COPD360social welcomes new member Retired2023 who joins 65,510 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Boys and Men Are Struggling in Silence ๐Ÿ’™

This is a topic that has been on my mind lately.

Working with our communities, I have the privilege of talking with people from all walks of life. Some days, those conversations are full of laughter and victories. Other days, they're a reminder that many people are carrying far more than anyone realizes.

Many boys and men are taught to push through, stay strong, and keep their worries to themselves. They take care of others, solve problems, and try not to be a burden. But sometimes that means carrying stress, fear, loneliness, anxiety, grief, or depression in silence.

Living with a chronic lung condition can make that even harder. There are concerns about health, changing abilities, finances, caregiving responsibilities, relationships, and the uncertainty that can come with a diagnosis. Those things can weigh heavily on anyone.

The truth is, you don't have to be in crisis to be struggling.

Maybe you're tired.
Maybe you're worried.
Maybe you're feeling isolated.
Maybe you're just having one of those days where everything feels a little heavier than usual.

If that's you, you're not alone.

One thing we've learned from this community is that connection matters. Sometimes it's a phone call. Sometimes it's sharing a photo. Sometimes it's joining a conversation, attending a support group, or simply reading posts and realizing someone else understands exactly what you're going through.

Strength isn't pretending everything is fine.

Sometimes strength is saying, "I'm having a tough time right now."

So today, let's check in with each other.

๐Ÿ’™ What helps you get through the difficult days?
๐Ÿ’™ What helps you stay connected when you're feeling isolated?

We're glad you're here!

5 hours ago

Misty Green COPDF Research

Misty Green COPDF ResearchAttention- CAREGIVERS and PATIENTS

Take the
Survey: Exploring the Unmet Needs of Patients with Serious Respiratory Illness
and Their Caregivers

Whether you are a person living with a respiratory illness
or caring for someone who is, your perspective makes a real difference. Living
with these conditions can be challenging, and the voices of patients and
caregivers are important. By taking part in this survey, you help others
understand what kinds of care and support matter most. The information you
share will help doctors, nurses, and health leaders improve respiratory care
around the world.

The survey should take about 20 minutes to complete, and
itโ€™s best to finish it in one sitting.  
Take the survey: https://redcap.musc.edu/surveys/?s=LLLEYFNX8D44D7D4

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerWelcome to the COPD360social Yearbook 2026: The Class of Perseverance. ๐ŸŽ“๐Ÿ“ธ๐ŸŒŸ

This week for Visit My Corner of the World Wednesday, we took a fun trip down memory lane. Members shared graduation photos, yearbook pictures, personal achievements, and milestones that have meant something special along their journey.

From high school memories to health and wellness victories, each photo tells a story of perseverance, growth, and determination. While the years, experiences, and paths may be different, it's amazing to see how those journeys have brought us together as a community.

A big thank you to everyone who shared a piece of their story. We loved seeing these snapshots from the past and celebrating the accomplishmentsโ€”both big and smallโ€”that continue to shape who we are today.

๐Ÿ’™ Different years. Different journeys. One community. ๐Ÿ’™

1 hour ago

Canders

Canders

Just joined the group looking forward to reading everyoneโ€™s tips on how to cope with this. I work on a commercial fishing boat in Alaska as a captain. So I sit for mostly of my 16 hour shift. I make myself get up and walk and climb as many stairs as possible.  The scary part for me that brings the anxiety is I am hundreds of miles offshore  not real close to medical help. My pulmonologist has prescribed me trellegy and a rescue inhaler. I have not smoked a cigarettes in ten days was a heavy smoker for 25 years 52 years old. The worst part of the whole day for me is getting up in the morning takes a long time to catch my breath causing anxiety. Gets a little better throughout the day. Any tips on sleeping position or different routines would be greatly appreciated ! Hoping that I can learn to live with this continue working and enjoy  sort of the same lifestyle. Glad i joined looking forward to reading everyoneโ€™s stories and tips!

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ—ป๏ธโ—ฝ๏ธFROZEN YOGURT BARKโ—ฝ๏ธโ—ป๏ธ2 cups whole milk vanilla yogurt 1/2 cup diced strawberries 1/4 cup blueberries 1/4 cup granola of your choiceLine a 13 x 9-inch rimmed baking sheet with either waxed or parchment paper. Pour the yogurt onto baking...

10 hours ago

Bob puff dragon

Bob puff dragonBig howdy to all the well wishes from yesterday especially you Brandon your sentiment was much appreciated,thank-you all my peeps.
Had all the grandkids around yesterday and watched the constant use of the cell phones,from everyone really not just the kids.
Let's travel back on Sherman's and professor Peabody's way back machine to a time when this was the norm....... 

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello friends, and happy Thursday! 
Each and every one of you is special. A very unique, wonderful person! I hope you all know how important you are to me, and to this community!
Go ahead! Take a look in the mirror! You are beautiful! On the outside AND on the inside! ๐Ÿชž 
Thanks for being here with us! You are very much cared for! ๐Ÿ˜Š

14 hours ago

Monpren

Monpren

I was diagnosed with COPD this week, and will be having a CT scan in a few days. It seems to be mild but Iโ€™ll know more after the scan. My pulmonologist already has me using a nebulizer and an inhaler, both of which have helped my dyspnea. Iโ€™ve been doing a lot of reading and am understanding what I have to do to manage this. My major concern is that I also have afib that is right now under control but could return. And some heart stiffening which resulted in an episode of diastolic heart failure last summer. I worry a lot about the interaction among these conditions. I quit smoking 30 years ago and am very active at 78z. Any advice?

