COPD360social welcomes new member Tom Hinman who joins 65,299 current members of our community. Weโ€™re glad you're here!

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHere we are. Now we're all set to start our day tomorrow in a good way! A good start means the rest of the day is bound to be great! ๐ŸŒž

44 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Thank you very much, Lucy! ๐Ÿ˜Š...

1 hour ago

Lucy k

Lucy kcommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

These are great recipes ...

1 hour ago

6ft Pixie

6ft Pixie

It has been a while since I posted anything. I have been busy with appointments, was going to Physical Therapy twice a week for my lower back, and continued strength training for my left hip, which I broke last September. I asked my psychiatrist to change my medication to something else, because the current one was causing me to gain a lot of weight, which I bet is causing me to tire out so quickly. My question is: Has anybody done well with exercising, then had to stop due to injury, and can't seem to get back to aerobic exercising?

4 hours ago

6ft Pixie

6ft Pixieanswered the question vented propane heat source

Have you thought of a generator? They come in different sizes. We live in NC, where we have lost power for a week or more. This has occurred in both winter and summer, so we installed a whole-house generator. It's pricey at first, but we will never be …
GAnneKaren Deitemeyer - Florida State Captain also answered the question GAnneand 1 other also answered the question

5 hours ago

6ft Pixie

6ft Pixie

Hi, Sean. Welcome to the best place to learn more about COPD, ask questions, and get answers. Hope you are having a great day!

5 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I want to give a shout out to our Caroline West Virginia State Captainโ€‹ for her wonderful article in COPD News Today. Thank you for writing it - it's SO true!!

https://copdnewstoday.com/columns/how-cornfield-taught-me-claim-space-living-copd/?mc_euid=f4e1afc955&utm_source=COPD&utm_campaign=c855e81ab4-Email_ENL_US_COPD&utm_medium=email&utm_term=0_23d08524e9-c855e81ab4-74415186

5 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Brinsupri

This is only approved for use in Bronchiectasis ( which some patients with COPD have). It has worked well enough in clinical trials to gain approval. As is the case with every medication, some patients will have a better response than others.
Tom.E also answered the question Tom.E also answered the question

6 hours ago

Old Joe

Old Joeasked the question: Brinsupri

I see that a new medication has been approved that helps control the over-production of mucus in COPD patients -Brinsupri. Does anyone have experience of information they can share?

8 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ”๐Ÿ’ƒ COPD360social is celebrating Dance Like a Chicken Day! ๐Ÿ’ƒ๐Ÿ”

Today feels like the perfect excuse to shake off a little stress, flap those elbows around, and have a laugh together. And honestlyโ€ฆ with oxygen tubing, nebulizer cords, walkers, pets underfoot, and surprise coughing fits, some days already feel like an accidental chicken dance competition anyway. ๐Ÿ˜„

Whether youโ€™re doing the full chicken dance, a toe tap in your chair, a shoulder shimmy, or just laughing at the idea of it, weโ€™d love to hear from you today!

๐Ÿฅ What song would get you up and moving?
๐Ÿฅ Have you ever done the Chicken Dance at a wedding or party?
๐Ÿฅ Bonus points if your pets join in too!

Sometimes the best medicine for the day is simply finding a reason to smile, laugh, and be a little goofy together. So go aheadโ€ฆ fluff those feathers and show us your best moves. ๐Ÿ”๐ŸŽถ๐Ÿ’จ

12 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”˜๐Ÿ”˜PORK WRAPS๐Ÿ”˜๐Ÿ”˜1 tbsp. vegetable oil 16 ounces thin boneless pork chops, sliced into thin strips2 large red bell peppers, sliced into thin strips1 large white onion, thinly sliced3/4 cup BBQ sauce1 large tomato, sliced, then...

13 hours ago

Pipo

Pipo

Not so good

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThought for today, and every day! ๐ŸŒŸ 

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends!
Enjoy every minute of your day! All the neat little things add up to one big thing. At the end of the day, you'll have a collection of fond memories! Dogs and cats, lovely flowers, delicious food, refreshing water to stay hydrated, beaming smiles everywhere you look, and some uplifting songs!
Remember, there are always plenty of things to look forward to in each day!
Enjoy your day to the fullest! ๐Ÿ˜Š

17 hours ago

Louise18

Louise18

I am newly diagnosed and feeling very scared. 

