COPD360social welcomes new member IanC who joins 58,578 current members of our community. Weโ€™re glad you're here!


The COPD Foundation

The COPD FoundationWe are pleased to share that the COPD Foundation is considering a collaboration with a company that is focused on financial planning and retirement. We welcome your thoughts on the importance of this topic. If you would like to share your ideas, please complete this short anonymous questionnaire. As always, thank you for your thoughts and suggestions! Please click the link preview below that says "Feedback from the Community on COPDF Collaborations" https://www.surveymonkey.com/r/6FQTRZH

For more information or questions, please reach out to Elisha Malanga, Chief Corporate Relations Officer at emalanga@copdfoundation.org

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Motivational Monday once again! A great day to wake up and say "Today will be a wonderful day!"
A day to smile, knowing that you can make it through all that life throws your way! A day to carry that glow for others to see, so they they may pass it on! 
Yes, you can enjoy every minute of this day! ๐Ÿ˜Š

2 hours ago

Mellie

Mellieanswered the question Can anyone recommend a "safe" dry shampoo?

Thanks so much, Bill Clark! I will start looking into it!
Bill Clark - Community Manager also answered the question Bill Clark - Community Manager also answered the question

5 hours ago

ED87

ED87

Hi Toni 
Also Me yesterday I have chest pain and went to emergency I was suffering too much they are doing more test now

7 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question Use of Metoprolol

" Metoprolol is a beta-blocker that affects the heart and circulation (blood flow through arteries and veins). Metoprolol is used to treat angina (chest pain) and hypertension ( high blood pressure ). Metoprolol is also used to lower your risk of death …

8 hours ago

skizzatt

skizzattasked the question: Use of Metoprolol

I read taking this drug can make it harder to breathe. What is your opinion about Metoprolol 25 mg.

8 hours ago

Botany

Botanyanswered the question New Inhaler Medication

I was on Stiloto Respimat for many months. The trick to not coughing when you inhale the mist seemed to be to use diaphragm breathing and to inhale slowly, If I inhaled too fast or not deeply enough, I also coughed. After inhaling, the doctor had advised …
Jean IA State Captaindas23 also answered the question Jean IA State Captainand 1 other also answered the question

13 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Good morning 360 hope you find Sunday relaxing and enjoyable.  Take time out to do what you love!!! Easy breathing and stay safe out there.  

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday! Leave all your worries at the door, and come on in! It's time to welcome a brand new day! ๐ŸŒž

1 day ago

TonicDk

TonicDkanswered the question Is there lung/chest pain associated with emphysema

I have pain from time to time in the chest area , but if it is related to my emphysema , dont know , we have no pain receptors in the lungs, but your muscles may hurt bevause of the ekstra strain on breathing.
Kandy State Captain of South Dakota Caroline West Virginia State Captain also answered the question Kandy State Captain of South Dakota and 1 other also answered the question

1 day ago

PamK

PamKasked the question: New Inhaler Medication

Well my Doctor and I decided on switching to Stiolto Respinat. She gave me two samples. I finished one of them already. I just canโ€™t seem to get the hang of taking this. When I try to inhale the mist it makes me cough and I donโ€™t know if I am inhaling …

1 day ago

Pbob

Pbob

Hello all, it's been a minute since I visited. This may not be the positivity that everyone wants to hear, but I'm tired of this. I literally enjoy nothing anymore with these terrible symptoms of a disease that could have been prevented. I'm 44 now and symptoms started at 40. I feel awful 24/7 despite anything I do regarding medications, diet, exercise, anything. I'm just sick of it. What a terrible disease and quality of life. I wish I knew more about the effects of smoking, the diseases associated, the age that they can onset, etc. I knew nothing about this except for emphysema which was "an old persons disease". I quit at 39 with absolutely no symptoms and clear ct scans. In Arch of 2020, 4 months after turning 40, I started clearing my throat, chest tightness, headaches, labored breathing on exertion, excess phlegm, throat irritation, malaise, etc. It has progressed to the point of non stop physical misery and has taken the joy from everything. I hate it.
 I apologize for the rant, but no one wants to hear this and it's easier to spill it on the screen. 

1 day ago

  • NewestOldestClick to View All Comments8 comment(s)
  • haciendas45What's the problem buddy? You should keep your morale up. You don't smoke , right?16 hours ago
  • MaryorbThis disease is tuff, rant all you like. I let myself feel all my feelings and cry when I need too. Most days I get up, get dressed amd show up for life. Other days I stay away from everyone and just pamper myself. Hope you feel better soon! Sending hugs!โค6 hours ago
  • PbobI have been to every doctor imaginable. I spent a lot of time at the Washington University Center for Advanced Medicine as well. As most of you know, there isn't much that can be done with these symptoms and this disease. I have been to counseling and still see a therapist weekly. I even spent 6 weeks at an in-patient treatment center. 
     This disease has cost me everything. My marriage, my career as a lineman, my finances and the future that I planned, all at 40 years old. My kids are 7 and 3 and I see them every other weekend. My wife, who probably still smokes just didn't understand why I felt so terrible 24/7. We all knew that smoking was bad for us. I had no clue it could happen this you g and be this terrible. I' feel miserable and there's nothing I can do about it. I've been on inhalers, nebulizers, take shots in my stomach twice a month, dieted, exercise, etc. Nothing seems to relieve these symptoms on bit. My nose is always full of snot-as well as my throat and mouth, my chest hurts to some degree 24/7, I have a mild headache 24/7, I feel like I'm hungover with the flu. I had sinus surgery in 2020 that helped a little bit. It's just awful and I'm just tired of it. Thank you for all the replies.5 hours ago
RozQ

