COPD Foundation Most recent journals

Coach Brandon - Community Manager 🎶 We’re very sorry, but today’s Harmonicas Play Along has been canceled due to technical issues.

We know many of you were looking forward to it, and we truly apologize for the inconvenience. We’re already looking forward to catching up and making music together again next month! 💙

Coach Brandon - Community Manager — Wed, 06 May 2026 20:11:51 GMT

🎶 We’re very sorry, but today’s Harmonicas Play Along has been canceled due to technical issues.We know many of you were looking forward to it, and we truly apologize for the inconvenience. We’re already looking forward to catching up and making music together again next month! 💙
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Coach Brandon - Community Manager 🌍✨ Visit My Corner of the World Wednesday: Things Are Looking Up ✨🌍

Sometimes all it takes is a small shift… and suddenly, things are looking up. 💙

Today’s theme is all about what you see when your eyes (and maybe your spirits) lift a little higher:

🌄 Mountains stretching into the sky
🌳 Trees reaching up with their branches
🍃 Leaves dancing in the breeze (bonus points if one looks like an inhaler 👀)
🐦 Birds soaring overhead
🌅 Sunrises, sunsets, or skies that just feel… hopeful

Those little upward moments can bring a sense of calm, a deeper breath, or even just a smile we didn’t know we needed.

📸 What’s “looking up” in your corner of the world today?
Share a photo or describe your view below 👇

You never know—your glimpse of the sky might be the bright spot someone else has been waiting for. 💫

Coach Brandon - Community Manager — Wed, 06 May 2026 13:21:21 GMT

🌍✨ Visit My Corner of the World Wednesday: Things Are Looking Up ✨🌍Sometimes all it takes is a small shift… and suddenly, things are looking up. 💙Today’s theme is all about what you see when your eyes (and maybe your spirits) lift a little higher:🌄 Mountains stretching into the sky🌳 Trees reaching up with their branches🍃 Leaves dancing in the breeze (bonus points if one looks like an inhaler 👀)🐦 Birds soaring overhead🌅 Sunrises, sunsets, or skies that just feel… hopefulThose little upward moments can bring a sense of calm, a deeper breath, or even just a smile we didn’t know we needed.📸 What’s “looking up” in your corner of the world today?Share a photo or describe your view below 👇You never know—your glimpse of the sky might be the bright spot someone else has been waiting for. 💫
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Crazybird Ok so i was diagnosed with COPD 2021, have had medication for it for the last 5 years. Had to have a lung function test yesterday, then see a new dr at the hospital. He said i havent got copd or asthma, it could be an allergy of something like grass, cats, pollen, etc. If thats the case why have i been taking medication for it, and to be told yesterday to carry on taking it??

Crazybird — Thu, 07 May 2026 08:10:52 GMT

Ok so i was diagnosed with COPD 2021, have had medication for it for the last 5 years. Had to have a lung function test yesterday, then see a new dr at the hospital. He said i havent got copd or asthma, it could be an allergy of something like grass, cats, pollen, etc. If thats the case why have i been taking medication for it, and to be told yesterday to carry on taking it??
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DebbieB.-Connecticut State Captain Happy Thursday! Nothing but smiles here! 😃
Start your day in a happy way! So much to look forward to! Enjoy every minute, friends! 😀

DebbieB.-Connecticut State Captain — Thu, 07 May 2026 07:40:00 GMT

Happy Thursday! Nothing but smiles here! 😃Start your day in a happy way! So much to look forward to! Enjoy every minute, friends! 😀
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David Mannino, MD (Chief Medical Officer, COPD Foundation ) answered the question Long time copd patient with cronic hiccups! How to fix it.

