COPD360social welcomes new member Sarah l who joins 65,488 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ“ธ๐ŸŽ“ Visit My Corner of the World Wednesday: Graduation Edition! ๐ŸŽ“๐Ÿ“ธ

This week, we're celebrating milestones, memories, and the moments that helped shape who we are today.

With graduation season all around us, we'd love to see a photo from a special accomplishment in your life. It could be:

๐ŸŽ“ A high school, college, or trade school graduation
๐ŸŽ“ A military or career milestone
๐ŸŽ“ A graduation photo of a child, grandchild, or loved one
๐ŸŽ“ Completing pulmonary rehabilitation
๐ŸŽ“ Reaching a personal health goal
๐ŸŽ“ Learning a new skill or taking on a new challenge
๐ŸŽ“ Any moment that made you proud and reminded you how far you've come

Living with COPD, bronchiectasis, NTM, or caring for someone who does often means celebrating victories that may not come with a diploma or a cap and gown. Sometimes the biggest accomplishments are the ones that take determination, patience, courage, and perseverance.

This week, take us to your corner of the world and share a photo that represents an important milestone, achievement, or memory. Whether it's a graduation picture from years ago, a recent accomplishment, or a special moment you're proud of, we'd love to celebrate it with you.

And don't worry if your photo is a little vintageโ€”we'd love to see those throwback hairstyles, fashions, and smiles too! ๐Ÿ˜Š

๐Ÿ“ท Share your photo and tell us:
What accomplishment are you most proud of, and what did it teach you?

We can't wait to take a walk down memory lane with all of you and celebrate the journeys that brought us here today. โค๐ŸŽ“๐ŸŒŽ

2 hours ago

Misty Green COPDF Research

Misty Green COPDF ResearchAttention- CAREGIVERS and PATIENTS

Take the
Survey: Exploring the Unmet Needs of Patients with Serious Respiratory Illness
and Their Caregivers

Whether you are a person living with a respiratory illness
or caring for someone who is, your perspective makes a real difference. Living
with these conditions can be challenging, and the voices of patients and
caregivers are important. By taking part in this survey, you help others
understand what kinds of care and support matter most. The information you
share will help doctors, nurses, and health leaders improve respiratory care
around the world.

The survey should take about 20 minutes to complete, and
itโ€™s best to finish it in one sitting.  
Take the survey: https://redcap.musc.edu/surveys/?s=LLLEYFNX8D44D7D4

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿซ’๐Ÿซ’GREEN OLIVE CROSTINI๐Ÿซ’๐Ÿซ’1 cup chopped large green olives, pits removed 2 cloves garlic, minced 1 tbsp. olive oilSalt and freshly ground black pepper to taste 1/2 cup grated Parmesan cheese Baguette slices Brush the Baguette slices with olive...

moments ago

JeanAJohns

JeanAJohns

 I'm tired, I want to sleep all the time or just lay down. This sucks for me. I'm the caregiver, I worked hospice for over 40 years, no idea how to let someone take care of me.

1 hour ago

Papau

Papau

Hello everyone! ๐Ÿ‘‹
My name is Papau, and I am brand new to this community. I am so glad to have found this space!
I am a Stage 4 COPD patient living in North Bergen, New Jersey, and like many of you, I know firsthand the daily challenges and emotional journey that come with this condition. Finding a community of people who truly understand means more than I can express.
I am not only here to find support, but also to give it. I would love to get involved and contribute in any way I can โ€” whether that is joining ongoing activities, participating in advocacy efforts, supporting awareness programs, or simply being a friendly and encouraging presence for fellow members who may be navigating this journey.
If there are any open activities, volunteer opportunities, or programs I can get involved with, please don't hesitate to point me in the right direction. I am ready and eager to be an active part of this incredible community!
Looking forward to connecting with all of you.

5 hours ago

Wildebeest

Wildebeest

Was there not a thread about a Zoom conference today? I can't find it now and had planned to attend.

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‹๐Ÿ‹LEMONY ORZO SALAD๐Ÿ‹๐Ÿ‹2 tbsp. Balsamic vinegar 1/4 tsp. lemon zest 2 tbsp. lemon juice 1 clove garlic, minced 1 1/4 tsp. salt, divided1/2 tsp. freshly ground black pepper 6 tbsp. olive oil 12 ounces uncooked orzo1/2 cup grated Parmesan...

