COPD360social welcomes new member yeaheaitsme who joins 64,751 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒ Itโ€™s that time again โ€” VMCotWW! ๐ŸŒ

This will be our last one for February, and wowโ€ฆ this month has brought some wild weather on top of already busy days. โ„๐ŸŒฌ๏ธ

Today, letโ€™s keep it light and fun. Share something that makes you happy โ€” even if itโ€™s a snow update, a cozy moment, or a small bright spot in your day.

Post a photo, tell us whatโ€™s going on in your corner of the world, and letโ€™s have a lot of fun together today! ๐Ÿ˜Š๐Ÿ’™

1 hour ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerWe would love to get your feedback on a topic that we have for the week, please join in and offer your answers!


https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Are-you-part-of-Medicares-Extra-Help-or-Low-Income-Subsidy-LIS-program.aspx

Are you part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program?

If you are part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?

1 day ago

yeaheaitsme

yeaheaitsme

can anyone help me out? i was diagnosed with COPD in my left lung at 18 months, every spirometer test iโ€™ve done has confirmed it, last year during summer, i had another spirometer test, the nurse was vile, she locked me in the room with her, forced my to take a test without letting me catch my breath as i was gasping for air and wheezing, i asked if i could just sit down for atleast half an hour as i was on the verge of fainting it felt like, i was screamed at, so i took it, it came back the same as any other time but this time? she claimed it was fine, that i actually never had COPD in the first place, (i have the evidence and the me being clinically dead nearly having my ribs cracked open due to it ect even leading upto recent years all the times ive been in hospital) i just said okay, as you do, i was then told id stolen 31 blue asthma pumps from the doctors! i canโ€™t take the blue one as it stops my breathing, causing me to gasp for air. she then claimed i was highly abusive, that i had apparently smashed the office up, (i was locked in sat down, i left immediately as soon as she unlocked the door and cried running out) also claimed i wasnโ€™t struggling to breathe and was okay, i have a witness to all of this, i tried to report her for false accusations and locking me inside the room but was sent a disgusting letter by the main manager, i would like to add the SAME nurse had done this to another member of my community who suffered from copd too. what do i do? can anyone give me advice if its okay? 

5 minutes ago

Community Announcements

Community Announcementsadded a new article Looking Beyond the Lungs: Why Screening for Comorbidities Matters

This post was written by Arnelle Konde, MPH, CHES.

It is no secret that COPD rarely occurs alone. People living with COPD often face other comorbidities such as heart disease or diabetes, which can affect their symptoms and increase mortality risk.1-2 Although comorbid conditions are common, many go undiagnosed or are identified too late.1 This can lead to treatment challenges and poor coordination between providers. To improve outcomes, health care providers should incorporate routine screening for these conditions into standard COPD care.

23 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โžก๏ธWINTER SLAW๐ŸŸข๐ŸŸ ๐Ÿ”ด๐ŸŸฃ1 medium head green cabbage, thinly sliced4 cups curly kale, thinly sliced 2 pears, cut into matchsticks1 small red onion, thinly sliced 3/4 cup shredded carrots1/2 cup pomegranate arils1/3 cup pepitas 1/3 cup chopped...

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Wonderful Wednesday! You CAN do alot! Celebrate each accomplishment! You deserve a BIG pat on the back! Keep those positive vibes flowing, and enjoy this pleasant day! ๐Ÿ˜Š

6 hours ago

Kmcnamara68

Kmcnamara68answered the question Pulmonologist advice?

Maybe this is from bronchiolitis? I don't know I didn't have extensive smoking history but did work around chemicals and smoked an ecig some for three years. It's just odd that I had been real good for about 5 years to this in 5 months without any …

14 hours ago

Kmcnamara68

Kmcnamara68asked the question: Pulmonologist advice?

I had told my pulmonologist that at times my pulse ox is reading 90 or one time 88 at rest. I've given up exercise. I asked him about this and he said not to worry unless it drops into the 70s and I'm having a hard time? That doesn't sound like sound …

15 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

Yesterday the FDA announced it is committed to advancing safe and effective therapies for rare diseases and ensuring no family is overlooked because their condition is uncommon.          https://www.fda.gov/news-events/press-announcements/fda-launches-framework-accelerating-development-individualized-therapies-ultra-rare-diseases

16 hours ago

Jeffrey Shane Mehling

Jeffrey Shane Mehling

Depressed, deconditioned, discombobulated 

16 hours ago

Shaky123

Shaky123

Hello I need some advice please. I just went for an asthma review following a ct scan and was told i have a little emphysema on my lungs.  I have had bronchial asthma since birth. I was a social smoker for 2 years, over 25 years ago. Iโ€™m very scared and not sure what to do. Any advice and suggestions please from someone in the same boat. Tia 

17 hours ago

ktm390

ktm390

Hey shakey 123 welcome! Lots of good info support here hope you're doing ok today

17 hours ago

Jonnie Korinko (COPDF Director of Education)

Jonnie Korinko (COPDF Director of Education)commented onHow to Care for Your Caregiver

Thank you, Kalli, for your support of our community! ...

