Caroline

CarolineI got the first glimpse of the video of the diva snowball and her pals Caroline and Albert.  I am excited for them to be released so everyone can see them.

11 hours ago

Whylene McCray

Whylene McCrayasked the question: No longer in need of oxygen? Share your experience.

Is There anyone who has been on Oxygen 3 or more years..? How did you or your provider reduce the levels? e.g. from 3-1 or 2-0. How did you feel? Were you able to function without a walker,or a cane? Please if you don't mind,share your experience..

11 hours ago

Mikef

Mikefreceived the badge Getting started

Earned the Getting started badge!
marynellLaslopakaFootcand 30813 others also received the badge marynelland 30815 others also received the badge

12 hours ago

ellyann

ellyann

Having a really tough time. Don't really want to live like this

15 hours ago

CharlesH

CharlesH

I tried to go outside in this Texas heat and humidity it is only 88 and that was a mistake. Heart rate went up to 120 then came the sob and when the world started spinning I gave up. That was the worst 10 minutes I have had in a while. I am glad that what I have is on raised beds if not that activity will be gone for good,

17 hours ago

Grover

Grover

Emphysema not bad today. Potential other medical issues. See Gastroenterologist on Tuesday to check on that but like everything else I will have the first visit and more test will be ordered and more copays will be spent and more worrying as if worrying about emphysema is not enough to worry about.  Sometimes I just want to go scream and beg someone how much more am I supposed to deal with. Great news is visit cardiologist test e today after extensive testing puts me in same spot I was 16 years ago when had only heart attack. Hope all of you have a great day. 

19 hours ago

Hornet

Hornet

I was in hospital for bronchitis attack that began with problems from acid reflux. This second attack within 4 years. Now I want to learn how to reduce the likelihood of another attack. mucus is a problem and I am looking into NAC for treatment.

20 hours ago

Whylene McCray

Whylene McCrayanswered the question My best friend died from COPD. Need help with a question

So sorry for your loss,Amta,good friends are hard to find. I hope you feel better soon,grief is hard on everyone involved.. The big and little word If ... I, carries a lot of pain.. when we loose someone.. their are no worda.. I pray that God grants …
MellieGina Bradshaw-Arkansas State Captain AmTaand 6 others also answered the question Mellieand 8 others also answered the question

20 hours ago

MuMarie

MuMarieanswered the question unmet needs in advanced COPD

Dr. Baysal has failed to come back after one month and comment on the various posts that members were trying to answer his very vague question. Being a 'Dr' he may have defined 'medical' as another type of drug or medical respiratory machine for those …
AbrahamMinceAnonymousHIcopd - Hawaii State Captainand 11 others also answered the question AbrahamMinceand 13 others also answered the question

22 hours ago

Tracie Sullivan COPDF Staff

Tracie Sullivan COPDF StaffGreat article came out this week featuring one of our State Captains, Mike Hess, who talks about his journey to becoming a Respiratory Therapist and advocating for COPD patients!

http://www.aarc.org/nn18-the-masters-pursuit/

23 hours ago

Harrysmom

Harrysmom

Denver area.  There was a group several years ago that was playing harmonicas.  Anyone out there know about this, or interested in starting one?

1 day ago

Harrysmom

Harrysmom

Great news for mental health.  Hanging on some days is more mental than physical.  
Iโ€™m happy there is no snow!

1 day ago

Kristen Willard

Kristen Willard

A recently published survey showed that both patients and healthcare providers place less importance on inhaler devices than medication in the treatment of chronic obstructive pulmonary disease (COPD).

Even though past studies have shown that learning good inhaler techniques is key to achieving optimal COPD care, the survey revealed that both patients and healthcare providers were relatively unconcerned with their proper use...

https://copdnewstoday.com/2018/04/27/doctors-and-patients-view-inhaler-devices-as-less-important-than-copd-medication-survey-shows/

1 day ago

Fabiana Talbot

Fabiana Talbotadded a new article Caregiver Action Network Honors Mental Health Awareness Month with Website for Families of Loved Ones with Mental Health Issues

WASHINGTON, D.C. โ€“ May 23, 2018 โ€“ Families of loved ones with mental illness are about to get more help thanks to Caregiver Action Network (CAN). Today Caregiver Action Network is launching a brand new website, Blueprint for Families of a Loved One with Mental Health Issues, to help families address some of the challenges they face when caring for a mentally ill family member.

...

