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Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ˜„ Letโ€™s Laugh Day is here! ๐Ÿ˜„

If thereโ€™s one thing we know, itโ€™s that laughter really can be good medicine. It might not fix everything, but it sure can make the day feel a little lighterโ€”and sometimes thatโ€™s exactly what we need.

Living with COPD, bronchiectasis, or NTM (or caring for someone who is) comes with its momentsโ€ฆ so today, letโ€™s take a break and share a laugh together.

Drop something in the comments that made you smile:
๐Ÿ˜‚ A funny story
๐Ÿถ A silly pet moment
๐Ÿ“บ A joke or favorite show
๐Ÿ™ƒ Or one of those โ€œyou had to be thereโ€ moments

Your turnโ€”whatโ€™s something that gave you a good laugh recently? ๐Ÿ‘‡

9 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŽ™๏ธ Your Story Could Help Someone Else

One of the most powerful things about our community is the stories we share with each other. The experiences, challenges, little victories, and lessons along the way can mean so much to someone who may be going through the same thing.

As we work on refreshing the COPD Foundation podcast, weโ€™re adding a new segment where we highlight stories from people living with COPD or other lung conditions, as well as caregivers.

If youโ€™d like to share part of your journey, we would love to hear from you. Your story can be shared anonymously on the show if you prefer.

You can send your story to:
๐Ÿ“ง  share@copdfoundation.org

It could be about something that helped you, a challenge youโ€™ve faced, advice for others, or even a moment that gave you hope. Sometimes hearing that someone else has walked a similar path can make all the difference.

If youโ€™ve ever thought, โ€œMaybe my story could help someone,โ€ this is a wonderful way to do it.

4 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Goodness, CVS Specialty Pharmacyโ€”after all this time, why donโ€™t you understand that drugs patients administer themselves are part D as in Delta, NOT part B as in Beta of Bravo. Clearly this has been the rule on injectable drugs but you say it will take you an extra 7-20 days to figure it out. Ok, but meanwhile, you give patients stress and  concern that they may have to pay nearly $800/mo or more as copays?!?!?!  Yikes!  I wish we could use a different service & pharmacy but am not sure it would get better. 

44 minutes ago

BomBy

BomBy

Hey everyone! I just wanted to update you all and let you know I had Pulmonary testing done yesterday (no results yet), but had a CT of lungs done today which showed no lung issues at all, no more hyperinflation, nothing. It had to have been the dust and massive inflammation that has since gone away. (All it showed was a 6mm kidney stone I was unaware of haha). I cannot believe it.  Thank you all for helping me through the horrific anxiety I have had with this going on. I am praying for all of you and easy breathing. I am sad to be leaving such wonderful people, and cannot say thank you enough. Hugs to you all and I wish you all the best. XoXo

2 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Are there more options for plane travel and batteries?

Ask for a wheelchair to push you mom (even if she doesnโ€™t normally need one). This allows her to use as little O2 as possible before and after the flight. All US airlines will supply a wheelchair and pusher upon request. You can get it from the ticket …

3 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Dad with stage 4 COPD

I am so sorry to hear about your father. Like Dave, I am just a patient, but I understand the huge mental burden COPD places upon the person. Your father has had an added emotional burden from the death of your mother. Just be there for him is about all …
das23 also answered the question das23 also answered the question

5 hours ago

Huff and Puff

Huff and Puffanswered the question Storing oxygen tube when temporarily not in use.

Insert the prongs into an O2 Fresh nasal cannula cover to keep them clean and use the handle to hang the tubing.
Karen Deitemeyer - Florida State CaptainJohn in OregonCaroline West Virginia State Captainand 3 others also answered the question Karen Deitemeyer - Florida State Captainand 5 others also answered the question

8 hours ago

Community Announcements

Community Announcementsadded a new article Pennsylvania semi-truck driver visits Capitol Hill to raise awareness of COPD

Driver's cab designed for COPD awareness is inspired by his wife, who lives with the disease

Miami (March 19, 2026) - Tom Manges, a semi-truck driver from Pennsylvania, has outfitted his truck's cab to raise awareness of chronic obstructive pulmonary disease (COPD). Manges has driven his COPD-wrapped semi for 2.5 years.

