COPD360social

For a decade, the COPD Foundation has provided a growing COPD community with resources and education. Now we want to take our work to the next level. We want to hear from YOU daily.

Welcome to our interactive, collaborative community: COPD360social. You can join us and other friends, learn about events in your area, participate in research, chat with the experts, and learn how to take action -- all on your time, at your pace. COPD360social is the COPD Foundation's way of saying 'Thank you' to a community that can make the world take notice of a silent epidemic.

Join COPD360social, because we are stronger when we work together.

Create your COPD360social profile today!

-

DiannaG

DiannaGvoted on Motivating your Patients to Change Behavior

Gave a thumbs up for a PRAXIS blog post!

16 minutes ago

DavidKemle

DavidKemlereceived the badge Getting started

Earned the Getting started badge!
FBJim hmcneese12000and 23038 others also received the badge FBand 23040 others also received the badge

23 minutes ago

Kristen Willard

Kristen Willardadded a new article Motivating your Patients to Change Behavior

 Garwick presentation

This article is based upon the recent Pulmonary Empowerment Program webinar, “Motivating the Pulmonary Rehabilitation Patient to Lifestyle Modification: Achieving positive results by incorporating coaching techniques” given by Tammy Garwick, MA, RCEP, FAACVPR.

Health coaching is a patient-centered process that involves supporting patients...

1 hour ago

CJ Maine

CJ Maine

home from Hosp. 11 day stay-Influenza on top of COPD-wow

2 hours ago

Uncle Jim

Uncle Jimanswered the question Are you doing better yet? And other questions that might bug us.

I would assume that the callers are friends or family who really care about you and your condition. It is difficult to talk about your disease. I have been there. I would suggest that you take a couple of minutes to explain that your disease is not …
evesBill66Ben A also answered the question evesand 2 others also answered the question

3 hours ago

jim1945

jim1945answered the question How do you interpret your world with copd?

I see my relationship with COPD not as a fight, but as an on-going negotiation. Some things I can do, some I can't. I don't bother whimpering about what I can't do anymore. Rather, I spend time on things I can do that I enjoy. For me, coming to terms …
anon0502hackLouanneand 2 others also answered the question anon0502and 4 others also answered the question

3 hours ago

Frankie2015

Frankie2015answered the question What would you like to see in a COPD App??????

Sounds like a great idea! I read the answers and pardon my question if I overlooked! Anyway, I'd love to see a list of all the medications and dosages used or normally used for COPD.
DonnaA (SSP)Viper65clipperand 5 others also answered the question DonnaA (SSP)and 7 others also answered the question

3 hours ago

clipper

clipperanswered the question Severe dizziness

My mother had AFib and she would describe a dizziness where it felt like she was falling. She would hold on to whatever was near to kind of brace and stabilize herself. That was caused by her AFib, her heart beating very irregularly. There was nothing …
Bill66Fabiana Talbot also answered the question Bill66and 1 other also answered the question

4 hours ago

eves

eves

Beginning to feel as if I work here, my fingers get sore from clicking.

6 hours ago

    Grumpy71

    Grumpy71

    My Mom passed away January 22, 2017. She had COPD and small cell lung cancer. She fought right up to the end. We have an Inogen g3 that she got last July 2016. We are looking to donate the machine, but not sure how to go about this. If anyone can help, we would truly appreciate it.

    6 hours ago

    Ken Benson

    Ken BensonGood, bad, or otherwise?

    http://www.hmenews.com/article/providers-cheer-bid-delay

    6 hours ago

      Cindylu

      Cindylu

      I have been sick for about 3 weeks long course of antibiotics, prednisone struggling with my breathing. First real sickness since being diagnosed. Afraid of the outcome. Worried I won't get back to where I was before. Only 51 percent capacity between both lungs. Working closely with pulmonolgy dr. Scared.

      6 hours ago

      • CarolineHello Cindylu, I think that all of us here understand being scared of the outcome from an exacerbation. The most we can do is catch them as early as we can and pray for the best. Wishing the best outcome for you.6 hours ago

      • evesHi Cindylu.
        As Caroline said, we completely understand. Struggling to breathe makes anyone scared. Do not worry about the number though, it is just a reference number.
        And you are doing all the right things, especially working closely with your pulmo doctor.
        hugs to you6 hours ago

      • JeanActually, there are some things that work in our favor if we do get sick. The better shape you're in the better able you are to shake off whatever bug bit you, so this is a good example of why people with COPD should exercise daily. Knowing your triggers and understanding the signs of an exacerbation so you catch it early, having a supply of antibiotics and prednisone on hand and getting started on something very quickly can help. Getting flu and pneumonia shots can't hurt, and staying away from people with bugs is a no-brainer, including grandchildren, no matter how cute or how much they want to see you, don't let them!!! If they're buggy, you don't want to see them.

