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Coach Brandon - Community Manager

Coach Brandon - Community ManagerDPP Check-In ๐ŸŒง๏ธโ„โšก

With intense storms hitting many parts of the country in the coming days, this is a good moment for a quick Disaster Preparedness Plan (DPP) check-in.

A few gentle reminders to help you stay ready and safe:

Medications & supplies ๐Ÿ’Š๐Ÿงฐ๐Ÿ”‹๐Ÿ”Œ: Make sure you have extra meds, oxygen supplies, batteries, and chargers on hand if possible.

Power plan โšก๐Ÿ ๐Ÿ“ž: If outages are a concern, double-check backup power options and keep emergency numbers handy.

Air quality & breathing needs ๐Ÿ˜ฎโ€๐Ÿ’จ๐ŸŒฌ๏ธ๐Ÿซถ: Storms can stir up cold air, humidity, mold, or allergensโ€”listen to your body and pace yourself.

Stay informed ๐Ÿ“ฒ๐Ÿ“ป: Keep alerts on and know where to get local updates if conditions change quickly.

Reach out ๐Ÿค๐Ÿ’ฌ: Let someone you trust know how youโ€™re doing, especially if you live alone.

If storms are impacting your area, know youโ€™re not facing it alone. Take things one step at a time, rest when needed, and put safety first. ๐Ÿ’™

Feel free to share how things look where you areโ€”or any tips that have helped you prepare.

Here is our Disaster Preparedness Plan (DPP) available in our Downloads Library:

https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#DPP

COPD Foundation Educational Materials

The COPD Foundation educational library has a variety of useful booklets, flyers, and tools that you can download to help you learn more about living and thriving with COPD โ€“ everything from the basics of lung conditions to specific topics such as exercise and exacerbations (flare-ups).

20 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerItโ€™s Visit My Corner of the World Wednesday! ๐ŸŒ

Letโ€™s get a little midweek energy going! Whether your view is from a front porch, a favorite chair by the window, a park bench, or somewhere totally unexpected, weโ€™d love to see it.

Your corner of the world doesnโ€™t have to be fancy โ€” just real. A place that brings you a smile, a sense of calm, or a moment of joy.

Share a photo, tell us where you are, and letโ€™s take a mini trip together today. ๐Ÿ’™๐Ÿงก
Canโ€™t wait to see what everyoneโ€™s world looks like!

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community ManagerWebinar today:

Portable Oxygen Concentrator (POC) Basics & How To Spot โ€œNoncentratorsโ€



January 22 at 1pm ET
Itโ€™s important for supplemental oxygen users to understand the basics of POCs before they purchase them. The market place is confusing with non-FDA cleared devices claiming they work better than FDA cleared devices and provide higher liter flow at a lower price. Mike Hess, MPH, RRT, RPFT, Senior Director of Advocacy and Regulatory Affairs at the COPD Foundation and Mary Kitlowski, President and Founder of Running On Air, will go over the basics of how POCs work, what to consider when using or purchasing a POC, and how to spot devices that are not FDA cleared, which we refer to as โ€œnoncentratorsโ€ and why itโ€™s important to know the difference.

To register for today's webinar, click link below:

https://zoom.us/webinar/register/4617585603982/WN_-UjKh1dXRBS16ARuoEMCnA#/registration

Welcome! You are invited to join a webinar: Portable Oxygen Concentrator (POC) Basics & How To Spot "Noncentrators". After registering, you will receive a confirmation email about joining the webinar.

It's important for supplemental oxygen users to understand the basics of POCs before they purchase them. The market place is confusing with non-FDA cleared devices claiming they work better than FDA cleared devices and provide higher liter flow at a lower price. Mike Hess, MPH, RRT, RPFT, Senior …

2 hours ago

Rickr

Rickranswered the question Alternate meds

I started Dupixent 3 months ago, and have had huge improvements. After 3 days, i felt the affects. After 2 weeks, no more wheezing. Still using Symbicort 80, but havenโ€™t needed my Albuterol. You might want to look into it. Good luck
HIcopd - Hawaii State CaptainKaren Deitemeyer - Florida State Captain also answered the question HIcopd - Hawaii State Captainand 1 other also answered the question

4 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ‘๐ŸŠBAKED PEACHES๐Ÿ‘๐ŸŠVery easy to prepare using ingredients you have on hand!4 canned peach halves, drained2 tbsp. chopped walnuts 2 tbsp. brown sugar1/2 tsp. grated orange zest1/8 tsp. ground allspicePreheat the oven to 350 degrees.Place...

