Meet Your COPD Foundation Captains!

My name is Chrysalis, and I am a respiratory therapist who works in the durable medical equipment (DME) and homecare space. My grandmother died from COPD years ago, and I am so happy to have the opportunity to honor her memory by volunteering as a COPD State Captain. I also care for people living with COPD every day in my job, and I desire to better support and advocate for them.

As a COPD Foundation State Captain, I hope to speak up for people living with COPD in my local community, amplify the COPD community’s voice across social media platforms, and facilitate fundraising and awareness events virtually and in the area where I live.

My proudest moment was becoming a respiratory therapist despite the odds stacked against me. Now that I’m here, I am passionate about patient care and access, particularly for those with chronic lung disease. Supplemental oxygen access is important to me because of how limitations in the capabilities of O2 equipment burdened my grandmother at the end of her life. I also see the struggles of people living with COPD who use supplemental oxygen every day. One of my favorite quotes comes from the COPD Foundation’s own Mike Hess, a good friend. “Everybody needs O2; some bodies just need a little extra.” I want to see a day when people with COPD can live their best, most whole, and longest lives with access to all the therapies they need.

I am glad to join a great group of advocates with the COPD Foundation! I am originally from India. As a Cardiopulmonary physiotherapist, I hope to educate the public and offer support and non-pharmaco treatment for those dealing with pulmonary diseases.

There are a few things that I have already done as a COPD advocate. Every day I deal with lot of COPD and other chronic respiratory disease patients, have participated in various community campaign, where we primarily screen patients for COPD, engaged in creating awareness about importance of Pulmonary Rehab in managing chronic respiratory diseases.

As a COPD Foundation Captain, I am interested in connecting others in the COPD community to more resources so they can live healthier, fuller lives. I hope to do more work raising awareness and conducting camps delivering a small narration of original program hosting. I would also like to participate in research activities.

My proudest COPD moment has been recognizing that I can help change how this diseaseaffects people. I love offering education and support to my community!

My favourite inspirational quote is, “The first step toward change is awareness. The second step is acceptance”- Nathaniel Branden

My passion is with patient education and support to caregivers. I believe Cardiorespiratory physiotherapist have a responsibility to teach our patients how to manage their disease better.

Hi everyone! So happy to be apart of this wonderful community! I am originally from Georgia but live in Louisville, Kentucky now. I am a registered respiratory therapist. I work in New Albany, IN at a hospital where I am developing a COPD Navigator program to help with readmissions. I hope to educate my patients and families and be an advocate for those dealing with pulmonary diseases.

There are a few things that I have already done as a COPD advocate. I have spoken to my family and friends about COPD. I have educated staff as well as physicians on the importance of following the Gold Guidelines.

As a COPD Foundation Captain, I am interested in connecting others in the COPD community to find all the resources available to be able to help my patients and those out in the community.

My proudest COPD moment has been recognizing that I can help change how this disease affects people. My favorite inspirational quote is, “Find out who you are and then do it on purpose.” Dolly Parton. I love spending time with my family and traveling. My passion is with patient education.

Hi! My name is Addison Mathews , my favorite color is green, my favorite song is rises the moon, and I’m currently a high school student advocate for the prevention and awareness of COPD within my local community. As someone who has grown up in and around the school systems I’ve seen a ton of kids fall into bad habits that eventually lead to detrimental and deadly diseases to the lungs. Which pushed me to advocate for not only myself but the people around me. I want to target not only people living with COPD and affiliated disease but attempt to lower the numbers that we are seeing exponentially grow. I’m really interested in the IMPACT events that are being hosted! My proudest moment would be when my friends and I hosted our first campaign for our project against COPD, where we were able to see the impact. My favorite quote is “ The walls we build around us to keep sadness out also keeps out the joy.” While this may seem like a saddening quote it’s personal to me because of the walls that society puts around young ambitious people. I’m really excited for the opportunity to work with all of you!

I’m very happy to join the COPD Foundation Captains! I attended last year’s IMPACT and found a great group of people making a difference for COPD patients and their families. Since then, I have become active in spreading the news about COPD through social media, emails to my representatives, and local meetings. I’m also involved with the Alpha 1 Foundation, Better Breathers, and participate as a peer group mentor supporting Pulmonary Rehab.

Finding out you have COPD can feel like a death knell, but it is not! Finding out you CAN make a difference in your own life and those of others gives a new perspective and energy; and meeting with like-minded people reinforces the impact we can all make.

I look forward to this next great experience!

I have many favorite quotes, so I can’t give just one~

“Believe you can and you’re halfway there!”

And I’m a real Tolkien fan, so:

“All we have to decide is what to do with the time that is given us."

Hi, my name is Susan.

I was diagnosed with COPD in 2008. At that time, I had no symptoms. In 2017 I was diagnosed with stage 1 lung cancer and had a lobectomy to my upper right lung. I am cancer free since the lobectomy. Because of this, my COPD progressed, and I now am on medications but not on oxygen. I see a pulmonologist on a regular basis.

When I was told I had COPD, no one gave me any information as to what resources were available. This was also the case after my cancer surgery, even though my COPD was more advanced. I came across Better Breathers after my surgery in respiratory therapy. Since I joined Better Breathers, I have learned so much! I found the COPD Foundation and I was able to learn of all the remarkable work they do for us, their dedication to our health, and the advocacy work they are responsible for.