19 hours ago

Tammy55

Tammy55

Dr said - for 7 years, COPD,  chronic bronchitis and severe Tracheitis.  Well the  tracheitis is extremely painful.  Burns like you have been out in the cold weather - except it is every breath.  Its bad folks.  FINALLY got some help with the pain last month.  it had been going on for 7 years, and worsened every year.  After 5 pulmonologist who did not have a clue - new one just diagnosis in 2 minuets from symptoms.   So now i can breathe and not hurt.
So hang on folks.  Some days are mountain top, and some are in the desert.
Dont give up!!  The sun comes up EVERY day - may be your day!!

21 hours ago

Tammy55

Tammy55answered the question Check-in: Managing airway mucus: Commonly asked questions

2 kleenex boxes near where i set often. as with most folks, we all have a favorite place we set. I have learned to have one kleenex box full to use to put mucus in each tissue as I cough, and then use an old empty kleenex box to use as a "garbage". It is …
Jenga1Dr H das23and 1 other also answered the question Jenga1and 3 others also answered the question

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„PEANUT BUTTER OATMEAL๐Ÿฅ„ 1 3/4 cup water1/8 tsp. salt1 cup old fashioned oats2 tbsp. peanut butter 2 tbsp. honey2 tsp. ground flaxseed1 tsp. cinnamonChopped apple of your choice for garnishIn a small saucepan, bring the water and salt to a...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday! I choose to have a wonderful day! I choose to have a positive outlook! I hope you'll do the same! Let's make today a Terrific Tuesday! ๐Ÿคฉ

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

CUTV is going to interview me tomorrow at 11 am.  Let me know what you would like me to make sure I tell them about COPD.

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I like DebbieB.-Connecticut State Captainโ€‹ idea of having COPD business cards made to help educate the public about the COPD Foundation and their mission.


Is this something that we could sponsor as a group?  Coach Brandon, what do you think?

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Analysis to find a safe inhaler - Artificial Intelligence

I also take Singular nightly and as Stefdawn has mentioned, missing a dose will tell you that it is working for you.
Stefidawnnetmouse also answered the question Stefidawnand 1 other also answered the question

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question After 6 months, pneumonia flares up again

I have had several episodes of pneumonia, but have not had one since I pay more attention to my coughing and mucus production. As soon as I experience a change, I begin taking Mucinex and keep a close watch for worsening conditions. If they worsen I go …
WildebeestGAnneDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Wildebeestand 2 others also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerasked the question: Are you part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program?

If you are part of Medicareโ€™s Extra Help or Low-Income Subsidy (LIS) program, how does that impact what you pay for your prescriptions?

1 day ago

BrandyLynn

BrandyLynn

I just ordered "The COPD Solution", by Dawn Fielding. Does anyone have any book recommendations on COPD that have helped them? Thanks, everyone! And Happy Monday! 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ WARM SWEET POTATO SALAD๐Ÿ 3 large sweet potatoes, peeled and cubed 1 small red onion, thinly sliced into half moons2 tbsp. plus 1/4 cup olive oil, divided Salt and freshly ground black pepper to taste 2 tbsp. cider vinegar 1 tbsp. Dijon mustard...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Good morning, folks!
Winter Storm Hernando= Bomb Cyclone = Tons Of Snow = Strong Winds= Don't worry, we'll get through this! ๐Ÿ˜ƒ
I ventured outdoors earlier this morning to feed the birds and squirrels. 
Please do not go out there unless you need to. Prepare before you go! 
We've already got over 12 inches of snow, with more on the way. 

2 days ago

Stefidawn

Stefidawn

My nose wonโ€™t stop dropping every where and I need to order more cannulas. Iโ€™m up too late, 1:25 am because my cat and dog decided to not get along yet again. But Iโ€™m happy to be alive and breathing well today. Now to bed I go! 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday, everyone! Staying positive is what we should strive for. We CAN get through anything, and we WILL do just fine! We use our common sense and think through before we do! 
Have a positively awesome day, friends! ๐Ÿคฉ

2 days ago

GAnne

GAnneasked the question: After 6 months, pneumonia flares up again

Was admitted yesterday for pneumonia, I guess it comes from anywhere, I hope it wasnโ€™t a side effect of DUPIXENT.

2 days ago

Dinna25

Dinna25answered the question Not sure if should post this on here

Hi ya Wildebeest yeah its been a while, i look in but cannot help with any input to questions so i look again another day. Iv been good my copd remains stable on last check, and lungs sounded clear. Any fear stress i had have now gone, i do the …
WildebeestDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Caroline West Virginia State Captain also answered the question Wildebeestand 2 others also answered the question

2 days ago

das23

das23answered the question Describing what happens that causes inhaler side-effects

Thanks for posting all this netmouse. Interesting information
netmouseTom.ECoach Brandon - Community Manager also answered the question netmouseand 2 others also answered the question

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.