0 Votes
2 Answers
ET With COPD

Does anyone out there have essential Thrombocytosis along with COPD

Author: Jlor
0 Votes
2 Answers
steroids short course

Hello I just came off a 5 day 40 mg steroid for a flareup I get anxious because I don't know how long it will last This is the first time it has happened to me I am at stage 3 Thank you

Author: jweb
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0 Votes
2 Answers
Controlling hoarseness from inhaler

Follow-up. I'm on Advair HFA 1 puff twice a day. This is the second week where I am coughing up a tablespoon or so of clear phlegm about 6 times a day. I have developed hoarseness from drug, so increasing to 2 puffs would seem a problem. It is like a …

Author: netmouse
0 Votes
10 Answers
Cell phone usage near oxygen

Hello to all. Newbie here. Still adapting to live on oxygen while sleeeping/napping. Safety question. I've read all kinds of do's and don't's lists while oxygen is in use. Not seeing any direct answers, when searching "Can I talk, text & surf on my …

Author: Dabladel
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Best Adjustable Bed 2025 | Expert Advise

I researched about the best adjustable bed for the past few days because I’m planning to upgrade my current setup for better comfort and support. I read reviews on the New York Times, Consumer Reports, and Popular Mechanics, and they are marking these …

Author: allen12
0 Votes
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Re: Trelegy Ellipta 100mcg/62.5mcg/25mcg

I had to stop TRELEGY for about a month or so while I figured out how to get it for free (d/t cost) from the Pharmaceutical company GSK. I took Advair hfa inhaler Rx from my PCP to get me through that short period. Once back on TRELEGY, I find it no …

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0 Votes
4 Answers
Doctors refusing me med/makes little sense to me

Hi Brittishere, I’m also based in the UK… Have you considered seeing a pulmonologist privately??? It’s around £150, at my initial appointment the pulmonologist spent over an hour talking me through my numbers / diagnosis / prognosis he now looks after …

0 Votes
1 Answers
Check In: ​Are you the strong, silent type? It’s OK to speak up about men’s health!

Are you the strong, silent type? It’s OK to speak up about men’s health! By Kristen Szymonik, BS, RRT, AE-C When was the last time you saw your health care provider ? Do you remember? Some men avoid seeing their health care providers . This can …

0 Votes
7 Answers
Ashwagandha benefits for COPD

I have been reading about a herb called ashwaganda,seems it can bring benefits to COPD patients.I have ordered online for a try of this herb to see if it will bring some benefits to me.I just wonder if any member has any experience of using this herb and …

0 Votes
1 Answers
Early COPD?

I’m 25 and recently had PFTs showing mild obstruction (FEV1/FVC ratio around 76%), low peak flow, no bronchodilator response, and a normal DLCO. I have no history of smoking. About five months ago, I started experiencing breathlessness nearly out of …

0 Votes
2 Answers
Tapering off Trelegy Ellipta

After experiencing numerous side effects from Trelegy Ellipta and my new doctor agreeing that I was over medicated, she put me on Anora Ellipta. I've been concerned about going off the Trelegy abruptly as a result of doing research and have been …

Author: SheriP
0 Votes
28 Answers
Anyone here living a long time with emphysema?

Hi, The graph shows life expectancy (for males) beyond 65, dependent on smoking status and COPD stage at 65... I think if you can get to 65 in stage 1 or 2 and quit smoking the outlook is fairly bright (on average / all things being equal)... One thing …

Author: Hopeful
0 Votes
5 Answers
COPD or just reversible bronchitis caused by heavy smoking?

Hi. I'm 29. For the past few months i've been smoking a lot of rollies with heavy tobacco, even 20 a day maybe. I've been feeling breathless while doing some effort but for the past days I noticed i feel a little without air even at rest, especially at …

Author: Cezar
0 Votes
5 Answers
Anyone's sp 02 abruptly change from say 81 to 95?

Pulse oximeters are not always accurate and are affected by multiple things ( cold hands, circulation, etc. ) The ones that give you a pulse waveform ( like in the picture below) can inform as to whether the problem is a poor pulse detection. It would …

Author: RAES
0 Votes
5 Answers
What does emphysema feel like to you? Does it feel like this?

Hello everyone and thank you for your time. I’m on a new account because I can’t recover my last one. My old name is happinesses. I made 2 posts last year and received some great information so I’m back again for some more. last year, I had an acute …

Author: Happydays
0 Votes
7 Answers
HAS ANYONDE HAD ZEPHYR VALVE SURGERY.

Has anyone had zephyr valve surgery

Author: Kath0415*
0 Votes
4 Answers
Have to be in humidity- how to deal?

Asking any doctors or anyone who has ideas…what do I do when I NEED to be outside in the humidity for prolonged periods of time for my kids sports, school stuff or parks etc? Is there a med I can take to help combat the humidity’s impact on my lungs? I …

0 Votes
10 Answers
COPD-Dupixent for their COPD

Dang--the internet ate my response. I just bought a new Frio duo pack to keep my Dupixent pen at or above 77 degrees when I am traveling. It is an evaporative technology that cools slightly as it evaporates and doesn't make the medication COLD but keeps …

Author: Kda
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0 Votes
12 Answers
Medication timing

Whn my dad was on those meds, he’d just have them back to back — one morning session of nebulizing and another in the evening. Having to remember to take meds every 4 hours is simply too onerous and no good purpose I know of for spacing them every 4 …

Author: Katnip427
0 Votes
2 Answers
COPD End Stages

My Mother has been in the end stages of COPD for quite awhile now, also heart failure. The last week or so she has just been extremely tired and I can’t really have a normal conversation with her anymore as she is very confused and always falls asleep …

Author: Naomi97
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0 Votes
8 Answers
Bad breathing and heavy chest while on Prednisone?

Does anyone experience a bit more labored breathing and chest tightness while on Pred.? It seems like every time I'm on it my breathing becomes labored at times and my chest feels heavy. I though this was supposed to open you up. I've been on this many …

Author: T23Cherry
0 Votes
3 Answers
Air trapping, standing up dizziness with normal oxygen saturation?

Hi. I'm 29. I smoke. It seems like i have a bit of dyspnea. I noticed almost everytime i stand up quickly i have dizziness. I'm on sertraline, idk if it can be that. My oxygen saturation at rest is 99%, even when i feel this shortness of breathing. My …

Author: Cezar
0 Votes
9 Answers
Full Pulmonary Function test HELP

This is very Severe COPD ( Stage 4, based on FEV1 at 24% with marked decreased FEV1/FVC at 31%). You also have significant air trapping ( RV at 330%) and DLCO is marked reduced at 54%. Some of these numbers can improve with treatment and stopping …

0 Votes
1 Answers
Really sad about PFT results

Lung function values can vary up to 10% from day to day. You have normal spirometry, Lung volumes and diffusing capacity. The change in FEV1 ( given that this remains over 100% both pre and post BD) is something to watch ( but not worry too much about). …

Author: Hopeful
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Check-in: We're Celebrating Pulmonary Rehab!

Have you ever heard of pulmonary rehab and wondered what it was all about? You're in luck! The COPD Foundation is celebrating Pulmonary Rehab Week by bringing you helpful information all month long! If you want to get a sneak peek on what's to come, …

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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.