Jean IA State Captain

Jean IA State Captainanswered the question Getting off o2

That depends on a lot of things. If you don't quit smoking, there's absolutely no chance that it will happen, so quitting is the first step. Once you've got that down, the next step is exercise. Exercise will make both your heart and your lungs much more …

1 hour ago

Snowflake

Snowflakeanswered the question Worry

I am in a program here in which I have been provided a pulse oximeter, blood pressure machine, scale and a tablet. Once daily my tablet comes on and asks health questions and requests my stats. This information is sent directly to a Tele Health nurse. …

3 hours ago

netmouse

netmouseasked the question: Where is lungguy?

Return to us โ€ฆ your insight and info is so valuable to us โ€ฆ.

3 hours ago

ksuzn

ksuznanswered the question Worry

Yes, what Bill66 - Bill Wornstaff NJ State Captain Said. Also many of the new smartphones, wearables and fitness watches, have had HR and pulse oximeters, for a while now and there is a whole culture built around the fitbit. Really miss my old Samsung phone that had the HR and Ox- …

10 hours ago

lbcoopman

lbcoopmanasked the question: Getting off o2

if you stop smoking can you or is there a chance of getting off 24 hr a day o2?

11 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question Worry

Don't forget athletes, mountain climbers and anyone in the aviation field also use Oximeters, I've had high endurance athletes inquire about them!

12 hours ago

AMO

AMO

Thanks for asking. I had a very, pleasant day. I am still kinda in shock over my copd diagnosis. I doctor told me Thursday

14 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Has anyone had a cold this winter

Katherine 58, your COPD did not go away; you still have it and will have it for the rest of your life. What went away were the symptoms, probably brought on by some sort of exacerbation. You're very lucky in that you clearly are in the mild stage of the …

17 hours ago

Josephbel

Josephbelanswered the question Has anyone had a cold this winter

I caught one too in early January, check it with my regular doctor just so he can listen in on the lungs and he gave me clearence. I had no fever thank God! Rest and lots of fluid helped me get thru it in few days. Tean with lemon and no sugar can help a …

18 hours ago

Soleena

Soleena answered the question Coping with shortness of breath

thank you all for your thoughts and suggestions. I will ask about pulmonary rehab and breathing techniques. My doctor told me I have a tendency to air trap which is not comfortable. Iโ€™ve discovered wearing cpap helps. Albuterol before morning inhalers is …

18 hours ago

lbcoopman

lbcoopman

Yesterday and today have been the best i have had in awhile.not sure why but ill take it. Starting smoking cessation class!
Question...has anyone come off o2 by stopping smoking? I know yhe many benefits but wondering about this one. 

19 hours ago

Grandma05

Grandma05

Good evening all, I took in all your comments to my questions and have had a long talk with myself ๐Ÿ˜†.
Yes Iโ€™ve got the diagnosis emphysema which isnโ€™t causing any symptoms which is tremendous, I read your posts and I wish I could take it all away but obviously I canโ€™t, you are all so kind to respond over and over and thatโ€™s helped me more than youโ€™ll ever know so from the bottom of my heart thank you ๐Ÿ™.
I hope one day I can help you like you help me, have a great evening and il keep each and every one of you in my prayers xx

20 hours ago

JeanO53

JeanO53answered the question Has anyone had a cold this winter

I caught a cold near the end of November. It took longer than I anticipated for the effects of the cold to pass, but has cleared for the most part. Absolutely call your doctor tomorrow, if only to check in to see if you should be doing anything …

20 hours ago

das23

das23answered the question Has anyone had a cold this winter

So far no cold for me {fingers crossed}----ur right-call your Dr tomorrow. That's what I do if I feel a cold coming on. Good luck

20 hours ago

Katherine58

Katherine58asked the question: Has anyone had a cold this winter

has anyone had a cold this winter yet. Iโ€™m nervous. Nโ€™ose is running continuously - started early this am. Was diagnosed with copd emphysema last June , it took 2 months to go away with prednisone and antibiotics. Will be calling my gp tomorrow - but …

20 hours ago

Angelos Giagia

Angelos Giagia

This is my first communication on this app. 
I was diagnosed 2 years ago with moderate copd Emphasima . Thank goodness no flu or even a common cold in the last 2 years until last week. Got the flu. Fever, sore throat and muscle aches. 3 days in and Iโ€™m coughing. Since this is the first time Iโ€™m dealing with this since my ER visit and admission into the hospital Iโ€™m a little nervous. Iโ€™m currently overseas and am hesitant to see a pulmonologist here. I have a prescription for prednisone with me. A nebulizer and my albuterol. Robitusson for cough. And a zpack Incase of respiratory infection. Iโ€™m taking the prednisone. High dose for 5 days. Waiting to see the color of the mucus before I start the antibiotic. And using the nebulizer every 6 hours. I actually feel pretty okay but Iโ€™m having some anxiety because what I experienced 2 years ago was terrifying. Am I doing the right things? And when will I know if I need to go to an ER? 
Hope someone here can help me out. 
Thanks!

