0 Votes
2 Answers
Telemarketing Ins.Plan

news Oct ,2 2018 Medication Problems; The Dr.s,Nurse,and Pharmacy,have done their part back in August,2018.... However,Medicare Managed Care telemarketing,intercepted with their Dr.(Unknown and Never seen).. Blocked all services,because I never left my …

0 Votes
16 Answers
COPD Education Gaps

Hi Friends! I am working with a group of healthcare professionals on a project and our goal is to make COPD education meaningful, and have more impact for people who may be new to living with COPD. Specifically, our work will be with people who have been …

0 Votes
4 Answers
Newly diagnosed and confused.

I am newly diagnosed with COPD and am waiting to see a pulmonologist. My GP told me my FEV1 is 41% which is 'concerning'. I've done the worst thing and googled it and now think the sky is falling. How concerned should I be? Thanks everyone.

Author: Ratch
0 Votes
1 Answers
Filled out the information and it's disappeared

I put a lot of thought in it and I hope it can be retrieved. I was filling in a few tags and it just vanished.

0 Votes
9 Answers
How to prepare for a doctors visit?

I recently listened to a podcast that talked about the average time a patient may have with their primary care provider! Through collecting responses from PCP's and patients, they came to the conclusion that the average time a PCP and patient have for an …

0 Votes
3 Answers
Any advice welcome re: gaining strength before operation

If you can you might look into pool aerobics low joint stress and you can help build endurance that way. Good luck

Author: 6Thor6
0 Votes
5 Answers
End stage copd, are there any new medications that can help?

One other thing... There are a couple of different breathing techniques that will help her, too. One is pursed lip breathing and the other is diaphagmatic breathing. These techniques will help her be more effective with each breath and will allow her to …

0 Votes
1 Answers
Nursing pt rehab centers vs at home nursing palliative/ hospice care?

My mother is in hospital the past week because of an exacerbation and pneumonia. My family wants her to try pt rehab. Most of the pt nursing places have bad reviews by patients and family. Should she go to a place that is below or average, or just do …

0 Votes
8 Answers
What do you do,when your Medication is removed from the formulary on your Medical Plan.?

My Pharmacy withheld my Medication,and demanded $652.52 Cash!! Oxygen provider charging $2300 Cash.. The phone numbers and fiance companies are tied to "Puerto Rico",CVS,Walgreens,United Healthcare. Are all of these companies leaving the USA,? Do your …

0 Votes
1 Answers
Open Enrollment

Open Enrollment ,starts soon. Be careful answering the phones..Do Not ,Do Not,, Give out your new Medicare Number over the phone...One mistake can prevent you for going into your own files..This is what hackers do.. You will get calls regarding your …

0 Votes
11 Answers
Emergency Tanks and POC

Before I call Lincare, I would like to be prepared with information. A recent storm left us without power for 3 days. Was supposed to be longer, but thankfully, it was not. I use my compressor plugged into the wall, and i have a POC. I have about half a …

Author: Jastro
0 Votes
6 Answers
Medicare and 02 Coverage

I am told Medicare won't cover a POC and 02 tanks. Ok, what do people do if the power fails and tanks are the only option?

Author: Jastro
0 Votes
4 Answers
Exacerbation/Flare Up where ONLY Symptom is Lower O2 Saturations

I’ve been diagnosed with moderate to severe emphysema since 2000. Normally, my exacerbation or flare ups start with discolored mucus or at least an increase in mucus (normally I have none). The past three times I’ve had just decreased O2 saturations at …

0 Votes
16 Answers
Medciare tips and advice, what do you wish you knew?

I am in the process of figuring out what Medicare coverage I will be getting including a drug plan. What if any tips you might have, maybe things you wish you knew before you made your decisions, what to look for, what to look out for. Any feedback is …

Author: Anonymous
0 Votes
5 Answers
Medicare within months....should I wait?

I am new to all of this. COPD.... just got prescription for 4L oxygen. Trying to get POC seems like having to fight with the companies. No one wants to give you any information (cost, machines, rental, insurance vs medicare). They all want to "process …

Author: HappyFace
0 Votes
1 Answers
I feel my breathing more elaborate and I am sweating a lot

I am 43 years old and diagnosed about two years with COPD, with a FEV1 of 71%. I had already quit smoking a few months before the diagnosis and I have been exercising with long walks daily, as I followed the medication to the letter. However, I feel that …

Author: Prieto74
0 Votes
9 Answers
When can you accept the pulse/ox reading?

This afternoon, in a plseant 72F/65%, enjoying a cup of coffee with a friend. Feeling slightly SOB, I checked my O2, on my thumb as I usually do. 84%! I turned on the O2, and watched it bounce around 84%-87%. I then increased the O2 to #3, still below …

Author: edpe77
0 Votes
4 Answers
Kind of confused on saturation levels

walking, my 02 starts out at 95 then goes up and down like the small inclines I am walking. It will go down to 89, then back up to low 90's. Had it go as low as 86 and then came right back up to 91. I am on 02 at night. I walk a little over 2 miles if …

Author: BabyB54
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0 Votes
1 Answers
COPD Inhalers that need help

I'm back on Combivent Respimat. Trouble is I don't get much relief from it alone. Figured a nebulizer would be the ticket but both the Albuterol Nebulizer or the DuoNeb seem to be too much and I wind up with major breathing difficulties. Any suggestions?

Author: Wheezer242
0 Votes
9 Answers
Are you a Patient with Home Oxygen? We need your help!

Are you or a loved one using oxygen? If so, we want to hear what challenges you are facing so that we can help advocate to improve your quality of life. For the first time in years, the Centers for Medicare and Medicaid Services (CMS) is proposing …

0 Votes
1 Answers
Questions about COPD Foundation State Captain Program

Hello all- I thought I would post a few frequently asked questions I get asked about the State Captains Volunteer Program! What is the State Captains Program? The State Captains program is a group of 100+ volunteers who want to help spread awareness …

0 Votes
1 Answers
Are there any recognized treatments for patients with both COPD and Sarcoidosis

Are there any recognized treatments for patients with both COPD and Sarcoidosis

Author: Rob62
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0 Votes
1 Answers
Celcept and prednisone

hi all, my pulmonologist now wants to put me back on 10mg prednisone to be tapered off when the cellcept becomes useful. Still ideopathic so guess he is treating symptoms in case it’s IPF. It’s hard for me to talk to him about these issues maybe because …

Author: Evie
0 Votes
7 Answers
Liquid Oxygen Therapy advice

Hello I'm new on this site today trying to find alternative ways my dad can have emergency oxygen. He uses 6 lpm on constant flow with his Invacare Platinum 10 home system. I just read a post about Liquid O2 therapy. Can anyone please tell me if he would …

Author: GigiJ
0 Votes
4 Answers
Inogen One g3 repeatedly turning on and off

My mother has an Inogen One g3 for a few months and all of a sudden tonight it turned itself on and then the display would flash "shutting down", then it would restart. It keeps doing this repeatedly. The only way to stop was to remove the battery. I …

Author: mnt568
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    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.