COPD360social

For a decade, the COPD Foundation has provided a growing COPD community with resources and education. Now we want to take our work to the next level. We want to hear from YOU daily.

Welcome to our interactive, collaborative community: COPD360social. You can join us and other friends, learn about events in your area, participate in research, chat with the experts, and learn how to take action -- all on your time, at your pace. COPD360social is the COPD Foundation's way of saying 'Thank you' to a community that can make the world take notice of a silent epidemic.

Join COPD360social, because we are stronger when we work together.

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Bill66

Bill66answered the question pro air

This answered my question!
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

45 minutes ago

Bill66

Bill66answered the question Are charlie-horses/ muscle cramps associated with COPD?

I have quite a few customers who do not have COPD, yet they have muscle cramps, tonic water helps but in moderation is the key, Quinine can cause problems also, as far as mustard, I heard you have to take a lot because of being very low in Tumeric.
Ms DVclipper (Debbie) - NJ State Captain Kandy State Captain of South Dakota and 10 others also answered the question Ms DVand 12 others also answered the question

2 hours ago

ttyme

ttymeasked the question: Ways to remove excessive mucous?

My biggest issue is coughing up mucous without causing chest pain.

2 hours ago

Caroline

Caroline

If this report is accurate, I should not have to worry about my heart. In fact my heart tests out great on the cardiogram as well as the ultrasound that was run on it when I was in the hospital. It is not enlarged which often happens with COPD. http://www.msn.com/en-us/health/medical/these-2-exercises-can-cut-your-risk-of-heart-disease-in-half/ar-AAtNg0C?li=BBnb7Kz&OCID=AVRES000

3 hours ago

  • Bill66Caroline, this is a GREAT article, Thank You for sharing๐Ÿ˜€ 2 hours ago
Heather3362813

Heather3362813received the badge Getting started

Earned the Getting started badge!
Flo2017Carl Heineckmicwagnerand 27528 others also received the badge Flo2017and 27530 others also received the badge

4 hours ago

Chaffee_Tommarello, PEP Coordinator, 121-WV

Chaffee_Tommarello, PEP Coordinator, 121-WVcommented onA COPD Case Study: Susan M.

 Poor Susan! It seems that her anxiety is really causing her to isolate herself. No doubt the tragedies with multiple family member dying in MVAs impacts her willingness to travel, and her anxiety when loved ones travel. And she likely has depression...

5 hours ago

Kathy2539

Kathy2539

Hi I have just recently been diagnosed with COPD and affected my vocal cords so now I start speech therapy I do want to go on the list for a long transplant I have read with the American Lung Association what will eventually happen. My husband's got really doesn't want to talk about it and I do. Life is going to change that already has started to change. I wish I could have the old Kathy back. Thanks for being my friend message me anytime you would like.

7 hours ago

Ben A

Ben A

From the ONE STEP FORWARD, TWO STEPS BACK DEPARTMENT:

When I saw my new GP for the first time almost five weeks ago, he was a little concerned about my blood pressure and wanted me to keep track of it for a month. (It was borderline high, but not high enough to immediately put me on meds, and the readings at the beginning and end of the appointment were 20 points apart...) Anyway, I got myself a home wrist cuff BP reader that came highly recommended. On the first night I had the device, I wrapped it around my left wrist as directed, pushed the start button, and let it do its job. As it began to pressurize, I suddenly heard/felt a "crack" and I was in immediate pain. Given that I didn't know if that "crack" came from inside my wrist or from the velcro closure of the cuff, I didn't think much about it, but the pain didn't go away. Two weeks later, I was STILL hurting and went in to see the doctor again, specifically about the wrist. He thought it was a damaged tendon and prescribed Aleve and ice, telling me that it would be better within a week.

That was three weeks ago. I still can't use the hand. Two fingers periodically go numb. Any turning of the wrist generates instant sharp pain and leaves me with a dull, rather nauseating ache. I wake up repeatedly every night with the wrist and hand throbbing. Consequently, I'm making yet another unexpected appointment to see the doctor again this coming week.

And after all of this and daily BP readings, we STILL can't figure out if I need BP meds or not.

This aging stuff is getting tiresome......

9 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question How long does it take to advance from one stage to another?

I am with others on this and was advised by my pulmonologist that there is now way to know. You can't think that way, it can be hard to let go of but you have to put your physical and emotional energy into working towards maintaining and improving …
Ken BensonJean IA State CaptainBettyBoop_COPD2and 1 other also answered the question Ken Bensonand 3 others also answered the question

9 hours ago

Mariann

Mariannanswered the question Foreign Pharmacies

Thank you for your reply. I checked them and they appear to be quite a bit more expensive than Pricepro Pharmacy. You can get the medication through them from Turkey.
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

14 hours ago

KateNRoy

KateNRoyanswered the question Preventing Panic

Thank you for the link. I practice pursed lip breathing almost automatically now.

