COPD360social welcomes new member Audrey G. who joins 64,389 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

โ„ A Gentle Weather Check-In for Our 360social Family โ„

As many of you are already seeing โ€” and others are about to feel โ€” an intense wave of cold weather is moving through, even in areas that have already been hit hard with snow. We wanted to take a moment to check in and encourage everyone to move gently and mindfully over the next few days.

Cold air, icy conditions, and sudden temperature drops can be extra challenging, especially for those living with COPD, bronchiectasis, or other lung conditions. If youโ€™re able, try to stay warm, limit time outdoors, and make sure you have what you need within easy reach โ€” medications, oxygen supplies, warm layers, and anything that helps you feel steady and comfortable.

Itโ€™s also okay to slow things down. Rest when you need to. Cancel plans if it feels like too much. Staying safe is not falling behind โ€” itโ€™s taking care of yourself.

If youโ€™re in an area being impacted, know that youโ€™re not alone. Weโ€™re thinking of you, sending warmth your way, and hoping everyone stays safe as this weather system moves through.

Please feel free to check in below and let us know how youโ€™re doing โ€” or share any tips that help you get through colder days. ๐Ÿ’™

Stay warm. Stay safe. Weโ€™re in this together.

20 hours ago

Shadwanda Rainey COPDF Research

Shadwanda Rainey COPDF ResearchCommunity Survey: Corticosteroid Tablets


Have you taken corticosteroid tablets (such as prednisone, prednisolone and dexamethasone) to help manage your COPD symptoms?


Take our quick survey to help researchers understand how corticosteroid tablets are being prescribed.


The survey takes only ten minutes to complete and is anonymous (not connected to your account).We appreciate your assistance in furthering COPD care research!


Take the survey: https://monash.az1.qualtrics.com/jfe/form/SV_3xSdSApyTUSwDEa

6 days ago

Fran Fox

Fran Foxanswered the question Looking for input on Inogen G4. Do users like it?

Hello everyone, I realize this is an older discussion, but the question Texasgirl asked is timeless. I see people visiting this page every day looking for the "Holy Grail" of oxygen: a machine that is feather-light but powerful. I am writing this from …
RDKJonnie Korinko (COPDF Director of Education)Bill Clark - Community Managerand 1 other also answered the question RDKand 3 others also answered the question

3 hours ago

Yesha

Yesha

Where did my post go????

3 hours ago

Yesha

Yesha

I just joined this morning because I need some one or somewhere to share what I'm going through. I'm 67 and my husband is 66. We met when we were 35 and 34. After a number of non successful relationships for both of. We were both married once before with children. I have 3 girls he took under his wing, one year after we met , in a bar, we were married. Both smokers. Drinkers. We have since quit drinking now going on 5 years. My husband has always been a wonderful provider, not afraid of hard work. He grew up in Indiana, I'm from California. It was live at first sight for both of us. Now 31 tears later still in love more than ever. But about 3 years ago my husband developed COPD. I'm watching the strong, independent man I love grow weaker and weaker. And I have also gone through a kind of .  Grieving period, if that makes sense. My kids don't understand this, I'm grieving the man he was. Is that normal or am I being selfish? I have to do everything now which I don't mind cause I love him dearly, but lately I think it's taking a toll on me. Mentally, physically and emotionally.  I'm also dealing with my own physical pains as well. But I just keep going. When I share about this I feel guilty, is that normal? Why can't I talk about it? 

3 hours ago

Yesha

Yesha

Can't sleep

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy magnificent Monday, friends!
A positive attitude will take you far! Don't just sit around and wallow in the misery because it's Monday. Rise and shine with an open mind. Plenty of hope that today is the start of an awesome week ahead! ๐Ÿ˜ƒ

4 hours ago

Amelia (Millie ) โค๏ธ

Amelia (Millie ) โค๏ธ

Iโ€™ve missed a few days unfortunately but I hope everyone had had a lovely Christmas ๐ŸŒฒ๐Ÿฅณ

14 hours ago

Dinna25

Dinna25answered the question Asymptomatic Emphysema

Hi Bradford1234 welcome to the group. I was diagnosed with COPD emphysema 7 year ago now coming up too 8 year, via a spirometry test. I was stage 2 and was very surprised and found it hard, as there were no symptoms and so this continued until month + …
sami1263Caroline West Virginia State Captainbradford1234and 2 others also answered the question sami1263and 4 others also answered the question

15 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

The harsh truth about COPD is that to improve, you must do the work.  No magic pill or inhaler will make the breathlessness go away, but learning how to breathe and breathing exercises, along with strengthening exercises for all parts of your body, will go a long way.
Then there is the thing of getting enough rest and eating a healthy diet.  Last by not least is learning the proper way to use your inhaler or nebulizer and sticking to your medication schedule.
COPD improvement is not for lazy people.

16 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Does chronic stress affect copd?

