COPD360social welcomes new member Big Pig who joins 66,338 current members of our community. Weโ€™re glad you're here!

TimD

TimDHi Everyone!

Interested in contributing to research in a quick but meaningful way? Take a short survey to share your journey to diagnosis and how your condition has affected you. Your input can help us to better understand the path to diagnosis and identify opportunities to improve it for others.

Please complete the survey here: https://copdfoundation.jotform.com/262805493917063

5 days ago

Mark Luttmann, COPDF Research

Mark Luttmann, COPDF Research  Have chronic cough with mucus? We need your input!

Help make a difference in research and education e๏ฌ€orts for people with COPD. You may qualify if you are over 18 and have been diagnosed with chronic bronchitis or have symptoms of chronic bronchitis (chronic cough with mucus for at least 3 months a year, over the last two years).

Please take our 5-minute survey now: https://www.surveymonkey.com/r/R8XH6MZ

5 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy wonderful Wednesday! 
Keep those positive thoughts flowing! They will help you glide through the day, no matter what today may bring! ๐Ÿ˜Š

3 hours ago

Jim Martin

Jim Martin

Have not posted on here in some time. To bring all up to speed, my Dad is still managing his COPD the best he can. I would imagine there are some days where managing it is better than other days. He still has to use the C-PAP machine to help him sleep at night. 

8 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Suicidal

First, I want to honor your honesty and courage! I urge you to speak to with your doctor about a referral to immediate counseling. A diagnosis of COPD is not a death sentence. Most of us lead active, long lives. We are likely to die with COPD, not from …
Karen Deitemeyer - Florida State CaptainJeanO53Coach Brandon - Community Managerand 1 other also answered the question Karen Deitemeyer - Florida State Captainand 3 others also answered the question

16 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerasked the question: Everyday Life with COPD: What's Worked for You? What Are You Still Trying to Figure Out?

💙 Everyday Life with COPD: Let's Share Some Ideas! Sometimes living with COPD isn't just about managing your breathing. It's about figuring out how to do the everyday things that used to be so simple. Taking a shower, getting groceries, getting around …

19 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ”Ž Happy International Skeptics Day! ๐Ÿง

Do you believe in Bigfoot? The Loch Ness Monster? Maybe you've got a friend or family member who swears they've seen something that nobody else can explain. And you're sitting there thinking, "Hmmmm... I'm going to need a little more proof than that!" ๐Ÿ‘ฃ

Well, today is for YOU!

Being a skeptic isn't necessarily a bad thing. Sometimes it's just about asking questions, looking at things from another angle, and not believing everything you hear simply because somebody said it.

And when it comes to living with COPD, a little healthy skepticism can actually be pretty valuable!

We've all seen those advertisements promising some miracle treatment, supplement, or secret cure that sounds almost too good to be true. That's when it's time to put on our skeptical hats and do a little investigating! ๐Ÿ”

But there's another side to this, too. When your healthcare team recommends something to help you breathe better, manage your COPD, or improve your quality of life, don't let skepticism keep you from getting the care you need. Ask questions! Understand WHY they're recommending it. Have that conversation, and work together to figure out what's best for you.

Being skeptical doesn't mean being stubborn. Sometimes it simply means wanting to understand something better before making up your mind.

And caregivers, this goes for you, too! Asking questions and understanding the options can make a world of difference when helping someone you love.

So here's my question for today: Are you naturally a skeptic, or are you someone who tends to believe things until proven otherwise?

And while we're at it... Bigfoot. Real or not? I'm not saying he's out there, but I'm not saying he isn't, either! ๐ŸŒฒ๐Ÿ‘ฃ

Happy Tuesday, everyone! Keep asking questions, keep learning, and keep on keeping on!

21 hours ago

JeanO53

JeanO53answered the question Do you gain weight on symbicort. I have been taking for 2 months and gained 15 lbs.

Welcome to 360Social RubyAngel7 You've found a place where others understand what it means to live with COPD. I'm so sorry you are having to live with the stress of COPD while being homeless. ... I live in Wisconsin and don't know much about the …
RubyAngel7SKHJean IA State Captainand 13 others also answered the question RubyAngel7and 15 others also answered the question

21 hours ago

Pippilotta64

Pippilotta64

Still not able to do much. I have a lot of muscle wasteing. Always tired and dont get out much. I have a therapist and a psychiatrist. Trying to work on things.

