COPD360social welcomes new member Job Smith who joins 65,903 current members of our community. Weโ€™re glad you're here!

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Heard of a combination of Post-Laminectomy Syndrome & COPD:

Shaun Rigdon This is very interesting - are you saying that the Baclofen is not only helping with the pain in your right flank, but also with your shortness of breath? Could it be that because you're walking with less pain (which is great!) that you're …
HIcopd - Hawaii State Captain also answered the question HIcopd - Hawaii State Captain also answered the question

41 minutes ago

baileymccrary

baileymccraryHi all! Research institutions like universities and hospitals across the country are not receiving grant funds from the National Institutes of Health that they were already rewarded. These delays threaten lifesaving research, patient care, jobs, and scientific progress in our communities.

You can join the COPD Foundation in calling on our lawmakers to protect scientific research. Use this link to urge them to take action now! https://www.votervoice.net/COPD/campaigns/137619/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

1 hour ago

Mike99

Mike99answered the question Air quality

AQI is only one metric. PM 2.5 measures large particles in the air. My lungs are extremely sensitive when PM 2.5 >10ug/m3. High PM 2.5 occurs during wildfire smoke especially. Usually >10 ug/m3 matches around 50 AQI. I use the airvisual app which …
David Mannino, MD (Chief Medical Officer, COPD Foundation )HIcopd - Hawaii State Captain also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

2 hours ago

Douglas1962

Douglas1962

Im tired. Physically and mentally empty.

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŒฟSIMPLE VINAIGRETTE๐ŸŒฟ1/4 cup olive oil2 tbsp. red wine vinegar 2 tbsp. honey1 tsp. Dijon mustard Salt and freshly ground black pepper to taste Place all ingredients in a small bowl. Whisk together until smooth and well blended.Makes 1/2...

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, friends!
So many of us do all we can to help others in various ways! Let us not forget to take good care of ourselves! After all, we cannot be at full capacity if we do not! 
Have an awesome, productive, easy breathing day! ๐Ÿ™‚

8 hours ago

Shaun Rigdon

Shaun Rigdonasked the question: Heard of a combination of Post-Laminectomy Syndrome & COPD:

Have you ever heard of a combination of Post-Laminectomy Syndrome & COPD: About the addition of Baclofen, prescribed by Spine & Pain Management, I am having tremendous relief from Post-Laminectomy Syndrome, sharp pain, in my right flank. I have …

14 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I'm pleasantly tired from having company this weekend.  We spent all day yesterday at The Kennedy Space Center - I hadn't been in a few years, and the exhibits have been changed to reflect the advances made.  For me, the most interesting part was a live forum where we got to hear from a retired astronaut, a retired Air Force General and a young woman who was just beginning her aviation career.  They were very enthusiastic about their careers and shared special some of their most memorable moments with the audience.  


We got lucky with the rain - a couple of times it rained whie we were in the buildings looking at exhibits,  but we only got sprinkled on one time outdoors.  


Kira and Dave took turns pushing me in a wheelchair, so, really, I don't know why I'm tired, ๐Ÿ˜

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Enjoy your day! Today is a great day for relaxation and positive thinking! Keep on smiling! ๐Ÿ˜€

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I watched a movie today on Peacock called Tyson's Run.  It was inspirational.  I have been having a hard time trying to get back to where I was a year ago, before shingles, respiratory infection, and UTI took their toll.  This movie inspired me to "keep on keepin on"

1 day ago

Bobmc

Bobmc

Hello to all again,tis l Bob puff dragon,shortened my handle a bit to better reflect the current me.
Hope all has been well with everyone and look forward to participating again in discussions.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ’š Today is National Minority Donor Awareness Day.

Today is a time to recognize the incredible generosity of organ, eye, and tissue donors while also raising awareness about an important need. Because compatible donor matches are often more likely to come from people with similar ancestral backgrounds, increasing donor registration across all communities can help give more people the chance to receive a lifesaving transplant.

For many people living with advanced lung disease, a transplant represents more than a medical procedure. It represents another birthday, another family gathering, another sunrise, another breath.

Organ donation has touched my own family, and I know it has touched many in our community as well. It's one of the most selfless gifts a person can give.

Today, let's honor those who have given that gift, remember those whose lives have been changed because of it, and continue the conversation so that hope reaches even more families in every community.

