COPD360social welcomes new member 65Alive who joins 65,883 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ”๏ธ Today is National Climb a Mountain Day!

Not every mountain is made of rock.

Sometimes our mountain is getting through pulmonary rehab. Sometimes it's remembering to take our medications on time, keeping up with airway clearance, making it to a doctor's appointment, walking to the mailbox, or simply finding the strength to get out of bed and face the day.

And for our caregivers, your mountain may be juggling appointments, managing medications, offering encouragement, or simply being there day after day. You're climbing right alongside the person you love, and we see you.

Living with COPD means we all have mountains to climb. Some days they seem small, while other days they feel impossibly steep. But don't be afraid to look at the path you're taking. Every step forward matters, even the slow ones. Sometimes the biggest victory is simply deciding to take that first step.

The best part? You don't have to climb alone.

Whether you're living with COPD or caring for someone who is, this community is here to celebrate your victories, help through the difficult days, share ideas, and remind you that someone is always ready to walk beside you.

โ›ฐ๏ธ So tell us... what's the mountain you're climbing today?

Whether you're taking your inhalers more consistently, beginning pulmonary rehab, learning to pace yourself, caring for a loved one, or simply trying to make today a little better than yesterday, we'd love to hear about it.

After all, mountains aren't climbed in one giant leap. They're climbed one step, one breath, and often one friend at a time! ๐Ÿ’™

23 hours ago

unexpectedcaregiver

unexpectedcaregiverasked the question: Is going blind worth it? (Advare experience)

My family member was healthy, with healthy eyes almost 4 years ago. A few days ago, we got the diagnosis she's blind. Since she's still healthy, we've been looking into how this happened. 4 years ago, her doctor strongly suggested a "non steroid …

2 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‰๐Ÿ‰WATERMELON SALSA๐Ÿ‰๐Ÿ‰"A unique, refreshing salsa! Great with tortilla chips, or as a topper for grilled chicken!"1 personal-sized OR mini watermelon (You will use as the bowl.)1 cup diced watermelon 1 cup diced cucumber1 cup diced bell...

25 minutes ago

elanab

elanabanswered the question Portable Nebulizers

One thing have learned in the past day or two...... if a device is called or named "nebulizer," it requires a prescription. Something about how it converts liquids into such tiny particles for better absorption, there is temptation for determined people …
HIcopd - Hawaii State CaptainHopefulLungsCaroline West Virginia State Captainand 2 others also answered the question HIcopd - Hawaii State Captainand 4 others also answered the question

1 hour ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from my best girl, Hazel Madeline! We both wish everyone here on 360Social an absolutely wonderful day! ๐Ÿ˜€

5 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Has anyone heard of prep buddy

Some of my colleagues in Cincinnati developed this device. It simulates pursed lipped breathing and it seems to work well for some patients. https://pepbuddy.com/
das23 also answered the question das23 also answered the question

10 hours ago

Tom.E

Tom.Eanswered the question Has anyone tried Breztri vs Spiriva

No, no throat issues. But I do use a spacer with my Breztri.
Webbgirl028Kailuabreathing Susiereaderand 2 others also answered the question Webbgirl028and 4 others also answered the question

16 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question Check-in: Preparing to travel with COPD

Oh yes, layering is your friend. When you add and subtract layers to be at a good temperature, you donโ€™t need to pack nearly as much in the way of bulky items that you only can wear when itโ€™s REALLY cold, for example. Bringing garments that are easy to …
Prince Osei SRHDavid Mannino, MD (Chief Medical Officer, COPD Foundation )and 2 others also answered the question Prince Osei and 4 others also answered the question

19 hours ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event BronchandNTM360social Coffee Break - Wednesday, August 12, 2:30pm Eastern.

BronchandNTM360social Coffee Break - Wednesday, August 12, 2:30pm Eastern. A group for those in the bronchiectasis and NTM lung disease communities. Register here: https://copdf.co/Bronch-NTM-support

19 hours ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event OxyTalk Social Hour - Wednesday, August 12, 4pm Eastern

OxyTalk Social Hour - Wednesday, August 12, 4pm Eastern. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. Register here: https://copdf.co/oxy-talk

19 hours ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist) created the event COPD360Social Hour & Harmonica Play-Along- Wednesday, August 5, 4pm Eastern.

COPD360Social Hour & Harmonica Play-Along- Wednesday, August 5, 4pm Eastern. A group for everyone in our COPD community to make friends, catch up, and answer your most pressing questions. Bring your harmonica for a Harmonicas for Health play-along to …

19 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

It's quite the good Summer salad, Karen! ๐Ÿ˜€...

20 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

I would make this, but leave out the onion and garlic, LOL...