        You are doing all the right things, and you will find that it will take a long time to get back to where you were, but it is possible. I remember one exacerbation that I thought I'd never recover from, but I kept working and exercising every day, and I finally got there....it probably took four months. Sometimes it takes longer, but it's something you just need to keep on with.23 minutes ago

      Bill66

      Bill66answered the question Points...

      I click the thumb more to remind me I read it, than it is for the points.
      edpe77hackevesand 3 others also answered the question edpe77and 5 others also answered the question

      7 hours ago

      Evie

      Evieanswered the question apnea and cpap

      Hooray, got the oxygen after my doc went to bat for me. now just have to get used to the mask. thanks for the caring.

      7 hours ago

      eves

      evesasked the question: Are you doing better yet? And other questions that might bug us.

      I hate to answer the phone and be asked that question. It puts pressure on me. I don't want to say I'm fine and neither do I want to say, life is sucking pretty much. And I also don't even want to talk about it often. Sometimes I want to be in a state of …

      8 hours ago

      Louanne

      Louanneanswered the question Copd with shoulder pain

      my rib discomfort varies , sometimes it's a surrounding type tightness , ( unless something else is going on different type discomfort ) My shoulder is sometimes a different type discomfort entirely . I've been told ( X-rays - that my lungs are so …
      Bill Clark - Community Managereves also answered the question Bill Clark - Community Managerand 1 other also answered the question

      19 hours ago

      eves

      evesanswered the question Muscular skeletal

      Hi. All I know is that I definitely had muscle problems after going off a burst of 5 day prednisone. I don't like to blame a med too soon, but it happened again the second time and both times, started shortly after going off the burst. For me it was my …

      20 hours ago

      Caroline

      Carolineanswered the question Do some of you have problems with severe spasms in their rib cage, underneath the breast?

      I can often feel the spasms coming on and I can actually watch them move from one side of my abdomen to another. I guess I should say abdomen and rib cage. These are not bad. The ones that bring me to attention are the ones that start next to my spine. …
      BellabitsBen A also answered the question Bellabitsand 1 other also answered the question

      21 hours ago

      Dianne R

      Dianne Rasked the question: Muscular skeletal

      I weaned off of prednisone 2 months ago after being on it for 7 months. Since then I have had 3 episodes of really bad body pain. One in my left arm which started around the elbow and radiated up and down from shoulder to wrist. Then my upper body …

      1 day ago

      DavinaT

      DavinaTasked the question: Do some of you have problems with severe spasms in their rib cage, underneath the breast?

      Having serious spasms in my rib cage. Not sure what I can do to relieve them, I tried heat, cold, stretching, tens unit, nothing is working well for me besides being still sometimes and even breathing brings them on.

      1 day ago

      Louanne

      Louanne

      I'm also happy to share that since I've been gone from 360. I've remarried and moved into my hubbys house , finally getting organized and feeling better .
      We went to the Consult Evaluation in Houston for Lung Transplant. I would have to move to Houston for consideration of lung transplant ( the physicians team indicated I was eligible for their lung transplant clinic ) I'm still going to UT Southwestern here in Dallas
      I'm so glad to be back

      1 day ago

      Louanne

      Louanne

      I'm elated to be back , feeling much better after 3 infections at the same time . One by one getting all resolved . Feels great to get out and exercising again . ( I exercise in any way possible while puny )

      1 day ago

        eves

        eves

        Happy that I found a copd site where I feel part of the community and welcomed. And so many options to wander through. An excellent place.

        1 day ago

        Kandy

        KandyThis was sent to me today!!

        http://www.hmenews.com/article/providers-cheer-bid-delay

        1 day ago

        Bellabits

        Bellabitsanswered the question why do some people who have quit smoking look down their noses at others who have not yet quit?

        Thanks Eves, I haven't smoked for a long time. Lately I have heard comments by former smokers about people who do smoke now and it really bothers me. It hit a nerve I guess. Thanks for your response
        evesBill66 also answered the question evesand 1 other also answered the question

        1 day ago

        JoanneB

        JoanneBasked the question: Severe dizziness

        I'm so sorry this will be wordy but I've tried to get help from my doctors for over a year now with no luck. I have severe COPD, moderately high blood pressure, AFIB with RVR, high cholesterol, diabetes and a subclavian artery blockage. According to a …

        1 day ago

        eves

        evesreceived the badge Answer Guru

        Earned the Answer Guru badge!

        1 day ago

        eves

        evesasked the question: How do you interpret your world with copd?

