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Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒˆ๐Ÿพ A Thought for a Special Fluffy Friday ๐Ÿพ๐ŸŒˆ

I wanted to share an idea that one of our friends here on 360social shared with me. So many of us have had our sweet companions--those furry, feathered, or even scaly friends--whoโ€™ve brought us joy, comfort, and unconditional love through every chapter of life. Some of them have since crossed over the rainbow bridge, but they remain part of us, always. ๐Ÿ’–

What would you think about having a special Fluffy Friday from time to time, dedicated to remembering those little loved ones who are no longer with us? It could be a place to share a photo, a favorite story, or simply their name and what made them so special.

It might be a gentle way for us to celebrate the love that never fades and to know that others here understand that kind of bond. ๐Ÿ•Š๏ธ

Would you like to join in and make this a part of Fluffy Friday every now and then?
 

2 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Dilemma if I should use Trelegy or Ohtuvayre

Sorry!!! I write that wrong!!! It is Ohtuvayre I use first, then Breztri! I donโ€™t know what I was thinking while typing. If you have been prescribed Ohtuvayre, you can confirm with your specialty pharmacy, but those were the instuctiond I was given
lizjbWho Me ?Caroline West Virginia State Captainand 1 other also answered the question lizjband 3 others also answered the question

8 hours ago

Keir123

Keir123answered the question PFT findings -air trapping, any comments?

Thanks Phyliss for your calm and pragmatic words. im seeing what you'd call a Pulmonologist on Thursday so ill find out more. Since the DCLO is good and the CT didn't raise any eyebrows I'm hoping the emphysema component to it is relatively smaller, as …
Phyliss DiLorenzo NJ State Captain also answered the question Phyliss DiLorenzo NJ State Captain also answered the question

8 hours ago

UK Lynn

UK Lynn

Hi folks. I am using Trimbow high strength for COPD/asthma overlap and I have noticed nightly painful foot cramps after starting on it. Anybody else experiencing this? I am keeping hydrated but still get these painful cramps. 

9 hours ago

Banath

Banath

Hello ๐Ÿ‘‹๐Ÿพ everyone I hope everyone have a wonderful day. I have a question.  Since I've started taking Trelegy I have had terrible pain in my feet and legs. I've been on the medicine foe 2 months. Is anyone else experiencing this. Trying to figure out if it's the medicine or something else ๐Ÿค”. 

10 hours ago

UK Lynn

UK Lynn

Hi folks, just a general query. I am managing 100% expected fev1 (360 which is correct for my age and height). However I can only achieve this after taking my two puffs of Trimbow without meds it's quite low.

11 hours ago

Pnally

Pnallyanswered the question What more can I do to slow progression and/or improve quality of life?

Thank you all for the kind and encouraging words. This group has been a blessing for me.
brydyKaren Deitemeyer - Florida State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question brydyand 3 others also answered the question

11 hours ago

Keir123

Keir123asked the question: PFT findings -air trapping, any comments?

Hi, Just came back from full PFT (they didn't do a walk test). DLCO was over 100%, however TLC and RV/TLC was high (2.8/6.9, or 40.5%, apparently 1.6 was predicted). My spirometry was a little worse than 1 week ago - FEV1 66 rather than 68. I don't …

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, everyone! Be loud! Be proud! Be orange! Spread the word! November is COPD Awareness Month! Wishing you all a wonderful, productive, easy breathing day! Keep on smiling! ๐Ÿ”†๐Ÿ˜€๐Ÿ”†

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I remember enjoying rainbow sherbet and pineapple sherbet when I was young. Yes, they did have sherbet back in the dinosaur days. ME: โžก๏ธ๐Ÿฆ•โฌ…๏ธ ๐Ÿ˜‚...

