COPD360social welcomes new member archy who joins 66,168 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŽจ Happy National Live Creative Day, 360Social!

Now this is a day I can get behind.

Today is basically permission to let your imagination wander a little โ€” invent something, discover something, daydream, try something different, or just look at an everyday thing and think, โ€œHuhโ€ฆ I wonder if thereโ€™s a better way to do that?โ€

And before anybody says, โ€œWell, Iโ€™m not creativeโ€ฆโ€ Nope. Not getting away that easily.

Creativity doesnโ€™t have to mean painting a masterpiece or suddenly deciding youโ€™re going to become a sculptor by dinner. Maybe you love photography, cooking, gardening, writing, music, woodworking, decorating, crafting, or tinkering with things.

Or maybe your creativity shows up in a completely different way.

Living with COPD โ€” or caring for someone who does โ€” can turn you into a pretty darn good problem-solver. We figure out shortcuts. We adapt things. We find ways to save a few steps or a little energy. Sometimes we take an old idea, give it a twist, and suddenly it works a whole lot better for our life.

That counts!

So today, give that creative side of your brain a little room to roam. Pick up an old hobby, try something new, daydream a bit, or tackle something from a completely different angle.

๐Ÿ’ญ Where does creativity show up in your life?

Maybe itโ€™s a passion, a hobby, something youโ€™ve made, a clever COPD workaround, or one of those little tricks youโ€™ve figured out along the way.

Letโ€™s hear it โ€” because I have a feeling thereโ€™s a whole lot more creativity around this neighborhood than we realize!

1 day ago

baileygiglio

baileygiglio

Hello everyone! You have a chance to share your experience in an upcoming forum that could impact access to a COPD treatment. You may qualify for this opportunity if you:

- Live in the state of Maryland
- Have experience with Dupixent (dupilumab)

If you qualify and are interested in sharing your experience, please reach out to me at bgiglio@copdfoundation.org. Thank you!

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸMAPLE-MUSTARD CHICKEN MEAL๐Ÿ2 tbsp. vegetable oil, divided 1 pound boneless, skinless chicken breast, cut into 1-inch pieces 1 tsp. garlic powder4 cups peeled, diced sweet potatoes 1 cup finely diced onion6 cups shredded Brussels sprouts 1/4 cup...

1 hour ago

Jenga1

Jenga1commented onUnderstanding Specialty Pharmacies

My pulmonologist works at the medical college in our area. He's introduced me to their pharmacy staff who have been very helpful in tracking some medications that were late being sent, and arranging getting me some oxygen equipment I'd forgotten to...

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello, and happy Tuesday! 
Yes! Friends gather here! When you become a member of 360Social, you will soon see just how friendly the folks are! Wishing everyone a beautiful day! ๐Ÿ‚๐Ÿ˜€๐Ÿ‚

5 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

Just a quick note to thank everyone for all of your support, good wishes and prayers.  I had 4 Zephyr valves placed in my upper right lobe Friday afternoon.  The protocol is to keep patients in the hospital for 3 days in case of a pneumothorax, which I luckily did not have ๐Ÿ˜  (About 30% of patients do experience that afterward).  I was discharged this afternoon and am now home, resting and apologizing to Ebony for having left her - although there were 5 family members in and out, so it's not exactly as if she had been abandoned ๐Ÿ˜†


I'll be glad to answer questions in another day or two, when I've gotten caught up on sleep - you know they do not let you sleep in the hospital!!

15 hours ago

Wife2025

Wife2025

 Im feeling overwhelmed.  Are there any caregivers support groups in Colorado?

16 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Has anyone heard from our friend Karen Deitemeyer.

