COPD360social welcomes new member johnpuriya who joins 66,236 current members of our community. Weโ€™re glad you're here!

baileygiglio

baileygiglio

Hi everyone! The COPD Foundation is working with partners in the lung health community to declare November 2026 as COPD Awareness Month in all 50 states! We need YOUR help to represent every state. If you live in the following states and want to quickly and easily participate in this project, please reach out to me at BGiglio@COPDFoundation.org:

- Montana
- North Dakota
- Rhode Island
- New Hampshire
- Hawaii


Thank you!

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerDo You Use Nebulized Maintenance Medications for COPD?

Do you haveโ€ฏmoderate to severe COPD? Have you used a nebulized maintenance medication in the past 12 months?

If you have used any of the following medications, you may able to share your experience in a virtual focus group.

-  Brovana (arformoterol tartrate)
-  Perforomist (formoterol fumarate inhalation solution)
-  Lonhala Magnair (glycopyrrolate inhalation solution)
-  Yupelri (revefenacin)

You may be paid for your time. To learn more and see if you qualify, contact Sergio Martinez atโ€ฏ866-731-2673, ext. 210โ€ฏor email copdpprn@copdfoundation.org

1 week ago

johnpuriya

johnpuriyaanswered the question Best Air Purifier for Smokers: Expert Recommendations

This was actually really helpful. I had not thought about the difference between filtering the room and dealing with the smoke, at the source. Thank you for sharing your experience.

39 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, folks! "Let the leaves fall where they may. You can clean them up some other day!" Enjoy your day, and keep on smiling! ๐Ÿ˜€

42 minutes ago

RaperNate090

RaperNate090asked the question: Best Smoke Filters for a Smokerโ€™s Home: What Iโ€™m Considering

Finding a good way to deal with cigarette smoke at home has turned out to be harder than I expected. Someone in my family has COPD and still smokes, so indoor air quality has become something I pay much more attention to than I used to. I know an air …

1 hour ago

RaperNate090

RaperNate090asked the question: Best Air Purifier for Smokers: Expert Recommendations

I started looking into smoke filters and air purifiers for a pretty personal reason. Someone close to me has COPD and is still smoking, and although quitting is something he has to work through himself, Iโ€™ve been trying to make the environment around him …

1 hour ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

I'm very happy--Hurricane Nolo has passed to the south and west of our state and not caused as much damage as feared.  Yay!  Everyone seems to be doing pretty well in our state!  It was a pretty scary time while we were waiting to see which way it would turn and when.

4 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

j have concentrator for the daytime and a CPAP for night.  Now I supposed use the oxygen for sleep.  How do I put the two together to make it worK?

9 hours ago

6ft Pixie

6ft Pixie

What causes one person with COPD to have a lot of phlegm while others have hardly any?

12 hours ago

6ft Pixie

6ft Pixie

Welcome, Docstrong! I'm glad you are here!

13 hours ago

JeanO53

JeanO53Another beautiful day in Southeastern Wisconsin. 
After a good long walk at Wehr Nature Center, I headed toward home.  In my case that means travelling from one side of the county to the other side.  Lots to see along the way.
I eventually made it to the lakefront near home.  We got very lucky and the skies were mostly clear, making it possible to watch the moon rise from the horizon.  It was another beautiful moon.

15 hours ago

JeanO53

JeanO53answered the question Montelukast and mental health

Wildebeest - I too have been taking Montelukast for awhile; about 8 years. I was diagnosed with dysthymia or PDD years ago and have not noticed any changes since I started taking Montelukast. I suggest you talk with you pulmonologist about you …
Karen Deitemeyer - Florida State CaptainCaroline West Virginia State CaptainDebbieB.-Connecticut State Captain also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

16 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Bronchial Thermoplasty

Hi Wildebeest - I don't have any information on it, but am hoping David Mannino, MD (Chief Medical Officer, COPD Foundation ) will see your post and respond with some current information.

16 hours ago

JAH5001

JAH5001answered the question How to keep my very long oxygen cord from getting tangled and kinked

I know that each personโ€™s situations are different, but in my case I use my main oxygen concentrator only at night and in the morning after I shower I switch over to an E-tank with an Easy pulse 5+6 regulator and use that all day until I go to bed. If I …
KaseykatHIcopd - Hawaii State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Kaseykatand 2 others also answered the question

17 hours ago

Pippilotta64

Pippilotta64answered the question Does pulmonary rehab help?

I did pulminary rehab in my home virtually with other people in the background going through the same thing as me. I loved it. I wish i could do virtual all the time. It helped so much. But then it ended. I wish insurance would pay for indefinetly. I …
6ft PixieBrenda JoyGAnneand 9 others also answered the question 6ft Pixieand 11 others also answered the question

18 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainShine on Harvest moon. 
Photo taken in nearby Rancho Santa Margarita.

