COPD360social welcomes new member RickHox who joins 65,928 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒฟ๐Ÿ˜ Happy Fresh Breath Day! ๐Ÿ˜๐ŸŒฟ

Who knew there was a whole day dedicated to fresh breath? While it might make us smile, it's actually a wonderful reminder that caring for your mouth is an important part of caring for your whole bodyโ€”including your lungs.

When you're living with COPD, bronchiectasis, NTM, or another chronic lung condition, there's already a lot to keep track of. Medications, inhalers, oxygen, airway clearance, appointments... it can feel like there's always something on the list. But don't let your smile get lost in the shuffle!

๐Ÿชฅ Brushing and flossing regularly help keep your mouth healthy.
๐Ÿ’ง Staying hydrated can help with dry mouth, which is common with some medications and oxygen therapy.
๐Ÿฆท Regular dental checkups can help catch problems early and support your overall health.
๐Ÿ˜Š And let's be honest... a fresh, healthy smile just feels good!

Every small act of self-care matters. Whether it's remembering your inhaler, taking a short walk, practicing your airway clearance routine, or spending a couple of extra minutes caring for your teeth, those little choices add up over time.

Today, let's celebrate the little things that help us breathe easier, feel better, and keep smiling. ๐Ÿ’™

๐ŸŒŸ What's one small self-care habit you try to stick with every day? It doesn't have to be perfectโ€”just something that helps you take care of yourself. Your idea might inspire someone else in our community!

5 hours ago

baileymccrary

baileymccraryHi all! Research institutions like universities and hospitals across the country are not receiving grant funds from the National Institutes of Health that they were already rewarded. These delays threaten lifesaving research, patient care, jobs, and scientific progress in our communities.

You can join the COPD Foundation in calling on our lawmakers to protect scientific research. Use this link to urge them to take action now! https://www.votervoice.net/COPD/campaigns/137619/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

3 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Having taken Chantix years ago, I now fear taking Ohtuyvre

I have been taking Ohtuvayre for over a year with no side effects whatsoey. While depression is a possible side effect of Ohtuvayre, it is not one of the main side effects. I am also a retired mental health professional and very sensitive and attuned to …
David Mannino, MD (Chief Medical Officer, COPD Foundation )HIcopd - Hawaii State Captainnetmouseand 2 others also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 4 others also answered the question

6 minutes ago

Bobmc

BobmcHope all is well with everyone.

2 hours ago

  • DebbieB.-Connecticut State CaptainHi Bob!
    Well, it's 89 degrees, real feel of over 100. Humidity near 100 percent. It's a good indoor day today! Doing the laundry and organizing some things. 
    When I venture outdoors to feed the birds again, I will go after I use my maintenance inhaler. This way, my airway will be clear. I will limit myself to 5 minutes out there.
    As I always say, Think through before you do.
    I hope your day is going well! ๐Ÿ™‚1 hour ago
Dusty4

Dusty4

was wondering if it is ok to take ohtuvayre if when you receive it from UPS it has a temp of over 98F was I n a shipment for over 4 days with high temps?

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question โ€‹Check In: Being Your Own Lung Health Champion

Hi, Arnelle! This is a great post! 🙂 One question I would always ask my pulmonologist, if he were to suggest a new medication, would be: Is this medication compatible with my other medications, and what are the possible side effects? I always bring a …

3 hours ago

Arnelle Konde (COPDF Education Coordinator)

Arnelle Konde (COPDF Education Coordinator)asked the question: โ€‹Check In: Being Your Own Lung Health Champion

Taking an active role in your health is one of the most important things you can do when living with COPD or another chronic lung condition. You know your body better than anyone else. By staying informed, asking questions, and speaking up when something …

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ‡๏ธDILLED CHICKEN SALADโ‡๏ธ3 large boneless, skinless chicken breasts, cooked, cooled, and finely shredded1/3 cup mayonnaise 1/3 cup plain yogurt 1/4 tsp. salt 1/2 tsp. garlic powder 2 tbsp. finely minced shallots2 tbsp. finely chopped fresh...

