COPD360social welcomes new member Cim1234 who joins 65,938 current members of our community. Weโ€™re glad you're here!

baileymccrary

baileymccraryHi all! Research institutions like universities and hospitals across the country are not receiving grant funds from the National Institutes of Health that they were already rewarded. These delays threaten lifesaving research, patient care, jobs, and scientific progress in our communities.

You can join the COPD Foundation in calling on our lawmakers to protect scientific research. Use this link to urge them to take action now! https://www.votervoice.net/COPD/campaigns/137619/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

5 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question โ€‹Check In: Being Your Own Lung Health Champion

Like Karen, I also have a printed list of medications, how often I take them, and the dosage amount. I also have a printed-out list of surgeries and procedures that I have had done and when, to the best of my memory.
Karen Deitemeyer - Florida State Captaindas23DebbieB.-Connecticut State Captain also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

3 hours ago

Bobmc

BobmcWell another week gone,glad for one it's over,wish this whole summer was just a bad dream.Wifes recovery is moving at a snails pace,been put on another three weeks bed rest yesterday by the surgeon which devastated her.It had been a real effort to maintain property,animals and household chores and we have called outside help to manage daily care of the wife and household.l am still battling the radiation phumonosis after affects so my activity level is non existent,now in a power chair which really helps to get around the property.We are finishing renovations on the barn,taking all the dog kennel suites out from our rescue operation of thirty years.
Property is going up for sale as soon as some house painting and touch-ups are done,we cannot manage it anymore so time to move on,our realtor has two offers already so it looks like it will be quick sale at least because showings are out of the question obviously.we are dealing with everything as we always do,a new beginning new life style new surroundings are definitely not something we wished for but this is the reality of the situation.We are so fortunate to have bought and built when we did as acreages this large are very scarce this close to the city and therefore easy to unload.
Have been so impressed with daughter and friends response to our calamities it had been a constant reminder of what great people we have surrounded ourselves with and we are so great full.
My CT follow-up is next week to see if radiation was successful so l have a huge gathering planned for everyone to either celebrate or whatever and for most to visit farm for last time.
That just about sums up everything that been going on with us lately it has been hard to share lately with all the new stuff but here it is.


And as the meme says,,yes l am so rich for all the memories of our little sanctuary.........

4 hours ago

Kym D

Kym D

Hi, I was diagnosed with COPD about 15 yrs ago. I have not smoked since my early 20's (I'm 69), don't live in smog area, never worked 'hazardous' job, anyone else like me? Everyone was stumped when I was diagnosed.
I am curious about what others are doing for their specific symptoms. I was also diagnosed with sleep apnea 4 yrs ago and use a CPAP at night, but have never really been treated or told what to do about the COPD, I live in a rural area that does not have any Pulmonologists and my general practitioner must not have known (she retired so now I have to find a new one) a lot about treating COPD. Of course we all have the shortness of breadth, but I have a constant dry cough, use to be once in a while, but now like every day, never goes away, and frequently have to spit up mucus, it's embarrassing and makes public events uncomfortable, I feel like I have to constantly explain that I don't have some terrible disease I'm spreading around. Anyone else dealing with this and has found anything that helps (cough drops/lozenges don't do anything for me)?

4 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ˜Š๐Ÿ’™ Happy Happiness Happens Day! ๐Ÿ’™๐Ÿ˜Š

Sometimes happiness just happens. And sometimesโ€ฆwe have to go looking for it a little bit.

When you're living with COPD or another chronic lung condition, there are days when happiness may feel a little harder to find. A new diagnosis can turn your world upside down. An exacerbation can knock you off your feet. And even something as simple as summer heat and humidity can change your plans and leave you frustrated.

But here's the wonderful thing about happiness: it doesn't always have to come from something big.

๐Ÿพ A pet doing something ridiculous.
โ˜• That first sip of coffee in the morning.
๐Ÿ˜‚ A laugh you didn't see coming.
๐Ÿ“ž Hearing from someone you love.
๐ŸŒป Seeing something beautiful outside your window.
๐Ÿ’™ Or simply having a better day than yesterday.

