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Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒ Visit My Corner of the World Wednesday!

Itโ€™s Visit My Corner of the World Wednesday โ€” and that means itโ€™s time to share a glimpse of your world! ๐Ÿ“ธ

Letโ€™s fill 360social with the views that make us smile โ€” a favorite spot at home, a sunrise that lifts your spirits, or the places that bring you calm and comfort. Whether itโ€™s a beautiful landscape or something simple and meaningful to you, every photo adds a little more heart to our community. ๐Ÿ’™

Post your photo below or share it in a new thread โ€” tell us what makes it special to you and take us on a little journey through your corner of the world.


Letโ€™s see how many corners we can bring together today on 360social! ๐ŸŒŽโœจ

12 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿงก Welcome to November โ€“ COPD Awareness Month! ๐Ÿงก

This is our time to come together, raise our voices, and show the strength of our community! Letโ€™s fill the month with orange -- from shirts to ribbons to virtual backgrounds -- and let it remind us how powerful we are when we unite for awareness, advocacy, and support!

Whether youโ€™re sharing your story, checking in with friends, or simply saying hello, every connection helps build the spirit that makes 360social so special.

Stop by often this month -- tell us how youโ€™re marking COPD Awareness Month, share a photo of something orange, or let us know how youโ€™re staying active and engaged.

Together, we can make this month one to remember -- for awareness, for hope, and for every breath we take! ๐Ÿงก

2 days ago

GAnne

GAnneanswered the question Indegistion

Karen, these prednisone and azithromocyin are add ons- suppose to help from getting flareup, I took 3 days a week. G-Anne
Jazzybean also answered the question Jazzybean also answered the question

48 minutes ago

Dinna25

Dinna25answered the question This might be me being silly and ott

My best day yet. Walked to my allotment, spent 2 hours replanting, walked home, then 45 minutes lung exercises Pulm Rehab exercises for lungs chest and stretching. Hope this is enough i guess the more you do the better.
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

2 hours ago

Dinna25

Dinna25answered the question Walking

My best day yet. walked to my allotment, spent 2 hours replanting, walked home, then 45 minutes lung exercises Pulm Rehab exercises for lungs chest and stretching. Hope this is enough i guess the more you do the better.
GAnnebrydy also answered the question GAnneand 1 other also answered the question

2 hours ago

Liza M

Liza MFrom a walk last night in lower Manhattan 

5 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Restrictive lung disease

I think you did say in another post that you have been referred to a pulmonologist for pulmonary hypertension testing? So be sure to ask for pulmonary function testing from that doctor also.
Kmcnamara68 also answered the question Kmcnamara68 also answered the question

6 hours ago

toffee

toffee

just found out I'm going to need almost continuous oxygen help  - I have emphysema and asthma๐Ÿ˜ฅ 

6 hours ago

Kmcnamara68

Kmcnamara68asked the question: Restrictive lung disease

I posted my pft results in here a while back that my asthma doctor told me was asthma. Okay, was fine for 6 years until flare up about a month ago that coincided with an extremely stressful, life changing stressful situation. And now looking back at …

7 hours ago

Dinna25

Dinna25asked the question: This might be me being silly and ott

have been doing alot of reading on this disease. One of the things that i saw was you shouldnt bend over to do stuff. Just wondering is this why, while working my allotment today (great exercise i thought), I was bent over for a while replanting Leaks, …

9 hours ago

Jazzybean

JazzybeanThe mighty oak, it has been my friend and silent companion for the past 45 years.

10 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I love turnips so might give this recipe a try. Thanks for the idea....

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸซšGINGER & ORANGE TURNIP MASH๐ŸŠ3 cups cooked, mashed turnip1/4 tsp. ground ginger 2 tbsp. orange juice1 tbsp. butterSalt and white pepper to tastePlace warm mashed turnip in a large bowl. Add the ginger, orange juice, butter, salt, and pepper. Mix...

12 hours ago

Suzanne Wainwright

Suzanne Wainwright

Have you any idea how relieved I am to find a site like COPD360social I feel a purpose I am not alone THANK YOU

12 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's wonderful Wednesday, folks! 
There isn't a thing to be afraid of! Having COPD means you CAN manage your condition well! No worries, because you can learn all about COPD by clicking on the LEARN MORE tab at the top of the page. 
November is COPD Awareness Month!!!
๐ŸŸ ๐ŸŸ ๐ŸŸ GO ORANGE!๐ŸŸ ๐ŸŸ ๐ŸŸ 

16 hours ago

Jamie Jarrard

Jamie Jarrard created the event OxyTalk Social Hour - Wednesday, Nov. 12, 4pm Eastern

A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

1 day ago

Jamie Jarrard

Jamie Jarrard created the event BronchandNTM360social Coffee Break - Wednesday, Nov. 12, 2:30pm Eastern

