COPD360social welcomes new member David Owen who joins 66,239 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ‡บ๐Ÿ‡ธ Today is National VFW Day โ€” a day to honor service, sacrifice, and those who have given so much.

Today we recognize the Veterans of Foreign Wars and the men and women who served our country far from home. Their service came with sacrifices that didnโ€™t always end when they returned home, and those sacrifices were often shared by the families who stood beside them.

Here in our 360social community, we know we have veterans among us, as well as spouses, caregivers, children, grandchildren, and families who are incredibly proud of someone who served.

Today gives us a chance to simply say thank you. โค

Thank you for your service. Thank you for the time away from home, the moments missed, and the sacrifices made. And thank you to the families who waited, worried, supported, welcomed home, and continued walking beside their loved ones.

If you served, or if there is a veteran in your life you would like to recognize, we would be honored to hear about them. Share a name, a branch of service, a photo, a memoryโ€”or simply leave a ๐Ÿ‡บ๐Ÿ‡ธ below in their honor.

Today, we remember. We recognize. And most importantly, we say thank you. ๐Ÿ‡บ๐Ÿ‡ธ

2 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerDo You Use Nebulized Maintenance Medications for COPD?

Do you haveโ€ฏmoderate to severe COPD? Have you used a nebulized maintenance medication in the past 12 months?

If you have used any of the following medications, you may able to share your experience in a virtual focus group.

-  Brovana (arformoterol tartrate)
-  Perforomist (formoterol fumarate inhalation solution)
-  Lonhala Magnair (glycopyrrolate inhalation solution)
-  Yupelri (revefenacin)

You may be paid for your time. To learn more and see if you qualify, contact Sergio Martinez atโ€ฏ866-731-2673, ext. 210โ€ฏor email copdpprn@copdfoundation.org

1 week ago

  • Coach Brandon - Community Manager
    If youโ€™ve used one of these nebulized medications, this could be a great opportunity to share your experience.


    Those of you actually living with COPD know the day-to-day realities of treatment in a way no chart or textbook ever could. Taking the time to share what your experience has been, can help better understand what treatment looks like in the real world.

    If one of these medications looks familiar, take a look at the information above and consider reaching out to Sergio to see if you qualify. Your experience matters, and this is a great way to make sure the patient voice is part of the conversation!22 hours ago
Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist)answered the question Montelukast and mental health

I think it really varies person to person. My dad, who had COPD, took it for years with no trouble. I was prescribed it last year for severe allergies and asthma, and took it for a couple of weeks, but it did cause issues for me, so my pulmonologist took …
HIcopd - Hawaii State CaptainnetmouseJeanO53and 3 others also answered the question HIcopd - Hawaii State Captainand 5 others also answered the question

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„๐Ÿซ˜PINTO BEAN SOUP๐Ÿซ˜๐Ÿฅ„2 tsp. olive oil1 onion, finely diced2 cloves garlic, minced 1 tsp. cumin2 cups vegetable brothOne 15-ounce can diced tomatoes Two 15-ounce cans pinto beans, rinsed and drained 2 tbsp. freshly squeezed lime juice Salt...

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday to all of our wonderful members! Wishing everyone a pleasant, easy breathing day! ๐Ÿ˜Š

8 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerI just stepped outside with Jagger, and he was quietly staring toward the front of the yard. Of course, I had to see what had caught his attention. I stepped over and spotted these little beauties! They were just so cute, and Jagger was being so quiet, almost like he knew not to disturb them, that I had to grab a quick picture to share.Just a sweet little moment from our yard that I hope brings a smile to your afternoon. 

18 hours ago

JeanO53

JeanO53Our weather has held for 3 days in a row.  We've been so lucky!  Three beautiful early Autumn days.  If only there were a way to bottle this, but there isn't so I'm getting out there as much as I can. 
.. I didn't anticipate 3 nights of the Harvest Moon, but that happened.  It's messed with my sleep prep a bit but I hope to get back in rhthym tonight.  I'm finding a lot of maintaining physically and psychologically is about pacing myself, whether it's a walk around the pond or staying out later than usual.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿก Happy Good Neighbor Day, 360social!

When you think about a good neighbor, who comes to mind?

Maybe itโ€™s the person who always waves when you pass by, checks in when they havenโ€™t seen you, or the one you can call and say, โ€œYou wonโ€™t believe what just happenedโ€ฆโ€ and theyโ€™ll listen.

And then there are those neighbors who notice when things are a little harder and simply ask, โ€œWhat can I do to help?โ€

I think we have a whole lot of those neighbors right here on 360social.

Being a good neighbor here can mean welcoming someone new, answering a question when youโ€™ve been through something similar, celebrating good news, or offering encouragement on a rough day.

