COPD360social

For a decade, the COPD Foundation has provided a growing COPD community with resources and education. Now we want to take our work to the next level. We want to hear from YOU daily.

Welcome to our interactive, collaborative community: COPD360social. You can join us and other friends, learn about events in your area, participate in research, chat with the experts, and learn how to take action -- all on your time, at your pace. COPD360social is the COPD Foundation's way of saying 'Thank you' to a community that can make the world take notice of a silent epidemic.

Join COPD360social, because we are stronger when we work together.

Create your COPD360social profile today!

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Yankoz

Yankozreceived the badge Getting started

Earned the Getting started badge!
TommyboyEmilyStullOrlene Pipittand 27468 others also received the badge Tommyboyand 27470 others also received the badge

28 minutes ago

Jan Cotton-Illinois State Captain

Jan Cotton-Illinois State Captainanswered the question Medicare and 02 Coverage

I have the concentrator with a refil tan attached. I just refill my portables when they are empty. So convenient.
Ms DVBill66Karen Deitemeyer - Florida State Captainand 1 other also answered the question Ms DVand 3 others also answered the question

1 hour ago

Vinny M

Vinny Mvoted on A COPD Case Study: Susan M.

Gave a thumbs up for a PRAXIS blog post!

2 hours ago

Jimmy S

Jimmy S

Good Morning and thank you for the add Bill.  Hope your having a great start to your day.

3 hours ago

Kristen Willard

Kristen Willardadded a new article A COPD Case Study: Susan M.

COPD case study

Meet Susan M! Share your impressions in our latest COPD case study.

Summary of in-patient admission: Susan M. is being discharged today following a 6-day ICU and step-down admission for acute exacerbation of COPD with bacterial pneumonia requiring intubation and mechanical ventilation for a period of 32 hours. Subsequent to her extubation and...

3 hours ago

edpe77

edpe77

The madness of this disease! I keep my inhalers, and a log sheet in the bathroom. The log sheet is just to tell me the time of a puff. So tonight, feeling fine, I noted it had been 5hrs since my last puff. Typically I need a boost between 3 - 4 hrs. I kid you not, I walk out to the kitchen, there's good ol SOB! I think it's a "mind" thing.
Anyone else notice this phenomenon?
ed


16 hours ago

Bill66

Bill66answered the question COPD & Strange Chest Pain?

Clarice, glad your having your pain checked out, I wish there was a way all these weird sensations, aches or pains were somehow documented by someone more comforting than DR. GOOGLE!
ClariceevesDavinaTand 5 others also answered the question Clariceand 7 others also answered the question

16 hours ago

edpe77

edpe77answered the question THE CASE FOR SELFISHNESSโ€ฆ.

Excellent issue! Case in point, I had some friends over for an evening of euchre. We were playing for a short while.and one of them has serious coughing spell, from his cold. By not being SELFISH, I subjected myself to the risk of a repertory infection - …

16 hours ago

Bill66

Bill66

My First COPD T-Shirt will be here shortly, I crack a huge smile evertime I think about it! I closed my eyes and dreamt I heard the UPS Guy bringing it to my door today๐Ÿ˜€

17 hours ago

Jastro

Jastroasked the question: Medicare and 02 Coverage

I am told Medicare won't cover a POC and 02 tanks. Ok, what do people do if the power fails and tanks are the only option?

17 hours ago

Uncle Jim

Uncle Jimasked the question: THE CASE FOR SELFISHNESSโ€ฆ.

Since you were just a little bitty thing, you were told not to be selfish. If you failed to share a toy, a game, or whatever, you got hollered at. Selfishness, coveting something, refusing to put others first, was portrayed as a bad thing, a sure way to …

18 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Bullea Treatment

Hi kking5112, I'm sorry that you're getting confusing information. I don't have any experience with blebs or bullea, but wanted to welcome you to 360Social. I hope that one of our RT's or patients who have a personal experience will see your post soon …

18 hours ago

kking5112

kking5112asked the question: Bullea Treatment

We are being told so many different things, I know everyone,s case if different but if you have a bullea or a bleb I have questions for you. 1) Did you have it removed? Did it help? 2) what size was or is it or they? 3) If it or they have not been …

20 hours ago

Bill66

Bill66

Who came up with the COPD Slogan For the T-Shirt? Its pretty awesome! Just an FYI:  I'm buying woolite for the T-Shirt and handling it like a cashmere sweater...

