COPD360social welcomes new member RSguitarist who joins 65,521 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Boys and Men Are Struggling in Silence ๐Ÿ’™

This is a topic that has been on my mind lately.

Working with our communities, I have the privilege of talking with people from all walks of life. Some days, those conversations are full of laughter and victories. Other days, they're a reminder that many people are carrying far more than anyone realizes.

Many boys and men are taught to push through, stay strong, and keep their worries to themselves. They take care of others, solve problems, and try not to be a burden. But sometimes that means carrying stress, fear, loneliness, anxiety, grief, or depression in silence.

Living with a chronic lung condition can make that even harder. There are concerns about health, changing abilities, finances, caregiving responsibilities, relationships, and the uncertainty that can come with a diagnosis. Those things can weigh heavily on anyone.

The truth is, you don't have to be in crisis to be struggling.

Maybe you're tired.
Maybe you're worried.
Maybe you're feeling isolated.
Maybe you're just having one of those days where everything feels a little heavier than usual.

If that's you, you're not alone.

One thing we've learned from this community is that connection matters. Sometimes it's a phone call. Sometimes it's sharing a photo. Sometimes it's joining a conversation, attending a support group, or simply reading posts and realizing someone else understands exactly what you're going through.

Strength isn't pretending everything is fine.

Sometimes strength is saying, "I'm having a tough time right now."

So today, let's check in with each other.

๐Ÿ’™ What helps you get through the difficult days?
๐Ÿ’™ What helps you stay connected when you're feeling isolated?

We're glad you're here!

2 days ago

  • NewestOldestClick to View All Comments8 comment(s)
  • brydythat was my Dad too Karen & I think is true of many who served. He never talked about it but I learned some from his Mum & found a photo album a few years ago w his unit. I think their time there were so horrific they just had to shut it out as best as they could. im sorry your husband went through it but am glad he had you, silent support is important, understanding without words. ๐Ÿฅฐ2 days ago
  • Coach Brandon - Community ManagerThe truth is, you don't have to be in crisis to be struggling.

    Sometimes it's not a major event. Sometimes it's the stress that keeps building, the worry you carry quietly, the loneliness that creeps in, or simply feeling exhausted from trying to hold everything together.

    If you're having a difficult time, please know that reaching out for support is a sign of strength, not weakness.

    If you need someone to talk to, call or text 988 anytime in the United States to connect with the Suicide & Crisis Lifeline. If talking feels difficult, you can also text and communicate that way.

    And if you're not in crisis but could use a friendly conversation, consider reaching out to a trusted friend, family member, support group, healthcare provider, or someone here in our community. 


    Sometimes the most important step is simply letting someone know you're carrying a little more than usual.
    You matter. Your story matters. And you don't have to carry it all by yourself. 1 day ago
  • Phyliss DiLorenzo NJ State CaptainExcellent post, Brandon. I have known many men like this.  My father, colleagues and patients in my mental health career, and many others.  Thank you for this post.1 day ago
Misty Green COPDF Research

Misty Green COPDF ResearchAttention- CAREGIVERS and PATIENTS

Take the
Survey: Exploring the Unmet Needs of Patients with Serious Respiratory Illness
and Their Caregivers

Whether you are a person living with a respiratory illness
or caring for someone who is, your perspective makes a real difference. Living
with these conditions can be challenging, and the voices of patients and
caregivers are important. By taking part in this survey, you help others
understand what kinds of care and support matter most. The information you
share will help doctors, nurses, and health leaders improve respiratory care
around the world.

The survey should take about 20 minutes to complete, and
itโ€™s best to finish it in one sitting.  
Take the survey: https://redcap.musc.edu/surveys/?s=LLLEYFNX8D44D7D4

4 days ago

RSguitarist

RSguitarist

Hello, I'm a 52-year-old male recently diagnosed with mild emphysema after a chest CT that was looking at my armpit (which is ok). I am very active physically, averaging 10k-15k steps per day w/ light weight lifting a few times per week. 6'3", 215 lbs. I have long struggled with health anxiety, my father died of a heart attack at 41, and my mother had stage 4 COPD when she passed at 71. I have never used tobacco, but did use marijuana for ~25 years in my social circle, and as a means to deal with anxiety. At this time I am asymptomatic, I have no physical limitations; however, often when I am sitting I become very aware of my breathing and feel like it is more laborious than it should be. When I'm standing, moving, sleeping, or "distracted" I have no issues. I'm hoping that's an anxiety thing, as I have dealt with anxiety based air hunger issues in the past. Anyway, I am overwhelmed by the idea that I am facing this progressive disease with a reduced life quality/expectancy, and what the next years will bring. I came here for information and encouragement, and to read about real life experiences. My PCP does not seem concerned, has not referred me to a pulmonologist, and has simply advised me to never smoke marijuana again, and live a healthy lifestyle. Anyway, that's me, thank you.

