COPD360social welcomes new member humza909 who joins 65,862 current members of our community. Weโ€™re glad you're here!

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿซ Happy Milk Chocolate Day! ๐Ÿซ

Life with COPD asks a lot from us.

Appointments.
Medications.
Exercises.
Pacing ourselves.
Remembering all the "don't forgets."

So today, don't forget one more thing...

Treat yourself.

Whether it's a little square of chocolate, your favorite candy bar, or a homemade brownie, sometimes the smallest treats can brighten the whole day!

(Just don't hide it so well that you can't remember where you put it... we've all done that!๐Ÿ˜‰)

๐Ÿซ What's your go-to chocolate indulgence?

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainDo you know why this Wednesday sparkles and shines? It's because you emit brightness and pure joy! 
Thank you for being an important part of our community! 
Wishing all of our wonderful members a lovely day! 

2 hours ago

bency

bencyasked the question: Most Comfortable and Quiet Air Purifier for Allergies

Hi everyone, I am looking for the most comfortable and quiet air purifier for allergies and would love to hear your recommendations. I have researched different options from trusted sources, including expert reviews, health websites, and professional …

5 hours ago

Mark 1954

Mark 1954

Okay ๐Ÿ†—

7 hours ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question Air quality

People have different degrees of sensitivity (so what is dafe for some may not be safe for others). Generally - once levels get above 100 is when people with respiratory problems start to notice that they are having difficulties. Among people without …
HIcopd - Hawaii State Captain also answered the question HIcopd - Hawaii State Captain also answered the question

12 hours ago

MickyHeart

MickyHeart

I wondered if there were spouses of COPD folks out there.  My husband has had COPD for 20+ years now and I think we are moving to a new stage.  I feel a bit lost and very sad.

14 hours ago

Jdub

Jdubasked the question: Air quality

Any advise on air quality numbers? I'm curious of when I should stay indoors- when it's above 50? I'm confused by all of this.

15 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I had a wonderful week with family, and hated to have to come back home, but now I need a vacation from my vacation ๐Ÿ˜†  My little great-grands are adorable and FULL of energy โค

15 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„๐Ÿ‘EASY PEACH MELBA๐Ÿ‘๐Ÿฅ„1/4 cup raspberry jam2 tbsp. waterPinch salt1 pint vanilla ice cream 4 peach halves, (canned or jarred)In a small bowl, stir together the jam, water, and salt until smooth. Press the mixture through a fine mesh sieve....

22 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Tuesday!
A smile is contagious, so the more you smile, the more people you will see with a big smile! ๐Ÿ˜ƒ Wearing a smile is so easy to do, and it goes with everything you wear! 
So, put on a happy face and enjoy your day, friends! ๐Ÿ˜€

1 day ago

Chrissyanne1984

Chrissyanne1984

Hello. I am a caregiver for my mother. Sheโ€™s lived with me for the past 15 years. She just found out last week her COPD is now in end stage with severe emphysema and the pulmonologist told us there is nothing left to do medication wise. 


Iโ€™m lost for words, I can tell the impact itโ€™s taken on my mom. Sheโ€™s recently looked into virtual pulmonary rehab since that appointment last Thursday.
Sheโ€™s suffering so bad and getting so discouraged. Extremely hard to watch my best friend go through this and may not be able to do anything. 
I am scared and Iโ€™m scared for her

1 day ago

Djrose

Djrose answered the question Do any of you h

I have an Apple Watch, I use it to track my oxygen levels and sleep patterns. It keeps a record of heart rate, oxygen level, and other things on my iphon
Dinna25WildebeestKaren Deitemeyer - Florida State Captainand 4 others also answered the question Dinna25and 6 others also answered the question

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‘–๐Ÿšถ Happy Take Your Pants for a Walk Day! ๐Ÿšถ๐Ÿ‘–

Yes... it's a real thing. And honestly, your pants have been waiting all weekend. ๐Ÿ˜„

Today's quirky holiday comes with a pretty good reminder: if you can, get up and get moving.

Whether it's a trip to the mailbox, a stroll around the house, a lap through the grocery store, or simply standing up and stretching a few extra times today, every little bit counts.

For those living with COPD or other lung conditionsโ€”and for the amazing caregivers walking right beside themโ€”movement isn't about setting records. It's about maintaining strength, building confidence, and doing what you can, at your pace.