And happiness can be contagious. Sometimes sharing a little of ours is exactly what helps someone else find a little of theirs.

So this Saturday, let's give ourselves permission to notice those moments, celebrate them, and maybe even create a few of our own.

After all, happiness starts pretty close to home. Sometimes it starts right with us. ๐Ÿ’™

What's one little thing that brings you happinessโ€”even on the harder days?

Wishing our entire community a very Happy Happiness Happens Day! ๐Ÿ˜Š๐ŸŒป๐Ÿ’™

5 hours ago

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  • das23"Happiness Is A Warm Gun"....The Beatles. I actually don't have a gun--Just love the song!!!๐Ÿ˜€1 hour ago
  • Karen Deitemeyer - Florida State CaptainHappiness for me today was seeing about 2 dozen ducks swimming in my lake this morning.  Now that the 2 large alligators have been removed,  I'm noticing many more ducks, turtles, jumping fish and wading birds.  1 hour ago
  • DebbieB.-Connecticut State CaptainToday, there was a wee miracle right here! ๐Ÿ˜‡
    I was standing in the driveway, waiting for my husband to come home. A male goldfinch landed on a flower, directly across from me. I said hello, twice. He flew over to a bird feeder to eat. Then I saw a second goldfinch eating. That little one had flown over to let me know he was back. ๐Ÿ’›๐Ÿ–ค1 hour ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends!
Wishing everyone the best day ever! 
Enjoy this wonderful Summer day! ๐Ÿ˜Š๐ŸŒž

13 hours ago

Alaskan boonyrat

Alaskan boonyrat

Not too badly.Its rained quite a bit this summer,many are tired of it.Not me,no forest fire smoke or drifting allergens.Im not allergic to anything,but it still takes a few % of my lung capacity and i need all i have left.Greasy smoke is my bane.Guaranteed to make me gasp for air almost instantly.That and i get tired of boiled meat,potatoes.Even an air fryer gets me coughing hard.Thank God for those little outside grill  things.Or on the burn barrel.Depending on the last time i burned plastic.Lets hope that now that 2.5 million illegals have been thrown out of Medicade/Medicare we can more easily get attention and approved for newer medications.We just had a 5.5 quake here,about 90 miles West.Rock and Rolled a couple minutes,no damage.Stood by the swing mounted flat screen just in case.Stupid Alaska medicade made me go through another mediation trying to deny me BREZTRIยฎ again.They failed again.At 950.00 for a 120 shot inhaler per month,i can somewhat understand.Only 3.50 to me.Theyll try again, no doubt.3 times this year so far.

15 hours ago

Morrigan

Morrigan

Just registered. I'm the mother of a super rad 13 year old and I've hit that realisation that COPD is going to prematurely kill me. I'm Morrigan, a 42 year old native NYC weirdo. I rebelled early in life. I started smoking cigarettes at 13. I destroyed my lungs with (no particular order) rolling tobacco, black mold, freight trains, unaddressed childhood asthma, crack, allergies, and asbestos. I have not had hard drugs in 6 years but I smoke a lot of weed and binge drink white claw sometimes. I stopped the cigarettes on Halloween but the vape... it is destroying me. I'm in stage 2. Summer is hard, guys. Just had my first lung related hospitalization ever.How are yall holding it down? Thanks.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒŠ๐Ÿ’ก Happy National Lighthouse Day! ๐Ÿ’ก๐ŸŒŠ

Thereโ€™s something pretty special about a lighthouse.

It doesnโ€™t calm the storm. It doesnโ€™t make the waves disappear. It simply keeps shiningโ€”a beacon that says, โ€œYouโ€™re not alone. Thereโ€™s land ahead. Keep going.โ€

And honestly, that made me think about our community. ๐Ÿ’™

Living with COPD, bronchiectasis, NTM, or caring for someone who does can sometimes feel like navigating some pretty rough waters. There are days when you know exactly where youโ€™re headedโ€ฆand others when youโ€™re just looking for a little light to help point the way.

Thatโ€™s where all of us come in.

