COPD360social welcomes new member Slack#1 who joins 63,174 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community ManagerHave You Benefitted from Pulmonary Rehabilitation?

If you have COPD and have benefitted from pulmonary rehabilitation, we invite you to participate in an NIH-funded study as a peer coach.

Coaches will receive online training on how to offer motivational support to patients who have been referred to pulmonary rehab and will be compensated for their time.

To learn more, please call Raj Kotejoshyer, Baystate Health, at (413) 794-7909 or email rajashree.kotejoshyer@baystatehealth.org. Or, fill out this quick contact form, and Baystate Health will be in touch.

https://collaborate.tuftsctsi.org/redcap/surveys/?s=88KWW77TTANL4EXJ

20 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

FDA Seeks Older Adults for Panel Discussion on Medical Device Clinical Studies

Are you 65 or older? Have you had any experience with medical device clinical studies over the past 5 years?

If so, the FDA's Center for Devices and Radiological Health (CDRH) is looking for individuals to share their experiences during a virtual town hall for CDRH employees! The town hall will take place on Thursday, September 4th, 2025, 11AM โ€“ 1PM EST.

Whatโ€™s this event about?

The FDA wants to spotlight the voices of older adults to better understand older adultsโ€™ experiences with medical device clinical studies, including studies for [condition specific] devices.

Who is the FDA seeking to participate?

The FDA is looking for participants 65 years of age or older who, over the last 5 years,:

ยท Joined and completed a medical device clinical study,

ยท Started a study, but didnโ€™t finish,

ยท Were invited to participate in a study, but chose not to enroll, or

ยท Wanted to participate in a study, but couldnโ€™t enroll.

What to expect if selected?

Participating in the town hall is a 5-hour commitment, including preparation time and the 2-hour virtual town hall event.

During the event, you will:

ยท Share your experience with medical devices and clinical studies

ยท Help the FDA understand barriers to participation of older adults in medical device clinical studies

ยท Offer suggestions to help improve access and participation of older adults in medical device clinical studies

ยท Answer questions and engage with FDA attendees

Interested in participating? Please email Anaja Pinnock-Williams at anaja.pinnock-williams@fda.hhs.gov before Friday, July 25, 2025.


anaja.pinnock-williams@fda.hhs.gov

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„STRAWBERRY KIWI QUINOA BREAKFAST PARFAIT๐Ÿฅ„Try saying that three times fast! Oh, what a treat to serve for breakfast!2 cups plain Greek yogurt 1 tbsp. honeyZest of half a lime, finely grated1 cup cooked quinoa, cooled8 large strawberries, hulled and...

2 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday to a great group of people! ๐Ÿ˜ƒ
Wishing everyone a pleasant, easy breathing day! ๐Ÿ˜Š

4 hours ago

Pen-Pen

Pen-Pen

I feel like I have no quality of life. I have to use my Nebulizer at least 3 times a day. I have to have supplemental oxygen especially when I sleep. While I'm thankful for these things helping breathe I thought I would get better. I quit smoking when I was hospitalized from influenza A, emfazima and pneumonia. Until that happened I didn't even know I had COPD. 
I have mental illness so this really affects my depression. I smile and laugh but people have no idea how I'm feeling on the inside 

7 hours ago

Kezzer

Kezzer

๐Ÿ˜•currently lied in bed and my blood oxygen level is 84. Found breathing quite difficult today

13 hours ago

GAnne

GAnneanswered the question Never had any phelm with so many colors

Update: finished 10โ€ day supply of cidifinir and 7 day 40 mg of prednisone 2 days ago. I am no longer coughing every color in Crayon box, however I dti have a lot of mucus,I am weak. So Iโ€™m headed to my pulmonary Dr tomorrow, to make sure I donโ€™t have …
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

13 hours ago

Community Announcements

Community Announcementsadded a new article Four abstracts using Bronchiectasis and NTM Research Registry data presented at World Bronchiectasis Conference

Conference focused on bronchiectasis care and management

Miami (July 22, 2025) - The Bronchiectasis and NTM Association announced today that four abstracts using Bronchiectasis and NTM Research Registry data were presented at the World Bronchiectasis Conference, held July 14-17, 2025, in Brisbane, Australia.

