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Coach Brandon - Community Manager

Coach Brandon - Community ManagerWe would love to get your feedback on a topic that we have for the week, please join in and offer your answers!


https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Are-you-part-of-Medicares-Extra-Help-or-Low-Income-Subsidy-LIS-program.aspx

Are you part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program?

If you are part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?

1 day ago

Kmcnamara68

Kmcnamara68answered the question Pulmonologist advice?

Maybe this is from bronchiolitis? I don't know I didn't have extensive smoking history but did work around chemicals and smoked an ecig some for three years. It's just odd that I had been real good for about 5 years to this in 5 months without any …

2 hours ago

Kmcnamara68

Kmcnamara68asked the question: Pulmonologist advice?

I had told my pulmonologist that at times my pulse ox is reading 90 or one time 88 at rest. I've given up exercise. I asked him about this and he said not to worry unless it drops into the 70s and I'm having a hard time? That doesn't sound like sound …

2 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

Yesterday the FDA announced it is committed to advancing safe and effective therapies for rare diseases and ensuring no family is overlooked because their condition is uncommon.          https://www.fda.gov/news-events/press-announcements/fda-launches-framework-accelerating-development-individualized-therapies-ultra-rare-diseases

4 hours ago

Jeffrey Shane Mehling

Jeffrey Shane Mehling

Depressed, deconditioned, discombobulated 

4 hours ago

Shaky123

Shaky123

Hello I need some advice please. I just went for an asthma review following a ct scan and was told i have a little emphysema on my lungs.  I have had bronchial asthma since birth. I was a social smoker for 2 years, over 25 years ago. Iโ€™m very scared and not sure what to do. Any advice and suggestions please from someone in the same boat. Tia 

5 hours ago

ktm390

ktm390

Hey shakey 123 welcome! Lots of good info support here hope you're doing ok today

5 hours ago

Tammy55

Tammy55

Dr said - for 7 years, COPD,  chronic bronchitis and severe Tracheitis.  Well the  tracheitis is extremely painful.  Burns like you have been out in the cold weather - except it is every breath.  Its bad folks.  FINALLY got some help with the pain last month.  it had been going on for 7 years, and worsened every year.  After 5 pulmonologist who did not have a clue - new one just diagnosis in 2 minuets from symptoms.   So now i can breathe and not hurt.
So hang on folks.  Some days are mountain top, and some are in the desert.
Dont give up!!  The sun comes up EVERY day - may be your day!!

9 hours ago

Tammy55

Tammy55answered the question Check-in: Managing airway mucus: Commonly asked questions

2 kleenex boxes near where i set often. as with most folks, we all have a favorite place we set. I have learned to have one kleenex box full to use to put mucus in each tissue as I cough, and then use an old empty kleenex box to use as a "garbage". It is …
Jenga1Dr H das23and 1 other also answered the question Jenga1and 3 others also answered the question

9 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„PEANUT BUTTER OATMEAL๐Ÿฅ„ 1 3/4 cup water1/8 tsp. salt1 cup old fashioned oats2 tbsp. peanut butter 2 tbsp. honey2 tsp. ground flaxseed1 tsp. cinnamonChopped apple of your choice for garnishIn a small saucepan, bring the water and salt to a...

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday! I choose to have a wonderful day! I choose to have a positive outlook! I hope you'll do the same! Let's make today a Terrific Tuesday! ๐Ÿคฉ

18 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

CUTV is going to interview me tomorrow at 11 am.  Let me know what you would like me to make sure I tell them about COPD.

23 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I like DebbieB.-Connecticut State Captainโ€‹ idea of having COPD business cards made to help educate the public about the COPD Foundation and their mission.


Is this something that we could sponsor as a group?  Coach Brandon, what do you think?

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Analysis to find a safe inhaler - Artificial Intelligence

I also take Singular nightly and as Stefdawn has mentioned, missing a dose will tell you that it is working for you.
Stefidawnnetmouse also answered the question Stefidawnand 1 other also answered the question

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question After 6 months, pneumonia flares up again

I have had several episodes of pneumonia, but have not had one since I pay more attention to my coughing and mucus production. As soon as I experience a change, I begin taking Mucinex and keep a close watch for worsening conditions. If they worsen I go …
WildebeestGAnneDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Wildebeestand 2 others also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerasked the question: Are you part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program?