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
360Social is THE place to visit, and you know it will bring a smile to your face! ๐Ÿ˜€ Spread that sunshine and keep on smiling, everyone! ๐ŸŒž

11 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainLooks like results of RElIANCE study have been published, comparing Azithromycin with Rofumilast for COPD patients who exacerbate. 


https://www.uclahealth.org/news/release/ucla-study-compares-two-copd-treatments-guide-patient-care-10

UCLA study compares two COPD treatments to guide patient care

Multiple treatments are available for chronic obstructive pulmonary disease (COPD), but identifying which regimen best matches an individual patientโ€™s needs remains one of the biggest challenges in care. A new study from researchers at UCLA Health compares two treatment options aimed at preventing …

18 hours ago

Jason41

Jason41

 New member here! Stumbled across this organization and decided to join! Iโ€™m living with COPD and I am currently on oxygen 24/7. Iโ€™m 41. 

1 day ago

Bobmc

BobmcGot pretend going out again today,wind is supposed to change tomorrow so the smoke will be back in the interior.
Both large air purifiers are going non stop and they really help for 
 sure

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI'm hoping to see a lot of you at the 360Support Group/Harmonica Play-Along this afternoon at 4:00 PM Eastern.  If you haven't registered already, here's the link: The topic this month is Living Well with a Chronic
Condition.

https://copdf.co/360-social

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿ“ธ Visit My Corner of the World Wednesday! โ˜€๐ŸŒป

Summer is in full swing, and for many of us that means sunshine, green landscapes, blooming flowers, family adventures... or maybe just finding a cool place to relax. For others, the heat or smoky skies have made it harder to get outside.

No matter where you are today, we'd love to visit your corner of the world.

Share a photo of anything that brings you a smile or reminds you of summer. It could be:
๐ŸŒผ A favorite flower or garden
๐ŸŒ… A beautiful sunrise or sunset
๐ŸŒณ Your backyard or favorite shady spot
๐Ÿพ A furry friend enjoying the season
๐Ÿšœ A vacation memory or a favorite place you've visited
๐Ÿก Or even a special photo from years ago that brings back wonderful summer memories.

Every picture tells a story, and every story helps us get to know one another a little better.

So, where are we visiting today? We can't wait to see your corner of the world! ๐Ÿ’™๐Ÿ“ท

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธPEACH WATER ๐Ÿ‘๐Ÿ‘๐Ÿถ๐Ÿถ๐ŸงŠ๐ŸงŠ1 small ripe peach8 ounces water OR sparkling water3 fresh basil leavesIceCut the peach into bite-sized pieces. Transfer to a tall glass. Add basil leaves. Add desired amount of ice. Pour water into the glass. Enjoy!...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday! It's very clear to me that today will be an awesome day! Many reasons to smile! 
Enjoy, friends! ๐Ÿ˜Š

1 day ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Heard of a combination of Post-Laminectomy Syndrome & COPD:

It is good to know that the Baclofen has relieved much if not all of your pain. Pain can make breathing with COPD worse. As you have noted Baclofen can be a respiratory depressant. Try to be mindful of your breathing, and alert your doctor to any …
Shaun RigdonKaren Deitemeyer - Florida State CaptainHIcopd - Hawaii State Captain also answered the question Shaun Rigdonand 2 others also answered the question

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

As DebbieB has mentioned,  we are close to 66,000.  Who is ready to place their bets on when we will reach that mark and earn Ed's atta boy award?

2 days ago

Community Announcements

Community Announcementsadded a new article COPD Foundation announces Patient-Focused Drug Development meeting for COPD

Event highlights need for people's lived experiences at forefront of research, treatment development, and regulatory decisions

Miami (August 4, 2026) - The COPD Foundation today announced plans for an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting for chronic obstructive pulmonary disease (COPD). This meeting is modeled after the Food & Drug Administration's (FDA) PFDD public meetings. Drug developers, FDA, and other stakeholders will be in attendance.

COPD, which includes emphysema and chronic bronchitis, affects more than 30 million Americans. It is the fifth leading cause of death in the United States and the fourth leading cause of death worldwide. Despite important advances in care, many people with COPD still face ongoing symptoms not addressed by currently available treatments, which negatively impact quality of life and health outcomes.

