COPD360social welcomes new member JKSmith who joins 65,497 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ“ธ๐ŸŽ“ Visit My Corner of the World Wednesday: Graduation Edition! ๐ŸŽ“๐Ÿ“ธ

This week, we're celebrating milestones, memories, and the moments that helped shape who we are today.

With graduation season all around us, we'd love to see a photo from a special accomplishment in your life. It could be:

๐ŸŽ“ A high school, college, or trade school graduation
๐ŸŽ“ A military or career milestone
๐ŸŽ“ A graduation photo of a child, grandchild, or loved one
๐ŸŽ“ Completing pulmonary rehabilitation
๐ŸŽ“ Reaching a personal health goal
๐ŸŽ“ Learning a new skill or taking on a new challenge
๐ŸŽ“ Any moment that made you proud and reminded you how far you've come

Living with COPD, bronchiectasis, NTM, or caring for someone who does often means celebrating victories that may not come with a diploma or a cap and gown. Sometimes the biggest accomplishments are the ones that take determination, patience, courage, and perseverance.

This week, take us to your corner of the world and share a photo that represents an important milestone, achievement, or memory. Whether it's a graduation picture from years ago, a recent accomplishment, or a special moment you're proud of, we'd love to celebrate it with you.

And don't worry if your photo is a little vintageโ€”we'd love to see those throwback hairstyles, fashions, and smiles too! ๐Ÿ˜Š

๐Ÿ“ท Share your photo and tell us:
What accomplishment are you most proud of, and what did it teach you?

We can't wait to take a walk down memory lane with all of you and celebrate the journeys that brought us here today. โค๐ŸŽ“๐ŸŒŽ

1 day ago

Misty Green COPDF Research

Misty Green COPDF ResearchAttention- CAREGIVERS and PATIENTS

Take the
Survey: Exploring the Unmet Needs of Patients with Serious Respiratory Illness
and Their Caregivers

Whether you are a person living with a respiratory illness
or caring for someone who is, your perspective makes a real difference. Living
with these conditions can be challenging, and the voices of patients and
caregivers are important. By taking part in this survey, you help others
understand what kinds of care and support matter most. The information you
share will help doctors, nurses, and health leaders improve respiratory care
around the world.

The survey should take about 20 minutes to complete, and
itโ€™s best to finish it in one sitting.  
Take the survey: https://redcap.musc.edu/surveys/?s=LLLEYFNX8D44D7D4

1 day ago

Bare

Bareanswered the question I am Wondering if anyone is using the injection of dupixent and if so is it helpful for better breat

Iโ€™ve been using it for a year & it does help
GAnne also answered the question GAnne also answered the question

2 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Which products were included in the recall?If youโ€™re concerned your pills may be affected, check your Gas-X product against the information listed below. (The lot number will be displayed both on the back of the internal blister pack and on the bottom of the box.) Recalled lots include:Gas-X Extra Strength Softgels, 120-count: UPC 300674350419; Lots TL8K, YH9X, and YH9Y; Expiration date of November 30, 2028; Distributed between April 13, 2026 and May 5, 2026Gas-X Extra Strength Softgels, 72-count: UPC 300439005721; Lot X78N; Expiration date of November 30, 2028; Distributed between May 4, 2026 and May 14, 2026According to the FDA, Haleon is notifying its distributors and customers and is arranging for the return of all recalled products. Haleon also reports that the root cause of the contamination has been identified and repaired, and measures have been taken to prevent it from happening again.What to do if you purchased an affected productIf your product matches one of the lots listed above, stop taking it immediately. To return the product and request reimbursement, contact Haleonโ€™s consumer relations team via email at mystory.us@haleon.com or phone at 1-800-245-1040.If you experience a related adverse event or become aware of one, you should contact your doctor first, then report the reaction to Haleonโ€™s consumer relations team. You can also report adverse events to the FDA using the agencyโ€™s online MedWatch Adverse Event Reporting program. (Those interested may also report events to the FDA by mail or fax.)

2 hours ago

Mom.Ellen

Mom.Ellen

I am so excited to have found this foundation and look forward to sharing my COPD story and hear others' COPD stories.

6 hours ago

Dinna25

Dinna25answered the question Getting a nicotine fix with gum or a patch this month?