20 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainMusic fir a Monday,


Everything is Beautiful     Ray Stevens

https://www.youtube.com/watch?v=qHyxBq1PYO8

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅฆ๐Ÿง€BROCCOLI~CHEDDAR ORZO๐Ÿฅฆ๐Ÿง€1 tbsp. butter1 tbsp. olive oil 1 small onion, finely diced2 cloves garlic, minced 1 1/2 cups uncooked orzo3 cups chicken broth2 cups broccoli florets, cut into small pieces1/2 tsp. salt 1/4 tap. freshly ground black...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy marvelous Monday, everyone! Wishing all of our wonderful members an awesome, easy breathing day! ๐Ÿ˜€

1 day ago

Bernadine

Bernadine

Hello there. Iam Bern and i have had COPD for about 12 years.  I hope everyone is doing ok and as well as can be expected.  I gave up smoking 10 years ago but vape.  After i gave up I had no chest infection for about 9 years but this year I have had 3. Anyway I am pleased to be here on a,Forum with you all and to chat and listen to others, hugs.

1 day ago

Lucy k

Lucy kanswered the question CPET result is here

This is so im
HIcopd - Hawaii State CaptainCaroline West Virginia State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends!
A friendly little reminder to get your flu vaccination! Bruce and I got ours this morning! If you are unsure of when to get yours, your doctor will be able to help you decide.


You certainly don't want to get the flu.
Being protected is the thing to do.
It doesn't hurt, not even one bit.
No bleeding or drama, that's it.
Prevention is always so smart.
So, go ahead and do your part!
๐Ÿ’‰ ๐Ÿ˜ƒ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing everyone an absolutely beautiful day! ๐Ÿ˜€

2 days ago

brydy

brydyanswered the question Does pulmonary rehab help?

Its really nice to hear from you GAnne, Ive been wondering how your doing. thats awesome you are doing pulm rehab again!
GAnnePuzzieDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 4 others also answered the question GAnneand 6 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Today is National Day of Encouragement โ€” basically the official โ€œYes, you canโ€ holiday.

And I think 360social knows a thing or two about this one.

Encouragement doesnโ€™t have to be some big speech. Sometimes itโ€™s simply:

โ€œYouโ€™re doing better than you think.โ€
โ€œDonโ€™t forget your meds.โ€
โ€œTake your time. Thereโ€™s no prize for finishing first.โ€
โ€œI know today is hard, but youโ€™re still here pushing through.โ€
โ€œGive yourself a little grace today.โ€
Or one of my favorites: โ€œYouโ€™ve got this.โ€

Living with COPDโ€”or caring for someone who doesโ€”can make even an ordinary day feel like a pretty big accomplishment. Sometimes having somebody recognize that can make all the difference.

And the best part? Encouragement is free. It costs us absolutely nothing to give somebody a little boost, whether itโ€™s a friend, family member, coworker, neighbor, or someone right here in this community.

So today, letโ€™s spread a little extra encouragement around 360social.


Whatโ€™s something youโ€™d like to say to encourage someone else today? Or maybe something you need to hear yourself?

You never know who might read your words at exactly the right time.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Waking up with a smile on your face sets the tone for the day. Starting off in a positive way means that happiness is right around the corner! Enjoy this beautiful day! ๐Ÿ˜€

3 days ago

Tcd

Tcd

I have asthma overlap stage three emphysema. Doc is considering valves or volume reduction surgery. Iโ€™ve been doing some research and it seems even though the lung volume reduction surgery is more evasive the outcome is better. Can anyone share their experience with these procedures? 

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good afternoon, friends. I hope you are having a nice Friday!
I just want to let you know about my husband Bruce's health condition. Those who know me will remember the whole story.
Bruce has been diagnosed with cancer once again. It has been spreading in his neck. It's an aggressive cancer. It has started eating away at the nerve near his vocal cord, which is paralyzed. There is cancer somewhere else is his body, but they have to find it. 
He has been struggling to speak and swallow. He's still going to work every day. 
The cancer is 100 percent treatable and curable. His neck oncologist will be treating thr cancer with radiation and chemical. He'll be out of work for 2 months, and will be in a great amount of pain.
He has a positive outlook, and the will to recover. Very important! 



