DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappiest of Fluffy Fridays! The weekend is almost here! My two boys hope you have a good one!

49 minutes ago

Jimmy S

Jimmy SGOING OUT This is a good place to repeat that all COPD people
are different in many ways. One way is in our reactions to weather.
Some like it hot, some like it cold, some damp, some dry. The point is
that if it is your kind of day, try to get out and enjoy. One
thing which does bother us all considerably is air pollution. Find out
where you can get a daily air quality report from your area and use it
when making your plans for the day.

Before going out, however, it is a good idea to make preparations for
your homecoming. Of course, we should learn to stop whatever it is we
are doing before fatigue sets in, but sometimes this is easier said than
done, particularly when away from home. At a time when you are the most
apt to be tired, it is lovely to come home and have nothing to do but
relax. Before leaving, lay
out your comfortable clothes and slippers, leave a drink in a handy
thermos, set out whatever utensils you will need for your evening meal,
even turn down your bed for a quick nap, whatever makes you feel good.
Then homecoming can be more than just a relief, it can be a real
pleasure. Try to get yourself a warm, lightweight coat for
winter. Down is ideal. A heavy winter coat can wear you out before you
are out the front door. In cold weather, also wear a nice long,
warm scarf, and if it gets too cold or windy, do not hesitate to wind it
across your nose. Some of us, however, prefer a cold-weather mask.
There is one being made now of soft sponge which is quite comfortable to
wear. Mask or scarf is a personal choice, either has merit.
Those of you who do consider outdoor walking may find that a cane seat
or shooting stick is a real help. It gives you a cane to lean on and a
small seat if you feel like resting.😎

6 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Doctor is confused...

It is definitely possible you don’t have COPD. Test done while you are sick are not always accurate. But one mistake you don’t want to make, the worst mistake you could make is to not get tested now. Don’t wait, the sooner you know the better. No matter …

7 hours ago

Caroline

Carolineanswered the question Doctor is confused...

I pretty much knew that I had COPD, but did not want to face it and then my lung collapsed. I have now had that happen 3 times with 3 chest tubes. I wonder what would have happened if I had acknowledged my problem and taken steps to live the best that I …

7 hours ago

Caroline

Caroline

I am getting kicked out of home health and on to Cardio Pulmonary Rehab.  The physical therapist and nurse are coming to do the paperwork in the morning.

7 hours ago

JeanO53

JeanO53answered the question Doctor is confused...

Hi Copdnoob - Welcome First - Congrats on quitting smoking. Best thing that you can do for yourself... for a variety of reasons. Second - I can relate to being in denial, and wanting to avoid the possibility of getting a diagnosis of a chronic disease. …

7 hours ago

ddhort

ddhort

8 hours ago

Copdnoob

Copdnoobasked the question: Doctor is confused...

Hi everyone, first time posting. 13 years ago, when I was 29, I had a bad case of chronic bronchitis, I could barely breathe that day do the doctor performed a spirometric test and told me I had COPD and should quit smoking. I tried but failed. In 2016 …

8 hours ago

Indiana mark

Indiana mark

Ok, went to lung dr after another trip to the er and my copd is at the point he wants to get me a triology machine because of the bloid gases report and other complications. Seems this copd is not taking it slow on me w/ a pft of 30% in both lungs .

12 hours ago

Ken Benson

Ken BensonCOPD Advcoacy.   
https://www.yahoo.com/lifestyle/took-man-9-years-get-lung-disease-diagnosed-154232707.html?soc_src=social-sh&soc_trk=fb&fbclid=IwAR2-9lPS4VHXv4A6Tp5K7AwH0ZI_90LD81o7hjSt1xhbjUAjZMUpcM-QrNE

It took this man 9 years to get his lung disease diagnosed

Ken Benson says he complained to several doctors about having shortness of breath for nine years — and not much was done about it. “I kept switching doctors, hoping to find an answer,” he says.

