LandB55

LandB55answered the question After Prednisone 40mg

Caroline im breathing normal, feels like I my have some stuff in my chest. I did call the Doctor didn't seem to concerned , but did say call back on Wednesday if anything changes. Just didn't know if im freaking out thinking im getting sick again. I been …

32 minutes ago

Caroline

Carolineanswered the question After Prednisone 40mg

I do notice that it is not as easy to breathe after coming off prednisone. The main thing is to asses if you are breathing normally.

1 hour ago

LandB55

LandB55asked the question: After Prednisone 40mg

I have been on Prednisone 40 mg a day for about 3 weeks . Today was the first day off and my Left Lung is hurting a little. My 02 stats have been 97 98 all day , but it seems like its not as easy to breath . Is it that Prednisone makes its real easy to …

1 hour ago

das23

das23answered the question 33 years old waiting on diagnosis.

Good for you Jusser--we like good news

3 hours ago

Jusser

Jusseranswered the question 33 years old waiting on diagnosis.

*Update* Had my pulmo appt last week and full PFT. Got a call today saying my results looked good and it's not classic COPD. My numbers haven't changed in 3 years since 2016, they have actually improved, the rest of my numbers were all normal. Looked at …

5 hours ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain Rescued this little guy on my walk, he was venturing into traffic!

6 hours ago

scared1

scared1

I've been having problems with breathing I did a treatment doing better going to the doctor today getting on meds I'm starting pulmonary therapy and I want to quit smoking but I'm really scared because I had her friends I had had this and she quit smoking and wound up in the hospital I have stage 3 COPD think I'm hitting stage 4 I am going to be 50 and I said I won't look past 60 and I would like to know if this progresses each stage fast can somebody please give me some update on this disease and its progression and everything thank you

7 hours ago

  • NewestOldestClick to View All Comments8 comment(s)
  • puff the magic dragonWatch goldia browns referal from copd journeys,go to site click on not another stop smoking video.Great take on the subject tthat may help you quit.4 hours ago
  • das23scared1......If you continue to smoke your COPD will progress---If you quit you have a chance at slowing the progression considerably. There is no choice-you have to quit. Ask your Dr for help. There are many ways to stop.  Good Luck3 hours ago
  • CarolineI will chime in and say that yes you must quit and no it won't be easy.  I would never have thought that I could quit, but a collapsed lung helped me to know that I must.  I have stabilized and am doing quite well.  You need to exercise, eat well, get enough rest, and keep a positive mental attitude and you can live a long rewarding life.58 minutes ago
JeanO53

JeanO53answered the question How can I stop bruising and bleeding so often?

I started using coconut oil on my arms, plus reduced the low dose aspirin to to every other day. This has reduced the number of bruises significantly. Hope I didn't just jinx myself. :-)

7 hours ago

Goldia

Goldia "Gigi" Brown - State Captain GeorgiaPlease visit www.copdjourneys.com for great encouragement and inspiration.  I met the author of the site after I returned from advocating in Washington on behalf of COPD Foundation.  The author, Veronica Lee is has become a great friend and inspiration.  I believe you will find her journey inspiring.  

8 hours ago

das23

das23answered the question How can I stop bruising and bleeding so often?

I stopped taking low dose aspirin with my Drs OK and the bruising was reduced considerably. I got so if just bumped myself anywhere I would bruise and sometimes bleed-I don't have heart disease or issues so I got off it

8 hours ago

joney

joney

I am feeling well went outside early ran the water sprinkler enjoyed the breeze a bit that's about it for outdoors today to hot๐Ÿ˜

9 hours ago

Kaya

Kayaanswered the question 02Stats when exercising

Sorry I don't have an answer. I Was trying to tell Lynn I'd be her Friend but when I tried to view Her message I got here. Kaya

9 hours ago

Ben A

Ben Aanswered the question How can I stop bruising and bleeding so often?

I noticed that after I got put on low-dose aspirin as a blood thinner that I was bruising much more easily. Put that together with our COPD meds and normal aging and we're bound to bruise more easily.

10 hours ago

Jean IA State Captain

Jean IA State Captainanswered the question COPD Fatigue

Sleep apnea, not enough O2 while sleeping, depression and lack of exercise; plus probably a dozen other things none of us have thought of. I would talk with your doc about your being so tired and ask for a sleep study, or at least overnight oximetry. to …

11 hours ago

LandB55

LandB55answered the question Dizzy after eating

Katherine58 is your Weather bad there where you are? Heat and Humidity can play a big role on your Breathing. Also with Prednisone it can make you dizzy ,it does me , but also my 02 Stats get crazy sometimes.

