Shamps (Sharon)

Shamps (Sharon)

Good Evening Gang,


Feeling very frustrated!!!  Am a medical marijuana patient and am not getting much relief from using the lozenges for all of the issues I am hoping it would help!!


I know a lot of former cigarette smokers, especially those with lung issues, have been vaping as a way to replace conventional cigarettes!!!  My question is, is it safe to vape medical marijuana with asthma that is very well under control (thanks to my chiropractor, only three asthma attacks in the past three years) and mild chronic bronchitis?


PS the pain in my windpipe sometimes feels like costochondritis and the only way to help with the pain is 3 advil every 12 hours!!

1 hour ago

Sharo

Sharo

SOB, finally went to sleep this morning 4:00 am, Predisone keeps me awake.Would I be better off to get off Predisone and and start using my Symbicort. ?  I tried to call my Doctor, had to leave to go to Dermatologist, had four moles Biopsied. so will try him tomorrow. Didn't get to exercise today, going to go do the treadmill. I have to talk to myself and count my Blessings.  Welcome Walr. Great group of people in here.

2 hours ago

Dratsab

Dratsabasked the question: Should peak flow meter result correlate well to FEV1 result?

The action of exhaling hard into a hand held peak flow meter seems identical to the action of exhaling when measuring FEV1.

3 hours ago

WolfTigerPoet

WolfTigerPoet

Hello Everyone,
How is everyone today?  I hope all is well with everyone.  I am still struggling with being on  o2    24/7.   I have stopped smoking.  I am on day 20 of being smoke free.  I don't have insurance right now, so that has been a major stressor for me.  Have a wonderful day everyone.
WolfTigerPoet

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Chest tightness and painful breathing when laying down

Hi Ed. Could it be that when we are active our oxygen flow is better? Maybe when we are laying down, everything slows down because we are not moving or doing anything.

4 hours ago

edpe77

edpe77answered the question Chest tightness and painful breathing when laying down

While I don't experience any chest pain when I go to bed, SOB is always present. Prior to going to bed, I use the toilet, check O2, 94%. Walk the 15 steps to bed, lay down, now O2 is 88 - 90%. It takes a couple minutes of PLB to get my O2 up and …

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Chest tightness and painful breathing when laying down

Thanks Mike. You are always very helpful! 😴😴😴

4 hours ago

MikeUK

MikeUKanswered the question Chest tightness and painful breathing when laying down

Hi gang my wife has used a >> >>>>> Bed Back Rest <<<< for the past two years which really help This bed back rest is a simple support, a pillow raiser, to allow the user to sit up comfortably in bed. The angle is …

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Chest tightness and painful breathing when laying down

When I lay down it almost feels like my airway "folds up". Very uncomfortable. I prop my self up on many pillows at night. Good maintenance medications help me get through the night so I am not waking up feeling extremely short of breath. It is very …

8 hours ago

Snooze

Snoozeanswered the question Chest tightness and painful breathing when laying down

I should add - I've been to two pulmonologists for this particular issue, and both said it did not sound like a symptom of anything. I find that impossible because I've been diagnosed with both early onset emphysema and COPD. And I KNOW this has to do …

9 hours ago

Snooze

Snoozeasked the question: Chest tightness and painful breathing when laying down

Hello. I'm super new to this group and I'm wondering if anyone shares my experience or has any insight. About a year and a half ago, I started to feel tightness across my upper back and deep inside my chest when I would wake up in the morning. It has …

9 hours ago

muddleaged

muddleagedanswered the question Insomnia related to steroid use

I mentioned this to a friend when I was having the same issue. It was suggested that sleeping straight through the night is a new thing for humans. Here's an article that may be of interest: "Did we used to have two sleeps rather than one should we …

15 hours ago

Sharo

Sharo

I was on earlier today, have been coughing some, finished my last Doxycycline, taking 10 mg predisone each morning exercised on treadmill at 1.2 for 15 min. was sob after, did PLB recovered pretty fast, but later had to use Albuterol/Nebulizer. I have used it 3 times today, the humidity is 93, raining some, Red Tide lurking around again. I didn't go out today at all. Used my Oxygen after I did my oximeter and I was 92/93. now after not using oxygen for several hours , its 93. Should I ask my Doctor to raise my Predisone , I have been takin it at 6 in the evening, maybe I need to take in  first thing in morning and  10mg again jin the evening? I hope I can get my Dr. , he is up North. Trying to hang in. This is my 4th day of exercising. Every thing on me sorta  hurts, loll.  

