Community Announcements

Community Announcements

WEโ€™VE UPDATED OUR APP TO WORK FOR YOU โ€“ THE PATIENTS AND CAREGIVERS OF OUR COPD360SOCIAL COMMUNITY!

The COPD Foundation is thrilled to announce we have launched a FREE updated Pocket Consultant Guide (PCG) app -- with a new track for patients and caregivers. The app includes many helpful features for all living with COPD, including an interactive My COPD Action Plan and tracking calendar, exercise and inhaler videos, a wallet card to track important information, including medications and immunizations, โ€œFor my next visitโ€ prompts and reminders and much more!

Have you checked it out yet? You can download for free!

The app is available to both Android and iOS Smartphone users. Follow the links below on your phone or search for the COPD Pocket Consultant Guide wherever you get your mobile apps.

iOS: https://apps.apple.com/us/app/copd-pocket-consultant-guide/id688671199

Android: https://play.google.com/store/apps/details?id=org.copdfoundation.pocketconsultant&hl=en_US

Leave us your feedback in the comments below!

1 month ago

Lungguy

Lungguyasked the question: BiPAP in the ER during an exacerbation?

It would be great if some of you who have gotten BiPAP treatment in an emergency department would describe your experience here. The following review article summarizes multiple studies showing that this treat save your lifement doubles your survival …

55 minutes ago

Fiddegma

Fiddegma

I am new to the COPD website. I live in a state that has inversions and need some type of mask if I need to go out. Is there any recommendations. We sometimes get these inversions for up to a week so I suffer from cabin fever when they are that long and just need to get out. Does anyone know of a breathe able mask that can be used for those situations.

1 hour ago

Kristen Willard

Kristen WillardEven if you do not have a Twitter account, you can follow all the #COPDTogether World COPD Tweets. I love seeing so many people around the globe advocating today!


https://twitter.com/search/?q=%28COPDtogether

1 hour ago

Jimmy S

Jimmy SWorld Chronic Obstructive Pulmonary Disease
Day (COPD) is celebrated on the third Wednesday of November every year,
in collaboration with health experts and patients with COPD. COPD is
not one single disease but an umbrella term used to describe chronic
lung diseases that cause limitations in lung airflow.
COPD is a
life-threatening disease in advanced cases. It is an under-diagnosed and
life-threatening lung disease. The more familiar terms 'chronic
bronchitis' and 'emphysema' are no longer used, but are now included
within the COPD diagnosis.This
afternoon will rap up teaching with a twist. I am once again honor to
be teaching interns about COPD patients and what to look for upon
examining us. It is a given fact that the Doctor's must listen to
us first and then we must listen to them second. Give and Take is the
making for a good patient doctor relationship.

2 hours ago

Jane Martin

Jane Martincommented onNTM Lung Disease: What it is and What you Need to Know

 Thank you for your comment, Kaya. We look forward to posting more blogs as well as some videos - so glad you're following it!...

3 hours ago

Lungguy

Lungguyanswered the question Ted and Grace Koppel Interview

I'm unaware that someone with COPD can increase their FEV1 from 25 to 65% predicted unless they have asthma. That can happen within hours to days for someone with asthma who is being treated with Prednisone.

4 hours ago

netmouse

netmouseanswered the question What can I add to humidifier water to help with sinus problem?

https://www.childrenscolorado.org/conditions-and-a... This has info on safely using a humidifier. I found 2 brands of evaporative models easily leaked water. One when not home, it just sprung a leak, read reviews. Ugh! And the cool ultrasonic style …

5 hours ago

netmouse

netmouseasked the question: More sources for lung harm

I see more harmful sources causing harm to the lungs. Nodoctor told me, even in diagnosing COPD in that 5 to 10 minute quickappointment. Add to smoking (quit in 1978), a more recent decade ofheating my house daily in cool weather with a wood stove. And …

6 hours ago

LCollins - Community Respiratory Program, Middletown Ohio

LCollins - Community Respiratory Program, Middletown OhioHappy World COPD Day 2019 ๐Ÿ˜

6 hours ago

netmouse

netmouseanswered the question What can I add to humidifier water to help with sinus problem?

https://www.quora.com/Why-do-humidifiers-leave-whi... Also, there are types of humidifiers that produce white dust which could be harmful to those with COPD, etc. I now believe humidifiers are harmful with the breathing in the fine dust of minerals …

6 hours ago

netmouse

netmouseanswered the question What can I add to humidifier water to help with sinus problem?

https://www.amazon.com/Model-Vicks-Hours-Moisture-Humidifier/dp/B081NWYSMT I would stay away from oils or any additives. There is too much risk with what goes into our lungs. Oils and these fine droplets in the air could be harmful. Oil in vaping seems …

7 hours ago

Toothfairy

Toothfairy

Diagnosed with severe emphysema 4 yrs ago but coping except for exacerbations. I would like to meet folk with managed copd in the herzliya>netanya areas to do nordic pole walking

7 hours ago

Maureen61

Maureen61

i posted asking about progress of stem cell research. Since posting have found nothing suggesting any significant progress. 

