COPD360social welcomes new member COPD53MAN who joins 60,735 current members of our community. Weโ€™re glad you're here!

Misty Green COPDF Research

Misty Green COPDF ResearchWorld COPD Day Big Baton Pass
Save the date- November 20th 2024
For more information- copdbatonpass.org

4 days ago

Bill Clark - Community Manager

Bill Clark - Community Manager

DO NOT POST ANY TEST RESULTS until you have completed all your tests AND spoken to your own doctor or medical team and gotten a diagnosis! This is for your protection and ours.  Your doctor has access to all your medical records and we do not.  Interpeting partial results can often lead to a incomplete, or inaccurate diagnosis. This can cause you emotional harm and present liability concerns for us.  

Once you have completed your testing and spoken to your doctor we will be happy to help you understand the implications of your diagnosis and help you move forward, If you post any results without going through the proper steps your post will be deleted  and possibly your membership.

3 months ago

The COPD Foundation

The COPD FoundationCOPD Foundation and Medicare Right Center Webinar: COPD and Medicare Made Simple: Preparing for the Annual Enrollment Period

In this webinar recorded on October 10, Medicare experts cover major changes in Part D for prescription drugs to ensure coverage for essential COPD treatments. You'll also learn about Medigap plans, Medicare Advantage options, and tips for managing medication costs. Watch this one-hour webinar designed to help you navigate Medicare, especially if you live with COPD.

WATCH HERE: https://copdf.co/MedicareRights

9 minutes ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Hi to all, i am new here

Hello Andrea.Monti - You sent me a personal message, to which I have replied, but I wanted to also welcome you here on the social media page. I hope that you will be able to do as Dr. Mannino has suggested, and post your pulmonary function testing …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

51 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Diagnosed with early stage emphysema at 30,

Matt, in my opinion, it's just better finding out that you have anything. Reason being, you can start to manage it. Finding out when you are young gives you the chance to live a healthy lifestyle. If you did not find out until later, you may not have …
Matt19*das23David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Matt19*and 2 others also answered the question

53 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question SHOW US YOUR COLORS - Share some of your photos

I love to see everyone's pictures! So...please post them! They add so much to my day! 😀
JeanO53das23 also answered the question JeanO53and 1 other also answered the question

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainJeanO53โ€‹
Hi Jean! I cannot post a picture under your post. It won't work.
So...here is a picture of my backyard sky right now! 

2 hours ago

JeanO53

JeanO53asked the question: SHOW US YOUR COLORS - Share some of your photos

As I've said many times, this is my favorite time of year. In Wisconsin, it usually means the high temperatures and humidity are mostly gone. And the leaves are changing colors. Yes, I've been sneezing a lot more, but it sure is beautiful out there. …

3 hours ago

smsflorida

smsflorida

I am the daughter of a 96 year old woman who has COPD and CHF. She recently developed afib, first with a heart rate in the 120s, now in the 70s and 80s. Cardiology wants to do an ablation, but we are concerned about sedation. Five years ago mom barely came out of a pacemaker procedure in which she had โ€œconscious sedationโ€ with versed and fentanyl. Has anyone had a procedure which required sedation, and if so, what anesthesia did you receive? Trying to weigh the risks of the procedure vs, staying on Eliquis.

5 hours ago

Community Announcements

Community Announcementsadded a new article COPD Foundation, Kaia Health partnership focuses on the importance of pulmonary rehabilitation

Miami & New York, NY (October 21, 2024) - The COPD Foundation announces Kaia Health as a new partner in the Digital Health Corporate Social Responsibility program. This collaboration highlights the Foundation's commitment to supporting innovative digital solutions to improve the lives of individuals living with chronic obstructive pulmonary disease (COPD).

COPD comprises several conditions, including chronic bronchitis and emphysema, and can be caused by genetics and irritants like smoke or pollution. The disease affects more than 30 million Americans and is the third leading cause of death worldwide.

Pulmonary rehabilitation is an important aspect of COPD management; however, geographic or logistical challenges can prevent people from accessing in-person programs. Kaia Health's digital-first approach helps overcome these obstacles, offering a flexible, accessible alternative to in-person rehabilitation programs.

5 hours ago

Andrea.Monti

Andrea.Montiasked the question: Hi to all, i am new here

Hi everyone, I hope I can disturb you for a moment, my name is Andrea, I'm 30 years old, and I have two lung diseases, Emphysema and COPD, until a few years ago I lived my life without problems, I was always quite well, above all I was happy. . periods …

6 hours ago

Matt19*

Matt19*asked the question: Diagnosed with early stage emphysema at 30,

Hi all, I was diagnosed with early stage emphysema when I was 30, Iโ€™m 37 almost 38 now, I really had no clue what emphysema was when I was diagnosed, my doctor said if I quit smoking I should be fine, I had no clue it was progressive or how serious it …

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฏHONEY GLAZED SWEET POTATOES๐Ÿ  3 cups peeled, in 1-inch dice, sweet potatoes 1/4 cup olive oil 1/3 cup honey1 tsp. cinnamon In a large skillet over medium heat, mix together the sweet potatoes and olive oil. Cover skillet; cook for 15 to 20...

