COPD360social welcomes new member SuzieQuesada who joins 65,434 current members of our community. Weโ€™re glad you're here!

Misty Green COPDF Research

Misty Green COPDF ResearchRELIANCE Participant Townhall


Youโ€™re invited! Please join the lead study doctors and the COPD Foundation on Tuesday, June 9, 2026 at 10:30am Central Time for a virtual RELIANCE Townhall Meeting! This meeting is being presented for participants of the RELIANCE COPD study. We will cover an overview of the study design, what Investigators are doing now since the last follow-up visit was completed on February 28, and how we plan to share the results of the study with you.


We hope to see you there!Link to register: https://nam04.safelinks.protection.outlook.com/?url=http%3A%2F%2Fuic.zoom.us%2Fmeeting%2Fregister%2FqBdZOJl3TX2Gc1FUsMRq9w&data=05%7C02%7Cmgreen%40copdfoundation.org%7C20a7147b28cf433959ba08debff47eb9%7C419bb2dd6a2f420b9d1f41ce82cdcbd0%7C0%7C0%7C639159254452641020%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=tGxS3C8y%2FiUHiAx8wGhz9JnFgzwG88rwZqePSOZvrPg%3D&reserved=0


After you register, you will automatically be sent an email with a link you can use to join the meeting on June 9. You can register and join the meeting anytime until it ends.

18 minutes ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐ŸŒŸ Say Something Nice Day ๐ŸŒŸ

Living with COPD can bring challenges that many people never see. Some days take extra effort, extra patience, and a little extra courage. That's why today feels like the perfect opportunity to celebrate Say Something Nice Day!

Let's take a moment to brighten someone's day.

๐Ÿ’™ Thank a caregiver who is always there.
๐Ÿ’™ Encourage a fellow member who may be having a difficult week.
๐Ÿ’™ Tell someone you're proud of the progress they've made.
๐Ÿ’™ Share a compliment, a kind memory, or simply let someone know they're appreciated.

You never know when a few encouraging words might be exactly what someone needs to hear.

I'll start:

I'm grateful for this community. Every day I see members sharing experiences, offering support, celebrating victories, and helping one another through the harder moments. That kindness makes a difference.

Today, who would you like to say something nice to? Tag them, mention them, or simply leave a kind message below. Let's fill this thread with encouragement and reminders that none of us are walking this journey alone.

๐Ÿ’™ A little kindness goes a long way. ๐Ÿ’™

2 hours ago

Brittany Irish COPDF

Brittany Irish COPDFYou are invited to take part in a short survey to help us
better understand how people with chronic lung conditions navigate Medicare and
access treatments.

Your insights will help us:
- Identify whatโ€™s working well
- Better understand common challenges
- Create tools and resources that truly support
your needs

Whether you feel confident navigating Medicare or still have
questions, your perspective matters.

Together, we can build solutions that make accessing care
simpler and more supportive.

If you are 18+ and diagnosed with COPD, bronchiectasis,
and/or NTM lung disease, take
the survey now.

https://copdfoundation.jotform.com/261124968384061

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone here on 360Social an AWESOME day! ๐Ÿ˜€๐ŸŒž

2 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โ–ถ๏ธEASY CHICKEN FINGERSโ—€๏ธ1 pound boneless, skinless chicken tenderloins1 large egg2 tbsp. water1 tbsp. Italian seasoning Salt and freshly ground black pepper to taste 2 slices breadPreheat the oven to 375 degrees.Line a large baking sheet...

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainMay your Monday blossom into something great! 
Wake up, starting as a seed. Gradually grow into a seedling that is in full bloom by the time evening arrives! ๐Ÿ˜Š

8 hours ago

PCH

PCH

I'm thankful to be a new member after searching for a support group for a while. 

8 hours ago

NewLifeNana

NewLifeNana

Hello everyone. I am looking for support in my journey with lung disease. I knew for a few years that I had 'mild COPD" until January when I had a pneumothorax and a second pneumothorax and VATS with pleurodesis. Apparently I have moderate to severe COPD and emphysema. I am almost 4 months out from surgery, and have had to change my life totally. I think I need some support. I am having no luck finding such until this came up. Any help is welcome.

22 hours ago

Bob puff dragon

Bob puff dragonA beautiful sunny shiney kind of day on the coast,one thing about living here is our appreciation of the sun when it finally shows itself.


Big breaths and repeat for all.

23 hours ago

JeanO53

JeanO53So there I was watching the bluebirds fly back and forth from their nest box feeding their little ones and a flock of large white birds flew overhead.  Pelicans??  Yes Pelicans!
Fortunately, I had my camera ready and was able to capture a few decent shots!

