Jimmy S

Jimmy S

3 hours ago

ijmorris

ijmorris

Hi Bill - Is there an area where I can post very positive results from exercise, holistic remedies and Fighting Instinct? ๐Ÿ˜„I will NOT let end stage emphysema win.  
Thanks!  

8 hours ago

loukat

loukatanswered the question Experience with Trelegy Ellipta

Hi, I have been switched over to Trelegy and must confess it's playing havoc on me. I am fatigued every 2nd day and dizzy and nauseous at times. My SOB has decreased somewhat so that I don't need the rescue inhaler as frequently as I did before since …

10 hours ago

das

dasanswered the question I have had 2 open hearts / 16 stints / Asthma/ Dieabeties /Conjestive Heart Failure/50%

Hi nothinordinary. Good for you with the exercise !! That is inspiring

11 hours ago

Jane Martin

Jane Martinanswered the question I have had 2 open hearts / 16 stints / Asthma/ Dieabeties /Conjestive Heart Failure/50%

Welcome to our community, nothinordinary! First of all, good for you on exercising regularly! And another 'good for you' for using your oxygen. When you say, "I have to put my tank on 6 0r 8 to keep my co2 at 90 and above is this harmful using higher …

13 hours ago

Tony

Tonyanswered the question I have had 2 open hearts / 16 stints / Asthma/ Dieabeties /Conjestive Heart Failure/50%

I've been on O2 24/7 for nine years and still have all my marbles. My experience is: be generous with your oxygen unless you have a diagnosed CO2 problem.

16 hours ago

MikeUK

MikeUKanswered the question I have had 2 open hearts / 16 stints / Asthma/ Dieabeties /Conjestive Heart Failure/50%

Hi there nothinordinary WELCOME I believe it is NOT the CO2 [CARBON DIOXIDE] you refer to but OXYGEN [O2] CO2 retention is the enemy of COPD as it prevents OXYGEN from being absorbed into the blood High levels of O2 can cause the body to produce excess …

16 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question I have had 2 open hearts / 16 stints / Asthma/ Dieabeties /Conjestive Heart Failure/50%

Hopefully an RT will see this and respond. I am not a doctor, just a patient like yourself. Given your complications, this is something I would discuss with my doctors. But I do give you lots of credit for exercising, hopefully you can get the answers …

16 hours ago

nothinordinary

nothinordinaryasked the question: I have had 2 open hearts / 16 stints / Asthma/ Dieabeties /Conjestive Heart Failure/50%

I exercise 2 days a week 45 min to an hour , I am now on oxygen 24/7 when on the tread mill 30 min I have to put my tank on 6 0r 8 to keep my co2 at 90 and above is this harmful using higher oxy ?

17 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question Marijuana

MikeUK, I agree vaping is the better option, my son vapes once in awhile and I'm happy its not cigarettes.

18 hours ago

Jimmy S

Jimmy SIf you have not ask your doctor to refer you to pulmonary rehabilitation so get on the phone TODAY and ask him/her to do so for you.
Pulmonary rehabilitation is a program of exercise, education, and support to help you learn to breathe and function at the highest level possible.
In order to qualify for pulmonary rehabilitation, you must be referred
by your doctor and have spirometry test results within the past year
that show you have COPD.

19 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain A new LAMA named Yupelri on its way.

http://www.rtmagazine.com/2018/11/yupelri-approved-copd/

20 hours ago

thor159

thor159

I have an elk hunt coming up the week of thanksgiving. Itโ€™s just a cow tag but it will be lots work as the elevation will typically be in between 5500-8000โ€™. 
Be my first attempt at hunting since I became O2 dependent.


I just started coughing up phlegm this AM. I hope I can get over this cold quickly.
I really need to put some fresh meat up this winter.

21 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question CO2- retention - How much is too much?

It depends on how the CO2 was measured. If it was during a standard blood panel, thatโ€™s one set of โ€œnormal rangeโ€. If you had an Arterial Blood Gas draw, itโ€™s a different set. If you want to see what the norms are, just google CO2 levels on blood panel …

23 hours ago

muddleaged

muddleagedanswered the question We know exercise is important, and medicare is cutting back, have you considered just a gym?

When it was time to choose a medicare plan, one essential on my list was that it include Silver Sneakers or Silver and Fit. The plan I picked had Silver and Fit, so the Y costs me $25 a year. I take my oxygen tank and off I go to the pool. At this point …

23 hours ago

clockdaddy

clockdaddyasked the question: CO2- retention - How much is too much?

