COPD360social welcomes new member Mocity who joins 62,999 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‡บ๐Ÿ‡ธ Happy (Almost) 4th of July, Everyone! ๐ŸŽ†

As we gear up for fireworks, BBQs, and time with friends and family, I wanted to share a few friendly reminders to help you stay safe and keep breathing your best:

โœ… Beat the Heat: Try to stay indoors during the hottest parts of the day. If youโ€™re outside, seek shade, wear light clothing, and use a fan or cooling towel if you have one.

๐Ÿ’ง Stay Hydrated: Drink plenty of water--even if you donโ€™t feel thirsty--to help your body handle the heat.

๐Ÿงฏ Mind the Smoke: Fireworks, grills, and campfires can create smoke thatโ€™s tough on your lungs. Watch from a safe distance and try to avoid smoky areas if possible.

๐Ÿ˜Ž Donโ€™t Skip Meds: Take your medications as prescribed, and always keep rescue inhalers or oxygen close by if you use them.

๐Ÿช‘ Pace Yourself: Itโ€™s okay to sit out an activity or take breaks often. Listen to your body and donโ€™t push too hard.

Wishing you all a wonderful, safe, and fun Independence Day! ๐ŸŽ‡ Let us know how youโ€™re celebrating--and feel free to share any of your own summer tips for staying well.

4 hours ago

  • DebbieB.-Connecticut State CaptainWishing our Community Manager, Brandon, and all members, a safe, happy, and fun 4th of July week! 
    Brandon has given us some good advice! 
    As I always say, think through before you do! Plan ahead, and things are sure to go smoothly!
    The Eating Well Cooking blog would love to hear about your favorite summertime recipes! Please feel free to post them on the blog, or contact me through private messaging! 
    ๐Ÿ”ดโšช๐Ÿ”ต2 hours ago
Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒŽ World Bronchiectasis Day is coming up on July 1!

Join us in celebrating with Empower Your Workout: Lung Health and Strength.

Staying active is so important for overall wellness--especially if youโ€™re living with lung disease. Regular exercise can help ease shortness of breath, clear mucus, and even lift your mood by reducing anxiety and depression.

๐Ÿ’ช Want to learn more about exercising with bronchiectasis and other chronic lung conditions? Check out our resources here: https://copdf.co/BNTM-exercise

๐Ÿ™‹ Ready to get involved? Sign up for our free toolkit: https://copdf.co/WBD-toolkit

๐ŸŽ Plus, enter for a chance to win World Bronchiectasis Day merchandise! Simply share this post and tag us--or sign up for the toolkit--to be entered.

Looking for other ways to support World Bronchiectasis Day activities? Visit https://copdf.co/Support-WBD.

Letโ€™s keep moving and breathing better--together!

3 days ago

Davidgh

Davidgh

Is there a possibility that using Trillegy Ellipta can cause dyspnea to worsen?  

10 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ’CHERRY LIMEADE๐Ÿ‹โ€๐ŸŸฉDid Aunt Gertrude leave a can of 7-UP in your fridge, and you don't know what to do with it? Here's an idea! 1 can 7-UP soda 2 maraschino cherriesHalf of a lime wedge, cut into 2 equal piecesIce2 tbsp. maraschino...

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

โฌ†โฌ†โฌ† Hey, everyone!!!โฌ†โฌ†โฌ†
Look up! We have almost hit our 63,000 member mark! ๐Ÿ˜ƒ

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Motivational Monday! Wake up knowing that today WILL be a day to remember! You have a positive outlook because you started your day in a good way! Enjoy your day, friends! I am positive that you will! ๐Ÿ˜ƒ

15 hours ago

Deb169

Deb169

Ok

23 hours ago

Wildebeest

Wildebeestanswered the question Tense shoulders and stomach feel I breath better when relaxed

Relaxation and breathing techniques should help. However they may not be the full answer, depending on your exercise status. If you are very tense, or not very mobile and don't engage in any regular movement/stretching/exercise protocols then adding …
PuffDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Puffand 1 other also answered the question

1 day ago

DebbieS

DebbieS

Seriously not doing well.

1 day ago

Puff

Puffasked the question: Tense shoulders and stomach feel I breath better when relaxed

Tense shoulders and stomach really have to work to relax feel I could breath better if I relax Any sug

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood morning friends, and happy Sunday to all! ๐Ÿ˜Š Wishing everyone a wonderful day! ๐Ÿ˜€

1 day ago

Sims0630

Sims0630answered the question Please help with test results! Just diagnosed and so worried!

Thank you All for your encouragement and kindness. I quit smoking 2 1/2 weeks ago! I am still in a bit of shock and emotional and will be so glad when this parts fades away! Thank you so much hug
Phyliss DiLorenzo NJ State CaptainCaroline West Virginia State CaptainKaren Deitemeyer - Florida State Captainand 2 others also answered the question Phyliss DiLorenzo NJ State Captainand 4 others also answered the question

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Loud nose and pain when doing peak flow

You may have a trachea that collapses more easily than most. That being noted- I doubt that PFM did any damage.
Caroline West Virginia State CaptainbrydyKaren Deitemeyer - Florida State Captain also answered the question Caroline West Virginia State Captainand 2 others also answered the question

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Will exercise help at any stage of copd

Yes
Phyliss DiLorenzo NJ State CaptainPuffCoach Brandon - Community Manager also answered the question Phyliss DiLorenzo NJ State Captainand 2 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒž Wishing everyone an awesome day!

