0 Votes
8 Answers
Can anyone tell me how often the hose to your oxygen condensor should be changed?

My oxygen hose that connects me to the concentrator is getting very rigid and kinks off the oxygen flow. Does anyone know Medicare rules for how often they are to be changed? I know that the cannula needs changed every 2 weeks.

0 Votes
13 Answers
Dealing with loneliness

Also bear in mind that EVERYONE is on a timeline from the second they're born until the end. Perfectly healthy people get run over by buses every day. Forget about the timeline and spend the rest of your life living, not waiting to die. My three cents' …

Author: Obiron
0 Votes
2 Answers
Patient Opportunity

Hi everyone! Physicians Education Resource (PER ), is launching Provider and Caregiver Connection (PCC)™- Novel Approaches To Optimizing Outcomes in COPD. The PCC is an online activity with the twofold aim of updating clinicians through the use of …

0 Votes
7 Answers
What can you do for low energy?

I do not know about everyone else but by the end of the dayI feel worn out. That and headaches seem to be my new norm. That worn out feelinggoes with my memory sometimes. I have tried naps and that has not been any helpso far. Being sob doing the …

Author: CharlesH
0 Votes
3 Answers
Non-Smoker

I'm doing a cardiovascular risk calculator on weather to take a statin or Not, and I tried to Google the answer to this Question? Do I input in as a smoker or non-smoker, it says as an ex smoker your cardiovascular risk goes down after a few years. I'm …

Author: Anonymous
0 Votes
7 Answers
New oxygen user

So i now met criteria for ox use when im active. Bummer as i hate to be “tethered” anyway my question is will medicare help pay for a POC so i can go out without the heavy tanks?

Author: Evie
0 Votes
2 Answers
Do people using SmartDose Mini from Drive believe it does what the company says it will?

The SmartDose Mini manual says, "The normal volume of oxygen that SmartDose delivers is 16 ml per setting, so that a setting of 2 delivers 32 ml of oxygen on each breath, in the first 2/3 of the inhale cycle. SmartDose monitors a patient’s breathing …

Author: change
0 Votes
7 Answers
Using Pulse Oxymeter during Walking

Hi guys. I would like to ask. Can we use pulse oxymeter during walking? Thank you. Here is my result of the pulse oxymeter that I took while on sitting down.

0 Votes
5 Answers
What Happens if I miss O2 (2liter) for a night?

What Happens if I missO2 (2liter) for a night? I was told 93 to 81 at night without the O2

0 Votes
3 Answers
Dairy/keto diet and copd

I was getting excellent results with my breathing on the keto diet in the first three months. I am now feeling short of breath all the time. I am wondering if it is because of the high fat dairy I'm using. Anyone have any ideas? (whipping cream in my …

Author: kat48
0 Votes
10 Answers
MY TIME/DISTANCE ON THE TREADMILL IS GOING WAY DOWN?

Look at the possibility that you are retaining CO2. If you were, you would be short of breath and still show safe saturation' of oxygen.

Author: Chippie
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0 Votes
10 Answers
What are your experiences with pneumonia?

A few months ago, we asked theCOPD360social community about their experiences with community-acquiredpneumonia. These questions were part of a COPD Foundation project. We areinterested in gathering more information on this topic. If you have hadpneumonia …

0 Votes
5 Answers
How do I find a Pulmonary Specialist?

The only way is to simply ask your PCP for a referral and don't take no for an answer. If your PCP refuses, find a new PCP.

Author: Burma
0 Votes
11 Answers
Does anyone else notice a relationship between stomach and breathing. When my belly is bloated, sore

If your on prednsione that is a good one to cause swelling of the stomach such as bloating. Certain foods that cause gas will bloat too.

Author: dustybill
0 Votes
1 Answers
Can anyone share any available information on Service Dogs for Respitory/COPD patients.

I’ve had COPD for a few years and can’t imagine what I would do with a service dog. What do you hope to use a service dog for?

Author: timm
0 Votes
3 Answers
What do you want to advocate for? Join the State Captain Network Today!

Do you worry about the high cost of your medications? Is there a pulmonary rehab program close enough for you to attend? Can you get all the O2 equipment you need when you need it? What worries or concerns do you have? These are questions many people …

0 Votes
6 Answers
COPD and sinusitis

Since my diagnosis 6 months ago, it seems I've constantly got a sinus infection. I have an upcoming ENT appointment but it's still a month away. Hoping they call me earlier with a cancellation. Also alot of post nasal drip, Wondering what affect infected …

Author: JeannieM
0 Votes
3 Answers
Are there any damages to your oxygen dropping into the 70's multiple times a day everyday?

I've been taking care of my mom who is usually on 4L of oxygen resting and 5-6L when up and around. For the last few months I have observed her more SOB when she's up and moving around. Nothing has changed. She participates in pulmonary rehab which seems …

0 Votes
6 Answers
Overdose on o2?

I went on cpap last Sept. I had mild sleep apnea with not so mild headaches. Then in Nov, I was placed on o2 for exercise and other activities, like vacuuming, etc. My headaches continued and my pulm doc added 1lpm o2 thru the cpap about a month ago. …

Author: 2cents
0 Votes
7 Answers
Rescue Inhaler is this a 911 inhaler?

I suggest you call your doctor and ask them to explain to you very clearly exactly how they want you to use your rescue inhaler. The name implies whenever you need it but albuterol sulfate is a pretty potent drug. I wouldn't take it more than your doctor …

Author: Anonymous
0 Votes
3 Answers
Navage System

Has anyone used a Navage to alleviate the dryness in your sinuses and the headaches?

Author: Gracie Lou
0 Votes
3 Answers
Can't breath,why

You mentioned a couple of things, one that this has been going on long term so I am assuming you were short of breath prior getting the pneumonia. You also mentioned being in the hospital for hip replacement surgery. My guess is that leading up to the …

0 Votes
5 Answers
Non-U.S. treatments for COPD

Is anyone aware of copd treatments that are approved outside the U.S. but not in the U.S?I am aware of the coils, which are in use in Europe. Any other cutting-edge treatments outside the US?

Author: jkm
0 Votes
1 Answers
Spirometry results - normal

I have my spirometry results back and must confess am totally confused. Based on my research and limited understanding – it seems my lungs are doing quite well. Can anyone throw some light on what I may be missing or misinterpreting regarding having …

0 Votes
13 Answers
New Type of Nasal Canula

WE like to keep our community advised of new innovation in COPD products. While we do not endorse any products I did want to tell you about a new oxygen canula called the Uni-Flo 2. What makes this interesting is it is only a single nostril canula and …

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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.