COPD360social welcomes new member field support who joins 65,669 current members of our community. Weโ€™re glad you're here!

carolyn johnson

carolyn johnson

Good morning  im still feeling down and depressed  until i figure out whats gling on with  these recent flare up. I cant cough up mucus no more. My doctor told me i have asthma  not copd and other doctors cant tell the difference  which i knew that wasnt true. I have no faith in him i feel like its all about insurance money not about me. Im switching doctors. He put me back on incruse which i was once taking off it. Im so confused and i have allergies  and acid flux and i do still work and walk 3 days a week. But i feel like im taking care of everyone else accept  me. I have a special needs newphew and im disable mom and i take care of a ex who disable also.  My hands are full but i feel like i have no one that understands  me. I haven't  been eating because of my flare up  just drinking to stay hydrated.  I love my grandbabies to death  and my children . Dena umbash i might be spelling your name wrong i do know how your feeling right now. Your welcome to reach out im available  to talk. You can even call me because  we are both the same age 54. Im stage 3 i think

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday, friends! Just buzzing by to wish you a great day!  ๐Ÿ๐Ÿ’จ Bee happy. Bee strong. Bee positive. Bee-You-Tee-Ful! ๐Ÿ

3 hours ago

Dena Umbach

Dena Umbach

Hi .. New here.. im stage 4 COPD & 11% function..  Ive just turn 54yrs old . 2 weeks no smoking .. lung transplant list in next 5 iish months .  .  Looking to learn more about copd and what is ahead for me . Found out i had copd about 3 yrs ago but the last 6 / 7 months its got extremely worse,,  on oxygen 24/7..   a month 1/2 ago. .  Vary emotional about it all .. ๐Ÿ™๐Ÿปโค

7 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI just watched the latest COPD Lung Health Champion Podcast, starring Mike Hess, RRT (COPDF Senior Director of Advocacy & Regulatory Affairs)โ€‹ and Mary Kitlowski (Running On Air). Thank you both, as well as the 3 clinician guests, for an excellent discussion about oxygen and patient-centered care.

https://youtu.be/CC27dcw7U2E?si=GUHqIancauQGbPkR

11 hours ago

MandyYakon

MandyYakon

Hello everyone!  I'm new on here but really wanted to just find somewhere i could talk to other people who have same or similar issues as i do!  


My major thing I want to share with you all though is.....I am 2 days smoke free!!!  Yay lol. I've smoked for so many years but it's time to quit forever. My Dr prescribed chantix for me and I will say it's helped quite a lot. 


Thanks for hearing me out I hope everyone has a wonderful holiday too and be safe!


Mandy

11 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question sleeping pill/anxiety

Please do as Debbie and brydy have said - your question is one that can only be answered by your pumonologist or, if you don't have one, by your primary care physcian.
brydyDebbieB.-Connecticut State Captain also answered the question brydyand 1 other also answered the question

12 hours ago

GAnne

GAnneanswered the question Has anybody had any problems with getting pneumonia while using trelegy ellipta ?

I have been on trelegy for about 10 years or longer, I have had 1 bad experience with pneumonia. 6 months later one that wasnโ€™t to bad, but I donโ€™t want any. So many things can set you off, cleaning supplies, perfume, dust.
COPD1222HIcopd - Hawaii State CaptainChris A.and 5 others also answered the question COPD1222and 7 others also answered the question

12 hours ago

lizjb

lizjbasked the question: sleeping pill/anxiety

what is a good sleeping pill if u have copd Also what is good for anxiety and stress with copd that can be used daily with ambien at night?

14 hours ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event OxyTalk Social Hour - Wednesday, July 8, 4pm Eastern

OxyTalk Social Hour - Wednesday, July 8, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

17 hours ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event BronchandNTM360social Coffee Break - Wednesday, July 8, 2:30pm Eastern.

BronchandNTM360social Coffee Break - Wednesday, July 8, 2:30pm A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

17 hours ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event COPD360Social Hour & Harmonica Play-Along- Wednesday, July 1, 4pm Eastern.

COPD360Social Hour & Harmonica Play-Along- Wednesday, July 1, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

17 hours ago

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  • Coach Brandon - Community Manager๐Ÿถ Your Dog May Howl... But You'll Have Fun! ๐ŸŽถ

    Have you ever wondered what Harmonicas for Health is all about?

    At first, it might sound a little unusualโ€”but ask anyone who's joined us, and they'll tell you it's one of the most enjoyable hours of the month!

    Yes, we play harmonicas, but it's about so much more than making music. Playing the harmonica encourages slow, controlled breathing, helps strengthen the muscles used for breathing, and gives us a chance to practice breathing techniques in a way that doesn't feel like exercise at all.

