COPD360social welcomes new member J_samson who joins 65,679 current members of our community. Weโ€™re glad you're here!

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone a very happy Thursday! Start your day with a beautiful smile, and keep those positive thoughts flowing! ๐Ÿ˜€

3 hours ago

Jenn Lynn

Jenn Lynn

 literally almost asked if my O2 concentrator came wireless. Hey everything else is wireless
 Lol

12 hours ago

  • SDMIf my electricity went out as often as my wifi I'd be in trouble.  Actually the oxygen tanks are wireless, no electric, no battery and no wifi but i do hate pulling those around.  I wish there was a better way than the oxygen cords and nebulizers. 10 hours ago
Jenn Lynn

Jenn Lynn

There are days that I feel ok, breathe pretty good and then there are days when walking across the room leaves me breathless and drops my O2
I am recently diagnosed with COPD. I also have a few other medical problems that affect how I get around. And it is a million degrees in my house. I am exhausted all the time. Will I ever get off oxygen once on it?

12 hours ago

  • SDMI don't know about your oxygen usage but i do know the extreme heat will make you exhausted even if you are healthy.  Please try to get AC or fans to keep cool.  It was 98 here today and i cancelled my doc appointment because i didnt feel well and the heat and humidity makes it harder to breathe.  I did not want to go outside at all.  9 hours ago
lizjb

lizjbanswered the question sleeping pill/anxiety

yes. my pulmonary doc actually said to take xanix. I know that is not good so they donโ€™t know everything. might work with anxiety but not good if you have copd. even i know that
Karen Deitemeyer - Florida State CaptainbrydyDebbieB.-Connecticut State Captain also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

16 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Advice for caregiver burnout?

The American Lung Association has a wonderful Caregiver Guide - there may ne some suggestions that would ease your mind in it: https://www.lung.org/lung-health-diseases/caregive...
DaughterBeckybrydy also answered the question DaughterBeckyand 1 other also answered the question

16 hours ago

DaughterBecky

DaughterBeckyasked the question: Advice for caregiver burnout?

Iโ€™m new to the group but not to copd caregiving. My mom is 76 with stage 4 copd. She still smokes a pack a day. She weighs under 75 pounds. She lives alone. She was recently hospitalized for a week for an exacerbation. She was scheduled to go to rehab …

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

It is yummy, and very easy to prepare, Karen! ๐Ÿ˜€...

18 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŽ‰๐Ÿ˜‚ Happy International Joke Day & Visit My Corner of the World Wednesday! ๐Ÿ“ธ๐ŸŒŽ

Wednesday we're celebrating two of my favorite things... laughter and seeing the amazing places (and moments!) that make up your corner of the world.

This week's Visit My Corner of the World Wednesday has a fun twist...

๐Ÿ“ธ Show us the FUNNIEST corner of your world!

Maybe it's your dog giving you that look. A funny sign you spotted. A project that didn't quite go as planned. A spectacular weather forecast that promised sunshine while you're looking at pouring rain. Or just one of those perfectly timed photos that makes everyone smile.

Need a laugh to get us started?

๐Ÿคฃ Doctor: "Try to avoid stress."
Me: "Have you ever tried to untangle oxygen tubing... while the dog is standing on it?"

๐Ÿคฃ My smartwatch congratulated me on an amazing workout...
I was folding laundry.

๐Ÿคฃ Whoever invented oxygen tubing obviously never owned a recliner, a coffee table, and a dog.

๐Ÿคฃ My doctor said, "Listen to your body."
My body said, "Let's have a snack and a nap."

๐Ÿคฃ Caregiver Olympics:
๐Ÿฅ‡ Find the inhaler.
๐Ÿฅˆ Find the glasses.
๐Ÿฅ‰ Realize the glasses have been on your head the whole time.

Now it's YOUR turn!

๐Ÿ˜„ Tell us your favorite clean joke.
๐Ÿ“ธ Share a funny photo from your corner of the world.
โค Or simply tell us something that made you laugh this week.

Living with COPDโ€”and being a caregiverโ€”comes with enough serious moments. Today, let's celebrate something we can all use a little more of: laughter, friendship, and the kind of humor only this incredible community truly understands.

Now... let's see who posts the funniest photo or the best joke! I have a feeling this community is about to make a lot of people smile. ๐Ÿ˜„๐ŸŒŽ

22 hours ago

brydy

brydy

Happy Canada Day. I know most here are American but Canada Day is a big deal in my country. We celebrate this place we call home & a big kick off to summer. Its crazy hot today already 45c but some friends are crashing here tonight in their tent after enjoying the festivities & fireworks at the lake later. Hope everyones managing thru this heat & humidity. be careful out there guys ๐Ÿ‡จ๐Ÿ‡ฆ

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ’ RED, WHITE, AND BLUE PARFAIT๐Ÿ’  1 cup diced watermelon, plus 6 extra pieces diced watermelon 1 cup blueberries 6 ounces vanilla Greek yogurt Whipped creamUsing 2 pint size mason jars, assemble the parfaits.Layer, starting with the blueberries,...