RozQ

Hello, my name is RozQ. I was diagnosed late 2023 with moderate to severe diffuse emphysema. I am having a serious issue with using Trelegy after using it for 3 months. It very difficult and almost impossible to clear mucus from my throat which requires coughing to the point of making my throat scratchy and sore. I'm also horse to point of almost being unable to talk and talking is hurtful. Question: Would anyone have suggestions for an alternative that may be less harsh with these side effects? Thanks!

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a wonderful, easy breathing day! Happy Saturday! ๐Ÿ˜€

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Extremely breathless and green and white plegm

I am so sorry that you are having issues with your bones (spine). It sounds to me like you have osteoporosis. Anyone on steroids should be checked for bone density, but it seems that unless you are 5 ft tall and female you do not get checked.
Shazam Richard DJDebbieB.-Connecticut State Captainand 5 others also answered the question Shazam and 7 others also answered the question

2 days ago

Jean IA State Captain

Jean IA State Captainanswered the question Pulmonologist question UK BASED

In the UK you want a Respiratory consultant who is a doc and not a nurse. In the US, you want a Pulmonologist. I also know some PhD level nurse practioners I'd see any day instead of a pulmonologist. For one thing they can spend more time with you and …
1fatfanny also answered the question 1fatfanny also answered the question

2 days ago

Pickledonion

Pickledonion asked the question: Pulmonologist question UK BASED

Hi all Is a Pulmonologist the same as a "Respiratory consultant?" Just looking at local private hospitals in UK and I'm confused

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFluffy Friday Flashback โšก
Many years ago, but it seems like yesterday. My dearly departed Nina Lily with her best friend Comet Marion. 

2 days ago

Xmdc54X

Xmdc54X

Just diagnosed with covid Monday morning and spent two nights in Hospital observation Quarantine. Came home Wednesday and am doing well. Had 2 super good nights of sleeping. I was diagnosed as stage 4 copd in 2011 and entered rehab asap. Bought a treadmill and started walking a mile a day every day for many years. Have had to taper it down some but It Is Why I Am Alive Today!! Exercise!!!!!! I take Symbicort, Spiriva and azithromycin 3 days a week as a prophylactic.


I use a trilogy Passive ventilator to sleep with at night. I am on 2.5 lpm o2 continuous 24/7

2 days ago

JeanO53

JeanO53It's a Happy Feathery Friday here... 
A few weeks ago, this Cooper's Hawk stopped by to visit the birdfeeder area for awhile.  Of course it's presence scared away all of the other birds for a short while, but still... What a treat!  
 

2 days ago

David Mannino, MD     (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )Happy Fluffy Friday.  Lizzie has decided she wants to become a biker!

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

MINI VEGETABLE QUICHE CUPSOne 10-ounce package frozen spinach, thawed and well drained7 eggs, or 1 3/4 cups egg substitute 3/4 cup shredded Cheddar cheese 1/4 cup finely diced red bell pepper1/4 cup finely diced mushrooms1/4 cup finely diced...

2 days ago

1fatfanny

1fatfannyanswered the question Mild Emphasema and Bronkieastatis - new diagnosis

Hi Mr Pickled Onion... I knew you were a UK wallah when I saw your name was 'pickledonion'... I had a friend from Kidderminster called 'Pickled Onion'... We used to call his son 'Shallot' (baby onion)... Dr David (above) has told you all you need to …
David Mannino, MD     (Chief Medical Officer, COPD Foundation )Pickledonion Christina H RRTand 1 other also answered the question David Mannino, MD     (Chief Medical Officer, COPD Foundation )and 3 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday!
Today we have a new friend. He showed up at my sister's house this week. He's on the timid side. Say hello to Mort! ๐Ÿ˜„

3 days ago

Jean IA State Captain

Jean IA State Captainanswered the question New copd

I suggest you read as much as you can under the 'what is COPD" and "learn more" tabs at the top. It sounds like you need good information and you'll find a lot there. You can also learn by reviewing the various threads and following the conversations. …
das23AspenPickledonion and 2 others also answered the question das23and 4 others also answered the question

3 days ago

Aspen

Aspenanswered the question New COPD Med

Thanks for sharing this new drug sounds promising! Please keep us posted.
Who Me ?brydyJean IA State Captainand 2 others also answered the question Who Me ?and 4 others also answered the question

3 days ago

Jimmyk

Jimmyk

Has anyone in the group had a bout of bronchitis that lasted more than 4 months but then got better?
The definition of chronic bronchitis, 2-3 (or geater) month episodes over two years.  That suggests to me that those with chronic bronchitis experience a remission of sorts between the two episodes.

3 days ago

Pickledonion

Pickledonion asked the question: Mild Emphasema and Bronkieastatis - new diagnosis

Hello I had been given a CT scan last month as I have been having a tight chest and pain at top right back for a few months - I was due to go into get the results at a Respiratory consult next month. However I ended up in a&e for an unrelated …

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.