9 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy, Happy Tuesday! 
When you wake up this morning and get up out of bed, please, don't forget to put on your finest smile! 
A smile is a one-size-fits-all part of your wardrobe! It will always fit you just right!
Here's a great big smile for all of you! ๐Ÿ˜ƒ

14 hours ago

Dynomiti

Dynomiti

Doing ok. Are there any conversations about the zephyr valves 

14 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Breathing, yoga exercises

I personally believe that the vibration in your nasal cavity produces nitric oxide which helps reduce inflammation.

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThis one goes out to all of our fine members. ๐Ÿ˜Š

23 hours ago

Bob puff dragon

Bob puff dragonHope all is well with everyone on this Monday, a day that usually sets the tone for the week to come.

1 day ago

Geevee

Geeveeasked the question: Breathing, yoga exercises

Breaching yoga exercises, many are there ,but the easy and effective one pls .is Bramhari useful?

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿพ๐Ÿ’™ Happy Best Friends Day! ๐Ÿ’™๐Ÿพ

Best friends come in all shapes and sizes.

Maybe yours is a spouse, sibling, child, neighbor, or caregiver who checks in and helps you through the tough days. Maybe it's a friend from our community who understands exactly what you're going through and is always ready with a kind word or encouragement.

For some of us, our best friend has four legs, a wagging tail, and a special talent for knowing exactly when we need a smile. ๐Ÿถ๐Ÿฑ

And let's be honestโ€”there are days when our favorite inhaler, nebulizer, oxygen concentrator, or rescue medication feels like a pretty good friend, too. ๐Ÿ˜Š

Life with COPD, bronchiectasis, or NTM can be challenging, but having someoneโ€”or somethingโ€”we can count on makes a world of difference. Best friends help us laugh, listen when we need to vent, celebrate our victories, and lift us up when we're struggling.

Today, we'd love to hear from you:

โค Who (or what!) is one of your best friends?

Feel free to share a story, a photo, or simply give a shout-out to someone who helps make your days a little brighter.

Happy Best Friends Day from all of us at COPD360social!

1 day ago

  • NewestOldestClick to View All Comments22 comment(s)
  • JeanO53Hahaha - Dave... isn't it amazing all of the different ways we've listened to music!
    I still have LPs from the 60s & 70s19 hours ago
  • DebbieB.-Connecticut State CaptainAnyone still have 8 tracks?14 hours ago
  • JeanO53hahaha... DebbieB - that maybe the one method I never used.  I'm not sure they had a very long shelf life.  Too big, maybe ???7 hours ago
Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainMonday Morning Music.
Wishing you an inspired week..
"Joy" Apollo 100             
https://music.youtube.com/watch?v=2vhZX_joco8

YouTube Music

With the YouTube Music app, enjoy over 100 million songs at your fingertips, plus albums, playlists, remixes, music videos, live performances, covers, and hard-to-find music you canโ€™t get anywhere else.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

A good way to use of the last Cheerios left in the box! Also a good way to encourage children to eat salad. A good substitute for croutons!...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸคฉSALAD WITH A SURPRISE๐Ÿคฉ4 cups torn Romaine lettuce leaves2 Honeycrisp apples, diced1/4 cup dried cranberries 1/4 cup chopped walnuts 1/4 cup thinly sliced celery 3/4 cup Cheerios cerealBalsamic VinaigretteIn a large bowl, toss together the...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHave a marvelous Monday, friends! Today is only the beginning of a magnificent week to come!
Keep those positive vibes going strong! We love to see smiling faces here on 360Social! ๐Ÿ˜€๐Ÿ˜ƒ๐Ÿ˜€๐Ÿ˜ƒ๐Ÿ˜€๐Ÿ˜ƒ

1 day ago

hastyRetreat

hastyRetreat

I had a PET scan last January, came out negative for cancer.
Pulmonologist wants to do navigational Bronchoscopy after n  o change on this 5 month CT scan.  Please chime in if anyone has had one and if it was an easy experience or hard. Iโ€™m scared.
Thank you so much.

