0 Votes
7 Answers
NAC

Has anyone heard of, or use the amino acid supplement called NAC (N-Acetyl-Cysteine) ? It is supposed to be helpful for cystic fibrosis and COPD. I also read it is given in the ER for Tylenol overdoses. Just wondering if anyone takes it or knows of it.

Author: Anonymous
0 Votes
13 Answers
Exacerbation-cause any long term issues?

Has anyone had permanent issues with an exacerbation, I'm feeling much better, just curious if they caused any long term issues, even if it is mild. Not a whole lot of literature of possible damage, lots of articles how to prevent them and how to take …

Author: Anonymous
0 Votes
5 Answers
Do you change liters on your machine?

My deal with my pulmo is that I keep my O2 saturation sats between 92 and 97 and he really doesn't care how I do that. Since I'm one of the few people I know who regularly use all forms of O2 available for home use (POC, LOX and electric concentrator) at …

Author: Marilyn
0 Votes
7 Answers
Check In – Quarantine Eating for Health

I just heard a news anchor comment on how she will need to lose her “Quarantine 15” as soon as the lockdown is over. That made me laugh out loud, but probably because it hit close to home. I remember when I was in college my friends and I spent a lot of …

0 Votes
1 Answers
Colonoscopy or Barium emema

Colonoscopy is it safe ? Ima scared right now to be sedated. Pulmonologist said I should be ok . And stomach Doctor says it will be done at hospital not at normal onsite practice. But ima scared ta death. I have read about a Barium emema seems like a …

0 Votes
5 Answers
Does anyone experience laryngitis during an episode?

Does anyone experience laryngitis during an episode? Even at rest when breathing is fine my voice is gone. Starting to think I'll never get it back. Thank you!

0 Votes
4 Answers
Insurance-Any suggestions on companies that operate in Biloxi area?

Looking to move to the Biloxi area. UHC/AARP dose not offer any similar policies to what I have with the medicare supplement in that area unless I am on Medicaid and that is out of the question due to income. Any suggestions on companies that operate in …

Author: Grover
0 Votes
5 Answers
Inhalers-Any advice would be great

Hi guys, I'm new here so I'll introduce myself first. I'm 37 & quit smoking over 5 months ago. I felt fine until 2 months ago when I started getting breathless going up stairs. After the lung function test my result came back at 65%. I am feeling good …

Author: xStaceyx
0 Votes
8 Answers
Ideopathic? Asking for some helpful input.

So my pulmonologist said that my condition is ideopathic. He does not think I have IPF which is encouraging but no diagnosis is frustrating. Numbers are about the same with FEV 1 at 1.53/ 68%. Put me on 3ml with activity. Now opinion please we have …

Author: Evie
0 Votes
8 Answers
How to make Friends on COPD360social

how do "make friends" on here or follow people?

Author: Berly
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0 Votes
5 Answers
Fev1-lower when sitting - higher when walking?

Why is my sats lower when sitting. When I walk around they get higher. Seems backwards to me!

0 Votes
3 Answers
Is severe fatigue that can last for hours a condition of severe COPD?

may be self explanatory but is severe fatigue that can last for hours, come on all of a sudden, a condition of severe copd. Thank you.

Author: Doedoe
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0 Votes
2 Answers
Emphysema? Yes or No?

I asked my pulmonologist if my emphysema last week and he said no. He was not worried about it as it was minimal. Is he telling me the truth?

Author: AndreaC
0 Votes
4 Answers
Diaphragm-feels like being shoved up into rib cage

Does anyone feel as though their diaphragm is being shoved up in to their rib cage

Author: Amy kubiak
0 Votes
3 Answers
Depression-Is this a common reaction?

Since the end of March, I have had 3 eye surgeries and had a pacemaker put in because my heart rate dropped to around 30. I was very depressed after getting the pacemaker which I guess is pretty normal. After the pacemaker was put in in July, I got …

Author: Mariann
0 Votes
6 Answers
COPD Educational Materials: Your feedback

Are you familiar with the COPD Foundation’s educational materials? If not, please browse here: http://www.copdfoundation.org/Learn-More/Educational-Materials/Downloads.aspx Which educational piece did you find the most helpful? How would you …

Author: Janina K
0 Votes
2 Answers
Risks vs. Benefits

With some unavoidable encounters with people, I worry about balancing risks and benefits. Some things I want to consider are: hospital waiting room while spouse is in surgery the only local source of rye flour is in a small Mennonite store and I have …

Author: muddleaged
0 Votes
7 Answers
DLCO low-My doctor told me I have mild COPD

My doctor told me I have mild COPD as my Spirometry test came back all normal except my DLCO is 64 which is considered mild low. My doctor said to quit smoking and I will be fine. I am 48 and worried about progression. Is there anything else I can do. …

Author: Rosie2697
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0 Votes
5 Answers
Curious-Does anyone here date your inhaler when you open it or just use it up?

I found a dry powder inhaler with 5 puffs left, it says to discard after 6 weeks of opening, I hate to waste it, even though I dont need it due to I have a few new ones, most of the staff at my store said its probably fine. Any suggestions? Does anyone …

Author: Anonymous
0 Votes
3 Answers
Cold at the office and I get a sore throat-is this related to COPD?

When I get cold at the office, I get a sore throat, is this related to COPD?

Author: JRodgers
0 Votes
1 Answers
How do they measure calories we use by breathing with COPD?

Just wondering how do they measure calories we use by breathing with COPD? I feel pretty balanced and remaining the same weight give or take 2 pounds + or -

Author: Anonymous
0 Votes
2 Answers
CT scan-Any ideas or suggestions?

dr told me I have severe COPD/emphysema but CT scan shows no evidence of emphysema. Dr says I have lost 55% lung capacity. I had pneumonia when I did the breathing test. I’m confused due to the CT scan results. Any ideas suggestions?? Thanks

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0 Votes
4 Answers
CT results-Is there any way CT scans may say emphysema but it’s not what the pulmonologist finds?

hi, I’m still in shock and due to today, awake and googling.... hence how I “landed” here. I had a lung CT scan per my NP suggestion as I used to smoke and she suggests them for her patients who either currently smoke or previously did. I almost …

0 Votes
4 Answers
Female patients with COPD is rising

The number of female patients with chronic obstructive pulmonary disease (COPD) is rising throughout the world, yet COPD in women is worryingly unrecognized and often misdiagnosed.

0 Votes
1 Answers
CBD Oil-has been tested in the COPD realm?

I see a lot of talk about CBD Oil being used to treat a lot of illnesses in the world today, with pretty amazing results. I am wondering if it has been tested in the COPD realm, or if anyone out there uses it in any way. Wishing everyone the best, and …

Author: tlane
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