Sometimes itโ€™s noticing someone struggling and not just scrolling past. Maybe you can say, โ€œHereโ€™s something that helped me,โ€ or suggest something they might ask their doctor about. You donโ€™t need all the answers. Sometimes stopping, listening, and sharing what youโ€™ve learned can help someone find their next step.

Itโ€™s like seeing your neighbor with a flat tire. You donโ€™t have to be a mechanic to stop and ask, โ€œHow can I help?โ€

And to those who visit and read but donโ€™t post very oftenโ€”or havenโ€™t posted yetโ€”weโ€™re your neighbors too. โค You donโ€™t need the perfect question or the perfect words. Sometimes it starts with a simple hello.

So today, letโ€™s be good neighbors.

๐Ÿ‘‹ Say hello. Welcome someone new. Check on an old friend. Share what helped you. And if you see someone struggling, donโ€™t just pass them by.

After all, 360social is a pretty big neighborhoodโ€ฆand I think weโ€™ve got some pretty great neighbors. ๐Ÿก

1 day ago

Pippilotta64

Pippilotta64

๐Ÿ˜hey everyone im feeli g very tired today. Hope everyone else is doing better than me

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธVERY EASY SLOW COOKER MEXICAN CHICKENโœด๏ธ2 pounds boneless, skinless chicken breastsOne 16-ounce jar salsa of your choiceOne 1-ounce packet taco seasoning mixChopped fresh cilantro, for garnish Lime wedges, for garnishPlace chicken in the bottom of a...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, folks! "Let the leaves fall where they may. You can clean them up some other day!" Enjoy your day, and keep on smiling! ๐Ÿ˜€

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

I'm very happy--Hurricane Nolo has passed to the south and west of our state and not caused as much damage as feared.  Yay!  Everyone seems to be doing pretty well in our state!  It was a pretty scary time while we were waiting to see which way it would turn and when.

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

j have concentrator for the daytime and a CPAP for night.  Now I supposed use the oxygen for sleep.  How do I put the two together to make it worK?

1 day ago

6ft Pixie

6ft Pixie

What causes one person with COPD to have a lot of phlegm while others have hardly any?

1 day ago

6ft Pixie

6ft Pixie

Welcome, Docstrong! I'm glad you are here!

1 day ago

JeanO53

JeanO53Another beautiful day in Southeastern Wisconsin. 
After a good long walk at Wehr Nature Center, I headed toward home.  In my case that means travelling from one side of the county to the other side.  Lots to see along the way.
I eventually made it to the lakefront near home.  We got very lucky and the skies were mostly clear, making it possible to watch the moon rise from the horizon.  It was another beautiful moon.

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Bronchial Thermoplasty

Hi Wildebeest - I don't have any information on it, but am hoping David Mannino, MD (Chief Medical Officer, COPD Foundation ) will see your post and respond with some current information.

1 day ago

JAH5001

JAH5001answered the question How to keep my very long oxygen cord from getting tangled and kinked

I know that each personโ€™s situations are different, but in my case I use my main oxygen concentrator only at night and in the morning after I shower I switch over to an E-tank with an Easy pulse 5+6 regulator and use that all day until I go to bed. If I …
KaseykatHIcopd - Hawaii State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Kaseykatand 2 others also answered the question

2 days ago

Pippilotta64

Pippilotta64answered the question Does pulmonary rehab help?

I did pulminary rehab in my home virtually with other people in the background going through the same thing as me. I loved it. I wish i could do virtual all the time. It helped so much. But then it ended. I wish insurance would pay for indefinetly. I …
6ft PixieBrenda JoyGAnneand 9 others also answered the question 6ft Pixieand 11 others also answered the question

2 days ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainShine on Harvest moon. 
Photo taken in nearby Rancho Santa Margarita.

2 days ago

Wildebeest

Wildebeestasked the question: Montelukast and mental health

Pulmonologist has suggested a trial of Montelukast/Singulair to see if it helps with my severe exercise intolerance caused mainly by dynamic hyperinflation. I have discovered the drug comes with a black box warning about possible psychiatric side …

2 days ago

Wildebeest

Wildebeestasked the question: Bronchial Thermoplasty

There was a question on this topic but it is 9 years old so I am wondering if anyone has any more recent experience/thoughts on the procedure. I have an asthma element but my main problem is dynamic hyperinflation. At least that is what my pulmonologist …

2 days ago

ktm390

ktm390 answered the question Recent diagnosis

I was diagnosed with emphysema a few years ago its a gut punch I'm 71 I was scared angry but here i I found strength through the experiences of others you'll be ok just follow pulmonary advice and if you don't like your doctor find another fast i did and …
Jamie Jarrard (COPDF Sr. Communications Specialist)JudithArleneDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question Jamie Jarrard (COPDF Sr. Communications Specialist)and 3 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing everyone a nice, peaceful day! ๐Ÿ˜Š

2 days ago

cac

cac

Jean, I liked your pictures and your comments.  I live in a suburb of Cleveland OH so we have similar weather.  I also have a quote I would like to share:  "What crossroads are you at in life?"  I'm at that moment where you step back in life and think, OK, what am I going to do with the years or months left?  What's the big adventure that I want to have before the final curtain?
Something to stop and think about.

