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I hope no one takes offense at this question.
I am a fan of sites like COPD360SOCIAL, I am very supportive of places like the COPD foundation where support and information can be found and I believe that Pulmonary Rehab saved my life at least for the time being and I wish everyone could participate in a high quality PR program.
Having said all of that however, In my own experience the more time I spend on COPD, sites, forums, social networks, PR etc, the more I think about my own condition, the more I dwell on friends lost or struggling, the more I wonder when my final day will come and to some degree the worse I feel for all of the stress and anxiety that all of this brings.
On the other hand the more time I spend doing "normal" things, like traveling, spending time with friends, being out in the community doing shopping, watching sports or the hundreds of other things that "normal" people do, the less I dwell on myself, the more I find myself empathizing with other people's issues, the more I can forget for short periods of time that I have a severe and progressive disease and as a result the better I feel physically and mentally. And yes before someone asks, I can forget all about myself and my condition even wearing a cannula if I am engaged in activity or discussion with friends.
Because of this I engage on COPD sites to see what I can learn, to see what parts of my experience I can share and to be supportive and receive support from people in this same boat but I have to do it in bursts and then get away from it and dwelling on it all can be very depressing as one loses friends to all of this.
Having shared this I am simply curious if others feel the same way or not and am also suggesting that in general I feel my best physically and mentally when I am engaged with others without COPD or am engaged in activities that have nothing to do with my limitations or don't constantly remind me that I have a serious health condition.
I firmly believe that finding a balance between the two parts of my life is when I am at my best. What about you?
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It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.