21 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerโ˜€ Visit My Corner of the World Wednesday โ€” Getting Ready for Summer Edition! ๐ŸŒป

Summer is starting to peek around the corner, and weโ€™d love to see what that looks like in your part of the world!

Are flowers blooming? Do you have a favorite fishing spot, porch view, walking trail, or backyard escape? Maybe youโ€™re planting tomatoes, peppers, herbsโ€ฆ or maybe your biggest summer plan is simply staying cool with a fan and a cold drink nearby. ๐Ÿ˜„

Share a photo of how youโ€™re getting ready for summer where you are. Big adventures and quiet moments are both welcome here. ๐Ÿ’™

Bonus points for garden photos, blooming flowers, curious pets helping in the yard, or veggies that may or may not survive the summer heat. ๐ŸŒฑ๐Ÿพโ˜€

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )commented onCOPD Foundation Position on Nebulized Hydrogen Peroxide Therapy

Note that the referenced 2011 "study" was theoretical and contained no data. During the COVID epidemic there were numerous "cures" and "treatments" that were touted- this being one of them (Bleach also kills viruses but inhaling or injecting bleach...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ถ๏ธALL-PURPOSE SALT-FREE SEASONING๐Ÿ”ถ๏ธAre you looking for ways to cut back on your sodium intake? Here's one way to get started! 1 tbsp. garlic powder 1 1/2 tsp. dried basil1 1/2 tsp. parsley flakes1 1/4 tsp. dried savory1/4 tsp. dried thyme 1 tsp....

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday! Does it seem as though time is ticking away? That's exactly right. It's because time spent here on 360Social is well spent. We could spend such a long time here, learning about COPD, and reading the posts! 
We truly appreciate all the posts and pictures our members contribute to our website. Thanks for being a part of this wonderful community! ๐Ÿงก๐Ÿ’™

1 day ago

das23

das23commented onCOPD Foundation Position on Nebulized Hydrogen Peroxide Therapy

It's reported to be dangerous by legitimate medical sources. The information on this site is accurate. Read the info in the LEARN MORE tab above...

2 days ago

Lucy k

Lucy k

Hello I'm new to the community and feel so good about having joined.  Lucy K

2 days ago

Workingonit

Workingonitcommented onCOPD Foundation Position on Nebulized Hydrogen Peroxide Therapy

Is there no merit in the study below ? If not, why not ? Thanks. https://pmc.ncbi.nlm.nih.gov/articles/PMC3108576/...

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒฎ Happy Taco Tuesday, COPD360social family! ๐ŸŒฎ

Just wanted to do a little check-in and see how everyoneโ€™s week is going so far. How are you feeling? Anything on your mind? Any questions we might help with? Sometimes even just saying โ€œtodayโ€™s been roughโ€ or โ€œtodayโ€™s been goodโ€ can help open the door for someone else too.

If youโ€™re newly diagnosed or new to our community, donโ€™t be shy about saying hello. Weโ€™ve got some wonderful members here who truly understand the ups, downs, questions, frustrations, and victories that can come with COPD. We also have a lot of educational materials and resources that may help make things feel a little less overwhelming.

And to our longtime members โ€” if you spot someone new, help us give them a warm welcome. One of the best things about this community is how often complete strangers become friends, support systems, and sometimes even family.

Now for the important Taco Tuesday questionโ€ฆ
Soft tacos, crunchy tacos, or โ€œI dropped half the toppings in my oxygen tubingโ€? ๐Ÿ˜„

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ด๐Ÿ”ต๐ŸŸขEASY TACO RICE๐Ÿ”ด๐Ÿ”ต๐ŸŸข2 tbsp. vegetable oil 1 small onion, finely diced 1 clove garlic, minced 2 cups white rice2 tbsp. chili powder 1/2 tsp. cumin1/4 tsp. oregano3 cups water1 tsp. salt2 scallions, sliced In a medium saucepan, place...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday! Yes, you are way cool! Know why? Because you are here, on 360Social, THE place to be! We are all coolsters ๐Ÿ˜Ž, because we are here to learn all about COPD, and we are here to make new friends! Friendships here are very valuable. The people here understand what you are going through.
Wishing everyone a mighty fine, easy breathing day! ๐Ÿ˜Š

2 days ago

ktm390

ktm390 answered the question What can I do now, to help future me?

