COPD360social welcomes new member JackieG who joins 64,503 current members of our community. Weโ€™re glad you're here!

baileymccrary

baileymccraryHi everyone! According to the COPD Action Alliance's white paper "COPD in America," nearly one-third of surveyed COPD patients said they faced barriers to getting needed medication, treatments, or medical supplies. The COPD Foundation Captain Program advocates for policies to improve treatment access for the lung health community - you can learn more about it here: https://www.copdfoundation.org/Take-Action/Get-Involved/State-Captains.aspx 

What has been the biggest barrier to COPD care for you, your loved one, or your patients?

Meet Your COPD Foundation Advocacy Captains

COPD Foundation Captains are volunteers with COPD, caregivers, friends and family members or healthcare providers who use their contacts and talents and partner with the COPD Foundation to serve as state and community leaders.

2 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerRemembering Bill Clark

Itโ€™s been just over a year since Bill Clarkโ€™s passing, and his presence is still felt in so many ways across this community.

Bill truly believed in people. He believed in showing up, listening, sharing what we know, and doing things with heart. That way of being didnโ€™t leave when he did. You can still see it in the conversations here, in the support people offer one another, and in the care that continues to shape this space.

Being here and carrying on the work the way Bill wanted is something I think about often. Itโ€™s an honor to serve this community in a role he believed in and trusted me with. Every day, I try to lead with the same kindness, thoughtfulness, and steady presence that Bill brought with him.

We remember Bill not just for what he did, but for how he made people feel -- welcomed, supported, and never alone. That spirit continues to guide what we do here.

Thank you, Bill. Iโ€™m grateful to be here, carrying this forward, and to help keep your spirit alive in this community. ๐Ÿ’›

1 day ago

perkyH

perkyH

anyone have Lung reduction surgery

1 hour ago

Jazzybean

Jazzybeananswered the question How do you stay healthy and active while living with COPD?

Physically, staying as active as you can is the best all around advice in my opinion, of course other than smoking:) It's the mental aspect of this disease that presents a constant challenge to me. I admire those who can get up in the morning, and no …
Dinna25HIcopd - Hawaii State CaptainKaren Deitemeyer - Florida State Captainand 1 other also answered the question Dinna25and 3 others also answered the question

2 hours ago

netmouse

netmouseanswered the question Won appeal on drug cost of Spiriva inhaler

Jean053 - great answer, thank you. It is great to hear of your success with this drug. I have hope. As you suggested, I have now messaged my pulmonary doctor to see if he can get me a sample to just see if the drug works. My first inhaler about 8 years …
JeanO53 also answered the question JeanO53 also answered the question

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŽ๐ŸAPPLE NACHOS๐ŸŽ๐Ÿ1 medium apple, sliced thinly into about 25 slices1/2 cup plain Greek yogurt 1 tsp. honey1 tbsp. almond butter 3 tbsp. water1 tbsp. salted pepitas1 tsp. chia seeds1 tbsp. granola clusters1/8 tsp. cinnamon Arrange the...

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's terrific Tuesday! I can see that great big smile from over here! ๐Ÿ˜ƒ
Thank you for keeping those positive vibes flowing! ๐Ÿคฉ
Have an awesome day, friends! ๐Ÿ˜

8 hours ago

alexa19

alexa19answered the question Pft interpretation compared to previous. Noted as mild obstructive defect, preserved volumes, preser

Hello, So if I understood correctly you are under stress now? That raises your cortisol level and your body gets in a fight or flight mode, maybe that is why you are not feeling well. I had the same issue after my pneumonia. I was feeling worse, …
Kmcnamara68David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Kmcnamara68and 1 other also answered the question

10 hours ago

alexa19

alexa19answered the question Is Breyna as effective as Symbicort?,

Hello KathyCat364, The inhalers have the same composition, so they have: Corticosteroid (budesonide) to keep your inflammation under control and to improve life quality Long action beta agonist (Formoterol) to keep your airways open. Even …
KathyCat364Jonnie Korinko (COPDF Director of Education)Shazam and 1 other also answered the question KathyCat364and 3 others also answered the question

11 hours ago

GAnne

GAnnecommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Oh that open face tortilla sounds delicious. The a avacoda , yum...

14 hours ago

netmouse

netmouseasked the question: Won appeal on drug cost of Spiriva inhaler

Below is what I just messaged my pulmonary doctor: You prescribed a new inhaler Spiriva. I today won an appeal by phone with my drug plan provider to change the cost of Spiriva Respimat 2.5 MCG INH from the Medicare Tier 4 high cost (as a non-preferred …

19 hours ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF Communicationsasked the question: How do you stay healthy and active while living with COPD?

People with COPD are asking: how do you stay healthy and active while living with COPD? We asked members from our COPD community to share your own personal tips. Check out what they came up with! Join us in the conversation by sharing your own tips for …

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ‡๏ธBASIC SALAD DRESSINGโ‡๏ธ 3/4 cup olive oil Juice of 2 lemons4 tbsp. grated Parmesan cheese 1/4 tsp. saltFreshly ground black pepper to taste 1/4 tsp. sugarDash paprika 1 garlic clove, gratedPlace all ingredients in a mason jar. Cover and...

