COPD360social

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Meritar5

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9 minutes ago

Bill66

Bill66answered the question why do some people who have quit smoking look down their noses at others who have not yet quit?

I don't let anyone get to me, I just quit July 17, 2016 and I'm around some smokers. I also had people cough and hold there breath when I smoked. Keep on trying to quit, for yourself! If I don't like something, I don't look at it or avoid the situation …

4 hours ago

Bill66

Bill66

Still haven't started on My Crestor. I never had problems with my cholesterol. I didn't fast for 9 to 12 hours my last blood test, my Doctor said they're still not great and Crestor will help. I would like any advice.

5 hours ago

  • Click to View All Comments5 comment(s) -
  • evesHi Bill66, I agree with Bellabits.
    I have had high cholesterol for years, but I found I was able to lower it by walking and munching on celery.

    You know, A little while back I listened to a long presentation on drugs for this issue and also that the issue off high cholesterol had been revisited...but for the life of me I cannot remember the details. Old mind here :) So I can only suggest research and do what you feel is best. It does help to have a good doc to chat about it in detail, all the pros and cons.5 hours ago

  • Bill66Mine was free also. Just didnt want to be on another drug. Thanks for the input.5 hours ago

  • Ben AI can relate to that, Bill66. The fewer drugs the doctors have me on, the better. I would much rather stay at the minimums required to stay healthy than to be taking a lot of pills.4 hours ago

HIcopd

HIcopdanswered the question Questions about Oxygen?

OK, any more questions about the Long Term Oxygen Treatment Trial? I've received some from several people--Bonnie, Bob S. Mike H., Bruce M, and Jean R. Anyone else? I'd like to have as complete a list as possible so that the authors and NIH can …
tlane also answered the question tlane also answered the question

6 hours ago

Bill66

Bill66

It's nice to count on Kandy changing her profile pic for the upcoming holiday.

7 hours ago

    Bill66

    Bill66answered the question Sleep disturbance

    My Doctor gave me some good advice, go to bed at the same time every night and wake up the same time. The brain is designed to release chemicals between 10pm and 2am and when we go past that it really jams you up. It has helped me tremendously. I try and …
    evesCarolinePamieand 5 others also answered the question evesand 7 others also answered the question

    7 hours ago

    Bill66

    Bill66answered the question Vitamins for COPD ?

    I get most of my nutrition by eating, I have an app that stores the data based on age and gender, it's not perfect, however I get almost a perfectly balanced score on a daily basis. I take a men's multi just for missing nutrients.
    evesMikeInColoradoCasand 5 others also answered the question evesand 7 others also answered the question

    8 hours ago

    eves

    evesanswered the question How much has COPD changed the way you look?

    @LUANNSPIRIT We are taught that looks matter a great deal. And it does not help to be told we look fine if we do not see ourselves that way. So I do feel for you. I have in the past felt the same way. I think often lack of feeling healthy, changes the …
    di545Kandyjim1945and 1 other also answered the question di545and 3 others also answered the question

    14 hours ago

    Kristen Willard

    Kristen Willardanswered the question Where can I move to breathe better? I am dying in SE Tennessee.

    Karen has given you great advice. A pulmonologist will be key to your life with COPD, no matter if you stay in TN or more to another location. Hope you can get to see one soon who will help you better manage your symptoms. Let us know how that goes and …
    Karen Deitemeyer also answered the question Karen Deitemeyer also answered the question

    14 hours ago

    Kandy

    Kandyanswered the question Dr. OZ: The Red Flags of Unproven Stem Cell Treatments

    Didn't I post it this last week? I saw the end of the show but he had a article in the Chicago paper on how bad the stem cell clinics are.

    14 hours ago

    Fabiana Talbot

    Fabiana Talbotasked the question: Dr. OZ: The Red Flags of Unproven Stem Cell Treatments

    Have you seen the latest from the Dr. Oz show on experimental stem cell treatments? Investigative reporter Elisabeth Leamy goes undercover to expose the truth about the clinics that prey on vulnerable patients. Watch clips from the show here: …

    14 hours ago

    eves

    evesanswered the question Has anyone heard about the beneficial effect of anise on lungs?

    I used to want to try licorice, but for me it just gets too many hits on the side effects on google. Even the FDA has a link to "side effects of licorice" It seems to be "glycyrrhiza" in the licorice. And it is just one of those natural where it is …
    Bill66 also answered the question Bill66 also answered the question

    19 hours ago

    Bill66

    Bill66answered the question Points...

