COPD360social welcomes new member TonyReece56 who joins 62,825 current members of our community. Weโ€™re glad you're here!

Misty Green COPDF Research

Misty Green COPDF ResearchThe COPD Foundation is currently recruiting participants for several important research studies this summer. To help connect individuals with the studies that best match their experiences, we use the COPD Patient-Powered Research Network (PPRN).


The PPRN is a secure, confidential registry where you can enter your COPD-related health information. By participating, you enable researchers to identify studies that are best suited to your specific condition and preferences.


Your involvement can make a meaningful difference in advancing COPD research and improving care for all those living with the condition.
To learn more and join the PPRN, please visit: https://login.redcapcloud.com/survey.jsp?code=KoPaloTeOS28jtsj


Thank you for being an essential part of the COPD community.

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

โ˜€ Summerโ€™s Here -- Letโ€™s Breathe Easy Together!

As we roll into the warmer days, a few friendly reminders to help you stay cool and comfortable:

๐Ÿ’ง Sip that water! Staying hydrated helps keep your lungs happy.
๐Ÿ’Š Stick with your meds. Donโ€™t skip those daily maintenance meds, and keep your rescue inhaler nearby.
๐ŸŒž Watch the heat & humidity. They can sneak up on you -- pace yourself and take breaks when needed.

Remember, itโ€™s okay to say โ€œnot todayโ€ to certain activities if the weather isnโ€™t cooperating. Taking care of yourself is the priority.


Do you have any summer tips to share? Letโ€™s help each other make this season a good one! ๐ŸŒผ





2 days ago

Job1

Job1

Hi everyone I am new to this forum.
I have just received a CT scan that showed slight emphysema lesions and slight bronchial damage. Sorry if these are not the right terms I am translating from french to english.
I am 52 and stopped smoking 17 years ago when my mother was diagnosed with COPD. She was also diagnosed at 52. She died at 62. 
Is there a chance that I cam slow this down. I am over weight (working on it) I run regularly. And Hike. I want to keep doing this as long as possible.
I have yet to have an appointment with my pulmonologist (I also have Asthma) and it could be months away so any advice would be greatly appreciated.
I contacted the pulmonologist after repeated colds and 2 x covid over the last year. I found myself tired and a bit breathless following the covid x 2. I still have residual mucus that is thick.
This site has already helped me a lot thank you!!
Jo

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainYay! It's Monday! Start your day out right--with a positive outlook! I'll be enjoying the day right along with you! ๐Ÿ˜Š

1 hour ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Medication timing

I agree that you need to check with her MD who prescribed these meds, but no MD Iโ€™ve ever seen has wanted me to wake up at 3am to take any meds at home. That really seems quite unhealthy & unreasonable. You may be able to ask questions on electronic …
DebbieB.-Connecticut State Captaindas23Karen Deitemeyer - Florida State Captainand 2 others also answered the question DebbieB.-Connecticut State Captainand 4 others also answered the question

7 hours ago

Jazzybean

Jazzybeananswered the question New to CPAP with hypercarbia

I was also told the insurance would not pay if I did not comply. In my case the lady told me that I needed to wear it 4 hours per night to be in compliance. but, that I did have a couple weeks to ramp up the use of the machine. Also, you can go to bed …
Allgood Caroline West Virginia State Captain also answered the question Allgood and 1 other also answered the question

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday! May today be your best day ever!
Keep on smiling, because everyone you see will be smiling, too! Let's make it a habit to keep a smile on our faces! 
Wishing everyone a wonderful day! ๐Ÿ˜ƒ

1 day ago

Katnip427

Katnip427asked the question: Medication timing

Hello! My mom has COPD and is taking several nebulized medications. She is currently following a schedule put in place a couple years ago while she hospitalized for COVID that spaces the medications throughout the day. The problem is that she also has MS …

1 day ago

Auriel

Auriel

I'm annoyed.  I just had a fall on the treadmill & it was totally my fault because I was doing something stupid, which meant I wasn't paying attention & I didn't wear the emergency stop tab.  
This has resulted in a sprained wrist & a cut on my toes.  The sprain is minor as it hasn't even swelled up, but gripping anything hurts.  This is going to keep me from weight lifting for a week at least, but I can still use the treadmill.
The good side of this is that I am so glad I lift weights; if I didn't, it would most likely have been a broken wrist instead of a sprain as I fell quite hard & my mother had really bad osteoporosis by the time she was my age.  

