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reading some Q & A when I first joined, I saw something about
Alpha-1. Given that my husband's mother died of COPD and my husband has
severe COPD, I suggested he be tested. He does, indeed, have the gene.
He's been talking with a Prolastin rep and received paperwork to begin
infusions, but no one will tell us how much it all costs. The papers
they want him to sign say they'll bill our insurance, but if it's not
covered, we're liable. That makes sense, of course, but not if we have
no clue how much it costs.
Does anyone have any insight into this?