8 hours ago

Julia33

Julia33answered the question Has anyone been diagnosed with chronic bronchitis at 24 years old?

I have the same symptoms. It also started with a viral infection when I was 31. I have seen several specialists but haven't got a diagnosis yet. Pft and ct are normal but I have to clear my throat almost the whole time. Have you already checked for …
HIcopd - Hawaii State CaptainDebbieB.-Connecticut State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question HIcopd - Hawaii State Captainand 3 others also answered the question

9 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHooray for Tuesday! Wake up with a positive outlook, and you'll start your day the right way! You'd be surprised at how much better your life will be when you are happy!
Enjoy your day, friends! ๐Ÿ˜€

12 hours ago

jayle

jayleanswered the question COPD: Does anyone use a fan to help them breathe?

yes I find it helps me A great dea
SWhitakerpcbJeanO53Caroline West Virginia State Captainand 4 others also answered the question SWhitakerpcband 6 others also answered the question

1 day ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Gas exchange

Hi Pickledonion ! Gas exchange in the lungs refers to how well oxygen moves into the blood and Carbon dioxide moves out of the blood to breathe out. If it's slightly impaired, you may have a hard time getting enough oxygen in your body, breathing all of …
Pickledonion Caroline West Virginia State Captaindas23 also answered the question Pickledonion and 2 others also answered the question

1 day ago

John Stratton

John Stratton

Feeling crummy again canโ€™t understand itโ€™s like Trellegy stopped working 

1 day ago

Christine1969

Christine1969

Well I am having issues with my water trap. I am still getting water in my cannula even when it barely has any water in it. Is there anything else I can use to prevent this?

1 day ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)commented onThe Connection Between Mental and Physical Health

Thank you so much for this information, Amanda! Did you know that being physically active is connected to having fewer flare-ups and a lower chance of needing to go to the emergency room or being hospitalized? The less active you are, the greater the...

1 day ago

ilze

ilzeanswered the question Mum with COPD and a baby

Hello again, thank you for your answers. It is good to hear there might by some options. Iโ€™ve not been tested for the genetic form of COPD, nobody has talked to me about it. Would there be a different treatment then? Iโ€™ve been suggested to take …
TonicDkdas23HIcopd - Hawaii State Captainand 1 other also answered the question TonicDkand 3 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธWAKE UP! COFFEE SMOOTHIEโœด๏ธ1 medium banana, sliced and frozen1/2 cup brewed coffee, chilled1/2 cup milk of your choice1/4 cup rolled oats1 tsp. nut butterPlace all ingredients in a blender. Blend on high speed until smooth, adding a bit more...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's magnificent Monday once again, friends! We have every reason to be happy today and every day! 
How about a great big smile!!! ๐Ÿ˜ƒ

1 day ago

Oxygen tank Man

Oxygen tank Man Hi Did Yorkshire marathon sunday.wet and windy great support from friend Simon who carry extra oxygen tank.got round in 6 Hours and 35 minutes.Think come the oldest man in world to carry oxygen tank in marathon at 69.raised ยฃ1,035 pounds for asthma and lung foundation UK.

1 day ago

Pet lover

Pet lover

I am 72 years old, diagnosed with COPD 10 years ago and recently diagnosed with Very Severe COPD.  Dr. prescribed low dosage morphine and anti anxiety pill in addition to my nebulizer meds, Spiriva and Ventolin inhaler.  Morphine has helped with breathing.   I am wondering if there are other members of this group living with last stage COPD.  How long have you been dealing with the last stage?    Any suggestions on living with this challenge are appreciated.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainYay! It's Sunday! Don't forget to take some time out to do something you enjoy! You deserve it! ๐Ÿ˜Š

2 days ago

Pickledonion

Pickledonion asked the question: Gas exchange

Hello all I hope you are doing well I wanted to ask about Gas exchange I have been advised that I have a slightly impaired gas exchange....I have no idea what this means. Might some explain this to me in simple terms plse Does everyone with copd have …

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question How worrisome are emphysematous changes on screening CT?

Hi Vanessa76 - Welcome!! As the others have already reassured you, nodules are fairly common and many of us have had them for years. I have ones that have come and gone over the years, and I've lived with severe COPD for over 23 years and another 10 …
DebbieB.-Connecticut State CaptainPhyliss DiLorenzo NJ State Captain also answered the question DebbieB.-Connecticut State Captainand 1 other also answered the question

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Oxygen coverage

This is an excellent resource, Jonnie Korinko (COPDF Manager of Public and Professional Education), thanks for posting it. I'm going to bookmark it. It's the first time I've heard about them.
Jonnie Korinko (COPDF Manager of Public and Professional Education)Audi JSWhitakerpcband 3 others also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education)and 5 others also answered the question

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.