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The COPD Foundation

The COPD Foundation

The COPD Foundation is exploring a grant opportunity related to indoor air quality and we welcome your feedback. Is indoor air quality a concern for you? Please share your thoughts with us by completing this short 3 question survey:  https://www.surveymonkey.com/r/67FGMJX

Please note at this survey will only be available through Thursday, June 13. Please reach out to Elisha Malanga, Chief Corporate Relations Officer (emalanga@copdfoundation.org) with any questions. Thank you!

21 hours ago

Diskid86

Diskid86answered the question Possible New Diagnosis

I do go to the gym all the time, and the archery range. Have done so for years. Unfortunately I haven’t made friends at either place. Even though I’m in the states people here aren’t overly outgoing either - and it probably doesn’t help that I have the …
SonjaKooDebbieB.-Connecticut State CaptainDavid Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question SonjaKooand 2 others also answered the question

49 minutes ago

SonjaKoo

SonjaKooanswered the question Glue-like mucus and possibilities to reduce it?

Hey Otter, thank you very much for your tips! I may need to focus more on my nutrition, that hasn't been all that good for a while now... Otherwise I do exercise daily (mostly yoga or gym, occasionally walk and cycle because my breathing gets so …
OtterDavid Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question Otterand 1 other also answered the question

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFor those of you who know my beagle Freckles, I have some news. She was diagnosed with a health condition. Her thyroid level is so low, it is almost nonexistent. Because of this, her cholesterol is high. Therefore, her doctor is starting her on some pills. One pill, twice daily...for life. Possible side effect: diarrhea. No problem there. I'm home all the time. Bloodwork on July 15th, and often, to monitor her condition. 

7 hours ago

Clinch

Clinch

Every day seems breathing gets worse. Never realy thought about copd. One dr said i have it then another. And i havent even had one of them breathing tests. About to loose job . Cause cant do nothing. In the last 3 hours learned more about copd than i thought i ever would. Just dealt with the inhalers , nebulizer and so on. I call dr all the tome leave message geting worse. Then nothing. Made apt for in morning.  I kind feel to the dr's im just a number . Because apparently they never read my file. Or they would have seen ive never been actually tested. Makes me mad... but oh well. Tonight go to work do what i cab do, and always try and make someone laugh. I do that pretty good. Because for that one second your laughing,  you dont have a care in the world.... think on that one.. thats why im the funny old goofy guy, who always wears hawaiian shirts..

7 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainInspiration on Hump Day.

8 hours ago

David Mannino, MD     (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question cough up specks of blood

The fact that this has been "happening for ages" and is specks of blood ( and I assume you have had imaging such as CT scans/ xrays, etc) suggests that you doctor is correct and this is not a major problem. You can stop by our sister site https://www …

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie B’s Kitchen to Yours

🍋CITRUS DESSERT BARS🍋What a cool treat to serve on Father's Day!2 cups flour1/2 cup powdered sugar 1/2 cup flaked coconut, divided1 cup butter, softened 4 eggs2 cups sugar1/4 cup flour1 tsp. baking powder1 tsp. grated lemon peel2 tbsp....

9 hours ago

Diskid86

Diskid86asked the question: Possible New Diagnosis

I’m a 37 year old female. I haven’t smoked a day in my life, nor am I consistently around second hand smoke. I do have a history of childhood asthma which I outgrew by the time I was out of elementary school. To my knowledge I don’t think it was …

11 hours ago

Pickledonion

Pickledonion asked the question: cough up specks of blood

Does anyone cough up specks of blood? The doc doesn't seem to worried but I am full of anxiety. It's been happening for ages I have mild emphesema, Bronchieastatis and alpha .

