COPD360social welcomes new member Bergs who joins 66,401 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community ManagerDo you care for a friend or family member with severe COPD and have experience with their nebulizers and handheld inhalers?

If yes, you may able to share your experience in a virtual focus group.

You may be paid for your time.

To learn more and see if you qualify, contact Sergio Martinez at 866-731-2673, ext. 210โ€ฏor email copdpprn@copdfoundation.org

2 days ago

TimD

TimDHi Everyone!

Interested in contributing to research in a quick but meaningful way? Take a short survey to share your journey to diagnosis and how your condition has affected you. Your input can help us to better understand the path to diagnosis and identify opportunities to improve it for others.

Please complete the survey here: https://copdfoundation.jotform.com/262805493917063

2 weeks ago

Bergs

Bergsasked the question: Is low 80โ€™s SAT a good to hospital thing?

Mum has declined in last 2-3 days - her SATs are low 80โ€™s. She lives with a doctor who doesnโ€™t seem to concerned but when I googled to try and understand it says itโ€™s a medical emergency. Wondering if to push for them to call palliative care or …

1 hour ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Hyperinflated lungs

I agree with Karen.
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

1 hour ago

Robear

Robear

Hello to you all. 65yo guy with advanced centrilobular emphysema, based on latest ct scan from this week. Had been getting more breatless for years, but a recent surgery under full anesthesia seems to have made me worse. At any rate, now trying to use 02 at night and have been careful to monitor pusleox etc., but last two weeks I have been waking up to pee and once that is done, I go into a full blown rock-chested shutdown. Cant get anything in or out, body starts to buzz/tingle, panic begins set in. I discovered that speaking some words seems to help kickstart a recovery, but it is always a close thing. Feel like passing out or stroking out before I get to rude breathing again. Why the sudden change and increase in these terrible episodes? I wonder if I am eating to much for dinner, but these events tend to happen several hours after I eat. 
This is a lot of info and random, but trying to come to grips with new downward events. Have a good Saturday all.

8 hours ago

  • NewestOldestClick to View All Comments5 comment(s)
  • JazzybeanRobearโ€‹ I also have emphysema and can relate to the nighttime experiences you describe. After some similar episodes a couple of years ago I was diagnosed with sleep apnea and given a c-pap machine. It's made a huge difference in my life. So if you have not gone down that road might be worth it to consult with a sleep specialist. Another thing I notice was your questioning of eating too much for dinner. Again same thing happened to me a couple of years ago. I eliminated all carbonated drinks and also no alcohol ever with dinner or any other time. While I was enjoying just a few sips of wine with dinner, (I Loved a good glass of wine) stopping it all together has made another huge difference. So two things you may look at is possible sleep apnea, eliminating all alcohol if you have not already done so and finally I try to watch how many carbs I eat for dinner. Dinner is tricky, I try not to overeat and that also seems to work. The thing with emphysema as you probably know is the gas/oxygen exchange. Anyway, these are some things I have tried that worked. As I said, I know about the middle of the night wake ups and it's scary. For me if and when it happens Pursed lip breathing helps, it also helps to cut down on the panic. I have another appointment with the sleep clinic in Dec. I am trying to convince them that I want to try a bi-pap but no luck so far. I have had two overnight sleep tests and as my oxygen levels don't go down below 90 on the test the doctor keeps telling me I am fine. 
    I hope you get some relief. Keep searching for answers that work for you. Doctors are not always helpful.3 hours ago
  • RobearThank you all, some sound ideas here. Karen, I dont use oxygen except at night, and that only recently. Oddly, that is when the weird episodes started, and i had been suspecting i was hyperventilating, but not sure how to tell.2 hours ago
  • Caroline West Virginia State CaptainIt sounds like you have a sleep issue, so a sleep study seems like a good move.1 hour ago
Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Moderate emphysema found on LDCT - will it likely progress?

Welcome to the group. Do read the Learn More information at the top of the page. I am 82 and doing well with COPD.
Karen Deitemeyer - Florida State CaptainDebbieB.-Connecticut State Captain also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

17 hours ago

Aliciak1977

Aliciak1977asked the question: Hyperinflated lungs

Has anyone got a diagnosis from an xray, which showed slightly large lungs and a flattened diaphragm?

20 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

There's an interesting new study in the Journal of the American Heart Association that shows a link between lung health and cardiovascular disease. The study found six proteins circulating the blood that linked inflammation in the small airways of the lungs to narrowing of the blood vessels in the heart.   "While these findings need independent confirmation, the study provides valuable new insight into the high incidence of heart disease in people with COPD, and will help scientists develop better ways to improve care for people living with COPD".

https://www.ahajournals.org/doi/10.1161/JAHA.125.046201?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed

22 hours ago

MazzyBee

MazzyBeeasked the question: Moderate emphysema found on LDCT - will it likely progress?

Hello, this is my first post here. My dad (74) gets a CT screening for lung cancer every year because he is a former smoker who quit 15 years ago. This year, the radiologist's report noted "Moderate upper lobe predominant pulmonary emphysema." We …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŽƒMARSHMALLOW POPCORN๐ŸŽƒ"A messy, but delightful Halloween treat!"8 cups popped popcorn 1/2 cup packed light brown sugar 1/2 cup butterOne 10-ounce package mini marshmallows Halloween sprinkles Candy eyeballsCover baking sheets with waxed paper....

