COPD360social welcomes new member Aurea who joins 65,428 current members of our community. Weโ€™re glad you're here!

Brittany Irish COPDF

Brittany Irish COPDFYou are invited to take part in a short survey to help us
better understand how people with chronic lung conditions navigate Medicare and
access treatments.

Your insights will help us:
- Identify whatโ€™s working well
- Better understand common challenges
- Create tools and resources that truly support
your needs

Whether you feel confident navigating Medicare or still have
questions, your perspective matters.

Together, we can build solutions that make accessing care
simpler and more supportive.

If you are 18+ and diagnosed with COPD, bronchiectasis,
and/or NTM lung disease, take
the survey now.

https://copdfoundation.jotform.com/261124968384061

3 days ago

JeanO53

JeanO53So there I was watching the bluebirds fly back and forth from their nest box feeding their little ones and a flock of large white birds flew overhead.  Pelicans??  Yes Pelicans!
Fortunately, I had my camera ready and was able to capture a few decent shots!

46 minutes ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainNorway and its fjords are so lovely!

1 hour ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

In all the time Iโ€™ve been traveling this trip to NYC & Scandinavia, I have NOT met any other person using supplemental O2. Iโ€™ve seen folks with wheelchairs, canes, hiking poles (for balance while walking) and many other health issues but no one else with any LTOT (other than myself). This really makes me sad that others with O2 arenโ€™t getting out and about. Admittedly it is more work and takes planning and coordination but itโ€™s important to be in the world!

1 hour ago

  • NewestOldest
  • Karen Deitemeyer - Florida State CaptainYes, I often notice that, too.  I went to a Senior Health Event last weekend - not one other person on oxygen but lots of wheelchairs, walkers, etc.  When I go to the grocery - very rarely do I ever see anyone on O2.   And flying?  I'm always the only one.  1 hour ago
  • JeanO53That's my experience as well.   Hopefully our being out in the world will encourage others.  But how to get to those who aren't out there??   
    Sounds like some kind of marketing campaign is needed - - "Get out and live your life!"
    1 hour ago
  • HIcopd - Hawaii State CaptainHappily many of the older building have been retrofitted and have elevators and the staff are happy to allow us to use them. The railway stations here have elevators and/or escalators most of the time as well. Today we were told the fortress had 110 steps up & down so we opted to just view the grounds and not have that much exertion. 27 minutes ago
Pippilotta64

Pippilotta64

Feeling alone and nothing to do. 

2 hours ago

  • NewestOldest
  • Karen Deitemeyer - Florida State CaptainHi Pippilotta64โ€‹  I'm glad you reached out, because you're not alone here.  It may take a little bit for someone to respond, but we're here for you when you are feeling alone.   Do you have family or friends nearby?  You said you have nothing to do - could you give them a call and ask them to come over?  Have coffee (or tea) and just a visit?  Or do you have any hobbies?  Do you like to sew, or paint, or read?  Please let us know hw we can help you to not feel so alone.1 hour ago
  • DebbieB.-Connecticut State CaptainAlone? Not while you're here on 360Social!
    If you are able to go outdoors,  there are plenty of activities I can think of! ๐Ÿ˜€1 hour ago
  • JeanO53It sounds as though anxiety is really impacting your life and ability to get out and be active.
    There have been good suggestions.   I would definitely recommend seeing a good therapist to help you learn to manage the anxiety symptoms as well as learning to live with COPD.    Medication is an important part of a care plan but not the whole plan.  
     - - Is there a chance that you could participate in Pulmonary Rehab?  My experience was that is was good for me physically, but even more important was the psychological impact.  
    - - One other suggestion... I have found that doing free writing really helps.  Don't think about what to write, just write.   Need a prompt?  Maybe start with a list of all of the things you like to do.
    I think the greatest thing you can learn from many of us is to not give up hope.  There are things that each of us can do to live our lives in the best way possible.  Do we have limitations?  Sure we do.  And still we do the best that we can.   You can too!!54 minutes ago
Pippilotta64

Pippilotta64

Feeling alone

2 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

On this beautiful Sunday morning I am aware of what a privilege it is to wake up and try again.

2 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainToday, saw a phone booth in Bergen, Norway, with books in English and other languages. 

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing you a lovely day, filled with hope, love, and kindness! ๐Ÿ˜€

7 hours ago

Bob puff dragon

Bob puff dragonHope today is a great breathing day for all. 


Seen this great idea and has to share, smile and the world smiles with you.

19 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainToday, had an interesting meal of razor clams & grilled veggies in Bergen, Norway. The things that look like sticks are razor clams. Our friends had skewers & fish soup. Prices in Norway are pretty high. 

20 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

Yesterday I got a pneumonia vaccine and a shingles vaccine.  Both in the same arm.  Good thing since my left arm is very sore and swollen where the vaccines were injected and I've had fever and chills off and on since yesterday afternoon.  I'm hoping I'll sleep better tonight.

21 hours ago

Janet52

Janet52

Not well, have been coughing up very thick mucus for over a week.
Fatigued, SOB, have followed medical treatment plan with no improvement. 

1 day ago

ktm390

ktm390

Does diffusiin change very fast? My fev1 fev normal diffusion 64 percent should be 80 for healthy also does anyone have pulmonary fibrosis

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone an absolutely wonderful Saturday! 
Peace, love, and joy are all headed your way! ๐Ÿ˜Š

1 day ago

MandyYakon

MandyYakon

Hello I'm new here but I seen your user name and I'm from the southern part of West Virginia.  I just wanted to introduce myself lol.  