I am totally confused about the standards used to measure CO2 blood levels. One time to the doctor and Iโ€™m told my CO2 is at 32% and too high. The โ€œstandardโ€ is 25 to 30%. Another time Iโ€™m told that my CO2 is within the normal range of 30 to 40%. I …

23 hours ago

clockdaddy

clockdaddyanswered the question We know exercise is important, and medicare is cutting back, have you considered just a gym?

I attended pulmonary rehab for about six months. The exercises and machines are the same I do at the YMCA now. Iโ€™m in a wheelchair and have my O2 tank strapped on with an extra long canula. The exercising is a great asset for me but I have to be …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Marijuana

My RZ mask is titanium, sort of a dark grey. It goes with everything I wear!!! 😄 We got an offer from the RZ Mask company saying if we wanted to buy another mask, we would get 40 percent off. Good til December 31st. I may get a spare mask. The masks …

1 day ago

Livefor

Livefor

Hello everyone..my husband is 41 and dx with emphysema , doctor didn't explain much only said it's mild and gave him Ventoline.we both stop smoking it's been a few months now...i don't know how deal with it been so scared we still young and already dealing with a chronic illness and dead ..feeling lost and searching from advice Will love to hear from you..how do you cope and live with it..for how long now. Thank you..
Good day to you all

1 day ago

Ashok PLB

Ashok PLBanswered the question Marijuana

DebbieB What's the colour of your RZ mask? 😃

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question COPD & Exercise

Hi Gina. We all do the best we can, each day, one day at a time. Some days are better than others. As long as we try our best...we can make it through!!!

1 day ago

Ashok PLB

Ashok PLBanswered the question Does CPAP help with COPD?

My pulmonologist advised me to use a Bipap machine with oxygen every night when I sleep, back in March 2018. I just said, who cares. After being hospitalized again for 35 days, I rushed to get the Bipap machine and the oxygen concentrator finally in May. …

1 day ago

das

dasanswered the question Marijuana

Hi folks. I tried vaping a little while after I quit smoking. Maybe for about 3-4 weeks. NOT a good idea for me. I won't be doing that again.

1 day ago

Ashok PLB

Ashok PLB

Even though I have stopped nebulizing, shifted to inhalers, my eyes are still troublesome. Thank God, my eye specialist is available on all evenings, Monday to Friday. Consulted with him yesterday. He said I was not responding to one of the eye drops, so has replaced it with two others. Has given a further appointment after 45 days. Hope this helps.  Just be thankful he was available. And I was strong enough to get through the dilation and testing for two and a half hours. I feel happy.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Marijuana

I try my very best not to inhale anything harmful. Unfortunately, where I live there are harmful things. The highway is behind the backyard. We are in the woods and the wetlands. I have to wear an RZ mask at times. I have to wear it when I go to certain …

1 day ago

JeanO53

JeanO53answered the question Marijuana

I agree as well. It would seem that inhaling anything that could cause additional harm to my lungs is something that I would want to avoid. Environmental air pollution is really something I can't avoid, however I do make choices to avoid those things …

1 day ago

Jimmy S

Jimmy S

1 day ago

Jimmy S

Jimmy SNever loose HOPE and Never give up.  Learn as much as you can about your illness.  You'll see a different you when you do.  Learn More, Breathe Better.

1 day ago

  • NewestOldest
  • Jane MartinNo one should be without hope, ever. It's a ladder to hold on to. It is a reason to get up in the mornings It gives us reason to smile. It lets us reach out to help others. It helps us sleep at night. Having hope gives us insight into what is most important in our lives. But most of all, hope provides us with inspiration, encouragement, and strength to face each day. 1 day ago
  • Ashok PLBSo well said dear Jimmy S. 'Learn as much as you can about your illness'. After reading the question about SAMA/SABA and LAMA/LABA over here, I researched it on the net. Found out that I have been taking an overdose of my generic Symbicort inhaler for the past two years. Makes me more prone to pneumonia attacks. That's why I have been repeatedly hospitalized these past six months. Have reduced the dose since yesterday. Am on the go. Best wishes to you all.1 day ago
Mobal

Mobalanswered the question Marijuana

I have to agree with Bill and clock, inhaling any smoke is not a good idea.

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Another 11 hour day today at CVS!

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question Marijuana

I didn't really want to get involved in this conversation, however if you have COPD, I would think any type of inhaling anything directly into your lungs isn't the best idea!

1 day ago

Janne

Janne

Hi, doing ok, hows u? 

1 day ago

Rita Newman, RRT, Arkansas State Captain

Rita Newman, RRT, Arkansas State CaptainJust another pic!

