Bill Clark - Community Manager

Bill Clark - Community ManagerComing soon to a webinar near you! 


Here is a chance to learn a little about our Harmonicas for
Health Program a program designed for people with COPD as well as other chronic
illnesses. Join our own Stephanie Williams for an overview of the program, how
it works, and how it benefits your lung health, and even a beginning lesson.
Register to join us and bring your harmonica if you have one and play along
with us!

Donโ€™t have a harmonica? Harmonicas
for Health kits are available from the COPD Foundation and contain
everything you need to get started. 


Hope to see you there!



Harmonica Fun for Lung Health

Wednesday, July 8th at 2 p.m. CT


https://event.on24.com/wcc/r/2408802/4255DC8F87F8ED3AB43D10A1B70C5E23

1 week ago

Ben A

Ben AHappy Fourth!



https://media.giphy.com/media/Whf3sG8qXFUFa/giphy.gif

2 hours ago

edpe77

edpe77

Here's a quick meal suggestion, with minimal prep. Put an egg in a coffee mug w/a splash of water, nuke it fo1-min. In the mean time get bread ready - I toasted a couple pieces of rye, you can use any bread or muffins. I butter my bread, dump the egg on add a slice of cheese {the hot egg will melt it], S & P, and I put some pieces of coked bacon in the egg. Make a sandwich and you have a light lunch in 5 min.
ed




9 hours ago

creekgirl

creekgirlanswered the question How do you find the bright side.

I don't know how to advise you, Obiron, only sympathize about the panic attacks! Isn't there something, something, we can take? For months every day has been a battle to ignore chest pain and shortness of breath and whatever other frightening symptom, …

12 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy 4th Everyone!! Stay safe!! 

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Happy Fluffy Friday!!!! And a very Fluffy Friday it is! Today we have Cheech Rossi when he was just a boy. 

16 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Good Morning, Happy 3rd of July, I hope all the poor animals get some anxiety meds before the fireworks start! 

16 hours ago

  • NewestOldestClick to View All Comments10 comment(s)
  • edpe77
    You won't believe the difference as a non smoker. It took a few days in the ER for me to quit last year. Now I can take showers, go out and even walk across the room. Granted I'm still using lozenges, but they don't affect my lungs. Enjoy your 4th and stay safe.
    ed10 hours ago
  • creekgirlWow, thank you, kind people! I literally smiled as I read your responses. Your support means a lot to me!

    I'm using the nicotine lozenges too. I tried combining them with cigs when I was just trying to cut back and that gave me heart palpitations. So I was leery of trying them again. But without the added nicotine of cigs I'm finding these lozenges just fine. I actually feel calmer with lozenge nicotine than cig nicotine. And maybe it's my imagination, but I already feel kinda better, breathing-wise. There's a website that informs you of benefits of quitting in a timeline:

    https://www.healthline.com/health/what-happens-when-you-quit-smoking

    I like that it makes you feel like it's never too late.

    Thank you. Happy Fourth!
    8 hours ago
  • creekgirl"Stay strong.  Keep calm.  Carry on."  That's a great motto, Jean.  I've never dreaded fireworks, always loved them.  I guess my nerves are just that fried out. 

    I don't take any meds besides baby aspirin and atorvastatin.  And I'm not even regular on the latter, as I'm wary of side effects.  I'm wary of all pharmaceuticals for that reason, but when it comes to anxiety, it surprised me to see so many options ruled out.  Though I only took half a .5 mg Klonopin irregularly as needed, I've long counted on it as my "fail-safe."

    Speaking of a fail-safe......my new sleep wrist oximeter arrived today. 

    Thank you again, and HAPPY FOURTH! 

    8 hours ago
Ken W

Ken Wanswered the question Good Days - Bad Days

Het Jane, I hope you are well. I still miss our BB days and our group. The Dew Point is the big indicator for me and we are in that time of year when it hangs in the 70s+ here and occasionally hits 80. Theose are my worst days. Take care!

17 hours ago

KerrysWorld

KerrysWorldhttps://copdnewstoday.com/2020/06/18/undersized-airways-may-explain-why-some-nonsmokers-develop-copd/


I think this is part of my problem. Disproportionate lung size to airway size.

