COPD360social welcomes new member Morrigan who joins 65,933 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐ŸŒŠ๐Ÿ’ก Happy National Lighthouse Day! ๐Ÿ’ก๐ŸŒŠ

Thereโ€™s something pretty special about a lighthouse.

It doesnโ€™t calm the storm. It doesnโ€™t make the waves disappear. It simply keeps shiningโ€”a beacon that says, โ€œYouโ€™re not alone. Thereโ€™s land ahead. Keep going.โ€

And honestly, that made me think about our community. ๐Ÿ’™

Living with COPD, bronchiectasis, NTM, or caring for someone who does can sometimes feel like navigating some pretty rough waters. There are days when you know exactly where youโ€™re headedโ€ฆand others when youโ€™re just looking for a little light to help point the way.

Thatโ€™s where all of us come in.

Patients sharing what theyโ€™ve learned.
Caregivers reminding someone theyโ€™re not alone.
Healthcare professionals offering knowledge and guidance.
And community members simply saying, โ€œIโ€™ve been there. You can do this.โ€

Every time you share an experience, answer a question, welcome someone new, or offer a few encouraging words, you might be somebodyโ€™s lighthouse without even realizing it. ๐Ÿซถ

So on this Friday and National Lighthouse Day, hereโ€™s a fun question:

๐Ÿ’ก How can we be a lighthouse for someone else?

Maybe itโ€™s sharing something you wish youโ€™d known earlier. Maybe itโ€™s checking on someone. Maybe itโ€™s simply shining a little hope into somebodyโ€™s day.

And if youโ€™re the one looking for the light right now, keep looking this way. There are a whole lot of lighthouses here. ๐Ÿ’™๐ŸŒŠ

Happy Friday, everyone! โš“๐Ÿ’ก

3 hours ago

baileymccrary

baileymccraryHi all! Research institutions like universities and hospitals across the country are not receiving grant funds from the National Institutes of Health that they were already rewarded. These delays threaten lifesaving research, patient care, jobs, and scientific progress in our communities.

You can join the COPD Foundation in calling on our lawmakers to protect scientific research. Use this link to urge them to take action now! https://www.votervoice.net/COPD/campaigns/137619/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

4 days ago

LFAOMGA

LFAOMGAHappy Fluffy Friday Everyone ๐Ÿ˜Š My nephews first born child , a baby boy  named Cade, pictured here at 14 days old today, is lovingly being monitored by his doggy sister named Callie. She truly adores her newborn brother. And I am beyond happy being a Great Aunt again. 

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‹๐Ÿ‹LEMON ANGEL HAIR๐Ÿ‹๐Ÿ‹ "A nice summery Sunday meal..."Salt and freshly ground black pepper to taste 16 ounces angel hair pasta2 sticks unsalted butter Zest and juice of 2 large lemons1 lemon for garnishAdd some salt to a large pot of...

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from two of my  sister's cats, Miyagi and Johnny Rocket! We all wish you a wonderful, easy breathing day! ๐Ÿ˜Š

12 hours ago

Gooffy

Gooffy

Hi everyone new here I have had severe copd and thinking about getting the zephyr valve procedure hoping it improves my walking without being out of breath. I have had copd since 2019 and on oxygen 24/7. Do the treatments 3 times a day and of course 2 inhalers. So if anyone has had the procedure what should I expect and how long will I be off work. Any information would be appreciated thanks goofs

13 hours ago

das23

das23answered the question โ€‹Check In: Being Your Own Lung Health Champion

Thanks Arnelle. Great info
DebbieB.-Connecticut State Captain also answered the question DebbieB.-Connecticut State Captain also answered the question

20 hours ago

RickZ

RickZanswered the question Having taken Chantix years ago, I now fear taking Ohtuyvre

Ohtuvayre can take a while to start working. It started working for me in less than 24 hours with profound results. Fev1 went from 26% to 33%, it may not sound like a big improvement but it was huge for me. Absolutely no side effects for me!
Phyliss DiLorenzo NJ State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )HIcopd - Hawaii State Captainand 3 others also answered the question Phyliss DiLorenzo NJ State Captainand 5 others also answered the question

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

https://copdnewstoday.com/columns/mush-and-the-blessing-of-a-very-good-and-faithful-friend/?mc_euid=3932ecc9de&utm_source=COPD&utm_campaign=abab907ad2-Email_ENL_US_COPD&utm_medium=email&utm_term=0_23d08524e9-abab907ad2-74912421


For those who haven't read this, Caroline has written a wonderful article!
I love this article. Mush is an incredible friend to have! ๐Ÿฅฐ
Thank you, Caroline! ๐Ÿ˜Š

1 day ago

Bobmc

BobmcHope all is well with everyone.

