Mary Keller

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1 minute ago

Caroline

Caroline

COPD action plan in use today.  I woke up with a cough and low energy so I declared this a yellow day and began with allegra and mucinex.  I will call doctor this evening if things do not improve.  My personalized action plan tells me to start this medication and if symptoms persist to call doctor.  I have an agreement to get in to the office same day.  I will call in time to go in if necessary.

7 minutes ago

Caroline

Carolineanswered the question Heart and Lung Survey

I just finished the survey!!
VicEck-State CaptainStephanie Williams, RRTBill Clark - Community Manager also answered the question VicEck-State Captainand 2 others also answered the question

13 minutes ago

Bill66

Bill66answered the question Experience with Trelegy Ellipta

Thanks Jastro for the input.
Jean IA State CaptainMellie also answered the question Jean IA State Captainand 1 other also answered the question

1 hour ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF StaffAre you prepared and ready if a disaster strikes? After reading through this booklet, it made me realize that I need to work on developing a disaster preparedness plan,  and that I should get some batteries, flashlight, have a first aid medical kit, and research where my nearest fire stations and hospitals are! What steps do you think are important to take for a disaster preparedness plan? 

1 hour ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question No air coming through my cannula

Check all the tubing are hooked up right. I had a hole in my cannula before also.
Stephanie Williams, RRTCarolinejudg69and 2 others also answered the question Stephanie Williams, RRTand 4 others also answered the question

12 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Can someone share information about Performamist?

I use the same but called Brovana its a 12 hr neb med. I do have to do in mid afternoon sometimes I do levelalbuterol which is generic for xopenex.
HIcopd - Hawaii State Captainclipper (Debbie) - NJ State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

12 hours ago

Cindylu

Cindyluanswered the question Feeling hopeless

Kris. I have gotten so much Hope here , just reading other people's stories. Accepting this disease is hard. Some days when I get down, I have to ask myself "am I living or dying"? I choose to live. I'm a fighter. I educate myself, I do everything I can …
VicEck-State CaptainLouanne  DFWTexas State Captain clipper (Debbie) - NJ State Captain and 1 other also answered the question VicEck-State Captainand 3 others also answered the question

19 hours ago

quasibobo

quasibobo

Aloha from Hawaii. Learning to live with a recent diagnosis and all the follow up appointments with specialists. Specialized health care on Hawaii Island is very difficult as we have no full time pulmonary doctors here and have to wait months for doctors to travel from Oahu to see us. Travel between islands is very expensive and not always covered by insurance. Our local hospital is trying very hard to help us with a COPD support group and looking into better respiratory therapy availability through an new cardiac clinic that just opened. 

20 hours ago

  • NewestOldest
  • HIcopd - Hawaii State CaptainYes, so glad that Hilo Medical Center has started a COPD Support Group.  It IS tough to feel so isolated!  Hopefully several of your internists and allergists can provide good care between visits with the pulmonary specialists.  Even those of us who have pulmonologists often only see them once or twice/year except if there's an exacerbation that needs expert attention.20 hours ago
  • Tracie Sullivan COPDF StaffHi Quasibob- nice to meet you virtually, and I am glad you have joined the COPD 360social network! This is a wonderful community of individuals who are supportive, can help you with any questions you may have, and post great resources. That is so great to hear that your local hospital is trying and working hard to help to start a COPD support group, and that a new cardiac clinic has opened up. Val Chang, who commented above is the COPD Foundation State Captain for Hawaii, and is a great individual to connect with at copd.hawaii@yahoo.com. Please let us know how we can help, and welcome to 360social!1 hour ago
Kristen Willard

Kristen WillardPart 2 of our Bronchiectasis & NTM Town Hall series is coming up on March 5, 2018! On this call, our expert speaker Dr. Tim Aksamit of the Mayo Clinic will take us on a more in-depth dive into bronchiectasis and NTM. 

See the full agenda and register here: https://www.surveymonkey.com/r/on360social

23 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain Here is a pretty interesting article on supplements. As always before taking anything discuss with your doctor. And conversely, if our doctor wants you taking something, do so.  

https://arstechnica.com/science/2018/02/supplements-are-a-30-billion-racket-heres-what-experts-actually-recommend/

23 hours ago

Bill Clark - Community Manager

Bill Clark - Community Manager

Dallas Harmonicas forHealth group playing at GSK conference today. Pictures to follow

1 day ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF StaffSelfie from this past weekend, of attending a COPD Conference at The Villages in Florida with physicians and staff from the University of Chicago!  I got to meet State Captains Bob Sobkowiak, Dave Thompson, and Airhead Support Group Leader Stephen Rule! I will be writing a blog this week to talk more about my experiences, it was a great trip!

