COPD360social welcomes new member Rain4 who joins 64,287 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Happy December, 360social!

Weโ€™ve officially entered the season of twinkly lights, cozy blankets, and wondering how it's already dark at 4:30 pm. But even with the holiday hustle, this month is a great reminder of everything we can do -- COPD or not.

Sure, we might pace ourselves a little differently, but look at us:
๐ŸŽ„ Still conquering the cold one carefully planned outing at a time
๐ŸŽ Still showing up for each other with support, humor, and the occasional โ€œDid I really just do that?โ€ moment
โ›„ Still finding ways to make the season bright -- inhalers and all

Letโ€™s celebrate the wins this month, big and small:
โœจ Wrapped a gift? Victory!
โœจ Chose rest over stress? Gold star!
โœจ Managed to avoid glitter while decorating? Youโ€™re basically a holiday wizard.
โœจ Stayed warm, hydrated, and breathing easier today? Thatโ€™s the best gift of all.

December isnโ€™t about limitations -- itโ€™s about doing things in our own style. And this community does that beautifully.

Wishing everyone a month of gentle laughs, warm moments, successful pacing, and zero surprises involving fruitcake! ๐Ÿ’™๐ŸŽ„๐Ÿ˜„

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Iโ€™m very happy!  I had a lovely holiday party with my Board. Lunch, overlooking the ocean, what could be better?!?!  It was fun to see everyone and some spouses. On the way home, stopped by to see nephew and great niece and they gave us a bag of lemons and we shared with neighbor and got some cutting of rosemary for a dish we are making. H will be planting the cuttings as our rosemary plant died of neglect.


Itโ€™s full circle since the neighbor grew her rosemary from cuttings from my nephew (where my parents lived), so the cuttings are coming back from the family plant. Haha!

2 hours ago

Tom.E

Tom.Eanswered the question Ohtuvayre use

I had one box out of three where the ampules came like that, so I think it's more the specialty pharmacy than Fed Ex. Or possibly both. I did manage to dissolve all to some of the med after some very long shaking. If all the boxes are like that you might …
ViperHIcopd - Hawaii State CaptainRichMand 1 other also answered the question Viperand 3 others also answered the question

6 hours ago

Dinna25

Dinna25answered the question Walking Distance

Thank you all for your response much appreciated. Hi Wildebeest it was great to achieve such a distance, when i questioned friends turned out don't even know what copd stands for, iv had no effects from it and gonna work at making that my goal, over …
Liza MWildebeest also answered the question Liza Mand 1 other also answered the question

6 hours ago

JeanO53

JeanO53

Weโ€™re under a severe weather advisory this weekend.  Itโ€™s currently 7 degrees (-13 wind chill) 
So Iโ€™m doing an indoor day today - lots of stuff to do around the house.  Sun is supposed to be out tomorrow, so I might venture out for a while then.
This time of year Iโ€™m especially grateful for having a safe, warm place to live, extra blankets on the bed, warm clothes, plenty of food and absolutely no reason to leave the house.
Stay safe and warm everyone!

11 hours ago

shazier

shazieranswered the question Dry mouth

I have dry mouth allot and terrible in the mornings Iv just read some of the advise from others and will be trying whatโ€™s been re
GAnneHIcopd - Hawaii State Captainjackie 82and 2 others also answered the question GAnneand 4 others also answered the question

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends!
Wishing everyone a joyful, peaceful, productive, easy breathing day! โค๐Ÿ’š

21 hours ago

sdwilkins

sdwilkinsanswered the question Anyone Have AFIB and COPD

Hi Jack, I suffer from COPD and recently my breathlessness has become horrible. While we were on vacation last week I had what was my first AFIB attack. It scared the hell out of me. Heart rate was 170 when my watch said I was in AFIB. After researching …
jackie 82Caroline West Virginia State Captain also answered the question jackie 82and 1 other also answered the question

1 day ago

Kimg40

Kimg40

I do not have heat but I use an electric blanket to heat my bed for about two hours then shut it off is this ok while wearing the oxygen.

1 day ago

matski

matski

I am helping someone with close to me that has COPD and emphysema. They smoke 10 - 20 cigs a day and has been in and out of the hospital which has been going on for over two months. Every time they get released, typically breathing is manageable for a couple of days, then gets worse to the point they struggle to breath and they are back in the hospital. They have smoked all their life. This person still smokes with a nicotine patch on. This is taking a toll on me as they refuse to seek help to quit smoking.  Does anyone have any suggestions as how I can cope with this situation?

1 day ago

Dinna25

Dinna25asked the question: Walking Distance

Hi all Today I achieved 10,718 steps which I think equals 4 miles, can I ask does anyone else walk this distance or maybe more over the course of a day. I only ask as I was told this was too much. SPO2 was 97 Heartrate was 80 Using a finger oximeter …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFluffy Friday Chuckle---Holiday Edition! ๐Ÿ”ด๐ŸŸข๐Ÿ”ด๐ŸŸข

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿง€๐Ÿง€EASY CHEESE DIP๐Ÿง€๐Ÿง€Whip some up to serve at your holiday gatherings! Save the recipe for Superbowl Sunday! ๐Ÿˆ 8 ounces cream cheese, softened 1/2 cup sour cream1/2 cup mayonnaise 2 cups shredded sharp Cheddar cheese 1 tsp. Dijon mustard...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my sister's kitten Miyagi! She sure is growing up fast! 
Have an awesome day, friends! ๐Ÿ˜Š

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŽ‰๐Ÿพ SUPER FESTIVE FLUFFY FRIDAY! ๐Ÿพ๐ŸŽ‰

Itโ€™s that magical time of year when twinkling lights are glowing, cookies are disappearing (weโ€™re not blaming the petsโ€ฆ but weโ€™re also not not blaming them ๐Ÿ˜„), and every furry friend suddenly becomes the star of their own holiday movie.