2 days ago

  • JeanO53Hello cacโ€‹!  Thanks!
    And I like it.. your quote.  I remember after getting over the shock of the COPD diagnosis and the need to use supplemental oxygen, I thoughtโ€ฆ okay, I want to live the best life for as long as Iโ€™m here.  That was a crossroads for me. 
    If today is a new crossroads or a level upโ€ฆ I really have to think about that.  Thanks cacโ€‹!  Definitely one to think about.2 days ago
Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‘€ National Situational Awareness Day

Today is National Situational Awareness Day. It may sound a little official, but thereโ€™s an important message in it for all of us:

Notice the little things.

When you're living with COPDโ€”or caring for someone who isโ€”you get to know what an ordinary day looks like. Your usual breathing, energy, cough, sleep, and what you can normally handle.

Maybe you're more short of breath, your cough sounds different, you're reaching for your rescue inhaler more often, or you're unusually tired. Sometimes it's simply that feeling of, โ€œSomething isn't quite right today.โ€

Don't automatically brush it aside.

It doesn't mean something terrible is happening. But noticing a change early gives us a chance to follow our COPD action plan, ask questions, or reach out to our healthcare team before something small becomes something bigger.

Situational awareness also means noticing what's around usโ€”poor air quality, extreme temperatures, oxygen tubing that could become a trip hazard, or making sure we have enough medication and oxygen before heading out.

And caregivers, trust what you've learned, too. Sometimes you notice a change before the person you care for does. Your observations matter.

This isn't about living on high alert. It's about knowing your normal and recognizing when something changes.

And remember to notice the good things, tooโ€”a beautiful day, a call from a friend, the dog doing something ridiculous, or simply a day when breathing feels a little easier.

What's one little thing you've learned to pay attention to that helps you stay a step ahead?

Something you've learned may be exactly what someone else in our community needs to hear today. ๐Ÿ’™

3 days ago

  • NewestOldestClick to View All Comments6 comment(s)
  • Caroline West Virginia State CaptainI have learned to listen to what my body is telling me.2 days ago
  • WildebeestIt is so important to notice when something feels 'off', even if all we need to do at first is observe and see if it gets worse or better. However, that is impossible to do if we have no idea what 'normal' actually looks like. Being generally mindful is therefore helpful. I am not a fan of keeping detailed journals but I do find it helpful to jot down a few things daily and make observations if something seems off, and whether it resolved. A paper journal never cut it for me but a while ago I discovered a journal app called Day One and it has been invaluable to me. It carries entries across all my devices so I can jot things down wherever I may be and think of them. There is a free version which is fine. If you pay you can make lots of sub-journals for different aspects (so for example I have one for general lung symptoms, one for exercise, one for each other medical issue I want to keep an eye one, general life stuff...you get the drift). You can upload photos and documents if you want. It's searchable, which is a helpful feature if you feel a bit off and wonder if you have felt this way before. Anyway, I have nothing to do with Day One and I am sure there are other journal apps out there - but I have found it really good.2 days ago
  • Karen Deitemeyer - Florida State CaptainThanks for sharing that app with us Wildebeestโ€‹.    I'm going to check it out.1 day ago
JeanO53

JeanO53Harvest Moon over Lake Michigan - Not quite full last night... still beautiful.

It was a beautiful day in Southeastern Wisconsin yesterday.  After weeks of grey, rainy and cloud filled skies, the sun was shining and skies blue; temperatures in the 60s.  I went to one of our Nature Centers and spent the afternoon looking for birds and watching geese and ducks and a Great Blue Heron.  Also got a picture of 3 painted turtles of varying sizes on a log.  I ended the day catching the moon rising above the clouds on the horizon.

Living with COPD can be limiting, sometimes difficult and my spirit gets weighed down at times. 
I find that finding ways to get out and enjoy life helps both physically and psychologically.  Taking a walk with my hiking pole in places where there are spots to sit if I'm feeling tired; being where there are birds to listen to and leaves changing their colors and letting go from their trees.  And on the drive home, stop and watch the nearly full moon rise above the sailboats.  Yesterday was a good day.  I hope to have more before the snow flies.  

Mary Oliver the poet asked - "...Tell me, what is it you plan to do with your one wild and precious life?"  Today?

3 days ago

Anonymous

Anonymous

Doing a lot better..
Moderate Copd, 
Only using Anoro inhaler once a day.

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainEnjoy your Saturday, my friends! 
Pull up a chair, pour yourself a coffee, tea, or juice-maybe a water, and relax! You got this! Plenty of wonderful people and helpful information, right here on 360Social! ๐Ÿ˜ƒ

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.