COPD360social welcomes new member Dano3646 who joins 65,557 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒฟ๐Ÿฅฆ Visit My Corner of the World Wednesday ๐Ÿฅฆ๐ŸŒฟ

Did you know Wednesday is Eat Your Vegetables Day?

For this week's Visit My Corner of the World Wednesday, let's celebrate all things green!

Whether it's a favorite garden, a farmers market, a backyard tomato plant, a delicious salad, a plate full of colorful vegetables, or simply a beautiful green view outside your window, we'd love to see it.

Good nutrition is an important part of overall health, especially when living with COPD, bronchiectasis, or NTM. And let's not forget our amazing caregivers, who often spend so much time caring for others that they forget to care for themselves, too.

This week, let's share a little inspiration from our corners of the world:

๐Ÿฅฌ A favorite vegetable or healthy meal
๐ŸŒฑ A garden or plant you're growing
๐Ÿ… A farmers market find
๐ŸŒณ A beautiful green outdoor view
๐Ÿ’š Anything green that brings a smile to your day

Snap a photo and tell us a little about it. We can't wait to see what "green" looks like in your corner of the world!

๐Ÿ“ธ What's growing, blooming, cooking, or thriving where you are?

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captaincommented onListening to Your Lungs: When Itโ€™s Time to Speak Up

I started in 11/2024 with Dupixent every 2 weeks, because it was the only biologic specifically approved for patients with COPD, frequent exacerbations and high eosinophil levels. In 9/2025, the side effects were intolerable to me, so I switched to...

11 minutes ago

GAnne

GAnnecommented onListening to Your Lungs: When Itโ€™s Time to Speak Up

What kind of biologics are you taking of I may ask?...

27 minutes ago

Ruby Smith Hall

Ruby Smith Hall

Exhausted and canโ€™t sleep without waking up due to pain or just being uncomfortable. I have COPD (end stages) and CAD, with oxygen stat of 5l constantly. I recently had dbl MRSA pneumonia && was hospitalized. The month before I had pneumonia with the H-flu and had to be intubated. Itโ€™s become a regular thing. Any tips on how to avoid it 

4 hours ago

Mom.Ellen

Mom.Ellen

 I think it is interesting to mention I have been on Dupixent for about 5 years for severe eczema with complete healing of my eczema and continue to use it to keep my skin healthy.  I recently saw a commercial where it showed Dupixent is also good for COPD.  I find that hard to believe since I have been on it for 5 years and have not had any relief of my severe COPD.  Has anyone else heard that Dupixent helps with COPD or have been prescribed Dupixent for COPD?

5 hours ago

Evie

Evie

 Advice on how to stop nasal crusting. Have used nasal gel, netti pot, and if I remove the crust it bleeds. So what do others do?

7 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Does pulmonary rehab help?

I have participated and graduated from.2 pulmonary rehabilitation programs. I had to go a second time, because I had caught pneumonia and was in the CCU, and could barely walk at all. I now walk an average of 2 miles each day, and do strength training 3 …
Caroline West Virginia State CaptainbrydyKaren Deitemeyer - Florida State Captain also answered the question Caroline West Virginia State Captainand 2 others also answered the question

8 hours ago

ZaydeBob

ZaydeBob

I just spent 3 days in the hospital very ill with infectious colitis that spread to my bloodstream. Thankfully, 3 days of two IV antibiotics got the infection under control. They did CT scans of my head, chest, and abdomen. I got home yesterday afternoon and reviewed my lab reports. In addition to having 8 abnormal blood factors, I discovered that I now have scattered bullous emphysema as well as paraseptal. A few months ago, I was also diagnosed with chronic Interstitial Lung Disease caused by Rheumatoid Arthritis (RA-ILD). The doctor in the hospital told me that my colitis caused bloodstream infection could have been fatal if not promptly diagnosed and treated. The radiologist also recommended that I be assessed for lung cancer.

I have follow-up appointments with three doctors, including my pulmonologist. I will likely need multiple drugs for the combo of lung diseases.

The bullous emphysema (BE) appears to be the most serious. 

I am also recovering from emergency retina surgery last Tuesday to repair five horseshoe-shaped tears in my right eye.

Needless to say, I've hit a rough patch. I just hope the treatments will not be too rough.

10 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainJoin our support group meeting, TODAY, Wednesday, 4-6pm Eastern (10-noon Hawaii Standard Time).  Details in attached flyer and on our website, www.hawaiicopd.org.  See you there!

10 hours ago

Mom.Ellen

Mom.Ellen

Thank you everyone for the wonderful welcome messages.  I already feel like I belong!

11 hours ago

brydy

brydy

heres how to make shibolto:
2 or so kohlrabi, peel them & cube into 1.5 x 1.5" cubes or something close :) 
heat olive oil in a pan & put the kohlrabi in, around medium heat & let it cook for about 15 mins or so, stirring so that all sides get golden. add in 1 chopped onion & some mushroom slices, continue cooking for another 10 mins or so or until the onion is cooked. now add a pound of ground lamb (can use ground beef but its not quite as tasty), brown the meat, breaking it up well. season w salt & pepper & a tsp of 7 spices. (you can make your own 7 spice mix if u cant find it: allspice, black pepper, cinnamon, cloves, coriander, cumin & nutmeg). stir thru then add 1 cup of wild rice & sautee it until its translucent, (cpl of minutes), pour in 2 cups of chicken broth. bring it all to a low boil, cover & simmer for 1/2 hr or until the rice is cooked. remove from heat & let stand for 5, fluff it up. crumble walnuts over top after plating. 
enjoy! 

