COPD360social welcomes new member deb7463 who joins 63,288 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŽ‰ Well hey there, August -- we didnโ€™t see you sneaking up like that!

Somehow we blinked and now weโ€™re here, smack in the middle of summer with sunscreen in one hand and a fan in the other. Letโ€™s make the most of it together on 360social!

Hereโ€™s how to jump into the August fun:

๐ŸŒž Share your summer shenanigans โ€“ whether it's a peaceful porch moment or your AC doing the real heavy lifting, we want to see it!
๐ŸŽฅ Check out our video library on our YouTube Channel โ€“ it's like a summer blockbuster lineup, but with breathing tips instead of explosions!
๐Ÿ’ฌ Start a conversation โ€“ big questions, little wins, or just a โ€œhey yโ€™all!โ€ -- all welcome!
๐Ÿถ Fluffy Friday is still going strong โ€“ let those pets earn their spotlight (and treats)!

Letโ€™s roll into August with a smile, some good chats, and maybe a popsicle or two. Glad to be here with all of you--now letโ€™s keep the support (and the laughs) going!


https://www.youtube.com/@CopdfoundationOrganization/videos

COPD Foundation

The COPD Foundationโ€™s mission is to help millions of people live longer and healthier lives by advancing research, advocacy, and awareness to stop COPD, bronchiectasis, and NTM lung disease. Embracing innovation, we engage, educate, and empower our community through a unique 360-degree approach. …

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Not shenanigans exactly, but hacked back the vegetation that was brushing the roof and gutters. We have lovely bushes that just keep growing!  I trimmed enough to fill two huge rolling bins with clippings, which is much more yard work than I usually do. (H usually does it but heโ€™s busy stapling insulation into his new shed that was built on back corner of our property.)

5 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Bronchial atresia - should I be looking for treatment?

Bronchial atresia is a rather uncommon finding. People symptomatic with it often end up needing surgery to get the damaged part of the lung removed ( assuming it is limited in the lung). It sounds like you need to be seen at an academic center.
Jonnie Korinko (COPDF Assistant Director of Education)SDouglasmubi also answered the question Jonnie Korinko (COPDF Assistant Director of Education)and 2 others also answered the question

12 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! And, a great big Happy 65th Birthday to my husband Bruce! ๐Ÿฅณ
I wish everyone a fantastic day! ๐Ÿ˜ƒ

23 hours ago

JD85

JD85answered the question Anyone hopeful about possible regenerative therapies in near future?

Looks like it could be marketed in the US under the name "Pulmovinci" as REGEND001 has been given FDA Orphan Drug Designation for the treatment of IPF. Although not directly for COPD it is again another small step in the right direction as it seems to be …
45yrcopdasthmaHIcopd - Hawaii State CaptainKaren Deitemeyer - Florida State Captainand 2 others also answered the question 45yrcopdasthmaand 4 others also answered the question

1 day ago

Katw

Katwanswered the question Anyone have problems with desaturating during sleep

well my sleep study came back and Iโ€™m not desaturating overnight. I have read it could be C02 retention so my doctor had me get an ABG and I go back to doctor Monday for results. Does anyone use HFNC for mild-moderate C02 retention if you cannot tolerate …
TonicDkWildebeest1fatfannyand 1 other also answered the question TonicDkand 3 others also answered the question

1 day ago

GAnne

GAnneanswered the question Never had any phelm with so many colors

hey Karen, a week ago he did a chest x-ray but the pulmonology he didnโ€™t tell me what it read. I read it online and it seemed to have just repeated the same thing. My CT scan said in April. And he said in April, he wanted to watch the scaring
Caroline West Virginia State CaptainmubiKaren Deitemeyer - Florida State Captain also answered the question Caroline West Virginia State Captainand 2 others also answered the question

1 day ago

JD85

JD85answered the question Stem Cell Research Finally Cures Mild Emphysema in Humans

