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Having a beer while taking Advair and incruse
does anyone have a beer while taking Advair and Incruse - taking a beer with these two seems to hit me really hard , any comments’ Thanks Katherin
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Nebulizer working with a flutter
Just a couple days ago I saw a little video on here by a gentleman about how to attach a flutter device with .. I think a valve... to my nebulizer and use both at the same time. can someone help me find that little video again I can't locate it. It was …
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Thoughts? Please and thank you!
Hello, nice to meet you all. :) my name is Anabella. I’m 19 years old, and my 63 year old mother is currently hospitalized right now with pneumonia. She has COPD ( stage 3/4 Emphysema, severe), Asthma, and some blood pressure issues. She uses a …
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Help with results please
I think that it would be better to wait until your doctor discusses all your test results with you. What you are asking for is in reality a diagnosis which we can't and won't do (Please read the medical disclosure on the page) and even if we could it …
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Feeling Rough
Hi all, first of all I want to say that I love this site. The positivity is so helpful and just sharing information and knowing that you are part of this community is essential. Well done to admins/mods/organisers - can't thank you enough. Reminder I am …
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How can I help myself?
I have so many questions! Mainly frustrated that I can’t seem to get clear answers on WHY I have hypoxic respiratory failure that requires oxygen use. I have asthma and mixed connective tissue disease. I’ve just had transthoracic echo with Bubble study- …
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Understanding pft
Hi RyG - I've been using Symbicort for about 10 years, maybe more. My primary care doctor initially prescribed it to help manage my asthma. Late 2017 - January 2018, during an exacerbation, she added Spiriva. The combination of the 2 medications has …
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Down Tight Tired......
We all know that COPD can wear us out at times , does anyone think that taking vitamin B12 helps out. I've never taken many vitamins in my life but going to start on these.
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NEW NTM Lung Disease Resources!
Do you know about NTM lung disease? NTM stands for Nontuberculous Mycobacteria. This type of bacteria is found in common places in our environment like soil and both natural and treated water sources. When the lungs have been affected by conditions such …
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Massive Phlegm as of late.
For several years my pulmonologist and other doctors never even mentioned bronchiectasis which is an infection in the lower lungs that just did not go away. Ask your doctor about it just in case you need to be treated for it. They can run a sputum test …
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Nicotine gum and COPD
RDK...Good for you getting out on the golf course. I don't know about the nicotine gum but maybe Dr Mannino will have an answer
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Check-in: Putting #Goals into Perspective for the New Year
If you cruise through social media, you will notice many people posting and commenting with #Goals. We also term getting points in games like soccer and hockey, goals . We term the end of a race a goal . But in life, especially when it comes to managing …
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SPO2 Monitoring
I live in a cool coastal environment and often have cold hands. I use a simple CVS purchased finger oximeter on the middle finger of my right hand and an Amazon purchased oximeter on my left hand middle finger in tandem. These units cost about $25.00 …
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Anyone else?
I live in truly breath taking (pun intended) far northern California on the coast. (Redwood Empire). We have cool days year round 40-60 (occasional 32 degree nights in winter) with very high humidity 70-90+ typically with a few higher tempature degree …
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Thankfull, merry christmas
Hi all Just wanted to wish you all a merry christmas, and happy holidays. I am so glad i found this community this year, i dont feel alone with my disease anymore. Last summer i was diagnosed with emphysema, so its been a hard time lately, also a sleep …
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Antihistamines
Hope everyone is hanging in there. Ive tested for allergies via skin prick and my results were all negative except a super low reaction to a couple trees im not near. My IGE and Eosinophils are also low. My ige is actually only 2. Yet, when i take a …
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Has anyone on this site had endobronchial valve implants?
The question may not be worded very well. On the 28th of this month I am to be evaluated for a procedure referred to as endobronchial valve implant(?). This is probably due to the results of my last PFT on 12/12/2023. All values on my last 5 PFTs over …
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o2 saturation level
Hi i have moderate stage copd and o2 sat sits at around 93, 94, 95 measured with the oximeter. I can easily get it up to 98 with pursed lip breathing but after a while it drps back down again. Is this normal for moderate copd? Thanks in advance Dee
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Wellue Pulse Oximeter
I think a standard oximeter works just fine. I don't know anything about the Wellue Pulse Ox, but if I were going to spend more than $30-40 on a pulse ox, I'd bite the bullet and get a top of the line Nonin. The website doesn't give any specs for the …
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Update #2.
No cancer, but what I do have is pulmonary fibrosis. The radiologist noted biapical scarring and blebs. Not the outcome I wanted, I am in shock really. Could be that I don't have long left.
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My apointment
Hi guys so it was my follow up apointment with someone completely different again pulmologist after waiting about 6months they said my numbers was fine and don’t show asthma or copd but symptoms are not I was diagnosed chronic bronchitis by another …
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Is it true that you can have SOB with a normal BO rate?
I've read that an oxymeter is not a good indication of SOB, COPD, emphysema or congestive heart failure. I've also read that even though the medical comunity use oxymeters and the devices are certified by someone they are not reliable or efficient enough …
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Ultibro Breezhaler Alternative
I have been usung Ultibro Breezhaler for the last 6 years and it has been excepionally good for me. This is no longer available in Thailand and I have been prescribed Anoro Ellipta and within three weeks it totally destryed me, I can only walk a few …
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So confused
formal smoker, female 56. I am super active on a farm, walk my dog 3 miles a day and workout. I had a ct scan per doctor from being a smoker Doctor didn’t seem concern - it came up Pulmonary emphysema with no acute consolidation - repeat in one year I am …
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Check-in: Have a Holly Jolly Holiday and Feel Good Doing It!
It’s the most wonderful time of the year! (Or is it?) For many with COPD, bronchiectasis, NTM lung disease, or other lung conditions, the holidays can bring pressure to do “all the things.” Sure, we want to be at every event, stay all day celebrating, …
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