2 days ago

JoolsT

JoolsT

Hi, Iโ€™m Jools and a new member. Iโ€™m feeling pretty frightened at the moment asI have just found out that a recent chest x ray has revealed emphysematic changes. Iโ€™m waiting tor a CT scan. I had a really nasty virus in May and since then have been more than the usual amount of mucous, although my coughing episodes have reduced.  Has anyone had a similar experience and if so, what was the outcome?

2 days ago

Bobmc

BobmcWell the smoke has finally reached the coast,been really lucky till now.Seems like my whole province is on fire,many human caused which really fries my noodles.
For those of us suffering with breathing issues it is just another hurdle to overcome,but we always do because that just who we are.
Hope your part of the world is unaffected by these fires and your skies are clear and sunny.

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Today, we recognize World NTM Awareness Day.

Nontuberculous mycobacterial (NTM) lung disease is often misunderstood, frequently overlooked, and for many people, completely life-changing.

It can affect every breath, every routine, and every part of daily life. Yet too many people spend monthsโ€”or even yearsโ€”searching for answers before receiving a diagnosis. That's why awareness matters.

Today, we stand with every person living with NTM, every caregiver walking beside them, every healthcare professional dedicated to their care, and every researcher working tirelessly to uncover better treatments and, one day, a cure.

World NTM Awareness Day reminds us that progress begins with awareness. It grows through research. It advances through collaboration. And it becomes hope because of the strength of a community that refuses to give up.

Together, we're shining a light on NTM, encouraging earlier recognition, supporting continued research, and helping ensure that no one has to face this disease alone.

๐Ÿ’™ Today, we honor the journey. We celebrate the progress. And we look toward a future filled with better answers, better treatments, and more hope for everyone affected by NTM!

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŸคโšช๏ธONE POT CHICKEN AND RICEโšช๏ธ๐ŸŸค4 to 6 tbsp. butter, divided1 heaping cup shredded carrotsSalt and freshly ground black pepper to taste 2 cups Jasmine rice 1 tbsp. dried minced onion1 tsp. dried minced garlic2 tbsp. dried parsley flakes8 cups chicken...

2 days ago

Darlene68

Darlene68

Im feeling defeated . I fear that i will never beable to get off oxygen which makes me sad and depressed.  I have been on it since June 3rd of this year after having a medical emergency due to severe copd exacerbation.  I have been told that i may have to be on it 24/7.  Its a whole new world for me but at the same time i am grateful that i survived as i wasnt expected to make it through the night.  i have 6 adult children and 4 grandkids.  I feel isolated as i dont know anyone who is on oxygen and am grateful to have found this group. It just happened so fast. I dont recall anything that happened due to delirium.  My daughter called an ambulance as i looked really short of breath and didnt even recognize her.  I dont remember anything until my 3rd day in ICU. My kids said they visited me everyday but i dont recall anyone visiting me. Day 4 i went to a regular floor and came to and some of my kids were there when i got there. My oxygen was only 60 and carbon dioxide was 85 when i was admitted. I was living alone prior to this and i was watching my 4 year old grandson and my daughter was working from home at my house. I dont remember anything the morning of June 3 my daughter said i was breathing heavy and looked like i didnt even know her.  So now im on oxygen. Its not the end of the world. I did pt for 4 weeks and still do my exercises faithfully .  My pulmonolist said that i need  pulmonary therapy and will be faithful to that as well. Thank you for listening to my long message. I guess i just needed to vent. Sincerely Darlene 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday!
May your day blossom into something totally gorgeous! ๐Ÿ˜

2 days ago

lbcoopman

lbcoopmancommented onCOPD and Disability Benefits: The Pros, Cons, and Step-by-Step Guide to SSDI

Good info but please keep in mind if you have insurance through an employer yours or spouses that most prescriptions have a coupon for insured only making meds between 0 and $30. If you receive any form of government insurance you cannot use the...

2 days ago

6ft Pixie

6ft Pixie

๐Ÿ˜’ I'm not having a good day, emotionally. My husband and I went to Maine last week to visit our youngest son. It was a good visit. I didn't want to leave. Now that I'm home, I find myself spending hours scrolling. I do have an appointment with both my therapist and psych PA this week. I just can't motivate myself to get to the gym. 

2 days ago

Bobmc

BobmcMy wish to all is to make the best of today no matter the starting point,suck as much joy and happiness you can from the day and leave the garbage in the dump where it belongs.

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.