23 hours ago

GAnne

GAnneanswered the question Change in colors

Jean, my pulmonary told me to take Mucinex , my mucus isnโ€™t dark green, he has me taking azithromycin, and 10 mg prednisone as an add on to my trelegy, I will do that for the weekend, I had an appointment with him on. Thanks
JeanO53DebbieB.-Connecticut State CaptainCaroline West Virginia State Captain also answered the question JeanO53and 2 others also answered the question

23 hours ago

das23

das23commented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Orange Sherbet was my favorite as a kid!!!!.......These days it's Cookies and Cream!!!!!!!...

1 day ago

brydy

brydyanswered the question Dumbells advice please sorry maybe silly.

Amazing Dinna!!! your HR will likely improve as you continue your cardio workouts too! the heart like any muscle needs to be trained to be its best self! one way to show yourself improvement is to monitor your HR right after your cardio & then see …
Dinna25WildebeestCaroline West Virginia State Captain also answered the question Dinna25and 2 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFluffy Friday Bonus!!! ๐Ÿ”†๐Ÿ”…๐Ÿ”†
Here's Miyagi modeling her post-surgical suit. Instead of using an Elizabethan collar, she's got this...in case she messes with the surgical area. ๐Ÿฅ‘๐Ÿฅ‘๐Ÿฅ‘

1 day ago

JeanO53

JeanO53

Quick update - I am on the mend; a bit frustrated Iโ€™m not fully well yet.   And kind of surprised.  Then again, I think this is the first โ€œcoldโ€ Iโ€™ve had since just before the pandemic - 5 years later and older.  It is a good lesson on how bad things could have become had I not contacted my doctor as soon as I did.
I am so grateful to have access to good healthcare and for having a safe space & time to take days โ€œoffโ€ and just rest. ๐Ÿ™

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Jean, orange sherbet IS magical!!! โœจ๏ธ If you look up how to churn the mixture without an ice cream maker, I'm sure you'll find something useful!After a big holiday meal, sherbet is a refreshing dessert!The Edy's you mentioned reminds me of a...

1 day ago

JeanO53

JeanO53commented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Orange sherbet is one of the things at the top of my list of favorite things. I swear it has magical qualities when Iโ€™m not feeling well. Edyโ€™s used to make an Orange Sherbet &Cream โ€œice creamโ€, but doesnโ€™t anymore.โ˜น๏ธAnd I donโ€™t have an ice cream...

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Happy Weekend, everyone!

I hope the next couple of days give you a chance to kick back, breathe a little easier, and maybe even spoil yourself with something you enjoy. Youโ€™ve more than earned it!

And since weโ€™re right in the middle of COPD Awareness Month, this is your friendly reminder to GO ORANGE this weekend. Wear it, wave it, wrap yourself in it--if itโ€™s orange and makes you smile, it counts! (Bonus points if you get a pet, partner, or unsuspecting family member to match with youโ€ฆ photos encouraged!)

Weโ€™re also heading toward World COPD Day on Wednesday, November 19th, so letโ€™s keep that orange energy rolling. Think of it as a warm-up lap for a big day of awareness and community spirit.

Wishing you a restful, feel-good weekend -- may your coffee be strong, your breathing steady, and your favorite blanket magically find its way to you! ๐Ÿงก๐Ÿ’™

1 day ago

Jazzybean

Jazzybean

Today is a day I want to say Thank YOU to the whole community. The last couple of months have been somewhat difficult. I have experienced an increase in symptoms and a definite decrease in my ability to exercise. ANYWAY. Two days ago I had my appointment for my pulmonary function test. Not an appt. I was looking froward to, But, knew the test had to be done. 
Today, I want everyone to know that, in my mind, I took you all with me. I know many here have been where I was. Nervous, yes, scared. In my case I'm not sure I even want to know what the results will be, but, can't ignore whatever lies ahead. The main thing I want everyone to know though, is that your voices matter. While we share our thoughts in electronic blips, they are your voices and your presence. Walking into that booth yesterday, I just knew I was not alone, there were so many of you, had you been there in person, you would have known exactly how I felt and held my hand.  It helped.!!! I don't have my results yet and am bracing for whatever they may be.  Knowledge will be important to figure out how to proceed in my journey with this disease.  Again, thank you everyone, I know we have each other's back.   

