COPD360social welcomes new member Nadine B. who joins 60,375 current members of our community. Weโ€™re glad you're here!

Arturo Rodriguez COPDF Research

Arturo Rodriguez COPDF ResearchZeph Technologies is
starting an important research project called
"Improving Lung Health with Virtual Rehabilitation." Please see complete information below. You can access all details at https://copdf.co/zeph-PR-contact

20 hours ago

Bill Clark - Community Manager

Bill Clark - Community Manager

DO NOT POST ANY TEST RESULTS until you have completed all your tests AND spoken to your own doctor or medical team and gotten a diagnosis! This is for your protection and ours.  Your doctor has access to all your medical records and we do not.  Interpeting partial results can often lead to a incomplete, or inaccurate diagnosis. This can cause you emotional harm and present liability concerns for us.  

Once you have completed your testing and spoken to your doctor we will be happy to help you understand the implications of your diagnosis and help you move forward, If you post any results without going through the proper steps your post will be deleted  and possibly your membership.

1 month ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good morning! 
This is how my day started:
Fasting bloodwork at 6:10. I was there before my appointment. Had to wait 20 minutes to be called. Could not hear anything because their TV was blasting!!! ๐Ÿ˜ถ The girl was very rude. She slams a $136 you-owe-us before she can draw blood. So, out came my credit card. When she was asked why the TV could be heard in another zip code, her answer was Because some people are hard of hearing. I was thinking Yeah, after being there! In my opinion, we don't need a TV to have blood drawn. 
So, I stopped and picked up a large iced coffee and a pumpkin donut. ๐Ÿ˜Š Now my day is running smoothly!!! ๐Ÿ˜ƒ

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ‡๏ธKALE CHICKEN SALADโ‡๏ธ2 cups chopped kale1 cup chopped cooked chicken breast1 cup cooked quinoa 1/2 cup canned chickpeas, rinsed and drained 1/2 cup chopped tomato 1/2 cup sliced mini sweet peppers 1/4 cup thinly sliced red onion2 tbsp....

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Wellness Wednesday, everyone! How many of these items will you be checking on this list today? Hopefully, you will be able to check them all!
Stay calm-Stay happy-Stay well...and have a wonderful day! ๐Ÿ˜€

5 hours ago

Kasandra

Kasandraanswered the question Can mild emphysema stay mild? Outlook?

A pulmonologist, on the basis of PFT. The ratio is not that bad, but a few months ago it was 76%. The FVC increased. The doctor made no scary comments, but was very evasive in prognosis.
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

7 hours ago

Bummed

Bummed

Scared! I have primary emphysema phenotype (centrilobular and paraseptal confirmed by multiple ct scans) without evidence of obstruction or restriction via last partial pft completed about 16 months ago.  Next test scheduled in 2 months. I have moderate symptoms at time, particularly when walking uphill, but otherwise I do fairly well. I believe most is due to fear of not being able to breathe.  Iโ€™ve tried multiple inhalers, saba, laba /lama, laba /ics, and now spiriva and Alvesco. Pulmonary, who i just recently saw, couldnโ€™t figure out how I came up with that combo as itโ€™s not typically prescribed in that order.  I requested the alvesco as itโ€™s suspected I have asthma overlap and experienced regular thrush with Flovent and budesonide and apparently alvesco has a lower risk of thrush?  That combo for me seems to help some, though Iโ€™m sure Iโ€™d benefit from a laba . My fear with regular use of a laba is developing tolerance and not having anything to help relieve symptoms as the disease progresses as Iโ€™m only 40. Iโ€™ve read the resistance is a real thing, though not many articles pop that explain how common.  Does anyone have any experience with building resistance to labas over time?  Canโ€™t wait out for hope that some new treatment will be available in the future 

12 hours ago

Kasandra

Kasandraasked the question: Can mild emphysema stay mild? Outlook?

A non smoker was diagnosed with emphysema. The FEV1 is 100%, the DLCO 72%, the FEV1/FVC 69 %. CT is clear. What are the odds of halting the progress, or living 30 years of active life without supplementary oxygen?

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainJust a friendly reminder to the asthmatics in our community: The third week of September is Asthma Peak Week. 

21 hours ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF Communications created the event Harmonicas for Health Play-along

Click the following link to register to join: https://copdf.co/H4H-meetups Join us for the Harmonicas for Health monthly play-along! Playing the harmonica can help strengthen your lungs and help with shortness of breath. You need no prior experience in …

22 hours ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF Communications created the event COPD 360 Social Hour

Click the link to register here: https://copdf.co/360-social Join our group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions! You can join from your computer, tablet, phone, or any device with an …

22 hours ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF Communications created the event OxyTalk Social Hour - this Wednesday!

Click the following link to register: https://copdf.co/oxy-talk Join us for our next oxygen community virtual coffee hour! Please feel free to send any questions ahead of time to oxygen360@copdfoundation.org, or just stop by to enjoy some time together!

