COPD360social welcomes new member John Hurd who joins 65,920 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿ“ธ Visit My Corner of the World Wednesday! โ˜€๐ŸŒป

Summer is in full swing, and for many of us that means sunshine, green landscapes, blooming flowers, family adventures... or maybe just finding a cool place to relax. For others, the heat or smoky skies have made it harder to get outside.

No matter where you are today, we'd love to visit your corner of the world.

Share a photo of anything that brings you a smile or reminds you of summer. It could be:
๐ŸŒผ A favorite flower or garden
๐ŸŒ… A beautiful sunrise or sunset
๐ŸŒณ Your backyard or favorite shady spot
๐Ÿพ A furry friend enjoying the season
๐Ÿšœ A vacation memory or a favorite place you've visited
๐Ÿก Or even a special photo from years ago that brings back wonderful summer memories.

Every picture tells a story, and every story helps us get to know one another a little better.

So, where are we visiting today? We can't wait to see your corner of the world! ๐Ÿ’™๐Ÿ“ท

5 hours ago

baileymccrary

baileymccraryHi all! Research institutions like universities and hospitals across the country are not receiving grant funds from the National Institutes of Health that they were already rewarded. These delays threaten lifesaving research, patient care, jobs, and scientific progress in our communities.

You can join the COPD Foundation in calling on our lawmakers to protect scientific research. Use this link to urge them to take action now! https://www.votervoice.net/COPD/campaigns/137619/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

2 days ago

Jason41

Jason41

 New member here! Stumbled across this organization and decided to join! Iโ€™m living with COPD and I am currently on oxygen 24/7. Iโ€™m 41. 

1 hour ago

Bobmc

BobmcGot pretend going out again today,wind is supposed to change tomorrow so the smoke will be back in the interior.
Both large air purifiers are going non stop and they really help for 
 sure

3 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI'm hoping to see a lot of you at the 360Support Group/Harmonica Play-Along this afternoon at 4:00 PM Eastern.  If you haven't registered already, here's the link: The topic this month is Living Well with a Chronic
Condition.

https://copdf.co/360-social

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธPEACH WATER ๐Ÿ‘๐Ÿ‘๐Ÿถ๐Ÿถ๐ŸงŠ๐ŸงŠ1 small ripe peach8 ounces water OR sparkling water3 fresh basil leavesIceCut the peach into bite-sized pieces. Transfer to a tall glass. Add basil leaves. Add desired amount of ice. Pour water into the glass. Enjoy!...

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday! It's very clear to me that today will be an awesome day! Many reasons to smile! 
Enjoy, friends! ๐Ÿ˜Š

10 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Heard of a combination of Post-Laminectomy Syndrome & COPD:

It is good to know that the Baclofen has relieved much if not all of your pain. Pain can make breathing with COPD worse. As you have noted Baclofen can be a respiratory depressant. Try to be mindful of your breathing, and alert your doctor to any …
Shaun RigdonKaren Deitemeyer - Florida State CaptainHIcopd - Hawaii State Captain also answered the question Shaun Rigdonand 2 others also answered the question

22 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

As DebbieB has mentioned,  we are close to 66,000.  Who is ready to place their bets on when we will reach that mark and earn Ed's atta boy award?

1 day ago

Community Announcements

Community Announcementsadded a new article COPD Foundation announces Patient-Focused Drug Development meeting for COPD

Event highlights need for people's lived experiences at forefront of research, treatment development, and regulatory decisions

Miami (August 4, 2026) - The COPD Foundation today announced plans for an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting for chronic obstructive pulmonary disease (COPD). This meeting is modeled after the Food & Drug Administration's (FDA) PFDD public meetings. Drug developers, FDA, and other stakeholders will be in attendance.

COPD, which includes emphysema and chronic bronchitis, affects more than 30 million Americans. It is the fifth leading cause of death in the United States and the fourth leading cause of death worldwide. Despite important advances in care, many people with COPD still face ongoing symptoms not addressed by currently available treatments, which negatively impact quality of life and health outcomes.

1 day ago

JoolsT

JoolsT

Hi, Iโ€™m Jools and a new member. Iโ€™m feeling pretty frightened at the moment asI have just found out that a recent chest x ray has revealed emphysematic changes. Iโ€™m waiting tor a CT scan. I had a really nasty virus in May and since then have been more than the usual amount of mucous, although my coughing episodes have reduced.  Has anyone had a similar experience and if so, what was the outcome?