David Mannino, MD (Chief Medical Officer, COPD Foundation ) — Wed, 06 May 2026 22:47:13 GMT

There are some medical therapies that have been tried in hiccups. You can check with your physician.
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Tags: COPD

lazy t asked the question Long time copd patient with cronic hiccups! How to fix it.

lazy t — Wed, 06 May 2026 22:40:16 GMT

For three days, my diaphragm has been busy with hiccups. Enough so that I am sore from them. Today, I have had five different bouts. I have tried all the folk remedies. Some of them work sometimes, but soon there is another round. I know the location of …
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Tags: COPD

SarahR4582 Hello all -- My grandma has COPD, emphysema, and CHF. She is home on hospice care after her most recent bout of pneumonia which kept her in the hospital for over 2 weeks. My mom is her primary caregiver and she has health issues of her own. She has very active Crohn's Disease and all the stress of helping to care for my grandma is impacting her condition negatively too. I help out as much as I can but it always feels like it's never enough. I am so worried about both my mom and my grandma. I grew up living next door to my grandma and she has always been one of my biggest influences in my life. My mom is my best friend and does so much for so many. I work full time, have a 17 year old son who is heavily into sports, and I feel like I need to do more but I feel stretched so thin all the time. Ugh. I guess I am just sharing what I have going on and I know many people here will understand that feeling of never doing enough for those you love and treasure dearly. I balance my grandma's checkbook, pay her bills for her, take her taxes to get filed, cut her nails when my mom's hands are too shaky..... but it still feels like I am failing them both. Thank you for taking the time to read my venting session. It's not venting really..... just getting what consumes my thoughts out of my head.

SarahR4582 — Wed, 06 May 2026 21:09:17 GMT

Hello all -- My grandma has COPD, emphysema, and CHF. She is home on hospice care after her most recent bout of pneumonia which kept her in the hospital for over 2 weeks. My mom is her primary caregiver and she has health issues of her own. She has very active Crohn's Disease and all the stress of helping to care for my grandma is impacting her condition negatively too. I help out as much as I can but it always feels like it's never enough. I am so worried about both my mom and my grandma. I grew up living next door to my grandma and she has always been one of my biggest influences in my life. My mom is my best friend and does so much for so many. I work full time, have a 17 year old son who is heavily into sports, and I feel like I need to do more but I feel stretched so thin all the time. Ugh. I guess I am just sharing what I have going on and I know many people here will understand that feeling of never doing enough for those you love and treasure dearly. I balance my grandma's checkbook, pay her bills for her, take her taxes to get filed, cut her nails when my mom's hands are too shaky..... but it still feels like I am failing them both. Thank you for taking the time to read my venting session. It's not venting really..... just getting what consumes my thoughts out of my head.
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Bluegoldfinch Looking for help. My husband has recently been diagnosed with mild to moderate COPD. We're both on a learning curve. I would like to find out about support groups for people who live with COPD patients. I don't think I'd call myself a caretaker yet. My husband cares for himself, but I know that could change, and I want to be prepared. It would really be helpful for me to join a support group in Tucson, Arizona, either in-person or online. Do you have any suggestions/recommendations? Thank you!

Bluegoldfinch — Wed, 06 May 2026 15:59:32 GMT

Looking for help. My husband has recently been diagnosed with mild to moderate COPD. We're both on a learning curve. I would like to find out about support groups for people who live with COPD patients. I don't think I'd call myself a caretaker yet. My husband cares for himself, but I know that could change, and I want to be prepared. It would really be helpful for me to join a support group in Tucson, Arizona, either in-person or online. Do you have any suggestions/recommendations? Thank you!
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DebbieB.-Connecticut State Captain commented on Eating Well: From Debbie B’s Kitchen to Yours

DebbieB.-Connecticut State Captain — Wed, 06 May 2026 12:09:27 GMT

🍍🍊🍋‍🟩FRUIT PUNCH🍍🍊🍋‍🟩Great for a warm weather day get-together!4 cups cranberry juice 1 1/2 cups pineapple juice 1 1/2 cups orange juice1/4 cup freshly squeezed lime juice 3 cups ginger ale, chilledOrange and lime slicesIn a large...
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DebbieB.-Connecticut State Captain Happy wonderful Wednesday!
No worries here on 360Social. Simply let the little things be the big things.
A little plant that you love looking at. Listening to the birds outside your window. That last piece of pizza sitting in the fridge. A surprise call from a dear friend!
Enjoy this wonderful day, everyone! 😀