20 hours ago

Samo

Samo

Has anyone had a lung transplant?

1 day ago

Samo

Samo

Emotionally I'm a mess. The Dr. told me I would be a good candidate for a lung transplant. I said I wanted to do it but I'm having second thoughts. I don't know much about it. I have been reading some about it and I'm scared and don't know what to do.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello everyone! My 6th wedding anniversary is coming up on Wednesday. We got married on 12/12/12 at 2 pm by a lovely 83 year old justice of the peace named Marilyn. My hubby had never been married at the age of 52, and he was scared out of his wits!!!! 

1 day ago

2cents

2centsanswered the question Insomnia related to steroid use

I have tried many concoctions thru the years. My problem was always in the way of staying asleep, never had much problem falling asleep. Melatonin works to get you to sleep. Tart cherry juice works because it has its own melatonin. I'm sure you've tried …

1 day ago

Kristen Willard

Kristen Willardasked the question: Insomnia related to steroid use

Any tips for taking on insomnia related to steroid use? Thanks!

1 day ago

Evie

Evieasked the question: Cellcept side effects

Hi all, anyone else on Cellcept having a side effect of being extra tired?

1 day ago

Sharo

Sharo

Hello, everyone , welcome Kathleen, a great group of people here. I am new here, however I am learning a lot of helpful things  from the people in here. Do anyone in here take prednisone? My Doctor told me too take it 2/5mg of morning. Does it make any of you depressed? I will be off of it soon. I will call my Dr. up North Mon.  Bill take care of yourself, I cannot take a Flu shot, I wear a mask and stay away from crowds. We all need you here. 

1 day ago

  • NewestOldestClick to View All Comments4 comment(s)
  • SharoMike UK ,  and wife,  Thank You so much. congrats on your 10 years. Kindly Sharon 1 day ago
  • CarolineActually prednisone has a wide ranging set of problems for me.  I have only done the dose pack, so not a long term thing, but I go through not being able to sleep and not wanting to eat to wanting to eat everything in site.  I go from unlimited energy to wanting to sleep all the time.  The problems are not with me long term, so I would not worry too much about it.1 day ago
  • MikeUK thanks Sharon >>> they say the FIRST 10 years are the hardest 😜>>> keep smiling and positive is our motto >>> UK Mike😎21 hours ago
Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Well I'm on another ten days straight at CVS, "tis the season", cold, flu and sinus season I mean as well as the holidays added on top of that. I read despite the deadly flu season of 2017 about  40% of adults do not get the flu shot? Hope everyone is doing well? 

1 day ago

MikeUK

MikeUKcommented onHope and Inspiration Through Goal Setting

 Thanks Jane excellent advice >>>> in the UK when anyone reaches 100 years old we can apply for a TELEGRAM from the King or Queen of England >>> SOOOOO >>> that is the MAIN GOAL for both myself and my wife >>> then it is onwards and upwards once we...

1 day ago

Sharo

Sharo

Hello to everyone,  So happy to have friends, who know what we go thru. 
and did my exercises today, had written down suggestions that Caroline, Thor, Jean, Bill and others. Thank you. I have been a little sob, went out to dinner and I had Seafood Bisque, and a few Shrimp, not fried,  and I feel like that may be why I feel SOB.  Shamps I would be honored to be your friend.







