0 Votes
2 Answers
Liquid O2 vs Exchanger

Hi everyone. Does anyone know why I would feel I am getting more O2 when I am using my portable liquid than when I am at home on my Exchanger? I am at a level 6L, but feel better when on the liquid. I do know that the hose is larger on the liquid O2 one. …

Author: 6Thor6
0 Votes
5 Answers
What is November?

I sent to my SD governor on 9th received a note saying was accepted so nothing since sent the secretary a e-mail she said I never got back to her and I did. I sent another e-mail told her I had done many of these never ever had this trouble. Then she …

0 Votes
7 Answers
Back and chest pain when breathing

Have you ever had a blood clot? The first thing that jumped to my mind was pulmonary embolism. They can come an go on their own with no lasting effect, but I would guess whomever you saw would have considered this, especially with chronic lung disease …

Author: Anonymous
0 Votes
2 Answers
What help is out there for End Stage COPD?

My Father is in Stage 4 Emphysema & COPD. Diagnosed around 13-14 years ago. No one can prepare you for what this does to your loved one. In the past 2 months there have been ER trips, an ambulance trip, & hospitalizations. He is prone to blood …

Author: Daughter#1
0 Votes
2 Answers
What does a vagus nerve response mean when I do nebulized Brovana?

Sometimes when I am nebulizing Brovana I hold my breath for a few seconds to increase drug absorption. One in six times I will get a vagus nerve response , That is a tingling or fuzzy feeling all the way to my feet. I wonder if this is a good thing or …

Author: JohnC
0 Votes
1 Answers
Hypersensitivity pneumonosis

Anyone else with this diagnosis have any idea what might be done to slow progression? Besides ex smoker I’m an artist who inhaled clay dusts plus pastel dust over many years. Just want to let pulmonologist to know there’s more things that are possible …

Author: Evie
0 Votes
5 Answers
Ventilator weaning

My mother has advanced COPD. She's on 2.5 liters a day and triology machine at night. She's only 68. She had a bowel obstruction surgery 4 weeks ago that has just gone down hill. Her lung collapsed and now she has MRSA in her right lung (a lung abscess). …

0 Votes
3 Answers
Questions to ask doctor

Hello. My dad was dx with COPD/Emphysema 5 years ago. He has never wanted me to go to any doctors appointments with him...until now. He feels that he is at the "beginning of the end". I'm just not really sure what questions to ask when I take him …

Author: ladunda
0 Votes
4 Answers
Extender with Medication Inhaler

https://youtu.be/Y9YRnDTNd4QThis video from COPD Foundation explains how to use a spacer with an MDI inhaler. For some reason it isn't including the link.

0 Votes
3 Answers
Portable Liquid Oxygen as a means to being more mobile

My dad has emphysema and uses 6 lpm on constant flow. He is a mouth breather and does better on constant flow. He has an Inogen G3 (pulse flow) but it's quite heavy for him to cart around. He would like to be more mobile and is looking for ANY portable, …

Author: mff
0 Votes
10 Answers
How to monitor/know limits with exercise.

I'm reading as much as I can on this site and have learned that exercise is critical. I have reached a point where relatively short walks leave me short of breath. A flight of stairs is embarrassing if I am with someone. Any suggestions on how to know …

Author: Ratch
0 Votes
7 Answers
Any one heard of - "Cellular therapy."?

Just got the Sept Reader's Digest. On page 20, there's an ad by the Lung Health Institute - promoting their "Cellular therapy." Their treatment will "harness your body's natural ability to to promote healing!" They offer great stats on their status. …

Author: edpe77
0 Votes
2 Answers
Short Term Memory

My husband has COPD, Gold Stage 4. He was diagnosed 5 years ago, but he has definitely had it longer than that. He has been on oxygen 24/7 since day 1 of diagnosis. Lately , I have noticed his short term memory of things I tell him is not so great. Is …

Author: PamR
0 Votes
6 Answers
Generic Spiriva

Do you know when Spiriva will be available generically? It's so expensive, even with insurance.

Author: rnlinda
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0 Votes
3 Answers
Oxygen levels - drop while laying down?

Hi. I'm new here and this is my first question. Is it common for oxygen levels to drop while laying down? Was diagnosed with COPD about a year ago and was prescribed Anoro. Things have been pretty good until this week when my oxygen drops while sleeping …

Author: Roxie17
0 Votes
2 Answers
Headache wen using concentrator

My moms unit was replaced and I have noticed that she started complaining about headaches since the change. I suspect the unit is outputting bad quality air but have no proof. I confirmed that when she complaints about headache and I retrieve the canula …

Author: gre
0 Votes
2 Answers
Do pets make COPD worse?

My father has COPD and has been advised not to have a pet and to avoid houses with pets. I've read lots of posts that all focus on managing allergies to pets. He doesn't have any allergies. Does anyone know if contact with pets can actually make his …

0 Votes
2 Answers
What is ild ?

what is ild ?

Author: Chippie
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0 Votes
3 Answers
Travleing with oxygen.

Do airports have plugs for oxygen concentrators close to the gate? Also, are the plugs on a plane sufficient to charge oxygen concentrators? We are thinking of a trip next year and my husband has been on oxygen for a year now.

Author: algoldade
0 Votes
6 Answers
Emphysema diagnosis

Hi Bill - COPD is an "umbrella" term for a variety of lung issues. Chronic bronchitis, emphysema, bronchiectasis, and even some forms of asthma may fall under that umbrella. A person may have only chronic bronchitis or only emphysema or a combination. …

Author: Anonymous
0 Votes
11 Answers
COPD & Strange Chest Pain?

I know this probably seems like a "dumb" question to most, but I get very weird chest discomfort seems in upper chest & spikes in blood pressure. I don't know if it's COPD related or from anxiety?? Always makes me think I am having a heart attack or …

Author: chatty
0 Votes
3 Answers
Does Co enzyme Q10 help COPD?

Coenzyme Q10 (CoQ10) is a substance similar to a vitamin. It is found in every cell of the body. Your body makes CoQ10, and your cells use it to produce energy your body needs for cell growth and maintenance. It also functions as an antioxidant , which …

Author: JohnC
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0 Votes
6 Answers
COPD Coping tips

I am 47yrs old and newly diagnosed with COPD. The hardest part is coming to terms with not being able to do anything strenuous without first having to think about it. How does one remain positive with such major changes to your 'quality of life".

0 Votes
3 Answers
Work, stress and COPD

I have a high stress/long hours job and was just diagnosed with severe COPD/emphasyema. I am having good days and bad days at work with fluctuating levels of energy. Some people have told me that stress can agrivate symptoms. Is there any truth to this? …

Author: Ratch
0 Votes
4 Answers
Gratitude

I am in that phase of diagnosis where I have been told of my disease but am waiting for an appointment with a specialist to learn what that really means. My mind is racing and scared. Finding this resource and the people who participate has been a gift. …

Author: Ratch
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.