Bill Clark - Community Manager

Bill Clark - Community Manager

Thank you to everyone who completed COVID-19 Survey #1. As you may have seen, results have been posted in the recent COPD Digest article and guided our approach to this new survey.


Survey #2


This second survey goes a little more deeply in refining some of the answers and questions we received from the first survey.



COPD Foundation COVID-19 Survey #2

Your participation continues to be of the upmost importance as we continue to ascertain just how Covid-19 is affecting our community and the special needs that are present in our community.


We hope that you will continue to share your experiences and sentiments with us by completing Survey #2.


If you didnโ€™t complete the first survey you are still encouraged to complete this Survey #2 - we hope to get answers from those who responded to Survey #1, as well as new responses from other patients and caregivers.


Thank you!


https://www.surveymonkey.com/r/6VTKN57

3 weeks ago

edpe77

edpe77answered the question GPs should not try to detect mild COPD?

While I wasn't "formally" diagnosed with COPD until recently, my GP's were willingly prescribing me my inhalers. I had been using Combivent for some time to help my breathing. Some years later I was describing, what we now call an exasperation, to a Dr …

3 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

I'd like to say one thing, Thank God I have medicines to help me breathe and that would be to the pharmaceutical companys and Thank God for the Copd Foundation for being there from day one!

4 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question GPs should not try to detect mild COPD?

And pulmonologists don't have any part in the Billions of dollars of Big Pharma only GP's

4 hours ago

Dondonsoy

Dondonsoyanswered the question GPs should not try to detect mild COPD?

I have to agree with you lung guy. Anytime you involve billions of dollars you will only see the answer they want you to see. I can't see how GPs could give you such a diagnosis without sending you to a pulmonologist for a complete work up.

6 hours ago

Gumbytwist

Gumbytwistanswered the question What is everyone doing during COVID19

I love to put puzzles together! I have 1000 piece puzzles and work at them off an on. :)

7 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTJoin us tomorrow for a Facebook Live event where we will explore the My COPD Action Plan. If you have ever wondered what an action plan is, why you need an action plan, or how to use one - this event will answer your questions. We would love to see you there!

8 hours ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi Hey Everbody hope ya'ens are havin a Awesome day ! Man my Lil ole Butt has had one of the most worst 4 weeks in my life.  Dont ever wanna go through anythin that this again,  ima still not like I was before the fall ,cause it leadxta a issue I didn't know I had and still don't and thins are concerin lil ole me and it seems as so evertime I turn around ima hearin the word cancer,  news , commercials,  Facebook it's like really scarin lil ole me ta death , many times in my life ,I have feelins bout stuff and I have had a bad feelin for quite some time now bout cancer in my stomach but outta fear I have not faced it , Since the fall,  what ever is goin on has blown up inta a huge problem.  They are not seein patients only doin colonoscopies and that's where ima at. But with the broken pelvis, ima havin ta wait , so I have called ta tell em ima ready whenever they are now,  cause since the fall lil ole me can no longer live the way thins with my body are.  Ima takin it one min at a time and stayin off of Doctor Google because ima in a state of the Rabbit hole exactly where I was last year when I found ya'ens and my savin Grace . So all I can do now is turn it over ta my God and ask for his Mercy and Grace ta show me , everthin will be ok . Ima so happy I have ya'ens by lil ole side . And Welcome ta all the newcomers 360social it will truly save ya'ens life like it did lil ole mine . Also got my Trilogy haven't been able ta start usin it yet , but it's here incase ima in need of it . 
Love ya'ens very much. 
Lorrie. 
Wanted ta show ya'ens a little Sunshine and spring flowers in the midst of all thats goin on . These are 2 of  my Babies in the Sunflower Patch.

9 hours ago

  • loukathi Lorrie State Captain of South Mississippi โ€‹, just dropping a quick note to let you know you are in my thoughts and prayers.  Stay away from Doc Google - my daughter does a lot of that and I don't subscribe to it as sometimes if taken in the wrong way can do more harm.  Hugs, Loukat8 minutes ago
Ben A

Ben AIs it Tuesday again? Already? Time flies when you're in quarantine....

Here's a song to mark Tunesday -

https://www.youtube.com/watch?v=M1N_wbhAfQ4

9 hours ago

Happy Hair

Happy Hair

๐Ÿ™† Still here!! Coming up on 2 years of NO CIGARETTES as of June 25th! Wish I could have done this 20 years ago...might not be in this mess right now..just wanted to say "hey" to everyone and hopefully you are all staying safe and as well as we can be. This is one messed-up world! I appreciate every day I have now and pray we make it through  all of this๐Ÿ™๐Ÿ™

9 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTTuesday Tunesday!!
Here is another of my favorites! Just a little Patsy Cline letting us know that she is "Crazy" with her lovely velvet voice.
If you have a song you would like me to feature on upcoming Tuesday Tunesdays, just drop me a note at swilliams@copdfoundation.org and I will make sure to include it soon!

https://youtu.be/MbnrdCS57d0

10 hours ago

Kristen Willard

Kristen WillardHello team Social and happy Tuesday (which feels like a Monday)! We havenโ€™t Boggled in a while, so here is a new one! Let me know how many words you get and what your fave word was. And ... go!

