COPD360social welcomes new member Ma Wilson who joins 65,209 current members of our community. Weโ€™re glad you're here!

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Yay!  The Liberty2 is working and I believe it should serve as we need to provide me with continuous flow O2 for the duration of our trip!  Iโ€™m SO relieved!  Of course, wish it were even smaller, quieter and ran cooler, but Iโ€™m happy itโ€™s available. 

1 hour ago

GAnne

GAnneanswered the question vented propane heat source

Karen i will call a fas company tomorrow before m Wednesday, i figure they would know they do Havac work licensed
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

1 hour ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿš€โœจ May the 4th Be With Youโ€ฆ and your breath stay strong today. ๐Ÿ’™

Happy Star Wars Day, everyone!

Whether your day feels like a peaceful stroll on Endorโ€ฆ or a full-on battle with the Empire, just know thisโ€”youโ€™re not facing it alone. Every deep breath, every pause, every โ€œIโ€™m going to take this at my own pace todayโ€โ€ฆ thatโ€™s your kind of strength. And around here, that absolutely counts.

Letโ€™s have a little fun with itโ€ฆ

๐ŸŒฌ๏ธ Jedi Breathing Tip: Slow it down. Inhale gently, exhale fullyโ€”find your rhythm like the Force flowing through you.
๐Ÿšถโ€โ™‚๏ธ Travel Plans: No need for hyperspace today. A short walk, a comfy chair, or a quiet moment outside can be just as powerful.
๐Ÿงฐ Your Gear = Your Lightsaber: Keep those inhalers, oxygen, and water nearbyโ€”youโ€™ve got everything you need at your side.
๐Ÿง  Trust Your Instincts: You know your body better than anyone. Listen to itโ€”it wonโ€™t steer you wrong.

And heyโ€ฆ letโ€™s be honest for a secondโ€”
Even Darth Vader had a whole system built around helping him breathe ๐Ÿ˜„

๐Ÿ’ฌ Now for the fun part:
If you could pick a Star Wars character as your COPD sidekick, whoโ€™s got your back?

๐Ÿง™โ€โ™‚๏ธ Yoda for calm wisdom?
๐Ÿค– R2-D2 to keep things running smoothly?
๐Ÿพ Chewbacca for strength and loyalty?
๐Ÿ‘‘ Leia for grit and leadership?

Or maybe youโ€™ve got your own pickโ€”drop it below!

However today looks for youโ€”quiet, active, somewhere in betweenโ€”I hope you find a little light, a little laughter, and a moment to just breathe.

๐ŸŒŸ The Force is strong with you!

7 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Random o2 drops

What additional/further testing is your provider doing/proposing? Maybe ask if a CPET might be useful in providing more info

10 hours ago

GAnne

GAnneasked the question: vented propane heat source

Good afternoon, we are trying to figure this out after we had one person come and tell us to put a vented propane heater in our window. This is only when the power goes out.

11 hours ago

Kmcnamara68

Kmcnamara68asked the question: Random o2 drops

So my most recent pft was basically normal and all heart tests also came back normal. Now the random o2 drops that I had for months have seemed to subside, which is great don't get me wrong, but then what could have caused that?

11 hours ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ“EASY STRAWBERRY MOUSSE๐Ÿ“ "Perfect for a Mother's Day treat!"3/4 pound fresh strawberries, sliced 1/2 cup sugar1 cup heavy OR whipping cream, with at least 30 % fat content, well chilledSliced strawberries for garnishPlace sliced...

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainOh, what a magnificent Monday this is! We are all together here on 360Social! We have so many things to look forward to! 
I wish all of you the best Monday ever! ๐Ÿคฉ

20 hours ago

JeanO53

JeanO53answered the question Staying Asleep

My question is... what's happening when you can't fall back to sleep? When you talk with your doctor, be as specific as possible about what you're experiencing. I've had a variety of sleep issues over the years, mostly it's about shutting down my …
DebbieB.-Connecticut State CaptainCaroline West Virginia State Captainnetmouse also answered the question DebbieB.-Connecticut State Captainand 2 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! 
Let's keep the good vibes going today, and every day! One happy thought leads to another, to the point when they overflow to everyone! We've got enough happy thoughts to pass along to all of our members and beyond!
And while you're here, why not take a look at our educational materials? Plenty of reliable information here.
We just keep growing and growing... No wonder I love this place! ๐Ÿงก๐Ÿ’™

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question How do you know your COPD is getting worse?

