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travel
Does anyone have tips on how to travel with a suitcase and a POC- do you take a larger suitcase and put the poc in there when not in use? Do you find a backpack when evenly distributed was more convenient? lugging luggage around with copd is really hard. …
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4
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Check-In: Have You Heard About CLEAR?
People with chronic obstructive pulmonary disease (COPD) in rural areas sometimes have trouble finding care. They may have a hard time getting health information. That’s why the CLEAR program—COPD Learning, Education, Awareness, and Rehabilitation—is …
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10
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Check In - Thoughts on Pulmonary Rehab
I've never been in an official Pulmonary Rehab program only because I always exercised even though I was smoking until 4 years ago. After quitting and treating my COPD properly I just continued with exercise. I believe exercise has saved my life. I feel …
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9
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How does Ohtuvare work for you? Are you also taking other meds?
I've been taking this newly FDA approved med for 1 month. Also taking Trelegy. Good results. I'm not seeing any of the possible side effects. I no longer feel the Trelegy "wearing off" at the end of the day. I have stopped regular use of my Albuterol …
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7
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Check-in: Have you heard any myths about COPD?
November 15 is World COPD Day! While there is a lot of great information out there on how to live well with COPD, unfortunately, it is easy to find misinformation, too. In honor of World COPD Day, we are diving into some common myths about COPD. Do any …
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Check In: How Do You Set Goals for Quitting Smoking?
I wasn't very "smart" - maybe if I had been, I would have quit many years earlier? In 1991 my then PCP told me that I was getting emphysema and would be pulling around an oxygen tank in a couple of years if I didn't quit smoking. That scared me, so I …
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Chronic Bronchitis, Does It Come And Go?
Hello, I'm new to this site and don't often post on social media, but i have a question thats causing me a lot of anxiety lately. I'm in the midst of another bout of prolonged bronchitis (two months so far, so not acute). Disgnosed with "mild COPD" three …
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Lower pft
Had a pft as I was just recovered from influenza a. My score fev1/fvc was 68% post bronchodilator. It was 73% at the start of the year. I was also on SSRI medications and agomelatin which caused serotonin syndrome. I believe these drugs can also damage …
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5
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Smoking-Am I wrong?
I don't want to use trelegy or inhale anything other than fresh air or oxygen. Just quit smoking 4 weeks Am I wrong?
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5
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Is there any new phlegm control available in 2024?
Is there anything new in 2024 to stop or control excess phlegm in my lungs? Mine gets triggered just after I eat, not usually from what I breathe, and it usually does not matter what I ate (not just dairy stuff).
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Multiple nodules. VERY scared
First things first, my sincere thanks for maintaining this forum in which people with a diagnosis or a suspicion of lung cancer can raise our doubts and expose our fears. I am scared to death. I have a recent diagnosis of rheumatoid arthritis. I am a 55 …
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What is an esaserbation?
Breathing issues
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can you improve your lung function?
Yes, if you quit smoking and stay away from pollution. If you are asking about emphysema, unfortunately alveoli cannot repair themselves. According to Check 4 Cancer a UK site "When you quit smoking, dormant cells in the lungs will start to replace the …
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3
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Roflumilast
Why do you need to go to a higher dose of roflumilast? What dose that do for you? What sets the dose? Why take more if you cannot stand the side effects? Some side effects are stated as effecting your mental state. I would not want that.
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4
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Pulmonologist lying about my result
I have been a smoker for 25 years and have been really sob lately , I got a X-ray that showed hyperflationed lungs and had to fight with my doctor to get a referral and a test for my lung function so finally got it . He said everything was ok even though …
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6
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Copd stage 4-So my partner got diagnosed with copd in 2018 stage 3
So my partner got diagnosed with copd in 2018 stage 3. We attended an respiratory appointment last month as his breathing is worse after a few tests its now reached stage 4. hes been given a nebuliser to use at home as simple things like bending over …
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7
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Has anybody had any problems with getting pneumonia while using trelegy ellipta ?
Was recently prescribed trelegy and am concerned about information that I have seen about it causing pneumonia.
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1
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Has anyone tried the Carda Health at home rehab ?
I see they are rated well online, but I have grown leery of ratings. Can anyone tell me how they liked 12-week program? Seems Medicare covers it. not sure what i the cost is. They loan you monitoring equipment and a I pad for the program.
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8
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End-stage? I kinda don't think I have the end-stage COPD.
Hi all, I was just browsing my medical records online (patient portal) and saw "End stage COPD". I googled what is meant by "end-stage" and it said that I should look for exacerbations. I had one last December and it put me in the hospital for 2 days. …
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2
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Exercises to Reduce Air Trapping
Hi again RedPower - Pursed lip breathing is an exercise which works to eliminate the trapped air. Here's a video which explains it and also diaphragmatic breathing - I hope it will help. I do pursed lip breathing almost unconsciously all the time, …
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3
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Tubing kiniking
Hi! My mom is on oxygen therapy and uses the 50 foot tubing- but sometimes it seems to kink up super fast- any tips or tricks to reduce this? I have seen some people say on line put it in the dryer or warm water- is that safe to do? Has anyone tried it? …
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Is it copd or asthma or anything?
I have a history of intermittent asthma , but last 6-7 months mild to moderate breathlessness persist mostly in activity and walking, inhaler not working now , did pft where fev1 82 to 77 in post , and fev1/ fvc 83 to 76 post , normal hrct chest report. …
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14
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I'm new to Trelegy - What results have you had?
Welcome Dave.....I'm also a Dave.....I've been using Trelegy for 7+ years and it works well for me. I remember it taking several weeks for it kick in completely. I'm not on oxygen and my O2 levels are always -96-97-98. A few years ago I switched to Anoro …
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2
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Advair and hoarse voice
Hi netmouse - I'm sorry you're having this side effect. Are you using a spacer? If not, ask your doctor to prescribe one for you - it may help. It gets the medication farther down past your throat. Here's a video: Well, I don't know why it won't …
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My CT scan reported the below and now I am very afraid.
Advanced COPD with incipient fibrosis and emphysema in chronic bronchitis with numerous pulmonary and pleural granulomas requiring monitoring, particularly in the right middle floor.
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