23 hours ago

carolyn johnson

carolyn johnson

Good morning  im still feeling down and depressed  until i figure out whats gling on with  these recent flare up. I cant cough up mucus no more. My doctor told me i have asthma  not copd and other doctors cant tell the difference  which i knew that wasnt true. I have no faith in him i feel like its all about insurance money not about me. Im switching doctors. He put me back on incruse which i was once taking off it. Im so confused and i have allergies  and acid flux and i do still work and walk 3 days a week. But i feel like im taking care of everyone else accept  me. I have a special needs newphew and im disable mom and i take care of a ex who disable also.  My hands are full but i feel like i have no one that understands  me. I haven't  been eating because of my flare up  just drinking to stay hydrated.  I love my grandbabies to death  and my children . Dena umbash i might be spelling your name wrong i do know how your feeling right now. Your welcome to reach out im available  to talk. You can even call me because  we are both the same age 54. Im stage 3 i think

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday, friends! Just buzzing by to wish you a great day!  ๐Ÿ๐Ÿ’จ Bee happy. Bee strong. Bee positive. Bee-You-Tee-Ful! ๐Ÿ

1 day ago

Dena Umbach

Dena Umbach

Hi .. New here.. im stage 4 COPD & 11% function..  Ive just turn 54yrs old . 2 weeks no smoking .. lung transplant list in next 5 iish months .  .  Looking to learn more about copd and what is ahead for me . Found out i had copd about 3 yrs ago but the last 6 / 7 months its got extremely worse,,  on oxygen 24/7..   a month 1/2 ago. .  Vary emotional about it all .. ๐Ÿ™๐Ÿปโค

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI just watched the latest COPD Lung Health Champion Podcast, starring Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)โ€‹ and Mary Kitlowski (Running On Air). Thank you both, as well as the 3 clinician guests, for an excellent discussion about oxygen and patient-centered care.

https://youtu.be/CC27dcw7U2E?si=GUHqIancauQGbPkR

1 day ago

MandyYakon

MandyYakon

Hello everyone!  I'm new on here but really wanted to just find somewhere i could talk to other people who have same or similar issues as i do!  


My major thing I want to share with you all though is.....I am 2 days smoke free!!!  Yay lol. I've smoked for so many years but it's time to quit forever. My Dr prescribed chantix for me and I will say it's helped quite a lot. 


Thanks for hearing me out I hope everyone has a wonderful holiday too and be safe!


Mandy

1 day ago

GAnne

GAnneanswered the question Has anybody had any problems with getting pneumonia while using trelegy ellipta ?

I have been on trelegy for about 10 years or longer, I have had 1 bad experience with pneumonia. 6 months later one that wasnโ€™t to bad, but I donโ€™t want any. So many things can set you off, cleaning supplies, perfume, dust.
COPD1222HIcopd - Hawaii State CaptainChris A.and 5 others also answered the question COPD1222and 7 others also answered the question

1 day ago

lizjb

lizjbasked the question: sleeping pill/anxiety

what is a good sleeping pill if u have copd Also what is good for anxiety and stress with copd that can be used daily with ambien at night?

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event OxyTalk Social Hour - Wednesday, July 8, 4pm Eastern

OxyTalk Social Hour - Wednesday, July 8, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event BronchandNTM360social Coffee Break - Wednesday, July 8, 2:30pm Eastern.

BronchandNTM360social Coffee Break - Wednesday, July 8, 2:30pm A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event COPD360Social Hour & Harmonica Play-Along- Wednesday, July 1, 4pm Eastern.

COPD360Social Hour & Harmonica Play-Along- Wednesday, July 1, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

1 day ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Dena UmbachGreat idea.. i just happen to have 3 . . I carry around woth me for when i see my grand daughters.  I guess ill pick them up more for me to play again .. tkz 1 day ago
  • Coach Brandon - Community ManagerHi Tracings, Aww, thank you so much. That really made me smile. 

    I just want everyone to feel comfortable here. Whether you jump right into conversations or just hang back for a while and get a feel for things, both are perfectly okay. There's no right or wrong way to be part of the community.

