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12
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Good afternoon just got diagnosed with Emphysema and I’m having a tough time :(
My wise old grandmother often said "we cross more bridges than we ever come to". That is kind of what you are doing. First off a CT scan can tell changes in your lung that might be COPD but it could also be a number of things like results of lung …
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4
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Basics of Phlegm
hi Mark, all of the advice given is great, However I also use a couple of supplements that has reduced my mucus about 80 %, a mix of Fisetin and resveratrol . The other is NAD... I can just say they are a game changer for me. I have greatly reduced my …
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1
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FEV1 is 19%
I've had emphysema for at least 20 years or better. My condition has steadily deteriorated over that period of time. I feel SOB with the least amount of exertion. I've been O2 24/7 for about two years. My usage is set at 3 liters. In addition to my …
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Really freaking out
It means that you seem to have problems within your respiratory tract. However, until the spirometry test there is no real diagnosis and this could be caused by a number of things. Is there a reason to be concerned? yes. Is there reason to panic? NO. …
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2
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ATELECTASIS
I have mild atelectasis lower left lobe?Its been a year since diagnosed.Doc said nothing about it just all looks normal see you in 3 months.I just noticed this on my report.Thoughts?
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Escalated symptoms
I have Gold stage 3 E (tested 4 months ago). Think I’ve been in 3 for awhile but this part of stage 3 feels very different. I cannot walk or do much without my oxygen level going into 80’s and my heart rate into triple digits. Even with my POC walking …
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Has anyone had this problem with 10lpm concentrator?
I'm using an Invacare Platinum 10 10 lpm concentrator at 8 lpm. It's far from my first experience with a 10 lpm concentrator, but it is my first time using Invacare and also my first time using a humidifier bottle (which my nose loves). The issue is that …
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8
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Other young women with COPD?
Diagnosis still unconfirmed but all the symptoms match. I'm having constant cough, dyspnea, mucus.. Most likely stage is still on the mild side coz diagnostical criteria didn't fill up in March when I had my last PFT done. FEV1/FVC was 93%, but MMEF75/25 …
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5
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Masks-Anyone do any research on masks for people with COPD?
Anyone do any research on masks for people with COPD? Which type is what I’m asking. I find it very difficult to breath with the paper mask
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10
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PFT results-Can someone please help me interpret my pft results?
Hi Ames. Quitting smoking is tough, I smoked for 40 years and tried several times. Finally, 15 years ago, I tried using nicotine lozenges. (I know they're awful at first but you get used to them). I used those for a long time and since smoking is …
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Access to OxyTalk sessions
Before the meeting they post the link. I think!! There is also a monthly social meeting and they post that link before
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3
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It's Almost Fall Ya'll! Resource Round-Up: Avoiding Illness.
Happy Almost Fall! It is hard to believe that we are already almost 9 months into 2023! Where did the time go? I was reminded that we are entering into the colder months today when my doctor offered me a flu shot. I am not totally ready to let summer …
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HIGH FRC, ERV and low IC
Hello, I am 36 year old female that had a PFT a few months ago. My spirometry was normal: FEV1 was 105 percent predicted, FEV1/FVC was 105 percent predicted. My LVM were a bit odd, though. TLC was 93 percent predicted. ERV was 152 percent predicted, …
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Automobile air filters
A friend just recommended to me to look into buying cabin air filters for my auto that has charcoal filtering as well as particle filtering. With the smoke and pollution on the road, I am looking into it. is any else doing using these?
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Has anyone heard of a new vaccine called Arexvy?
Hi, all: My new Pulmonologist recommended that I get vaccinated right away for a new virus that is not good for the respiratory challenged. I am putting on my jogging tennis shoes now, lol!
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Anyone using Trelegy and have a side effect related to hearing?
Day 1 , stopped my Trelegy inhaler . Ringing, and swooshing sound has stopped incredibly. I woke up this morning day 2 , and this bad ringing in ears , has lessened quite a bit. I am curious if I have finally resolved this Trelegy inhaler mystery . I …
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5
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Symbicort Cost
Your plan dropped the drug, and you are paying full retail price. In mid-year, you can appeal via your doctor. Info is at Medicare.gov I checked a drug plan under traditional Medicare Part D. It has Symbicort under Tier 3 with a 42 co-pay (422 retail …
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new COVID-19 info
In the news. "The amount of virus identified in wastewater around the country and the number of weekly prescriptions for COVID treatment Paxlovid have all risen significantly over the past month (since June's low), albeit from low levels." This is how …
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6
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Stiolto Respimat-side effects? difficult to use? breathing better?
I would appreciate feedback from anyone who is using Stiolto Respimat inhaler. Any side effects from it? Is it difficult to use? Is your breathing better? My doc wants me off all inhalers that contain a steroid since I keep getting thrush regardless how …
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6
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Go to ER?
I would like an idea of how bad i should be before i go to the ER. I have my first appointment with a pulmonologist Oct. 6. My PCP diagnosed me by my symptoms and chest Xrays. Tonight i am somewhat SOB with worse chest pressure, but my SATs are not low …
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covid shots
Any input on the covid shots? I have had two and a booster but now I am thinking I am done with getting them. The reason i got the shots is because i had really bad covid pneumonia in 2020. Anyways, to{ong story , my sister who is a little older than I …
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Does a higher purity of oxygen raise your oxygen percentage levels?
I have been noticing something about the percentage of oxygen readings using different oximeters and various sources of oxygen. Which leads me to ask this question. Does a higher purity of oxygen raise your oxygen percentage levels? The reason I ask is …
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fev1-Any input on this?
So I am not sure if this is going to be the second time that i am posting this because I really can't see my question when I look. I went to see my pulmonologist the other day and he told me based on my fev1 that he is not worried about me going into …
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Test results-I’m confused
Can anyone tell me how I had two different ct scans one high dose radiation w/contrast and one low dose radiation w/o contrast both showed severe COPD. Then my pft 2 months later showed mild COPD. I’m confused
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is there anything i can do
my fiancé has recently went downhill fast made progress and fallen again, here's the story she has pcos and recently was hospitalized for having bilateral nomonia, bronchitis and tonsilitis which sent her into raspatory failure she has been doing better …
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