COPD360social welcomes new member Nana23 who joins 64,681 current members of our community. Weโ€™re glad you're here!

baileymccrary

baileymccrary

Hello all! Do you currently take Anoro Ellipta, or have you ever taken Anoro Ellipta? Are you interested in sharing your story to inform lung health policy? If so, please reach out to Mike Hess at mhess@copdfoundation.org! โญ๐Ÿ’จ๐Ÿ“„

1 day ago

Ward

Ward

I had 4 valves put in October 2025.  Since then, my COPD symptoms have exacerbated to the point that I get winded simply walking from the couch to the kitchen. I am homebound most of the time and have to sleep sitting up. If I had known more complications could have happened, I never would have gotten this valve operation.  I hate gasping for air just bending down to pick up something.  I am in conversation with my doctor to get them removed and am hoping it will help me to breathe better than before the surgery.  I wish I had known more about the complications that can happen with this surgery prior to having them put in.  I never would have had this!

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ’˜CUPID'S CLOUD RASPBERRIES AND CREAM๐Ÿ’˜Absolute perfection! Serve this dessert after enjoying your Valentine's Day meal! ๐Ÿ’—1 cup whipping cream1 tbsp. sugar 1/2 tsp. vanilla extract 2 cups frozen raspberries 1/2 cup sugarUsing an electric hand mixer,...

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from our good friend Miyagi! Notice her eyes as they focus. A well known trait among the Siamese breed. My cat Shelby is half Siamese, and you can notice his eyes focus as well. Sometimes the eyes completely cross. 
Have a pleasant, easy breathing day, friends! ๐Ÿ˜Š

12 hours ago

Richard DJ

Richard DJanswered the question Why am I Soooo tired after errands...when I finally sit down I feel as though I'm taking my last bre

In addition to using Trelegy to open my lungs and Fisetin to help keep the phlegm down I found I also had a heart problem. A couple of months ago they cleaned out the arteries to my heart muscles, and I don't get as tired when doing extended activities. …
Phyliss DiLorenzo NJ State CaptainKaren Deitemeyer - Florida State Captain also answered the question Phyliss DiLorenzo NJ State Captainand 1 other also answered the question

23 hours ago

JeanO53

JeanO53answered the question Personal question for ladies. I canโ€™t stand anything that is binding. So ladies this would be a bra.

Hi GAnne - LOL... You are not alone!! I usually wear a bralette (Bali). No wires or clasp in the back. I also wear a scoop neck cami from Shapermint. The cami is snug around the torso but the design has room and support for your breasts.
DebbieB.-Connecticut State Captain also answered the question DebbieB.-Connecticut State Captain also answered the question

1 day ago

WoodlandDance

WoodlandDanceanswered the question Is anyone else using Fisetin to reduce phlegm, and is it doing as great for you as it is for me?

Just adding some updated studies re: Fisetin https://pmc.ncbi.nlm.nih.gov/articles/PMC6197652/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11941139/... Not much further along that when this thread was started 5 years ago, unfortunately. We always …
Brent ARichard DJWil2023and 6 others also answered the question Brent Aand 8 others also answered the question

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Popcorn lung

What you describe remains most consistent with an airways problem (asthma).
Kmcnamara68 also answered the question Kmcnamara68 also answered the question

1 day ago

Richard DJ

Richard DJanswered the question Is anybody using either azithormycin or roflumilast for phlegm control ?

You can read my usual commets above going back several months. It is great to find a way to clear the phlegm, but my basic goal is to avoid the phlegm to start with. How do you do that on a consistant basis? I still take the Fisetin (Swanson or Doctors …
GAnneLynda Wmony072and 4 others also answered the question GAnneand 6 others also answered the question

1 day ago

GAnne

GAnneasked the question: Personal question for ladies. I canโ€™t stand anything that is binding. So ladies this would be a bra.

I have been wearing, a tank top, itโ€™s hard to finds these with bras in them. So is there a certain one that you find comfortable or is there anything else that can help. Someone told me to clip the sides, not sure that will help. I canโ€™t be the only one …

1 day ago

Kmcnamara68

Kmcnamara68asked the question: Popcorn lung

I have not used ecigs at all in quite a few years, but wondering if past use for several years could have led to this. Idk, I was fine until flare up back in October and just not the same since. I am going to start treatment with Xolair for very high IgE …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„LEMON ~KALE~WHITE BEAN SOUP๐Ÿฅ„2 tsp. olive oil 1 medium onion, finely diced 1 1/2 cups sliced carrots2 cloves garlic, minced 1 tbsp. minced fresh rosemary 1 cup diced potatoes 2 cups vegetable broth Salt and freshly ground black pepper to taste 2...

