Meet Your COPD Foundation Captains!

I’m very happy to join the COPD Foundation Captains! I attended last year’s IMPACT and found a great group of people making a difference for COPD patients and their families. Since then, I have become active in spreading the news about COPD through social media, emails to my representatives, and local meetings. I’m also involved with the Alpha 1 Foundation, Better Breathers, and participate as a peer group mentor supporting Pulmonary Rehab.

Finding out you have COPD can feel like a death knell, but it is not! Finding out you CAN make a difference in your own life and those of others gives a new perspective and energy; and meeting with like-minded people reinforces the impact we can all make.

I look forward to this next great experience!

I have many favorite quotes, so I can’t give just one~

“Believe you can and you’re halfway there!”

And I’m a real Tolkien fan, so:

“All we have to decide is what to do with the time that is given us."

Hi, my name is Susan.

I was diagnosed with COPD in 2008. At that time, I had no symptoms. In 2017 I was diagnosed with stage 1 lung cancer and had a lobectomy to my upper right lung. I am cancer free since the lobectomy. Because of this, my COPD progressed, and I now am on medications but not on oxygen. I see a pulmonologist on a regular basis.

When I was told I had COPD, no one gave me any information as to what resources were available. This was also the case after my cancer surgery, even though my COPD was more advanced. I came across Better Breathers after my surgery in respiratory therapy. Since I joined Better Breathers, I have learned so much! I found the COPD Foundation and I was able to learn of all the remarkable work they do for us, their dedication to our health, and the advocacy work they are responsible for.

I want to be a part of this amazing group and bring awareness to others who have no idea about what COPD is or its effects on those who have it. I want to advocate wherever I am needed in any way I can. I am proud to represent this group.

Hi everyone, I am Prajwal Bhandari, Director of the Health Care Association of Nepal and a medical student. Through my community work, I have realized the significant gap in awareness and screening programs for COPD in Nepal. Factors such as indoor air pollution, forest fires, and smoking predispose many people to COPD. However, few awareness and screening campaigns exist in Nepal, leaving many individuals undiagnosed and untreated, especially in rural areas where access to diagnostic and management care is limited.

Deeply moved by the current COPD situation in Nepal, I founded the Health Care Association of Nepal to focus on the sustainable and integrated management of COPD. Our goal is to conduct community-based awareness and screening campaigns by empowering and training medical and public health students as Non-Communicable Disease (NCD) Awareness Youth Leaders. These youth leaders will champion COPD awareness and advocacy in their communities.

I have had loved ones and friends pass away because of COPD. Their knowledge was minimal. I also have COPD and want to do what I can to give the knowledge that I receive to help others. My name of course is Jamie Graves and I am 61 years old. I smoked for 40+ years. I have had horrible COPD for at least the past 12 years I know of. I'm from northeast Indiana.

My name is Emily. I am an Idaho native and absolutely love where I live. I grew up in a small town and attended college at Boise State University. Living in Idaho, I am lucky that we have so many wonderful opportunities to enjoy the outdoors, and I take full advantage of that. Whether that is paddleboarding on the Snake River, or just taking a walk with my dogs. Fall in Idaho is by far my favorite time of the year as it is absolutely beautiful, but a snowy, white Christmas is a very close second. One quote that has always resonated with me is: "To know that even one life has breathed easier because you have lived, is to have succeeded." - Ralph Waldo Emerson. I love this quote not only because it ties into my career as an RT but in my own personal beliefs that if we can, we should always try to help others.

I have been a respiratory therapist for 3 years learning to care for many different patient populations from neonates to adult critical care. I got started in my field by chance. As a young adult, I didn't know what I wanted to do but I knew one thing, that I wanted to help people. I happened upon respiratory therapy one day at a career fair and it was the best decision I ever made. Throughout my RT career, one thing I have always stressed is patient education. I truly believe that the best way to set someone up for success, is for them to have all the information. This applies to so many aspects of life whether that is someone's health and treatment or our daily interests where we want to excel. I have gotten so much satisfaction from educating patients in my hospital, that I decided to look for other opportunities to reach others outside of the hospital. With that being said, I am excited to be able to make a difference in my community by joining the COPD Foundation.

I am a registered respiratory therapist in Michigan and Florida. I have previous experience in the hospital, skilled nursing and pulmonary rehabilitation settings (owner and therapist), clinical site for respiratory students with Oakland Community College, partner with the COPD Foundation's "Circles" program, as well as having been the program owner/ manager for a home COPD/asthma education program later named "Catching A Breath" for Meridian Medicaid HMO contracting for over thirteen years. This program, as well as pulmonary rehabilitation taught patients how to recognize and self-manage their lung disease more affectively leading to a healthier lifestyle and reduced hospital readmissions and thus reduced insurance costs. This program won an award with the Michigan Association of Health Plans. I have gained a unique skill set in that not only was I able to teach and help patients, but I was able to advocate to Meridian Medicaid, physicians, senior citizens and the community about lung disease, pulmonary rehabilitation and the importance of understanding the disease process, exercise, support and resources along with insurance reform. In fact, my advocacy consists of enhancing the home COPD program with Meridian from 5 counties in Michigan to the entire state and Illinois. I will be using this background to continue to advocate and share knowledge about lung disease. The COPD Foundation is a wonderful organization and platform to partner with to be able to advocate and educate. I look forward to the opportunity.

