COPD360social welcomes new member BETSY B who joins 65,262 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒท Happy Motherโ€™s Day to all the moms, bonus moms, caregivers, daughters, grandmas, neighbors, and those amazing people who somehow always know where the tissues, snacks, medications, chargers, and โ€œmissingโ€ reading glasses are. ๐Ÿ˜„

In the COPD community, โ€œmotheringโ€ often looks a little different. Sometimes itโ€™s helping someone with oxygen tubing that decided to tie itself into a sailorโ€™s knot. Sometimes itโ€™s reminding a loved one to slow down and rest. Sometimes itโ€™s sitting quietly beside someone during a hard breathing day and simply being there.

Today we celebrate the people who show up with love, patience, humor, strength, and the occasional โ€œDid you remember your inhaler?โ€ from across the house. ๐Ÿ’™

And for those missing their moms today, or carrying a mix of emotions, weโ€™re holding space for you too.

Thank you to every person who steps into that caring role and helps make life feel a little lighter, safer, and more hopeful.

๐ŸŒผ Happy Motherโ€™s Day from all of us at COPD360social
โ€” and may your weekend include good company, warm memories, plenty of laughter, and oxygen tubing that behaves itself for at least one full day. ๐Ÿ˜„

2 days ago

BlueSky

BlueSkyasked the question: What can I do now, to help future me?

Newly diagnosed Stage One but symptomatic. I know everybody is different, but I have no idea what to prepare for health wise and how my abilities might change, or not. Is there any stand out thing(s) that others are pleased they accounted for earlier, …

6 minutes ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

Happy Mother's Day! (click on the link to see the card)
https://bmacards.com/3n18xp

2 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captain

Happy Mothers Day, Mothers! ๐Ÿ’โค

3 hours ago

BlueSky

BlueSky

Hello All. I am just navigating my first few weeks with a COPD diagnosis. Stage One spirometry. Emphysema and scarring on CT. Lung nodule under observation.  My breathlessness has been considered 'mild asthma' for my whole adult life and a dust allergy as a child. As a non smoker I didn't even consider COPD ever being 'a thing'. Its a bit of a lonely one. I work in a pharmacy health care setting so very difficult to avoid respiratory infection which apparently is my main way of slowing progression, along with exercise and my new Anoro inhaler.  Anyway, thanks for reading, Im hoping to feel less adrift with this diagnosis. 

9 hours ago

Danforth55

Danforth55

I had by twice a year visit with my pulmonologist this week. We di a lung ct scan and breathing test in the fall and a breathing test in the spring. Three years ago a scan indicated mild centrolobular emphysema though we couldnt see anything on the scan. My recent breathing test put my fev1/ fvc % at 64. It was 67% three years ago. I am 67. He said it should be higher than 70% at my age. So I have a diagnosis of stage 1 mild copd according to gold standard, and interstitial lung disease since the scan does shiw some scarring. But no medication. I feel normal, have no symptoms. I do another scan in November. 

12 hours ago

  • NewestOldest
  • das23Hi Danforth55. You know the drill--No smoking--exercise--eating right. Good to hear from you again2 hours ago
  • Danforth55Yesssir. Thx Das2 hours ago
Lucy k

Lucy k

Oh wow I am so happy I have found you all.  I feel less alone. I live in Wellington New Zealand.  I have severe COPD  but try to stay positive. 

15 hours ago

mebeal321

mebeal321asked the question: Posted on here 3 months ago, update with new improved spirometry, still have symptoms.

Hi all, posted on here 3 months ago with my pfts, both of them from last year, one in June 2025, one from November 2025. My new pft (April 2026) is looking much better, though i still remain symptomatic. I am being treated by an allergist, taking …

15 hours ago

Dinna25

Dinna25answered the question Not a question just a Hello

Hi Wildebeest How you doing, last time you were struggling a little hope you got sorted and feeling better. No, no sleep apnea it my sinuses mimicking it, now got meds and loads better. Nothing changed im still active but cut down the exercises to a …
WildebeestCaroline West Virginia State Captaindas23and 2 others also answered the question Wildebeestand 4 others also answered the question

17 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Hope your day is filled with reasons to smile! ๐Ÿ˜€

1 day ago

NgR

NgRanswered the question Tiova vs. Spiriva Inhalerโ€™s

Tiova is in powder form and require a strong pull to draw the powder from the inhaler to reach the lungs, which is not possible by a copd patient. So all of the 9mcg will not be possible to inhale. Even a normal person cannot inhale 9mcg, this is due …
AnonymousBill Clark - Community Manager also answered the question Anonymousand 1 other also answered the question

1 day ago

perkyH

perkyH

i have the valvaes also

1 day ago

lazy t

lazy tanswered the question Long time copd patient with cronic hiccups! How to fix it.

Thank you so much for the advice! My pulmonologist prescribed medication, and my annoying hiccups are gone! I no longer need safety glasses to put on my hearing aid! lol (just try putting on your hearing aid in the middle of a hiccup event!) Good things …
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โžก๏ธEASY COLD SESAME NOODLESโฌ…๏ธ12 ounces whole grain spaghetti 1/2 cup creamy peanut butter 2 tbsp. lower sodium soy sauce1 tbsp. seasoned rice vinegar 1 tbsp. toasted sesame oil 1/2 tsp. garlic powder 1/2 tsp. ground ginger 2 tbsp. warm water, plus...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday, friends! Today, we have one of my bestest outdoor buddies-Chippy! ๐Ÿฟ  This little guy loves nothing more than collecting peanuts and filling his pouches! ๐Ÿฅœ 
We wish you a pleasant, easy breathing day! ๐Ÿ˜Š

2 days ago

Carola.An

Carola.An

My seasonal allergies are a bad influence on my COPD. 