12 hours ago

LFAOMGA

LFAOMGA

Hey everyone, I saw an article on Yahoo today about Ken Benson and his long journey to his COPD diagnosis. Ken, the article is fantastic !! My only concern is that the article did not even mention Alpha-1 Antitrypsin Deficiency. Thank goodness you were wearing the shirt that had it emblazoned across the front.  Thank you Ken, and Good for you for being involved in educating the public about your personal health journey. 

13 hours ago

Jimmy S

Jimmy SMaybe it won’t work out. But maybe seeing if it does will be the best adventure ever.
Good things come to those who believe. Better things come to those who
are patient. The best things come to those who never give up.🙂 So remember to pace yourself today and pursed lip breathe over and over and over continue it becomes second nature to you.😉💕 Going to be warm here in Sacramento today. TODAY: Sunny, with a high near 89. South southeast wind 3 to 6 mph. TONIGHT: Mostly clear, with a low around 56. South southeast wind around 7 mph. So stay hydrated!!

15 hours ago

joney

joney

I am doing well today taking my husband to see eye Doctor .He has mylofibrous a form of cancer hes not as strong as he use to be it seems as if we stay in Doctors office thank heaven for good Doctors😄

18 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

Have you been hesitant to join the COPD Foundation's PPRN (Patient Powered Research Network)? If so, I hope that you'll watch these videos - they were produced by the ALA as PSA's to encourage patients to participate in clinical trials (I'm in the first 2):
https://www.youtube.com/watch?v=gjzPozaEiYQ&list=PLxdDQiAI50j-F25xlFvzar-2W_UWTAQxj



20 hours ago

Catmar

Catmaranswered the question BiPap at Home

RAD is respiratory assistance device

20 hours ago

AlanG0

AlanG0

When where you diagnosed with COPD and how? 


Hello my mother was diagnosed when she was 28 years old she is 36 now and is doing good 
At first the doctors thought she had asma and then neumonia but at the end she was diagnosed with COPD 
And i just want to know how every one is doing 

1 day ago

Arnold luft

Arnold luft

So far so good 
I was given an inhaler yesterday 
Name of it is Anoro Eliot’s 
It seems to be helpful
Thank you 

1 day ago

hyperphoria

hyperphoriacommented onWhat is a "Top Breather"?

 I have been diagnosed with COPD about 6 years ago. In the last year I have been hyperventilating and it was causing extreme anxiety. I read where a buildup of co2 was not good and was causing my breathlessness and other symptoms. So I asked my...

1 day ago

AlanG0

AlanG0

How can some one be diagnosed with COPD?


My mom was diagnosed with COPD almost 8 years ago
But the doctors woud tell my mom she had asma and then that she had neumonia but my mom went to a lung specialist and he said she had COPD 
But in that day my mom was really sick she couldnt move becouse she would run out of air. My mom was 28 when she was diagnosed. Isint she to young? She never smoked or worked with chemicals, she only worked cleaning houses. After she got diagnosed she was taking medicien for about 6 months and after that she was better and stop taking medicine till today she is in great condition she is 36 years old now  and has no problem breathing it has been 7 years since she hasnt had any medicine 
Do you guys think maybe the doctors had a wrong diagnosed?

1 day ago

joney

joneyanswered the question Good location to move to.

I wish u good luck on your move please visit first. I live in Skokie IL and my husband and I stayed in Memphis Tn for about 10 years hot and humid but I didn't mind because I grew up there and every place has air conditioning (very nice in the fall) but …

1 day ago

joney

joney

I am doing well a little stiff but that's to be expected on my way out the door to see chiroprator anyway just wanted to say have a blessed day everyone😄

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Good location to move to.

This might help narrow things down. https://health.usnews.com/best-hospitals/rankings/pulmonology

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Good location to move to.

All I can suggest is try some extended trips in places you are considering before you relocate. It can be a challenge to get your new support network, medical team, friends, and new quirks in the weather if wherever you may move.

2 days ago

chelanland

chelanland

I am still looking for a person that has have lung Reduction operation?

2 days ago

DanK

DanK answered the question Good location to move to.

