COPD360social welcomes new member Ma01ry01 who joins 66,461 current members of our community. Weโ€™re glad you're here!

Amanda*08

Amanda*08Hi everyone 
Have a question.
In March I was told that I was at 28% lung function and would need a transplant.
This August I took another pft and am at 42% on my fev1. What are the chances to see this improve to maybe 50% or 55% after being smoke free for months? Can your lung function improve that much?
Thank you! 

2 hours ago

  • brydyHi Amanda, I think it would be good to review with your pulmonologist & see what their thoughts are. I know my result is a lot different post ventolin bec I have asthma as well as copd. if we are experiencing a flareup during a pft result can be lower too & higher after getting over it. theres a lot of variables, so your doc would be best to interpret your recent result. 1 hour ago
ML1977!

ML1977!Has anyone here ever tried this product? I ordered it from Amazon but have not tried it yet because of the mixed reviews I have read. If anyone is familiar with this or happens to know anything about other supplements or devices that would help me breathe I would greatly appreciate any help. I am at Gold level E COPD less than 3 yrs after diagnosis. I can't walk across the room without becoming breathless and can't walk across the yard without breathlessness becoming out right Air Hunger. This is terrifying and I am begging for any suggestions from you. 

3 hours ago

  • brydyIm sorry to read you are having a hard time ๐Ÿ˜ž i havent tried mullein but have read it can help w mucus if thats an issue for u but not sure theres much conclusive evidence of this. 
    what I do think is the most helpful is pulmonary rehab, inhalers, eating right, hydration, rest etc. staying active really can help. 1 hour ago
ML1977!

ML1977!

Hi. My name is Allison and I am sorta new to this community. Although I first opened my account several months ago, I have not been active and have just found it in my emails inbox. As my COPD appears to be progressing more rapidly than I would have thought possible I have decided to log in and try to find some answers from those who may understand 

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainYay! I received my proclamation from the governor of Connecticut! ๐Ÿคฉ

3 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question There is a new article out touting a vicks mixture to cure COPD.

I have not seen anything and would be a bit suspect of anything promoting a "cure". Many researchers are working towards this- but the work proceeds very slowly.
DebbieB.-Connecticut State Captain also answered the question DebbieB.-Connecticut State Captain also answered the question

4 hours ago

KimStarling

KimStarlingasked the question: There is a new article out touting a vicks mixture to cure COPD.

There's a new article out touting a vicks mixture to cure COPD. Anyone have real time knowledge.

7 hours ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Check-in: How Are You Getting Involved for COPD Awareness Month?

I will be distributing kits at all 3 Jersey City Breathing Center locations. I have ordered a new COPD awareness hoodie (orange is my era), and may also wear my orange rain jacket depending on the weather.
Karen Deitemeyer - Florida State CaptainDebbieB.-Connecticut State Captain also answered the question Karen Deitemeyer - Florida State Captainand 1 other also answered the question

8 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainHi - I woke up this morning to a flash flood warning.  So far, we've had 12.9 inches of rain in the last 24 hours. and it's still coming down!!  I'll post a few pictures of the lake that I live on.  It's run over its banks and my screened in porch has 5 inches of water.  Because Ebony's litter box is on the porch, luckily I had a cardboard box and I waded out to get the cat litter jug. I set it up inside and she's such a good kitty that she used it right away.๐Ÿ˜


The first picture is what my deck looks like normally.

8 hours ago

Community Announcements

Community Announcementsadded a new article Landmarks across the globe "Go Orange" for COPD Awareness Month

Miami (November 2, 2026) - In honor of COPD Awareness Month in November, 79 landmarks across the United States, Canada, Australia, New Zealand, and the United Kingdom will illuminate orange to raise awareness of chronic obstructive pulmonary disease (COPD).

More than 30 million Americans are affected by COPD, yet approximately half remain undiagnosed. COPD, which includes chronic bronchitis and emphysema, can be caused by genetic factors and exposure to lung irritants, including tobacco smoke and air pollution.

"Each landmark illuminated in orange represents an opportunity to spark awareness, encourage conversations, and help more people recognize the signs of COPD," said Jean Wright, M.D., MBA, CEO of the COPD Foundation. "With millions of people living with undiagnosed COPD, increasing awareness is critical. These orange lights serve as a powerful reminder that earlier diagnosis, advances in treatment, and continued research can help people breathe better and live healthier lives."