Wowโ€”Phyllis! Thanks for sharing! That must have been so frightening! Glad you are on the road to recovery
Phyliss DiLorenzo NJ State CaptainTJ69eric63and 6 others also answered the question Phyliss DiLorenzo NJ State Captainand 8 others also answered the question

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question When is Trelegy appropriate?

I just wanted to say welcome and that I agree with everyone who has posted.
DebbieB.-Connecticut State Captaindas23Jazzybeanand 1 other also answered the question DebbieB.-Connecticut State Captainand 3 others also answered the question

2 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Is there a list of online pulmonary rehab clinics ?

I agree with Caroline West Virginia State Captain! Kivo is by far the best of the virtual pulmonary rehab programs.
Caroline West Virginia State CaptainHIcopd - Hawaii State CaptainDamian Solorzano and 4 others also answered the question Caroline West Virginia State Captainand 6 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone here on 360Social a ๐Ÿ“berry๐Ÿ“ good Saturday! May your day be filled with smiles and laughter! ๐Ÿ˜€

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I'm so glad you enjoyed it, Caroline! ๐Ÿ˜Š ๐Ÿ‘...

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I made this with peaches and it is heavenly....

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question inhaler residue and ear irritation

Thanks for writing about this. I have ear issues, but have had all of my life. I will mention this to my pulmonologist next week.
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Yay, the airlines we are flying on have approved me to bring the OxyLife Liberty 2 with cords onto plane as carry on (will use it at destinations for sleep). They are happy that machine with be without batteries. Only my Rove6 will have batteries. 

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Fingers crossedโ€”scheduled to get a brand new Liberty 2 machine on Monday that HOPEFULLY will work properly!  


Also scheduled biologic delivery to pharmacy while we are out of town so we can pick it up upon return. 


Also rescheduled and confirmed medical appts for H and then completed LONG online checkin for appt today and another Monday. 

3 days ago

Debbie Mason

Debbie Masonasked the question: Staying Asleep

Anyone having issues staying asleep at night? I have no problem falling asleep but around 3:00 a.m. I am waking up to go to the bathroom and have a terrible time getting back to sleep. What have you done that has helped with this issue?

3 days ago

Tracings

Tracingsasked the question: When is Trelegy appropriate?

My emphysema was found on a lung CT which indicated it was moderate emphysema. My doctor started me on Trelegy Ellipta even though I really only notice shortness of breath when I use the elliptical or do other exercises. He did not do a spirometry test, …

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‹โ€๐ŸŸฉCILANTRO LIME CHICKEN๐Ÿ‹โ€๐ŸŸฉ"Perfect for the upcoming holiday Cinco de Mayo!"1/3 cup olive oil 6 garlic cloves, minced 1 tbsp. honey2 tsp. lime zest1/4 cup freshly squeezed lime juice1/4 cup minced fresh cilantro 2 tbsp. chili powder 1 tsp....

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from our dear friend Miyagi! She's already an adult! Can you believe it?!
Miyagi has special wishes for everyone! She hopes you all enjoy a wonderful day! ๐Ÿ˜Š

3 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Well, crazy day. Was able to have tax office help me fix my excise returns so they are correct for 2025 earnings. The nice agent talked to his manager to help make it all correct. 


Then I got a concentrator that has a 2 lpm continuous setting (which I need for travel) and ran it for a bit and got an error message โ€œlow O2 purity,โ€ and the machine shut off!  Rested it & ran machine again with same result!  Called O2 supplier & will be getting brand new one sent to me immediately!  Fingers crossed new machine functions well!

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.