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โšช๏ธCABBAGE AND WHITE BEAN SOUPโšช๏ธ2 tbsp. olive oil 4 cups chopped green cabbage1 1/2 cups sliced leeks1 1/2 tbsp. finely chopped garlic 4 cups vegetable broth 1/2 tsp. saltOne 15-ounce can cannellini beans, rinsed and drained 1/4 cup grated Parmesan...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Tuesday! Also known as Choose Day!
Yes, I choose to be happy! ๐Ÿ˜Š
I hope you'll make that choice as well. Have a great day, full of smiles and happiness! ๐Ÿ˜€

1 day ago

Daid

Daidcommented onQuestions to Ask Your Primary Care Provider About COPD

My docs are the same, even as I get worse and not sure what to do, Im stuck with 6 months between visits, and if Im not on my toes, the visit is quick and I dont gain a thing. My primary draws blood, then calls me but never treats me as I get worse....

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onCipla USA team members make donation to the COPD Foundation as part of 3rd annual art contest to celebrate COPD Awareness Month

Thanks so much for sharing this with us Crystal - Cipla makes many of the generic meds that I happen to use and I'm so glad to see that they are really invested in raising awareness for lung disease. Thank you to all the employees at Cipla USA!!...

1 day ago

Community Announcements

Community Announcementsadded a new article Cipla USA team members make donation to the COPD Foundation as part of 3rd annual art contest to celebrate COPD Awareness Month

This article was written by Crystal Rothhaar, BS.

In November 2023, the COPD Foundation celebrated COPD Awareness Month with resources, education, and events as part of the annual Lace Up for Lungs campaign. Partners from around the world engaged in activities to promote awareness and encourage early diagnosis of chronic obstructive pulmonary disease.

While many organizations participated in the event, Cipla USA Inc., the wholly-owned US subsidiary of Cipla, a leading global pharmaceutical company and leader in lung health, celebrated throughout the month of November with activities and events, including their 3rd annual Blow Art Challenge. The Challenge showcased artwork created by employees and their family members and offered contest winners the opportunity to contribute to a favorite charity.

Four winners of the Blow Art Challenge were chosen, and their artwork is featured on a dedicated space called the โ€œCipla Blow Art Wallโ€ at Cipla USA's headquarters in New Jersey. The winners include:

1 day ago

michael james

michael james

i am new to oxy therapy   doc  said t0 use at night  how iong will it be to see ay  effects

1 day ago

das23

das23answered the question Check-In: Get Active in Your Learning!

Thanks Jonnie. Great info
JeanO53 also answered the question JeanO53 also answered the question

1 day ago

JeanO53

JeanO53Checking in... We're heading into Autumn weather here in Wisconsin.  Yay! The air quality has been so much better and I find it much easier to maintain my oxygen saturation.  It makes it so much easier to stay active outdoors and to sleep well at night.
It was a bit of a "wild" weekend while I was out wandering in the green spaces with my camera. 
I came across this guy in the middle of the afternoon on Saturday.  It took a while to figure it out, but I'm pretty sure this is a coyote.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainSome of you may have read my post about my co-payment for seeing a specialist going up to 100 dollars. My new insurance started on 9/1. Here is the response given by the health insurance provider. I sent them a message this morning. It doesn't help much, that's for sure!

1 day ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Help! I keep disconnecting my tubing!

Hi Jdboss74! What color is your tubing? Some people use green tubing so that they can see it better, which helps stop them from stepping on it as much. Have a great day!
Bill Clark - Community Manager also answered the question Bill Clark - Community Manager also answered the question

1 day ago

Keith Aus

Keith Ausanswered the question Portable Nebulizer for use with Duoneb and Budesonide?

Daz23 and Karen. Thanks very much for taking the trouble to answer. On the strength of what you'd written I decided to try to find out what the difference is between a mesh nebulizer and an ultrasonic nebulizer. I'm not sure that understood the science …
Karen Deitemeyer - Florida State Captaindas23 also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

2 days ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)asked the question: Check-In: Get Active in Your Learning!

Teachers of college students have known for a long time that active learning works better than lecturing to students. 1-2 Their students get better grades, and more students pass their classes when teachers use active learning strategies in their …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŸขBODACIOUS BRUSSELS SPROUTS๐ŸŸข1 1/2 pounds fresh Brussels sprouts, outer leaves removed, and halved3 tbsp. olive oil 3/4 tsp. salt1/2 tsp. freshly ground black pepper 1 tbsp. Balsamic vinegar 1 tsp. honeyPreheat oven to 425 degrees. Set an oven...

2 days ago

Macbreathes64

Macbreathes64

I feel good but ive been short of breath and antibiotics and prednisone are beginning to get me relieved. Seeing a specialist soon. My uneducated state has me wondering what is what. Example...pollen count low..AQI says poor for those with issues. Thinking i should be breathing well and not made me realize that pollen being low does not affect bad air like pollution and other VOC s . Management of my lungs has been ok until changes in weather,heat fires, fumes. Latest, found that pollen was the only factor I didnt do anything for and when I did it was the key to my problem that particular day. Ever changing environment keeps me chasing for answers to a better routine. 

2 days ago

Macbreathes64

Macbreathes64

Im learning at an accelerated pace. And the effects of pollens and AQI trying to get educated to regain my health rather than being reactive as to proactive though COPD is known to continually increase. Educate me.. true or false. Some say mullein can reverse this disease, t/ f ?

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Motivational Monday!
Sure, there may be some things in your life that you can't change, but you can change the way you deal with those things. 
You have the power to make things better. Set your mind to the positive mode. Remember,  your life is what you make it. So, make each day great!
Enjoy your day, friends! ๐Ÿ‘‰๐Ÿ˜€๐Ÿ‘ˆ

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.