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7
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Can you take 5 minutes to support PCORI reauthorization?
Today marks the start of the PCORI Annual Meeting and COPD360social's own Clipper is participating in-person, but did you know that there is something you can do to help right from home? PCORI, or the Patient Centered Outcomes Research Institute, funds …
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1
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Appointment with Pulmo Doc follow-up
1 month follow-up after start of Trelegy. Fev1 - 1st was 40's after sitting in the waiting room 45 minutes filled with perfumed people (my asthma trigger). Of course the test was bad. 2nd a week later was better at 51. Today a month later was 60. He …
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2
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Anyone heard of DIP?
Desquamative interstitial pneumonia (DIP) is almost exclusively seen in smokers or ex smokers. If stop smoking, prognosis is good. Hi everyone, I had a PFT on 9/10. The FEV1 was 70%. I don't use oxygen or inhalers, not short of breath + O2 sats 95-98. …
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Physical Rehab - And
I am on oxygen 24/7 at lit 2 with upper liters needed for physical execise (3-4 range). I enjoyed my physical therapy sessions and they seem to help my breathing so much BUT I have a very bad back plus a large cyst sitting on my nerve and walking and …
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12
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worst copd question ever!
yep, smoker; yep trying to quit! But, BIG B BUT, does anyone have experience w/ the menthol in cigarettes actually relieving chest tightness so you breath better short term at least? Any suggestions. Mentholated cough drops work but not for long nor as …
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2
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COPD ICU
Hi All, I want some advice. I am form philippines and last friday we rush my father to the hospital and he's in the ICU room from that day till now. His oxygen is 89% coming from machine. He got emphysema and tuberculosis. The doctor said that he needs …
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17
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How did you quit smoking-having a hard time
Having a hard time stopping... when I get anxiety or stressed I keep going back
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3
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Mild upper lobe scarring and paraseptal emphysematous changes
hey new friends - I am really in a state of panic. I was in a car accident and coincidentally my CT scan showed Mild upper lobe scarring and paraseptal emphysematous. My PCP then sent me for an xray as well. She said the scarring is very mild (i think i …
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10
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What can I expect when I go to Pulmonologist?
Hi, everyone. I'm new here and hope that I am posting correctly. I am a 49 year old single mom with a 13 year old daughter still at home. August 20th I woke up with extreme trouble breathing. I felt like I couldnt get a deep breath. It was scary. Im no …
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My dog, Lucky, is afraid of my O2 tubing. Any suggestions?
I changed the long hose a week or so ago, and now Lucky is afraid to step over it. The way my room is arranged, he almost always has to step over it. He will stand there and wimper, or go over it then back up several times. Suggestions. ed
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Does anyone have any tips on purchasing my own portable O2 machine?
Just looking for any tips on purchasing portable O2 compressor for daily travel and also vacations. I have this big home one with a compressor for filling tanks, but those tun out pretty quickly. It's adversely affecting my social life, lol.
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5
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What are some good resources for Medicare, to get best plan for ME?
Medicare Rights Center has medicareinteractive.org. It also has a tollfree helpful helpline, 1-800-333-4114. There is free bi-weekly newsletter with good information you can sign up for as well, Dear Marci. you can learn more at medicarerights.org.
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9
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Can COPD be diagnosed by only CT Scan?
Shortness of breath. Smoker 35 years. CT Scan in ER. Diagnosed exacerbation of COPD. No further testing. Was on oxygen for three days and treated for Flu. No issues at present time. Stopped smoking. I feel for anyone that has this disease.
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4
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90-95 saturation without O2
3 weeks ago my doc gave me the walk around tour and my sats dropped to 85. I had just gotten out of the hospital and the VA had already delivered an oxygen concentrator and 8 cylinders of O2. No instructions from hospital when released as to how often to …
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4
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Detox and Cleaning Lungs
There are inhaled meds, but I don't believe they are used for pneumonia or other lung infections. Maverick is right, the problem with COPD is the structural damage to the lungs and airways and there's nothing that can undo that. Meds help with the …
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7
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Stopping Smoking
How long after quitting smoking do you feel better?
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4
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Acupuncture and Chinese medicine
Has anyone tried acupuncture or Chinese medicine? CBD oil are another thing all over the internet? I know nothing about the oil thing but i have had acupuncture done for knotted muscles which worked very well. I would be more interested in the Chinese …
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6
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CO2 Retention, COPD Stage III Respiratory Failure
I'm new here, so hello to all! I was recently hospitalized due to headaches, sleepiness, dizziness, being off balance, being very emotional, having vivid and terrifying nightmares, etc. My O2 sats were in the 70s. It was discovered that my blood CO2 was …
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2
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Non-stop Coughing spasms
I don't know if this is what it would be called, but I often have trouble with coughing spasms. I will cough and cough and cough and can't stop to catch my breathe. It is not a deep cough that coughs anything up, it is just like a tickle that won't stop. …
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Video explaining COPD, treatment, inhalers
Grenz45 suggested searching for video. I did, and found this interesting series of edu: Here are two, they link to others like treatment explained: https://tinyurl.com/q8anv8n Inhalers explained: https://tinyurl.com/y4t4wyyu
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10
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How does the FDA Make Sure New Treatments are Safe AND Effective?
I saw a great article written by FDA leadership and thought it may be of interest to some of you here. http://bit.ly/329oqvl One of the most important jobs of the US Food and Drug Administration is to make sure new medications and devices are both safe …
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6
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Severe obstruction but...?
Hello everyone! Nice to meet you. I am new here, and I haven't been diagnosed yet. I am waiting to see the pulmonologist and had to wait 6 week (ugh) for an appointment. I am not looking for medical advice but I am curious if anyone has had a similar …
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2
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"Lung function" - what are people talking about?
What numbers are people referring to when they say, "I have 60% of my lung function." Is it FEV1? The FEV/FVC ration? Something else? Thank you!
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8
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Did my Dad suffer?
Hi Sorry, I don’t know if I’m using the site or post in correct area. My father passed away suddenly last week. He was diagnosed with stage 4 copd last year after a hospital stay. They never said end life copd but that if he went on the bipap and gave up …
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7
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Anxiety and Insomnia
Here is the situation. For two months I have been fighting a respiratory infection. I have been through several antibiotics and just cant seem to kick it out completely. 70% at best. I have a neutralizer and use Albuterol / Ipratropium with it. I have …
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