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No doctor, No gameplan
I was scheduled same day as my function test so my doctor can see my results and explain them to me. He has rescheduled on me twice. So i still have his appointment and i signed on with a new doctor which both are a month away. Super frustrating because …
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3
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Low Cost Anoro Alternative?
Looking for a low (or at least lower cost) alternative to Anoro. It works fine, but it's VERY expensive - the pharma co will only give it to you for free after you've spent $600 out of pocket and even then, who knows. The details are boring. I'm on the …
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9
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Short of breath and low pulse
Sometimes when doing the stairs or heavier housework I will be SOB. My pulse/ox will show my O2 @ 93/94 and pulse from 68/74. Those numbers don't sound too bad so why the SOB? I use Anoro for my maintenance inhaler and 2 different heart meds. I have an …
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3
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What to do
I just had a routine cat scan of the lungs done as I was a smoker but been smoke free for 8 years. My PCP emailed me stating I have COPD and should have the test redone in another year. No further instructions from her. Is it ok to wait? Confused.
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Questions about oxygen LPM and more
Welcome to COPD360 Social and boy do you have the questions!!!! Question 1 - I guess the best way to describe it is there is really no such thing as 1 LPM on pulse, and the size of the pulses on various pulse machines differ. The generic measure is what …
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2
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Has anyone had vision problems, i am 56, COPD, on no medications,.
Has anyone had vision problems that does not take meds?
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Sudden short bronchial spasm
I has a symptom that I can't find any information on. 3 or 4 times a day when I take a breath it's like there's a momentary "hitch" in my chest and then it's OK. There's no pain, but it bothers me because I don't understand it. Help?
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4
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Pulm. Rehab cost
Hi everyone. I'm new here so bare with me as I get the hang of this. My question is my Pulmonologist suggested Pulm. Rehab but my insurance does not cover it. Has anyone paid out of your own pocket to go? I really think it will help. I'm at stage 3. I …
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6
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Shingles
I am curios about shingles, what are the symptoms and has anyone had them while living with COPD? Thanks
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4
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How to handle a copd exacerbation?
My father aged 65 is experiencing an acute exacerbation from yesterday. I don't understand why, may be because of some lung infection. His Saturation (Spo2) is around 75% on supplemental oxygen and on air it reduces to 55%. The doctor diagnosed Cyanosis …
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Somewhat of a question:
Was wondering what anyone might think about this. Need my POC for going out and don’t like pulling those carts around but to get the proper O2 I need a larger POC, then it’s to big and heavy so for now I use my normal POC but also wear another canulla …
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should I walk slow everyday to keep my 02 levels up? i would like to try to get back where i was
When I walk slow 1.5 mph my levels are staying at and around 95. My pulmonologist said she is happy with anything above 88. When i speed up my walking my levels will sometine drop lower but recover quickly if i stop and do plb. I think it is me but …
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Prednisone side effects
each time I begin with exacerbation, I get so bad I had to take prednisone. I gain so much weight and water retention, can somebody tell if happens the same and how can I avoid it! Thank
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4
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Pulmonary Rehab with Arthritis
I have severe rheumatoid arthritis on top of my COPD. What exercises can I do that won't affect my joints? I have not been offered pulmonary rehab because of my arthritis. I'm 63.
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3
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Backpack
I just got put on oxygen and need to carry an O2 bottle with me when I go out and about. Would like a back pack instead of the shoulder bag they gave me. Any recommendations? Also, how do I know what size bottles I have? I saw M6/M9 but that doesn't mean …
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11
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Does COPD cause you to be lonely and isolated or depressed? Would you be willing to talk about that
can anyone tell me where to find this article?
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7
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Anyone on meds for depression?
I feel depressed, so I don't do much
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BIPAP mask moisture...how to eliminate it?
Does anyone using this machine get quite a bit of moisture in the mask...enough to wake you in the middle of the night?
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Face Mask Comfort
Can anybody recommend a comfortable night time mask (nose and mouth) airtight ?
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4
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portable oxygen
Hi Yall. Happy holidays to all. I am wondering if anyone has their own potable oxygen concentrators? Do you like it? What do you do when the machine needs to be serviced? Do you have a back up? Am thinking of getting my own and would appreciate yalls …
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BiPAP in COPD
Hi. MY dad has severe COPD. Planning to buy a BiPAP machine for him. Would like to get some opinions about the BiPAP machines ( models) people with COPD are using and their experience using it. My dad lives in India.
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8
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How to overcome Breathlessness
My link isn't showing up for some reason, sorry. . Google for diaphragmatic breathing and also something called jumping lungs. Both are good diaphragm exercises.I forgot. Breathing exercises to strengthen the diaphragm to help with hyper-inflated lungs.
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8
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Too Many Doctors
thanks everyone, Yes, I need a new Pulmologist. That's clear. Where I live that might be difficult, but got to do it any recommendations in westchester, putnam or dutchess countues NY? thanks again
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4
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Has anyone found the Amazon Echo useful?
I recently got one of these Amazon Echos: HTTPS://WWW.AMAZON.COM/AMAZON-ECHO-BLUETOOTH-SPEAKER-WITH-WIFI-ALEXA/DP/B00X4WHP5E It can help me with things like checking the air conditions and weather for me, making my shopping lists and voice control my …
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4
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Hard to be Prepared for cold season
Allen, I feel same way my pulmo is over 100 miles away and these drs here in small town are not understanding lung problems as well. I have asked my pulmo to give me scirpt of pred and antibiotic to have on hand when I need it. He said, "just call me!!" …
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