Submit Your Ideas

Who can better brainstorm ways to improve the lives of those living with COPD than the COPD community itself? The COPD Foundation wants to hear your ideas about research, advocacy, education, and ways we can better serve YOU. Your ideas will inspire new goals!

Let’s collaborate. Join our community today.

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— 6 Comments Pulse Ox

W e need a pulse ox that sticks to you skin and gives an alarm when O2 goes below 89

Author: Rosann
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— 32 Comments Stem Cell Therapy for COPD

The results of a quick and dirty research project on stem cell research studies..... If I Google "stem cell clinical trials", I get several hundred thousand results... So, changing to "clinical trials stem cell COPD", I come up with several sites that …

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— 8 Comments Funding for Stem Cell Therapy needed for COPD

Hello, I have COPD an am searching for funding or affordable stem cell therapy, or over seas? Anyone have any leads, Jeanette Even monthly payments would make it possible !

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— 10 Comments Alternative to Showering

Showering is a difficult activity for many of us due to humidity and sheer effort.  On those days when it is really impossible, I have found "no rinse" body baths and shampoos to be an amazing help.  The one I use is like they have in …

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— 12 Comments BAD NEWS -- GOOD NEWS....

BAD NEWS -- GOOD NEWS…. Mary and I teach classes on “Living Well with Lung Disease” to pulmonary rehab patients, to caregivers, to patients at COPD conferences, and to anyone else who will stand still long enough. As a part of our …

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— 1 Comment Safely Secure your Inogen G3

I recently purchased an Inogen G3 POC to use when out and about and particularly in the car and when riding my three wheeled Spyder motorcycle. I love the G3 and it works perfectly for me but I did have one concern. With just a shoulder strap to wear it …

Author: Ken W
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— 0 Comments Knowledge is Power!!!

I want to use this as an example of learning about a disease in order to gain control over it. If I can use our experiences to help others take the time and effort to educate themselves, to help to relieve stress by removing the unknown, then I think …

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— 1 Comment Knowledge is Power !!

NEW CHALLENGE – PART 2! This is the first follow-up to KNOWEDGE IS POWER. If you have not read it, I urge you to do so…please check your email or Facebook. To refresh, we were in the process of getting some opinions as to the advancement of my …

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— 2 Comments SUNDAY AFTERNOON....

   I have been the recipient of a good deal of love in my life. Those of you who know Mary, my wife, companion, love, and caregiver, are aware that much of that love has come from her. We have both been the grateful recipients of the seemingly …

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— 0 Comments How to help?

My 80 year old grandmother was recently diagnosed with COPD. We went to a pulmonologist and they said she was in stage four already. We have her oxygen, medicine, nurses that come to the house, etc. I wasaw just wondering what's the best way that I can …

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— 0 Comments Ads on the site

I wanted to that this opportunity to tell you of a change we are making on the site since you will begin to see small advertisements on COPD360social. It is very expensive to run a site like this. We have to pay for the platform we use, and have to pay a …

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— 12 Comments You Ask and We Deliver – Inhaler Training Videos are finally HERE!

I am pleased to announce that we have added several inhaler training device tutorials to our You Tube Channel. After we complete a website upgrade, these videos will be added to our Educational Video Series located here. Be sure to visit this page for a …

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— 0 Comments PEP Program Report is now Available!

ThePEP Formal Report 2012-2015 is complete! Although the report is dated2012-2015, the data within it is up to 12-31-2014. PEP (Pulmonary Education Program) is a groundbreaking program designed to support Pulmonary Rehabilitation centers with high …

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— 0 Comments Updates to the BFRG and SSRG series released January 2016!

I am pleased to announce a few important updates to our educational materials. The BFRG version 2.2 is out! This update includes an update to chapter B3 – Medications. We added many new medications, tables and charts to this section. We also enhanced the …

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— 1 Comment 2016 awareness campaign

Blog | COPD ATHLETE | Learning how to live with COPD and asthma http://copdathlete.com/blog/

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— 0 Comments SUNDAY AFTERNOON

I have been the recipient of a good deal of love in my life. Those of you who know Mary, my wife, companion, love, and caregiver, are aware that much of that love has come from her. We have both been the grateful recipients of the seemingly limitless …

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— 7 Comments OF LUNGS AND STEM CELLS AND HARRY THE PIG….

There has been much written lately about the possibilities of repairing damaged lungs through the use of stem cells. This is a subject of great importance to the COPD/lung disease community. At this point, the only proven cure for chronic, progressive …

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— 11 Comments How many of us remember these horrible ads?

Many of us got to where we are today from smoking cigarettes, cigars, and pipes. Young people today (especially medical professionals) simply don't understand how, given the potential for tobacco-related illnesses, we started smoking to begin with. What …

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— 0 Comments Form copd360 work groups to help solve our problems

As COPD victims we collectively know more about the disease and its treatment the any of the experts. We should organize into volunteer groups to study issues and problems and provide reports to the Foundation to use to design better medicines and …

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— 0 Comments Tracking of disease

I have had many Cat scans done of my lungs over the past 4 yrs.  Now granted my issues are a bit different from the norm.  (also checking for mets because of a cancer dx, and nodules in both lungs)  Is there any info. on how this dx can be …

Author: Anonymous
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— 1 Comment Fundraising Corporste Partners

I think it is so nice that Nascar helps the COPD Foundation through Drive for COPD.  Thank you.  I wonder if a potential corporate sponsor like A1 Steak Sauce might be interested in helping due to the A1 (Alpha-1) tie-in, and looking for …

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— 7 Comments Find out what could really help COPDers who currently have no voice.

Most COPDers in the USA are older, poorer, and sicker, and they need help the most.  For one thing, most of them are breathing tobacco smoke, either directly or secondhand.  Many of them do not receive adequate health or dental  …

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— 9 Comments Trouble keeping track of your prescriptions and medicines?

Have you noticed every time you go to any Doctor they ask you to list all of the medications you take? Ever have trouble remembering them all. Do you forget when to reorder refills? Do your caregivers know what you take, how often and at what times? I …

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— 3 Comments Updated Listing of Support Groups

is there any place that has an updated list of support groups for COPD, other than the ALA one that only lists ALA groups?  It should include A1AD and COPD support groups.  Thanks for pointing it out, if I've missed the location. We'd like to …

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— 0 Comments Business Cards

My advocacy is a support group on Facebook. We have touched the lives of over 1400 people in 30 countries. We currently stand at over 1,000 members, with over 560 reference files. Just like when I was a firefighter and always talked about fire safety, …


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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.