2 days ago

Shamps (Sharon)

Shamps (Sharon)

Hey Gang,


Feeling soreness and pain in my windpipe area  similar to when I infected it when I was 14 and had acute bronchitis and the flu at the same time...doc said it was from all of the coughing!! That was almost 40 years ago (yikes!! lol) and he put me on Darvocet!!  I hate the thought of taking narcotics for the pain but not even extra strength Tylenol is not helping!!


Does anyone have any suggestions??

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question PFT Test for COPD

A true PFT will use a little plastic box that feels and looks like the bubble that a helicopter pilot sits in; some people liken it to a phone booth, but it is a little plastic area that you sit in to do the testing. A Respiratory Therapist usually does …

2 days ago

Sharo

Sharo

TODAY, I am so positive, having met some wonderful people in here. and being able to know what some symbols mean, I'm learning. Thank You all.

2 days ago

Steve-o

Steve-o

Just joined this group and am hopeful it will provide some help and encouragement.  I was diagnosed with "Asthma or COPD and the beginning stages of emphysema" about 7 years ago.  Gave up smoking after my 3rd acute exacerbation.  I had no idea what was causing this at the time, but ended up in the hospital twice with very low oxygen.  I've been smoke free for over 4 years and have gained 30 lbs since quitting.   Still work a desk job and travel a lot.  Breathing is frequently difficult, but am on daily meds and have inhalers now (no oxygen).  Former soldier (Army).  I'm about to turn 60 and have little energy.  Talk to me.  

2 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Jean IA State Captain
    One of the ways to avoid the low energy is to develop a daily exercise program.  Caroline is right, and if your doc hasn't told you that, she should have.  See your doc and find out if you have any limitations to exercise.  Once you're cleared and know any limitations to watch out for, you can get started.  Pulmonary Rehab is a good way to start, but you can also do your own with very little trouble.  Many of us join a gym and work out with the rest of the world.  You need to shoot for at least 30 minutes of non-stop aerobic exercise and weights three times a week with the usual stretching.


    Most of us can't do 30 minutes of anything without stopping to catch our breath when we start, so the key is to slow way down (as slow as you can go) and see how long you can go without having to stop to catch your breath.  If it's 10 minutes, stop, rest, catch your breath and then get up and do 10 minutes again.  Do it until you've got 30 minutes of moving in.  Then, slowly and as it feels possible, add a couple of minutes.  Continue to add minutes until you can do 30 minutes without stopping.  After that you can add speed, distance or time.  Weights are a little easier.  You need to work your upper, lower and core muscle groups and you can do it with weights, with water bottles, with machines, with swiss balls, with bands......you can find all sort of ways to work all those muscles.  It's easier in a gym because you've got all the equipment at your fingertips. 


    I travel, too, and I try to do at least half an hour of something.  I've worked out in more hotel gyms than most people, with O2 and no one even looks at me funny.  So you can do this.  I can pretty well guarantee that you will feel a lot better, have way more energy and will find that some of the things that are hard now, aren't nearly as hard going forward. 2 days ago
  • Steve-oYou folks are all just wonderful.  Thank you so much for the tips, and especially for genuinely caring.  Seems like I've got some PT in my future.  I know that won't be easy for me, but I'll commit to the community here that I will give it a go. 2 days ago
  • MikeUKHi Steve-o >>> You stated >>>> "Former soldier (Army). I'm about to turn 60 and have little energy. Talk to me." >>> can you say if it was an army doctor that ORIGINALLY diagnosed your COPD 7 years ago??? >>> the reason I ask is it could be connected to your army service that started the problem such as inhaling contaminated air somewhere whilst on duty OK? >>>> I am always curious of the causes of COPD as we live in a very contaminated world that is slowly being destroyed by Greenhouse gases >>>> please let us know more about this as you need us to talk to you,,,,, and we need more info for us to learn together OK? >>> Best wishes >>> keeping fit is good but we cannot all stay young🏋🏊🏃>>> UK Mike😎 22 hours ago
Jimmy S

Jimmy SHope everyone is having a breathe easy start to their day.  Have a nice day everyone.

