COPD360social welcomes new member Mnn who joins 65,871 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ’„๐ŸŒŽ Visit My Corner of the World Wednesday: Show Us Your Colors! ๐ŸŒˆ๐Ÿ“ธ

Today is National Lipstick Day, and it has me thinking about finding just the right shadeโ€”the one that helps you feel a little brighter, a little stronger, and a little more like yourself.

Living with COPDโ€”or caring for someone who doesโ€”can be a lot like finding that perfect shade. It may take some experimenting to discover the routines, treatments, breathing techniques, and small comforts that work best for you. What helps one person shine may look completely different for someone else, and thatโ€™s perfectly okay. We each have our own shade!

With the summer heat, smoke, and heavy air, many of us could use an extra pop of color right now. For todayโ€™s Visit My Corner of the World Wednesday, show us the colors brightening your corner. It might be a flower in bloom, a colorful sunset, your favorite shirt, a cheerful roomโ€”or even the lipstick that makes you feel fabulous. ๐Ÿ’‹

If youโ€™d like, share a photo or tell us: What color is popping in your corner of the world, and what helps you feel your best when life could use a little brightening?

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
Make every moment count! There are so many little things that make up one big day! ๐Ÿ˜Š
I wish everyone a truly wonderful day! ๐Ÿ˜€

4 hours ago

das23

das23answered the question Has anyone heard of prep buddy

A PEB buddy is a small device you can use for PLB-Pursed Lip Breathing. I have one

9 hours ago

das23

das23answered the question Portable Nebulizers

Welcome elanab.....In the LEARN MORE tab above there is a link to videos on nebulizers. I use a Hand-held Nebulizer made from a company called Bouldon

9 hours ago

elanab

elanabasked the question: Portable Nebulizers

I am brand new to ALL of this and was prescribed an Omron CompAir Compressor Nebulizer for use with Albuterol Sulfate Inhalation Solution, 0.083%, all of which I brought home from the hospital 2 days ago. I found this website forum and read the earlier …

9 hours ago

GAnne

GAnneasked the question: Has anyone heard of prep buddy

What is the PEP buddy? I have only seen a little about it

9 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Called all four of my local Congressional offices, urging them to fully fund NIH promptly. 

12 hours ago

SRH

SRHanswered the question Check-in: Preparing to travel with COPD

I was thrown off a plane after being seated because my POC battery was not fully charged. I had an extra battery with me but they didn't care. I had to get off and charge it to take the next flight. We booked first class because we were told we could …
HIcopd - Hawaii State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation )Karen Deitemeyer - Florida State Captainand 1 other also answered the question HIcopd - Hawaii State Captainand 3 others also answered the question

14 hours ago

SusanLynne

SusanLynne

Hi! I am a 64 year old female COPD survivor! I inherited Alpha-1 from my mom.  I am currently on Trelegy and musinex daily, sleep with O2, and Ipratropium and rescue inhalers as needed. I also receive Prolastin C infusions weekly.  My doctor recommended Otuvarye and a respirator at night.  I requsted we try Dahliresp before the Otuvarye. Is anyone on Dahliresp? I just started it. Seems like it may work. Ant thoughts?

17 hours ago

  • Coach Brandon - Community ManagerHi, SusanLynne! Welcome!  You've definitely come to a good place to ask! I have a feeling there are quite a few members here who have experience with Daliresp and can share what it was like for them.

    I'd love to hear how you're doing with it too as you get a little further along. Sometimes those first few weeks can answer a lot of questions for the next person who's considering the same medication. Thanks for sharing a little about your journey, and I hope you'll keep us posted. I'm looking forward to hearing what others have to say. Again, welcome to our community!16 hours ago
Monkeybreath

Monkeybreathcommented onCOPD and Disability Benefits: The Pros, Cons, and Step-by-Step Guide to SSDI

I went thru this and can guarantee the one thing you need is tons of paperwork, tests, test results, doctors notes, charts, etc. I was well prepared and was able to get thru it smoothly without having to appeal. If you do not have this paperwork...

19 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State CaptainI am partial to blue, purple and green, and this incorporates those snd more. Always loved this! 

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

APRICOT-BRAZIL NUT ENERGY BALLS1 1/2 cups shelled Brazil nuts1/4 tsp. cinnamon 1/8 tsp. salt 1/2 cup packed dried pitted apricots 1 tsp. vanilla extract 2 or 3 Medjool dates, pittedPlace Brazil nuts, cinnamon, and salt in a food processor. Pulse a...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainDo you know why this Wednesday sparkles and shines? It's because you emit brightness and pure joy! 
Thank you for being an important part of our community! 
Wishing all of our wonderful members a lovely day! 

1 day ago

Mark 1954

Mark 1954

Okay ๐Ÿ†—

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Air quality

People have different degrees of sensitivity (so what is dafe for some may not be safe for others). Generally - once levels get above 100 is when people with respiratory problems start to notice that they are having difficulties. Among people without …
HIcopd - Hawaii State Captain also answered the question HIcopd - Hawaii State Captain also answered the question

1 day ago

MickyHeart

MickyHeart

I wondered if there were spouses of COPD folks out there.  My husband has had COPD for 20+ years now and I think we are moving to a new stage.  I feel a bit lost and very sad.