19 hours ago

Wildebeest

Wildebeestasked the question: Montelukast and mental health

Pulmonologist has suggested a trial of Montelukast/Singulair to see if it helps with my severe exercise intolerance caused mainly by dynamic hyperinflation. I have discovered the drug comes with a black box warning about possible psychiatric side …

19 hours ago

Wildebeest

Wildebeestasked the question: Bronchial Thermoplasty

There was a question on this topic but it is 9 years old so I am wondering if anyone has any more recent experience/thoughts on the procedure. I have an asthma element but my main problem is dynamic hyperinflation. At least that is what my pulmonologist …

19 hours ago

ktm390

ktm390 answered the question Recent diagnosis

I was diagnosed with emphysema a few years ago its a gut punch I'm 71 I was scared angry but here i I found strength through the experiences of others you'll be ok just follow pulmonary advice and if you don't like your doctor find another fast i did and …
Jamie Jarrard (COPDF Sr. Communications Specialist)JudithArleneDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question Jamie Jarrard (COPDF Sr. Communications Specialist)and 3 others also answered the question

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing everyone a nice, peaceful day! ๐Ÿ˜Š

1 day ago

cac

cac

Jean, I liked your pictures and your comments.  I live in a suburb of Cleveland OH so we have similar weather.  I also have a quote I would like to share:  "What crossroads are you at in life?"  I'm at that moment where you step back in life and think, OK, what am I going to do with the years or months left?  What's the big adventure that I want to have before the final curtain?
Something to stop and think about.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‘€ National Situational Awareness Day

Today is National Situational Awareness Day. It may sound a little official, but thereโ€™s an important message in it for all of us:

Notice the little things.

When you're living with COPDโ€”or caring for someone who isโ€”you get to know what an ordinary day looks like. Your usual breathing, energy, cough, sleep, and what you can normally handle.

Maybe you're more short of breath, your cough sounds different, you're reaching for your rescue inhaler more often, or you're unusually tired. Sometimes it's simply that feeling of, โ€œSomething isn't quite right today.โ€

Don't automatically brush it aside.

It doesn't mean something terrible is happening. But noticing a change early gives us a chance to follow our COPD action plan, ask questions, or reach out to our healthcare team before something small becomes something bigger.

Situational awareness also means noticing what's around usโ€”poor air quality, extreme temperatures, oxygen tubing that could become a trip hazard, or making sure we have enough medication and oxygen before heading out.

And caregivers, trust what you've learned, too. Sometimes you notice a change before the person you care for does. Your observations matter.

This isn't about living on high alert. It's about knowing your normal and recognizing when something changes.

And remember to notice the good things, tooโ€”a beautiful day, a call from a friend, the dog doing something ridiculous, or simply a day when breathing feels a little easier.

What's one little thing you've learned to pay attention to that helps you stay a step ahead?

Something you've learned may be exactly what someone else in our community needs to hear today. ๐Ÿ’™

1 day ago

JeanO53

JeanO53Harvest Moon over Lake Michigan - Not quite full last night... still beautiful.

It was a beautiful day in Southeastern Wisconsin yesterday.  After weeks of grey, rainy and cloud filled skies, the sun was shining and skies blue; temperatures in the 60s.  I went to one of our Nature Centers and spent the afternoon looking for birds and watching geese and ducks and a Great Blue Heron.  Also got a picture of 3 painted turtles of varying sizes on a log.  I ended the day catching the moon rising above the clouds on the horizon.

Living with COPD can be limiting, sometimes difficult and my spirit gets weighed down at times. 
I find that finding ways to get out and enjoy life helps both physically and psychologically.  Taking a walk with my hiking pole in places where there are spots to sit if I'm feeling tired; being where there are birds to listen to and leaves changing their colors and letting go from their trees.  And on the drive home, stop and watch the nearly full moon rise above the sailboats.  Yesterday was a good day.  I hope to have more before the snow flies.  

Mary Oliver the poet asked - "...Tell me, what is it you plan to do with your one wild and precious life?"  Today?

1 day ago

Anonymous

Anonymous

Doing a lot better..
Moderate Copd, 
Only using Anoro inhaler once a day.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainEnjoy your Saturday, my friends! 
Pull up a chair, pour yourself a coffee, tea, or juice-maybe a water, and relax! You got this! Plenty of wonderful people and helpful information, right here on 360Social! ๐Ÿ˜ƒ

2 days ago

6ft Pixie

6ft Pixie

I hope you all are having a great day. It is stunning today, with Carolina blue skies and a lovely high temperature of 74! For those of you in the Northeast, I'm thinking of you and sending my thoughts and prayers.๐Ÿ™

2 days ago

6ft Pixie

6ft Pixie

Welcome BMac! We are so glad you found us. Have a great day!

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒง๏ธ A Good Time to Check Your Disaster Plan

With the norโ€™easter affecting parts of the East Coast, this feels like a good time for all of usโ€”not just those in the stormโ€™s pathโ€”to pull out our Disaster Preparedness Plan and give it another look.

Being prepared doesnโ€™t mean expecting the worst. It means taking care of a few things before everything gets hectic.

If you already have a plan, when was the last time you updated it? Have medications changed? Oxygen needs? Doctors or emergency contacts? Do you know what you would do during a power outage? Is your Stay Kit or Go Kit still ready to go?

And if youโ€™ve never made a disaster plan, this is a great place to start. The COPD Foundationโ€™s Disaster Preparedness Plan gives patients, families, and caregivers a roadmap for what to think about, what to have ready, and what to do if circumstances suddenly change.

Because when the lights go out, the roads get bad, or you need to leave home quickly, that is not the ideal time to start wondering where the medication list went.

Preparedness can't control the storm, but it can take some of the panic out of what comes next.

Take a few minutes this weekend to look over your plan, update what needs updating, and make sure the people who may be helping you know the plan too.

And for our members dealing with this norโ€™easter right now, please stay safe and keep us posted. This community is here for you. ๐Ÿ’™

Have you ever been through an emergency that taught you something you now include in your disaster plan?

https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#DPP

COPD Foundation Educational Materials

The COPD Foundation educational library has a variety of useful booklets, flyers, and tools that you can download to help you learn more about living and thriving with COPD โ€“ everything from the basics of lung conditions to specific topics such as exercise and exacerbations (flare-ups).

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.