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American Lung Association

Category:  Patient Advocacy Organization

Description: The American Lung Association (ALA) was founded over 110 years ago in response to the need to coordinate the fight against tuberculosis. Over the past century, ALA has grown to become one of the world’s leading lung health organizations, with an emphasis on prevention, advocacy, and research. The mission of ALA is to save lives by improving lung health and preventing lung disease. ALA is primarily focused on the entire U.S. with a global reach via their digital platforms.

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The National Rural Health Association

Category:  Rural Health Organization

Description: The NRHA is a membership organization with over 21,000 members. It exists to cross the hurdles faced by those seeking and providing healthcare in rural America. They provide a wide range of professional development, advocacy, education and research programs.

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American Association for Respiratory Care

Category:  Health Professional Society

Description: The American Association for Respiratory Care (AARC) is a not-for-profit professional association with more than 52,000 members worldwide. AARC membership primarily consists of respiratory therapists. Their mission is to advance the science, technology, ethics, and art of respiratory care through research and education for its members and to teach the general public about pulmonary health and disease prevention. The AARC has 50 chartered affiliates that involves members in local and state activities, as well as issues of national interest to respiratory therapists and the patients they serve.

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The Alpha-1 Foundation

Category:  Patient Advocacy Organization

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. The Alpha-1 Foundation was founded in 1995 by three patients. They collaborate with investigators throughout the United States and Europe, as well as the National Institutes of Health, the US Food & Drug Administration, the pharmaceutical industry and individuals affected by Alpha-1, to promote research and the development of new therapies for Alpha-1 patients. They fund peer reviewed research, operate a patient reported research registry and facilitate a network of clinical resource centers, in addition to offering direct patient education online, on the phone and via a series of regional live events.

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