muddleaged

muddleagedanswered the question Meet with Pulmonologist

Now is the time to amass assets, not divest. When I was 55, with an FEV of 35, I really pressed my pulmonolgist for a probable timeline. I needed to know if I needed to conserve my money or if I could splurge in my retirement. His answer was, "If you …

3 hours ago

edpe77

edpe77answered the question COVID vaccine

I think the vaccine reactions mimic COVID19 affects. That is to say, some people have nasty reactions to the vaccine. However, the reaction to COVID19 ranges from mild to to death - over 500k in the US alone! Hence, whatever your reaction to the vaccine, …

3 hours ago

muddleaged

muddleagedanswered the question COVID vaccine

ooooh, boy! I got the second Moderna dose on Monday. Again, I made sure to exercise the arm a lot. I never got a sore arm. BUT - Began at bedtime. Dozed for an hour then wide awake. Hips and ribs ached. Arm normal. Pulse 125. 02 =98. Really miserable …

3 hours ago

edpe77

edpe77

cannulas can be problematic at times! A few days ago I put on fresh "soft" cannula. After a couple nights, I get this buzzing in my ear. Mind you I'm a side sleeper with the pillow between arm and ear. So I changed to a regular cannula, silence at night. As I was telling the O2 supplier, during the day the regular feels like a soft cannula ready to be replaced! At least the problem is resolved for no - soft @ day, regular @ overnight.  fyi   //ed

15 hours ago

Caroline

Caroline

I got an email today to schedule my COVID shot at Access Health which is a local medical clinic.  The email was in the spam folder, and I just happened to be looking for something else that I was sure had ended up there.  I don't have an exact time or date, but the email said between March 1 and March 7.

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Check in - A Light in the Dark

Such lovely and touching words, Kristen! Thank you! 🥰 I have the door unlocked and open, leaving plenty of room for Shingles to step on out! I made an appointment with my pulmonologist on Monday morning for a check in.

19 hours ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Hello Everbody 
Just wanted ta check in .  Still not well . Havin so many issues I cain't even began ta explain.  It all started with the ERCPS and Gallbladder surgery and has went on ta effect ever organ in my body . Ima in a Deep Depression.  Prayers for everbody and God Bless . 
Love ya'ens always 
Lorrie ๐Ÿ˜”
Lorrie 

1 day ago

Mobal

Mobalanswered the question Check in - A Light in the Dark

I had to think about this one a bit and have figured out "what", rather then who, my Big Red is. Throughout its history the lighthouse had a series of additions, modifications and upgrades, not to much different from my life. Between family and friends a …

1 day ago

Duane50

Duane50

Hi Christina h . How are you going. I went to local doctor today for a breathing test.after coming back from hospital, as had to pick medication up. Anyway finally made it to local doctors. Nurse told me they just got machine back as been broken.....anyway tried using machine twice and machine was not working properly. So we got doctor to try, he had same problem.. so that was that..long day as my young son had to be dropped off at airport as he's in school of mines up north kalgoolie. So that was 430 am. So then home clean his room. Wearing a mask as dust on his shelfs ..and washing his bedding.. so my arms are still sore as been doing to much at gym I've been told by experts..never mind always something to keep me busy..I hope you are doing ok Christina h ..

1 day ago

Daniel Graduation Towers

Daniel Graduation TowersToday i build a graduation tower for a hospital in germany :-)

1 day ago

cooliofool

cooliofool

Hello, this is my first time here!  I am getting a doctor visit coming up, but I thought I would explain why I am here.  So, I have been coughing up clear pleghm in the morning for a couple of months or so, but it wasn't something that happened constantly.  Last week, I was doing some cleaning and there was a lot of dust in the room, I wore a mask, but I also took it off when I thought it was all clean.  Anyway, the next day and till now, I have been coughing up clear, white or foamy mucus throughout the day and evening.  It started with sneezing and coughing, but it hasn't stopped for over a week.  So I am getting a virtual visit with my doctor to let him know my symptoms.  I have never been diagnosed with COPD, but after the last week, it's starting to me to appear it may be (especially during a Covid time as well) Again, just wanted to say hello and wish you all well.

1 day ago

das23

das23

Just got a call from my Primary Care Dr. I get my first COVID shot Monday!!--Good for me!!!!!!๐Ÿ‘๐Ÿ‘

1 day ago

Alph

Alph

Paradoxical breathing. After a recent exacerbation Ive noticed Im locked in to paradoxical breathing. When I inhale, my stomach sinks instead of expand, contributiong to respiratory exhaustion, etc.  Can this be reversed with diaphramatic breathing?  Is this something that eventually becomes permanent?

