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Need tips for your mental health toolkit this holiday?
Thanks for posting this Amanda! This time of year can be a difficult time for some of us... for so many different reasons. .. I do a lot of writing throughout the year, journaling and free/creative writing. It helps me sort things out and has been a …
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What are some of your favorite holiday recipes?
Now I'll share one of my favorite recipes. My family has a lot of food allergies- shellfish, tree nuts, and gluten. Companies aren't required to tell you if a product is made on shared equipment with allergens (and therefore may contain enough residue to …
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26
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CO2 Retention
CO2 retention is a problem for a number of COPD patients.When CO2 builds up in the blood it can change the PH (acid) in our body and affect a variety of organs. Normally, CO2 is eliminated through our lungs with normal respiration. In COPD when our lungs …
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Caregiver Helpless Feeling
I just wanted to share my story and emotions: Mid- November my husband had a severe pain in his side, causing difficulty and pain when taking a breath. We went to the emergency clinic. I was not allowed in with him and eventually the doctor came out to …
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6
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Check in –Anxiety and Depression with COPD: Could this be Me?
Hi Jane... I’ve lived with a mild chronic form of depression called dysthymia, most of my adult life, and was likely undiagnosed as a teen. I also have a history of experiencing anxiety, including panic attacks. I worked with mental health therapists off …
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Check in - Just for Fun - A Special Holiday Wednesday Check in
Here on the Wednesday check in, we talk about many aspects of living with COPD—the nuts and bolts of managing it, as well as the emotional aspects of living with this condition. We do this because it’s important to our overall well-being. But do you know …
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Check in - What Do You Wish You Knew?
Hi Jane, Diagnosed nearly 4 years ago, I feel somewhere between being a newbie and a master at this. I would definitely go back and tell the 18-year-old me... "Don't start smoking!" But we're not going that far back. Since diagnosis... There are some …
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3
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Neutrophilic Asthma
My gosh I’m reading a lot of interesting stuff on Neutrophilic Asthma and how it shares a lot with COPD. There’s some debate about it even being an asthma phenotype. Has anyone been diagnosed with this phenotype of Asthma? It seems like what ive got …
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25
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Weekend Puzzle... Ready?
3C...Contract Extension 5C ..Multiple Choice 7A...Suspended Animation
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Effects of radiation therapy
During a recent stay in the hospital a CT scan revealed a1.7cm spiculated nodule in my right lower lobe. This nodule had not shown up on any of my previous CT scans. A follow up PET scan indeed confirmed the nodule to be malignant. After my pulmonologist …
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Check in - How Do I Set Goals I Can Reach?
Thanks for the homework assignment, Jane!! It's going to take awhile for me to think this through. I'm hoping this will be helpful in getting more specific... and accountable, if only to myself. I've taught both types of goal setting, so I should be …
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13
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SP02 fluctuating: Why? Please help
I know I ask a lot of questions but Kirsten's (very good) article said we should if we dont understand... So here goes. My oximeter shows wildy different readings. Ive noticed when I first wake up it can be 91, 92 then hovers around 93 or 94... When I'm …
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CPAP USERS, do you find it helps with your breathing?
I have the Astral 150 its more like a bipap and I have been trying to decide if it helps me or not. My c02 still went up even using it. Last few weeks when I take it off I feel sob and I don't think your supposed to feel that way. I really have not …
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Body waking myself up
Ive been having a symptom for the past couple of months that’s been making me feel quite miserable and I’m losing sleep from it. Before bed, ill take all my medication and such. Ill feel SO tired and hop into bed. I feel ok- i think. Ill start to fall …
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42 just diagnosed and scared
I'm so sorry you're feeling this anxiety, Tiffane. Being diagnosed with any health condition as a young mother can be very stressful. Our kids are our main focus, especially when they are so little, and it's scary to think about the "what ifs". I think …
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A good figure
Hi people, Could someone help me with a translation please. A new member of my local Breath Easy Group recently received a rather perfunctory report rom his Pulmonologist listing his FEV1 and FEC results only in litres.and he would like to know if there …
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Do you use a fan when you feel breathless?
I like a cool room and some air blowing on me when I sleep. I also use a white noise machine and an air purifier and a humidifier!!!!!---- Good luck sleeping with me!!!!!!!
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Anyone tried Montelukast?
Like to hear your thoughts on this medication. Thanks
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9
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Anybody cancelled their Part D scrip plan?
I am wondering if anyone has been brave enough to cancel their Part D RX plan that Medicare requires you to purchase otherwise you will have to pay a Late Enrollment Penalty FOR LIFE if you decide to sign back up later, whether in 3 mos or 3 years. I …
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7
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Safety of ingredients in spiriva respimat
Here's a link to a study that looked at all the adverse reactions observed in studies using the Respimat form of delivery. There's nothing to indicate a concern regarding either of the ingredients listed. Long term effects take time and apparently we're …
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Emphysema advice for newly diagnosed 36yr old
Scared, you're only dying in the same sense that we're all dying; that's the conclusion of being alive. Your have jumped over so much solid, true information, facts that are real, not made up, to get to the conclusion that you are going to die any minute …
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Check in - Why is it important to set goals?
Well, here we are on the first day of December! If you have COPD, you probably focus on getting through each day, one day at a time. But… when we turn that calendar to January, we are looking at a whole new year. And you may be asking yourself one, or …
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Loss of smell
hi again Guys! For those of you that have had covid, did any of you lose your smell? You could stick a poopy diaper up to my face and nothing. My issue is, this lose of this sense has me really feeling vulnerable with my lungs. A lot of my neighbors burn …
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How long can you stay on long term oxygen for? Worried
An Alpha-1 Antitrypsin level that low should qualify for replacement therapy- although many insurers may have additional requirements ( such as a lung function threshold). Our friends at the Alpha-1 foundation provide a great deal of useful information …
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Breakthru covid
Data just published from Israel demonstrates a 90% decrease in death among those who got the 3rd covid shot. Benefit was a little better in women. They did not present data on hospitalizations or other outcomes- but I'd assume all severe outcomes were …
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