8 hours ago

  • NewestOldest
  • Jean IA State CaptainIf you go to www.clinicaltrials.gov, you will see that there are several studies regarding stem cells in COPD occurring.   Some of them are legitimate, and some are not.  The ones at recognized universities are legitimate and will lead to more knowledge in this area.  It's very difficult to get research projects approved and to find funding for them, so it often takes a very long time before a study actually gets started and it takes time to complete it and then get the results published.  Some of these studies will move us forward; some probably won't.  I'd expect to see some significant research done n the next five to ten years.  To expect something new right away probably isn't going to happen.6 hours ago
  • Maureen61I am obviously not technical i am mild/moderate so still very very independent. My hope is the find a cure or treatment that halts the progression in my life time. But my friend is stage 4 and struggling so although nothing yet. After over 30 years of research find it frustrating that nothing yet. She needs it to be now or very soon 5 hours ago
Maureen61

Maureen61

Is grace ann koppel still chairperson of copd foundation 

8 hours ago

Rohit Kamble

Rohit Kamble

Pulmonary function Test Technological Scope, clinical Assessments and Industry overview - https://www.marketresearchfuture.com/reports/pulmonary-function-testing-systems-market-6603 

10 hours ago

Rohit Kamble

Rohit KambleCardiopulmonary diseases are a wide range of severe disorders that affect the heart and lungs. The two primary stress-related cardiopulmonary diseases are cardiovascular diseases and chronic obstructive pulmonary disorders. Cardiovascular disorders are heart conditions that include diseased vessels, structural problems, and blood clots. The chronic obstructive pulmonary disease is a progressive lung disease characterized by the erratic deteriorating of symptoms, and these episodes are called acute exacerbation.

10 hours ago

Bobmc72

Bobmc72

My significant other has suffered greatly, due to her intubation. She was in a severe car accident. Her airway has so much scar tissue.  She has had her esophagus stretched 3 times and laser surgery 2 times to remove scar tissue. They can do no more for her.  She requires reconstructive surgery. She had just moved and took a home health job. She was in the process of searching for insurance coverage. The accident happened before she was able to obtain  health care insurance. She is unable to work and has no coverage. I am desperate to help her. She was denied disability and is appealing. That could take years. She cannot function due to low oxygen levels. 10% sometimes. We need help. She needs the surgery.  What can we do for her. Her life depends on it. Texas doctors say it tops their list, as one if the worst they have ever seen. There has to be a way. I ask for your advice. I ask for your help. She is only 42. 

15 hours ago

  • lynn311
    I would love to help. Did your significant other have COPD before the accident?
    I can only pray for you and your significant other. There is a poem that comes to mind.One night I dreamed a dream.

    As I was walking along the beach with my Lord.

    Across the dark sky flashed scenes from my life.

    For each scene, I noticed two sets of footprints in the sand,

    One belonging to me and one to my Lord.

    After the last scene of my life flashed before me,

    I looked back at the footprints in the sand.

    I noticed that at many times along the path of my life,

    especially at the very lowest and saddest times,

    there was only one set of footprints.

    This really troubled me, so I asked the Lord about it.

    "Lord, you said once I decided to follow you,

    You'd walk with me all the way.

    But I noticed that during the saddest and most troublesome times of my life,

    there was only one set of footprints.

    I don't understand why, when I needed You the most, You would leave me."

    He whispered, "My precious child, I love you and will never leave you

    Never, ever, during your trials and testings.

    When you saw only one set of footprints,


    It was then that I carried you."



    My thoughts and prayers are with the both of you.14 hours ago
Lennda

Lenndaanswered the question Quick drop in oxygen levels.

I think i added an answer to you but i cannot seem to find our thread.. I have no idea how to work this website but i am trying

15 hours ago

bob_the_third

bob_the_thirdasked the question: Why would a corticosteroid reducing mucus imply asthma over chronic bronchitis?

