0 Votes
14 Answers
Age 33 Diagnosed with COPD

Hello, I have been having breathing difficulties on and off for the past four years, the doctor I went to initially in 2023/24 brushed it off as asthma, I seem to remember the nurse saying something about my blood oxygen levels being good at the time, so …

Author: ACC1
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35F with severe COPD, anyone else going through this at my age?

I was diagnosed with severe emphysema at 33 years old, after years of struggling to breath and coughing that was diagnosed as asthma because I was "too young" for it to be anything else. I've been told I will eventually need a double lung transplant, but …

Author: NikkiD
0 Votes
8 Answers
Does pulmonary rehab help?

Hi Mom.Ellen. I'm glad that you're going to start pulmonary rehab soon. I've not done virtual, but have done in-person rehab, most recently a few months ago. I'm not sure if the program will be the same, but it should be similar. You'll have …

Author: Mom.Ellen
0 Votes
9 Answers
Is going blind worth it? (Advare experience)

I'm very sorry to read this about your family member, but echo what Debbie said - cataracts are not uncommon as we age. I had cataract surgery many years ago, and have had no problems ever with taking Advair. My sister-in-law, who does not have asthma or …

0 Votes
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Oxygen and BiPap equipment providers and your doctor

When you have issues about medical equipment and dealing with equipment providers, what assistance do you expect from your pulmonology practice? When the equipment providers ask for updated medical records and tests, I had to constantly follow up with …

Author: Puzzie
0 Votes
6 Answers
I am Wondering if anyone is using the injection of dupixent and if so is it helpful for better breat

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0 Votes
6 Answers
Has anyone been involved in stem cell treatments? I understand there is no hard evidence.

Stem Cell treatments

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0 Votes
4 Answers
WHAT IS AN INCENTIVE SPIROMETER AND HOW DO I USE ONE?

Devices available for lung health

Author: Uncle Jim
0 Votes
2 Answers
Breathing trainers

As the title suggests I have invested in some breath trainers. Anything and everything to get back in the ocean, at least 3 x a week. Just wanting feedback on the items. The welcare breatheasy, an incentive spirometer and my peak flow meter. I have the …

0 Votes
29 Answers
Do you ever regain 'proper' breathing after quitting smoking; and have COPD?

I'm so discouraged, frustrated and guess just mad that my breathing has seemed to get worse the longer I'm not smoking! I had such a COPD 'flair-up' on January 4th - I haven't had a cigarette since. Put on oxygen January 5th, which with the help of …

0 Votes
3 Answers
How to keep my very long oxygen cord from getting tangled and kinked

I’m so tired of my oxygen cord I walk through my apartment with from getting tangled and kinked. I’m on an extremely tight budget, But I’m so tired of getting my head and body jerked back while walking. Any budget friendly ideas. I have asthma induced …

Author: Kim H
0 Votes
4 Answers
PFT Results, could this be early COPD?

Hello everyone, I've been having some issues lately where I've been getting really dizzy if I exert myself or if I talk a lot, and dealing with some shortness of breath too. I vaped for ~5 years (quit a year and a half ago), so I asked my PCP for a PFT …

0 Votes
3 Answers
Check-in: How does COPD affect personal hygiene?

Practicing good personal hygiene is an important way to care for your mental and physical health. Good hygiene helps you feel and look your best, while also avoiding potential health issues like tooth decay. However, COPD can complicate tasks that …

0 Votes
4 Answers
Help me understand my spirometry 25M

Welcome Reizers....My limited and unprofessional knowledge----FEV 1 appears normal--but--I will suggest that you--QUIT smoking!!!! I wish I quit at 25...Good luck

Author: Reizers
0 Votes
6 Answers
​Check In: Being Your Own Lung Health Champion

Great article, Arnelle. What I also do, since not all of my doctors use the same medical records system or same portal, is to print out copies of any test results and take them with me to those doctors who do not have on-line access to the test results. …

0 Votes
3 Answers
I’m in a terrible financial position now.

Dear Friends, When I was 40 years old I was driving to work. I was in the left turn lane and it was safe for me to proceed. A car the way behind the car that was heading in my direction obviously had an inpatient driver behind him. So he proceeded to …

Author: Kim H
0 Votes
4 Answers
CPET experiences

I am finally getting a CPET and I hope this will help me get to the bottom of the exercise intolerance I have developed. HRCT, bloods and spirometry confirm I have some permanent damage from the pneumonia and my lung function has deteriorated since 2024 …

Author: Wildebeest
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0 Votes
1 Answers
COPD

I was recently diagnosed with COPD. I was told that I have 22% lung function. However I was told that I also had a normal lung capacity. What does this mean?

0 Votes
28 Answers
COPD and Pets

Are you a pet owner? Does animal dander irritate your allergies or COPD? What do you do so that you and your pet can be together? Do you have tips for others living with COPD that have pets or are considering having one? What are your thoughts in …

Author: Janina K
0 Votes
5 Answers
Trelegy Side Effects Anyone?

Hello everyone, new to the group and looking for some insight. Early January I was recently in the ER with an asthma exacerabation that needed to be controlled. I was originally on Pulmicort and Singulair and never had any issues. I went to my Pulmo and …

Author: MrHand29
0 Votes
12 Answers
Has anyone heard of the POC - O2 Concepts Oxlife Liberty?

I did a little research on it and what I read was contradictary. The manufacturer states it goes up to 1.5 LPM and battery lasts up to 4 hours (without specifying the liter flow it uses to measure) but Bridge to Care states it goes up to 2LPM and will …

Author: JeanO53
0 Votes
17 Answers
Ohtuvayre ??? Any feedback would be helpful!

No you are taking too much of the same medication change doctors if you can or get a good pulmonologist to review your medications Ohtuvayre is good but very expensive Medicare & and your supplement ins will pay for it. Good Luck D

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0 Votes
5 Answers
Check-in: Are you up to date on all your vaccines?

Check-in: Are you up to date on all your vaccines? August is National Immunization Awareness Month. Staying up to date on your recommended vaccines helps protect your health, especially if you have COPD. Vaccines help teach your immune system to …

0 Votes
9 Answers
Bad breathing and heavy chest while on Prednisone?

Does anyone experience a bit more labored breathing and chest tightness while on Pred.? It seems like every time I'm on it my breathing becomes labored at times and my chest feels heavy. I though this was supposed to open you up. I've been on this many …

Author: T23Cherry
0 Votes
4 Answers
Air filters or purifiers for indoor space?

Been debating whether to get one or not -- read the past discussions. Can't get to consumer reports best for COPD -- some are cheap, some are $400. so, show of hands, folks, do you use an indoor air filter/purifier for copd and does it help iwth …

Author: Jastro
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.