1 day ago

JimmieJ

JimmieJ

Thank you Debbie. I'm Brenda. I'm still trying to accept that I might not be able to get off the oxygen this time. After tomorrow we will have temps in the 40s and 50,s. Its been a long very cold winter in Michigan 

1 day ago

  • NewestOldest
  • DebbieB.-Connecticut State CaptainGood morning, Brenda! 
    It's been a long, brutally cold Winter here in Connecticut, as well. 
    Try to do your best to focus on the good things in your life. It really does help us to get through the toughest of times.
    We are here to support you. You'll be in my thoughts, and those thoughts will be positive ones! ๐Ÿ˜Š1 day ago
  • JazzybeanJust wanted to say hello. It's been a cold winter in western New York as well. I cannot wait for the snow to melt. 
    Please, take the time you need to accept your new normal. It is difficult to realize we may not get back to the old normal, and now are stuck with a new normal. Sometimes it just takes time, but, as I always think to myself, I can either accept it, or fight it, which I know from experience exhausts me even more. Be good to yourself, and eventually, the new normal will seem well, .....normal. I wish you well.  1 day ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy, Happy Thursday! 
Start your day with a positive outlook, and keep a smile on your face! You're sure to have a good day! 
May your day be productive and beautiful! ๐Ÿ˜Š

1 day ago

JimmieJ

JimmieJ

Hi everyone. I just joined not quite sure what to say but I'm happy to be here and learn more about COPD. I've had a rough year I've been hospitalized twice. I'm working hard to figure this out and how to help myself. Thank you๐Ÿ˜ƒ

1 day ago

das23

das23answered the question Check-in: Managing airway mucus: Commonly asked questions

Thanks Kalli. Learning Airway Clearance methods can be a big help for those with mucus issues.
Coach Brandon - Community Manager also answered the question Coach Brandon - Community Manager also answered the question

1 day ago

Old Joe

Old Joeanswered the question Mucus

Here's link to "How to handle mucus" from this site https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Coping-with-Airway-Mucus.aspx

2 days ago

Kalli Mago

Kalli Magoasked the question: Check-in: Managing airway mucus: Commonly asked questions

Mucus. Phlegm. Sputum. Whatever you call it, it can be a common problem for people with COPD and other chronic lung conditions, such as bronchiectasis. Extra mucus forms in the airways, from the lungs to the throat, and it might come out as you cough. …

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™โ„๐ŸŒ Itโ€™s VMCoTWW -- with a little Valentineโ€™s flair! ๐ŸŒโ„๐Ÿ’™

With Valentineโ€™s Day just around the corner, letโ€™s share what we love. It might be a favorite place, a cozy view, a peaceful spot indoors, or somewhere that holds special meaning -- even if itโ€™s cold outside.

Show us your corner of the world and tell us why you love it. Letโ€™s fill today with places, moments, and views that warm the heart. ๐Ÿ’•

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‹SKILLET LEMON CHICKEN๐Ÿ‹1 tbsp. olive oil 1 tbsp. butter1 1/2 pounds boneless, skinless chicken breasts, cut into 1-inch strips3/4 tsp. Italian seasoning 3/4 tsp. salt1/4 tsp. freshly ground black pepper 2 cloves garlic, minced 1/4 cup chicken...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Wellness Wednesday! And...that's a good thing! When we manage our condition well, we improve the quality of our lives! Don't take your health for granted. Be sure to see your physician on a regular basis. 
We are always here to support you... here on 360Social. Part of staying well is staying happy. Keep those positive thoughts flowing, friends! ๐Ÿ˜๐Ÿคฉ

2 days ago

Lynda W

Lynda Wasked the question: Mucus-I have so much mucus and it seems to be getting worse

I have so much mucus and it seems to be getting worse. I was diagnosed back in 2021 with COPD stage 2. Then in 2022 the mucus started and when I started to question why, they gave me a new test which was still same but I have asthma. My breathing seems …

2 days ago

Monica 2020

Monica 2020

Can I ask if anyone has normal fev1 but low dlco ? What percentage is your dlco and how are you doing 

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Trelegy - Is there any type of spacer to use with the Trelegy inhaler?

There's really norhing to swallow - Trelegy is a dry powder. I think web girl means she holds her breath after taking her dose for the suggested amount of time (Trelegy recommends 3-4 seconds), and then breathes out slowly. Then she gargles, rinses and …
lizjbWebbgirl028Scorpioand 4 others also answered the question lizjband 6 others also answered the question

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Check-in: How do you create a COPD-friendly home?

Also, consider a shower chair or stool or a bench for your shower. It can make life a lot safer and easier. PTs and OTs can recommend better ones or read reviews.
DebbieB.-Connecticut State CaptainKaren Deitemeyer - Florida State Captaindas23 also answered the question DebbieB.-Connecticut State Captainand 2 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy terrific Tuesday, friends! Sending wishes for a pleasant, easy breathing day! ๐Ÿ˜€

3 days ago

TMB24

TMB24

I am not doing well i was just told i have copd and i am 48 fixing to be 49 i been smoking for 32 years. 

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ˜•๏ธCOFFEE SMOOTHIEโ˜•๏ธA wonderful smoothie to enjoy in the morning, or as an afternoon treat! 1 medium banana, sliced and frozen1/2 cup brewed coffee, chilled 1/2 cup milk of your choice1/4 cup rolled oats1 tbsp. your favorite nut butter...

3 days ago

Kalli Mago

Kalli Magoasked the question: Check-in: How do you create a COPD-friendly home?

Home is where the heart is, but what about the lungs? COPD can change the way you relate to your environment, and your home is no exception. Is your home supporting your lung health? Here are a few simple ways you can make your home more COPD friendly. …

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŽ"SAVE SOME FOR ME" APPLE SALAD๐ŸDressing:1/2 cup plain Greek yogurt 2 tbsp. mayonnaise 3 tbsp. lemon juice3/4 tsp. salt1/4 tsp. pepperSalad:4 cups baby spinach leaves2 stalks celery, chopped1/4 cup thinly sliced red onion1/4 cup raisins 1/2 cup...

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.