0 Votes
7 Answers
Ashwagandha benefits for COPD

I have been reading about a herb called ashwaganda,seems it can bring benefits to COPD patients.I have ordered online for a try of this herb to see if it will bring some benefits to me.I just wonder if any member has any experience of using this herb and …

0 Votes
1 Answers
Early COPD?

I’m 25 and recently had PFTs showing mild obstruction (FEV1/FVC ratio around 76%), low peak flow, no bronchodilator response, and a normal DLCO. I have no history of smoking. About five months ago, I started experiencing breathlessness nearly out of …

0 Votes
2 Answers
Tapering off Trelegy Ellipta

After experiencing numerous side effects from Trelegy Ellipta and my new doctor agreeing that I was over medicated, she put me on Anora Ellipta. I've been concerned about going off the Trelegy abruptly as a result of doing research and have been …

Author: SheriP
0 Votes
28 Answers
Anyone here living a long time with emphysema?

Hi, The graph shows life expectancy (for males) beyond 65, dependent on smoking status and COPD stage at 65... I think if you can get to 65 in stage 1 or 2 and quit smoking the outlook is fairly bright (on average / all things being equal)... One thing …

Author: Hopeful
0 Votes
5 Answers
COPD or just reversible bronchitis caused by heavy smoking?

Hi. I'm 29. For the past few months i've been smoking a lot of rollies with heavy tobacco, even 20 a day maybe. I've been feeling breathless while doing some effort but for the past days I noticed i feel a little without air even at rest, especially at …

Author: Cezar
0 Votes
25 Answers
How Long Can your Oxygen Tubing Safely Be?

There was a study just released. It looked at oxygen flows from cylinders and concentrators at 1 lpm, 3 lpm and 5 lpm over various lengths. Before I spill the beans on the results, I would like to hear what others are using, think is safe, …

0 Votes
5 Answers
Anyone's sp 02 abruptly change from say 81 to 95?

Pulse oximeters are not always accurate and are affected by multiple things ( cold hands, circulation, etc. ) The ones that give you a pulse waveform ( like in the picture below) can inform as to whether the problem is a poor pulse detection. It would …

Author: RAES
0 Votes
5 Answers
What does emphysema feel like to you? Does it feel like this?

Hello everyone and thank you for your time. I’m on a new account because I can’t recover my last one. My old name is happinesses. I made 2 posts last year and received some great information so I’m back again for some more. last year, I had an acute …

Author: Happydays
0 Votes
7 Answers
HAS ANYONDE HAD ZEPHYR VALVE SURGERY.

Has anyone had zephyr valve surgery

Author: Kath0415*
0 Votes
4 Answers
Have to be in humidity- how to deal?

Asking any doctors or anyone who has ideas…what do I do when I NEED to be outside in the humidity for prolonged periods of time for my kids sports, school stuff or parks etc? Is there a med I can take to help combat the humidity’s impact on my lungs? I …

0 Votes
10 Answers
COPD-Dupixent for their COPD

Dang--the internet ate my response. I just bought a new Frio duo pack to keep my Dupixent pen at or above 77 degrees when I am traveling. It is an evaporative technology that cools slightly as it evaporates and doesn't make the medication COLD but keeps …

Author: Kda
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0 Votes
1 Answers
Incruse Ellipta

Did anyone ever accidentally take an extra dose of incruse? Called Dr but haven’t heard back yet

Author: Mary1949
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0 Votes
12 Answers
Medication timing

Whn my dad was on those meds, he’d just have them back to back — one morning session of nebulizing and another in the evening. Having to remember to take meds every 4 hours is simply too onerous and no good purpose I know of for spacing them every 4 …

Author: Katnip427
0 Votes
2 Answers
COPD End Stages

My Mother has been in the end stages of COPD for quite awhile now, also heart failure. The last week or so she has just been extremely tired and I can’t really have a normal conversation with her anymore as she is very confused and always falls asleep …

Author: Naomi97
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0 Votes
8 Answers
Bad breathing and heavy chest while on Prednisone?

Does anyone experience a bit more labored breathing and chest tightness while on Pred.? It seems like every time I'm on it my breathing becomes labored at times and my chest feels heavy. I though this was supposed to open you up. I've been on this many …

Author: T23Cherry
0 Votes
3 Answers
Air trapping, standing up dizziness with normal oxygen saturation?

Hi. I'm 29. I smoke. It seems like i have a bit of dyspnea. I noticed almost everytime i stand up quickly i have dizziness. I'm on sertraline, idk if it can be that. My oxygen saturation at rest is 99%, even when i feel this shortness of breathing. My …

Author: Cezar
0 Votes
9 Answers
Full Pulmonary Function test HELP

This is very Severe COPD ( Stage 4, based on FEV1 at 24% with marked decreased FEV1/FVC at 31%). You also have significant air trapping ( RV at 330%) and DLCO is marked reduced at 54%. Some of these numbers can improve with treatment and stopping …

0 Votes
1 Answers
Really sad about PFT results

Lung function values can vary up to 10% from day to day. You have normal spirometry, Lung volumes and diffusing capacity. The change in FEV1 ( given that this remains over 100% both pre and post BD) is something to watch ( but not worry too much about). …

Author: Hopeful
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Check-in: We're Celebrating Pulmonary Rehab!

Have you ever heard of pulmonary rehab and wondered what it was all about? You're in luck! The COPD Foundation is celebrating Pulmonary Rehab Week by bringing you helpful information all month long! If you want to get a sneak peek on what's to come, …

0 Votes
3 Answers
travel

Does anyone have tips on how to travel with a suitcase and a POC- do you take a larger suitcase and put the poc in there when not in use? Do you find a backpack when evenly distributed was more convenient? lugging luggage around with copd is really hard. …

Author: perkyH
0 Votes
4 Answers
Check-In: Have You Heard About CLEAR?

People with chronic obstructive pulmonary disease (COPD) in rural areas sometimes have trouble finding care. They may have a hard time getting health information. That’s why the CLEAR program—COPD Learning, Education, Awareness, and Rehabilitation—is …

0 Votes
10 Answers
Check In - Thoughts on Pulmonary Rehab

I've never been in an official Pulmonary Rehab program only because I always exercised even though I was smoking until 4 years ago. After quitting and treating my COPD properly I just continued with exercise. I believe exercise has saved my life. I feel …

0 Votes
9 Answers
How does Ohtuvare work for you? Are you also taking other meds?

I've been taking this newly FDA approved med for 1 month. Also taking Trelegy. Good results. I'm not seeing any of the possible side effects. I no longer feel the Trelegy "wearing off" at the end of the day. I have stopped regular use of my Albuterol …

Author: RichM
0 Votes
7 Answers
​Check-in: Have you heard any myths about COPD?

November 15 is World COPD Day! While there is a lot of great information out there on how to live well with COPD, unfortunately, it is easy to find misinformation, too. In honor of World COPD Day, we are diving into some common myths about COPD. Do any …

0 Votes
5 Answers
Check In: How Do You Set Goals for Quitting Smoking?

I wasn't very "smart" - maybe if I had been, I would have quit many years earlier? In 1991 my then PCP told me that I was getting emphysema and would be pulling around an oxygen tank in a couple of years if I didn't quit smoking. That scared me, so I …

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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.