COPD360social welcomes new member redrhonda who joins 66,235 current members of our community. Weโ€™re glad you're here!

baileygiglio

baileygiglio

Hi everyone! The COPD Foundation is working with partners in the lung health community to declare November 2026 as COPD Awareness Month in all 50 states! We need YOUR help to represent every state. If you live in the following states and want to quickly and easily participate in this project, please reach out to me at BGiglio@COPDFoundation.org:

- Montana
- North Dakota
- Rhode Island
- New Hampshire
- Hawaii


Thank you!

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerDo You Use Nebulized Maintenance Medications for COPD?

Do you haveโ€ฏmoderate to severe COPD? Have you used a nebulized maintenance medication in the past 12 months?

If you have used any of the following medications, you may able to share your experience in a virtual focus group.

-  Brovana (arformoterol tartrate)
-  Perforomist (formoterol fumarate inhalation solution)
-  Lonhala Magnair (glycopyrrolate inhalation solution)
-  Yupelri (revefenacin)

You may be paid for your time. To learn more and see if you qualify, contact Sergio Martinez atโ€ฏ866-731-2673, ext. 210โ€ฏor email copdpprn@copdfoundation.org

1 week ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿก Happy Good Neighbor Day, 360social!

When you think about a good neighbor, who comes to mind?

Maybe itโ€™s the person who always waves when you pass by, checks in when they havenโ€™t seen you, or the one you can call and say, โ€œYou wonโ€™t believe what just happenedโ€ฆโ€ and theyโ€™ll listen.

And then there are those neighbors who notice when things are a little harder and simply ask, โ€œWhat can I do to help?โ€

I think we have a whole lot of those neighbors right here on 360social.

Being a good neighbor here can mean welcoming someone new, answering a question when youโ€™ve been through something similar, celebrating good news, or offering encouragement on a rough day.

Sometimes itโ€™s noticing someone struggling and not just scrolling past. Maybe you can say, โ€œHereโ€™s something that helped me,โ€ or suggest something they might ask their doctor about. You donโ€™t need all the answers. Sometimes stopping, listening, and sharing what youโ€™ve learned can help someone find their next step.

Itโ€™s like seeing your neighbor with a flat tire. You donโ€™t have to be a mechanic to stop and ask, โ€œHow can I help?โ€

And to those who visit and read but donโ€™t post very oftenโ€”or havenโ€™t posted yetโ€”weโ€™re your neighbors too. โค You donโ€™t need the perfect question or the perfect words. Sometimes it starts with a simple hello.

So today, letโ€™s be good neighbors.

๐Ÿ‘‹ Say hello. Welcome someone new. Check on an old friend. Share what helped you. And if you see someone struggling, donโ€™t just pass them by.

After all, 360social is a pretty big neighborhoodโ€ฆand I think weโ€™ve got some pretty great neighbors. ๐Ÿก

5 minutes ago

netmouse

netmouseanswered the question Montelukast and mental health

Also, I believe I took the drug for a couple of months, and over three days the tightening did not go away and seemed to increase. So I asked the pulmonary doctor about it. Later I learned it had the black box. It was another drug, Spiriva, that caused …
JeanO53Karen Deitemeyer - Florida State CaptainCaroline West Virginia State Captainand 1 other also answered the question JeanO53and 3 others also answered the question

56 minutes ago

Pippilotta64

Pippilotta64

๐Ÿ˜hey everyone im feeli g very tired today. Hope everyone else is doing better than me

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธVERY EASY SLOW COOKER MEXICAN CHICKENโœด๏ธ2 pounds boneless, skinless chicken breastsOne 16-ounce jar salsa of your choiceOne 1-ounce packet taco seasoning mixChopped fresh cilantro, for garnish Lime wedges, for garnishPlace chicken in the bottom of a...

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, folks! "Let the leaves fall where they may. You can clean them up some other day!" Enjoy your day, and keep on smiling! ๐Ÿ˜€

6 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

I'm very happy--Hurricane Nolo has passed to the south and west of our state and not caused as much damage as feared.  Yay!  Everyone seems to be doing pretty well in our state!  It was a pretty scary time while we were waiting to see which way it would turn and when.

10 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

j have concentrator for the daytime and a CPAP for night.  Now I supposed use the oxygen for sleep.  How do I put the two together to make it worK?

15 hours ago

6ft Pixie

6ft Pixie

What causes one person with COPD to have a lot of phlegm while others have hardly any?

18 hours ago

6ft Pixie

6ft Pixie

Welcome, Docstrong! I'm glad you are here!