21 hours ago

JeannieM

JeannieMreceived the badge Great Question

Earned the Great Question badge!
Stephanie Williams, RRTedpe77CharlesHand 9 others also received the badge Stephanie Williams, RRTand 11 others also received the badge

1 day ago

Kelseytwo1

Kelseytwo1answered the question How to overcome Breathlessness

stiolito for me works really. well Have been on it about 2 months. IT worked for me almost immediately. So far for me, it works better than any others. I am late stage COPD/emph. Took me a very long time to come to terms with this disease, changed my …
JonHI2centsSusan Nanceand 3 others also answered the question JonHIand 5 others also answered the question

1 day ago

CathyC

CathyCvoted on A COPD Case Study: Jim B.

Gave a thumbs up for a PRAXIS blog post!

1 day ago

JeannieM

JeannieManswered the question Is this copd related or something else?

Went to the ER today and not sure I'll ever do that again. Hubby and I got there at 10 am and left at 4:30 pm. Still sitting in the waiting room. Live in a rural area and it's the only hospital within about 40 miles. My opinion of the hospital is so bad …
Viper65clipper (Debbie) - NJ State Captain Ms DV also answered the question Viper65and 2 others also answered the question

1 day ago

Clarice

Clariceanswered the question Have you seen the new COPD Awareness shirt?

Since November is COPD Awareness month...hoping mine will come sooner rather than later so I can wear it to more of the organizations I volunteer with to help spread the word.
Jan Cotton-Illinois State CaptainStephanie Williams, RRTOrlan = State Captain also answered the question Jan Cotton-Illinois State Captainand 2 others also answered the question

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Are all pulmonologists so discouraging and give you so little time

I think you might want to look for a new pulmo. There was truth in what he said but he also omitted so much that he painted a very skewed picture. First I a going to assume that when you say FEV of 71 what you mean is FEV1 71% predicted. I disagree that …

1 day ago

Angie67

Angie67asked the question: Are all pulmonologists so discouraging and give you so little time

I went for my first 3 month check-up and I asked the pulmonologist was my FEV of 71 bad and he said yes it was bad. My pulse ox was 97, my lungs sound fine and he said I still don't need meds. I told him that I have hypothyroidism and am now on meds for …

1 day ago

Kristen Willard

Kristen WillardI appreciated this tweet and photo from Dr. Elaine Bevan-Smith in the UK. She is very active on Twitter and a proponent of exercise and activity for people with COPD, including pulmonary rehabilitation and participation in choirs!


https://twitter.com/breathe_happy_/status/918716976205312000

1 day ago

Yellowrose

Yellowrose

I had my full work up and dr said the copd is moderate. I smoked for 20 years but haven't smoked for 25 years. The damage was done all those years ago. I'm on oxygen now at night at level 2 and take stiolto but only in AM; haven't required the emergency albuterol.  I hate exercise but now i have no choice.  Will start walking half hour a day. Always an excuse cause i work and tired when i get home. Thank you for all your comments. 

2 days ago

Nancydun

Nancyduncommented onWe Need Your Comments for the National COPD Action Plan

 Hi it said someone sent me a comment. I've had a problem with my hip replacement that I got on 1/20/2015, I was in severe pain, when trying to get off the recliner. To make it short I had an infected hip, which they ended up removing my hip and...

2 days ago

lbcoopman

lbcoopman

I had an episode I have never experienced this weekend. At an event we had to walk quite a distance. when we got there our seats were up higher in the stadium. the walk was a slow process to make that distance and i was a little winded but thought I was okay. rested a few went to go up the stairs got about 10 steps and all the sudden my heart was pounding and I could not breathe felt just limp/ set my bottle on 4 and after about 3 minutes I got some breath and it got a little better I turned it to 2 and sat there about 10 minutes after that I felt tired and very shaky on the inside but made it up the stairs okay. during the next few hours i went down and back up 2 times without any more than my usual go slow breathing a little harder. yesterday and today still shaky and very tired. 
i have had a throb pain that comes and goes above right brest below collarbone and a pain that is sporatic in my back between right shoulder blade and spine. tghis has been several weeks. now my question is was this a copd attack or a heart attack? Would it do any good to go in now? not having insurance its expensived if they cannot tell anything. my son in law is a medic and thinks it was the heart.... 

2 days ago

jackson223s

jackson223scommented onWe Need Your Comments for the National COPD Action Plan

 Jackson GraysonLast december I was told I had mild emphysema. I was shocked, I had only had minor breathing problems at times. However I had smoked for 17 years when I was very young and had quit over 38 years ago, when I developed asthma. I always...

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.