COPD360social welcomes new member Jillibean M who joins 66,287 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒป Happy National Do Something Nice Day!

What a perfect way to start the first Monday of a new monthโ€”and a new week.

I try to believe that doing something nice doesnโ€™t need its own special day. But maybe today is a good reminder to go just a little bit further.

Because sometimes, the little things arenโ€™t little at all.

Thatโ€™s especially true when COPD is part of life.

Maybe thereโ€™s a new member here on 360social who is scared, overwhelmed, and trying to make sense of a new diagnosis. A simple โ€œWelcome, weโ€™re glad you found usโ€ can mean more than we realize.

Maybe a longtime friend here asks a question. Share what helped you. Check back later and ask how theyโ€™re doing.

Maybe itโ€™s a caregiver who has been taking care of everyone else and could use someone asking, โ€œHow are YOU doing?โ€

Or maybe today has absolutely nothing to do with COPD. Let someone merge in traffic. Bring in your neighborโ€™s garbage cans before the rain. Give someone an extra tip. Make somebody laugh. Call a friend. Sit beside someone who could use the company.

Kindness doesnโ€™t have to be big to matter.

And I want to turn this around for a second, too.

Thank you. ๐Ÿ’›

Thank you for all the little things you do here on 360socialโ€”the welcoming comments, shared experiences, answers to questions, caregiver support, check-ins, and simple reminders that nobody has to figure all of this out alone.

You do nice things for one another every single day, and those things make my days better, too.

So, as we start a new week and a new month, letโ€™s pass a little of that goodness along.

Whatโ€™s one small thing you can do today to make somebodyโ€™s day a little better? ๐ŸŒป

12 hours ago

Mark Luttmann, COPDF Research

Mark Luttmann, COPDF ResearchCARDINAL COPD Study

Cold season is unavoidable. But if youโ€™re living with COPD, you donโ€™t have to just wait and hope for the best. The CARDINAL study is researching a potential treatment to help reduce the effects of rhinovirus (the common cold) on people with COPD.

See if you or a loved one may qualify: https://copdcardinalstudy.com/join

Join the CARDINAL Study to Advance the Future of COPD Care

Discover if a clinical trial aiming to reduce the impact of cold and breathing symptoms in people with COPD is right for you.

4 days ago

Jillibean M

Jillibean Manswered the question Trelegy-Anyone notice a change in their voice on this medication.

After about 5 months of the hoarseness i got in to a ENT dr who stuck a camera in my nose and down my throat. Such a weird feeling! Because if you swallowed they had to pull out and back in. You could see the red/swollen voice folds. I read paragraph and …
Macey8DebbieB.-Connecticut State CaptainGAnneand 5 others also answered the question Macey8and 7 others also answered the question

13 minutes ago

Jonnie Korinko (COPDF Director of Education)

Jonnie Korinko (COPDF Director of Education)commented onSigning Up for Medicare: What You Need to Know

It is super confusing!!! No matter how much I research, I always learn something new. I hope you're doing well, Caroline!...

2 hours ago

Jonnie Korinko (COPDF Director of Education)

Jonnie Korinko (COPDF Director of Education)commented onSigning Up for Medicare: What You Need to Know

Thank you, Karen! That's a great plan. I feel like no matter how prepared you are, there's always more to know.Thinking of you!!...

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐ŸฏSPICED ORANGE DRINK๐ŸŠ๐Ÿฏ2 cups orange juice2 whole cinnamon sticks, plus 2 for serving2 whole cloves1 tbsp. honeyPour the orange juice into a small saucepan. Add 2 cinnamon sticks and the cloves. Place the saucepan over medium heat until it...

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday! Bring on the coffee! โ˜• Is that what I hear so many of you saying? ๐Ÿ˜ƒ Well, alright, alright!! โ˜•
Today is one of those days where everyone is a winner. Enjoy! ๐Ÿ˜€

19 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Found out what is wrong with me.

JHutton94 I am glad that you were able to get a diagnosis and help.
das23 also answered the question das23 also answered the question

23 hours ago

thehlk

thehlk

Hi, everyone! I had my PFT about a month ago and it was pretty ok, so I am trying to take your advice and just LIVE! Iโ€™m back to work at school, and taking my antidepressant - the crying has gone down considerably, but still having a lot of anxiety. At this point I know it is somewhat irrational. I am fine right now. And anything can happen over the next 10 to 20 to 30 years. Not sure why I just canโ€™t shake it off. I tried to set my classroom up to try to keep a bit of a distance between me and the kids. I may set up an air purifier and a fan blowing out into the hallway. I want so badly to be able to keep my job! But not at the expense of continuing to get bronchitis every year! Hope everyone is doing well. ๐Ÿฅฐ

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ“ป Come in, COPD360socialโ€ฆ do you copy?

Today is National 10-4 Day! In CB radio lingo, โ€œ10-4โ€ means message received.

And with COPD, some messages are too important to ignore.

Sometimes the message comes from your body:

๐ŸŸข Breathing feels like my usual today. โ€” 10-4. Keep doing what works.

๐ŸŸก Iโ€™m more short of breath, coughing more, more tired than usual, my mucus has changed, or Iโ€™m needing my rescue medicine more often. โ€” 10-4. Message received. Check your COPD Action Plan and follow the steps you and your healthcare team have set for worsening symptoms. Donโ€™t wait for things to get much worse before reaching out.

๐Ÿ”ด Iโ€™m having severe trouble breathing, canโ€™t catch my breath, feel confused or unusually drowsy, have chest pain, or something feels seriously wrong. โ€” Thatโ€™s an urgent message. Follow your Action Plan and seek emergency medical help when symptoms are severe or life-threatening.

Fall can send us messages, too. ๐Ÿ‚ Colder temperatures, changing air quality, respiratory illnesses, and weather changes can all be reminders to stay prepared.