1 hour ago

  • NewestOldest
  • DebbieB.-Connecticut State CaptainWelcome to our community!
    First let me say that smoking anything is not a good idea at all.
    Yes, anxiety can cause problems with breathing. So can being overweight, and so can some heart issues.
    Have you ever had a pulmonary function test? 
    Your primary care physician can discuss an exercise program that is right for you. They can refer you to a dietitian/nutritionist, to help you choose healthy foods.
    Try your best to focus on the good things in your life. Worrying won't make what you're worried about go away. Could make it worse!
    Many members here are living good lives in all stages of COPD, myself included!
    Please take some time to read our posts. Also, click on the LEARN MORE tab at the top of the page. Plenty of reliable information there!
    We're happy that you have chosen to join our group! ๐Ÿ˜€1 hour ago
  • Caroline West Virginia State CaptainI am 82 years old and up until a month ago, when I finally found reliable help) I did all of my housework, raised vegetables in raised beds, tend several flower gardens and planters around the property.  I am still physically active and mentally alert.  I do my own grocery shopping and attend local concerts.  I write a weekly column and a monthly column.  


    I do not think that this is a diminished life for someone 82 years old.  I am on oxygen 24/7 and many things that I do require a little bit more planning, but I still do them.26 minutes ago
GAnne

GAnneanswered the question I am Wondering if anyone is using the injection of dupixent and if so is it helpful for better breat

Update on using dupixent. My dr took me off of it for 3 weeks since i had gotten bronchitis. However, I noticed it really dried out sinuses, so I will be discussing more detail when i see him next week. It was almost like it stopped all mucus but helped …
Bare also answered the question Bare also answered the question

1 hour ago

GAnne

GAnneanswered the question Dry lips cracked in corners

Thanks everyone, I do eat yogurt and I had the burtโ€™s bees lip balm that I stopped using, but got it out the other day and started using it again. Today my lips feel better. I did notice that while i was on my walker pad that pursed lip breathing seemed …
HIcopd - Hawaii State CaptainJeanO53DebbieB.-Connecticut State Captain also answered the question HIcopd - Hawaii State Captainand 2 others also answered the question

2 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainOne of the babies.  The other twin is completely camouflaged in the flower bed with the red mulch.  I can't see it unless it moves and I know where it is.


Your wish is my command, DebbieB.

2 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State CaptainMama looking at me through the window.

3 hours ago

possumdan

possumdan

well, i'm still above ground.  Trying to find out how to order Trelegy from Canada for $150 instead of $700 from cvs.

7 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends!
I hope your day will be a nice blend of everything refreshing and filled with goodness!
Enjoy today, and look forward to tomorrow! ๐Ÿ˜€

16 hours ago

Bob puff dragon

Bob puff dragonMay the best day you have ever had be just a moment away,big deep breaths for all.

19 hours ago

Bob puff dragon

Bob puff dragon

Debbie l was looking at your flowers and was reminded of a song by Bob Thiele from the sixties recorded by Louise Armstrong.
Think these days we need a little more Louise and a lot less kid rock.
To refresh
I see trees of green
Red roses too
I see them bloom
For me and you
And l think to myself
What a wonderful world


May you have many more days of peaceful gardening and sharing your photo's with the group.

1 day ago

GAnne

GAnneasked the question: Dry lips cracked in corners

Good afternoon everybody, what is everybody using for dry lips with cracked corners that will help them. Appreciate your help thank you.

1 day ago

Bob puff dragon

Bob puff dragonHope we can all handle the challenges of this day and if it's a bad one hold on till a good one comes along.

