COPD360social welcomes new member henry tom who joins 64,520 current members of our community. Weโ€™re glad you're here!

baileymccrary

baileymccraryHi everyone! According to the COPD Action Alliance's white paper "COPD in America," nearly one-third of surveyed COPD patients said they faced barriers to getting needed medication, treatments, or medical supplies. The COPD Foundation Captain Program advocates for policies to improve treatment access for the lung health community - you can learn more about it here: https://www.copdfoundation.org/Take-Action/Get-Involved/State-Captains.aspx 

What has been the biggest barrier to COPD care for you, your loved one, or your patients?

Meet Your COPD Foundation Advocacy Captains

COPD Foundation Captains are volunteers with COPD, caregivers, friends and family members or healthcare providers who use their contacts and talents and partner with the COPD Foundation to serve as state and community leaders.

3 days ago

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  • UK LynnHi. It makes me grateful that we get our medications/prescriptions free here in the UK (after the age of 60) as I need monthly inhalers.   I am glad that your financial application is helping you out and may it continue to do so. Good luck with that for the future.1 day ago
  • HIcopd - Hawaii State CaptainThe link you posted doesnโ€™t work, Bailey.  My biggest barrier was finding a good medical team with good lung docs.  I have seen 13 of them to find ones that work well together and can stay with me as I (and they) grow older.  Two of them retired on me, but I am fortunate I still have two great ones that continue to keep me healthy, one in my home state and one at UCSF.  Several of my lung docs were very perplexed by me and had dangerous or NO ideas about how to treat me.  Many of them do not keep up with the evolving treatments available for COPD, sadly.


    My drug coverage has been exceptional and allowed me to get the medications I need, including biologics using the manufacturerโ€™s coupon so I have no copay.  Without the coupon (or if disqualified because of govt program), the biologics are quite unaffordable.  I know many patients who have to look outside the US to be able to afford the treatments their providers prescribe, buying from AllDayChemist in India or elsewhere.  Itโ€™s an ongoing issue and definitely affects patient care.5 hours ago
  • Karen Deitemeyer - Florida State CaptainHIcopd - Hawaii State Captainโ€‹If you click on the "Meet Your COPD Foundation Advocacy Captain"  link by the image, it does work.4 hours ago
Coach Brandon - Community Manager

Coach Brandon - Community ManagerRemembering Bill Clark

Itโ€™s been just over a year since Bill Clarkโ€™s passing, and his presence is still felt in so many ways across this community.

Bill truly believed in people. He believed in showing up, listening, sharing what we know, and doing things with heart. That way of being didnโ€™t leave when he did. You can still see it in the conversations here, in the support people offer one another, and in the care that continues to shape this space.

Being here and carrying on the work the way Bill wanted is something I think about often. Itโ€™s an honor to serve this community in a role he believed in and trusted me with. Every day, I try to lead with the same kindness, thoughtfulness, and steady presence that Bill brought with him.

We remember Bill not just for what he did, but for how he made people feel -- welcomed, supported, and never alone. That spirit continues to guide what we do here.

Thank you, Bill. Iโ€™m grateful to be here, carrying this forward, and to help keep your spirit alive in this community. ๐Ÿ’›

4 days ago

henry tom

henry tomanswered the question Nosebleeds using oxygen

HIRE A LEGIT RECOVERY EXPERT CONTACT FUNDS RECLAIMER COMPANY weโ€™re dedicated to helping individuals and organizations get stolen cryptocurrencies and digital assets. We strive to create a secure and trustworthy environment where victims can reclaim …
Kathy1221AddaMaryAnonymousand 1 other also answered the question Kathy1221and 3 others also answered the question

25 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onCipla USA team members take part in 5th annual blow art contest to celebrate COPD Awareness Month

The works of art are all beautiful! My favorite is the elephant! ๐Ÿ˜ Thank you, Cipla. And, thank you for providing safe, trustworthy nebulized medications!!! I can always count on them! ๐ŸŒŸ ...