I just wanted to add my message of support - you're dealing with an awful lot of major stressors right now and I hope that you'll take Dr. Mannino's suggestion of seeking out professional help. We're here to listen.
JeanO53David Mannino, MD (Chief Medical Officer, COPD Foundation )DebbieB.-Connecticut State Captainand 1 other also answered the question JeanO53and 3 others also answered the question

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainOh, happy day! Another awesome Sunday!
Wake up with a positive outlook! Put a smile on your face! Enjoy every minute of your Sunday, friends! ๐ŸŒž๐Ÿ˜€

1 day ago

UK Lynn

UK Lynn

Hi everybody, just a query today. I quit smoking 20 years ago from a five a day habit but a CT scan recently showed up emphysema and a spirometry confirmed it. Does that mean I have had it for 20 years as I wasn't aware until the scan which I had because of chest pain. If I had it for 20 years then it must be quite advanced even though my fev1 is 360 as expected for ages and height  and my oxygen is 98%. Thanks in advance.

1 day ago

Fran Fox

Fran Foxanswered the question Can anyone recommend a portable oxygen concentrator with 2L continuous flow?

Hello ACJC and everyone. I am writing from Rochester, MN, where I have spent my career navigating the technical side of these machines. I want to give you a specific answer to your question because the technology has actually shifted recently, and there …
Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)JAH5001HIcopd - Hawaii State Captainand 1 other also answered the question Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)and 3 others also answered the question

1 day ago

Kmcnamara68

Kmcnamara68asked the question: Does chronic stress affect copd?

I had a flare back in October that I attribute to extreme stress of finding out wife was unfaithful, selling house, divorce,etc. Anyway after flare I had follow up pft recently that showed my copd is still pretty mild, holding and about the same (fev1 …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! There's always a reason to smile! I hope you find many reasons to smile on this wonderful day! โ˜ƒ๏ธ๐Ÿ˜€

2 days ago

Wvhickchicks

Wvhickchicksanswered the question I need help/advice with Medicare billing

I'm not sure where to respond to the answers and advice... Medicare isn't refusing they are saying since the nebulizer was paid for under part B that my part D won't cover it to get it paid for I would have to be in a nursing home...they cover my …
JeanO53David Mannino, MD (Chief Medical Officer, COPD Foundation )Karen Deitemeyer - Florida State Captainand 1 other also answered the question JeanO53and 3 others also answered the question

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )For Fluffy Friday....  A spoonbill and white egret were hanging out together by the lake on the golf course this morning!

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

This is really good, Karen! It's very easy to make! I'm sure you'll enjoy it! ๐Ÿฏ ...

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I have all the ingredients - definitely will make this soon!! Thanks for the idea!!...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฏHONEY-CINNAMON CREAM CHEESE๐ŸฏA delightful spread for bagels, crackers, or fruit slices!8 ounces cream cheese, softened 2 tbsp. honey1/2 tsp. cinnamon1/2 tsp. vanilla extract Place all ingredients in a food processor. Process until smooth, scraping...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from Amethyst Gumdrop! Here he is after being woken up on Christmas morning! 
We wish you a wonderful day, friends! ๐Ÿ’œ

3 days ago

Wvhickchicks

Wvhickchicksasked the question: I need help/advice with Medicare billing

I have a problem I don't know how to solve it...my doctor ordered me a nebulizer and medication to use with it....and she billed Medicare which paid for the nebulizer under part B so part D won't cover my medication solution unless Im in a nursing home . …

3 days ago

das23

das23

Merry Christmas to All๐Ÿ™๐ŸŽ„

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainI would like to wish everyone a very Merry Christmas! May your day sparkle and shine, and be bright with love and hope! โค๐Ÿ’š

4 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

4 days ago

TamsLungs

TamsLungs

I am new to this group. I am stage 4, with 32% lung capacity. Full time O2 at 4 litres right now. Breztri, low dose Prednisone, nebulizer, and antibiotic. Have a hard time just moving around.I feel a lot worse when/while I take my strong antibiotic, and step down steroids(40,20,10) Very depressed, and a continued smoker. I just feel like I'm dying already so why fight an addiction? I also have heart issues so it's a list cause for me I feel. I never used to get sick though(no bronchitis or pneumonia), so I'm very confused as allot of people with this disease seem to. Any input

4 days ago

  • NewestOldest
  • Caroline West Virginia State CaptainI understand that you feel defeated and depressed.  But here is the reality, if you continue to smoke, then you will make the feeling that you are dying come true.


    If you quit smoking, exercise, eat well, take your medication, then there is a very good chance that you can stabalize your condition and live many more happy years.4 days ago
  • das23Welcome.....I'm with Caroline. If you can quit smoking you will see an improvement and probably not get sick so often. There are folks with your lung function--using oxygen and living well. Hopefully you can to--up to you. Good luck--Hope you feel better. Read all the info in the LEARN MORE tab at the top of the pageโœŒ4 days ago
  • DebbieB.-Connecticut State CaptainAnd...we are here to support you! You CAN live a full and wonderful life with COPD!!! So many of us here are doing just that, myself included! 
    Let's see that great big smile! ๐Ÿ˜ƒ4 days ago
Kmcnamara68

Kmcnamara68answered the question Copd progression

Don't get me wrong, it's harder than it used to be, but I'm also getting closer to 60 than 50 lol
David Mannino, MD (Chief Medical Officer, COPD Foundation )Karen Deitemeyer - Florida State CaptainNiall Fand 3 others also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 5 others also answered the question

4 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Whoops oh dear post follow up No 3 happier

Wonderful! I am very happy for you.
WildebeestDavid Mannino, MD (Chief Medical Officer, COPD Foundation )brydy also answered the question Wildebeestand 2 others also answered the question

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.