DebbieB.-Connecticut State Captain — Wed, 06 May 2026 07:41:17 GMT

Happy wonderful Wednesday! No worries here on 360Social. Simply let the little things be the big things. A little plant that you love looking at. Listening to the birds outside your window. That last piece of pizza sitting in the fridge. A surprise call from a dear friend! Enjoy this wonderful day, everyone! 😀
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Catch22 answered the question Saline solution in nebulizer to help move mucous

Catch22 — Wed, 06 May 2026 00:11:27 GMT

I wanted to mention that if you are doing nebulized Ipratropium/albuterol (IA), and have it on hand, I heard it is best practice (especially when just starting out using nebulized saline,) to do the IA nebulization first. I have found this tamps down a …
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Tags: Loosen phlem

David Mannino, MD (Chief Medical Officer, COPD Foundation ) answered the question When is Trelegy appropriate?

David Mannino, MD (Chief Medical Officer, COPD Foundation ) — Tue, 05 May 2026 19:56:22 GMT

Triple therapy is typically used in patients who are symptomatic with exacerbations. Of course, every patient is unique. I agree that pulmonary function testing is needed along with a better assessment of what is going on with you (evaluation of …
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Tags: Trelegy

Jamie Jarrard (COPDF Sr. Communications Specialist) Happy Tuesday, everyone!

I wanted to make a quick post to let you all know we have some very exciting news. We (COPD Foundation) have just launched our new podcast called The Lung Health Champion: https://www.lunghealthchampion.com/

Subscribe and listen in on the 15th every month for episodes focusing on living with COPD and chronic lung conditions. We hear from physicians, RTs, caregivers, people living with COPD, and more. Topics are driven by focus groups we held with YOU! If you have suggestions for future topics, please feel free to drop them in this thread, or feel free to email us at edteam@copdfoundation.org.

We are also featuring a new segment called Air Mail, in which we share write-in stories by YOU, about life with COPD. Share your stories, life, tips etc. with us at share@copdfoundation.org.

Additionally, on the 30th of every month, we feature episodes geared toward physicians and health care professionals in our series called Unobstructed. These episodes are great for anyone wanting to learn more about the physician-level insider scoop on COPD and chronic lung disease, and are a fantastic resource for your care team.

Click the link above to listen and subscribe to The Lung Health Champion!

Jamie Jarrard (COPDF Sr. Communications Specialist) — Tue, 05 May 2026 14:00:12 GMT

Happy Tuesday, everyone!I wanted to make a quick post to let you all know we have some very exciting news. We (COPD Foundation) have just launched our new podcast called The Lung Health Champion: https://www.lunghealthchampion.com/Subscribe and listen in on the 15th every month for episodes focusing on living with COPD and chronic lung conditions. We hear from physicians, RTs, caregivers, people living with COPD, and more. Topics are driven by focus groups we held with YOU! If you have suggestions for future topics, please feel free to drop them in this thread, or feel free to email us at edteam@copdfoundation.org. We are also featuring a new segment called Air Mail, in which we share write-in stories by YOU, about life with COPD. Share your stories, life, tips etc. with us at share@copdfoundation.org. Additionally, on the 30th of every month, we feature episodes geared toward physicians and health care professionals in our series called Unobstructed. These episodes are great for anyone wanting to learn more about the physician-level insider scoop on COPD and chronic lung disease, and are a fantastic resource for your care team. Click the link above to listen and subscribe to The Lung Health Champion!
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Coach Brandon - Community Manager 🎉🌮 Cinco de Mayo Vibes on 360Social! 🌮🎉

Today’s a good excuse to turn the volume up on a little joy, a little color, and maybe even a little salsa (the dancing kind… or the snack kind—we don’t judge 😄).

Whether you’re celebrating with something festive, enjoying a favorite meal, or just taking a moment to soak in a good day—we’re here for it.

💬 Let’s make it fun:
What’s bringing a little flavor to your day today?
A bright meal? Music? Sunshine? A good laugh?

