COPD360social welcomes new member azbobs who joins 63,606 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ To the Caregivers ๐Ÿ’™

We see you. The late nights, the constant worry, the small acts of kindness that often go unnoticed--you are such an important part of your loved oneโ€™s journey with COPD or bronchiectasis.

Caregiving is not easy, and itโ€™s okay to admit that it can be overwhelming at times. But please remember, you donโ€™t have to carry this all on your own. The COPD Foundation has resources created to help make your role a little lighter:

โœจ Guides and action plans to help you feel more prepared when symptoms change.
โœจ Educational tools to give you confidence in daily care.
โœจ A community where you can connect with others who truly understand.

Most of all, know this: your care makes a difference. The love and support you provide are powerful, even on the hardest days. And just as you care for your loved one, itโ€™s important to care for yourself, too. ๐Ÿ’™

You are not alone--weโ€™re here to walk beside you.

2 days ago

azbobs

azbobs

Struggling to breath so tired if this

22 minutes ago

cac

cacanswered the question Trelegy and eye issues

I got a presc for Trelegy but never took it because of the side effects. I know doctors say they are rare and some doctors say they have patients with no side effects, I choose not to use it. Plus it is a steroid and I read that it increases shingles by …
bpdubyaKaren Deitemeyer - Florida State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question bpdubyaand 2 others also answered the question

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy National Pet Bird Day from DebbieB. and her 14 pet birds! ๐Ÿ˜๐Ÿคฉ

4 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manageranswered the question Trelegy 200mcg/62.5mcg/25mcg and Sodium Chloride Inhalation Solution USP, 3% 4ML by Lifestar

Hi cac, thank you for your generous offer, it would be better to look into donating locally, below is information on a charitable pharmacy that accepts unopened donation of medication, and it would be good for you to connect with them, information below: …

5 hours ago

cac

cacasked the question: Trelegy 200mcg/62.5mcg/25mcg and Sodium Chloride Inhalation Solution USP, 3% 4ML by Lifestar

I have these 2 prescriptions that I won't use. Wondering if I could send them to someone who would use them. They would have to pay the shipping charge only, from Cleveland Ohio. The pharmacy won't take back, never opened, and I won't use a steroid and …

6 hours ago

brydy

brydyanswered the question Worst pain ever?

Im sorry you are struggling w all you are going through. I dont know what would be causing that pain as Ive never experienced it in my own journey. you mentioned having served & I am wondering if you could reach out to the VA (if you havent yet) for …
Caroline West Virginia State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question Caroline West Virginia State Captainand 1 other also answered the question

7 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

9 hours ago

45yrcopdasthma

45yrcopdasthmaasked the question: Worst pain ever?

It's like it's deep in my lungs. Definitely an innate immune response. Can't catch a break, just taking prednisone 6.25 mg daily. Have to see a speach pathologist before anyone will try any further medications. What a load of twaddle. Vocal chord …

10 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Thanks again, Karen! I will be preparing this sometime soon! Can't wait to try it! ๐Ÿ˜‹...

11 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Thanks for posting this, Debbie. I made it a couple of night ago and since it's only me, I put only 4 chicken pieces in, but didn't cut down the rest of the ingredients because I wanted plenty of the sauce. But - yesterday when I opened my 'fridge...

12 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Today's Eating Well recipe is brought to you by our very own Karen Deitemeyer! ๐Ÿ˜ƒ Thank you Karen, for a very nice meal idea! We look forward to preparing and enjoying this! ๐Ÿ˜€ โœด๏ธCROCK POT MANDARIN CHICKENโœด๏ธ1 large yellow onion, chopped into medium...

12 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday, folks! Stand tall, and stand proud! Yes, you are very cool ๐Ÿ˜Ž because you are here on 360Social,  THE place to be, to learn about COPD, and to make new friends! 
Wishing everyone an AWESOME day! ๐Ÿ˜ƒ

17 hours ago

Minnie Mom

Minnie Mom

Struggling with low mood

23 hours ago

JD85

JD85answered the question Spirometry test-Is this test ok?