I understand where you’re coming from on the weather in Wyoming I lived there for seven years and the weather is exactly as you described.

2 days ago

Jimmy S

Jimmy SWe
are going to go through tough times - that's life. But I say, 'Nothing
happens to you, it happens for you.' See the positive in negative
events.🙏🙂
A positive attitude causes a chain reaction of positive thoughts,
events and outcomes. It is a catalyst and it sparks extraordinary
results. Once you replace negative thoughts with positive ones, you'll start having positive results.😉👍

2 days ago

ScttLee

ScttLeeasked the question: Good location to move to.

I realize that everyone is different, but any suggestions on where to move to for COPD health reasons. I live in Wyoming and the cold (-25 to 25 degrees), windy (30-70 mph), and dry winters (6-10%) really treat me bad. Even then summer is dry. I like an …

2 days ago

Athornell

Athornellanswered the question Questions regarding the Pulmonx Zephyr valves

I just had the zephyr valves put in last week in Houston. I had to go through several tests before I was approved for the valves. I called Methodist Hospital when I heard about the valves and they set me up with an appointment. It took me about a month …

2 days ago

joney

joney

Thanks for asking I am doing well washing clothes today have to climb up and down stairs I am taking it very slow.😃

2 days ago

chaf

chafanswered the question is anyone currently using the trilogy 100

make sure your mask fits properly..they come in different sizes.

3 days ago

Ben A

Ben A

3 days ago

Ben A

Ben A

OFF TOPIC:


I saw the podiatrist again today about my foot.  No apparent healing in a month.  Still swollen and painful.  Another x-ray still showed nothing, so I'm scheduled for an MRI on Wednesday.  If I don't become ambulatory soon, it's going to take me forever to get back to where I was on the treadmill.

3 days ago

joney

joney

Hi Everyone I am doing well I had to see primary doctor today had to have  Complete Blood Count had to go upstairs also  got Shingles shot I feel wiped out now think I'll take a short nap. 

3 days ago

Jimmy S

Jimmy SSuccess is not final, failure is not fatal: it is the courage to continue that counts. Too many of us are not living our dreams because we are living our fears. 🥺 Your mind is a powerful thing. When you fill it with positive thoughts, your life will start to change.🙂 Hope everyone is breathing easy and enjoying their Monday.

3 days ago

Tina M Moyer

Tina M Moyer

Hi I was just wondering if anyone else who has COPD experiences Paroxysmal supraventricular tachycardia? I had to see a cardiology today we are hoping they do not become constant if they do there are some options Medications , treatment called cardioversion and ablation. I have had some epsiodes at work i wore a holter monitor at well showed some epsiodes as well as  a svt at 144 bpm for 7 minutes.

3 days ago

Kenziecakes

Kenziecakes

I am 33 years old and was diagnosed with COPD today. I had a pulmonary embolism in my right lung last August and my lung has just not been the same since. I have been an off and on smoker for years. (obviously im quitting ASAP) I have yet to go see the pulmonologist..can someone help me out with what to expect at my first appointment? I am freaking out here I feel I am too young to be going through this. 

3 days ago

Tina2664

Tina2664

😓 I'm sad to say that my husband passed away this afternoon.
I would like to thank everyone for all of your support and would like to wish you all the best on your journey x

3 days ago

Jane Martin

Jane Martinanswered the question My doctor has referred me for a lung transplant. What are the pros and cons?

That is a HUGE question, StarEagle, and an essentially important one. Everybody's pros and cons are unique to their individual situation, and transplant is such a "science" unto itself, specific pros and cons can vary greatly. You said that your doctor …

3 days ago

StarEagle

StarEagle

Its scary when you sre first dianosed. But if you take your meds and follow doctors instructions, life can still be good.  

3 days ago

StarEagle

StarEagle

Ive just been refered for a lung transplant.  What are the pros and cons?

3 days ago

StarEagle

StarEagleasked the question: My doctor has referred me for a lung transplant. What are the pros and cons?

what are the pros and cons of a lung transplant?

