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Has anyone tried NO medication for COPD?
I've been on Breo, now max dose of Trelegy for years. Have severe COPD (emphysema), and just wonder what would happen if I stopped.
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Any recommendations for anxiety and depression meds?
Hi everyone. I'm new here. I'm overwhelmed. My COPD is progressing. I don't have a support system of family or friends that understands. I can't work but can't get approved for disability yet. The stress of everything is getting to be almost too much. …
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Anyone have problems with desaturating during sleep
Hi, Just to share my experience, my FEV1 is approx 90% and my gas exchange is moderately compromised. According to my ‘fit bit’ (night time) and a good pulse ox (day time) and having readings going back over a couple of years, my day time ox is around …
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ADD med helping breathing
Last month I began a new med to treat my ADD. I’ve had issues with focusing like reading, comprehension etc since I was a kid. Incidentally, since taking this medication called Vyvanse, I’ve noticed my breathing has gotten about 90 percent clearer. I …
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Never had any phelm with so many colors
I started out week ago with sore throat, headache and cough. Some wheezing. Went to Dr he thought was sinus infection. Prescribed musnix, Prednisone, and cifdinir.Over the next couple day I was coughing up yellow, pink, dark green and dirt brown phlegm, …
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Stem Cell Research Finally Cures Mild Emphysema in Humans
Study Details | Treatment of Chronic Obstructive Pulmonary Disease (COPD) With Diffusion Capacity Defect by REGEND001 Cell Therapy | ClinicalTrials.gov The Chinese are really pushing hard on this, there population (and the world) are really suffering …
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12
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Regrets
I’m sorry to read how difficult this is for you. There are a lot of positive things I could say, but I’m not sure that would be very helpful for you right now. My suggestion is that you find someone to talk with, a good mental health therapist just to …
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3
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Supporting a Loved One Who Smokes with COPD
Hi everyone, I am new to this community and here to learn. Someone close to me has COPD but is still smoking due to long term addiction. I am trying to support him the best I can but it is hard when he struggles to quit. If anyone here has been in a …
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Sorry for all my negative venting . Here’s something positive 💕
with all my Negative post here’s one good thing that has happened I’ve been caring for a sick puppy around the clock who wouldn’t eat and he’s made a remarkable turnaround and his strong and eager to eat, he kicks his little feet in happiness I’m …
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Using Acupuncture
Has anyone had Acupuncture and found it to help you with breathing or other things? The reason I ask is because I have been having a problem with irregular heartbeats and a friend asked me to try seeing a Acupunctureist. I have been twice now and the …
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Warning (phlegm gross picture ) scared still no help
hello everyone it’s me again lol. I’m still not doing well at all probably worse . I did start exercising and jogging and it was helping a lot but these last two days I’ve haven’t been able to move and only lay on my stomach to breathe . It got so bad I …
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inhaled steroids question
Hi evnewt1 - I agree with Debbie - Breztri is a maintenance medication, and actually contains 3 medications, one of which is a corticosteroid, and is to be used every day, and not "as needed", as far as I am aware. But I'm also just another patient …
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Can anyone recommend an article that clearly explains COPD and the importance of taking taking care
Can anyone recommend an article that explains COPD and the importance of taking care of yourself?
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10
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Is inhaled Glutathione along with Mullein Extract beneficial?
The most common side effects of inhaled glutathione include coughing, wheezing, shortness of breath, chest tightness, and headache. If you experience any of these symptoms, it is important to talk to your healthcare provider 1 . It is …
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Check-In: The Role of Community in Chronic Lung Conditions
Spending time on COPD360Social can be a lot of fun. Connecting with people across the country, learning some of Debbie’s yummy recipes, and catching a glimpse of a cute puppy on Fluffy Friday can bring a smile to anyone’s face. But did you know that …
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My first cold in ages with severe COPD
Hi all - just a question to know what is relatively normal with a cold and COPD. Reminder of myself - alpha 1 antitrypsin deficient - age 57 severe but stable COPD (mix of emphysema and chronic bronchitis). First time in ages with a cold and wow was I …
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COPD + stomach issues. Anyone else experience both?
When you get short of breath, the brain goes into "survival mode" and sends blood (hence oxygen) to the most vital organs. Unfortunately, the bladder and sphincter muscle are not considered essential making you have to "go". In the course of my illness, …
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7
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Check-in: Have you heard about pulmonary rehab?
