Happy Valentine’s Day, everyone! If you caught my reel at the beginning of the month, you may remember that I teased some cool projects coming up. We definitely try to not repeat ourselves when it comes to resources. Either way, I think you are going to …

I am on Anoro elipta 62.5 mcg/25 mcg. My insurance is no longer covering the cost in 2024. The cost is prohibitive. Has anyone had any luck useing a Canadian Rx? Please any information would be helpful. Thanks

Hi David. First, glad you had doctor test you for the Alpha-1 Antitrypsin gene deficiency gene, as COPD at your age is a bit out of the norm. As for the symptoms of shortness of breath and mucus, are you staying physically active? Making sure you are …

Thanks!

I’m a 38 year old female 167cm tall and weigh 56 kilos,that went to the drs with breathlessness and shortness of breath while just pottering around and nothing else. Went for a spirometer and never done the inhaler asthma test but straight to the breath …

In the UK you want a Respiratory consultant who is a doc and not a nurse. In the US, you want a Pulmonologist. I also know some PhD level nurse practioners I'd see any day instead of a pulmonologist. For one thing they can spend more time with you and …

Pickledonion We are so glad that you found us. This community is amazing and you are in the right place. I am sure that the community members will hop on and connect with you to provide support. I am so sorry that you were not able to have a full …

Hi Laura-Jayne... I'm also UK based... Here's some advice regarding private referrals in the UK and my experience... I'm 53 and have Mild COPD / emphysema and carry 1x faulty Alpha 1 gene. I gave up smoking on the day I was diagnosed and (fingers …

My oxygen supplier claims that they can no longer get the cannulas that I have been using. What they have given me now, is a bunch of cannulas that cause painful redness where it touches my neck and behind my ears. My eyes have also been burning. Can …

Is oxygen saturation level of 94 safe for someone with emphysema? We used the oximeter to measure the oxygen level. Just recently found out my husband 48 has emphysema. Ct scan detected some bullous changes compatible with some emphysematous changes

Kandy's right on. You need to talk with your doc about halving the meds she prescribed. As for the quit, you might find some of the on-line and telephone support lines helpful for that little bit of encouragment to get you to the finish line. It is hard, …

It can take a few or more weeks to see if your maintenance inhaler is working for you. Things may settle down or you may need a different inhaler. Keep up trying to quit smoking--that is most important -- If you continue to smoke your COPD will get worse …

Hi all my last visit to pulmonologist I was telling her that heat and humidity was really giving me trouble. Felt like current inhaler (Incruse Ellipta not doing anything for me) So now going to try Spiriva Respimat anyone have any experience with these …

Hi all Hope you are all doing well. I have mild/moderate emphysema and, recently, I have also been diagnosed with PAD. I have A LOT of pain, So i have to ask, what kind of pain medication would be considered ok to use, knowing that it will affect your …

i currently use Spiriva (i get the version from Alldaychemist) and Symbicort (also from Alldaychemist) i constanly blow nose.. does anyone else have this as a side effect?

Has anyone tried the symbicort turbo inhaler?

Good afternoon, PamK! I'm going to mimic Debbie's sentiments here and say that I know several people who have done really well on Stiolto and have liked the soft mist inhaler, but not all people respond the same to each medication. Both Bevespi …

You might find this paper a useful read the discussion gives average declines at different stages for smokers and x-smokers... of course it's only an indication but might be a good read for you... I found it useful to get some idea of potential …

I have just a quick question! My sister, long time smoker, recently had a CT scan of the chest, results show mild emphysema. Yesterday she had a spirometry test, results from that were normal. Is it possible to have emphysema and a normal spirometry …

Not feeling too good, feel like I’m trembling and shaky with a headache and tired. Unsure if it’s the medication for my anxiety I started the other day or the new inhaler for the copd diagnosis which I still can’t work out if it’s early stages or not as …

I am a 51 yo who has never smoked and has vigilantly avoided second-hand smoke because of lifelong hypersensitive lungs, mild asthma, frequent bronchitis when younger, and close family history of nonsmokers getting lung cancer and brochiectasis. (Lost a …

Wixela does have an inhaled steroid as part of its composition; that causes thrush if you don't rinse your mouthout thoroughly after you use it. I always brush my teeth and that takes care of it easily. As far as I know there's no sulfa in it; it's …

You may want to check out the Mayo Clinic discussion boards. I hung out there to learn more from other asthmatics like me. They have a robust lung cancer board with lots of feedback and activity from others that have been through it all. There are …

On 1/19, I had a CT scan at my request to check for lung cancer. It came back no cancer, no nodules, moderate emphysema. I've been somewhat frantic and am so grateful for this group because it's the only place I've found some peace. I pushed my GP for a …

Hi Sander, We are so glad that you are here. I love the advice given by everyone. As I was reading I had a couple of thoughts that I wanted to share. I know that your question most probably centered around the safety of cooking while on oxygen, but I …