Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question No air coming through my cannula

Check all the tubing are hooked up right. I had a hole in my cannula before also.
Stephanie Williams, RRTCarolinejudg69and 2 others also answered the question Stephanie Williams, RRTand 4 others also answered the question

30 minutes ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Can someone share information about Performamist?

I use the same but called Brovana its a 12 hr neb med. I do have to do in mid afternoon sometimes I do levelalbuterol which is generic for xopenex.
HIcopd - Hawaii State Captainclipper (Debbie) - NJ State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

34 minutes ago

Ms. Fitz

Ms. Fitzreceived the badge Getting started

Earned the Getting started badge!
spencersMarla Green, RRTFreedelivery34and 29490 others also received the badge spencersand 29492 others also received the badge

1 hour ago

Cindylu

Cindyluanswered the question Feeling hopeless

Kris. I have gotten so much Hope here , just reading other people's stories. Accepting this disease is hard. Some days when I get down, I have to ask myself "am I living or dying"? I choose to live. I'm a fighter. I educate myself, I do everything I can …
VicEck-State CaptainLouanne  DFWTexas State Captain clipper (Debbie) - NJ State Captain and 1 other also answered the question VicEck-State Captainand 3 others also answered the question

8 hours ago

quasibobo

quasibobo

Aloha from Hawaii. Learning to live with a recent diagnosis and all the follow up appointments with specialists. Specialized health care on Hawaii Island is very difficult as we have no full time pulmonary doctors here and have to wait months for doctors to travel from Oahu to see us. Travel between islands is very expensive and not always covered by insurance. Our local hospital is trying very hard to help us with a COPD support group and looking into better respiratory therapy availability through an new cardiac clinic that just opened. 

8 hours ago

VicEck-State Captain

VicEck-State Captainanswered the question Heart and Lung Survey

took the survey
Stephanie Williams, RRTBill Clark - Community Manager also answered the question Stephanie Williams, RRTand 1 other also answered the question

11 hours ago

Kristen Willard

Kristen WillardPart 2 of our Bronchiectasis & NTM Town Hall series is coming up on March 5, 2018! On this call, our expert speaker Dr. Tim Aksamit of the Mayo Clinic will take us on a more in-depth dive into bronchiectasis and NTM. 

See the full agenda and register here: https://www.surveymonkey.com/r/on360social

11 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain Here is a pretty interesting article on supplements. As always before taking anything discuss with your doctor. And conversely, if our doctor wants you taking something, do so.  

https://arstechnica.com/science/2018/02/supplements-are-a-30-billion-racket-heres-what-experts-actually-recommend/

12 hours ago

Bill Clark - Community Manager

Bill Clark - Community Manager

Dallas Harmonicas forHealth group playing at GSK conference today. Pictures to follow

12 hours ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF StaffSelfie from this past weekend, of attending a COPD Conference at The Villages in Florida with physicians and staff from the University of Chicago!  I got to meet State Captains Bob Sobkowiak, Dave Thompson, and Airhead Support Group Leader Stephen Rule! I will be writing a blog this week to talk more about my experiences, it was a great trip!

14 hours ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question Non-invasive ventilation

It is really a great help to some patients....if you have the chance to try it, I certainly would. Especially great for those with CO2 retention!

15 hours ago

Bill66

Bill66answered the question Experience with Trelegy Ellipta

Yes another Ocean - Liner!
Jean IA State CaptainMellie also answered the question Jean IA State Captainand 1 other also answered the question

16 hours ago

Fabiana Talbot

Fabiana Talbotasked the question: Heart and Lung Survey

With American Heart Month in full swing during the month ofFebruary, we wanted to see how your awareness of your heart and lung healthcompares. Please take a few minutes to answer the following the questions. Wewill report back on COPD360social with the …

22 hours ago

Nikilet

Nikiletasked the question: Non-invasive ventilation

It has been suggested by the suppliers of my oxygen supplies that non-invasive ventilation therapy might help relieve my breathing difficulties. The way it was explained to me, it is a machine that I can use for a treatment and it will free up my …

1 day ago

Nikilet

Nikiletasked the question: Can someone share information about Performamist?

