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4
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CPAP USERS, do you find it helps with your breathing?
I have the Astral 150 its more like a bipap and I have been trying to decide if it helps me or not. My c02 still went up even using it. Last few weeks when I take it off I feel sob and I don't think your supposed to feel that way. I really have not …
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2
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Body waking myself up
Ive been having a symptom for the past couple of months that’s been making me feel quite miserable and I’m losing sleep from it. Before bed, ill take all my medication and such. Ill feel SO tired and hop into bed. I feel ok- i think. Ill start to fall …
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8
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42 just diagnosed and scared
I'm so sorry you're feeling this anxiety, Tiffane. Being diagnosed with any health condition as a young mother can be very stressful. Our kids are our main focus, especially when they are so little, and it's scary to think about the "what ifs". I think …
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2
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A good figure
Hi people, Could someone help me with a translation please. A new member of my local Breath Easy Group recently received a rather perfunctory report rom his Pulmonologist listing his FEV1 and FEC results only in litres.and he would like to know if there …
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14
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Do you use a fan when you feel breathless?
I like a cool room and some air blowing on me when I sleep. I also use a white noise machine and an air purifier and a humidifier!!!!!---- Good luck sleeping with me!!!!!!!
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9
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Anyone tried Montelukast?
Like to hear your thoughts on this medication. Thanks
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9
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Anybody cancelled their Part D scrip plan?
I am wondering if anyone has been brave enough to cancel their Part D RX plan that Medicare requires you to purchase otherwise you will have to pay a Late Enrollment Penalty FOR LIFE if you decide to sign back up later, whether in 3 mos or 3 years. I …
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7
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Safety of ingredients in spiriva respimat
Here's a link to a study that looked at all the adverse reactions observed in studies using the Respimat form of delivery. There's nothing to indicate a concern regarding either of the ingredients listed. Long term effects take time and apparently we're …
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16
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Emphysema advice for newly diagnosed 36yr old
Scared, you're only dying in the same sense that we're all dying; that's the conclusion of being alive. Your have jumped over so much solid, true information, facts that are real, not made up, to get to the conclusion that you are going to die any minute …
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4
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Check in - Why is it important to set goals?
Well, here we are on the first day of December! If you have COPD, you probably focus on getting through each day, one day at a time. But… when we turn that calendar to January, we are looking at a whole new year. And you may be asking yourself one, or …
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2
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Loss of smell
hi again Guys! For those of you that have had covid, did any of you lose your smell? You could stick a poopy diaper up to my face and nothing. My issue is, this lose of this sense has me really feeling vulnerable with my lungs. A lot of my neighbors burn …
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8
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How long can you stay on long term oxygen for? Worried
An Alpha-1 Antitrypsin level that low should qualify for replacement therapy- although many insurers may have additional requirements ( such as a lung function threshold). Our friends at the Alpha-1 foundation provide a great deal of useful information …
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2
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Breakthru covid
Data just published from Israel demonstrates a 90% decrease in death among those who got the 3rd covid shot. Benefit was a little better in women. They did not present data on hospitalizations or other outcomes- but I'd assume all severe outcomes were …
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1
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Exercise I can do at home without having to get expensive equipment?
I'm 80 years old and in addition to COPD, I have arthritis. I used to do water exercise at an indoor pool near me, but the pool has been closed because of covid. I loved the water exercise class I was in and I know it was really good for me. I felt more …
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4
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Cross country flying information
In October my granddaughter will be getting married in Idaho, I love in New York. I would so appreciate any information, e.g. can I take the oxygen on the plane with me? Does anyone with emphysema have a favorite (more helpful) airline they would …
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6
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Finally brave enough to ask.
hi again everyone, I hope you all are having an awesome holiday season so far and staying well and taking good care of yourselves. So, I’ve recently begun to experience what seems to be shortness of breath, it’s very mild. I notice it mostly while …
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1
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Better breathing when sick with lung illness
I wonder if when you have a cold you are moving more deliberately and taking it a bit easier and giving yourself permission to relax a bit 'cause you're sick.. When you don't have a cold, you are hustling and zipping around and have the opportunity to …
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6
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Impact of good health and routine.
I am so sorry that this wasn't clear before, Brittany! I guess those of us who have been dealing with this for years skip some steps in our discussion. One step we skipped was what Dave pointed out in his post: people who stop smoking eventually do …
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6
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Open fire
Open fires and primitive cookstoves are fueled by solid materials, including coal and biomass (wood, dung and crop residue). These fuels release harmful particles into the air as they burn. When inhaled on a regular basis, these particles can cause …
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20
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December Weekend Puzzle?
We're really close. Only a few more to go. Additional Hints: 9 - It's upside down; journalism term / If "right side up", many can be found in Egypt ... 25 - Leo McGarry (Fictional) / Real life examples: Mark Meadows, John Kelly, Rahm Emanuel 26 - …
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9
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Check in – Are You a Thankful Thinker in 2021?
I'm a little late to say Happy Thanksgiving. I have to say I feel I don't have much to be thankful for as I am new to COPD, and RA. All new diagnoses in the last year. But I am going to try to list things I am thankful for. My mom and dad still being …
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5
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Check in - Are You More Than Your Disease? Renewal and Discovery with COPD
I am fortunate in that I am still able to be physically active, although that has deteriorated some. I love walking, and and I do go out for an exercise walk at least 3 days a week. Other than a physical hobby,I would say that reading, and learning new …
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2
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Pfts with bronchiectasis &copd
Can COPD and Bronchiectasis look the same on a pulmonary function test? What distinguishes between the two? I know that a High res CT scan picks up bronchiectasis but im only wanting to know PFTs. Thanks a lot for your time
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2
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Will my life be shortened because of having both COPD and RA?
So RA is the newer diagnosis for me, and I have questions about having the two together. Apparently, I've had RA for quite a while now, but did not know until I had my first hospital stay from pneumonia. Once I began seeing my pulmo dr at his office, the …
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2
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is milk good for me?
please advise me!
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