COPD360social welcomes new member Emily1760 who joins 65,439 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’™ Because No One Should Have to Spend Years Searching for Answers

Many of us know what it's like to spend monthsโ€”or even yearsโ€”looking for answers about our breathing, coughing, fatigue, or recurring respiratory infections.

Recently, Ty Pennington shared his mother's story and the long journey that led to her bronchiectasis diagnosis. It serves as an important reminder that sometimes respiratory symptoms can have more than one cause, and finding the right diagnosis can make a world of difference.

๐Ÿ“บ Watch Ty's story here:

https://abcnews.com/video/132921581/

One of the most powerful things about sharing our stories is that they help others recognize their own experiences. A conversation can encourage someone to ask a question, seek a second opinion, or learn about a condition they may not have heard of before.

If you've been struggling with symptoms that don't seem fully explained, don't be afraid to continue the conversation with your healthcare team. Asking questions and advocating for yourself can be an important part of finding answers.

And remember, you don't have to do it alone.

If you'd like to learn more about bronchiectasis and NTM, or connect with others living with these conditions, we encourage you to visit the Bronchiectasis and NTM Association community, where you'll find education, resources, and people who understand the journey.

Have you ever experienced a delay in getting a diagnosis or finding answers about your lung health? We'd love to hear your story.

21 hours ago

Misty Green COPDF Research

Misty Green COPDF ResearchRELIANCE Participant Townhall


Youโ€™re invited! Please join the lead study doctors and the COPD Foundation on Tuesday, June 9, 2026 at 10:30am Central Time for a virtual RELIANCE Townhall Meeting! This meeting is being presented for participants of the RELIANCE COPD study. We will cover an overview of the study design, what Investigators are doing now since the last follow-up visit was completed on February 28, and how we plan to share the results of the study with you.


We hope to see you there!Link to register: https://nam04.safelinks.protection.outlook.com/?url=http%3A%2F%2Fuic.zoom.us%2Fmeeting%2Fregister%2FqBdZOJl3TX2Gc1FUsMRq9w&data=05%7C02%7Cmgreen%40copdfoundation.org%7C20a7147b28cf433959ba08debff47eb9%7C419bb2dd6a2f420b9d1f41ce82cdcbd0%7C0%7C0%7C639159254452641020%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=tGxS3C8y%2FiUHiAx8wGhz9JnFgzwG88rwZqePSOZvrPg%3D&reserved=0


After you register, you will automatically be sent an email with a link you can use to join the meeting on June 9. You can register and join the meeting anytime until it ends.

1 day ago

COPD Foundation Website Notifications

COPD Foundation Website Notificationsadded a new article Ajobo Taiwo

Welcome our newest COPD Foundation Captain!

17 minutes ago

COPD Foundation Website Notifications

COPD Foundation Website Notificationsadded a new article Oksana Viltsaniuk

Welcome our newest COPD Foundation Captain!

17 minutes ago

COPD Foundation Website Notifications

COPD Foundation Website Notificationsadded a new article Sean Patrick Smith

Welcome our newest COPD Foundation Captain!

17 minutes ago

Penny Price

Penny Price

I have to decide if I want to get a lobectomy done on my left lung or a lung transplant.  Can i hear about experience with both of these?  Pain , downtime etc.  What questions should I ask my lung surgeon when I am suppose to meet next month with him with my answer on what surgery I want to do.  I'm scared and lost right now so please help me if you have had either of these done to you.    

2 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿƒโ€โ™‚๏ธ Itโ€™s Leave the Office Early Day! ๐ŸŒž

Today is Leave the Office Early Day, and while many of us may not be heading out of a traditional office, it's a great reminder that sometimes it's okay to step away, slow down, and give ourselves a little extra time to recharge.

For those living with COPD, bronchiectasis, or NTMโ€”and for the caregivers, family members, and friends who support themโ€”some days can feel like a full-time job all on their own. Between appointments, treatments, medications, oxygen equipment, caregiving responsibilities, and everyday life, there is always something waiting on the to-do list.

So today, if you can, give yourself permission to "leave early" from something:

โ˜• Leave the dishes for later.
๐Ÿ“ฑ Put down the phone for a while.
๐Ÿ“บ Turn off the news a little sooner.
๐ŸŒณ Sit outside and enjoy the sunshine.
๐Ÿพ Spend a few extra minutes with a pet.
๐Ÿ“– Read a chapter of a favorite book.
๐Ÿ’™ Or simply rest without feeling guilty about it.

Taking care of yourself isn't being lazyโ€”it's part of staying healthy and keeping your tank full.

If you could leave one thing behind a little early today, what would it be? And how would you spend that extra time?

Let's hear your ideas and maybe inspire each other to carve out a few moments for ourselves today. ๐Ÿ˜Š๐ŸŒž๐Ÿ’™

2 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ˜PICKLE SALSA๐Ÿ˜1 cup diced dill pickles 1/4 cup diced red bell pepper 2 tbsp. diced onion1 tbsp. diced cubanelle pepper 1 clove garlic, minced 2 tbsp. chopped cilantro 1 tsp. lime juice1 tsp. dill pickle brine (from jar)In a large...

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello Tuesday, and hello friends! 
Today I choose to have an awesome day, and I hope this is your choice, as well! 
Keep those positive vibes going strong! ๐Ÿ˜ƒ๐Ÿคฉ

8 hours ago

SJNeedsANap

SJNeedsANapanswered the question Does anyone know what to expect now?