My pulmonologist prescribed Pulmocort and told me if my productive cough went away on the med, it meant I had asthma not COPD. It didnโ€™t. More recently my allergist (who also treats asthma) changed me to QVAR and said the same thing (this time directly …

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good evening friends! Just stopping by on my way to bed. Hope you're all doing well. 
It's been a bit of a battle between the COPD, severe eosinophilic asthma, a stomach virus, damaging storms, and my Mom having discovered blood in her stool. My immunity really is very low, so I am slowly recovering. My Mom will be having a colonoscopy very soon. Hoping all turns out well for her. I am getting back to my normal routine. Holidays are sneaking up on us now! Lots to do! Take good care of yourselves!!! 
Hugs ~n~ Such, DebbieB. ๐Ÿ’ž

17 hours ago

Katherine58

Katherine58asked the question: Travelling to warm climates

just wondering does anyone travel to warmer climates in the winter. I have copd and emphysema - mild - nit in oxygen I live in Montreal, Quebec where winter is brutal and was thinking of traveling somewhere warm/hot this winter. Would this be ok and …

18 hours ago

JeanO53

JeanO53I'm pretty sure I'm experiencing withdrawal from sunshine and blue skies.   ๐Ÿ˜Ÿ
It's been so dreary here lately; there's so little natural light, I've had to turn lights on during the day. ** sigh **
I find it difficult to stay motivated these days.  On my way home from a dental appointment yesterday, I decided to head to one of my usual spots to look for inspiration.  Too cold and damp for an afternoon walk, but the views along the lake seldom disappoint.  It's a bit quiet these days; me, a few squirrels and a multitude of geese.

18 hours ago

Caroline

Carolineanswered the question What can I add to humidifier water to help with sinus problem?

I like the vicks vaposteam. You could also use Eucalyptus oil as that is the active ingredient in the vicks. The only thing is that you have to be careful when buying essential oils.

19 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain

I hope everyone has a wonderful time tonight, especially Bill. If you all shout at once I might hear you over here in Jersey. 

19 hours ago

Kenny A

Kenny AThis is what my pulmonologist sent me cause you knows how important Orange is to me.
She cares for me like gold.
I am truly blessed to have her.
I hope you all have a doctor as caring about you as an individual like I have
My Wife cried  when it arrived
Happy Thanksgiving to All

19 hours ago

K STEELE

K STEELEcommented onNTM Lung Disease: What it is and What you Need to Know

 Thanks for the posts. I'm dealing with what seems toBe chronic bronchial asthma episodes needingAnti-biotic treatment. This info seems to show what my symptoms are like. Hope to Catch the rest of the info in future posts on 360 social. Thanks Kaya...

20 hours ago

joney

joney

I am doing ok went in to see my pulmonary Doctor this morning she gave me a clean bill of health .What a blessing she thinks I am doing well .

21 hours ago

J. Teri

J. Teri

I am trying to accept and deal with the passing of my mother on 11/3/19 due to end stage COPD. It was very difficult to see her struggle to breath on a daily basis. I was her primary caregiver and would like to be a support to anyone in that capacity.

22 hours ago

Eric the Red

Eric the Redanswered the question Depression and Anxiety medications in someone with COPD?

Hi Katiebelle, I was dxd with COPD last March,it was a disease which I knew virtually nothing about,so I googled various website to learn more about it.What I read was so scary,its progressive and there is no cure.That basically is what my brain …

22 hours ago

Bret99

Bret99Have you heard of nontuberculous mycobacteria (NTM) lung disease?
This new blog explains what it is and why itโ€™s important for people with COPD
to know about it. https://www.copdfoundation.org/COPD360social/Community/COPD-Digest/Article/1511/NTM-Lung-Disease-What-it-is-and-What-you-Need-to-Know.aspx 

23 hours ago

Lungguy

Lungguyanswered the question Symbicort dosage

Symbicort has both an ICS and LABA. There is no risk when taking an ICS at a shorter interval than prescribed (usually once or twice a day). However, the LABA (formoterol) has a half life of about 8 hours, and peaks in less than ten minutes, so if you …

1 day ago

Tootsie810

Tootsie810answered the question Spiration Valves & Disability

Thank you both! I last tested at FEV1 of 39 (they allowed me to do breathing meds prior to PFT). My cut-off is 1.15L with SSA. The doctor says he doesn't think it would go high enough to affect my disability. Doing research, though, I have seen several …

1 day ago

Kristen Willard

Kristen Willardanswered the question Quick drop in oxygen levels.

Lennda, glad you are bringing this conversation back up again. What does your doc or healthcare team say about the drop and rebound?

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Today is the First year anniversary of my best friend Chucks Passing from pancreatic and lung cancer. I wish I would of made the time to visit him. The holidays are so hectic especially at work, regardless of the excuses I should of made the time.

1 day ago

Sassycat

Sassycatanswered the question Depression and Anxiety medications in someone with COPD?