2 days ago

DanK

DanK answered the question Anyone using Trelegy and have a side effect related to hearing?

i’ve been using Trelegy for about nine months now and haven’t had any side effects like you describe.

2 days ago

thor159

thor159

I think my pulmonary hypertension is causing soreness in my sternum. It’s difficult to get my breath in the early morning starting around 0400. The pain seems to linger most of the day.

2 days ago

Bmaw

Bmaw

Doing pretty good today. Just joined so want to say hello to everyone.

2 days ago

DaveVincent

DaveVincent

Better than last week.  I need to find the energy to exercise more......it is a chicken and egg situation

2 days ago

Sharo

Sharo

Jean , I meant to tell you that their is a Planet fitness here in Venice, I will go to it when the Red Tide leaves, which will probably not be until January, In the meantime I am going to follow your guidelines and exercise, weights, aerobics' I haven't done in years. But you can believe I will do them. Again Thank You. 

3 days ago

  • NewestOldest
  • clipper (Debbie) - NJ State Captain Sharo, I googled and found several Pulmonary Rehab programs in your area. I suggest you get connected with a pulmonologist in your area and talk to them about doing pulmonary rehab. Not only will you learn to exercise but you will also learn about COPD. Learning about the disease will help take some of the fear out of it. 

    I am 65, I have emphysema, very severe obstruction with moderate diffusion. Using the old standard I am early stage 4 because my FEV1 is 28%.  I am not on supplemental O2, I live alone, I still work and I am heading to the gym in a few minutes. Once there I will do 30 mins on the stationary bike (7 miles) then I will lift weights for over an hour. I started exercising in pulmonary rehab where I learned how to exercise safely. Then in time,  I went on from there. 

    Check these out:

    https://www.veniceregional.com/pulmonary-rehabilitation-services

    https://www.smh.com/Home/Services/Rehabilitation-Services/Cardiopulmonary-Rehabilitation
    2 days ago
  • SharoDebbie, I have tried to get in Pulmonary Re-Hab, the place said I had to do that one test, my Dr. up North sent a letter to them and a prescription and they said they didn't have the thing to do the test .The PRH is 25 miles from my home , which I have no problem with that. I don't have a Pulmonologist here, I do up North, My cousin had one here, she died Nov. 24, she went back  up North and passed. The Doctors here shuffled her from one to another , diagnosing her with about 4 different things, when she moved here 3 yrs. Ago she only had COPD. They never sent her to a PRH, just kept on giving her another Dr. to go to about other issues. I hope I don't offend anyone but here in Fl., a Doctor on every corner. Most call it  '' God's Waiting Room."  Their is one Hospital, in the  small town I live in, they are very kind, efficient. No PRH. I have been doing my own re-hab, using the suggestions of several people I just met on . I have a Treadmill, going to buy a stationary Bike this afternoon, add to my weights. Thank you for the Web sites,I hope I haven't offended you, I have been very active all my life, I went to Planet Fitness for years up North.  Am I not suppose to ask questions about COPD in here ??? What is your number on your oximeter??? since you don't us Oxygen.?? Thank you for your advice. Kindly, Sharon    1 day ago
Shaneo

Shaneo

My test results came back good no COPD I'm still having problems with when I'm out of breath doing nothing it causes incontence  both urine and feces today I was at the dollar store and i was out of breath in line and urinated.


Since I posted last I had a US and CT the doctors can not figure it out please help me with any answers comments or suggestions. 


It's like pressure feeling moreless.


Help please.


Thanks 


Shane. 