1 day ago

Community Announcements

Community Announcementsadded a new article How COPD Affects Menโ€™s Health

This article was written by Kalli Mago.

Studies show men often wait to see the doctor until they have severe symptoms,1 but getting a diagnosis earlier can make a big impact on COPD and other chronic conditions.2

One survey shared that 72% of American men would rather clean the bathroom or mow the lawn than go to a doctor's appointment. Only half said they would see the doctor for a yearly check-up.

In honor of Men's Health Week, we're highlighting health issues that impact millions of men worldwide. This includes common health problems that affect people who have COPD. If you recognize any of the symptoms, talk to your doctor and get the care you need to support your health.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒน Fluffy Friday Meets Red Rose Day ๐ŸŒน

Happy Fluffy Friday and Happy Red Rose Day!

Today, we're celebrating two things that can brighten almost any day: beautiful roses and our beloved furry (or feathery!) companions. ๐ŸŒน๐Ÿถ๐Ÿฑ๐Ÿฆ

Living with COPD, bronchiectasis, NTM, or caring for someone who does, can sometimes make life feel a little overwhelming. That's why those simple moments matter so muchโ€”a flower blooming in the garden, a wagging tail, a gentle purr, a curious bird, or a nose nudging us to take a break and smile.

So today, let's fill the community with a little extra color and joy!

๐Ÿ“ธ Share a photo of:
๐ŸŒน Your favorite rose or flower
๐Ÿพ Your pet enjoying the day
๐ŸŒน๐Ÿพ Your pet posing with flowers
โค Or anything that brought a smile to your face this week

Sometimes the best medicine isn't found in a bottleโ€”it's found in moments of beauty, connection, and the companions who stick by our side through it all.

We can't wait to see your photos! ๐ŸŒน๐Ÿพ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธFROZEN FRUIT SMOOTHIEโ—€๏ธ 1 large banana, sliced and frozen 2 cups frozen strawberries, raspberries, or cherries1 cup milk of your choice 1/2 cup vanilla yogurt 1/2 cup freshly squeezed orange juice 2 tbsp. honeyPlace all ingredients in a...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday, friends!
Here's a close up and personal shot of my cat Punkie. So, so silly! ๐Ÿงก
We are looking forward to seeing pictures of your favorite animal friends!
๐Ÿฆ๐ŸฆHave a wonderful day!๐Ÿฆ๐Ÿฆ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainThis is SO me...

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerWelcome to the COPD360social Yearbook 2026: The Class of Perseverance. ๐ŸŽ“๐Ÿ“ธ๐ŸŒŸ

This week for Visit My Corner of the World Wednesday, we took a fun trip down memory lane. Members shared graduation photos, yearbook pictures, personal achievements, and milestones that have meant something special along their journey.

From high school memories to health and wellness victories, each photo tells a story of perseverance, growth, and determination. While the years, experiences, and paths may be different, it's amazing to see how those journeys have brought us together as a community.

A big thank you to everyone who shared a piece of their story. We loved seeing these snapshots from the past and celebrating the accomplishmentsโ€”both big and smallโ€”that continue to shape who we are today.

๐Ÿ’™ Different years. Different journeys. One community. ๐Ÿ’™

2 days ago

Canders

Canders

Just joined the group looking forward to reading everyoneโ€™s tips on how to cope with this. I work on a commercial fishing boat in Alaska as a captain. So I sit for mostly of my 16 hour shift. I make myself get up and walk and climb as many stairs as possible.  The scary part for me that brings the anxiety is I am hundreds of miles offshore  not real close to medical help. My pulmonologist has prescribed me trellegy and a rescue inhaler. I have not smoked a cigarettes in ten days was a heavy smoker for 25 years 52 years old. The worst part of the whole day for me is getting up in the morning takes a long time to catch my breath causing anxiety. Gets a little better throughout the day. Any tips on sleeping position or different routines would be greatly appreciated ! Hoping that I can learn to live with this continue working and enjoy  sort of the same lifestyle. Glad i joined looking forward to reading everyoneโ€™s stories and tips!

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ—ป๏ธโ—ฝ๏ธFROZEN YOGURT BARKโ—ฝ๏ธโ—ป๏ธ2 cups whole milk vanilla yogurt 1/2 cup diced strawberries 1/4 cup blueberries 1/4 cup granola of your choiceLine a 13 x 9-inch rimmed baking sheet with either waxed or parchment paper. Pour the yogurt onto baking...

