COPD360social welcomes new member Hal Muller who joins 66,329 current members of our community. Weโ€™re glad you're here!


TimD

TimDHi Everyone!

Interested in contributing to research in a quick but meaningful way? Take a short survey to share your journey to diagnosis and how your condition has affected you. Your input can help us to better understand the path to diagnosis and identify opportunities to improve it for others.

Please complete the survey here: https://copdfoundation.jotform.com/262805493917063

4 days ago

Mark Luttmann, COPDF Research

Mark Luttmann, COPDF Research  Have chronic cough with mucus? We need your input!

Help make a difference in research and education e๏ฌ€orts for people with COPD. You may qualify if you are over 18 and have been diagnosed with chronic bronchitis or have symptoms of chronic bronchitis (chronic cough with mucus for at least 3 months a year, over the last two years).

Please take our 5-minute survey now: https://www.surveymonkey.com/r/R8XH6MZ

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, friends! Wishing you a bright and cheery day! ๐Ÿ˜€ ๐ŸŒž

3 hours ago

NannyBK

NannyBK

Hi Everyone! I just joined. I'm 47 years old and have severe obstruction Gold4 and going through tests to try to figure out why my lungs are so bad. Im alpha negative. I'm really scared. Anyone out there have severe lung disease early? I just want some hope that I might live to see my boys get married and be around to meet future grandkids. 

10 hours ago

6ft Pixie

6ft Pixie

Hi, GammyPat. Welcome!

13 hours ago

JeanO53

JeanO53A good read on COPD and Mental Health, featuring our own Phyliss DiLorenzo NJ State Captainโ€‹ and David Mannino, MD (Chief Medical Officer, COPD Foundation )... 
https://www.healthywomen.org/condition/mental-health-while-living-with-copd?fbclid=IwY2xjawU6DmtleHRuA2FlbQIxMQBwZG9mBXNydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR47SDv_RMTzigfONRzbpMk0a_1uzrPDEjbXOgnSEG3_xp0qdckmvXc8S2JVSA_aem_b8tnBmzwoFDfcyVjDcQBwQ

15 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerโ˜•๐Ÿ’™ Let's Talk Medicare! You're Invited to Our Coffee Break!

Hi, everyone!

Medicare can be a little confusing, can't it? Between the different plans, coverage options, and all those letters and numbers, sometimes it feels like you need a roadmap just to figure out where to start!

Well, we've got something coming up this Thursday that might help!

Our friends over at BronchandNTM360social are hosting their monthly Coffee Break, and everyone here at COPD360social is welcome to join us!

๐Ÿ“… Thursday, October 15, 2026
๐Ÿ• 2:30 PM Eastern Time

We'll be joined by Emily Wicheloe, Director of Education at the Medicare Rights Center, who will walk us through the upcoming 2027 Medicare Open Enrollment, including coverage considerations for people living with chronic lung conditions and tips for understanding and accessing benefits.

Whether you're already on Medicare, getting ready to enroll, or helping a loved one navigate their coverage, this could be a great opportunity to learn something new!

And don't let the name Coffee Break fool you. You don't have to drink coffee to join us! โ˜• We'll gladly welcome the tea drinkers, too!

๐Ÿ’™ We'd love to have you join us! I'll share the registration information below.

In the meantime, here's a helpful resource from the COPD Foundation:

Medicare Resources to Help You Navigate Your Coverage

https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Medicare.aspx

Hope to see you Thursday! ๐Ÿ’™


Register here:  https://copdf.co/Bronch-NTM-support

16 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

Music for a Monday Morning.
Route 66 Nat King Cole
https://www.youtube.com/watch?v=pcavVs7a0w4



21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธFESTIVE POMEGRANATE DRINKโœด๏ธ1 cup pomegranate juice3 tbsp. maple syrup 4 tsp. freshly squeezed lime juice 1 cup sparkling water 2 cups crushed ice Lime slices for garnish1/2 cup pomegranate arilsIn a large pitcher, mix together the pomegranate...

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy magnificent Monday, my smiling friends! ๐Ÿ˜ƒ
Keep those positive vibes flowing, and enjoy your day! ๐Ÿคฉ

1 day ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question How do I find a good Durable Medical Supplier

I think that Jean and Karen have given you great advice. My pulmonologist's nurse helped me decide.
Karen Deitemeyer - Florida State CaptainJeanO53 also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

1 day ago

brydy

brydy

Happy Thanksgiving to any fellow members who celebrate today. turkeys in the oven, yum :) 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood morning, and happy Sunday! Wishing everyone the best day ever! ๐Ÿ˜€

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question Suicidal

Suicidal I've been thinking about you and wonder how you are feeling today? I hope you'll reach out to one of the resources you've been given. And I also hope that you know how many us care about you and want to help you feel better.
JeanO53Coach Brandon - Community Managerbrydy also answered the question JeanO53and 2 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’š World Mental Health Day โ€” It's Okay to Not Be Okay

Good Saturday, everyone!