So letโ€™s celebrate in full festive fashion! ๐ŸŽ„โœจ

Show us your companions:
๐ŸŽ… Rocking their holiday sweaters
๐ŸฆŒ Posing like theyโ€™re on Santaโ€™s reindeer team
๐ŸŽ Helping wrap gifts (with โ€œhelpโ€ loosely defined)
โ„ Lounging under the tree like theyโ€™re the present
๐Ÿช Politely โ€” or not-so-politely โ€” requesting taste-testing rights

Letโ€™s fill the feed with joy, sparkle, and more fluff than a winter snowstorm. โค๐Ÿ’™

Wishing everyone a merry, bright, and wonderfully cozy weekend ahead. May your days be peaceful, your spirits lifted, and your ornaments remain mostly intact! ๐Ÿ˜‰

Drop your festive photos below and let the holiday cheer begin!

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Flying first time with POC

Yes, always ask EACH airline you are flying on what their requirements are (preferably before buying your ticket), so you donโ€™t have any surprises. There are forms that each airline can require and you can be refused boarding if you donโ€™t have correct …
Karen Deitemeyer - Florida State CaptainJeanO53das23 also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

2 days ago

GAnne

GAnneasked the question: Dry mouth

Foes anyone else have issues with their inhaler giving them dry mouth. I have been using act dry mouth for years but just donโ€™t seem to work. What are some other to use ThankGAnnes

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question LLN OR 70%

Follow Karen;s advice.
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

2 days ago

jackie 82

jackie 82answered the question Problems with blood pressure medication

Hi Caroline, this is so true: โ€œWhat the heart likes, the lungs do notโ€ I have been suffering for 15 months now, trying to get heart meds and lung medications that work together. Perhaps one day I will tell this story here; it may help others coming into …
Caroline West Virginia State Captaindas23 also answered the question Caroline West Virginia State Captainand 1 other also answered the question

2 days ago

jackie 82

jackie 82answered the question Retaining CO2

You may wish to inquire about the APAP breathing apparatus, designed to assist COPD patients experiencing CO2 retention. The Non-Invasive Ventilator (NIV) is covered by Medicare; however, a prescription will be required. Acclimating to this device can …
Memaw1965PamRKandy State Captain of South Dakota and 3 others also answered the question Memaw1965and 5 others also answered the question

2 days ago

jackie 82

jackie 82asked the question: Anyone Have AFIB and COPD

Hi Folks, I am a long-time COPD patient, having endured this condition for 25 years. Recently, my heart has also become a significant concern. I was cautioned that this is often the trajectory for individuals with chronic COPD; the heart tends to falter …

2 days ago

HeRaisesThemFromThePit

HeRaisesThemFromThePitasked the question: LLN OR 70%

Hi, I recently had a pulmonary function test and Iโ€™m hoping to get some clarification. I am a 49-year-old Caucasian woman, 167 cm tall. My PFT results were: FEVโ‚: 90% predicted FVC: 103% predicted (I have practiced yoga breathing exercises for about 20 …

2 days ago

Dinna25

Dinna25answered the question Rescue pack

Hi all dunno what yesterday was about but all good today. Back on track with training maybe not quiet so hard. Thank you all for your advice
Caroline West Virginia State CaptainbrydyDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Caroline West Virginia State Captainand 2 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerI want to take a moment today to share something meaningful about our friend and longtime community champion, John Linnell. Many of you knew John from his years of advocacy, humor, wisdom, and the steady kindness he brought to every corner of COPD360social and the broader respiratory community. His impact reached far beyond our Foundation, touching people all over the world.

The European Lung Foundation (ELF), where John served as a patient advocate, shared the following message about his passing and the special way they plan to honor him:

โ€œWe were very saddened here at ELF to hear about the death of John Linnell, one of our patient advocates who recently contributed to the core outcome set for pneumonia trials.
To honour John's memory, we plan to create a memory wall on the ELF website, similar to the other memory walls you can view. This will be a space to celebrate John's life and the impact he had on our community.
If you would like to contribute a memory or message for John's wall, please send it to me. Your stories and reflections will help us pay tribute to John and the impact he had.

With very many thanks,
Clare โ€

ELF has also created a dedicated page where you can view the memory wall for John and read the heartfelt reflections already being shared.


Visit the memory wall: https://europeanlung.org/en/memory-wall/

John gave so much of himselfโ€”his time, his insight, and his heartโ€”to help others feel seen, supported, and empowered. If you would like to share a memory, a message, or simply a few words about what John meant to you, youโ€™re welcome to reach out directly using the instructions from ELF.

To share a memory, you can email Clare Williams from ELF at the email: clare.williams@ersnet.org

Letโ€™s come together to celebrate the friend, advocate, and bright light he was to all of us.

2 days ago

bleuj2j

bleuj2j

Okay Then..... Happy Holidays.

2 days ago

bleuj2j

bleuj2j

10:41 am Florida time.

2 days ago

bleuj2j

bleuj2j

is anybody here today Dec 11th 2025?

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŸข๐Ÿ”ด๐ŸŸกSPINACH TOMATO EGG BITES๐ŸŸข๐Ÿ”ด๐ŸŸกA great way to start your day! ๐Ÿ˜€1 cup cottage cheese8 large eggs1/4 tsp. salt1/4 tsp. freshly ground black pepper 1/2 tsp. finely minced garlic 1/2 cup fresh spinach, sliced 1/4 cup cherry tomatoes, dicedPreheat...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday to a wonderful group of people! I hope you're all having a good day so far!
Easy breathing and lots of smiling is the way our day is bound to be!!! ๐Ÿ˜Š๐Ÿ˜€

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.