2 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onCipla USA team members take part in 5th annual blow art contest to celebrate COPD Awareness Month

Thank you Cipla for supporting the COPD Foundation and Lung Health. Your Blow Art work is amazing!! I recently researched where my generic medications are manufactured, and about 90% of them are made by Cipla - even those which are not for my COPD....

4 hours ago

Community Announcements

Community Announcementsadded a new article Cipla USA team members take part in 5th annual blow art contest to celebrate COPD Awareness Month

This article was written by Crystal Rothhaar, BS.

Each year, the COPD Foundation observes November as Chronic Obstructive Pulmonary Disease (COPD) Awareness Month, a time dedicated to increasing understanding of chronic obstructive pulmonary disease, encouraging early diagnosis, and supporting the millions of people and families affected by this chronic lung condition. COPD alone takes more than 150,000 lives each year in the United States and remains the fourth leading cause of death worldwide. Awareness, education, and community engagement are essential to changing this reality.

One of the ways we bring awareness to life is through Lace Up for Lungs, a nationwide movement powered by the COPD Foundation and the Bronchiectasis and NTM Association. Lace Up for Lungs encourages people of all ages and abilities to get active in support of better lung health. Whether it's taking a walk, joining a fitness challenge, or setting a movement goal, every step raises awareness for chronic lung diseases.

With Cipla's continued support, the Lace Up for Lungs campaign is reaching more communities and inspiring greater participation, helping build momentum in the fight against chronic lung disease. This year, Cipla USA once again demonstrated its commitment to lung health by taking part in awareness...

5 hours ago

Community Announcements

Community Announcementsadded a new article Prince Osei Poku

Welcome our newest COPD Foundation Captain!

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŸคโšช๏ธROASTED CHICKPEA SWEET TREAT๐ŸŸคโšช๏ธOne 15-ounce can chickpeas, rinsed and drained 1/2 tbsp. vegetable oil 1/2 tsp. cinnamon 1/2 tsp. vanilla extract 2 tbsp. pure maple syrup Preheat the oven to 425 degrees.Line a baking sheet with parchment paper....

10 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my youngest boy, William Bruce! ๐Ÿ–ค We hope everyone has a very happy, productive, easy breathing day! ๐Ÿ˜Š

14 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question How do you stay healthy and active while living with COPD?

I have an exercise plan on my phone tailored to my fitness level. This keeps me honest, because without something that I have to respond to it is easy to skip the exercise. I used to have a set time to exercise which also helps.
Shar101JazzybeanDinna25and 3 others also answered the question Shar101and 5 others also answered the question

17 hours ago

Lulu from Chi

Lulu from Chi

I'm okay, just signed up. 

18 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI just read a fascinating article about naked mole-rats who prefer to live in VERY low oxygen. Researchers think it might help them to understand what happens to humans when we are deprived of oxygen.

https://www.smithsonianmag.com/science-nature/naked-mole-rats-prefer-low-oxygen-air-that-would-kill-most-mammals-adding-to-their-list-of-death-defying-superpowers-180987997/?utm_source=join1440&utm_medium=email&utm_placement=newsletter&user_id=66c4caf15d78644b3ad1a50f

Naked Mole-Rats Prefer Low-Oxygen Air That Would Kill Most Mammals, Adding to Their List of Death-Defying Superpowers

These underground rodents are the first mammals found to actively choose air with lower-than-normal oxygen levels. Their remarkable ability to survive these conditions could offer a key model for researchers studying new treatments for stroke or lung diseases in humans

1 day ago

Happy Hair( Joy)

Happy Hair( Joy)

Shout out again to Debbie B...I've not been on here for a long time. Got diagnosed with lung cancer after my "Saved by the Scan" this past summer. Went through 15 SBRT radiation treatments....will find out in February if its working. I'm extremely lucky it was only in one spotbin left upper lobe and not a fast growing cancer.
Very important to get your yearly low-dose CT scan...it can save your life!!!

1 day ago

Happy Hair( Joy)

Happy Hair( Joy)

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

That's awesome, Karen! Please let us know how it turns out!...

