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51
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COPD10usa conference updates!
The COPD10usa conference is less than a week away! Follow this thread on Friday July 28, 2017 and Saturday July 29, 2017 for real-time updates on the conference and the patient workshop.
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4
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Mask-Anyone else find it harder to do breathing with it on?
I find it obviously harder to do my breathing with it on. Anyone else
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17
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What is your take on weight gain?
My question pretains to weight. I went and got my shot for my knee and in 1 month time I gained 2 pounds more. Really upsetting .. the nurse said it could be from having COPD and water weight from salt intake. What is your take on weight gain?
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3
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Becoming a State Advocacy Captain or Co-Captain
On a reply in an earlier thread Mooseman asked how he could become a COPD Foundation Advocacy Co-captain. I answered him, but the thread has so many replies that neither his question nor my response is easily visible. So - since it's a great question, I …
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4
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Trouble eating with COPD?
From the COPDF Blog: Dear COPD Coach, I have stage 4 emphysema. It is impossible to eat without immediately feeling chest tightness or bloated like I am about to explode. I read about how the diaphragm gets pushed by the stomach and how it changes shape …
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Everyone stay home please!
Hu Everyone Please follow your states request that you stay home, wash your hands frequently and stay away from people! The sooner we do this , hopefully the sooner we get out of this Coronavirus mess!´ I’m in Canada, it hasn’t hit too hard yet, we’ve …
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List of Meds
Here's the page with the clear med list: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx I found the list quite helpful with my Dr -- we had a singular reference sheet --
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7
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NAC
Has anyone heard of, or use the amino acid supplement called NAC (N-Acetyl-Cysteine) ? It is supposed to be helpful for cystic fibrosis and COPD. I also read it is given in the ER for Tylenol overdoses. Just wondering if anyone takes it or knows of it.
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13
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Exacerbation-cause any long term issues?
Has anyone had permanent issues with an exacerbation, I'm feeling much better, just curious if they caused any long term issues, even if it is mild. Not a whole lot of literature of possible damage, lots of articles how to prevent them and how to take …
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5
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Do you change liters on your machine?
My deal with my pulmo is that I keep my O2 saturation sats between 92 and 97 and he really doesn't care how I do that. Since I'm one of the few people I know who regularly use all forms of O2 available for home use (POC, LOX and electric concentrator) at …
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7
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Check In – Quarantine Eating for Health
I just heard a news anchor comment on how she will need to lose her “Quarantine 15” as soon as the lockdown is over. That made me laugh out loud, but probably because it hit close to home. I remember when I was in college my friends and I spent a lot of …
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Colonoscopy or Barium emema
Colonoscopy is it safe ? Ima scared right now to be sedated. Pulmonologist said I should be ok . And stomach Doctor says it will be done at hospital not at normal onsite practice. But ima scared ta death. I have read about a Barium emema seems like a …
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5
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Does anyone experience laryngitis during an episode?
Does anyone experience laryngitis during an episode? Even at rest when breathing is fine my voice is gone. Starting to think I'll never get it back. Thank you!
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4
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Insurance-Any suggestions on companies that operate in Biloxi area?
Looking to move to the Biloxi area. UHC/AARP dose not offer any similar policies to what I have with the medicare supplement in that area unless I am on Medicaid and that is out of the question due to income. Any suggestions on companies that operate in …
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5
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Inhalers-Any advice would be great
Hi guys, I'm new here so I'll introduce myself first. I'm 37 & quit smoking over 5 months ago. I felt fine until 2 months ago when I started getting breathless going up stairs. After the lung function test my result came back at 65%. I am feeling good …
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8
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Ideopathic? Asking for some helpful input.
So my pulmonologist said that my condition is ideopathic. He does not think I have IPF which is encouraging but no diagnosis is frustrating. Numbers are about the same with FEV 1 at 1.53/ 68%. Put me on 3ml with activity. Now opinion please we have …
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8
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How to make Friends on COPD360social
how do "make friends" on here or follow people?
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5
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Fev1-lower when sitting - higher when walking?
Why is my sats lower when sitting. When I walk around they get higher. Seems backwards to me!
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3
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Is severe fatigue that can last for hours a condition of severe COPD?
may be self explanatory but is severe fatigue that can last for hours, come on all of a sudden, a condition of severe copd. Thank you.
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2
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Emphysema? Yes or No?
I asked my pulmonologist if my emphysema last week and he said no. He was not worried about it as it was minimal. Is he telling me the truth?
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4
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Diaphragm-feels like being shoved up into rib cage
Does anyone feel as though their diaphragm is being shoved up in to their rib cage
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Depression-Is this a common reaction?
Since the end of March, I have had 3 eye surgeries and had a pacemaker put in because my heart rate dropped to around 30. I was very depressed after getting the pacemaker which I guess is pretty normal. After the pacemaker was put in in July, I got …
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6
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COPD Educational Materials: Your feedback
Are you familiar with the COPD Foundation’s educational materials? If not, please browse here: http://www.copdfoundation.org/Learn-More/Educational-Materials/Downloads.aspx Which educational piece did you find the most helpful? How would you …
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2
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Risks vs. Benefits
With some unavoidable encounters with people, I worry about balancing risks and benefits. Some things I want to consider are: hospital waiting room while spouse is in surgery the only local source of rye flour is in a small Mennonite store and I have …
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7
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DLCO low-My doctor told me I have mild COPD
My doctor told me I have mild COPD as my Spirometry test came back all normal except my DLCO is 64 which is considered mild low. My doctor said to quit smoking and I will be fine. I am 48 and worried about progression. Is there anything else I can do. …
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