If you can, dodge that blazing heat and stay nice and cool inside. Think of it as an excuse to chill out--literally! Hydrate, keep those meds close, and maybe treat yourself to a popsicle or two.

Stay cool and have a fantastic day, friends! 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Time to chill out! Some summertime fun is in order! Whether it be lounging, swimming, visiting with friends, or reading a good book, you've earned your chill time! ENJOY! ๐Ÿฆ๐ŸงŠ๐Ÿ˜ƒ

2 days ago

RconD

RconD

My husband has "severe COPD". We are new to the diagnosis. He is supposed to be on 2 L O2 and is fairly faithful with that. We have had one recent hospitalization with intubation for hypercapnia/hypercarbia (forgive spelling errors). He is getting very shaky again like last time , PO2 is at 80%. When do we decide to go to ER?

2 days ago

Allgood

Allgood answered the question New to CPAP with hypercarbia

Thanks to all for your tips. Actually, I did get a hold of my pulmonologist and shared with him the results of my sleep study which showed I was titrated only to just about nine pressure. Then the technician actually backed it up finally to eight where I …
JazzybeanCaroline West Virginia State Captain also answered the question Jazzybeanand 1 other also answered the question

3 days ago

Brittishere

Brittishereasked the question: Loud nose and pain when doing peak flow

Hi there! Every time I do my peak flow- which is with a device that has a circular mouth piece to exhale through- there is a very horse, loud and painful feeling in my trachea. I sound like like one big cough but Iโ€™m not coughing Iโ€™m just doing an exhale …

3 days ago

JAH5001

JAH5001answered the question Has anyone with severe stage 4 COPD improved their breathing?

I think Iโ€™m doing pretty good most days. In the past 2 years I have had a couple infections and have taken a prescription I keep on hand from my Dr. (MethyPREDNISolone) which really works well.I have spent a good amount of time researching natural …
SoftballGramDavid Mannino, MD (Chief Medical Officer, COPD Foundation )1fatfannyand 1 other also answered the question SoftballGramand 3 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅญ๐Ÿ…MANGO SALSA๐Ÿ…๐ŸฅญIf you're looking for a tasty topper for grilled chicken or pork, you've come to the right place! 1/2 cup diced mango1/2 cup diced plum tomato1/2 cup chopped cilantro1 tbsp. red wine vinegar 2 tbsp. olive oil Place all...

3 days ago

Puff

Puffasked the question: Will exercise help at any stage of copd

will exercise help at any stage of copd

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Earl the Squirrel! He needed to take a rest on a very hot afternoon! 
Today's picture, courtesy of my sister Lori! ๐Ÿ˜„

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

My internet is supposed to be fixed tomorrow between 2 and 5.  Let us hope because I am tired of trying to write 2 columns between 9pm and 9am.  I have missed one of my most fun activities which is Harmanicas for Health and see that we need to keep our eyes open to see the 63,000 members.
Who is ready to make a wager?  My bet is on July 4, 2025.  What say you?

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Should I pay a online doctor for referral for CT

I have had to wait for months to have CT scans. You really need to have your own pulmonologist look at the results!!! It's almost July. When you see your pulmonologist, you may be able to get in for a CT scan sooner than you think! "Be a patient …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

4 days ago

Community Announcements

Community Announcementsadded a new article Bronchiectasis and NTM Association and 25 global partners unite for World Bronchiectasis Day

Fourth annual awareness event occurs July 1, 2025

MIAMI (June 26, 2025) - The Bronchiectasis and NTM Association joins 25 global patient advocacy organizations and professional societies to recognize the fourth annual World Bronchiectasis Day on Tuesday, July 1, 2025.

Bronchiectasis is a chronic lung disease characterized by enlarged airways that are thickened and/or scarred. These permanently widened airways lead to a buildup of mucus and impaired clearance of bacteria from the lungs. It is estimated that more than 1 million people are diagnosed with bronchiectasis worldwide, and of those, 340,000 to 522,000 are adults in the U.S.

The aim of World Bronchiectasis Day is to raise global awareness, share knowledge and resources, and discuss ways to reduce the burden on those affected by the condition. This year, global partners are focused on empowering people with bronchiectasis by sharing resources on self-management, mental health, physical activity, and nutrition.

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ๐Ÿฅญ๐ŸŒDRESSING FOR FRUIT SALAD๐Ÿ‘๐Ÿ“๐Ÿซ1/2 cup pineapple juice 1/8 cup honeyZest of 1 limeJuice of half a limePlace all ingredients in a small bowl. Whisk together until smooth. Drizzle over your favorite fruit salad. ๐Ÿ‹โ€๐ŸŸฉ๐Ÿฏ...

4 days ago

Grace2024

Grace2024asked the question: Should I pay a online doctor for referral for CT

I got a call today and they got a cancellation so Iโ€™m going today for an echocardiogram! If that comes back normal should i pay an online doctor for a referral for a CT scan ? Iโ€™m in the United States and read that some online doctors will do that if you …

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainJump for joy! It's Thursday! Keep that positive outlook flowing! No negativity, no worries here! Start each day with a big smile! ๐Ÿ˜ƒ
Have an awesome day, friends! ๐Ÿคฉ

4 days ago

Sims0630

Sims0630asked the question: Please help with test results! Just diagnosed and so worried!

Hi! New to Copd/emphysema and have seen a pulmonologist, but do not under the spirometry results. Can anyone explain? Also, 41 year old female. Thanks

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.