COPD360social welcomes new member Hanlon482 who joins 65,418 current members of our community. Weโ€™re glad you're here!

Brittany Irish COPDF

Brittany Irish COPDFYou are invited to take part in a short survey to help us
better understand how people with chronic lung conditions navigate Medicare and
access treatments.

Your insights will help us:
- Identify whatโ€™s working well
- Better understand common challenges
- Create tools and resources that truly support
your needs

Whether you feel confident navigating Medicare or still have
questions, your perspective matters.

Together, we can build solutions that make accessing care
simpler and more supportive.

If you are 18+ and diagnosed with COPD, bronchiectasis,
and/or NTM lung disease, take
the survey now.

https://copdfoundation.jotform.com/261124968384061

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainWell, today we saw amazing scenery, going through the fjords between Flรฅm and Bergen. My equipment is working wellโ€”Inogen Rove6 + Liberty 2, but sure wish it were lighter, smaller & quieter!  

1 hour ago

Pippilotta64

Pippilotta64

I am so weary. Was in the hospital for the third time this year. Im not only haveing breathing problems but also some depression. Ive had a therapist for about a year now a psychiatrist with medication. The psychiatrist took me off some meds and added one at night. I find myself wanting to have someone to talk to on different occasions. Starting to tfy to go out a little. Havent been out in 2 years except for doc app. I have a fear of mot being able to breathe and my portable breaking down. Does anyone else go through this.

1 hour ago

  • NewestOldest
  • HIcopd - Hawaii State CaptainIโ€™m sorry youโ€™re having a tough time. Yes, Iโ€™ve had some issues when equipment breaks but my supplier promptly sends me working replacement and in the meantime, I use tubing (as needed) and stay home and/or pursed-lip breathe. 1 hour ago
  • Karen Deitemeyer - Florida State CaptainYes, it's possible that your POC might malfunction, but to live in fear of it happening is keeping you from living your life.  Do you know how to pursed lip breathe?  That can be a way to help you breathe OK until you can get back home to your stationary concentrator, if your POC would stop working.  It helps with panic attacks and can help  with getting more oxygen into your lungs.  I'm glad that you're starting to try to go out more - please don't keep fear from having a good life.10 minutes ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธAPRICOT CHICKENโœด๏ธ8 bone-in chicken thighs, excess skin removed from undersideAPRICOT SAUCE:1/4 cup lower sodium soy sauce2 tbsp. Dijon mustard 1 cup apricot preserves1 tbsp. dried onion2 tsp. granulated garlic1/4 tsp. freshly ground...

3 hours ago

Bob puff dragon

Bob puff dragonHappy fluffy Friday to all today l hope your day is the best it can be with deep long breaths.Special sad hello to members who have lost a valued four legged companion recently,hopefully this meme will help and all the happy memories are assisting you to get through this difficult time.

5 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from this large pond slider! My sister spotted it while walking her dogs at a pond near her house. 
Wishing everyone a pleasant, easy breathing day! ๐Ÿ˜Š

7 hours ago

Sean P. Smith

Sean P. Smith

You know the last three months have been hell on wheels for me. Heart issues - stent and medication adjustments all just made my Emphysema harder to deal with. And then to end up with pneumonia (AGAIN!)! 
Yea, you want to think it was bad, maybe it was but I wanted to say the upside to this is the people around me that cared - family, friends, ALL my doctors. And besides that, I refuse to let my disease kill me. I will die from getting hit by a car, falling out of a multistory building, who knows how but it will not be emphysema. 
Because of my heart issues I am looking forward to cardiac rehab and finally being allowed back into the gym. 
To all out there who are afraid, alone or confused, just remember there are over 65 thousand members in the same boat. We are here for you and each other. You don't have to go it alone.

14 hours ago

Amanda*08

Amanda*08

Hello I am new to this community! Just diagnosed as end stage COPD at 38 years old back in March. I am scared so scared I have it in my head I wonโ€™t be 40. Iโ€™m struggling to quit smoking I also retain carbon dioxide! Looking for resources or to talk to people dealing with the same things I am. 


Thank you in advance for reading my short post! 

17 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Does anyone know what to expect now?

This does sound late end stage disease. Is hospice involved?
Phyliss DiLorenzo NJ State CaptainBob puff dragonKaren Deitemeyer - Florida State Captainand 1 other also answered the question Phyliss DiLorenzo NJ State Captainand 3 others also answered the question

17 hours ago

Evie

Evie

Need advice on stopping nose bleeds from 24/7 oxygen 

20 hours ago

Penny Price

Penny Price

Hello, Iโ€™m Penny. I have COPD GOLD 4 along with a few other health challenges, and Iโ€™m always looking for ways to stay informed and advocate for myself. Iโ€™m hoping to connect with others, offer support, and learn from your experiences too.