Manges' latest stop with his truck was on Capitol Hill during the COPD Foundation's IMPACT Lung Health advocacy event on March 18. IMPACT allows people with COPD, caregivers and health care professionals to network and meet with their members of Congress.

Manges, who serves as an advocate on behalf of the COPD Foundation, was inspired to use his truck to raise awareness of COPD after seeing how the chronic lung disease has impacted his wife, Renee, over the past decade.

9 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„CREAMY RICE PUDDING๐Ÿฅ„ Makes a lovely Easter dessert!1 1/2 cups cold water3/4 cup uncooked white rice 2 cups milk, divided1/3 cup sugar1/4 tsp. salt 1 large egg, beaten2/3 cup golden raisins1 tbsp. butter1/2 tsp. vanilla...

11 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainOh, what a wonderful Thursday! So many reasons to be grateful! 
What are you thankful for? I am thankful for having the means to manage my condition! Therefore, I keep rollin' along and moving forward! ๐Ÿ˜€

15 hours ago

Community Announcements

Community Announcementsadded a new article More than a Caregiver

This post was written by Arnelle Konde, MPH, CHES.

Caregiving is more than a list of tasks โ€“ it's a profound shift in love. We spoke with a longtime advocate about her journey caring for her father through COPD. From navigating the emotional weight of role reversals to finding meaning in the hardest days, she shares what it really looks like to walk the path of a family caregiver.

Karen Anzalone serves as the New York State Captain for the COPD Foundation. Her role is driven by a very personal mission. In 2010, she lost her father, John Ferrara Jr., to COPD. After his death, Karen turned her grief into a lifelong commitment to advocacy for people with COPD. Karenโ€™s work spans from local community outreach to meetings with lawmakers. One of her biggest successes was helping bring her representative, U.S. Congressman Steve Israel, into the Congressional COPD Caucus. By connecting care with public policy, Karen keeps her fatherโ€™s memory alive through her advocacy.

19 hours ago

Hellis

Hellisasked the question: Dad with stage 4 COPD

New to this. Hi. Here for my dad, 78 years olds, stage 4 COPD. I've been doing a lot of research on COPD over the last week and found this site. A couple months ago he could walk very short distances and he wasnโ€™t using his portable oxygen (he refused …

20 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Am I eating wrong, keep loosing weight?

I had to rethink eating healthy in order to gain weight. No more low fat cottage cheese and milk. My doctor made a rule that I was to eat peanut butter on every slice of bread that I ate. Eat some cornbread with those pinto beans.
GAnneLiza MCoach Brandon - Community Manager also answered the question GAnneand 2 others also answered the question

22 hours ago

Fer

Fer

Fare

1 day ago

KAK

KAKasked the question: Are there more options for plane travel and batteries?

Hi! My mom and I are taking a flight in a few weeks. We have rented additional batteries for her portable concentrator from her supplier- should be enough as long as we are not delayed, etc. This is where we are worried- the airports are reporting TSA …

1 day ago

netmouse

netmouseanswered the question CO2 retention

K. - You seem to be a bit in denial. The standard blood test with CO2 given in the ER and when I have a complaint with my primary doctor is called the Comprehensive Metabolic Panel.
Caroline West Virginia State Captain also answered the question Caroline West Virginia State Captain also answered the question

1 day ago

netmouse

netmouseanswered the question CPET

J - get a second cardiac opinion. You want the specialist for the heart's electrical parts, an electrophysiologist (EP). The have much more education about the heart. Think about going to a major medical center that is highly rated for the heart like …
David Mannino, MD (Chief Medical Officer, COPD Foundation )JHutton94 also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 1 other also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerGuess what day it isโ€ฆ ๐Ÿ‘€๐ŸŒŽ๐Ÿ“ธ

Itโ€™s VMCotWW -- Visit My Corner of the World Wednesdays!

Time to take a little break and share a glimpse of your world - whether itโ€™s something peaceful, beautiful, or just something that made you smile today.