21 hours ago

Chronichyperventilation

Chronichyperventilation

Hi Mindot,


I just wondered if you are having problems still with shortness of breath / unable to get a deep breath. I had this for years and have a few tips.

22 hours ago

Margie ONeill Maloney

Margie ONeill Maloney

Itโ€™s late, but not sleeping much lately. Just wanted to take a minute and thank this wonderful community. Ive been spotty logging on lately, but I find so much support and valued information when ever I log on. I just wanted to thank all of you...

1 day ago

edpe77

edpe77

For probably the last 20 years I've had a BBQ on/around 4July. This year was going to be an exception because many of the same people would have been coming to my grand son;s grad party. COVID19 resulted in canceling the grad event. Perhaps my daughter will do something next year.



Over the years many weather issues have affected these parties, but not the spirit. Last year my daughter and her boy friend grilled in an absolute down pour. Just days before my son built a metal gazebo, which kept 12 people dry until meal time, at which point half the party ate in the garage and the others in the house. Later we enjoyed the calm under the gazebo. A couple years ago my meat thermometer registered in excess of 100F in the shade. Again most of the guests ate in the air conditioned garage. This year I'm just going to kick back and enjoy my neighbors mega fireworks show.



Enjoy your holiday celebration,stay safe and maintain your distance - we are particular susceptible to the severe consequences of COVID19, 

ed

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

This 4th of July will be my first 4th off in 20 years and maybe more! I will be spending it with The Bear, everyone is going to the beach for the week. I'll make the best of it. Its a break from CVS. Love you guys Bill66 

1 day ago

KerrysWorld

KerrysWorld๐Ÿ˜
In line with results from previous research,3,4 the current findings point to a higher prevalence of cognitive impairment in patients with COPD vs healthy controls and suggest that there are domain-specific differences in COPD-related cognitive impairment compared with Alzheimer dementia. โ€œIf confirmed, this would be clinically relevant for COPD management (eg, it might alter the ability to comply with particular treatment types or benefit from more complex therapies) and for care of their comorbid disease, as specific types of cognitive impairment may have different management strategies,โ€ the investigators wrote.

https://www.pulmonologyadvisor.com/home/topics/copd/copd-related-cognitive-impairment-unlike-other-forms-of-dementia/



So tired of them looking for ways to continue ineffective "treatment" in spite of the disease and it's comorbities progressing. 


Healthcare for profit is a nasty industry.

1 day ago

Copd Warrior DL

Copd Warrior DL

Good afternoon to all 
Its very hot here and had to buy a fan yesterday my a.c. went out in the apt home where i reside and they have no maint. man yet. The office is open only one day a week on Tuesday, so wish me luck over the holiday weekend.. and Happy Independence Day to All.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Howdy folks! It sure is a scorchingly hot day here in southern Connecticut!
By any chance, does anyone need a simply basic potato salad recipe? I just happen to have one...
Wash and scrub some red skinned potatoes. Cut them into small chunks. Place in a large pot. Cover them with water. Bring to a boil. Cook over medium- high heat, stirring occasionally, until fork tender. Drain well. Allow to cool!!!
Meanwhile, thinly slice some celery, and don't forget to use the leaves! Thinly slice a few scallions. Using a lemon reamer, get yourself 2 tbsp. fresh lemon juice. Pour the juice, minus the seeds! ๐Ÿ˜ into a large glass bowl. Whisk in a teeny bit of salt and grind in some black pepper to taste. Finely chop some fresh dill and some fresh parsley. 
When the potatoes (remember those?!?) have cooled, place half in your glass bowl. Add a plop of mayonnaise. Stir to coat. Stir in your celery and scallions. Add the remaining potatoes, and enough mayonnaise to coat. Stir well to blend it all together. Add in the dill and parsley. Stir once more. Cover and refrigerate until you are ready to serve. 
Use the amount of ingredients you will need to make as much as you see fit. 
DebbieB. ๐Ÿ‡บ๐Ÿ‡ธ

1 day ago

Caroline

Caroline

I watched the COPD Coalition Webinar on Pulmonary Rehabilitation.  One thing that stood out to me was a statement made by Dr. Brian Tiep.  He said that people with lung issues must determine what type of life they wand and then work toward it every day.