1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question Non-invasive ventilation

It is really a great help to some patients....if you have the chance to try it, I certainly would. Especially great for those with CO2 retention!

1 day ago

Fabiana Talbot

Fabiana Talbotasked the question: Heart and Lung Survey

With American Heart Month in full swing during the month ofFebruary, we wanted to see how your awareness of your heart and lung healthcompares. Please take a few minutes to answer the following the questions. Wewill report back on COPD360social with the …

1 day ago

Nikilet

Nikiletasked the question: Non-invasive ventilation

It has been suggested by the suppliers of my oxygen supplies that non-invasive ventilation therapy might help relieve my breathing difficulties. The way it was explained to me, it is a machine that I can use for a treatment and it will free up my …

1 day ago

Nikilet

Nikiletasked the question: Can someone share information about Performamist?

It has been suggested that I give up the albuterol and go to this Performamist. My understanding is that whereas I can take my albuterol up to 4 times a day, I can only use this 2 times a day. Does Medicare cover this fully like they do albuterol? I'm …

1 day ago

Nikilet

Nikiletasked the question: No air coming through my cannula

When I changed my cannula I discovered there was no air coming through it -- neither the old one or the new one. I checked my hoses and there was no air coming out of anything, altho the little bit of water in my bottle was bubbling. After messing …

1 day ago

Jastro

Jastroasked the question: Experience with Trelegy Ellipta

I've just been given this to try, to replace Anoro and Asthmanex. Has anyone tried it? I know it's gotten mixed reviews. So, asking...

1 day ago

Rebecca-stage2

Rebecca-stage2

Does anyone else wake up choking on fluid and coughing up? I'm wondering if it is the COPD or something else..

1 day ago

Louanne  DFWTexas State Captain

Louanne DFWTexas State Captain answered the question COPD & a cold

All have given great advice , Please get in to your Primary care Physician ASAP

1 day ago

MuMarie

MuMariecommented onToo Embarrassed to Ask?

 If possible, carry with you a shirt or sweater/jacket that you can use the sleeves to tie the shirt around you to hide the wet spot. Hopefully you have another pair of panties in your purse. Don't know about men (and they too have the same issue)...

1 day ago

Caroline

Carolineanswered the question COPD & a cold

Everyone here has given you great advice. You have to understand that with COPD it is never just a cold and a cough.

2 days ago

Kris15745

Kris15745asked the question: Feeling hopeless

Hi everyone I am new and newly diagnosed I have not had the breathing test yet but did have it 4 or 5 years ago I don't know the score but they put me on inhalers at that time..I have always thought it was chronic bronchitis as I use to get a cough every …

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Did you feel your lungs prior to COPD?

Lungs don't have pain receptors, so they don't cause the pain, but there are many other things in the same area that do: the pleural cavity, ribs, muscles, linings, etc. and things like gall bladders, kidneys and other organs can also be suspect because …

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question COPD & a cold

You really need to learn about this disease, so go to the "learn More" tab at the top of the page and start reading. Your O2 sats should stay above 90 all the time and if they don't, you can turn the O2 up. Use your oximeter to be sure it's turned high …

2 days ago

Kristen Willard

Kristen WillardHas allergy season started where you live? I have noticed an increase in symptoms here in DC, but it seems so early! 

https://www.weatherbug.com/news/When-Are-The-Worst-Times-For-Allergies

2 days ago

Kristen Willard

Kristen Willardanswered the question COPD & a cold

Ken has given you great advice -- reach out to your doctor and please keep us posted! Glad you found us, BetsM.

2 days ago

Ken Benson

Ken Bensonanswered the question COPD & a cold

Stopping smoking might be the best thing you have ever done. Please call your doctor now about oxygen levels dropping that much. Don't wait until your March 6th appointment. You may need to increase your rate of flow until things get better for you.

2 days ago

BetsM

BetsMasked the question: COPD & a cold

I'm new here and really concerned about a few things. Ten years ago my doctor said I had Chronic Bronchitis, and suggested I quit smoking. She gave me a prescription for Chantix and I decided I needed to quit pretty darn fast. I hate to admits this but I …

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.