If you could join a program that was designed to help you manage your COPD symptoms and improve your breathing, would you want to try it? Many people living with COPD may not realize that programs like these are available in communities all around the …
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Pulmonary rehab online
Has anyone used Carda Health, an online Pulmonary Rehab Therapy? My closest facility has a waiting list and is under staffed
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Breathing trainers
As the title suggests I have invested in some breath trainers. Anything and everything to get back in the ocean, at least 3 x a week. Just wanting feedback on the items. The welcare breatheasy, an incentive spirometer and my peak flow meter. I have the …
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Appreciate feedback, new to COPD . Altitude & chlorinated pools…
Welcome RH! Glad you found us. You say you were diagnosed with COPD a few weeks ago. Was this diagnosis made by spirometry? Are the antibiotics for an infection or a maintenance course? Did you recently to the 7000ft altitude? Sorry, but the answers to …
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Do strangers ask you why you are using an oxygen concentrator when you are walking outside?
One neighbor (an acquaintance) and another neighbor whom I really do not know asked me why I was wearing the concentrator. When I didn't answer (thinking they would think better of the question), I told them it was private information. Both were …
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Excessive dynamic airway collapse
hey there, I posted earlier in the month about my suspicion that I have a floppy trachea due to the pain in my windpipe and loud harsh noise that happens when I do my exhale on Pulmonary Function tests. I also have been noticing when I exercise I just …
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Has anyone used Resbiotic. Just saw it advertised.
Hi Mary, I have not heard of this product, but from the name of it I am guessing it has something to do with creating a healthy gut/lung balance. I would be interested to hear if any members have tried this product and their experience with it. But …
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Ecigs and COPD?
Always a fun discussion topic. Here are some facts (from my memory, I did not look these up before writing this post). The most common way people quit smoking is cold turkey. However, success rate is about 7 %. It is the most common way people try to quit. Most people make 7-10 quit attempts before long-term success. FDA approved medications like nicotine replacement gum and patch has about 20% sucess rate. Wellbutrin is about 20%. FDA approved Varenicline (Chantix) is a bit higher. Around 25%, but I think some new evidence shows it even higher. Hypnosis and Acupunture is around 10%. Herbals are less than <10%. e-cigs are currently being investigated and i do not know of any published evidence right now. however, the speculation is that these will fall in around 10% or less. the major problem with e-cigs for cessation is that people use e-cigs to replace cigarettes and do not actually quit using nicotine. my professional thoughts and comments: nothing foreign should ever be inhaled into the lungs! especially for those with chronic lung disese. while many people argue for harm reduction, i only think this has value in people at risk for lung disease and not for those with lung disease. if you play russian roullete with a .357 caliber bullet or a .22 caliber and you get the 1 in 6 spin with the bullet in the chamber, then you will likey be pretty messed up with either bullet in your brain. this is the comparison i use for smoking cigarettes or e-cigs. for people susceptible to the effects of inhalation injury, the ultimate goal is complete abstinence. while i can understand the difficulty in quiting nictotine, the end game for anyone with copd is complete abstinence of any inhalation subtances. any means to achieve this result is a great story and worth sharing. old fashion scare tactics worked for my dad in a cold-turkey attampt, but overall low success rates. anything short of abstinance means there is still more work the person can do to improve their health. hcps should always be ready to support people in their attempts to quit and their successes, regardless of the method they chose to help them quit. as a professional and my advise to other professionals is that we should recommend using the approved methods for smoking cessation that works! evidence shows that cold-turkey, (likely e-cigs), hypnosis and accupunture are inferior compared to patch, gum, chantix and wellbutrin. would you recommend to your friend to use somthing that you know has inferior results? for all of those people who claim feeling so much better when switching from cigarettes to e-cigs, then just image how much better you woudl feel if you quit smoking completly! the enemy here is not nicotine, it is smoking nictotine and the inhalation injury caused by any foreign substances. so, if … e-cigs="" are="" currently="" being="" investigated="" and="" i="" do="" not="" know="" of="" any="" published="" evidence="" right="" now.="" however,="" the="" speculation="" is="" that="" these="" will="" fall="" in="" around="" 10%="" or="" less.