    I haven't figured the points out, I've been at 74 points for about 3 days now??
    hackVinny MKaren Deitemeyer also answered the question hackand 2 others also answered the question

    1 day ago

    edpe77

    edpe77asked the question: Has anyone heard about the beneficial effect of anise on lungs?

    I was talking to a friend today, and smoking came up. She said she ate "ghoodnpleanty" for a month prior to quitting cold turkey, and had no withdrawal symptoms. She claimed anise {licroice} aids in removal of bad stuff from the lungs.

    1 day ago

    Kandy

    Kandy

    I did something today I thought I never would do again. I went roller skating!!! I did use rolater but I did it!!! Was my granddaughter's birthday party. Maybe 5 laps around the skate park. Some my daughters didn't even skate. So never say never you can do what your determined to do!

    1 day ago

    Kandy

    Kandyanswered the question How were you diagnosed with COPD?

    Born asthmatic not to live past 10 yrs old due to very sever asthma 70s kind a in remission. Started getting worse in 90's and 97 I say is my asthma/copd overlapping that is my date when I got very sick for weeks was told to get my affairs in order and …
    Terry S.anon0502Valery Haneyand 16 others also answered the question Terry S.and 18 others also answered the question

    1 day ago

    HIcopd

    HIcopdanswered the question Top US cities to live in with COPD

    Well, my doctors and I have finally concluded that for ME, the best place to live is where I'm living in HI, as most of my roots and social connections are here. Of course my husband and I are happy to have long visits with our kids and will continue to …
    Juliana727LouanneKandyand 10 others also answered the question Juliana727and 12 others also answered the question

    1 day ago

    HIcopd

    HIcopdcommented onCOPD and Panic Attacks

     Jim, hopefully your wife's physchiatrist and Pulmonologist can work together to help her have an action plan on how to treat her symptoms promptly so they don't escalate into a full panic attack and can be gotten under control if she DOES get panic...

    1 day ago

    Karen Deitemeyer

    Karen Deitemeyervoted on COPD and Panic Attacks

    Gave a thumbs up for a blog post!

    1 day ago

    Karen Deitemeyer

    Karen Deitemeyer

    I'm excited - our daughter and 3 grandchildren are arriving tomorrow evening for a few days. I spent the day doing laundry, grocery shopping and cooking ahead for their visit. Tomorrow I'll dust, vacuum and mop and hopefully will still have time to rest before they arrive.

    Unfortunately, the pool heater in our community pool isn't working, so not sure if they are going to want to swim - it's too cold for me, but they might not mind.

    We'll probably go to the Zoo one day, to the beach another day, and then? Not sure, but there are plenty of things to do.

    Hope everyone is doing well.

    1 day ago

    Bill66

    Bill66

    Pretty Good breathing weather in NJ today, another nice day tomorrow. Got out for lots of fresh air.

    1 day ago

    Bill66

    Bill66answered the question Enphyzema & Eating Bloat?

    This is due to a number of factors, I really thought the bloating was just me. I swallow air due to anxiety, Prilosec has made it worse, but it helps for my Barrett's esophagus. This really helped me out reading this tonight, thank you everyone.
    Juliana727DavinaTDianne Rand 2 others also answered the question Juliana727and 4 others also answered the question

    1 day ago

    Nancydun

    Nancydun

    I know if I go out for an appointment or like last night going to get medication, when I get home I am way too tired and keep on falling asleep. My doctor isn't doing blood work, or he sent a nurse who the Doctor knows my veins are bad and I have always had a Portacath, which Is a device surgical put in to get blood work done, or IV's. I know then I got up for a short while, was going to go to bed after my bath, went to my bed and fell asleep, then I got up to shut the lights out, I ended up sleeping until 5 p.m.

    1 day ago

      Nancydun

      Nancydun

      Hi whenever they send me something I can never find it. I only joined this past year when I was told I had COPD/severe. I've been busy or way too tired to go online. Plus my Comcast bill is outrageous. Now electric bill was only $15. last month this month it's $46. So I am trying to not use the computer or even the lights that much, even the nebulizer I am trying to cut back on

      1 day ago

      eves

      evescommented onCOPD and Panic Attacks

       Also I wanted to draw your attention to this sentence in the article : "Worse is that, for safety, it would be dangerous for a doctor to assume that someone living with COPD is having a panic attack, so they may load those with COPD with medicines...