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ๐ŸฏPINEAPPLE SMOOTHIE๐Ÿ๐Ÿฏ 3/4 cup 100% pineapple juice 2 tsp. honey 2 tsp. vanilla extract 1 cup frozen pineapple chunks 1 medium ripe banana, broken into 3 piecesPlace the pineapple juice, honey, and vanilla extract in a blender. Top with the...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Thankful Thursday! 
Each moment is indeed a gift. And, each breath we take is precious. Be thankful for all that you have. Be kind and share with others. 
Have a wonderful day, and keep on smiling! ๐Ÿ˜€

1 day ago

Tsmith163

Tsmith163

hi
 i just joined the group because i am having problems with my nebulizer
i have been using it for over two years and am suddenly having problems
i switched fro the plug in motorized version to the small mesh ones about a year and a half ago and had no problems until recently,   when it stopped working
i tried my backup and that,too, didn't work
i tried charging them with different cords and plug-ins,  but still no
so i sent away for two new ones......same thing

i use the mesh nebulizer w302

is it possible the solution itself is bad?
has anyone else had the same problem?    help would be appreciated
TYVM

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿ“ธ Visit My Corner of the World Wednesday ๐Ÿ“ธ๐ŸŒŽ

This week, letโ€™s do something a little different. โค

Sometimes when weโ€™re under the weather, worn out, stuck inside, or just needing a quiet momentโ€ฆ we close our eyes and think about that one place. That picture in our mind that brings us comfort.

Maybe itโ€™s a lake at sunrise.
A favorite porch chair.
A fishing trip from years ago.
Your garden.
A mountain view.
A family kitchen.
A photo that makes absolutely no sense to anyone elseโ€ฆ but means everything to you.

This week for Visit My Corner of the World Wednesday, share your happy place. ๐ŸŒค๏ธ

The spot, memory, view, or little piece of the world that helps you breathe just a little easier and smile a little more when you need it most.

And the best part? It doesnโ€™t have to make sense to anyone else. Thatโ€™s what makes it special. ๐Ÿ’™

Letโ€™s fill the feed with comfort spots, meaningful memories, peaceful views, and little pieces of โ€œhomeโ€ from all over the world this week. We canโ€™t wait to see your corner of it. ๐ŸŒŽโœจ

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ’CUCUMBER BOATS WITH IMITATION CRABMEAT๐Ÿฅ’1 large English cucumber 1/4 cup finely diced onion1/2 cup finely diced red bell pepper 1/2 cup finely diced yellow bell pepper 2 ounces imitation crabmeat sticks, diced3 tbsp. mayonnaise Salt and freshly...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday, friends!
Orange you glad you're here with us?! I'll bet you are! This is a great place to be! Wishing everyone a pleasant, easy breathing day! ๐Ÿ˜Š

2 days ago

Lucy k

Lucy kcommented onIs It a Flare-Up?

This is a really useful article Arnelle. I have had COPD for some years. Sometimes I either forget or deny my symptoms for flare ups. I read the article and took immediate action with antibiotics and prednisone. I now have the flare up under...

2 days ago

ALouise

ALouiseasked the question: Does anyone know what to expect now?

Hi Iโ€™m hoping to get some help with some questions I have about this terrible disease. My dad was diagnosed with Stage 3 COPD 12 years ago. He has had several hospitalizations due to pneumonia and the COPD was worse after each one. He has been on full …

2 days ago

Poppy76

Poppy76

Not great. I had a difficult weekend when my COPD got to a difficult stage for the first time. Couldn't stop the wheezing sound and had difficulty sleeping.

2 days ago

Jackie Red

Jackie Red

Hi I am new here.  I am scared.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŽ๐ŸAPPLE VINAIGRETTE๐ŸŽ๐Ÿ Half of a large apple, peeled, and chopped1/4 cup white balsamic vinegar 1/2 cup vegetable oil 2 tbsp. diced shallot1 tbsp. Dijon mustard 1 tbsp. honey1 tbsp. lemon juiceSalt and pepper to taste Place all ingredients...

3 days ago

BigDog99

BigDog99

Hi, Stephanie,


Not exactly sure I have COPD but I feel like I do. I have been smoking for 30 years. My chest stays tight and I can feel phlem or mucus in my chest and it's very hard to cough up. That's pretty much all the time. 

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, friends! Wishing all of you much happiness on this fine day! ๐Ÿ˜€

3 days ago

Auriel

Auriel

I've finally got my meds sorted again.  I had to stop using Ventolin as it was causing a rapid heart rate & palpitations.  I'm now using atrovent instead which doesn't have any side-effects so far, & I'm back to only using oxygen at night & when working out.

3 days ago

Bleaue

Bleaue

Feeling alone

3 days ago

Bleaue

Bleaue

Feeling alone

3 days ago

KellyAmes

KellyAmesanswered the question Long Post -- Smoking / COPD / Many Questions

Hi. I realize this post is about 7 years old. I'm 52 and the first half of this post could have been written by me. Lol. Did you ever end up have a Rheumatology panel done? When I did they took enough blood to fill 12 viles. They will test you for every …
AnonymousCaroline West Virginia State CaptainKaren Deitemeyer - Florida State Captainand 6 others also answered the question Anonymousand 8 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood afternoon, friends.
Maybe some of you remember my black cat Anthony Rizzo. Sadly, he passed away early this afternoon. I came home and found him downstairs, and he had passed away. He was 18 years old, and I think it was just his time. I had him since he was 2 months old. I am heartbroken. 
Rest in peace, Ant. ๐Ÿ•Š๐Ÿœ

3 days ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

As always on Memorial Day, I take time to remember those loved ones lost in service to their country. They put themselves in harmโ€™s way for our country, their brothers- and sisters-in-arms and their families. I feel we should honor not only their memory but their families left behind.I read a poem by John Maxwell Edmonds, written around 1944 about soldiers, and two lines stayed with me: "When you go home, tell them of us and say: For their tomorrow, we gave our today." Having lost my younger brother in Vietnam I would say, he gave up his tomorrow so I could have today.  So for me, Memorial Day is not only about remembering those who are gone but about giving thanks to those who are still here.

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.