COPD360social welcomes new member BonnieNixon who joins 60,011 current members of our community. Weโ€™re glad you're here!

Bill Clark - Community Manager

Bill Clark - Community Manager

60,000 Members !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Thanks to all of you members, new and old, who got us to this momentous moment. When we first started COPD360social 10 years ago we were told that what we intnded to do wouldn't work.....I guess they were wrong. There is a reason we became the the model for medical communities like ours across the world. This is only the start of the adventure. There are lots of plans for new and better features. I am so proud of what we have accomplished together as a community. So, here is to the next milestone with the promise of many more.  God bless you all!!!!!

1 day ago

The COPD Foundation

The COPD Foundation

The COPD Foundation will be co-hosting a webinar with a primary care partner to help answer questions about Medicare for the COPD community. We want to make sure that weโ€™re prepared to discuss the topics that youโ€™re interested in. As a member of the COPD community, what are your questions about Medicare that youโ€™d like us to address?

3 days ago

JeanO53

JeanO53answered the question Speaking of Edโ€ฆ

Top Row - 1st square: For Once in My Life
das23AirplaneDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 6 others also answered the question das23and 8 others also answered the question

54 minutes ago

Evie

Evie

Well, another embarrassing doc visit where she listened to my lungs and said they are clear. Embarrassing because the pulmonologist diagnosed interstitial lung disease but my lungs should โ€œcrackleโ€ say these other docs. Also, when he shows me the
Catscans there seem to be no scaring of the alveoli. If my increased SOB and fatigue are idiopathic how can I address this with my pulmonologist in a kind way? Suggestions please

2 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Anyone else suffered diarrhea when flair up accur

Agree- need to check with your doctor. Sometimes diarrhea can contribute to an exacerbation. Sometimes antibiotics can cause diarrhea.
Phyliss DiLorenzo NJ State Captain also answered the question Phyliss DiLorenzo NJ State Captain also answered the question

6 hours ago

Barbra I

Barbra I

Just had my 2nd class at Respiratory Clinic. on the treadmill for 18 minutes at 1.2 no incline. going slow. I feel really tired when i get home.  oh well. just diagnosed a month ago.  Grateful to have a program.

7 hours ago

Enigmagirl

Enigmagirlanswered the question Breyna and Symbicort

Hi! Was looking up Breyna side effects (since I was just put on it & dr/pharmacy insist it's the same as Symbicort) and this page/your post came up. They are NOT the same! Maybe a different preservative? No idea. I've had almost completely controlled …
Alyssa Dittnerrickowens1950Jonnie Korinko (COPDF Manager of Public and Professional Education)and 2 others also answered the question Alyssa Dittnerand 4 others also answered the question

7 hours ago

Spra

Spraasked the question: Excessive nasal mucus

After i shower i must blow my nose 6 or more times. how can i prevent this?

9 hours ago

Stephanie Williams, RRT (COPDF VP of Education and Engagement)

Stephanie Williams, RRT (COPDF VP of Education and Engagement)asked the question: Speaking of Edโ€ฆ

In honor of reaching our 60,000 member milestone and in memory of our dear friend, Edโ€ฆHow about a โ€œpuzzlerโ€??? 😊

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ถ๏ธVERY EASY BAKED MACARONI๐Ÿ”ถ๏ธA very basic recipe. Bake once, eat several times!1 package of your favorite macaroni, such as ziti, penne, or rigatoni1/2 tsp. salt32 ounces marinara sauce, homemade, or from a jarOne 16-ounce package shredded...

13 hours ago

Cheryl1962

Cheryl1962asked the question: Anyone else suffered diarrhea when flair up accur

Hi I've had COPD since 2021 and at the moment I have a flair up But this time ive got diarrhoea with it and the steroids and antibiotics have not worked as anyone else had this problem

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood morning! Time for our Fluffy Friday Chuckle, which is made possible by our friend Kandy, state captain of South Dakota! ๐Ÿ˜‚

17 hours ago

Mary22

Mary22answered the question Hi, everyone! Guess what?

Appreciate you educating us. I am that person, who have had chest tighness and tiredness and summed it up as stress! Appreciate your examples!!!!! I will think differently from here on. The daily tracker, COPD action plan - was a great tool!
TonicDkdas23brydyand 1 other also answered the question TonicDkand 3 others also answered the question

1 day ago

baileymccrary

baileymccraryHello all! I want to highlight Valerie Chang (HIcopd - Hawaii State Captainโ€‹), COPD Foundation Board member, Community Engagement Committee member, and Hawaii State Captain, who recently participated on The Body Talk podcast! Val joins the podcast to spread awareness for COPD, share her journey to diagnosis and the importance of pulmonary rehabilitation and support groups, and emphasize her involvement with the COPD Foundation. Val, fantastic work on bringing attention to COPD and providing your lived expertise to the podcast world! You can listen to Val's episode here: https://www.hawaiipublicradio.org/show/the-body-show/2024-07-24/the-body-show-copd