Study Details | Treatment of Chronic Obstructive Pulmonary Disease (COPD) With Diffusion Capacity Defect by REGEND001 Cell Therapy | ClinicalTrials.gov The Chinese are really pushing hard on this, there population (and the world) are really suffering …
Who Me ?Richard DJDebbieB.-Connecticut State Captainand 4 others also answered the question Who Me ?and 6 others also answered the question

1 day ago

mubi

mubianswered the question Best air purifier for smokers, Expert recommendations to choose

Both of the air purifiers you mentioned are great choices,I have actually used both. You are right, the LEVOIT is excellent for general air quality but in my experience, it is not the strongest option for smoke. The PuroAir 400 works better for smoke …
Sims0630das23 also answered the question Sims0630and 1 other also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy, Happy Saturday! Let the beauty flow from within to spread sunshine everywhere! 
Have a positively awesome day! ๐Ÿ˜€

1 day ago

JLD23

JLD23

Hello. I am a 50 year-old veteran, school teacher. I started taking Trelegy about 2 weeks agoโ€ฆ I now sound like a combination of Bryan Adams or Kim Carnes. I donโ€™t know whether to start singing โ€œSummer of 69โ€, or โ€œSheโ€™s Got Bette Davis Eyesโ€โ€ฆ What I do know with 100% certainty is that I can NOT start teaching next month with this ridiculous level of hoarseness. Iโ€™ve gargled until Iโ€™ve gagged, and Iโ€™ve drank enough water to refloat the Titanic. Anyone have any ideas on what I can do? I have called the pulmonologist 3xโ€ฆ Never got a call back today, so now Iโ€™ll have to wait until Monday. I donโ€™t want to take this inhaler anymore. Ugh! 

2 days ago

JeanO53

JeanO53Happy Feathery Friday!
Weโ€™ve cooled off here in Southeastern Wisconsin and itโ€™s been such a relief.
Yesterday, late in the day, it was very windy and the waves were rolling in higher than usual on Lake Michigan. I find it mesmerizing to watch. However, one of the side effects of the high winds sand blowing in my face. ๐ŸŒฌ๏ธ.    
Walking away from the beach, I watched this Spotted Sandpiper near and in the waters where the creek flows into Lake Michigan.

2 days ago

JD85

JD85answered the question Has anyone participated in a clinical trial for COPD?

How did you find it, was the trial a success? I think there will be lots of volunteers for trials like REGEND001, having looked at the current phase 2 trial requirements unfortunately people like myself don't fit the profile.
Karen Deitemeyer - Florida State CaptainCaroline West Virginia State Captain also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‰WATERMELON AND CUCUMBER SMOOTHIE๐Ÿฅ’Not only is this smoothie hydrating, it gives you another reason to use up those garden goodies! ๐Ÿ™‚1/2 cup peeled, roughly chopped English cucumber, plus 1 slice for garnish 3 tbsp. unsweetened almond milk 1 tbsp....

2 days ago

JD85

JD85answered the question Emphysematous Changes On CT Incidental Find

So since the Propranolol incident my chest has felt terrible, coughing, pain/aches, mucus, I hope with more time it gets better but definitely a reaction of some sort. I have a further lung function test and then a consultation with a consultant in a …
mony072brydyKaren Deitemeyer - Florida State Captainand 2 others also answered the question mony072and 4 others also answered the question

2 days ago

Ginger100

Ginger100Hi Group,


Looking for some advice please as Iโ€™ve  noticed there are some expert COPD specialists on this forum.


Iโ€™m a 47 yr old ex smoker with a 10 pack year smoking history and I smoked for 23 years, I stopped smoking 6 years ago



I had for a spirometry test because I noticed I had shortness of breath and a chronic cough.My cough has now improved after taking a 3 month course of acid reflux medication.And all diagnostic tests show I donโ€™t have asthma. However, the specialist believe I still might have asthma,because Iโ€™m now taking fostair and my cough has improved even more.


My concern is my fev1/fvc ratio is 72%, the cut off is 70%. Meaning itโ€™s quite close to a COPD diagnosis.Although I do have a super high FVC, which subsequently causes my fev1/fvc ratio to be in the low 70โ€™s


The question I would love to ask is this.


Does this most likely mean in my later years I will develop copd??