19 hours ago

JeanO53

JeanO53Another beautiful day in Southeastern Wisconsin. 
After a good long walk at Wehr Nature Center, I headed toward home.  In my case that means travelling from one side of the county to the other side.  Lots to see along the way.
I eventually made it to the lakefront near home.  We got very lucky and the skies were mostly clear, making it possible to watch the moon rise from the horizon.  It was another beautiful moon.

21 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Bronchial Thermoplasty

Hi Wildebeest - I don't have any information on it, but am hoping David Mannino, MD (Chief Medical Officer, COPD Foundation ) will see your post and respond with some current information.

22 hours ago

JAH5001

JAH5001answered the question How to keep my very long oxygen cord from getting tangled and kinked

I know that each personโ€™s situations are different, but in my case I use my main oxygen concentrator only at night and in the morning after I shower I switch over to an E-tank with an Easy pulse 5+6 regulator and use that all day until I go to bed. If I …
KaseykatHIcopd - Hawaii State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Kaseykatand 2 others also answered the question

23 hours ago

Pippilotta64

Pippilotta64answered the question Does pulmonary rehab help?

I did pulminary rehab in my home virtually with other people in the background going through the same thing as me. I loved it. I wish i could do virtual all the time. It helped so much. But then it ended. I wish insurance would pay for indefinetly. I …
6ft PixieBrenda JoyGAnneand 9 others also answered the question 6ft Pixieand 11 others also answered the question

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainShine on Harvest moon. 
Photo taken in nearby Rancho Santa Margarita.

1 day ago

Wildebeest

Wildebeestasked the question: Montelukast and mental health

Pulmonologist has suggested a trial of Montelukast/Singulair to see if it helps with my severe exercise intolerance caused mainly by dynamic hyperinflation. I have discovered the drug comes with a black box warning about possible psychiatric side …

1 day ago

Wildebeest

Wildebeestasked the question: Bronchial Thermoplasty

There was a question on this topic but it is 9 years old so I am wondering if anyone has any more recent experience/thoughts on the procedure. I have an asthma element but my main problem is dynamic hyperinflation. At least that is what my pulmonologist …

1 day ago

ktm390

ktm390 answered the question Recent diagnosis

I was diagnosed with emphysema a few years ago its a gut punch I'm 71 I was scared angry but here i I found strength through the experiences of others you'll be ok just follow pulmonary advice and if you don't like your doctor find another fast i did and …
Jamie Jarrard (COPDF Sr. Communications Specialist)JudithArleneDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question Jamie Jarrard (COPDF Sr. Communications Specialist)and 3 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing everyone a nice, peaceful day! ๐Ÿ˜Š

1 day ago

cac

cac

Jean, I liked your pictures and your comments.  I live in a suburb of Cleveland OH so we have similar weather.  I also have a quote I would like to share:  "What crossroads are you at in life?"  I'm at that moment where you step back in life and think, OK, what am I going to do with the years or months left?  What's the big adventure that I want to have before the final curtain?
Something to stop and think about.

1 day ago

  • JeanO53Hello cacโ€‹!  Thanks!
    And I like it.. your quote.  I remember after getting over the shock of the COPD diagnosis and the need to use supplemental oxygen, I thoughtโ€ฆ okay, I want to live the best life for as long as Iโ€™m here.  That was a crossroads for me. 
    If today is a new crossroads or a level upโ€ฆ I really have to think about that.  Thanks cacโ€‹!  Definitely one to think about.1 day ago
Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‘€ National Situational Awareness Day

Today is National Situational Awareness Day. It may sound a little official, but thereโ€™s an important message in it for all of us:

Notice the little things.

When you're living with COPDโ€”or caring for someone who isโ€”you get to know what an ordinary day looks like. Your usual breathing, energy, cough, sleep, and what you can normally handle.

Maybe you're more short of breath, your cough sounds different, you're reaching for your rescue inhaler more often, or you're unusually tired. Sometimes it's simply that feeling of, โ€œSomething isn't quite right today.โ€

Don't automatically brush it aside.

It doesn't mean something terrible is happening. But noticing a change early gives us a chance to follow our COPD action plan, ask questions, or reach out to our healthcare team before something small becomes something bigger.

Situational awareness also means noticing what's around usโ€”poor air quality, extreme temperatures, oxygen tubing that could become a trip hazard, or making sure we have enough medication and oxygen before heading out.

And caregivers, trust what you've learned, too. Sometimes you notice a change before the person you care for does. Your observations matter.

This isn't about living on high alert. It's about knowing your normal and recognizing when something changes.

And remember to notice the good things, tooโ€”a beautiful day, a call from a friend, the dog doing something ridiculous, or simply a day when breathing feels a little easier.

What's one little thing you've learned to pay attention to that helps you stay a step ahead?