Hi all Totally agree here's my story of quitting. When i was diagnosed with COPD I was warned about smoking. The consultants words where - How old are you followed by all our tests show your very healthy and fit for your age BUT copd its stage 2 now …
Bill Clark - Community Manager also answered the question Bill Clark - Community Manager also answered the question

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday!
You get back what you give, is what I've always said. So, give a little kindness, and you will get some in return! One good turn deserves another! Striving for happiness is our goal!
Wishing all of you the best day ever! ๐Ÿ˜€

14 hours ago

Bob puff dragon

Bob puff dragonFifty years ago today l said my vows to my wife omg can't believe it has been that long.I made some bad questionable choices in my life but spending our life together was definitely a smart choice.Met her when our band was filling in for a cancelled act at a small rodeo fair and the rest is history,three great kids  ten grandkids our lives have happiness meaning and purpose.
Hoping my family can dial it down a bit on this occasion as l still can't seem to recover very fast from the treatments but l know we are at least doing lunch at our favorite Chinese restaurant,made reservations in March. Consider myself one lucky cowboy for sure.

16 hours ago

Richard DJ

Richard DJanswered the question Cheapest place to buy trelegy?

Trelegy Elipta at Costco Pharmacy in Cabo San Lucas, Mexico is about US$59
Caretta cellar muddleagedand 6 others also answered the question Caretta and 8 others also answered the question

19 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿซ’๐Ÿซ’GREEN OLIVE CROSTINI๐Ÿซ’๐Ÿซ’1 cup chopped large green olives, pits removed 2 cloves garlic, minced 1 tbsp. olive oilSalt and freshly ground black pepper to taste 1/2 cup grated Parmesan cheese Baguette slices Brush the Baguette slices with olive...

1 day ago

JeanAJohns

JeanAJohns

 I'm tired, I want to sleep all the time or just lay down. This sucks for me. I'm the caregiver, I worked hospice for over 40 years, no idea how to let someone take care of me.

1 day ago

Papau

Papau

Hello everyone! ๐Ÿ‘‹
My name is Papau, and I am brand new to this community. I am so glad to have found this space!
I am a Stage 4 COPD patient living in North Bergen, New Jersey, and like many of you, I know firsthand the daily challenges and emotional journey that come with this condition. Finding a community of people who truly understand means more than I can express.
I am not only here to find support, but also to give it. I would love to get involved and contribute in any way I can โ€” whether that is joining ongoing activities, participating in advocacy efforts, supporting awareness programs, or simply being a friendly and encouraging presence for fellow members who may be navigating this journey.
If there are any open activities, volunteer opportunities, or programs I can get involved with, please don't hesitate to point me in the right direction. I am ready and eager to be an active part of this incredible community!
Looking forward to connecting with all of you.

1 day ago

Wildebeest

Wildebeest

Was there not a thread about a Zoom conference today? I can't find it now and had planned to attend.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‹๐Ÿ‹LEMONY ORZO SALAD๐Ÿ‹๐Ÿ‹2 tbsp. Balsamic vinegar 1/4 tsp. lemon zest 2 tbsp. lemon juice 1 clove garlic, minced 1 1/4 tsp. salt, divided1/2 tsp. freshly ground black pepper 6 tbsp. olive oil 12 ounces uncooked orzo1/2 cup grated Parmesan...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy, Happy Tuesday! 
When you wake up this morning and get up out of bed, please, don't forget to put on your finest smile! 
A smile is a one-size-fits-all part of your wardrobe! It will always fit you just right!
Here's a great big smile for all of you! ๐Ÿ˜ƒ

1 day ago

Dynomiti

Dynomiti

Doing ok. Are there any conversations about the zephyr valves 

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Breathing, yoga exercises

I personally believe that the vibration in your nasal cavity produces nitric oxide which helps reduce inflammation.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThis one goes out to all of our fine members. ๐Ÿ˜Š

1 day ago

Bob puff dragon

Bob puff dragonHope all is well with everyone on this Monday, a day that usually sets the tone for the week to come.

2 days ago

Geevee

Geeveeasked the question: Breathing, yoga exercises

Breaching yoga exercises, many are there ,but the easy and effective one pls .is Bramhari useful?