2 days ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

Good Afternoon 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Check in - A Light in the Dark

Thank you for your kind words, Jane! They are very much appreciated. โค I am going to make it through , and do my best to help others through! Folks, always remember that with the COPD Foundation, you are never alone! 🙂

2 days ago

JeanO53

JeanO53answered the question Check in - A Light in the Dark

Another tough one, Jane. It's good that you make us think!! In the past, I would have been Big Red. I have often been the person others looked to for answers or to lead the way. At the moment though, I'm feeling a bit like a tiny boat out in the middle …

2 days ago

Pepaw

Pepaw

Looking for any insite for companies that assist in travel expenses...trying to get to Florida for a new treatment at the Mayo...any imput is greatly appreciated...have a blessed day 

2 days ago

Pepaw

Pepaw

Morning everyone...hope everyone has a blessed day and your breathing be labor free

2 days ago

Ms.Whylene

Ms.Whyleneanswered the question Where to find help

Good Morning.. Blessings to you,I hope you feel better soon . Sometimes people make the mistake of deciding what the Government,Hospitals, Shelters,Churches,Pastors,Drs are supposed to do for them.. I do understand what you are saying.. You need help …

2 days ago

Duane50

Duane50

Hi Lin and all . I hope you are all doing ok. I got my appointment with a pulmonary specialist. 4 months away. Gee they are very busy people.never mind we must keep moving. I went to gym today and boy my shoulders sore . So have decided to fully join up on Tuesday as there is a special on .. ok everyone take care .. all the best to you all. From Duane 

2 days ago

lanesf

lanesf

I'm had a really tough time breathing the last three or four days it's  cold and icy I got three answers about my question I just wanted everybody to know that I have done everything that they had already suggested as of 11:00 tomorrow morning I don't know where I'll be it's kind of scary I've been waiting on my disability for over a year I've had to go on Medicaid in order to get my medications and when you're walking around St Paul Minnesota with nothing but a purse because you're homeless I'm not trying to be negative I'm just stating the facts. Also have cancer bone cancer and breast cancer once you go to a domestic violence shelter and they find that out they find a way to make you leave I hope everyone understands that I didn't in the beginning y'all keep praying

2 days ago

  • NewestOldest
  • JeanO53Hi lanesfโ€‹ - I did a quick google search for homeless services for St. Paul, MN.  The Family Place came up as a day center where help is available for families.  It says families, but it might be worth checking out.  At the very least, they may be able to point you in the right direction for services available for single individuals.  They're at 244 Tenth St East / (651) 225-9354.
    ...The other number that came up was for the Coordinated Access to Housing and Shelter (651) 215-2262.
    ... I worked in the homeless services area in Wisconsin for many years.  One of the things that we discovered that was essential for individuals is to get connected with a case manager or supportive services type worker who can help you navigate access all of the different services and resources that may be available to you.  It can be very difficult to find your way on your own.2 days ago
  • DebbieB.-Connecticut State CaptainBest of luck to you, lanesf. I hope you get the assistance you need, very soon. JeanO53โ€‹ That is very nice of you to find some helpful information. ๐Ÿ‘ 2 days ago
BlairT

BlairTanswered the question Where to find help

You are definitely in a tough spot lanesf but you sound like a survivor if you have managed through an extended period like this. Jean has some good suggestions. I am glad to hear you are in a hospital, please be patient and hang in there until you get …

2 days ago

JeanO53

JeanO53answered the question Where to find help

Hi lanesf - Iโ€™m sorry to hear that youโ€™ve had to go through all of this. A few questions... Have you reached out to any domestic violence support agencies in your area? Depending on where you live they may be able to provide shelter and/or …

2 days ago

Bri2182

Bri2182

Hello! I am 21 years old and got diagnosed with mild COPD am kinda confused because my doctor said I had a mixture of COPD/ Emphysema also a bit of asthma. I took a pulmonary test and thatโ€™s how I was diagnosed. Iโ€™ve been to 2 other doctors and they are telling me they do not believe I have COPD at all. I do use a nebulizer treatment day and night. My concerns right now is COVID. It scared me out my mind since covid is respiratory. I have very intense anxiety and am a hypochondriac. I have to buy myself a peek meter, and oximeter because I would worry myself to much with COVID. ๐Ÿ˜ž     

2 days ago

  • Jean IA State CaptainOCPD is an umbrella term that includes chronic bronchitis, emphysema and asthma; it's used because very few of us have only one of those, most of us have elements of all three.  The first doc said mild; the other two could have interpreted the test results a bit differently and determined that you don't have it.  That's possible; docs disagree.  What it really means is that at worst, you are at the very beginning stages of COPD and at best you don't have it at all.  A daily exercise program, good weight control and healthy lifestyle should keep you right where you are for years and quite possibly for the rest of your life, whether or not you have COPD.