2 days ago

Keze

Kezeanswered the question Age 33 Diagnosed with COPD

Sounds like you are maximizing what you have. Most importantly, stop smoking. (Easier said than done)! Get tested for Alpha1 to ensure you donโ€™t have a genetic component. You can go to alpha1.org and order yourself a free test. Results will come to you!
Catch22Liza MDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 7 others also answered the question Catch22and 9 others also answered the question

2 days ago

JeanO53

JeanO53

I probably shouldn't say this outloud, but I think I've figured out my issues with sleep.
.. This past week, I've been asleep before 12 midnight and have gotten at least 6 hours of sleep, averaging 7 hours over the last 7 days.  It's still a work in progress.  It's been quite simple actually.   When I start to feel tired and yawn, I begin the process of shutting down - lights out within about 15 minutes.  No more pushing past feeling tired.  Whatever I'm doing or reading will be there tomorrow, or maybe won't even matter tomorrow
.. This might sound like a "duh" to some, but this has been a big accomplishment for me!!  As with most things, listening to what the body is telling me is the smart thing to do.  โ˜บ     Now, here's to being consistent. 

2 days ago

Ginger100

Ginger100

Hiya everyone!!


Some advice please. 


I cant exercise due to a serious bqck injury i sustained.So to keep my lungs as healthy as i possibly can,i do 30 mins everyday of the following. 


Buteyko breathing 
4,7,8 box breathing 
Wim hoff breathing 


I sometimes wonder if these are actually even helping. I do feel better after i have finished them though. 


The question i would like to ask is.


 What are the best pulmonary exercises i can do to maintain my lung health?
What pulmonary exercise helps improve or maintain your  fev1? Some advice would be amazing? 


Thanks for reading 


 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! 
Lots of positivity and peace are flowing your way. When they arrive, suddenly a great big smile will appear on your face! ๐Ÿ˜ƒ Enjoy your day to the fullest! 

2 days ago

Caretta

Caretta answered the question Cheapest place to buy trelegy?

My husband called Trelegy manufacturer; they told us how to apply for the drug once we had a total of $600 for all OOP drug costs. So we ended receiving about 4 mos.free. Deductible much higher this year but once your Dad reaches 2100 in drug costs all …
cellar muddleagedbrydyand 5 others also answered the question cellar and 7 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a pleasant Saturday! Please take some time out to do something you enjoy! So many options to choose from! Relaxing in your favorite chair, sitting on the porch watching the world go by, going shopping, working in the garden, doing a crossword puzzle, maybe visiting a neighbor... The choices are unlimited! We would love to know what you've got planned for your Saturday! ๐Ÿ˜€

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Check-in: How do I prepare for a natural disaster with COPD?

I have my sisterโ€™s house, up the hill from mine that I can evacuate to if needed. I bring my POC, chargers, all my batteries & cords and a Duracell 500 Power Block (weighs about 13#). I can charge devices or my POC for 8 hours with the block. There …
das23Karen Deitemeyer - Florida State CaptainDebbieB.-Connecticut State Captain also answered the question das23and 2 others also answered the question

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

I remain shocked at not seeing ANYONE else in NYC, Scandinavia nor Tokyo with O2 (except one person in ER in NYC).  It makes me sad that people with supplemental O2 arenโ€™t out and about.  Iโ€™ve been traveling an entire month and honestly expected to see a few folks on O2.

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

I have a new travel tip for anyone flying with medical gear (itโ€™s only taken me too long to figure this out). 


Pack all medical equipment, cords & batteries serrated from your other items so when itโ€™s time to separate them out at security, you can just pull them out and put them into separate bins for scanning. 


I didnโ€™t do this and it was a hassle for me and security at the checkpoints. This time (on our way home) I did it!  I put the POC in a separate featherweight backpack. All the cords & external charger in a separate featherweight backpack, the batteries in a waist pack and the other charging cords in a mesh bag. 


I secured the rest of my suitcase so itโ€™s very easy to pull out the featherweight backpacks from middle of it. Everything else is tied or fastened down and nothing is loose. 


Fingers crossed that this makes security easier than ever!

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.