21 hours ago

  • NewestOldestClick to View All Comments4 comment(s)
  • MonprenMy PCP gave me a lung function test in January which showed obstruction. I did not believe it and it took me some time to get and see a pulmonologist. He confirmed it and ordered the CT to get more info. Also will do the 6 minute walk and another function test. I havenโ€™t seen my cardiologist yet, and am fortunate to not have high blood pressure. I am curious as to what meds your dr adjusted to lessen the risk of side effects.20 hours ago
  • das23Welcome Monpren....Stay active and follow your doctor's advice. Read all the info in the LEARN MORE tab above. Lots of support here. Keep us posted19 hours ago
  • Caroline West Virginia State CaptainHi Monpren, I am on Cardizem, Enalapril, and hydrochlorothiazide.  I had an atrioventricular ablation 30 years ago, but after a severe case of pneumonia in which I became septic 3 years ago, the body decided it needed to repair the connection.  At first it would almost fire, but not completely and then the connection was made and I once again have atrial fibrillation.  The Cardizem was added to regulate my heartbeat.


    We are all different, so this combination might not work for you.  I had mentioned it to let you know that there is a way to deal with the heart and the lungs successfully.  I hope that you have a good team who will keep your needs at the forefront.18 hours ago
AllanGD

AllanGD

how do i know if i have copd?

23 hours ago

AllanGD

AllanGD

i am coughing

23 hours ago

Bare

Bare

Where would I find other Alabama State Captains?

23 hours ago

Bare

Bareanswered the question I am Wondering if anyone is using the injection of dupixent and if so is it helpful for better breat

Iโ€™ve been using it for a year & it does help
GAnne also answered the question GAnne also answered the question

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Which products were included in the recall?If youโ€™re concerned your pills may be affected, check your Gas-X product against the information listed below. (The lot number will be displayed both on the back of the internal blister pack and on the bottom of the box.) Recalled lots include:Gas-X Extra Strength Softgels, 120-count: UPC 300674350419; Lots TL8K, YH9X, and YH9Y; Expiration date of November 30, 2028; Distributed between April 13, 2026 and May 5, 2026Gas-X Extra Strength Softgels, 72-count: UPC 300439005721; Lot X78N; Expiration date of November 30, 2028; Distributed between May 4, 2026 and May 14, 2026According to the FDA, Haleon is notifying its distributors and customers and is arranging for the return of all recalled products. Haleon also reports that the root cause of the contamination has been identified and repaired, and measures have been taken to prevent it from happening again.What to do if you purchased an affected productIf your product matches one of the lots listed above, stop taking it immediately. To return the product and request reimbursement, contact Haleonโ€™s consumer relations team via email at mystory.us@haleon.com or phone at 1-800-245-1040.If you experience a related adverse event or become aware of one, you should contact your doctor first, then report the reaction to Haleonโ€™s consumer relations team. You can also report adverse events to the FDA using the agencyโ€™s online MedWatch Adverse Event Reporting program. (Those interested may also report events to the FDA by mail or fax.)

1 day ago

Mom.Ellen

Mom.Ellen

I am so excited to have found this foundation and look forward to sharing my COPD story and hear others' COPD stories.

1 day ago

Dinna25

Dinna25answered the question Getting a nicotine fix with gum or a patch this month?

Hi all Totally agree here's my story of quitting. When i was diagnosed with COPD I was warned about smoking. The consultants words where - How old are you followed by all our tests show your very healthy and fit for your age BUT copd its stage 2 now …
Bill Clark - Community Manager also answered the question Bill Clark - Community Manager also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday!
You get back what you give, is what I've always said. So, give a little kindness, and you will get some in return! One good turn deserves another! Striving for happiness is our goal!
Wishing all of you the best day ever! ๐Ÿ˜€

1 day ago

Bob puff dragon

Bob puff dragonFifty years ago today l said my vows to my wife omg can't believe it has been that long.I made some bad questionable choices in my life but spending our life together was definitely a smart choice.Met her when our band was filling in for a cancelled act at a small rodeo fair and the rest is history,three great kids  ten grandkids our lives have happiness meaning and purpose.
Hoping my family can dial it down a bit on this occasion as l still can't seem to recover very fast from the treatments but l know we are at least doing lunch at our favorite Chinese restaurant,made reservations in March. Consider myself one lucky cowboy for sure.

1 day ago

Richard DJ

Richard DJanswered the question Cheapest place to buy trelegy?