The abstracts are:

  • "The Impact of Proton Pump Inhibitor (PPI) Use on Exacerbation Rates in Patients with Bronchiectasis: An Analysis of the US Bronchiectasis and NTM Research Registry," which examined the impact proton pump inhibitor use has on exacerbation and hospital stay frequency and disease severity.
  • "High frequency chest wall oscillation (HFCWO) data in the Bronchiectasis and Nontuberculous Mycobacteria (NTM) Research Registry (BRR)," which highlighted the need for more education on high frequency chest wall oscillation prescribing indications and guidelines to ensure all eligible patients are receiving devices.
  • "Treatment patterns by exacerbation history in adults with bronchiectasis: data from the U.S. Bronchiectasis and NTM Research Registry," which analyzed exacerbation treatment patterns to determine factors that influence disease management.
  • "Sociodemographic Factors Associated with Health Outcomes in a Sample of the U.S. Bronchiectasis and Nontuberculous Mycobacteria Research Registry," which evaluated the impact of socioeconomic factors on health

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainSad news. Ozzy Osbourne has passed away. I grew up listening to his music. My favorites are Crazy Train, and Mama, I'm Coming Home.
Rest in Peace, Ozzy. โœ๏ธ 

16 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Warning (phlegm gross picture ) scared still no help

We have seen your lung function- which showed a little air trapping but was otherwise normal. After stopping smoking- it is pretty common for people to report lots more bronchitis symptoms for a several months ( the natural cleaning system systems in the …
Grace2024Phyliss DiLorenzo NJ State Captain also answered the question Grace2024and 1 other also answered the question

17 hours ago

Grace2024

Grace2024asked the question: Warning (phlegm gross picture ) scared still no help

hello everyone itโ€™s me again lol. Iโ€™m still not doing well at all probably worse . I did start exercising and jogging and it was helping a lot but these last two days Iโ€™ve havenโ€™t been able to move and only lay on my stomach to breathe . It got so bad I …

21 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Oxygen levels

Are you weaning off oxygen under your doctorโ€™s advice? If you are doing it under your own initiative, I strongly urge you to discuss it with your doctor
MarlomontecarlobrydyNorwesterand 3 others also answered the question Marlomontecarloand 5 others also answered the question

22 hours ago

Davidgh

Davidgh

Hi!  Recently I've had a flare up and my doc has given me an antibiotic for a week plus 40mg of prednisone per day for a week.  Since taking the prednisone the past 4 days I've some really sore muscle pain in my lower legs, especially when walking.  If the prednisone is causing this should I be taking some potassium to help counter this effect?  Or do I need to ask my doc first??

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿซ˜๐Ÿซ˜SIMPLE BEAN SALAD๐Ÿซ˜๐Ÿซ˜ Salad:One 15-ounce can chickpeas, rinsed and drained One 15-ounce can light red kidney beans, rinsed and drained One 15-ounce can dark red kidney beans, rinsed and drained 3/4 cup finely chopped onion2 cups finely...

1 day ago

Slidewayz

Slidewayz

Has anyone ever thought about it might be a parasite as the underlying problem? 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy bee-u-tee-ful Tuesday! Everything about this day screams the word AWESOME! 
Bee kind and keep a smile on your face! Enjoy your Tuesday, friends! ๐Ÿ˜ƒ

1 day ago

danalaye

danalaye

Woke up having panic attacks.
I have them daily some days more than others.. My doctor put me on medication for it.. I am on 3 different kinds and nothing works.. I feel like a prisoner in my own body
 Its so hard to leave my house. I think about leaving and i have panic attack.. 
I think attacks comes from me fearing that i will quit breathing without my oxygen. Even if i walk into another room i start having an attack.. Everyday i am miserable. I feel like im am existing not living..is there anyone out there having the same issues are had them.. Also i am having to wing myself off of being on my oxygen , i went in the hospital for too much oxygen.. My doctor said to much is toxic for our lungs..

