0 Votes
4 Answers
Check in - Communicating with Family and Friends

Do you ever find yourself in a conversation with someone close to you, thinking, "That's not what I meant!" Getting others to understand what we are trying to say is not always easy. We’ve all had frustrating conversations when it seemed that no matter …

0 Votes
10 Answers
I'm afraid for the first time in my life

Hi, I'm 39, 5"7 and about 15 stones (98kg ish, not been weighed for a while), I've smoked since I was 13, I recently got pneumonia and was given co-amoxiclav and prednisolone, i notmally get a chest infection once evry year and get Amoxicillin and it …

0 Votes
5 Answers
WIM HOF method and COPD

I had a conversation with a guy who is uses this system regularly to maintain peak physical fitness .He suggested that this system would bring major improvements to the wellbeing of COPD patients.Well I did a google search to find out more about this Wim …

0 Votes
9 Answers
Please shed light on my Consultant findings

There are a number of things that affect the results of the test. If you had some type of allergies going on, how well you cooperated with the person giving the test. How experienced the person giving the test was, or how persistent they were in telling …

Author: Norso
0 Votes
4 Answers
PFT results questions

It looks as though you do have COPD. FVC is forced vital capacity and FEV1 is how much you can blow out in the first second of expiration; the last is the ratio between the two. All three are important. The FEV1 is the number we often use when we talk …

Author: TJHill
0 Votes
5 Answers
confused

So back in March I had breatjing test with a pulmonary doctor. All kinds, one was in a enclosed space. He told me my breathing was fine. The CT Scan of my lungs said emphysemous background. When I ask about the findings on tje scan he said my lungs …

Author: Cathymo
0 Votes
8 Answers
What do you do with shame?

Hi Kristen! Such an interesting topic. Shame is something that many of us learn in childhood. I have had my struggles with shame for many different reasons, real and imagined. Shame is not something that I find productive as an adult. It can hinder me …

0 Votes
8 Answers
Do you know your movies???

C1 - Star Wars.. D1 - Sea Biscuit.. C3 - Much Ado About Nothing (Okay... I hear you Ed!! I'll start looking again. :-) )

Author: edpe77
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0 Votes
6 Answers
Cor Pulmonale in Mild COPD

A quick question for the medics. Is Cor Pulmonale see in mild COPD? Reason I ask is that I went for a 2 and a half hour strenuous mountain walk, after the walk I had a low level chest pain that felt like angina that lasted 2 days. I’m also fairly fit so …

Author: J.News
0 Votes
5 Answers
Waiting for a diagnosis, feeling defeated

I'm 33 years old and I've been completely confused and depressed while waiting for a diagnosis. Just thought I'd share my story, mostly just to vent and see if anyone else can relate, but also to gain some insight into what seems like probable COPD. In …

Author: Jared C
0 Votes
4 Answers
Has anyone used the Philips InCourage chest vibrator?

Has anyone used the Philips InCourage chest vibrator? Curious if it's had an effect on airway clearance?

Author: Dot
0 Votes
2 Answers
Is anyone else benefitting from a Hill Rom percussion vest?

I have had one also vest airway system but I didn't see where it helped me at all. Mine was covered by medicare a couple years ago. Yes it was covered cause of bronchiectasis diagnoses. Yes its Hill Rom.

0 Votes
6 Answers
Pulmonary Vest Options?

Co-insurance for a Pulmonary Vest is unaffordable. Are there any options? Such as Foundations? Grants or buying used? I have limited resources and am trying to develop information from others in the same situations or that can address tthese needs. …

Author: rightlobo
0 Votes
2 Answers
Can someone tell me if any of the respiratory therapy vests work for clearing the mucous

Wanting to know if vests work for clearing mucous in advanced COPD patients and is it covered by insurance and/or medicare? Where do we begin to try to get one for my mother?

Author: jamesalj
0 Votes
3 Answers
Best Medicare Options with COPD

I will be 65 this August (God willing!) and am wondering about all this talk of Medicare- Presently I am covered with California state medi-cal program - For those with limited income. (social security is my only source) I do not pay for insurance, I …

Author: Cameo
0 Votes
2 Answers
InCourage vest for copd?

My local doc is encouraging me to try this vest that apparently pounds on you to help get out the mucus. It's previously primarily been used for cystic fybrosis patients. My VA docs don't think it is necessary because I'm still able to cough up what crud …

0 Votes
4 Answers
Having Kitchen Painted

My husband is going to be sanding and painting our kitchen walls and cabinets. What precautions should I take? Any suggestions would be a

Author: PamK
0 Votes
2 Answers
Check in - Are You Keeping Track?

I have done the same as Ed with a spreadsheet but stopped entering the data months ago. I think I will start doing it again. I have one of those marble looking Composition Books that I keep for notes and questions for the doc's. I leave room between the …

0 Votes
14 Answers
What COPD Activities are YOU Involved in Locally?

There's still time to sign up for our 15th annual COPD Education Day held on Friday, 9/10/2021 , from 9:30-noon Hawaii Standard Time (that means 3:30-5, Eastern Daylight TIme). More information is on our website, 15th Annual COPD Education Day–Friday, …

0 Votes
2 Answers
PFT and new pulmonologist

Just out of curiosity, have you seen a good therapist to be evaluated for anxiety? If you can rule that out, and I think a good therapist could, or would know someone who could, then your wife wouldn't have anything to point to and you could spend your …

Author: Pbob
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0 Votes
3 Answers
Co2 buildup

Hi Fcwarneka! co2 build up is determined by an ABG (arterial blood gas test). If you have an ABG and are found to have too much co2 in your blood, a BiPAP or Trilogy would likely be ordered. If you tend to retain co2 and feel as if you have air trapped, …

Author: Fcwarneka
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0 Votes
2 Answers
NIH COPD Fact Sheet

This was last updated 2010, but it seems interesting so I'm sharing it. It summarizes Yesterday, Today, Tomorrow for COPD. If someone has this more updated, let us know.

Author: netmouse
0 Votes
1 Answers
Symbicort Savings Offer

I saw a commercial yesterday for Symbicort Savings Offer where you could get it for free up to one year if you are eligible. Posting here for those that could use it. Symbicort Savings Offer

Author: Gigi-MO
3 Votes
8 Answers
Have you seen our latest video? Tina's Story

Our Pennsylvania State Captain, Tina Moyer, talks about her experience living with COPD for COPD Awareness Month. #Tell10 Have you seen the video? Share with your friends! http://copdf.co/TinaStory

0 Votes
5 Answers
tissue nanotransfection

A video was recently posted to my Facebook page about this procedure - I have tried to do more research to see if it's something that may be used to regenerate lung cells, but all the links I go to require a subscription to read the scholarly articles. I …

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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.