3 days ago

Wildebeest

Wildebeestasked the question: CPET result is here

If anyone has any comments I'd be interested. It was done on a bike. Effort was maximal stopping due to breathlessness. HR peaked at 98% of predicted maximum. Breathing reserve was 23% (normal). Peak lactate was low at 5 when it should be over 8. Peak …

3 days ago

Lauriek64

Lauriek64

I'm doing ok. I have good and bad days

3 days ago

Patrick Moose

Patrick Mooseanswered the question Has anyone been involved in stem cell treatments? I understand there is no hard evidence.

To follow up on my experience - I have asthma / COPD overlay which mostly manifests in chronic bronchitis. My ox levels are stable (96-97) but Iโ€™m in bed 2-4 months out of the year with bronchial flares. If I get a virus my life is hell for the next few …
Upstate NY MikeKaren Deitemeyer - Florida State CaptainJeanO53and 2 others also answered the question Upstate NY Mikeand 4 others also answered the question

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‡บ๐Ÿ‡ธ September 11 โ€” A Day to Remember

Today is Patriot Day and a National Day of Service and Remembranceโ€”a day to pause and remember the lives lost on September 11, 2001, the families whose lives were forever changed, and the first responders and countless others who stepped forward to help.

For our lung health community, there is another part of this story we understand especially well. The dust, smoke, and debris surrounding Ground Zero affected the health of first responders, recovery workers, survivors, and others for years afterward. Some are still living with those effects today.

But I also find myself thinking about the days that followed.

In the middle of unimaginable sadness, people showed up for one another. Neighbors checked on neighbors. Strangers helped strangers. People donated blood, brought food, volunteered, listened, hugged a little tighter, and seemed to pause long enough to remember just how much we need each other.

I wish it didn't take tragedy to remind us of that.

Maybe part of remembering September 11 is holding onto a little of what came afterwardโ€”the kindness, compassion, service, and willingness to look out for the person beside us.

And in a way, that's something we see right here in this community every day. Someone answers a question. Someone checks on a friend. Someone simply says, "I've been there too." Those may seem like small things, but sometimes they're anything but small to the person who needs them.

So today, we remember those we lost, those who ran toward danger to help, and those who continue to live with the physical and emotional effects of that day.

And maybe we can honor them in one more wayโ€”by being a little kinder, checking on somebody, and remembering that we're a whole lot stronger when we take care of each other. โค๐Ÿค๐Ÿ’™

3 days ago

Kattlyne

Kattlyne

Hello and happy Friday everyone!! This is day 3 of not smoking! As my lungs have begun to clear out, ive had some shortness of breath and clearing of mucous. Ive been using one puff of my albuterol inhaler in the morning, at noon and at bedtime. Last night i had severe cramps in both feet and ankles. Woke me up every hour. I did wear hard, flat sandals all day at work and i also sit at a desk job all day. I was reading that albuterol might also cause cramps. Has anyone had any experience with that? Also, the last time i was at my doctor's office about 2 months ago, he gave me a 2 week sample of trelegy to try. I havent done it yet as i dont like to try new meds if i dont have to. Anyone find trelegy helpful? I hope you all have a great weekend! Im so happy that fall is coming! 

3 days ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

The best way to honor the victims of 9/11 is to be the people we were on 9/12.

3 days ago

LFAOMGA

LFAOMGA

So many thoughts today remembering 9/11
After 25 years it still makes me cry
Images never to be forgotten 
So much suffering and grief
So many rushing in to help
God Bless America



4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„YOGURT &HONEY FRUIT CUPS๐Ÿฅ„4 1/2 cups cut up fruit, such as pears, apples, grapes, and bananas 3/4 cup vanilla yogurt1 tbsp. honey1/2 tsp. grated orange zest 1/4 tsp. almond extract Divide the fruit among 6 dessert dishes.Combine the yogurt,...

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my oldest orange boy Pumpkin Pie, aka Punkie! ๐Ÿงก We both wish everyone a pleasant, easy breathing day! ๐Ÿ˜Š

4 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Great update of COPD treatment video by our COPD Foundationโ€™s Dr David Mannino.
https://www.wbko.com/2026/09/10/new-copd-treatments-offer-targeted-relief-without-harsh-steroid-side-effects/

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.