    And I loved hearing that you were playing "Row, Row, Row Your Boat!"  That's what makes Harmonicas for Health so much fun. It's amazing how something so simple can bring out the kid in all of us. Of course, little kids absolutely love harmonicas... parents and grandparents sometimes a little less! ๐Ÿ˜‚ I still remember my nephew wandering all over the house happily playing his harmonica. It was right up there with buying a niece or nephew a drum set just to get that look from your brother or sister!

    If you ever have a question or see something you'd like to know more about, just ask. You can always post here or send me a private message. I'm always happy to help.

    I'm really glad you're here, and it means a lot to hear that you felt welcomed. That's exactly what we hope for.21 hours ago
  • Coach Brandon - Community ManagerThat's great, Dena Umbachโ€‹!  Grandmothers carry wisdom ...and great ones carry harmonicas! 21 hours ago
Community Announcements

Community Announcementsadded a new article Financial strain may affect health outcomes for people with COPD

Financial burden leads to poor disease self-management, emotional distress

Miami (June 30, 2026) - The financial cost of chronic obstructive pulmonary disease (COPD) negatively impacts people's mental health and leads them to forego medications, delay or avoid medical care, and alter major financial plans, according to a new study in the May 2026 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open access journal.

1 day ago

Wildebeest

Wildebeestanswered the question Do any of you h

I have a Wellue ring which I use to measure O2 sats overnight. It produces results I would expect so I guess it is accurate enough for a general picture. I have tried using it when exercising but it is no good for that. Mostly I use an ordinary fingertip …
Karen Deitemeyer - Florida State CaptainGaryLynnsif1215and 2 others also answered the question Karen Deitemeyer - Florida State Captainand 4 others also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

โ˜„๏ธ Happy Meteor Watch Day! ๐ŸŒ 

Tonight, people around the world may be looking up, hoping to catch a shooting star racing across the sky.

But here in COPD360social, we know some of life's brightest moments don't happen in outer space.

Sometimes they're much closer to home.

๐Ÿ’™ A morning when breathing feels just a little easier.
๐ŸŒค๏ธ A cool breeze that invites you outside.
๐ŸŒผ The first flower to bloom.
๐Ÿฆ A bird visiting the feeder.
๐Ÿ“ž A phone call that makes you smile.
๐Ÿพ A wagging tail that's excited to see you.
๐Ÿ‘จ๐Ÿ‘ฉ๐Ÿ‘ง๐Ÿ‘ฆ Time spent with the people you love.
๐Ÿšถ A few extra steps than you could take a month ago.
๐Ÿ˜Š Or simply making it through todayโ€”and that's more than enough.

Whether you're living with COPD, bronchiectasis, NTM lung disease, or you're caring for someone you love, those moments matter. They remind us that hope isn't always found in the big milestones. Sometimes it's tucked away in the little victories we almost overlook.

So today, let's have a little fun...

โœจ If you were hosting a "Meteor Watch Party" for our community, what would everyone be hoping to see?

Would it be...
โ˜„๏ธ A streak of easier breathing?
โ˜„๏ธ A shower of extra energy?
โ˜„๏ธ A sky full of good test results?
โ˜„๏ธ A doctor's appointment filled with encouraging news?
โ˜„๏ธ More time doing the things you love?
โ˜„๏ธ A little less coughing and a lot more laughter?

Or maybe your wish is something completely different.

๐Ÿ’ฌ Tell us below!

If you could wish on one shooting star this week, what would it be?

No wish is too big or too small. We'd love to hear what's giving you hope or what you're looking forward to. Your answer just might be the bright spot someone else needs today.

Have a happy Tuesday! ๐ŸŒ ๐Ÿ’™

1 day ago

Bob puff dragon

Bob puff dragonHope everyone can handle this heat ok,so far coast has been good,even for smoke this year.Drink lots and cuddle that ac.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฝSESAME NOODLE SALAD๐Ÿฝ16-ounce package angel hair pasta, cooked and drained in colander 1/2 cup sesame oil1/2 cup lower sodium soy sauce1/4 cup balsamic vinegar 1/4 cup sugar1 tsp. sesame seeds1 scallion, finely chopped 1 medium red bell...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, everyone! When you spread positivity, you are spreading sunshine! ๐ŸŒž Keep on thinking good thoughts! ๐Ÿ˜Š Strive for happiness in your life! ๐Ÿ˜€ Keep on smiling! ๐Ÿ˜ƒ

2 days ago

das23

das23answered the question Does this mean it's getting worse

Agree with the others--80s is something you need to see your doctor about
WildebeestCaroline West Virginia State Captainbrydyand 1 other also answered the question Wildebeestand 3 others also answered the question

2 days ago

George Trump

George Trump

Are there any natural remedies for copd ?

2 days ago

George Trump

George Trump

Coping with a flare up

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.