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6
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bronchiolitis obliterans?
Maverick, I agree with you 100%. I highly doubt that my severe obstruction was caused by a bacterial infection. I think it is probably multifactorial. And I agree, no one seems to be really trying to understand the disease - just throw meds at it.
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2
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NTM, MAC & Pseydomonoas
How common are lung infections such as NTM, MAC and Pseudomonas among patients with COPD? How do you try to prevent them? Thanks
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2
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Thanksgiving YAAAAAY
A VERY HAPPY Thanksgiving to my dear 360 friends. I hope all is with you, as you would have it by wish on today. I very much want to thank you too, for your sterling and greatly appreciated support recently. I'm delighted to report to you that my wife …
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26
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Weekend Puzzlers
8D - Tennessee Vols Here is a Video of how I feel about the Vols. ROLL TIDE!! Tennessee
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4
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Any one in the Symbicort/Trelogy Clinical trial?
I met w/the clinic this morning for the first of 5 visits. Today, signing the consent formssss. Next visit, some preliminary med tests, and confirming if I will be part of the study. For the next month I'll be on Symbicort. Followed by a 24 hour session. …
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13
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What advice would you give a 30yo with a recent diagnosis of emphysema?
I have turned 30 earlier this year and have recently after a few tests become aware that I have emphysema, and it’s definitely been a shock to the system. Currently don’t have many symptoms, although from what I can tell it is stage 2, moderate. I have …
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2
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Can Covid infection switch COPD to Asthma?
I have COPD with functional definition of COPD with FEV1/FVC <70% without shortness of breath(sob) symptoms. my symptoms are predominantly sinusitis and postnasal drip. however, after recovering from a recent covid infection, i have experienced sob and i have elevated ige and eosinophil count. pulmonologist asserts that what i am having is asthma. does anybody have experience or inputs on the asthma-copd overlap? after jumping from copd to asthma forums, do i have to join another forum dedicated to long … without="" shortness="" of="" breath(sob)="" symptoms.="" my="" symptoms="" are="" predominantly="" sinusitis="" and="" postnasal="" drip.="" however,="" after="" recovering="" from="" a="" recent="" covid="" infection,="" i="" have="" experienced="" sob="" and="" i="" have="" elevated="" ige="" and="" eosinophil="" count.="" pulmonologist="" asserts="" that="" what="" i="" am="" having="" is="" asthma.="" does="" anybody="" have="" experience="" or="" inputs="" on="" the="" asthma-copd="" overlap?="" after="" jumping="" from="" copd="" to="" asthma="" forums,="" do="" i="" have="" to="" join="" another="" forum="" dedicated="" to="" long="">70% without shortness of breath(sob) symptoms. my symptoms are predominantly sinusitis and postnasal drip. however, after recovering from a recent covid infection, i have experienced sob and i have elevated ige and eosinophil count. pulmonologist asserts that what i am having is asthma. does anybody have experience or inputs on the asthma-copd overlap? after jumping from copd to asthma forums, do i have to join another forum dedicated to long …>
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11
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Has anyone ever taken daliresp?
Just got back from the pulmonologist and he has given me daliresp saying it has proven very helpful to copd exacerbation reduction and opening airways. We discussed possible side effects. Just interested in some first-hand experiences.
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5
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What else can I do?
I use Trilogy. I take steroids. I use a fast-acting inhaler and a nebulizer. I am now using oxygen 24/7. But I still get so out of breath I can't walk across the house. 2 years ago I was walking at craft shows. Now, can't walk 20 feet. My doc says we can …
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2
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Did you know about our newly redesigned educational materials?
It’s COPD Awareness month! Are you “aware” that the COPD Foundation offers free educational materials? You can download free copies of the Foundation’s booklets, kits, and even a smartphone app! We recently “reimagined” the entire downloads library to …
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8
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Help and advice
Hi, I am a male, 32 years old and been having throat clearing issues (everyday) with phlegm which comes in a variety of colours, such as brown, white, green and yellow, I also seem to get frequent chest infections causing thick green phlegm and wheezing. …
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29
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Weekend Puzzle... a little late
Ah... do you want a banana split. DebbieB? It doesn't sound like you're sure. 😂 Here's the 6 you ordered... . Eat them slowly. 🤣
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3
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Check in - What Should a Caregiver Know?
From 1998 to 2004, I was in the hospital for pneumoniaevery February. In 2004, I had a serious attack and my doctor told me that Ihad to stop smoking. He showed me tests he’d done on my lungs and scared theliving daylights out of me. I was ready to throw …
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2
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New longer inhalers
Is anyone else having problems using new levalbuterol or other inhalers that now have a much longer cannister with counter on the end? My arthritic fingers can't open wide enough to press the inhaler. Any solutions would be appreciated.
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6
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Cold air
We were out yesterday in cold air and I had really bad SOB. Does cold air affect the lungs negatively
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2
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Issues laying down
When I lay down, as soon as I lay down, my chest feels like an elephant is on top of it. I silently wheeze, start force coughing tryin to get sticky mucus up, feel like im a bit air hungry and think “Seriously? Do i really need my inhaler? I JUST used my …
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9
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What Would You Tell the World About COPD?
When people say to me, " You look wonderful. You're doing well." , my answer is "Thank you! Yes, I am doing well, until I'm not." I really don't know what they expect someone with COPD to look like. I wish they could see how long it takes me to get ready …
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4
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Veteran's Day Question
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4
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Breztri & spacer
Call me crazy but i feel that whenever i use my spacer with Breztri, the medicine isn’t as effective. Is it even recommended to use the spacer with Breztri? It’s shaped like albuterol and administered in the same fashion so I figured id use the spacer …
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25
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The Weekend Puzzle
1f...Narrow escape 6f...Elevator Great Puzzle Jean--Thanks
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13
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Struggling to accept
Hi Brittany, I was diagnosed with COPD about 12 years ago. I am a former smoker but had quit about 6 years prior to the diagnosis. My health insurance provided a COPD rehabilitation clinic that taught you all about this problem and how to learn to …
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5
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Check in - The Importance of Peer Support for People Living with COPD
“You’ve got COPD. It’s a progressive disease and there’s no cure.” If you think back to when you first heard those words, you may have felt confused, sad, or angry (maybe all of these!), and had a hundred questions. Maybe you thought, or still feel, that …
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6
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I am totally lost with COPD
Welcome Jojogal. My initial diagnosis of COPD came when I was having a bout of pneumonia. I was given very little information as well, just antibiotics and an Albuterol inhaler. At that time, I knew little of COPD other than what i saw my grandmother go …
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4
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Replacing Oxygen Hose, how often
How often do you replace your oxygen hose?
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8
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Questions
How often should a copd patient het routine chest ct scans done? Also, in non-smoker copd, do they find that lung cancer rates are higher? Just some questions ive been trying to look for on the internet.
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