COPD360social welcomes new member Smokey31 who joins 58,930 current members of our community. Weโ€™re glad you're here!


Caalim

Caalim

Hello, I am new, just joined. Trying to learn this website.  I am enrolled in cardiac rehab which works for pulmonary as well I guess.  Today was my 2nd session and although I dread going I feel better afterward.

40 minutes ago

Bill Clark - Community Manager

Bill Clark - Community Manageranswered the question So scared, diagnosed in the ER

A peak flow meter administered by non-professional is pretty much next to useless and will not give you any honest information. A better purchase would be a pulse oximeter at this stage. What you need to do is get your anxiety in check, quit vaping and …
jarr2329Amanda Atkinson, MSN, RNDavid Mannino, MD     (Chief Medical Officer, COPD Foundation )and 6 others also answered the question jarr2329and 8 others also answered the question

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœดEASY HAM GLAZEโœด1/2 cup packed brown sugar2 tbsp. orange juice or pineapple juice1 tbsp. ground mustard1 tsp. grated orange peelIn a small bowl, mix together all ingredients. Brush the glaze over ham during the last 45 minutes of baking.Makes...

3 hours ago

Desert Rose

Desert Rose

I was diagnosed with Lung Cancer last summer. When I saw the surgeon he said because there was COPD in the lobe, he would remove that lobe.  The upper right lobe was removed on September 14th.  Luckily, the margins and nodes were clear and the cancer labeled as 1b.  Iโ€™m still not sure if the COPD was limited to the removed lobe.  I found this site while searching for a remedy for morning mucus in my throat. I think Iโ€™m going to try Apple Cider Vinegar and lemon juice.  

4 hours ago

Laurajayne1985

Laurajayne1985answered the question Reflux can this cause breathing issues? Canโ€™t get a answer from gp

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education) thank you for the reply, I wouldnโ€™t say itโ€™s been a drastic change in my breathing since taking the lansoprazole and donโ€™t want to think that thatโ€™s the cause alone as it says I may possibly still have mild copd or asthma and I donโ€™t know, …
Amanda Atkinson, MSN, RNJean IA State CaptainKandy State Captain of South Dakota also answered the question Amanda Atkinson, MSN, RNand 2 others also answered the question

7 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question What is the best split adjustable bed?.

I have bed toppers under the wheels at top.. It brings bed up 6 inches. They look like upside down flower pots. Also use 2 pillows.
Karen Deitemeyer - Florida State CaptainDebbieB.-Connecticut State CaptainJeanO53 also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

9 hours ago

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)answered the question How does Chronic bronchitis affect COPD

That's a difficult question to answer. If you seek out "Dr. Google" (which I do NOT recommend), you'll get a specific number or range based on wide population studies. However, these studies usually do not account for new therapies coming out, individual …

9 hours ago

Laurajayne1985

Laurajayne1985asked the question: Reflux can this cause breathing issues? Canโ€™t get a answer from gp

hi I have a question that I canโ€™t find any update information on and the groups online that Iโ€™m on are all saying different advice so Iโ€™m coming to you lot if that is okay? as you know from my previous post Iโ€™ve been having some breathing issues with …

9 hours ago

baileymccrary

baileymccraryHello all! For many of the 1.5 million supplemental oxygen users across the United States, supplemental oxygen therapy has become inaccessible, expensive, a burden to their routine, and a detriment to their quality of life. The Supplemental Oxygen Access Reform (SOAR) Act seeks to ensure that everyone has access to the correct type and levels of oxygen that they need to live healthy and active lives. 
This week, the Supplemental Oxygen Access Reform (SOAR) Act was introduced to the House of Representatives, joining the Senate bill introduced earlier this month. Now is the time to voice your support for this critical piece of legislation. You can encourage your elected officials to pass the SOAR Act by visiting the COPD Foundation's Advocacy Action Center: https://copdf.co/SOAR-Act

10 hours ago

Who Me ?

Who Me ?answered the question Burping and Respiratory Issues

You might consider a regular treatment for acid reflux. That was the culprit for my chronic cough none of my Dr's could help me, finally I just mentioned it to a Phyicians assistant while he was treating me for a sinus infection., He said after all of …
sixty sixDavid Mannino, MD     (Chief Medical Officer, COPD Foundation )brydy also answered the question sixty sixand 2 others also answered the question

10 hours ago

Laura Dee

Laura Deeasked the question: What is the best split adjustable bed?.

I find that going from sleeping flat to sitting/getting up makes my oxygen level plummet. When I sleep in the easy chair I donโ€™t experience the plummet but rather I stay at good oxy level. I want to sleep with my spouse, so Iโ€™m looking for the best split …

11 hours ago

Laura Dee

Laura Deeasked the question: How does Chronic bronchitis affect COPD

what does chronic bronchitis do to life ex

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐Ÿ‹CITRUS VINAIGRETTE๐Ÿ‹๐ŸŠ1 cup olive oil2/3 cup orange juice6 tbsp. lemon juice 1 small shallot, minced 4 tsp. pure maple syrup 2 tsp. Dijon mustard Salt and freshly ground black pepper to taste Place all ingredients in a mason jar. Cover and shake...

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday! Wishing everyone a happy, productive, easy breathing day! ๐Ÿ˜€

15 hours ago

Mike1999

Mike1999

I'm waiting for a final diagnoses as to what I actually have, but I believe is Chronic Bronchitis. Like many I'm going through the emotional part and dealing with the medical issues. I can't get into a Pulmonary clinic for a total evaluation until 4-22.  