1 day ago

GAnne

GAnneanswered the question Indigestion, eating

Alexa, I would be very interested in looking at the anti inflammatory diet, never know it might help. Everyone is different. Thank you Dinna25,I take the same medication, only once a day.I asked my pulmonary Dr about 2 times he said he did think I …
Caroline West Virginia State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Dinna25and 1 other also answered the question Caroline West Virginia State Captainand 3 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday!
M- Motivational
O- Outstanding 
N- Nurturing
D- Delightful 
A- Able
Y- Yay!!!!!
Put all of these letters together, and you've got the makings of one fine day! ๐Ÿ˜Š
Sending lots of positive vibes your way! ๐Ÿคฉ๐Ÿคฉ๐Ÿคฉ

1 day ago

Margo May

Margo May

Hi. I am new to the group. I have COPD and emphysema. I have been managing well with trilogy and supplemental oxygen, however, recently, I have been having extreme shortness of breath and rapid heart rate up to as high as 12 0 or more, doing something as simple as getting up to walk to the bathroom. I wonder why my heart is beating so hard.

1 day ago

Maruis engelbrecht

Maruis engelbrecht

Hi my name is maruis and are from south africa.i am 60 years old and jave stage 4 copd for 2 years now.i still struggle to get to terms with my sickness.as you all know we have so many questions.i am new to this group and dont know much about all the tecnology.so i just wish to be part of something knowing there are other people like me with the same anguish and fear every day like me.i pray for each and everyone of us for our fates are sealed.God bless .

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Happy Sunday!
Whether today includes naps, snacks, fresh air, or absolutely nothing on the agenda, we hope it gives you a chance to recharge. And if itโ€™s nice where you are, maybe step outside for a bit of fresh air โ€” those small moments can really add to the reset. Sometimes a calm Sunday is the best way to start the week off right! ๐Ÿ˜Š

2 days ago

GAnne

GAnneasked the question: Indigestion, eating

Itโ€™s hard to not get discouraged when it seems like it always somethingโ€™s else. I am a person of faith and when it comes to being able to eat with the indigestion, I canโ€™t seem to find what to do. Is anyone else having this issue. The acid in some fruits …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a carefree, easy breathing Sunday! 
Keep on smiling, friends! ๐Ÿ˜ƒ

2 days ago

Csmith1963

Csmith1963

Woke up with another flair up.  Itโ€™s getting to be a real struggle.  Oh well will keep going one day at a time

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Thereโ€™s a new medication from China under investigation for better breathing, similar in mechanism of action to ensifentrine.  Itโ€™s AN01.  Itโ€™s currently in stage 2 trials.  Maybe if it gets approved in some years, it may provide some competition and help reduce prices for the PDE3/4 medications that help folks who are still breathless while on triple-therapy for COPD.

2 days ago

GAnne

GAnneanswered the question Smoothies

Thank you Caroline
Caroline West Virginia State Captainalexa19 also answered the question Caroline West Virginia State Captainand 1 other also answered the question

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Advice to get back

HI dinna - I want to emphasize that while exercise is important, and I'm glad that you keep active, please try not to obsess over it. Life is to enjoy, and there will be times when you cannot do as much as you would like to, but please don't let that …
Ken Benson-California Lung Health Advocate and State CaptainGAnneWildebeestand 5 others also answered the question Ken Benson-California Lung Health Advocate and State Captainand 7 others also answered the question

2 days ago

Dinna25

Dinna25answered the question Albuterol

Hi Vipor I'm no expert, just a copd patient learning as i go with help from the group. I have Trimbow 2 puffs morning and night, this raises my heart rate when i first inhale but since posts on this i have watched, heart rate returns to normal within 1 …
DebbieB.-Connecticut State CaptainBarealexa19 also answered the question DebbieB.-Connecticut State Captainand 2 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, everyone! Do you know who makes 360Social a special place to visit? YOU DO! Each and every one of you! 
Grab a cup of coffee, settle in, and make yourself at home!
โ˜• ๐Ÿ›‹ ๐Ÿ˜ƒ

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I am trying very hard to stay up until bedtime.   Since the onset of this infection, I have slept most of the day and night.  I usually arise before 7 and have been having a mid-morning nap at around 11 or 12 and then another one around 4pm.  I had my morning nap and now I am trying to stay awake until time to go to bed.

3 days ago

Dinna25

Dinna25asked the question: Advice to get back

Hi all Happy new year to you all. Just some advice really, I have been poorly so any exercise went outta window. I am now starting to feel better and today thought exercises but failed miserably to maintain the level i was at, so annoyed as i was …

3 days ago

GAnne

GAnneasked the question: Smoothies

does anyone do smoothies with TJ or without milk. I got one the other day that had fruit juice,, bananas and strawberries, with whey protein. Was large so I ended up making 3 out of it just adding more juice and fruit. It was like the coldness helped me …

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.