COPD360social welcomes new member Cin1970 who joins 66,391 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community ManagerDo you care for a friend or family member with severe COPD and have experience with their nebulizers and handheld inhalers?

If yes, you may able to share your experience in a virtual focus group.

You may be paid for your time.

To learn more and see if you qualify, contact Sergio Martinez at 866-731-2673, ext. 210โ€ฏor email copdpprn@copdfoundation.org

1 day ago

TimD

TimDHi Everyone!

Interested in contributing to research in a quick but meaningful way? Take a short survey to share your journey to diagnosis and how your condition has affected you. Your input can help us to better understand the path to diagnosis and identify opportunities to improve it for others.

Please complete the survey here: https://copdfoundation.jotform.com/262805493917063

2 weeks ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Moderate emphysema found on LDCT - will it likely progress?

Hi MazzyBee I'm also not a clinician, so can't predict what your dad's pulmonologist will say, but I was diagnosed in 2001 with very severe COPD. I'm still here today, at age 80, having kept my very severe symptoms at the same level as when …
DebbieB.-Connecticut State Captain also answered the question DebbieB.-Connecticut State Captain also answered the question

1 hour ago

MazzyBee

MazzyBeeasked the question: Moderate emphysema found on LDCT - will it likely progress?

Hello, this is my first post here. My dad (74) gets a CT screening for lung cancer every year because he is a former smoker who quit 15 years ago. This year, the radiologist's report noted "Moderate upper lobe predominant pulmonary emphysema." We …

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŽƒMARSHMALLOW POPCORN๐ŸŽƒ"A messy, but delightful Halloween treat!"8 cups popped popcorn 1/2 cup packed light brown sugar 1/2 cup butterOne 10-ounce package mini marshmallows Halloween sprinkles Candy eyeballsCover baking sheets with waxed paper....

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my sister's cat Cricket Smudge. It looks as though she wasn't pleased with her catnip banana toy. Maybe a catnip mouse would've been a better choice! ๐Ÿ˜
Have a fun day, friends! ๐Ÿ˜ƒ

9 hours ago

Becky Bee

Becky Beeanswered the question Bad breathing and heavy chest while on Prednisone?

All of these posts have been very helpful to me. I had an URI beginning of September. I was prescribed 5 days of antibiotics and 40 mg of Prednisone. At that time I was fine, but mentioned to my Pulmonologist that I had never been on prednisone without …
SOB2026DaBoomerRoxy Swango and 6 others also answered the question SOB2026and 8 others also answered the question

20 hours ago

brydy

brydyanswered the question Arnica

Theres some research that indicates citrus bioflavonoids strengthen capillaries & work to prevent steroid induced bruising. it wont heal existing ones rly so ointments etc for those but might be worth looking into them as prevention after cking with …
Tom.EJeanO53das23 also answered the question Tom.Eand 2 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โšก๏ธPOWER SNACK MIXโšก๏ธ1 cup multigrain Cheerios cereal3 tbsp. mini dark chocolate morsels 3/4 whole raw almonds 1/3 cup dried cherriesIn a medium bowl, mix together all the ingredients. Portion into 1/3 cup servings. Store in airtight...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
I know that I am grateful for all that I have in my life. Let's do our best to focus on all the good things! We are truly fortunate! ๐Ÿ˜Š ๐Ÿงก

1 day ago

Hippie Heather

Hippie Heather

I am new to this so I just wanted to say hello!

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Join us today for our COPD Support Group meeting, on zoom and live, 10-noon Hawaii Standard Time, 4-6pm Eastern Time. More info & registration link  at www.hawaiicopd.org. 

2 days ago

Tom.E

Tom.Easked the question: Arnica

Arnica has been around for awhile to help speed up healing of skin bruising that comes with steroid use. I've been using Dermend but recently switched to Arnica Gel made by Miricale Plus and sold on Amazon. I find it a bit better than Dermend especially …

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿš—โšก Great Scott! It's Visit My Corner of the World Wednesday AND Back to the Future Day!

Good morning, everyone!

Well, how about this for a Wednesday? We're taking a little trip through time!

Who remembers Marty McFly, Doc Brown, and that famous DeLorean from Back to the Future? Can you believe that movie came out in 1985? Just think about how much our world has changed since then!

And that includes lung health! We've come a long way in understanding and treating COPD, Alpha-1, bronchiectasis, and NTM. There's still plenty of road ahead, but research keeps moving forward, and so do we!

Now, here's where our Wednesday fun comes in!

If you could hop into that DeLorean, where would you go? Would you head back to a favorite place from years ago, revisit a wonderful memory, or take a peek at what the future might look like?

Share a picture from your corner of the world! It can be an old favorite, something beautiful outside your window today, or a place you'd love to visit someday. No time machine required!

That's what makes these Wednesdays so special. We get to travel a little through each other's pictures, stories, and memories, all without leaving home.

And as we look toward the future, I hope we keep moving forward together, learning, supporting one another, and never giving up on better tomorrows.

So, fire up that flux capacitor, grab your camera, and let's see where Wednesday takes us!