2 days ago

perkyH

perkyH

TERRRIFIC since i had lung reduction surgery.....

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I'm feeling very happy today.  I finally have found an outfit to wear when I am a presenter at the ATS (American Thoracic Society International Conference) in Orlando, FL in just a little over a week.  Living here in Florida, and being retired, I don't have many "business casual" clothes in my closet, since I doubt that capri's and sandals count, LOL.  And I didn't want to wear my black suit that I wear when I go to DC, since it's too hot to wear in our weather here.  And not only did I find an outfit, it was on sale ๐Ÿ˜

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Why o2 fluctuating never still for long

Probably not related to dupixent. Pulse ox levels can vary for many reasons. This could be related to circulation, quality of the oximeter in addition to what is happening in your lungs. I like my patients to use pulse oximeter that measures pulse wave …

2 days ago

Oral walker

Oral walkerasked the question: Why o2 fluctuating never still for long

Good afternoon...my question is my o2 sat at rest is usually at 94-95 at 4 liters,but for the past few day its been fluctuating up and down from 86-95 never staying still,can someone tell me anything about it,i was put on dupixen monday can that be the …

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I had a wonderful visit with my pulmonologist yesterday. I think that it took me until this evening for the full force of what he said hit me. He wants me to see if I can wean myself off oxygen. He said he can tell I do the things you are supposed to do, like exercise, stay active, eat well, and keep a positive attitude.


My FEV1 has improved by a lot.  More than ever, I want to let everyone know to just "keep on keepin on."

2 days ago

Dinna25

Dinna25asked the question: Not a question just a Hello

Hi all I not been on for a while but thought I'd just say Hello. No changes with me more good news thought I had Apnea which is common with COPD but no all normal my sinuses mimicking symptoms. Now the weather getting better getting out more back on my …

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธโœณ๏ธVEGGIE RELISHโœณ๏ธโœด๏ธ1 cup chopped dill pickles1/2 cup chopped red onion1/2 cup chopped yellow bell pepper 1/2 cup chopped orange bell pepper 1 medium cucumber, chopped 1/2 cup frozen corn kernels, thawed 1/2 cup cider vinegar 1/2 tsp. dry...

3 days ago

Crazybird

Crazybird

Ok so i was diagnosed with COPD 2021, have had medication for it for the last 5 years. Had to have a lung function test yesterday, then see a new dr at the hospital. He said i havent got copd or asthma, it could be an allergy of something like grass, cats, pollen, etc. If thats the case why have i been taking medication for it, and to be told yesterday to carry on taking it??

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday! Nothing but smiles here! ๐Ÿ˜ƒ
Start your day in a happy way! So much to look forward to! Enjoy every minute, friends! ๐Ÿ˜€

3 days ago

lazy t

lazy tasked the question: Long time copd patient with cronic hiccups! How to fix it.

For three days, my diaphragm has been busy with hiccups. Enough so that I am sore from them. Today, I have had five different bouts. I have tried all the folk remedies. Some of them work sometimes, but soon there is another round. I know the location of …

3 days ago

SarahR4582

SarahR4582

Hello all -- My grandma has COPD, emphysema, and CHF.  She is home on hospice care after her most recent bout of pneumonia which kept her in the hospital for over 2 weeks.  My mom is her primary caregiver and she has health issues of her own.  She has very active Crohn's Disease and all the stress of helping to care for my grandma is impacting her condition negatively too.  I help out as much as I can but it always feels like it's never enough.  I am so worried about both my mom and my grandma.  I grew up living next door to my grandma and she has always been one of my biggest influences in my life.  My mom is my best friend and does so much for so many.  I work full time, have a 17 year old son who is heavily into sports, and I feel like I need to do more but I feel stretched so thin all the time.  Ugh.  I guess I am just sharing what I have going on and I know many people here will understand that feeling of never doing enough for those you love and treasure dearly.  I balance my grandma's checkbook, pay her bills for her, take her taxes to get filed, cut her nails when my mom's hands are too shaky..... but it still feels like I am failing them both.  Thank you for taking the time to read my venting session.  It's not venting really..... just getting what consumes my thoughts out of my head.

3 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Caroline West Virginia State CaptainI understand that you feel that you should do more, but remember that you are just one person and can only stretch so far.3 days ago
  • Jamie Jarrard (COPDF Sr. Communications Specialist)Oh Sarah, you are not failing AT ALL. I know this feeling so well. My dad has COPD, and it's SO hard maintaining regular life with everything involved. It can be so utterly draining, I've also felt like I am failing and can't do/be enough. 
    But I can tell you with confidence, you are doing amazing, and you are enough. It sounds like you're holding quite a bit for your family, and I'm positive they feel safe and supported by you. Speaking as a caregiver, I know how hard it is to take a break (that feeling of "if I'm not there doing it all, it's all going to fall apart"). But if you can find some time, even in little 15 minute chunks, try to take some time for yourself to refresh. It's so hard to pour from an empty cup. You deserve care and rest too, friend. I'm glad you're here ๐Ÿ’™3 days ago
  • Lucy kHello all I am Lucy k from Wellington New Zealand.   As I read through your comments I am so happy that I have found you  all .  I have severe COPD,  I am aged 71 years and on oxygen therapy.   I work from home five days a week and do my nest to keep positive sometimes that is hard Thankyou for all your wise words.16 hours ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.