1 day ago

wbl

wbl

Does a higher humidity make COPD worse? Or is a higher humidity level make it better? I live in an area where in the mornings the humidity level is around 50-60% and the afternoons are around 20-25%. I find it harder to breathe in a hot humid environment like when I go to Lava Hot Springs and they shut the door to the outside when I am drying off and changing back to my street clothes. But I also find it harder to breathe when the air is cold like -35 to 20ยฐF with the humidity level around 15%.

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I am finally over the diverticulitis and inner ear infection.  Last week was a rough one, but the fine people of COPD360 kept me going when I did not want to.


I think that the physical therapy is helping with my hip pain as well as my balance.  I hope to get out in my flower and vegetable garden tomorrow.

1 day ago

wbl

wbl

It's kind of hard to breathe with the smoke in the air.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Check-In: The Role of Community in Chronic Lung Conditions

Thank you Jonnie Korinko (COPDF Assistant Director of Education)!! I have made many friends on COPD360SOCIAL! I learn something new every day. We talk about lung disease, and about things going on in our lives. It is very important to communicate with others. We read reputable information …

1 day ago

Jonnie Korinko (COPDF Assistant Director of Education)

Jonnie Korinko (COPDF Assistant Director of Education)asked the question: Check-In: The Role of Community in Chronic Lung Conditions

Spending time on COPD360Social can be a lot of fun. Connecting with people across the country, learning some of Debbieโ€™s yummy recipes, and catching a glimpse of a cute puppy on Fluffy Friday can bring a smile to anyoneโ€™s face. But did you know that …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅฏ๐Ÿณ๐Ÿฅ‘THE ROUNDABOUT๐Ÿฅ‘๐Ÿณ๐ŸฅฏHalf of a multigrain bagel, toasted 1 large egg, cooked sunny side up1 small avocado, peeled, pitted, and thinly sliced Grind of black pepper Place the bagel half on a plate. Place the egg in the center of the bagel...

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Appreciate feedback, new to COPD . Altitude & chlorinated poolsโ€ฆ

It would be helpful to have you tell us what testing you have had done and those results ( Spirometry, lung volumes, diffusing capacity, imaging, scans, etc). Your current therapy, symptoms, etc. In general- living at altitude is problematic if people …
Phyliss DiLorenzo NJ State Captain also answered the question Phyliss DiLorenzo NJ State Captain also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday from Hazel's cousin Myrtle! ๐Ÿ˜„๐Ÿ˜
No matter what, we can make it through ANY Monday! Enjoy your day, friends! ๐Ÿ˜€

2 days ago

JD85

JD85answered the question Anyone hopeful about possible regenerative therapies in near future?

Karen Deitemeyer - Florida State Captain, you are 100% correct, there is a danger of pneumothorax at higher pressures and I am defiantly not offering medical advice. You are also correct in stating I do not have COPD currently and hopefully I'll never progress to have COPD however …
Karen Deitemeyer - Florida State Captain45yrcopdasthmaKatwand 1 other also answered the question Karen Deitemeyer - Florida State Captainand 3 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHope everyone is enjoying their Sunday! Stargazer lilies, coneflowers, butterfly bush, and pink and white rose of Sharon make a banquet for the butterflies and bees! ๐Ÿ˜€

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Do strangers ask you why you are using an oxygen concentrator when you are walking outside?

I have been asked many times about my concentrator by adults. Mostly they were curious and possibly interested in getting a similar one for a loved one. They are surprised and happy to see me out and about with my O2 because not that many people are …
Frances AnnKen Benson-California Lung Health Advocate and State CaptainKaren Deitemeyer - Florida State Captain also answered the question Frances Annand 2 others also answered the question

2 days ago

RH

RHasked the question: Appreciate feedback, new to COPD . Altitude & chlorinated poolsโ€ฆ

Iโ€™ve been around 2 nd hand smoke most my adult life & lived in a very dusty/desert/windy area (toxic air). Developed a bad lung infection 7 years ago, took meds, got better. Then I got COVID, bad, really affected my breathing. I got better with time, …

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.