It's like it's deep in my lungs. Definitely an innate immune response. Can't catch a break, just taking prednisone 6.25 mg daily. Have to see a speach pathologist before anyone will try any further medications. What a load of twaddle. Vocal chord dysfunction ok lets rule this out so my pulmonologist can get on board with the fact i have severe refractory asthma and copd. So bad it hurts like a blow torch is going down my throat. Anyone else get this kind of pain just breathing?
Awaiting tezspire approval on pbs here and hope that helps. 1/2 a liter of lung function lost in under a year... alarming. Can't keep living like this, it's inhumane. Im not sad or upset, not fed up just realistic. I want to say when and how i go out of this life. I've had enough BS from other people telling me my entire life. Trying to control others never works and guarantees the opposite is going to occur from what you intended.
Its why I got exposed to passive smoke so long, its why I wasn't doing edibles before the last couple years. I don't owe anything to anyone and I am ready to go at a time and place of my choosing. If i can't get any symptom relief from any medications over the next 6-12 months then it's not worth prolonging the agony.
Idk if you've ever burnt your throat or lungs but thats what it feels like, every minute of every day. I don't mean with a hot drink either, i mean like raw petrol down there. Only oral steroids gives any relief. I take a pile of pain meds every day, just no opiates. My lungs feel constantly inflammed. The attitude of medical staff at local hospital is pathetic, utter garage, wouldn't bother to turn a hose on them.
Frustrated? No. Happy to have made a plan and decided on what im doing? Yes. After working through Afghanistan, Iraq and everything else I have achieved I will be happy to rest. Just don't plan on drinking round up to get to that rainbow bridge. So I'll be here a while yet. But if another 1/2 liter is lost by next year and i'm not on a transplant list... Advance health directive currently in effect, Not For Resuscitation.