David Mannino, MD (Medical Director, COPD Foundation )

David Mannino, MD (Medical Director, COPD Foundation )answered the question Second opinion

Second opinions are always OK. Your situation is a bit atypical. Also- medications may not always improve how you feel ( particularly in early disease ).

10 hours ago

Molly Butz | COPD Foundation

Molly Butz | COPD FoundationWorld Bronchiectasis Day is next Friday, July 1! To get ready, letโ€™s see if you can solve the World Bronchiectasis Day word search. Play it here: https://thewordsearch.com/puzzle/3571843/world-bronchiectasis-day/

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‘Š CRANBERRY CHERRY PUNCH ๐Ÿ‘ŠPlace 2 or 3 cranberries and a piece of lemon in each compartment of an ice cube tray; fill with water and freeze.In a punch bowl, dissolve a 3-ounce package of cherry gelatin in 1 cup boiling water. Stir in 3 cups cold...

13 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota #LaceupforLungs for all those with these lung diseases kicking off the first ever World Bronchiectasis Day July 1, 2022. 

15 hours ago

Jimmy S. California State Captain

Jimmy S. California State Captain Good Morning and Happy Saturday everyone. Hope your spreading awareness today for World Bronchietasis Day in your support groups and friends and family.Today my goal is to share with 7 support groups and 677 individuals who follow me on Facebook in hopes of reaching a million viewers.What can you do? By raising awareness of rare diseases, we can improve early diagnosis, encourage policymakers to increase access to services and fund research into rare diseases, as well as reduce the feelings of isolation or the discrimination faced by patients.#worldbronchiectasisday, #laceupforlungs

17 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question What does this mean ?

Elizabeth, what happened to you is very common: you get a CT scan for something and it shows emphysema and everyone panics, especially you. You were lucky that your doc ordered a PFT, so you've had the definitive diagnostic tool for both asthma and COPD. …

17 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Portable nebulize wasting medication.

You don't say what med you're nebulizing and that may be the problem. Some nebulized meds require a specific nebulizer and it's possible this is one of them. If not, then I would send the malfunctioning one back and get a refund.

18 hours ago

David Mannino, MD (Medical Director, COPD Foundation )

David Mannino, MD (Medical Director, COPD Foundation )answered the question What does this mean ?

It would be useful to have the actual numbers and % available. As I mentioned last week- mild emphysema on CT scan does not always translate into significant COPD- and I thought your numbers would probably be normal or near normal- which appears to be …

1 day ago

David Mannino, MD (Medical Director, COPD Foundation )

David Mannino, MD (Medical Director, COPD Foundation )answered the question Interest findings in my spirometry results

You are reporting the difference between a "slow vital capacity" (SVC) and "forced vital capacity" (FVC). People with a degree of obstruction will often have an SVC greater than the FVC. This is related to the physics of how the lungs work ( dynamic …

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I am sure that in 100 years it will not matter, but I got an email from the foundation saying they were sorry that I could not attend the town hall.  I did attend the town hall.

1 day ago

muddleaged

muddleagedanswered the question Stigma associated with COPD

Another thought I have found to be useful: โ€œNo one can make you feel inferior without your consentโ€ This is attributed to Eleanor Roosevelt.

1 day ago

Molly Butz | COPD Foundation

Molly Butz | COPD FoundationICYMI: Next Friday, July 1 is the inaugural World Bronchiectasis Day. We have plans every day of the week. Which day are you most excited about?

1 day ago

Kristen Willard

Kristen WillardVinny says Iโ€™m behind in posting him to Fluffy Friday! He is right, as usual โ€ฆ Guess who is ready for the weekend?

1 day ago

Kristen Willard

Kristen Willardanswered the question Check inโ€”Change

Jane, This is such a beautiful post and these comments are a testimony to all the support and friendship you have brought to so many people over the years. Thank you for all you have done for this community and for the laughs and learning. I canโ€™t wait …

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Check inโ€”Change

Dee Annacone Thank you so much for the very sweet compliment. I hope you're doing well?

1 day ago

Ethan-038422

Ethan-038422asked the question: Interest findings in my spirometry results

Right after I got the PFT results from hospital, I bought a spirometer and start tracking my numbers. The numbers started with the same result as what I got from the hospital (FEV1: 3.8L, FVC: 5.73L), and keep a steady growth during the last 40 days, now …

1 day ago

Dee Annacone

Dee Annaconeanswered the question Check inโ€”Change

Hello Jane, I have been watching you since I started on the sight. I think I met you in San Antonio Tx a few years back. I've always enjoyed your tips and helping us feel good. I always wanted to meet Karen Deitemeyer too. She was always pleasant and …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainBusy day so far over here! Grocery shopping, yardwork, lunch on the grill, laundry, dishes, plus back outside to do more work in a while. Ran to Lowe's to check out their clearance plants. I found this beauty, which is in the Cordyline family. Half price! SOLD to the old lady with COPD!!! LOLOLOL! ๐Ÿ˜‰

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThis is certainly one of the Fluffiest Fridays ever!!!
Here's Luke Rossi with his best friend Cricket Smudge.

1 day ago

Dee Annacone

Dee Annaconeanswered the question What does this mean ?

Hi Elizabeth, I agree with Bill Clark about this! He has started you out in the right direction for sure. Keep it up! If you ever have a question try here or if it is a new symptom, get in touch with your Dr. I was diagnosed and was already on oxygen …

1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question What does this mean ?

I would guess it means you have asthma and if you have COPD you caught it really early...which is a good thing. Take all the precautions you possibly can like Not smoking, avoiding fumes smoke and other irritants, exercise and take whatever medications …

1 day ago

Elizabeth001

Elizabeth001asked the question: What does this mean ?

my doctor call me after having a pulmonary function test and tells me I have asthma and may have very mild copd what does that mean ? I ask so I donโ€™t have copd and she said you might have a very mild case do the the test again in 2 to 3 years

1 day ago

Ken Benson-Ca. state captain

Ken Benson-Ca. state captainScrappy Doo wishes you all a very Fluffy Friday as he patiently waits for his new family to discover him.

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainMy workmen did not come today, so I have some time to post a bonus of Mush and Happy Fluffy Friday.

1 day ago

COPD360Coach Brandon

COPD360Coach BrandonWishing everyone a Terrific Fluffy Friday!

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Today we start with the LaceupForLungs kickoff for World Bronchiectasis Day July 1, 2022.  I am putting some info on our local radio station will post that later next week. 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFluffy Friday Early Bird Bonus!! 
Nina and Shelby...

1 day ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.

COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.