COPD360social welcomes new member Kayelee who joins 65,312 current members of our community. Weโ€™re glad you're here!

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onThe Breath Gap: How COPD Affects Women Differently

Thank you for telling your stories, ladies!...

4 hours ago

Community Announcements

Community Announcementsadded a new article The Breath Gap: How COPD Affects Women Differently

This article was written by Arnelle Konde, MPH, CHES.

For many years, COPD was seen as a "man's disease", but that may not be the truth.1 Every day, more women are getting diagnosed with COPD, and the numbers keep going up.2 New studies are showing that more women than men have COPD.2

During National Women's Health Week, we are sharing how women may have a different experience with COPD than men. Women may have different symptoms and provider interactions. They face unique challenges, and their voices matter. We are also highlighting three COPD Foundation Captains, who are working to bring change and to raise awareness.

4 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Well, today was pretty interesting, for sure. I wore my POC (Inogen Rove6) as usual. Two different women commented on it and how much smaller and lighter than tanks. I agreed that they have some advantages but after wearing awhile just seem to get heavier. 


The other woman said her mom was just put on O2 and wishes her mom would use it & be out & about but sadly doesnโ€™t think her mom will. 


Both were curious about my POC and I happily shared. It allowed me to  keep up with H and my friends, as we are travelingโ€”NYC, Finland, Estonia and now Stockholm. Next Denmark and Norway and Tokyo. 

7 hours ago

Danthman

Danthman

Hello everyone new to the group. Iโ€™ve had copd for about 3 yrs now. My heart rate concerns me itโ€™s always. At 100 or higher sometimes in the 120 range depending on activity. How concerned should I be?

10 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerGood morning and Happy Friday, 360social! โ˜€๐ŸŽถ

Wishing everyone a day filled with easier breathing, lighter moments, and maybe even a little dancing in your chair today. If youโ€™re traveling this weekend, safe travels and smooth roads ahead. And if youโ€™re staying close to home, we hope you can find a little time to relax, recharge, and enjoy the simple things that make you smile.

I came across this fun video of classic movie stars dancing to Uptown Funk, and it is an absolute toe-tapper. Seeing these legendary moments from old films all synced together is just pure joy โ€” and honestly, itโ€™s hard not to grin while watching it.

So turn the volume up a little, tap those toes, and letโ€™s head into the weekend with some good energy together. ๐Ÿ’ƒ๐Ÿ•บ๐ŸŽฅ

https://www.youtube.com/watch?v=M1F0lBnsnkE&list=RDM1F0lBnsnkE&start_radio=1

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸCARAMELIZED PINEAPPLE๐ŸOne 20-ounce can pineapple chunks in natural juice1/2 cup packed light brown sugar Drain the pineapple. Save the juice for another use. Makes a nice juice drink! Place the pineapple chunks in a large skillet. Sprinkle...

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from an interesting, curious little friend! Say hello to this cute baby Bearded Dragon! I like to visit with him when I go to the pet store.
Wishing everyone an awesome day! ๐Ÿ˜€

18 hours ago

Bob puff dragon

Bob puff dragonJust thought l would update on a subject l mentioned a while ago in the hope it may offer some comfort to anyone experiencing a similar diagnosis and treatment and hopefully dispell a few worries.l know it is not copd related but a gift from smoking ,the pastime that brings many of us to 360.


As a brief refresh l had pneumonia back in October of last year,ended up in ICU, placed under sedation and ventilated for a time.During this nightmare it was found that a prexisting nodule through xray had grown in size.In April  after being able to move around again, l had a CT scan which had the growth at now double the size from a few months previous.A pet scan end of April confirmed cancer.
Fast forward to this month,meeting with oncologist,pre mapping CT scan and finally todays radiation session it is over for now. 
With the many medical advances going on these days a cancer diagnosis is really not the news it was years ago.The treatment and everything related was totally painless and because of all the great professionals at the clinic it was really a piece of cake.There will be follow up tests in the coming months to see how effective it was but have all the confidence in my team and a great outcome.


