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Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿ“ธ Wait a secondโ€ฆ is it REALLY Wednesday?! (Early Edition ๐Ÿ‘€)

Weโ€™re getting a little head start on Visit My Corner of the World Wednesdayโ€ฆ because tomorrow is April 1st, and it just felt like the right time to mix things up a bit ๐Ÿ˜‰

So hereโ€™s your early edition with a fun twist - youโ€™ve got options this week:

๐Ÿ“ท Share a photo of your corner of the world
๐Ÿ˜„ ORโ€ฆ share something that made you smile today
๐ŸŽญ ORโ€ฆ try a โ€œlittle twistโ€ -- post something surprising, funny, or unexpected from your day (no tricks on each other thoughโ€ฆ weโ€™re keeping this one kind ๐Ÿ’™)

Your corner of the world doesnโ€™t have to be far away or fancy -- sometimes itโ€™s:
โ˜€ a sunny window
๐Ÿพ a familiar face that follows you everywhere
โ˜• a quiet moment that just feels good

Weโ€™re opening this one up early, so whether you post today or tomorrow, weโ€™ll be here for it ๐Ÿ˜„

Soโ€ฆ what does your corner of the world look like right now?

1 hour ago

  • NewestOldest
  • Coach Brandon - Community ManagerJasmine is giving me that โ€œI know something you donโ€™tโ€ look this morningโ€ฆ and with April 1st tomorrow, that feels a little suspicious ๐Ÿ˜„๐Ÿพ

    But honestly? It made me smile, and thatโ€™s what counts.

    Your turnโ€”whatโ€™s your corner of the world looking like?

    And be honestโ€ฆ is it real, or a little April 1st magic? ๐Ÿ‘€
    1 hour ago
  • DebbieB.-Connecticut State CaptainTomorrow IS April Fool's Day, don'tcha know! ๐Ÿ˜†
    Jasmine, you look divine. I just love your new look! WoooooHooooooo!!!33 minutes ago
  • DebbieB.-Connecticut State CaptainI would like to share a new perennial I bought on Sunday. I wanted to get a head start to help the bees who may arrive early. This one is an early bloomer. Oakleaf Yellow Picatee is what it's called. 
    ๐Ÿ๐Ÿ๐Ÿ๐Ÿ๐Ÿ๐Ÿ๐Ÿ๐Ÿ30 minutes ago
Coach Brandon - Community Manager

Coach Brandon - Community Manager

These last days of Marchโ€ฆ can you feel the shift? ๐ŸŒท

Longer days, changing weather, a little more time outsideโ€ฆ and for many living with COPD, bronchiectasis, or NTM, this time of year can bring a mix of good days and a few surprises too.

So today, letโ€™s do a quick check-in togetherโ€”something simple, but really important:

๐Ÿ‘‰ Have you noticed any small changes in your breathing this week?

Sometimes itโ€™s easy to brush things off as โ€œjust allergiesโ€ or โ€œjust the weather,โ€ but those early changes can be your bodyโ€™s way of asking for a little extra attention.

Things like:
โ€ข Feeling a bit more short of breath than usual
โ€ข Needing your rescue inhaler more often
โ€ข A change in cough or mucus
โ€ข Feeling more tired than your normal

And for those living with bronchiectasisโ€ฆ

๐Ÿ‘‰ Have your airway clearance routines felt a little harder lately?
Are you needing a bit more time, or not getting the same results you usually do?

That can be an important signal too.

๐Ÿ’ก This is a great time to:
โ€ข Take a quick look at your action plan
โ€ข Stay consistent with your routines
โ€ข And donโ€™t hesitate to reach out to your doctor if something feels off

Catching those changes early can make a big difference.

And just as importantโ€ฆ

๐Ÿ‘‰ Whatโ€™s one small win or bright spot youโ€™ve had these past few days?

Maybe a steady breathing day, a short walk, a good laugh, or a quiet moment with someoneโ€”or somethingโ€”you love ๐Ÿพ

Iโ€™ll startโ€”thereโ€™s something about these last days of March that makes me want to slow down just enough to notice the little thingsโ€ฆ and to listen when your body whispers, not just when it shouts.

Your turnโ€”what are you noticing, and whatโ€™s been a bright spot for you? ๐Ÿ’™

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Check-in: Whoโ€™s on your health care team?