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„๐ŸŠ๐Ÿ˜‹ORANGE SHERBET๐ŸŠ๐Ÿ˜‹๐Ÿฅ„ ๐Ÿ”ธ๏ธ๐Ÿ”ธ๏ธICE CREAM MAKER RECIPE๐Ÿ”ธ๏ธ๐Ÿ”ธ๏ธ2 cups freshly squeezed orange juice 1 tbsp. orange zest1 cup sugar, divided 1/2 cup heavy cream1/2 cup whole milk In a medium bowl, mix together the orange juice, orange zest, and...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from a content kitten, our friend Miyagi!!
Miyagi is here to remind all of you that November is COPD Awareness Month! Have a very orange day, friends!! ๐Ÿงก

1 day ago

brydy

brydyanswered the question Does anyone else experience rib, or center back pain

agree with Karen, Jadeemily. if you havent please give your doc a call to get ckd! coughing a lot can cause muscle pain in back/ribs/shoulder but adding in a lot of mucus could be a respiratory infection. hope u feel better soon! pls do call your GP if …
JadeemilyGAnnePhyliss DiLorenzo NJ State Captainand 3 others also answered the question Jadeemilyand 5 others also answered the question

1 day ago

Always_Qs

Always_Qsanswered the question Safe to take the train to 8,000 ft from sea level when have COPD on 2L/min continuous flow oxygen?

Lisa, thank you for the research! I have COPD and have an upcoming trip on the Southwest Chief. Your research gives me great info on when I'll need my portable oxygen concentrator. Thank you!
HIcopd - Hawaii State CaptainKaren Deitemeyer - Florida State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question HIcopd - Hawaii State Captainand 2 others also answered the question

1 day ago

das23

das23answered the question Im booked in for a lung function test in December.... im wondering if I could have copd every morni

Welcome Jadeemily.......The others have given you great advice. Good luck with your PFT---Keep us posted--we are here to help
DebbieB.-Connecticut State CaptainKaren Deitemeyer - Florida State CaptainLiza M also answered the question DebbieB.-Connecticut State Captainand 2 others also answered the question

2 days ago

Jadeemily

Jadeemilyasked the question: Im booked in for a lung function test in December.... im wondering if I could have copd every morni

Im booked in for a lung function test in December.... im wondering if I could have copd every morning I wake I can't catch my breath until I've managed to hock up the thick yellow sometimes white brownish stuff sometimes rather big amounts that are so …

2 days ago

Pnally

Pnallyasked the question: What more can I do to slow progression and/or improve quality of life?

Greetings, Former smoker,59, that quite about 9 years ago. About 1 year ago LDCT found โ€˜minimalโ€™ emphysema, went to specialist and had spirometry.Doctor said spirometry was normal. He told me never smoke again, eat well, lose weight, and keep up on …

2 days ago

Community Announcements

Community Announcementsadded a new article Testing lung function earlier may help identify risk for COPD

New study links low lung function in midlife to higher risk of death, poorer quality of life

Miami (November 13, 2025) - Measuring lung function earlier in life would help identify people at risk of developing chronic obstructive pulmonary disease (COPD and allow for more timely interventions, according to a new study in the September 2025 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open access journal.

COPD encompasses conditions including emphysema and chronic bronchitis. It is caused by irritants like smoke or pollution, and even genetics. There are an estimated 30 million Americans affected by COPD, yet only half of those people know they have the disease.

Spirometry is used to measure lung function, using forced vital capacity (FVC) and forced expiratory volume in 1 second (FEV1) values to determine the presence and severity of lung disease. Spirometry has been shown to help predict people who are at risk of airway obstruction; however, it is not routinely performed in younger people.

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.