COPD360social welcomes new member Knowspicker who joins 63,014 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŽ‰ 63,000 Strong--and Growing! ๐ŸŽ‰

Today marks a huge moment for our communityโ€”and itโ€™s all thanks to you!

To the 63,000 members who have joined us on COPD360social--and to all who quietly rely on us without joining--thank you! Your strength, kindness, and courage inspire us every day.

Hereโ€™s to us, as we step into July even stronger! Together, we prove that no one has to face lung disease alone.


2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‡บ๐Ÿ‡ธ Happy (Almost) 4th of July, Everyone! ๐ŸŽ†

As we gear up for fireworks, BBQs, and time with friends and family, I wanted to share a few friendly reminders to help you stay safe and keep breathing your best:

โœ… Beat the Heat: Try to stay indoors during the hottest parts of the day. If youโ€™re outside, seek shade, wear light clothing, and use a fan or cooling towel if you have one.

๐Ÿ’ง Stay Hydrated: Drink plenty of water--even if you donโ€™t feel thirsty--to help your body handle the heat.

๐Ÿงฏ Mind the Smoke: Fireworks, grills, and campfires can create smoke thatโ€™s tough on your lungs. Watch from a safe distance and try to avoid smoky areas if possible.

๐Ÿ˜Ž Donโ€™t Skip Meds: Take your medications as prescribed, and always keep rescue inhalers or oxygen close by if you use them.

๐Ÿช‘ Pace Yourself: Itโ€™s okay to sit out an activity or take breaks often. Listen to your body and donโ€™t push too hard.

Wishing you all a wonderful, safe, and fun Independence Day! ๐ŸŽ‡ Let us know how youโ€™re celebrating--and feel free to share any of your own summer tips for staying well.

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Anyone have problems with desaturating during sleep

Hi Katw - Welcome to 360Social! Yes, I believe it's fairly common for COPDer's to desaturate while sleeping, but your more clinical overnight sleep test should give you a definitive answer. I'm glad your pulmonologist is being proactive and …

3 hours ago

Katw

Katwasked the question: Anyone have problems with desaturating during sleep

I started having a lot of trouble sleeping about a year ago. Diagnosed with sleep apnea along with COPD. I use a mandibular advancement device for sleep apnea as I could not tolerate CPAP. I am no longer waking up gasping but still have brain fog and …

3 hours ago

Wildebeest

Wildebeestanswered the question Pain on breathing in

I had the audience with the doctor today. Needless to say, as soon as I made the appointment the symptoms started to abate and have now stopped. He asked if painkillers help. I said I have not tried - it seems pointless since the pains go away after a …
HIcopd - Hawaii State Captaindas23brydyand 3 others also answered the question HIcopd - Hawaii State Captainand 5 others also answered the question

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธSIMPLE PASTA SALADโ—€๏ธSo easy to prepare! You can bring a big bowl of this pasta salad to your family's 4th of July cookout! 1 package tri-color pasta, cooked, run under cold water, and drained well1 large broccoli crown, broken into...

15 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question PFT: Mild Restrictive Lung Disease with Moderate Diffusion

Your spirometry is actually normal ( but on the lower side of normal at 87% for the FEV1). Your TLC ( total lung capacity ) is at 79% - which qualifies as mild Restrictive ( less than 80%). Your DLCO ( diffusing capacity - assesses how efficiently your …
Caroline West Virginia State Captain also answered the question Caroline West Virginia State Captain also answered the question

16 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wonderful Wednesday, friends! Keep a smile on your face, and you'll always be in the right place! ๐Ÿ˜€

20 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Will the bronchNTM presentation made earlier today be available for viewing?  How can we find it?

1 day ago

Woodchuck

Woodchuckasked the question: PFT: Mild Restrictive Lung Disease with Moderate Diffusion

Hello, Iโ€™m new to this forum. I am a 88 years old male with SOB. Can someone please help me understand my PFT? Thank you!

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Lung volume question (pic of test attached)

You did not have an actual "lung volume" assessment. These are "estimated lung volumes" from spirometry that are not terribly reliable, The SVC ( slow vital capacity) should always be equal to or great than the FVC ( forced vital capacity) . Here- it is …

1 day ago

Brittishere

Brittishereasked the question: Lung volume question (pic of test attached)

Before this test I used all the meds I would in the morning and even albuterol nebulizer a couple hours before. Usually my fev1/fvc sits at a 65 and thatโ€™s also with meds but no Albuterol nebulizer. My question is regarding the lung volumes. I ticked …

1 day ago

Jamie Jarrard

Jamie Jarrard created the event Bronch and NTM360 Coffee Break--July 2025

Join us for BronchandNTM360social Coffee Break - Wednesday, July 9, 3pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

1 day ago

Jamie Jarrard

Jamie Jarrard created the event OxyTalk Social Hour--July 2025

Join us for OxyTalk Social Hour - Wednesday, July 9, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‡จ๐Ÿ‡ฆ Happy Canada Day to all our amazing Canadian friends! ๐ŸŽ‰

I hope youโ€™re celebrating with lots of fun, maybe a little maple syrup, and definitely no lung trouble! Weโ€™re so lucky to have you in our 360social family! Whether youโ€™re watching fireworks, rocking some red and white, or just enjoying the day with a butter tart (or three), I hope itโ€™s fantastic--and with easy breathing!