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist)answered the question Check-in: Have you experienced COPD symptoms from wildfires?

Bringing this thread forward again in light May=Wildfire Awareness month, and the recent wildfires that have been burning in Florida this spring. If you live near dry areas, or any of the locations with wildfires, have any of you noticed any changes in …
Shinybeast2325muddleagedHIcopd - Hawaii State Captainand 7 others also answered the question Shinybeast2325and 9 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain       ๐ŸŒŸFLUFFY FRIDAY BONUS๐ŸŒŸ


Hazel, at her best, loving to play...no matter what! ๐Ÿ˜ƒ

1 day ago

Bob puff dragon

Bob puff dragonFriday ,woo hoo,another weeks experience in the book of life.Been real busy with radiation treatments and auctioning off all my shop tools on Thursday at least that's over.Going to start giving lessons again next week just been so tired, funny how much you miss something you take for granted.


Seen this little guy and it was like looking in the mirror, keep smiling all.

1 day ago

Evie

Evie

Thank you all for the info. 
Evie

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿฅณ Happy Put a Pillow in Your Fridge Day! ๐Ÿฅณ

Yes, it's a real thing! Legend has it that putting a pillow in your fridge is supposed to bring a little luck, prosperity, and good fortune for the month ahead. Whether you decide to try it or not, it does give us a fun excuse to pause for a moment as one month ends and another begins.

As we turn the page to a new month, let's take a look back at the victories we've hadโ€”big or small. Maybe you made it to an appointment, completed pulmonary rehab, learned something new about COPD, supported a loved one, or simply made it through a difficult day. Those wins count.

And as we head into the month ahead, let's focus on what helps us feel our best. Maybe that's staying active, drinking a little more water, taking medications as prescribed, practicing breathing exercises, asking for help when needed, or simply giving ourselves a little grace on the tougher days.

So here's today's challenge:

๐Ÿ“ธ You can share a photo of something that brings you comfort, luck, or hope for the month ahead.

๐Ÿ’ฌ And tell us: What is one thing you'd like to improve, maintain, or celebrate as we move into the new month?

Whether you're putting a pillow in the fridge, keeping your feet up in your favorite chair, or just enjoying a quiet moment, we hope the month ahead brings you plenty of reasons to smile.

Happy Put a Pillow in Your Fridge Day, everyone! ๐Ÿ›๏ธโ„๐Ÿ€๐Ÿ˜Š

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainWell, today we saw amazing scenery, going through the fjords between Flรฅm and Bergen. My equipment is working wellโ€”Inogen Rove6 + Liberty 2, but sure wish it were lighter, smaller & quieter!  

2 days ago

Pippilotta64

Pippilotta64

I am so weary. Was in the hospital for the third time this year. Im not only haveing breathing problems but also some depression. Ive had a therapist for about a year now a psychiatrist with medication. The psychiatrist took me off some meds and added one at night. I find myself wanting to have someone to talk to on different occasions. Starting to tfy to go out a little. Havent been out in 2 years except for doc app. I have a fear of mot being able to breathe and my portable breaking down. Does anyone else go through this.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธAPRICOT CHICKENโœด๏ธ8 bone-in chicken thighs, excess skin removed from undersideAPRICOT SAUCE:1/4 cup lower sodium soy sauce2 tbsp. Dijon mustard 1 cup apricot preserves1 tbsp. dried onion2 tsp. granulated garlic1/4 tsp. freshly ground...

2 days ago

Bob puff dragon

Bob puff dragonHappy fluffy Friday to all today l hope your day is the best it can be with deep long breaths.Special sad hello to members who have lost a valued four legged companion recently,hopefully this meme will help and all the happy memories are assisting you to get through this difficult time.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from this large pond slider! My sister spotted it while walking her dogs at a pond near her house. 
Wishing everyone a pleasant, easy breathing day! ๐Ÿ˜Š

2 days ago

Sean P. Smith

Sean P. Smith

You know the last three months have been hell on wheels for me. Heart issues - stent and medication adjustments all just made my Emphysema harder to deal with. And then to end up with pneumonia (AGAIN!)! 
Yea, you want to think it was bad, maybe it was but I wanted to say the upside to this is the people around me that cared - family, friends, ALL my doctors. And besides that, I refuse to let my disease kill me. I will die from getting hit by a car, falling out of a multistory building, who knows how but it will not be emphysema. 
Because of my heart issues I am looking forward to cardiac rehab and finally being allowed back into the gym. 
To all out there who are afraid, alone or confused, just remember there are over 65 thousand members in the same boat. We are here for you and each other. You don't have to go it alone.

2 days ago

Amanda*08

Amanda*08

Hello I am new to this community! Just diagnosed as end stage COPD at 38 years old back in March. I am scared so scared I have it in my head I wonโ€™t be 40. Iโ€™m struggling to quit smoking I also retain carbon dioxide! Looking for resources or to talk to people dealing with the same things I am. 


Thank you in advance for reading my short post! 

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Does anyone know what to expect now?

This does sound late end stage disease. Is hospice involved?
Phyliss DiLorenzo NJ State CaptainBob puff dragonKaren Deitemeyer - Florida State Captainand 1 other also answered the question Phyliss DiLorenzo NJ State Captainand 3 others also answered the question

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.