COPD360social welcomes new member Shekin who joins 66,189 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community ManagerGood morning, 360social friends, and happy Monday! โ˜€

Well, if we have to start a new week, we might as well start it with Earth, Wind & Fire! ๐ŸŽถ

Today is Earth, Wind & Fire Day, and of all the days it could fall on, it just happens to be September 21st. I meanโ€ฆ come on. Thereโ€™s really only ONE way to start this Monday!

Hereโ€™s to a great new week, friends! Turn it up, sing along, maybe do a little dancing in your chair, and letโ€™s get this Monday started! ๐Ÿ’ƒ๐Ÿ•บ


Do you rememberโ€ฆ ๐ŸŽถ

https://www.youtube.com/watch?v=aqZxIL4YE2I&list=RDaqZxIL4YE2I&start_radio=1

5 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerDo You Use Nebulized Maintenance Medications for COPD?

Do you haveโ€ฏmoderate to severe COPD? Have you used a nebulized maintenance medication in the past 12 months?

If you have used any of the following medications, you may able to share your experience in a virtual focus group.

-  Brovana (arformoterol tartrate)
-  Perforomist (formoterol fumarate inhalation solution)
-  Lonhala Magnair (glycopyrrolate inhalation solution)
-  Yupelri (revefenacin)

You may be paid for your time. To learn more and see if you qualify, contact Sergio Martinez atโ€ฏ866-731-2673, ext. 210โ€ฏor email copdpprn@copdfoundation.org

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Do you have a section to discuss NTM

Hi CRJ Brandon has given you the link to our "sister" organization, but I hope you'll hang out with us, too.
6ft PixieCoach Brandon - Community Manager also answered the question 6ft Pixieand 1 other also answered the question

5 hours ago

CRJ

CRJasked the question: Do you have a section to discuss NTM

Is there a section for NTM patients?

6 hours ago

Tina M Moyer

Tina M Moyer

Hi All, 
Hope everyone is doing fine. I am getting back slowly, been dealing with a few health issues.  Gosh feels like after the heart stent I've had different health issues one after another. ugh.  I plan on  attending October Captain meeting and I plan on setting my table up at the workplace and hope once again my company and coworkers will go orange on World Copd Day.
Ive made a decision in my life due to my health issues, i plan on starting the process next march  of early retirement . I would still have to work a day or 2 to keep health insurance. that wont be so bad. 


Lately ,all I can think about is  My Dad when he was sick with progressive supernuclear palsy  and he didn't make retirement and he fought for disability only to get and the same year and  he passed away at 61. i made it to 61 and now i battle 9 different diseases. I got to make my life worth living  and making memories with my grandchildren Life has got be more than  just working!


Trying really hard to gear for November! 


Have a Awesome Day.. Always Keep Hope in your Heart. Tina 

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ•๐Ÿฅ•๐Ÿฅ•CARROT SALAD๐Ÿฅ•๐Ÿฅ•๐Ÿฅ•2 tbsp. cider vinegar 1 tbsp. olive oil 1 1/2 tsp. freshly squeezed lemon juice 1/2 tsp. sugar1/4 tsp. salt 1/4 tsp. pepper1 pound carrots, peeled and gratedIn a large bowl, whisk together the vinegar, olive oil, lemon...

8 hours ago

Kimber11111

Kimber11111

Hi I am new here I have trouble sleeping sometimes. I used to take sleeping pills but I hate taking prescription meds, started eating kiwi the skin has the nutrients it looks like you wouldn't eat it but it's not that bad I also eat  bananas they help a great deal not the skin and I drink a lot of water throughout the day it helps to thin out the mucus. I have severe shortness of breath I have tried numerous supplements and wasted a lot of money. If anyone knows of a good supliments that works please let me know.  Hope everyone finds some peace in this horrible sickness.