12 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWeeeeeeeeee! Wowwwwww! Whoa! It's Wednesday! 
Hope yours will be wonderful and carefree! 😃

13 hours ago

Dalone

Dalone

I recently quit smoking after 50 years and I`ve got COPD but don`t take any meds for it. The Dr. says I should take puffers but I figure if I feel I don`t need to why should I. I can walk up 6 flights of stairs even though I huff and puff for a bit afterwards. I do notice I have a short reserve of instant energy before I feel I`m huffin a bit.
But then I think, perhaps even though I don`t feel or think I need the meds, I really do. Is there a threshold as to when meds are advised or how does one know? Considering possible adverse side effects from some meds I always figure it`s best to go med free all the way as much as possible just to be on the safe side.

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie B’s Kitchen to Yours

🍅EASY ROASTED PLUM TOMATOES🍅Makes a nice side dish. Or, use it as a topping for cooked chicken breast...8 plum tomatoes, halved lengthwise 1 tbsp. olive oil1/4 tsp. dried thyme1/2 tsp. salt1/4 tsp. freshly ground black pepper Preheat oven to 425°....

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, friends!
Never, ever give up hope! Always look on the bright side. Keep up the positive thoughts and toss the negativity right in the trash where it belongs. You may need to buy a bigger trash can, but it's well worth it! 😁
Enjoy a happy, peaceful, productive day! ☺

1 day ago

SonjaKoo

SonjaKooasked the question: Glue-like mucus and possibilities to reduce it?

Hey again, I tried looking for previous questions regarding this type of situation but couldn't find one. As stated previously, I haven't been diagnosed with COPD, but at one point I was diagnosed with atypical asthma. Now that diagnosis has also been …

1 day ago

Jambo1985

Jambo1985answered the question What is meaning of this weird test doctors are planning?

But how they try to diagnose it? If my results drops after cycling would that mean i have exersice induced asthma or is it diagnosed if values drop and i have help from bronchodilator? Sorry my english.
David Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question

1 day ago

Stephen Chambers

Stephen Chambers

How am I feeling
today? The asthma flare-up is slowly but surely improving with less
coughing and other associated symptoms. I went for a 2-mile walk today
along the Hansen Dam in the northeastern part of the San Fernando Valley
in Los Angeles. It was a fairly nice day though a lot of humidity and
haze in the distance. I rode my motorcycle to get there (I don't own a
car) and wore my KN95 mask inside of my full-face helmet. It was a good
day overall!

I did visit with my primary care doctor last Friday,
June 7th, who listened to my lungs and heard wheezing which I was fully
aware of. At its worse in late April through until mid-June, my lungs
sounded like a wheezy accordion. My primary doctor explained to me that
the scheduled CT scan for early August will be to help determine whether
I have a lung anomaly that could be lung cancer. The pulmonologist that
I had seen on May 28th did not tell me about that--probably so I would
not worry.

On that same day, June 7th, I also saw an RN at the allergy
department. She administered my first shot of Tszspire. It was weird to
have her begin the injection and have me finish it up. It is a pretty
fine need that I barely felt. The needle itself is pretty high-tech
because once the plunger reached the bottom, it clicks and a spring
pulls the needle back out. I did not experience any side effect from the
injection though they had me wait 1 hour for observation. I have yet to
decide if I want to continue with self-administering the Tszspire on
July 7th at home. The one thing about Tszspire is that it will lower my
immune response which does not make me feel comfortable.

1 day ago

sal6781

sal6781

    I am getting a CT scan tomorrow. Went to the doctor today and got loaded up with meds. She said it was an exacerbation. I just had one a month or so ago. Not very hopeful right now.

1 day ago

WSP

WSP

Why hello.    I have COOD diagnosed in 2008.   Lately I can’t even make it to the bathroom (literally 10 steps there and back) without my oxygen level dropping to 76 or lower.   I am on all appropriate meds.  I also have CHF.   I went to a pulmonologist and all he said “gain weight and walk more”.   He never listened to my lungs or my heart.  It was my first and last visit to him.   What kind of exercise regiment do I need.   I feel like I am going to drop when ever I walk to the kitchen.  I have to stop and catch my breath.   Any suggestions would be appreciated.