1 day ago

Bobmc

BobmcWell the smoke has finally reached the coast,been really lucky till now.Seems like my whole province is on fire,many human caused which really fries my noodles.
For those of us suffering with breathing issues it is just another hurdle to overcome,but we always do because that just who we are.
Hope your part of the world is unaffected by these fires and your skies are clear and sunny.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Today, we recognize World NTM Awareness Day.

Nontuberculous mycobacterial (NTM) lung disease is often misunderstood, frequently overlooked, and for many people, completely life-changing.

It can affect every breath, every routine, and every part of daily life. Yet too many people spend monthsโ€”or even yearsโ€”searching for answers before receiving a diagnosis. That's why awareness matters.

Today, we stand with every person living with NTM, every caregiver walking beside them, every healthcare professional dedicated to their care, and every researcher working tirelessly to uncover better treatments and, one day, a cure.

World NTM Awareness Day reminds us that progress begins with awareness. It grows through research. It advances through collaboration. And it becomes hope because of the strength of a community that refuses to give up.

Together, we're shining a light on NTM, encouraging earlier recognition, supporting continued research, and helping ensure that no one has to face this disease alone.

๐Ÿ’™ Today, we honor the journey. We celebrate the progress. And we look toward a future filled with better answers, better treatments, and more hope for everyone affected by NTM!

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŸคโšช๏ธONE POT CHICKEN AND RICEโšช๏ธ๐ŸŸค4 to 6 tbsp. butter, divided1 heaping cup shredded carrotsSalt and freshly ground black pepper to taste 2 cups Jasmine rice 1 tbsp. dried minced onion1 tsp. dried minced garlic2 tbsp. dried parsley flakes8 cups chicken...

1 day ago

Darlene68

Darlene68

Im feeling defeated . I fear that i will never beable to get off oxygen which makes me sad and depressed.  I have been on it since June 3rd of this year after having a medical emergency due to severe copd exacerbation.  I have been told that i may have to be on it 24/7.  Its a whole new world for me but at the same time i am grateful that i survived as i wasnt expected to make it through the night.  i have 6 adult children and 4 grandkids.  I feel isolated as i dont know anyone who is on oxygen and am grateful to have found this group. It just happened so fast. I dont recall anything that happened due to delirium.  My daughter called an ambulance as i looked really short of breath and didnt even recognize her.  I dont remember anything until my 3rd day in ICU. My kids said they visited me everyday but i dont recall anyone visiting me. Day 4 i went to a regular floor and came to and some of my kids were there when i got there. My oxygen was only 60 and carbon dioxide was 85 when i was admitted. I was living alone prior to this and i was watching my 4 year old grandson and my daughter was working from home at my house. I dont remember anything the morning of June 3 my daughter said i was breathing heavy and looked like i didnt even know her.  So now im on oxygen. Its not the end of the world. I did pt for 4 weeks and still do my exercises faithfully .  My pulmonolist said that i need  pulmonary therapy and will be faithful to that as well. Thank you for listening to my long message. I guess i just needed to vent. Sincerely Darlene 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday!
May your day blossom into something totally gorgeous! ๐Ÿ˜

1 day ago

lbcoopman

lbcoopmancommented onCOPD and Disability Benefits: The Pros, Cons, and Step-by-Step Guide to SSDI

Good info but please keep in mind if you have insurance through an employer yours or spouses that most prescriptions have a coupon for insured only making meds between 0 and $30. If you receive any form of government insurance you cannot use the...

1 day ago

6ft Pixie

6ft Pixie

๐Ÿ˜’ I'm not having a good day, emotionally. My husband and I went to Maine last week to visit our youngest son. It was a good visit. I didn't want to leave. Now that I'm home, I find myself spending hours scrolling. I do have an appointment with both my therapist and psych PA this week. I just can't motivate myself to get to the gym. 

1 day ago

Bobmc

BobmcMy wish to all is to make the best of today no matter the starting point,suck as much joy and happiness you can from the day and leave the garbage in the dump where it belongs.

