COPD360social welcomes new member Ty B who joins 62,218 current members of our community. Weโ€™re glad you're here!

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Mr. Pumpkin Pie, aka Punkie, who turned 6 years old yesterday! Here he is with his birthday toy! 
Punkie and I wish everyone a wonderful day! ๐Ÿงก๐Ÿ˜บ

5 hours ago

GAnne

GAnneasked the question: Which is better Medicare advantage or Medicare with supplemental

I have been on Medicare advantage plan because I couldnโ€™t get regular Medicare because I was one disability at 62 for my COPD and emphysema. I really like the advantage plan but now Iโ€™m turning 65 in a couple months and I have to decide in a couple …

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Hydrogen Oxygen Inhalation Therapy

And to add to das23's comment, some treatments could actually be dangerous. โš ๏ธ
Bob80AurielDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question Bob80and 3 others also answered the question

14 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Spirometer readings

This is consistent with Stage 3 obstruction ( severe COPD). But you may also have restriction and/or air trapping. Please talk to your physician - you would benefit from full testing (lung volumes, DLCO).
Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)das23 also answered the question Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)and 1 other also answered the question

20 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Nasal Prongs less than 1 cm in length

You can also snip them to make them shorter.
HIcopd - Hawaii State CaptainLucindaS also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ”๐Ÿฅ”๐Ÿฅ”BAKED POTATO BAR๐Ÿฅ”๐Ÿฅ”๐Ÿฅ”Let's say you bought a bag of potatoes on sale, and you're having company for lunch. This is a neat idea that's fun! ๐Ÿ˜„Set up your buffet table with a tablecloth that's easy to clean. Put out a stack of bowls, some...

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy thoughtful Thursday, friends! Being thoughtful, kind, and giving of yourself is ideal! Thinking of others can make you feel good about yourself!
Open the door for someone. Pick up something while you're at the store for a neighbor. Offer to walk a friend's dog if they aren't feeling well. There are lots of things you can do that will never be forgotten. 
Have a wonderful day! ๐Ÿ˜Š

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Spring has sprung: Let's get out and move!

I conquered my fear of the kettlebell and had a fun workout with them today. Learning how to do something new is exciting.
AurielJonnie Korinko (COPDF Manager of Public and Professional Education)das23and 2 others also answered the question Aurieland 4 others also answered the question

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Excitingโ€”GSK looks like it may have increased chance of getting biologic medication approved for COPD.
https://www.pharmabiz.com/NewsDetails.aspx?aid=176997&sid=2

1 day ago

Auriel

Aurielasked the question: Spirometer readings

Can someone please explain these readings: PEF: 60% FVC: 1.4 liters 45% F2575: 0.43 22% FEV6: 1.40 49% FEV1: 0.84 35% FEV/FVC: 60% Thankyou.

1 day ago

Community Announcements

Community Announcementsadded a new article Nicole Wilson

Welcome our newest COPD Foundation Captain!

1 day ago

Debbidogduke

Debbidogduke

I think Iโ€™m having a flare up  taking prednisone for 3 days and doxycycline and still not better. Usually it works right away.The weather in Chicago is crazy and my allergies are bad . It goes from 70 degrees to 29and snow the next day . I have 2 left of prednisone I hope it works. This will be the first time it hasnโ€™t ๐Ÿ™

1 day ago

das23

das23commented onEmbracing Digital Health for Chronic Lung Disease Management

Great info Ashley. Thanks for posting...

1 day ago

Community Announcements

Community Announcementsadded a new article Embracing Digital Health for Chronic Lung Disease Management

This article was written by: Ashley Medina Tallyn, MHA, RRT.

If you live with a chronic lung disease like COPD, staying on top of your health can be very important and can also feel difficult. Luckily, new technology can make it easier. Digital health tools, such as remote patient monitoring and virtual pulmonary rehab, offer simple ways to manage your health without needing to travel to your health care provider's office.

What Is Digital Health?

Digital health is the use of tools like apps, smart devices, and online programs to help you manage your health. These tools can track your symptoms, provide support, and connect you with your health care team from home.

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Any one tried Trelegy 200 yet?

Iโ€™ve been on Trelegy 200 since November. It works fine for meโ€”I do have some chronic asthma. Iโ€™ve never tried the 100 and never had hoarseness. I do always rinse my mouth with water and spit it out after taking Trelegy if any inhaled steroid. Never had …
Webbgirl028DBlumOtterand 4 others also answered the question Webbgirl028and 6 others also answered the question

1 day ago

JS from San Jose

JS from San Jose

I have been on Daliresp low dose for 30 days. Iโ€™ve cycled through some side effects like diarrhea, back pain and some depression. Itโ€™s all pretty stable now. Tomorrow I start taking the 500 mg dose. Iโ€™m concerned the side effects will get worse with this change. Any experience you all can share?