3 days ago

Sharo

Sharo

Mike , reading about this CO2 retention. I have the machine that changes the air into Oxygen, concentrator, I don't use it only at night and not every night. Now I am scared to death to use it. I am 900 miles away from my home up North, where My unit came from. I also have small cannisters with oxygen  that they filled in them. To get this ABG test where do  I go ? I don't have a Doctor here in Florida, I do the PLB thru out the day, I am going t o turn this machine off. I am scared to death. I could buy that Inogen at home concentrator but am I buying the same thing I have? does it produce the CO2 retention ??? Please help me understand this oxygen thing. I was told to keep it on 2, Kindly, Sharon Wilder

3 days ago

  • NewestOldestClick to View All Comments7 comment(s)
  • Jean IA State Captain
    Clip is absolutely right about the O2, and about finding a pulmonologist in FL.  You need someone you can get in touch with if something should happen.  It's one thing for my pulmo to treat me when I'm on a trip somewhere, because I can go see him the next week when I'm in town; being somewhere for an extended period of time really requires someone with boots on the ground.  As for the CO2 retention thing, if you were a retainer, you would know because your doc would already have diagnosed that and talked with you about it.  Most of us have CO2 levels that are slightly higher than normal because of our COPD, but we are not CO2 retainers by definition.


    Almost all of us, if we're sick enough to be hospitalized, with show up with high CO2 levels.  Sometimes PLB works to bring it down; sometimes they use a bi-pap or trilogy machine to bring it down and sometimes we get intubated.  All those things usually bring the CO2 levels back to close to normal, so they put us back on room air or just on O2.  If we maintain steady CO2 levels from that point, we're good.  If we can't maintain steady CO2 levels, they might prescribe a bi-pap or a trilogy machine for home use and that usually works to keep our CO2 levels down close to normal.


    That's why I say you would know.  CO2 levels that are too high will send you to the hospital and if you've not had the experience I described above, you aren't a CO2 retainer.  You could become one at some point, as could we all, but relatively few actually do.  Using your O2 will not create a CO2 problem.

    2 days ago
  • Jean IA State CaptainDo understand, though, that you have to know HOW to use your O2 and your oximeter is your best friend for this. If you don't have one, get one. You can get cheap ones from Walmart or Walgreen; I like a more expensive medically calibrated one available through Amazon called a Nonin Goto Achieve. Use it, especially when you're feeling sob. If your O2 sats are good, DO NOT turn your O2 up, it won't do you any good and it could do you harm. Instead, slow way down or stop what you're doing and do your PLB.  That will help you get rid of the CO2 you have built up and give you more room for O2.  If your O2 sats are plummeting, then, definitely you're safe to turn the O2 up.  Just remember to turn it down when you're done doing the thing that required a lot of exertion.2 days ago
  • MikeUK<br><br>Thank you Jean and Debbie for this fuller<br>explanation, I am very grateful and agree with every word of your advice to<br>both myself and Sharo >>>> A BIG BIIIG BIIIIIIG thank you to you<br>both >>> we can only give advice from our experiences and hope to pass<br>on this knowledge to others, including pulmos and doctors, who may not be<br>aware of the full implications of this difficult issue that affects the later<br>stage4 COPD sufferers >>> AGAIN I must state PLEASE DO NOT PANIC<br>>>> it takes many many months for the problem to develop and become a<br>serious one >>> so prevention by regular ABG testing is my advice<br>>>> like the saying goes >> FORWARNED is FORARMED<br>!!!>>>> Best wishes to all >>> UK Mike<br>2 days ago
Sharo

Sharo

great now that I finally got in this site. I want to read the rest of your '' read more ''. then I need to ask you something. congratulations  on your retiring again. I have COPD, I need to exercise, I am in Florida where I come to get away from the cold North. I can't find a Pulmonary Re-Hab here , We didn't have one up North , I have a treadmill, and some 2lb weights, and I can get whatever I need to use if I just know what to do. I is their any site I can go to that would have a list of the exercises? Would you be my friend ? I am so glad to have found this site, I am scared to death. I was diagnosed with it , three years ago. quit smoking, now for over 4 years. I have an oximeter you put your finger in, at my Dr's my number is 93/94. here in Florida it is sometimes 95/96. I have Oxygen that I use at night sometimes. I don't know any of the terms they talk about in here, I have had several exacerbation's in the last two years. I know if I can know what I need to do as far as exercise and diet it would help me. Right now in Florida our Town has Red Tide so I stay in a lot, as it is dangerous If you have  Asthma, or COPD. When I go out. I also had a Lung , the lower left collapse, had no idea when it happened, had a Cat Scan 2 years ago April and it showed on it. As I look back I had felt  sick, no energy, and I thought I was Lazy, so did my Husband, we own a Business up North, and he would comment that I must be Lazy because I had always worked so hard. 31 years old is our Business, sold Real-Estate for 32 years, 15 years in Assessors office. I am sorry to have rambled on. Thank you for allowing me to write this. Kindly, Sharon Wilder