5 hours ago

mebeal321

mebeal321answered the question Mild Obstruction Severe Persistent Asthma

Thank you for the response man. I saw your story over on reddit too. I hope you are doing okay right now and are headed in a good direction. Yeah ive been told my pft doesnt look terrible and to he honest it isnt the worst. I dont get out of breath …
45yrcopdasthmaDavid Mannino, MD (Chief Medical Officer, COPD Foundation )das23 also answered the question 45yrcopdasthmaand 2 others also answered the question

9 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday! It's always nice to learn something new. 
This is an antique Russian wooden carved sleigh from the late 18th century. Very ornate! 
We tend to think about sleighs in the winter,  especially when we see alot of snow!
Wishing everyone a pleasant day! Keep warm, my friends! ๐Ÿ˜Š

9 hours ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

Just wanted to thank all those who were able to join us at our COPD Support Group meeting today!  It was our biggest meeting since pre-covid and it was nice that so many were able to join us and talk with the respiratory therapist.  Hope folks can join us next month as well, 3rd Wednesday as usual, 10-noon Hawaii Standard Time (3-5pm Eastern).

10 hours ago

Paul COPD&MORE

Paul COPD&MORE

Hi itโ€™s a horrible and frightening 
Condition I have had more visits 
To doctors & hospitals in the past 
Ten years . And last two of them 
Have been the worse when you 
Lose your breath and cannot seem
To inhale any air in to your lungs
No matter how hard you try you try 
To move witch is impossible because 
Youโ€™re fighting for air moving makes
It harder and start panicking I found if
You start panicking itโ€™s even harder 
On your self . So I try to keep calm 
Itโ€™s so hard not to I have had this experience 3 times in a month 
Am 61 itโ€™s very scary feels like Suffocating this is just my experience 
Of COPD but I have also multiple lung
Nodules in both lungs and are none operable so it aggravates my COPD 

Soz for going on  never been on 
Anything like this my daughter calls
Me technically thick 

18 hours ago

Djrose

Djrose asked the question: Alternate meds

I have severe COPD and currently use Breztri twice a day and abuteral as required. I get frustrated when I canโ€™t do some of the simplest tasks. I see all these ads and was wondering if any has tried any of these products and did they see any improvement? …

18 hours ago

Paul COPD&MORE

Paul COPD&MORE

Hi I have never been on this kind of 
Thing . I suffer from 5 conditions 
I have a rare form of muscular dystrophy called FHS i donโ€™t know if
Anyone understands it it called facula 
Humeral muscular dystrophy & multiple nodules in both lungs 
Which they say are inoperable 
Also COPD & cervical spinel synopsis 
Also nodules through out my colon &
Bowl multiple . Grand mall eperlepcy
How much worse will my breathing 
Get and how quickly will I decline 
Specialist has told me because of my
FSH . My chest muscles are severely 
Weaker than expected I have a lot of         weight loss and mussel deterioration 
Witch has weekend my chest mussels   
Just getting out of bed is an effort in
Itโ€™s self . Any help or sergestions 
 

19 hours ago

EdnaBunny

EdnaBunny

I have just been diagnosed with COPD and trying to get used to the term.

22 hours ago

baileymccrary

baileymccraryHi everyone! Good news - the U.S. House and Senate have released a bipartisan and bicameral appropriations package that includes several good provisions for the lung health community! Now is the time to urge your lawmakers to pass this budget package. Visit our Advocacy Action Center to quickly send a message directly to your members of Congress: https://www.votervoice.net/COPD/campaigns/133001/respond

Join our Advocacy | Action Center | COPD Foundation

The COPD Foundation community works with local, state, and federal policy makers to increase research funding, improve care delivery, protect access to treatments, and create policy that improves the lives of those with COPD and related lung conditions. We cannot act alone. Use this COPD Action …

22 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

DebbieB.-Connecticut State Captainโ€‹  I had the spinach omelet for lunch today. It was very good.  I cut the recipe in half.