However you’re spending it, we hope it’s got a little spark in it. 💃🕺

And hey—if today’s more “quiet and cozy” than “fiesta,” that counts too. Sometimes the best celebration is just feeling okay in your own space. 💛

Coach Brandon - Community Manager — Tue, 05 May 2026 12:48:57 GMT

🎉🌮 Cinco de Mayo Vibes on 360Social! 🌮🎉Today’s a good excuse to turn the volume up on a little joy, a little color, and maybe even a little salsa (the dancing kind… or the snack kind—we don’t judge 😄).Whether you’re celebrating with something festive, enjoying a favorite meal, or just taking a moment to soak in a good day—we’re here for it.💬 Let’s make it fun:What’s bringing a little flavor to your day today?A bright meal? Music? Sunshine? A good laugh?However you’re spending it, we hope it’s got a little spark in it. 💃🕺And hey—if today’s more “quiet and cozy” than “fiesta,” that counts too. Sometimes the best celebration is just feeling okay in your own space. 💛
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DebbieB.-Connecticut State Captain commented on Eating Well: From Debbie B’s Kitchen to Yours

DebbieB.-Connecticut State Captain — Tue, 05 May 2026 12:12:07 GMT

🥄EASY MEXICAN BLACK BEANS🥄2 tsp. olive oil 1 small white onion, diced 2 cloves garlic, minced Three 15-ounce cans black beans and their liquid2 tsp. cumin1 1/2 tsp. paprika 1 tsp. smoked paprika 1 tsp. garlic powder 1/2 onion powder Salt and...
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LFAOMGA Katie wants to wish all of you a happy Cinco de MEOW

LFAOMGA — Tue, 05 May 2026 11:23:03 GMT

Katie wants to wish all of you a happy Cinco de MEOW
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DebbieB.-Connecticut State Captain ¡Feliz Cinco de Mayo!
Wishing everyone a totally festive day!
Jason Rossi, of course, is involved! 😀
I hope you will all be able to enjoy a nice Mexican meal today! 🫔🌯🌮
¡Espero que te diviertas hoy!

DebbieB.-Connecticut State Captain — Tue, 05 May 2026 07:46:29 GMT

¡Feliz Cinco de Mayo!Wishing everyone a totally festive day!Jason Rossi, of course, is involved! 😀 I hope you will all be able to enjoy a nice Mexican meal today! 🫔🌯🌮¡Espero que te diviertas hoy!
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HIcopd - Hawaii State Captain Yay! The Liberty2 is working and I believe it should serve as we need to provide me with continuous flow O2 for the duration of our trip! I’m SO relieved! Of course, wish it were even smaller, quieter and ran cooler, but I’m happy it’s available.

HIcopd - Hawaii State Captain — Tue, 05 May 2026 02:44:24 GMT

Yay! The Liberty2 is working and I believe it should serve as we need to provide me with continuous flow O2 for the duration of our trip! I’m SO relieved! Of course, wish it were even smaller, quieter and ran cooler, but I’m happy it’s available.
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GAnne answered the question vented propane heat source

GAnne — Tue, 05 May 2026 02:44:23 GMT

Karen i will call a fas company tomorrow before m Wednesday, i figure they would know they do Havac work licensed
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Tags: Heat source

Tags: Oxygen

Tags: vented

GAnne answered the question vented propane heat source

GAnne — Tue, 05 May 2026 02:40:30 GMT

Karen the ones we had come today said i needed a vented heater. The other he said uses your oxygen in home and put off carbon dioxide. i gave another goming on Wednesday whenni went there , it was a nan there that told me with oxygen i need. vented. Hope …
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Tags: Heat source

Tags: Oxygen

Tags: vented

Coach Brandon - Community Manager 🚀✨ May the 4th Be With You… and your breath stay strong today. 💙

Happy Star Wars Day, everyone!

Whether your day feels like a peaceful stroll on Endor… or a full-on battle with the Empire, just know this—you’re not facing it alone. Every deep breath, every pause, every “I’m going to take this at my own pace today”… that’s your kind of strength. And around here, that absolutely counts.

