COPD360social welcomes new member Vaiya who joins 65,800 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿš€ Happy Space Exploration Day! ๐ŸŒŽโœจ

Every great discovery starts with one simple question:

"What if?"

What if I asked my doctor about pulmonary rehabilitation?

What if I tried a different airway clearance routine?

What if I joined a support community where people truly understand?

What if I took a short walk today... just to see how I feel?

Space exploration has always been about taking that first step into the unknown. Living with COPD or bronchiectasis can sometimes feel the same way. Trying something new can be a little intimidatingโ€”but it's often how we discover new ways to breathe easier, stay active, and improve our quality of life.

You don't have to make a giant leap today. Even one small step forward is still progress. ๐Ÿ’™

๐ŸŒŸ What is one thing you've explored that has made a positive difference in your journey? Maybe it was pulmonary rehab, a new medication, airway clearance, oxygen, exercise, breathing techniques, or finding this community.

Your experience might be exactly the encouragement someone else needs today!

17 hours ago

jeffdrake

jeffdrake

I am doing fine, because my COPD is "stable."  But, this wasn't always the case.

A little over a year ago I was experiencing flare-ups regularly, and sadly, frequently. I remember reading there was even a name for my condition. I would get a flare-up, take prednisone and antibiotics for 10 days, then I'd be good for a couple weeks, then boom, I'd get another flare-up. It was awful and I seriously didn't think I was going to survive the flare-up storms I was experincing.

Then I was tested to see how high my eosinephils were. The result showed they were high enough for me to qualify for Dupixent. I started taking it and the results were immediate, and long-lasting. I have not had a single fflare-up since I started Dupixent!

Dupixent is, as far as I am concererned, a miracle drug. I owe my life to it. I'm sharing this with the hope that others might find the same relief that I am getting.

No, I am not a Dupixent schill. I get no compensation for telling you what my personal experience ahs been with this drug.

8 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question SOB when taking showers?

Lucy k Are you on oxygen? If so, you can hang the tubing over the shower rod and continue to use it in the shower. If not, then something else you could do is to use your "rescue" inhaler in advance. Spesk with your provider about this, but this …
Lucy kMama Geemelody1957and 3 others also answered the question Lucy kand 5 others also answered the question

9 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Check-in: Preparing to travel with COPD

Thanks Kalli Mago (COPDF Communications Coordinator) I didn't know about the America the Beautiful Access Pass. I'm definitely goiong to check into it. And I'm packing right now (well, taking a short break to stop in at 360) for a vacation, so will go over your trip packing list to be …
das23 also answered the question das23 also answered the question

9 hours ago

LindaB50

LindaB50

Is it good to push yourself causing your oxygen level to go down.  Does it strengthen or damage your lungs?

11 hours ago

Kalli Mago (COPDF Communications Coordinator)

Kalli Mago (COPDF Communications Coordinator)asked the question: Check-in: Preparing to travel with COPD

Travel adds joy to life . Whether you go to visit loved ones , try something new, or explore the world, traveling opens the door to new experiences . COPD can make travel more difficult , but it do esnโ€™t h av e to keep yo u a t home. With …

11 hours ago

Tom6314

Tom6314

What Can I say, Glad to find this group, 70 Years old. Waiting for the lung test to confirm the CT of Stage 2 Emphyzema.

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„YELLOW RICE๐Ÿฅ„1/4 cup unsalted butter2 cups Basmati OR Jasmine rice4 cups chicken broth2 tsp. turmeric 1 chicken bouillon cube1 tsp. garlic powder1 tsp. onion powder1/2 tsp. paprika Salt and pepper to taste Melt butter in a large...

18 hours ago

Nancy2024

Nancy2024

Thank you for your advice.  I'm 82 and lilve alone.  Do most of the people that use Ohtuyvre live alone, have a care giver or live in a facility?  For several years now, for reasons I don't know, I will be eating or drinking something and begin coughing and or choking.  Do you use this medication?  Please let me know your answers.  Thanks so much.  Nancy2024

19 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, friends! May your day be filled with sunshine and smiles!    ๐ŸŒž๐Ÿ˜€ Make the best of every moment...

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Just a little note!
When I am out and about, I like to spread the word about COPD, and this website. Many conversations this weekend ended up being about the wildfire smoke situation. 
This is THE perfect time to hand out Captain's Calling Cards! Folks can learn about better breathing, taking precautions, and how folks like us deal with the smoke on a daily basis.
I tell people that if anyone is being affected by the smoke, they should visit our website. ๐Ÿงก๐Ÿ’™

1 day ago

LFAOMGA

LFAOMGA

Electric is still out from severe storm that started here in Ohio around 5:30 pm yesterday when one of the lines came down onto the street. The good news is that it has really cooled down from the storm so itโ€™s still a happy Sunday for me. My neighbor has a generator and let me bring my frozen food over to put in their basement freezer. Kind neighbors are a gift ๐ŸŽ 

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Can anyone interpret these latest blood tests

This demonstrates chronic CO2 retention that is mostly compensated. This suggests chronic hypoventilation and end stage severe COPD. I have had several patients that survive with this level of impairment for months to a year or two- but most only survive …
netmouse also answered the question netmouse also answered the question

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Having taken Chantix years ago, I now fear taking Ohtuyvre

