Hi, just wondering how many people have heard of this novel therapy in development? Currently in stage 1 clinical trials. I have contacted the company and may be eligible for stage 2-3 clinical trials. The therapy has already been administered to several participants with good safety. Awaiting published data but if it is successful and safe there will be compassionate access for those that qualify.
Just hoping things remain stable for me and I am able to participate. Advanced health directive remains the same for me, NFR. However I have been working out daily and noticed some improvement in symptoms and quality of life. This therapy and the Chinese option are definitely giving people suffering this condition hope.