First, I'm really sorry Wildebeest that the NHS in your exerience isn't what I thought it would be. I have a Medicare Advantage Plan and a wonderful Primary Care Physician who makes referrals to various specialists without any hesitation. In my case, …
HIcopd - Hawaii State CaptainWildebeestDebbieB.-Connecticut State Captain also answered the question HIcopd - Hawaii State Captainand 2 others also answered the question

5 hours ago

Jamie Jarrard

Jamie Jarrard created the event COPD360Social Hour & Harmonica Play-Along, Wednesday, April 1, 4pm Eastern

COPD360Social Hour & Harmonica Play-Along- Wednesday, April 1, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

5 hours ago

Jamie Jarrard

Jamie Jarrard created the event BronchandNTM360social Coffee Break - Wednesday, April 8, 2:30pm Eastern

BronchandNTM360social Coffee Break - Wednesday, April 8, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

5 hours ago

Jamie Jarrard

Jamie Jarrard created the event OxyTalk Social Hour - Wednesday, April 8, 4pm Eastern

OxyTalk Social Hour - Wednesday, March 11, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

5 hours ago

Kalli Mago

Kalli Magoasked the question: Check-in: Whoโ€™s on your health care team?

When you have COPD, different doctors can provide important information to help you take care of your lung health. Here are some of the care providers you may see: Primary care doctor: Your primary care doctor is often the first person you talk to …

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ›”๏ธโ›”๏ธROASTED RED PEPPER SPREADโ›”๏ธโ›”๏ธSo good spread on a wrap or sandwich. Also great spread on flatbread crackers. Can be used as a dip for crudites, as well! 1 cup roasted sweet red pepper strips from a jar, drained well2 tsp. olive oil1 tsp. balsamic...

10 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a bright and cheery Tuesday! 
Hope your day is filled with reasons to smile! ๐Ÿ˜€

14 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Any recent reviews of the Zen-O portable continuous flow concentrator

I am being sent a new machine I have not tried before in April and will post a review about it after Iโ€™ve had a chance to use it. Itโ€™s said to be among the quietest of the continuous flow machines. It comes with a battery but Iโ€™m not being sent a battery …
Caroline West Virginia State Captain also answered the question Caroline West Virginia State Captain also answered the question

21 hours ago

Wildebeest

Wildebeestasked the question: Adding LAMA to my ICS/LABA inhaler regime - physical fitness issues

I am seeing my GP in a couple of weeks to discuss my inhaler. I would welcome any thoughts from the community to consider before I go. There are 2 issues. The first is recurrent thrush and hoarseness from my current inhaler, which is dry powder. I will …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

QUICK AS A WINK ๐Ÿ˜‰ SPRING SALAD4 large radishes1 cup fresh sugar snap peas2 tbsp. olive oil 1 tbsp. lemon juice 1 tsp. Dijon mustard Salt and freshly ground black pepper to taste One 7-ounce package butter lettuce blend Trim and thinly slice the...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainToday I would like to wish a very special friend of ours a very HAPPY BIRTHDAY! 
Hope your day is as special as you are! We love you, Caroline West Virginia State Captainโ€‹!!

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday! Wake up with a positive outlook! What a great way to begin the day! Spread that positivity around everywhere you go, and to everyone you speak with! 
Enjoy this awesome day! ๐Ÿ˜ƒ

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™m grateful and very relieved. My HI lung doc is doing me a big favor and going to fit my H in to see him tomorrow before we are scheduled to fly to SF on Tuesday.  Itโ€™s really a relief since the ER didnโ€™t find anything they could treat but encouraged us to follow up with pulmonology or cardiology and internist. I feel extremely fortunate and hopeful!

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question How long after a endoscopic can you do flutter valve

Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone here on 360Social a peaceful Sunday! ๐Ÿ˜Š

2 days ago

BrandyLynn

BrandyLynnAn unusual 'Fluffy Friday", pic. Not from this year, but a past spring. How beautiful is this moth who came to visit me?! I have a soft spot for all creatures. Happy Spring, and Happy Breathing, everyone! 

2 days ago

GAnne

GAnneasked the question: How long after a endoscopic can you do flutter valve

After having a endoscopic with 2 biopsies do you have to wait to do your flutter valve. GAnn

2 days ago

GAnne

GAnneanswered the question Had a endoscopic moved up to today, why do they have to dilate it 2 times?

thanks, Caroline and Karen I appreciate your input. Karen, I do believe youโ€™re right about doing it in two separate times because he did say in his notes that he tore a little bit of it, but it did not perforate. Praying that the biopsy he did is not …
Karen Deitemeyer - Florida State CaptainCaroline West Virginia State Captain also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

3 days ago

Ler111

Ler111

Hi Kier123,
Iโ€™m curious as to how youโ€™ve been doing over the past few months. Iโ€™ve had similar symptoms that you wrote about 4 months ago with SOB when talking, walking and talking etc, but can go for a run without any problems. Iโ€™ve had a bunch of tests done as well (still waiting for the full report) and Iโ€™ve got damage to my lungs from years of smoking, which I have now stopped, but doctor put a positive spin on it, but the SOB is still giving me anxiety and I too want to be around to see my young children grow up. Hopefully you have been feeling better and the SOB isnโ€™t the new normal! Thanks

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a very happy Saturday! Enjoy your day, friends! ๐Ÿ˜€

3 days ago

GAnne

GAnneasked the question: Had a endoscopic moved up to today, why do they have to dilate it 2 times?