    And let's be honest... there can be a few unexpected side effects. ๐Ÿ˜„ Your dog may decide to howl along, your spouse might suddenly become very interested in another room of the house, or your cat may give you that famous "You've got to be kidding me" look. ๐Ÿถ๐Ÿฑ

    Tomorrow during our COPD360social Hour, Arnelle will be leading another Harmonicas for Health session, and we'd love to have you join us. Whether you're living with COPD, you're a caregiver, or you're simply curious, everyone is welcome.

    Never picked up a harmonica? No problem! You don't have to play a note. You're welcome to come watch, listen, meet some wonderful people, and see what it's all about. Many of us joined for the first time feeling a little unsureโ€”and now we wouldn't miss it.

    With the summer heat keeping many of us indoors, why not spend an hour in the air conditioning with friends who understand the journey? We'll laugh, learn, encourage one another, and maybe even make a little joyful noise along the way.

    Have you ever played a harmonica before, or would tomorrow be your first time? We'd love to hear from you! ๐Ÿ’™๐Ÿงก15 hours ago
  • TracingsJust want to say that this invitation from Coach Brandon is so welcoming!  I can't make it tomorrow, but I hope to sit in on the next meeting.  Not quite ready for public playing, lol.  I've got my harmonica, but when I "played" Row, Row, Row Your Boat, my daughter thought I was doing Frere Jacques.  7 hours ago
  • Dena UmbachGreat idea.. i just happen to have 3 . . I carry around woth me for when i see my grand daughters.  I guess ill pick them up more for me to play again .. tkz 7 hours ago
Community Announcements

Community Announcementsadded a new article Financial strain may affect health outcomes for people with COPD

Financial burden leads to poor disease self-management, emotional distress

Miami (June 30, 2026) - The financial cost of chronic obstructive pulmonary disease (COPD) negatively impacts people's mental health and leads them to forego medications, delay or avoid medical care, and alter major financial plans, according to a new study in the May 2026 issue of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation, a peer-reviewed, open access journal.

18 hours ago

Wildebeest

Wildebeestanswered the question Do any of you h

I have a Wellue ring which I use to measure O2 sats overnight. It produces results I would expect so I guess it is accurate enough for a general picture. I have tried using it when exercising but it is no good for that. Mostly I use an ordinary fingertip …
Karen Deitemeyer - Florida State CaptainGaryLynnsif1215and 2 others also answered the question Karen Deitemeyer - Florida State Captainand 4 others also answered the question

18 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

โ˜„๏ธ Happy Meteor Watch Day! ๐ŸŒ 

Tonight, people around the world may be looking up, hoping to catch a shooting star racing across the sky.

But here in COPD360social, we know some of life's brightest moments don't happen in outer space.

Sometimes they're much closer to home.

๐Ÿ’™ A morning when breathing feels just a little easier.
๐ŸŒค๏ธ A cool breeze that invites you outside.
๐ŸŒผ The first flower to bloom.
๐Ÿฆ A bird visiting the feeder.
๐Ÿ“ž A phone call that makes you smile.
๐Ÿพ A wagging tail that's excited to see you.
๐Ÿ‘จ๐Ÿ‘ฉ๐Ÿ‘ง๐Ÿ‘ฆ Time spent with the people you love.
๐Ÿšถ A few extra steps than you could take a month ago.
๐Ÿ˜Š Or simply making it through todayโ€”and that's more than enough.

Whether you're living with COPD, bronchiectasis, NTM lung disease, or you're caring for someone you love, those moments matter. They remind us that hope isn't always found in the big milestones. Sometimes it's tucked away in the little victories we almost overlook.

So today, let's have a little fun...

โœจ If you were hosting a "Meteor Watch Party" for our community, what would everyone be hoping to see?

Would it be...
โ˜„๏ธ A streak of easier breathing?
โ˜„๏ธ A shower of extra energy?
โ˜„๏ธ A sky full of good test results?
โ˜„๏ธ A doctor's appointment filled with encouraging news?
โ˜„๏ธ More time doing the things you love?
โ˜„๏ธ A little less coughing and a lot more laughter?

Or maybe your wish is something completely different.

๐Ÿ’ฌ Tell us below!

If you could wish on one shooting star this week, what would it be?

No wish is too big or too small. We'd love to hear what's giving you hope or what you're looking forward to. Your answer just might be the bright spot someone else needs today.

Have a happy Tuesday! ๐ŸŒ ๐Ÿ’™

21 hours ago

Bob puff dragon

Bob puff dragonHope everyone can handle this heat ok,so far coast has been good,even for smoke this year.Drink lots and cuddle that ac.