20 hours ago

Paulberge

Paulberge

Trying to find out what triggers a good day from a bad day 

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸดSUMMER RADISH SALAD๐Ÿด2 cups sliced radishes 1/2 tsp. salt1 cup thinly sliced red onion 1 cup sliced, seeded cucumber 1/2 cup olive oil 2 tbsp. white wine vinegar 1 tsp. chopped fresh dill 1 clove garlic, minced1/2 tsp. sugarToss radishes...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! 
Make every moment count! There are so many little things that make up one big day! ๐Ÿ˜Š
I wish everyone a truly wonderful day! ๐Ÿ˜€

1 day ago

elanab

elanabasked the question: Portable Nebulizers

I am brand new to ALL of this and was prescribed an Omron CompAir Compressor Nebulizer for use with Albuterol Sulfate Inhalation Solution, 0.083%, all of which I brought home from the hospital 2 days ago. I found this website forum and read the earlier …

1 day ago

GAnne

GAnneasked the question: Has anyone heard of prep buddy

What is the PEP buddy? I have only seen a little about it

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Called all four of my local Congressional offices, urging them to fully fund NIH promptly. 

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

baileymccrarybaileymccraryโ€‹, please repost what we should be calling Congress about!โ€‹

1 day ago

SusanLynne

SusanLynne

Hi! I am a 64 year old female COPD survivor! I inherited Alpha-1 from my mom.  I am currently on Trelegy and musinex daily, sleep with O2, and Ipratropium and rescue inhalers as needed. I also receive Prolastin C infusions weekly.  My doctor recommended Otuvarye and a respirator at night.  I requsted we try Dahliresp before the Otuvarye. Is anyone on Dahliresp? I just started it. Seems like it may work. Ant thoughts?

1 day ago

  • Coach Brandon - Community ManagerHi, SusanLynne! Welcome!  You've definitely come to a good place to ask! I have a feeling there are quite a few members here who have experience with Daliresp and can share what it was like for them.

    I'd love to hear how you're doing with it too as you get a little further along. Sometimes those first few weeks can answer a lot of questions for the next person who's considering the same medication. Thanks for sharing a little about your journey, and I hope you'll keep us posted. I'm looking forward to hearing what others have to say. Again, welcome to our community!1 day ago
Monkeybreath

Monkeybreathcommented onCOPD and Disability Benefits: The Pros, Cons, and Step-by-Step Guide to SSDI

I went thru this and can guarantee the one thing you need is tons of paperwork, tests, test results, doctors notes, charts, etc. I was well prepared and was able to get thru it smoothly without having to appeal. If you do not have this paperwork...

1 day ago

LucindaS

LucindaScommented onCOPD and Disability Benefits: The Pros, Cons, and Step-by-Step Guide to SSDI

Good article, Arnelle. Informative and to the point!...

1 day ago

Phyliss DiLorenzo NJ State Captain

Phyliss DiLorenzo NJ State CaptainI am partial to blue, purple and green, and this incorporates those snd more. Always loved this! 

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager๐Ÿ’„๐ŸŒŽ Visit My Corner of the World Wednesday: Show Us Your Colors! ๐ŸŒˆ๐Ÿ“ธ

Today is National Lipstick Day, and it has me thinking about finding just the right shadeโ€”the one that helps you feel a little brighter, a little stronger, and a little more like yourself.

Living with COPDโ€”or caring for someone who doesโ€”can be a lot like finding that perfect shade. It may take some experimenting to discover the routines, treatments, breathing techniques, and small comforts that work best for you. What helps one person shine may look completely different for someone else, and thatโ€™s perfectly okay. We each have our own shade!

With the summer heat, smoke, and heavy air, many of us could use an extra pop of color right now. For todayโ€™s Visit My Corner of the World Wednesday, show us the colors brightening your corner. It might be a flower in bloom, a colorful sunset, your favorite shirt, a cheerful roomโ€”or even the lipstick that makes you feel fabulous. ๐Ÿ’‹

If youโ€™d like, share a photo or tell us: What color is popping in your corner of the world, and what helps you feel your best when life could use a little brightening?

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

APRICOT-BRAZIL NUT ENERGY BALLS1 1/2 cups shelled Brazil nuts1/4 tsp. cinnamon 1/8 tsp. salt 1/2 cup packed dried pitted apricots 1 tsp. vanilla extract 2 or 3 Medjool dates, pittedPlace Brazil nuts, cinnamon, and salt in a food processor. Pulse a...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainDo you know why this Wednesday sparkles and shines? It's because you emit brightness and pure joy! 
Thank you for being an important part of our community! 
Wishing all of our wonderful members a lovely day! 

2 days ago

Mark 1954

Mark 1954

Okay ๐Ÿ†—

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.