11 hours ago

Kristen Willard

Kristen Willardanswered the question Will Returning to work during Covid put my life at risk?

Great point, Bret. Holly Joyce, this question was addressed in our latest webinar - you can watch it here: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Coronavirus-Information.aspx

11 hours ago

edpe77

edpe77

Ben I thought you might find this if interest.
ed
Managing Arthritis During COVID-19 Thursday, May 28, 20207:00 โ€“ 8:30 p.m. EST

OPTION 1: RSVP BY JOINING the Connect Group nearest you
.Step 1: Log-In at connectgroups.arthritis.org - or - Create an online profile if you havenโ€™t already done so.

12 hours ago

Stephanie Williams, RRT

Stephanie Williams, RRTanswered the question Check In โ€“ Guess what? Kindness Rocks!!!

Bill66 - Bill Wornstaff NJ State Captain these are awesome!! Is that puff paint?? I think you should do one with your trademark 🤘🏻on it! That will always be the emoji that โ€œbelongsโ€ to you! 😂😉

14 hours ago

Alph

Alph

SpO2 reads low but feel fine.  Must be opposite day. 

14 hours ago

Cape Codder

Cape Codderhttps://www.medpagetoday.com/blogs/skeptical-cardiologist/86521?xid=nl_mpt_PulmCCM_2020-05-26&eun=g9976881d43r

14 hours ago

Bret99

Bret99answered the question Will Returning to work during Covid put my life at risk?

HI Holly, if you scroll up to the top of the page, you will see a link to a page filled with information about COVID-19 and the impact on people living with COPD. The page contains many helpful resources, including all of the webinars the Foundation has …

16 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good morning, folks! ๐ŸŒž
Well, my husband is still out of work. He has been collecting unemployment since his vacation pay ran out. He has been home since March 14th. He will be calling his boss today to check in. There may only be part-time work for now, which is not good! Restaurants are allowed to seat people outdoors, 6 feet apart. Country clubs are open. Diners are closed because it is not worth it for them to do take-out only. Usually, work is very busy this time of year. 
I am planning on trimming nuisance tree branches today. I'd like to take care of this before the branches are out of my reach. 
I am growing many types of tomatoes, plus other edibles. I was able to buy 2 Lemon Verbena plants. My favorite!!! ๐Ÿ˜
Have a wonderful day! Sending love and caring to each of you! ๐Ÿ’ž
DebbieB. ๐Ÿ˜€

17 hours ago

Holly Joyce

Holly Joyce asked the question: Will Returning to work during Covid put my life at risk?

I am a school bus driver. I am concerned about when school opens up if returning to work with Covid if it would be a wise decision. I feel like it puts me in a dangerous situation.โ€™How dangerous is Covid for all of us with COPD

18 hours ago

CeCe V

CeCe V

I am new and I need to tell someone that my husband has Stage 4 COPD and now he has lost muscle in his legs and cannot walk after being hospitalized for 18 days .. has anyone else experienced this as a caregiver or patient ? Not sure where I am gong with this just need to talk 

23 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question GPs should not try to detect mild COPD?

I disagree, 2 years prior to being diagnosed, I met with a pulmonologist and he gave me No indication I had COPD except to say you did this to yourself. I continued to smoke 2 more years causing more damage. I've been in pharmacy management 31 years, …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Hello, friends! I wanted to post a picture of the white birch tree I planted in honor of my dearly departed brother. โ˜บ

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question GPs should not try to detect mild COPD?

I think you'd find that many of the Foundations' leaders would agree that COPD is both over and under-diagnosed and that primary care physicians should make referrals to pulmonologists for solid diagnoses and treatment recommendations. I also think …

1 day ago

Lungguy

Lungguyanswered the question Is this COPD?

Consider buying a $30 pulse oximeter to see if your oxygen saturation falls more that 4 percent when you become short of breath. Compression of the lungs with a reduced vital capacity is called restriction. Most PFT labs have not updated their …

1 day ago

Lungguy

Lungguyasked the question: GPs should not try to detect mild COPD?

