COPD360social welcomes new member tamailll who joins 66,164 current members of our community. Weโ€™re glad you're here!

baileygiglio

baileygiglio

Hello everyone! You have a chance to share your experience in an upcoming forum that could impact access to a COPD treatment. You may qualify for this opportunity if you:

- Live in the state of Maryland
- Have experience with Dupixent (dupilumab)

If you qualify and are interested in sharing your experience, please reach out to me at bgiglio@copdfoundation.org. Thank you!

2 days ago

tamailll

tamailllasked the question: โ€‹How to Get Rid of Smoke Smell in Clothes: 8 Best Methods

Updated: September 14, 2026 If you're searching for how to get rid of smoke smell in clothes , you've probably noticed that smoke odor can remain in fabric long after the visible smoke has disappeared. Cigarette smoke, cannabis smoke, fireplace smoke, …

moments ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy marvelous Monday, everyone! Wishing all of our wonderful members an awesome, easy breathing day! ๐Ÿ˜€

2 hours ago

Bernadine

Bernadine

Hello there. Iam Bern and i have had COPD for about 12 years.  I hope everyone is doing ok and as well as can be expected.  I gave up smoking 10 years ago but vape.  After i gave up I had no chest infection for about 9 years but this year I have had 3. Anyway I am pleased to be here on a,Forum with you all and to chat and listen to others, hugs.

3 hours ago

  • DebbieB.-Connecticut State CaptainWelcome to our community! We are happy to have you here with us!
    If you are still vaping, you should consider stopping that! You did a great job quitting the smoking, and I bet you would do a great job quitting the vaping!
    We are always here  to support you! ๐Ÿ˜€2 hours ago
Lucy k

Lucy kanswered the question CPET result is here

This is so im
HIcopd - Hawaii State CaptainCaroline West Virginia State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends!
A friendly little reminder to get your flu vaccination! Bruce and I got ours this morning! If you are unsure of when to get yours, your doctor will be able to help you decide.


You certainly don't want to get the flu.
Being protected is the thing to do.
It doesn't hurt, not even one bit.
No bleeding or drama, that's it.
Prevention is always so smart.
So, go ahead and do your part!
๐Ÿ’‰ ๐Ÿ˜ƒ

18 hours ago

brydy

brydyanswered the question Does pulmonary rehab help?

Its really nice to hear from you GAnne, Ive been wondering how your doing. thats awesome you are doing pulm rehab again!
GAnnePuzzieDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 4 others also answered the question GAnneand 6 others also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Today is National Day of Encouragement โ€” basically the official โ€œYes, you canโ€ holiday.

And I think 360social knows a thing or two about this one.

Encouragement doesnโ€™t have to be some big speech. Sometimes itโ€™s simply:

โ€œYouโ€™re doing better than you think.โ€
โ€œDonโ€™t forget your meds.โ€
โ€œTake your time. Thereโ€™s no prize for finishing first.โ€
โ€œI know today is hard, but youโ€™re still here pushing through.โ€
โ€œGive yourself a little grace today.โ€
Or one of my favorites: โ€œYouโ€™ve got this.โ€

Living with COPDโ€”or caring for someone who doesโ€”can make even an ordinary day feel like a pretty big accomplishment. Sometimes having somebody recognize that can make all the difference.

And the best part? Encouragement is free. It costs us absolutely nothing to give somebody a little boost, whether itโ€™s a friend, family member, coworker, neighbor, or someone right here in this community.

So today, letโ€™s spread a little extra encouragement around 360social.


Whatโ€™s something youโ€™d like to say to encourage someone else today? Or maybe something you need to hear yourself?

You never know who might read your words at exactly the right time.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Waking up with a smile on your face sets the tone for the day. Starting off in a positive way means that happiness is right around the corner! Enjoy this beautiful day! ๐Ÿ˜€

2 days ago

Tcd

Tcd

I have asthma overlap stage three emphysema. Doc is considering valves or volume reduction surgery. Iโ€™ve been doing some research and it seems even though the lung volume reduction surgery is more evasive the outcome is better. Can anyone share their experience with these procedures? 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good afternoon, friends. I hope you are having a nice Friday!
I just want to let you know about my husband Bruce's health condition. Those who know me will remember the whole story.
Bruce has been diagnosed with cancer once again. It has been spreading in his neck. It's an aggressive cancer. It has started eating away at the nerve near his vocal cord, which is paralyzed. There is cancer somewhere else is his body, but they have to find it. 
He has been struggling to speak and swallow. He's still going to work every day. 
The cancer is 100 percent treatable and curable. His neck oncologist will be treating thr cancer with radiation and chemical. He'll be out of work for 2 months, and will be in a great amount of pain.
He has a positive outlook, and the will to recover. Very important! 



2 days ago

Wildebeest

Wildebeestasked the question: CPET result is here

If anyone has any comments I'd be interested. It was done on a bike. Effort was maximal stopping due to breathlessness. HR peaked at 98% of predicted maximum. Breathing reserve was 23% (normal). Peak lactate was low at 5 when it should be over 8. Peak …

2 days ago

Lauriek64

Lauriek64

I'm doing ok. I have good and bad days

2 days ago

Patrick Moose

Patrick Mooseanswered the question Has anyone been involved in stem cell treatments? I understand there is no hard evidence.

