Debtra

Debtra

Hello everyone.  I just joined and am looking forward to the interaction with others that have COPD.  I was always in decent health, I did smoke but was not experiencing any severe health issues.  You know how it goes (it won't get me) but needless to say that due to excessive stress at my work I lost over 35 pounds    fine up until about 3 years ago when I lost a lot of weight (stress) the loss of weight compromised my health and had my to which they could not find any medical reason for.  The loss of weight compromised my ability to fight infection and then one night I was at home watching tv and BOOM I could not breathe.  I was told that have stage severe COPD/EMPHYSEMA and will need oxygen for the rest of my life (at night)  Wow that really threw me for a loop.  Suddenly my whole world changed.  My plans for my future were altered as I could not do 1/2 the things I used to.  I had to retire from my job even though I was not ready to stop working.  I have really had a terrible time adjusting to this new world of mine and hope that talking to others will help me to live a better life than what I am doing now.  I am sure with some confidence I will be able to resume doing some of the things I need to do like clean my home, take a shower without being scared that I won't be able to breathe.   Go for a walk with my husband.  Sit and play with my grandchildren etc. 
 

8 minutes ago

Ben A

Ben Aanswered the question When I Had My Spirometry Test The Bronchodialater Did Not Improve Anything

Oddly enough, when I did the spirometry re-test after four shots of Ventolin, my capacity improved by 25%. We're all different.

19 minutes ago

Reb47

Reb47

I forgot to ask, does anyone know who my state captain is for Indianapolis, Indiana? Thank you and GOD bless you all!

1 hour ago

Reb47

Reb47

Hello fellow COPD'ERS,I was diagnosed with 3rd stage COPD  3 years ago, I am doing ok for now I hope I'm doing this right if not someone please let me know lol it took me forever to figure out how to text everyone  I'm not very technological  savy, I've been fortunate enough not to have to use oxygen thank you "Jesus" I have 40%of my lungs left i guess my lungs are decentegrating  my doctors are very surprised I don't need oxygen and hopefully I can stay this way with not needing it my insurance won't cover pulmonary rehab is there any pulmonary rehab online somewhere mabe a video or something my doctors say I'd benefit greatly from it but my insurance just don't care, also I'd love to have an exercise program to follow but not any type of yoga because it's actually a religious thing where you're actually leaving your body and demons enter,that's what yoga is all about and I want no part of it it's very nice being here and look forward to all of everyone's tips and insights of this horrible disease good evening everyone from Indianapolis Indiana 

1 hour ago

RedSox

RedSoxanswered the question What exactly is mild emphysematous changes ?

thank you

2 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question New to dealing with Exacerbations

Yes absolutely we live and die by our pluse ox number. Below 89% we are at risk for cell damage which means organ damage. The right side of the heart is most vulnerable which is why right side heart failure is common in people with COPD. The other organ …

3 hours ago

Snowcone

Snowconeanswered the question COPD or Cancer?

Hello, I just joined this group. I want to say that I feel for all out there going through what I have for the last few years. When a doctor first told me I had COPD I didn't have a clue what he was talking about. He didn't bother to explain or offer to …

4 hours ago

Stef

Stefasked the question: New to dealing with Exacerbations

Hello! Iam the primary caregiver and daughter to my mom who has COPD and suffers withchronic Bronchitis/exacerbation. So far, we have been in the hospital once withthe first exacerbation in April and she made a full come back to her breathinglevels …

4 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question When I Had My Spirometry Test The Bronchodialater Did Not Improve Anything

That is typical, I have been told that most people with COPD do not respond significantly to bronchodilators. There are other types of medications that can be prescribed. When you see your pulmo to review the test results they will see this and should …

5 hours ago

Angie67

Angie67asked the question: When I Had My Spirometry Test The Bronchodialater Did Not Improve Anything

When I had my spirometry test for the second part of the test they had me use an inhaled medicine then I had to wait a certain amount of time. Then I had to do the test again. My test results showed that the medicine had almost no effect on the second …

6 hours ago

annie wi

annie wianswered the question How does air pollution (dust, pollen, chemicals) affect you?

My pulmonologist always suspected I had an asthma component to my COPD. This was in spite of my lack of response to the albuterol part of the PFT testing. Symbicort worked well. I don't get much response from my albuterol rescue inhaler, or even the …

9 hours ago

RedSox

RedSoxanswered the question 79 year old father diagnosed with COPD..

hi I think your father needs a three way check 1) CT Scan 2) Pulmonary Function Test/ Spirometry 3) Cocluslive diagn

9 hours ago

Daine

Dainecommented onUnique Team Helps this COPD Readmissions Reduction Program Get Positive Outcomes

 I thrive on reviewing different successful models of what we do! Congratulations on your success and thank you for sharing some great tools for successfully achieving better outcomes! You are correct, it takes a village, whose villagers have their...

10 hours ago

Genebean

Genebean

Goodmorn to everybody.  Hope today turns out to be good for all of you. For those who got things to go out and do, take your time,  get yourself together and be into the day, for those stayin in, take the day and try to take it easy and relax. Good day to all of you.