    Get your peak flow meter and oximeter if you think they'll help with your anxiety.  Your anxiety is your worst enemy at this point, and definitely contributes to your breathing problems.  If you have a therapist, see them and get some help in dealing with this breathing issue.  If you don't, find a good therapist and get some help.  Meds help, but you need to learn how to manage and control your anxiety, just like you can learn to manage and control your COPD if you have it.  


    2 days ago
lanesf

lanesfasked the question: Where to find help

This is a different kind of question for everybody due to a lot of things going on in my life in the last five years a lot of illnesses plus being a survivor of domestic violence it has not been easy I had to leave my home last August in order to stay …

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Check in - A Light in the Dark

Good afternoon, Jane, and everyone! I consider myself to be the Big Red! 🔴 I am the one who thinks through before you do. Of course, I have been through the messes involving the pandemic, and our weather. We're all in the same boat. But! That boat …

2 days ago

edpe77

edpe77

COVID19 vaccine distribution across the US seems to be quite even, according to a graph in today's paper. 14% have received 1 jab, and 7% also got their 2nd jab. For example MI = 13%, and WI 15% first jab, while MI = 6.8% {me} and WI 6.5% for both jabs! So the roll out is going both well, and smoothly. Also the makers are once again ramping up production!  //ed

3 days ago

Jane M. Martin

Jane M. Martinasked the question: Check in - A Light in the Dark

What a year it has been since the COVID-19 pandemic invaded our world. Itโ€™s been a difficult, uncertain time. Through it all, weโ€™ve continued on โ€“ you and I โ€“ just doing our very best to stand tall, chin up, in spite of all that has come our way. Yes, we …

3 days ago

Stephanie Williams, RRT

Stephanie Williams, RRTadded a new article Dr. Tabatha Dragonberry

Welcome our newest State Captain!

Dr. Tabatha Dragonberry has been a respiratory therapist for over 15 years. She is a passionate educator teaching patients, students, and respiratory care professionals. Currently, she is an assistant professor at UT Health San Antonio and the...

3 days ago

Mobal

Mobalcommented onA Health Care Professionalโ€™s Personal Experience with COVID-19

 Thank you for the insight. God bless you and all health care workers....

3 days ago

Kristen Willard

Kristen Willardadded a new article A Health Care Professionalโ€™s Personal Experience with COVID-19

By Michael Stephen, MD

My experience with COVID-19 started on Easter weekend of 2020, when I was pulled from my usual duties to cover overnight shifts in the medical intensive care unit at Thomas Jefferson University in Philadelphia. From the moment I entered the hospital, I felt extraordinary tension and fear; for the first time in many healthcare workersโ€™ lives, we recognized our jobs brought real personal danger.

I remember...

3 days ago

Somac

Somac

Not too bad. Chest hurts off and on but cardiologist says its the breathing 

3 days ago

Stephanie Williams, RRT

Stephanie Williams, RRTTuneful Tuesday!
Who else loves Fleetwood Mac?? One of my faves ๐Ÿฅฐ
https://youtu.be/Y3ywicffOj4

Fleetwood Mac - Dreams (Official Music Video)

You're watching the official music video for Fleetwood Mac - "Dreams" from the 1977 album "Rumours". The new Fleetwood Mac collection '50 Years โ€“ Donโ€™t Stop'...

3 days ago

Soleena

Soleena answered the question Meet with Pulmonologist

maybe this is a better way to look at things. Your spirometry is right at the borderline. 80% is the lower limit of normal for fev1, and 70% is the cut off for fev1/fvc to dx copd. Your numbers improved with albuterol but not enough to give you a …

4 days ago

Brian Simpson, RRT

Brian Simpson, RRTcommented onLiving with Bronchiectasis: The Patient Perspective

 Thank you very much ! Stay positive and keep fighting !...

4 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Breathing Discomfort

Did the pulmonologist do some breathing tests? The one where you're told to "blow, blow, blow"? If not, then you may want to see another pulmonologist and ask for a spirometry or pulmonary function test. Either will give definitive results for COPD. If …

4 days ago

manur90

manur90asked the question: Breathing Discomfort

Hello All, This is Manur age of 40, Since 5 months i have been struggling with breath discomfort, I have reached ENT and did the Nasal Septum surgery and did not see any difference, After I went to Pulmonolist and did few test and confirmed me no issue …

4 days ago

BobbyZ

BobbyZ

I'm new to this site. I am a husband of a stage3/4 COPD person. She has had COPD for 3 yrs plus. He condition is getting worse. I still work full time. There is some help but I am the primary person.  Open to any help. Thank you

4 days ago

Caroline

CarolineI live very close to the New River Gorge Bridge and have seen it from many angles and have seen countless pictures, but this is stunning.  It was taken about a week ago by a friend.  I will be glad to kiss old man winter goodby, but he does create some spectacular scenery.