Some days you'll feel like taking on the neighborhood.
Some days, just getting your pants moving is a victory.

Both count.

So today, let's give those pants something to do besides hanging around! ๐Ÿ˜‰

๐Ÿ’™ Where are your pants taking you today?

If you'd like, share a photo from your adventure... or simply tell us what keeps you moving. Whether it's family, your furry sidekick, your garden, pulmonary rehab, a favorite walking trail, or just the determination to keep putting one foot in front of the otherโ€”we'd love to hear your story and cheer you on.

Here's to taking one more step today than yesterday... even if your pants have to do most of the convincing! ๐Ÿ’™๐Ÿ‘–

1 day ago

Sapthatsme

Sapthatsme

I am newly diagnosed with mild COPD and love to walk, but reading that if humidex is hi, you shouldn't walk outdoors?  What is too high to walk and where can I check for the humidex?

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ’๐Ÿฅ’CREAMY CUCUMBER SALAD๐Ÿฅ’๐Ÿฅ’2 medium cucumbers, peeled1/2 cup plain Greek yogurt 1/2 tsp. salt 1 tbsp. finely chopped fresh dill Slice cucumbers about 1/8-inch thick. Place in a large bowl. Season with salt. Combine with the yogurt and dill.Cover...

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Monday to a great group of people!
Keep up the good work taking care of yourselves! 
Don't forget to keep those positive vibes flowing!
Keep a smile on your face, and you'll always be in the right place! ๐Ÿ˜€

2 days ago

Willem Thehu

Willem Thehu

I just got out of a exacerbation period of 35 days. Due to the very environment temperatutes it sloowed down my recuperation process. I lijke to learn more about biologicals and the results.

2 days ago

Connieb

Connieb

Today Iโ€™m doing pretty well!

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends!
Did you know that you can grow some lovely plants, even if you live in an apartment?
If you have a baker's rack, or a shelf, you can use that as your starting point. Windowsills and hanging pots are also useful!
There are many varieties of houseplants to choose from. You can even grow herbs to use for cooking!
๐ŸŒฟWe would love to see photos of your plants!๐ŸŒฟ Please feel free to share them with us! ๐Ÿ˜€

3 days ago

Tommocopd

Tommocopd

Hi Iโ€™ve just been told today I have COPD and I just thought Iโ€™d join the fofum

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ‘ฉโ€๐Ÿณ Happy Culinarians Day! ๐Ÿฝ๏ธ

Food has a special way of bringing people together. It reminds us of family, favorite vacations, celebrations, and the people who taught us how to cook.

Whether your "signature dish" is a homemade soup, the world's best grilled cheese, or a favorite dessert, we'd love to hear about it!

๐Ÿฅ˜ Tell us:
If we made a 360Social Community Cookbook, what ONE recipe would you insist on including?

You don't have to post the whole recipe (unless you want to ๐Ÿ˜‰). Just tell us the dish and why it's special to you.

Who knows... we may discover some new favorites!

โค Let's fill today's comments with delicious ideas and great memories!

3 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • DebbieB.-Connecticut State CaptainAwesome recipe ideas, friends! 
    I have about 15 recipe ideas I'd like to post.
    I am going to give a suggestion. 
    The most economical, easy, multipurpose recipe would be a big pot of homemade marinara sauce. 
    You can use this sauce for many different meal plans. 
    You can ladle it into containers and freeze it. You can give it as gifts. YOU CAN DIP ITALIAN BREAD IN IT AND MANGIA!!! ๐Ÿ…๐Ÿ˜‹
    And, please...If you haven't visited the Eating Well blog, please consider doing that! We always welcome recipe ideas and kitchen tips! I post a new recipe back weekday morning! ๐Ÿฝ3 days ago
  • WildebeestI used to cook a lot more but my husband is the chef around here. He has arthritic knees but they have improved with weight loss so he is able to stand and do more in the kitchen. The thing I make most often now is granola in our air fryer. The choice of chopped nuts varies but I always use jumbo rolled oats, pumpkin seed oil, local honey, crystallised ginger chopped small, ginger and cinnamon powder and dried cherries. Usually I will put in pumpkin seeds and sesame seeds. Sometimes chia seeds. My husband tends to eat it as a cereal and I tend to use it as a topping on fruit and yogurt.3 days ago
  • DebbieB.-Connecticut State CaptainSounds really good! ๐Ÿฅ„ 3 days ago
JeanO53

JeanO53I saw a pair of Indigo Buntings late yesterday afternoon. 
Normally I see the beautiful male high in the trees, but these two were hanging out around one of the rain gardens.
Since they build their nests low to the ground,  there may be a nest somewhere in this garden.  