        I have always been on the philosophical side, a bit of a curious mind, a fighter and advocate for the 'underdog' and won't be intimidated if my view is not popular with mainstream ideas. I am sometimes misunderstand because of my traits. I love the …

        1 day ago

        Jetty

        Jettyasked the question: Copd with shoulder pain

        l have shoulder pain is this normal.The pain comes and goes l read that it is due to drinking alcohol which irritates COPD. Is this true

        1 day ago

        eves

        eves

        Wondering what a "Create New Feed" means. What is a feed builder? I'm guessing it's not complicated enough for my brain heehee.... Help me on this one? Also curious how many members are on social360 and is there a place we can see where people are from. Not a copd Q, so posting it here.

        1 day ago

        Jane Martin

        Jane Martincommented onResource of the Month: New Pneumonia Fact Sheet

         So true, Bill66. Handwashing is so simple and low tech, yet makes an enormous difference with infection control....

        1 day ago

        eves

        evesanswered the question What can you do to help COPD360 Social

        Bill, I just saw this. And sheesh, I had to go way back to see it lol. I spend so much time combing through the stuff on here. The site is very well done and I and many others appreciate it and you and all the people that give to this cause. Will check …

        1 day ago

        Bill66

        Bill66

        Still haven't started on My Crestor. I never had problems with my cholesterol. I didn't fast for 9 to 12 hours my last blood test, my Doctor said they're still not great and Crestor will help. I would like any advice.

        1 day ago

        HIcopd

        HIcopdanswered the question Questions about Oxygen?

        OK, any more questions about the Long Term Oxygen Treatment Trial? I've received some from several people--Bonnie, Bob S. Mike H., Bruce M, and Jean R. Anyone else? I'd like to have as complete a list as possible so that the authors and NIH can …

        1 day ago

        Bill66

        Bill66

        It's nice to count on Kandy changing her profile pic for the upcoming holiday.

        1 day ago

          Bill66

          Bill66answered the question Sleep disturbance

          My Doctor gave me some good advice, go to bed at the same time every night and wake up the same time. The brain is designed to release chemicals between 10pm and 2am and when we go past that it really jams you up. It has helped me tremendously. I try and …

          1 day ago

          Bill66

          Bill66answered the question Vitamins for COPD ?

          I get most of my nutrition by eating, I have an app that stores the data based on age and gender, it's not perfect, however I get almost a perfectly balanced score on a daily basis. I take a men's multi just for missing nutrients.

          1 day ago

          eves

          evesanswered the question Sleep disturbance

          I cannot stay asleep. I know often the old anxiety card gets thrown out there, but I know myself and if it was anxiety I would have a tough time going to sleep. But my problem is staying asleep. I was down to 2 hours a night, but with inhalers, I now get …

          2 days ago

          eves

          evesanswered the question How much has COPD changed the way you look?

          @LUANNSPIRIT We are taught that looks matter a great deal. And it does not help to be told we look fine if we do not see ourselves that way. So I do feel for you. I have in the past felt the same way. I think often lack of feeling healthy, changes the …

          2 days ago

          Kristen Willard

          Kristen Willardanswered the question Where can I move to breathe better? I am dying in SE Tennessee.

          Karen has given you great advice. A pulmonologist will be key to your life with COPD, no matter if you stay in TN or more to another location. Hope you can get to see one soon who will help you better manage your symptoms. Let us know how that goes and …

          2 days ago

          Kandy

          Kandyanswered the question Dr. OZ: The Red Flags of Unproven Stem Cell Treatments

          Didn't I post it this last week? I saw the end of the show but he had a article in the Chicago paper on how bad the stem cell clinics are.

          2 days ago

          Fabiana Talbot

          Fabiana Talbotasked the question: Dr. OZ: The Red Flags of Unproven Stem Cell Treatments

          Have you seen the latest from the Dr. Oz show on experimental stem cell treatments? Investigative reporter Elisabeth Leamy goes undercover to expose the truth about the clinics that prey on vulnerable patients. Watch clips from the show here: …

          2 days ago

          eves

          evesanswered the question Vitamins for COPD ?

          I have a counter full of supplements lol. I used to see a naturopath. I was warned about too much VIT D by my cardiologist. I am not good about taking my stuff regularly, often because I am too chicken. I have tried liposomal glutethione, NAC, D, E, C, …

          2 days ago

          eves

          evesanswered the question Has anyone heard about the beneficial effect of anise on lungs?

          I used to want to try licorice, but for me it just gets too many hits on the side effects on google. Even the FDA has a link to "side effects of licorice" It seems to be "glycyrrhiza" in the licorice. And it is just one of those natural where it is …

          2 days ago

          MikeInColorado

          MikeInColoradoanswered the question Vitamins for COPD ?

          there are studies that indicate vitamin d3 in large daily doses are helpful in preventing COPD exacerbations, and also provide protection against getting respiratory infections. https://www.sciencedaily.com/releases/2016/11/1611...

          2 days ago

          Join Us on COPD360social

          Sign In to Participate
          Or register to become a member
          6.3COPD

          Medical Advice

          It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.