      1 day ago

      eves

      evescommented onWe Need Your Comments for the National COPD Action Plan

       I hear you pepere. And Buckybuck I like your view. Education about the dangers of tobacco is not enough, it should be more centered around addiction. Addiction needs to be recognized as a separate entity. To get upset with people for their addictions...

      1 day ago

      Juliana727

      Juliana727asked the question: Where can I move to breathe better? I am dying in SE Tennessee.

      I am not joking. I am dying here. The Dr.'s don't have me on anything but 2 inhalers, albuterol and Flovent, and Singulair for allergies. I don't have a Pulmonary Function Dr. I am wheezing 27/7 and allergic to every tree and weed in TN. I am on SSD and …

      1 day ago

      edpe77

      edpe77

      Bellabits, re: amazon treadmill.
      Yes I ordered a Weslo 5.9 for $289, arrived a few days later.
      My son and his friend un-boxed it, assembled and moved it to my bed room.
      Assembly was simple, 4 bolts to lock the console in the vertical.
      LIKES: is as represented; speed adjust in .1mi {or km} increments, up to 4mph; 6-preprogramed workouts from 20-60min; heart rate monitor; display: time/cal & dist/speed & graphical dist; 1 incline-manual; ample handle bars
      DISLIKES: 110#; display large-but very dim {I have a nite light shining on it},
      I wanted a cheap $200 unit, while they were in the 60# range, they just seemed too limited. Limits ranging from speed in km only; big speed jumps- as much as a 1mph {I workout in the range of 1.4 - 1.7mph, gradually increasing - generally about 10 min at a time}.
      Much prefer the out of doors {Mi is experiencing a heat wave of 63F}, treadmills are very boring. Today I walked my dog for nearly a mile, never got board.
      Reason I bought it - at 20F can't walk out doors; need to exercise.
      What I would really like is a recombinut bike, the one I wanted was $3000!
      Consider a variety of equipment to avoid the boredom factor.

      Short answer to your question - it was an excellent choice.
      ed

      1 day ago

        HIcopd

        HIcopdanswered the question Salt Inhalers for COPD

        I have always recommended that folks have one or several PROLONGED visits before deciding whether and where to move. Heat, cold, humidity, dryness, allergens, access to quality healthcare, cost of living, social support, and more can all affect each of …
        Juliana727Bill Clark - Community ManagerJenpieand 6 others also answered the question Juliana727and 8 others also answered the question

        1 day ago

        eves

        evescommented onCOPD and Panic Attacks

         I completely understand your dilemma and I'm so sorry that both of you are experiencing this. I have researched the respiratory journals and it looks like antidepressants are not helpful. And it only makes sense since the air hunger experienced and...

        1 day ago

        Evie

        Evieasked the question: apnea and cpap

        I just got diagnosed with OSA and the doctor also added supplemental oxygen at night only as my sats were 84/86 during the sleep study. However, medicare denied coverage for the oxygen and I then asked the supplier to contact her and review that decision …

        1 day ago

        Jim Ragsdale

        Jim Ragsdalecommented onCOPD and Panic Attacks

         My wife has Stage IV Copd with an FEV1 of 16%. She has been having horrible numbers of full blown panic attacks. The psychiatrist has her on 2 anti depressants and increasing Ativan with very little success. An exacerbation stopped her first...

        1 day ago

        DonnaA (SSP)

        DonnaA (SSP)answered the question What would you like to see in a COPD App??????

        I think everything I was going to suggest has been covered. This would be so helpful! Everything in one place without hunting! I tried to make my own, but I didn't think of half these suggestions. Can't wait for it to be done.
        Viper65clipperDianne Rand 4 others also answered the question Viper65and 6 others also answered the question

        1 day ago

        Made Pramana

        Made PramanaThis morning I went to the beach. I cleaned the beach. So many trashes in the beach. The salty air from the beach is good for my lungs. I will go to the beach more often :)
        https://www.instagram.com/p/BQowe1tB4_N/

        1 day ago

        bunnymusic60

        bunnymusic60commented onWe Need Your Comments for the National COPD Action Plan

         Well guess what? My sister is 2 years younger and continued to smoke while I was on oxygen 24/7 for the last 16 years. She decided to quit at 2 p.m. and that night could not breathe. Went to the hospital and is now on oxygen 24/7 while sleeping with...