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿพ๐Ÿ’™ Happy Best Friends Day! ๐Ÿ’™๐Ÿพ

Best friends come in all shapes and sizes.

Maybe yours is a spouse, sibling, child, neighbor, or caregiver who checks in and helps you through the tough days. Maybe it's a friend from our community who understands exactly what you're going through and is always ready with a kind word or encouragement.

For some of us, our best friend has four legs, a wagging tail, and a special talent for knowing exactly when we need a smile. ๐Ÿถ๐Ÿฑ

And let's be honestโ€”there are days when our favorite inhaler, nebulizer, oxygen concentrator, or rescue medication feels like a pretty good friend, too. ๐Ÿ˜Š

Life with COPD, bronchiectasis, or NTM can be challenging, but having someoneโ€”or somethingโ€”we can count on makes a world of difference. Best friends help us laugh, listen when we need to vent, celebrate our victories, and lift us up when we're struggling.

Today, we'd love to hear from you:

โค Who (or what!) is one of your best friends?

Feel free to share a story, a photo, or simply give a shout-out to someone who helps make your days a little brighter.

Happy Best Friends Day from all of us at COPD360social!

2 days ago

  • NewestOldestClick to View All Comments22 comment(s)
  • JeanO53Hahaha - Dave... isn't it amazing all of the different ways we've listened to music!
    I still have LPs from the 60s & 70s1 day ago
  • DebbieB.-Connecticut State CaptainAnyone still have 8 tracks?1 day ago
  • JeanO53hahaha... DebbieB - that maybe the one method I never used.  I'm not sure they had a very long shelf life.  Too big, maybe ???1 day ago
Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainMonday Morning Music.
Wishing you an inspired week..
"Joy" Apollo 100             
https://music.youtube.com/watch?v=2vhZX_joco8

YouTube Music

With the YouTube Music app, enjoy over 100 million songs at your fingertips, plus albums, playlists, remixes, music videos, live performances, covers, and hard-to-find music you canโ€™t get anywhere else.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

A good way to use of the last Cheerios left in the box! Also a good way to encourage children to eat salad. A good substitute for croutons!...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸคฉSALAD WITH A SURPRISE๐Ÿคฉ4 cups torn Romaine lettuce leaves2 Honeycrisp apples, diced1/4 cup dried cranberries 1/4 cup chopped walnuts 1/4 cup thinly sliced celery 3/4 cup Cheerios cerealBalsamic VinaigretteIn a large bowl, toss together the...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHave a marvelous Monday, friends! Today is only the beginning of a magnificent week to come!
Keep those positive vibes going strong! We love to see smiling faces here on 360Social! ๐Ÿ˜€๐Ÿ˜ƒ๐Ÿ˜€๐Ÿ˜ƒ๐Ÿ˜€๐Ÿ˜ƒ

2 days ago

hastyRetreat

hastyRetreat

I had a PET scan last January, came out negative for cancer.
Pulmonologist wants to do navigational Bronchoscopy after n  o change on this 5 month CT scan.  Please chime in if anyone has had one and if it was an easy experience or hard. Iโ€™m scared.
Thank you so much.

3 days ago

Keze

Kezeanswered the question Age 33 Diagnosed with COPD

Sounds like you are maximizing what you have. Most importantly, stop smoking. (Easier said than done)! Get tested for Alpha1 to ensure you donโ€™t have a genetic component. You can go to alpha1.org and order yourself a free test. Results will come to you!
Catch22Liza MDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 7 others also answered the question Catch22and 9 others also answered the question

3 days ago

JeanO53

JeanO53

I probably shouldn't say this outloud, but I think I've figured out my issues with sleep.
.. This past week, I've been asleep before 12 midnight and have gotten at least 6 hours of sleep, averaging 7 hours over the last 7 days.  It's still a work in progress.  It's been quite simple actually.   When I start to feel tired and yawn, I begin the process of shutting down - lights out within about 15 minutes.  No more pushing past feeling tired.  Whatever I'm doing or reading will be there tomorrow, or maybe won't even matter tomorrow
.. This might sound like a "duh" to some, but this has been a big accomplishment for me!!  As with most things, listening to what the body is telling me is the smart thing to do.  โ˜บ     Now, here's to being consistent. 

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.