COPD360social Community Exchange

Welcome to the COPD360 Social Community Exchange! The purpose of the Community Exchange is to provide our members with information on new technology, products to improve quality of life for patients and caregivers and a section to promote patient owned businesses or initiatives in the COPD space. We have also included a special section to allow community members to help facilitate new and exciting research being conducted by partner organizations developing new treatments or devices or accessing patient and caregiver needs through voluntary participation using surveys.

It is our hope that the new community exchange will enable our membership the opportunity to lend its collective voice for the benefit of millions affected by COPD.


Please review information and disclaimers on each of the Community Exchange categories by clicking on the links below.

Patient Initiatives

This section to advertise patient/caregiver owned businesses or initiatives related to COPD. If you wish to advertise your business or products or initiatives please contact Bill Clark by email at wclark@copdfoundation.org. Please provide the following information: a one paragraph description of your product or business or initiative, web site address (if available) and your complete contact information; a couple pictures would also be helpful. If your product is selected for posting you will be notified by email. Any product promising unsubstantiated claims as to suitability or results will not be approved and all approvals or disapprovals are at the discretion of the COPD Foundation.

The COPD Foundation will not be held liable in any way as to the use, safety or function or suitability of any product or service. It is the recommendation of the COPD Foundation that patients consult a medical professional prior to the use of any product or service used in the treatment or therapy related to their COPD or other comorbid conditions. Any claims resulting from any unintended consequences or results including suitability are the sole liability of the seller and NOT the COPD Foundation.

Partner Surveys

Any partner organization wishing to advertise their surveys my fist contact Bill Clark by email at wclark@copdfoundation.org providing a short description and purpose of the survey, information on your organization and a copy or link to the survey. You must also include information as to how resulting data from the survey will be used, where the survey will be housed along with safeguards you have in place to protect patient privacy. No patient identifiable data can be attained or requested including but not limited to patient name, address, phone number, email address, names of treatment teams or facilities. You may not contact participants prior to, during and after participation for any reason nor may you ask them to contact you. Any violation of these guidelines will result in the removal of your survey and our refusal to approve any future surveys. All approvals or disapprovals are at the discretion of the COPD Foundation.

Patients or caregivers participating in the surveys do so by their own free will. If requested prior to, during or after the survey to provide any identifiable data or follow-up please do not respond and immediately contact Bill Clark at wclark@copdfoundation.org.

Products

Anyone wishing to advertise their products must first contact Bill Clark by email at wclark@copdfoundation.org. Please provide the following information: a one paragraph description of your product, web site address (if available) and your complete contact information; a couple pictures would also be helpful. If your product is selected for posting you will be notified by email. Any product promising unsubstantiated claims as to suitability or results will not be approved and all approvals or disapprovals are at the discretion of the COPD Foundation.

The COPD Foundation does not endorse any product or service and will not be held liable in any way as to the use, safety or function of any product or service. It is the recommendation of the COPD Foundation that patients consult a medical professional prior to the use of any product or service used in the treatment or therapy related to their COPD or other comorbid conditions. Any claims resulting from any unintended consequences or results including suitability are the sole liability of the seller and NOT the COPD Foundation.

Partner Clinical Trials

Any partner organization wishing to advertise their clinical trials my fist contact Bill Clark by email at wclark@copdfoundation.org providing a short description and purpose of the clinical trial, information on your organization and a copy or link to the clinical trial. You must also include information as to how resulting data from the clinical trial will be used, where the clinical trial will be housed along with safeguards you have in place to protect patient privacy. No patient identifiable data can be attained or requested including but not limited to patient name, address, phone number, email address, names of treatment teams or facilities. You may not contact participants prior to, during and after participation for any reason nor may you ask them to contact you. Any violation of these guidelines will result in the removal of your clinical trial and our refusal to approve any future clinical trials. All approvals or disapprovals are at the discretion of the COPD Foundation.