11 hours ago

Maureen61

Maureen61

First appointment with counsellor 25th july 

12 hours ago

Jimmy S

Jimmy SGood Morning and Happy Monday to everyone. Hope your weekend was a good one. Believe in yourself. You are braver than you think, more talented than you know, and capable of more than you imagine. Opportunities donโ€™t happen. You create them. So learn more and feel better and begin to breathe better. Donโ€™t let your fear decide your future. ๐Ÿ˜Ž
1. Don't forget to take your morning medication(s)
2. Stay hydrated. The heat is here in most states. Stay Cool.
3. Pace yourself - No one else can do it for you.
4. STOP AND REST WHEN YOU NEED TO.
5. Exercise is important for all of us.
6. Never underestimate the power you have to take your life in a new direction..
7. Have a very nice day and enjoy the early morning air.
Iโ€™m not telling you it is going to be easy, Iโ€™m telling you itโ€™s going to be worth it.

12 hours ago

LandB55

LandB55answered the question Bad Lung

My Left Lung has also collapsed once , didn't even think about that. Thanks Y'all your so helpful.

13 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Has anyone on this forum had the Zephyr valves installed?

Use the search feature searching for Zephyr and you will find other threads on this topic.

14 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question How can I stop bruising and bleeding so often?

It started with me after I started Symbicort (corticosteroid). As Caroline said, steroids and age. A few months ago I started using coconut oil on my skin and itโ€™s a little better. I still get them but not as bad.

14 hours ago

Caroline

Carolineanswered the question Bad Lung

I echo what clipper said. The lungs and heart do not have pain receptors, so it is the tissue around your lung that is hurting. I do have one lung that causes me more problems than the other. My left lung has collapsed 3 times, while my right lungs must …

14 hours ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question Bad Lung

Lungs donโ€™t have many pain receptors so the lungs donโ€™t feel pain. Emphysema itself doesnโ€™t cause pain in that sense. The tissue around the lungs and all the muscles around the lungs have nerve endings. If you were very short of breath or coughing very …

14 hours ago

LandB55

LandB55asked the question: Bad Lung

Does anyone else have one Lung that causes them more Pain and trouble than the other. Mine is my Left Lung , Is it because I have emphysema?

14 hours ago

BobbyC-N3FR

BobbyC-N3FRasked the question: Has anyone on this forum had the Zephyr valves installed?

Has anyone on this forum had the Zephyr valves installed? If so, have they helped?

23 hours ago

Josephbel

Josephbel

How are you doing my friend? It has been a while since I have been on this site.
I hope all is well with you.

1 day ago

puff the magic dragon

puff the magic dragonanswered the question COPD Fatigue

Katherine l am no doctor,can only tell you that predisone although a miracle drug comes with a few nasty effects.As well as copd l also have ra and am on 10 mgs daily up to 50 when a flair hits,good sleep has eluded me for awhile.Do a google search of …

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain

I was halfway done my walk and all of a sudden I had an issue catching my breath? I hit my weather am the humidty was low and dew point was 64, I started profusely sweating and panicked a little, then walked quickly home, very weird, seemed like some type of episode I haven't ever experienced however everything worked out after a shower and rest. I stayed grounded and kept calm!

1 day ago

Bill66 - Bill Wornstaff NJ State Captain

Bill66 - Bill Wornstaff NJ State Captain answered the question COPD Fatigue

I am also very fatigued on waking, sometimes I sleep 12 hours straight and solid. I may be doing a sleep study to see why? Im also a Retail Manager I do 10,000 steps at the store on average and another 10,000 healthy steps on a daily basis. Anxiety can …

1 day ago

Guero..

Guero..answered the question Catheter maybe coplication maybe not asking

It does cause having an enlaged right side of my heart cause i not only have copd i ve pulmonary hypertension which if my heart gives my lungs go also its also the evil twin of copd cause both bad more problems

1 day ago

Katherine58

Katherine58answered the question COPD Fatigue

Iโ€™m really exhausted when I awake . It almost feels like Iโ€™m not here, canโ€™t even recognize myself in the mirror. Exercise, I work as a manager of a retail store , walking back and forth all day , isnโ€™t that enough, and it seems that by the late …

1 day ago

puff the magic dragon

puff the magic dragonanswered the question COPD Fatigue

Hi katherine was wondering if you maybe had a touch of sleep apnia happening.Also if you are on predisone that can definately impare quality sleep as well.Hope you can find a solution to this and exercise is really the answer to many issues that we …

1 day ago

Caroline

Carolineanswered the question COPD Fatigue

I agree with clipper. Exercise will help you have more energy. Also make sure that you have your thyroid checked and your levels of iron, vitamin B and vitamin D.