There is active research going on right now about this. Of course, your doctor can tell you if there is a risk or not, for you. https://www.managedhealthcareconnect.com/content/do-antidepressants-increase-risk-death-among-copd-patients

1 day ago

Brandon H

Brandon H

A quick thank you to Bill Clark for all that he has done for our community and the many lives he has touched over the years.  Tonight he is being awarded the John W. Walsh Dedication to Excellence Award at the 15th Anniversary Fundraising Gala.  Truly, thanks Bill!

1 day ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Mornin y'all 
Oh where do I start.  My Brother and his wife are comin for Thanksgivin and my Anxiety is through the roof.  They are comin from Harrisburg Pa.
And drivin neither get the Flu shot and there many stops along their way.  I'm so worried bout em bringin sumpin with em that lil ole me will catch , Last year after gettin the Flu shot I ended up with the Flu 14 days later and it took me months ta recoup.  I tried ta talk em outta comin,  but nope it didn't work.  I have all my plans in place,  but the Anxiety is gettin worse . How do I get past this fear of gettin sick?
Thank ya'ens ya friend 
Lorrie 

1 day ago

  • NewestOldestClick to View All Comments8 comment(s)
  • Kandy State Captain of South Dakota I do this every Christmas I always am sick right after and think its stress getting all done for the holiday. 13 hours ago
  • Lorrie State Captain of South Mississippi Thank y'all I do feel isolated much of the time durin the Flu season , but with that bein said,  My Daughter inlaw works at a Children's clinic and she and my Son both ended up with the Flu last year,  Yep and they both live here , oh it was so stressful,  but armed with the can of Lysol and Germx , I was lucky that time.  The people around me don't understand how we see life and what gettin sick does ta us . All I know is that I never want ta go back ta the place I was in 2017 , it was a very scary place one that left a black hole in my mind , I didn't see people or the Hospital as normal,  my blood Oxygen was so low I was trippin, the only person I trusted was the hubby.  If there was only a way ta show the people in our lives what gettin sick does ta a person maybe than they would understand why I am the way I am and have become the GERMAPHOBE  that they call me. 
    Ya friend 
    Lorrie 5 hours ago
  • Kenny AGood Morning  Lorrie


    Well your not alone with this feeling , but no matter what precautions you take germs are everywhere.
    Your Family may have brought home a bug , and your upcoming visitors may have not got there flu shots but we as COPD patients have to be diligent 24/7
    I say this cause I just spent time in the hospital for a collapsed lung and got a INFECTION ๐Ÿ˜ž
    Even my pulmonologist said it was highly likely that is where it started
    So what I am saying is that germs are everywhere
    Hell a door handle , a shopping cart the list goes on and on
    We have comprised amune systems and regular folks have no idea what we go through daily.
    So please do not stress yourself about this sounds like you are taking all the precautions you need , enjoy the holidays with your family cause like you have said before you are blessed so have faith in yourself that you will be looking back a couple of months from now at family photos and say I made it through without a hiccup.
    Big Hugs from your friend Kenny
    Bella says hi ๐Ÿ•
    4 hours ago
Jade Christian

Jade Christian

Good Morning all.  Call me Jade, please.  Has anyone ever used RX Saline Inhalation solution in their nebulizer machine and if so, did it help you?  Have you every tried any of the DIY recipes for Saline Inhalation solution?  I have a dr. appt. tomorrow and was going to ask him for an RX for Saline Inhalation 3ml. vials, would like to know if these have helped anyone here??

1 day ago

Miarobi

Miarobianswered the question What can I add to humidifier water to help with sinus problem?

in my house I use a humidifier LEVOIT LV600HH I was also afraid of an allergic reaction to mold. But I carefully monitor the cleanliness of my air humidifier and before washing, I have never once noticed the birth of mold. Another reason I decided to …

1 day ago

MM4

MM4answered the question Symbicort dosage

I was told by my dr it can be taken 10 hrs after earlier dose. It was long enough time between doses to be safe. So 10:30 pm or later would be ok.

1 day ago

milton2203

milton2203answered the question Symbicort dosage

you have to consult with your doctor.

1 day ago

milton2203

milton2203answered the question Anyone help to buy Generic Cialis from an online pharmacy in the USA?

If you looking lowest price prescription cost so you have to try generic salt medication.

1 day ago

milton2203

milton2203answered the question I am looking for an affordable Online Pharmacy USA for my Spiriva.

Thanks heidiweber ... I have tried this online pharmacy for my Spiriva. it is a safe and reliable online pharmacy. I have save almost $80 on my medication.

1 day ago

milton2203

milton2203answered the question Can anyone tell me about the name of drugs Used to treat for COPD?

thanks heidiweber ... but I have tried a Canadian based online pharmacy i.e MedsEngage.com. Also, my doctor suggests to me about this.

1 day ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.