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Asthma
Just found out from my doctor today that my PFT is consistent with mild asthma even though I had emphysema show on a ct scan. They didn’t say anything about COPD. I dont know if I should request a 2nd opinion or not. I just feel like something isn’t …
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Obstructive breathing, reversible on triple action inhaler in 28M
Hi everyone, I’m 28M, and have been having constant obstructive breathing for the past year. I did several PFT tests which showed irreversible 0.7 FEV1/FVC following ventolin and elevated DLCO (120%). with my pulmonologist, I did extensive testing to …
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Hyperinflation and DLCO
Just wondering if anybody knows if hyperinflation and air trapping have any effect on DLCO? Could it possibly cause DLCO levels to be higher?
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drug interactions with stiolto respimat
About 4 months ago I switched from a 2xdaily steroid based inhaler to the 1xdaily stiolto respimat inhaler. My primary doctor just ordered a cardiac C-reactive protein test, and --- after a lifetime of being told I have the "cholesterol of a kindegartner …
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Test results-should I be worried about it being on the lower end of normal?
I know this number is in the normal range but does anyone know if I should I be worried about it being on the lower end of normal? I don’t have an appointment with my doctor until the 23rd. They didn’t really explain anything to me about this other than …
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Breztri-Is Breztri an appropriate medication for stage 1 COPD?
Is Breztri an appropriate medication for stage 1 COPD? I’ve been a little more short of breathe the last few days so I went to the doctor. My regular doctor is on vacation so I had to see the PA who said I needed to be on some sort of medication and gave …
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Can anyone on here tell us about your lung transplant?
I have been asked by my doctor to consider a lung transplant due my poor quality of life. I am 75 and may not be a good candidate. That's yet to be determined.
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Virtual Meetings
Hi! I am new to the group. Are there any scheduled virtual support meetings either through this organization or any others that you may know about? Thank you!
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Job suggestions plz
Suggestions for either stay at home jobs or jobs where there’s limited contact with sick people. Right now I work with kids and would love to find something else but only went to school for the current job I have. Anyone know of anything? Thanks
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Masks—who should wear them and how to get them?
Found some old plastic for transparencies that we can easily repurpose to make shields will have to make a special template to guide cutting out the little cuts for glasses earpieces one sample shield I made had huge cuts (my dexterity with Matt knife is …
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Doctors performing Zephyr Valve replacement
I am looking for a current list of experienced Doctors in the Northeast who perform the Zephyr Valve replacement.
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Advocacy in America: Reflecting on IMPACT 2024
This Independence Day, I want to honor our amazing team of IMPACT 2024 lung health advocates that I worked with in Washington, D.C., where we asked our lawmakers to take action to support lung health! On March 5, individuals with chronic lung disease, …
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5Th PFT
PFT 1st One Mild obstruction 2nd One Moderate Obstruction suggested Asthma significant airway increase 3rd One Mild Obstruction 4th- Methocholine no asthma 5th One Moderate Obstruction suggested Asthma significant airway increase Attached latest PFT. …
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Can an monoclonal antibody stop too much phlegm?
This January 2024 article seems interesting: Antibody activating an immune cell protein may help COPD controlling NFkB, TNFα, IL-6, and IL-1B. Lets hope it works and doesn't take too long to get through trials. https://copdnewstoday.com/news/copd …
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Caring For The Caregiver
Great post, Amanda Atkinson, MSN, RN! For anyone looking for a video to guide them on diaphragmatic breathing, I found this great video created by a physiotherapist!
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Please can anyone help
Hi Cersei - Is your doctor a pulmonologist? He may not have understood that you were asking about nebulized forms of some of our medications, which definitely do exist. Meds like Albuterol, Arformoterol, Budesonide, Bronchodilators, Steroids, and …
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Check-In: Resource Round-Up
Thanks for posting this Jonnie. Important information
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Is there anything here to explain my significant breathing issues?
I find diet effects my breathing at times. Dairy products and alcohol effects my breathing a lot.. yours could be a different. product.. check to see if you have been exposed to any type of mold. just some thoughts. My allergy test did not show any …
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Need Help with Oxygen Regulator
I recently changed oxygen suppliers and got a new regulator for my M6 tank. It is a pulse one and seems to be shooting out more than my other one did. I only use 2 lpm and notice that it makes a noice and more air comes out than my other regularor. My …
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Thank you
I’ve really been struggling with knowing that I’m not even 40 yet and have COPD. I was definitely in a downward spiral until I came here and spent weeks reading posts and everything else on the website. It has helped me realize that my life hasn’t ended …
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7
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Check-In: The Stress Iceberg
Last month, I was excited to attend the annual American Thoracic Society (ATS) conference in San Diego, CA, one of the largest lung-related conferences in the world. It was an amazing experience (if a little overwhelming). However, I think one of the …
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Early signs of emphysema
Most people your age with these findings have normal or near normal lung function- but are at a increased risk for developing significant COPD with aging. Yes- it is improtant to see a doctor, get your lung function measured, and stop smoking/vaping!
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FAO versus PAO and Asthma (Immune Balance)
Hi Community, I wish I could calm down and STOP reading. The anxiety of the unknown is overwhelming and I am trying to not stress my entire family as I go on this quest for information. I feel so raw. Two questions: 1 relates to FAO and the other Asthma. …
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Anxiety - Life Expectancy
Sadie1235 We are so glad that you and your mom found us. There have been some amazing replies to your question. It is so wonderful that you are able to have such a vibrant and connected relationship with your mom and that you are able to help be there …
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PFT, COPD, SAD, Asthma? So confused!
Hi, I am a 60 yr old female. Non smoker but much exposure to chemicals while working on PhD in chemistry in my mid 20's. Ran for 40 years and still running, just less distance due to breathing. In mid 30's was diagnosed with Asthma though no symptoms. …
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