0 Votes
5 Answers
lung transplant-info at doc visits

Lung function, no insurance companies cover the Lung Institute treatments, nor does Medicare or Medicaid. The reason? They're scams; snake oil and downright ripoffs. I would further refer you to this site: https://www.copdfoundation.org/Take …

Author: tammye
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5 Answers
LVRS (lung volume reduction surgery )

To elaborate a bit on what Scott said, the people who do best with LVRS are those who have significantly more damage to the upper lobes than the lower ones and who have low exercise tolerance. This was determined by the NETT study referenced below. …

Author: Mizzy-1970
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0 Votes
3 Answers
What are Californians going to do when P.G.&E. cuts off their power for unspecified time periods

A little more specific plan for dealing with power shutoffs. https://www.adapacific.org/

Author: Mellie
0 Votes
14 Answers
Do-It-Yourself Rehab?

Rehab focuses on strength exercises, cardio and endurance. The exercises are kinda tailored to improve activities of daily living. For home use, I like a Concept II rowing machine. You can probably pick one up off craiglist . I like rowing because it is …

Author: Ben A
0 Votes
8 Answers
If you have COPD, have you been tested for Alpha-1 antitrypsin deficiency?

Here is the Alpha 1 guidelines to read. https://www.alpha1.org/newly-diagnosed/learning-about-alpha-1/testing-for-alpha-1/

Author: Nora
0 Votes
23 Answers
Hassles with Airline & O2

Copdathlete, I wrote a blog post that shows that there shouldn't be a problem bringing all the batteries you need for your POC on your flight. Hope it helps. I was thinking of flying to Australia/NZ and maybe Japan, so was investigating the possibilities …

0 Votes
5 Answers
Physical fitness

Many local community or senior centers may offer a discount exercise class. I know if you look through some of the previous threads, this has been discussed before and others have made suggestions. Good luck!

0 Votes
9 Answers
Does the change of seasons affect anyone's breathing?

I do have a lot of allergies to my asthma component I do get allergy shots called xolair have been for many years. The pollen has started here in north central SD too I get pollen count every morning to my e-mail. It was 8.1 this morning been high for a …

Author: dustybill
0 Votes
3 Answers
What's the best way to help?

Hi Josh, It sounds like you are doing a terrific job, being a caregiver is not always easy and its good to know that there are some great resources that may help make things easier for you and your grandmother. In the latest issue of the COPD Digest, …

0 Votes
2 Answers
Recently diagnosed

There is one genetic form of COPD that we know about called Alpha-1. You inherit the condition from your parents. Please take the time to check out the Alpha-1 Foundation web site to see about getting a home test kit. It is quick and easy. There is a …

0 Votes
2 Answers
Are you interested in patient centered medicine?

Remember my report regarding how I thought that COPD was going through a change? Well, here's a PBS film that was shown last Friday on a lot of PBS stations. I couldn't watch because my local PBS affiliate didn't carry it. But I found it on the internet. …

0 Votes
7 Answers
Why do I still feel SDOB, yet O2 >95%

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC36822... I too can be winded but show high o2. No doubt cooking wears me out too, and its a must to run the vent fan or have air scrubber. Is it possible the condition we suffer is oxygen induced hypercapnia? …

Author: edpe77
0 Votes
2 Answers
Will Returning to work during Covid put my life at risk?

I am a school bus driver. I am concerned about when school opens up if returning to work with Covid if it would be a wise decision. I feel like it puts me in a dangerous situation.’How dangerous is Covid for all of us with COPD

0 Votes
3 Answers
Is this COPD?

For past few years shortness of breath has been gradually increasing so that going to the mailbox causes me to stop and catch my breath now, Pulmonolgist and testing diagnosis is COPD. Never smoked, no coughing nor sputum. I have scoliosis and Xray shows …

Author: Ottsy
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2 Answers
Copd and covid 19

Does anyone know anyone who has copd and become infected with covid 19?

0 Votes
12 Answers
Avoiding a Symbicort Side-Effect?

When I was first diagnosed with "mild COPD" three years ago, I was put on half doses of Symbicort daily (only one puff twice a day) and suffered no side-effects at all.  Since I was bumped up to full doses of Symbicort several weeks ago (two puffs …

Author: Ben A
0 Votes
5 Answers
I Need oral surgery done- Use Breo Respirmat daily

I need two molars removed- Plus they found an extra tooth under the gumline ( called hyperdentia) Have no idea why it is there!? Found at a regular check-up. I am a total baby in the dentist chair with a mouth full of porcelain crowns. They always used …

Author: Cameo
0 Votes
23 Answers
Hoarseness or loose breath while talking?

I apologize if I misspelled the word above.... Anyway, does anyone experience hoarseness or loose their breath while talking?

Author: Burma
0 Votes
51 Answers
COPD10usa conference updates!

The COPD10usa conference is less than a week away! Follow this thread on Friday July 28, 2017 and Saturday July 29, 2017 for real-time updates on the conference and the patient workshop.

0 Votes
4 Answers
Mask-Anyone else find it harder to do breathing with it on?

I find it obviously harder to do my breathing with it on. Anyone else

Author: perkyH
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0 Votes
17 Answers
What is your take on weight gain?

My question pretains to weight. I went and got my shot for my knee and in 1 month time I gained 2 pounds more. Really upsetting .. the nurse said it could be from having COPD and water weight from salt intake. What is your take on weight gain?

Author: Anonymous
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0 Votes
3 Answers
Becoming a State Advocacy Captain or Co-Captain

On a reply in an earlier thread Mooseman asked how he could become a COPD Foundation Advocacy Co-captain. I answered him, but the thread has so many replies that neither his question nor my response is easily visible. So - since it's a great question, I …

0 Votes
4 Answers
Trouble eating with COPD?

From the COPDF Blog: Dear COPD Coach, I have stage 4 emphysema. It is impossible to eat without immediately feeling chest tightness or bloated like I am about to explode. I read about how the diaphragm gets pushed by the stomach and how it changes shape …

0 Votes
4 Answers
Everyone stay home please!

Hu Everyone Please follow your states request that you stay home, wash your hands frequently and stay away from people! The sooner we do this , hopefully the sooner we get out of this Coronavirus mess!´ I’m in Canada, it hasn’t hit too hard yet, we’ve …

0 Votes
4 Answers
List of Meds

Here's the page with the clear med list: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx I found the list quite helpful with my Dr -- we had a singular reference sheet --

Author: Jastro
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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.