11 hours ago

Mom.Ellen

Mom.Ellenasked the question: Does pulmonary rehab help?

I was recently enrolled in virtual pulmonary rehab which has given me hope; I have severe COPD and was recommended double lung transplant, but that is too aggressive for me. I start virtual (on line) pulmonary rehab Monday, July 6th. If you have received …

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿซ๐ŸซBLUEBERRY AGUA FRESCA๐Ÿ‹๐Ÿฏ2 cups water1 pint blueberries, rinsedIce1 tsp. freshly squeezed lemon juice 1 tbsp. honeyMint leaves for garnishPlace the water and blueberries in a blender. Blend until smooth. Fill 2 glasses with ice. Set a mesh...

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday, friends! Find the beauty in today! That beauty will carry you through today, and the rest of the week! ๐Ÿ˜

19 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™ve never seen kohlrabi before but would probably enjoy it, since I like turnips.  Iโ€™m not sure H or others in this household would like it, as they tend not to like turnips as much.  Maybe Whole Foods might have it.  Hmmmm.

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

This sounds good, I will have to look for Kohlrabi since I do not raise them anymore....

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Please do share your recipe, brydy! Thank you so much! ๐Ÿ˜€...

1 day ago

brydy

brydycommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

never tried soup with it but saving this to try! thxs Debbie. I will share how to make Shilbato I make if anyone is interested? ...

1 day ago

UK Lynn

UK Lynn

Hi just wondered if I could have advice please. Several years ago I was diagnosed with emphysema after a pulmonary angiogram later confirmed by spirometry. Recently I had a low dose CT scan and was pleased to receive a letter saying "no smoking damage come back in 2 years". I was obviously pleased but confused. As I thought that emphysema IS smoking damage although I haven't smoked for 20 years. My FEV1 is higher than predicted according to nurse.

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

If I can find kohlrabi in my grocery, I'll give this recipe a try :-)...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Today we have a Special Edition recipe! In honor of brydy's kohlrabi, and Brandon's post, may I present: ๐Ÿฅ„๐Ÿฅ„๐Ÿฅ„KOHLRABI SOUP๐Ÿฅ„๐Ÿฅ„๐Ÿฅ„1 medium kohlrabi, peeled and cubed, with leaves, trimmed and finely chopped 1 medium onion, finely chopped1 medium...

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Constrictive clothing

I have traded my blue jeans in for elastic-waisted knit pants, capris, and shorts.
WildebeestHIcopd - Hawaii State CaptainKathy1221and 20 others also answered the question Wildebeestand 22 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ…TOMATO AND BEAN SALAD๐Ÿ… 6 ounces fresh wax beans, green beans, or a combination of the two 1/2 tsp. salt1 tbsp. lemon juice1/2 tbsp. red wine vinegar 1 small garlic clove, minced Salt and freshly ground pepper to taste...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy terrific Tuesday, friends! Wishing everyone a day that keeps getting better as the day rolls on! Enjoy it! ๐Ÿคฉ

1 day ago

ChrissyLu

ChrissyLu

Hi everyone..So glad to have found this group.  I've been saving up all my questions just in case I ever had an opportunity to ask them, so here I go! My husband was recently dx with COPD.  Besides knowing how to dress in layers to tolerate the temperature in the ER after multiple visits (!),  we've also learned a lot in a short amount of time regarding how many machines can be necessary for maintenance of symptoms, how to cross-train each other on every aspect of treatment, etc.  Tho I worked in the healthcare field & took care of both parents for a decade before COPD caught up with my husband, this is different.  I'm shifting roles as his wife, his friend (sometimes frenemy!), dog mom, mom's daughter (She's still living), and have a few medical challenges of my own. Right now, my husband is processing the diagnosis, and is testing the boundaries of whether he "really needs" to wear his oxygen 24/7 when we go anywhere (picking up rxes, etc).  Of course, if I point out the obvious, then his frustration is towards me.  I'm sure many of you are in the same situation. I do understand that, and want to keep my energy and sanity intact, so any suggestions on how to streamline the other responsibilities in all our lives (shopping,  house & kitchen work, etc.) would be helpful.  I just ordered an over-the-door clear slotted organizer to use for need-to-know info/manuals/instructions for each machine, and also a rechargeable light-weight vacuum in order to vacuum the bedroom carpet every morning, etc.  We live in the southwest where we have different types of dust storms, as well as high heat, so we at least know how to deal with those triggers.  I look forward to reading what ideas other members can share with me.  Thank you.  

1 day ago

  • NewestOldestClick to View All Comments12 comment(s)
  • DebbieB.-Connecticut State CaptainI am so happy that you stopped at the garden nursery! What a wonderful way to take some time out! Lantana is one of my very favorites! Which color variety did you choose? ๐Ÿ˜Š19 hours ago
  • brydyI had to look up what lantana is, its beautiful! I have seen them around here but did not know the name. Really glad you took some for yourself, its so important. 10 hours ago
  • JeanO53ChrissyLuโ€‹ - Good for you!  Being out in nature is the best therapist I've ever found.  ๐ŸŒณ๐ŸŒป9 hours ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.