9 hours ago

Kalli Mago (COPDF Communications Coordinator)

Kalli Mago (COPDF Communications Coordinator)asked the question: Check-in: How Are You Getting Involved for COPD Awareness Month?

November is COPD Awareness Month! This month is a time to spread awareness, share your story, and show support for everyone affected by COPD. Whether you are a person living with COPD, a caregiver, a friend, a family member, or a health care …

11 hours ago

London Dan

London Dan

Hi. I am a 58 year old man from London. I had a recent scan on my chest to investigate a small blood clot that was coughed up. 
 A nurse from the Respiratory clinic at a very famous London hospital told me โ€œgood news, you donโ€™t have lung cancer Daniel. BUT you have mild emphysemaโ€.


That was that. Because I told him that I donโ€™t really have any symptoms apart from coughing up white phlegm when jogging he said Iโ€™m not being referred anywhere.


I came very close to doing something very stupid that weekend. Talk about leaving you in the wind!


So I donโ€™t know what to do. Apparently I donโ€™t need meds. Coincidentally I had booked a stop vaping seminar for just a few days after I was told the above and have now been nicotine free for 11 days. I stopped smoking about 15 years ago but have been a very heavy vaper ever since (apart from a 14 month period vape free).
 Unfortunately , I have an added complication and probable cause of my condition (please donโ€™t judge me on this. I promise, Iโ€™ve never harmed anyone else either financially or otherwise in the pursuit of them but I used illicit drugs for sporadic periods and I think that has greatly added to my issue. I mightโ€™ve even gotten away with it had it not been for the drugs. Though I doubt it.
 My brother has COPD. My 2nd cousin. His mother had it. My father had asbestosis. My fatherโ€™s uncle also had lung disease. I guess we must be genetically predisposed to it.


Can anyone tell me what I should do? I take lots of supplements . Should I stop taking them? I read that taking too many antioxidants can have the opposite effect and cause pro-oxidation. 
 
Iโ€™m on a bp drug and a beta blocker (I suffer from anxiety). But no other meds. 


Would you recommend pulmonary rehab programmes?

13 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸฝARUGULA SALAD๐Ÿฝ6 cups arugula1/4 cup golden raisins 1/4 cup sliced almonds 3 tbsp. olive oil 1 tbsp. lemon juice 1/4 tsp. salt1/4 tsp. freshly ground black pepper 1/3 cup shaved OR shredded Parmesan cheese In a large bowl, combine the...

14 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday! Yes! We are your support squad! We are always here for you! 
Please help us to spread the word. ๐Ÿ—ฃ November is COPD Awareness Month. Tell your family and friends about our website. The more the merrier! ๐Ÿงก Wishing everyone an awesome, easy breathing day! ๐Ÿ”ธ๏ธ๐Ÿ”ถ๏ธ๐Ÿ”ธ๏ธ

18 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Check-in: How Do I Avoid COPD Flare-Ups?

Karen brings up a good point. The National Park people do controlled burns as well, so that may affect me at some point.
Karen Deitemeyer - Florida State CaptainAli AbdjabbarDebbieB.-Connecticut State Captain also answered the question Karen Deitemeyer - Florida State Captainand 2 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello, friends! We took our Boxer, Hazel Madeline out for an early Sunday drive. 
There are a great many empty boat slips as the weather turns cooler. ๐Ÿ‚

1 day ago

Greenly92826

Greenly92826

Greenly92826Good Morning All. I was diagnosed a month ago by my 2nd opinion dr. I live in CT and I am having a hard time with pulmonologists. 1st Dr. said it was โ€œmild asthmaโ€ and said I was safe to fly to MX with 2 puffs of Albuterol!!!! I did not go. 2nd Pulmonologist would not answer my direct questions regarding my diagnosis, but wrote it in my chart!!!! I have yet to speak to a doctor regarding this. Next month I am traveling to Temple Lung Center praying for answers. RV/TLC is 60%, RV 3.39 and IC is 0.83. I donโ€™t understand why they rely on FEV1 and FVC when for me that part is hopeful but lung volume portion is dire. I couldnโ€™t complete DLCO portion. Can only blow 150 on a peak flow. I liked MJ. Donโ€™t smoke anything. I have always had severe allergies and perhaps untreated asthma. Have some cardiac stuff and suspected sleep apnea.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends!
Did you know that November is COPD Awareness Month? So, today is the first day to start learning, and spreading the word. ๐Ÿ—ฃ This is THE place to be to get lots of support, and make new friends. 
And, while you're here, click on the LEARN MORE tab at the top of the page. Plenty of reliable, helpful information there.
๐Ÿ”ธ๏ธ๐Ÿ”ธ๏ธ๐Ÿ”ถ๏ธGO ORANGE!๐Ÿ”ถ๏ธ๐Ÿ”ธ๏ธ๐Ÿ”ธ๏ธ

1 day ago

Greenly92826

Greenly92826

Hello. I am ok. thank you. 