        1 day ago

        eves

        eves

        nother day on the battlefield.

        1 day ago

        Bill66

        Bill66

        Just curious why some days the points don't go up when your active.

        2 days ago

        AlinPerry

        AlinPerryanswered the question Political talk on COPD360 Social

        Thank you..we do need to find the real reason we are here..COPD
        Ken BensonViper65anon0502and 10 others also answered the question Ken Bensonand 12 others also answered the question

        2 days ago

        Bill66

        Bill66voted on COPD Town Hall Meeting Hosted by NHLBI

        Gave a thumbs up for a COPD Digest Magazine article!

        2 days ago

        Bill66

        Bill66voted on Harmonicas for Health: Making Breathing Fun in Tennessee

        Gave a thumbs up for a COPD Digest Magazine article!

        2 days ago

        Bill66

        Bill66voted on Armed with Education, Judy Benefiel Fought For Her Life

        Gave a thumbs up for a COPD Digest Magazine article!

        2 days ago

        Bill66

        Bill66voted on Medicare Answers Now Readily Available to the COPD Community

        Gave a thumbs up for a COPD Digest Magazine article!

        2 days ago

        AlinPerry

        AlinPerryanswered the question elevation effect on someonr moving to colrado with copd

        Yes..I lived in Colorado spring's..I has to have oxygen 24 7..I have since moved to Las Vegas..I was lucky my son lived here..I only wear oxygen at night now..My level during the day go to 97..hope everything goes well
        Mike RRTBig MikeHIcopdand 1 other also answered the question Mike RRTand 3 others also answered the question

        2 days ago

        Bill66

        Bill66voted on "If You Rest, You Rust" - The Importance of Pulmonary Rehab

        Gave a thumbs up for a COPD Digest Magazine article!

        2 days ago

        Mendo Bruce

        Mendo Brucecommented onWe Need Your Comments for the National COPD Action Plan

         Bill Clark, you wrote"Your oxygen supplier is not allowed to have you pick up your tanks'I have been picking up my tanks for years and would be very upset if I had to sit at home all day waiting for a delivery that may or may not show up that day.Are...

        2 days ago

        riseinc@icloud.com

        riseinc@icloud.comcommented onWe Need Your Comments for the National COPD Action Plan

         Im a caregiver and I am so glad I came up on this site and I saw that my husband is not the only one experiencing this problem. Thank you, thank you...Cathy Dodson and thank you Bill Clark - Community Manager for your help. It help me greatly. I...

        2 days ago

        eves

        evesanswered the question Inhaler capsules and broken pieces?

        Oops now i got you trying it. Strange how the gelatin stays solid though. Floppy but intact.

        2 days ago

        Ken Benson

        Ken Benson

        This is a study at UCLA that I am currently involved in that takes very little effort on my behalf.

        The COPD Phenotypes study follows patients over 3 months and explores physiological markers of various presentations of COPD in order to adjust therapies to the symptoms and the needs of patients.

        You may be eligible for this study if you have moderate to severe COPD, are between 40 and 80 years old, and are a current or former smoker.

        For more information, please contact Roslynn Marzan-McGill, Research Coordinator
        Email: rmcgill@mednet.ucla.edu
        phone (310) 825-2616
        Mobile: (424) 256-0131

        2 days ago

        edpe77

        edpe77

        Comment on COPD digest article...Working Simpler to Save Energy
        " When cooking, it doesn’t take any extra time to make larger portions so you can freeze leftovers for times when you don’t feel optimal."
        That's a great suggestion especially after my invention The sub-0 home freezer is in the stores. The problem today is that taste diminishes upon thawing after freezing in a home freezer. My suggestion, for now, place foodstuffs in a plastic bag, as flat as possible, and put it in the coldest part of the freezer. Although not the best, it's the only way today to freeze foodstuffs at home and minimally preserve the taste. Appreciate, anything you freeze at home is safe to eat indefinitely. Flash freezing also preserves taste.
        ed

        2 days ago

          HIcopd

          HIcopdanswered the question Inhaler capsules and broken pieces?

          SIMPLE EXPERIMENT Today, after I had taken my Spiriva via handihaler, I put a few drops of water in the little foil packet and returned the empty capsule to the foil pouch. I then bent it a bit so the water would remain IN the foil. A few hours later, I …

          2 days ago

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          Medical Advice

          It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.