COPD360social

For a decade, the COPD Foundation has provided a growing COPD community with resources and education. Now we want to take our work to the next level. We want to hear from YOU daily.

Welcome to our interactive, collaborative community: COPD360social. You can join us and other friends, learn about events in your area, participate in research, chat with the experts, and learn how to take action -- all on your time, at your pace. COPD360social is the COPD Foundation's way of saying 'Thank you' to a community that can make the world take notice of a silent epidemic.

Join COPD360social, because we are stronger when we work together.

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SusanBelle

SusanBellereceived the badge Getting started

Earned the Getting started badge!
ecuprziamdaveCABand 28583 others also received the badge ecuprzand 28585 others also received the badge

38 minutes ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question What motivates you to exercise each day?

I guess the reason I go never miss rehab less a good reason out of town dr appt/ I go because its for my own good knowing its helping my lung disease and keeping it stable. Well if its terribly cold and snow I will decide if I stay home and the RN at …
Bill66clipper (Debbie) - NJ State Captain Made Pramanaand 5 others also answered the question Bill66and 7 others also answered the question

2 hours ago

Johnvol

Johnvol

I was able to have dinner with my daughter and two grand daughters last night at Green Hills Mall here in Nashville.No way I could have done that one month ago. I'm just a few days away from going two months without smoking. However, I am deeply disappointed by my lack of exercise. It is really hard for me to exercise when I'm so short of breath. Any suggestions?  

3 hours ago

Jeffrey

Jeffreyanswered the question can copd convert in to Pneumonia?

Sabya: I assume that, since you're posting your question on a COPD-related forum, you are a COPDer. Your question is very a good one and it's very important. Since your have COPD, your lungs are severely compromised. Pneumonia could be life-threatening …
HIcopd - Hawaii State Captainclipper (Debbie) - NJ State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

5 hours ago

Ben A

Ben A

TWO OFF-TOPIC UPDATES:

Three months ago, I injured my wrist with a home blood pressure cuff.  After numerous visits to my GP and two visits with an Occupational Therapist, I'm still as sore as the night the injury happened.  I guess I just have to adjust to life as a one-handed enterprise.

My GP has also been concerned about my blood pressure itself and has sequentially put me on two different meds (Lisinopril and Amlodipine).  Even at the lowest possible dosage, both have resulted in dangerously low BP/high heart rates and I almost called 911 earlier this week when it dropped to 80/50 and I found it impossible to remain conscious.

Trying to stay healthy is killing me.....

8 hours ago

Yappy

Yappy

When you a person has had non reversible breathing obstruction for at least 17 years and declining spirometry for the last 3 years even though being treated does that mean it's going to continue to decline or can it stop.

9 hours ago

Clarice

Clariceanswered the question ARE YOU ENJOYING THE HOLIDAY SEASON?

Have a Holly, Jolly, Christmas and a Happy, Healthy New Year.
edpe77Louanne  State Captain also answered the question edpe77and 1 other also answered the question

9 hours ago

Yappy

Yappy

Well hello out there to everyone. I'm new to the club and just learning about what I've got. My doctor said it's asthma copd overlap. I've been using daily ICS for 17 years but he said for the last 3 years my spirometry results have been going down. My lungs have been hyperinflated for at least 5 years. But I don't feel to bad. I guess I'm trying to get used to the idea

9 hours ago

Jimmy S

Jimmy S

Good Morning
I hate to report that i am very sick the last two days. I believe i have pneumonia.  I have started a Z-pac and am pushing a ton of fluids back into my dehydrated body.  So I apologize if i am not to social this week.  Hope and pray everyone is breathing well and enjoying the moment. 

11 hours ago

AlinPerry

AlinPerryanswered the question REQUIRED READING FOR CAREGIVERS, FAMILY, AND FRIENDS OF LUNG DISEASE PATIENTS.

So true... I've had this for 20yrs now..Friends and family always say You'll be fine..And we hope every day they are right but I know some day I won't..But for now I see a pulmonary doctor every 4 months ..where oxygen at night and take what medication …
GingerWheelerDonnaA (SSP)Ms DVand 11 others also answered the question GingerWheelerand 13 others also answered the question

12 hours ago

Shane Grimes

Shane Grimes

Last week I lost a very good friend of mine he had COPD his saturation level was down to 30% he was 61 we are still now sure if he died was COPD but I believe it was.

15 hours ago

Shane Grimes

Shane Grimes

I am feeling a lot better today within myself, I am still getting sort of breath and coughing up brown phlegm, but I feel that I am getting better, I believe that I am so lucky and blessed to be given the opportunity, to have the Endobronchial Valve Treatment, they want me to have some extra tests which will assist people in the future with the Endobronchial Valve Treatment.


I know that this is not a cure and that it will give me extra years of life, but anything is better than what I had to go through, I just hope that everyone else has the same opportunity that I have been given, also my stress level and depression is so much better now, I feel that I can now live a better life.

15 hours ago

Caroline

Caroline

This is a great read in the Lancet.  A study done internationally on benefits of exercise across all economic groups.