1 day ago

brydy

brydy

Happy Canada Day to my fellow Canadians! its crazy hot across much of our beautiful country so be mindful if you are heading out to celebrations today. A tornado touched down briefly yesterday in a field near me, some wicked storms come up quickly in this heat. enjoy the fireworks & celebrations everyone! ๐Ÿ‡จ๐Ÿ‡ฆ

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒ Today is World Bronchiectasis Day! ๐ŸŽ‰


Today, weโ€™re shining a light on bronchiectasis and NTM--raising awareness, helping others understand these conditions, and standing stronger as a community.

Several years ago, the COPD Foundation recognized how many people living with bronchiectasis and NTM needed connection, resources, and support. Thatโ€™s why they created BronchandNTM360social--a place where individuals can share experiences, find trusted information, and know theyโ€™re not alone.


If youโ€™d like to connect with others, learn more, or join the conversation, come visit us on BronchandNTM360social:


https://www.bronchiectasisandntminitiative.org/

Bronchiectasis and NTM Information and Support | Bronchiectasis and NTM Association

The Bronchiectasis and NTM Association aims at meeting the unmet needs of the Bronchiectasis and NTM communities. The Initiative offers a global online platform for community members to connect and interact, educational resources for patients, and research programs meant to assist in accelerating …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฅšSPECIALTY OF THE HOUSE SCRAMBLED EGGS๐Ÿฅš1 tbsp. olive oil2 heaping cups fresh spinach leaves 1 clove garlic, pressed6 large eggs1/4 cup plain Greek yogurt Salt and freshly ground black pepper to taste 2 ounces crumbled feta cheese Heat the olive oil...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainLet's all hear it for Tuesday! Tuesday is a terrific day! Plenty of time for laughter, fun, and smiles! 
Wishing everyone a wonderful Tuesday! ๐Ÿ˜€

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Well, it looks like we all guessed wrong.  We reached 63,000 sooner than we thought.  If I am mistaken and someone guessed the correct date, please let me know.

2 days ago

Davidgh

Davidgh

Is there a possibility that using Trillegy Ellipta can cause dyspnea to worsen?  

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ’CHERRY LIMEADE๐Ÿ‹โ€๐ŸŸฉDid Aunt Gertrude leave a can of 7-UP in your fridge, and you don't know what to do with it? Here's an idea! 1 can 7-UP soda 2 maraschino cherriesHalf of a lime wedge, cut into 2 equal piecesIce2 tbsp. maraschino...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

โฌ†โฌ†โฌ† Hey, everyone!!!โฌ†โฌ†โฌ†
Look up! We have almost hit our 63,000 member mark! ๐Ÿ˜ƒ

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Motivational Monday! Wake up knowing that today WILL be a day to remember! You have a positive outlook because you started your day in a good way! Enjoy your day, friends! I am positive that you will! ๐Ÿ˜ƒ

2 days ago

Deb169

Deb169

Ok

3 days ago

Wildebeest

Wildebeestanswered the question Tense shoulders and stomach feel I breath better when relaxed

Relaxation and breathing techniques should help. However they may not be the full answer, depending on your exercise status. If you are very tense, or not very mobile and don't engage in any regular movement/stretching/exercise protocols then adding …
PuffDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Puffand 1 other also answered the question

3 days ago

DebbieS

DebbieS

Seriously not doing well.

3 days ago

Puff

Puffasked the question: Tense shoulders and stomach feel I breath better when relaxed

Tense shoulders and stomach really have to work to relax feel I could breath better if I relax Any sug

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood morning friends, and happy Sunday to all! ๐Ÿ˜Š Wishing everyone a wonderful day! ๐Ÿ˜€

3 days ago

Sims0630

Sims0630answered the question Please help with test results! Just diagnosed and so worried!

Thank you All for your encouragement and kindness. I quit smoking 2 1/2 weeks ago! I am still in a bit of shock and emotional and will be so glad when this parts fades away! Thank you so much hug
Phyliss DiLorenzo NJ State CaptainCaroline West Virginia State CaptainKaren Deitemeyer - Florida State Captainand 2 others also answered the question Phyliss DiLorenzo NJ State Captainand 4 others also answered the question

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.