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŽƒโœจ Happy Halloween! A Little Magic, a Little Mischief, and a Whole Lot of Heart! ๐Ÿช„๐Ÿ‘ป

Good morning, everyone, and Happy Halloween!

Well, here we are at the very last day of October! And wouldn't you know it, today is also National Magic Day, honoring the legendary Harry Houdini! ๐ŸŽฉ๐Ÿ‡

Houdini was famous for figuring out how to escape the impossible. And while living with C.O.P.D. may not involve escaping chains or disappearing from locked boxes, sometimes figuring out how to get through an ordinary day takes a little magic of its own!

We learn new tricks, find creative ways to do things, adjust our routines, and occasionally pull off something we weren't sure we could manage. And let's not forget our caregivers, who seem to have a few magic tricks up their sleeves, too! ๐Ÿ’™

But I think some of the greatest magic comes from the little things. The memories of Halloweens gone by, the laughter shared with family and friends, the excitement of costumes and candy, and those special moments that stay with us long after the decorations come down.

And right here on COPD360social, there's a little magic happening every day. A kind word, a helpful suggestion, a new friendship, or someone simply saying, "I understand." Sometimes that's the best trick of all. ๐Ÿ’™

โฐ And speaking of magic, don't forget that our clocks fall back an hour early tomorrow morning! If only we could magically turn that extra hour into a little more energy!

๐ŸŽƒ So here's my Halloween question: What's a little trick you've learned that makes living with C.O.P.D. or caregiving easier? Or do you have a favorite Halloween memory that still makes you smile?

Let's share a little magic today!

Wishing everyone a safe, happy, and wonderfully BOO-tiful Halloween! ๐Ÿ‘ป๐Ÿพ๐Ÿงก

And remember, you don't need a magic wand to make someone's day a little brighter!

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

Happy Halloween!! (Click on the card please)
https://jlcards.com/R83mB3

2 days ago

Burst222

Burst222

Not good runny nose all the time does anyone else have that

2 days ago

Burst222

Burst222

Hi my names liz i was. Diagnosed with copd last. Week am still smoking even tho i i have. Cut down by half am 68 years old am looking for freinds. Do you have any tips for cutting cigarettes out of my life happy Halloween to 

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainFriendly Reminder! 
Don't forget to set your clocks back 1 hour before going to bed tonight! โฐ๏ธ

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Halloween to all of our goblins here on 360Social! ๐Ÿ‘ป๐Ÿ˜›๐ŸŽƒ

2 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question COPD QUESTION

There are other in home, virtual pulmonary rehabs that you could look in to. Blu Zone Health and Kivo Health are 2 options I recommend. Have you had your cardiac health assessed lately?
David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question

3 days ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State Captainanswered the question Drug not covered

Years, back I was on Advair, and then it was dropped from my plan's formulary. My doctor switched me to AirDuo, which is the same as Advair but made by Teva.
Nancy2024Richard DJnetmouseand 2 others also answered the question Nancy2024and 4 others also answered the question

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

๐Ÿ‘ป๐Ÿ‘ป๐Ÿ‘ป๐Ÿ‘ป๐Ÿ‘ป๐Ÿ‘ป๐Ÿ‘ป B00! 


From out of the ground comes a stench so fowl
The only sound you hear is the hoot of an owl
The creepers, the crawlers, the ghouls, and such
You can look, but please don't touch
They are coming for a visit, their reason is clear
They want to enjoy Halloween this year 
They'll knock on your door, leaving their slime behind
It's the gooiest slime you'll ever find
All they want is candy, just one piece
A wee little bit of sugar shock release
They'll eat it and go back into the ground
Not a trace of them will ever be found
HAPPY HALLOWEEN!
๐Ÿ•ธBOO!๐Ÿ•ธ

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHello, all you ghoulies out there in Halloween Land! Let's start getting ready for the big day! ๐Ÿชพ๐Ÿ•ธ๐Ÿ•ท๐Ÿ’€๐ŸŽƒ


https://youtu.be/u8uvLHnrqdU?is=xt5X2-1xUc0q9lYo

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.