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7
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Zephyr Valve quesions. Scheduled for Sept 2nd
I am getting the Zephyr Valve on Sept. 2nd. Anxious, Excited and Nervous. I have searched and read some stories form others but was hoping if anyone has anything to add they would do so here. Some of my concerns are..... Chances of Pneumothorax Chances …
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6
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POC vs Stationary Concentrator
I am considering a POC as an alternative to the M6 tanks. My oxygen company has obtained insurance authorization to rent a POC and they told me the units they rent actually weigh about 2 pounds more than the M6 tank. Obviously this is not going to make …
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Check-in- Setting Goals You Can Achieve
Many of us want to be a healthier version of ourselves. Some want to lose weight or eat healthier foods, while others simply want to breathe easier and enjoy their favorite activities. But often, we get discouraged after setting a health goal for …
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5
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Question re end stage COPD - disorientation and shaking
Its possibly the medication- but could also be a combination of factors ( which is usually the case). The end stages of COPD are tough - and he has kidney failure- so may not be metabolizing or excreting the medication he is on as well as a person with …
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Need help with results of spirometer test
Hi all, I’m having a hard time understanding these results. I have another spirometer test scheduled for one year after this one and would like to understand it better for when it comes time to compare. Thanks
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3
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Heart issues?
Hi everyone! I hope you all are doing well! I just had a quick question about my congenital lobar emphysema. After moving down here to California and experiencing high heat I notice occasionally that my heart rate will shoot up to 90-110 when I am up and …
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2
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High FRC and ERV
Theoretically speaking, high ERV might indicate that your lung elasticity is decreasing and/or your airway resistance is getting higher. But personally I would not overly interpret FRC and ERV, because these two numbers rely on TV (Tidal Volume), which …
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4
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Preparing for Dr. Visits with the PCG Mobile App
Do you ever get home from a health checkup and think, “I forgot to ask about ______”? Surely , I am not the only one that has happened to. Nowadays, if I forget to ask a question , my doctor has a website or portal where I can log in and ask questions …
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Are you ready for a little scavenger hunt fun this Labor Day holiday?
Effective communication is an important part of everyday life and vital when you have a chronic condition. You will find the answers to the questions below in the Coping with COPD Gui de for Better Living. Fill in the blanks and post your answers …
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3
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How long
When you get sick enough to be hospitalized, it's going to take some time before you're back where you were before you became ill. Give yourself at least a week to begin to feel better and able to do more than just the absolute basics. Once you're …
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Why is my resting heart rate lower downstairs than it is upstairs?
My house has one story out of ground in the front and 2 stories out of ground in the back. The lawn slopes accordingly. When I am in my dining area which is directly over the family room downstairs my resting heart rate is 109. When I go to the family …
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10
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COPD at 22? Please help
I'm surprised by how much you worry about yourself after I read all these horrible things you did to yourself, in such an efficient way. Some symptoms you mentioned sound like bronchitis, and multiple years of repeated bronchitis might make it chronic, but still it doesn't make it COPD if your spirometry came back normal. Now here is the tricky part, when your doctor said "normal", is it GOLD normal or LLN normal. If 0.7 < fev1/fvc="">< lln, you … lln,="" you=""> lln, you …>
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16
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Anyone have experience of a breathing aid called AirPhysio Global
I saw an ad in facebook the other day for a Australian manufactured breathing aid designed for COPD and Asthema patients.There were attached to the ad so many postive claims for the benefits by users in improving their breathing and mucus control,just …
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5
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CT Scan Results
Hello! I just received my results from my lung cancer screening CT scan. I am 63 years old, started smoking as a teenager and quit smoking 8 years ago. While I am thrilled to not have lung cancer show up on the scan, this single sentence has me terrified …
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7
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Pulse ox readings - is this even possible?
Also, cold fingers give a wrong reading. My oximeter has red bars that bounce up and down as it checks the pulse.
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where can i get a free or low cost portable oxygen concentrator
i have copd but cant afford the oxygen machine from apria plus i do travel a bit need air that i can carry and fly with
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What is the Big Deal About Discussing Advanced Health Care Planning? Tips for Talking to Loved Ones
Did you know that n ine out of 10 people feel that talking to loved ones about future health care planning is very important, but only one- third of them ha ve the conversation ? 1 Talking about future health care and end-of-life needs is not …
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If You Have a Chronic Lung Condition, Expect the Unexpected: Are you prepared for a hospital stay?
Some people approach life with spontaneity, going with the flow, and living moment to moment. However, planning and preparation are keys to reducing worry and stress for those with chronic obstructive pulmonary disease (COPD), bronchiectasis, and other …
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5
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Salbutamol / Ventolin
Can someone please help. I have moderate emphysema and have, since diagnosis of the disease five years ago, attempted to live without medication. However my condition has worsened considerably following recent bouts of COVID and pneumonia and I am now …
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I don't understand the my test results compared to the way I feel.
I was diagnosed with COPD in 2013. I wasn't feeling all that bad for the longest time. I've had a number of episodes with PE's and DVTs. I thought I got Covid when it first was circulating in December of 2019. Since then, I have not been right since then …
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2
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Does beta-agonist improve perfusion?
Briefly looking back: I started having intermittent hypoxemia (air hunger, 3-4 times a day, 1-2 hours each time, blue nail, SPO2 90%, randomly appear, not related to exertion) since March this year, and I did not have respiratory symptoms before 7/21 (My …
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Levalbuterol and Budesonide Nebs
I do use levelalbuterol 3 times a day for sure. Been for years now with 4 lung diseases. I also do budesonide by itself never mix it with anything.
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5
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Meds-My dr. changed my meds
My dr. changed my meds from Spriva/Advair to nebulizer ipratropium bromide and albuterol from Spriva. I also use an Advair inhaler. What order and how long apart do I use them? He didn't say. (he's a new dr to me) Thanks.
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4
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What should I expect living with bronchiectasis?
Hi everyone, I am a new member in this community. After some visits to my pulmonologist and a clear ct-scan I haven't received any diagnosis but my former smoker history and my current symptoms coincide, as a member of this community pointed to me, with …
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4
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Has anyone been prescribed Morphine and Prednisone for sever emphysema
Just seen my pulminoligist and she has decided to put me in hospice and prescribe these meds. Says I probably only have about 6 more months to live. Going for a second opinion. I must admit that I have had several flare-ups /exerbations, and one 20ml …
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