1 day ago

lizjb

lizjb

I want to know why docs ptlresctibe combivent or duo neb to patients that are on a corteroid steriod like trelegy, brestri, etc when the web says absolutely never use these together.   itโ€™s too much of the MA (steriod is LAMA and duo is SAMA.   too much of the same meds).    why oh why do they do this then.  even my pharmacist ssud was not good.  

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ’ OATMEAL RAISIN SNACK BARS๐Ÿ’ 2 cups rolled oats 1 tsp. cinnamon 2 tsp. baking powder 1/4 cup ground flax1/2 tsp. salt1 cup unsweetened almond milk 1 tsp. vanilla extract 2 large eggs1/3 cup pure maple syrup 1/2 cup raisins1/4 cup sliced...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends!
Tons of positive vibes are flowing in all directions, so be ready to catch those vibes! ๐Ÿ˜ƒ๐Ÿคฉ
Keep on smiling, my friends! ๐Ÿ˜€

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainDangerous product alertโ€”OlyLife

Be awareโ€”this product is being marketed & sold socially (like at gyms & elsewhere) and can be very dangerous. My podiatrist relative has had several patients come in with severe burns, requiring surgery and potential amputation. The product is NOT FDA approved. 

https://olylife.com/Main/En/product.php?id=13&price=1500.00&code=OLY-HCA002A&name=Olylife%20THZ%20Tera-P90+

Olylife

Olylife

1 day ago

Dinna25

Dinna25answered the question STAGE 3-If I quit smoking now, what are my chances of FEV increasing a bit?

Hi I quit smoking as soon as I was diagnosed I walked outta Drs and threw away anything that resembled smoking, and have never looked back, as for the FEV sorry im just a copd patient and cannot answer that. But that was nearly 8 year ago the …
David Mannino, MD (Chief Medical Officer, COPD Foundation )das23Jazzybeanand 1 other also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 3 others also answered the question

2 days ago

Sid

Sid

i've been able to  stop taking  insulin  after 15 years  since i started taking up walking  most days in the botanical gardens coffs harbour and then the swimming pool  i'm feeling  mucn much better 

2 days ago

Oral walker

Oral walker

Hello everyone,happy new year and i hope everyone is ok as ok gets.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Aw... Thank you, Karen!!! This is very simple to prepare! Nice, moist chicken! Gee! Great company accompanied by a great meal! This is the stuff dreams are made of! ๐Ÿฅฐ...

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒ Itโ€™s Visit My Corner of the World Wednesday! ๐ŸŒ

Whether your corner of the world is a favorite chair by the window, a backyard view, a park bench, a porch, or a photo from a past adventureโ€”this is your moment to share it.

Show us a view that brings you a smile, a little calm, or a happy memory. Big or small, near or far, every corner tells a story and gives us a chance to see the world through your eyes.


Drop a photo or tell us about your cornerโ€”we canโ€™t wait to visit with you ๐Ÿ’™๐Ÿงก

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

This sounds like the easiest and most delicious way to make chicken and gravy in the crock pot that I've ever seen!! I'm making a grocery list this afternoon and will definitely put these ingredients on it and will have this for dinner tomorrow...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธCROCK POT CHICKEN AND GRAVYโ—€๏ธ1 pound boneless, skinless chicken breasts Garlic powder, salt, and pepper to taste 2 packets chicken gravy mixOne 10.5-ounce can condensed cream of chicken soup2 cups water1/2 cup sour creamSliced scallions for...

2 days ago

Prince Osei

Prince Osei

Yeah ,am here, Thank you all for having me here.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHey! It's wonderful Wednesday!
Stick with us, friends! We've got friendly, helpful people here on 360Social! We've got reliable educational material here. Simply click on the LEARN MORE tab at the top of the page!
Remember to mention us to your friends, family, and neighbors!
Have an incredibly awesome day, everyone! ๐Ÿคฉ

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood afternoon, friends! ๐Ÿ˜€
Something's definitely cooking in my kitchen today! A big pot of zucchini in homemade tomato sauce! 
Pull up a seat, and get ready to eat! ๐Ÿ˜„

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.