I was so thankful when they moved up my endoscopic from July 8 to today. Everything went well as far as the procedure he did have to dilate my esophagus. He said that I had some twisting in there and he dilated it from a 24 to 54. But then I have to go …

3 days ago

BigCNV

BigCNVasked the question: Any recent reviews of the Zen-O portable continuous flow concentrator

I have been told there are only two machines that provide 2 liter continuous flow oxygen. The Eclipse - Sequel and the Zen-O . The Zen-O is much lighter which is preferable for travel, but the two reviews I found from a year ago indicate issues with …

4 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question What can cause big fluctuations in oxygen levels over different nights?

I'm not a pediatrician- PDAs in adults can result in low saturations. It sounds like you may need a second opinion or be evaluated at an academic center for a more complete evaluation.
Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captain also answered the question Caroline West Virginia State Captainand 1 other also answered the question

4 days ago

Shadwanda Rainey COPDF Research

Shadwanda Rainey COPDF Research

Opportunity for Colorado COPD Participants to Join a Treatment Therapy Study

The COPD Foundation is currently seeking individuals who live in Colorado and have been diagnosed with severe COPD [Have a lung function (FEV1) of 49% or less]. We invite individuals with Stage 3 and 4 COPD to participate in our study.

Your travel expenses will be paid (within the state of Colorado) and you will be compensated for your time.
 
By Joining, youโ€™ll not only benefit financially but also contribute to enhancing COPD care. 


Contact us today to learn more and to get signed up!
Email us at: COPDPPRN@copdfoundation.org.

Thank you for considering contributing to COPD research.

4 days ago

Jonnie Korinko (COPDF Director of Education)

Jonnie Korinko (COPDF Director of Education)answered the question Pulse oximeter accuracy when walking

Hi Kmcnamara68. First - it's excellent that you're staying active! That is one of the best things that you can do for your health! Second - check with your lung doctor, or even better, a respiratory therapist if you have one at your practice, to see …
HIcopd - Hawaii State CaptainCaroline West Virginia State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŒžMORNING GLORY MUFFINS๐ŸŒž2 cups flour1 cup packed dark brown sugar 2 tsp. baking soda1 tsp. nutmeg1 tsp. cinnamon1 tsp. salt3 eggs2/3 cup vegetable oil 2 tsp. vanilla extract 1/2 cup raisins, soaked in hot water and drained well2 cups grated...

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Jason Rossi, who seems to have brought out his stash of treats. Looks as though he hid treats  throughout the week, and decided to bring them out of hiding! ๐Ÿ˜†
Jason and I are wishing all of you a wonderful day! ๐Ÿ˜€

4 days ago

baileymccrary

baileymccraryHello all! On March 18, we had 54 COPD and bronchiectasis patients, caregivers, loved ones, healthcare providers, and COPD Foundation and Bronchiectasis and NTM Association team members join us for IMPACT Lung Health 2026 in Washington, D.C. to advocate for support of our policy priorities from our lawmakers. Together, we held 101 meetings with legislative offices representing 28 states, 56 Senate districts, and 45 House districts. We spoke with our lawmakers about three critical priorities:
- Increase Funding for Lung Health Research and Promote Innovative Treatments through FY27 Appropriations Provisions
- Co-sponsor the Supplemental Oxygen Access Reform (SOAR) Act (H.R.2902 or S.1406) to Ensure Medicare Patients have Access to Essential Oxygen Therapy
- Co-sponsor H.R.783 or S.248 to Enact Permanent Medicare Coverage for Virtual Pulmonary Rehabilitation

We are incredibly proud of our team of advocates and the progress we made together for lung health in Washington, D.C.! If you'd like to virtually support IMPACT 2026, you can urge your lawmakers to support our policy priorities by visiting our Advocacy Action Center: https://www.votervoice.net/COPD/Campaigns/135958/Respond

We want to extend a special thank-you to our sponsors who made IMPACT 2026 possible! Thank you Boehringer Ingelheim, Chiesi USA, Inc., Insmed Incorporated, Sanofi/Regeneron, Theravance Biopharma US, Inc., and Viatris. Your support is greatly appreciated!

5 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.