2 days ago

Mike99

Mike99answered the question Air quality

AQI is only one metric. PM 2.5 measures large particles in the air. My lungs are extremely sensitive when PM 2.5 >10ug/m3. High PM 2.5 occurs during wildfire smoke especially. Usually >10 ug/m3 matches around 50 AQI. I use the airvisual app which …
David Mannino, MD (Chief Medical Officer, COPD Foundation )HIcopd - Hawaii State Captain also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

2 days ago

Douglas1962

Douglas1962

Im tired. Physically and mentally empty.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŒฟSIMPLE VINAIGRETTE๐ŸŒฟ1/4 cup olive oil2 tbsp. red wine vinegar 2 tbsp. honey1 tsp. Dijon mustard Salt and freshly ground black pepper to taste Place all ingredients in a small bowl. Whisk together until smooth and well blended.Makes 1/2...

2 days ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainMonday Morning Music.
Have a Nice Day. Hoyt Axton.
https://www.youtube.com/watch?v=UK6uoDFEjjs

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, friends!
So many of us do all we can to help others in various ways! Let us not forget to take good care of ourselves! After all, we cannot be at full capacity if we do not! 
Have an awesome, productive, easy breathing day! ๐Ÿ™‚

2 days ago

Shaun Rigdon

Shaun Rigdonasked the question: Heard of a combination of Post-Laminectomy Syndrome & COPD:

Have you ever heard of a combination of Post-Laminectomy Syndrome & COPD: About the addition of Baclofen, prescribed by Spine & Pain Management, I am having tremendous relief from Post-Laminectomy Syndrome, sharp pain, in my right flank. I have …

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I'm pleasantly tired from having company this weekend.  We spent all day yesterday at The Kennedy Space Center - I hadn't been in a few years, and the exhibits have been changed to reflect the advances made.  For me, the most interesting part was a live forum where we got to hear from a retired astronaut, a retired Air Force General and a young woman who was just beginning her aviation career.  They were very enthusiastic about their careers and shared special some of their most memorable moments with the audience.  


We got lucky with the rain - a couple of times it rained whie we were in the buildings looking at exhibits,  but we only got sprinkled on one time outdoors.  


Kira and Dave took turns pushing me in a wheelchair, so, really, I don't know why I'm tired, ๐Ÿ˜

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Enjoy your day! Today is a great day for relaxation and positive thinking! Keep on smiling! ๐Ÿ˜€

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I watched a movie today on Peacock called Tyson's Run.  It was inspirational.  I have been having a hard time trying to get back to where I was a year ago, before shingles, respiratory infection, and UTI took their toll.  This movie inspired me to "keep on keepin on"

3 days ago

Bobmc

Bobmc

Hello to all again,tis l Bob puff dragon,shortened my handle a bit to better reflect the current me.
Hope all has been well with everyone and look forward to participating again in discussions.

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ’š Today is National Minority Donor Awareness Day.

Today is a time to recognize the incredible generosity of organ, eye, and tissue donors while also raising awareness about an important need. Because compatible donor matches are often more likely to come from people with similar ancestral backgrounds, increasing donor registration across all communities can help give more people the chance to receive a lifesaving transplant.

For many people living with advanced lung disease, a transplant represents more than a medical procedure. It represents another birthday, another family gathering, another sunrise, another breath.

Organ donation has touched my own family, and I know it has touched many in our community as well. It's one of the most selfless gifts a person can give.

Today, let's honor those who have given that gift, remember those whose lives have been changed because of it, and continue the conversation so that hope reaches even more families in every community.

๐Ÿ’š One donor can leave a legacy that lives on through many others.

4 days ago

  • NewestOldest
  • das23I have volunteered to be an organ donor.......I don't think they'll want my lungs though๐Ÿ˜‚๐Ÿ˜€๐Ÿ‘4 days ago
  • WildebeestThe UK transitioned to an opt-out system in around 2020, so you are now deemed to be a consenting donor unless you opt out. I think that is a good thing. Opting in is something a lot of people never got round to. I also did not realise how many different kinds of tissue can be used. A friend of mine recently had surgery on his hand, involving a donated hand tendon. Donation has touched my family, too. My uncle needed a bone marrow transplant. At least that can come from a living donor but it's not a particularly pleasant procedure for them. And his donor was kind enough to donate to him twice because the first one did not take.4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.