๐Ÿ’š One donor can leave a legacy that lives on through many others.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello, Coolsters! ๐Ÿ˜Ž I'll bet you've got an awesome day planned! Saturdays are for chillin' out and smiling all throughout the day!
You are VERY cool because you chose to visit 360Social, THE place to be! Don't forget to mention our website to your family and friends! The more the merrier! ๐Ÿ˜€

2 days ago

das23

das23answered the question Is going blind worth it? (Advare experience)

I've had one cataract surgery. it was well worth it. I couldn't believe the difference after. Everything was bright and vivid. I didn't know what I was missing
HIcopd - Hawaii State CaptainCaroline West Virginia State CaptainPhyliss DiLorenzo NJ State Captainand 4 others also answered the question HIcopd - Hawaii State Captainand 6 others also answered the question

2 days ago

cjg

cjg

pretty good
im just wondering if its ok to use albuterol everyday for shortness of breath and tightness in chest

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒป Hello, August!

As we get ready to step into a new month, we're given another chance to care for ourselves, celebrate the victories (big and small), and remind each other that we're never walking this journey alone.

Maybe July taught you something:
๐Ÿ’™ A breathing technique that helped.
๐Ÿ’™ A new routine that made your day easier.
๐Ÿ’™ The importance of slowing down and giving yourself grace.
๐Ÿ’™ Or simply that asking for support is a sign of strength.

Whatever July looked like for you, August is a fresh opportunity to take the next stepโ€”one breath, one day, one victory at a time.

As we begin this new month, we'd love to hear from you:

๐ŸŒž What's one thing you're hoping for, looking forward to, or focusing on in August?

Whether you're living with COPD, caring for someone you love, or simply cheering others on, thank you for being part of this incredible community. Here's to another month of encouragement, learning, and supporting one another.

Happy August, everyone! ๐Ÿ’™

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Lol, Karen! Recipes are meant to be modified! I love the watermelon bowl. So cute if you are feeding a crowd, or bringing it to an event! And, you can always serve it in a regular bowl. ๐Ÿ‰...

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Sounds good, but (and you know this already Debbie, LOL) I'd leave out the bell pepper and onion. So it would only be diced watermelon and iced cucumber, LOL....

3 days ago

COPD Foundation Website Notifications

COPD Foundation Website Notificationsadded a new article Christie Heaton

Welcome our newest COPD Foundation Captain!

3 days ago

Dusty4

Dusty4

I received my ohtuvayre from UPS 
at at temp of 92 can I still take it

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Portable Nebulizers

elanab Amazon must have changed how they market them, because I did not have a prescription for my portable one when I purchased it from Amazon - but that was quite a few years ago. I wonder if you went directly to a manufacturer's website if you …
elanabHIcopd - Hawaii State CaptainHopefulLungsand 2 others also answered the question elanaband 4 others also answered the question

3 days ago

unexpectedcaregiver

unexpectedcaregiverasked the question: Is going blind worth it? (Advare experience)

My family member was healthy, with healthy eyes almost 4 years ago. A few days ago, we got the diagnosis she's blind. Since she's still healthy, we've been looking into how this happened. 4 years ago, her doctor strongly suggested a "non steroid …

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‰๐Ÿ‰WATERMELON SALSA๐Ÿ‰๐Ÿ‰"A unique, refreshing salsa! Great with tortilla chips, or as a topper for grilled chicken!"1 personal-sized OR mini watermelon (You will use as the bowl.)1 cup diced watermelon 1 cup diced cucumber1 cup diced bell...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my best girl, Hazel Madeline! We both wish everyone here on 360Social an absolutely wonderful day! ๐Ÿ˜€

3 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Has anyone heard of prep buddy

Some of my colleagues in Cincinnati developed this device. It simulates pursed lipped breathing and it seems to work well for some patients. https://pepbuddy.com/
das23 also answered the question das23 also answered the question

3 days ago

Tom.E

Tom.Eanswered the question Has anyone tried Breztri vs Spiriva

No, no throat issues. But I do use a spacer with my Breztri.
Webbgirl028Kailuabreathing Susiereaderand 2 others also answered the question Webbgirl028and 4 others also answered the question

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Check-in: Preparing to travel with COPD

Oh yes, layering is your friend. When you add and subtract layers to be at a good temperature, you donโ€™t need to pack nearly as much in the way of bulky items that you only can wear when itโ€™s REALLY cold, for example. Bringing garments that are easy to …
Prince Osei SRHDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 2 others also answered the question Prince Osei and 4 others also answered the question

3 days ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event BronchandNTM360social Coffee Break - Wednesday, August 12, 2:30pm Eastern.

BronchandNTM360social Coffee Break - Wednesday, August 12, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

3 days ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event OxyTalk Social Hour - Wednesday, August 12, 4pm Eastern

OxyTalk Social Hour - Wednesday, August 12, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.