1 day ago

cwilliam

cwilliam

Hello, I've just joined this website in search of hope that I may be able to improve my current pulmonary function. I had a pulmonologist recently tell me I will never recover and it has me feeling defeated... like what's the point of continuing to try if I will never get better? Does anyone else fight with these feelings of hopelessness?

2 days ago

  • NewestOldest
  • DebbieB.-Connecticut State CaptainHello, and welcome to our community!
    I do not fight with feelings of hopelessness. I'm so sorry that you are. 😔 
    What can we do to help you get back the feeling of hopefulness?!
    Maybe a second opinion from another pulmonologist may be the next step. 
    When were you diagnosed with COPD? Are you enrolled in a pulmonary rehabilitation program? 
    Hope to hear more from you! 🙂2 days ago
  • das23Welcome cwilliam......Sorry you're feeling down. Click on the LEARN MORE and other tabs at the top of the page--Helpful information for all things related to COPD..Are you able to be out and about?? Can you exercise??  If you tell us a little more about yourself maybe we can be more help. Glad you found us✌1 day ago
  • Stephen ChambersWelcome to our community CWilliam! Though a doctor's job is to tell his/her patient the truth about their
    condition, I believe there is a way to say it with compassion and kindness.
    Telling a patient (you) that you will never recover seems harsh and will
    inevitably leave you feeling defeated and even depressed. I am
    certainly not a doctor, but there has to be some therapeutic measures
    that you can take such as exercise (as much as you can tolerate) and
    other medication treatments. I feel empathy for you, CWilliam. Never
    give up, and if you have to change doctors, by all means do so.1 day ago
Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

Just used the COPD Action Center to urge my elected officials to co-sponsor and vote for SOAR, the Supplemental Oxygen Access Reform Act (S. 3821 and H.R. 7829).

2 days ago

Kimscb

Kimscb

I’m ok.  I’m currently using the Biologic Dupixent and I’m not sure if it’s helping much.  I will say since January I haven’t needed to use Prednisone at all.  Any one else using biologics with positive results?

2 days ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Learning what's normal?

Good morning, Pickledonion ! It's great that you were able to be diagnosed with emphysema, bronchiectasis, and alpha-1 early so that you can start treatment. I recommend talking to your pulmonologist about whether augmentation therapy is a good option …
David Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

Jambo1985

Jambo1985

I have new spirometry+exersice stress test with 2 spirometrytest next week (pre and post exercise).
My last test was last month and it was normal, now im scared that somehow i would have copd developed in a month.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie B’s Kitchen to Yours

VINAIGRETTE, PLAIN AND SIMPLEJust throw this vinaigrette together...you won't believe how easy it is to prepare!1/2 tbsp. finely minced scallion1/2 tbsp. Dijon mustard 1/4 tsp. saltJuice of 1 lemon1/2 tbsp. white wine vinegar 1/2 cup olive...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Motivational Monday! 
Start your day with a can-do attitude! A positive outlook will take you through the day, then through the rest of the week!
Have an awesome day, folks! 😀

2 days ago

Brittishere

Brittishereanswered the question Chronic bronchitis to Emphysema

Ok. Thankyou for your help.
David Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD     (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

sal6781

sal6781

I have had one exacerbation that I am aware of. I was in the hospital over night and was diagnosed with COPD. I have been to a pulmonologist since and it was confirmed having moderate COPD. I'm doing a nebulizer twice a day and am on breztri. Before this, I was walking 1 to 2 miles at a fast clip every other day. I also cycled often doing 10 miles at a fast clip. When I was walking I had a hard time getting my heart rate above 110 BPM. I just got done walking a mile. My heart rate was in the 126 BPM range at a slower pace and I felt like I never have felt before.(like I didn't have the lung capacity that I had). I'm 77 years old. I have exercised all my life since I quit smoking 45 years ago. I am at a lost that I have gone down hill so fast ? Any comment that would help please ?
    I wrote this about a month ago. Today I am out of breath just walking around the house. I'm using a nebulizer twice a day and am currently on trilogy. I cannot believe that I have gone down hill so fast. I tried walking today and had to come back home.

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.