4 days ago

Lepapillonfashi

Lepapillonfashi

Hello guys again Iโ€™m 36 years old and went to the doc for having a problem with taking a deep satisfying breath sometimes. Iโ€™m so tired of this problem- ๐Ÿ˜ž anyway I was diagnosed with copd I was totally shocked I did a pft test , now Iโ€™m just totally stressed! However I have been on two diff inhalor to better my breathing but non is working and my doc doesnโ€™t reply to my concerns- before I went to this doc I was admitted to hospital bc I think I had an anxiety attack or something they did a EKG scan blood work, chest X-rays and also chest Cat scan to figure out if there is any infections or something wrong they found zero problems with my lungs and heart. Iโ€™m so confused and scared that my breathing problem is due to some other problem. I can tell you I do have an acid reflux problem and i feel like itโ€™s getting worse also my left side of my chest hurts and when I press down on my belly my breathing feels better or when I press on my chest it also gets better , no coughing no wheezing no weird sounds coming from my lung she told me my diagnoses is mild to moderate but I walk/run/ workout like an hour every day I eat clean and it has been my lifestyle I smoked occasionally (hooka) but not a heavy smoker at all. When I lay down on my belly I feel good and I walk or workout I donโ€™t feel out of breath at all. The only thing dur Bc a workout I would hear my breathing like a wind sound through my mouth I looked it up itโ€™s called amphoric breathing sound now Iโ€™m worried if itโ€™s liquid around the lungs or what is going on with me! Iโ€™m so worried I just had a baby and I want this stress to go away ๐Ÿคฆโ€โ™€๏ธ Any advice can help- FYI I am going to an ENT doc and a stomach doc next week and also a diff polumonry doc bc if it is copd my inhalers only make my chest hurt and doesnโ€™t resolve the problem I have at all I been on it got over two weeks ๐Ÿคท๐Ÿผโ€โ™€๏ธ

4 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onNew Plain Language Summary Feature in Chronic Obstructive Diseases: Journal of the COPD Foundation

 This is great!! Thank you Cathy. I, along with one other patient (that I am aware of) have been involved in reviewing plain language summaries of clinical trials over the past year or so. I'm glad that the Journal has begun to do this....

4 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Diaphram Paralyzed

I just started the Astral 150 home vent I use it more during the day than at night. I am having trouble with the mask mostly getting it fit right. I don't know this be option for you I have Fev 1 of 28 the RT said Fev 1 of 40 qualify for coverage by …

4 days ago

Stephanie Williams, RRT

Stephanie Williams, RRTcommented onNew Plain Language Summary Feature in Chronic Obstructive Diseases: Journal of the COPD Foundation

 Cathy,Thank you for this information. Sharing information is important, and sharing it in a way that is accessible to the non-medical community is very valuable....

4 days ago

Dave 1950

Dave 1950

I seen your input on your paralyzed diaphragm. I also have paralyzed diaphragm and looking for more input on it.Had surgery on it few years back Which didnโ€™t help any they said it was supposed to help me 70% better.Also have severe COPD but I think my problem is more in my diaphragm because when I go to lift something or bend over Iโ€™m out of breath instantly. Just looking for more information on it or people with the same problem.

5 days ago

Dave 1950

Dave 1950answered the question Diaphram Paralyzed

I also have a paralyzed diaphragm and severe COPD.

5 days ago

Marna

Marna

What type of portable oxygen do you use for a person that needs 6-10 liters in the house? 

5 days ago

Duane50

Duane50

Not to bad today. Thanks for your support.





5 days ago

  • NewestOldestClick to View All Comments16 comment(s)
  • Duane50๐Ÿ˜Š๐Ÿ‘๐ŸฆŒ3 days ago
  • DebbieB.-Connecticut State Captain๐Ÿ˜€๐Ÿฆ๐Ÿฆ†๐Ÿฆ‰3 days ago
  • Duane50Hello Kristin Willard, just learning about these computers. So forgive me if I'm a bit rusty getting back. Yes went up to orchids today got family some beautiful fresh fruit. But when I opened my mothers fridge she still had plenty. Gee I said you don't eat enough.. anyway we gave to children next door they loved them..I hope you are doing ok Kristen..take care every body 13 hours ago
edpe77

edpe77answered the question What are the proโ€™s and conโ€™s of using a nebulizer โ€‹

Brenda said it all - nebulizers are FREE form medicare Part B, not Part D which covers MDI's! Medically the 2 methods are probably similar, financilly they are quit different! //ed

5 days ago

COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.