23 hours ago

Jazzybean

Jazzybean

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question PFT results

Sure. Last month you said you were at 38% ( Stage 3/ severe)-- but it would be useful to see all of the numbers.
das23 also answered the question das23 also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐ŸŠ๐Ÿ‹CITRUS JASMINE RICE๐Ÿ‹๐ŸŠ1 cup Jasmine rice1 1/2 cups water 1 tsp. chicken bouillon granules1/2 tsp. saltZest of 1 small orangeZest if 1 small lemon1 clove garlic, smashed 1/4 cup thinly sliced scallions Bring the water to a boil in a medium...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's wonderful Wednesday! We are in a good place! We have so much to look forward to each day! Let that sunshine pour into your life! ๐ŸŒž You'll be glad that you did. Keep on smiling friends, and never give up hope! ๐Ÿ˜€

1 day ago

KingDeath83

KingDeath83asked the question: PFT results

Can you post your own pulmonary function test to get a straight answer of how bad you actually are? I have the pdf I just want a straight answer what stage? I feel terrible and would just like a little more of a straight forward answer not the usual …

1 day ago

Antony P

Antony Panswered the question Has anyone on this forum had the Zephyr valves installed?

I had 3 zephyr valve put in my left lung one week ago. I am using oxygen for the first time. In theory for 3 weeks. I'm very optimistic and hoping for more endurance and golf. There appears to be improvement every day. Will keep you posted. Too soon to …
Sally GardnerShasheJean IA State Captainand 8 others also answered the question Sally Gardnerand 10 others also answered the question

1 day ago

KingDeath83

KingDeath83

Can you post your own pulmonary function test to get a straight answer of how bad you actually are? I have the pdf i just want a straight answer 

1 day ago

Mark Keating

Mark Keatinganswered the question I am looking at using Oxy-View glass frames.

My wife started using them soon after her diagnosis. Long story short: We've been trying to buy a new set of frames for several years. The ones she has are literally falling apart after this long. Unfortunately, it seems that the company that …
Who Me ? also answered the question Who Me ? also answered the question

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question โ€‹Check-in: Are you getting enough high-quality sleep?

My kids have sworn by blackout curtains and even bought them for frond & apartments. Theyโ€™re night owls so like it dark during hours they want to sleep.
Karen Deitemeyer - Florida State Captain also answered the question Karen Deitemeyer - Florida State Captain also answered the question

1 day ago

Ken Benson-California Lung Health Advocate and State Captain

Ken Benson-California Lung Health Advocate and State Captain

You are invited to attend theSoCalRoadrunners/San Diego AlphasAlpha-1 Support Group Meeting via Zoom Thursday, February 5, 20269:00 am -11 am PT.  
Please join us to meet Dr Suri from our newest Clinical Research Center in San Diego at UCSD.  
Please respond by Februry 1 to get the Zoom invite.
RSVP to Support Group Leaders:
Jan Ligman 760-799-7393 socalroadrunners2016@gmail.com
Bill Libby 858-354-7059 sandiegoalphassg@gmail.com

1 day ago

Kalli Mago

Kalli Magoasked the question: โ€‹Check-in: Are you getting enough high-quality sleep?

January is International Quality of Life Month. One way you can boost your quality of life each day is by sleeping well. Why is sleep important? Studies consistently show that getting enough sleepโ€”at least seven hours per night, according to the …

1 day ago

Klewis1958

Klewis1958

I have a question does anyone else notice that they start to lose your voice when your talking? Its almost like you can't breathe while talking.

2 days ago

AliFarmaish

AliFarmaishanswered the question Former Smokers: How did you kick the habit?

One thing that helped me reduce vaping was tracking it. PuffStats tracks puffs and nicotine and keeps things simple.
AnonymousolbetsyFriendly deviland 24 others also answered the question Anonymousand 26 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

Good idea, Caroline! That's very easy to do. I hope you enjoy this! ๐Ÿ˜Š...

2 days ago

JenJen on wheels

JenJen on wheels

Hi! I am 47 and I have COPD but I also have an interstitial lung disease as well. I am also in respiratory failure type 2 and have severe centra apnea.
Iโ€™m ventilated with VPAP 18 hours a day with a couple of litres ox oxygen to keep me at 89 to 92%sats.
I also have extensive peripheral neuropathy and an acquired Ataxia (the area of my brain (the cerebellum) responsible for balance among other things is degenerating so Iโ€™m a full time wheelchair user. I live near Oxford and have two daughters, one is 20 and away at university as a nursing student and the other is 17 and will be going away to university in September. I have carers come in once a day but when my nest empties in September that will go up to at least one more as I loose my cook to a Chriminology degree๐Ÿ˜‚

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.