My take aways and advice is,make sure to have regular scheduled scans or xrays,early treatment greatly improves outcome.
Secondly don't fret over the treatment as it is really nothing to stress over.
Again don't mean to be a Debbie downer(no inference to you Debbie ๐Ÿ˜Ž,but l think it is important to mention staying on top of things as copd has many different spin off surprises in store for us all.

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHere we are. Now we're all set to start our day tomorrow in a good way! A good start means the rest of the day is bound to be great! ๐ŸŒž

1 day ago

6ft Pixie

6ft Pixie

It has been a while since I posted anything. I have been busy with appointments, was going to Physical Therapy twice a week for my lower back, and continued strength training for my left hip, which I broke last September. I asked my psychiatrist to change my medication to something else, because the current one was causing me to gain a lot of weight, which I bet is causing me to tire out so quickly. My question is: Has anybody done well with exercising, then had to stop due to injury, and can't seem to get back to aerobic exercising?

1 day ago

  • NewestOldest
  • Caroline West Virginia State CaptainThis is an issue that I have faced many times.  One thing that seems to help is to set an exact time to exercise.14 hours ago
  • Sean P. SmithWow! right up my alley!!! I was diagnosed back in late spring of 2018. They figured it out while I was going through Cardiac Rehab because my blood ox stayed in the mid to high 80s. Since then I went religiously to the gym five days a week. Only time I didn't is when I had to have my left ankle tendons reattach. But I did light weights at home. Since then I returned to the gym and hit it hard until last October when the needed to rebuild my right shoulder. Before I even got out of the recovery room they sent me to the ICU because I developed pneumonia - in only freakin' hours! I also have had a really hard time getting back into working out let alone going to the gym. First, there is the "Oh my God my body is going to XXXX!" Then there is the "Why am I even bothering - it's not going to help!" attitude. I have been there and done that. But I am slowly getting back. It is not easy but it makes me feel good knowing I am trying. I can tell you the idea of one step at a time really is true. I fought my body and my mind and now I am starting to feel the pride in working out coming back. But more importantly, my mental health is also recovering. You know what really makes me feel good is knowing I CAN do this! Pixie, take your time but just keep trying. Do you have any friends that may be able to work out with you or even just walking around the block? Also, sit down with your physical therapist and tell them what you're going through. Maybe they can give you some insights on how to get over this hump. Let me know if I can help. 1 hour ago
6ft Pixie

6ft Pixieanswered the question vented propane heat source

Have you thought of a generator? They come in different sizes. We live in NC, where we have lost power for a week or more. This has occurred in both winter and summer, so we installed a whole-house generator. It's pricey at first, but we will never be …
GAnneKaren Deitemeyer - Florida State Captain also answered the question GAnneand 1 other also answered the question

1 day ago

6ft Pixie

6ft Pixie

Hi, Sean. Welcome to the best place to learn more about COPD, ask questions, and get answers. Hope you are having a great day!

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I want to give a shout out to our Caroline West Virginia State Captainโ€‹ for her wonderful article in COPD News Today. Thank you for writing it - it's SO true!!

https://copdnewstoday.com/columns/how-cornfield-taught-me-claim-space-living-copd/?mc_euid=f4e1afc955&utm_source=COPD&utm_campaign=c855e81ab4-Email_ENL_US_COPD&utm_medium=email&utm_term=0_23d08524e9-c855e81ab4-74415186

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Brinsupri

This is only approved for use in Bronchiectasis ( which some patients with COPD have). It has worked well enough in clinical trials to gain approval. As is the case with every medication, some patients will have a better response than others.
Tom.E also answered the question Tom.E also answered the question

1 day ago

Old Joe

Old Joeasked the question: Brinsupri

I see that a new medication has been approved that helps control the over-production of mucus in COPD patients -Brinsupri. Does anyone have experience of information they can share?

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ”๐Ÿ’ƒ COPD360social is celebrating Dance Like a Chicken Day! ๐Ÿ’ƒ๐Ÿ”

Today feels like the perfect excuse to shake off a little stress, flap those elbows around, and have a laugh together. And honestlyโ€ฆ with oxygen tubing, nebulizer cords, walkers, pets underfoot, and surprise coughing fits, some days already feel like an accidental chicken dance competition anyway. ๐Ÿ˜„

Whether youโ€™re doing the full chicken dance, a toe tap in your chair, a shoulder shimmy, or just laughing at the idea of it, weโ€™d love to hear from you today!