1 day ago

Dusty4

Dusty4

was wondering if it is ok to take ohtuvayre if when you receive it from UPS it has a temp of over 98F was I n a shipment for over 4 days with high temps?

1 day ago

Arnelle Konde (COPDF Education Coordinator)

Arnelle Konde (COPDF Education Coordinator)asked the question: โ€‹Check In: Being Your Own Lung Health Champion

Taking an active role in your health is one of the most important things you can do when living with COPD or another chronic lung condition. You know your body better than anyone else. By staying informed, asking questions, and speaking up when something …

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒฟ๐Ÿ˜ Happy Fresh Breath Day! ๐Ÿ˜๐ŸŒฟ

Who knew there was a whole day dedicated to fresh breath? While it might make us smile, it's actually a wonderful reminder that caring for your mouth is an important part of caring for your whole bodyโ€”including your lungs.

When you're living with COPD, bronchiectasis, NTM, or another chronic lung condition, there's already a lot to keep track of. Medications, inhalers, oxygen, airway clearance, appointments... it can feel like there's always something on the list. But don't let your smile get lost in the shuffle!

๐Ÿชฅ Brushing and flossing regularly help keep your mouth healthy.
๐Ÿ’ง Staying hydrated can help with dry mouth, which is common with some medications and oxygen therapy.
๐Ÿฆท Regular dental checkups can help catch problems early and support your overall health.
๐Ÿ˜Š And let's be honest... a fresh, healthy smile just feels good!

Every small act of self-care matters. Whether it's remembering your inhaler, taking a short walk, practicing your airway clearance routine, or spending a couple of extra minutes caring for your teeth, those little choices add up over time.

Today, let's celebrate the little things that help us breathe easier, feel better, and keep smiling. ๐Ÿ’™

๐ŸŒŸ What's one small self-care habit you try to stick with every day? It doesn't have to be perfectโ€”just something that helps you take care of yourself. Your idea might inspire someone else in our community!

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ‡๏ธDILLED CHICKEN SALADโ‡๏ธ3 large boneless, skinless chicken breasts, cooked, cooled, and finely shredded1/3 cup mayonnaise 1/3 cup plain yogurt 1/4 tsp. salt 1/2 tsp. garlic powder 2 tbsp. finely minced shallots2 tbsp. finely chopped fresh...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
360Social is THE place to visit, and you know it will bring a smile to your face! ๐Ÿ˜€ Spread that sunshine and keep on smiling, everyone! ๐ŸŒž

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainLooks like results of RElIANCE study have been published, comparing Azithromycin with Rofumilast for COPD patients who exacerbate. 


https://www.uclahealth.org/news/release/ucla-study-compares-two-copd-treatments-guide-patient-care-10

UCLA study compares two COPD treatments to guide patient care

Multiple treatments are available for chronic obstructive pulmonary disease (COPD), but identifying which regimen best matches an individual patientโ€™s needs remains one of the biggest challenges in care. A new study from researchers at UCLA Health compares two treatment options aimed at preventing …

1 day ago

Jason41

Jason41

 New member here! Stumbled across this organization and decided to join! Iโ€™m living with COPD and I am currently on oxygen 24/7. Iโ€™m 41. 

2 days ago

Bobmc

BobmcGot pretend going out again today,wind is supposed to change tomorrow so the smoke will be back in the interior.
Both large air purifiers are going non stop and they really help for 
 sure

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainI'm hoping to see a lot of you at the 360Support Group/Harmonica Play-Along this afternoon at 4:00 PM Eastern.  If you haven't registered already, here's the link: The topic this month is Living Well with a Chronic
Condition.

https://copdf.co/360-social

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: 360Support Group/Harmonica Play-Along. After registering, you will receive a confirmation email about joining the meeting.

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŽ๐Ÿ“ธ Visit My Corner of the World Wednesday! โ˜€๐ŸŒป

Summer is in full swing, and for many of us that means sunshine, green landscapes, blooming flowers, family adventures... or maybe just finding a cool place to relax. For others, the heat or smoky skies have made it harder to get outside.