I want to be a part of this amazing group and bring awareness to others who have no idea about what COPD is or its effects on those who have it. I want to advocate wherever I am needed in any way I can. I am proud to represent this group.

I have had loved ones and friends pass away because of COPD. Their knowledge was minimal. I also have COPD and want to do what I can to give the knowledge that I receive to help others. My name of course is Jamie Graves and I am 61 years old. I smoked for 40+ years. I have had horrible COPD for at least the past 12 years I know of. I'm from northeast Indiana.

Hi everyone, I am Prajwal Bhandari, Director of the Health Care Association of Nepal and a medical student. Through my community work, I have realized the significant gap in awareness and screening programs for COPD in Nepal. Factors such as indoor air pollution, forest fires, and smoking predispose many people to COPD. However, few awareness and screening campaigns exist in Nepal, leaving many individuals undiagnosed and untreated, especially in rural areas where access to diagnostic and management care is limited.

Deeply moved by the current COPD situation in Nepal, I founded the Health Care Association of Nepal to focus on the sustainable and integrated management of COPD. Our goal is to conduct community-based awareness and screening campaigns by empowering and training medical and public health students as Non-Communicable Disease (NCD) Awareness Youth Leaders. These youth leaders will champion COPD awareness and advocacy in their communities.

My name is Emily. I am an Idaho native and absolutely love where I live. I grew up in a small town and attended college at Boise State University. Living in Idaho, I am lucky that we have so many wonderful opportunities to enjoy the outdoors, and I take full advantage of that. Whether that is paddleboarding on the Snake River, or just taking a walk with my dogs. Fall in Idaho is by far my favorite time of the year as it is absolutely beautiful, but a snowy, white Christmas is a very close second. One quote that has always resonated with me is: "To know that even one life has breathed easier because you have lived, is to have succeeded." - Ralph Waldo Emerson. I love this quote not only because it ties into my career as an RT but in my own personal beliefs that if we can, we should always try to help others.

I have been a respiratory therapist for 3 years learning to care for many different patient populations from neonates to adult critical care. I got started in my field by chance. As a young adult, I didn't know what I wanted to do but I knew one thing, that I wanted to help people. I happened upon respiratory therapy one day at a career fair and it was the best decision I ever made. Throughout my RT career, one thing I have always stressed is patient education. I truly believe that the best way to set someone up for success, is for them to have all the information. This applies to so many aspects of life whether that is someone's health and treatment or our daily interests where we want to excel. I have gotten so much satisfaction from educating patients in my hospital, that I decided to look for other opportunities to reach others outside of the hospital. With that being said, I am excited to be able to make a difference in my community by joining the COPD Foundation.

I am a registered respiratory therapist in Michigan and Florida. I have previous experience in the hospital, skilled nursing and pulmonary rehabilitation settings (owner and therapist), clinical site for respiratory students with Oakland Community College, partner with the COPD Foundation's "Circles" program, as well as having been the program owner/ manager for a home COPD/asthma education program later named "Catching A Breath" for Meridian Medicaid HMO contracting for over thirteen years. This program, as well as pulmonary rehabilitation taught patients how to recognize and self-manage their lung disease more affectively leading to a healthier lifestyle and reduced hospital readmissions and thus reduced insurance costs. This program won an award with the Michigan Association of Health Plans. I have gained a unique skill set in that not only was I able to teach and help patients, but I was able to advocate to Meridian Medicaid, physicians, senior citizens and the community about lung disease, pulmonary rehabilitation and the importance of understanding the disease process, exercise, support and resources along with insurance reform. In fact, my advocacy consists of enhancing the home COPD program with Meridian from 5 counties in Michigan to the entire state and Illinois. I will be using this background to continue to advocate and share knowledge about lung disease. The COPD Foundation is a wonderful organization and platform to partner with to be able to advocate and educate. I look forward to the opportunity.

I am an advocate for COPD patients and providers because I am the daughter of a mother who passed away from COPD. I have experienced the stress and frustration of COPD caregivers, watched first-hand the struggle of COPD patients in rural areas, and felt the anguish and heartache of surviving a major loss.

Because COPD is a major issue for so many – yet so comparatively ignored, I want to use my role as a COPD Foundation Captain to bring more awareness to communities, specifically in the rural areas where I live (and where my mother lived). I want to use community outreach and social media networks to share information about COPD symptoms, management options, and resources for more support. Part of this awareness is specific outreach to health care providers, giving them materials to support their patients diagnosed with COPD. Another goal is to continue lobbying at the state and federal levels for more funding and public dialogue about COPD.

I want to broaden the conversation about COPD. Yes, advocacy for COPD patients in the medical realm is important and necessary. But I also want to give voice to the range of emotions patients endure – which can include shame, guilt, isolation, and despair. Caregivers also may experience a range of emotions and, because they don’t want to add to their loved ones’ stress, feel they have nowhere to turn. I hope to use my COPD Foundation Captain role to create space for these conversations and amplify support wherever possible.

I am a happily retired former Human Resources Professional. I have over 30 years of experience in HR - including talent acquisition, training/development, compensation and benefits, labor relations and strategy.

I live with Edward McClure, my husband of 44 plus years, in Hoover, AL. Edward lives with COPD (emphysema). I would like to use the position with the COPD foundation to engage other members of the community leveraging my experience caring for Edward to assist in making their lives better. Using my training/presentation skills, I would like to educate others about this illness and how they might make a difference. This includes interacting with governmental officials and agencies.