Patients or caregivers participating in the clinical trial do so by their own free will. If requested prior to, during or after the clinical trial to provide any identifiable data or follow-up please do not respond and immediately contact Bill Clark at wclark@copdfoundation.org.


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Why is research necessary?


Before a medical device can be approved for use in a general population, a thorough process of research must be done. Clinical studies are one of the key steps in that process. Doctors are enrolling volunteers for a treatment in a clinical study that may have the potential to reduce COPD Flare-ups.

If you have COPD and still experience flare-ups despite your medications, you may qualify for the AIRFLOW-3 Clinical Trial. The trial is evaluating Targeted Lung Denervation, an investigational treatment which may have the potential to reduce the risk of COPD flare-ups through a one-time, non-surgical, outpatient procedure.

New COPD research can’t move forward without volunteers like you. Answer a few questions to see if you may be eligible to take part. Visit https://airflowtrial.com to complete a short survey.

Categories: Partner Surveys

A new clinical trial is further evaluating an investigational study drug in individuals with COPD


Participating in clinical trials is one way to support the entire COPD population and help researchers develop treatment options at the same time. Two previous studies have shown that investigational study drug might reduce moderate-to-severe symptom flare-ups for people living with COPD. A new clinical trial is further evaluating this drug in individuals with COPD, and volunteers are needed.

To qualify, you must:

  • Be 40-85 years of age.
  • Be a current or former smoker living with COPD.
  • Have a history of moderate-to-very-severe COPD.
  • Have had three or more flare-ups of your COPD symptoms in the last year that required steroid treatment or medical attention.
  • Have used multiple types of medications to treat your COPD in the past three months (this may be with one or more inhalers).
  • Not have an asthma diagnosis.

New COPD research can’t move forward without volunteers like you. Answer a few questions to see if you may be eligible to take part.

Yes, see if I may qualify!

If you have any questions about the study or technical difficulty completing the Pre-screener, you can call 888-509-1308 or email patientsupport@antidote.me.

Categories: Clinical Trials

Relationship of Fatigue to Physiologic, Psychologic and Situational Factors in Adults with COPD During The Covid-19 Pandemic


The author of this survey is a nurse and PHD student putting together her thesis. She is asking for our communities support in gathering data. The COPD Foundation is not involved in this survey

The purpose of this study is to learn if situational factors, such as social support and stress, are associated with other factors such as mood and breathing levels, and if all these factors are associated with COPD-related fatigue. It is important to participate because we hope to learn more about COPD-related fatigue to develop better treatment for fatigue in the future. We also hope to explore the lived experience of fatigue in adults with COPD during a global pandemic as compared to prior to the pandemic.

To take the survey click on the following link: https://umaryland.az1.qualtrics.com/jfe/form/SV_74cLnRJNBEdsuZo

Categories: Partner Surveys

The O2 Clip - Breathe Comfortably


The O2 Clip fastens a medical oxygen hose to a person’s shirt which allows the user to adjust the tension of the hose around the ears eliminating chafing and irritation. You can walk around pulling 30’ of hose and the hose won’t slip or pull off the ears allowing it to rest comfortably just off the ears. Also, the hose won’t twist up under the chin and is simple to adjust.

Suggested retail is $14.50

For more information or to purchase contact:
Buck-RCI@comcast.net
Or by mail to:
Peter Buck
112 Chestnut
Leadville, CO 80461

Categories: Patient Initiatives

Oxygen Tank and Portable Oxygen Concentrator Totes


Oxygen Tank and Portable Oxygen Concentrator Totes

These portable oxygen concentrator (POC) totes and oxygen tank sleeves provide a little style with your oxygen. They are made of 100% Acrylic yarn and are machine washable. The strap is thick and soft for more comfort when worn over your shoulder. A pocket provides a place to carry an inhaler, spare cannula, keys or cards. A strap goes across the top to keep the POC secure in the tote and buttons over the pocket to keep what is in the pocket, there. For under $20.00 you can get a little style with your oxygen.

