COPD360social MenuToggle Dropdown Community Activity Feed Questions and Answers COPD Digest / Blog Community Exchange How to Participate FAQ Video Tutorials How do I win points? How do I win badges? Community Guidelines Statement of Rights and Responsibilities
improper diagnosis Return to previous page 9/4/2018 1229 Views 4 Answers Last Activity: 3 years ago, loukat Tags: COPD Question: 0 JeannieM 3 years ago I Care Report Comment Unlike I Care Report Comment Add an Answer Answers: Edit Remove Accept Unaccept Unlike I Care Report Comment Add an Answer Save Cancel improper diagnosis JeannieM 3 years ago Add an Answer Answers Answer View More Save Cancel Tags: Subscribe: Subscribe: Your question has been submitted and is awaiting moderation. It is low-quality It is spam It does not belong here Other (enter below) Thank you for reporting this content, moderators have been notified of your submission. Close Anonymous Unfriend Friend Requested Friend Load More Close Destination Page Area Group Destination Content Title Title Article Type Copy comments Good Morning! A little backstory first. I'm 48, never smoked but do have job related factors. I was diagnosed with COPD after a spirometry 8/2017. I also had sarcoidosis in my right eye like 25 years ago. Family doctor sent me to see a pulmonologist. My mom passed away from COPD complications 9/2014 and I hated her doctor so I looked out of the area for a different one. Found one I like and started seeing him 11/2017. He put me on advair discus and proair rescue inhaler. Saw him again 6/2018 for a 6 month checkup and he ordered a ct scan of my lungs/chest to check for sarcoid and other issues and an echo on my heart. Got a call from him that the ct scan and echo look good. I saw him 8/31/18 to discuss the results in depth. He said my lungs were clear, no signs of sarcoid or copd and there was a distinct possibility the spirometry was done incorrectly or some other reason but he feels I do not have copd. I feel like a year of my life was wasted, along with countless $$$ on meds I did not need. Was also tested for Alpha 6/2018 and results are negative. He told me to stop the inhalers and he thinks my issues are caused by deconditioning, I'm not sure how as I exercise and walk alot at work. Guess my question is has this happened to anyone else and how do you deal with the emotions it has caused. I have an appt with my family dr in a few weeks to discuss with him,I'm relieved but upset and wondering if I really don't have it after believing I had it for the last year.
COPD360social posts are monitored by Vice President of Patient Experience and COPD360social Community Manager, Bill Clark, as well as staff Respiratory Therapists.
COPD360social MenuToggle Dropdown Community Activity Feed Questions and Answers COPD Digest / Blog Community Exchange How to Participate FAQ Video Tutorials How do I win points? How do I win badges? Community Guidelines Statement of Rights and Responsibilities
Join Us on COPD360social Join the Conversation Become a Member > Already a Member? Sign In to Participate >
Related Content Pfts with bronchiectasis &copd Studies on weather impacting progression of lung disease How to feed toothless 92-year-old How normal is this? Adverse effects of Jardiance Who are you thankful for on your COPD journey? Can Covid infection switch COPD to Asthma? Post Nasal Drainage going into the Lungs? New longer inhalers What advice would you give a 30yo with a recent diagnosis of emphysema? Struggling to accept Can someone interpret the DLCO/VA please. No luck with Zyrtec FVC and DCLO and halloween! Bronchiectasis vs copd life expectancy
Medical Advice It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.