Hello all- I thought I would post a few frequently asked questions I get asked about the State Captains Volunteer Program! What is the State Captains Program? The State Captains program is a group of 100+ volunteers who want to help spread awareness …

Are there any recognized treatments for patients with both COPD and Sarcoidosis

hi all, my pulmonologist now wants to put me back on 10mg prednisone to be tapered off when the cellcept becomes useful. Still ideopathic so guess he is treating symptoms in case it’s IPF. It’s hard for me to talk to him about these issues maybe because …

Hello I'm new on this site today trying to find alternative ways my dad can have emergency oxygen. He uses 6 lpm on constant flow with his Invacare Platinum 10 home system. I just read a post about Liquid O2 therapy. Can anyone please tell me if he would …

My mother has an Inogen One g3 for a few months and all of a sudden tonight it turned itself on and then the display would flash "shutting down", then it would restart. It keeps doing this repeatedly. The only way to stop was to remove the battery. I …

SOB vs O2

I was diagnosed with sever COPD in January 2011, my doctors told me I was not going to be able to do a physical job of any kind ever again. They recommended I apply for SSDI, I did and filled out the online application but also contacted a place called …

copd and high blood pressure

Hi Evie, speak with the Physician who diagnosed you in terms of further exploring 'allergy tests' there's no harm to having it done. In most cases to my knowledge, it's airborne pollutants that's the cause. Keeping the furnace and AC filters on a …

Any opinions on portable oxygenators? Are they worth the expense? Do they work?

does anyone have the Imogene small portable concentrator and how do you like it

Hello all, I was wondering if anyone suffer from talking. I sometimes get out of breath from just talking and talking on cell phone and walking. Other than that, I don't have any problems doing anything physical. Do you think I may need my meds adjusted? …

Any thoughts if Coffee or Tea helps your breathing? Its a pretty good topic on asthma sites, however not much info with COPD except with avoiding it if you have GERD. Im more interested in the Bronchodilator aspect of it. I've doubled my intake of coffee …

I found this article and thought it might be helpful to share it with you. I'd love to know what relaxation methods or techniques you use. Post pictures of your favorite places if you have them available. :) https://www.everydayhealth …

How do you deal with going from a warm house into temperatures that can reach 25 degrees below zero with wind chills of 55 below zero? I live in Wisconsin and I have a dog that needs to be let out numerous times a day. I do wear a scarf over my face and …

Hello I'm looking for help for my dad who has severe COPD/Empha. he uses 6lpm constant flow at home with the Invacare Platinum 10. I was concerned about an emergency situation (we live in northern California with the wild fires) if we had to leave the …

According to an article in Nat Geo 1981 - first Lung transplant 2478 done in 2017, the 2018 wait list ii 1518. But it gets worse, first heart 1968; 3273 in 2017,and a wait list of 4047. The next worse is kidney 20,639 in 2017 and a wait list of 96,670 …

My father just turned 80 ten days ago (we weren't sure he was going to make it). Last year he has aspiration pneumonia caused by a Zinkers diverticulum, and spent a solid month in the hospital, followed by two weeks in, two weeks out for four months with …

I am happy for you that you're in the clear and that all the necessary tests were done to confirm the diagnosis. I know someone who went thru their entire childhood to early adulthood being diagnosed (full battery of tests done including biopsies & …

My favorite is from "The Lorax" “Unless someone like you cares a whole awful lot, nothing is going to get better. It's not.”

I'm Ken from Michigan living in California. Fostering dogs, advocating for better access to healthcare and traveling are some of the things that make my heart sing.

I am on an antibiotic for a sinus infection. I started feeling bad Monday morning, went to an Urgent Care. Dr. told me I had a sinus infection and gave me antibiotic and also had me get an oral steroid pack just in case I worsened with my breathing. So …

what to expect

What are some ways to help cure

Simultaneous to using O2 during sleep, I've had a very bloated and gassy belly in the morning. Doc said it's because I'm swallowing air all night. Anyone with similar experience?