COPD360social welcomes new member Jenel who joins 65,991 current members of our community. Weโ€™re glad you're here!

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

โœด๏ฟฝ๏ฟฝCOFFEE SMOOTHIEโœด๏ธ1 medium banana, sliced and frozen1/2 cup brewed coffee, chilled1/2 cup milk of your choice1/4 cup rolled oatsSpoonful of nut butter of your choicePlace all ingredients in a blender. Blend until smooth and creamy,...

59 minutes ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy magnificent Monday, everyone! 
Pour yourself a cup of coffee, take a seat, and join in the conversations here on 360Social! 
Have a marvelous Monday, friends! ๐Ÿ˜Š

1 hour ago

Jenel

Jenel

๐Ÿ˜ญ. In the hospital with COPD /bronchitis 

2 hours ago

Jenel

Jenel

I am trying to figure out how to find a way to strengthen my lungs. I quit everything I start, need to looks like 40 lbs, bad knees and back. COPD and I want to get better but I just kinda quit. My lung.compacity is at 74% I get chronic bronchitis had asthma since I was 7. I just don't know how to start when I gave up already. I really don't want to die or get where j can't do anything.. 

2 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Ohtuvayre ??? Any feedback would be helpful!

I have to agree with DebbierB. I take 4 medications daily and a fifth one when needed. To the average person, this makes no sense, but COPD is a different animal. At first when I was prescribed Singulair and then another antihistamine, I thought that I …
DebbieB.-Connecticut State CaptainDusty4Phyliss DiLorenzo NJ State Captainand 9 others also answered the question DebbieB.-Connecticut State Captainand 11 others also answered the question

11 hours ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿคฃ ITโ€™S NATIONAL TELL A JOKE DAY! ๐Ÿคฃ

All right, 360socialโ€ฆ I feel like this is one of those holidays we really shouldn't let go to waste. ๐Ÿ˜

Today's assignment is simple:

MAKE. US. LAUGH. ๐Ÿ˜‚

Let's face itโ€”COPD isn't funny. But some of the ridiculous stuff that happens while living with COPD? Oh, we've got material. And caregiversโ€ฆdon't even pretend you don't have stories. ๐Ÿคฃ

Ever been clotheslined by oxygen tubing in your own house?
Had your concentrator suddenly make a noise that had you wondering whether to call the DME company or NASA? ๐Ÿš€
Walked halfway across the room before realizing your oxygen tubing had other plans?
Or had one of those moments where you just looked at each other and thought, โ€œWellโ€ฆadd THAT to the list.โ€ ๐Ÿ˜‚

Sometimes you've just gotta laugh.

Not because everything is easy. Not because COPD magically takes the day off. But because a good laugh can sneak into a hard day and give us exactly the little break we needed.

So today, let's hear it!

๐Ÿ˜‚ Got a joke?
๐Ÿคฃ A ridiculous COPD moment?
๐Ÿ˜œ A caregiver story you've been waiting for an excuse to tell?
๐Ÿ™„ A joke so terrible we may regret asking?

Bring. It. On.

And yes, Dad jokes are allowed. I'm not saying they're encouragedโ€ฆbut this is a judgment-free community. Mostly. ๐Ÿ˜‚

Happy National Tell a Joke Day, 360social!

Let's see if we can get this whole place laughing today.

I'll be waiting in the commentsโ€ฆand preparing myself for the groaners! ๐Ÿคฃ

18 hours ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captainanswered the question How long do you live with severe emphysema

Hi Judy L Welcome to 360Social. I've lived for more than 25 years with very severe COPD, plus some other comorbidities.. But each of us is different. No one can make that prediction, but we CAN do everything possible to halt the progression. …

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Sunday, friends! Wishing everyone a bright and cheery day, filled with sunshine and smiles! ๐ŸŒž๐Ÿ˜€

1 day ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captain

We are pretty luckyโ€”most of the wind and rain is on Kona side of Big Island. Coconut leaves are falling and a hazardโ€”on roadways and anywhere they are. 

1 day ago

Judy L

Judy Lasked the question: How long do you live with severe emphysema

how long with severe emphysema do you live

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

To those who are following this, we are getting awfully close to that 66,000 mark! ๐Ÿ˜ƒ

1 day ago

Scooter12

Scooter12

Thank you for my membership. As a new member I am happy to find information on existing treatment as well as new options. I find experiences of others also helpful. I appreciate the opportunity to learn more.

1 day ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

๐Ÿ˜Œ Happy Relaxation Day!

Well, would you look at thatโ€ฆ Relaxation Day landed on a Saturday. Somebody planned this one right. ๐Ÿ˜‚

Living with COPD, bronchiectasis or NTMโ€”or caring for someone who doesโ€”can sometimes make it feel like there's always something that needs your attention. Medications, treatments, appointments, airway clearance, oxygen, choresโ€ฆ and that little thing called life squeezed in between.