Hi I also diagnosed stage one mild this year freaked out scared info from here and pulmolagist is don't smoke drink water and excercise sometimes i use the inhaler but not to often get mucus but so far a little shortness of breath if im pushing it i just …
BareDavid Mannino, MD (Chief Medical Officer, COPD Foundation )DebbieB.-Connecticut State Captainand 2 others also answered the question Bareand 4 others also answered the question

3 days ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainMonday Morning Music.      Love Train by the O'Jays
https://open.spotify.com/track/3QydWuduilMeJIRZCQ83hC?si=7594d6c30240419c

Love Train - Extended Version

Listen to Love Train - Extended Version on Spotify. Song ยท The O'Jays ยท 1972

3 days ago

Kim H

Kim H

Forgive all my grammar and wording errors.

3 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Kim HHi Karen. Thank you for that warm welcome. It really made me feel good to know that โ€˜end stageโ€™ doesnโ€™t mean you will die tomorrow. I use the Trelegy inhaler once a day. Iโ€™m in fair health. I have hypertension which is under control. I really havenโ€™t taken care of myself the โ€˜adultโ€™ inside me knows I should be and should have. I had to read. The doctors didnโ€™t tell me ๐Ÿ™„๐Ÿ˜ก๐Ÿ™„๐Ÿ˜ก that I also have Pulmonary Hypertension which I understand is quite serious. Thank goodness for the patient portal where I can read all of this information. I have got to get my head around this and put on my big girl pants and do the things necessary to prolong my live. Iโ€™m having a very difficult time getting motivated. I also have severe osteoarthritis from head to. My hands are the worst. Iโ€™ve already had 3 surgeries for the arthritis in my left hand. My right thumb is in terrible shape, I never knew how excruciatingly painful arthritis is. I understand that doctors do not like to it COPD patients under general anesthesia because of course they have to protect the airway by intubating. And I was told that when that happens, sometimes they have trouble excavating, and that person would be on a ventilator for the rest of their life, and that scared me to death. Your warmth and kindness made some of my fear dissipate. Thank you so much. It means so much to me. Breathe easy my friend.2 days ago
  • Caroline West Virginia State CaptainKim Hโ€‹  I understand the pain of osteoarthritis, though mine is not close to as bad as yours.  I am 82 years old and have had COPD for at least 13 years and I suspect the number is closer to 23.  I still maintain my home, a small raised bed garden, and lots of flower beds.


    You do need to get on those big girl pants and start exercising, eating well, getting enough rest and staying up-to-date with your vaccinations.  


    COPD requires that you take an active role in your health.


    I wish you all the best and know that you will rise to the occasion and become one of our lung champions.2 days ago
  • Phyliss DiLorenzo NJ State CaptainWelcome Kim! Weโ€™re here to help each other learn how to best manage our COPD. Glad you joined us. Breathe easy and stay strong.2 days ago
Kim H

Kim H

Continued again. I hope Iโ€™m not breaking the rules.  I have an appointment to see if I prequalify for a lung transplant. I need to wear a BiPAP at night. That seems to take care of the problem. I havenโ€™t had an asthma attack in quite sometime. Iโ€™m hoping since the BiPAP is taking care of my issues. I wonโ€™t have further damage. I donโ€™t know how that works when I donโ€™t have all the other symptoms. Does anyone know. I know everyone is different with different circumstances. I used to be a restaurant manager when people could still smoke in restaurants. I was a manager for 15 years until my unfortunate auto accident that ended my management career. That began a downward spiral of bad things happening. I forgot to mention I have cement pulmonary embolism s in both lungs due to a back surgery where he injected to much medical grade cement in the two breaks of my vertebrae. I donโ€™t have osteoporosis, which usually goes along with those kind of brakes. I just was lifting a really heavy box which I couldโ€™ve done easily 10 to 15 years beforehand. Any advice, suggestions, experiences, etc. that any of you have I would greatly appreciate. Iโ€™m trying to get positive and change my secondary habits in my eating habits because if I donโ€™t, I will die I mean, we all die but a premature death. I just keep thinking I didnโ€™t even smoke. Thank you for allowing me such a l o n g vent. Iโ€™m glad to be here.๐Ÿ˜Š

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.