0 Votes
17 Answers
End stage COPD and nighttime confusion?

Cheather. I just want you to know that I myself have dealt with this problem. I'm not sure when it started or when it slowed down. I the last year or so, I have had very wierd dreams with people in my family who have passed away and in places that I may …

Author: cheather
0 Votes
26 Answers
How Long Can your Oxygen Tubing Safely Be?

There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …

0 Votes
3 Answers
OnCOPD

I agree with the pulmnary Rehabilitation suggestion. Have you had pulmonary function testing or CT imaging post operatively?

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0 Votes
1 Answers
N100

I have just discovered these carbon filter reusable masks. I've been using n 95s until now but I can smell diesel fumes and strong perfumes and aftershaves through it. Back in the city and am finding it difficult to breath. My asthma is at crazy levels …

0 Votes
2 Answers
Has anyone tried NO medication for COPD?

I've been on Breo, now max dose of Trelegy for years. Have severe COPD (emphysema), and just wonder what would happen if I stopped.

Author: Diane RD
0 Votes
7 Answers
Any recommendations for anxiety and depression meds?

Hi everyone. I'm new here. I'm overwhelmed. My COPD is progressing. I don't have a support system of family or friends that understands. I can't work but can't get approved for disability yet. The stress of everything is getting to be almost too much. …

0 Votes
6 Answers
Anyone have problems with desaturating during sleep

Hi, Just to share my experience, my FEV1 is approx 90% and my gas exchange is moderately compromised. According to my ‘fit bit’ (night time) and a good pulse ox (day time) and having readings going back over a couple of years, my day time ox is around …

Author: Katw
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3 Answers
ADD med helping breathing

Last month I began a new med to treat my ADD. I’ve had issues with focusing like reading, comprehension etc since I was a kid. Incidentally, since taking this medication called Vyvanse, I’ve noticed my breathing has gotten about 90 percent clearer. I …

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0 Votes
9 Answers
Never had any phelm with so many colors

I started out week ago with sore throat, headache and cough. Some wheezing. Went to Dr he thought was sinus infection. Prescribed musnix, Prednisone, and cifdinir.Over the next couple day I was coughing up yellow, pink, dark green and dirt brown phlegm, …

Author: GAnne
0 Votes
11 Answers
Stem Cell Research Finally Cures Mild Emphysema in Humans

Study Details | Treatment of Chronic Obstructive Pulmonary Disease (COPD) With Diffusion Capacity Defect by REGEND001 Cell Therapy | ClinicalTrials.gov The Chinese are really pushing hard on this, there population (and the world) are really suffering …

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12 Answers
Regrets

I’m sorry to read how difficult this is for you. There are a lot of positive things I could say, but I’m not sure that would be very helpful for you right now. My suggestion is that you find someone to talk with, a good mental health therapist just to …

Author: Grace2024
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3 Answers
Supporting a Loved One Who Smokes with COPD

Hi everyone, I am new to this community and here to learn. Someone close to me has COPD but is still smoking due to long term addiction. I am trying to support him the best I can but it is hard when he struggles to quit. If anyone here has been in a …

Author: mony072
0 Votes
7 Answers
Sorry for all my negative venting . Here’s something positive 💕

with all my Negative post here’s one good thing that has happened I’ve been caring for a sick puppy around the clock who wouldn’t eat and he’s made a remarkable turnaround and his strong and eager to eat, he kicks his little feet in happiness I’m …

Author: Grace2024
0 Votes
6 Answers
Is anybody using either azithormycin or roflumilast for phlegm control ?

Hi Richard, while i am not a clinician you can check with your doctor if cutting the cheaper 500mcg pills of Rofluminast in half with a pill cutter would work for you. I don't know if they are time released or not. Pill cutters cost about $6 online or …

Author: Richard DJ
0 Votes
2 Answers
Using Acupuncture

Has anyone had Acupuncture and found it to help you with breathing or other things? The reason I ask is because I have been having a problem with irregular heartbeats and a friend asked me to try seeing a Acupunctureist. I have been twice now and the …

Author: JAH5001
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5 Answers
Warning (phlegm gross picture ) scared still no help

hello everyone it’s me again lol. I’m still not doing well at all probably worse . I did start exercising and jogging and it was helping a lot but these last two days I’ve haven’t been able to move and only lay on my stomach to breathe . It got so bad I …

Author: Grace2024
0 Votes
6 Answers
inhaled steroids question

Hi evnewt1 - I agree with Debbie - Breztri is a maintenance medication, and actually contains 3 medications, one of which is a corticosteroid, and is to be used every day, and not "as needed", as far as I am aware. But I'm also just another patient …

Author: evnewt1
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2 Answers
Can anyone recommend an article that clearly explains COPD and the importance of taking taking care

Can anyone recommend an article that explains COPD and the importance of taking care of yourself?

Author: Wolff
0 Votes
10 Answers
Is inhaled Glutathione along with Mullein Extract beneficial?

The most common side effects of inhaled glutathione include coughing, wheezing, shortness of breath, chest tightness, and headache. If you experience any of these symptoms, it is important to talk to your healthcare provider 1 . It is …

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2 Answers
Check-In: The Role of Community in Chronic Lung Conditions

Spending time on COPD360Social can be a lot of fun. Connecting with people across the country, learning some of Debbie’s yummy recipes, and catching a glimpse of a cute puppy on Fluffy Friday can bring a smile to anyone’s face. But did you know that …

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6 Answers
My first cold in ages with severe COPD

Hi all - just a question to know what is relatively normal with a cold and COPD. Reminder of myself - alpha 1 antitrypsin deficient - age 57 severe but stable COPD (mix of emphysema and chronic bronchitis). First time in ages with a cold and wow was I …

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10 Answers
COPD + stomach issues. Anyone else experience both?

When you get short of breath, the brain goes into "survival mode" and sends blood (hence oxygen) to the most vital organs. Unfortunately, the bladder and sphincter muscle are not considered essential making you have to "go". In the course of my illness, …

Author: Jax
0 Votes
7 Answers
Check-in: Have you heard about pulmonary rehab?

If you could join a program that was designed to help you manage your COPD symptoms and improve your breathing, would you want to try it? Many people living with COPD may not realize that programs like these are available in communities all around the …

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Pulmonary rehab online

Has anyone used Carda Health, an online Pulmonary Rehab Therapy? My closest facility has a waiting list and is under staffed

Author: EbonySuede
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0 Votes
2 Answers
Breathing trainers

As the title suggests I have invested in some breath trainers. Anything and everything to get back in the ocean, at least 3 x a week. Just wanting feedback on the items. The welcare breatheasy, an incentive spirometer and my peak flow meter. I have the …

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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.