21 hours ago

Sassycat

Sassycatanswered the question Red hand palms (palmarerythema)

I am confused as to why your doctor is referring you to a pulmonologist for COPD. Do you have symptoms other than the red palms that can be from a 100 different things?

21 hours ago

Soleena

Soleena answered the question Cold weather and oxygen concentrators

thank you all for your replies and thoughts. My DME office said just to minimize time out in the extreme cold. Usually it is just getting from my car to the building or scraping my car off that Iโ€™m out in the cold. Thankfully it has warmed up to the 30s …

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Since we are having posts about skin, it seems to me I get painful skin at times or skin feels sore like I have the flu type of skin pain. I know its from the inhalers. I take very good care of my skin and everything else, just avoiding problems down the road. 

1 day ago

Snowflake

Snowflakeanswered the question Red hand palms (palmarerythema)

Great article, thank you ksuz. Overwhelming and scary how many things are related to or caused by having COPD. โ„

1 day ago

Snowflake

Snowflakeanswered the question Red hand palms (palmarerythema)

://www.healthline.com/health/skin-disorders/p...

1 day ago

ksuzn

ksuznanswered the question Red hand palms (palmarerythema)

don't know about my liver but auto immune disorders and, interesting...albuterol https ://www.healthline.com/health/skin-disorders/p...

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™m applying a bit of Mederma to the faint discolorations so they will better blend in with the rest of my forearm. sure looks better than I had feared!

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Finally, I am able to shed the hydrocollodiol bandages and viola a much less noticeable pair of scars than I feared. My H has been using these fancy, pricey bandages for years now. Iโ€™m a convert. They cost a lot but it does really reduce the size and notice ability of the scar for skin tears.


Sadly, my skin tears very easily thanks to decades of inhaled steroids for improved breathing and clumsiness.  Iโ€™m really happy to have these โ€œfancy bandages,โ€ so my skin doesnโ€™t look so scarred. 

1 day ago

Marsha Gail

Marsha Gailanswered the question Worry

I donโ€™t have an answer, but I want to comment on how great it is for us โ€œnewbiesโ€ to be able to read such varied and well informed answers here. Thank each of you for taking the time to answer questions that you have probably answered a thousand times …

1 day ago

MM4

MM4answered the question Worry

I have 2, one is my purse for when I'm out and about (daily) and one I use around the house. I do check it often when I'm active because I know I'm often close to being too low so I make sure I'm still ok. Not out of fear or nervousness, but sometimes …

1 day ago

Forgeti5

Forgeti5

๐Ÿ˜’ Just had an argument. Glad I can
come here to catch my breath. Kaya
โ™ก๐Ÿ’ƒ โ™ก โ™ก

1 day ago

Marsha Gail

Marsha Gail

Hi, everybody. Iโ€™m having a pretty good day. Iโ€™m optimistic enough that I bought the large tube of toothpaste at the store. I Have a question about my O2 levels. I got an oximeter earlier this week and Iโ€be been checking my levels a few times a day to get a read on how my supplemental O2 is working. If I a without the O2 it drops to the 70โ€™s. I put on the O2 and it goes to the 90โ€s. But I donโ€™t feel any different with the O2 going, or without it. Am I supposed to feel a difference?

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question humidifier bottle

My allergist before had me get rid of humidifier due to mold and fungus that grow quickly maybe the humidifiers now days are much better back when. My eye dr says use one without filter that is where the mold grows. Who knows.

