0 Votes
3 Answers
Any have SOB. yet O2>93%?

I've been experiencing a lot of SOB, yet I'm getting 94% O2 readings. Also, the other day I was outside, medium humidity & 82F, my PulseO2 was showing 85%. But I wasn't experiencing any breathing problems. The meter was in the shade al this time too. …

Author: edpe77
0 Votes
9 Answers
Pain

does anyone get sudden pain like your lungs are cramping that seem to last about 10 minutes?

Author: DaveVan
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0 Votes
7 Answers
Get a 2nd Opionion, or Wait? (Long read)

Hi all, thanks for being here. I am having a trouble making a decision and thought some of you may have some insight that could help. This is a long post but I want to give the entire story so it makes sense. I'm a 47 yr old female who is pretty …

Author: Speshe
0 Votes
3 Answers
Canula cleaning

cleaned my canula with gentle soap and rinsed well. It took forever(3days) before there was no water in the tube. Think it may not be too sanitary. Anyone help with correct way to clean? The tubing does not detach from the nasal part

Author: Evie
0 Votes
4 Answers
Is there a home-based Pulmonary Rehab Center near you?

Maybe there should be! This recent study shows that a home based PR program following a one-week onsite PR training works. This is the first study of its kind, evaluating the effects of a simple, low cost home based PR program. You can check out the …

0 Votes
6 Answers
No longer in need of oxygen? Share your experience.

Is There anyone who has been on Oxygen 3 or more years..? How did you or your provider reduce the levels? e.g. from 3-1 or 2-0. How did you feel? Were you able to function without a walker,or a cane? Please if you don't mind,share your experience..

0 Votes
6 Answers
Anyone tried Power Lung?

Hello everyone, I purchased a device called "Power Lung" from Amazon in an effort to improve my breathing. I'm one session away from being through with Pulmonary Rehab, am using my treadmill 15 min. per day and my elliptical bike another 15 min. but I …

Author: cynthiajk
0 Votes
7 Answers
Asthma College

There are flyers circulating in clinics from the " Asthma College" any one know of them? The flyer has all medications mixed up on one sheet. I was recently informed that Asthma and COPD medications are the same. I disagree,Asthma medications slow me …

0 Votes
6 Answers
New diagnosis which requires chemotherapy

I have received an early "Christmas" present - a new diagnosis of breast cancer. I will start chemotherapy the first week of January. Does anyone have experience with COPD and chemo interaction? I would appreciate hearing your experiences and any words …

0 Votes
2 Answers
Copd & Cor Pulmonale

Hi, My father aged 65 is a Copd patient and is on supplemental O2 for around 15 hrs (2.5 LPM) from last one year. From last a few months, he often suffers from exacerbation and edema in feet and ankles. For that he is taking antibiotics & diuretics. …

Author: Jeelani
0 Votes
2 Answers
Does outdoor pollen affect COPD

How much does high tree and grass pollen affect COPD and does wearing a mask outside when levels are high help? I wear one when I dust and clean.

Author: Angie67
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0 Votes
6 Answers
My 50 foot hose is killing me! HELP

Has anyone discovered a device that will help me CONTROL of my air line? It gets in knots by looking at it and forms kinks.

Author: Dirtydoc57
0 Votes
1 Answers
Smart COPD Inhaler

Hi guys This is something i discovered few days back. There is something called as a Smart Asthma Inhaler by Aerobit Health . I have to say, its just great. I had requested them for a demo, and i jumped on a call with one of their executives. The idea is …

0 Votes
8 Answers
POC to carry when traveling

I have just recently been approved for supplemental O2 during the day when I exsert  myself. I have been sleeping with O2 at 2 lt continuous flow for about one year. Because I only want to take short 3-4 day trips, saying different palaces each …

0 Votes
6 Answers
What Nuggets of Information Can You Share from May 2018 American Thoracic Society Conference?

I attended the conference in San Diego as did Jean Rommes, Jaimie, Cara, Karen, plus over 16,000 doctors and other healthcare professionals. This is a place to share highlights of what we learned

0 Votes
1 Answers
Incruse Ellipta - Video

Does anyone know what Video I should watch for the Incruse? Or the link? It seems like any of the disk inhaler videos might work?

Author: Anonymous
0 Votes
4 Answers
Our Forums are Findable on Google

Hi I didn't realize all of these Q/As are indexed on Google (and assume other search engines). They can be read without logging in. I don't think these should appear in searches for reasons of privacy

Author: Jastro
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0 Votes
6 Answers
Muscle & Body Ache

I would first call the Dr. and discuss this to see if one of the meds is doing it - maybe there is a change tht can be made. Also, even if you had the flu shot, it's not 100% so you may just have a touch of it. The doctor would want to know for sure! …

Author: di545
0 Votes
2 Answers
Is My Pulmonologist doing a good job

That is great news that your lungs are clear and your O2 is good. Yes, what your pulmonologist said sounds right and you should definitely follow his advice. A different doctor might give you another inhaler but that won't solve your problem, it would …

Author: Angie67
0 Votes
4 Answers
Community resources

hi, my boyfriend has COPD. He hadn't been keeping up with it like he should due to no health insurance. Anyways he just spend 6 days in the hospital, now he's on 02 24/7. Hes a truck driver, so now he can't work either. Hes over whelmed and dont know …

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0 Votes
3 Answers
Trilogy Machine

Hey everyone! My mom will be sent home with a trilogy machine this week and I have a couple questions. Is there a respiratory therapist that can come in the home and show me how to use it? I live 2 1/2 hours away and I have severe neuropathy and I have …

Author: Anjie
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0 Votes
3 Answers
Alpha 1 Test for free.,Anyone participated.?

There are quite a few research groups,out here. This is the first one I signed up with in2014.. Today I received an email offering the Alpha test for free. Along with the free test they also want to know your next Dr.s appointment. I do not want to be …

0 Votes
2 Answers
Why should you see a pulmonologist?

Are there specific things that a pulmonologist can do that say a respiratory specialist cannot do?  In coal country we have several different specialists who deal with asthma, allergies, black lung, and sinus conditions.

0 Votes
2 Answers
Fingertip blood pressure and oxygen monitor

I need to get my mum a oxygen and blood pressure monitor, can anyone advise of best one from experience? I'm in the UK. TIA

Author: HB
0 Votes
19 Answers
How healthy is one's constant focus on their severe COPD

What a fascinating topic! Ken, thank you so much for bringing this up. It's worth thinking about, and discussing. As Hack said, pretty heavy stuff. Although I don't have COPD (but I do have asthma that seems to be progressing), in working with people …

Author: Ken W
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.