2 days ago

Bob puff dragon

Bob puff dragonBig howdy to all the well wishes from yesterday especially you Brandon your sentiment was much appreciated,thank-you all my peeps.
Had all the grandkids around yesterday and watched the constant use of the cell phones,from everyone really not just the kids.
Let's travel back on Sherman's and professor Peabody's way back machine to a time when this was the norm....... 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello friends, and happy Thursday! 
Each and every one of you is special. A very unique, wonderful person! I hope you all know how important you are to me, and to this community!
Go ahead! Take a look in the mirror! You are beautiful! On the outside AND on the inside! ๐Ÿชž 
Thanks for being here with us! You are very much cared for! ๐Ÿ˜Š

2 days ago

Monpren

Monpren

I was diagnosed with COPD this week, and will be having a CT scan in a few days. It seems to be mild but Iโ€™ll know more after the scan. My pulmonologist already has me using a nebulizer and an inhaler, both of which have helped my dyspnea. Iโ€™ve been doing a lot of reading and am understanding what I have to do to manage this. My major concern is that I also have afib that is right now under control but could return. And some heart stiffening which resulted in an episode of diastolic heart failure last summer. I worry a lot about the interaction among these conditions. I quit smoking 30 years ago and am very active at 78z. Any advice?

2 days ago

  • NewestOldestClick to View All Comments4 comment(s)
  • MonprenMy PCP gave me a lung function test in January which showed obstruction. I did not believe it and it took me some time to get and see a pulmonologist. He confirmed it and ordered the CT to get more info. Also will do the 6 minute walk and another function test. I havenโ€™t seen my cardiologist yet, and am fortunate to not have high blood pressure. I am curious as to what meds your dr adjusted to lessen the risk of side effects.2 days ago
  • das23Welcome Monpren....Stay active and follow your doctor's advice. Read all the info in the LEARN MORE tab above. Lots of support here. Keep us posted2 days ago
  • Caroline West Virginia State CaptainHi Monpren, I am on Cardizem, Enalapril, and hydrochlorothiazide.  I had an atrioventricular ablation 30 years ago, but after a severe case of pneumonia in which I became septic 3 years ago, the body decided it needed to repair the connection.  At first it would almost fire, but not completely and then the connection was made and I once again have atrial fibrillation.  The Cardizem was added to regulate my heartbeat.


    We are all different, so this combination might not work for you.  I had mentioned it to let you know that there is a way to deal with the heart and the lungs successfully.  I hope that you have a good team who will keep your needs at the forefront.2 days ago
Monpren

Monpren

OK

2 days ago

AllanGD

AllanGD

how do i know if i have copd?

3 days ago

AllanGD

AllanGD

i am coughing

3 days ago

Bare

Bare

Where would I find other Alabama State Captains?

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

Which products were included in the recall?If youโ€™re concerned your pills may be affected, check your Gas-X product against the information listed below. (The lot number will be displayed both on the back of the internal blister pack and on the bottom of the box.) Recalled lots include:Gas-X Extra Strength Softgels, 120-count: UPC 300674350419; Lots TL8K, YH9X, and YH9Y; Expiration date of November 30, 2028; Distributed between April 13, 2026 and May 5, 2026Gas-X Extra Strength Softgels, 72-count: UPC 300439005721; Lot X78N; Expiration date of November 30, 2028; Distributed between May 4, 2026 and May 14, 2026According to the FDA, Haleon is notifying its distributors and customers and is arranging for the return of all recalled products. Haleon also reports that the root cause of the contamination has been identified and repaired, and measures have been taken to prevent it from happening again.What to do if you purchased an affected productIf your product matches one of the lots listed above, stop taking it immediately. To return the product and request reimbursement, contact Haleonโ€™s consumer relations team via email at mystory.us@haleon.com or phone at 1-800-245-1040.If you experience a related adverse event or become aware of one, you should contact your doctor first, then report the reaction to Haleonโ€™s consumer relations team. You can also report adverse events to the FDA using the agencyโ€™s online MedWatch Adverse Event Reporting program. (Those interested may also report events to the FDA by mail or fax.)

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.