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain answered the question COPD Fatigue

Exercise. You will still be tired when you first get up but once you get moving you will feel energized, at least I do.

1 day ago

scared1

scared1

Hi I am new here so I don't know much how it works so if you would all just bear with me for a little while but I've had emphysema since 2007 well that's when I got diagnosed with it and I was already in his stage 2 I am just now going into stage 4 I am very scared don't really know what to expect I'm having worst symptoms and really don't know what to do about them or what to even look for or when to go to the hospital or not so if somebody could give me some help and advice I'd really appreciate it very much thank you I hope you are all doing good with how you're going through yours is a very tough situation I've had it like I said since 2007 and I will be 50 this month I have got a lot of reasons to be worried and thanks to be leaving behind and I don't want to leave any of it behind I just want to get on with my treatments and stuff as I should and I also have not been doing and I also have other questions but I'm just scared to ask

1 day ago

Katherine58

Katherine58asked the question: COPD Fatigue

how to you beat the morning fatigue with copd Iโ€™m extremely tired upon awakening- how to beat i

1 day ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question Catheter maybe coplication maybe not asking

I doubt it is a COPD complication, but sorry you're going throgh all of this.

1 day ago

Maureen61

Maureen61

This is so hard someone wrote fear false evidence appearing real 
Love this 

1 day ago

Ginzy3

Ginzy3

Hi..Here is my story. Might be repeat as I had to start a new acct. Old one locked? Grew up with bronchitis. Was a heavy smoker. Quit 17 yeas ago! Fast forward. About 5 years ago, again in hosp. with pneumonia. My doctor who has been my Dr. for  10 yrs back then (now 15+) comes in, says I have COPD AND LEAVES!! From what little I knew, COPD meant I had lung damage. All those yrs smoking I wasn't surprised. When I quit, Dr. said, you will start healing and will breathe better, etc. etc. So, knowing I could no longer run track like in HS, or play basketball HAHA, I dealt with it.  I noticed over yrs, I was able to do less? Hmmm....but I quit? But my lungs should be healing. MY DR. SAID SO!!SHE DIDN'T TELL ME I SHOULD HAVE BEEN IN RESP. THERAPY WHEN I GOT OUT OF HOSP..OR THAT COPD WAS FATAL!! WHEN I WOULD GET SICK OVER THESE PAST 5+ YRS. SHE'D PUT ME ON ANTIBIOTICS AND SAY..THAT'S THAT COPD...AND WOULD  WALK OUT THE DOOR TO THE NEXT PATIENT!! WAS ONLY 3 MOS. AGO, SICK AGAIN, MY BREATHING WAS DISTRUPTED AND WENT TWICE FOR BREATHING TREATMENTS, SHE FINALLY SENT ME FOR TESTS...TO FIND OUT MY FEV1 WAS 44%...SHE DIDN'T TELL ME THAT. I DEMANDED COPIES OF MY RESULTS..WHAT SHE SAID SO MATTER OF FACT WAS MY LUNGS WERE WORKING AT ABOUT HALF CAPACITY .44% IS NOT 1/2. IT'S LESS. THEN ASKED IF I WAS USING THE NEBULIZER? SHE NEVER PUT ME ON ONE.THAT'S WHEN I WENT TO A PULMONOLOGIST, AND RESEARCHED AND FOUND I SHOULD HAVE BEEN SENT TO  PULM. REHAB 5 YRS AGO, AND SENT TO RESP. THER. I am angry and distraught. Putting off what I needed for 5 yrs, has definitely taken years off my life. How many? Don't know.I don't know if I can go back to her.Sorry about caps..

1 day ago

  • NewestOldestClick to View All Comments5 comment(s)
  • LandB55Ginzy Having the same problem today with my 02 . We are having some crappie weather here from the Hurricane that hit Louisiana yesterday,  we are receiving all the rain and humidity from it. Maybe that's what's got you all messed up to.  But as soon as I stop its back at 97 to 981 day ago
  • CarolineYou have a right to be angry.  Take that anger and find the right exercise regimen, eat well, get enough rest and keep a positive attitude and you will be around for a very long time.1 day ago
  • LandB55Ginzy3 So everything I went though but its only been 2 years 3months for me1 day ago
stoneman

stonemananswered the question 8-cell battery for my inogen

Thanks to all who answered my question. I was lucky and actually got what I wanted by accident. And yes, knowledge is power. As they say, forewarned is forearmed. But then, forearmed is half octopus, and who wants to be that? (chuckle). Anyway, I do …

1 day ago

Suzanne Krisak

Suzanne Krisakcommented onMy Journey with COPD & Exercise

 Deb - It's been a while since I've made any comments, but I am happy to report some improvements in my breathing and my pain levels. On January 6th I started a new way of eating....no carbs and no sugars. The hardest part was the sugars. I love my...

