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3
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6
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Have you experienced discrimination?
Referring to inadequate levels of care and research funding in every country, Vanessa Smith reports that one speaker at the COPD Global Summit stated "this is a matter of discrimination - not just stigma - and we need to get past that". Do you agree …
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how to use this site
Greetings all... I am new to this site and need some help. I would like to write an introduction and also put up a couple of topics for thoughts/comments. This relates to being an active person who still wants a life, despite having COPD. I also have a …
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loosing canula at night
At night, I run the canula over the top of my ears and let it run down my back. To keep the slide up I put it where it is supposed to be leaving just a little slack, I put tape behind the slide (you could also glue it). Since I can't sleep on my stomach …
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Doctor-Patient Communication
Wondering how many people find that their doctors don't really talk to them -- I've had a few -- only one ever told me what was going on -- the rest say "take these pills" or "you have a cough" and come back in a month. I don't know what to ask, I don't …
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New on this site
I am new to this site and have called the information lineseveral times to speak with other people with COPD. Have read many of the postson different subjects. Having been diagnosed with COPD in 2013.I have quitsmoking recently and scheduled to meet with …
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What do you know about generic drugs?
Quiz: 1) Does every brand name drug have a generic version? 2) Do you need to take more of a generic drug than a brand-name drug? 3) Are generic drugs lower quality than brand names?
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Need help with surgery
my mother has copd and she has a massive hiatial hernia. She is in constant pain and has gotten to the point where she doesn't want to live with it anymore. No surgeon will help her because of her copd, I'm desperate and don't know what to do. Does …
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14
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Loss of a Supporter
This is not a question but sad news for this community. With the permission of his family and with a very heavy heart I am writing about the very sudden passing of someone many of us came to know on this web site. On February 3, 2018 Hack turned in his …
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5
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Can someone share information about Performamist?
It has been suggested that I give up the albuterol and go to this Performamist. My understanding is that whereas I can take my albuterol up to 4 times a day, I can only use this 2 times a day. Does Medicare cover this fully like they do albuterol? I'm …
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Need Some advice on Recovery
Hi I've asked this before but under different circumstances. I'm more or less getting over an exacerbation, and I have to get walking and moving again -- that's the only way the recover. I'm home, but any advice on how to start the exercise/recovery …
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nasal cannula dropped on the floor
I am Home Care PSW.. Around 2 months ago one of my home care residents in his home gave me his nasal cannula( Prongs) and asked me to put it on his bed as he was going to bed.I took it and when i reached the bedroom i dropped it on the floor.( I am not …
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1
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Changing Long Hoses and Cannulas
Another of those questions that may not have any definitive answer: Of those on supplemental oxygen 16 or more hours per day, how often do you or should you change your long hoses and cannulas assuming you are stable and not having colds or infections? …
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Using Better Cannulas is Important
www.salterlabs.com/flexi-soft-cannula I'm able to get Apria (the company that supplies my oxygen) to provide me with the SOFT cannulas made by Salter at no extra charge. I believe I posted about them because they have really made my nose MUCH happier. …
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3
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Does Everyone feel so Miserable?
I only saw my Primary doctor, I called for an appt with Pulmonalist and they promised they would contact me by end of business day. Well, they didn't. I guess I will call my primary back tomorrow and tell him what is going on, cause God, knows, when I …
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COPD & a cold
I'm new here and really concerned about a few things. Ten years ago my doctor said I had Chronic Bronchitis, and suggested I quit smoking. She gave me a prescription for Chantix and I decided I needed to quit pretty darn fast. I hate to admits this but I …
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New and Looking for Support
Hello everyone, I am new here and am having a really hard time recently. Although I had never formerly been diagnosed, I have known that I have COPD for a number of years as a 40+ year heavy smoker. I also have other health issues as well. I had been …
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Did you feel your lungs prior to COPD?
Like many of my internal organs, I never “felt” their presence in my body. Lungs don’t growl or burp so I didn’t think much about them. I thought the heaviness in my right breast had something to do with that but knowing now I have COPD, I realize it’s …
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8
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Timeline of exasperations
How long do exasperations last? I got sick a month ago and am still feeling more out of breath and very fatigued. Just wondering how long they last or has my COPD progressed and now worder. I called the Doctor but he had no opening till March 9th. What …
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Mild COPD – here is my plan and my history. what do you think?
Warning: long post ahead I just got out of the lung clininc, and have now ruled out Asthma. This means the doctor will be telling me that I have mild COPD, probably Emphysema with some Chronic Brochitis. I write this post to visualize my plan for my …
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6
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Is it normal to feel ill most of the time with moderate COPD?
I was diagnosed with COPD about 8 months ago after a hospitalization due to what I thought was bronchitis. I am stage 2 moderate and I’m really struggling to hold down a full time job. I’m exhausted all the time. I sleep with a CPAP, take vitamins, take …
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2
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Inhalers - double dosed maintenance inhalers?
Just curious if anyone here ever double dosed their maintenance inhalers?
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1
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Inhalers - unorthodox way to get the most out of my inhaler
I just found an unorthodox way to get the most out of my inhaler, I was lounging on the sofa and my wife gave me the inhaler and instead of sitting up, I stayed lounging and the puff went right into my lungs, didn't hit the roof of my mouth. Hope this is …
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3
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Inhalers - only inhaler covered will be Incruse ellipta?
I was just informed that the only inhaler covered will be Incruse ellipta, can anyone tell me about this. I've looked at the adverse reactions and long term effects on the pharmacy computer, I would rather hear it from my friends. Thanks Bill66
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0
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8
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Exercise - resume exercise after an exacerbation?
How long, generally, should one wait before resuming an exercise program after an exacerbation? Thanks.
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8
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Medication - running out of the inhaler?
This is the first month I actually did my medication as prescribed on a daily basis. I also added another worry on my shoulders. My actuation's are 2 puffs 4 times a day. The worry now is running out of the inhaler. I'm sure everyone has been there and …
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