1 day ago

ksuzn

ksuznanswered the question Worry

I went through the "toy" phase as well, and it still kind of is, and yes it got me into trouble a few times--especially when I forgot it was time to change the batteries. Still, it is a very necessary tool at times, especially when I think I'm getting …

1 day ago

Caroline

CarolineHere is my orchid in bloom again this year and for the first time I have the second bloom stock. The orchid is a reminder of the film essay that Boehringer did on my struggle with COPD and the help that Snowball and Albert have to my survival. For those of you who are new, here is the link. https://www.boehringer-ingelheim.com/respiratory/copd/unique-bond-my-side

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain I beat my all time step count and mileage between work and my exercise. Just shy of 15 miles. Eveything was perfect yesterday the weather,  breathing etc... today is a little rougher 

1 day ago

Caroline

Carolineanswered the question Worry

I will have to say that in the beginning the oximeter was like a new toy as has been mentioned. I consulted with it much more than I do now. I believe that it is a mistake to think that we can tell what our oxygen concentration is without the meter. I …

1 day ago

tomtom

tomtom

Boy would I love to be in Cooperstown to see Jeter join Mariana Rivera. My Son lives about 90 miles and heโ€™s considering attending 

1 day ago

Grandma05

Grandma05answered the question Worry

Thank you so much for taking time out to reply, Iโ€™m doing relatively good today and appreciate what you say about everyone being different and different stages. I need to do relaxation therapy again it works well for me most of the time, get my head in …

1 day ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Mornin Everbody 
Oh what a Beautiful day it is here in the South.  Just wanna say have a Bright and Wonderfully awesome day. Blessins ta all
Love ya'ens 
Lorrie 

1 day ago

Micki

Mickianswered the question Has anyone had experience with drug Daliresp?

In scrolling through the replies I found I had written on this 2 years ago. My words would be the exact same. What ever side effect you have if you can get past that it will be worth it, i.e. nausea; take with Zofran or diarrhea take Imodium until your …

2 days ago

JeanO53

JeanO53answered the question Cold weather and oxygen concentrators

I live in Wisconsin where it is known to get very cold, definitely below 30 degrees and at times below 0 temps. I've had several types of POC; have used the lighter ones while outside shoveling snow or trekking through the snow taking photographs and …

2 days ago

2cents

2centsanswered the question Worry

We come to sites like this and the first thing people recommend is that we purchase an oximeter to monitor our o2 saturation. The oximeter even comes with a case and a lanyard so we can conveniently hang it around our necks and have it available whenever …

2 days ago

Dedefairy

Dedefairyanswered the question 1st spiromertry test

Thank you so much Debbie for taking time to reply to me. I very much apricate it .

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question 1st spiromertry test

The lung age thing, that is a simple way of explaining things but it can be misleading too. I think my lung age is around 130, so obviously we canโ€™t take it too literally. There is a lot of good information here, click on Learn More from the menu. There …

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Worry

Grandma05, Donโ€™t forget a lot of the people here are different than you, their disease is impacting them differently, many are on supplemental O2 and many are more severe than you. When you read some of their stories you have to remember that is not …

2 days ago

Snowflake

Snowflake

Hello to all!
I've spent some time reading all the questions &  responses both informative and just encouragement. I see myself in many of you here as I have, am, or will experience much of the same. Some of the information has been valuable as I will use it going forward on my journey. I've learned questions to ask my physicians and also validated my own fears and concerns as well as gameplan moving forward. Some of the information and care is slightly different as I am here in Ontario, but I am very thankful to have the info to apply to both my health, wellbeing and healthcare. I have answered many of my questions through my review of the posts of others and would encourage all those new to this site to read all within. There are a tremendous amount of wonderful and knowledgeable individuals here who are also very caring. I am very thankful. 
Wishing you all a beautiful, satisfying next breath!
Snowflake

2 days ago

Irishmick

Irishmickanswered the question Has anyone had experience with drug Daliresp?

I used DALIRESP for a month and had such bad and uncontrolled diarrhea I had to stop. I was wishing it would be o.k.

2 days ago

Apricot88

Apricot88answered the question 1st spiromertry test

from what I understand you have stopped COPD taking over your lungs 90 days ago and it can no longer GET WORSE as you put it if you do NOT SMOKE you should lead a normal life as an ex smoker with those readings...โ€ฆ. good luck in the run it will be good …

2 days ago

Apricot88

Apricot88answered the question Worry

Hi Grandma05 you have made the biggest step forward in helping yourself and others into understanding OXYGEN and the body's need for oxygen to stay alive and function adequately with this question ...โ€ฆโ€ฆ The oximeter can teach you more about your own …

2 days ago

Dedefairy

Dedefairyasked the question: 1st spiromertry test

I had the test done a few days ago. the nurse said it was showing mild copd. I will need to go back. she had a graph showing results for a normal ageing lung function v copd results ( I think ? ) I have looked on line for something the same but cant …

2 days ago

Forgeti5

Forgeti5

๐Ÿ˜Œ Still sleepy.  Up because roommate got up & turned light on.
Feel good but may go back to bed.
Chilly morning. Kaya โ™ก๐Ÿ’ƒ๐ŸŽถ

2 days ago


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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.