Patients sharing what theyโ€™ve learned.
Caregivers reminding someone theyโ€™re not alone.
Healthcare professionals offering knowledge and guidance.
And community members simply saying, โ€œIโ€™ve been there. You can do this.โ€

Every time you share an experience, answer a question, welcome someone new, or offer a few encouraging words, you might be somebodyโ€™s lighthouse without even realizing it. ๐Ÿซถ

So on this Friday and National Lighthouse Day, hereโ€™s a fun question:

๐Ÿ’ก How can we be a lighthouse for someone else?

Maybe itโ€™s sharing something you wish youโ€™d known earlier. Maybe itโ€™s checking on someone. Maybe itโ€™s simply shining a little hope into somebodyโ€™s day.

And if youโ€™re the one looking for the light right now, keep looking this way. There are a whole lot of lighthouses here. ๐Ÿ’™๐ŸŒŠ

Happy Friday, everyone! โš“๐Ÿ’ก

1 day ago

LFAOMGA

LFAOMGAHappy Fluffy Friday Everyone ๐Ÿ˜Š My nephews first born child , a baby boy  named Cade, pictured here at 14 days old today, is lovingly being monitored by his doggy sister named Callie. She truly adores her newborn brother. And I am beyond happy being a Great Aunt again. 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‹๐Ÿ‹LEMON ANGEL HAIR๐Ÿ‹๐Ÿ‹ "A nice summery Sunday meal..."Salt and freshly ground black pepper to taste 16 ounces angel hair pasta2 sticks unsalted butter Zest and juice of 2 large lemons1 lemon for garnishAdd some salt to a large pot of...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from two of my  sister's cats, Miyagi and Johnny Rocket! We all wish you a wonderful, easy breathing day! ๐Ÿ˜Š

1 day ago

Gooffy

Gooffy

Hi everyone new here I have had severe copd and thinking about getting the zephyr valve procedure hoping it improves my walking without being out of breath. I have had copd since 2019 and on oxygen 24/7. Do the treatments 3 times a day and of course 2 inhalers. So if anyone has had the procedure what should I expect and how long will I be off work. Any information would be appreciated thanks goofs

1 day ago

RickZ

RickZanswered the question Having taken Chantix years ago, I now fear taking Ohtuyvre

Ohtuvayre can take a while to start working. It started working for me in less than 24 hours with profound results. Fev1 went from 26% to 33%, it may not sound like a big improvement but it was huge for me. Absolutely no side effects for me!
Phyliss DiLorenzo NJ State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )HIcopd - Hawaii State Captainand 3 others also answered the question Phyliss DiLorenzo NJ State Captainand 5 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

https://copdnewstoday.com/columns/mush-and-the-blessing-of-a-very-good-and-faithful-friend/?mc_euid=3932ecc9de&utm_source=COPD&utm_campaign=abab907ad2-Email_ENL_US_COPD&utm_medium=email&utm_term=0_23d08524e9-abab907ad2-74912421


For those who haven't read this, Caroline has written a wonderful article!
I love this article. Mush is an incredible friend to have! ๐Ÿฅฐ
Thank you, Caroline! ๐Ÿ˜Š

2 days ago

Bobmc

BobmcHope all is well with everyone.

2 days ago

Dusty4

Dusty4

was wondering if it is ok to take ohtuvayre if when you receive it from UPS it has a temp of over 98F was I n a shipment for over 4 days with high temps?

2 days ago

Arnelle Konde (COPDF Education Coordinator)

Arnelle Konde (COPDF Education Coordinator)asked the question: โ€‹Check In: Being Your Own Lung Health Champion

Taking an active role in your health is one of the most important things you can do when living with COPD or another chronic lung condition. You know your body better than anyone else. By staying informed, asking questions, and speaking up when something …

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒฟ๐Ÿ˜ Happy Fresh Breath Day! ๐Ÿ˜๐ŸŒฟ

Who knew there was a whole day dedicated to fresh breath? While it might make us smile, it's actually a wonderful reminder that caring for your mouth is an important part of caring for your whole bodyโ€”including your lungs.

When you're living with COPD, bronchiectasis, NTM, or another chronic lung condition, there's already a lot to keep track of. Medications, inhalers, oxygen, airway clearance, appointments... it can feel like there's always something on the list. But don't let your smile get lost in the shuffle!