A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

1 day ago

Jamie Jarrard

Jamie Jarrard created the event COPD360Social Hour & Harmonica Play-Along- Wednesday, Nov. 5, 4pm Eastern

A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to take place after the group discussion. Register here: https://copdf.co/360-social

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question STAGE 3

FEV1 can improve in some people after stopping smoking (In large studies the average improvement is 4-6%, but there is large variability in individuals). If you have been on no therapy- you might see additional improvement. In any case- stopping …
das23Jazzybeanbrydy also answered the question das23and 2 others also answered the question

1 day ago

brydy

brydy

has anyone undergone one of those pharmaceutical stress tests? they wont do a treadmill one because my HR is always super high (which is dumb imo because I hike, walk multiple kms everyday, barn chores, use my treadmill all winter..); but anyway! I read these can be hard on ppl with COPD & now I am a little bit anxious. anyone ever go thru it? 

1 day ago

Icelady

Icelady

Ok

1 day ago

Rickr

Rickranswered the question R V travel with Oxygen concentrators

i use 2 liters of continuous oxygen at night. I like to โ€œboondockโ€ in my rv, so i got the respironics simply go machine for my rv. I power it with a bluetti power bank that supplies it with 1500 watt hours of power. Enough to run all night @ 2 liters. I …

1 day ago

Wildebeest

Wildebeestanswered the question STAGE 3 and FEV and QUIT

I cannot answer the question directly as I don't smoke and am still at stage 2. However, I can tell you that there could be benefits to quitting over and above possible improvements to your lung readings and all other health benefits that quitting brings …
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Tomorrow We Travel โ€” 360social Style! โœˆ

Tomorrow is Visit My Corner of the World Wednesday, and I canโ€™t wait to see what everyone shares! Letโ€™s kick it off right by posting a view from your world with our wonderful 360social friends.

Share something you love -- a scene that brings you calm, comfort, or joy -- or a spectacular sight that reminds you how special your corner of the world is. ๐ŸŒ…

Itโ€™s a beautiful way to take a little journey together, even for a moment, and to see the amazing places our 360social family calls home. ๐Ÿ’™โœจ

1 day ago

Community Announcements

Community Announcementsadded a new article Rural health disparities need greater focus in COPD research

New perspective highlights the need to consider social, cultural, and environmental factors shaping lung health in rural communities

Miami (November 4, 2025) - COPD research needs to increase focus on rural health disparities and consider the impact of sociocultural and environmental exposures on health outcomes, according to a new perspective in the September 2025 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open access journal.

COPD encompasses conditions including emphysema and chronic bronchitis. It is caused by irritants like smoke or pollution, and even genetics. There are an estimated 30 million Americans affected by COPD, yet only half of those people know they have the disease.

Previous research shows that the prevalence of COPD and COPD mortality is higher in rural areas and continues to increase. People with COPD in rural areas also tend to have higher symptom burden, more frequent exacerbations, and decreased lung function.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœณ๏ธโ‡๏ธPAPAYA SALSAโ‡๏ธโœณ๏ธ"This salsa is best when enjoyed the day it is prepared."1 ripe papaya, cut into small cubes1 large ripe avocado, cut into small cubes1 small red onion, finely diced 1 large handful fresh cilantro, chopped2 tbsp....

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood Tuesday morning, COPD WARRIORS! We are ready, willing, and able to enjoy another day of COPD Awareness Month! ๐Ÿ”ธ๏ธ๐Ÿ”ถ๏ธ๐Ÿ”ธ๏ธ
Take good care, and have a pleasant day! ๐Ÿงก

1 day ago

JeanO53

JeanO53Make a wish...

1 day ago

LadyG

LadyG

GOOD EVENING FRIENDS,
I saw my pulmonologist today and he told me that he isn't sure that my COPD is all that is wrong with me and he wants me to see my primary care physician as soon as I possible can. ( I made an appointment for Friday.) I have already been seen by a Cardiologist, (who told me that all my tests came back good), a vascular surgeon, (who told me that while my left carotid artery is nearly 60% blocked, he won't do surgery til it is 70% blocked.) Nobody knows why I am having all these symptoms and I am becoming very depressed. I often wonder if my Doctors just think that I am just crazy. 
Anyway, I took your advice and asked for Levalbuterol and the pulmonologist prescribed me it. He is also is taking me off the Symbicort and Spiriva and putting me back on the Bevespi. 
I am scared. VERY scared but I am having so many symptoms now that I don't know what to do anymore. I am afraid that I am going to die and Im overwhelmed. I wish I had some sort of answers or just a path of some sort. Some direction that would somehow help to explain all that I am going through! I don't even know my body anymore and it is so upsetting for me. I just don't know what to do anymore. 

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.