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question COPD End Stages

Iโ€™m so sorry. Itโ€™s very hard to watch loved ones deteriorate and be less and less able to engage. I hope hospice can help your mom remain as comfortable as possible and provide you with support.
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

1 day ago

Scotpio

Scotpio

Im ok just pissted off cause 5 yrs ago i got covid and it gave me my copd 

1 day ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Prolonged exacerbation after lengthy baseline

Hi Wiley66! Have you thought about the possibility of allergies causing the return of your symptoms? Even if you have never had allergies such as hay fever before, you may very well have allergies now as pollen has been increasing and the return of …
KilonCaroline West Virginia State Captain also answered the question Kilonand 1 other also answered the question

1 day ago

Naomi97

Naomi97asked the question: COPD End Stages

My Mother has been in the end stages of COPD for quite awhile now, also heart failure. The last week or so she has just been extremely tired and I canโ€™t really have a normal conversation with her anymore as she is very confused and always falls asleep …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends!
I hope everyone will set some time aside to do something they really enjoy! After all, that's why Saturdays were created! ๐Ÿ˜„

2 days ago

Allgood

Allgood asked the question: New to CPAP with hypercarbia

Hi. I was diagnosed with severe emphysema (with air trapping and co2 retention) last November after a nasty bout of bronchitis. It took me almost 3 months to see a pulmonologist who ordered PFT test. I also had a sleep study done that was considered a …

2 days ago

jeffdrake

jeffdrakeanswered the question COPD-Dupixent for their COPD

I started taking Dupixent on May 2nd. Up to that point, I had been experiencing what could be called, "rolling exacerbations," meaning one right after another since the first of the year, and earlier. They were taking their toll on me, for sure. I am …
HIcopd - Hawaii State CaptainSplash4175Kdaand 1 other also answered the question HIcopd - Hawaii State Captainand 3 others also answered the question

2 days ago

DaBoomer

DaBoomeranswered the question Bad breathing and heavy chest while on Prednisone?

I was on Prednisone for a little over 2 years due to having long covid. My pulmonologist put me on 40 mg of prednisone a day. Many times during those two years, I had to go to the emergency room and they put me on 80 mg of prednisone. All throughout …
Roxy Swango Lorrikeetnetmouseand 4 others also answered the question Roxy Swango and 6 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ๐ŸฅKIWI QUICK BREAD๐Ÿฅ๐Ÿฅ2 cups all-purpose flour 1 tsp. baking powder 1/4 tsp. baking soda 1/2 tsp. salt1/2 cup butter, softened 2/3 cup sugar2 eggs1 cup ripe, peeled, mashed kiwi fruitPreheat the oven to 350 degrees. Grease and flour, or...

2 days ago

DebbieS

DebbieS

Still having lots of struggling with breathing, but hanging in there. Not sure why Im still struggling this hard,but it is what it is, I guess. How is everyone else doing today?

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from our friends Luke and Jason Rossi! What a joy it is to have these two come over for a visit!
Have a fantastic day, friends! ๐Ÿ˜€

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Had a great visit with my lung doctor in SF at the end of May and today with my internist.  We have agreed that since I tend to bounce back, even though I seem to be doing pretty poorly at times, we should have me have all possible treatments when Iโ€™m doing poorly until May doctors believe I will be unlikely to emerge with a good quality of life and I should discuss width my loved ones what that means so they can let my providers know.


My lung doctor also recommended I meet the transplant team and start talking about the possibility in case I may need a transplant in the future, as it can take a while for full evaluation, etc.  I said I was willing so am waiting for an appointment and will have a telehealth or live initial visit with UCSF.

3 days ago

TonicDk

TonicDkanswered the question Air trapping, standing up dizziness with normal oxygen saturation?

Some people have a change in blood pressure when they stand up quickly, its called Ortostatic hypotension , so get your bp checked too. You are young , so i doubt there is anything wrong . See a doctor
David Mannino, MD (Chief Medical Officer, COPD Foundation )HIcopd - Hawaii State Captain also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainAnother warmer weather favorite at DebbieB.'s house...pickled beets!
After they cool, they go into the refrigerator. 

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŒบ๐Ÿ‰๐Ÿ‰WATERMELON SMOOTHIE๐Ÿ‰๐Ÿ‰๐ŸŒบ3 cups diced watermelon1 cup frozen strawberries 3 large ice cubesOne 5.3-ounce container vanilla Greek yogurtHalf of a medium banana Juice of half of a limePlace all ingredients in a blender. Blend on low speed until...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! Yes! We are so very glad you are here with us on 360Social! ๐Ÿ˜ƒ
Please leave a comment, if you would, and let us know how you are doing today! ๐Ÿ˜€

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.