0 Votes
3 Answers
Has anyone ever hired a home health aid?

I have been given the opportunity to hire a home health aid or nurse if I want. The problem is first of all I have never hired a home health aid before and am trying to figure out what questions to ask them. The second problem I see for them is that like …

Author: TooTired
0 Votes
1 Answers
my husband has blood spooling under skin on calves which are very painful. it limits his walking

because of the pain. Doctors will not give any answers or remedies, any one else have the leg problem? What can help?

Author: Chrissie
0 Votes
12 Answers
pulmonary rehabilitation

is pulmonary rehabilitation worth the amount of work I am going to have to miss to take advantage of it or would it be just as effective to practice everything at home

Author: philoz
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0 Votes
4 Answers
Edema How Common

I have shared this with my Doc. He looks at my ankles every time I go in. My lasix is 20 not 5. My Dr. told me to limit fluid to 2 liters and limit salt. I will see if he thinks my lasix should be bumped up. It doesn't sound like you guys are …

Author: BoJonJovi
0 Votes
9 Answers
test scores, how much weight do you give these mumbers?

A 6 point swing in FEV1 is not that meaningful. You can blow into that machine ten times in a single day and will likely see 10 point swings in either direction. It is important to monitor lung function trends over time. So, seeing changes year to year …

Author: TooTired
0 Votes
4 Answers
Help for my mother, lung function is less than 20%

Has anyone tried the vitamin cure for COPD? I seen a video on " how I saved my moms life" he said it's a cure.... my mom is 69 years old, on 24/7 oxygen, has to use a walker because she gets out of breath, family doctor just started her on antibiotics …

Author: Tamarasue
0 Votes
2 Answers
Should I be concerned about COPD?

Hey everyone I'm new to this website and was hoping I can post my question and maybe get some feedback from y'all. I want to apologize in advance for the lengthly post. I am a 22 year old male who has been having abnormal breathing patterns lately. For …

0 Votes
4 Answers
Still feeling SOB & Down

Well I am on my 7th day prednisone & still feeling sob. This last month has been tough for me as I seem to be going backwards. I did rehab and was walking 1/2 hr outside or on treadmill and now I can barely walk 10-15 min without feeling like I can't …

Author: di545
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0 Votes
3 Answers
Hot and Feeling Clammy

I've had COPD for a number of years and recently I've had symptoms that are new. When I'm moving around preparing to get dressed I have become SOB perspiration so bad that my hair gets wet. I become so weak that I have to give up. Has anyone had this or …

Author: jp3289
0 Votes
3 Answers
I have every week up or down days is this normal

All week I was able to mostly get what I needed done, was not overly depressed and then BOOM! Its like I was hit by a bomb, I have no energy at all, will sleep enormous amounts of time, I feel so week I cannot even describe it. I am afraid to even try …

Author: TooTired
0 Votes
4 Answers
If you are approached about fundraising or contact information

This hasn't really been a problem yet, but as we continue to grow it may well become an issue! If you are contacted either on the forum or through a private message to donate money, purchase any product, participate in a survey or trial not approved by …

0 Votes
5 Answers
research refusal

If a person has had lung cancer that was completly removed and no signs of it returning, what are drug companies unwilling to use them for research. Surely there is something to be learned to help others whose cancer is still there.

Author: philoz
0 Votes
8 Answers
I am just too tired and need Help

Hi this is my first time posting a question and I just really need to talk to someone who understands and maybe can help. I thought I had bad asthma, never had time to see a md and I had lousy insurance. One day I left work and really don't remember much …

Author: TooTired
0 Votes
5 Answers
exacerbation duration

I had an extreme exacerbation three weeks ago. I start to feel like I'm getting better and then bam I start to feel worse again. I have quit smoking 24th day. I am trying to walk and exercise some although I'm sob and eat right. I am desperate to get …

0 Votes
7 Answers
I have MS and COPD

Lee1048, I personally would be sure to mention this to your healthcare team. Write it down and when you are there, take out your list and be sure to share the questions with them. It is important that you ask these types of questions- each one of us is …

Author: lee1048
0 Votes
4 Answers
How do I stop smoking

Hi Ray7719, I traveled your route to quitting. I was down to 3, but could not put those down. I went to the patch. I was advised to use a low dose patch, but that did not work. What did work was starting with the beginning does and staying at each level …

Author: Ray7719
Tags:
0 Votes
5 Answers
Purchasing POC Supplier?

After much consideration i am going to purchase a Inogen G3. My question is whether i should buy direct from Inogen or through a 02 supplier. Which one would have best service in case something goes wrong. Would appreciate anyone's experience in buying …

Author: di545
Tags:
0 Votes
8 Answers
Flying with POC

I'm flying on Southwest from Florida to Denver. I don't meet O2 in Floida but do in Colorado. My flight with layover is 8 hours. 150% would be 12 hours worth of batteries. My supplier that I'm renting from doesn't have that many batteries for a continuos …

Author: Sbtoloc
0 Votes
5 Answers
I'm at the domestic violence shelter and I have no idea what to do now

im on a reservation no transportation and I'm at loss of how to get help. I have meds clothes in my back and no family

Author: Sheila F
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0 Votes
3 Answers
Open flames and oxygen

I am new o oxygen use and we usually go to a winery on Friday nights. There is often a fire in the fireplace and tiki torches around the entrance. How close is safe? I use a portable type "D" tank on continuous flow at 2lpm.

Author: Gary36
0 Votes
3 Answers
Chlorine tablets

I've done my own pool maintainance for decades. The potential problem is not the chlorine but what happens when you breath in the fumes from the chlorine. Turn your head away, hold your breath, use grilling tongs to pick up the chlorine.....just make …

Author: tlane
0 Votes
6 Answers
What would you say?

Today we had a chance to meet with legislative staff regarding access to health care services. Our role at these meetings is to represent the COPD patient and family perspective clearly and succinctly -- which we consider it an honor to do. We spoke …

0 Votes
9 Answers
Asking God to please let me die

Sheila Please go to nearest women's shelter to get away from your Domestic Violence situation As a DV survivor myself I can't suggest enough, this is the only way to get out of your situation. Talk to your DR about your meds if they're making you feel …

Author: Sheila F
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0 Votes
4 Answers
Does anyone know weather Medicare helps with the cost of a wheelchair?

Most medically necessary prescribed medical equipment is covered by Medicare. When the item is expected to last for years, it is Durable Medical Equipment, DME. Your provider should be able to help you find a DME company to work with to get the equipment …

Author: Anonymous
0 Votes
2 Answers
Advanced COPD + 3 weeks in ICU on Ventilator + lung failure

Hi, I am new here and hoping to find some first hand accounts from family members of COPD patients with the following trauma - My 77 year old mother was diagnosed with COPD 7 years ago. The Doctor scared her so badly that she spent 2 years in therapy and …

Author: Aspengirl
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.