14 hours ago

Heather-Susan

Heather-Susan

I have COPD which I was diagnosed with 8 years ago and am on oxygen as only one of my lungs is working to full capacity....I quit smoking 10 years ago, something I didn't think I would ever be able to do.  Just this year I can now stay off the oxygen if I'm just sitting around doing nothing and my oxygen level stays between 88-92.  I have to have my oxygen on when moving....I go to the gym 3 times a week and use the treadmill and walk at a brisk pace for 40 minutes then do a bit of core work...I'm on Spriva and Serevent don't really know if they do much good....hope everyone is having a great day/evening

16 hours ago

  • NewestOldest
  • CarolineKeep on going to the gym and doing the core work.  Have you discussed the fact that you do not know whether or not the inhalers are working?  Do you see a pulmonologist?11 hours ago
  • clipper (Debbie) - NJ State Captain I agree with Caroline, you should discuss your inhalers with a pulmonologist. If these are not working well for you there are other options. 

    I also agree that exercise is very important. That is wonderful that you go to a gym.  If you can, go 4 times a week, more is better if it is possible.  In addition to core go for a well balanced strength training routine. Since you go to a gym you will have access to all sorts of equipment, take advantage of it. Ask one of the trainers to help you out.  A trainer will be able to guide and instruct you. And of course, very important that you run this past your doctors first. 




    As we age we naturally lose muscle mass. The problem is compounded for us by our COPD and the muscle wasting associated with it. A good strength/resistance routine will help to offset the impact that has. I have found that having half way decent strength makes living a lot easier. 10 hours ago
Barry1314

Barry1314

Hi everyone,


I have just come across this site and was hoping you could share some advice........My mother has very recently been diagnosed with COPD - She was a smoker until 2 years ago, she is currently 62 years old. I currently live in Australia and my mother in the UK. I have been frantically reading material online around improved diets, vitamins etc and I just thought I'd ask the forum if anyone can suggest the best vitamins/antioxidants?


Also, does anyone recommend Chinese medicine/acupuncture?


My sincere thanks in advance 


Barry 

18 hours ago

Ben A

Ben A

Tomorrow is my all afternoon PFT.  You folks have generally reassured me that it's not that bad, but I've got to admit that spending the first more-than-half of the day completely un-medicated has me worried.  I've noticed that if I shower before I do my morning meds I have a hard time and end up SOB.  How the .... am I supposed to function and get to the doctor's office in the afternoon without either morning caffeine or my Breo/Incruse/Ventolin?


Oh well.  I'll get through it one way or another.  But wish me luck anyway....

22 hours ago

Spouse

Spouse

I have a follow up question to my question about using a hospital bed or recliner: Has anyone used a wedge? My husband tried one we had but he found it very uncomfortable. A gentlemen in his pulmonary rehab group said that he and his wife use wedges and they found them to be very helpful. What is your experience with using them? If you like them, which ones do you recommend? Your responses have been very helpful.

1 day ago

Gina Bradshaw-Arkansas State Captain

Gina Bradshaw-Arkansas State Captain answered the question Combining inhalers

I take Spiriva and Breo every morning. My weakness is because I alsways overdo it. I also have depression and fibromyalgia that adds to my symptoms. I wish you luck.

1 day ago

Gina Bradshaw-Arkansas State Captain

Gina Bradshaw-Arkansas State Captain commented onIs COPD the Third or Fourth Leading Cause of Death?

 Thank you for posting. I was wondering that. It’s still sad though. ...

1 day ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF StaffNot fluffy fridays yet but I had to post this adorable picture of how cute Annie the beagle looks like today! She loves snuggling!

1 day ago

Whylene McCray

Whylene McCrayanswered the question Salt Inhalers for COPD

RE: using salt to gargle. My ER Dr.suggested I use something different to gargle. with because prolonged use, could send up my blood pressure.

1 day ago

Stephanie Williams, RRT

Stephanie Williams, RRT

I don't know how many of you might have an Amazon Echo, but I just found that it has a skill that you might find interesting. I spend many hours a day sitting, either in front of my computer or in the car and sometimes I think it would feel great to get a big stretch. Well, today I found Chair Yoga. It only takes about 6 or 7 minutes, and it is done completely in a chair.
I was thinking that some of you are wondering what kind of excercises you can do if you don't have the ability to walk very far, or don't have a lot of endurance. Ask your doctor about something like chair yoga or even a chair Tai Chi. These are gentle movements that help you focus on your breathing, and are great to use those muscles and maybe build up to something else.
Just remember to check with your doctor before starting ( I have to say that) ☺

1 day ago

PDeNardo

PDeNardo

Just received a FDA press release regarding a high blood pressure drug, Valsartan. A voluntary recall due to impurities.I am aware that this is not a COPD drug but many of us are on hp medications also. https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/UCM613532.htm?utm_campaign=Untitled%20Email&utm_medium=email&utm_source=Eloqua


1 day ago

Kanzalone

Kanzalonecommented onIs COPD the Third or Fourth Leading Cause of Death?

 Tracie, Thanks for this detailed explanation, appreciate the information. ...

1 day ago

AlinPerry

AlinPerryanswered the question Salt Inhalers for COPD

I have a Elephant salt lamp and I gargle with sea salt every day. It clears my throat especially on these hot days

1 day ago

Caroline

Carolineanswered the question What exactly is mild emphysematous changes ?

I hope that Kandy sees this post and responds because she has kept COPD at bay for over 15 years. I was diagnosed with severe asthma and moderate COPD. I have actually improved my lot over the past year. I have eaten well, gotten enough rest, and …

1 day ago

FrontierCal

FrontierCal

I’m caring for older parents.   Can someone recommend cleaners and sanitizers for the home that won’t  trigger a reaction ?  

2 days ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF Staffcommented onIs COPD the Third or Fourth Leading Cause of Death?

 Great article to check out an learn more about why COPD has moved to the fourth leading cause of death...

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.