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New to CPAP with hypercarbia
Hi. I was diagnosed with severe emphysema (with air trapping and co2 retention) last November after a nasty bout of bronchitis. It took me almost 3 months to see a pulmonologist who ordered PFT test. I also had a sleep study done that was considered a …
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8
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COPD-Dupixent for their COPD
Dang--the internet ate my response. I just bought a new Frio duo pack to keep my Dupixent pen at or above 77 degrees when I am traveling. It is an evaporative technology that cools slightly as it evaporates and doesn't make the medication COLD but keeps …
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2
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Prolonged exacerbation after lengthy baseline
Unfortunately, I can't give you an answer to your questions either, but I would be interested to know what your lung doctor thinks and how your next test turns out. I'm in a similar situation to you. Mild COPD diagnosed at 41 in April last year, have an …
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8
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Bad breathing and heavy chest while on Prednisone?
Does anyone experience a bit more labored breathing and chest tightness while on Pred.? It seems like every time I'm on it my breathing becomes labored at times and my chest feels heavy. I though this was supposed to open you up. I've been on this many …
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3
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Air trapping, standing up dizziness with normal oxygen saturation?
Hi. I'm 29. I smoke. It seems like i have a bit of dyspnea. I noticed almost everytime i stand up quickly i have dizziness. I'm on sertraline, idk if it can be that. My oxygen saturation at rest is 99%, even when i feel this shortness of breathing. My …
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9
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Full Pulmonary Function test HELP
This is very Severe COPD ( Stage 4, based on FEV1 at 24% with marked decreased FEV1/FVC at 31%). You also have significant air trapping ( RV at 330%) and DLCO is marked reduced at 54%. Some of these numbers can improve with treatment and stopping …
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1
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Really sad about PFT results
Lung function values can vary up to 10% from day to day. You have normal spirometry, Lung volumes and diffusing capacity. The change in FEV1 ( given that this remains over 100% both pre and post BD) is something to watch ( but not worry too much about). …
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Check-in: We're Celebrating Pulmonary Rehab!
Have you ever heard of pulmonary rehab and wondered what it was all about? You're in luck! The COPD Foundation is celebrating Pulmonary Rehab Week by bringing you helpful information all month long! If you want to get a sneak peek on what's to come, …
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3
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travel
Does anyone have tips on how to travel with a suitcase and a POC- do you take a larger suitcase and put the poc in there when not in use? Do you find a backpack when evenly distributed was more convenient? lugging luggage around with copd is really hard. …
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4
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Check-In: Have You Heard About CLEAR?
People with chronic obstructive pulmonary disease (COPD) in rural areas sometimes have trouble finding care. They may have a hard time getting health information. That’s why the CLEAR program—COPD Learning, Education, Awareness, and Rehabilitation—is …
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10
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Check In - Thoughts on Pulmonary Rehab
I've never been in an official Pulmonary Rehab program only because I always exercised even though I was smoking until 4 years ago. After quitting and treating my COPD properly I just continued with exercise. I believe exercise has saved my life. I feel …
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9
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How does Ohtuvare work for you? Are you also taking other meds?
I've been taking this newly FDA approved med for 1 month. Also taking Trelegy. Good results. I'm not seeing any of the possible side effects. I no longer feel the Trelegy "wearing off" at the end of the day. I have stopped regular use of my Albuterol …
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7
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Check-in: Have you heard any myths about COPD?
November 15 is World COPD Day! While there is a lot of great information out there on how to live well with COPD, unfortunately, it is easy to find misinformation, too. In honor of World COPD Day, we are diving into some common myths about COPD. Do any …
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5
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Check In: How Do You Set Goals for Quitting Smoking?
I wasn't very "smart" - maybe if I had been, I would have quit many years earlier? In 1991 my then PCP told me that I was getting emphysema and would be pulling around an oxygen tank in a couple of years if I didn't quit smoking. That scared me, so I …
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7
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Pain on breathing in
Yes - I am making an appointment with my doctor! I have had this intermittently for years and have not keeled over yet. But the pain has become more frequent in the last few weeks, along with some other issues. So I will be fully reviewing with my doctor …
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3
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Test results
Hi i have recently been diagnosed with moderate emphysema i have since stopped smoking but do not understand results could anyone help Acrobat Document: 4080959710_20250507_1625- SDMARESULT.pdf - Spirometry Test Coded entry - Forced expired volume …
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4
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COPD or just reversible bronchitis caused by heavy smoking?
Hi. I'm 29. For the past few months i've been smoking a lot of rollies with heavy tobacco, even 20 a day maybe. I've been feeling breathless while doing some effort but for the past days I noticed i feel a little without air even at rest, especially at …
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3
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Chronic Bronchitis, Does It Come And Go?
Hello, I'm new to this site and don't often post on social media, but i have a question thats causing me a lot of anxiety lately. I'm in the midst of another bout of prolonged bronchitis (two months so far, so not acute). Disgnosed with "mild COPD" three …
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3
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Lower pft
Had a pft as I was just recovered from influenza a. My score fev1/fvc was 68% post bronchodilator. It was 73% at the start of the year. I was also on SSRI medications and agomelatin which caused serotonin syndrome. I believe these drugs can also damage …
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27
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Anyone here living a long time with emphysema?
Hi, The graph shows life expectancy (for males) beyond 65, dependent on smoking status and COPD stage at 65... I think if you can get to 65 in stage 1 or 2 and quit smoking the outlook is fairly bright (on average / all things being equal)... One thing …
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3
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Doctors refusing me med/makes little sense to me
Hi Brittishere, I’m also based in the UK… Have you considered seeing a pulmonologist privately??? It’s around £150, at my initial appointment the pulmonologist spent over an hour talking me through my numbers / diagnosis / prognosis he now looks after …
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5
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Smoking-Am I wrong?
I don't want to use trelegy or inhale anything other than fresh air or oxygen. Just quit smoking 4 weeks Am I wrong?
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5
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Is there any new phlegm control available in 2024?
Is there anything new in 2024 to stop or control excess phlegm in my lungs? Mine gets triggered just after I eat, not usually from what I breathe, and it usually does not matter what I ate (not just dairy stuff).
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7
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Multiple nodules. VERY scared
First things first, my sincere thanks for maintaining this forum in which people with a diagnosis or a suspicion of lung cancer can raise our doubts and expose our fears. I am scared to death. I have a recent diagnosis of rheumatoid arthritis. I am a 55 …
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3
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What is an esaserbation?
Breathing issues
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