No matter where you are today, we'd love to visit your corner of the world.

Share a photo of anything that brings you a smile or reminds you of summer. It could be:
๐ŸŒผ A favorite flower or garden
๐ŸŒ… A beautiful sunrise or sunset
๐ŸŒณ Your backyard or favorite shady spot
๐Ÿพ A furry friend enjoying the season
๐Ÿšœ A vacation memory or a favorite place you've visited
๐Ÿก Or even a special photo from years ago that brings back wonderful summer memories.

Every picture tells a story, and every story helps us get to know one another a little better.

So, where are we visiting today? We can't wait to see your corner of the world! ๐Ÿ’™๐Ÿ“ท

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธPEACH WATER ๐Ÿ‘๐Ÿ‘๐Ÿถ๐Ÿถ๐ŸงŠ๐ŸงŠ1 small ripe peach8 ounces water OR sparkling water3 fresh basil leavesIceCut the peach into bite-sized pieces. Transfer to a tall glass. Add basil leaves. Add desired amount of ice. Pour water into the glass. Enjoy!...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Wednesday! It's very clear to me that today will be an awesome day! Many reasons to smile! 
Enjoy, friends! ๐Ÿ˜Š

2 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Heard of a combination of Post-Laminectomy Syndrome & COPD:

It is good to know that the Baclofen has relieved much if not all of your pain. Pain can make breathing with COPD worse. As you have noted Baclofen can be a respiratory depressant. Try to be mindful of your breathing, and alert your doctor to any …
Shaun RigdonKaren Deitemeyer - Florida State CaptainHIcopd - Hawaii State Captain also answered the question Shaun Rigdonand 2 others also answered the question

3 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

As DebbieB has mentioned,  we are close to 66,000.  Who is ready to place their bets on when we will reach that mark and earn Ed's atta boy award?

3 days ago

Community Announcements

Community Announcementsadded a new article COPD Foundation announces Patient-Focused Drug Development meeting for COPD

Event highlights need for people's lived experiences at forefront of research, treatment development, and regulatory decisions

Miami (August 4, 2026) - The COPD Foundation today announced plans for an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting for chronic obstructive pulmonary disease (COPD). This meeting is modeled after the Food & Drug Administration's (FDA) PFDD public meetings. Drug developers, FDA, and other stakeholders will be in attendance.

COPD, which includes emphysema and chronic bronchitis, affects more than 30 million Americans. It is the fifth leading cause of death in the United States and the fourth leading cause of death worldwide. Despite important advances in care, many people with COPD still face ongoing symptoms not addressed by currently available treatments, which negatively impact quality of life and health outcomes.

3 days ago

JoolsT

JoolsT

Hi, Iโ€™m Jools and a new member. Iโ€™m feeling pretty frightened at the moment asI have just found out that a recent chest x ray has revealed emphysematic changes. Iโ€™m waiting tor a CT scan. I had a really nasty virus in May and since then have been more than the usual amount of mucous, although my coughing episodes have reduced.  Has anyone had a similar experience and if so, what was the outcome?

3 days ago

Bobmc

BobmcWell the smoke has finally reached the coast,been really lucky till now.Seems like my whole province is on fire,many human caused which really fries my noodles.
For those of us suffering with breathing issues it is just another hurdle to overcome,but we always do because that just who we are.
Hope your part of the world is unaffected by these fires and your skies are clear and sunny.

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Today, we recognize World NTM Awareness Day.

Nontuberculous mycobacterial (NTM) lung disease is often misunderstood, frequently overlooked, and for many people, completely life-changing.

It can affect every breath, every routine, and every part of daily life. Yet too many people spend monthsโ€”or even yearsโ€”searching for answers before receiving a diagnosis. That's why awareness matters.

Today, we stand with every person living with NTM, every caregiver walking beside them, every healthcare professional dedicated to their care, and every researcher working tirelessly to uncover better treatments and, one day, a cure.

World NTM Awareness Day reminds us that progress begins with awareness. It grows through research. It advances through collaboration. And it becomes hope because of the strength of a community that refuses to give up.

Together, we're shining a light on NTM, encouraging earlier recognition, supporting continued research, and helping ensure that no one has to face this disease alone.

๐Ÿ’™ Today, we honor the journey. We celebrate the progress. And we look toward a future filled with better answers, better treatments, and more hope for everyone affected by NTM!

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.