3 days ago

  • NewestOldest
  • Jean IA State Captain
    You can easily start your own exercise program at home.  You want to be doing at least 30 minutes of aerobic exercise every day and weights three times a week.  You can do it at home or you can go to a gym and exercise with the rest of the world.


    First you need to talk with your doc and make sure that there's no reason why you shouldn't exercise.  Once you know what your limitations are, then you can put together a program.  Start with the walking.  Start, either on your TM or just walking outside and going very slowly, with your oximeter handy, see how long you can walk without stopping to catch your breath.  Most of us can't do 30 minutes when we start, so we walk for as long as we can before we stop.  Note the time and rest.  Then do that same amount of time again and again until you've walked for 30 minutes total.  Slowly, over the next four or five days, do the same thing.  Once it gets a little easier add another minute or two and then use that as your base.  Every four or five days add a little more time until you are walking for 30 minutes non-stop.  Make sure your O2 sats stay up, because if they don't, you need to go and have the six minute walk test and get supplementary O2 to help you continue. 


    You should also be doing weights for upper, lower and core muscle groups.  You can find more exercises than you could do with 2 lb weights in years if you check out the internet.  Start with the 2 pounders and work up to 5 and then 8 and then 10.  You want to build some muscle.  The advantage of joining a gym is that you can have a trainer show you how to use the equipment, especially the weight machines and show you how to use free weights.3 days ago
  • Karen Deitemeyer - Florida State Captain
    Hi Sharo - I also live in Florida, but inland a few miles, so have not been affected by the Red Tide this year. You may be able to find a pulmonary rehab center by going to this link: 

    https://www.aacvpr.org/

    Then click on resources, then for patients, then for pulmonary rehab.  When I searched by state of Florida and "ALL" programs, several were listed, but I don't know if any are near you? Just curious - are you on the Gulf side or the Atlantic side of Florida?1 day ago
Caroline

Carolineanswered the question Alp

Nothing that is available as of now will stop the progression, but if you quit smoking and watch your diet and get the proper exercise routing going you can expect to be around for a long time. Your life can still be good and fulfilling.

3 days ago

Sharo

Sharo

Bill , how do I know when someone answer's me if I ask something ?

3 days ago

Sharo

Sharo

I am so happy to finally get to talk to someone in here, you have no idea what its like to be 900 miles away from your home, Doctors, friends, I am scared to death, 
I am afraid to log out because I may not be able to get back in. 

3 days ago

thor159

thor159You can see the little mountain cur dog up at the top of the trail. 

3 days ago

Sharo

Sharo

does anyone have a list of the exercises we need to do ? I am in my winter home , 900 miles away from my Northern home trying to get into a pulmonary 
re-hab here, the closes one is 25 miles, I have never been to one and was told  and read on here to go, 
they need two things , test, and my Dr. up North will send it to them but for some reason they can't do the test I need. 

3 days ago

  • NewestOldestClick to View All Comments6 comment(s)
  • Sharowhat do you think.? 2 days ago
  • Caroline
    I believe that you have a good plan with your treadmill.  You may not want to raise it to 1.5 until you can do 30 minutes on the lowest setting.  The treadmill is to build stamina and endurance.  You can help that along by doing some strength training.