To follow up on my experience - I have asthma / COPD overlay which mostly manifests in chronic bronchitis. My ox levels are stable (96-97) but Iโ€™m in bed 2-4 months out of the year with bronchial flares. If I get a virus my life is hell for the next few …
Upstate NY MikeKaren Deitemeyer - Florida State CaptainJeanO53and 2 others also answered the question Upstate NY Mikeand 4 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‡บ๐Ÿ‡ธ September 11 โ€” A Day to Remember

Today is Patriot Day and a National Day of Service and Remembranceโ€”a day to pause and remember the lives lost on September 11, 2001, the families whose lives were forever changed, and the first responders and countless others who stepped forward to help.

For our lung health community, there is another part of this story we understand especially well. The dust, smoke, and debris surrounding Ground Zero affected the health of first responders, recovery workers, survivors, and others for years afterward. Some are still living with those effects today.

But I also find myself thinking about the days that followed.

In the middle of unimaginable sadness, people showed up for one another. Neighbors checked on neighbors. Strangers helped strangers. People donated blood, brought food, volunteered, listened, hugged a little tighter, and seemed to pause long enough to remember just how much we need each other.

I wish it didn't take tragedy to remind us of that.

Maybe part of remembering September 11 is holding onto a little of what came afterwardโ€”the kindness, compassion, service, and willingness to look out for the person beside us.

And in a way, that's something we see right here in this community every day. Someone answers a question. Someone checks on a friend. Someone simply says, "I've been there too." Those may seem like small things, but sometimes they're anything but small to the person who needs them.

So today, we remember those we lost, those who ran toward danger to help, and those who continue to live with the physical and emotional effects of that day.

And maybe we can honor them in one more wayโ€”by being a little kinder, checking on somebody, and remembering that we're a whole lot stronger when we take care of each other. โค๐Ÿค๐Ÿ’™

2 days ago

Kattlyne

Kattlyne

Hello and happy Friday everyone!! This is day 3 of not smoking! As my lungs have begun to clear out, ive had some shortness of breath and clearing of mucous. Ive been using one puff of my albuterol inhaler in the morning, at noon and at bedtime. Last night i had severe cramps in both feet and ankles. Woke me up every hour. I did wear hard, flat sandals all day at work and i also sit at a desk job all day. I was reading that albuterol might also cause cramps. Has anyone had any experience with that? Also, the last time i was at my doctor's office about 2 months ago, he gave me a 2 week sample of trelegy to try. I havent done it yet as i dont like to try new meds if i dont have to. Anyone find trelegy helpful? I hope you all have a great weekend! Im so happy that fall is coming! 

2 days ago

LFAOMGA

LFAOMGA

So many thoughts today remembering 9/11
After 25 years it still makes me cry
Images never to be forgotten 
So much suffering and grief
So many rushing in to help
God Bless America



2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„YOGURT &HONEY FRUIT CUPS๐Ÿฅ„4 1/2 cups cut up fruit, such as pears, apples, grapes, and bananas 3/4 cup vanilla yogurt1 tbsp. honey1/2 tsp. grated orange zest 1/4 tsp. almond extract Divide the fruit among 6 dessert dishes.Combine the yogurt,...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my oldest orange boy Pumpkin Pie, aka Punkie! ๐Ÿงก We both wish everyone a pleasant, easy breathing day! ๐Ÿ˜Š

3 days ago

NikkiD

NikkiDanswered the question Age 33 Diagnosed with COPD

Hi, I know I'm a little late to the post, but I was diagnosed with COPD at 33 aswell and have never met anyone else that was! My FEV1/FVC is 33 so a bit worse than yours. I'm now 35 and I have to say I feel so much better than when I was diagnosed. …
KezeCatch22Liza Mand 8 others also answered the question Kezeand 10 others also answered the question

3 days ago

NikkiD

NikkiDasked the question: 35F with severe COPD, anyone else going through this at my age?

I was diagnosed with severe emphysema at 33 years old, after years of struggling to breath and coughing that was diagnosed as asthma because I was "too young" for it to be anything else. I've been told I will eventually need a double lung transplant, …

3 days ago

Puzzie

Puzzieanswered the question Is going blind worth it? (Advare experience)

Most medications used to treat COPD are corticosteroid and come with warnings about glaucoma, osteoporosis, and a whole host of other side effects. With a family history of glaucoma I have always been careful to get my eyes checked annually. I also get a …
das23HIcopd - Hawaii State CaptainCaroline West Virginia State Captainand 5 others also answered the question das23and 7 others also answered the question

3 days ago

Puzzie

Puzzieasked the question: Oxygen and BiPap equipment providers and your doctor

When you have issues about medical equipment and dealing with equipment providers, what assistance do you expect from your pulmonology practice? When the equipment providers ask for updated medical records and tests, I had to constantly follow up with …

3 days ago

Puzzie

Puzzieanswered the question I am Wondering if anyone is using the injection of dupixent and if so is it helpful for better breat

I started Nucala in July. The doctor didn't say anything about improved breathing but rather emphasized that it helps prevent exacerbations.
Taryn TarverHIcopd - Hawaii State CaptainGAnneand 1 other also answered the question Taryn Tarverand 3 others also answered the question

3 days ago

JeanO53

JeanO53Quick share...
. Some days I just have to get outside.   Yesterday, I worked and then attended OxyTalk.  Afterwards, I grabbed my camera and went for a drive.  Nothing much happening at the park, but on my way home this Red Tailed Hawk flew past my car and then settled on a power line pole.  
- - If you can, get outside today!  You never know what you're going to see.  And then tell us what you saw!!

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.