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, everyone! Wake up and stretch! Get those positive thoughts flowing! You are about to enjoy a wonderful day! Keep on smiling!
Did you know that a smile is contagious?!! ๐Ÿ˜ƒ

4 days ago

Sue Joyce

Sue Joyce

I feel a little stuffy today.

4 days ago

Dawchr71

Dawchr71

Hello, I am new here. My husband has severe COPD. His last hospital stay, in May, they told me he has about 2- 7 years, and wouldn't be surprised if something didn't happen within the next year, due to how bad he is.  How do I deal with something like this? He was referred to Palliative Care, and they said he would qualify for Hospice care, which made me even more worried.  He did refuse hospice care and is currently holding his own, at least that is what he tells me.  Tonight he said his chest has been feeling weird all day, not right, he said just weird. He says other than that he feels ok. I should mention that he hates hospitals and does not want to go back in to one if he doesn't have to.  Apologies if I am rambling, I don't really have anyone to talk to about this, my mom, who was also my best friend, passed away in 2020. there has not been anyone I feel comfortable talking to about my fears/concerns. I put on a brave face and try to take it day by day. Thank you for listening. 

4 days ago

Mary Lou Cook

Mary Lou Cook

I was sent home after a hospital stay with oxygen and a COPD/emphysema diagnosis.  I am 79 years old.  Prior to this I had no idea.  I have no shortness of breath and led a fully active life before.  No breathing test was ever administered that I know of.   I have no idea  what I can and cannot do.  Some days Im fine and some days not.  I seem to have a very bad pulmonologist who has no idea about my case!  I have to carry a spirometer to tell what my oxygen is..  I have days where itโ€™s up all day and today it is down.  
Treatment so far has been a Pet scan for nodules (which are ok).  The pulmonologist thinks I need 24 hour a day oxygen.  Im not ready for that.

Primary care dr. Could no figure this out.  What do I do?  I live in rural America.

4 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • das23I'll just echo HIcopd's post. You need to find a good pulmonologist. The proper treatment will be a big help4 days ago
  • HIcopd - Hawaii State CaptainSince you live in CO, it's not so far for you to get to Denver as it was for me.  I had to fly from Honolulu.  Be sure to get evaluated as to if you might need O2 at elevation, since Denver is 5000 feet and I am not sure what your current elevation is.  If flying might be challenging, driving, a bus or train might be easier to manage.  My insurer was willing to pay for me to get evaluated and a treatment plan at National Jewish and my local lung docs were willing to work with me and my Denver lung doc (we kept in touch by email and I would go there periodically as well).4 days ago
  • HIcopd - Hawaii State CaptainNational Jewish does participate and is preferred with many insurers, so check with your insurer about coverage.  They also have programs where they provide assistance for those whose coverage might not be great, but check in advance so you know what your financial obligation might be.4 days ago
Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question CPAP CAUSING STOMACH GAS

I have no experience at all with a CPAP. I just wanted to say that you might want to contact your doctor and your supplier and see if they have answers or suggestions.

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain          ๐ŸฟFluffy Friday Bonus!๐Ÿฟ


A new little chipmunk! She follows me around the yard! I named her Sweet  Adeline! ๐Ÿฅฐ I sing Sweet Adeline to her! She stands up like and prairie dog, and she listens to me sing! (Oh, my...)

4 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainWe've got them right here on 360Social! Stick with us, folks! This is THE place to be! ๐Ÿ™‚

4 days ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )answered the question How long can you live with severe COPD when on oxygen?

As noted- People do not come with expiration dates! Many have lived full lives with your degree of impairment for years. Control what you can (Diet, exercise, no smoking or vaping, get vaccinated)--- and learn everything you can (use our learn more …
PicassoHIcopd - Hawaii State Captainbrydyand 1 other also answered the question Picassoand 3 others also answered the question

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.