๐Ÿชฅ Brushing and flossing regularly help keep your mouth healthy.
๐Ÿ’ง Staying hydrated can help with dry mouth, which is common with some medications and oxygen therapy.
๐Ÿฆท Regular dental checkups can help catch problems early and support your overall health.
๐Ÿ˜Š And let's be honest... a fresh, healthy smile just feels good!

Every small act of self-care matters. Whether it's remembering your inhaler, taking a short walk, practicing your airway clearance routine, or spending a couple of extra minutes caring for your teeth, those little choices add up over time.

Today, let's celebrate the little things that help us breathe easier, feel better, and keep smiling. ๐Ÿ’™

๐ŸŒŸ What's one small self-care habit you try to stick with every day? It doesn't have to be perfectโ€”just something that helps you take care of yourself. Your idea might inspire someone else in our community!

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ‡๏ธDILLED CHICKEN SALADโ‡๏ธ3 large boneless, skinless chicken breasts, cooked, cooled, and finely shredded1/3 cup mayonnaise 1/3 cup plain yogurt 1/4 tsp. salt 1/2 tsp. garlic powder 2 tbsp. finely minced shallots2 tbsp. finely chopped fresh...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
360Social is THE place to visit, and you know it will bring a smile to your face! ๐Ÿ˜€ Spread that sunshine and keep on smiling, everyone! ๐ŸŒž

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainLooks like results of RElIANCE study have been published, comparing Azithromycin with Rofumilast for COPD patients who exacerbate. 


https://www.uclahealth.org/news/release/ucla-study-compares-two-copd-treatments-guide-patient-care-10

UCLA study compares two COPD treatments to guide patient care

Multiple treatments are available for chronic obstructive pulmonary disease (COPD), but identifying which regimen best matches an individual patientโ€™s needs remains one of the biggest challenges in care. A new study from researchers at UCLA Health compares two treatment options aimed at preventing …

2 days ago

Jason41

Jason41

 New member here! Stumbled across this organization and decided to join! Iโ€™m living with COPD and I am currently on oxygen 24/7. Iโ€™m 41. 

3 days ago

Bobmc

BobmcGot pretend going out again today,wind is supposed to change tomorrow so the smoke will be back in the interior.
Both large air purifiers are going non stop and they really help for 
 sure

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI'm hoping to see a lot of you at the 360Support Group/Harmonica Play-Along this afternoon at 4:00 PM Eastern.  If you haven't registered already, here's the link: The topic this month is Living Well with a Chronic
Condition.

https://copdf.co/360-social

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿ“ธ Visit My Corner of the World Wednesday! โ˜€๐ŸŒป

Summer is in full swing, and for many of us that means sunshine, green landscapes, blooming flowers, family adventures... or maybe just finding a cool place to relax. For others, the heat or smoky skies have made it harder to get outside.

No matter where you are today, we'd love to visit your corner of the world.

Share a photo of anything that brings you a smile or reminds you of summer. It could be:
๐ŸŒผ A favorite flower or garden
๐ŸŒ… A beautiful sunrise or sunset
๐ŸŒณ Your backyard or favorite shady spot
๐Ÿพ A furry friend enjoying the season
๐Ÿšœ A vacation memory or a favorite place you've visited
๐Ÿก Or even a special photo from years ago that brings back wonderful summer memories.

Every picture tells a story, and every story helps us get to know one another a little better.

So, where are we visiting today? We can't wait to see your corner of the world! ๐Ÿ’™๐Ÿ“ท

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธPEACH WATER ๐Ÿ‘๐Ÿ‘๐Ÿถ๐Ÿถ๐ŸงŠ๐ŸงŠ1 small ripe peach8 ounces water OR sparkling water3 fresh basil leavesIceCut the peach into bite-sized pieces. Transfer to a tall glass. Add basil leaves. Add desired amount of ice. Pour water into the glass. Enjoy!...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday! It's very clear to me that today will be an awesome day! Many reasons to smile! 
Enjoy, friends! ๐Ÿ˜Š

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.