Today's mail had a letter from my Medicare Advantage Plan stating that Univita (oxygen supplier) is no longer in the network, effective immediately, as Univita has gone out of business. Univita seems to have violated Medicare's oxygen regulations, based …

As I get older I hate south central Pennsylvanias winters more and more, especially when the wind is blowing. It really takes my breath away. My family and I have considered relocating to a warmer climate but from what I've read, COPD patients struggle …

It has been suggested by the suppliers of my oxygen supplies that non-invasive ventilation therapy might help relieve my breathing difficulties. The way it was explained to me, it is a machine that I can use for a treatment and it will free up my …

Hey Hack!!! I apologize that you felt you had to defend yourself. The truth is buddy, with all the factors at play here: pulse size, pulse delivered per minute, timing of delivery and method of delivery (burst or measured time delivery) I honestly don't …

Hi I was wondering if anyone had been in a similar situation to me, my mum is 58 with COPD on Thursday (22/3/18) she went in to respiratory failure which she was on a NIV for as she went in with an ordinary chrst infection (Drs said the usual just need …

It's so disturbing when you don't understand what is happening to someone you love or why treatment is what it is. I'm deeply sorry for the anxiety you're having and sincerely hope that your worries can be explained in positive ways. Have you been able …

I know there has been some posts about this, but, surely someone has found a remedy by now. I am having severe cramping below the knees...(front and back) almost every night. These cramps come in 20 to 30 second cycles...and sessions last up to 20 …

I was referred by primary care Dr. to see a urologist, along with a note stating for to avoid surgery because of my COPD. When the urologist read the note to me, my reply was, " it hasn't be that long since I had a colonoscopy and I was put under" . …

You have had some good answers already, and I just want to put in a piece of advice about using the pulse ox. Remember it is only one of the tools you need in your toolbox. Don't become too heavily dependent on what it says. There are things that can …

Just wondering how you would find out if you are a co2 retainer.

I have been reading that it is possible to re-generate lung tissue. Is this true, and how would that affect the COPD community? Thanks as always.

Is it possible to wean a copd patient from a vent? Has anyone here been on a ventilator for resp failure and copd? Thank you.

Hi, I am chasing rabbit's and not sure of where it might lead. I am rated at very severe copd along with a host of things now. I am on a program similar to palliative care. This month has been one multiple evaluations and I am try to get all my questions …

My father has had COPD for about 15 years now. As the son, I've relied on my mother to do primary care as she takes care of him. I worry though that she is not given the best advice and that bad habits creep in during the day to day life of my dad. So, …

On Thursday I was dx'ed with pneumonia. Then yesterday something happened that I can't explain very well. The first thing that I was aware of was being in the ER at 6:00pm with my husband with me. I have no memory of how I got there, I have no clue what …

I don't know about you, but about 15 minutes into my routine I begin to feel invincible. At some times I actually seem to be. Today I felt like I could jog instead of walking. I did jog for a short period of time. I was surprised that I was able to go …

This past week I had the privilege to participate in 2 group meetings of folks who are living with COPD. Something that came up both times was how exhausting it is to prepare meals.They talked about how they often times will just grab something not very …

I was reminded that I should post this as a question so it doesn't disappear in the activity feed. So here you go! If you didn't get a chance to order a COPD Awareness tshirt last fall here is your chance. We have choices in men's and women's sizes and …

I wanted to that this opportunity to tell you of a change we are making on the site since you will begin to see small advertisements on COPD360social. It is very expensive to run a site like this. We have to pay for the platform we use, and have to pay a …

This is a really tough question in that there are a lot of variables. First (at least in the case of home fill units) different manufacturers build them to be filled to different pressures which would make higher pressure cylinders last longer. The other …

I have been more challenged of recent. I have come to the decision I need to give up an art fair in the woods for 5 days in the summer that I have vended at for 41 years. It is dusty there and the walks are long. It's a ways just to get to the car. I am …

Does anyone find that caffeine affects their breathing?

I have problems with tachycardia and high blood pressure. My doctor put me on atenolol. I find that the drug makes me wheeze and it’s hard to breathe. For that reason I don’t take it like I should.As I tell my doctors when they ask why I’m not taking the …

I was told that I have COPD back in August. Dr put me on Spiriva, told to start Rehab. I was already put on albuterol a couple of years earlier. He also told me that I should think about quitting smoking. He didn't make it seem like it was really …

I have been going through much of what you said. I will be interested in hearing others chime in.