Something you've learned may be exactly what someone else in our community needs to hear today. ๐Ÿ’™

1 day ago

  • NewestOldestClick to View All Comments6 comment(s)
  • Caroline West Virginia State CaptainI have learned to listen to what my body is telling me.1 day ago
  • WildebeestIt is so important to notice when something feels 'off', even if all we need to do at first is observe and see if it gets worse or better. However, that is impossible to do if we have no idea what 'normal' actually looks like. Being generally mindful is therefore helpful. I am not a fan of keeping detailed journals but I do find it helpful to jot down a few things daily and make observations if something seems off, and whether it resolved. A paper journal never cut it for me but a while ago I discovered a journal app called Day One and it has been invaluable to me. It carries entries across all my devices so I can jot things down wherever I may be and think of them. There is a free version which is fine. If you pay you can make lots of sub-journals for different aspects (so for example I have one for general lung symptoms, one for exercise, one for each other medical issue I want to keep an eye one, general life stuff...you get the drift). You can upload photos and documents if you want. It's searchable, which is a helpful feature if you feel a bit off and wonder if you have felt this way before. Anyway, I have nothing to do with Day One and I am sure there are other journal apps out there - but I have found it really good.1 day ago
  • Karen Deitemeyer - Florida State CaptainThanks for sharing that app with us Wildebeestโ€‹.    I'm going to check it out.19 hours ago
JeanO53

JeanO53Harvest Moon over Lake Michigan - Not quite full last night... still beautiful.

It was a beautiful day in Southeastern Wisconsin yesterday.  After weeks of grey, rainy and cloud filled skies, the sun was shining and skies blue; temperatures in the 60s.  I went to one of our Nature Centers and spent the afternoon looking for birds and watching geese and ducks and a Great Blue Heron.  Also got a picture of 3 painted turtles of varying sizes on a log.  I ended the day catching the moon rising above the clouds on the horizon.

Living with COPD can be limiting, sometimes difficult and my spirit gets weighed down at times. 
I find that finding ways to get out and enjoy life helps both physically and psychologically.  Taking a walk with my hiking pole in places where there are spots to sit if I'm feeling tired; being where there are birds to listen to and leaves changing their colors and letting go from their trees.  And on the drive home, stop and watch the nearly full moon rise above the sailboats.  Yesterday was a good day.  I hope to have more before the snow flies.  

Mary Oliver the poet asked - "...Tell me, what is it you plan to do with your one wild and precious life?"  Today?

2 days ago

Anonymous

Anonymous

Doing a lot better..
Moderate Copd, 
Only using Anoro inhaler once a day.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainEnjoy your Saturday, my friends! 
Pull up a chair, pour yourself a coffee, tea, or juice-maybe a water, and relax! You got this! Plenty of wonderful people and helpful information, right here on 360Social! ๐Ÿ˜ƒ

2 days ago

Peanut coco

Peanut coco

Ok

2 days ago

6ft Pixie

6ft Pixie

I hope you all are having a great day. It is stunning today, with Carolina blue skies and a lovely high temperature of 74! For those of you in the Northeast, I'm thinking of you and sending my thoughts and prayers.๐Ÿ™

2 days ago

6ft Pixie

6ft Pixie

Welcome BMac! We are so glad you found us. Have a great day!

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒง๏ธ A Good Time to Check Your Disaster Plan

With the norโ€™easter affecting parts of the East Coast, this feels like a good time for all of usโ€”not just those in the stormโ€™s pathโ€”to pull out our Disaster Preparedness Plan and give it another look.

Being prepared doesnโ€™t mean expecting the worst. It means taking care of a few things before everything gets hectic.

If you already have a plan, when was the last time you updated it? Have medications changed? Oxygen needs? Doctors or emergency contacts? Do you know what you would do during a power outage? Is your Stay Kit or Go Kit still ready to go?

And if youโ€™ve never made a disaster plan, this is a great place to start. The COPD Foundationโ€™s Disaster Preparedness Plan gives patients, families, and caregivers a roadmap for what to think about, what to have ready, and what to do if circumstances suddenly change.

Because when the lights go out, the roads get bad, or you need to leave home quickly, that is not the ideal time to start wondering where the medication list went.

Preparedness can't control the storm, but it can take some of the panic out of what comes next.

Take a few minutes this weekend to look over your plan, update what needs updating, and make sure the people who may be helping you know the plan too.

And for our members dealing with this norโ€™easter right now, please stay safe and keep us posted. This community is here for you. ๐Ÿ’™

Have you ever been through an emergency that taught you something you now include in your disaster plan?

https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#DPP

COPD Foundation Educational Materials

The COPD Foundation educational library has a variety of useful booklets, flyers, and tools that you can download to help you learn more about living and thriving with COPD โ€“ everything from the basics of lung conditions to specific topics such as exercise and exacerbations (flare-ups).

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.