Would like to know if anyone has tried Trevent and if they have any idea of the cost. Thanks

An article in the lattest issue of Pulmonary Paper, recommended it as an excellent supplement for COPD. Among other things it reduces CO2 build up. I'm hopping for some weight gain. ed

Hi, I’m new to this group. My mum has COPD only formally diagnosed 2 months ago but we suspect she has been living with condition much longer. As well as COPD she also has polyneuropathy and has been a wheelchair user for a number of years now. She …

I smoked years ago and it has been 13 years since. My mother and sister both smoke and they have it. I run marathons and never had an issue breathing. I went to the hospital because I do have High BP and the chest X-rays was clear but then I got a CT …

I’m brand new to oxygen. The DME my pulmonologist sent my Rx to us delivering my POC and home continuous flow unit Monday. All they’ll tell me is that it’s a pulse unit and a continuous flow unit. I really need a light weight unit because I have back …

This is the first time I am using Spiriva, and have been inhaling for over 1 1/2 hours now. Is this normal? I don't have much breath, I have mild copd & emphysema, but I thought it would take about 5 or 10 minutes to inhale this product. It is still …

How does one qualify for different types of lung volume reduction surgery?

Several months ago I came across a site that was posted by one of our members regarding LVRS. It is excellent and explains the procedure and the steps working up to and following the surgery. It was written by an actual patient. The problem is I can't …

I got wondering about bags to carry an oxygen cylinder. @thor159 posted a picture of a newly acquired bag to carry an oxygen cylinder on a hike. It had not occurred to me to replace the one given to me with my oxygen cylinders. What do you use? What …

First I would like to wish everyone a Happy New Year! I am on oxygen 24/7. I am going on a cruise in Sept, 4 days, I think. What advice does anyone have to best prepare and get the most out of this vacation. Thanks everyone for your input.

Hi guys, I'm new on here. I'm 60, married, born with cerebral palsy, asthma all my life (although not diagnosed until age 22. I've literally had bronchitis over 400 times in my life, and pneumonia 5 times. I use Albuterol and Ipratropium for my nebulizer …

It is becoming necessary to have heat as we progress in to winter in my neck of the woods. I have a choice of natural gas or electric heat. Anybody have suggestion as to which would be less harmful? If it is relevant the CO2 readings in the house vary …

Has anyone found Spiriva, or any daily meds, to make your breathing worse ?

It seems that every day at some point whether  sitting, driving, walking in a store, eating lunch... I get that "elephant" and for a period of time (hour to two hours) have sob... it passes as oddly as it comes. I use my nebulizer and/or proair …

Just wanted to wish everyone a Merry Christmas

my le els jave dropped from 94 to 83% at rest for more then 10 minutes. Just starting polmanary rehab . in Jan 2019.i am not pn oxygen and pol.anary doc siad 02 was o.k. at walk so it shouldne fine. Whe. Should i be concerned??

After reading some Q & A when I first joined, I saw something about Alpha-1. Given that my husband's mother died of COPD and my husband has severe COPD, I suggested he be tested. He does, indeed, have the gene. He's been talking with a Prolastin rep …

I met with a thoracic surgeon today as a referral from my pulmonologist. No definitive decision on surgery yet, he want 2 more tests. But he did discuss the potential/likely surgery. It would be a lung volume reduction surgery for both lungs. He …

Thank you, Stephanie, for opening the discussion about Concentra tors >>> It is a very serious issue that needs to be addressed for stage 4 COPD sufferers >>>> Concentrators as the word indicates CONCENTRATES the air by removing Nitrogen ONLY…. as you so rightly point out >>> This NEW AIR …

Do you get your Respimate in a box with a direction sheet on how to insert the small cylinder into the larger inhaler? That sheet also has instructions on how to breath in the medication. Most inhaled meds say to wait one minute before taking another …

I had been taking Symibicort, Spiriva and Combivent Respimat for several years. Recently my dr. suggested substituting Anoro Ellipta for the first 2, and it seemed like a good idea in light of the cost savings. My Part D provider at the time was charging …

Hi, I went for a spirometer test yesterday and she said my readings show I have copd although she didnt think it fair to diagnose it as I have a very phlegmy chest and wants to re do it, OMG I hadn’t even heard it copd until then, what if it is?? I’m …

I am new to oxygen. One thing I do twice a week is the water arthritis class. It's slightly less strenuous than water aerobics, so I don't get too winded. . . I've been doing this for 6 years. When the Doc prescribed oxygen I had visions of fighting …

Thank you for that explanation Jane it really is an EXCELLENT question and a BRILLIANT ANSWER >>>> Thank you >>> I feel the need for a short leaflet explaining each and every test for COPD and the reasons behind it BEFORE the test is taken should be handed to the patient …

Hi all, anyone else on Cellcept having a side effect of being extra tired?