Let’s have a little fun with it…

🌬️ Jedi Breathing Tip: Slow it down. Inhale gently, exhale fully—find your rhythm like the Force flowing through you.
🚶‍♂️ Travel Plans: No need for hyperspace today. A short walk, a comfy chair, or a quiet moment outside can be just as powerful.
🧰 Your Gear = Your Lightsaber: Keep those inhalers, oxygen, and water nearby—you’ve got everything you need at your side.
🧠 Trust Your Instincts: You know your body better than anyone. Listen to it—it won’t steer you wrong.

And hey… let’s be honest for a second—
Even Darth Vader had a whole system built around helping him breathe 😄

💬 Now for the fun part:
If you could pick a Star Wars character as your COPD sidekick, who’s got your back?

🧙‍♂️ Yoda for calm wisdom?
🤖 R2-D2 to keep things running smoothly?
🐾 Chewbacca for strength and loyalty?
👑 Leia for grit and leadership?

Or maybe you’ve got your own pick—drop it below!

However today looks for you—quiet, active, somewhere in between—I hope you find a little light, a little laughter, and a moment to just breathe.

🌟 The Force is strong with you!

Coach Brandon - Community Manager — Mon, 04 May 2026 19:49:29 GMT

🚀✨ May the 4th Be With You… and your breath stay strong today. 💙Happy Star Wars Day, everyone!Whether your day feels like a peaceful stroll on Endor… or a full-on battle with the Empire, just know this—you’re not facing it alone. Every deep breath, every pause, every “I’m going to take this at my own pace today”… that’s your kind of strength. And around here, that absolutely counts.Let’s have a little fun with it…🌬️ Jedi Breathing Tip: Slow it down. Inhale gently, exhale fully—find your rhythm like the Force flowing through you.🚶‍♂️ Travel Plans: No need for hyperspace today. A short walk, a comfy chair, or a quiet moment outside can be just as powerful.🧰 Your Gear = Your Lightsaber: Keep those inhalers, oxygen, and water nearby—you’ve got everything you need at your side.🧠 Trust Your Instincts: You know your body better than anyone. Listen to it—it won’t steer you wrong.And hey… let’s be honest for a second—Even Darth Vader had a whole system built around helping him breathe 😄💬 Now for the fun part:If you could pick a Star Wars character as your COPD sidekick, who’s got your back?🧙‍♂️ Yoda for calm wisdom?🤖 R2-D2 to keep things running smoothly?🐾 Chewbacca for strength and loyalty?👑 Leia for grit and leadership?Or maybe you’ve got your own pick—drop it below!However today looks for you—quiet, active, somewhere in between—I hope you find a little light, a little laughter, and a moment to just breathe.🌟 The Force is strong with you!
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HIcopd - Hawaii State Captain answered the question Random o2 drops

HIcopd - Hawaii State Captain — Mon, 04 May 2026 17:34:48 GMT

What additional/further testing is your provider doing/proposing? Maybe ask if a CPET might be useful in providing more info
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Tags: Random o2 drops

Karen Deitemeyer - Florida State Captain answered the question vented propane heat source

Karen Deitemeyer - Florida State Captain — Mon, 04 May 2026 17:19:37 GMT

[UM_ID:67476], I lived in a manufactured home for about 45 years that had a propane furnace. My husband was an LP gas service man,and also did HVAC work. Have you contacted the LP gas company in your area? They should be able to tell you what's safest …
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Tags: Heat source

Tags: Oxygen

Tags: vented

GAnne asked the question vented propane heat source

GAnne — Mon, 04 May 2026 16:28:58 GMT

Good afternoon, we are trying to figure this out after we had one person come and tell us to put a vented propane heater in our window. This is only when the power goes out.
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Tags: Heat source

Tags: Oxygen

Tags: vented

HIcopd - Hawaii State Captain answered the question Random o2 drops

HIcopd - Hawaii State Captain — Mon, 04 May 2026 16:24:18 GMT

My husband was having shortness of breath. He’s had a bunch of testing and more is scheduled. One of the tests the lung doc is very interested in is cardio pulmonary exercise test (CPET), where H will exercise while being monitored for 9 different things …
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Tags: Random o2 drops