COPD360social welcomes new member Shelley Honke who joins 64,087 current members of our community. Weโ€™re glad you're here!

Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)

Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)Hello, all! We're still looking for a few more people who might be interested in a short Harmonicas for Health session tomorrow (Wednesday, 11/19) at 11:00am Eastern. We're presenting H4H as part of the World COPD Day Big Baton Pass, an international event meant to show the importance of staying active with COPD and the many ways people can add on to therapies like pulmonary rehab to keep up their activity levels.

If you are interested, please register for our Zoom meeting at https://us06web.zoom.us/meeting/register/pkiI4TkjRvCJlGCGV3qIMQ . We'll be doing a brief education piece to start off, so you don't even know how to play! 

Learn more about the Big Baton Pass and watch the other "legs" on their website at https://www.copdbatonpass.org.

Welcome! You are invited to join a meeting: Big Baton Pass Harmonicas for Health. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: Big Baton Pass Harmonicas for Health. After registering, you will receive a confirmation email about joining the meeting.

11 hours ago

LadyG

LadyG

Hello Everyone, Once again I am coming here begging for your counsel. I was diagnosed with mild COPD in July, (a diagnosis that I am fairly certain is either incorrect or that is not all that is wrong with me.). As I have been navigating through all of this I am becoming more and more depressed, (yes I see a therapist), as time goes by but I refuse to give up the fight!! You see, I am struggling desperately to find the right medicine(s). We initially tried Anoro but it made me feel like I was constantly having a heart attack. The we tried Bevespi, it worked a tiny bit but not much. The we tried Symbicort, Spiriva and albuterol. I was in the Emergency Room repeatedly with rapid heart rate and heart palpitations! Then we went back to Bevespi, Levalbuterol and prednisone but the steroid made my heart go crazy so they tapered it til I was off. Now I am on Bevespi and Levalbuterol and I feel pretty bad nearly all the time.  I'm really short and small, and because I am so tiny, a little bit of medicine tends to go a long way for me. These meds are not working and I'm so tired of living like this! Does anyone have any suggestions about a Steroid free way? Maybe a medication that I haven't tried that may work? Something that won't cause me to have heart issues? Please ๐Ÿ™

3 hours ago

LadyG

LadyG

Hello Everyone,Once again I am coming here begging for your counsel. I was diagnosed with mild COPD in July, (a diagnosis that I am fairly certain is either incorrect or that is not all that is wrong with me.). As I have been navigating through all of this I am becoming more and more depressed, (yes I see a therapist), as time goes by but I refuse to give up the fight!! You see, I am struggling desperately to find the right medicine(s). We initially tried Anoro but it made me feel like I was constantly having a heart attack. The we tried Bevespi, it worked a tiny bit but not much. The we tried Symbicort, Spiriva and albuterol. I was in the Emergency Room repeatedly with rapid heart rate and heart palpitations! Then we went back to Bevespi, Levalbuterol and prednisone but the steroid made my heart go crazy so they tapered it til I was off. Now I am on Bevespi and Levalbuterol and I feel pretty bad nearly all the time. So m so tiny that a little medicine goes a long way for me. These meds are working and I'm so tired of living like this! Does anyone have any suggestions about a Steroid free way? Maybe a medication that I haven't tried that may work?  Something that won't cause me to have heart issues? Please ๐Ÿ™๐Ÿป

3 hours ago

brydy

brydyanswered the question Pulmonary function test results

Hi Jazzybean, Im not a doctor just a patient but my PFT results vary somewhat & I think thats pretty normal that they arent the same everytime. maybe one of the clinicians here can explain how much variation is expected but i know mine are never …

6 hours ago

Keir123

Keir123answered the question PFT findings -air trapping, any comments?

Thanks David. I hope the much higher RV/TLC values you've seen are not only in cases where the subjects are severely affected / at death's door, or this provides limited comfort! As always I appreciate your effort in responding. I'm apprehensive but …
David Mannino, MD (Chief Medical Officer, COPD Foundation )WildebeestPhyliss DiLorenzo NJ State Captain also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 2 others also answered the question

6 hours ago

Jazzybean

Jazzybeanasked the question: Pulmonary function test results

Hi, so I just got the results of my pulmonary function test. I was surprised to see that the results were actually better than two years ago, not much, but better. That surprised me because I have been feeling worse and more limited. Now that I have had …

7 hours ago

JD85

JD85answered the question Not a question, just need to talk

Anne, to be honest I understand your reluctance about therapy, I'm definitely not a good candidate either, but it does allow you to talk to someone who can see your situation without emotion and listen, it's really key, especially with worry etc, I …
JeanO53Karen Deitemeyer - Florida State CaptainCaroline West Virginia State Captainand 2 others also answered the question JeanO53and 4 others also answered the question

7 hours ago

Community Announcements

Community Announcementsadded a new article Steven Dylan Hubbard

Welcome our newest COPD Foundation Captain!

7 hours ago

Jamie Jarrard

Jamie Jarrard created the event OxyTalk Social Hour - Wednesday, Dec. 10, 4pm Eastern

Wednesday, Dec. 10, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

8 hours ago

Jamie Jarrard

Jamie Jarrard created the event BronchandNTM360social Coffee Break - Wednesday, Dec 10, 2:30pm Eastern

Wednesday, Dec. 10, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

8 hours ago

Jamie Jarrard

Jamie Jarrard created the event COPD360Social Hour; Harmonica Play-Along: HOLIDAY PARTY- Wednesday, Dec. 3, 4pm Eastern

Join us for a special HOLIDAY themed social hour! We will be sharing favorite holiday recipes, and playing along to a holiday song! A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your …

8 hours ago

Codabear

Codabear

I'm doing alright 

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐ŸŠCANDIED ORANGE PEEL๐ŸŠ๐ŸŠ"Quite an a-peel-ing recipe!" You can use this in fruitcake and cookie recipes. You can place some in fancy jars and give as a holiday gift! 3 large navel oranges2 1/2 cups sugar, divided 2 cups water, plus more for...