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฝSESAME NOODLE SALAD๐Ÿฝ16-ounce package angel hair pasta, cooked and drained in colander 1/2 cup sesame oil1/2 cup lower sodium soy sauce1/4 cup balsamic vinegar 1/4 cup sugar1 tsp. sesame seeds1 scallion, finely chopped 1 medium red bell...

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, everyone! When you spread positivity, you are spreading sunshine! ๐ŸŒž Keep on thinking good thoughts! ๐Ÿ˜Š Strive for happiness in your life! ๐Ÿ˜€ Keep on smiling! ๐Ÿ˜ƒ

1 day ago

das23

das23answered the question Does this mean it's getting worse

Agree with the others--80s is something you need to see your doctor about
WildebeestCaroline West Virginia State Captainbrydyand 1 other also answered the question Wildebeestand 3 others also answered the question

1 day ago

George Trump

George Trump

Are there any natural remedies for copd ?

1 day ago

George Trump

George Trump

Coping with a flare up

1 day ago

ChrissyLu

ChrissyLuanswered the question Flying-Do I need to rent a portable machine?

My husband's on 4 liters O2 & the most recent USA guidelines from the airlines (2026) states he must have access to enough O2 to match flight time plus another 1/2 flight-time worth to board a plane. At 4 lt, just the time in the airport can utilize …
K STEELEmuddleagedJean IA State Captainand 5 others also answered the question K STEELEand 7 others also answered the question

1 day ago

What's not taken

What's not takenasked the question: Do any of you h

Do any of you have an Apple watch or Fitbit, etc to monitor your copd?

1 day ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist)answered the question Check-in: How Summer Heat and Humidity Can Affect COPD

This is so timely!
HIcopd - Hawaii State CaptainAurielWildebeestand 4 others also answered the question HIcopd - Hawaii State Captainand 6 others also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

โ˜€ This week's forecast is bringing some serious summer heat to many parts of the country. Even places that don't usually see temperatures this high are feeling it.

If you live with COPD, bronchiectasis, NTM lung disease, or you're caring for someone who does, this is a good week for a gentle reminder: your health comes first.

When it's hot and humid, breathing can become more difficult because the air feels heavier and your body has to work harder to cool itself. If today turns out to be one of those days where your lungs are telling you to slow down...listen to them. โค

Here are a few simple ways to help make the week a little easier:

๐Ÿ’ง Stay hydrated and sip water throughout the day.
โ„ Spend time in air conditioning whenever possible, especially during the hottest hours.
๐ŸŒณ If you need to be outside, try to go early in the morning or later in the evening, and look for shade.
๐Ÿ’จ Pace yourself. There's no prize for pushing through the heat.
๐Ÿ’Š Keep your medications and rescue inhaler nearby, and take them as prescribed.
๐ŸŒก๏ธ If the heat is making your breathing worse or something doesn't feel right, don't wait too long to reach out to your healthcare provider.
๐Ÿค Caregivers, don't forget to take care of yourselves, too. Heat can wear everyone down.

Remember, it's okay to let the weather set the pace. Staying cool and protecting your lungs is always a good choice. ๐Ÿ’™

What's your favorite way to stay cool on hot days? Whether it's a cool drink, a shady spot, an indoor hobby, or another summer tip, share it below. Your idea might help someone else breathe a little easier this week.

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State CaptainMonday Morning Music.
Start your week with a smile on your face.
Tony Bennett and Count Basie                                                                                                                                                   "Are you Having any Fun"https://www.youtube.com/watch?v=ifWg9lGWIag

1 day ago

brydy

brydy

Today begins whats predicted to be one of the hottest weeks we have ever had. Canada Day is Wednesday & will top out at 49c (120F) today will be 41. 
I am concerned about the animals, my farm is a rescue with many large animals that will be exposed to this heat for a prolonged period. people too esp given its a holiday. I know a lot of you guys are heading into hot weather as well, hope we can all manage through it ok. its tough on our breathing for sure. stay safe everyone. 

1 day ago

Gwhite

Gwhiteasked the question: Does this mean it's getting worse

Hi, my name is Christina. I was diagnosed with COPD six months ago after a pulmonary breathing test. I was diagnosed with mild emphasema with a 76%. lung capacity, my doctor continues to tell me that it's not that bad. But yet, in the last 6 months, it …

1 day ago

Bob puff dragon

Bob puff dragon

Gotta say Brydy,,,hip hop l certainly did not see that one coming.Good for you.lol Canadians go figure eh.

1 day ago

Bob puff dragon

Bob puff dragonHope everyone receives the day they deserve today with big deep breaths and a brain that can see more happy then sad.Mental health is just as important as physical and sometimes far harder to achieve.

1 day ago

Gwhite

Gwhite

Hello, I'm new here my name is Christina. I was diagnosed with COPD (mild emphysema) 6 months ago, I am 51 years of age. 

1 day ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.