0 Votes
19 Answers
Tubing control

I'm not sure if this specific band would work for canula tubing but it is called an Ear Saver. Most of them are headbands for women with buttons but the one in this link could work for men as well if the button were sized correctly - or perhaps a shank …

Author: Jastro
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0 Votes
6 Answers
Looking for ideas for setting up oxygen tubbing I am currently living in a tri level

setting up oxygen line

0 Votes
18 Answers
Oxygen Tips and Tricks - What works for you?

Green! Who knew? I needed more hose, and they sent green hoses! Perhaps it's because I joked that I needed lots of hoses because I keep standing on them. These are supposed to be sturdier. Salter's page says: " Salter's 50-FOOT GREEN Oxygen Supply …

Author: muddleaged
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0 Votes
6 Answers
Storing oxygen tube when temporarily not in use.

What do you do with your oxygen tubing when you change from the home system to the portable system? Throwing the tubing on the floor is unsightly. I've been coiling it into a plastic bin until I change back when I get home, but that's definitely not an …

Author: muddleaged
0 Votes
8 Answers
Is anybody looking at NAD+ (nicotinamide adenine dinucleotide) or NR (nicotinamide riboside)

I have seen this study, and other articles reporting on this study. This does look promising, but more research is surely needed. Wondering why this isn't happening? This is an easy, supplement to get - not some expensive pharmaceutical needing a …

Author: Richard DJ
0 Votes
7 Answers
Possible Emphysema....Scared

A little background on August 19th I went to the ER with shortness of breath, weezing, and a cough. Blood work showed a high d-dimer so ER DR ordered a CT with contrast to look for PE.No PE, but they did see mild pneumonia in the left lower lobe, and …

Author: Lulubee
0 Votes
3 Answers
Can’t exercise

Exercise is a challege for anyone with a COPD diagnosis which means most everyone on this list. We all do the best we can without causing ourselves additional damage. I've heard there are a few who run marathons but many of us find a walk around the …

Author: greenie1
0 Votes
6 Answers
Check-In: A Big Month for COPD Conferences!

Obviously, the hottest topic of November is COPD Awareness Month and all the news and events that go along with it. This time of year also brings a lot of respiratory conferences! Since our first World Oxygen Day event on October 2, I’ve been traveling …

0 Votes
5 Answers
Virtual Pulmonary Rehab - Have you tried it?

Hello Friends! I hope you are all doing well today! We talk a lot about pulmonary rehab and the benefits of the exercise and education that come along with it, but like so many things affected by social distancing, those programs might look a little …

0 Votes
9 Answers
Sleep-Does anyone have sleep decreased on an inhaler?

I just switched from Trelegy to Adavir Diskus (250/50mcg) primarily due to the cost of the two. Trelegy was $47 a month and up to $250 when I hit the gap in August vs $8 a month for the Advair and I won't hit the gap next year unless something drastic …

Author: netmouse
0 Votes
3 Answers
Prednisone-I have been reading that taking Prednisone long term can cause cancer.

I have been reading that taking Prednisone long term can cause cancer. I have been on it for 6 years. My doctor never told me this. Have you heard of this? Worrie

Author: PamK
0 Votes
2 Answers
Stiolto Respimat-Has anyone else had problems using Stiolto Respimat

Has anyone else had problems using Stiolto Respimat. Problems start about 3 days after starting this inhaler. Around 5pm i start feeling better.

Author: AmandaRob
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0 Votes
7 Answers
Trelegy-Anyone notice a change in their voice on this medication.

Anyone notice a change in their voice on this medication. It works well for me. But, i voice is getting worse. I guess it's time to go to ENT doctor.

Author: perkyH
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0 Votes
3 Answers
Pulmonologist questions next visit thoughts

I visited the pulmonologist for a consultation. A little surprised at the lack of masking. Says seems more like asthma and my lungs sounded good. I don't think he had my medical records but I am not sure and am scheduled for pulmonary testing next month. …

Author: omgForReal
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0 Votes
11 Answers
Any one on dupixenr yet? What are your thoughts. Thank you.

If anyone is like me and unable to do a good job of injecting himself/herself, try to find someone else to inject you. So far, every time H has injected me, I’ve gotten a full dose with NO drips, no leaking of any medication and no bruising. When I …

0 Votes
10 Answers
Trelegy problem

Hello, I tried posting this before, but it disappeared, so I apologise for any duplication. Trelegy makes me gag, retch, and worse. It takes some time to recover. Has anyone else had this problem? I would appreciate any advice. Thanks!

Author: Ghiaccia
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0 Votes
10 Answers
Who works full time?

I work full-time. I sit about half the time, and half the time I am rushing around. I walk about 5-8 miles a day at work. I work with people directly. Sometimes I work 7 days in a row. I am moderate/severe with an FEV of 47%. I am not on oxygen. My SP02 …

0 Votes
2 Answers
How Can I Reduce or Eliminate My Chect Cavity Pain

Hello. New user here. I have have stage 1 COPD that was stable and very mild (pretty much no symptoms the vast majority of the time) for 18 years. I had an exposure that finally reduced my function somewhat. It's still being called stage 1, but now I …

Author: vandykd3
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0 Votes
9 Answers
Questions to ask Pulmonologist

I have emphysematous changes as per my last CT so I was keen to see if there was in any impact on my lung function. As Dr Mannino suggested previously the results have turned out to be normal. I know it will progress and I am doing everything in my …

Author: RedPower
0 Votes
4 Answers
Need some hope.

Hi Greenie, I'm not a clinician, and only clinicians can crunch your numbers... However, you do seem to have many of the lifestyle factors that are regularly discussed as negatively impacting COPD... Current smoker / obese / sedentary... The clinicians …

Author: greenie1
0 Votes
4 Answers
Home Testing of PEF / FEV1

Is anyone using a Digital Peak Flow Meter for Home Testing of PEF / FEV1 Had a full 45 minute test at my doctor's office last week and my FEV1 has improved from 35 % to 42 % I'm looking at these on Amazon. https://amz.run/9uSg https://amz.run/9uSi

Author: JAH5001
0 Votes
9 Answers
twisting cannula

Why do some cannula twist until it almost strangles me, but another hangs straight all day?  Same brand and type cannula, same connection thingie to the 50' tubing.  My head doesn't spin like the Exorcist.  Can anyone explain this to me???

Author: Joyr
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0 Votes
25 Answers
Spirometry: What was your experience?

What is a Spirometry test like? Spirometry (spy-ROM-uh-tree) is a common office test used to assess how well your lungs work by measuring how much air you inhale, how much you exhale and how quickly you exhale. What was your first spirometry test like? …

Author: Janina K
0 Votes
8 Answers
Conflicting Diagnosis

that was just a typo. Should be COPD

Author: Hopeful
0 Votes
2 Answers
Pneumonia recovery

I was diagnosed with Emphysema in 2018. My CT scan in November read stable. I am 6 weeks out from a pneumonia diagnosis. I am still struggling to walk or stand for any amount of time without loosing my breath or spastic coughing. Am I expecting to much …

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