1 day ago

Ben A

Ben A

Grass pollen here in Portland is VERY HIGH (top of the scale) and Claritin isn't even touching my symptoms.  (*Cough*, *cough*, *sniff*, *sniff*)  Time to move on to Allegra.....

1 day ago

Fabiana Talbot

Fabiana Talbotadded a new article ProterixBio Presents Results from Multiple COPD Clinical Studies at the American Thoracic Society International Conference

BILLERICA, MA โ€“ May 22, 2018 โ€“ ProterixBio, Inc. today announced that results from three clinical studies of subjects with chronic obstructive pulmonary disease (COPD) were presented at the American Thoracic Society International Conference this week.

One presentation, โ€œProspective Evaluation of Algorithms Based on Blood Biomarkers as Guides for COPD Assessment and Risk Stratification,โ€ highlighted that blood biomarker based algorithms associate with propensity for...

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

The wonderful insurance companies no longer will cover my Incruse and want me to switch to Tudorza! Frustrated๐Ÿ‘ฟ

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain
A Multicenter RCT of Zephyrยฎ Endobronchial Valve Treatment in Heterogeneous Emphysema (LIBERATE). https://www.ncbi.nlm.nih.gov/pubmed/29787288?dopt=Abstract


The full PDF can be viewed here: https://www.atsjournals.org/doi/pdf/10.1164/rccm.201803-0590OC

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Is My Pulmonologist doing a good job

That is great news that your lungs are clear and your O2 is good. Yes, what your pulmonologist said sounds right and you should definitely follow his advice. A different doctor might give you another inhaler but that won't solve your problem, it would …
Gina Bradshaw-Arkansas State Captain also answered the question Gina Bradshaw-Arkansas State Captain also answered the question

1 day ago

Ron80

Ron80

All things considered, 80 years old I'm doing great, we won't talk about the fact that I only have 50% lung capacity or that my right diaphragm is paralyzed ,  supposed to be on 24 hour oxygen because on a good day it is usually around 82, ( many times it drops to 65 ), just bought new hearing aids, had 5 back surgeries, dentures are a little loose.  I could go on but it is boring. It's all part of ageing and being stupid and smoking at an early age. 
As the Irish would say, "Do not resent growing old. Many are denied the Privilege.  My prayers are with all who are suffering. 

1 day ago

Angie67

Angie67asked the question: Is My Pulmonologist doing a good job

I went to see my pulmonologist today. I showed him the meds that the nurse practitioner in another doctor's office gave me Friday. He listened to my lungs, said they were OK. My oxygen level was 95. He again said I didn't need any meds except for a …

2 days ago

Swedie60

Swedie60

Not very good. I think I am having an exasperation 

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Listened to several sessions today at the American Thoracic Society Conference and spoke with several MDs. 


There were presentations on pulmonary rehab. Several telehealth programs showed promise, especially where patients live far from programs and programs were personalized. 


People have found tai chi and yoga to be useful, graceful and energizing forms of exercise that incidentally also helps build strength. 


The researchers recognize that there are many unanswered research questions for COPD. 


They still believe that for now:
1.  Get tested for Alpha1;
2.  Take right combo of Rx;
3.  Pulmo Rehab;
4.  Exercise; and
5.  Use O2 as prescribed  


is best treatment for COPD patients. 

2 days ago

Harrysmom

Harrysmom

Iโ€™m having a fabulous day!  
One of the most important things I have learned is when my suppliers of oxygen, drugs, yoga, acupuncture, Dr staff, life Coach, etc., are supportive, it works wonders.  I am extremely fortunate to have theses people in my life.  And, now that I connected with you, itโ€™s even better!
Hope everyone had something to be gtaeful for today 

2 days ago

Grover

Grover

Pretty good 

2 days ago

CharlesH

CharlesHanswered the question Does CPAP help with COPD?

I have to use my cpap with O2 added any time that I lay down or recline. I also have O2 the rest of the time as well. I take my meds before I go to sleep to help make sure I do not have any problems. My rescue inhaler is also within reach. It has take …

2 days ago

CharlesH

CharlesHanswered the question Emergency Tanks and POC

I know that it might not be much help but in most states you can be put on a list as a priority to have your electric turned back on. there are progams also to move you to someplace with power to keep your air on. that might be something to look into as …

2 days ago

AmTa

AmTaasked the question: My best friend died from COPD. Need help with a question

My best friend, recently died from COPD. There is a question which is not letting me sleep at night. Let me explain the situation. She was diagnosed with COPD few years back and she quit smoking. She was 60 years old. She had been doing well but for …

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.