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŒฑ๐ŸŒฟOLIVE OIL AND HERB SAUCE๐ŸŒฑ๐ŸŒฟ1/4 cup olive oil1 tbsp. finely chopped Kalamata olives1 clove garlic, minced 1/2 tsp. finely chopped basil1/4 tsp. finely chopped rosemary 1/4 tsp. finely chopped oreganoFreshly ground black pepper to taste Pour the...

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday, friends! Wishing you a bright and cheery day! ๐Ÿ˜€ ๐ŸŒž

1 day ago

NannyBK

NannyBK

Hi Everyone! I just joined. I'm 47 years old and have severe obstruction Gold4 and going through tests to try to figure out why my lungs are so bad. Im alpha negative. I'm really scared. Anyone out there have severe lung disease early? I just want some hope that I might live to see my boys get married and be around to meet future grandkids. 

1 day ago

6ft Pixie

6ft Pixie

Hi, GammyPat. Welcome!

1 day ago

JeanO53

JeanO53A good read on COPD and Mental Health, featuring our own Phyliss DiLorenzo NJ State Captainโ€‹ and David Mannino, MD (Chief Medical Officer, COPD Foundation )... 
https://www.healthywomen.org/condition/mental-health-while-living-with-copd?fbclid=IwY2xjawU6DmtleHRuA2FlbQIxMQBwZG9mBXNydGMGYXBwX2lkEDIyMjAzOTE3ODgyMDA4OTIAAR47SDv_RMTzigfONRzbpMk0a_1uzrPDEjbXOgnSEG3_xp0qdckmvXc8S2JVSA_aem_b8tnBmzwoFDfcyVjDcQBwQ

The Importance of Mental Health While Living with COPD

Learn about the importance of caring for your mental health if you have COPD

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Managerโ˜•๐Ÿ’™ Let's Talk Medicare! You're Invited to Our Coffee Break!

Hi, everyone!

Medicare can be a little confusing, can't it? Between the different plans, coverage options, and all those letters and numbers, sometimes it feels like you need a roadmap just to figure out where to start!

Well, we've got something coming up this Thursday that might help!

Our friends over at BronchandNTM360social are hosting their monthly Coffee Break, and everyone here at COPD360social is welcome to join us!

๐Ÿ“… Thursday, October 15, 2026
๐Ÿ• 2:30 PM Eastern Time

We'll be joined by Emily Wicheloe, Director of Education at the Medicare Rights Center, who will walk us through the upcoming 2027 Medicare Open Enrollment, including coverage considerations for people living with chronic lung conditions and tips for understanding and accessing benefits.

Whether you're already on Medicare, getting ready to enroll, or helping a loved one navigate their coverage, this could be a great opportunity to learn something new!

And don't let the name Coffee Break fool you. You don't have to drink coffee to join us! โ˜• We'll gladly welcome the tea drinkers, too!

๐Ÿ’™ We'd love to have you join us! I'll share the registration information below.

In the meantime, here's a helpful resource from the COPD Foundation:

Medicare Resources to Help You Navigate Your Coverage

https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Medicare.aspx

Hope to see you Thursday! ๐Ÿ’™


Register here:  https://copdf.co/Bronch-NTM-support

Medicare | COPD Foundation

Understanding your Medicare options can help you make informed decisions about your health care and manage costs.

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

Music for a Monday Morning.
Route 66 Nat King Cole
https://www.youtube.com/watch?v=pcavVs7a0w4



1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ธFESTIVE POMEGRANATE DRINKโœด๏ธ1 cup pomegranate juice3 tbsp. maple syrup 4 tsp. freshly squeezed lime juice 1 cup sparkling water 2 cups crushed ice Lime slices for garnish1/2 cup pomegranate arilsIn a large pitcher, mix together the pomegranate...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy magnificent Monday, my smiling friends! ๐Ÿ˜ƒ
Keep those positive vibes flowing, and enjoy your day! ๐Ÿคฉ

2 days ago

JeanO53

JeanO53Found on Facebook...