="" the="" major="" problem="" with="" e-cigs="" for="" cessation="" is="" that="" people="" use="" e-cigs="" to="" replace="" cigarettes="" and="" do="" not="" actually="" quit="" using="" nicotine.="" my="" professional="" thoughts="" and="" comments:="" nothing="" foreign="" should="" ever="" be="" inhaled="" into="" the="" lungs!="" especially="" for="" those="" with="" chronic="" lung="" disese.="" while="" many="" people="" argue="" for="" harm="" reduction,="" i="" only="" think="" this="" has="" value="" in="" people="" at="" risk="" for="" lung="" disease="" and="" not="" for="" those="" with="" lung="" disease.="" if="" you="" play="" russian="" roullete="" with="" a="" .357="" caliber="" bullet="" or="" a="" .22="" caliber="" and="" you="" get="" the="" 1="" in="" 6="" spin="" with="" the="" bullet="" in="" the="" chamber,="" then="" you="" will="" likey="" be="" pretty="" messed="" up="" with="" either="" bullet="" in="" your="" brain.="" this="" is="" the="" comparison="" i="" use="" for="" smoking="" cigarettes="" or="" e-cigs.="" for="" people="" susceptible="" to="" the="" effects="" of="" inhalation="" injury,="" the="" ultimate="" goal="" is="" complete="" abstinence.="" while="" i="" can="" understand="" the="" difficulty="" in="" quiting="" nictotine,="" the="" end="" game="" for="" anyone="" with="" copd="" is="" complete="" abstinence="" of="" any="" inhalation="" subtances.="" any="" means="" to="" achieve="" this="" result="" is="" a="" great="" story="" and="" worth="" sharing.="" old="" fashion="" scare="" tactics="" worked="" for="" my="" dad="" in="" a="" cold-turkey="" attampt,="" but="" overall="" low="" success="" rates.="" anything="" short="" of="" abstinance="" means="" there="" is="" still="" more="" work="" the="" person="" can="" do="" to="" improve="" their="" health.="" hcps="" should="" always="" be="" ready="" to="" support="" people="" in="" their="" attempts="" to="" quit="" and="" their="" successes,="" regardless="" of="" the="" method="" they="" chose="" to="" help="" them="" quit.="" as="" a="" professional="" and="" my="" advise="" to="" other="" professionals="" is="" that="" we="" should="" recommend="" using="" the="" approved="" methods="" for="" smoking="" cessation="" that="" works!="" evidence="" shows="" that="" cold-turkey,="" (likely="" e-cigs),="" hypnosis="" and="" accupunture="" are="" inferior="" compared="" to="" patch,="" gum,="" chantix="" and="" wellbutrin.="" would="" you="" recommend="" to="" your="" friend="" to="" use="" somthing="" that="" you="" know="" has="" inferior="" results?="" for="" all="" of="" those="" people="" who="" claim="" feeling="" so="" much="" better="" when="" switching="" from="" cigarettes="" to="" e-cigs,="" then="" just="" image="" how="" much="" better="" you="" woudl="" feel="" if="" you="" quit="" smoking="" completly!="" the="" enemy="" here="" is="" not="" nicotine,="" it="" is="" smoking="" nictotine="" and="" the="" inhalation="" injury="" caused="" by="" any="" foreign="" substances.="" so,="" if="">10%. e-cigs are currently being investigated and i do not know of any published evidence right now. however, the speculation is that these will fall in around 10% or less. the major problem with e-cigs for cessation is that people use e-cigs to replace cigarettes and do not actually quit using nicotine. my professional thoughts and comments: nothing foreign should ever be inhaled into the lungs! especially for those with chronic lung disese. while many people argue for harm reduction, i only think this has value in people at risk for lung disease and not for those with lung disease. if you play russian roullete with a .357 caliber bullet or a .22 caliber and you get the 1 in 6 spin with the bullet in the chamber, then you will likey be pretty messed up with either bullet in your brain. this is the comparison i use for smoking cigarettes or e-cigs. for people susceptible to the effects of inhalation injury, the ultimate goal is complete abstinence. while i can understand the difficulty in quiting nictotine, the end game for anyone with copd is complete abstinence of any inhalation subtances. any means to achieve this result is a great story and worth sharing. old fashion scare tactics worked for my dad in a cold-turkey attampt, but overall low success rates. anything short of abstinance means there is still more work the person can do to improve their health. hcps should always be ready to support people in their attempts to quit and their successes, regardless of the method they chose to help them quit. as a professional and my advise to other professionals is that we should recommend using the approved methods for smoking cessation that works! evidence shows that cold-turkey, (likely e-cigs), hypnosis and accupunture are inferior compared to patch, gum, chantix and wellbutrin. would you recommend to your friend to use somthing that you know has inferior results? for all of those people who claim feeling so much better when switching from cigarettes to e-cigs, then just image how much better you woudl feel if you quit smoking completly! the enemy here is not nicotine, it is smoking nictotine and the inhalation injury caused by any foreign substances. so, if …>
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