2 days ago

Rita Newman, RRT, Arkansas State Captain

Rita Newman, RRT, Arkansas State CaptainToday we had a information table setup at the hospital that was staffed by members of Baptist Health Better Breathers Club. We handed out information on COPD. They live to participate and share news about COPD.

2 days ago

Caroline

Caroline

At noon I began the marvelously exciting colonoscopy prep.  I am scheduled for 8am tomorrow.  Wish me luck.  The only found 3 polyps 5 years ago.  I am going for none this time.

2 days ago

Jimmy S

Jimmy SHappy Monday Everyone. I sure hope your all having a great day so far.Let me leave everyone with a inspirational quote of the day:
Good, better, best. Never let it rest. 'Til your good is better and your better is best.



Smile and breathe easy my friends

2 days ago

clockdaddy

clockdaddyanswered the question Marijuana

It seems to me, for whatever its worth, LOL, that smoking anything would be harmful to my emphysema, not to mention my asthma and bronchitis! I do use the CBD oil (cannabis oil) and have noticed it boosts my drive to get up and be more active and that …

2 days ago

clockdaddy

clockdaddyanswered the question Does CPAP help with COPD?

I fought the use of the CPAP for the first 5 years and finally gave in to the doctor's orders and started using it quite regularly. I found it helped me feel more rested and have more energy during daytime activities. Now, I'm stage 4 with 3 liters O2 …

2 days ago

Kristen Willard

Kristen Willardcommented onCOPD and Veterans: What is the Connection?

 Thank you for sharing this, Bill -- and thanks to John for his advocacy. Happy Veterans Day and thanks so all who serve!...

2 days ago

Kristen Willard

Kristen WillardWe celebrated a birthday this weekend and Gimlet was happy to be in on the fun. Seemed an appropriate pic to start off our week. Happy Monday! 

2 days ago

Bill Clark - Community Manager

Bill Clark - Community Manageradded a new article COPD and Veterans: What is the Connection?

The COPD Foundation would like to celebrate and honor veterans for their service and sacrifices! Veterans are an integral part of our community and 360social network. Did you know that veterans also have a higher risk of being diagnosed with COPD?

Deployed soldiers are often exposed to dust, chemicals, fumes, and sand for long periods of time. Soldiers are also commonly breathing in air pollution and smoke from burn pits used for waste disposal. On top of these hazards, there is a higher prevalence of tobacco use in the military.

Chronic and daily exposure to these conditions can lead to airway irritation,...

2 days ago

OldHippie

OldHippie

Greetings All,
I use 2 liters at home but I also like to walk so I put 2 tanks in a backpack and use a pulse setting of three. I do 15-20 miles a week and can keep the sats around 95 if I don't go too fast.

 I'm having a real problem with the cannula always getting kinked at the portable regulator and I can't tell until my sats start down pretty bad.
Do and companies make cannulas that resist kinking ?
Thanks   

2 days ago

PatriciaSD

PatriciaSD

Thanks Caroline Bill and Jean. Thanks for taking the time to write good stuff. It means a lot. Dare I say I love a smoke?  A smoke when looking at the garden... the sky... sitting on back stoop.. But, then again.... I need to face it, and I'm not quite there yet, but, I'm getting there.

3 days ago

Ken Benson

Ken Bensonhttps://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Newly-Diagnosed.aspx

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Hello. Thanksgiving is fast approaching, and I would like to share a memory. ( Don't worry. It's not home movies!! ) When I was married to my ex husband , on Thanksgiving I made a big feast. I fed him, my Dad and others who were less fortunate than I. My ex was a maintenance worker for a real estate company. 6 men, who lived in his buildings, lived alone. I knew that none of the man had families. I bought gigantic foul turkey roasting pans. I put a portion of each food I made in each pan, including rolls and butter. I gave them pie and small cups of whipped cream. Gave them each a soda and a bottle of water. Put a sticker on top of each care package saying Happy Thanksgiving! Made with Love. I was thankful each year that they enjoyed their food!!! Years later, my ex left me for another woman...after 26 years. I felt very heartbroken that I couldn't feed them anymore. ๐Ÿ˜ข I wish all of you a bountiful Thanksgiving. I hope that if you are alone, that you can call a friend or loved one! Have a really nice night! ~~Debbie the Turkey Stuffer~~

3 days ago

TJG

TJG

Have humidifier on my concentrator with water trap but still get water in line. Will try tonight to keep it off floor.   
Can the water in the tubing become contaminated and cause other problems. 
TJG

3 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.