3 days ago

RoseMcK

RoseMcKanswered the question is anyone currently using the trilogy 100

bear, why is it keeping you awake at night? If it is a matter of comfort, I have some suggestions. I've been using mine for two years now. I have no doubt that little machine is responsible for the current state of my health, which is really very good …

4 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain

Sometimes things happen to remind us of the gap between what we think we can do and what we are capable of doing. 


On my way to the gym, just down from my house is a hill. Not super steep but fairly long. Healthy lungs wouldn’t think twice about it but I would never attempt to walk up it, never. To me that hill was more than I could ever handle. That is how perceived  myself and how I saw that hill.


This morning on my way to the gym, I saw someone all alone struggling to get up the hill in their wheelchair. I couldn’t not do anything so I pulled over and offered to help. She asked if I could help her get up the hill, just the hill. She was trying to get to church and didn’t have a ride. In my head I am thinking, what have you done now, how the bleep are going to do this one.  I explained I had emphysema and my breathing would get funky and we might have to stop and rest but together we would figure it out. She wheeled, I pushed and I huffed and puffed and we rested but eventually we got to the top of the hill.  This young woman had more guts and drive, wheeling herself all by herself to church for Easter. Respect for her. 


And I was reminded that when pushed I can do more than I think I can. Not only did I walk up that Grove Ave hill but I did it pushing someone in a wheelchair. It wasn’t fun, it was a little embarrassing but I did it. 


I did try multiple times to talk her into getting in my car and letting me drive her but she was very resistant to that idea for whatever reasons she had. I wouldn’t get in a car with a stranger either. 


What surprised me was that no one stopped to help. It is a local road 25mph, my car was pulled over flashers on, a gray haired lady pushing someone in a wheelchair up a hill.  About 6 or 8 cars drove right by us never stopping to see if we needed help. 


Good thing I do those calf raises and squats cause my legs wer

4 days ago

NatalieFit

NatalieFit

Not too good as I'm in the hospital due to a COPD Exacerbation. 

4 days ago

Jimmy S

Jimmy SIf you’re at a family gathering
and you want to help but don’t have a lot of energy or endurance, ask
if there is something you can do while sitting down. Maybe you can
arrange a veggie or deli platter, fold napkins. Being in a hurry is probably one of biggest breath-robbers for
people with COPD! Give yourself plenty of time to get ready, gather your
goodies, and arrive at your destination with breath to spare. Don’t seat yourself near triggers such as cooking fumes, steamy
pots, scented candles, or stuffy, overly warm areas. Sit where there is
more likely to be moving air, near a fan or a cracked-open door or
window. Don't find yourself in a position in which you have to walk
farther than you're comfortably able to walk, especially in the cold
air. If you're riding with somebody, ask if they can drop you off at the
door. If you're the one driving, call ahead and ask if you can drive
right up to the door and someone at the party (perhaps a responsible
teen driver) can serve as a valet.  So on those tips i hope your day as been a super one and your breathing easy and enjoying the holiday.  God Bless you all.

4 days ago

RoseMcK

RoseMcK

My pulmonologist wants to start me on Dupixent. It is a biologic which has just been approved for asthma, but has been used for atopic dermatitis (eczema) for some time. Curious if anyone has had any experience with this drug.

4 days ago

Tina2664

Tina2664

Feeling quite sad.
It has now got to the stage where my husband has not eaten anything for two days. 
On top of that he does not know who I am and can't remember my name 😥
He hasn't taken any of his tablets today and not had his nebuliser (he usually has that at least 10 time daily). The only thing he has had is the sabutamol inhaler.

4 days ago

Crystal73

Crystal73

Not So Well'Am A Smoker And Battling With PTSD My Nerves Are So Bad Cant Quit😭Itchy Throat Constant Coughing Spasms Behind Rib Cages Front And Back😭Where I Been In Bed And Coughing I Think I Slipped A Disc My Back Is Out Just All This Today.In Bed Cant Do Anything Hopefully Ill Be Able To Drive To Dr. Appt Monday.Sinceraly Crystal73

4 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.