0 Votes
3 Answers
Check-In: Understanding Medicare Options During Annual Enrollment

Choose carefully. Please Know --- You normally only have one chance to choose a supplement w/o answering health questions after you enroll in Medicare. If you want to change, and you have a preexisting condition such as COPD, an insurance company does …

0 Votes
8 Answers
Cheapest place to buy trelegy?

Trelegy is an approved drug for Medicare and nearly all drug plans cover it. WTS, I assume your father is not eligible for Medicare. I think if you go to the site David Mannino MD linked, I think you will find help. You could also go to the …

Author: SnmOkey
0 Votes
9 Answers
Cooking/living while on oxygen

Rahly, there's no reason people with COPD can't cook. I've had COPD for over 25 years, and have been using 02 since 2000 and cooked regular meals for my family all the time. You do have to be careful with the hose and I run it down my back to keep it out …

Author: Tnn666
0 Votes
7 Answers
Does the winter cool wind effect your breathing more that summer? Any suggestions

What seems to effect you more so breathing, the cool windy air, or summer. Any suggestion? Feel like probably stay in out of gold but I want to be active

Author: GAnne
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0 Votes
18 Answers
Quite worried about disease progression

Hi, firstly I'm not a clinician but the graph below indicates those who give up smoking on average loose FEV1 at half the rate of those who continue to smoke (perhaps somewhere near normal) although nothing is guaranteed... So you've already bought …

Author: ricdanko
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0 Votes
9 Answers
Developing a retractable oxygen reel

I am working on a hand crank retractable oxygen reel. Are there any features people look for when they look or a device like this?

Author: Mik786
0 Votes
6 Answers
Swallowing and breathlessness

My breathlessness typically does not present as severe panting or gasping (unless I am exercising to within an inch of my life!). I typically feel that however deeply I breathe in I cannot get enough air. That's what drove me to the doctor years ago. I …

Author: Wildebeest
0 Votes
5 Answers
Frozen lung feeling - new symptom

Hi all (Back story -I have Bronchieastatis and Emphesema.) Since having COVID four months ago I keep developing a freezing cold lung on one side...like a menthol feeling. It comes and goes and when it comes I go GP he gives me antibiotics - this has …

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0 Votes
6 Answers
Reducing exacerbations: does daily azythromicyn help? Side effects?

hello, does anyone have experience with daily use of azythromicyn to help reduce exacerbations? Does it help? What about side effects? I’ve read something about hearing loss. I’ve had 3 exacerbations in the last 3 months, each lasting two-three weeks, …

Author: Ilzija
0 Votes
1 Answers
will the the Inogen poc work at 30 degree temps?

will the Inogen poc work at 30 degree temps?

Author: Terald
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0 Votes
4 Answers
Does air pollution exacerbate COPD ?

We consulted several pulmonologists for my husband's mild asthma over the last one year. No one mentioned COPD. We're currently overseas in an area of heavy air pollution now. His reaction of worsening asthma/wheezing here is leading diagnosis of COPD …

Author: Sushma
0 Votes
6 Answers
Standing still vs walking

Does anyone else seem to have more difficulty standing still than walking ?

Author: CarrieJM
0 Votes
0 This question has no answers.
Recommendations for no ozone air purifiers please

Hi ! I know this question has been asked in the past. I have a friend who loves and sells Vollara . It is a good machine but costs around $800. What do you recommend? Thanks

Author: cellar
0 Votes
3 Answers
What are you doing for too much phlegm?

the following email came to me today, Lung inflammation in COPD is reduced with a form of vitamin B3 https://copdnewstoday.com/news/form-vitamin-b3-lowers-copd-lung-inflammation-study/ They studied nicotinamide riboside. Read the article. I wrote to …

Author: Richard DJ
0 Votes
6 Answers
Going to events

Emphysematous changes and early background COPD on my CT. Lung function testing in a couple of weeks. I am doing everything I can to slow progression - daily exercise, good eating, vaccinations etc I play 8 ball pool and attend our National event …

Author: RedPower
0 Votes
1 Answers
Lung Ablation

My husband recently found a video about a Taiwanese hospital that performs lung ablation for COPD patients. The Dr. stated that he's had success with the procedure. Upon checking into it, it seems it was started by a team in a Sichuan hospital in China. …

0 Votes
10 Answers
trelegy-I've been using Trelegy inhaler for 6 weeks

I've been using Trelegy inhaler for 6 weeks and in the past 3 weeks have noticed a tremendous amount of mucus. Continual coughing. Should I stop using it?

Author: patty a
0 Votes
3 Answers
how has had a lung transplant at University Hospital in San Antonio?

I am a candidate for a lung transplant looking to chat with people who have gone through this process.

Author: LittleBird
0 Votes
2 Answers
Anyone used an Inogen G4 or G5 outside for 5-10 minutes around freezing weather?

Hi gilly_baba - I use an Inogen G5. I live in Wisconsin so I do live in more extreme weather; snowy and very cold in the winter. I am regularly outside for long periods of time, both in the cold and snow and have had no problems with the POC or with …

Author: gilly_baba
0 Votes
2 Answers
Can anyone shed light on this for me?

I went to pulmonologist and I was diagnosed with COPD 2 years ago. I asked my second pulmonologist about getting involved with some breathing techniques..his answer not at this time. Second time I went to same doctor asked this question again and was …

Author: Anonymous
0 Votes
7 Answers
Morning Headaches... Mild COPD

Hi All, I have mild COPD, FEV1 around 90% and mild hypertension around 135/95. My Oxygen sats average 98% during the day and 94% at night (night time reading might not be a very accurate) I have a good exercise tolerance / non-smoker / healthy BMI. I …

Author: 1fatfanny
0 Votes
11 Answers
Has anyone heard of the POC - O2 Concepts Oxlife Liberty?

I did a little research on it and what I read was contradictary. The manufacturer states it goes up to 1.5 LPM and battery lasts up to 4 hours (without specifying the liter flow it uses to measure) but Bridge to Care states it goes up to 2LPM and will …

Author: JeanO53
0 Votes
4 Answers
Just need some advice

Hi, i hope you are all as well as can be. I'm writing on behalf of my husband, he is 42 years young and has been diagnosed for around 6 years (i think it is) He was stage 3 roughly a year ago when he last saw his specialist, he has had a fair few flare …

Author: Laura91
0 Votes
6 Answers
White frostly mucus

Hi, My spirometry show that i have No copd, so i dont know if this is anything to worry about. I have some sympthoms like sob while exercise, chest pain and now i noticed that my mucus is frostly and white. I googled it and it says it sign of copd. …

Author: Jambo1985
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0 Votes
6 Answers
Constant Runny nose

Hi all, Does anyone struggle with a constant runny nose? My mom has severe emphysema and has had a runny nose for the last 10+ years. There is no congestion/stuffy nose, just a constant drip of fluid. She is on room air. Nothing seems to help - she has …

Author: Izbeenz
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