I think this is particularly insightful.  I used to just get up and go about doing what I needed to do without much thought.  Now I need to work at doing what I need to do.  Sometimes I think that I do not want to put forth this much effort to do normal things, but this statement puts it into perspective for me.


Each day requires that we work toward the life that we want.

1 day ago

  • Jean IA State CaptainI agree wholeheartedly, Caroline.  I've known Dr. Tiep for years and I've always appreciated his very direct, focused and pragmatic approach to COPD.  One of the first things I remember was years ago, he was the first doc I knew who encouraged folks with COPD to use their oximeter to "titrate as you migrate", one of Dr.Tom Petty's famous sayings.   He would talk about this at ATS and anywhere else you could find him, but at the time, it was not something that was widely accepted.   He's a huge believer in PR programs and in giving  people with COPD the tools necessary to take charge of their own situation.  I thought his presentation was excellent and I certainly enourage anyone who didn't see it to go to the COPD Coalition's website; there will be a link there.1 day ago
JeanO53

JeanO53answered the question Dizziness-Does anyone out there have dizziness?

tammywillis Some medications have warnings about the side effects of consuming alcohol while taking the medication. I suggest you discuss this with your doctor.

1 day ago

only me

only meanswered the question Has anyone tried apple cider vinegar?

In my opinion YES and YES again. I had COPD since 2003 and was getting exacerbations every two or three months. September last year (9 months ago) I saw an idea somewhere about improving my body's resistance to disease. Since then I take a tablespoon …

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Good Morning Homies๐Ÿค˜

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

When I get out of bed each morning, I say to myself- This is going to be a great day! I am so lucky to be here! 
Have an absolutely wonderful day, my friends! ๐Ÿ˜€

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Good Days - Bad Days

Thank you, Jane Martin. I certainly hope that many people benefit from this discussion. I believe it helps to talk to others who are struggling with the same problems. Have a lovely day!

1 day ago

KerrysWorld

KerrysWorld

Results of recent preclinical trials published in Annals of the American Thoracic Society suggest that the use of inducible nitric oxide synthase (iNOS) and soluble guanylate cyclase (sGC) inhibitors may reverse both pulmonary hypertension (PH) and lung airspace enlargement in mice exposed to tobacco smoke.1 These results suggest that COPD caused by tobacco exposure could someday be cured.
https://www.pulmonologyadvisor.com/home/topics/copd/chronic-obstructive-pulmonary-disease-with-vascular-dysfunction-as-primary-feature/

1 day ago

  • Maverick2NO is essential for immunity against infection. INOS inhibition or knock out increases the risk of infection. Already, COPD has increased risk of infection and INOS inhibition will become a double whammy. It exchanges the risk of lung damage with risk of exacerbation.

    Actually, in humans, smokers have less exhaled NO than non-smokers. hence it is highly unlikely that inhibition of INOS leads to potential benefit.

    Most of the research look immediate commercial benefit completely disregarding the science. They try to project inhibition as a solution that will end up nothing more than a tall promise in clinical trials. However, the study adds valuable scientific knowledge which will culminate in mechanistic understanding of the effect of smoking on the lung.

    Kerry, Thanks for updating us
    1 day ago
bobboberson

bobbobersonanswered the question Dizziness-Does anyone out there have dizziness?

I do inhalers while having A beer. Moderation is the key.

2 days ago

tammywillis

tammywillisasked the question: i am so dizzy will my meds help with that

dr said it was up to me to take meds i am stage 2 meds make me more dizzier but it helps to breath sprivia gives me a head ache and sore throat

2 days ago

tammywillis

tammywillisanswered the question Dizziness-Does anyone out there have dizziness?

me too i dont know i started getting dizzy 6 yrs ago with menopause i was just dianoinse with copd in dec

2 days ago


COPD360social posts are monitored by Senior Director of Community Engagement and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.


Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.