You know, some days we can handle just about anything life throws at us. Other days? Well, just getting through the day can feel like a pretty big accomplishment. And that's okay!

Today is World Mental Health Day, and I think it's a good time to remind ourselves that taking care of what's going on in our heads and hearts matters just as much as taking care of our bodies.

Living with COPD can be a heck of a journey. From that first diagnosis to managing symptoms, setbacks, and everything in between, some days can feel pretty darn heavy.

And caregivers, this includes you too! You're often juggling so much while caring for someone you love. Sometimes you need someone to lean on just as much.

Here's something I hope everyone remembers: You don't have to be strong every minute of every day.

Sometimes the bravest thing we can do is say, "I'm having a hard time, and I could really use someone to talk to."

There's absolutely no shame in that.

That's one of the things I love about this community. We have people who understand, listen, and genuinely care. Sometimes just knowing someone is there can make a difficult day a little easier.

Please don't feel like you have to go through it alone. Reach out to someone you trust, your healthcare team, or one of our COPD360 Coaches. We're here to listen and help connect you with support.

๐Ÿ“ž COPD360 Community Support Line: 1-866-316-COPD (2673)

If you're in emotional crisis or having thoughts of suicide, call or text 988 for free, confidential support anytime.

And maybe today, take a moment to check in on someone else. Not just "How are you?" but "How are you really doing?"

Give yourself a little grace. It's okay to not be okay, and asking for help is a strength, not a weakness!

2 days ago

JeanO53

JeanO53Sharing a few pictures from yesterday.  I visited a 73-acre park that sits in the middle of a residential neighborhood.  One of it's features is a large lagoon that covers 4-acres. It's kind of amazing!
 Yesterday it was filled with huge flocks of ducks, both Mallard and Wood, with a few other odd ones.  It was a great way to spend some time in the afternoon.  I got really lucky a was able to get some close up pictures of an adult Black-crowned Night Heron and the Wood Ducks.

2 days ago

netmouse

netmouseanswered the question Drug not covered

Correction, the Medicare plans do not cover Advair Diskus powder. They do cover Advair HFA. I do not know why one is covered and not the other as the drugs are the same.
Caroline West Virginia State CaptainJeanO53 also answered the question Caroline West Virginia State Captainand 1 other also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Wishing everyone a nice, cozy fall day! ๐Ÿ˜Š ๐Ÿ‚

3 days ago

netmouse

netmouseasked the question: Drug not covered

I see that no Medicare Part D drug plan covers Advair diskus 250. I had no trouble getting this a few years ago. A search reveals you may find alternatives such as generic fluticasone-salmeterol, Wixela Inhub, Breyna, or Breo Ellipta. Have you …

3 days ago

Suicidal

Suicidalasked the question: Suicidal

Is anyone else suicidal after their diagnosis? I was suicidal anyway and this is the last straw - ive only got my dog to keep me going and once she goes thats it, I'll have nothing to live for.

3 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onThe Heart-Lung Connection: Managing Cardiovascular Risk in People Living with COPD

 Thanks Arnelle - Excellent article! Yesterday I had an ultrasound of my heart - my cardiologist does this about every 2 years. ...

3 days ago

Community Announcements

Community Announcementsadded a new article The Heart-Lung Connection: Managing Cardiovascular Risk in People Living with COPD

This post was written by Arnelle Konde, MPH, CHES.


Cardiovascular disease (CVD) is one of the most common and significant comorbidities affecting outcomes for people living with COPD.1 Because COPD frequently coexists with other chronic conditions, recognizing and addressing cardiovascular health is a critical component of comprehensive care.

Health care professionals play a key role in identifying cardiovascular risk factors and helping patients understand the connection between heart and lung health. Open conversations combined with evidence-based management can empower patients to better navigate their condition and improve their quality of life.

3 days ago

Tara Kloehn, COPD Foundation

Tara Kloehn, COPD FoundationHappy Fluffy Friday, friends!! Here's Penelope meeting our new porch goose for the first time. ๐Ÿ’›

Today is also the Lace Up for Lungs Day of Movement! Check out the Facebook event and post your activity if you want to get involved: https://www.facebook.com/share/19axqqiUUY/

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‚CINNAMON MAPLE ROASTED SWEET POTATOES๐Ÿ‚3 medium sweet potatoes, peeled 1/3 cup unsalted butter, melted1 1/2 tsp. cinnamon, divided 1/2 tsp. nutmeg1/2 tsp. salt1/4 cup maple syrup4 tbsp. honey 1/3 cup chopped pecans1 tsp. finely chopped fresh thyme...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my sister's kitten Bonkers Gordon! He's growing up so fast! 
We wish everyone a wonderful day! ๐Ÿ˜€

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.