1 day ago

Hopeful789

Hopeful789asked the question: Nasal Prongs less than 1 cm in length

Where can I buy a cannula with nasal prongs less than 1 cm. I am currently using one that is 1 cm. long and it is making a real mess out of my nostril

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ„โ€๐ŸŸซMUSHROOM & LEEK WILD RICE๐Ÿ„โ€๐ŸŸซ1 1/2 cups wild rice1 whole leek, cut in half lengthwise, and diced3 cups sliced white mushrooms 1 tbsp. olive oil 2 cloves garlic, minced 3 cups vegetable broth 1 tbsp. chopped fresh parsley In a large skillet...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWOOOOOOOOOOHOOOOOOOOOOO! It's Wednesday!! Another day to walk around with a big smile on your face! ๐Ÿ˜ƒ A day to appreciate everyone here on 360Social, and to be glad for all the friends you have made here. 
Thanks to all of you for making this a special place to be. ๐Ÿ˜Š
Have a wonderful Wednesday, friends! ๐Ÿ˜€

2 days ago

~Jaws~

~Jaws~answered the question Diagnosed today at 32 - scared and confused

Thank you everyone for your advice and kind words! I'll take them to heart. I had deleted the account I posted this with out of fear I might receive anxiety inducing responses haha. I've also found out recently that I have POTS/dysautonomia (which I …
David Mannino, MD (Chief Medical Officer, COPD Foundation )Caroline West Virginia State Captain1fatfannyand 1 other also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 3 others also answered the question

2 days ago

Peggy Ann

Peggy Ann

Im ok. My question is whats the best COPD medication ?

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Will benadryl allergy help with copd symptoms

Agree with comments above. Check with your doctor. Antihistamines may help some people with allergic/sinus symptoms- but are really not used in COPD per se.
Jonnie Korinko (COPDF Manager of Public and Professional Education)Coach Brandon - Community Manager also answered the question Jonnie Korinko (COPDF Manager of Public and Professional Education)and 1 other also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ๐Ÿซ๐Ÿ‡TRIPLE FRUIT FREEZE POPS๐ŸงŠA refreshing treat anytime of the year! Easy to prepare and fun to share! 1 cup peeled, sliced kiwi fruit1 cup water, divided 2 tbsp. sugar, divided 10 freezer pop molds1 cup blueberries 1/2 cup seedless red grapes1/2...

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒธ Happy Tuesday, COPD360social ๐Ÿ’™

As we step into spring, letโ€™s take a deep breath and embrace the renewal this season brings. Just like these beautiful flower lungs, each of you adds something special to our communityโ€”your strength, kindness, and support make this space brighter every day! ๐ŸŒฟ๐Ÿ’จ

Thank you for being here, for reading, for sharing, and for uplifting one another. Your voice matters, and you are an important part of our COPD family! ๐Ÿ’–

Drop a ๐ŸŒธ or a ๐Ÿ’™ in the comments if youโ€™re here todayโ€”weโ€™d love to hear from you! Whatโ€™s one thing thatโ€™s bringing you joy this week? ๐Ÿ˜Š

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainYay! It's Terrific Tuesday! Let's make this day an awesome day! ๐Ÿ˜ƒ Start your day with a plan in mind. Go ahead and set out to start what you have planned. When you have accomplished what you set out to do, your day is definitely a winner! Yes, you CAN do so very much! Yes, you WILL be encouraging others to follow in your path! 
Sending a big smile to everyone! ๐Ÿ˜€

3 days ago

agonzo6

agonzo6

Mom has end-stage COPD. She just went into the hospital again today for the 4th time since Christmas for not being able to breathe. They think she has fluid around her heart. She has been battling the disease for 7+ years. Not really sure how to feel at this point--I feel like each time she goes in now that "this could be it" while it could also be another several months/years. Just in an emotional limbo. 

3 days ago

Anonymous

Anonymousasked the question: Diagnosed today at 32 - scared and confused

I had a CT scan and spirometry. My pulmonologist said I have 97% lung function, but mild COPD (perhaps with a component of asthma). I've already quit smoking and he said that as long as I quit smoking and continue my steroid inhaler it won't get worse. I …

3 days ago

das23

das23

I had a good visit with my pulmonologist today.....Don't Smoke--Exercise--Eat Right--Take your Meds----It Works!!!๐Ÿ‘

3 days ago

Auriel

Aurielanswered the question My best friend died from COPD. Need help with a question

I may be able to help. I was hospitalized with double pneumonia too, and put on oxygen. I was discharged when I was down to 2 liters/min and sent home with an oxygen concentrator. The machine failed in the middle of the night, fortunately my husband …
VicEck-State CaptainWhylene McCrayMellieand 8 others also answered the question VicEck-State Captainand 10 others also answered the question

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.