As the newest patient advocate and State Captain for Illinois, I hope to accomplish helping along with understanding for those who are suffering with this difficult and isolating disease. More of these patients should be offered the support of others who have COPD, to share education, breathing techniques, exercise, nutrition, etc. So many patients after being diagnosed are given no additional information. There are many reasons rehab isn't offered or accepted, but I believe we should be getting the answers to those questions.
As a COPD advocate I have participated in health fairs or community events to promote COPD awareness, signed up for COPD360Social, and I am a member of a support group. I also have participated in COPD research opportunities such as the COPD PPRN.
As a State Captain I am interested in connecting others in the COPD community to the resources available so they can live healthier, fuller lives, in working with state, local, and national officials to improve COPD policy, and participating and promoting research opportunities to help find a cure. I would also like to write about COPD to share my story and help raise awareness.
My proudest COPD moment is that I am not alone with this disease...because I had never heard of COPD. And even though it's been almost fourteen years since my diagnoses, I'm sure there are others who still haven't heard of it...and yet I'm proud to know this is beginning to improve.
My inspiration to share is, “Dear God, please help me to treat everyone, including myself with respect, love and dignity” -Mantra of John Mahoney