In the UK to get DLCO etc you will need a full PFT in a hospital setting not just a spirometry which you get at your local GPs or privately, I didn't get my DLCO and lung volumes until a full PFT. Your GP can refer you for this. Your DLCO can tell you …
Karen Deitemeyer - Florida State CaptainDanforth55DebbieB.-Connecticut State Captain also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

1 day ago

Joanne C

Joanne C

Hello.  I'm on Breztri and Albuterol. I use Albuterol 2-4 times daily,  sometimes nebulizer, sometimes inhaler with spacer.  I'm on oxygen 2.5 liters, not 24-7 but as needed,  i also use a non invasive ventilator every night with 2.5 liters O2.  My Dr. wants me to try Ohtuvayre. Waiting for approval.  Is there anyone here using that with Breztri? Are you getting good results?

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Long, hose

Your O2 provider should supply you with these shorter lengths of tubing AND swivels upon your request at no extra charge as part of supplying you O2. Shorter tubing and swivels make all the difference. The stiff connectors that donโ€™t swivel are NOT …
Caroline West Virginia State CaptainGAnne also answered the question Caroline West Virginia State Captainand 1 other also answered the question

1 day ago

22

22commented onWhen is an Exacerbation Worsening COPD?

Exactlyโ€”spot on! ๐ŸŒŸ Recognizing changes early and reaching out for help can make a huge difference in managing COPD. Acting quickly not only lowers the risk of flare-ups but also helps protect long-term lung health. ๐Ÿ’™...

1 day ago

22

22commented onMove More, Breathe Better: The Link Between Movement and Lung Health

Thatโ€™s a wonderful initiative! ๐Ÿ’™ Regular movement really does make a differenceโ€”not only for fitness, but also for lung strength and overall well-being. Great to see organizations encouraging people to take simple, positive steps for better health....

1 day ago

Joanne C

Joanne C

Hello! I've just joined.  I'm 60 yrs old with COPD. 

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Signs point to COPD, told asthma.

Your spirometry is normal, but you do have air trapping- which might be a sign of early emphysema. It would be worthwhile checking an Alpha 1 level (to be sure you do not have genetic emphysema) and a sweat test ( for cystic fibrosis), and get some …
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Thanks, brydy! And, thanks for the tip about the bok choy! I'm sure it would be a delicious choice! ๐Ÿ˜‹ ...

1 day ago

brydy

brydycommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

this sounds good Debbie. as a spinach lover I will try this. I bet it would be good substituting bok choy for the spinach too. ...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ’š๐ŸŒฟFOR THE LOVE OF SPINACH๐Ÿ’š๐ŸŒฟ1 1/2 pounds fresh spinach, cleaned and dried1 large navel orange2/3 cup olive oil 2 cloves garlic, very thinly slicedSalt to taste Cut the orange rind into 1-inch strips, getting some of the pith and fruit as you...

1 day ago

Anonymous

Anonymous

I'm a bit low and haven't been out. Doors in fe wks 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWe've got the ๐Ÿ’ฅPOWER๐Ÿ’ฅ! We pull our strength from within. We have the power to fight for coverage of our prescription medications, ๐Ÿ’ช the power to choose a good pulmonologist, ๐Ÿ’ช the power to learn that we can't always say yes, ๐Ÿ’ช and the power to become educated, and pass our knowledge on to others. ๐Ÿ’ช
In the words of DebbieB.- Keep calm. Stay strong. Carry on! Just keep on going...๐Ÿงก๐Ÿ’™

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

The Food and Drug Administration (FDA) has approved Brinsupriโ„ข (brensocatib) for the treatment of non-cystic fibrosis bronchiectasis (NCFB) in adult and pediatric patients aged 12 years and older.  Is this new, or am I behind the times?

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.