COPD360social welcomes new member SofiaTM who joins 63,588 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ To the Caregivers ๐Ÿ’™

We see you. The late nights, the constant worry, the small acts of kindness that often go unnoticed--you are such an important part of your loved oneโ€™s journey with COPD or bronchiectasis.

Caregiving is not easy, and itโ€™s okay to admit that it can be overwhelming at times. But please remember, you donโ€™t have to carry this all on your own. The COPD Foundation has resources created to help make your role a little lighter:

โœจ Guides and action plans to help you feel more prepared when symptoms change.
โœจ Educational tools to give you confidence in daily care.
โœจ A community where you can connect with others who truly understand.

Most of all, know this: your care makes a difference. The love and support you provide are powerful, even on the hardest days. And just as you care for your loved one, itโ€™s important to care for yourself, too. ๐Ÿ’™

You are not alone--weโ€™re here to walk beside you.

1 hour ago

Misty Green COPDF Research

Misty Green COPDF ResearchYour
Unique Experience Matters! Join COPD Research Studies


Did you know that you can find research studies to participate in through the COPD Foundation? The COPD Foundation actively partners with organizations that are working to make a difference in the future of COPD care. Visit the page to discover studies you may qualify for today!




Learn
about actively recruiting studies: https://www.copdfoundation.org/Research/Participate-in-Clinical-Research/Join-Actively-Recruiting-Research-Studies.aspx

4 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

The Food and Drug Administration (FDA) has approved Brinsupriโ„ข (brensocatib) for the treatment of non-cystic fibrosis bronchiectasis (NCFB) in adult and pediatric patients aged 12 years and older.  Is this new, or am I behind the times?

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHey, friends! Today is a good day to pay a visit to the Eating Well blog! 
And while you're there, why not drop ol' DebbieB. a line? We would love to hear about your favorite recipes and kitchen tips! ๐Ÿ˜€

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸซBLUEBERRY PEAR SMOOTHIE๐Ÿ1/2 cup cold water1 1/2 cups plain Greek yogurt 2 tbsp. honey1 ripe pear, quartered and seeded2 cups frozen blueberries Place all ingredients, in order listed, in a blender. Blend until smooth. Makes 4 cups โ™พ๏ธ...

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, everyone! I hope you'll take the time to do something special that you'll enjoy! Thank you for being an important part of 360Social! ๐Ÿ˜€

12 hours ago

Beth B

Beth Banswered the question Can you just stop Spiriva?

Thank you so much, I really appreciate your responses. I am doing everything I can on my own to be healthy. I stopped taking the medicationโ€˜s for smoking cessations about three months after quitting and Iโ€™ve been fine. I do not like to take medication if …
Karen Deitemeyer - Florida State CaptainKen Benson-California Lung Health Advocate and State Captain also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

16 hours ago

Beth B

Beth Basked the question: Can you just stop Spiriva?

Hello, Last October, i went to see a doctor for help/advise with smoking cessation. The doctor had a spirometry test done in the office. He said my airways where very tight. He prescribed nicotine patches and wellbutrin for the smoking cessation. When …

20 hours ago

GAnne

GAnneasked the question: Long, hose

Any ideas what to do with the long 50 ft hose I drag behind me when I walk in house G-Ann

1 day ago

Deb Holmes

Deb Holmes

I have a lot of breathing problems.  Eczema I had lung cancer with the upper right removed. Also broken nose car eyes several times. I have a very large nose with a lump on the bridge and a lot of nasal drip can rhinoplasty help?



1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain๐ŸŽถ๐ŸŽถ This old arm of mine 
Been jabbed a thousand times 
That needle goes away
But protection is here to stay
Flu germs are spreadin' around
All over town
Bringing aches and pains
Fatigue that won't go away
Maybe it's my instinct
To ask you to go get jabbed
It's cuz I care about you
Yes, I do. Yes, I do.๐ŸŽถ๐ŸŽถ
~~You don't want that nasty flu!~~

1 day ago

22

22answered the question Swollen feet, ankles

Thank you for sharing that. Itโ€™s great to hear your heart echo came back goodโ€”thatโ€™s one less thing to worry about. I know how exhausting it can feel when life seems to revolve around doctors, medicine, and appointments. It really does take time to …
GAnneCaroline West Virginia State CaptainKaren Deitemeyer - Florida State Captain also answered the question GAnneand 2 others also answered the question

1 day ago

22

22

Hi, welcome back. Iโ€™m sorry to hear about your diagnosisโ€”it can definitely feel overwhelming at first. Youโ€™re not alone here; there are many people managing bronchiectasis and sharing their experiences.
I personally havenโ€™t used Roflumilast, but I know itโ€™s sometimes prescribed to help reduce inflammation and flare-ups. Some members have shared mixed experiencesโ€”while a few find it helpful for reducing exacerbations, others report side effects like weight loss or stomach issues. It really seems to vary from person to person.
It might help to hear from others here who are currently on it. Hopefully they can share whatโ€™s worked (or hasnโ€™t) for them. In the meantime, youโ€™re already doing a lot with airway clearance, the flutter valve, and regular medsโ€”those are really important parts of daily management.
Youโ€™re in the right place to get support and info from people who truly understand.

