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Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ’š Today is National Minority Donor Awareness Day.

Today is a time to recognize the incredible generosity of organ, eye, and tissue donors while also raising awareness about an important need. Because compatible donor matches are often more likely to come from people with similar ancestral backgrounds, increasing donor registration across all communities can help give more people the chance to receive a lifesaving transplant.

For many people living with advanced lung disease, a transplant represents more than a medical procedure. It represents another birthday, another family gathering, another sunrise, another breath.

Organ donation has touched my own family, and I know it has touched many in our community as well. It's one of the most selfless gifts a person can give.

Today, let's honor those who have given that gift, remember those whose lives have been changed because of it, and continue the conversation so that hope reaches even more families in every community.

๐Ÿ’š One donor can leave a legacy that lives on through many others.

1 hour ago

  • das23I have volunteered to be an organ donor.......I don't think they'll want my lungs though๐Ÿ˜‚๐Ÿ˜€๐Ÿ‘1 hour ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello, Coolsters! ๐Ÿ˜Ž I'll bet you've got an awesome day planned! Saturdays are for chillin' out and smiling all throughout the day!
You are VERY cool because you chose to visit 360Social, THE place to be! Don't forget to mention our website to your family and friends! The more the merrier! ๐Ÿ˜€

6 hours ago

das23

das23answered the question Is going blind worth it? (Advare experience)

I've had one cataract surgery. it was well worth it. I couldn't believe the difference after. Everything was bright and vivid. I didn't know what I was missing
HIcopd - Hawaii State CaptainCaroline West Virginia State CaptainPhyliss DiLorenzo NJ State Captainand 4 others also answered the question HIcopd - Hawaii State Captainand 6 others also answered the question

11 hours ago

cjg

cjg

pretty good
im just wondering if its ok to use albuterol everyday for shortness of breath and tightness in chest

15 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒป Hello, August!

As we get ready to step into a new month, we're given another chance to care for ourselves, celebrate the victories (big and small), and remind each other that we're never walking this journey alone.

Maybe July taught you something:
๐Ÿ’™ A breathing technique that helped.
๐Ÿ’™ A new routine that made your day easier.
๐Ÿ’™ The importance of slowing down and giving yourself grace.
๐Ÿ’™ Or simply that asking for support is a sign of strength.

Whatever July looked like for you, August is a fresh opportunity to take the next stepโ€”one breath, one day, one victory at a time.

As we begin this new month, we'd love to hear from you:

๐ŸŒž What's one thing you're hoping for, looking forward to, or focusing on in August?

Whether you're living with COPD, caring for someone you love, or simply cheering others on, thank you for being part of this incredible community. Here's to another month of encouragement, learning, and supporting one another.

Happy August, everyone! ๐Ÿ’™

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Lol, Karen! Recipes are meant to be modified! I love the watermelon bowl. So cute if you are feeding a crowd, or bringing it to an event! And, you can always serve it in a regular bowl. ๐Ÿ‰...

22 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Sounds good, but (and you know this already Debbie, LOL) I'd leave out the bell pepper and onion. So it would only be diced watermelon and iced cucumber, LOL....

23 hours ago

COPD Foundation Website Notifications

COPD Foundation Website Notificationsadded a new article Christie Heaton

Welcome our newest COPD Foundation Captain!

23 hours ago

Dusty4

Dusty4

I received my ohtuvayre from UPS 
at at temp of 92 can I still take it

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Portable Nebulizers

elanab Amazon must have changed how they market them, because I did not have a prescription for my portable one when I purchased it from Amazon - but that was quite a few years ago. I wonder if you went directly to a manufacturer's website if you …
elanabHIcopd - Hawaii State CaptainHopefulLungsand 2 others also answered the question elanaband 4 others also answered the question

1 day ago

unexpectedcaregiver

unexpectedcaregiverasked the question: Is going blind worth it? (Advare experience)

My family member was healthy, with healthy eyes almost 4 years ago. A few days ago, we got the diagnosis she's blind. Since she's still healthy, we've been looking into how this happened. 4 years ago, her doctor strongly suggested a "non steroid …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‰๐Ÿ‰WATERMELON SALSA๐Ÿ‰๐Ÿ‰"A unique, refreshing salsa! Great with tortilla chips, or as a topper for grilled chicken!"1 personal-sized OR mini watermelon (You will use as the bowl.)1 cup diced watermelon 1 cup diced cucumber1 cup diced bell...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my best girl, Hazel Madeline! We both wish everyone here on 360Social an absolutely wonderful day! ๐Ÿ˜€