9 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday! 
Just put on a smile! It's sure to last a long while! Have a wonderful day, friends! ๐Ÿ˜€

13 hours ago

Amelia (Millie ) โค๏ธ

Amelia (Millie ) โค๏ธ

I havenโ€™t been on for a while , I do apologise , Iโ€™ve had an ear infection , chest infection and norovirus, I hope everyone is all ok and I hope your doing ok Karen after the zephyr valves ๐Ÿ™๐Ÿฅฐ

1 day ago

Tom.E

Tom.E

Just a heads up for those on the Medicare plan D drug plan. It looks like the 2027 max out of pocket will be increased to $2400 with a $700 deductable. So it might be prudent to squirrel away money now for that big hit in January if you don't opt for the Medicare Prescription Payment Plan.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, everyone! Wishing all of you the best day ever! 
Keep on smiling, and know that we are always happy to have you here with us! ๐Ÿ˜€

1 day ago

Johnmal

Johnmal

Has anyone had positive results controlling panic attacks during severe DOE events?

1 day ago

Johnmal

Johnmalanswered the question Does pulmonary rehab help?

Pulmanary rehab is the most important thing there is next to your medication therapy. it combines every thing you need to understand living with this disease plus it teaches you how to strengthen all the muscle groups supporting your lungs. After you …
brydyGAnnePuzzieand 5 others also answered the question brydyand 7 others also answered the question

1 day ago

cac

cac

When I click on the day  of movement, it comes up with facebook!  I don't use facebook so does that mean I can't get more info on it?

1 day ago

cac

cac

Lucinda, do you take NAC?  I wrote to Phil and I have a hard time with this site, how to reply to people, etc.  

1 day ago

cac

cac

Phil, are you taking NAC and if so, so you see any  difference?  I've read about it some time ago and took it but don't know if I took enough, you are supposed to take 2 (600mg) pills a day.  I also read about you taking fistein awhile ago.  Do you really think that is 
helping you?  I wish supplements were covered like drugs are.  I prefer not to take drugs but supplements and I pay a fortune for
them.

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿดโ€โ˜ ๏ธ Arrrgh! Itโ€™s Talk Like a Pirate Day! ๐Ÿฆœ

Have you ever been sitting in the doctorโ€™s office, listening carefully, when suddenly the conversation starts sounding a little like pirate talk?

"Your FEV1โ€ฆ exacerbationโ€ฆ hyperinflationโ€ฆ DLCOโ€ฆ arrrgh..."

You recognize a word here and there, but somewhere along the way youโ€™re thinking, Waitโ€ฆ WHAT did they just say?

Medical language can sometimes feel like its own foreign languageโ€”or today, maybe its own pirate language. ๐Ÿดโ€โ˜ ๏ธ

But hereโ€™s something worth remembering, mateys: Donโ€™t be afraid to ask your doctor to explain something again. Ask what a word means. Ask them to slow down. Ask them to put it in simpler terms. You deserve to understand whatโ€™s happening with your health and why.

Thereโ€™s no treasure chest waiting for the person who leaves the appointment pretending they understood everything.

And if you get home and think, โ€œArrrghโ€ฆI shouldโ€™ve asked about that!โ€ remember youโ€™ve got a whole crew right here on 360social, too. We may not have a pirate ship, but weโ€™ve certainly got plenty of experience to share. โค

So happy Talk Like a Pirate Day, everyone! ๐Ÿดโ€โ˜ ๏ธ

And just for today, I want to hear your best pirate talk in the comments. Ye landlubbers better not leave me sailing these waters alone! ๐Ÿฆœโš“

2 days ago

6ft Pixie

6ft Pixie

On 09/11/26, I had an appointment with my PCP because I just felt like crap. I became weaker and sweated a lot. When they took my BP at the office, it was 60/50. They sent me to the ER via ambulance. The ER could not get my BP to rise. I was also extremely dehydrated. Then I spent 4 days in the Cardiac ICU, where they could give me intravenous medication. I received 4 bags of fluids. I was then released to a med/surgical floor where they monitored my vitals.
I asked the discharge Dr. what caused this and how to prevent it from happening again. He said it was the consensus of everyone that it was my BP medication. The worst thing that happened was that they sent me home with oxygen. I have become even more depressed and livid too. I feel like a failure. People look at you differently.


I'm hoping I can get a portable oxygen concentrator so I can get back to the gym. For now, it takes all the energy I have just to walk to the kitchen and bathroom.
I hope the temps are cooling where you are! Have a great day!