Iโ€™m sharing a sunset from Sedona, AZ, one of those views that just makes you pause for a second and take it all in. ๐ŸŒ„

Now itโ€™s your turnโ€ฆ what does your corner of the world look like today? Drop a photo below - weโ€™d love to see it! ๐Ÿ“ทโœจ

1 day ago

GAnne

GAnneasked the question: Am I eating wrong, keep loosing weight?

good morning I apologize if this is going to be long. I continue to lose weight. I am down to 118 pounds. I have lost 15 pounds since January but I used to weigh 155 pounds six months ago. Iโ€™m trying to eat like they say we should eat. Healthy I eat …

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐Ÿ“FRUIT INFUSED WATER๐Ÿ“๐ŸŠ1 large orange, sliced 6 strawberries, sliced 10 mint leaves 4 cups cold waterFor this recipe, you'll need a mason jar that holds one quart or more.Place the orange and strawberry slices, and the mint leaves in the...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHave a simply wonderful Wednesday! The simple things are the best things, folks! ๐Ÿ˜Š

1 day ago

Kmcnamara68

Kmcnamara68asked the question: CO2 retention

So now in addition to my o2 level randomly dropping, I'm worried that I'm retaining co2. Sometimes even when pulse ox is good I feel sometimes dizzy, etc. Is this likely with normal dlco and no presence of emphysema? I am going for nuclear stress test of …

1 day ago

eric63

eric63answered the question How do you know your COPD is getting worse?

I have COPD and have been prescribed Advair 250/50. Over time, my COPD breathlessness increased. Thatโ€™s when I started to use an Albuterol inhaler on a daily basis around three times a day. When I walk my dog in the morning and in the late afternoon, and …
Richard DJWildebeestCaroline West Virginia State Captainand 3 others also answered the question Richard DJand 5 others also answered the question

2 days ago

eric63

eric63answered the question Frequency of Albuterol (rescue inhaler)

Before COPD, I used to work out on a regular basis and also play tennis. After I was diagnosed with COPD, I was prescribed Advair 250/50. I can no longer run or even jog but I can still walk my dog twice a day, around 15 minutes in the morning and 30 …
DebbieB.-Connecticut State CaptainJean IA State Captaincampbell67and 1 other also answered the question DebbieB.-Connecticut State Captainand 3 others also answered the question

2 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Diagnosis

Everyone is unique and sometimes clear cut answers are difficult to get. Virtually everyone with MAC has bronchiectasis. About 50-60% of people with bronchiectasis have MAC. Most people with bronchiectasis have lung function impairment- with 30-50% being …
JeanO53Jazzybeannetmouseand 2 others also answered the question JeanO53and 4 others also answered the question

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainPlease join us tomorrow, Wednesday, March 18, 10-noon Hawaii Standard Time (4-6pm Eastern) for a Zoom Support Group Meeting! More information here--www.hawaiicopd.org/join-great-discussions-about-lung-health/. Please register here to get zoom link reminders sent to you. www.hawaiicopd.org/hawaii-copd-event-registration/. Hope you can join us, every 3rd Wednesday of the month.

2 days ago

Tammy55

Tammy55answered the question Is wheezing a common symptom?

COPD, tracheitis, acute chronic bronchitis. Wheeze often - that means it can happen at all times - every day, 24-7.. That when i know it is time to get a nebulizer of Duo-Neb - (ipratropium - albuterol). ( Also take Budesonide twice a day) Time to set …
TonicDkCaroline West Virginia State CaptainDebbieB.-Connecticut State Captain also answered the question TonicDkand 2 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฅญMANGO SLAW๐Ÿฅญ1/2 cup olive oil 2 tbsp. honey1/2 tsp. celery seedSalt and freshly ground black pepper to taste 1/2 cup chopped cilantro Juice of 2 limes2 large ripe, but firm mangos, thinly sliced2 scallions, very thinly sliced2 mini...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's Terrific Tuesday! Today is a good day to set your mind to everything brilliant and bright! ๐Ÿคฉ Enjoy your day, and keep on smiling friends! ๐Ÿ˜€

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ—ป๏ธTUSCAN WHITE BEAN SKILLET MEALโ—ป๏ธ1 tbsp. olive oil1 cup diced onion1/2 cup sun-dried tomatoes packed in oil, drained and chopped 4 cloves garlic, minced Two 14.5-ounce cans cannellini beans, rinsed and drained One 14.5-ounce can diced tomatoes and...

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.