1 day ago

Kaya

Kaya

๐Ÿ˜„

1 day ago

Guero..

Guero..asked the question: Catheter maybe coplication maybe not asking

Had catheter done on rhe 8th this month. Woke up yesterday my left testicle was huge my pain runs down my leg and up to my stomach ver swollen. Got nedication for it thank god. The fight side of my heart is enlarged pumonary hypertention 44/20 my aorta …

1 day ago

Jimmy S

Jimmy SGood Morning Everyone. Well another HOT one is here today. Easy
trigger to figure out and what to do. Staying inside in a nice cool air
condition house. Staying hydrated and making sure i get plenty of rest
during this heat wave.๐Ÿ˜Ž Hope everyone is having a nice Sunday so far.๐Ÿ˜Ž

1 day ago

puff the magic dragon

puff the magic dragon

HOPE EVERYONE IS ENJOYING THEIR SUNDAY.
Had what l think is a very troubling email this morning from a fellow in my local better breathers group and would like some opions.
He is 74 stage 4 fev1 of 18 o2 24/7 for past three years very sedentary and over weight.We used to go gyming all the time but since o2 nothing.
He tells me this morning that he has signed up for stem cell treatments and will be having the first procedure this week,the first is almost9000 the second 3500.l have tried my best to convince him it is all a scam but he insists this will make him better.They do not have the finacial means to afford it and l am sure he has second morgaged his house omg.
Has anyone heard of any success with this procedure,l hope above all that it works for him but very sceptical about it from what l have read.l am heading over to see for myself the paperwork this clinis has given him.l hate to see animal abuse and even more hate the people that practice elder abuse.Any ideas of how to convince him otherwise would be appreciated. 

1 day ago

Jackieboy

Jackieboy

I have a new pulmonologist and he's got me on a nebulizer with brovana and budeesonide spaced 15 minutes apart pryor to this I was on Advar discus twice a day anyone else have experience with This?

1 day ago

  • NewestOldest
  • Ginzy3Jackieboy I was on Albuterol inhaler and Advair Diskus. Then finally, I went to a pulmonologist, and she changed my Advair Diskus to an Advair inhaler. I didn't even know they had them. She said, the Diskus doesn't seem to work as well, as too much of the powder ends up distributed in your mouth and throat, whereas the inhaler does a better job getting into your bronchial tubes and lungs. For me, I have found that to be true. I do better now with the inhaler. But, everyone is different. But don't forget to rinse afterwards as I did forget, and ended up with thrush. My ENT was wonderful though, he doesn't believe in visits after visits, etc. etc. He filled my RX, for thrush, and gave me 5 refills...Same with my pulmonologist. Love them both!  :>)1 day ago
  • Ginzy3Jackieboy...I forgot one thing...My pulmonologist also put me on a nebulizer plus the albuterol rescue inhaler...AND SIGNED ME UP FOR MANY MONTHS OF RESPIRATORY THERAPY!1 day ago
Kaya

Kaya

๐Ÿ˜€ Resting from walking outside.
The comments are helpful.  My
Congestion is better since used
My inhaler.  Hope we all get
Better answers from our Drs.

1 day ago

clipper (Debbie) - NJ State Captain

clipper (Debbie) - NJ State Captain

Just Sunday ramble about numbers, and by numbers I specifically mean FEV1% predicted (aka lung function). The number that is used to determine stage (among other things).  

I think knowing your FEV1% is important, it provides some insight to help a person understand and self-manage their disease. But it is important that we donโ€™t let it become a self-fulfilling prophecy. We hear stage and we get this idea in our head of how we supposed to be feeling and lose sight of how we could be feeling. I am considered GOLD stage 4, very severe. This morning I was at the gym, unfortunately I was very late so I only did about half of my leg day. I started off with 35 mins on the stationary bike, from there 70lb hack squats and 70lb hack calf raises. Then 15lb standing hamstring curls, 10lb standing hip adductors. I stretched real quick, saw I had 15 mins be the gym closed so quickly to the back of the gym for a 125ft 50lb famers carry. Got home, didnโ€™t even go inside, instead spent about 30 mins weeding in front of the azaleas. Now I am cooling off. Donโ€™t let numbers or stages dictate how you live your life. 

1 day ago

LandB55

LandB55

Feeling good today.  Just a little confused about  things . My heart rate is low and my 02 is kinda all over the place.  On my last day of 40mg of Prednisone today. My left lung us hurting a little.  Dont feel out of breath.  Going to get up and exercise  , is that the right thing to do? With my Lung hurting a little?

1 day ago

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Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.