20 hours ago

BettyBoop_COPD2

BettyBoop_COPD2answered the question Pulmonary testing while sick.

The diagnosis may not just be because of the Spirometry test, it is the other info as well, you mentioned your 4th round of steroids which means you have had the bronchitis for how long? Is your bronchitis chronic? Take care Ginsch! God bless.
Jean IA State CaptainMomrphHIcopd - Hawaii State Captainand 2 others also answered the question Jean IA State Captainand 4 others also answered the question

1 day ago

olbetsy

olbetsy

Thank you for the friend request.

1 day ago

Mariann

Mariannasked the question: Foreign Pharmacies

The cos of the medications for COPD are cost prohibitive. Companies cannot help you if you are on Medicare. Has anyone used Pricepro Pharmacy in Canada? I'm wondering how good they are.

1 day ago

DonnaA (SSP)

DonnaA (SSP)answered the question I have severe copd and only have shortness of breath while sleeping any suggestions?

Hi Dorothy, I just wondered if you have just lifted the head of your bed? I got a wedge and put it under my mattress. But, please talk to you Dr as well for sure. I know they will help you for sure...
CharlesHclipper (Debbie) - NJ State Captain also answered the question CharlesHand 1 other also answered the question

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™m bacckkkkkk!  Had a great time in Indianapolis with Orlan, his partner, Jaimie, Keith, Grace Ann and many others at the American Association of Respiratory Care Congress. 


On the way home, stopped in SF to visit with loved ones, Yosemite and see my MD at UCSF. The fires are causing lots of delays and cancellations at SFO, so barely made my flight back home due to humongous check-in line that moved very slowly even tho I arriv d 2.5 hours prior to flight!


I called and spoke with Disabilities Desk and customer service and they agreed the only thing I possibly could have done was arrive an EXTRA 30 minutes earlier so 3 hours prior to flight). Very poor experience with check in to get the boarding pass!

1 day ago

dustybill

dustybill

Was diagnosed with pneumonia in one lung and costochondritis.  Hospital sent me home same day with levaquin.... 4 days later no change. Seeing my pulmonologist in 2 days.

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question What about stem cell therapy for copd does it work?

Hi Dorothy3 - welcome to 360Social. There have been many discussions here about stem cell therapy for COPD (it doesn't work yet) and here are links to the position papers of the COPD Foundation and of The American Thoracic Society (ATS) - you can find …

1 day ago

Dorothy3

Dorothy3asked the question: How long does it take to advance from one stage to another?

stage

1 day ago

Dorothy3

Dorothy3asked the question: What about stem cell therapy for copd does it work?

Does anyon

1 day ago

Ken Benson

Ken Benson

1 day ago

Lillie96

Lillie96

Hello bill66..thanks for requesting that we be friends. COPD is very close to my heart, my mom passed away 10/2 from Chronic COPD, she was 96yrs old.

1 day ago

Bhavani Subramaniam

Bhavani Subramaniam

Good day all ! Just joined here.. Felt i can join this group to create a little awareness among most of the people on COPD & also to show a small tribute to my lost mother (R.I.P) due to COPD. I'm from India and still i feel COPD is a new term in medical treatment in our country since there is less awareness on that. I could just say it was a even a research for me to find what is the new term COPD when our doctor discovered that in my mom. Its not as similar like Cancer or Tuberculosis or similar known/ popular disease in our Country.  We still don't know when the disease started in her unless she went to a severe breathing trouble & her pulse rate went down last 5 years back. It still remains a miracle how could just the regular cooking smokes could trouble her to take her life & we name it due to COPD. Is that people suffering to lung disease must carry their Oxygen cylinders with them all time so their lifespan gets extended ? This still remains a wonder & i could just kindly request everyone to limit emission of these smokes to little extent so we don't take away ours & others valuable life. Let us be not the cause for others death.
Save Lives ! Thanks all !

1 day ago

BettyBoop_COPD2

BettyBoop_COPD2asked the question: Are charlie-horses/ muscle cramps associated with COPD?

Does anyone know whether 'Charliehorses' some refer to them a spasms, are in anyway related to having COPD? I began having them last year at night, first it was one leg or the other now; now I have them in my legs, arms, rib cage. Still mostly at night …

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Portable Oxygen Needs Questionnaire

Hi bevjoew, Each of us is different, and what works well for me may not work well for you. The Pulmonary Paper has an annual comparison chart of the current portable oxygen concentrators, and I've linked to it below. http://www.pulmonarypaper.org/may …

2 days ago

bevjoew

bevjoewanswered the question Portable Oxygen Needs Questionnaire

may I please have a copy of the answers - I need to know what units to get (POC + homeconcentrator) as just diagnosed for oxyge

2 days ago

Jimmy S

Jimmy Svoted on November marks National COPD Awareness Month!

Gave a thumbs up for a blog post!

2 days ago

DiannaG

DiannaGvoted on A COPD Case Study: Susan M.

Gave a thumbs up for a PRAXIS blog post!

2 days ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.