says I need the pneumonia shot too. These computerized medical records are great - used to be you had to remember if you had them. I did know I had #13, didn't know about #23 for pneumonia. I think the xanax helped w/anxiety control. I need a couple more "tests."


Next is scheduling a follow-up CT, the dreaded colonoscopy & EDG. I'm going to see if I can spend the night at hospital for the prep and all the tests. That will help with anxiety issues.   //ed

2 days ago

Norso

Norsome and bonzo.... I'm on the right!!!

2 days ago

Norso

NorsoBring a whole new meaning to doggy paddle... Or maybe where it originated... 2 hot dogs becoming cool cats at dorset beach 

2 days ago

Vipin mehta

Vipin mehta

I am 51 years an old. Out of 20years I smoke 20years back left it.but I feel shortness of breath.

2 days ago

Caroline

Carolineanswered the question Unable to feel Oxygen in nasal cannula

At 5lpm you should be able to feel the air flow. Others have given you great advice. I would definitely contact the provider after you check to make sure the tube is attached. You might also want to run your hand along the tube to see if there is hole in …

2 days ago

Norso

Norsodogs on holiday 2 admiring beach at durdle dor in Dorset

2 days ago

edpe77

edpe77answered the question Unable to feel Oxygen in nasal cannula

There are several good suggestions above to confirm O2 is flowing. Personally, I use the tongue. But the other part of the question - is it at 5lpm? needs your supplier to confirm proper operation. They have a "meter" that measures purity i.e. that the …

2 days ago

Bret99

Bret99Earlier this week,
Stephanie Williams had the chance to speak with Dr. Barbara Yawn, Chief
Clinical Officer at the COPD Foundation. They discussed the latest developments
in COVID-19 care and research, wearing masks and the importance of getting the
flu shot among other topics. You can watch a recording of this essential
Facebook Live event here: https://www.facebook.com/COPDFoundation/videos/2107591772717690


 No Facebook account is necessary to watch.

2 days ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question COPD use during day intead of night

Hi there - These devices can be difficult to adjust to, but with a little time and patience, it can be done. She does need to wear it when she sleeps, whether that is day or night. When she sleeps without it during the day, that is compounding her …

2 days ago

Burma

Burmaanswered the question Unable to feel Oxygen in nasal cannula

Hello Furhan The sure way to test the air flow through the canula is this. Get a glass of water 3/4 full. Stick the nose part of the canula in the water. If the water bubbles, then the air is flowing. If there are no bubbles, check the concentrator and …

2 days ago

Norso

NorsoLucky black cat we met, at entrance to clitheroe castle, lancs

2 days ago

Chunky

Chunky

Hi Bill,  Hope your getting by ok. Youโ€™ve got to take 1day at a time with copd had it for 5 years now,  Hade a lot of bad flare ups recently lm going for an chest X-ray on Monday,  Think itโ€™s down to the damp weather in Scotland,     Take care Buddy,

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

OK, just submitted my request to my Governor to declare November COPD & Alpha-1 Month and November 21, 2020 World COPD Day.  It generally takes about a month to get it approved in Hawaii.

2 days ago

Norso

Norso7.30am UK time and it's Friday so its time for fluffies... I haven't been waiting all week for it I'm just an early riser...
My

Holiday cat 1, bala wales

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question COPD use during day intead of night

The bi-pap really isn't designed to wear during the day, but you can certainly try it. Generally you can't do anything else while you're wearing it. If she needs the O2, that can be bled into the bi-pap and the mask should make it possible for her to get …

2 days ago

GlennD

GlennDanswered the question Check in โ€“ Are Anxiety and Panic Common in People with COPD?

I, too, try to bow out gracefully", Bclangley, but usually stumble half way through it, so everyone has a good laugh. Especially me, since I have learned to laugh at myself. Looking in the mirror helps me stay in practice. I intentionally try to stay in …

2 days ago

Sassycat

Sassycat

Covid, Work, and Reasonable Accommodations
Hi everyone! The library I work at is getting ready to reopen. During normal times, we are the busiest library in the state and we need a security guard for crowd control. Kids here ages 5 and under don't have to wear masks, coupled with crowds, makes for a potentially terrifying workplace. Of, and rapidly rising cases, too. I have an appointment with my pulmonologist on Monday (telehealth) to go over reasonable accommodations - does he think I need to modify my job and workplace for me to stay safe? What is interesting is that in my actual job description, under potential workplace hazards, the box that says daily exposure to contagious diseases is checked. I wonder if he will recommend more modifications other than masks, plexiglass, and social distancing. 

2 days ago

Jimmy S

Jimmy SIn times of emotional or physical hardship, it's easy to feel hopeless โ€” but as the bible says, "with God all things are possible." I am calling on ALL prayers for our COPD friend Kathy Cardell Middleton. She was found unresponsive and in complete repository failure .Loving God, I pray that you will comfort Kathy in her suffering, lend skill to the hands of her healers, and bless the means used for her cure. Give her such confidence in the power of your grace, that even when she is afraid, She may put my whole trust in you; through our Savior Jesus Christ. Amen.

2 days ago

Jane Martin

Jane Martinanswered the question COPD use during day intead of night

Hello dilivio, I might suggest that you don't give up on using the Bi-pap as originally prescribed but try different masks, prongs, etc. and different machine settings. You might have to insist that she get help very soon with figuring out how she can …

2 days ago

Jane Martin

Jane Martinanswered the question Check in - Would keeping a journal help me with stress?

So true, Bclangley. What we write can have a way of talking back to us sometimes, helping us discover something that was there all along. Thank you!

2 days ago

Norso

Norsoanswered the question COPD use during day intead of night

Ah, I dont know enough about that sorry ... I'm sure ssomeone else will help soon. Theres so many facets and angles to this condition. It's daunting. Can only repeat best of luck to you both

2 days ago

JeanO53

JeanO53The weather predictions here for the next 5 days are mostly cloudy and rainy.  I'm really glad I spent some time outside yesterday when the sun was out and the leaves are still in high color.  This time of year everything seems to change so quickly.  I'm grateful to have the time and place to enjoy these spaces.




2 days ago

Norso

Norsoanswered the question COPD use during day intead of night

Going to state the obvious by saying you're probably better asking healthcare provider that. I would guess it wouldn't work as I think the reason oxygen is important at night is because level drops when asleep. Your mum could stay awake at night and …

3 days ago

dilivio

dilivioasked the question: COPD use during day intead of night

Hi, My mother who is O2 user has also recently been given a Bi PAp after a recent exasperation. She is having a huge time adjusting to it. Even though it is important and it helps keep her Co2 levels at bay it is preventing her form sleeping> The …

3 days ago

clipper (Debbie)

clipper (Debbie)answered the question Unable to feel Oxygen in nasal cannula

When I turn mine up to 5 I can feel it on my hand and I can hear it when holding the cannula to my ear. Use an oximeter to check your mothers SpO2 level. If it is <89% call the pulmonolgist and let them know what her SpO2 is. If you canโ€™t get through …

3 days ago


COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.