    You need to do what you can and as you have indicated try to up it a little each day.2 days ago
  • SharoCaroline, you said you travel, If you are in the Florida area , in the next few months, Jan., Feb, March,  & April. let me know, my home is COPD proof. loll. I have air cleaner machines, plus furnace takes care of the mildew, mold and germs . Oxygen, and the Gulf Beaches are all around me, I can walk to one. By January the Red Tide should be gone. It was in the Air today. I bought this house in 2011, and this is the worst and longest it has stayed around. Tomorrow I am going to leave it on 1.2, today I raised it and after 12 minutes I was SOB. I'm learning and again thank all of you. 2 days ago
Sharo

Sharo

I am better just finally got to get in here. I couldn't get the login to take me

3 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Alp

It’s worth it, quitting will make a difference. Quitting can dramatically slow down the rate of progression, giving you a better quality of life for a longer period of time.

3 days ago

klr

klrasked the question: Anyone using Trelegy and have a side effect related to hearing?

Just started Trelegy this month, and have used it about 4 sittings, I started experiencing a whooshing like sound in my ears. As well as a feeling of being able to hear my blood pumping through my head, when not on the machine. It is very difficult to …

3 days ago

Nic33Mich

Nic33Michasked the question: Alp

Hi I was recently diagnosed with stage 4 emphysema fev1 is 26 percent, I am 32 years old and yes I was a smoker but I also have Alpha-1 diffencency genotype pizz. So I guess my question is even with quitting smoking will my disease continue to get worse …

3 days ago

Ben A

Ben A

So do you listen to your head or to your body?


I've been having problems exercising for the last several days and thought I'd ask if others have the same problem.  Yesterday I was supposed to walk on the treadmill but just could NOT bring myself to do it so I figured I'd just give myself a cheat day.  Today I stepped onto the treadmill and after only 15 minutes, I had to quit.  My O2 was good before I started but was down at 93% when I quit (which is the figure I usually land at after a full workout).


I feel generally OK but I'm tired for no apparent reason.  I don't think I'm coming down with anything (unless you count sloth as an illness).  How do the rest of you deal with this problem when you encounter it (assuming I'm not the only one who faces it)?

3 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • clipper (Debbie) - NJ State Captain I agree, it could be a sign of an exacerbation developing. Especially since you commented that your O2 was lower than usual.
    I would be careful. A day of feeling under par is one thing, several days in a row would get my attention.


    I do go through periods and have days where it’s hard for me to drag myself to the gym. I get tired. As much as I hate to admit it, I am not 35 anymore 😄 Mostly I give myself a good talking to. Today I just didn’t want to get up when the alarm went off. I decided not to go to the gym.  Around 6:30 I started yelling at myself; get your sorry self  up and do something.  Instead of doing nothing I did a “home brew” workout. I managed some exercise and I feel better about having done something. 3 days ago
  • Caroline
    I have days that I have to give myself a good talking to and then there are other days that my self talk does not work.  It sounds like you may have something a little out of whack.  Maybe it will get better by itself and you might have to see the doctor.


    I surely do have those days when I cannot talk myself into exercise.3 days ago
  • chafI think not ‘feeling’ like excercising and not being able to excercise are 2 different things...we all have days when we just don’t want to do it 😊3 days ago
ckcgwm

ckcgwm

I saw ur post about All Day Chemist in India. can you please tell me how to contact them? do I need a doctors prescription? I can't afford the Advair and Spiriva and can no longer get the extra help for my inhalers. I have emphysema. I have 1 and a half of each inhaler left. Please help me, I'm desperate.
thank you

3 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Does anyone know a doctor in the north georgia area that would write a prescription for Canada?

I have used AllDayChemist in India to get the equivalent for Symbicort and I have never had a problem and have not had to provide a script. On their site you enter the name of your medication and they will show you the equivalent. I know a number of …

3 days ago

ckcgwm

ckcgwmasked the question: Does anyone know a doctor in the north georgia area that would write a prescription for Canada?

I can no longer get the help Ive had for the past 4 yrs. My income is a few hundred too much and not enough for me to buy the Advair 250/50 and Spiriva blisters here. can I buy them from India or anywhere w/o a prescription? i'm desperate, please help.

3 days ago

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