1 day ago

Jdub

Jdubasked the question: Air quality

Any advise on air quality numbers? I'm curious of when I should stay indoors- when it's above 50? I'm confused by all of this.

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I had a wonderful week with family, and hated to have to come back home, but now I need a vacation from my vacation ๐Ÿ˜†  My little great-grands are adorable and FULL of energy โค

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿซ Happy Milk Chocolate Day! ๐Ÿซ

Life with COPD asks a lot from us.

Appointments.
Medications.
Exercises.
Pacing ourselves.
Remembering all the "don't forgets."

So today, don't forget one more thing...

Treat yourself.

Whether it's a little square of chocolate, your favorite candy bar, or a homemade brownie, sometimes the smallest treats can brighten the whole day!

(Just don't hide it so well that you can't remember where you put it... we've all done that!๐Ÿ˜‰)

๐Ÿซ What's your go-to chocolate indulgence?

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„๐Ÿ‘EASY PEACH MELBA๐Ÿ‘๐Ÿฅ„1/4 cup raspberry jam2 tbsp. waterPinch salt1 pint vanilla ice cream 4 peach halves, (canned or jarred)In a small bowl, stir together the jam, water, and salt until smooth. Press the mixture through a fine mesh sieve....

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday!
A smile is contagious, so the more you smile, the more people you will see with a big smile! ๐Ÿ˜ƒ Wearing a smile is so easy to do, and it goes with everything you wear! 
So, put on a happy face and enjoy your day, friends! ๐Ÿ˜€

2 days ago

Chrissyanne1984

Chrissyanne1984

Hello. I am a caregiver for my mother. Sheโ€™s lived with me for the past 15 years. She just found out last week her COPD is now in end stage with severe emphysema and the pulmonologist told us there is nothing left to do medication wise. 


Iโ€™m lost for words, I can tell the impact itโ€™s taken on my mom. Sheโ€™s recently looked into virtual pulmonary rehab since that appointment last Thursday.
Sheโ€™s suffering so bad and getting so discouraged. Extremely hard to watch my best friend go through this and may not be able to do anything. 
I am scared and Iโ€™m scared for her

2 days ago

  • NewestOldest
  • brydyhi chrissyann. im sry to hear your mum is struggling & you with her. shes lucky to have you by her side! 
    pulm rehab can rly help. it isnt a cure but it can make quality of life better. in person is the best if thats possible bec your mum would have support of other patients & a team of professionals to help guide & encourage her. But virtual can be an option, just have to stick w it even when it feels rly hard. 
    there are some articles in the learn more section for caregivers you might find helpful. and if possible mb look for a support grp for caregivers in your area. 1 day ago
  • Karen Deitemeyer - Florida State CaptainWelcome Chrissyanne1984โ€‹  I'm sorry that your mom is struggling so much, but glad that you found us.  You haven't said how your mother's health is otherwise, but there might be options that aren't medicine - lung valves, lung reduction surgery, or transplant.  Has her doctor spoken of any of these with her?  1 day ago
Djrose

Djrose answered the question Do any of you h

I have an Apple Watch, I use it to track my oxygen levels and sleep patterns. It keeps a record of heart rate, oxygen level, and other things on my iphon
Dinna25WildebeestKaren Deitemeyer - Florida State Captainand 4 others also answered the question Dinna25and 6 others also answered the question

2 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‘–๐Ÿšถ Happy Take Your Pants for a Walk Day! ๐Ÿšถ๐Ÿ‘–

Yes... it's a real thing. And honestly, your pants have been waiting all weekend. ๐Ÿ˜„

Today's quirky holiday comes with a pretty good reminder: if you can, get up and get moving.

Whether it's a trip to the mailbox, a stroll around the house, a lap through the grocery store, or simply standing up and stretching a few extra times today, every little bit counts.

For those living with COPD or other lung conditionsโ€”and for the amazing caregivers walking right beside themโ€”movement isn't about setting records. It's about maintaining strength, building confidence, and doing what you can, at your pace.

Some days you'll feel like taking on the neighborhood.
Some days, just getting your pants moving is a victory.

Both count.

So today, let's give those pants something to do besides hanging around! ๐Ÿ˜‰

๐Ÿ’™ Where are your pants taking you today?

If you'd like, share a photo from your adventure... or simply tell us what keeps you moving. Whether it's family, your furry sidekick, your garden, pulmonary rehab, a favorite walking trail, or just the determination to keep putting one foot in front of the otherโ€”we'd love to hear your story and cheer you on.

Here's to taking one more step today than yesterday... even if your pants have to do most of the convincing! ๐Ÿ’™๐Ÿ‘–

2 days ago

Sapthatsme

Sapthatsme

I am newly diagnosed with mild COPD and love to walk, but reading that if humidex is hi, you shouldn't walk outdoors?  What is too high to walk and where can I check for the humidex?

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ’๐Ÿฅ’CREAMY CUCUMBER SALAD๐Ÿฅ’๐Ÿฅ’2 medium cucumbers, peeled1/2 cup plain Greek yogurt 1/2 tsp. salt 1 tbsp. finely chopped fresh dill Slice cucumbers about 1/8-inch thick. Place in a large bowl. Season with salt. Combine with the yogurt and dill.Cover...

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.