Every medication has the potential for side effects. As an inhaled medication, Ensifentirne (Ohtuvayre) has fewer side effects than systemic medications- but some people are more sensitive to medications than others. The reported psychiatric side effects …
HIcopd - Hawaii State CaptainnetmouseKaren Deitemeyer - Florida State Captainand 1 other also answered the question HIcopd - Hawaii State Captainand 3 others also answered the question

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Wonderful article featuring Grace Anne Dorney Koppel about COPD.
www.www.forbes.com/sites/brucelee/2026/07/18/ted-koppels-wife-grace-anne-talks-about-life-with-copd/

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday! We have a very nice friend here with us today who wants to make an announcement. She would like to wish all of you a pleasant day. She would also like to remind you to take some time out for yourselves and enjoy your day! ๐Ÿ˜Š

1 day ago

netmouse

netmouseanswered the question Wildfires + Apartment Search

Well, I can well imagine this weekend has been a concern for you, to say the least. I have stayed inside for a few days. I'm in Pennsylvania and we went up to the "hazardous" maroon (highest) AQI level for 3 hours overnight Friday. Today Saturday, …
GAnnebrydy also answered the question GAnneand 1 other also answered the question

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainPlease save the date & join us for a wonderful zoom event. It is our 20th anniversary and more information & registration information is available at www.hawaiicopd.org/19th-annual-copd-education-day/.  It will be a lot of interesting speakers and topics.  It is free to all interested registrants.

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainSilly sign posted on bathroom at a bar (saw it online).

2 days ago

JeanO53

JeanO53

Update on Sleep Progress:  
All is going incredibly well with addressing my sleep issues.  I seem to have found a good rhythm for getting a good night's sleep.  It's kind of amazing.  I'm averaging about 7.5 hours of sleep a night with an average of 1.5 of deep sleep.
- What's working for me are a number of things. 
... First was recognizing there's a "sleep window".   I usually start yawning around 9:30 - 10:00.  I used to push past that.  I now recognize that as the "sign" and I'm leaning into it.  That's the sign to wind down and be ready to sleep by 11:30-12:00
... I've shifted most things to earlier in the evening.  I try to make sure I've had dinner around 6:00 pm, do my evening medication routine around 8:00 pm, and have everything set up for sleep before 9:30.  
... I do some gentle stretches and pursed lip breathing just before lights out.
... My alarm is set for 8:00 am and I try to stick to that.


I try not to make it too regimented.  I know that I'd resent and resist anything set in stone.  It's been about relaxing and setting a new rhythm.  My body and brain are responding very positively.  It's a great incentive to enjoy this new routine.

2 days ago

Nancy2024

Nancy2024asked the question: Having taken Chantix years ago, I now fear taking Ohtuyvre

Need to speak to an interventional pulmonologist for advice

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Hoping everyone enjoys their day! Keep those positive thoughts flowing! 
Remember, a smile on your face puts everyone in a good place! ๐Ÿ˜€

2 days ago

leeseeya

leeseeya

Hello everyone, I am new to this group because of my hard headedness Ihad chroic bronchitis from 1977-2022 and did not believe I had COPD. Only because as a retired RN I only saw pts with emphysema in the later stages and never saw anyone without O2. It was not until I  voraciously read all articles and blogs about COPD, i am so glad that i found this website and convinced my PCP to refer me to Pulmonary Rehab. i am glad i found this great resource.

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Sounds like a plan, Brandon! Let us know how you two like it! ๐Ÿ™‚...

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Managercommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

This sounds like an awesome dinner! I love everything about it. Mushrooms, orzo, and spinach sound like a perfect combination. I think I'd be going back for seconds! My mom is all in for this one!๐Ÿ„๐Ÿฅฌ...

3 days ago

perkyH

perkyH

PRICEPRO PHARMCY IN CANADA HAS A GENERIC VERSION OF Trelegy. I have been buying my Trelegy from them for years way less expensive than in USA. I forwarded the ingredents to my dr. and he said it is the same as TRELEGY.........JUST SHARING THIS WITH EVERYONE THAT IS ON A FIXED INCOME.

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿพ๐Ÿ’™ Happy World Emoji Day & Fluffy Friday! ๐Ÿ˜„

Some days, one little emoji says it all.

How would you describe your week? Drop one emoji in the comments... then share a Fluffy Friday photo of the pet (or favorite animal) that helped make your week a little brighter. ๐Ÿถ๐Ÿฑ๐Ÿฆ๐Ÿด๐Ÿข

Whether your week has been ๐Ÿ’™ ๐Ÿ˜… ๐Ÿ’ช ๐ŸŒž ๐Ÿค— ๐Ÿ˜ด or somewhere in between, we'd love to hear your story and see your favorite companion.

Our pets have a wonderful way of making us smile, helping us slow down, and reminding us to enjoy the little moments.

Let's fill today's comments with emojis, smiles, and plenty of Fluffy Friday photos! ๐Ÿพโค

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ฒCOLESLAW MINUS THE MAYO๐Ÿ”ฒ1 large head green cabbage, shredded 1 medium onion, thinly sliced1 large red bell pepper, thinly sliced 1/3 cup sugar3/4 cup cider vinegar 3/4 cup olive oil1 tsp. salt1 tsp. celery seed1 tsp. dry mustard Combine the...

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.