23 hours ago

Cmassie

Cmassie

Was just diagnosed at the er with copd. Working thru all the emotions right now. Pushing  forward with getting diet, treatments and rehab in place asap.


I'm looking for a good daily medical journal due my copd journey. Would appreciate any recommendations...


Thank you!

1 day ago

jarr2329

jarr2329asked the question: So scared, diagnosed in the ER

I am a 43 year old female, former cigarette smoker who switched to vaping about 6 months ago. I have been having ongoing issues with pressure in my head and lump in my throat following a dental infection. I have been dealing with this issue for about 2 …

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

The Food and Drug Administration approved a drug from Merck to treat a rare and life-threatening lung condition called pulmonary arterial hypertension. The company estimates that the drug which will be marketed as Winrevair and is an injection administered every three weeks will hit select pharmacies by the end of April.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Today's recipe is brought to us by a very dear friend of mine, EvanofEarth! This is a creation which is very special, because it is his own healthy recipe. Thank you, Evan, for sharing your creation with all of us! ๐Ÿ˜€ "NAAN GOAT CHEESE PIZZA" ...

1 day ago

Celticgirl

Celticgirlanswered the question Always feeling like my lungs are inflamed, could my asthma diagnosis be off?

Geodude, I just think the PND is all about allergic reactions and a poor immune system which is constantly compromised by auto- immune conditions, specifically Polymyalgia Rheumatica relapses. Sadly, clinicians don't seen to take PND seriously, at least …
David Mannino, MD     (Chief Medical Officer, COPD Foundation )David29 also answered the question David Mannino, MD     (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday! Thought for today: The simple things in life are the best things!
What are the simple things? Oh, a spring flower emerging from its bulb, a wonderful article youโ€™ve read in your favorite magazine, discovering a new recipe you can make with what you have on hand, a surprise phone call from a friend. You get the idea! 
What are some of your favorite simple things?
Wishing you all a simply wonderful Wednesday! ๐Ÿ˜Š

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

SOAR was introduced in the House today. It had 4 co-sponsors.

1 day ago

Bluelou

Bluelou

๐Ÿ˜‘

2 days ago

sixty six

sixty sixasked the question: Burping and Respiratory Issues

Hi, I am under investigation for respiratory issues which I have had for around two year or may be even more but it is first now when it impacts daily life that testing to find the reason began. one wierd thing is that breathingdifficulty is associated …

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Getting a little worried seems to be a shortage showing up for our meds. This came up today about shortage of some insulin. I do use humolog by scale. 
 https://www.medicinenet.com/two_insulin_products_will_be_in_short_supply/news.htm?ecd=mnl_day_032624


I can't get my levelalbuterl HFA anymore says unavailable. Tried two different pharmacies.  
I have United Healthcare that got hacked so been having to pay for my neb meds.  There are more shortages am sure. 

2 days ago

brydy

brydyanswered the question Should it be this bad after missing inhaler dose?

Personally I follow my pulmonologists directions & adhere to the meds he prescribes. currently mine is trialing in a monitored way some new regimes to see if he can get my breathing more under control. I would not do this on my own only under the …
David29David Mannino, MD     (Chief Medical Officer, COPD Foundation )Jean IA State Captainand 1 other also answered the question David29and 3 others also answered the question

2 days ago

John Linnell

John Linnell

Hot Diggitty!! The SOAR Act was introduced into the House today!!
WASHINGTON โ€“ Today, Congressman David G. Valadao (CA-22) introduced the Supplemental Oxygen Access Reform (SOAR) Act. The legislation makes critical reforms to improve access to supplemental oxygen for Medicare beneficiaries. Congressman Valadao was joined in introduction by Reps. Julia Brownley (CA-26), Larry Bucshon, M.D. (IN-08), and Adrian Smith (NE-03). Companion legislation has been introduced in the Senate by Senator Bill Cassidy, M.D. (R-LA). โ€œSupplemental oxygen is a lifeline for so many people, but too many struggle to access the oxygen that works best for their lifestyle,โ€ said Congressman Valadao. โ€œThis bill makes it easier for people to get the oxygen treatment they need to live healthy, active lives.โ€

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

This Easter dessert is a foolproof classic for sure! ๐Ÿฅ•๐Ÿฅ๐Ÿ‡๐Ÿฅ•CARROT CAKE๐Ÿฅ•๐Ÿ‡๐Ÿฅ๐Ÿฅ•2 cups flour2 cups sugar1 tsp. baking powder 1 tsp. baking soda 1 tsp. salt1 tsp. cinnamon3 cups finely shredded carrot1 cup vegetable oil 4 eggsFROSTING:Two 3-ounce bars...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainYour Tuesday To-Do List:
Stay focused. โœ”
Accomplish much. โœ”
Be creative. โœ”
Keep an open mind. โœ”
Spread positivity.โœ”
Steer clear of drama. โœ”
Enjoy the little things. โœ”
Put in 100 percent effort. โœ”
Keep on smiling! โœ”
๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€

2 days ago

geodude2

geodude2asked the question: Always feeling like my lungs are inflamed, could my asthma diagnosis be off?

Hello everyone. I've been scanning through this forum, and want to commend you all for being such a resourceful and supportive community. I'm hoping some of you might be able to help point me in the right direction. I'm a 33-year-old male. I smoked …

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.