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question How do I find a good Durable Medical Supplier

I think that Jean and Karen have given you great advice. My pulmonologist's nurse helped me decide.
Karen Deitemeyer - Florida State CaptainJeanO53 also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

2 days ago

brydy

brydy

Happy Thanksgiving to any fellow members who celebrate today. turkeys in the oven, yum :) 

2 days ago

gs5

gs5asked the question: How do I find a good Durable Medical Supplier

Medical Equipment

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood morning, and happy Sunday! Wishing everyone the best day ever! ๐Ÿ˜€

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ’š World Mental Health Day โ€” It's Okay to Not Be Okay

Good Saturday, everyone!

You know, some days we can handle just about anything life throws at us. Other days? Well, just getting through the day can feel like a pretty big accomplishment. And that's okay!

Today is World Mental Health Day, and I think it's a good time to remind ourselves that taking care of what's going on in our heads and hearts matters just as much as taking care of our bodies.

Living with COPD can be a heck of a journey. From that first diagnosis to managing symptoms, setbacks, and everything in between, some days can feel pretty darn heavy.

And caregivers, this includes you too! You're often juggling so much while caring for someone you love. Sometimes you need someone to lean on just as much.

Here's something I hope everyone remembers: You don't have to be strong every minute of every day.

Sometimes the bravest thing we can do is say, "I'm having a hard time, and I could really use someone to talk to."

There's absolutely no shame in that.

That's one of the things I love about this community. We have people who understand, listen, and genuinely care. Sometimes just knowing someone is there can make a difficult day a little easier.

Please don't feel like you have to go through it alone. Reach out to someone you trust, your healthcare team, or one of our COPD360 Coaches. We're here to listen and help connect you with support.

๐Ÿ“ž COPD360 Community Support Line: 1-866-316-COPD (2673)

If you're in emotional crisis or having thoughts of suicide, call or text 988 for free, confidential support anytime.

And maybe today, take a moment to check in on someone else. Not just "How are you?" but "How are you really doing?"

Give yourself a little grace. It's okay to not be okay, and asking for help is a strength, not a weakness!

3 days ago

  • NewestOldestClick to View All Comments4 comment(s)
  • das23Happy Thanksgiving brydy3 days ago
  • brydythxs Dave! 2 days ago
  • JeanO53Thanks for bringing this up Brandon!  Though one day
    just doesn't seem like enough.

    I think I've said this before, but I think mental health is one of the least
    talked about areas of managing COPD but so very important!  Taking care of our mental health is an important key to taking care of our
    physical health.

    ... I see lots of ways folks in our community take care of their mental
    health. Beyond talking with and seeing our healthcare providers, and taking our meds, there so much else going on.   Checking in here and connecting with others who understand our experiences can be one way. 2 days ago
JeanO53

JeanO53Sharing a few pictures from yesterday.  I visited a 73-acre park that sits in the middle of a residential neighborhood.  One of it's features is a large lagoon that covers 4-acres. It's kind of amazing!
 Yesterday it was filled with huge flocks of ducks, both Mallard and Wood, with a few other odd ones.  It was a great way to spend some time in the afternoon.  I got really lucky a was able to get some close up pictures of an adult Black-crowned Night Heron and the Wood Ducks.

3 days ago

netmouse

netmouseanswered the question Drug not covered

Correction, the Medicare plans do not cover Advair Diskus powder. They do cover Advair HFA. I do not know why one is covered and not the other as the drugs are the same.
Caroline West Virginia State CaptainJeanO53 also answered the question Caroline West Virginia State Captainand 1 other also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Wishing everyone a nice, cozy fall day! ๐Ÿ˜Š ๐Ÿ‚

4 days ago

netmouse

netmouseasked the question: Drug not covered

I see that no Medicare Part D drug plan covers Advair diskus 250. I had no trouble getting this a few years ago. A search reveals you may find alternatives such as generic fluticasone-salmeterol, Wixela Inhub, Breyna, or Breo Ellipta. Have you …

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.