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Exacerbation

Does anyone else have CHF as well as idiopathic lung disease? If so what is the best treatment to alleviate a flare up? Just had a UTI that triggered my now going into the low 80’s SATS even with 4ltrs of O2

Author: Evie
0 Votes
6 Answers
Can anyone help ...my Dr is confusing and really not very clear on what's going on ty Thanks

Need help understanding this.

Author: Smith64
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0 Votes
3 Answers
Medical Coverage without employment

Ratch, I have been looking into this very topic myself. What I have discovered is that if you are eligible for SSDI then you are eligible for Medicare. However, there is a two year wait before Medicare will begin. I am looking forward to reading other …

Author: Ratch
0 Votes
2 Answers
Pursed control breathing, 5 l oxygen

Home after 15 days in hospital when 02 dropped to 77. On 5 l now which means tanks. How do you know how may to take with you? Think about getting caught out and not having enough. Prayerfully I will continue to get better, and go back to 2 l. Also I seem …

Author: GAnne
0 Votes
3 Answers
Has anyone participated in a clinical trial for COPD?

Curious and looking to discuss participation in clinical trials etc

Author: JD85
0 Votes
11 Answers
Lignosus

Welcome Don.....Sorry I've never heard of Lignosus but someone here may have. I'm sure they'll post if they have. You'll get lots of help here. Click on the LEARN MORE tab at the top of the page--lots of info there

Author: DonCW
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0 Votes
2 Answers
Are there ways to clean your home without strong chemicals?

I was recently asked to do participate in an interview about how cleaning supplies at home can have an impact on people living with breathing issues. If you are like me, you grew up in a house where the smell of Pine-sol and bleach meant mom had been …

0 Votes
2 Answers
Home remedies for Chr Bronchitis?

Looking for home remedies to manage symptoms, provide relief for my Chronic Bronchitis, Reactive Airway Disease, and Asthma. I am a USAF Veteran--in 1990 I had a bad upper respiratory infection turn into bronchitis then pneumonia. I was told one of my …

Author: CEMartin
0 Votes
1 Answers
Diagnosed When Little, Now Hardly Any Issue, Help?

hello guys! This question is kinda odd but figured i’d ask anyways! When i was super little like four, the doctors knew i had an issue with my lungs but didn’t think asthma. So they diagnosed me with COPD and threw an inhaler at me. It’s been 15 years …

Author: livingliv
0 Votes
1 Answers
Inhalation

has anyone used the Revefenacin (Yupelri -trade name) not sure if it’s a daily inhalation or ???

Author: GAnne
0 Votes
3 Answers
Test results-do not understand results could anyone help

Hi i have recently been diagnosed with moderate emphysema i have since stopped smoking but do not understand results could anyone help Acrobat Document: 4080959710_20250507_1625- SDMARESULT.pdf - Spirometry Test Coded entry - Forced expired …

Author: Cazzy999
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0 Votes
6 Answers
Spirometry interpretation-I could use a hand interpreting what it says

Ended up paying privately for spirometry had to stop as I got too breathless and tired. I could use a hand interpreting what it says.

Author: Anonymous
0 Votes
5 Answers
Flying with POC-Any advice/experience will be greatly appreciated

I am flying in a few weeks and my doctor had to fill out a form for United Airlines. I will be using it for taxiing, takeoff and landing at 2L. I'm a little nervous about it, but I have batteries that will last a total of 18 hours (My flight is 3 hours …

0 Votes
7 Answers
Flare-ups -When should I contact my doctor to discuss this?

Hi everyone, This is my first time on this sight. I was diagnosed with COPD back in 2021. In November of last year I had my first flare-up. Pretty scary to say the least. I have had 5 more flare-ups since then. My question is, is this a lot? When …

Author: Lakegirl
0 Votes
3 Answers
Spirometer readings-Can someone please explain these readings

Can someone please explain these readings: PEF: 60% FVC: 1.4 liters 45% F2575: 0.43 22% FEV6: 1.40 49% FEV1: 0.84 35% FEV/FVC: 60% Thankyou.

Author: Auriel
0 Votes
8 Answers
COPD AND EXTREME NAUSEA

I am nauseated every morning. Tried OTC meds. but no relief. The Doctor isn't worried about it but I'm tired of a sick stomach every morning. I'm in stage 4 and 68 years old. If anyone has found some relief please let me know.

Author: Preacher
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0 Votes
1 Answers
Continuous flow

hey everyone, I have been really bad shape in the hospital for 15 days, but sick 20 days before being in the hospital in progressive care unit. So today I’m going home or I was using 2 m of oxygen. I’m going home with five and I’m OK with that. But what …

Author: GAnne
0 Votes
3 Answers
Brinsupri - a game changer?

I’ve just read that recently FDA approved a new drug called Brinsupri for managing flare ups due to bronchiectasis. Could this be a game changer for someone like me who has frequent flare ups, almost every month, and is quite desperate. I know this is …

Author: Ilzija
0 Votes
3 Answers
Cold Dry Air

Hi, I'm new to this community. I'm having a problem: My inhome DeVilbiss O2 Concentrator makes a lot of noise (45 dB) so I operate it in my living room at night and in my bedroom closet during the day. The tubing runs along the floor which is hardwood …

Author: DivineMrM
0 Votes
18 Answers
Anyone hopeful about possible regenerative therapies in near future?

So after speaking to my CBT therapist this morning she asked me what is a positive I can take from the last few weeks (yes I know i'm not as far down the road as many here and I hope never to be but still its scary) and I said the near future as in …

Author: Katw
0 Votes
6 Answers
Trelegy and Roflumolast

Does any one take these together. My dr prescribed the roflumilast as an add on. I have to have some test done, blood work for eosinophils cell, in lung. Then an electric cardiogram to see if heart is doing work of lungs. I have bullous emphysema like …

Author: GAnne
0 Votes
21 Answers
Emphysematous Changes On CT Incidental Find

Hi Everyone, for completeness I thought I'd add these in especially if anyone ends up in a similar situation to myself in the future. These were the PFT results that I had recently prior to my appointment with my consultant, FVC 5.58 (93% predicted) …

Author: JD85
0 Votes
7 Answers
New Here and Scared To Death

Hello Friends, Well.... it seems as if I have unwillingly just joined a club that none of us wanted to belong too and I am scared to death. As a 30 year plus smoker, time and the Marlboro's have caught up with me and 16 days ago I found myself in what I …

Author: LadyG
0 Votes
8 Answers
Does anyone have a lack of appetite, or problems with weight loss since your diagnosis?

Hi Caroline, Thank you so much for your response. I do most of the things you suggested, except I don't drink milk or dairy of any kind. When my appetite is on track, I usually eat yogurt and oatmeal for breakfast, and occasionally, sausage. I also eat 2 …

Author: Cas
0 Votes
2 Answers
Clarification

Hello, I've been reading the forums for a while now and have also read the some of the educational articles. I'm looking for clarification on a few items. A bit of background. Smoked many years. Quit 7.5 years ago. Was approximately 100 lbs overweight …

Author: jxk
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