Happy Wednesday, everyone! Where are we going today? ๐Ÿ’™๐Ÿ“ธ

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy wonderful Wednesday, friends!
You have a chalk board in front of you. What message would you write on it for all of us to read? Of course you'll be writing with your orange chalk! 
My message to you would be Enjoy your day! ๐Ÿงก

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฅฃLENTIL AND POTATO SOUP๐Ÿฅฃ2 tsp. olive oil 1 medium onion, chopped 2 carrots, chopped 2 celery stalks with leaves, chopped3 garlic cloves, minced 1 tsp. cumin1 tsp. ground coriander 1 tsp. oregano 3/4 tsp. salt 1/2 tsp. pepper3 tbsp. tomato...

2 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Follow-up - Drugs not carried by Medicare

Glad you have found good solutions! I was using an inhaler made by Teva, some years back, AirDuo. It worked well for me for some time.
das23Caroline West Virginia State Captain also answered the question das23and 1 other also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โšช๏ธโšช๏ธEASY MASHED CAULIFLOWERโšช๏ธโšช๏ธ 1 head cauliflower (about 2 pounds), cut into 1/2-inch pieces1 cup chicken broth 1 tsp. salt 3 tbsp. unsalted butter, cut into chunks 1 tsp. chopped fresh thyme Freshly ground black pepper to taste In a Dutch oven,...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, friends! 
It's always nice to see you here on 360Social! Thanks for making our day so wonderful! ๐Ÿ˜Š

3 days ago

das23

das23commented onHow Severe Is My COPD?: Test Results vs. Symptoms

Thanks Kalli. Great information...

3 days ago

netmouse

netmouseasked the question: Follow-up - Drugs not carried by Medicare

This is follow-up to the recent post about my surprise when I found out that Advair Discus was no longer covered by any Medicare plan in my zip code. There are generics. The plans seem to cover these generics. In my plan, I get the generic drug at $0 …

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

Happy Monday, 360social Friends! ๐Ÿ‚

Here we are, already more than halfway through October! Thanksgiving is just around the corner, and Christmas won't be far behind. I'm still trying to figure out where September went!

With the holidays getting closer, I wanted to share a little reminder about something that's easy to put off but really worth taking care of.

Have you gotten your flu shot yet? If not, there's still time! It generally takes about two weeks after getting vaccinated for your body to build up protection against the flu. So now's a pretty good time to get that taken care of before the holiday gatherings begin!

It's also worth checking with your healthcare provider about RSV, pneumococcal (pneumonia), and COVID-19 vaccines to see what's recommended for you.

We all know how quickly a little sniffle or cough can sometimes snowball into something much bigger, especially when you're living with COPD or another lung condition. Anything we can do to give ourselves a little extra protection is worth considering!

And caregivers, don't think you're getting out of this conversation! โค We're so busy looking after the people we love that sometimes we forget about ourselves. Staying healthy matters for you, too!

Vaccines can't prevent every illness, but they can help reduce the risk of serious illness. Add in a little handwashing, some common sense, and looking out for one another, and we're off to a good start!

We've got a pretty special community here, and I want us all to enjoy the season ahead, make some memories, and stay as healthy as we can.

Here's to looking out for each other and keeping those holiday germs from getting an invitation to the party! โค๐Ÿ

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Can anyone interpret results

Please, do not go by what Dr. Google says! Do you have a primary care physician you can see? I am hoping our David Mannino, MD (Chief Medical Officer, COPD Foundation ) will see this. He may have some kind of idea.
AfterLyfe93 also answered the question AfterLyfe93 also answered the question

4 days ago

JeanO53

JeanO53I saw this beautiful creature yesterday swimming on Lake Michigan near Grant Park's beach.
It's a Mute Swan, so considered invasive. Hmmm... I enjoyed seeing it anyway.
.. With COPD, some days can be more difficult than others.   And then I am reminded - There's a line in a Beth Nielsen Chapman song that goes...    ๐ŸŽถ"How heavy the empty heart, how light the heart that's full" ๐ŸŽถ
 Wishing you all full hearts today  ๐Ÿ’™

4 days ago

Community Announcements

Community Announcementsadded a new article How Severe Is My COPD?: Test Results vs. Symptoms

This article was written by Kalli Mago.

If you are living with chronic obstructive pulmonary disease (COPD), you may wonder how severe your condition is. COPD is a progressive disease, which means it gets worse over time. Understanding how severe your COPD is can help you make better choices to protect your lungs for the future.

When you were diagnosed with COPD, your health care provider might have told you what "stage" your COPD is. This number between 1 and 4 is based on your spirometry test results. It can help you understand your condition more.

While knowing your number can be useful, it doesn't always tell you everything about your condition. Sometimes, people have "mild" COPD according to their numbers, but their symptoms can be more severe. Other times, the opposite is true. You could have "severe" COPD but still feel fairly well most days.

4 days ago

mark33philippines

mark33philippines

im mark 33 male from ph,its so hard when u had this copd,i cant sleep well,its very hard when u had this condition to normaly work,:( how can i buy medicine if i dont work,buts its very hard to. work when u had this

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.