So maybe today we give ourselves permission to loosen our grip on the to-do list just a little.

โ˜• Sit a few extra minutes with your coffee.
๐ŸŽถ Put on some music you love.
๐Ÿ“– Read, watch something completely mindless, or take a nap without explaining yourself.
๐ŸŒณ Find a comfortable spot outsideโ€”or enjoy the view from your favorite chair.
๐Ÿพ Spend some quality time with your four-legged relaxation coach.
๐Ÿ’™ Or simply slow down, breathe comfortably, and enjoy a few quiet minutes that belong entirely to you.

Relaxation doesn't have to mean a spa day or a tropical vacation. Sometimes it's just saying, "That can wait until tomorrow."

And you know what? It probably can. ๐Ÿ˜‰

Whether you're a patient or caregiver, I hope you can find one small way to give yourself a little grace today.

So, 360 familyโ€ฆ what's YOUR favorite way to relax? ๐Ÿ˜Ž๐Ÿ›‹๏ธโ˜•๐Ÿพ

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday, friends! Here on 360Social, we are one big happy group! We fight our battles together.  Together we are better! ๐Ÿซ 

2 days ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State Captain

I'm excited and a little nervous - I finally have a date set for my pulmonologist to insert the Zephyr Valves.  September 11th - Ithat date has some bad vibes, but I'm hoping this year it will be a fantastic day.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Why is my saline solution dripping out of my nubulizer cup?

Have you tried calling the manufacturer?
cacJeanO53HIcopd - Hawaii State Captainand 1 other also answered the question cacand 3 others also answered the question

2 days ago

JeanO53

JeanO53

 You know that saying... "It's not the heat, it's the humidity" Yep! It's so true.
It's been very humid in Southeastern Wisconsin for the past week. We've ranged from 70% to 100 % on rainy days. It's 80% humidity, dew point at 69 = Heavy air = Breathing is not easy in these conditions.  Ugh!  ๐Ÿ˜ฃ
... Yesterday, I went to get my hair cut in an air conditioned, low humidity space. It was amazing how easy it was to breathe. I ordered a good larger dehumidifier this morning; hope to have it up and running tomorrow.   Predictions are that our weather and air should improve next week.  ๐Ÿคž๐Ÿ™  

2 days ago

LizAbeth

LizAbeth

All my life i have been right handed but now as I gracefully age its both hands I use on and off, tending towards ambidextrous.  One of my parents was  left handed.  

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ถ๏ธ๐Ÿ”ธ๏ธEASY RICE SALAD๐Ÿ”ธ๏ธ๐Ÿ”ถ๏ธ5 cups cooked Basmati rice, still warm2 shallots, diced1 large red bell pepper, diced2 celery ribs with leaves, diced 2 medium carrots, peeled and diced 1/2 cup chopped fresh parsley 1/2 tap. salt1/4 tsp. pepper5...

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Fluffy Friday from beautiful Miyagi, who is one of my sister's cats. We wish you a pleasant, easy breathing day! ๐Ÿ˜Š

3 days ago

bobaloo

bobaloo

Thanks for my new membership.
I Have been experiencing flare-ups past day or so. Just began 2X Daily Ohtuvyre w Nebulizer treatmen to supplement my 1x daily Anoro Elipta Inhaler. But I've had to use my Abuterol Rescue Inhaler a few times which is also new to me. Simple physical exertion has been causing me to become short of breath.
I'm also Left Handed.

3 days ago

cac

cacasked the question: Why is my saline solution dripping out of my nubulizer cup?

I've replaced all parts but after a few minutes using my nebulizer, the solution starts dripping out of the cup where you screw the mouthpiece into the cup that holds the solution. I can't find any help online. Anyone have a solution for this?

3 days ago

Coach Brandon - Community Manager

Coach Brandon - Community Manager

โœ‹ Happy Left-Handers Day! ๐Ÿคš

Any lefties in the community? Or maybe youโ€™re one of those lucky ambidextrous people who can switch it up when needed? ๐Ÿ˜„

Left-Handers Day always makes me think about how something designed to be just right for one person can feel completely backwards to someone else. Scissors, can openers, desks, notebooksโ€ฆ sometimes the lefties have to figure out their own way of getting the job done!

And you know what? COPD can be a little like that too.

We can learn a lot from each other, but someone elseโ€™s perfect routine may not be the perfect fit for you. Maybe you do better exercising in the morning while someone else has more energy later in the day. Maybe youโ€™ve found your own way to pace activities, organize treatments, get through household chores, or make everyday tasks a little easier.