Trelegy Elipta at Costco Pharmacy in Cabo San Lucas, Mexico is about US$59
Caretta cellar muddleagedand 6 others also answered the question Caretta and 8 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿซ’๐Ÿซ’GREEN OLIVE CROSTINI๐Ÿซ’๐Ÿซ’1 cup chopped large green olives, pits removed 2 cloves garlic, minced 1 tbsp. olive oilSalt and freshly ground black pepper to taste 1/2 cup grated Parmesan cheese Baguette slices Brush the Baguette slices with olive...

2 days ago

JeanAJohns

JeanAJohns

 I'm tired, I want to sleep all the time or just lay down. This sucks for me. I'm the caregiver, I worked hospice for over 40 years, no idea how to let someone take care of me.

2 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Coach Brandon - Community Manager
    Hi Lucy K, I'm sorry you're dealing with that. Anxiety can be incredibly difficult, especially when you're already managing COPD and everything else that comes with it.One of the best things you can do is talk with your doctor and let them know exactly what you're experiencing. 


    Anxiety is very common, and there are treatments, medications, counseling options, and coping techniques that may help. You don't have to just "push through it" on your own.In the meantime, I'd encourage you to keep reaching out here as well. 


    Many people in our community have dealt with anxiety and may be able to share what has helped them. You're definitely not alone in this. ๐Ÿ’™1 day ago
  • DebbieB.-Connecticut State CaptainAlthough I do not suffer from anxiety, I have a little suggestion that may help. I always focus on the good things in my life.
    When you start feeling that anxiety kicking in, maybe thinking about the things and folks you love can help. 
    Wishing you the very best! We are here to support you! โค1 day ago
  • Caroline West Virginia State CaptainSinging, whether you can carry a tune or not, always makes me feel much less anxious.1 day ago
Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ“ธ๐ŸŽ“ Visit My Corner of the World Wednesday: Graduation Edition! ๐ŸŽ“๐Ÿ“ธ

This week, we're celebrating milestones, memories, and the moments that helped shape who we are today.

With graduation season all around us, we'd love to see a photo from a special accomplishment in your life. It could be:

๐ŸŽ“ A high school, college, or trade school graduation
๐ŸŽ“ A military or career milestone
๐ŸŽ“ A graduation photo of a child, grandchild, or loved one
๐ŸŽ“ Completing pulmonary rehabilitation
๐ŸŽ“ Reaching a personal health goal
๐ŸŽ“ Learning a new skill or taking on a new challenge
๐ŸŽ“ Any moment that made you proud and reminded you how far you've come

Living with COPD, bronchiectasis, NTM, or caring for someone who does often means celebrating victories that may not come with a diploma or a cap and gown. Sometimes the biggest accomplishments are the ones that take determination, patience, courage, and perseverance.

This week, take us to your corner of the world and share a photo that represents an important milestone, achievement, or memory. Whether it's a graduation picture from years ago, a recent accomplishment, or a special moment you're proud of, we'd love to celebrate it with you.

And don't worry if your photo is a little vintageโ€”we'd love to see those throwback hairstyles, fashions, and smiles too! ๐Ÿ˜Š

๐Ÿ“ท Share your photo and tell us:
What accomplishment are you most proud of, and what did it teach you?

We can't wait to take a walk down memory lane with all of you and celebrate the journeys that brought us here today. โค๐ŸŽ“๐ŸŒŽ

2 days ago

Bob puff dragon

Bob puff dragonTodays mantra.Hope it works for everyone.

2 days ago

Papau

Papau

Hello everyone! ๐Ÿ‘‹
My name is Papau, and I am brand new to this community. I am so glad to have found this space!
I am a Stage 4 COPD patient living in North Bergen, New Jersey, and like many of you, I know firsthand the daily challenges and emotional journey that come with this condition. Finding a community of people who truly understand means more than I can express.
I am not only here to find support, but also to give it. I would love to get involved and contribute in any way I can โ€” whether that is joining ongoing activities, participating in advocacy efforts, supporting awareness programs, or simply being a friendly and encouraging presence for fellow members who may be navigating this journey.
If there are any open activities, volunteer opportunities, or programs I can get involved with, please don't hesitate to point me in the right direction. I am ready and eager to be an active part of this incredible community!
Looking forward to connecting with all of you.

2 days ago

Wildebeest

Wildebeest

Was there not a thread about a Zoom conference today? I can't find it now and had planned to attend.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‹๐Ÿ‹LEMONY ORZO SALAD๐Ÿ‹๐Ÿ‹2 tbsp. Balsamic vinegar 1/4 tsp. lemon zest 2 tbsp. lemon juice 1 clove garlic, minced 1 1/4 tsp. salt, divided1/2 tsp. freshly ground black pepper 6 tbsp. olive oil 12 ounces uncooked orzo1/2 cup grated Parmesan...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy, Happy Tuesday! 
When you wake up this morning and get up out of bed, please, don't forget to put on your finest smile! 
A smile is a one-size-fits-all part of your wardrobe! It will always fit you just right!
Here's a great big smile for all of you! ๐Ÿ˜ƒ

2 days ago

Dynomiti

Dynomiti

Doing ok. Are there any conversations about the zephyr valves 

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Breathing, yoga exercises

I personally believe that the vibration in your nasal cavity produces nitric oxide which helps reduce inflammation.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThis one goes out to all of our fine members. ๐Ÿ˜Š

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.