This editorial was just published. I'm biased, and agree with it, but COPD Foundation sponsors will not. Big Pharma has been selling sickness for decades. What do you think? https://rdcu.be/b4oKQ

1 day ago

Lidia

Lidia

Iโ€™m new in this, but is good to hear of other people going through COPD , and their advice m thank you 

1 day ago

FTL85

FTL85answered the question Copd and covid 19

https://bc.lung.ca/how-we-can-help/covid-19/coronavirus-explained-and-what-do Here is an eight minute video that explains a lot about how Covid 19 works on the body, how to prevent infection, etc. The key is the COPD population needs to prevent any …

1 day ago

das23

das23

Happy Memorial Day to all those who serve or have served in any way-shape or form
God Bless You All!!!     Thank You!!

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Wishing everyone a safe Memorial Day!! 

2 days ago

edpe77

edpe77

Caroline, again thanks for the suggestion of making a "permanent" copy of my PB cookie Nick 20. She just got them today, and sent me the following text..."the purple cookie cutter molds and adorable... they will be a great keepsake." Just as you suggested.
ed๐Ÿ˜‡

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Copd and covid 19

In the webinar on Thursday both Dr. Tomashow and Dr. Han talked about their COPD patients who had contracted the virus and recovered. I've talked with several of my doctor friends who've also had COPD patients contract the virus and survive. Of their …

2 days ago

Scooter0324

Scooter0324asked the question: Copd and covid 19

Does anyone know anyone who has copd and become infected with covid 19?

2 days ago

edpe77

edpe77

I just put shorts on this afternoon!!! It's 82F, and going up tomorrow. Apparently summer has arrived here in Michigan. Also I just switched the furnace from heat to A/C {$$$}. Enjoy the holiday, and "stay in/stay safe"

ed

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Masksโ€”who should wear them and how to get them?

Hereโ€™s a better link just scroll down to find the video youโ€™d like. Contains a wealth of COVID-19 info. The latest video has the most current info, but all the materials are helpful. https://www.copdfoundation.org/Learn-More/I-am-a-Person-with …

2 days ago

JeanO53

JeanO53

I heard from friends that a former colleague of mine died on Friday from an intracranial hemorrhage as a result of a fall.  She was only 69 years old; one of those people filled with compassion and drive to serve others.
    Just a reminder to be careful and mindful - out there and at home.  We're not as invincible as we might like to think.

2 days ago

Dondonsoy

Dondonsoyanswered the question What is everyone doing during COVID19

Exercise, meditate and reading! I have been also doing projects around the house thankfully Lowe's has pickup service!

2 days ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Want to wish everybody a Safe Memorial Day! 

3 days ago

PamK

PamKanswered the question What is everyone doing during COVID19

I have only been out to the grocery store and to drug store. Since the weather has changed I have been outside working in our backyard and talking to our neighbors from our porch

3 days ago

DanK

DanK answered the question What is everyone doing during COVID19

Iโ€™m the same, havenโ€™t been out since March other than to get shot in neck like edpe77. We discovered Zoom and thatโ€™s a good time killer. Have sent invitations to friends and friends we havenโ€™t seen in years. We limit call time to 30 minutes. Havenโ€™t …

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Masksโ€”who should wear them and how to get them?

Thanks to COPD Foundation for another great webinar! You answered so many of the burning questions about COPD and COVID-19, including talking about masks and what different folks have tried to come up with a less uncomfortable face covering, issues with …

3 days ago

Ojibwayne

Ojibwayneanswered the question Does anyone experience a "hollow" feeling near the adam's apple?

I have that same feeling every other day, it's like a hollow breathing effect, happens rabdomly. I dont know when it will happen, or why, I dont feel "out" of breath when it happens, its so odd. When it "does" occur, it'll feel as though I'm breathing …

3 days ago

Apricot88

Apricot88answered the question Inhaled steroids instead of LABA/LAMA?

Hi SASSYCAT...โ€ฆ as can be seen from the excellent replies to this question >>> THERE IS NO SET ANSWER โ€ฆ. as COPD covers MANY LUNG disorders and each sufferer must learn how and WHEN to use STEROIDS for their own breathing difficulties [the less …

4 days ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Having a rough day today, of course its my day off.

4 days ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

4 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Here is one pic of with my mask my daughter made.  An old COPD shirt that was getting dingy so asked her to make me a mask from the shirt.  She made two and has wire for nose piece and filter inside. you can remove to wash or  new replacement filter.  

4 days ago

FTL85

FTL85answered the question Inhaled steroids instead of LABA/LAMA?

Lots of great advice here! Iโ€™ll add my 2 cents also, you must have an inflammation issue with your airways, therefore the corticosteroid works best. The corticosteroids work as an anti-inflammatory. The other inhalers you mentioned work more for …

4 days ago


COPD360social posts are monitored by Senior Director of Community Engagement and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.