Cheryl's Crafty Corner by CherylsCraftyCoStore

Categories: Products

Oxygen Safety Strap


The O2 Safety Strap is the ONLY Wearable Oxygen Safety device that manages Long and Short Oxygen Cannula Hoses worn by supplemental oxygen users! Worn over your shoulder the Safety Strap allows you to easily control your movements safely while keeping your hands free.

For more information: Samuel Hall ~ Inventor/ Founder, Spire Solutions LLC/O2 Safety Strap- Phone: (417) 225-0587 or visit their website: https://o2safetystrap.com/

Categories: Products

Clean Home and Happy Lungs


How would you like to safely clean without the fear of worsening lung disease symptoms limiting your breath, irritating your eyes and throat, causing headaches. Simply Press the button and the Hygeia SB100 turns tap water into NATURES SANITZER, an on demand USDA organic cleaner and sanitizer stronger than bleach and hydrogen peroxide but safe around people animals and plants. So safe you can drink it! Clean, Sanitize and Deodorize without Poisons, Toxins, Residues or Fumes. Remove dirt, grime, bacteria, mold, mildew and odors. Anytime, Anywhere!!!

The Hygeia SB 100 is the only hand-held, Green-Seal certified device in the industry using just tap water to clean and sanitize. Awarded the following Green Seal Certifications: GS-53(sanitizer) and GS-37 (commercial cleaning): standard includes product performance requirements and environmental and health considerations for vulnerable populations in institutional settings such as schools, day-care facilities, nursing homes, and other facilities. GS-8 and GS-52—safe enough for household use: The standard includes product performance requirements and environmental and health requirements such as reduced toxicity, biodegradability, and reduced and recyclable packaging. Goodbye Chemicals, Goodbye Germs. Goodbye dirt, Goodbye Odors,! Hello healthy, Hello clean, Hello savings, HELLO HYGEIA! To learn more about the Hygeia SB 100 go to hygeiaglobal.com. We are presently offering a $30 discount to the COPD360social members so when ordering please enter the promotion code COPD to receive your discount.

Categories: Products

Help with COPD Awareness and show some style


A COPD360social member has opened an internet store for products he designs that help raise COPD awareness. Items include clothing and gift items. He can also custom design items! Visit his store at: https://www.zazzle.com/cherrycoke52

Categories: Patient Initiatives

Stop Oxygen Hose Tangles and Snags


My wife has COPD and is on oxygen 24/7. After years of being on oxygen and dealing with Tangles, Kinks and Falls caused by my wife's oxygen hose and there seemed to be no solution. So we took it upon ourselves to find an answer. After trial and error we have designed a patent pending solution to reducing a majority of these issues. This new idea consists of an easy custom fit arm band attachment, with options for a fall alert attachment, and a braided hose cover that is easy to put over or remove from the existing oxygen hose(s). The desired length can be cut to order." This product also gives and added protection against cuts or punctures. My wife has been using this for months, and says, “I am not afraid, anymore." It has made a big difference in our lives. For more information go to https://www.murphyinnovations.org or email murphyinnovations53@gmail.com

Categories: Patient Initiatives

Remote Controlled Oxygen Hose Reel


The Oxy Tube Remote (OTR) is a light-weight, portable, remote controlled oxygen hose retraction device designed to help those on oxygen therapy more easily and safely manage their long oxygen tubing. The OTR is designed to help prevent oxygen tube kinks and snags and the very real threat of falls and trips. The device retracts OR dispenses your oxygen tubing into a small container of your choice, and it does this at a speed you select. The device is controlled by a small hand-held 2 button remote: one button causes the device to release tubing as you walk away from your concentrator; push the other button to collect and retract your tubing as you walk towards your concentrator. It couldn’t be simpler. For pricing information, as well as instructional videos and purchasing, please visit our website at https://www.oxygenmgmtsystems.com/. Also, for a $5 off discount, enter the coupon code “COPD5” at checkout.

Categories: Patient Initiatives