My name is Tom Manges. I have been married to my wife, Renee, for 26 years and I will be her caregiver when she gets her double lung transplant. I have been driving a semi for 30 years now, and my goal is to spread as much awareness as I can with my semi and the pamphlets I have and to grasp more knowledge from the COPD Foundation team to help others that are fighting this.

My favorite saying is “Communication is the foundation to success.”

I have been a respiratory therapist for 19 years and a pulmonary educator since 2021. This has allowed me to meet and work with people affected by COPD and their families on a daily basis. I have been impressed, and dismayed, by the impact COPD has on every aspect of a person’s life.

I’m so excited for an opportunity to be a COPD state captain. As a state captain, I will be part of change and the opportunity to help advocate for people with COPD, provide education for the community about COPD so we can all better treat and understand individuals suffering from COPD, and provide a link between medical care and community resources. I am passionate about helping people learn the tools they need to better manage their COPD so they can live a life filled with the best possible quality.

My proudest accomplishment is my daughter. She inspires me to rise and to face any challenges that I may face. She reminds me that obstacles are meant to help us grow and push us to think outside the box. 

Quote “Alone we can do so little. Together we can do so much” – Helen Keller

I’m incredibly honored to be able to join the COPD Foundation! I am an Acute Care Nurse Practitioner, working in Pulmonary Disease/Critical Care with an inpatient and outpatient population. Having the experience in treating these individuals, I hope to use my skills to advocate for further support and education for those living with COPD to improve quality of life and understanding of the disease.

I have 5 years of experience at the bedside as a critical care RN and transitioned to an Acute Care NP about two years ago. I have worked in the pulmonary clinic seeing patients with COPD daily & helping achieve stability of their chronic condition. In addition to this, I also treat the inpatient population with COPD exacerbations and ensure prior to discharge they are stable and ready to return home with quick clinic follow up to prevent hospital readmissions.

As a COPD Foundation Captain, I am interested in being in the loop with the most recent endeavors the COPD Foundation has been taking on. I am hoping that by learning what the COPD Foundation has to offer, I can connect my patients with more resources to help them improve their quality of life and support their chronic condition.

My proudest COPD moment has been recognizing that not all treatments are created equal, and listening to the patient and educating the patient on their condition is KEY to ensuring the correct fit of treatment for the disease and longevity of compliance with treatment.

My favorite inspirational quote is “You’ll always try your best to do the right thing.”

I hope to use the COPD Foundation as an extra resource for my patients & will strive to give the best care I can to them on a daily basis.

Emma Goebel, DNP, ACNPC-AG, CCRN

It is an honor to be a part of this community. As a COPD Foundation Captain, I will serve as a dedicated advocate, drawing from personal experience as a family member of someone, my father, affected by COPD. My father fought a valiant yet exhaustive fight against this disease until his transition on October 11, 2023.

My father’s passing has become the catalyst and driving force for me to connect with family members and caregivers of those living with COPD to bring awareness and resources to help their loved ones live healthier lives until a cure is found.

I am interested in engaging in advocacy efforts to raise awareness about COPD, its challenges, and the importance of support and resources. I am also interested in participating in advocacy efforts to influence legislation that supports COPD research, access to treatment, and improved healthcare policies.

My proudest moment is answering the call to become active in this community to honor my father.

I have several inspirational quotes that I live by, but this is the one I often lead with, “It always seems impossible until it’s done.” – Nelson Mandela.

More about me: I am an avid reader and have been a part of a book club for over ten years. We are known as The Reading Divas! I love to travel and enjoy taking road trips with my travel buddy to visit all 50 states. I have 17 more to go! I find great fulfillment in volunteering and impacting people’s lives for the greater good.

Hi! I am a rising senior at Wando High School in Charleston, currently on the Biomedical and Sports Medicine track. I, myself, suffer from a chronic respiratory disease and I understand what COPD patients are going through.

I am very excited to join this wonderful team of advocates for the COPD Foundation! I am excited to advocate and be able to support patients suffering from COPD. I want to continue to help patients and continue to advocate in my state by spreading awareness for COPD and inspire more people to help with the COPD Foundation. I am very passionate about this topic and hope to help more and more people!

I am excited to join the COPD Foundation as this is a wonderful group of advocates and friends of individuals with COPD. As a COPD Foundation Captain, I am interested in helping individuals with COPD learn how they can best take charge of their health so that they can have the highest possible quality of life.

I have worked in healthcare for over a decade and have been a respiratory therapist for the last 6 years. I currently work in the hospital setting as a patient pulmonary disease educator. I love the work that I do because I love to connect with people and help them to learn the things that they can do to make a difference in their own lives.

I believe in the pillars of lifestyle medicine which are: nutrition, physical activity, stress management, improved sleep, avoiding toxic substances, and promotion of positive relationships in addition to medications, therapies, and interventions for lung health.

I am also involved in The Better Breather’s Club as the Meridian, Idaho BBC Club Facilitator through the American Lung Association. I enjoy attending and presenting at local health fairs and engaging with the community.

I am a forever optimist and I promise to always encourage, motivate, and believe in the good of the world.

“The most important thing is to enjoy your life – to be happy – it’s all that matters.” -Audrey Hepburn