1 day ago

David Mannino, MD     (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Has anyone heard of prep buddy

Some of my colleagues in Cincinnati developed this device. It simulates pursed lipped breathing and it seems to work well for some patients. https://pepbuddy.com/
das23 also answered the question das23 also answered the question

1 day ago

Tom.E

Tom.Eanswered the question Has anyone tried Breztri vs Spiriva

No, no throat issues. But I do use a spacer with my Breztri.
Webbgirl028Kailuabreathing Susiereaderand 2 others also answered the question Webbgirl028and 4 others also answered the question

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Check-in: Preparing to travel with COPD

Oh yes, layering is your friend. When you add and subtract layers to be at a good temperature, you donโ€™t need to pack nearly as much in the way of bulky items that you only can wear when itโ€™s REALLY cold, for example. Bringing garments that are easy to …
Prince Osei SRHDavid Mannino, MD     (Chief Medical Officer, COPD Foundation )and 2 others also answered the question Prince Osei and 4 others also answered the question

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event BronchandNTM360social Coffee Break - Wednesday, August 12, 2:30pm Eastern.

BronchandNTM360social Coffee Break - Wednesday, August 12, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event OxyTalk Social Hour - Wednesday, August 12, 4pm Eastern

OxyTalk Social Hour - Wednesday, August 12, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event COPD360Social Hour & Harmonica Play-Along- Wednesday, August 5, 4pm Eastern.

COPD360Social Hour & Harmonica Play-Along- Wednesday, August 5, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

It's quite the good Summer salad, Karen! ๐Ÿ˜€...

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I would make this, but leave out the onion and garlic, LOL...

1 day ago

Paulberge

Paulberge

Trying to find out what triggers a good day from a bad day 

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ”๏ธ Today is National Climb a Mountain Day!

Not every mountain is made of rock.

Sometimes our mountain is getting through pulmonary rehab. Sometimes it's remembering to take our medications on time, keeping up with airway clearance, making it to a doctor's appointment, walking to the mailbox, or simply finding the strength to get out of bed and face the day.

And for our caregivers, your mountain may be juggling appointments, managing medications, offering encouragement, or simply being there day after day. You're climbing right alongside the person you love, and we see you.

Living with COPD means we all have mountains to climb. Some days they seem small, while other days they feel impossibly steep. But don't be afraid to look at the path you're taking. Every step forward matters, even the slow ones. Sometimes the biggest victory is simply deciding to take that first step.

The best part? You don't have to climb alone.

Whether you're living with COPD or caring for someone who is, this community is here to celebrate your victories, help through the difficult days, share ideas, and remind you that someone is always ready to walk beside you.

โ›ฐ๏ธ So tell us... what's the mountain you're climbing today?

Whether you're taking your inhalers more consistently, beginning pulmonary rehab, learning to pace yourself, caring for a loved one, or simply trying to make today a little better than yesterday, we'd love to hear about it.

After all, mountains aren't climbed in one giant leap. They're climbed one step, one breath, and often one friend at a time! ๐Ÿ’™

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸดSUMMER RADISH SALAD๐Ÿด2 cups sliced radishes 1/2 tsp. salt1 cup thinly sliced red onion 1 cup sliced, seeded cucumber 1/2 cup olive oil 2 tbsp. white wine vinegar 1 tsp. chopped fresh dill 1 clove garlic, minced1/2 tsp. sugarToss radishes...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
Make every moment count! There are so many little things that make up one big day! ๐Ÿ˜Š
I wish everyone a truly wonderful day! ๐Ÿ˜€

2 days ago

elanab

elanabasked the question: Portable Nebulizers

I am brand new to ALL of this and was prescribed an Omron CompAir Compressor Nebulizer for use with Albuterol Sulfate Inhalation Solution, 0.083%, all of which I brought home from the hospital 2 days ago. I found this website forum and read the earlier …

2 days ago

GAnne

GAnneasked the question: Has anyone heard of prep buddy

What is the PEP buddy? I have only seen a little about it

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Called all four of my local Congressional offices, urging them to fully fund NIH promptly. 

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

baileymccrarybaileymccraryโ€‹, please repost what we should be calling Congress about!โ€‹

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.