2 days ago

  • NewestOldestClick to View All Comments6 comment(s)
  • Karen Deitemeyer - Florida State Captain6ft Pixieโ€‹ - Please give yourself time to recuperate before trying to go to the gym, or do too much around your home.  And if you continue to need oxygen, after you're fully recovered, I hope you won't feel like a failure - instead, feel like a very brave and strong person who is not going to just sit on the couch and vegetate!1 day ago
  • Caroline West Virginia State Captain6ft Pixieโ€‹ Please do not be distressed by how people look at you with oxygen.  I just look at them and give them a great big smile and now people act like they do not even see the oxygen which makes me think that I was acting differently.
    I meet so many men in the grocery store who tell me they have one of those things referring to my POC.  I say, but where is it and they say I don't like to wear it.  That might be the reason that I am 82 and still very active.1 day ago
  • HIcopd - Hawaii State CaptainYes, I wear mine out and about a lot too. The POC allows me to be out and about while being sure my entire body has the O2 it needs!1 day ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood morning, and happy Saturday! 
Fall is right around the corner! Is everyone prepared for the change of seasons? ๐Ÿ‚

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captaincommented onI Was Prescribed Supplemental Oxygen. Now What?

Almost as good as having an RT, and since many never get anyone other than the delivery driver, really so helpful! Plus these resources and be viewed as often as needed!...

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainTropical storms so far passing near our state and likely more thru February, thanks to El Niรฑo. 

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Check out our new Fall 2026 Digital Newsletter for the Hawaii COPD Coalition website! It has lots of great links that may be of interest to you!  Check it out! www.hawaiicopd.org/copd-newsletter-fall-2026/, https://hawaiicopd.org/copd-newsletter-fall-2026/.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainTook Hazel M. out for a ride this afternoon. She loves going! A nice day down at Gulf Beach. 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain๐Ÿ–ค๐Ÿ–ค๐Ÿ–คFluffy Friday Bonus!๐Ÿ–ค๐Ÿ–ค๐Ÿ–ค
This wee little girl showed up in my sister's yard. She is being bottle fed. I named her Brenda Lee. We will find her a good home after she starts eating regular kitten food. 

2 days ago

LucindaS

LucindaSanswered the question which Supplements for Lung Health actually Work?

Many pulmonologist suggest N-acetyl cysteine (NAC). Read more about it here: Advances in the Use of N-Acetylcysteine in Chronic Respiratory Diseases It thins mucus and has health benefits for the liver.
KCSunshineRichard DJ also answered the question KCSunshineand 1 other also answered the question

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainSmashed tomatoes.  Yum, yum, and so good in soup, creamed, in goulash, or in sauces.  I have more to do than these 7 pints, but this is labor-intensive, and I needed a break.

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Very low blood oxygen when walking

This is not good! Please contact your physician.
Phyliss DiLorenzo NJ State CaptainbrydyHIcopd - Hawaii State Captain also answered the question Phyliss DiLorenzo NJ State Captainand 2 others also answered the question

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ” Happy National Cheeseburger Day! ๐Ÿ”

Now THIS is a national day I can get behind.

Sometimes youโ€™ve had a long day, youโ€™re tired, and the question of โ€œWhat the heck am I going to make for dinner?โ€ feels like one decision too many.

Enterโ€ฆthe cheeseburger. ๐Ÿ”

Is it something we need every day? Probably not. But sometimes a little comfort food just hits the spot. Itโ€™s easy, it tastes good, and somebody else doing the cooking and dishes can be a pretty darn nice bonus tooโ€”especially for patients and caregivers who already have enough on their plates.

Maybe it doesnโ€™t make our waistlines feel any lighter, but every once in a while, something simple that makes you smile can make the day feel a little lighter.

And besides, if there was ever a day to have your burger and eat it too, Iโ€™m pretty sure National Cheeseburger Day qualifies.

So letโ€™s have some fun with this one: Build me your perfect cheeseburger! ๐Ÿ” Whatโ€™s going on it? Cheese? Bacon? Mushrooms? Jalapeรฑos? Onion rings? Are you one of those brave souls putting a fried egg on there?

Or maybe burgers arenโ€™t your thing at all. Whatโ€™s your โ€œIโ€™ve had a DAY and I am NOT cookingโ€ meal?

Drop yours below. And please understand that I reserve the right to judge anyone who says a plain hamburger with nothing on it. ๐Ÿ”

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.