14 hours ago

JD85

JD85answered the question Emphysematous Changes On CT Incidental Find

Update, it's been 3 months since my last one. So I've continued with my Cognitive Behavioral Therapy and my mental health specialist has stated it's not typical health anxiety as I have an autoimmune condition and it's never bothered me, I've had good …
brydymony072Karen Deitemeyer - Florida State Captainand 2 others also answered the question brydyand 4 others also answered the question

14 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainNature is so amazing. We are supposed to be getting snow in about an hour, but there is no precip hitting the ground.  But behind my house was a whole rainbow.  7 am

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy terrific Tuesday, friends! Did I hear someone say that orange is their favorite color overall? Well, I can surely understand why it would be! Orange is the color of COPD Awareness! November is COPD Awareness Month, in case you haven't heard! Wishing everyone a mighty fine day! ๐Ÿงก๐Ÿ˜€

19 hours ago

DEE0627

DEE0627

Good evening.  I recently had abdominal laparoscopic surgery and they have me an incentive spirometry to use for my lungs.  My pulmonolgist appointment got canceled and i go in another 2 weeks.  So i still do not know anything other than what showed up on an incendetal finding ct from a calcium scoring test.  Emphysema lungs.  Just wondering. I've been able to do about 2750 to 3000ml on the incentive airlife spirometry they gave me in the hospital. No one told me anything, just do it several times a day.  ๐Ÿคทโ€โ™€๏ธ i know from reading it isn't one of those pft tests I've been reading about that I'm assuming they will have me do, but does anyone know if that is a good reading? Thank you

23 hours ago

JenJen81

JenJen81

Have been diagnosed with copd hyperinflation of lungs - am also a psychiatric patient - have been taking seroquil & lithium (priadel) for 11 years - have been reading that I can no longer take my psychiatric medications with a copd diagnoses - am feeling very stressed as the thought of stopping my meds is scaring me more than the copd. Nhs drs cant seem to advise me on what I should or shouldnโ€™t take/do - any ideas would be appreciated. Much love to you all

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Please tell me that I am not the only one who signed up for the harmonicas for health tomorrow.

1 day ago

Dinna25

Dinna25answered the question Walking

Hi G-Anne yer I tried walking around and round my home but it's only a small cottage, so I'm forever turning around, so i went on uTube and do the Indoor Walking Workouts, so far I'm at 1 mile in 15 minutes but ready to increase it. May I ask what a …
GAnneWildebeestbrydy also answered the question GAnneand 2 others also answered the question

1 day ago

Anne1971

Anne1971asked the question: Not a question, just need to talk

Hi all, I am feeling dreadful, i had to go back home at mid day because i could not cope with work. Canโ€™t stop crying although I am the one responsible for this. I am Anne, 54 and French. I have been having low dose ct scans for the last 2 years to …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐ŸŠORANGE VINAIGRETTE๐ŸŠ๐ŸŠ 1/4 cup freshly squeezed orange juice 2 tbsp. balsamic vinegar 1 tbsp. Dijon mustard 2 tsp. honey1/8 tsp. freshly ground black pepper Combine all ingredients in a small jar with a lid. Close jar. Shake vigorously,...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, friends! 
We've got ORANGE on our minds this month. Do you know why? It's because November is COPD Awareness Month!!!
Wishing you all a marvelous Monday, filled with reasons to smile! My best to everyone! ๐Ÿ˜ƒโœด

1 day ago

JeanO53

JeanO53

Happy Sunday Everyone!  Happy to say I'm reporting in at nearly 100%.  ๐ŸŽ‰
Woke up feeling good this morning.  I know not too push it and set myself back, so I'm planning for a relaxing Sunday - maybe watching a little football and doing some small chores around the house.  And enjoying this feeling!
Thanks for all of the support over the past week!  You are the best!  ๐Ÿ†

2 days ago

GEmmitt

GEmmitt

Any one here have had a lung wash if so does it help

2 days ago

GEmmitt

GEmmitt

So i have had copd about 10 years now on. Oxygen  starting to have weird  dreams

2 days ago

GAnne

GAnneanswered the question Dilemma if I should use Trelegy or Ohtuvayre

I am suppose to be getting the Ohtuvayre in mail. I take trelegy also, the pharmacy nurse told me to take the Ohtuvayre first, wait 15 minutes do the trelegy. I canโ€™t wait to see if it makes a difference. Having bullious emphysema and the 50% of the …
Phyliss DiLorenzo NJ State CaptainlizjbWho Me ?and 2 others also answered the question Phyliss DiLorenzo NJ State Captainand 4 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Sunday! Yay! ๐Ÿ˜€ A great day to enjoy yourself, and a great day to talk about COPD Awareness. 
Please spread the word, wherever you may go. Becoming educated is the key to proper management of your COPD symptoms. ๐Ÿ”ถ๏ธ

2 days ago

UK Lynn

UK Lynn

Hi folks. I am using Trimbow high strength for COPD/asthma overlap and I have noticed nightly painful foot cramps after starting on it. Anybody else experiencing this? I am keeping hydrated but still get these painful cramps. 

3 days ago

Banath

Banath

Hello ๐Ÿ‘‹๐Ÿพ everyone I hope everyone have a wonderful day. I have a question.  Since I've started taking Trelegy I have had terrible pain in my feet and legs. I've been on the medicine foe 2 months. Is anyone else experiencing this. Trying to figure out if it's the medicine or something else ๐Ÿค”. 

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.