23 hours ago

Bill66

Bill66answered the question Hard to be Prepared for cold season

Healthcare providers do not write scripts any longer as a preventive measure! Using antibiotics can have a major negative effect if you take them and don't need them, it's one of the main reasons providers won't prescribe them as a preventive, your body …
Kandy State Captain of South Dakota judg69VicEck-State Captain also answered the question Kandy State Captain of South Dakota and 2 others also answered the question

1 day ago

Bill66

Bill66

Lots of hours at CVS this week, finally a day off tomorrowโ˜บ

1 day ago

Caroline

Carolineasked the question: What is the difference between Dyspnea-and-Hypoxia?

I have found a great article that explains the difference between dyspnea and hypoxia, or the difference between being short of breath(SOB) and having low oxygen level in the blood. We need to "keep on keepin on" if it is mere SOB and try to work trough …

1 day ago

SteveW

SteveW

Hi, I have a question for the group. I am interested in starting a regular, weekly COPD/Lung friendly walking group at
my local mall. If anyone out there is doing this activity, I would appreciate any advice. For example, the mall website
says they welcome walkers and open at 7 am. Should I contact the mall to tell them what I am doing or just go for it. in other words, is it better to get forgiveness or permission? I intend to give this a try so I'd love advice or suggestions of any kind.
aloha
Steve

1 day ago

Ken Benson

Ken Bensonanswered the question Too Many Doctors

You need to take charge of your own healthcare by developing your own COPD action plan and then sharing it with your providers. The role of the healthcare provider has changed because the system is overwhelmed with demand and losing professionals to take …
2centsJastroJean IA State Captainand 3 others also answered the question 2centsand 5 others also answered the question

1 day ago

Allen1

Allen1asked the question: Hard to be Prepared for cold season

more of a comment - why is it so difficult to acquire antibiotics/prednisone ahead of time so that if I feel a cold/sickness coming I can start treatment asap to prevent exacerbation/hospitalization?? Its extremely hard for me to just get up and/or wait …

1 day ago

Grandma14

Grandma14answered the question What can 10 minutes do for my health?

Where do I find this 7 minute workout?
Sokcap48CharlesHclipper (Debbie) - NJ State Captain also answered the question Sokcap48and 2 others also answered the question

1 day ago

shawng1101

shawng1101

Ugh is this where I post a question? I cannot find it or topics

1 day ago

shawng1101

shawng1101

I have no idea how to ask a question. I'm using symbicort and spirits I don't know which order to use or if time should elapse. Simple answers please.. I also have nebulizer and Ventolin if anyone knows if I should use them too. Think Dr said no
 

1 day ago

Allen1

Allen1answered the question BiPAP in COPD

Hi. I have severe copd emphysema as well as sleep apnea. We go through Performance Home Medical for my bipap and oxygen. I have a Phillips Respironics Dream Station and I like it a lot. You should research a lot on this though..especially if u are …

1 day ago

shawng1101

shawng1101

i am confused on the order t take meds. i use spiriva and symbicort for copd. i also have a nebulizer that i was using for sudden attack but am tapering it off... i also have ventolin that i use sparingly

2 days ago

Ms DV

Ms DVanswered the question Stuffy nose - what helps? My Afrin stopped working

I like Flonase.
JastroStephanie Williams, RRTLouanne  State Captain and 1 other also answered the question Jastroand 3 others also answered the question

2 days ago

SteveW

SteveW

This has been a great week! I gave a talk to the lung club about breathing exercises and breathing retraining followed by singing carols and a gift exchange. Wednesday I got to join in on  COPD webinar and today I have joined the COPD Foundation. I'm excited about the future!

2 days ago

Jimmy S

Jimmy S

I just requested a meeting with Senator Richard Pan-dem for California.  I want to discuss inhaler prices and i want to run my idea of Respiratory Parking Spots for doctor offices and hospitals.  Hopefully his calendar will allow me the visit to the state capital.

2 days ago

philhj

philhj

I have had an asthma diagnosis for about 20 years.  I had a couple of asthma episodes requiring steroids for a few weeks back then with 50% peak flows.  I stopped doing a driving all day job after that and ever since then I have had long periods without much trouble, just occasional periods of using inhalers to deal with sensitisation and twitchy lungs, but in recent years I realise that I have been easing off some aerobic activities because of a sense of limited oxygen and tightness in the chest, a sense of compression in the lungs and lots of mucus and discomfort even though I can blow a normal flowrate.  Reliever inhaler helps move mucus and reduce the sense of compression, as does gentle physical activity which seems to help clear the lungs and steady activity like digging in the garden or walking up the hill behind the house is usually no trouble.  I started looking at your COPD info as this pattern seems to fit some of the COPD descriptions more than asthma.  Any thoughts?

2 days ago

Johnvol

Johnvol

Uncle, I suspect I am going to be self conscious. It has only been the last year that my family found out about the severity of my COPD. I have this bad habit of thinking others are wondering how I could be so stupid to smoke for over fifty years.  

2 days ago

Uncle Jim

Uncle Jimasked the question: ARE YOU ENJOYING THE HOLIDAY SEASON?

MAKING IT THROUGH THE HOLIDAYS Are you looking forward to getting together with family and friends, perhaps for the only time during the year? Or, are you apprehensive about trying to keep up with everyone else, given your chronic disease? (Such as …

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.