๐Ÿฅ What song would get you up and moving?
๐Ÿฅ Have you ever done the Chicken Dance at a wedding or party?
๐Ÿฅ Bonus points if your pets join in too!

Sometimes the best medicine for the day is simply finding a reason to smile, laugh, and be a little goofy together. So go aheadโ€ฆ fluff those feathers and show us your best moves. ๐Ÿ”๐ŸŽถ๐Ÿ’จ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”˜๐Ÿ”˜PORK WRAPS๐Ÿ”˜๐Ÿ”˜1 tbsp. vegetable oil 16 ounces thin boneless pork chops, sliced into thin strips2 large red bell peppers, sliced into thin strips1 large white onion, thinly sliced3/4 cup BBQ sauce1 large tomato, sliced, then...

1 day ago

Pipo

Pipo

Not so good

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThought for today, and every day! ๐ŸŒŸ 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends!
Enjoy every minute of your day! All the neat little things add up to one big thing. At the end of the day, you'll have a collection of fond memories! Dogs and cats, lovely flowers, delicious food, refreshing water to stay hydrated, beaming smiles everywhere you look, and some uplifting songs!
Remember, there are always plenty of things to look forward to in each day!
Enjoy your day to the fullest! ๐Ÿ˜Š

1 day ago

Louise18

Louise18

I am newly diagnosed and feeling very scared. 

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerโ˜€ Visit My Corner of the World Wednesday โ€” Getting Ready for Summer Edition! ๐ŸŒป

Summer is starting to peek around the corner, and weโ€™d love to see what that looks like in your part of the world!

Are flowers blooming? Do you have a favorite fishing spot, porch view, walking trail, or backyard escape? Maybe youโ€™re planting tomatoes, peppers, herbsโ€ฆ or maybe your biggest summer plan is simply staying cool with a fan and a cold drink nearby. ๐Ÿ˜„

Share a photo of how youโ€™re getting ready for summer where you are. Big adventures and quiet moments are both welcome here. ๐Ÿ’™

Bonus points for garden photos, blooming flowers, curious pets helping in the yard, or veggies that may or may not survive the summer heat. ๐ŸŒฑ๐Ÿพโ˜€

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )commented onCOPD Foundation Position on Nebulized Hydrogen Peroxide Therapy

Note that the referenced 2011 "study" was theoretical and contained no data. During the COVID epidemic there were numerous "cures" and "treatments" that were touted- this being one of them (Bleach also kills viruses but inhaling or injecting bleach...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ถ๏ธALL-PURPOSE SALT-FREE SEASONING๐Ÿ”ถ๏ธAre you looking for ways to cut back on your sodium intake? Here's one way to get started! 1 tbsp. garlic powder 1 1/2 tsp. dried basil1 1/2 tsp. parsley flakes1 1/4 tsp. dried savory1/4 tsp. dried thyme 1 tsp....

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday! Does it seem as though time is ticking away? That's exactly right. It's because time spent here on 360Social is well spent. We could spend such a long time here, learning about COPD, and reading the posts! 
We truly appreciate all the posts and pictures our members contribute to our website. Thanks for being a part of this wonderful community! ๐Ÿงก๐Ÿ’™

2 days ago

das23

das23commented onCOPD Foundation Position on Nebulized Hydrogen Peroxide Therapy

It's reported to be dangerous by legitimate medical sources. The information on this site is accurate. Read the info in the LEARN MORE tab above...

3 days ago

Lucy k

Lucy k

Hello I'm new to the community and feel so good about having joined.  Lucy K

3 days ago

Workingonit

Workingonitcommented onCOPD Foundation Position on Nebulized Hydrogen Peroxide Therapy

Is there no merit in the study below ? If not, why not ? Thanks. https://pmc.ncbi.nlm.nih.gov/articles/PMC3108576/...

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.