1 day ago

Lynette blue

Lynette blue

Good morning everyone. Iโ€™m new to all the COPD stuff. Iโ€™m not sure about a support system for COPD where I live. I was looking on the internet about health issues and came across this article so I decided to check it out. Base line about me Iโ€™m 42 with 3 young menโ€™s I was diagnosed about 3 years ago and never did a follow up with COPD. I really donโ€™t understand how at this age and I was in denial scared all the emotions then I just stopped worrying and continued with my life and didnโ€™t think about it until I had a flare upโ€ฆ. But it still didnโ€™t hit me that I actually have COPD at this age it has to be a mistake. Sorry for babbling. I look forward to hearing your every one. Thanks for excepting my.

1 day ago

  • NewestOldestClick to View All Comments8 comment(s)
  • Lynette blue Thank you so much for the information so I am a smoker. Iโ€™m gonna try to see if I can go back to the doctor and get some patches or something to help me stop smoking. Thanks for your response and Iโ€™ll keep you updated.1 day ago
  • Lynette blueThanks everyone!1 day ago
  • Caroline West Virginia State CaptainWelcome, i just wanted to tell you that I quit smoking using the patches.1 day ago
maudie

maudie

Hi. I came on this site only once when I started . I seemed lost on this site. Now that I have Bronchiectasis, I need more info and to meet others with this. My doctor has switched my meds to Breztree, Roflumalist, Azythromicin three times a week , neb as needed and a flutter valve.  Does anyone use Roflumilast and how does it work for you ?

1 day ago

PennyBanfield

PennyBanfield

This was a bad day in Taipei. I haven't had a COPD attack like this before. All day I was shaking, not just my hands but my head as well. My nerves were on fire. My eyes kept weeping from being squeezed. When I used my emergency haler at 6:00 the shaking stopped but the minute I stood up it started all over again. I took a Lyrica finally because I have neuropathy as well. I don't get this attack this time. My lungs were squeezing and my body was on fire.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a wonderful Sunday, filled with sunshine, smiles, and all of your favorite things! ๐ŸŒž๐ŸŒ๐Ÿ˜€

1 day ago

Ronbo

Ronbo

I am attempting to reach out to fellow CPOD sufferers.  ME: I am 83, male, diagnosed with COPD ten years ago.  Two years ago, I had a six day hospital stay that resulted in my permanent use of oxygen.  At the time I was told I was in stage 4.  Currently, I nebulize twice daily, take a daily dose of wixela and spiriva, and was doing okay until about a month ago.  I began to lose weight, (now weigh 106) and sob has increased where I can't do any of the activities I was normally doing (went to senior center twice weekly, helped with grocery shopping, etc).  I would like to hear from final stage patients about their experiences.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHave a very happy, easy breathing Saturday! ๐Ÿ˜€

2 days ago

GAnne

GAnneasked the question: Swollen feet, ankles

What causes the feet to swell and what can I do. I up walking and doing Pt, is there anything else to do to help, and I elevate, G-Ann

2 days ago

GAnne

GAnneanswered the question Just Breathe: Finding Your Breath During Stressful Times

I am just out of hospital after 15 days, 2 weeks on Pt,Occupational therapy, seems Iโ€™m still having issue with the breathing and excerises, pursed lips, I still find myself hold my breath. When I finish these, I hope to go pulmonary rehab couple days week
Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)GerrybKristen Willardand 4 others also answered the question Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)and 6 others also answered the question

2 days ago

ShirleyBaskin

ShirleyBaskin

Does anyone have any tips to help someone with end stage COPD become more comfortable with their BiPap? 

2 days ago

45yrcopdasthma

45yrcopdasthmaanswered the question How do you deal with the mental battle

So ive been through everything with my local treating team. I have intrinsic asthma aka non allergic. Had asthma as a kid playing sport, grew out of that. Then in my late 20s early 30s i noticed air pollution would set me off. I have 0 response to common …
JD85brydyKaren Deitemeyer - Florida State Captainand 2 others also answered the question JD85and 4 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Shout out to joneyโ€‹!!
Haven't heard from you in a while. Hope you are doing well!!! ๐Ÿฅฐ

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Hey! That's a great idea, Karen! It's very easy to prepare, and I'm sure it would be a crowd pleaser! ๐Ÿฅ—...

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

This looks good!! I could double it and take it to the next Ladies Luncheon here....

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ—SWANKY TOSSED SALAD๐Ÿฅ—4 hearts of Romaine lettuce, chopped3/4 cup grape tomatoes, halved Half of an English cucumber, sliced1/2 cup chopped toasted pecans1/2 cup dried cranberries 1/2 cup crumbled feta cheese 3/4 cup balsamic vinaigrette...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday! Funny thing happened! I bought a toy for my sister's dog Luke, and it looks as though Miyagi has claimed it as her own. Ah, well...Easy come, easy go! ๐Ÿ˜‚
Have a fun-filled Fluffy Friday! ๐Ÿ˜„

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Walk-in covid shots are also available at any locations. Call ahead to avoid disappointment. 

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

For anyone using Kaiser Permanente:โ€œStarting September 15, members can walk in or make an appointment to get the 2025-26 COVID-19 vaccine. The vaccine will be available at no cost for Kaiser Permanente members 6 months and older. Updated vaccine locations and hours will be available on September 15.โ€Kaiser PermanenteCOVID-19 Vaccine Information | Kaiser PermanenteGet up-to-date information on the COVID-19 vaccine, including how to schedule an appointment and safety and effectiveness.

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.