It has been suggested that I give up the albuterol and go to this Performamist. My understanding is that whereas I can take my albuterol up to 4 times a day, I can only use this 2 times a day. Does Medicare cover this fully like they do albuterol? I'm …

1 day ago

Nikilet

Nikiletasked the question: No air coming through my cannula

When I changed my cannula I discovered there was no air coming through it -- neither the old one or the new one. I checked my hoses and there was no air coming out of anything, altho the little bit of water in my bottle was bubbling. After messing …

1 day ago

Jastro

Jastroasked the question: Experience with Trelegy Ellipta

I've just been given this to try, to replace Anoro and Asthmanex. Has anyone tried it? I know it's gotten mixed reviews. So, asking...

1 day ago

Rebecca-stage2

Rebecca-stage2

Does anyone else wake up choking on fluid and coughing up? I'm wondering if it is the COPD or something else..

1 day ago

Louanne  DFWTexas State Captain

Louanne DFWTexas State Captain answered the question COPD & a cold

All have given great advice , Please get in to your Primary care Physician ASAP
CarolineJean IA State CaptainKristen Willardand 1 other also answered the question Carolineand 3 others also answered the question

1 day ago

MuMarie

MuMariecommented onToo Embarrassed to Ask?

 If possible, carry with you a shirt or sweater/jacket that you can use the sleeves to tie the shirt around you to hide the wet spot. Hopefully you have another pair of panties in your purse. Don't know about men (and they too have the same issue)...

1 day ago

Kris15745

Kris15745asked the question: Feeling hopeless

Hi everyone I am new and newly diagnosed I have not had the breathing test yet but did have it 4 or 5 years ago I don't know the score but they put me on inhalers at that time..I have always thought it was chronic bronchitis as I use to get a cough every …

1 day ago

Jean IA State Captain

Jean IA State Captainanswered the question Did you feel your lungs prior to COPD?

Lungs don't have pain receptors, so they don't cause the pain, but there are many other things in the same area that do: the pleural cavity, ribs, muscles, linings, etc. and things like gall bladders, kidneys and other organs can also be suspect because …

1 day ago

Kristen Willard

Kristen WillardHas allergy season started where you live? I have noticed an increase in symptoms here in DC, but it seems so early! 

https://www.weatherbug.com/news/When-Are-The-Worst-Times-For-Allergies

1 day ago

BetsM

BetsMasked the question: COPD & a cold

I'm new here and really concerned about a few things. Ten years ago my doctor said I had Chronic Bronchitis, and suggested I quit smoking. She gave me a prescription for Chantix and I decided I needed to quit pretty darn fast. I hate to admits this but I …

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Did you feel your lungs prior to COPD?

Of course it is best to discuss this with your pulmonologist. In general COPD itself does not cause pain in the lungs. A very common cause for soreness or moderate pain like you described is muscle strain from breathing harder than usual. When you …

2 days ago

NanceLarson

NanceLarsonanswered the question severe cramping from the knee and below

Had my share of severe leg cramps and quinine water before bed (at least 8 oz.) did the trick. Dangle your legs and massage them. Havebyou ruled out a DVT

2 days ago

NanceLarson

NanceLarsonasked the question: Did you feel your lungs prior to COPD?

Like many of my internal organs, I never โ€œfeltโ€ their presence in my body. Lungs donโ€™t growl or burp so I didnโ€™t think much about them. I thought the heaviness in my right breast had something to do with that but knowing now I have COPD, I realize itโ€™s …

2 days ago

Caroline

Carolineanswered the question Timeline of exasperations

One thing that you must learn is that when you have COPD you cannot "tough it out" like you once might have been able to. Please contact your doctor or go to an emergency care facility.

2 days ago

Bill66

Bill66

Today is 366 days straight of 5+ miles a day. A year and a half ago I could barely do a mile!

2 days ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question New and Looking for Support

Spell checking does some crazy things and clearly I wasn't paying attention. I quit smoking by taking Chantix not by taking roosters (a chanticleer: a name given to a rooster, especially in fairy tales.). Sorry for the confusion.

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.