0 Votes
3 Answers
ARE YOU ENJOYING THE HOLIDAY SEASON?

MAKING IT THROUGH THE HOLIDAYS Are you looking forward to getting together with family and friends, perhaps for the only time during the year? Or, are you apprehensive about trying to keep up with everyone else, given your chronic disease? (Such as …

Author: Uncle Jim
0 Votes
15 Answers
REQUIRED READING FOR CAREGIVERS, FAMILY, AND FRIENDS OF LUNG DISEASE PATIENTS.

I MEAN IT!I WANT YOU TO READ THIS AND UNDERSTAND IT AND TALK TO YOUR PATIENT ABOUT IT! Over the years, I have written about a lot of subjects related to COPD, lung disease of other kinds, and the processes that the patients and their caregivers …

Author: Uncle Jim
0 Votes
3 Answers
New to this site

I am new to this forum. My Name is Tano, I am from Malta , I like to ask a question but I am not sure how and where I can place my question. Can I place my question on here? Thank you

Author: Tano
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0 Votes
14 Answers
Energy management tips

I was working with a group of some relatively newly diagnosed COPD patients yesterday and they had some questions that I thought you all could help me with. They were talking about how they seem to run out of steam by the middle of the afternoon. I began …

0 Votes
2 Answers
What is the death rate caused by copd?

reply soon

Author: sabya
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0 Votes
1 Answers
Feeling billious (like vomiting)

Hi. I'm new to the group. My mom has end stage COPD now and for the past 2 days has been feeling very billious in the late afternoon. Has anyone else experienced this? Any suggestions on what can help. Thanks, Julie

0 Votes
4 Answers
A weird smell

my loved one won’t tell me much about his COPD. He found out about it when he went to the emergency room because he coughed so hard that he broke the cartilage around his rib cage.. (don’t know if those are the right words to explain it). While being …

Author: wiyan
0 Votes
1 Answers
Anyone know more about stents ? Pros/cons?

I'm very interested in the bronchial stents and want to find out more info and locations where the procedures are done. Thx

Author: Allen1
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0 Votes
1 Answers
I live in Santa Barbara California and would like to connect with anyone who uses liquid oxygen.

I have ABPA and feel l would benefit from a portable unit which delivered continuous oxygen. The Inogen portable concentrator I have does not deliver enough on its highest setting.

Author: Lou8
0 Votes
3 Answers
Raw chest pain

I'm sorry I don't have an answer for you Allen1. From time to time I also have chest pain and am still trying to figure it out. A year and a half ago I had a heart attack and then open heart surgery. I also have GERD. So then I start to wonder if it is …

Author: Allen1
0 Votes
2 Answers
About oxygen

Is there any chance anyone knows of a company that will help me get portable oxygen that makes it's own so I don't have to carry and refill 4or5 bottles a day the bottles are about the size of wine bottles and last about two hours each which is 45.00 a …

Author: nanaof14
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3 Answers
Looking for articles

which cover 1. Why copd is often not timely diagnosed 2 why copd is often under treated Any references would be appreciated Thanks

Author: Jastro
0 Votes
9 Answers
Rehab Benefits

In June I wound up in the hospital for 3 days with an 02 count of 84. First time for that. After I got out, on 02 24x7, weak and disgusted, I found this group - and you were REALLY helpful, REALLY Helpful After 8 weeks of rehab, my counts were UP, and I …

Author: Jastro
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0 Votes
3 Answers
sit/stand mobility scooter

Can anyone suggest a good sit/stand mobility scooter. This would not replace my exercise program but would allow me to keep up with others on walks. I want to be able to stand and visit with others side by side. I am thinking of local bird walks in my …

Author: olbetsy
0 Votes
6 Answers
the stigma of copd

I do not know where to post this. We are all concerned about the "stigma" of copd being caused by smoking. And, we wonder, why isn't copd getting as much research and discussion as cancer. Many of us think it is because it is a disease of choice. Well, …

Author: lazy t
0 Votes
6 Answers
Ankles swelling

Thoughts?I have noticed in recent weeks that my ankles are a bit swollen. Also, my legs hurt when I get up from sitting. No matter if I was sitting 3 or 30 minutes. Not a pain or an ache, it just hurts to stand. Once I am up, its ok.

Author: tlane
0 Votes
1 Answers
6-Minute Walk Test

Do they usually perform this in the middle of a severe exacerbation? I couldn't walk more than a couple yards 6-MWT) after a severe flare. I got the orders for home oxygen, an antibiotic, and the correct dose of prednisone. I just had this test repeated, …

Author: annie wi
0 Votes
5 Answers
How do i encourage my husband to do the pulmonary rehab?

How do i encourage my husband to do the pulmonary rehab ?

Author: peggy bone
0 Votes
9 Answers
More frequent SOB

having more frequenr SOB episodes where my O2 levels after minimal activity are 85 or so then have to do pursed lips breathing for a few minutes to get over 90. Have another PFT and pulmonary in January. Question is when should I call Pulmomologist …

Author: Evie
0 Votes
11 Answers
Singing Despite COPD? No, Singing to HELP COPD

Can singing help maximize lung capacity? Visit the Pulmonary Education and Research Foundation(PERF) blog for an exchange between Mary Burns, RN, BS and a researchfellow at Haukeland University Hospital in Norway regarding the benefits ofsinging to help …

0 Votes
7 Answers
Have you seen the new COPD Awareness shirt?

If you order it now, it will be here in time for Awareness month! If you have already ordered, Thanks!!! https://www.customink.com/fundraising/copd-awarene...

0 Votes
6 Answers
Do you see yourself as physically ill?

Made, if you decide to continue to get your medical degree, you will definitely be a very compassionate doctor, and if you decide to specialize in pulmonary medicine,your patients will feel so reassured knowing that you also live with lung disease and …

0 Votes
3 Answers
Asthma, copd and meds.

Hello hope you are all doing ok :). So this is the story. My mother has asthma and emphysema. I don't think she had emphysema at the start because she had only ics Alvesco and reliever berodual or ventolin. Now about a year ago she was perscribed also …

Author: Onix87
0 Votes
3 Answers
Asmanex Query

Ive been using Anoro and secondly Asmanex as the steroid component. I don't think the Asmanex ever worked very well, if at all. Was wondering if anyone has experienced that, and/or what do you use in addition to Anoro thanks

Author: Jastro
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0 Votes
9 Answers
Is anyone familiar with SBRT//SABR targeted radation treatment?

Hi Ed - I'm glad that you do not have small cell, because you're right - it progresses more quickly than non-small cell. I haven't had the exact same type of targeted radiation that you have asked about, but I did have targeted internal radiation for …

Author: edpe77
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.