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Age 40 with stage 2 COPD
Hi. I was diagnosed a few years ago when I was 36 or 37. My Doctor at first never told me how important it was to take my medicine and looking back I wish I would have. I have a different Doctor now. I'm taking 2 inhalers and daily breathing treatments. …
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Anyone else suffered diarrhea when flair up accur
Hi I've had COPD since 2021 and at the moment I have a flair up But this time ive got diarrhoea with it and the steroids and antibiotics have not worked as anyone else had this problem
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Excessive nasal mucus
After i shower i must blow my nose 6 or more times. how can i prevent this?
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PFT help. Do I have lung disease?
Spirometry is normal, as is DLCO. Thus- COPD is very unlikely. With decreased TLC ( total lung capacity) and RV ( residual volume)- it is possible you have something other than COPD going on ( the list is very long for this- but they are considered …
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Just heard that GSK's inhaler price caps won't apply to people on medicare/medicaid
Here is the quote & link to the article I read: "GSK’s price cap will go into effect later this year, a spokesperson said, and will be available to all patients, regardless of income. People enrolled in government insurance programs, such as Medicare and …
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Asthma
Just found out from my doctor today that my PFT is consistent with mild asthma even though I had emphysema show on a ct scan. They didn’t say anything about COPD. I dont know if I should request a 2nd opinion or not. I just feel like something isn’t …
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Obstructive breathing, reversible on triple action inhaler in 28M
Hi everyone, I’m 28M, and have been having constant obstructive breathing for the past year. I did several PFT tests which showed irreversible 0.7 FEV1/FVC following ventolin and elevated DLCO (120%). with my pulmonologist, I did extensive testing to …
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Hyperinflation and DLCO
Just wondering if anybody knows if hyperinflation and air trapping have any effect on DLCO? Could it possibly cause DLCO levels to be higher?
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drug interactions with stiolto respimat
About 4 months ago I switched from a 2xdaily steroid based inhaler to the 1xdaily stiolto respimat inhaler. My primary doctor just ordered a cardiac C-reactive protein test, and --- after a lifetime of being told I have the "cholesterol of a kindegartner …
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Test results-should I be worried about it being on the lower end of normal?
I know this number is in the normal range but does anyone know if I should I be worried about it being on the lower end of normal? I don’t have an appointment with my doctor until the 23rd. They didn’t really explain anything to me about this other than …
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Breztri-Is Breztri an appropriate medication for stage 1 COPD?
Is Breztri an appropriate medication for stage 1 COPD? I’ve been a little more short of breathe the last few days so I went to the doctor. My regular doctor is on vacation so I had to see the PA who said I needed to be on some sort of medication and gave …
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Can anyone on here tell us about your lung transplant?
I have been asked by my doctor to consider a lung transplant due my poor quality of life. I am 75 and may not be a good candidate. That's yet to be determined.
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2
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Virtual Meetings
Hi! I am new to the group. Are there any scheduled virtual support meetings either through this organization or any others that you may know about? Thank you!
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Job suggestions plz
Suggestions for either stay at home jobs or jobs where there’s limited contact with sick people. Right now I work with kids and would love to find something else but only went to school for the current job I have. Anyone know of anything? Thanks
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Masks—who should wear them and how to get them?
Found some old plastic for transparencies that we can easily repurpose to make shields will have to make a special template to guide cutting out the little cuts for glasses earpieces one sample shield I made had huge cuts (my dexterity with Matt knife is …
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Doctors performing Zephyr Valve replacement
I am looking for a current list of experienced Doctors in the Northeast who perform the Zephyr Valve replacement.
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Advocacy in America: Reflecting on IMPACT 2024
This Independence Day, I want to honor our amazing team of IMPACT 2024 lung health advocates that I worked with in Washington, D.C., where we asked our lawmakers to take action to support lung health! On March 5, individuals with chronic lung disease, …
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5Th PFT
PFT 1st One Mild obstruction 2nd One Moderate Obstruction suggested Asthma significant airway increase 3rd One Mild Obstruction 4th- Methocholine no asthma 5th One Moderate Obstruction suggested Asthma significant airway increase Attached latest PFT. …
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Can an monoclonal antibody stop too much phlegm?
This January 2024 article seems interesting: Antibody activating an immune cell protein may help COPD controlling NFkB, TNFα, IL-6, and IL-1B. Lets hope it works and doesn't take too long to get through trials. https://copdnewstoday.com/news/copd …
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Caring For The Caregiver
Great post, Amanda Atkinson, MSN, RN! For anyone looking for a video to guide them on diaphragmatic breathing, I found this great video created by a physiotherapist!
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Please can anyone help
Hi Cersei - Is your doctor a pulmonologist? He may not have understood that you were asking about nebulized forms of some of our medications, which definitely do exist. Meds like Albuterol, Arformoterol, Budesonide, Bronchodilators, Steroids, and …
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Check-In: Resource Round-Up
Thanks for posting this Jonnie. Important information
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Is there anything here to explain my significant breathing issues?
I find diet effects my breathing at times. Dairy products and alcohol effects my breathing a lot.. yours could be a different. product.. check to see if you have been exposed to any type of mold. just some thoughts. My allergy test did not show any …
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Need Help with Oxygen Regulator
I recently changed oxygen suppliers and got a new regulator for my M6 tank. It is a pulse one and seems to be shooting out more than my other one did. I only use 2 lpm and notice that it makes a noice and more air comes out than my other regularor. My …
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Thank you
I’ve really been struggling with knowing that I’m not even 40 yet and have COPD. I was definitely in a downward spiral until I came here and spent weeks reading posts and everything else on the website. It has helped me realize that my life hasn’t ended …
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