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my sister's cat Cricket Smudge. It looks as though she wasn't pleased with her catnip banana toy. Maybe a catnip mouse would've been a better choice! ๐Ÿ˜
Have a fun day, friends! ๐Ÿ˜ƒ

1 day ago

Becky Bee

Becky Beeanswered the question Bad breathing and heavy chest while on Prednisone?

All of these posts have been very helpful to me. I had an URI beginning of September. I was prescribed 5 days of antibiotics and 40 mg of Prednisone. At that time I was fine, but mentioned to my Pulmonologist that I had never been on prednisone without …
SOB2026DaBoomerRoxy Swango and 6 others also answered the question SOB2026and 8 others also answered the question

1 day ago

brydy

brydyanswered the question Arnica

Theres some research that indicates citrus bioflavonoids strengthen capillaries & work to prevent steroid induced bruising. it wont heal existing ones rly so ointments etc for those but might be worth looking into them as prevention after cking with …
Tom.EJeanO53das23 also answered the question Tom.Eand 2 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โšก๏ธPOWER SNACK MIXโšก๏ธ1 cup multigrain Cheerios cereal3 tbsp. mini dark chocolate morsels 3/4 whole raw almonds 1/3 cup dried cherriesIn a medium bowl, mix together all the ingredients. Portion into 1/3 cup servings. Store in airtight...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
I know that I am grateful for all that I have in my life. Let's do our best to focus on all the good things! We are truly fortunate! ๐Ÿ˜Š ๐Ÿงก

2 days ago

Hippie Heather

Hippie Heather

I am new to this so I just wanted to say hello!

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Join us today for our COPD Support Group meeting, on zoom and live, 10-noon Hawaii Standard Time, 4-6pm Eastern Time. More info & registration link  at www.hawaiicopd.org. 

3 days ago

Tom.E

Tom.Easked the question: Arnica

Arnica has been around for awhile to help speed up healing of skin bruising that comes with steroid use. I've been using Dermend but recently switched to Arnica Gel made by Miricale Plus and sold on Amazon. I find it a bit better than Dermend especially …

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿš—โšก Great Scott! It's Visit My Corner of the World Wednesday AND Back to the Future Day!

Good morning, everyone!

Well, how about this for a Wednesday? We're taking a little trip through time!

Who remembers Marty McFly, Doc Brown, and that famous DeLorean from Back to the Future? Can you believe that movie came out in 1985? Just think about how much our world has changed since then!

And that includes lung health! We've come a long way in understanding and treating COPD, Alpha-1, bronchiectasis, and NTM. There's still plenty of road ahead, but research keeps moving forward, and so do we!

Now, here's where our Wednesday fun comes in!

If you could hop into that DeLorean, where would you go? Would you head back to a favorite place from years ago, revisit a wonderful memory, or take a peek at what the future might look like?

Share a picture from your corner of the world! It can be an old favorite, something beautiful outside your window today, or a place you'd love to visit someday. No time machine required!

That's what makes these Wednesdays so special. We get to travel a little through each other's pictures, stories, and memories, all without leaving home.

And as we look toward the future, I hope we keep moving forward together, learning, supporting one another, and never giving up on better tomorrows.

So, fire up that flux capacitor, grab your camera, and let's see where Wednesday takes us!

Happy Wednesday, everyone! Where are we going today? ๐Ÿ’™๐Ÿ“ธ

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy wonderful Wednesday, friends!
You have a chalk board in front of you. What message would you write on it for all of us to read? Of course you'll be writing with your orange chalk! 
My message to you would be Enjoy your day! ๐Ÿงก

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฅฃLENTIL AND POTATO SOUP๐Ÿฅฃ2 tsp. olive oil 1 medium onion, chopped 2 carrots, chopped 2 celery stalks with leaves, chopped3 garlic cloves, minced 1 tsp. cumin1 tsp. ground coriander 1 tsp. oregano 3/4 tsp. salt 1/2 tsp. pepper3 tbsp. tomato...

3 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Follow-up - Drugs not carried by Medicare

Glad you have found good solutions! I was using an inhaler made by Teva, some years back, AirDuo. It worked well for me for some time.
das23Caroline West Virginia State Captain also answered the question das23and 1 other also answered the question

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โšช๏ธโšช๏ธEASY MASHED CAULIFLOWERโšช๏ธโšช๏ธ 1 head cauliflower (about 2 pounds), cut into 1/2-inch pieces1 cup chicken broth 1 tsp. salt 3 tbsp. unsalted butter, cut into chunks 1 tsp. chopped fresh thyme Freshly ground black pepper to taste In a Dutch oven,...

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, friends! 
It's always nice to see you here on 360Social! Thanks for making our day so wonderful! ๐Ÿ˜Š

4 days ago

das23

das23commented onHow Severe Is My COPD?: Test Results vs. Symptoms

Thanks Kalli. Great information...

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.