Sometimes it takes a little trial and errorโ€”and a few good life hacksโ€”to find your groove.

Thatโ€™s one of the things I love about this community. We can share what works for us, pick up ideas from each other, and then find the version that fits our own lives.

So today, letโ€™s hear from our leftiesโ€”and everyone else too! โœ‹๐Ÿคš

Whatโ€™s one workaround, trick, or life hack youโ€™ve discovered that makes living with COPD or getting through your day a little easier?

And left-handersโ€ฆ today is YOUR day. Tell us: whatโ€™s one everyday thing the right-handed world definitely did not design with you in mind? ๐Ÿ˜‚

3 days ago

Old_Guy_Paul

Old_Guy_Paul

Greetings! I am just starting this journey called COPD and trying to figure out what is what. Like many in my generation I started smoking young at 13. It was just what was expected back then. I quit over 10 years ago and thought I had dodged the COPD bullet, but it has now caught up with me. I've only been diagnosed for a few weeks and already my Facebook feed has been swamped with ads for pills, inhalers, botanicals, drops, and all of them claim that they can help COPD. I don't trust any of them. My pulse oximeter arrived last night, and I scared myself with the numbers I saw, and that made the numbers even worse! As my breathing slowly got worse over the past year my lifestyle became somewhat sedentary, so I've managed to put on some excess weight. A lot of it. I'm working on losing weight with healthy eating and more exercise, but it's tough to do 30 minutes on my stationary bike when I'm gasping and wheezing after a few minutes. Anyway, I just wanted to introduce myself and say hello.

3 days ago

  • NewestOldestClick to View All Comments8 comment(s)
  • HIcopd - Hawaii State CaptainIf you can, ask for a referral to pulmonary rehabilitation. They can help you develop a customized safe and effective exercise program that helps your lungs & the rest of your body. If there is none near you, Kivo health has a virtual one, if it is available in your health plan. 3 days ago
  • Caroline West Virginia State CaptainYou did not mention how you were diagnosed, but you did mention being afraid of the numbers on your oximeter.  What were they?  Do you see a pulmonologist?3 days ago
  • LFAOMGAHi Paul, Welcome to COPD360Social. You are so right to be wary of those ads on Facebook. Most of them are just after your $  There are no quick fixes so when in doubt  run it past your pulmonologist first.2 days ago
DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅš๐ŸฅšBREAKFAST CASSEROLE๐Ÿฅš๐Ÿฅš1 tbsp. olive oil 2 cups diced red bell pepper3/4 cup thinly sliced scallions5 cups roughly chopped spinach12 large eggs3 tbsp. whole milk1/4 tsp. paprika 1/4 tsp. salt10 grinds black pepper 1 cup crumbled feta cheese,...

3 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Thursday, friends! Sending lots of sunshine and smiles to brighten your day! ๐ŸŒž ๐Ÿ˜€ ๐Ÿ’œ

4 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captaincommented onBiologics for COPD: What You Need to Know

Biologics can indeed make a huge improvement for the correctly chosen patients. From 2000 until covid, I had 1-6 exacerbations/year. Since starting biologics, no exacerbations in nearly 2 years! I am thrilled research continues for biologics which...

4 days ago

HIcopd - Hawaii State Captain

HIcopd - Hawaii State Captainanswered the question โ€‹Check In: Being Your Own Lung Health Champion

Yes, I like making a copy of my questions, with most important being on top and handing a copy of the list to the provider or staff person taking my vitals. This way the provider & I are on the same page and make sure to address the Qs. If I have a …
Caroline West Virginia State CaptainKaren Deitemeyer - Florida State Captaindas23and 1 other also answered the question Caroline West Virginia State Captainand 3 others also answered the question

4 days ago

Community Announcements

Community Announcementsadded a new article Biologics for COPD: What You Need to Know

This article was written by Arnelle Konde, MPH, CHES.

Managing COPD is not always easy. Sometimes it can seem like your COPD treatments are not working. If you are still dealing with symptoms or frequent flare-ups, you may have heard about a newer type of treatment called a biologic. Here we will break down what biologics are, how they work, and what you should know before talking to your doctor. We also want to hear from youโ€”what have you heard about these treatments, and how can we help you learn more?

What are Biologic Treatments?

Biologic medications are different from the medicines you take for COPD. Most pills and inhalers are made in a lab with chemicals. Biologics are made from natural sources, like living cells or proteins.1 While many medications affect your entire body, biologics work on one specific part of your immune system. This targeted approach may help reduce inflammation in a more effective way.1

4 days ago

Eddie65

Eddie65

Will it been  sometime now, but i doing ok but my c opd has enter into stage 4 now. I'm  hanging in there and on 6l/m now 24/7

4 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.