And sometimes we need to send the message. Tell your caregiver or healthcare team clearly: โ€œSomething has changed. This is what Iโ€™m noticing, and this is when it started.โ€

The COPD Action Plan gives us a roadmap, but the first step is recognizing the message.

๐Ÿ“ป Listen to your body. Notice changes. Speak up. Know when to act.

When COPD sends you a messageโ€”10-4. Message received.

This is general educational information and isnโ€™t a substitute for medical advice. Follow your personal COPD Action Plan and instructions from your healthcare team.



Over and out. ๐ŸŽ™๏ธ

https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#MyCOPDActionPlan

COPD Foundation Educational Materials

The COPD Foundation educational library has a variety of useful booklets, flyers, and tools that you can download to help you learn more about living and thriving with COPD โ€“ everything from the basics of lung conditions to specific topics such as exercise and exacerbations (flare-ups).

1 day ago

JHutton94

JHutton94asked the question: Found out what is wrong with me.

Turns out at some point I had had a subendocardial heart attack and have heart failure as a result. Taken several years to get a diagnosis. It's frightening really. It would be at any age for sure but at 31 it's even more frightening. Thanks for the …

1 day ago

JacqieH

JacqieH

Im trying to get it together after being  hospitalized for a copd exacerbation.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, everyone! Wake up with a positive outlook! Today is going to be one of my best days ever! I am sparkling, glowing, and shining! 
When you look in the mirror, you can say I am beautiful on the inside and on the outside! 
๐Ÿ˜Š โค ๐Ÿชž 

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Has anyone been involved in stem cell treatments? I understand there is no hard evidence.

Hereโ€™s the link about the FDA approval. https://www.ampulmonary.com/copd/article/22974642/fda-approves-study-of-inhaled-stem-cell-therapy-for-copd
Sean P. SmithPatrick MooseUpstate NY Mikeand 3 others also answered the question Sean P. Smithand 5 others also answered the question

2 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Advair HFA anyone?

I have COPD and asthma and have used Advair in the past. I also use Combivent Respimat (currently as a rescue inhaler) and Breztri is my maintenance inhaler. I have severe COPD, however.
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Wishing you a day filled with things you enjoy the most!

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captaincommented onOxygen Access For Life

 In September, I beta tested a POC that is about the size and weight of an Inogen Rove6 that produces similar amounts of O2 PLUS 1.2 liters/minute of continuous flow. This is a development I find personally exciting as I need continuous flow O2 for...

3 days ago

Lucy k

Lucy k

I am good. I have been in holiday.  Lucy k from Wellington New Zealand 

3 days ago

The Merritts

The Merrittsanswered the question Has anyone tried the Carda Health at home rehab ?

I found this company online myself, searching for physiotherapy near us after my husband received his Bronchiectesis diagnosis. Getting medical approval from his pulmonologist took months but all Carda Health staff were patient and diligent. Once …
Splash4175 also answered the question Splash4175 also answered the question

3 days ago

John-boy

John-boyanswered the question I have COPD and a lung infection. Is it common to get these infections two or three times a year

Iโ€™m 72 and was diagnosed with COPD last year. As of yet Iโ€™ve not had a lung function test. My symptoms usually start with a sinus infection which soon travels to my lungs. Heavy congestion with the coughing up of yellow, beige or green phlegm. I usually …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captaincommented onSigning Up for Medicare: What You Need to Know

Thanks Jonnie, I hate insurance. It seems they try to be as confusing as possible....

3 days ago

das23

das23

Remembering our friend Ed ( edpe77 ) who we lost 5 years ago today.  Ed helped us all live  a little better with COPD. I'm sure he's up there still cranking out those puzzles ๐Ÿ™โœŒ

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onSigning Up for Medicare: What You Need to Know

Thanks Jonnie - Excellent article! I just received my "Annual Notice of Change" for my Advantage Plan and there definitely are quite a few changes, so I'll be comparing it to the other plan offered in my area this year. In the past the one I...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

PEANUT BUTTER-PUMPKIN SPREAD1/4 cup creamy peanut butter1/4 cup canned pumpkin purรจe 2 tbsp. maple syrup 1/4 tsp. salt 1/4 tsp. pumpkin pie spice OR cinnamonIn a small glass bowl, mix together the peanut butter and pumpkin purรจe, stirring until...

3 days ago

KazB

KazB

Glad I have found this community. My dad is end stage emphysema and refusing to go to hospital even although the doctor and respiratory nurse have tried to guide him on that route. Hasn't washed for months, barely eating and fluid intake has dramatically decreased the last few days. Doctor has prescribed anti-biotics and steroids (again), but doesn't think he has an infection especially as he showed no improvement on them two and a half weeks ago. He fell on Saturday night and is struggling to get to the toilet now. I just feel helpless with no other way to turn now.

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFluffy Friday Flashback! โšกโ˜„๏ธโšก
In memory of Murphy, aka Furry Murray! Murphy passed away several years ago. He was a Maine Coon mix. 
A man was abandoning 2 kittens out in the rain when he was moving out of his condo. My sister happened to be outside at the time, because she lived there. Baby Murphy climbed up my sister's leg, out of fear. He didn't know how to be outside in the rain. Of course, my sister kept Murphy. Soon afterward, my sister moved into her house. Murphy's sister was given a good home with a co-worker of my sister. 
Murphy was my sister's favorite cat ever! 
GO ORANGE! ๐Ÿงก๐Ÿงก๐Ÿงก

3 days ago

John-boy

John-boyasked the question: I have COPD and a lung infection. Is it common to get these infections two or three times a year

it seems that I get a lung infection twice a year minimum since Iโ€™ve being diagnosed with COPD.

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.