Stage 3 here. I canโ€™t offer advice, but just wanted to say that I am so, so sorry that you and your dad are going through this. I cannot imagine how difficult this is for you.
David Mannino, MD (Chief Medical Officer, COPD Foundation )Phyliss DiLorenzo NJ State CaptainBob puff dragonand 2 others also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation )and 4 others also answered the question

12 hours ago

Jonnie Korinko (COPDF Director of Education)

Jonnie Korinko (COPDF Director of Education)answered the question What can I do now, to help future me?

Hi BlueSky! Welcome to the community! I hope that you find support as you navigate your diagnosis. Here are a few resources for you: Here is a podcast episode about a new diagnosis Here is a YouTube playlist, called Medical Minute , that …
ktm390 BareDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 3 others also answered the question ktm390 and 5 others also answered the question

15 hours ago

Big50

Big50

Feeling like crap

18 hours ago

Bob puff dragon

Bob puff dragonAnother sunny day on the coast and banana bread in the oven,,,could life get any better,l think not.Good breaths all around for 360 members.

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone here on 360Social an AWESOME day! ๐Ÿ˜€๐ŸŒž

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŸ Say Something Nice Day ๐ŸŒŸ

Living with COPD can bring challenges that many people never see. Some days take extra effort, extra patience, and a little extra courage. That's why today feels like the perfect opportunity to celebrate Say Something Nice Day!

Let's take a moment to brighten someone's day.

๐Ÿ’™ Thank a caregiver who is always there.
๐Ÿ’™ Encourage a fellow member who may be having a difficult week.
๐Ÿ’™ Tell someone you're proud of the progress they've made.
๐Ÿ’™ Share a compliment, a kind memory, or simply let someone know they're appreciated.

You never know when a few encouraging words might be exactly what someone needs to hear.

I'll start:

I'm grateful for this community. Every day I see members sharing experiences, offering support, celebrating victories, and helping one another through the harder moments. That kindness makes a difference.

Today, who would you like to say something nice to? Tag them, mention them, or simply leave a kind message below. Let's fill this thread with encouragement and reminders that none of us are walking this journey alone.

๐Ÿ’™ A little kindness goes a long way. ๐Ÿ’™

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธEASY CHICKEN FINGERSโ—€๏ธ1 pound boneless, skinless chicken tenderloins1 large egg2 tbsp. water1 tbsp. Italian seasoning Salt and freshly ground black pepper to taste 2 slices breadPreheat the oven to 375 degrees.Line a large baking sheet...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainMay your Monday blossom into something great! 
Wake up, starting as a seed. Gradually grow into a seedling that is in full bloom by the time evening arrives! ๐Ÿ˜Š

1 day ago

PCH

PCH

I'm thankful to be a new member after searching for a support group for a while. 

1 day ago

NewLifeNana

NewLifeNana

Hello everyone. I am looking for support in my journey with lung disease. I knew for a few years that I had 'mild COPD" until January when I had a pneumothorax and a second pneumothorax and VATS with pleurodesis. Apparently I have moderate to severe COPD and emphysema. I am almost 4 months out from surgery, and have had to change my life totally. I think I need some support. I am having no luck finding such until this came up. Any help is welcome.

1 day ago

Bob puff dragon

Bob puff dragonA beautiful sunny shiney kind of day on the coast,one thing about living here is our appreciation of the sun when it finally shows itself.


Big breaths and repeat for all.

2 days ago

JeanO53

JeanO53So there I was watching the bluebirds fly back and forth from their nest box feeding their little ones and a flock of large white birds flew overhead.  Pelicans??  Yes Pelicans!
Fortunately, I had my camera ready and was able to capture a few decent shots!

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainNorway and its fjords are so lovely!

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

In all the time Iโ€™ve been traveling this trip to NYC & Scandinavia, I have NOT met any other person using supplemental O2. Iโ€™ve seen folks with wheelchairs, canes, hiking poles (for balance while walking) and many other health issues but no one else with any LTOT (other than myself). This really makes me sad that others with O2 arenโ€™t getting out and about. Admittedly it is more work and takes planning and coordination but itโ€™s important to be in the world!

2 days ago

Pippilotta64

Pippilotta64

Feeling alone and nothing to do. 

2 days ago

  • NewestOldestClick to View All Comments4 comment(s)
  • DebbieB.-Connecticut State CaptainAlone? Not while you're here on 360Social!
    If you are able to go outdoors,  there are plenty of activities I can think of! ๐Ÿ˜€2 days ago
  • JeanO53It sounds as though anxiety is really impacting your life and ability to get out and be active.
    There have been good suggestions.   I would definitely recommend seeing a good therapist to help you learn to manage the anxiety symptoms as well as learning to live with COPD.    Medication is an important part of a care plan but not the whole plan.  
     - - Is there a chance that you could participate in Pulmonary Rehab?  My experience was that is was good for me physically, but even more important was the psychological impact.  
    - - One other suggestion... I have found that doing free writing really helps.  Don't think about what to write, just write.   Need a prompt?  Maybe start with a list of all of the things you like to do.
    I think the greatest thing you can learn from many of us is to not give up hope.  There are things that each of us can do to live our lives in the best way possible.  Do we have limitations?  Sure we do.  And still we do the best that we can.   You can too!!2 days ago
  • Caroline West Virginia State CaptainYou are not alone.  We are here for whatever you need.2 days ago
Pippilotta64

Pippilotta64

Feeling alone

2 days ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

On this beautiful Sunday morning I am aware of what a privilege it is to wake up and try again.

2 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainToday, saw a phone booth in Bergen, Norway, with books in English and other languages. 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing you a lovely day, filled with hope, love, and kindness! ๐Ÿ˜€

2 days ago

Bob puff dragon

Bob puff dragonHope today is a great breathing day for all. 


Seen this great idea and has to share, smile and the world smiles with you.

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.