And if do unfortunately develop copd will it only be extremely mild due to having a high fev1 115.7%??


I would really appreciate some expert feedback. Thanks for reading.

2 days ago

mony072

mony072asked the question: Best air purifier for smokers, Expert recommendations to choose

I am currently supporting a loved one who has COPD and is still struggling with long term smoking addiction. While quitting remains a personal and ongoing challenge for him, I am trying to do what I can to reduce exposure to smoke and pollutants inside …

3 days ago

SDouglas

SDouglasasked the question: Bronchial atresia - should I be looking for treatment?

hello there Im a 51 year old woman in good general health. I was diagnosed with bronchial atresia about 20 years ago after recurrent chest infections ands pleurisy prompted a CT scan. At the time I was told that there was no problem with CBA ands …

3 days ago

Community Announcements

Community Announcementsadded a new article Bronchiectasis and NTM Association joins leading lung health organizations for third annual World NTM Awareness Day

Miami (July 31, 2025) - The Bronchiectasis and NTM Association joins other global patient advocacy organizations, professional societies, and lung health experts for the third annual World NTM Awareness Day on Monday, August 4, 2025.

Nontuberculous mycobacteria (NTM) are naturally occurring bacteria in the environment, commonly found in soil and natural and treated water. While NTM can affect anyone's lungs, those with suppressed immune systems, bronchiectasis, or other pulmonary diseases are particularly vulnerable.

NTM lung disease causes a buildup of excess mucus in a person's airways, which can cause widening and scarring that make it difficult to clear mucus. It is estimated that more than 200,000 people in the United States have NTM lung disease. That number is increasing approximately 8% every year.

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ…๐Ÿ…๐Ÿ…TOMATO VINAIGRETTE๐Ÿ…๐Ÿ…๐Ÿ… A great way to use tomatoes from your garden! 1 ripe red tomato, chopped3/4 cup olive oil 1/4 cup cider vinegar 1 clove garlic, finely chopped 1 tsp. dried oregano 1/2 tsp. salt1/4 tsp. freshly ground black pepper...

3 days ago

Davidgh

Davidgh

Greetings all!!  I must be really naive or maybe just ignorant but until recently I thought that my Inogen One G5 concentrator produced the number of liters of oxygen per minute I would receive based on what I selected,1-6.  It is my understanding that at a setting of 6 POC is only producing 1.26 liters per minute.  Only my Inogen at Home with constant flow delivers the correct LPM selected.  ๐Ÿ˜•

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Just got a postcard for a class settlement of an Apria lawsuit, as they were hacked in 2019.  If had in small print on one side of the post card the claim number, so I filed a claim.  Be on the lookout, if you were in Apria's database in 2019 (because you or a loved one received services from them).  You will need to find the claim number on the bottom of the postcard in order to make a claim.

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain๐ŸฆšWishing everyone a day filled with hope, joy, and easy breathing! Have a wonderful Thursday! ๐Ÿ˜Š

3 days ago

45yrcopdasthma

45yrcopdasthmaanswered the question Regrets

Oh and the more mellow looking wave only has a foot of water between it and the reef if that. That is the place i bounced of yesterday. An acquaintance of mine hit his head on a slab and drowned, but what a way to go. Doing what you love. I've always …
Ken Benson-California Lung Health Advocate and State CaptainJD85JeanO53 also answered the question Ken Benson-California Lung Health Advocate and State Captainand 2 others also answered the question

4 days ago

45yrcopdasthma

45yrcopdasthmaanswered the question ADD med helping breathing

They were used for breathing issues. Like about 50 years ago. Too many side effects, mostly cardiac. Many copd patients can't take stimulants due to heart issues.
Brittishere also answered the question Brittishere also answered the question

4 days ago

Brittishere

Brittishereasked the question: ADD med helping breathing

Last month I began a new med to treat my ADD. Iโ€™ve had issues with focusing like reading, comprehension etc since I was a kid. Incidentally, since taking this medication called Vyvanse, Iโ€™ve noticed my breathing has gotten about 90 percent clearer. I …

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.