The Body Show: COPD

COPD or chronic obstructive pulmonary disease, is a serious lung condition that makes you feel like you just canโ€™t catch your breath and yet feel too full of air. Val Chang founder and president of the Hawaiโ€™i COPD coalition is in the studio sharing her personal story and what you can do if you or …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

We've hit 60,000 members!!! ๐ŸŒŸ

1 day ago

Ms JellyBean

Ms JellyBean

Anyone here today ? ๐Ÿ˜ 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHow about some food for thought!
When I asked my husband what he wanted for supper, he said macaroni salad. Okay, here it is! Grab a bowl, a fork, and a seat! Dig in! ๐Ÿ˜€

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Hey, folks! Watching that number up on top. We're almost up to our 60,000 mark! Pretty soon! ๐Ÿ˜ƒ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Today's recipe comes from Kandy's Kitchen. Thank you, Kandy, state captain of South Dakota, for an easy recipe that's is sure to please! ๐ŸŽ๐Ÿ๐Ÿฅง๐ŸžAPPLE PIE BREAD๐ŸŽ๐Ÿ๐Ÿฅง๐Ÿž1 can apple pie filling, mashed 1 package yellow cake mix4 eggs, slightly beaten1...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Throwback Thursday! HURRAY!! ๐Ÿ‘ 
Can you name something from your past that holds a wonderful memory? A song, a particular food, a person, a pet, or a place? How about a car you once had?
Looking forward to hearing from you! Happy Thursday! ๐Ÿ˜ƒ

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

This is probably going to be a weird post, but here goes.  I am feeling greatly blessed to be able to pursue a new career at the age of 80.  This opportunity has been afforded me because I have COPD an incurable disease.


I am a religious person, so I Immediately think "God works in mysterious ways."  As a child I wanted to become a famous writer.  I wanted to be published.  When my master's thesis was published, I considered that my dream had come true.


I am a private person, but I am also a very open person, so writing about my "Life Addicted to the POC", and my "Life Tethered to a Concentrator" have been healing.


My door to travel, and whitewater rafting have been narrowed, but my door to writing has been opened.

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question PFT help. Do I have lung disease?

Dr. Mannino has given you great medical advice; since he is one of the best, I would follow his advice. I want to give you advice as a patient who had a heart issue that no one would pay attention to until I ended up in the emergency room and went into …
Art HastingsDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Art Hastingsand 1 other also answered the question

1 day ago

kathleenmat

kathleenmatcommented onFrom Diagnosis to Advocacy: Karenโ€™s COPD Story

Love your attitude. You are truly and inspiration, which we all need. Thank you!...

2 days ago

LFAOMGA

LFAOMGA

Going through a rough time with right sided chest pain due to pleurisy from a bacterial infection that started last Friday afternoon. I experienced severe stabbing pain the second day with every breath. I even tried not to breathe just to avoid the pain. (Not the best action to take but it really hurt.) Taking an antibiotic now for the infection and acetaminophen for the pain. Itโ€™s already starting to help on day 5. So Iโ€™m happy!!!

2 days ago

Oxygen tank Man

Oxygen tank Man

Hi, what the difference between COPD and Emphysema.

2 days ago

aliingreenvalley

aliingreenvalleyanswered the question Just heard that GSK's inhaler price caps won't apply to people on medicare/medicaid

Hello Lizi, I share your dismay about being ineligible for the price cap on inhalers. I am insured by a Medicare Advantage Plan and I hoped that might allow me to benefit from the price cap. Dr. Mannino offered a few suggestions to explore for …
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

2 days ago

aliingreenvalley

aliingreenvalleyanswered the question Exascerbations

Love your attitude! I too just turned 82 and I subscribe to the advice from an energetic 91 year old friend: "just keep moving!"
EvieJonnie Korinko (COPDF Manager of Public and Professional Education)Jean IA State Captainand 4 others also answered the question Evieand 6 others also answered the question

2 days ago

RuthieGunter49

RuthieGunter49

Hello friends... 
I was in the hospital for a day. My BP and pulse were outta control.. resting it was 150/100, pulse 160. Knowing that my lungs were the reason my BP and pulse were wonky. The only thing that brought it down was Metoprolol.  They added my Lisinopril back in and things have been good since.  Surprisingly,  I feel alot better now than I had been..

2 days ago

Oxygen tank Man

Oxygen tank Man

Hi, Thank you for adding me to your group.Does any body knows what is the oldest person to run with a oxygen tank in a marathon.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธEASY GLAZED SALMONโœด๏ธ1/3 cup packed brown sugar1/4 cup unsweetened pineapple juice 2 tbsp. lower sodium soy sauceFour 6-ounce salmon filletsPreheat oven to 350 degrees. Line a 15 x 10 x 1-inch baking pan with foil. Coat with non-stick...

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.