If you are part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?

1 day ago

BrandyLynn

BrandyLynn

I just ordered "The COPD Solution", by Dawn Fielding. Does anyone have any book recommendations on COPD that have helped them? Thanks, everyone! And Happy Monday! 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ WARM SWEET POTATO SALAD๐Ÿ 3 large sweet potatoes, peeled and cubed 1 small red onion, thinly sliced into half moons2 tbsp. plus 1/4 cup olive oil, divided Salt and freshly ground black pepper to taste 2 tbsp. cider vinegar 1 tbsp. Dijon mustard...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good morning, folks!
Winter Storm Hernando= Bomb Cyclone = Tons Of Snow = Strong Winds= Don't worry, we'll get through this! ๐Ÿ˜ƒ
I ventured outdoors earlier this morning to feed the birds and squirrels. 
Please do not go out there unless you need to. Prepare before you go! 
We've already got over 12 inches of snow, with more on the way. 

1 day ago

Stefidawn

Stefidawn

My nose wonโ€™t stop dropping every where and I need to order more cannulas. Iโ€™m up too late, 1:25 am because my cat and dog decided to not get along yet again. But Iโ€™m happy to be alive and breathing well today. Now to bed I go! 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, everyone! Staying positive is what we should strive for. We CAN get through anything, and we WILL do just fine! We use our common sense and think through before we do! 
Have a positively awesome day, friends! ๐Ÿคฉ

1 day ago

GAnne

GAnneasked the question: After 6 months, pneumonia flares up again

Was admitted yesterday for pneumonia, I guess it comes from anywhere, I hope it wasnโ€™t a side effect of DUPIXENT.

2 days ago

Dinna25

Dinna25answered the question Not sure if should post this on here

Hi ya Wildebeest yeah its been a while, i look in but cannot help with any input to questions so i look again another day. Iv been good my copd remains stable on last check, and lungs sounded clear. Any fear stress i had have now gone, i do the …
WildebeestDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Caroline West Virginia State Captain also answered the question Wildebeestand 2 others also answered the question

2 days ago

das23

das23answered the question Describing what happens that causes inhaler side-effects

Thanks for posting all this netmouse. Interesting information
netmouseTom.ECoach Brandon - Community Manager also answered the question netmouseand 2 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Does anybody else have issues with stuffiness just in one of your nasal passages?

Netmouse, it worked for me, and I was told it was okay to do that. You can very easily buy gallon jugs of distilled water.
netmouseGAnnePhyliss DiLorenzo NJ State Captain also answered the question netmouseand 2 others also answered the question

2 days ago

netmouse

netmouseasked the question: How long does inhaler drug stay in body with side effects?

I asked Google Gemini how long it takes Spiriva to leave my body, as I have improvement but still feel "residue". Question: How long does it take to get Spiriva Respimat out of your system? It made me very dizzy and disoriented after 1 month, so I …

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒฟ Good Morning & Happy Sunday

Good morning, 360social ๐Ÿ’™
For many areas, today may bring snowโ€”or even blizzard conditions. If thatโ€™s you, this is a gentle reminder that itโ€™s okay to slow things down and stay safe.

Changing plans to protect your breathing, your energy, and your well-being is not something to feel guilty aboutโ€”itโ€™s taking care of yourself.

Whether today means staying warm inside, adjusting plans, or simply taking things one breath at a time, that choice matters.

โœจ Whatโ€™s one small thing youโ€™re doing today to take care of yourself?

2 days ago

netmouse

netmouseasked the question: Describing what happens that causes inhaler side-effects

Google's Artificial Intelligence analysis describes what is happening that causes inhaler side-effects. And has questions to ask about other options and next steps. Gemini's Response: That is a very challenging list of side effects, and it's …

2 days ago

netmouse

netmouseasked the question: Analysis to find a safe inhaler - Artificial Intelligence

I asked Google's AI Gemini to help me find a drug, noting the inhalers tried and stopped due to serious side effects. Question: Create a "Medication Sensitivity Summary" that lists these specific failures and why they happened. Include other options to …

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.