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainNorway and its fjords are so lovely!

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

In all the time Iโ€™ve been traveling this trip to NYC & Scandinavia, I have NOT met any other person using supplemental O2. Iโ€™ve seen folks with wheelchairs, canes, hiking poles (for balance while walking) and many other health issues but no one else with any LTOT (other than myself). This really makes me sad that others with O2 arenโ€™t getting out and about. Admittedly it is more work and takes planning and coordination but itโ€™s important to be in the world!

1 day ago

Pippilotta64

Pippilotta64

Feeling alone and nothing to do. 

1 day ago

  • NewestOldestClick to View All Comments4 comment(s)
  • DebbieB.-Connecticut State CaptainAlone? Not while you're here on 360Social!
    If you are able to go outdoors,  there are plenty of activities I can think of! ๐Ÿ˜€1 day ago
  • JeanO53It sounds as though anxiety is really impacting your life and ability to get out and be active.
    There have been good suggestions.   I would definitely recommend seeing a good therapist to help you learn to manage the anxiety symptoms as well as learning to live with COPD.    Medication is an important part of a care plan but not the whole plan.  
     - - Is there a chance that you could participate in Pulmonary Rehab?  My experience was that is was good for me physically, but even more important was the psychological impact.  
    - - One other suggestion... I have found that doing free writing really helps.  Don't think about what to write, just write.   Need a prompt?  Maybe start with a list of all of the things you like to do.
    I think the greatest thing you can learn from many of us is to not give up hope.  There are things that each of us can do to live our lives in the best way possible.  Do we have limitations?  Sure we do.  And still we do the best that we can.   You can too!!1 day ago
  • Caroline West Virginia State CaptainYou are not alone.  We are here for whatever you need.23 hours ago
Pippilotta64

Pippilotta64

Feeling alone

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

On this beautiful Sunday morning I am aware of what a privilege it is to wake up and try again.

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainToday, saw a phone booth in Bergen, Norway, with books in English and other languages. 

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing you a lovely day, filled with hope, love, and kindness! ๐Ÿ˜€

1 day ago

Bob puff dragon

Bob puff dragonHope today is a great breathing day for all. 


Seen this great idea and has to share, smile and the world smiles with you.

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State CaptainToday, had an interesting meal of razor clams & grilled veggies in Bergen, Norway. The things that look like sticks are razor clams. Our friends had skewers & fish soup. Prices in Norway are pretty high. 

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

Yesterday I got a pneumonia vaccine and a shingles vaccine.  Both in the same arm.  Good thing since my left arm is very sore and swollen where the vaccines were injected and I've had fever and chills off and on since yesterday afternoon.  I'm hoping I'll sleep better tonight.

1 day ago

Janet52

Janet52

Not well, have been coughing up very thick mucus for over a week.
Fatigued, SOB, have followed medical treatment plan with no improvement. 

2 days ago

ktm390

ktm390

Does diffusiin change very fast? My fev1 fev normal diffusion 64 percent should be 80 for healthy also does anyone have pulmonary fibrosis

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWishing everyone an absolutely wonderful Saturday! 
Peace, love, and joy are all headed your way! ๐Ÿ˜Š

2 days ago

MandyYakon

MandyYakon

Hello I'm new here but I seen your user name and I'm from the southern part of West Virginia.  I just wanted to introduce myself lol.  

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainCarry this thought around with you, everywhere you go! 

2 days ago

Jamie Jarrard (COPDF Sr. Communications Specialist)

Jamie Jarrard (COPDF Sr. Communications Specialist)answered the question Check-in: Have you experienced COPD symptoms from wildfires?

Bringing this thread forward again in light May=Wildfire Awareness month, and the recent wildfires that have been burning in Florida this spring. If you live near dry areas, or any of the locations with wildfires, have any of you noticed any changes in …
Shinybeast2325muddleagedHIcopd - Hawaii State Captainand 7 others also answered the question Shinybeast2325and 9 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain       ๐ŸŒŸFLUFFY FRIDAY BONUS๐ŸŒŸ


Hazel, at her best, loving to play...no matter what! ๐Ÿ˜ƒ

2 days ago

Bob puff dragon

Bob puff dragonFriday ,woo hoo,another weeks experience in the book of life.Been real busy with radiation treatments and auctioning off all my shop tools on Thursday at least that's over.Going to start giving lessons again next week just been so tired, funny how much you miss something you take for granted.


Seen this little guy and it was like looking in the mirror, keep smiling all.

2 days ago

Evie

Evie

Thank you all for the info. 
Evie

3 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.